E3 Advocacy Issue 6 Dec 2024

E Advocacy 3

Empower, Engage, and Educate Heal Canada digital magazine

December 2024 Issue 6

Patient rights

Emergent Treatments Belonging, Diversity, Inclusion and Equity Mental Health Seniors' Health Pediatric Health Patient Journey's Living Well

Plus

Resources for Industry Stakeholders, Patients and Carepartners

Table of contents Welcome Patient rights Patient Rights in the Canadian Healthcare Patient Advocacy and Patient Rights Integrating Technology with Human Touch Emerging Treatments Health Canada’s new approval Diversity, Inclusion, and Equity Diversity, Equity, and Inclusion in Patient Rights in Canada

Mental Health Caring for the Carers Reading for Well-Being Navigating the Challenges of the Holiday Season.

Culturally Responsive and TraumaInformed Mental Health Care During the Holidays Discovering Peace in Difficult Times Senior Health Hearing Loss Prevention Taking Charge of The Hearing Loss Journey Pediatric Health The Impact of Screen Time on Mental Health: What Parents Need to Know

3 4 5 10 15 20 21 26 27

33 34 36 38 41

Advocacy Spotlight 66 Staywell 67 Patient Journey 69 Hope: A Physician's Journey 70 Living with Multiple Myeloma 72 Living Well 76 Fueling Your Mind 77 7 Easy Ways to Make it Through Any 81 Holiday Mental Fitness 84 Butternut Squash Lasagna 90 Ask the Professional 92 Resources 96 Heal Canada Resources 97 Clinical Trial and Registries 98 References 99 Alliances 103 Supporters 104 Heal Canada Team 105

44 47 48 50 55 56

Vist Heal Canada.org to download this current issue and subscribe for future issues

Founders Note Welcome to our 6th Issue, of E3 Advocacy. A digital magazine for Patient Advocates and Patient Centricity This edition is focused on Patient Rights, and how Patient Advocacy plays in integral role in Patient Rights and the healthcare system. Patient Centricity in Healthcare system is vitally important, and Patient Rights play a key role.

Advocacy Spotlight

We're deeply grateful to our readers for their continued interest and support. Your engagement drives us to bring insightful and valuable content to each issue. By subscribing to E3 Advocacy Digital Magazine, you'll stay connected with us and gain access to future issues that explore topics that matter to you and the healthcare community. Become a subscriber and visit our website at https://www.healcanada.org to enjoy all benefits.

In each Issue, we have been adding new sections to be inclusive of the entire Healthcare Ecosystem.

We are humbled at the momentum we are gaining with the information to our readers. This digital publication is being read by patient advocates, patients and care partners, Healthcare Practioners and stakeholders across the world.

Heal Canada is a registered Not For Profit Organization in Canada.

Check out “My Blood My Health,” under the editorial supervision of our Chief Scientific Officer, Brigitte Leonard, for all Bloodrelated issues.

Thank you for being a part of our journey, and welcome to another enlightening issue!

Disclaimer: The Patient Advocacy Digital Magazine provides general information and resources to promote patient empowerment and awareness. The content is not a substitute for professional medical advice or treatment.

Always consult with qualified healthcare professionals for personalized guidance regarding your specific medical condition or situation.

www.healcanada.org

Cheryl Petruk, MBA, B.Mgt. Founder Heal Canada

E3 Magazine /3

Patient Rights

Patient Rights in the Canadian Healthcare

by Cheryl Petruk, MBA, BMgt.

The Canadian healthcare system, known for its universal coverage and accessibility, is guided by equity, fairness, and compassion principles. At the core of this system are patient rights—rights that ensure individuals receive appropriate, respectful, and informed care. Understanding and protecting these rights is critical to maintaining the trust and effectiveness of the system. This article explores the foundational principles of patient rights in Canada, their legal and ethical frameworks, patients' challenges, and advocacy's role in enhancing the healthcare experience.

Foundational Principles of Patient Rights Patient rights in Canada are deeply rooted in the Canada Health Act (CHA), which outlines principles that govern the publicly funded healthcare system. These include: Public Administration: Ensuring the healthcare system operates transparently and without profit motive.

Universality: Providing all Canadian residents equal access to healthcare services.

Comprehensiveness: Covering medically necessary services.

Accessibility: Removing financial barriers to accessing care.

Portability: Allowing Canadians to access healthcare across provinces.

While these principles establish a foundation, patient rights extend beyond system-wide guidelines. They encompass the individual’s entitlement to dignity, privacy, informed consent, and autonomy.

Key Patient Rights in Canada 1. The Right to Informed Consent Informed consent is a cornerstone of patient autonomy. It ensures that patients make decisions about their care based on a clear understanding of the benefits, risks, and alternatives to any proposed treatment or procedure.

Legal Basis: Informed consent is enshrined in Canadian common law and supported by provincial health acts. Healthcare providers must ensure patients are fully informed before administering treatments.

Challenges: Language barriers, health literacy, and rushed consultations can sometimes impede patients from fully understanding their options.

2. The Right to Confidentiality and Privacy Patients have a right to privacy regarding their health information.

Provincial legislation governing this right includes Ontario’s Personal Health Information Protection Act (PHIPA) and British Columbia’s Freedom of Information and Protection of Privacy Act (FIPPA).

Key Protections: Healthcare providers must ensure patient data is stored securely, shared with consent, and accessed only for legitimate purposes.

Emerging Concerns: The rise of digital health records and telemedicine raises new challenges in safeguarding sensitive information.

E3 Magazine /5

Patient Rights in the Canadian Healthcare cont'd

3. The Right to Respect and Non-Discrimination Every patient deserves to be treated with respect and without discrimination based on race, gender, religion, disability, or socioeconomic status. Unfortunately, systemic inequities and unconscious biases still affect some patients' experiences within the healthcare system.

Notable Examples: Indigenous patients often report racism and stereotyping, leading to mistrust and reluctance to seek care.

Response: To address these issues, cultural competency training and anti-racism policies are being implemented in many healthcare settings.

4. The Right to Access Healthcare While Canada’s universal healthcare system is designed to ensure accessibility, disparities persist due to geographic, financial, and systemic barriers.

Urban vs. Rural Divide: Patients in remote areas often struggle with limited access to specialists and advanced treatments.

Wait Times: Long wait times for elective surgeries and diagnostic tests remain a significant concern.

5. The Right to Participate in Decision-Making Patients have the right to participate actively in decisions about their care, a principle aligned with patient-centered care models.

Shared Decision-Making: Encouraging collaboration between patients and providers improves outcomes and satisfaction.

Challenges: Power imbalances, communication gaps, and paternalistic attitudes can hinder effective participation.

6. The Right to Complain and Seek Redress Patients dissatisfied with care can voice their concerns and seek resolution through formal complaint mechanisms, such as provincial health ombudspersons.

Role of Ombudspersons: Provincial health ombudspersons play a key role in investigating complaints and recommending systemic improvements.

Underutilization: Fear of retribution or lack of awareness about complaint mechanisms often prevents patients from speaking out.

E3 Magazine / 6

Patient Rights in the Canadian Healthcare cont'd Legal and Ethical Frameworks Supporting Patient Rights Canada’s legal and ethical landscape is rich with frameworks designed to protect and promote patient rights: 1. Legal Protections Charter of Rights and Freedoms: Although primarily focused on fundamental freedoms and equality rights, the Charter indirectly impacts healthcare by ensuring freedom from discrimination.

Provincial Legislation: Each province has health acts that outline specific patient rights and responsibilities.

Tort Law: Patients who experience harm due to negligence or breaches of consent can seek redress through civil lawsuits.

2. Ethical Principles The ethical practice of healthcare in Canada aligns with four main principles: Autonomy: Respecting patients’ right to make their own decisions.

Beneficence: Acting in the best interests of patients.

Non-Maleficence: Avoiding harm to patients.

Justice: Ensuring fairness in the distribution of resources and care.

Healthcare professionals are guided by ethical codes from their respective regulatory bodies, such as the Canadian Medical Association (CMA) Code of Ethics and the Canadian Nurses Association (CNA) Code of Ethics.

Challenges to Upholding Patient Rights Despite robust frameworks, challenges persist in ensuring all patients fully exercise their rights. These include: 1. Systemic Inequities Indigenous patients often face racism, limited access to culturally appropriate care, and poor health outcomes.

Language and Cultural Barriers: Immigrant populations may struggle with language barriers and cultural differences in healthcare expectations.

2. Financial Constraints While medically necessary services are covered, out-of-pocket medical, dental, and mental health expenses strain many patients financially.

3. Mental Health Stigma Patients seeking mental health support often encounter stigma, long wait times, and fragmented services, undermining their rights to timely and respectful care.

4. Health Literacy Low health literacy levels can prevent patients from understanding their rights and navigating the healthcare system effectively.

5. Overburdened System Healthcare providers, overwhelmed by workload and limited resources, may inadvertently compromise patients’ rights due to time constraints or burnout.

E3 Magazine / 7

Patient Rights in the Canadian Healthcare cont'd The Role of Advocacy in Protecting Patient Rights Advocacy plays a critical role in empowering patients and addressing systemic challenges. This can take various forms: 1. Patient Advocacy Organizations Groups like the Canadian Health Coalition and Patient Voices Network amplify patient concerns and push for systemic reforms.

2. Legal Advocacy Organizations such as the BC Civil Liberties Association provide legal support to patients whose rights have been violated.

3. Peer Advocacy Peer support programs enable patients to share experiences, resources, and strategies for navigating the healthcare system.

4. Healthcare Providers as Advocates Healthcare professionals are often patients’ first line of defence in upholding their rights.

Advocacy training equips providers to champion patient-centered care.

Steps to Enhance Patient Rights in Canada Protecting and promoting patient rights requires concerted efforts from policymakers, healthcare providers, and patients themselves. Key strategies include: Steps to Enhance Patient Rights in Canada Protecting and promoting patient rights requires concerted efforts from policymakers, healthcare providers, and patients themselves. Key strategies include: 1. Strengthening Legal Protections Standardizing patient rights legislation across provinces to ensure consistency .Enhancing enforcement mechanisms to address violations effectively.

2. Increasing Health Literacy Developing accessible educational materials on patient rights.

Offering workshops and resources in multiple languages to reach diverse populations.

3. Addressing Systemic Inequities Expanding cultural competency training for healthcare providers.

Increasing funding for Indigenous healthcare programs.

4. Improving Access Reducing wait times through innovative solutions like telemedicine and triaging systems. Expanding coverage for services like mental health care and prescription medications.

5. Empowering Patients Encouraging patients to ask questions, seek second opinions, and participate actively in decision-making. Promoting awareness of complaint mechanisms and legal recourse options.

E3 Magazine / 8

Patient Rights in the Canadian Healthcare cont'd

Future Directions The landscape of patient rights in Canada is evolving in response to emerging challenges and innovations. As technology transforms healthcare delivery, new data privacy, consent, and equity issues will arise. Policymakers and healthcare providers must remain vigilant in adapting to these changes while upholding the principles of fairness and compassion.

The growing emphasis on patient-centered care and collaborative decision-making also signals a shift toward greater patient empowerment. By fostering a culture of respect, transparency, and accountability, the Canadian healthcare system can continue to serve as a global model for equitable care.

Patient rights are fundamental to the Canadian healthcare system, ensuring individuals receive dignified, informed, and equitable care. While the system boasts a strong foundation, systemic inequities, resource constraints, and health literacy gaps highlight the need for ongoing advocacy and reform.

By strengthening legal protections, addressing barriers, and empowering patients, Canada can uphold the principles of its healthcare system and enhance the well-being of all its residents.

Ultimately, safeguarding patient rights is not only a legal and ethical obligation but also a reflection of the values that underpin Canadian society.

E3 Magazine / 9

Patient Advocacy and Patient Rights: A Crucial Partnership in the Canadian Healthcare

by Cheryl A Petruk, MBA. B.Mgt

The Canadian healthcare system, built on the principles of universality, accessibility, and equity, is often praised globally as a model of public health delivery.

At the heart of this system lies the recognition of patient rights—a framework designed to ensure that individuals receive fair, respectful, and informed care.

However, ensuring these rights are upheld requires more than legislative and ethical commitments; it requires the active presence of patient advocacy. Patient advocacy is the bridge that connects patient rights to meaningful healthcare experiences, empowering individuals to access care, voice concerns, and influence system-wide improvements.

This article will explore the critical role of patient advocacy in advancing patient rights, addressing healthcare inequities, and improving outcomes within the Canadian healthcare system. It will also examine challenges and propose ways to strengthen the intersection of advocacy and rights to achieve equitable healthcare for all.

Understanding Patient Rights in Canada Patient rights in Canada are not codified under a single national law. Instead, they are protected and outlined through a combination of federal legislation, provincial health acts, and ethical guidelines.

Key rights include: The Right to Access Healthcare As outlined in the Canada Health Act (CHA), all residents have access to medically necessary services without financial barriers.

The Right to Informed Consent Patients have the right to be informed about their care options, potential risks, and benefits before consenting to any treatment.

The Right to Privacy and Confidentiality Health information must be protected under laws like provincial privacy acts and federal legislation such as the Personal Information Protection and Electronic Documents Act (PIPEDA).

The Right to Respect and Non-Discrimination Patients are entitled to care that is free from discrimination based on race, gender, socioeconomic status, or any other personal characteristic.

The Right to Complain and Seek Redress Patients can file complaints through healthcare organizations, provincial ombudspersons, or health regulatory bodies if their rights are violated. While these rights are foundational, challenges like systemic inequities, lack of awareness, and gaps in accountability often prevent patients from exercising them effectively. Here is where patient advocacy becomes indispensable.

E3 Magazine / 10

Patient Advocacy and Patient Rights: A Crucial Partnership in the Canadian Healthcare cont'd The Role of Patient Advocacy in Upholding Patient Rights Patient advocacy refers to the actions, policies, and initiatives that promote and protect the interests, voices, and rights of patients. Whether carried out by healthcare professionals, organizations, or individual advocates, it empowers patients to navigate the healthcare system while ensuring their rights are respected and upheld.

1. Bridging the Gap Between Patients and the System The Canadian healthcare system can be overwhelming, especially for patients navigating complex medical conditions, long wait times, or fragmented care. Advocacy plays a key role in: Navigating the System: Advocates help patients access specialists, coordinate care, and navigate administrative barriers like referrals and insurance claims.

Explaining Rights: Many patients are unaware of their rights. Advocates educate patients, ensuring they understand their entitlement to informed consent, respect, and access to services.

Example: In cases of rare diseases, organizations like the Canadian Organization for Rare Disorders (CORD) advocate for timely diagnoses, access to therapies, and policies that address the unique needs of rare disease patients.

2. Empowering Vulnerable Populations While Canada’s healthcare system is designed to provide equitable care, systemic inequities persist. Marginalized groups, including Indigenous communities, new immigrants, racial minorities, and people with disabilities, often face barriers to care.

Indigenous Health Advocacy: Indigenous patients have historically experienced systemic racism and healthcare disparities. Initiatives like Jordan’s Principle ensure that Indigenous children receive the care they need without jurisdictional disputes.

Immigrant Advocacy: Newcomers may struggle with language barriers, cultural differences, and unfamiliarity with the healthcare system. Advocacy organizations ensure they access culturally sensitive care and interpretation services .

Case in Point: Programs such as the First Nations Health Authority (FNHA) in British Columbia advocate for Indigenous health rights while providing culturally safe healthcare resources.

E3 Magazine / 11

Patient Advocacy and Patient Rights cont'd 3. Strengthening Patient Voices in Decision-Making Patient-centered care is a core principle of modern healthcare, emphasizing the patient’s role in decision-making processes.

Advocacy ensures that patients are not passive recipients of care but active participants in their health journey.

Shared Decision-Making: Advocacy encourages collaboration between patients and healthcare providers, where patients’ values, concerns, and preferences inform treatment plans.

Representation in Policy: Patient advocates often contribute to policy discussions and healthcare reforms, ensuring patient perspectives are heard.

Example: Patient partners and advocates are increasingly included in research, clinical trials, and hospital boards to inform decision-making based on lived experiences.

4. Addressing Gaps in Accountability While Canadian healthcare organizations are bound by ethical and legal obligations, lapses in care or breaches of patient rights can occur. Advocacy plays a critical role in addressing these gaps by: Filing Complaints: Advocates assist patients in voicing concerns to provincial health authorities, ombudspersons, or regulatory bodies.

Improving Quality of Care: By highlighting recurring issues, advocacy drives systemic improvements and accountability.

Example: The Office of the Patient Ombudsman in Ontario provides a formal avenue for patients to seek redress and push for reforms based on complaint trends.

Challenges to Effective Patient Advocacy in Canada While advocacy is essential, it faces several challenges in the Canadian healthcare landscape: 1. Limited Resources for Advocacy Organizations Many advocacy groups rely on limited funding, restricting their ability to reach all patients who need support. This is particularly evident in underfunded rural or Indigenous communities.

2. Health System Fragmentation The decentralized nature of Canada’s healthcare system creates inconsistencies in patient rights enforcement and advocacy programs across provinces and territories.

3. Lack of Awareness Patients often lack awareness about their rights or available advocacy resources. This gap prevents individuals from accessing the care and support they need.

4. Power Imbalances Power dynamics between healthcare providers and patients can discourage advocacy, particularly when patients fear retaliation for speaking out about inadequate care.

E3 Magazine / 12

Patient Advocacy and Patient Rights: A Crucial Partnership in the Canadian Healthcare cont'd Key Advocacy Initiatives in Canada Despite these challenges, several successful advocacy efforts have demonstrated the power of combining advocacy with patient rights: 1. The Canadian Cancer Society This organization advocates for cancer patients’ access to treatment, funding for research, and improved palliative care. Their work has influenced government policies and ensured that cancer patients’ voices are represented at all levels of decision-making.

2. Mental Health Advocacy Organizations like the Canadian Mental Health Association (CMHA) have led campaigns to reduce stigma, improve mental health resources, and advocate for policy changes to increase access to mental health services.

3. Rare Disease Advocacy Groups like CORD work with policymakers, researchers, and healthcare providers to improve diagnosis, treatment options, and patient support for rare disease patients.

4. Indigenous Health Advocacy The Assembly of First Nations (AFN) and the FNHA have been instrumental in advocating for culturally safe care and addressing healthcare inequities among Indigenous communities.

The Future of Patient Advocacy in Canada To further strengthen patient advocacy and its role in upholding patient rights, Canada must take the following steps: 1. Increase Support for Advocacy Organizations Governments and private stakeholders must provide funding to advocacy groups, enabling them to expand their reach and support vulnerable populations effectively.

2. Enhance Patient Education Healthcare providers and institutions should prioritize educating patients about their rights and available advocacy resources. Materials should be accessible, culturally relevant, and multilingual.

3. Address Systemic Inequities Advocacy efforts must continue to focus on eliminating systemic barriers to care, particularly for Indigenous, immigrant, and low-income populations.

4. Strengthen Legal Protections Canada can consider national legislation that codifies patient rights uniformly across all provinces and territories, strengthening enforcement and accountability mechanisms.

