Volume 24 Issue 4 Mar 2020
Y ur St ries
No two brain injuries are the same, and people have very different experiences of living with an ABI. Starting in this issue we share inspiring and also challenging stories of consumers that we hope will encourage and spur you on to try new things! From roof tiler to professional photographer. Read Gary’s story on pg 7
Work Health & Safety Update
CORONAVIRUS
We are hearing a lot about the COVID-19 virus that affects the respiratory system. Most people get a mild infection, others get a severe infection, causing hospitalisation. People with underlying health conditions such as diabetes, heart and respiratory conditions are more likely to develop a severe form of COVID-19. The situation is changing rapidly and in this issue we provide some health and safety guidelines for consumers and support workers.
Read more staying safe on pg 4 NewsLink March 2020 I Page 1
The Headstart Acquired Brain Injury Services commenced in 1987 and is recognised as a premier provider of specialist services for people with an ABI in the Hunter and Central Coast region. Headstart provides individually tailored services across community access, in home support, life skills, social, leisure and recreational services, case co-ordination, family support and community information and education. 95 Turnbull Street, Hamilton NSW 2303 P 02 4965 4420 F 02 4965 4424 E info@headstart-abi.com.au W www.headstart-abi.com.au ABN 75057986026 I CFN 13046 Headstart ABI Services is a registered provider under the National Disability Insurance Scheme (NDIS)
Our Vision For people living with brain injury to have opportunities that strengthen and enrich their lives. Our Purpose To make a difference in the lives of people touched by brain injury by providing opportunities and inspiring hope. Now you can read NewsLink online with Issuu! If you aren’t on our email list then let us know. What stories or information would you like to see in future Newslinks? Do you have some great stories or photos? Email Andy at: comms@headstart-abi.com.au For even more news follow us on
From the ED’s Desk This year is hurtling along and I think many of you would agree that with coronavirus it’s not the kind of year that we hoped for. Adjusting to our new world impacted so heavily by COVID-19 means that our everyday lives have been altered in ways nobody could have anticipated. Everything from our workplaces to our social lives, from our economy to simply escaping to the cinema has been affected. Here at Headstart we intend to continue delivering high quality supports as we navigate these challenges with everyone’s safety and welfare our top priority. In this issue we’ve included some information and guidance on pg 4. If you have any questions or concerns please contact us on 4965 4420. On a related but lighter, below is a photo of our Rec team’s practicing some social distancing in their recent outing to Norah Head lighthouse! I’ve previously mentioned that we are capturing 101 consumer stories to portray the variety of people who we support, and the creativity, energy and courage that each brings. This edition features Gary, our resident photographer who volunteers for our events. We trust that you’ll find his and other stories an encouragement as we roll them out across 2020. Stay safe and keep in touch, Sue
Remember: keep your 1.5 m social distance, and other helpful COVID-19 info on pg 4
NewsLink March 2020 I Page 2
Review Pg 10 “Tune” Latest
Pg 6
Disability Royal Commission
Pg 14
NDIS Transport Funding
Pg 16
Community Education Team
Community Support Worker Vacancies We are currently recruiting for Community Support Workers (CSW’s). Would you like to help make an impact on the life of someone with an ABI?
Know your Co-Worker Natalie is our newest co-worker, with a nursing background and 6 years experience in aged-care case management. Natalie lives in Maitland and works from our Hamilton office.
Favourite food: Pizza Favourite movie: Lone Survivor, or any other Mark Wahlberg film Favourite band/music: Anything from ACDC to Ziggy Alberts Favourite sport/team: I don’t watch sports Favourite cartoon character: Daria
Get in touch today by emailing: info@headstart-abi.com.au Note that you will need: • Current Working with Children Check • Current National Police Check • Current First Aid certificate • Current driver’s licence • Vehicle and current insurance policy • Proof of right to work in Australia
Read Tony & CSW Shane’s story on pg 17
Discover the Hunter’s best savings with
Activities • Car Hire • Hotels • Dining • Shopping • Travel PLUS help raise funds for Headstart ABI Services! Have you ever used the Entertainment Book? Well, now it’s 100% Digital. Your membership allows you to conveniently search, save and redeem thousands of offers near you in an instant. New offers are regularly added for more value all year round. Your purchase of an Entertainment Membership contributes to Headstart fundraising. Price: Single city $69.99/yr.
Favourite hobby: Reading (big nerd)
To purchase a membership visit this website :
Favourite place on earth: Australia!
www.entertainmentbook.com.au/orderbooks/3963e4
If you could be an animal what would you be? A meerkat If you could meet someone famous who would it be? Elton John or Freddie Mercury Craziest or silliest thing you’ve ever done: Hitchhiked a ride in the back of a strangers ute in the middle of the night Three words to describe you: Hilarious, Fun, Philanthropist How has your first month been at Headstart? Hectic, Informative, Inspiring, Amazing, Exciting PS. You can call her Nat!
Australia’s Accessible Beaches If you’re looking to visit a beach or plan a holiday then it’s worth looking at the National Beach Directory for accessible beaches and booking options for equipment. They are regularly contacting each of the listed locations to verify the integrity of the information provided. If you’ve experienced a great accessible beach that isn’t listed, please tell them to update the listing. NewsLink March 2020 I Page 3
Visit www.accessiblebeaches.com or call 1300 721 328
Health & Safety Information
COMBATING THE CORONAVIRUS
Our staff and CSW’s are following best practice guidelines and have undergone training aligned with the NDIS Quality and Safeguarding Framework. We are carefully monitoring and adhering to advice from the government and relevant health authorities.
Thorough hand washing with soap and water is simply one of the best ways to reduce contamination of the COVID-19 virus. HOW TO PROTECT YOURSELF AND OTHERS
COVER COUGHS AND SNEEZES
DISPOSE OF TISSUES
WASH HANDS REGULARLY
CLEAN THOROUGHLY
For Consumers
For Community Support Workers
It is important that all of us, including consumers, practise good hygiene to protect against infection and prevent the virus spreading.
If you feel unwell contact your co-worker asap as we can’t be putting consumers at risk and we will need to cover your shifts.
People who have had a brain injury should be aware that, just like with the flu, they are at a higher risk of severe symptoms and complications from coronavirus. People with diagnosed chronic medical conditions (such as Diabetes, Hypertension, Respiratory Disease, Kidney Disease), Cardiovascular disease (Stroke & Heart Disease) may be at risk of infection.
When out in the community we advise that you avoid crowded environments if you are with a consumer and be particularly careful when visiting nursing homes. If in doubt contact the office. More specific information has already been emailed to CSW’s and the unique needs of the relevant consumer communicated to you.
Face masks are not necessary if both of you are well and do not have a confirmed case of COVID-19. Surgical masks in the community are only helpful in preventing people who have COVID-19 from spreading it to others. Please advise your co-worker immediately if either of you feel unwell to discuss options for COVID-19 testing. While hand sanitisers are a helpful for hygiene, thorough and regular hand washing with soap is more effective. It’s important that all of you put this into practice often.
1.5m social distancing is recommended wherever possible. We understand that this is not always possible, but close contact and touching should be kept to a minimum.
Avoid closed environments (eg. cinemas) wherever possible. It’s best to stick to open, ventilated areas that are not crowded with people. Follow government advice in relation to public transport and gatherings.
NewsLink March 2020 I Page 4
If you must stay home and self-isolate, maintain a healthy lifestyle - incl. proper diet, exercise and maintain social communication with loved ones. It can be an anxious time, limit use of alcohol, or other drugs to deal with your emotions.
At the Headstart Office
Helpful Information
If you are visiting the office please keep 1.5 metres from other people. We require mandatory hand washing with soap and water when arriving and leaving. These and other guidelines are noted on our front door and will be reinforced by our reception staff. In addition:
There are numerous sources of information. Please ensure that you are getting your information from a reliable source. One website that we recommend is the Australian Government Department of Health: www.health.gov.au
It is the government’s official health campaign with information on staying healthy including: around communal areas. • If you have serious symptoms such as breathing • The office and surfaces (incl phones and desks) will difficulty, call 000 for urgent medical help be disinfected on a daily basis. • When to get tested based on your symptoms • Vehicles will be thoroughly cleaned and • If you have a confirmed case of, you need to isolate disinfected every day. yourself to prevent it spreading to other people Our staff are only attending the office if they are well • The Department of Health is closely monitoring as per our standard precautions, particularly over the COVID-19 pandemic. Information provided the winter months. We also have a number of staff includes daily updates, facts and phone numbers. currently working from home to minimise risk. • We have increased our cleaning and disinfecting
CORONAVIRUS SYMPTOMS TO LOOK OUT FOR
FEVER
COUGH
Social Club Calendar Cancellations We have already cancelled many non-essential gatherings including recreational group activities, in particular those in closed areas. Please check your calendars as they are often updated. Thanks for your understanding.
SHORTNESS OF BREATH
SORE THROAT
If you’re concerned then call the Government Coronavirus Health Information Line for advice: 1800 020 080 (24/7) Another website that you might find helpful: www.ndis.gov.au
Shopping for Groceries At the time of publishing this edition of Newslink, Woolworths and Coles will be open from 7-8am nationally only for seniors and people with disabilities. Access will be granted only to those with relevant, government-issued identification cards. Please check hours before shopping as these may change as impact of the Coronavirus takes effect.