5. Integrate Advocacy into Healthcare Delivery Hospitals and healthcare providers should incorporate professional patient advocates into care teams to ensure patients receive the support they need throughout their healthcare journeys.

E3 Magazine / 13

Patient Advocacy and Patient Rights: A Crucial Partnership in the Canadian Healthcare cont'd Patient advocacy and patient rights are inextricably linked in Canada’s healthcare context. While patient rights provide the ethical and legal foundation for equitable care, advocacy ensures that these rights are upheld, respected, and acted upon. Advocacy empowers individuals to navigate the system, amplifies the voices of marginalized populations, and drives systemic change to address healthcare inequities.

In a country that prides itself on the values of universality, accessibility, and compassion, patient advocacy is not just an added support—it is an essential mechanism for achieving a healthcare system that truly serves every Canadian. By investing in advocacy, strengthening education, and addressing systemic challenges, Canada can continue to be a global leader in patient-centered care, where the rights of every individual are not only recognized but actively protected.

Have your voice heard!

Visit the My Blood My Health website and participate in our Quality of Life Survey

mybloodmyhealth.ca

E3 Magazine / 14

Integrating Technology with Human Touch: The Future of Primary Care

by Dr. Raymond Rupert

The Canadian healthcare system stands at a critical crossroads. With mounting pressures from staffing shortages, increasing wait times, and provider burnout, the need to reimagine primary care delivery has never been more urgent. Yet, while technology is revolutionizing healthcare delivery, at its heart, medicine remains a profoundly human endeavour. A real opportunity lies in creating a more responsive, efficient, and human-centered healthcare system that ensures innovations enhance rather than diminish the essential connections that make healthcare meaningful and effective.

Understanding Today's Healthcare Landscape Recent data reveals critical challenges in Canadian primary care. According to 2023-2024 national statistics, 6.5 million Canadians lack a family doctor or nurse practitioner, with one in five Canadian adults without access to primary care. Wait times are significant - 37% wait several days for appointments with existing family doctors, and only 15% receive same-day access. Provider burnout is evident, with physicians spending up to 20 hours weekly on unpaid administrative tasks.

These statistics represent more than numbers – they reflect millions of Canadians struggling to access basic healthcare services, with challenges particularly acute in rural and remote communities where long-distance travel and extended waiting periods are standard. The growing complexity of patient needs and mounting administrative demands highlight the urgent need for innovative solutions to help bridge these significant gaps in care delivery.

Technology as an Enabler of Human Connection Digital solutions can deepen the patient-provider relationship rather than diminish it. Digital platforms have revolutionized how providers and patients connect between visits, enabling secure messaging and virtual consultations and extending care beyond traditional office hours. Virtual care options have proven valuable for follow-up appointments, medication adjustments, and routine check-ins, ensuring patients receive support while preserving in-person visits for moments requiring physical examination or more complex discussions.

Building Stronger Healthcare Partnerships Successful technology integration in healthcare delivery relies on a fundamental partnership between providers and patients. While digital tools offer powerful capabilities, their actual value emerges through thoughtful collaboration between doctors and patients who understand these

E3 Magazine / 15

Integrating Technology with Human Touch: The Future of Primary Care cont'd solutions’ potential and limitations. Patients who actively engage with digital platforms – whether through virtual visits, secure messaging, or health monitoring tools – help providers optimize these systems for better care delivery.

Enhancing Care Quality Through Technology Recent data demonstrates the tangible impact of digital transformation on care delivery.

According to a 2024 Ontario Medical Association pilot study, AI scribes reduce documentation time by 70-90%, saving doctors approximately 4 hours per week for direct patient interaction.

This efficiency translates directly to improved patient care – a March 2024 Webex survey of 2,000 patients shows 76% report improved healthcare experiences with digital tools, with 94% actively using digital channels.

Improving Care Coordination and Access The impact extends beyond individual appointments. According to Canada Health Infoway's 2023 study, 34% of patients accessing records electronically avoided unnecessary emergency department visits, and 45% avoided unnecessary in-person visits.

More than 4 in 5 patients reported better health management through digital access to their health information. This selective reduction in unnecessary visits ensures in-person time focuses on essential care and meaningful health discussions.

Fostering Continuous Improvement This collaborative approach requires ongoing education and feedback from both sides. Patients need clear guidance on effectively using digital tools and understanding when virtual care is appropriate and in-person visits are necessary. Similarly, providers benefit from patient feedback to refine their digital offerings and ensure they truly enhance the care experience. As technology evolves rapidly, everyone in the healthcare ecosystem - providers, patients, and support staff - participates in a continuous learning process, adapting and improving how these tools serve healthcare delivery.

Real-World Success: A Canadian Story Toronto-based RCM Health demonstrates how technology strengthens human connections in healthcare delivery. Their integrated ecosystem connects thousands of healthcare experts through a sophisticated digital infrastructure, creating an efficiently navigable network for complex patient care.

Reimagining Complex Care Delivery – RCM Health’s infrastructure enables human-centered care through a digital twin of healthcare resources that responds to patient needs regardless of complexity. The system’s value lies not in its technological sophistication but in how it enhances patient care delivery.

Team-Based Approach to Patient Care – Each complex case receives dedicated team support, preventing provider burnout through shared responsibility. Technology streamlines administrative tasks, allowing doctors to focus primarily on patient care.

E3 Magazine / 16

Integrating Technology with Human Touch: The Future of Primary Care cont'd Patient Engagement and Informed Decision-Making – The platform enhances patient engagement through active participation in healthcare decisions. Treatment plans are cocreated with patients and families, supported by secure two-way messaging systems that ensure continuous engagement throughout the care journey.

Innovation in Complex Case Management – For uncertain cases, the RCM Health THINK BOX leverages AI tools to map patient journeys and explore treatment options, moving beyond routine referrals to find optimal care paths for each patient's unique situation.

Supporting Human Connection Frequent and personal touchpoints remain the cornerstone of effective healthcare delivery. The most successful care models thoughtfully blend digital and personal interactions, freeing up time for doctors to have those real conversations and connections with their patients. Digital tools enhance these connections by allowing providers to prepare thoroughly, anticipate needs, and proactively address concerns. This continuous connection extends care beyond traditional visits, creating opportunities for ongoing support while facilitating greater involvement of families and caregivers.

As technology continues transforming primary care, the results are apparent: more time for meaningful conversations, better-coordinated care teams, and improved access for all Canadians. Success lies not in choosing between technology and human touch but in their thoughtful integration – creating a healthcare system that's more responsive, efficient, and fundamentally compassionate.

Dr. Raymond Rupert combines four decades of primary care experience with business innovation in healthcare delivery.

After completing his MBA from the University of Toronto, he founded RCM Health, building a global network of 4,000+ specialists and pioneering integrated complex care solutions. Now, as CEO and Founder of Healtheon, Dr. Rupert is transforming Canadian primary care through innovative technology and team-based approaches. His vision creates sustainable healthcare solutions that enhance public system delivery while offering optional wellness plans, making quality care accessible to all Canadians.

E3 Magazine / 17

Patient Advocacy Training contact: Info@CACHEducation.org

Emerging Treatments

Brigitte Leonard, PhD. Chief Scientific Officer, Heal Canada New treatments offer hope to patients and their loved ones.

Here, we present new therapies that are available to Canadians.

This section also addresses challenges around access to new medication. Our readers will find important information to help them understand Canada's drug review processes.

An informed and engaged patient is an empowered one. We aim to equip our readers with the tools and knowledge to navigate the complex healthcare landscape because, more than ever, patients need to raise their voices to get access to services.

Accessing innovative medicines can save patients' lives.

Health Canada recent approvals.

by Brigitte Leonard, Ph.D

According to the Health Canada database, the agency has evaluated and decided on the faith of 53 products in 2024. Of these 53, only 44 were authorized for commercialization in Canada (83%). Of these 44, only 26 were new active substances.

Since the last publication of E3 Advocacy, only two new products have been approved: Casgevry from Vertex Pharmaceutical and Ojjaara from GSK. New hope for people with sickle cell disease or beta-thalassemia Health Canada approved Casgevry for commercialization in September 2024 to treat two genetic blood disorders: sickle cell disease and beta-thalassemia.

In these two inherited diseases, the production of hemoglobin is affected. Hemoglobin binds and carries oxygen from the lungs to other parts of the body (Figure 1). Each red blood cell circulating in blood vessels contains several hundred million hemoglobin molecules.

Hemoglobin always contains four units called chains, which all contain a heme linked with iron (Figure 2). Hemoglobin chain types are different before and after birth. The predominant form of hemoglobin (Hemoglobin F) in the fetus will contain four chains: two alpha and two gamma. The body will stop producing this variant around 12 weeks after birth. At that time, the Hemoglobin A variant, which contains four chains (two alpha and two beta), will become the most predominant and stay during the rest of our lives (Figure 2). Both types of chains and their structure are essential for the function of hemoglobin.

In sickle-cell disease and beta-thalassemia, a mutation occurs in the gene that produces the beta chain on chromosome 11. This mutation causes the production of abnormal beta chains and disrupts red blood cell production and oxygen transport.

Casgevy (exa-cel: exagamglogene autotemcel) is a gene therapy developed by Vertex Pharmaceuticals and CRISPR Therapeutics.

The FDA approved it in the United States for treating sickle cell disease in December 2023 and beta-thalassemia in January 2024. EMA approved it for the European market in February 2024.

Casgevy is the 1st gene therapy approved that does not use a viral vector. Casgevy uses CRISPR/Cas9 technology to edit the patient's DNA cells that produce red blood cells. Casgevy does not repair the mutated gene on chromosome 11. It stimulates the production of the fetal form of hemoglobin silenced after birth. The fetal form (gamma chains) replaces the defective beta chains in the composition of hemoglobin to eliminate issues with the abnormal beta chain.

E3 Magazine / 21

Health Canada recent approvals cont'd Casgevy in sickle cell disease In the clinical study CLIMB SCD-121, patients who experienced more than three crises yearly became free from crises after Casgevy treatment. For a year, 97% of patients with sickle cell disease were free from crises. Also, participants didn't need hospitalization due to crises during the year. The clinical benefits are due to participants' capability to have early and sustained increases in total and fetal hemoglobin levels, reaching near-normal to normal levels at 6 months.

Patients were able to maintain better blood count over time.

How does it work?

1) In the hospital, patients' stem progenitor cells from bone marrow that produce mature blood cells are harvested.

2) Patient cells are sent to a central facility to be processed: Enrichment of progenitor cells Modification of progenitor cells with Casgevy (called editing) Proliferation of modified progenitor cells Cells will be tested, frozen, and shipped back to the hospital.

3) Upon confirmation of viable modified cells, patients will receive intensive chemotherapy (busulfan) to destroy all stem progenitor cells in their bone marrow.

4) After the chemotherapy, modified stem progenitor cells will be infused back into the patients.

Patients will need a month to recuperate and get a normal - near normal blood cell production.

The most common side effects in the CLIMB SCD-121 study can primarily be attributable to Busulfan treatment. They include low platelets and white blood cell levels, mouth sores, nausea, musculoskeletal pain, abdominal pain, vomiting, febrile neutropenia (fever and low white blood cell count), headache, and itching.

E3 Magazine / 22

Health Canada recent approvals cont'd

Casgevy in beta-thalassemia In the CLIMB THAL-111 clinical study, patients with a heavy need for transfusion have been included. They received, on average, 34 blood units per year, representing one transfusion every week to every two weeks. Despite the level of transfusion received, they had a hemoglobin level below normal. Also, these patients had a high excess of iron in their blood, liver and heart, putting them at risk for complications due to organ damage. Treatment with Casgevy resulted in transfusion independence in 91% of patients enrolled in the trial. The safety profile was generally consistent with intensive chemotherapy busulfan. No deaths or cancers occurred.

In conclusion The data from these two clinical trials show that a one-time infusion of Casgevy provides early and sustained increases in total and fetal hemoglobin levels, resulting in durable improvement of patients' conditions and quality of life.

Finally, a treatment option for anemic patients with myelofibrosis!

Myelofibrosis is a rare cancer characterized by an overproduction of abnormal blood cells and inflammation markers called cytokines. Treatment of myelofibrosis has improved significantly since the 1st JAK inhibitor, Jakavi, was approved in 2011. JAK inhibitors are targeted therapies for cancer, like myelofibrosis, because the disease is caused by mutations that overactivate the JAK/STAT pathway.

Currently, the FDA has approved a total of four JAK inhibitors: Jakafi/Jakavi (Ruxolitinib) 2011 Inrebic (Fedratinib) in 2019 Vonjo (Pacritinib) in 2022 Ojjaara (Momelotinib) in 2023 Until last month, Health Canada only approved two JAK inhibitors: Jakafi/Jakavi (Ruxolitinib) 2012 Inrebic (Fedratinib) in 2023 In November 2024, Health Canada approved Ojjaara produced by GSK. Why is Ojjaara's addition to the Canadian treatment options good news for patients?

Anemia is often present at diagnosis and eventually develops in nearly all patients due to cancer progression. Anemia and blood transfusion are risk factors linked with mortality. Most available treatments for myelofibrosis exacerbated disease-related anemia.

To avoid complications related to anemia, physicians will prescribe a small dose of JAK inhibitor, which limits its efficacy.

Ojjaara is as efficient as other JAK inhibitors. However, unlike other therapies, it can improve anemia by facilitating the production of blood cells. SIMPLIFY trials have demonstrated that patients can reach healthier blood levels and become transfusion-independent. Some patients could even delay complex procedures such as transplantation due to this treatment.

E3 Magazine / 23

Health Canada recent approvals cont'd Ojjaara's mechanism of action differs from the other JAK inhibitors; it has the unique capacity to target a molecule called ACVR1. By inhibiting ACVR1, Ojjaara reduces hepcidin production. Hepcidin levels are often higher than usual in myelofibrosis patients. The reduction of hepcidin allows better iron management and stimulates red blood cell production in patients with myelofibrosis.

Conclusion Now, patients with myelofibrosis who are anemic will be able to have access to a JAK inhibitor that can improve their symptoms, reduce their enlarged spleen, and prolong their life while increasing their quality of life (QoL).

Canadian MPN Network Patient Advocacy and Education Group

Providing MPN Patients Support and Education

Info@canadianmpnnetwork.ca

E3 Magazine / 24

E3 Magazine / 25

Belonging, Diversity, Inclusion and Equity Welcome to the Belonging, Diversity, Inclusion and Equity section of Heal Canada’s Digital Magazine. In this section, we provide information on ensuring that BDEI is part of the patient conversation in our Health ecosystem. Our focus is to illuminate the pathways through which individuals grappling with health challenges can not only find their voice but also harness it to drive their own journey.

Healthcare and the patient’s experiences determined by social determinants of health.

should

not

be

We believe that an informed and engaged patient is an empowered one. Through enlightening articles, expert insights, and inspiring stories, we aim to equip our readers with the tools and knowledge necessary to navigate the complex healthcare landscape.

Diversity, Equity, and Inclusion in Patient Rights in Canada

by Cheryl A Petruk, MBA, B.Mgt.

In Canada, the principles of Diversity, Equity, and Inclusion (DEI) have become central pillars in the delivery of healthcare services, especially in safeguarding and advancing patient rights. Canada’s rich cultural tapestry, including its Indigenous Peoples, immigrant populations, racialized groups, and those from diverse gender and ability spectrums, calls for an equitable healthcare system that respects and addresses unique needs. DEI is not just a moral or ethical priority; it is a practical and legal imperative rooted in the principles of human rights and dignity.

The Landscape of Patient Rights in Canada Patient rights in Canada are framed by the Canada Health Act (CHA), which ensures access to publicly funded health care based on need, not ability to pay. While the CHA establishes the foundation for healthcare delivery, provincial and territorial jurisdictions develop and enforce patient rights frameworks. These rights emphasize equitable access, informed consent, privacy, and culturally competent care.

Despite these commitments, systemic barriers persist. Canada’s diverse populations experience disparities in access to care, treatment outcomes, and overall patient satisfaction. This is particularly true for marginalized communities, including Indigenous, Black, and racialized individuals; people with disabilities; LGBTQIA+ populations; and low-income groups. Addressing these disparities requires embedding DEI principles into the heart of patient rights frameworks.

Understanding Diversity in Patient Rights Diversity in healthcare acknowledges the differences in race, ethnicity, gender, sexual orientation, socio-economic status, ability, and cultural or religious beliefs. Canadian healthcare systems serve a highly diverse population, and recognizing these differences is vital for equitable and inclusive care.

Cultural Diversity: Immigrant and refugee populations bring varied healthcare expectations, languages, and cultural practices. For example, language barriers can impede effective communication, leading to misdiagnosis, improper treatment, or misunderstandings about patient consent.

Indigenous Communities: Indigenous peoples in Canada face unique challenges rooted in historical and systemic injustices. The Truth and Reconciliation Commission’s (TRC) Calls to Action emphasized the urgent need for culturally safe healthcare. Indigenous patients often report experiences of discrimination, stereotyping, and neglect, which exacerbate health inequities.

E3 Magazine / 27

Diversity, Equity, and Inclusion in Patient Rights in Canada cont'd

LGBTQIA+ Communities: Lesbian, gay, bisexual, transgender, queer, intersex, and asexual individuals face barriers to accessing safe and inclusive healthcare. Fear of stigma, misgendering, and a lack of understanding of gender-affirming care deter individuals from seeking timely treatment.

People with Disabilities: Patients with disabilities often encounter physical and attitudinal barriers, including inaccessible facilities, limited communication options, and assumptions about their quality of life.

Diversity in patient rights demands recognition of these distinct identities and experiences.

Healthcare professionals must approach care with cultural humility and an understanding that each patient’s background shapes their healthcare needs and expectations.

Equity: The Cornerstone of Fair Healthcare Equity in healthcare goes beyond equality; it acknowledges that different individuals and communities have different needs. While equality ensures everyone gets the same resources, equity ensures that resources are distributed based on need, creating fair opportunities for health and wellness.

Addressing Health Disparities Health disparities are persistent in Canada, particularly for racialized and marginalized groups.

For example: Indigenous Health Disparities: Indigenous peoples have lower life expectancy, higher rates of chronic diseases, and disproportionate mental health challenges. Barriers such as geographic isolation, underfunded healthcare services, and colonial traumas further exacerbate these disparities.

Racial and Ethnic Disparities: Black Canadians experience higher rates of hypertension, diabetes, and mental health issues, often stemming from socio-economic inequities and systemic discrimination.

Gender and Sexuality Disparities: Transgender individuals often encounter barriers in accessing hormone therapies, mental health support, and gender-affirming surgeries.

Equity-driven approaches address these disparities through targeted interventions, such as: Investing in culturally sensitive healthcare training for professionals.

Expanding healthcare access in underserved and rural areas.

Implementing language services and multilingual health resources.

Providing inclusive policies for LGBTQIA+ patients, such as gender-affirming care and gender-neutral facilities.