Information on how the NDIA is taking necessary steps to prepare and support participants and providers. The NDIA is collaborating with key government and health agencies and developing an Agency Pandemic Plan in line with the Government’s Emergency Response Plan. Website FAQ’s include: • What happens if I am participant who is impacted by coronavirus (COVID-19)? • Should support workers be wearing masks? • What if it’s not possible for me to maintain 1.5m social distancing practices?
Questions for us? Contact your co worker or call 4965 4420 Regular updates are on our Facebook page and website: www.headstart-abi.com.au/covid-19-response NewsLink March 2020 I Page 5
Work Health & Safety Update
POSTPONED DUE TO
CORONAVIRUS
Disability Royal Commission Latest F
Originally scheduled Fri 3 & Sat 4 April STAY TUNED: NEW DATES TO BE ANNOUNCED. AT THIS STAGE LIKELY TO BE OCTOBER 2020 The Hunter Disability Expo was set to be the biggest and most anticipated Disability Expo on the 2020 Hunter Calendar. Still planned for later in 2020, it will bring together everyone in the Hunter Disability sector, with the aim to enhance the lives of people with a disability. It showcases the latest products, services, technology, aids and equipment: everything in the one place. Headstart will be there! Facilities & Accessibility: • Free Parking, including disability • Accessible Drop Off Zone • Multiple Disability Toilets • Adult Changing Room with a hoist (own sling required) • Free Wheel Chair Hire • Cafe & Seating • All-ages Entertainment Room www.hunterdisabilityexpo.com.au
ebruary saw the Disability Royal Commission continuing into 2020. In early February, community engagement activities took place in Ipswich, Logan and Brisbane. The Commission heard from First Nations people, organisations and communities in Brisbane and again mid-February in the Northern Territory.
The Disability Royal Commission continues in March and April. For details on making a submission or participating in community engagement forums or public hearings contact the Disability Royal Commission or visit their website.
From February 18 to 28 the Commission held a public hearing at Sydney Olympic Park in Western Sydney on Health. The Hearing is the start of the Royal Commission’s examination of issues relating to the provision of health Remaining Schedule care to people with disability. (April 2020) The Hearing explored barriers faced by people with cognitive disability when accessing and receiving health care and services, including barriers to communication and health professionals’ attitudes, values and assumptions. It further discussed the training and education of health professionals concerning patients with cognitive disability and delayed diagnoses and misdiagnoses of people with a cognitive disability. The Commission also heard evidence regarding specific issues for First Nations people or Indigenous Australians with cognitive disability concerning health care and services.
NewsLink March 2020 I Page 6
April 1 - 3: Community engagement activities – regional Victoria April 21 - 22: Community engagement activities – Western Sydney April 27 - 1 May: Public hearing – Justice, Brisbane Information sourced from Disability Royal Commission website. www. disability.royalcommission.gov.au More information: 1800 517 199 DRCenquiries@royalcommission.gov.au
Perfectly Gary
As a self-proclaimed perfectionist, Gary aims for excellence in all that he does, including photography. Arriving very early for his support shifts at Headstart’s office, Gary is not one to keep anybody waiting. We spent some time with Gary to find out what makes him tick.
I
normally have a sudoku book with me while waiting for Mike (community support worker) to arrive. I get there early and I do that. The same with my surfing events, I like to get there early. That’s another thing the neurosurgeon said to me was ‘keep doing them’. I enjoy them. I’m always doing sudoku or a crossword or reading the paper Before my accident I was a roof tiler and had my own business. The guys I worked with actually used to sing that song “It’s got to be... perfect!” to me while I worked. I’ve always been a bit of a perfectionist I guess. NewsLink March 2020 I Page 7
I first fell sixteen feet, and spent three months in hospital. I got back up on the roof and fell again ten months later. I was out to for 14 days. And when I woke up is in a brace and everything and I thought I’d had a car accident, but apparently I didn’t. So I had to give the tiling business away. In hospital I had a lot of time sitting in a room playing with my cameras and that’s what started my photography, until then it was more of a hobby. One of the big changes for me was not being able to drive anymore. That was a big thing.
Gary in a nutshell
Favourite food: Prawns, especially garlic. From memory. I have no taste or smell.
Favourite movie: I can’t remember the names of most movies with my head injury, but I do like Patrick Swayze movies like Ghost and Dirty Dancing.
Favourite music/band: The Beatles, John
Lennon, David Bowie, there were messages in their songs. Also classical music and opera. My aunty and uncle were opera singers.