E3 Magazine / 28

Diversity, Equity, and Inclusion in Patient Rights in Canada cont'd Legal and Policy Frameworks Supporting Equity Canada has introduced various legal and policy measures to promote health equity. For instance: The Canadian Human Rights Act prohibits discrimination based on race, gender, disability, and other grounds in federally regulated sectors.

Provincial health equity strategies aim to identify and address systemic barriers within healthcare.

Anti-racism initiatives, such as Ontario’s Anti-Racism Act (2017), mandate data collection to better understand racial disparities in healthcare access and outcomes.

Equity in patient rights requires continuous policy reforms, community collaboration, and accountability to ensure that no individual is left behind in Canada’s healthcare system.

Inclusion: Creating a Safe and Respectful Healthcare Environment.

Inclusion in healthcare means: fostering environments where all individuals feel respected, valued, and empowered. Inclusive care ensures that healthcare settings are free of discrimination, judgment, or exclusion, creating spaces where patients can actively participate in their care.

Inclusive Practices in Healthcare Culturally Competent Care: Healthcare providers must be trained to deliver care that is culturally sensitive and inclusive. Cultural competence goes beyond awareness; it involves integrating cultural knowledge into clinical practice and decision-making.

Patient-Centered Communication: Effective communication is the backbone of inclusive care.

This includes: Providing language interpretation services for non-English/Frenchspeaking patients.

Using gender-affirming language and respecting pronouns.

Ensuring accessibility for patients with disabilities, such as sign language interpretation and assistive technologies.

Representation in Healthcare Leadership: A lack of diversity among healthcare providers and administrators can perpetuate biases and exclusion. Increasing representation from diverse communities in leadership positions ensures that healthcare decisions reflect the populations they serve.

Addressing Stigma and Bias: Implicit bias among healthcare providers can lead to disparities in care. Ongoing anti-bias training, reflection, and accountability measures are essential for fostering inclusive practices.

E3 Magazine / 29

Diversity, Equity, and Inclusion in Patient Rights in Canada cont'd The Role of Patients and Advocacy Inclusion also empowers patients to advocate for their rights. Patient advocacy groups in Canada, such as the Canadian Patient Safety Institute and Indigenous Health Advocacy organizations, play critical roles in highlighting disparities and pushing for systemic reforms.

Empowered patients are active participants in their care, leading to improved health outcomes and satisfaction.

Moving Forward: A Call to Action Achieving Diversity, Equity, and Inclusion in patient rights in Canada requires systemic, organizational, and individual efforts. Key actions include: Enhancing Education and Training: Healthcare professionals must receive ongoing education on cultural safety, unconscious bias, and DEI principles.

Improving Data Collection: Collecting disaggregated data based on race, ethnicity, gender, and other identity markers allows policymakers to identify and address health inequities effectively.

Engaging Communities: Collaborative partnerships with diverse communities are critical to understanding their needs and co-creating solutions that improve access and care.

Policy and Funding: Governments must prioritize health equity by funding programs that address systemic barriers and disparities.

Accountability and Transparency: Healthcare institutions must monitor DEI progress, report on outcomes, and remain accountable to the communities they serve.

Diversity, Equity, and Inclusion are essential for protecting and advancing patient rights in Canada. A healthcare system that embraces these principles ensures that all individuals— regardless of their background, identity, or abilities—receive safe, respectful, and equitable care.

As Canada continues to evolve, embedding DEI in patient rights will foster a more just, inclusive, and effective healthcare system that truly reflects the values of a diverse nation.

E3 Magazine / 30

E3 Magazine / 31

for more information how LCA can help you info@latinxcanceralliance.org

E3 Magazine / 32

Mental Health Welcome to the Mental Health section of E 3 Advocacy Digital Magazine, a dedicated space where we embrace the journey towards mental wellness with open arms and open hearts. In this edition, we delve into the empowering world of patient advocacy, engagement, empowerment, and education. Our focus is to illuminate the pathways through which individuals grappling with mental health challenges can not only find their voice but also harness it to drive their own journey.

We believe that an informed and engaged patient is an empowered one. Through enlightening articles, expert insights, and inspiring stories, we aim to equip our readers with the tools and knowledge necessary to navigate the complex mental health care landscape.

Join us as we explore how patient advocacy, active engagement and comprehensive education can transform the experience of mental health care, turning obstacles into opportunities for growth and healing.

Caring for the Carers: Mental Health Toll of Caregiving.

by Loretta Karikari, MWS, RSW

At some point in life, many Canadians will find themselves as a caregiver – looking after a sick child, an aging parent, a spouse, or a friend. Currently, one in four Canadians is a caregiver, and half the population will take on this role at some point. Caregivers in Canada collectively dedicate billions of hours annually to caring for others. However, with medical advances, shorter hospital stays, and expanded home care in the community, the responsibility for complex care increasingly falls on families and friends. This shift places a significant strain on caregivers’ mental and physical well-being, transforming what is often seen as a noble responsibility into a source of chronic stress.

Caregiving’s Impact on Mental Health The adverse effects of caregiving on mental health are widely recognized. Caregivers frequently experience higher levels of stress, anxiety, and depression than non-caregivers. Many caregivers I have met report a decline in life satisfaction, increased negative emotions and diminished positive feelings.

This psychological toll is particularly severe for those caring for individuals with complex needs and chronic and progressive illnesses. Caregivers in these situations often face heightened emotional strain due to the unpredictable and progressive nature of the illness.

Spouse caregivers are especially vulnerable, with higher rates of depression and lower levels of positive emotions compared to other family caregivers. However, despite the challenges, caregiving can also bring personal fulfillment. Many caregivers derive a sense of purpose, emotional connection, and satisfaction from their role. These positive aspects include enhanced relationships, personal growth, and the ability to provide meaningful support to loved ones. In fact, many caregivers report feeling closer to the care recipient and experiencing a deep sense of accomplishment in their caregiving responsibilities.

Supporting the Healthcare System: A Shared Responsibility Caregivers are not just supporting their loved ones – they play a critical role in Canada’s healthcare system. Providing care at home alleviates pressure on hospitals and long-term care facilities, saving the system substantial resources. However, when caregivers are unsupported, the consequences extend beyond individual well-being. Unaddressed caregiver stress can lead to burnout, elder abuse, and premature placement of loved ones into institutional care. Additionally, as caregiver burden increases, the quality of care provided often declines, impacting the health and well-being of care recipients.

E3 Magazine / 34

Caring for the Carers: Mental Health Toll of Caregiving cont'd Support for caregivers must be seen as a collective responsibility shared by healthcare providers, policymakers, and employers. Financial assistance, mental health services, and caregiver education programs are essential to alleviate the pressures faced by caregivers. Providing paid leave and accessible mental health resources can reduce stress and allow caregivers to maintain their roles without sacrificing their own health.

The Importance of Multi-Component Support Effective caregiver support requires a multi-faceted approach that addresses emotional, physical, and practical needs. Emotional support through counselling, peer support groups, and mental health services helps caregivers manage stress and avoid burnout. Physical support, such as respite care and in-home assistance, provides much-needed relief from daily caregiving tasks. Practical support, including education, training, and financial resources, empowers caregivers to care for their loved ones while maintaining their well-being.

The caregiving experience is influenced by various factors, including the relationship between the caregiver and the care recipient and the complexity of the recipient’s condition. For example, parents often report greater satisfaction and a stronger emotional connection with their care recipient compared to spouses or adult children.

Understanding these dynamics helps design tailored support systems that meet the unique needs of different caregiver groups.

Conclusion: A Healthier Future for All Caregiving is both a personal journey and a societal responsibility. Recognizing the mental health toll on caregivers is crucial for building a healthier, more compassionate society. Caregivers are essential contributors to the well-being of individuals and communities, and their support forms a cornerstone of Canada’s healthcare system.

Investing in comprehensive support systems ensures caregivers can continue their vital work without compromising their health. Addressing caregiver burden protects caregivers and enhances the quality and sustainability of care across the system. Supporting caregivers is more than an act of compassion – it’s essential for the future of healthcare in Canada.

Loretta Karikari, Social Worker, psychotherapist, MWS, RSW Loretta is a registered social worker and psychotherapist who works with individuals and families to support a wide range of mental health issues and life challenges. Passionate about caregiver mental well-being, she offers support and guidance to those in caregiving roles. Loretta also provides workshops and educational resources. She creates a compassionate space where clients feel truly seen and heard, helping them navigate challenges with resilience and understanding. https://mindcarewellness.janeapp.com info@themindcarewellness.com

E3 Magazine / 35

Reading for Well-Being

by Joanna Pozzulo, Ph.D.

The shorter days and cooler weather signal that winter is approaching. Although it may not be everyone’s favourite season, there are many good reasons to embrace winter.

Personally, it signals pumpkin spice lattes, all things gingerbread, and digging into my “to-read list.” You can imagine my excitement when I stumbled across the book How to Winter: Harness Your Mindset to Thrive on Cold, Dark, or Difficult Days by Kari Leibowitz, Ph.D. (2024).

Leibowitz explores the connection between “seasonal variation” and well-being in this book. And for anyone who’s not a fan of winter, Leibowitz might have you rethinking your view on this colder, darker season.

Leibowitz divides happy wintering into three broad categories: 1) appreciating winter, 2) making it special, and 3) getting outside. Book chapters include the research and strategies to help you enjoy the season. An added benefit to the book is the clearly articulated end-of-chapter techniques for ease of implementation. One of my favourite strategies was to list five specific things to look forward to as winter approaches. This book is a good read for fans of winter and non-fans alike.

I also have taken advantage of the cooler weather to read, The Mindful Body: Thinking our way to chronic health by Ellen J. Langer (2023). Having researched mindfulness since the 1970s, Ellen Langer has been called the “mother of mindfulness.” Her first book on the topic, Mindfulness, celebrated its 25th anniversary in 2014. Langer defines mindfulness as “the simple process of actively noticing things, no meditation required.” She also states that mindfulness relates to the body. According to Langer, not only is the mind and body connected, they are a single system that works in concert.

Langer provides several examples of how becoming more mindful allows for alternative explanations and possibilities that can then impact our behaviour and outcomes. She notes that we can choose how we think about situations. Changing how we think can change how our body reacts. Mindset matters. Langer suggests adopting an attitude of “mindful optimism.” And how do you do that? Come up with a plan, implement it, and then live in the present.

Langer demonstrates that when we challenge preconceived notions, outcomes can change for the better, including those around health and aging. Langer’s discussion of aging was intriguing. She challenges us to reflect on our views on getting older. As we age, we can maintain meaningfulness and vitality. Be “mindful” not to give in to stereotypes. Perhaps improved well-being is just a thought away.

E3 Magazine / 36

Reading for Well-Being cont'd Reading has the power to educate and improve well-being.

Intriguingly, a study has found that reading for 30 minutes can reduce blood pressure and heart rate to a similar degree as 30 minutes of yoga. Even 6 minutes of reading has been found to reduce stress, possibly by distracting you from what is stressing you.

If you are interested in a curated list of evidence-based books on different dimensions of well-being, I created the Reading for Wellbeing Community Book Club, housed at the Mental Health and WellBeing Research and Training Hub at Carleton University. The book club is open to all without any fees.

If you want to hear the authors of the selected books, you can listen to the Reading for Well-Being Podcast, which is available where you get your podcasts. Each month, I interview the author(s) of Professor Pozzulo’s Pick. The podcast provides an opportunity to hear directly from the author(s) sharing the science behind the strategies recommended in their books for improved well-being.

Listeners who are part of the Book Club can submit questions for the authors to answer on the podcast. Check out my interview with Dr. Marc Schultz, co-author of The Good Life: Lessons from the World’s Longest Scientific Study of Happiness, on: Libsyn: https://readingforwellbeingpodcast.libsyn.com/ Spotify: https://open.spotify.com/show/4KZbuUv4gfnFPLyipUiYcC?si=fa0c70a9fac74450 Apple Podcasts: https://podcasts.apple.com/ca/podcast/reading-for-well-beingpodcast/id1771920126 To sign up for the book club, you can visit here.

As the winter sets in, it is a wonderful time of year to enjoy a warm drink and your favourite book.

Happy reading (and listening)!

Joanna Pozzulo, Ph.D. Chancellor’s Professor Department of Psychology Director, Mental Health and Well-Being Research and Training Hub (MeWeRTH) Carleton University

E3 Magazine / 37

Navigating the Challenges of the Holiday Season.

by Jon Hunt, Reg. Pshycologist

Wendy Reichental, Program Manager at Heal Canada, was in conversation with Jon Hunt about his strategies for navigating the less-than-jolly aspects of the holiday season.

I had the pleasure of reaching out to Jon Hunt, an N.W.T. registered psychologist, after reading an interview he gave to CBC in 2023, where he shared coping tips for the holiday season. I was curious to see if he could offer any updates to his responses and share his thoughts on navigating this often difficult and stressful time of year.

Jon, many people are facing challenging times right now. How do you manage stress and anxiety while still trying to embrace the holiday season?

Let’s start by acknowledging the magnitude of potential stressors that can appear over the holiday season. Imagine creating an exhaustive list of all the holiday stressors. It would be way too long, and doing so might create anxiety itself. Regardless of the source of anxiety or stress, here’s how we might approach distressing feelings if they arise.

If we are noticing feelings of anxiety and stress, or any distressing feeling for that matter, we should try to acknowledge the feeling rather than ignoring it or pushing it away. Feelings that aren’t given the attention that they deserve often plague us in the long term. Intention, attention, and action are keys to dealing with distressing emotions.

Be intentional when approaching feelings because they are there for a reason and are trying to send us signals. To be intentional, a person can carve out a small piece of their day so that they can deliberately give the feelings the attention they deserve. Aim to extend curiosity towards the feelings to better understand them so that we can learn from them and choose optimum responses. Even spending a few intentional moments with a feeling can make a huge difference.

One way to approach distressing feelings is to know when and how to lean in towards the feeling or lean out away from the feeling. A person can lean in towards an emotion to be more present with it and to explore it fully, and in contrast, a person can lean out from an emotion to give themselves a break from the intensity. For example, watching a movie might help a person to distract from the emotion (lean out), and journaling might help them to explore the feeling more (lean in).

This time of year can be especially jarring and lonely for many. Do you have any tips on how to manage these feelings?

Loneliness is a powerful emotion that is often amplified over the holidays, and so is grief. If we are already struggling with either of these before entering the holiday season, then we might anticipate feeling even worse. When it comes to grief and loneliness, don’t wait for connections to come to you. All too often, people who have been feeling lonely perpetuate their own cycle of isolation by waiting for people to call, and when they don’t, end up feeling even more lonely. If loneliness is something that you are struggling with, then maybe consider initiating connections by picking up the phone and texting or calling family and friends. If that’s not an option, then there are also lots of groups and other community-based events that offer the chance for connection.

E3 Magazine / 38

Navigating the Challenges of the Holiday Season cont'd Other options would be to utilize support hotlines or online chat communities. Remember that loneliness does not equate inadequacy and just because you may feel alone it doesn’t mean that you’re not worthy of connection.

Jon, we all know that spending time with family and friends can sometimes heighten anxiety.

Do you have any suggestions on best practices for managing these situations?

There can be a lot of reasons why some family members can seem challenging to deal with. The holidays can be a stressful time for people, and the stress can amplify their moods and behaviours. Try not to personalize their moods. Likewise, try to approach family members with compassion even when it’s difficult to do so. Trying to be compassionate while we are upset or activated can be easier said than done, but it can be achieved with intention and effort. It might be helpful to spend a little bit of time beforehand to set your intentions on being kind or patient. Remind yourself of why you are choosing this approach visualize a scenario in which you have been emotionally activated and envision soothing yourself while approaching that person gently and compassionately.

Setting personal boundaries might be necessary. There are some things to note about boundary setting that may prove to be helpful. Set the boundary around the behaviour and not the person. For example, if someone is talking rudely, then we can set the boundary around the rudeness and not the person themselves. This means that the person will be welcomed around us, provided that they aren’t talking rudely. It will be important to communicate boundaries clearly and assertively, but still with kindness and compassion. If setting boundaries, then be prepared to follow through; otherwise, the person might get the impression that their behaviour is acceptable.

What are some of your go-to tips for staying cool, calm, and less stressed during the holiday season?

There are several ways to approach distressing emotions like anxiety. ∙ We can evaluate our coping techniques by assessing if they are helpful or unhelpful and healthy or unhealthy. We are aiming for techniques that are helpful and healthy. Those that land in the other categories tend to lead to greater suffering. ∙ We can frame coping techniques within a matrix consisting of the following categories: distraction, emotional processing, physical activity, and grounding. We can fit our actions into one or several of the categories. Ultimately, we want to locate balance across all four categories. All too often, people tend to gravitate toward the distraction category, and the imbalance leads to greater suffering.

Distraction is necessary, but too much of it can be unhealthy.

Emotional processing refers to intentional things that we are doing to process distress, like journaling, making art, listening to music, or talking about the issue. Physical activity is a key component because being in motion and exercising can help relieve stress hormones in the body. Grounding is another key component because the practices that fall within this category help to soothe and relax.

E3 Magazine / 39

Navigating the Challenges of the Holiday Season cont'd Examples of grounding techniques are meditation, prayer, fidgeting, napping, or breathing exercises. Again, balance is key, aiming to have strategies that support both leaning in and leaning out. ∙ Find gratitude. Gratitude is often an antidote for stress and anxiety. By intentionally shifting towards gratitude, we can begin to change our thought patterns. ∙ Lastly, I like to promote a simple tapping technique. It can be done sitting or standing. All a person needs to do is put each of their hands onto the respective leg and alternate tapping. Simply tap the left leg with the left hand and the right leg with the right hand, starting firm but not too hard and gradually getting slower and gentler across the time span of a couple of minutes. All the while, placing complete attention on the sense of touch. Notice things like movement, pressure, temperature, texture, or any physical sensation within the area of the tapping. Eventually, this tapping technique should help to soothe the nervous system and calm the mind. It can be a helpful technique if a person is feeling overwhelmed or lying in bed overthinking and having trouble sleeping.

Thank you, Jon, for sharing your valuable expertise. These are incredible suggestions that we can all incorporate to ensure the year ahead is bright, all year long!

Jon Hunt is an-. Registered Psychologist with over 15 years of experience and operates River and Roots Counselling and Psychological Services. Jon specializes in processing trauma and supporting individuals along their healing journeys. His passion lies in helping people untangle the knots that keep them bound and supporting them to weave a new design for their future. He can be reached at Jon.hunt@riverandroods.ca

E3 Magazine / 40

Culturally Responsive and Trauma-Informed Mental Health Care During the Holidays

by Shayla S. Dube, MSW, RCSW

The holiday season often brings a mix of joy, stress, and expectations. For many, it’s a time to connect with loved ones, but for others, the pressure to meet familial and societal norms can lead to emotional exhaustion. Life is a dual dance; we don’t have to choose one emotion over the other. Instead, we can embrace all our emotions— both pleasant and unpleasant—with nonjudgmental compassion and conscious curiosity. For those from marginalized communities, navigating this season requires a culturally responsive and trauma-informed approach to mental health care that honours community, individual experiences, and resilience, which looks different for everyone.