Favourite Sport: Surfing. Hate football! Favourite Cartoon: Fred Flintstone, Loony Tunes. Favourite place: Merewether or Soldiers Beach. What animal would you be?: Elephant. Just like them, they should be kind go the jungle.
If you could meet someone Famous:
Julius Sumner Miller (American physicist).
3 words to describe:
Loner, introvert, perfectionist.
Late at night in hospital too I’d strap myself into those walking machines and get exercising. Doing some tests too they found out that I have a photographic memory, but I think that was there before my accident. When I got home I thought I was a waste of time for everyone so I tried to commit suicide. But my girlfriend at the time helped me. One of my biggest struggles is with memory, I can go watch a movie, but I found, unless there’s something emotional in it, I won’t remember it. I’ve also lost all my sense of smell and taste.
I have always been a keen surfer, but now I couldn’t surf anymore. If I get my head in the wrong spot I pass out, so I just couldn’t surf, at least not how I want to surf. NewsLink March 2020 I Page 8
Then I started doing photos for centre management at The Entrance, so they pay me to shoot events like Chromefest with hot rods and after a couple of events of doing that I started photographing the girls from Pin-Up Dolls and also dancers. I like working on the photos too and trying new things. I said to my CSW Mike ‘I want to know if you can get a photo and do it like you’re looking in a kaleidoscope.’ So he looked it up and worked it out and he wrote it down for me, plus lots of other effects. I like to work on photos until they are just how I want them. I think it’s the perfectionist in me. Mike’s pretty patient. I like to come into Headstart early so that when he walks in I’m ready to make the most of my three hours. That’s how I did my business for years.
Besides the computer and photoshop work, Mike helps me with my emails and writing letters and things. Headstart is all part of my daily life now, I’m glad my doctor down at Wallsend mentioned Headstart, I’d be lost without it.
I’ve taken photographs for Headstart for over 10 years. I like getting out and about, but unless I’ve got somewhere to go, I don’t bother. So it’s good to have something to do. I do all the Christmas parties and other events for Headstart, all voluntary. I really enjoying seeing what the guys can do... how far they’ve come. So over the years I’ve moved from film to digital photography. I’d never even touched a computer now I can use one. My main goals is to be a full time photographer. We want to thank Gary for his photography for Headstart and acknowledge his talent, and we wish Gary every success in future.
“
I’ve been working with Gary for five years now, and I enjoy working with him because he’s a nice guy and I enjoy that he likes the challenge of doing his photography but then editing it in the computer and I enjoy that he likes to stretch himself. I like stretching myself as well and so we’re doing that together and we’re having some fun and doing some fun stuff and some difficult stuff. I like the fact that Gary is always ready for a challenge. It’s awesome!
“
Now I do photography for Surfest which is a range of events, the Lake Mac City Junior Pro, and another heap of events. I love photographing surfers, but to me that’s no challenge anymore. So somebody said I should go and photograph Brackets and Jam, a music event, and then new things took off from there.
Mike, CSW
NewsLink March 2020 I Page 9
No Surprises from the “Tune” Review The NDIS “Tune” review report was made public in January. David Tune is the former senior public servant commissioned by the Federal Government to review the National Disability Insurance Scheme (NDIS). His report contains 29 recommendations on ways to improve the scheme. Mr Tune’s findings are far from surprising to NDIS participants and people trying to access the scheme.
I
ssues around ‘transparency’, ‘consistency’ and ‘timeliness in decision-making’ have been raised as significant points of concern with many reports of subpar experiences when working with the National Disability Insurance Agency (NDIA). While the report found many positive outcomes had been achieved and lives improved by the implementation of the NDIS, the opposite was also true. People with disability, their advocates, carers and supporters have expressed their frustration and anger that the system which promised so much has failed to deliver in so many vital areas. Every Australian Counts commented on the release of the NDIS Tune Review, saying that it was “singing to the same old tune” as what has already been well established. Bill Shorten MP, Shadow Minister for the NDIS said, we didn’t need
Pro Bono Australia says the report found the NDIS is not yet in tune with the needs of participants and that “disability advocates say there needs to be a stronger focus on fair access to the scheme”.
Service Guarantee The Australian Government has committed to developing an NDIS Participant Service Guarantee to support positive participant experiences with the National Disability Insurance Scheme.
And shock horror the review found that while there was still strong support for the scheme amongst people with disability and their families and the broader community, there was also disappointment, frustration and anger about how the scheme was operating on the ground. Every Australian Counts
“
“
“yet another review to tell us that this Government’s neglect of the NDIS is hurting people with disability.” Advocates and people with disability have welcomed the introduction of the Participant Service Guarantee but are trepidatious about its ability to circumvent the bureaucratic quagmire which is preventing vulnerable people in dire situations from accessing the scheme in a timely or equitable manner.
NewsLink March 2020 I Page 10
From 1 July 2020, the Guarantee will set new standards for the time it takes for crucial steps in the NDIS process. Consequently, there will be shorter, agreed timeframes for people to receive a decision on whether they will be covered by the NDIS, to receive an NDIS plan and to have their Plan reviewed. To develop the Guarantee, the Government commissioned a review of the NDIS Act to identify opportunities to make NDIS processes more straight-forward and remove legislative barriers to the positive participant and provider experiences with the NDIS. The review was carried out by Mr David Tune AO PSM, as an independent expert. People with disability, family members, carers, advocates and providers from around Australia shared their experiences and ideas through community workshops, an online survey and by making submissions. The review report was submitted in Dec 2019.
Review findings While the NDIS is improving social and economic outcomes for many participants, the review found that delivery of the Scheme has not been
Better independence to people with reading difficulties The Reader Pen converts text to speech and allows those with reading problems to read independently.
smooth for everyone or in tune with many participants real-life needs. Feedback showed that participants: • found the transition confusing and frustrating and missed supports previously available under state and territory disability service systems, particularly active case management • were frustrated by delays and lack of transparency around NDIA decision making • want more support to become informed and effective consumers • feel the scheme is too complex and difficult to navigate • feel they aren’t properly recognised and experts in their disability • feel that Agency officials do not understand disability or appreciated the challenges people with disability face in everyday life. The review did acknowledge the work of the National Disability Insurance Agency (NDIA) and other Government bodies to improve participants and supporter experience to enhance existing systems, services and decisionmaking processes.
The review also found that: • as this work continues, improvements to the legislation and operation of the NDIS could strengthen its focus on participants and participant experience and ensure that the scheme is fit for purpose. • outstanding policy issues between different tiers of government need addressing • clearer information in a wider range of accessible formats should be made available for participants to understand better why particular decisions are made.
Read the review The full Tune Review or 2019 Review of the National Disability Insurance Scheme Act 2013 report can be found online via the Department of Social Services (DSS). The review makes 29 recommendations to improve NDIS participant experiences. The recommendations include new standards and processes to support the rollout of the Participant Service Guarantee. Google search Tune Review to access the review documents.
NewsLink March 2020 I Page 11
It is used around the world by thousands of educators and health & wellbeing professionals. The easy-to-use pen reads words aloud, either through earphones or the built-in speaker. This enables the user to read on their own – creating independence and restoring confidence. New features include: • New English accents including Australian • Auto Read function • Access to the Dictionaries directly from Text Reader • Set-up Wizard • Talking Menu The cost of the Reader Pen is $350 (GST exempt). NDIS Provider No: 4-4331-4749 To arrange a free 30 day trial, for more information or to place an order contact Kerrie McGilvray at Scanning Pens: 02 8855 7121 www.scanningpens.com.au
Picturing Now living in Maitland, Cathy’s place of residence has many walls adorned with two dozen of her amazing paintings. Having been a prolific artist throughout her life Cathy proudly shows us pages of photo albums that have documented her impressive artworks over the years.
“I
was born in Weston and have always painted, every since I was a little girl. I taught art for a while on the Central Coast. I mainly do watercolour and pastel”.
Cathy is choosing to keep a positive attitude despite having challenges.
“I did most of the art here before my stroke, which was in 2009. The stroke was a big change. It was more than just physical. It meant no more art teaching. My memory was affected, my speech too. One side is good, the other I can’t move. I’m in a lot of pain.”
Cathy has completed a number of paintings since her stroke, and is particularly proud of the local landscape painting she completed with just one hand and that helped the residents win the local “Build Your Town” competition in Maitland.
NewsLink March 2020 I Page 12
“Having a stroke is a big thing. A big thing.”
“
One hand is enough. I can do it.
“
Catherine Cathy is choosing to keep a positive attitude despite having challenges. “Having a stroke is a big thing. A big thing. I’m often in pain... my speech is terrible too.” Cathy is now trying her hand at mosaic art sculptures, helped by Headstart support workers Dee and Kaye. “My favourite flower is the sunflower, so that’s what I’ve been doing. Sunflowers make me feel happy! I like doing new things. Other ways that my support workers help me is with hydrotherapy baths, groceries, laundry and gardening. I love gardening. My support workers mean a lot to me. and they are very good for me. I can’t imagine it without them”. Besides more artwork, Cathy hopes to travel in the future. “I still dream of a cruise to New Zealand. And one day to visit Rome.” NewsLink March 2020 I Page 13
Delivering the NDIS plan: Flexibility in transport funding for NDIS participants Minister for the National Disability Insurance Scheme (NDIS), Stuart Robert, has announced more flexibility and increased choice for participants accessing transport funding in their plans.