Grief and Trauma During the Holidays The holiday season often amplifies grief, especially for those who have lost loved ones or carry the weight of historical and ongoing trauma. For many marginalized groups, the season can also trigger the compounded impacts of vicarious trauma and collective grief.

Vicarious trauma refers to the emotional and psychological toll of witnessing the suffering of others, whether through direct experience or exposure to stories of global genocides, systemic inequalities, and the long shadow of colonial violence. This trauma, while often overlooked, resurfaces during moments meant for joy, highlighting the paradox of navigating celebration while holding pain.

Collective grief arises from losses that affect an entire group or community. For example, the erasure of cultural practices, displacement from ancestral lands, or the continued harm of systemic oppression can evoke a shared sense of mourning. Rooted in collectivism, this form of grief finds healing through communal rituals, storytelling, and solidarity. In the spirit of Ubuntu—“I am because we are”—healing happens not in isolation but through the support, anchoring and presence of others.

Additionally, disenfranchised grief—grief that society fails to recognize as valid—and cumulative grief, the compounding of multiple losses over time, are common during the holidays. These forms of grief often intersect with ancestral trauma, which is carried not just in the mind but in the body. Be extra gentle with yourself. Grief and gratitude can coexist, and you can honour your emotions without feeling pressured to mask your pain with performative joy.

Setting Boundaries and Choosing Your Environment Family gatherings can evoke both comfort and stress. It is important to recognize your limits and honour your boundaries. You are not obligated to attend events that feel unsafe or emotionally draining. Forcing yourself—or your children—into uncomfortable interactions, such as hugs or forced conversations, can exacerbate stress and trauma.

E3 Magazine / 41

Culturally Responsive and Trauma-Informed Mental Health Care During the Holidays cont'd Model healthy boundaries for your children by giving them the autonomy to choose how and with whom they interact. Extend the same grace to yourself. Sometimes, the most healing choice is staying home or seeking smaller, intimate gatherings that nourish your soul.

Remember: respectfully and assertively declining an invitation that doesn’t serve you is an act of self-care, not selfishness.

Mindful Spending and Conscious Consumerism The holiday season often comes with capitalist pressures to overspend, creating financial stress for many. Rather than succumbing to these external pressures, practice mindful spending and conscious consumerism. Choose gifts that reflect genuine care rather than material excess, and consider alternatives like homemade presents, shared experiences, or acts of kindness.

By aligning your spending with your values, you reclaim your agency in a system that prioritizes profit over people. Ubuntu teaches us that giving is about fostering connection and community, not competing through extravagance.

Rest as Resistance In the hustle of the holidays, rest becomes a revolutionary act.

As Tricia Hersey, founder of The Nap Ministry, reminds us, “Rest is resistance.” In a society that equates productivity with worth, choosing rest disrupts oppressive systems and affirms your well-being.

This holiday season, reclaim your time. Rest is not laziness; it is an act of healing. Whether it’s through intentional napping, meditating, or simply allowing yourself moments of stillness, rest is essential for countering personal and collective trauma.

Listening to Your Body and Healing Through Somatic Practices Your body holds the stories of both joy and trauma, often carrying ancestral pain across generations. Dr. Resmaa Menakem’s My Grandmother’s Hands offers somatic practices that focus on using the body as a resource for healing. These practices are particularly vital during the holidays, when collective stressors can feel heightened.

Listen to your body. Ground yourself through deep breathing, gentle movement, or rituals that reconnect you with ancestral wisdom.

Ubuntu emphasizes community and interconnectedness, reminding us that the wisdom of our ancestors and our collective resilience are vital for restoring balance.

E3 Magazine / 42

Culturally Responsive and Trauma-Informed Mental Health Care During the Holidays cont'd

Seasonal Affective Disorder and Vitamin D The winter months bring shorter days and reduced sunlight, which can exacerbate Seasonal Affective Disorder (SAD).

This condition, marked by feelings of sadness, lethargy, and mood changes, can be particularly challenging during the holidays.

Combatting SAD might include taking vitamin D supplements, spending time in natural light, or incorporating movement into your routine. These small, intentional actions can support both mental and physical well-being, helping to prevent the season from feeling like an emotional burden.

This holiday season, we invite you to embrace and embody the fullness of your humanity. Allow yourself the space to grieve, rest, and connect with all your emotions authentically. Set boundaries that prioritize your inner peace, practice mindful spending, and lean into culturally responsive self-care practices rooted in Ubuntu. Honour the wisdom of your ancestors and the power of collective healing to navigate this season with clarity and strength.

Remember, healing is not linear, and every step toward wellbeing is worth celebrating. As we hold the essence of Ubuntu — “I am because we are”—we affirm that our individual and collective journeys toward healing are intertwined and so is collective liberation. Here is wishing a trauma-informed, culturally safe and moments of laughter and joy during this holiday season and the year ahead.

Shayla S. Dube, MSW, RCSW (she/her/we/theirs) is a proud Bantu-NguniNdebele woman, born and raised in Southern Africa, Zimbabwe, and grateful for finding a second home in what is now called Canada. She is a mother to three beautiful humans, co-parenting with her partner of 18 years. A seasoned clinical social worker, board-approved anti-oppressive clinical supervisor, and Africentric Social Work sessional instructor, Shayla brings over 20 years of experience in trauma-informed, culturally responsive care. Passionate about community-centered healing and culturally responsive mental health care, she also serves as a workplace psychological health and safety organizational wellness consultant and advisor. Rooted in Ubuntu, Shayla is dedicated to dismantling systemic oppression and fostering collective healing and resilience within marginalized communities.

For more information, please visit Wellness Empowered www.wellnessempowered.com or email info@wellnessempowered.com

E3 Magazine / 43

Discovering Peace in Difficult Times

by Dr. Asa Don Brown For me at least, life has seemed like a script straight out of a low-budget movie. Humanity has endured so much in recent years, from the pandemic to wars and rumors of wars to our basic foundations being disrupted; it’s been a time of intense and immense change. Not only have we endured turbulence on a global scale, but at home as well. I’ve had friends who’ve lost loved ones; I too have lost a few. My own health has waned at times, while I’ve known others struggling to stay alive. We’ve endured political and religious strife. We’ve maneuvered a wave of geo-economic uncertainties, followed by a tide of humanitarian necessities. We’ve witnessed global disasters, riots, and an essential breakdown of our cultures. There has always been a sort of ebb-and-flow related to humanity, but these times are our times and not something read in a manuscript from long ago.

Therefore, how do you manage times of global uncertainties, strife, and the reshaping and redefining of our cultures? Discovering peace in difficult times is not an anomaly. It’s an absolute possibility! Whether you’ve struggled with your health, finances, job security, or some other personal hardship; there is a way of finding peace within your heart and mind. So, what is peace?

Peace is the knowledge that no matter what is occurring in your life, you can find a sense of calm and personal tranquility. It’s that ability to be reassured that you’ll make it through the storm.

There are many approaches to discovering peace within but understand that such peace of mind, thoughts, and perceptions will only manifest through your personal efforts.

So, how do I achieve such peace? Achieving such peace can occur through one’s personal efforts or it may be achieved through the guidance of a trained professional. Please understand that achieving peace will not eliminate hardships that come your way, but rather it can help you to endure and find calm in the midst of a storm. Storms are a natural part of life, but it’s how you face those storms that can make a world of difference.

RECOMMENDATIONS FOR ACHIEVING CALM AND FINDING PEACE Please understand that there isn’t a quick fix for stress and anxiety, but through the daily replication of the following tools you’ll discover a more serene life. Likewise, many of these tools can be implemented by anyone, anywhere and at any time. Please note that the benefits of such exercises increase when practiced regularly.

Deep Breathing Exercises.

There are several benefits from such an exercise. The key to a majority of breathing exercises is one’s personal comfortability, suitability and ability to isolate oneself for a few minutes. The ideal amount of time is approximately 10 to 15 minutes. Be certain that you are capable of stepping away from any momentary cares and setting aside all devices that may cause a distraction. The physiological and psychological benefits are numerous and they may include: • reduction in tension, stress and anxiety • improvement in focus and one’s overall clarity • decrease one’s susceptibility to colds and other illnesses • research has shown that breath work is capable of placing an individual in the moment and shifting them from past harms and challenges • has been shown to create a stream of inner peace and tranquility.

E3 Magazine / 44

Discovering Peace in Difficult Times cont'd

Meditation.

It’s the type of exercise that can prove foreign to those who haven’t utilized it before, but over time it’s capable of bringing calm, balance and peace. There are many benefits related to such an exercise, which may include: creating more awareness of the self, your surroundings and others decreasing stress, anxiety, and negative emotions it’s capable of lowering your resting heart rate and blood pressure improving focus and personal clarity immediately and unconsciously prompting you to relax in times of elevated stress it’s capable of managing physiological and psychological conditions.

Progressive Muscle Relaxation.

It’s through this mindful exercise that an individual is capable of reducing a number of physiological and psychological concerns. As humans, we are often unaware that we carry a lot of our stress in our muscles. The benefits of progressive muscle relaxation include: it’s capable of decreasing stress and anxiety improving one’s overall cognition and mental health improving one’s psychological awareness of their physiological self and vice versa it may decrease issues related to bruxism, TMJ, and other orthodontic disorders improve issues around the neck, back, and shoulders Journaling.

It is one of my favourite psychological tools because it can assess our personal progress and provide significant insights into our perceptions, mindset, and journey.

Journaling can vary depending on an individual’s comfort and ease with divulging personal information. Please note that it is prudent that you are capable of sharing information within your journal without fear of retribution, intimidation, or harm.

In recent years, technology has made it easier to create a confidential journal. I highly recommend using software or an application that requires a password and biometric measurements (e.g., fingerprint mapping, facial recognition, and retina scans).

There are many benefits related to journaling; they include: insights into an individual’s personal journey insights into an individual’s personal relationships improvement in one’s mental health boosts emotional intelligence, memory and mental health it’s an excellent way to strategize and plan for the future journaling has a unique way of reaffirming an individual’s self-worth

E3 Magazine / 45

Discovering Peace in Difficult Times cont'd

Daily Affirmations.

Affirmations are the ultimate supportive tool. It’s a tool that not only can have an incredible effect on your way of thinking but also on those that you interact with. Affirmations are the quintessential therapeutic tool because it is derived from the individual.

In my work, I have frequently started my patients off with basic pre-written affirmations, then I ask my patients to create their own. It’s this task that has the patient looking deep within their personal psyche. While there are a variety of approaches and styles, it’s the individual’s willingness to approach this with sincerity and acceptance that makes this tool a true success. In simple, affirmations are derived from quotes, statements, or ideas that reaffirm an individual’s personal self-worth, goodness, and acceptability. It’s identifying and believing the words that you consume.

Examples of Constructive Affirmations: “Who you are inside is what helps you make and do everything in life.” ~ Fred Rogers “Nothing can dim the light that shines from within.” ~ Maya Angelou “I am the greatest. I said that even before I knew I was.” ~ Muhammad Ali “Life is like a riding a bicycle. To keep your balance you must keep moving.” ~ Albert Einstein “Those who dare to fail miserably can achieve greatly.” ~ John Fitzgerald Kennedy Please do not grow weary on your journey. Life is filled with many obstacles, and remember they are begging you to go around them.

Do not fret if you have relapses or setbacks. Life isn’t about obtaining some form of perfection; it’s about enjoying each leg of the journey. Do not worry if you fail or succeed, because it too is about living out the experience. Focus on the process and the opportunity to learn more about you.

Enjoy each moment and each encounter throughout your life. The good and the bad that occur are simply mile markers and not definitive of your worth or acceptability. Allow yourself time to heal and transform into the ultimate you. Being you is what it is all about. Nothing less and nothing more. Life is a journey, and it’s how you approach it that will make all the difference.

Dr. Asa Don Brown originally published this article on August 21, 2024, on the Canadian Counselling and Psychotherapy Association website (https://www.ccpa-accp.ca/60914). Reproduced with permission from Dr. Asa Don Brown. He is an author, speaker, and clinical psychologist. As a Canadian and an American, Dr. Brown has the privilege of working in both countries. His work is extensive, having been published in a variety of professional and popular journals, magazines, and online columns. He has regularly contributed to local and national programs such as the Canadian Broadcasting Channel, Jenè Sena of Survivors of the Sisterhood, Fox News, ABC News, CBS News, etc.

Dr. Asa Don Brown holds an office at 3439 Vestal Parkway East, PMB # 177 Vestal, New York 13850 (206) 430-2611 E3 Magazine / 46

Seniors Health In today's society, the health of senior citizens stands as a paramount concern, particularly within the framework of the Canadian healthcare system. This heightened focus is more than just a response to the growing number of seniors. Still, it is deeply rooted in recognizing their invaluable contribution to society and their unique challenges in their twilight years.

As people transition into their senior years, they bring unique health and social needs. This shift presents challenges and opportunities for the Canadian healthcare system and society.

In our Seniors Health section, we will provide information to help you in your journey, navigate daily life as a Senior, and provide resources to help you have the best quality of life.

Hearing Loss Prevention: Healthy Habits to Incorporate Today

by HEARING WELL MATTERS

Hearing allows us to connect with the world around us, engage in meaningful conversations and experience the harmonious sounds of nature. However, with the increasing noise pollution in our daily lives, protecting our ears has become more important than ever before. While age and genetics can contribute to hearing loss, there are proactive steps one can take to ensure optimal ear health. If you’re committed to preserving your hearing, these healthy habits are worth integrating into your daily life.

Limit Exposure to Loud Noises Prolonged exposure to high-decibel environments, whether it’s the constant roar of traffic, the relentless hum of machinery or music at a concert, can harm your hearing health over time. It’s essential to remain attentive to your surroundings and the noise levels you’re exposed to. When possible, take intermittent breaks in quieter areas to give your ears a chance to rest and recover.

This approach not only safeguards your auditory well-being but also allows you to enjoy the activities you love without compromising your long-term hearing. It’s a small adjustment that can make a significant difference in preserving your ability to appreciate the sounds of everyday life.

Use Hearing Protection For unavoidable noisy situations, investing in effective ear protection can make a substantial difference in preserving your hearing. This protection can take various forms, from custom-fitted earplugs to earmuffs, depending on the specific needs and preferences of the individual. This precaution is especially crucial for individuals working in professions with consistently high noise levels, where exposure to loud environments is a daily occurrence. Seeking guidance from a dedicated hearing instrument specialist (HIS) is invaluable in determining the most suitable and effective form of ear protection for your unique circumstances. The most common forms of hearing protection include:

Disposable earplugs: Single-use, foam or silicone plugs for convenient noise reduction.

Custom earplugs: Individually moulded for a snug, long-lasting fit, offering personalized hearing protection.

Earmuffs: Cushioned cups and adjustable headband for effective noise blocking.

Noise-cancelling headphones: Advanced technology actively reduces ambient noise for a quieter experience.

E3 Magazine / 48

Hearing Loss Prevention: Healthy Habits to Incorporate Today cont'd Avoid Inserting Objects into Your Ears While the convenience of using cotton swabs for ear cleaning may be tempting, it’s important to note that this method can often do more harm than good. Cotton swabs can inadvertently push earwax deeper into the ear canal, potentially leading to blockages or damage to the delicate structures of the ear. Excessive use of swabs can increase the risk of irritation or infection.

If uncertain about the best approach, consulting a hearing instrument specialist is highly advisable. These experts are well-versed in safe and effective ear-cleaning techniques, ensuring that your auditory health remains uncompromised. Their professional guidance and expertise can make a significant difference in maintaining the cleanliness and health of your ears without risking any potential harm.

Keep the Volume Down It’s essential to keep in mind that extended exposure to high volumes through headphones can pose a risk to your hearing. To protect your auditory health, a reliable rule of thumb is to maintain the volume at a level where you can comfortably engage in conversation with someone without needing to raise your voice. This straightforward practice ensures a balance between enjoying your audio content and safeguarding your long-term hearing well-being. By adhering to this guideline, you’re taking a proactive step in preserving your ability to appreciate sounds with clarity and richness for years to come.

Get Regular Hearing Check-Ups Regular hearing checks are fundamental for maintaining your overall well-being. Hearing is a foundation of daily interactions, communication and overall quality of life. Scheduling routine assessments enables early detection of potential issues, allowing for timely intervention and treatment. This proactive approach helps prevent further decline of your hearing and addresses any underlying conditions that may be impacting your overall health.

Additionally, seeking assistance from a hearing instrument specialist promptly when you notice changes in your hearing is crucial. It ensures you receive the appropriate guidance and support to address any issues, enhancing your ability to lead a fulfilling and connected life. Remember, prioritizing your hearing health is an investment in your overall well-being and a vital step towards enjoying life to the fullest.

This article is reprinted with permission from HEARING WELL MATTERS. We are grateful for their generosity in allowing us to share this important information with our readers. For more details, please visit them at hearingwellmatters.ca or contact them at HEARING WELL MATTERS! 573 Maple Avenue, Unit 4 (MAPLE IDA PLAZA), Burlington, ON, L7S 2E8, T: 905-681- 4327 (HEAR)

E3 Magazine / 49

Taking Charge of The Hearing Loss Journey Finally, At Age 40, I Had My First Big Hearing Loss AHA Moment

by Gael Hannan Reprint- Issue 5

Living with hearing loss for a long time is no guarantee that you’re good at it.

Regardless of the time of onset—congenital, such as in my case, or at a later point in life—effective navigation of this chronic health condition is not intuitive. A successful hearing loss journey involves personal intent, learning, and commitment. Until recently, the standard services offered to people with mild-to-severe hearing loss were assessment, hearing aids, and a push-out-thedoor. Patient-centered care was a thing of the future, and professionals were not trained to counsel their clients on how to live better with hearing loss.

People like me weren’t counselled on how to live more skillfully—by sloughing off the stigma, embracing our condition, and using a wide variety of strategies, including non-technological tactics that support our technology. We didn’t recognize the need to take more control of our hearing loss and that we could, especially through partnering with a patient-focused professional and the communication partners in our lives.

It took four decades before this boulder-sized penny dropped for me.

I had been receiving hearing health care services since age two, and beyond wearing increasingly sophisticated and better hearing aids since age 20, the only strategy I consciously employed was maneuvering to read people’s lips. To understand a spoken message, visual information in many forms is crucial to augment the audible. For decades, hearing aids and speech-reading were the only items in my toolbox until a major milestone changed my life in several unexpected ways.

At age 40, I was expecting a baby. It was a mix of excitement and terror. My ability to hear and understand took on a new urgency: I would soon be responsible for a child’s wellbeing!

What if I couldn’t hear my child crying in the night?

What if I couldn’t hear my child burp—would he blow up?

Who tells you these things? My hearing care provider at the time wasn’t an excellent resource. I didn’t know a single other person with hearing loss. My mother was a nurse, but all she could do to allay my fears was the standard mommy comfort; you’ll be fine, dear.

For the first time in my hearing loss life, I had to stretch out for help. I discovered that a relatively new organization called the Canadian Hard of Hearing Association was having a conference in a few weeks. I walked into that event as one person and walked out three days later as another dramatically changed person.