F
rom 1 March 2020, NDIS participants will be able to flexibly use their plan’s core support funding to claim service provider costs associated with transporting participants to and from NDIS funded community-based activities. Providers will be able to claim some of their vehicle running costs when offering transport to a participant in conjunction with the community activities identified in their NDIS plan. These costs – which are in addition to the support worker’s time – are factored at a per kilometre rate and can be claimed by providers as a separate item as part of the support they are delivering to participants Minister Robert said transport funding in NDIS plans has always been about assisting participants to access the community and to maintain or increase their independence. “This change will give participants more
autonomy in their plans, and greater choice and control over the services and supports they need,’ Mr Robert said.”
“Participants now have a fair and consistent process to cover their transport costs with providers.” ‘As we deliver our plan for the final 20 per cent of the NDIS we will continue to make considered changes that ensure the sustainability of the scheme while maintaining the core objective of choice and control for participants–today’s announcement strikes that balance. ‘These changes build on positive momentum in resolving the long-standing issues regarding the interface between the NDIS and transport supports.’ In October 2019 the COAG Disability Reform Council endorsed an approach to improve the provision of transport supports under the NDIS. This included interim measures to increase transport funding for NDIS participants who are significant users of taxi subsidy scheme, and a commitment by the Commonwealth to fully reimburse states and territories for their taxi subsidy schemes for NDIS participants from 1 Jan 2020 until 31 Oct 2021.
Information sourced from Media release from the Minister for the NDIS, Stuart Robert NewsLink March 2020 I Page 14
Kelvin’s life less ordinary L
ife changed for Kelvin when he lost his sight in an accident two years ago. Until then he had done some amazing things. “I’ve worked as a commercial pilot flying A300 cargo planes, a professional photographer for Cosmo and Clio, a heavy vehicle driving instructor, an engineer and more. I’ve done car racing, horse dressage and jumping, made 48 skydive jumps - but would love to have got to 50. I was supposed to get my bike licence the year of my accident, but that didn’t happen”. That’s all just the tip of the iceberg for a man who is used to overcoming obstacles to succeed in life.
“I’ve always had the belief that if you don’t do it, don’t whinge to yourself that you didn’t get the chance to do it.” When the opportunity came to go sailing Kelvin didn’t let his lack of sight and constant headaches stop him, thanks to Sailability NSW at Belmont 16 Footers. “I’ve been sailing since I was 16, and it’s great to be back on the water”.
Now teamed up with Headstart support buddy Abby for his future sailing sessions, Kelvin says “She’s energetic, she’s willing to go places to try things. That’s why they’ve teamed me up yeah it’s good”. But that’s not all: “I’d also like to do some rock climbing in future. One of my main goals is to open Australia’s first blind bed and breakfast, plus aquaponics and fish farming. I also want to build a seven and a quarter inch gauge train track on my property, like the one down at Edgeworth. Tunneling through the 130m hill is the main challenge”. Will Kelvin succeed? We think so!
“
The glass is always half full. That’s how I look at everything. I’m choosing to be an optimist, because if I’m not what’s it going to do for me? Kelvin
To minimise any risk of COVID-19 infection to vulnerableaged volunteers, Sailability Toronto will cancel sailing for the remainder of this season for ‘social distancing’ reasons. NewsLink March 2020 I Page 15
“
It’s clear that the last two years haven’t been easy when, at one point he hit a new low, “I felt like it was the first time I’d failed at anything.” when he fell after walking into the back of a bus because of poor vision. But Kelvin has picked himself up and his enthusiasm and positive attitude are both admirable and infectious. “Today was a pleasure, it was exhilarating to be out sailing again and to learn to do things by myself.”
H
eadstart is passionate about educating people especially children - on acquired brain injury and the impact of an ‘invisible injury’. Kicking off with the powerful video titled “Your head is not a basketball” our Community Education Team (CET) spent a morning with several year 7 classes at a local high school. Tony, Ray and Shaun spoke about their personal experiences with ABI as part of explaining the consequences of risky behaviours to kids.
Tony’s car rolled when it hit a horse two years ago. “I ended up at Rankin Park hospital, and I had to learn how to walk and talk again. Every time I look in the mirror still half my face feels like it’s melted. I’ve got this hole... crater that reminds me of what happened. Your brain changes, your tolerance levels change, I don’t think I’ll ever go back to the work. I used to do which was drug and alcohol rehabilitation. Now I have to drink from a straw. I can’t go out and eat, it’s embarrassing, my whole left side is messed up so I’m often dribbling. But you’ve got to make lemonade when you’re given lemons. I’m not allowed to drive at the moment, but I hope to get my licence again. I was a base player so am learning it really slowly and laboriously. I’d like to play in a band again too. Addressing the kids, Tony advises: “You’re young, adventurous, we don’t want to take that away from you but please... I see kids riding in on skateboards without helmets. Just remember please, your head is not a basketball.”