E3 Magazine / 50

Taking Charge of The Hearing Loss Journey cont'd Through the power of peer support, I learned that I was not alone. I learned about communicationenhancing technology, such as real-time captioning. I saw a lack of shame and an openness to change that I had never considered possible for a person with hearing loss. A mother of four sat down with me and showed me how to keep my baby safe and a path forward from good parentchild to good communication.

But most importantly, over three short days, I was on fire to take charge of my new journey. I knew what I needed and how to ask for it. It was imperative to ask for access for me and other people with the exact needs.

It was a very loud AHA moment that kicked off a new life as a hearing health advocate. Looking back, I couldn’t have picked a better time to have a baby because, in 1995, hearing technology was starting to boom. The digital age of modern tech was creating unheard-of accessibility for people with disabilities, especially those who needed support to understand audible messages.

At the same time, new concepts in hearing healthcare delivery were emerging, and prevention of noise-induced hearing loss was becoming a bigger topic. My first AHA moment was quickly followed by another.

Enlightenment, as a person with hearing loss, gave me a toolbox bursting with attitudinal, technical, and behavioural communication strategies. Yet only the technical amplification strategies increased my physiological ability to hear better; combining the three enabled me to communicate better. Hearing is just one aspect of successful communication between two (or more) people. We use context, common language, visual input, personal interaction skills, and the ability to articulate our needs and have them met.

My goal had to change.

I realized that I needed to communicate better instead of wanting to hear better. Communication is a bedrock of our society, the glue that connects people and the world around them. And this glue can be severely impacted by hearing loss.

To stop feeling victimized by my hearing loss or blaming others for poor communication, I took control of my journey. My self-identity improved, and I became honest about my hearing loss, both the fact of it and what I need in individual listening situations.

Modern technology has made life easier but is less successful at handling our insecurities and emotions. That’s our job—along with asking and accepting help from others. Learning to work through the shame that I hadn’t realized I carried, to accept diversity and disability as part of life, and to commit to the best possible communication has been the greatest gift of having hearing loss.

Gael Hannan is a renowned hearing health author, speaker, and advocate. For over 25 years, she has created award-winning programs. She has a passionate international following for her work, including regular articles for hearing-related and consumer organizations and dramatic presentations illustrating hearing loss life. She is the author of two books, The Way I Hear It (2015) and Hear & Beyond: Live Skillfully with Hearing Loss (2022), in collaboration with Shari Eberts. Gael Hannan lives on Vancouver Island.

E3 Magazine / 51

www.cllcanada.org E3 Magazine / 52

E3 Magazine / 53

Staying physically active is crucial for seniors to maintain their overall health and quality of life.

Engaging in regular fitness activities helps improve strength, flexibility, balance, and cardiovascular health, reducing the risk of injury and chronic diseases. Fortunately, many free workout resources are available, particularly online. One such valuable resource to try is the

YouTube channel https://yes2next.com/ It is a mother-and-daughter dynamic duo showcasing a variety of exercises specifically tailored for those 50 and beyond and for individuals with limited mobility. Their YouTube channel offers you more than 200 free fitness videos.

Whether it's gentle stretches, chair exercises, or low-impact cardio routines, yes2next provides a convenient and effective way for seniors and everyone to stay active and maintain their wellbeing.

E3 Magazine / 54

Pediatric Health Welcome to the Pediatric Health section of Heal Canada Digital Magazine, a dedicated space where we embrace the journey toward pediatric wellness with open arms and open hearts.

We believe that an informed and engaged parent is an empowered one. Through enlightening articles, expert insights, and inspiring stories, we aim to equip our readers with the tools and knowledge necessary to navigate the complex pediatric healthcare landscape.

Join us as we explore how patient advocacy, active engagement and comprehensive education can transform the pediatric healthcare experience, turning obstacles into opportunities for growth and healing.

The Impact of Screen Time on Mental Health: What Parents Need to Know by the Ontario Psychological Association

It feels like children and adolescents are never far away from a screen. Computers, phones, laptops, and tablets.

These devices offer education and entertainment while facilitating greater connectivity in communities across the world.

Yet excessive screen time has become a growing concern. It feels like the tide is turning as phones are banned in schools, and pediatricians nationwide are increasingly sounding the alarms around screen time.

In particular, a focus is developing on the relationship between screen time and mental health.

Understanding these effects is crucial for parents as they seek to help their children navigate the digital world safely.

Screen time is a part of our lives; children and teenagers can find great enjoyment and positivity through screen use.

Parents who try to limit screen time heavily will find it an impossible task, and doing so may remove some healthy, helpful activities. Yet, we do need to understand some of the risks associated with excessive screen time and do what we can as parents to mitigate against them.

Let’s discuss the effects of excessive screen time on young people’s mental health. We’ll then provide some practical tips for managing screen use.

Understanding Screen Time Screen time refers to any time spent using devices with screens – phones, tablets, computers, and TVs. We can break down screen time into three main categories: Educational use – Using screens for learning purposes, perhaps as part of schoolwork.

Recreational use – Using screens for gaming, watching videos, or browsing social media sites for entertainment.

Social use – Communicating with friends and family through messaging apps or video calls.

It’s important to differentiate between these three because nobody suggests that screen time is universally bad. Of course, even activities listed as ‘recreational’ above, like gaming, could also be a social activity. The takeaway is that there’s no clear distinction between ‘good’ and ‘bad’ screen use.

E3 Magazine / 56

The Impact of Screen Time on Mental Health cont'd Still, a breakdown of screen use can be revealing.

According to a 2022 report by Common Sense Media, teenagers spend an average of more than 8 hours on screens for entertainment every day. This statistic highlights the significant role screens play in youths' lives. This is not even taking into account any time spent on ‘good’ use of screens, such as complementing learning experiences or building social connections.

The amount of time in itself underscores the importance of understanding its impact.

The Impact of Excessive Screen Time on Mental Health Screen time can negatively impact mental health in several ways. The purpose here is not to oversimplify and demonize screen use or guarantee certain consequences. Instead, it’s about beginning a learning journey where we, as parents, take a more active role in understanding the potential effects of excessive screen use.

Effects on Sleep Excessive screen time can disrupt natural sleep patterns, especially before bedtime. Screens emit blue light that interferes with the body’s melatonin production, a hormone we rely on to regulate our sleep-wake cycles.

A study published in the journal Pediatrics found that increased screen time is associated with delayed bedtimes and fewer hours of sleep. The authors summarize: “Between 50% and 90% of school-aged children and adolescents do not get as much sleep as they may need. The pervasive use of screenbased media is a likely contributor to widespread sleep insufficiency”.

There are still many unknowns. It's hard to tell if screen time directly causes sleep problems or if it's just related to them. Is it the blue light issue? Is it the potentially addictive qualities of social media? Or is it something else? What is clear is that screen time in the bedroom space leads to poorer sleep patterns. The Canadian Pediatric Society suggests we avoid screens for at least 1 hour before bedtime, given the potential for stimulating and melatonin-suppressing effects.

Getting enough sleep is vital for a child’s development and critical for mental health generally.

Anything that is detrimental to a good night’s sleep is, therefore, harmful to a child, as insufficient sleep can lead to a whole host of other psychological problems.

Emotional, Behavioural, Social, and Cognitive Issues Excessive screen time can negatively impact children’s and adolescents’ mental health and development in multiple ways. It’s important to recognize that these effects vary across different age groups – preschoolers, children, tweens, and teens – each with unique vulnerabilities.

Let’s explore how excessive screen use influences emotional, behavioural, social, and cognitive aspects at different developmental stages.

E3 Magazine / 57

The Impact of Screen Time on Mental Health cont'd Preschoolers For preschoolers aged 2-5, screen time can interfere with crucial developmental milestones. At this stage, children learn best through direct interactions with caregivers and their immediate environment.

As such, screen exposure cuts into that time, potentially impeding language development, social skills, and emotional regulation. Young children may become irritable when overexposed to screens as they struggle to process the highly stimulating content.

School-aged Children In school-aged children (6-12), excessive screen use, particularly TV viewing, can contribute to attention problems and hinder academic performance. A study in The Lancet Child & Adolescent Health found that children aged 8-11 who spent more than two hours a day on screens performed worse on cognitive tests.

We should note that these studies are imperfect. It’s incredibly difficult to determine causality or pinpoint precisely why students may perform poorly on cognitive tests.

Yet we know that elementary school is a key developmental stage for children.

At this stage, children are developing critical thinking skills and require engagement in activities that promote focus and cognitive development. Overindulgence in screen time can detract from homework, reading, and imaginative play, which are essential for healthy brain development.

Even at this early age, there’s a link between excessive screen time and depression, too.

Tweens and Teens For tweens and teens, the impact of screen time on mental health becomes more pronounced, especially as it relates to anxiety and depression. Adolescents are at a stage where peer relationships and social acceptance are vital to their sense of self. The digital world of social media, accessed through screens, has opened up a whole new arena for these relationships to play out.

Excessive use of social media and other screen-based activities can worsen feelings of loneliness or inadequacy. A JAMA Pediatrics study spells out the consequences: adolescents who spent more than three hours a day on screens exhibited higher levels of anxiety and depression symptoms.

E3 Magazine / 58

The Impact of Screen Time on Mental Health cont'd Again, studies are ongoing, and it’s challenging to pinpoint precisely what causes these heightened symptoms. We can hypothesize that exposure to cyberbullying and the pressures of online social comparison might be significant factors in the detrimental effects of screen time. In this sense, the concept of screen time may not in itself be the villain here. Instead, the nature of screen use is the culprit. Again, this is not entirely understood at this time.

The content teenagers are consuming also plays a role in harming mental health. Exposure to unrealistic body images, negative news (doomscrolling), or distressing videos can heighten anxiety and depressive feelings.

It’s a pure time calculation as well; time spent consuming this content often replaces time that could be spent on other protective activities that guard against the very same mental health issues: physical exercise, faceto-face interactions, and a regular, healthy sleep schedule.

Understanding these multifaceted impacts of excessive screen time across emotional, behavioural, social, and cognitive domains is crucial. By recognizing how screen use affects children differently at each developmental stage, parents can tailor their approach to managing screen time effectively.

Benefits of Screen Time We haven’t touched on the potential benefits of screen time for children of different ages. It’s important we focus on these benefits since the reality of our age is that screen time is fundamental to our daily lives. We can’t avoid this as part of our existence. So, understanding some of the benefits of screen time is essential to better shape our interactions with screens.

Screens can be valuable tools for learning and development, providing access to educational content to boost literacy, numeracy, and critical thinking skills.

Educational apps and programs can support school curricula and stimulate intellectual curiosity.

Screen time can facilitate social connections, allowing children and teens to maintain relationships with friends and family.

Interactive games and creative applications encourage play and can boost imagination and problem-solving abilities.

Therefore, screen time isn’t inherently harmful; it’s the excessive and unbalanced use that poses risks. By finding a healthy balance – a deliberate and mindful approach – parents can help their children utilize the technology available to them while minimizing potential drawbacks.

E3 Magazine / 59

The Impact of Screen Time on Mental Health cont'd Finding the Balance: Tips for Parents Here are five things you can begin to do today to build a better relationship with screens in your household.

1. Setting Reasonable limits Follow guidelines for recommended screen use for different ages.

The Canadian Paediatric Society recommends the following screen time guidelines for children: Under 2 years old: No screen time except for video-chatting with caring adults 2–5 years old: Less than one hour per day Older than 5 years old: Less than two hours per day Some parents reading this will immediately recognize that less than two hours a day is unrealistic for older children. After all, teens use computers at school and for homework before we even consider some phone time or TV watching in the evening.

Perhaps more important here is to put in place some more reasonable limits. It is also important to monitor the impact of screens on your teens and the type of screen time they are most engaged in.

The CPS also recommends that children have daily screen-free times, especially for family meals and book-sharing. They also suggest avoiding screens for at least one hour before bedtime. These are useful starting points for parents looking for attainable targets to limit screen use.

You can also establish a set of rules for your household regarding screen use. The American Academy of Pediatrics offers a handy, interactive tool to create a personalized family media plan.

You can specify when and how certain devices can be used.

Above all, the first step the CPS recommends is to be mindful of screen use. Just start to take notice of the household relationship with screens. Even from this foundation, you may be able to spot some simple ways to cut down.

2. Encouraging Alternative Activities This will differ from family to family and from household to household, but it is important to encourage other activities that can replace screen time.

Nobody is saying that it’s easy to pry your children and teens away from screen use. And, again, it’s part of their lives and the world they live in. And yet, we must all do what we can to encourage other activities alongside screen use. It’s not ‘one or the other’ but finding balance.

Ultimately, it is important for parents to work with their children to find ways of ensuring daily physical activity that they can enjoy and engage in as much as possible, given the family’s unique situation.

E3 Magazine / 60

The Impact of Screen Time on Mental Health cont'd Whether that’s going for family walks or signing up for the local kids’ soccer team, it’s all about finding things that they love and will want to engage in as much as possible. Looking within the school setting can be very helpful for busy families who might not be able to manage extracurriculars on top of work and other familial responsibilities.

Beyond physical activity, try to encourage any interest in non-screen related hobbies: music, art projects, or board games, for example.

These activities offer opportunities that are beneficial to your child’s mental health because they allow them to relax, get moving, or socialize without the negative associations of the screen.

3. Modeling Healthy Behaviour Practice what you preach. As you know, your children are keenly aware of when you are being hypocritical as a parent, which will undermine any efforts to limit screen time.

Do your best to:

Demonstrate balanced screen use by limiting your own device time.

Designate times, such as during meals or before bedtime, when you all put screens away (as potentially set out in your family plan!)

Actively support those alternative activities mentioned above.

The good news is that modelling healthy behaviours around screen time for your children will also benefit you and your well-being.

4. Ensuring Quality Content As we’ve explored, it’s not always the screen time itself that is harmful but the nature of what children are watching or engaging with.

Do what you can to ensure children consume ‘quality’ content.

This means: Selecting apps and programs that are age-appropriate and educational.

Watching programs together. Engage in meaningful discussions to enhance understanding and critical thinking (making viewing a learning experience).

Learning about the concept of digital citizenship together Common Sense Media has put together some supplementary advice designed to help parents assess the quality of a child’s digital media use.

E3 Magazine / 61

The Impact of Screen Time on Mental Health cont'd 5. Promoting Good Sleep Hygiene The hour before bedtime should be a sacrosanct, screenfree time. The bedroom itself should ideally be a no-go zone for screens. Sleep is an important aspect of youth development, and you must do everything possible to promote a good night’s sleep. Keep screens out of children’s bedrooms to reduce any temptation to scroll or watch videos. Instead, encourage reading or other calming activities as part of their nighttime routine.

How the Ontario Psychological Association Can Help The Ontario Psychological Association (OPA) offers resources to support parents in managing their children's screen time and mental health.

Access to professionals - If you feel that your child is facing mental health issues, they may need to see a psychologist. Use the Find a Psychologist service to connect with qualified Ontario psychologists experienced in child and adolescent mental health.

Educational materials and resources - Explore articles and guidelines on healthy technology use and mental well-being.

Summing Up Screen Time Prioritizing mental health means engaging in open conversations with your children about their screen use and online experiences. It involves being attentive to signs of distress or changes in behaviour that may indicate mental health concerns. Utilizing resources like those offered by the OPA can provide additional support and guidance.

Building a healthy relationship with screens is essential. After all, they’re not going away any time soon.

By focusing on mental health and promoting a balanced approach to screen time, we can help our children develop resilience, strong social skills, and a positive sense of self.

This article is reprinted with permission from the Ontario Psychological Association. We are grateful for their generosity in allowing us to share this important information with our readers.

For more details, please visit the following platforms: - askforhelptoday@psych.on.ca and https://www.psych.on.ca/

E3 Magazine / 62

E3 Magazine / 63

l *Al

inf

or

m

at

io

n

ba

s

ta

da

23

20

on d

Heal Canada and Pat ADV Hub in the USA have embarked on a collaborative journey, aiming to revolutionize the realm of patient advocacy across North America. This pioneering partnership brings together two influential organizations from neighboring countries, combining their extensive expertise and resources.

The objective is to expand and enhance the access to critical information for patient advocates, ensuring that individuals across the continent receive the best possible support and guidance in their healthcare journeys.

By bridging the gap between Canadian and American healthcare advocacy, this alliance promises to foster a more informed, empowered, and connected community of patient advocates, significantly contributing to the improvement of healthcare experiences for countless individuals.

email: patadvhub@gmail.com

www.patadvhub.org

E3 Magazine / 65

Advocacy Spotlight

The "Advocacy Spotlight" section of Heal Canada Digital Magazine is a dynamic platform dedicated to shining a light on patient advocacy groups, both new and established. This unique feature aims to introduce these vital organizations to a broader audience, highlighting their missions, achievements, and the critical support they offer patients and their families.

Each edition of this segment meticulously selects a different group, delving into their specific focus areas, ranging from rare diseases to everyday health challenges. Heal Canada amplifies these groups’ voices and fosters a deeper understanding and connection within the broader healthcare community by showcasing their stories, initiatives, and community resources.

This section is more than just an informational piece; it celebrates these advocacy groups’ tireless efforts and significant impact and empowers readers by connecting them with valuable resources and support networks.

Providing Accommodation Access to Healthcare For Every Canadian : StayWell Suites Charity

Imagine being forced to choose between life-saving medical care and the financial burden of relocating to Toronto to access it. This is the reality for many patients, alongside their caregivers and family who must travel far from home to receive critical treatment. The added challenge of securing safe, affordable housing in an unfamiliar city often makes an already difficult journey even harder. This financial burden may force patients to either delay or forgo necessary medical care.

This is where StayWell Suites Charity steps in.

StayWell provides affordable accommodations to Canadians who must relocate for medical treatment. Through partnerships with major hotel chains and professional furnished apartment providers we offer subsidized patient rates, alleviating the financial burden and ensuring patients can stay close to hospitals, alongside their caregivers and family, while receiving treatment.

The inspiration for StayWell Suites Charity came from the personal experience of Tina Proulx, a patient from Ottawa, who faced a similar challenge in 2015. Diagnosed with a rare, lifethreatening disease, Tina needed a double lung transplant at Toronto General Hospital, over 400 kilometers from her home in Ottawa. In Toronto, the areas surrounding the hospitals are amongst the most expensive in the city. Tina and her husband Joel decided to make the move and had to take leaves of absence from work – they found themselves living in one of the most expensive cities in the country without any income.

Matt Regush, a partner at Sky View Suites, learned of Tina's relocation challenges in the fall of 2015, when her family inquired about furnished accommodations and instantly provided them with a fully furnished unit at a reduced cost. This encounter led to the creation of StayWell Suites Charity. “If you cannot afford to live in Toronto and you’re making the choice not to accept treatment, then you are basically making the choice to die” says Tina, reflecting on her experience. In December 2015, Tina received her transplant and made a full recovery, inspiring StayWell’s mission to help other patients facing the same challenges.

From our start in 2018, providing three patients of the Princess Margaret Cancer Centre, including their families and caregivers, with 135 nights, we have grown significantly. By the end of 2024, we will have supported over 5,500 patients with over 90,000 room nights across all major hospitals in Toronto. Patient stays range from a few days to over a year. Earlier this year, we concluded an agreement with the SickKids Foundation to provide $250,000 in accommodation support over the next five years.

E3 Magazine / 67

Providing Accommodation Access to Healthcare For Every Canadian : StayWell Suites Charity cont'd

From our start in 2018, providing three patients of the Princess Margaret Cancer Centre, including their families and caregivers, with 135 nights, we have grown significantly. By the end of 2024, we will have supported over 5,500 patients with over 90,000 room nights across all major hospitals in Toronto. Patient stays range from a few days to over a year. Earlier this year, we concluded an agreement with the SickKids Foundation to provide $250,000 in accommodation support over the next five years.

Looking ahead, StayWell will expand to other cities across Canada in 2025, continuing to rely on the support of dono s and partners to fill the gap between accommodation costs and what patients can afford. StayWell Suites Charity is committed to providing safe, affordable accommodations to patients, along with their caregivers and family, during their medical journey. Your support can make a life-changing difference for families like Tina’s, ensuring that no patient has to choose between their health and affordable accommodations.

Patients/caregivers can go to our website staywell.ca and select the Book Now link

staywell.ca E3 Magazine / 68

Patient Journey's The "Patient’s Journey" section of Heal Canada Digital Magazine is close to our hearts. This magazine is dedicated to patients and caregivers. We are proud to offer a platform to our community so that we can share, learn, and grow together. Here, patients can share their experiences and empower readers by connecting them with our Heal Canada community. By doing so, we can understand that whatever the situation we face, we are not alone! United, we stand in Advocacy!

Hope: A Physician's Journey

by Dr. Nhung N. Tran-Davies Reprinted - Issue 5 I can clearly remember how taken aback I was to be still breathing when the first month of the new year came to a close.

A heavy weight lifted off my shoulders because it wasn’t just any January. It was the first month of a new year, after having been diagnosed with Stage 4 Colorectal Cancer just a couple of months prior. I didn’t think I would live to see any of the new year, for that matter.

And so, to know that I had survived and that I was indeed going to see the sunrise on the first day of the second month of a new year brought a huge sense of relief, wonder, and hope. I believed then that I could do this, that I could get through this. For the first time in my 50 years of life, I was truly grateful for every second of every minute of every day.

Being a Family Doctor and knowing how poor the prognosis can be for Stage 4, I didn’t know if I was going to live. Nothing in my 20-year career as a medical doctor, not even my experience of delivering sad news and caring for palliative patients, prepared me for confronting my very own mortality.

I plunged into the depths of despair after my diagnosis because of my children still being so young. I want to be here still to see them graduate, blossom, reach their dreams, and find their true loves. I want to hold my grandbabies. There’s still so much to do and more of the world to see, more walks in the woods and dances under the moonlight with my other half.

Surprisingly, my patients played a huge role in drawing me out of the despair. Little did I know how quickly they banded together to become my ‘doctors.’ It was their turn to take care of me, they said. And that they did with all the delicious food, warm blankets, and countless other gifts they inundated me with. They were indeed instrumental in lifting me through the darkest moments.

Now, twelve months into this journey and two major surgeries out of the way, I realize that I’ve learnt a thing or two, especially as a physician looking through a patient’s lenses. How can I not, after having been wheeled around half-naked on surgical gurneys, being poked and prodded, and subjected to countless needles and bloodletting, scans, doctor visits and numerous rounds of nauseating chemotherapy?

Facts and science are at the core of medicine and my medical practice. As physicians, we must follow evidence-based best practices and “do no harm.” That is why I was so surprised when, suddenly, I found myself in the position of seeking out alternative/herbal therapies. Well, it was more so to appease my mom. She had overheard friends talk about a product that could boost the immune system and cure cancer, and that was enough for her to nudge me on. I tried to stand my ground on the lack of strong evidence, but sensing the hope this potential remedy was giving her, I finally conceded (deducing that, at least, it would cause no harm). I realized then that even if it had a one in a million chance of helping, I could not or should not deny that hope, that possibility of cure, to my family and friends, and most of all, to myself.

E3 Magazine / 70

Hope: A Physician's Journey cont'd

A unique lesson I’ve learned as a physician on this journey is seeing the world from a patient’s perspective. Now that I am the one in the waiting room, the one on the exam bed, the one getting my blood pressure taken, it’s a new world of fears, uncertainties, and vulnerabilities. I’ve realized how critical the doctor-patient relationship is to our health and well-being. The physicians who’ve sat down at eye level with me and just talked to me to find out how I’m feeling, how I am, what my concerns are, etc., are the physicians who have not only empowered me but have also been restorative in allaying my fears and uncertainties. No matter how scientifically complicated the diagnosis or prognosis can be, a good physician is a physician who infuses the discussion with warmth, compassion, and possibilities. Ultimately, all I want, as a patient, is to walk out of that doctor’s office with a sense of hope.

One of the biggest, most humbling lessons I’ve learnt through all this is that there’s still much we physicians and scientists don’t know regarding health and healing. Yes, I’ve gone in for the recommended surgeries and rendered my system to the chemotherapies, as I have great respect for medical science. However, I admit I’ve gained a greater respect for the power of Prayers.

Prayers have accentuated every medical decision and therapy I’ve submitted. As I am rolled into the surgical suite, as the drugs infuse into my veins, there lies at the forefront of my consciousness prayers - prayers to guide the precision of the surgeon’s hand, prayers that the chemotherapy devours every cancerous cell, prayers that I will get through this. Prayers from everyone near and far, of every religion and faith in my circle of loved ones, lifted my spirit and carried me through the darkest times, giving me strength and courage to carry on with the fight.

Prayers are an ethereal force that gives me hope. Hope is all we have at the end of the day. Hope empowers. Hope defies statistics and probabilities and ventures into the realms of miracles and endless possibilities. Hope is the light that shines through the dark. As per Emily Dickinson, “Hope is the thing with feathers that perches in the soul, and sings the tune without the words, and never stops at all...”

Dr. Tran-Davies is a distinguished writer and physician who proudly graduated from the University of Alberta. In 1979, she arrived in Canada as a refugee from the Vietnam War, accompanied by her mother and five siblings.

Dr. Tran-Davies has a passion for writing children’s stories that highlight the humanity in our lives. Her works have been shortlisted for several prestigious awards, including the Alberta Literary Award, Red Maple Award, and Blue Spruce Award.

Visit Dr. Tran-Davies's website to discover more about her remarkable work: https://www.nhungtrandavies.com/

E3 Magazine / 71

Living with Multiple Myeloma

by Bev Dunn

I have always been an active, healthy individual, aside from some osteoarthritis issues. In the Spring of 2018, I began experiencing extreme fatigue and increased thirst. Bloodwork showed that I was anemic. Those were my first indicators that something might be wrong. When reviewing bloodwork, my GP could not figure out why I continued to be anemic, despite taking iron (which did not help). In April that year, my husband and I went on a Hawaiian cruise with some friends (we cruise a lot!), and I have to say it was the only cruise in memory when I felt I slept my days away. I would wake up, go eat, go take ukelele lessons, come back to the room, sleep, maybe go for dinner, and then sleep all night. I was also drinking 3-4 litres of water a day.

We returned to Calgary in early May, and my fatigue increased to the point of near collapse in the shower on May 30, 2018. That was a first, and alarm bells were going off in my head.

That’s the day my life changed forever.

My husband took me to the ER at Rockyview Hospital where I underwent a myriad of tests. The first-most shocking result was that I was in renal failure. Later that evening, after more extensive bloodwork, the on-call Oncologist gave us the second-most shocking result - I had Multiple Myeloma. I was admitted to Rockyview Hospital for further testing. I’d like to interject here that a lot of people are diagnosed when they fall and badly break a bone, and then a diagnosis is sometimes made. Other patients, like me, have vague symptoms that can be attributed to something else: high calcium content in the blood, renal failure, anemia. I had all of those. After a week in Rockyview Hospital where I was treated to more in-depth testing, including a colonoscopy and a bone marrow biopsy, I was referred immediately to the Tom Baker Cancer Center (TBCC). At that point I attended the Hematology Clinic there and was told in my initial assessment that my bone marrow contained 85% to 90% Myeloma cells.

E3 Magazine / 72

Living with Multiple Myeloma cont'd

I underwent 4.5 months of CyBor D chemotherapy (Cyclophosphamide, Velcade and Dexamethasone) and after further testing revealed that I did not have any genetic translocations which would prevent me from undergoing an autologous stem cell transplant (using my own stem cells), I was then transferred to the Bone Marrow Transplant Clinic at TBCC to prepare for that procedure. This included another bone marrow biopsy, sub-cutaneous injections to stimulate growth of stem cells so that they would overproduce and push each other out of the bone marrow and into the bloodstream, having my stem cells harvested by an apheresis machine, undergoing a high-dose chemotherapy (Malphalan), and then receiving my stem cells back into my body by another apheresis procedure, which happened on November 16, 2018.

NOTE: Let me preface this next little bit by saying that I also have Crohn’s Disease. One of the really bad side effects of the high-dose chemo is what I call the Big D (diarrhea). This is where the process plays with your head a little. Each patient reacts differently to (1) the Malphalan; and (2) the actual stem cell transplant. We have a wonderful system here in Calgary. Once you receive your cells back, they let you go home, but tell us to return back to the hospital if you start feeling ill. They assign you a room because they know something we don’t know.

At this point, the Malphalan hasn’t really kicked in, and most patients feel OK. Some people do not have to return to the hospital, and can recuperate at home. I believe I lasted 3 days at home before I started to feel unwell. Off to the hospital we go, where I checked into my room on our famous “Unit 57” at the Foothills Medical Centre.

As the Malphalan destroys (hopefully) all remaining Myeloma cells, the Big D can be a huge side effect. Combine that with Crohn’s Disease and I can truly say that despite some of the best care in the world (our nurses are second to none), I spent 2 very miserable weeks on Unit 57. Chewing ice was recommended while receiving the high-dose chemo to prevent mouth sores; however, that did not prevent me from developing a sore throat during the first week which was so horrific I couldn’t swallow anything. The only thing that helped with the pain was Fentanyl. It also scarred my vocal cords which has affected the timbre of my voice.

Another side effect of the chemo for me was auditory hallucinations. This was a very disorienting and very realistic experience. Had I realized it at the time, I could have written down some pretty dark lyrics of songs from a concert which (I was convinced) was being performed right outside the hospital. Alas, I didn’t realize it was a hallucination until after the fact, and I lost my chance at making millions of dollars as a singer/songwriter. It’s probably just as well my voice was altered to something less than melodious.

E3 Magazine / 73

Living with Multiple Myeloma cont'd After a 2-week stay on Unit 57, I was able to go home where recovery continued. I began to feel much stronger and my stamina increased. In March 2019 I saw my Oncologist for a follow-up and found out that the stem cell transplant had been successful - I was in Complete Recovery. I was told that patients could expect between 2 – 5 years of remission after transplant before relapsing. That was good enough for me. I just wanted to get back to living life.

I was put on a maintenance regime of Revlimid (lenalidomide), 10mg every day for 3 weeks a month, followed by 1 week off the drug. Every month I had bloodwork drawn, and every month that there was no detectable M-Spike (monoclonal protein spike) was a blessing.

Then, in November 2023, almost 5 years to the day after the stem cell transplant, my Protein Electrophoresis results showed an M-spike of 4, and my free light chain numbers jumped to 267. Here was the relapse that I knew was coming. We all know this is how it works. I thought something might be off because I had been experiencing fatigue again and kind of expected it, but it’s a little shocking when that shoe drops ...

Right away my Oncologist and I spoke and decided upon a course of action. We would wait to see if the bloodwork showed a steady increase in Myeloma activity, or if it leveled out. In December, January and February, the numbers rose steadily.

In March 2024, I began a new treatment regime called IkD (Isatuximab, Carfilzomib and Dexamethasone). After the first cycle (days 1, 8, 15 and 22 of each 4-week cycle), my M-spike dropped to 4 and my free light chain number dropped to 17.

The regime changed for Cycle 2. On Days 1 & 15 I receive Isatuximab, Carfilzomib and Dex, on Day 8 I receive Carfilzomib and Dex, and I have the week of Day 22 off. Bloodwork after Cycle 2 showed an M- spike of 2. It’s working!

This treatment regime will continue until this treatment stops working, and then it will be on to the next line of treatment available here in AB. Our travelling is going to be a little curtailed, but somehow it’s going to happen, because it’s one of my inspirations for pushing through this disease and getting on with life.

My other main inspiration is my family, and especially our grandchildren. While I was preparing for mystem cell transplant in November 2018, my biggest concern was that my daughter was pregnant with our first grandchild, and I didn’t want to miss anything! She was born on October 2

by C-section, and I was in the OR with my daughter when she was born (and was the first person to hold her when she came into the world!!). On July 4, 2020, our grandson was born, and added to the joy in our lives. Also in 2020, amid a full-blown pandemic my sister and her husband moved from Ontario to live in Calgary, AB, and we get to spend a ton of time together after having lived our adult lives up to then in different provinces. We celebrate everything at every opportunity. Have I mentioned that we both love to shop??

In life, I choose not to focus on Myeloma. It’s there, and I know it. Instead, I focus on enjoying time with family and friends, travelling, reading, getting back to my outdoor activities like walking and cycling, advocating for Myeloma patients in various arenas, and just living. I have always maintained a “glass half full” attitude in life and that’s not going to change.

E3 Magazine / 74

Living with Multiple Myeloma cont'd

I am encouraged by the great strides made in research and treatment development, some of which is done right here at the University of Calgary by our very own TBCC clinicians and U of C researchers Dr.Nizar Bahlis, Dr. Paola Neri and their Myeloma-specific research team. They have impacted the life expectancy and quality of life for Myeloma patients in a very positive way. I am encouraged by the number of new drugs that have come down the pipeline and have been approved for Myeloma treatment here in Alberta.

I am encouraged by the work done by Myeloma Canada and all of the support groups across Canada in helping patients understand Myeloma, providing up to date educational and research resource materials and helping spread awareness of Myeloma, which is the second-most common blood cancer but is relatively unknown until one is diagnosed with it!

I am especially proud of our local Myeloma support group, the Southern Alberta Myeloma Patient Society (SAMPS), a non-profit registered charity which fundraises to provide financial support directly to the local Myeloma-specific research at the above-mentioned U of C lab.

To anyone who has been diagnosed with Multiple Myeloma I would recommend learning as much as you can about your personal diagnosis, finding a good support group, follow the research in this area of blood cancer because it is very inspiring and above all, maintain a positive attitude.

Onward and upward!! To Life!

I am a retired Legal Assistant/Paralegal. I was diagnosed with Multiple Myeloma in May, 2018. I'm a volunteer Board member with the Southern Alberta Myeloma Patient Society. and a member of Myeloma Canada.

Where possible I help advocate to ensure that Myeloma patients' voices are heard, and to increase awareness of Multiple Myeloma and its effect on individuals living with this incurable disease. My husband, daughter and her partner, our 2 grandchildren and Sophie (our Maltese) form the center of my university, but my husband and I make time to travel when we can, and just enjoy life through photography, writing, reading, various crafts and gatherings with family and friends. The occasional glass of wine or scotch never goes unappreciated either!

E3 Magazine / 75

Share your Patient Journey Story with us!

If you would like to share your story about your journey, as a patient, caregiver, or advocate, send us a short (150 words) description of your journey, for consideration in an upcoming issue! email your submission to: digitalmagazine@healcanada.org

E3 Magazine / 76

Living Well

In this vibrant corner of Heal Canada Digital Magazine, we're excited to introduce you to our "Living Well" section – a treasure trove of inspiration and guidance for those seeking a healthier, happier, and more balanced life. Our mission is to empower you with expert insights, the latest health trends, and personal wellness stories that resonate with real-life challenges and triumphs.

Here, we explore the many facets of well-being, from nourishing your body with wholesome nutrition to rejuvenating your mind through meditation and mindfulness. You'll find practical advice on exercise, mental health, and preventive care, all tailored to fit into your busy lifestyle.

But "Living Well" is more than just a guide; it's a community. We encourage you to engage with us, share your journeys, and learn from others who are on similar paths. Whether you're taking the first steps towards a healthier you or are further along your journey, we're here to support and inspire you at every turn.

"Living Well" will provide topics that matter the most to your health and happiness. Let's celebrate the joy of living well together!

Fueling Your Mind: How Food & Healthy Routines Can Support Mental Health Through Winter and the Holidays

by Jessica Botsas, R.H.N. As the days become shorter and the holiday season approaches, many people find themselves struggling with heightened fatigue and seasonal depression—also known as seasonal affective disorder (SAD). While winter's cold and holiday stress is inevitable, how we nourish our bodies and adopt better habits profoundly influences how we navigate these challenges.

Intentional Eating Plan Ahead: Prepare nutrient-dense meals in advance to balance out indulgent holiday dishes.

The holiday season can often push us toward an all-or-nothing mindset, making us feel like the time between Christmas and New Year's is a complete washout regarding healthy habits.

However, it is essential not to fall into this trap. If you know you will enjoy a big family dinner, focus your plate on protein and fiber (vegetables/fruits) earlier in the day. Some great ideas for nutrient-dense meals include a protein-rich smoothie with berries and chia seeds, an eggvegetable omelette, or a tuna salad.

Adding "More" To Your Plate: There's no need to deprive yourself. By adding more nourishing foods to your plate, such as protein and vegetables, you'll naturally crowd out the extras without consciously excluding any foods.

Always Be Intentional: While "moderation is key" sounds logical, it's challenging to implement.

What can help with this is being intentional about what you choose to add to your plate rather than going on "auto-pilot." Allow yourself to enjoy holiday treats without guilt and overindulging!

Stay Hydrated: Dehydration can mimic symptoms of fatigue and anxiety. Drink water throughout the day, and opt for herbal teas such as peppermint to ease stress and support digestion.

Foods to Boost Mental Resilience

Certain nutrients take center stage in supporting the body and mind during challenging times.

Be sure to include these vital components in your diet!

1. Vitamin D: Low vitamin D levels are often linked to mood and energy changes, particularly in the winter when sun exposure dwindles. It is also crucial for immune support, something we can all benefit from during this time of year!

Best food sources: Fatty fish, such as salmon, egg yolks, liver, and fortified foods, such as cereals, grain products, and milk.

Supplements: Supplementation of vitamin D3 may be necessary for those living in northern climates. The dosage of vitamin D3 will vary based on your current vitamin D levels, which can be evaluated through blood work. Working with your primary care physician is important to ensure that your supplementation is tailored to your specific needs. Vitamin D is a fatE3 Magazine / 78

Fueling Your Mind cont'd

soluble vitamin, meaning it is not easily excreted by the body if consumed more than recommended. Disclaimer: Before starting any dietary supplement, consult a healthcare professional to ensure it is safe, considering proper dosage and potential drug interactions.