“
My advice is don’t ride a motorbike. Or if you do wear proper safety gear and a helmet.
“
“Your head is not a basketball.”
Shaun
Twenty years ago Shaun had a motorbike crash. “I was 16 with no helmet going 140 clicks and head first into a cement pipe. I had severe head injuries and died two or three times on the operating table, so I’m lucky to be alive. My father looked me and said ‘that’s not Shaun’ and paced around saying ‘he’s gone, he’s gone.’ It’s changed everything. I had to relearn how to speak talk, walk. Half a year in hospital. Didn’t even know my own name. Whole right side is buggered, blind in my right eye, can’t taste really. I thought about suicide many times but didn’t. When I’d just had me accident everyone was around me but over time everyone weaned off, and now I’ve really only got one good friend. That’s been tough. I walk with a limp and people think I’m either drink or on drugs but I’m the exact same person.”
Fifteen years ago Ray’s ute was t-boned by a truck “I died twice. 3 weeks in a coma, 3 weeks in hospital. The rehabilitation was really hard for family to understand, because with a brain injury you look the same but you’re not the same. A lot of friends steer clear of me now, they think it’s a disease. It’s not, it’s just a hidden injury. It was pretty frustrating to have to rely on people all the time. I get mood swings and fatigue. I’m often tired. The alone times are the hardest part. I get Headstart support to come in help with house work that I can’t do. The one on one is great and gets me motivated. In future I want to get better at lawn bowls. I used to be a pretty good bowler. You’d think I’d be fit, I mean I lost 30 kilos!”
NewsLink March 2020 I Page 16
“
“
I hate people thinking I’m drunk. Tony made up this t-shirt “Not drunk - ABI”
“
I broke my daughters heart at 14 years old when on her birthday I didn’t know who she was. My advice to kids is just think about things before you do them ... think twice because you think you’re ten foot tall and bullet proof and you’re not
“
Ray
Two sides to the story Tony is supported 4 days a week by CSW Shane. It’s been 10 months.
“Shane is a good coaxer, he gets me doing things. Everyone thinks ‘Oh you’ve done so well, you’ve come a long way’, but I’m still relying on people to drive me, and pay for things. And there’s things at home too that I would normally do myself, but I can’t anymore. We do cooking together, making hummus, fix things around the house. We do it together.” NewsLink March 2020 I Page 17
“Tony’s confidence in himself, and talking to people has really improved. When In first started working with him that wouldn’t have happened. Even getting his haircut and talking to the barbers and staff. Working with someone for a fair length of time you know when to back off a bit, or give him a bit of a push. But we’re always stepping forward. Even in the gym. We go to the gym every week for general strength, balance, endurance. I don’t want to just stand there and do nothing, that way Tony stands out, so I’ll jump on the machine next to him. Coming from 20 years in warehousing I wanted a change and here I am. There’s much more job satisfaction helping people , putting a smile on their face.”
Women’s Group Hello again from the Headstart women’s group.
Sue R has been very generous with her time and expertise in teaching us how to make beautiful jewellery. Lovely bracelets and necklaces were made by the group for ourselves or gifts for someone else. Thank you Sue, we look forward to the next one which is coming up very soon!
Women’s Group are doing craft at Newcastle Senior Citizens Centre regularly. Everyone enjoys this and lots of creative ideas flow from these sessions.
We all voted for a picnic at the Newcastle tram sheds. This worked out well as there weren’t many people there and so plenty of close parking. Marika and Zaklina had fun on the swings at the playground.
Until next time, stay safe
It is great to have Mele back with Women’s Group. We all missed her and welcome Monique.
Pat
Marika is very proud of her fairy garden, and it is beautiful - lots of plants and little fairies to be seen. Marika’s cat also came to see us!
Bingo at Newcastle Senior Citizens Centre is popular, with good prizes to be won. There is a delicious two course meal and morning tea for $10.
Hannah at Newcastle Museum
Marika and Zakalina at Honeysuckle NewsLink March 2020 I Page 18
Therese and Marika at 16 Footers
Social seen
Headstart Welcome Back Morning Tea, January 2020
Mary and Kylie
Leah and Jonny
Jason, Paula and Merren have a laugh
Mark has a snack
Sharynn and Alex
Paula and Dave
Romeo has a chuckle NewsLink March 2020 I Page 19
Anne and Janelle
Social seen
Lunch at Nelson Bay Bowling Club
Boys will be boys... and the girls were somewhere else!