Best time to start boosting vitamin D? Typically, you’ll want to increase your vitamin D intake as the amount of time spent outdoors decreases, especially when more of your body is covered up. One of the primary sources of vitamin D is sunlight, as it’s synthesized by your skin when exposed to UV rays. However, it can be difficult to reap the full benefits of the recommended 10-15 minutes of sun exposure during cold weather. Individuals with higher melanin (darker skin pigment) may require at least 25 minutes of sun exposure to produce sufficient vitamin D. Who is susceptible to low vitamin D? Individuals with darker skin tones are more prone to low vitamin D levels because higher melanin can reduce the body’s ability to synthesize vitamin D from sunlight. Individuals with digestive issues, such as those without a gallbladder, may struggle to break down fats, including fat-soluble vitamins like vitamin D. Similarly, people exhibiting signs of fat malabsorption in their stools may be particularly vulnerable to low vitamin D levels. Lastly, individuals over 65 are at risk of vitamin D deficiency. As we age, the skin’s ability to synthesize vitamin D from sunlight diminishes, and post-menopausal women experience bone health and metabolism changes that increase their vitamin D requirements.

2. Complex Carbohydrates: As we become susceptible to fatigue and swings in energy, it is important to maintain stable blood sugar levels to maintain focus and emotional balance. That’s not to say you can’t enjoy some treats; however, listen to your body.

What are complex carbohydrates?

These are carbohydrates that contain fiber, which helps slow digestion and prevents blood sugar spikes as the body breaks down carbohydrates into sugars.

Best food sources: Whole grains such as wild rice, oats, quinoa, and whole grain bread, as well as starchy vegetables such as potatoes with skins on, winter squash, and whole fruits (avoid fruit juices).

E3 Magazine / 79

Fueling Your Mind: How Food & Healthy Routines Can Support Mental Health Through Winter and the Holidays cont'd

3. B Vitamins: Particularly B6, B12, and folate, play a crucial role in providing energy by supporting neurotransmitter production, boosting energy metabolism, and aiding in blood cell formation (especially important if you have a history of anemia or low iron levels).

Best food sources: Leafy greens, beans, eggs, beef, chicken, fortified nutritional yeast, and whole grains, including fortified grains are all rich sources of these essential vitamins.

Supplements: You may consider a vitamin B-complex, which contains all the necessary B vitamins, or a multivitamin, which includes a vitamin B-complex. If you are meat-restricted (vegan/vegetarian), speak to your primary care physician about testing your vitamin B12 levels to avoid deficiency. Disclaimer: Before starting any dietary supplement, consult a healthcare professional to ensure it is safe, considering proper dosage and potential interactions with medications.

4. Omega-3 Fatty Acids: Omega-3 is an essential fat that helps regulate neurotransmitters like serotonin and dopamine. It is also essential for combating inflammation in the body and keeping your brain happy and healthy, which may be especially important if you suffer from brain fog during the winter.

Best food sources: Fatty fish (salmon, trout, mackerel, sardines, anchovies), walnuts, chia seeds, and flaxseeds. It is recommended to consume 8-12 oz of fish and seafood per week.

Supplements: If fish is not a regular part of your diet, you might consider taking a fish oil supplement or algal oil if you follow a vegan or vegetarian diet, as it contains EPA and DHA, similar to fish oil. Disclaimer: Before starting any dietary supplement, consult a healthcare professional to ensure it is safe for you, considering proper dosage and potential interactions with medications.

E3 Magazine / 80

Fueling Your Mind: How Food & Healthy Routines Can Support Mental Health Through Winter and the Holidays cont'd 5. Prebiotics & Probiotics: About 90% of serotonin, the “feelgood” neurotransmitter, is produced in the gut. A balanced gut microbiome – supported by a nutrient-dense diet, can influence mood, stress response, and overall mental health.

Prebiotics feed probiotics: Prebiotics (soluble fiber) are the primary food source for probiotics (beneficial live bacteria), making them essential for maintaining a healthy gut.

Furthermore, when prebiotics are digested, they produce butyrate, a short-chain fatty acid that serves as a critical energy source for colon cells – fueling up to 70% of the colon wall’s needs. Achieving this symbiotic balance of prebiotics and probiotics is key to supporting digestion, immunity, and overall well-being.

Best food sources of prebiotics (soluble fiber): Chia seeds (2 tablespoons provide 8g of fiber), flax seeds, oats, barley, root vegetables (all – potatoes, carrots, turnips, beets, parsnips), squash (all – zucchini, pumpkin, butternut squash), mushrooms, okra, asparagus, avocado, beans/lentils, peas, banana, apples, berries, citrus, and figs.

Best food sources of probiotics: yogurt, kefir, sauerkraut, kimchi, miso paste (soups/stews), tempeh, and kombucha.

6. Magnesium: This is nature’s relaxing mineral. It helps regulate the stress response and promotes better sleep. Unfortunately, many people have low magnesium levels due to depleted soils and a diet that doesn’t include enough sources of magnesium. In addition, factors such as excessive caffeine consumption and chronic stress can further deplete magnesium levels in the body.

Best food sources: Spinach, almonds, pumpkin seeds, lima beans, and dark chocolate (80% +) are excellent sources.

Supplements: The form of magnesium you choose will depend on your personal needs. My top three picks are magnesium citrate, magnesium bis-glycinate, and magnesium Lthreonate. Disclaimer: Before starting any dietary supplement, consult a healthcare professional to ensure it is safe for you, considering proper dosage and potential interactions with medications.

Jessica Botsas is a holistic wellness practitioner (R.H.N), a graduate of the Canadian School of Natural Nutrition, and the founder of Vital Wellness. She offers a whole food, non-diet approach to health, focusing on sustainable weight management, digestive health, metabolic concerns, food relationships, and eating habits. Jessica adheres to a strict code of ethics and is a member in good standing of L'Association des Naturopathes Professionnels du Québec (ANPQ). She provides virtual consultations across Canada.

For further information, visit: www.vitalwellness.ca email: jessica@vitalwellness.ca Instagram: vitalwellnessmtl E3 Magazine / 81

7 Easy Ways to Make it Through Any Holiday and Avoid Making New Year’s Resolutions

by Sue Lemoine, RNHP

Do you make New Year’s Resolutions every year and fail to keep them?

If so, you are like most people.

I avoid making New Year’s Resolutions, just because I follow the 80/20 rule all year long. I also teach it to my clients so they are healthy all year long.

Here are some questions for you . . . and some tips to get that control back again.

Does the idea of eating healthier make you panic?

Is your first thought that you need to buy special food and completely change your lifestyle?

Well, here are seven tips you can incorporate today without ever setting foot in the grocery store or cracking open a cookbook.

Eating better is something EVERYONE can do to improve their health. And it doesn’t have to be timeconsuming, difficult, or stressful. And you don’t have to wait for the New Year – practice these tips all year long.

Try these seven easy steps to improving your diet, right now: 1. Don’t skip meals!

For most people, eating breakfast sets them up for the day with proper nutrition and energy.

Skipping breakfast, or any meal, is one of those dietary pitfalls most folks indulge in.

We don’t have time, We’re hoarding calories for dinner, We have a meeting. Time to stop making excuses for not taking care of yourself properly If you’re like most people, spreading food intake out over the course of the day will keep you properly fueled, prevent you from overindulging, and keep your metabolism working at peak form.

Don’t make your body guess when you will feed it again.

Regulate your energy by eating at regular intervals.

2. Eat your fruit; don't drink it.

It is better for your body to have whole fruit instead of fruit juice (unless it is freshly squeezed with no added sugar) as it has several of the following benefits: it is high in fibre; contains natural sugars that your body can easily break down and transport through your body to where it is needed the most; It’s also high in vitamins (every colour of fruit has different vitamins and minerals that your body craves); It can satiate your craving for sweets and fill you up.

It is so very important to stay away from the sugary fruit juices.

E3 Magazine / 82

7 Easy Ways to Make it Through Any Holiday and Avoid Making New Year’s Resolutions cont'd 3. Plan ahead.

Grab and go eating is the norm for most of us.

And unless you plan ahead, you’ll end up grabbing processed snacks and prepared foods that are filling your body with unwanted sodium, chemicals, and junk.

So instead of reaching for what’s convenient, take ten minutes to scribble out a game plan at the beginning of the day, or plan your meals and snacks for the week each Sunday.

A banana and a tablespoon of peanut butter will fuel you so much better than a bag of chips or a candy bar, so let’s put that in your meal plan! All you have to do is plan ahead.

4. Use your hands.

Measuring can be a hassle but portion size is everything. Regardless of WHAT you eat, if you eat too much of it you won’t lose weight. Those are just the facts. The easiest way to mind your portions is to serve your portions based on the size of your hands:

Protein = one palm Fat = one thumb Veggies = one fist (or if it’s leafy or cruciferous, unlimited) Carbs = one cupped hand For now, this easy guesstimate method can save you from overeating and help you reign in your portion size without carrying any special tools or making a fuss. Easy is . . . good.

5. Eat dessert once.

This sounds ridiculous but most of us have a sugar habit that makes dessert a day-long investment in junk eating. We eat sugary cereal, fruity yogurt, pancakes, and pastries in the morning and call it breakfast. We sweeten our coffee. We reach for candy at our desks. We have cookies after lunch and “treat ourselves” to ice cream after dinner. All those things really add up.

Choose ONE time of day to indulge in something sweet and call it done. You will be amazed at how much better you feel when you limit your sugar without denying yourself.

E3 Magazine / 83

7 Easy Ways to Make it Through Any Holiday and Avoid Making New Year’s Resolutions cont'd 6. Swap water for high-calorie beverages.

Walk straight past the soda machine, skip the double mocha latte Frappuccino macchiato, and head right to the water fountain. I know it sounds boring, but water is your best friend. Drinking water is like showering your body from the inside out, rinsing away toxins, filling you up, hydrating your hair and skin, and yes, decreasing your appetite. DRINK UP – at least half your body weight in ounces per day.

7. Slow it down.

Life is crazy. I get that. But eating is one of life’s essential pleasures. Don’t squander it by rushing through meals and snacks so quickly you can’t remember what you ate. Slow down, Savor every bite – really taste what you are eating and Let your tastebuds celebrate what you are offering them.

When you take the time to enjoy your meals you’ll make every mouthful count. Adjusting your pace and making mealtimes a “time out” will help you focus on quality over quantity. Every one of these seven tips is something you can try today without any extra preparation.

Eating better doesn’t have to be painful.

My whole weight loss and fitness philosophy is based on making small, daily changes so they can become lifetime habits because making small changes really does pay off big time. Want more information of incorporating these steps into your life? Email me (below) and I can help you through your obstacles.

Sue Lemoine, RNHP Sue@flourish-nutrition.ca https://flourish-nutrition.ca/ E3 Magazine / 84

Mental Fitness: A Foundation for Well-Being Across All Ages and Challenges

by Alice Funk Maybe you’ve heard the term Mental Fitness but don’t know exactly what it is. Do we go to a gym and do exercises? Do we strain our brain with weights? Well, it’s a little bit of that!

Mental fitness is the proactive pursuit of mental and emotional well-being and is a cornerstone of holistic health. While everyone hears about the emphasis placed on physical fitness, mental fitness is equally critical in maintaining resilience, emotional regulation, and cognitive adaptability. It enables us all to manage stress, overcome adversity, and thrive in their personal and professional lives.

This article we will delve more into the importance of mental fitness for adults, seniors, and individuals with chronic illnesses. By exploring the strategies to cultivate mental fitness and its profound benefits, we aim to showcase why it is essential for navigating the complexities of life.

What is Mental Fitness?

How I describe Mental Fitness is being able to handle life’s challenges with a more positive mindset and with less stress!

Mental fitness encompasses various practices and habits that bolster emotional stability, cognitive clarity, and psychological resilience. It moves beyond simply avoiding mental illness; it’s about thriving mentally, even in the face of life’s challenges. Core aspects include: Resilience: The capacity to bounce back from setbacks.

Emotional Regulation The ability to manage and express emotions constructively.

Mindfulness Staying focused on the present moment, free from distraction or judgment.

Cognitive Flexibility Adapting to new information and changing circumstances with ease.

Just as muscles grow stronger with exercise, mental fitness improves through regular practice.

There are still exercises you need do, but it’s in your head! They help enhance how we perceive, process, and respond to the world.

Why Mental Fitness Matters?

A firm foundation of mental fitness offers a range of benefits, including:

E3 Magazine / 85

Mental Fitness: A Foundation for Well-Being Across All Ages and Challenges cont'd Improved focus, memory, and problem-solving abilities.

Enhanced emotional intelligence, leading to stronger relationships.

Better stress management, reducing the risk of burnout.

Increased ability to cope with unexpected challenges.

Mental fitness isn’t just about responding to difficulties; it’s about thriving daily and experiencing a greater sense of fulfillment.

The Role of Mental Fitness in Adulthood Adulthood’s Unique Challenges Our adulthood is NOT what we thought it would be when we were growing up. It is a time of significant responsibility, with individuals juggling careers, family commitments, and personal aspirations. These demands can and will lead to chronic stress, decision fatigue, and burnout if not identified and dealt with properly. Mental fitness equips adults with tools to navigate these challenges effectively.

Some Strategies for Building Mental Fitness Mindfulness and Meditation Mindfulness involves focusing on the present moment and accepting it without judgment. It’s a hard one but once you practice, it becomes easier. Meditation is a more structured mindfulness practice, is proven to reduce stress and enhance focus.

A simple mindfulness exercise: Spend just a few minutes daily observing your breath. When your mind wanders, gently return your focus to the breath. You can also bring it other senses like smell and touch! Do this at various times throughout the day.

Cognitive Training Activities like solving puzzles, playing memory games, or learning new skills keep the brain engaged and sharp. Many research studies suggest that mental stimulation can delay cognitive decline.

Emotional Regulation Practices Journaling helps individuals process emotions, clarify thoughts, and reduce stress. Writing for even 10 minutes a day can provide emotional clarity. It also doesn’t have to even be in paragraphs – writing things down in point form can also help get your emotions and thoughts out.

Therapy or coaching services can also offer a more guided approach to exploring emotions and developing constructive coping mechanisms.

The Benefits of Mental Fitness for Adults Enhanced Productivity: A mentally fit adult can concentrate better, solve problems creatively, and make decisions more effectively. This expands to not just your professional realm but also your personal.

Stronger Relationships: Emotional intelligence, fostered through mental fitness, helps adults communicate effectively and build meaningful connections. Once again in both professional and personal settings.

Stress Management: Mental fitness practices equip adults to handle high-pressure situations calmly, reducing the risk of burnout.

E3 Magazine / 86

Mental Fitness: A Foundation for Well-Being Across All Ages and Challenges cont'd Mental Fitness for Seniors Aging and Its Mental Health Challenges As people age, they encounter unique challenges, including memory decline, reduced physical capabilities, and potential social isolation.

These factors can lead to feelings of frustration, loneliness, and, in some cases, depression. Mental fitness offers seniors tools to maintain their cognitive health, emotional well-being, and sense of purpose.

Building Mental Fitness in Older Adults Lifelong Learning Learning a new skill, like playing an instrument, gardening, or speaking a new language, stimulates the brain and fosters a sense of accomplishment.

Seniors who engage in creative hobbies experience lower levels of stress and a greater sense of fulfillment.

Social Connections Active participation in social groups or community events reduces loneliness and enhances mental well-being. Examples include joining a book club, volunteering, or attending local workshops. Regular interaction with friends or family also boosts emotional resilience.

Mind-Body Practices Exercises like yoga and tai chi are excellent for seniors, combining physical movement with mindfulness. These practices improve balance, reduce anxiety, and enhance overall mental clarity.

The Cognitive Benefits of Mental Fitness Mental fitness stimulates neuroplasticity, the brain’s ability to form new neural connections – just like plowing a new roadway. This is especially crucial for seniors, as it helps combat memory loss and cognitive decline. Studies indicate that seniors engaging in regular mental fitness practices have a lower risk of developing dementia and Alzheimer’s disease.

An Inspiring Example A retirement community in California implemented a storytelling program encouraging seniors to share their life experiences in small groups. Participants reported improved memory recall, reduced feelings of loneliness, and a renewed sense of purpose. This simple yet effective initiative demonstrated how mental fitness can profoundly impact seniors’ quality of life. The other aspect I love about this is it gives everyone purpose again which is a profound source of happiness.

E3 Magazine / 87

Mental Fitness: A Foundation for Well-Being Across All Ages and Challenges cont'd

Mental Fitness and Chronic Illness The Unique Challenges of Chronic Illness Living with any chronic illness often means facing physical discomfort, emotional strain, and a sense of unpredictability. These challenges can be overwhelming, affecting not just physical health but also mental well-being.

Common issues include: Emotional Toll Chronic illnesses often lead to feelings of frustration, sadness, or anxiety about the future.

Social Isolation Physical limitations may prevent individuals from engaging in social activities, contributing to loneliness.

Uncertainty and Fear Flare-ups or progression of the illness can cause significant stress. This is also wrapped up with the emotional toll as the anxiety can take over as we are waiting for the “other shoe to drop”.

How Mental Fitness Helps Mental fitness empowers individuals with chronic illnesses to take control of their mental health, fostering resilience and emotional balance.

Mindfulness Practices Techniques like mindful breathing and body scans help individuals manage pain by shifting focus away from discomfort.

A study on mindfulness-based stress reduction (MBSR) showed that participants with fibromyalgia experienced less pain and improved emotional well-being.

Resilience Building By developing coping strategies, individuals learn to adapt to setbacks or health fluctuations. This resilience helps maintain a positive outlook, even during challenging periods.

Community Engagement Joining support groups, whether in person or online, provides a space for sharing experiences and receiving encouragement from others who understand similar challenges.

7E3 Magazine / 88

Mental Fitness: A Foundation for Well-Being Across All Ages and Challenges cont'd Evidence-Based Techniques Acceptance and Commitment Therapy (ACT): ACT encourages individuals to accept their health conditions while committing to actions that bring meaning and purpose to their lives.

Cognitive Behavioral Therapy (CBT): CBT addresses negative thought patterns that often accompany chronic illnesses, replacing them with constructive perspectives.

Gratitude Practices: Keeping a gratitude journal shifts focus to positive aspects of life, improving emotional health.

Scientific Support A 2020 study revealed that mindfulness practices significantly reduced symptoms of autoimmune diseases, including rheumatoid arthritis and lupus. Another study found that patients with chronic pain who engaged in gratitude journaling reported better mood and greater resilience.

Practical Tools for Cultivating Mental Fitness Daily Practices for Everyone Mindfulness or Meditation Start with just five minutes a day, focusing on your breath or using a guided meditation app like Calm or Insight Timer.

Journaling Spend 10 minutes each night reflecting on your day or listing three things you’re grateful for.

Physical Activity Exercise supports the mind-body connection. A brisk walk, dance session, or yoga practice can work wonders for mental fitness.

Tech for Mental Fitness Apps: Use Headspace or Lumosity for mindfulness and brain training exercises.

Online Communities Platforms like Facebook Groups or Meetup offer support networks for shared interests and experiences.

Mental Fitness Coaching Some coaches, such as myself, specialize in mental fitness coaching and utilize various techniques and apps listed.

Integrating Mental Fitness into Life Begin with small, manageable goals, like practicing deep breathing during lunch breaks or listening to a mindfulness podcast during commutes.

Create reminders throughout the day to take "mental fitness breaks," such as stepping outside for fresh air or engaging in a quick gratitude exercise. Just 2 minutes can help.

E3 Magazine / 89

Mental Fitness: A Foundation for Well-Being Across All Ages and Challenges cont'd The Ripple Effect of Mental Fitness Impact on Relationships Mentally fit individuals are better equipped to handle interpersonal challenges, communicate effectively, and offer empathy. This enhances personal and professional relationships, creating a ripple effect of positivity in their communities.

A Preventative Tool By proactively building mental fitness, individuals reduce their vulnerability to anxiety, depression, and burnout. This proactive approach fosters long-term resilience and emotional stability.

A Vision for the Future Imagine a society where mental fitness is prioritized as much as physical health. Schools teach mindfulness alongside math; workplaces incorporate mental fitness breaks into daily schedules; and senior centers offer workshops on resilience and gratitude. This vision represents a future where individuals thrive, supported by a culture of well-being. I can’t wait to be part of it!

Mental fitness is not a luxury—it is a necessity for navigating life’s complexities. Whether you are an adult managing stress, a senior seeking purpose, or someone living with a chronic illness, mental fitness offers tools to foster resilience, clarity, and emotional balance. By prioritizing mental fitness, we empower ourselves and our communities to lead more meaningful, fulfilling lives.

So, with New Years resolutions around the corner let’s add hitting the mental fitness gym to the top of the list!

Alice Funk is a Mental Fitness Coach from Sturgeon County, Alberta who loves to encourage and guide others to be their true selves and reach their goals. Her own journey and experiences have taught her that learning to know yourself and what you need is the mightiest step to take (and sometimes the scariest one as well).

The first step on your new path is finding you!

If you would like to chat with Alice about Mental Fitness or any other goals you may have, please contact her at info@newpathsolution.com or book a FREE Connection Session!

E3 Magazine / 90

Butternut Squash Lasagna Try our easy-to-make and tasty vegetable lasagna featuring butternut squash in a cream sauce.

Preparation time: 25 minutes Ready in: 2 hours 10 min Baking Time: 90 minutes Cooking Time: 15 minutes Makes: 8 servings

Ingredients 8 cups (2 L) 1/2-inch (1 cm) sliced, peeled Butternut Squash (about 1) 2 tbsp (25 mL) vegetable oil 1/2 tsp (2 mL) ground nutmeg 1/2 cup (125 mL) butter 1 cup (250 mL) chopped Onion 3 cloves Garlic, chopped 1/2 cup (125 mL) all-purpose flour 1-1/2 tsp (7 mL) salt 4-1/2 cups (1.125 L) Milk 1/4 cup (50 mL) chopped fresh Sage 1 cup (250 mL) grated Parmesan cheese 12 oven-ready lasagna noodles 2 cups (500 mL) shredded Mozzarella Cheese

Nutritional Information PROTEIN: 23 grams FAT: 28 grams CARBOHYDRATE: 60 grams CALORIES: 578 FIBRE: 4 grams SODIUM: 950 mg Please visit: https://www.ontario.ca/foodland/recipes /butternut-squash-lasagna

Instructions In a large bowl, toss squash with oil and nutmeg. Place in single layer on large rimmed baking sheet. Bake in 400°F (200°C) oven for 30 minutes, or until tender. Reduce oven temperature to 350°F (180°C).

Meanwhile, in a large saucepan, on medium heat melt butter. Add onion and garlic; cook for 3 minutes. Stir in flour and salt; cook for 1 minute. Gradually whisk in milk until smooth; add sage.

Bring to a boil. Reduce heat to low and cook for 5 minutes or until thickened, stirring frequently. Remove from heat and stir in Parmesan cheese.

In a greased 13- x 9-inch (3 L) baking pan, place 3 noodles. Top with one-third of the squash.

Spread one-third of the cream sauce over the squash. Sprinkle one-third of the mozzarella cheese. Repeat layering twice.

Cover tightly with foil. Bake 30 minutes. Remove foil and bake for 25 to 30 minutes until top is golden and pasta is tender. Let stand 10 minutes before serving.

E3 Magazine / 91

Ask the Professional Welcome to the "Ask the Professional" section of Heal Canada Digital Magazine, a dedicated space where curiosity meets expertise in the realm of healthcare.

In our pursuit to empower patients and their advocates with knowledge, this section bridges the gap between medical professionals and our readers, offering clear, accurate, and practical answers to your most pressing questions. Whether you're navigating the complexities of clinical trials, seeking advice on managing chronic conditions, or exploring the latest in wellness trends, our experts are here to provide you with insights grounded in the latest research and clinical experience.

Let's embark on this journey of understanding together, fostering a community where informed decisions lead to better health outcomes.

Ask the Professional.

Maureen Carpenter, BSC, RN, CD provides her insight

Patient Legal Rights and Advocacy In Canada the Canadian Constitution is known as the Supreme Law of Canada. Within this Constitution is the Charter of Rights and Freedoms. This is where the legal rights of Canadian citizens can be found. Legal Rights and Fundamental Freedoms include the freedom of conscience and religion as well as the freedom of thought, belief, opinion and expression. The freedom of thought includes the freedom of the press and other media communications.

The Charter of Rights and Freedoms outlines the three types of legal rights for each person in Canada. These are: Life, Liberty, and Security.

Life- the right to life for a patient can be threatened when the country/ state makes an indirect action or ruling that creates a barrier to health care for life threatening conditions.

Liberty- according to a Constitutional Study, this right is divided into two components that the Supreme Court of Canda identifies. The first being freedom of physical restraint, and the second, the freedom to make fundamental personal choices.

Physical restraint in this point deals with laws related to imprisonment and physical actions forced by the government or state.

Your personal choice freedoms allow you to “enjoy individual dignity and independence.”

Security- this right deals with the psychological aspects and physical aspects of the person.

Physical meaning freedom from the government or state in preventing a person from making choices that affect their own body.

Psychological freedom is the related to the stress that can be imposed by the government or state that is beyond the day-to-day stressors. The example provided in the Constitutional Studies article is “threatening to remove children from their parents.”

E3 Magazine / 93

Ask the Professional cont'd

Canada does have the Patient’s Bill of Rights that outlines the basic rights to be treated with respect, right to safety and protection from harm, The right to dignity, independence and self determination. A comparative study of Canada, New Zealand, United Kingdom, Australia, USA and Norway from 2002 concluded that numerous countries have developed Patient Bills of Rights. In other countries legislation/ initiatives are in place to protect the patient and their rights in treatment, decisions confidentiality, respect and a fair complaint process.

Now with the formation of the European Union a patient partnership has developed a European Cancer Patient’s Bill of Rights that identifies three patient-centered principles. The Oncologist publication outlines three “Articles” which are: 1) Article 1- The right of every European citizen to be informed and involved in their care.

2) Article 2- The right of every European citizen to optimal and timely access to appropriate specialized care, underpinned by research and innovation.

3) Article 3- The right of every European citizen to receive care in health systems that ensure improved outcomes, patient rehabilitation, best quality of life, and affordable health care.

Cancer Society organizations offer education, advocacy avenues, support networks, along with financial help for cancer patients, cancer survivors, and families and/or caregivers. In Canada cancer is legally considered a disability which leads to benefits available from CPP (Canada Pension Plan), education grants, tax deductions, EI (Employee Insurance) payments and caregiver benefits, etc.

References

E3 Magazine / 94

E3 Magazine / 95

Your resources Patients, caregivers, Patients organizations, Healthcare professionals and other stakeholders, we want to provide the resources you may require.

You are looking for information on Patient Advocacy, we wouldlike to provide you with those resources. Visit our website to see our list of resources. In each issue we will add to our ever growing list.

Resources Heal Canada

Patients & caregivers

Need information and support Visit our website for resources that can assist you as a care partner for patients with their diagnoses, treatments and a better quality of life. www.healcanada.org Want to share your story If you would like to share your story about your journey, send us a short description of your journey for consideration. digitalmagazine@healcanada.org

Patients Organizations

Patient Organization Registry Send your coordinates to Heal Canada and be part of our registry, so patients and their care partners can find you!

Heal Canada can assist your patient organization: Increase awareness Fundraising Improve your understanding of the Canadian Healthcare system Supporting your submission to CDA (CADTH) and INESSS admin@healcanada.org www.healcanada.org

Healthcare Providers or other stakeholders

Write an article If you would like to share your expertise with our reader. Send us a short description of your proposal for consideration. digitalmagazine@healcanada.org Need information and support Visit our website for resources needed to help you work with advocacy groups. www.healcanada.org

E3 Magazine / 97

Resources Clinical Trial & Registries

E3 Magazine / 98

References

Canada Health Act (CHA) Government of Canada. (1984). Canada Health Act (R.S.C., 1985, c. C-6). Retrieved from https://laws-lois.justice.gc.ca Truth and Reconciliation Commission of Canada (TRC): Calls to Action Truth and Reconciliation Commission of Canada. (2015). Truth and Reconciliation Commission of Canada: Calls to Action. Retrieved from https://nctr.ca Canadian Human Rights Act Government of Canada. (1977). Canadian Human Rights Act (R.S.C., 1985, c. H-6). Retrieved from https://laws-lois.justice.gc.ca Anti-Racism Act, Ontario (2017) Government of Ontario. (2017). Anti-Racism Act, 2017. Retrieved from https://www.ontario.ca Indigenous Services Canada Government of Canada. (2023). Indigenous Services Canada: Health Services. Retrieved from https://www.sac-isc.gc.ca Canadian Patient Safety Institute (CPSI) Canadian Patient Safety Institute. (2021). Improving Patient Safety in Canada. Retrieved from https://www.patientsafetyinstitute.ca Cultural Competency in Healthcare Betancourt, J. R., Green, A. R., Carrillo, J. E., & Owusu Ananeh-Firempong, O. (2003). Defining cultural competence: A practical framework for addressing racial/ethnic disparities in health and health care. Public Health Reports, 118(4), 293–302. Retrieved from https://www.ncbi.nlm.nih.gov Health Equity and Disparities in Canada Canadian Public Health Association (CPHA). (2021). Health Equity: A Guide for Public Health Practitioners. Retrieved from https://www.cpha.ca The Impact of Systemic Racism on Canadian Healthcare Allan, B., & Smylie, J. (2015). First Peoples, Second Class Treatment: The Role of Racism in the Health and Well-Being of Indigenous Peoples in Canada. Wellesley Institute. Retrieved from https://www.wellesleyinstitute.com LGBTQIA+ Inclusive Healthcare Bauer, G. R., & Scheim, A. I. (2015). Transgender people in Ontario, Canada: Statistics from the Trans PULSE Project to inform human rights policy. Canadian Journal of Human Rights, 1(1), 1– 30. Retrieved from https://transpulseproject.ca World Health Organization (WHO) - Health Equity World Health Organization. (2021). Health Equity: Addressing the Social Determinants of Health. Retrieved from https://www.who.int The Oncologist 2014: 19:217-224 Patient’s Bill of Rights- A Comparative Overview by Margaret Smith, Law and Government Division, 4 Feb 2002 Centre for Constitutional Studies-https://www.constitutionalstudies.ca/2019/07/legal-rights/ Canadian Cancer Society- https://cancer.ca/en/

E3 Magazine / 99

References

Canada Health Act (CHA) Government of Canada. (1984). Canada Health Act. Retrieved from https://www.canada.ca Personal Information Protection and Electronic Documents Act (PIPEDA) Office of the Privacy Commissioner of Canada. (2000). PIPEDA overview. Retrieved from https://www.priv.gc.ca Canadian Mental Health Association (CMHA) Canadian Mental Health Association. (2024). Advocacy and policy. Retrieved from https://www.cmha.ca Canadian Cancer Society Canadian Cancer Society. (2024). Advocating for Canadians affected by cancer. Retrieved from https://www.cancer.ca Canadian Organization for Rare Disorders (CORD) Canadian Organization for Rare Disorders. (2024). Rare disease advocacy in Canada. Retrieved from https://www.raredisorders.ca First Nations Health Authority (FNHA) First Nations Health Authority. (2024). Health and wellness services for First Nations in British Columbia. Retrieved from https://www.fnha.ca Patient Ombudsman (Ontario) Office of the Patient Ombudsman. (2024). Advocating for fair healthcare in Ontario. Retrieved from https://www.patientombudsman.ca Assembly of First Nations (AFN) Assembly of First Nations. (2024). Advancing First Nations health equity. Retrieved from https://www.afn.ca Canadian Mental Health Association (CMHA) Advocacy Reports CMHA National. (2023). Mental health in Canada: Barriers and solutions. Retrieved from https://www.cmha.ca Government of Canada: Health Inequalities Data Public Health Agency of Canada. (2020). Key health inequalities in Canada: A national portrait.

Retrieved from https://www.canada.ca Jordan’s Principle Indigenous Services Canada. (2024). Jordan's Principle: Ensuring equity for First Nations children. Retrieved from https://www.sac-isc.gc.ca Rare Disease Policy Advocacy Global Genes. (2024). Rare disease resources and advocacy strategies. Retrieved from https://www.globalgenes.org References Hersey, T. (2022). Rest is Resistance: A Manifesto.

Menakem, R. (2017). My Grandmother’s Hands: Racialized Trauma and the Pathway to Mending Our Hearts and Bodies.

E3 Magazine / 100

References

Canada Health Act (CHA) Government of Canada. (1984). Canada Health Act. Retrieved from https://www.canada.ca Personal Information Protection and Electronic Documents Act (PIPEDA) Office of the Privacy Commissioner of Canada. (2000). Privacy Legislation in Canada.

Retrieved from https://www.priv.gc.ca Canadian Patient Safety Institute (CPSI) Canadian Patient Safety Institute. (2024). Resources and advocacy for patient safety in Canada. Retrieved from https://www.patientsafetyinstitute.ca Canadian Cancer Society (CCS) Canadian Cancer Society. (2024). Advocacy and support for cancer patients. Retrieved from https://www.cancer.ca Canadian Mental Health Association (CMHA) Canadian Mental Health Association. (2024). Advocacy in mental health care. Retrieved from https://www.cmha.ca Canadian Organization for Rare Disorders (CORD) Canadian Organization for Rare Disorders. (2024). Advocating for patients with rare disorders. Retrieved from https://www.raredisorders.ca First Nations Health Authority (FNHA) First Nations Health Authority. (2024). Culturally safe healthcare for First Nations in BC. Retrieved from https://www.fnha.ca Patient Ombudsman (Ontario) Office of the Patient Ombudsman. (2024). Improving accountability in Ontario's healthcare system. Retrieved from https://www.patientombudsman.ca Indigenous Services Canada: Jordan’s Principle Indigenous Services Canada. (2024). Jordan’s Principle ensures equitable access to healthcare. Retrieved from https://www.sac-isc.gc.ca Public Health Agency of Canada: Health Inequalities Public Health Agency of Canada. (2020). Key health inequalities in Canada: A national portrait. Retrieved from https://www.canada.ca Assembly of First Nations (AFN) Assembly of First Nations. (2024). Advocacy for equitable healthcare for Indigenous peoples.

Retrieved from https://www.afn.ca National Collaborating Centre for Indigenous Health (NCCIH) National Collaborating Centre for Indigenous Health. (2024). Indigenous health advocacy and policies. Retrieved from https://www.nccih.ca Canadian Partnership Against Cancer Canadian Partnership Against Cancer. (2024). Patient engagement and advocacy in cancer care. Retrieved from https://www.partnershipagainstcancer.ca Mental Health Commission of Canada (MHCC) Mental Health Commission of Canada. (2024). Reducing stigma and advancing mental health care. Retrieved from https://www.mentalhealthcommission.ca

E3 Magazine / 101

References Chang, H. Y., Chiou, C. J., & Chen, N. S. (2010). Impact of mental health and caregiver burden on family caregivers' physical health. Archives of gerontology and geriatrics, 50(3), 267–271. https://doi.org/10.1016/j.archger.2009.04.006 de Oliveira, G. R., Neto, J. F., de Camargo, S. M., Lucchetti, A. L. G., Espinha, D. C. M., & Lucchetti, G. (2015). Caregiving across the lifespan: comparing caregiver burden, mental health, and quality of life. Psychogeriatrics: the official journal of the Japanese Psychogeriatric Society, 15(2), 123–132. https://doi.org/10.1111/psyg.12087 Große, J., Treml, J., & Kersting, A. (2018). Impact of caregiver burden on mental health in bereaved caregivers of cancer patients: A systematic review. Psycho-oncology, 27(3), 757–767. https://doi.org/10.1002/pon.4529 Schulz, R., & Sherwood, P. R. (2008). Physical and mental health effects of family caregiving. The American journal of nursing, 108(9 Suppl), 23–27. https://doi.org/10.1097/01.NAJ.0000336406.45248.4c

E3 Magazine / 102

Alliances

E3 Magazine / 103

Supporters

E3 Magazine / 104

Heal Canada Team Brigitte Leonard, Ph.D Brigitte Léonard is the Chief Scientific Officer at Heal Canada. She had the privilege of working in Pharma for over 20 years, contributing to bringing life-changing treatments to patients with the highest ethical standards.

Now, she wants to share her knowledge and utilize her scientific, strategic, and communication skills to help the patients’ community.

She obtained her Ph.D. in Biomedical Sciences from Université de Montréal in 2003. Her doctoral research was conducted at MaisonneuveRosemont Hospital Research Center. She developed a quantitative diagnostic assay in non-Hodgkin's lymphoma and evaluated the relevance of this marker in the patient's outcome.

Wendy Reichental, B.A. Wendy Reichental, Program Manager, Heal Canada. Wendy holds a Bachelor of Arts and a Diploma in Human Relations and Family Life Education from McGill University, where she developed a strong foundation in understanding human behaviour, family dynamics and social support systems.

In addition to her academic achievements, Wendy is a seasoned writer whose work has been published in prominent Canadian and American publications, including The Montreal Gazette and the Globe and Mail (Ottawa edition). She has a distinctive writing style that blends personal insight with social commentary.

Wendy's reflections on the early days of the pandemic lockdown, a period marked by uncertainty and isolation, are featured in the anthology Chronicling the Days: Dispatches from the Pandemic, published by Guernica Editions.

Cheryl Petruk, MBA B.Mgt. Cheryl A. Petruk is a multifaceted professional whose career spans patient advocacy, business, and post-secondary education, showcasing her dedication to significantly impacting these areas.

Family circumstances drove her transition into patient advocacy. During the last 15 years, she has worked tirelessly to bridge the gap between the healthcare system, patients, and pharma stakeholders. Her empathetic approach and dedication to advocacy have made her a respected figure in this field. She lobbies for a healthcare system based on patient-centricity.

She supports other patient organizations in becoming better advocates by leading Heal Canada and CACHEducation.

E3 Magazine / 105