Fishing, walking and a dash of dancing at Swansea Channel
James and Jayden wait for a bite
A time before social distancing
A cheeky time NewsLink March 2020 I Page 20
Brendan stays hydrated
Social seen
Wyong Milk Factory. It’s more than just milk!
The crew getting a feed
Jason approves
Leah can’t make up her mind. Yum!
Good mates!
James indulges
All aboard! NewsLink March 2020 I Page 21
THE VALUE OF TIME To realize the value of ONE YEAR ask the Student who failed the FINAL EXAM To realize the value of ONE MONTH ask a Mother who has given birth to a PREMATURE BABY To realize the value of ONE DAY ask a DAILY-WAGE Laborer who has FIVE KIDS TO FEED To realize the value of ONE HOUR ask the Lovers who are WAITING TO MEET To realize the value of ONE MINUTE ask a Person who has MISSED A TRAIN To realize the value of ONE SECOND ask a Person who has SURVIVED AN ACCIDENT To realize the value of ONE MILLISECOND ask the Person who has WON A SILVER MEDAL AT THE OLYMPICS
B y M a rg a ret C o r n a l l y THIS IS THE BEGINNING OF A NEW DAY GOD HAS GIVEN ME THIS DAY TO USE AS I WILL I CAN WASTE IT OR USE IT FOR GOOD. WHAT I DO TO-DAY IS VERY IMPORTANT BECAUSE I AM EXCHANGING A DAY OF MY LIFE FOR IT. WHEN TOMORROW COMES, THIS DAY WILL BE GONE FOREVER, LEAVING SOMETHING IN IT’S PLACE I HAVE TRADED FOR IT. I WANT IT TO BE GAIN, NOT LOSS------GOOD NOT EVIL------SUCCESS, NOT FAILURE ------IN ORDER THAT I SHALL NOT FORGET THE PRICE I PAID FOR IT!
NewsLink March 2020 I Page 22
Snippets
Happening Happy Snappers
Have you checked us out on Facebook recently? Find out
the latest news, stories and rec activities as they happen. Like our page today!
@headstartabi
Jammin’ with Jason Eddie Cross and our Happy Snappers have been out and about, most recently to the beautiful Bogey Hole. Featured photos from James, Deb and Al. Stay tuned in our June issue for story on our Happy Snappers!
Razzle Dazzle
“I love playing the guitar. I taught myself, a good mate showed me the basics and I just went off that. I like to get into the new stuff, not just the old kind of stuff. Some of the workers at Headstart want me to do a number... the last five BBQ’s they’ve wanted me to get up and do a number. Maybe one day!”
Col experienced some razzle dazzle at Wests New Lambton, pictured with the lead singers from the show “Songs from the Key of Motown”. Col is a big fan of motown music and the show didn’t disappoint, including songs from The Temptations, The Four Tops, Stevie Wonder, Smokey Robinson and Marvin Gaye, plus choreographed dance moves from the Jackson 5 and The Supremes. NewsLink March 2020 I Page 23
If you would like to continue receiving NewsLink, become a member by contacting us on 4965 4420 for a membership application.
Our membership year starts from the 1st July. Your contributions to the newsletter are welcomed, and we will keep you up to date on all the issues, activities and the developments in services.
Making a Complaint You have the right to complain under the Community Services (Complaints, review and monitoring) Act 1993. If you have a complaint there are steps to take. At each step, every effort will be made to resolve your complaint before going to the next step. At each step you have the right to have someone else Step 2: Talk with Co-worker/staff member present if you wish. This person is called an advocate and may Step 3: Talk with Director be your friend, family member, Step 4: Talk with Chairperson staff member, paid advocate or someone else. If you wish Step 5: Talk with Committee Headstart can help you locate an independent advocate. Step 6: Talk with an outside service Step 1. Talk with the person concerned
NewsLink is produced by many people involved at Headstart ABI Services. We welcome contributions from everyone: an article, letter. photograph, poetry, etc. We also welcome suggestions as to articles that we could write about for future issues. We appreciate feedback on things like the kind of stories, size of our typeface, layout and general appearance of our newsletter. HAVE YOUR SAY on these, or any other issues by writing to us at: Headstart ABI Services 95 Turnbull Street HAMILTON NSW 2303 or email: comms@headstart-abi.com.au
NewsLink is the Newsletter of Headstart ABI Services 95 Turnbull St HAMILTON NSW 2303
SURFACE MAIL
NewsLink March 2020 I Page 24