Friday sessions
8:00 a.m. - 10:00 a.m.
Plenary Session
25 Years in Clinical Trials: Celebrating achievements, key learnings, and advancing care
Location: Sheraton-Chicago IV - VII
Ballroom
Session Chairs: Ayodeji Adegunsoye, MD, PhD, FACP, FCCP; Hyun Kim, MD
Keynote speaker: Karen ManceraCuevas, DrPH, MS, MPH, CHES
Speakers: Ilene Hollin, PhD, MPH; Donna R. Dinkin, DrPH, MPH; Marilyn Glassberg, MD
• Welcome! Daily remarks and announcements
• KEYNOTE: Beyond representation: Building equitable clinical trials for all populations
• A patient-centered approach: The critical importance of endpoints
• The other side of the protocol: A patient’s clinical trial experience
• From setbacks to success: Learning from clinical trial failures and the road ahead
• Panel Discussion and audience Q&A
10:30 a.m. - 12:00 p.m.
Tools for monitoring your PF: The role of imaging, lung function tests, and more
Location: Chicago X
Session Chair: Aahd Kubbara, MD
Speakers: Aahd Kubbara, MD; Tadashi Allen, MD; Renee Bergtold, MSc, RRT, RPFT
• Making sense of your high-resolution CT (HRCT)
• Interpreting the numbers: Understanding pulmonary function tests (PFTs) and their results
10:30 a.m. - 12:00 p.m.
Research
in the pipeline: What might the next 25 years hold? Location: Chicago IX
Session Chair: Murali Ramaswamy, MD
Speakers: Cathryn T. Lee, MD, MS; Imre Noth, MD
• The next chapter: Emerging research in ILD
• Decoding disease: The role of biomarkers in ILD and pulmonary fibrosis
• Your role in discovery: What to know about clinical trial participation
10:30 a.m. - 12:00 p.m.
In it together: Conversations and resources for caregivers, advocates, and family
Location: Chicago VIII
Session Chair: Lanier O’Hare, PhD, CRNP
Speakers: Bridget A. Graney, MD; Julie Rossignol; Rick Tidwell; Brandi Ellis
• The evolution of caregiving: Key advancements over the last 25 years
◊ Community resources to help care for your loved one: Respite care, Meals on Wheels, and more
◊ Social acceptance of counseling and support groups
◊ Technological advancements: smartphones and apps
• Perspectives from the caregivers: Three personal stories of dedication and compassion
• Conversations and connections: Audience interactive discussion about caregiving facilitated by the panel
10:30 a.m. - 12:00 p.m.
Genetics and genetic testing: A new standard of care
Location: Sheraton IV-V
Session Chairs: Joyce Lee, MD; Chad A. Newton, MD
Speakers: Chad A. Newton, MD; Jeremy Katzen, MD; Janet Talbert, MS, CGC
• The cutting edge of precision medicine in ILD: What’s hot, what’s new
• Exploring the evidence: Genetic testing in ILD – friend or foe?
• Navigating the conversation: How to counsel patients during the genetic testing process
10:30 a.m. - 12:00 p.m.
Differentiating PPF from IPF: Lessons learned from the last 25 years and what we hope to learn in the next quarter century
Location: Chicago VI-VII
Session Chair: Justin Oldham, MD, PhD
Speakers: Kevin Flaherty, MD; Justin Oldham, MD, PhD; John S. Kim, MD, MS
• From IPF to PPF: The evolution of how we define and distinguish IPF from PPF
◊ How we began
◊ Where we are now
◊ What we need to know for the future of fibrosis care
12:15 p.m. - 1:00 p.m.
Clinical Trial Innovation Series
Lunch included!
Location: Chicago VI-VII
Featuring: Boehringer Ingelheim; Chiesi
Farmaceutici S.p.A.; MAVRIC-IPF; United Therapeutics
The popular Clinical Trial Innovation Series returns! In this session, enjoy lunch while learning about the latest developments in clinical trials for those living with pulmonary fibrosis and interstitial lung disease.
The PFF does not endorse the companies or its trials, and views expressed during the event may notreflect the views of the PFF.
1:30 p.m. - 3:00 p.m.
Breathe easy: Using supplemental oxygen
Location: Chicago X
Session Chair: Rebecca Smith, AAS, RRT, RPFT, AE-C
Speakers: Susan Jacobs, MS, RN; Kara Kotyuk, RRT-NPS
• Understanding oxygen therapy: How to get the oxygen you need
• Oxygen equipment and you: Guidelines for safe usage and maintenance
• Breathe on the go: Portable oxygen solutions for travel by car and air
1:30 p.m. - 3:00 p.m.
Transplant decision: Navigating the crossroads
Location: Chicago IX
Session Chair: Dan Dilling, MD
Speakers: Anil J. Trindade, MD; Karen Smoot; Gary Johnson Sr.;
Anita Clos, MA, MSW
• To transplant or not: Understanding the choices and challenges
◊ When ineligibility or the decision not to pursue is the path
◊ What to expect if you decide to move forward with a lung transplant
• Lung transplant patient panel: Insights and recommendations for before, during, and after
1:30 p.m. - 3:00 p.m.
Exploring types of ILD: IPF, connective tissue diseaserelated ILD, hypersensitivity pneumonitis, unclassifiable ILD, and more
Location: Chicago VIII
Session Chair: Patricia J. Sime, MD, FRCP, FACP, ATSF
Speakers: Farah Madhani-Lovely, MD, MPH, MBA, FCCP; Scott M. Matson, MD
• The spectrum of ILD: Understanding the different types
• Journey to the right diagnosis
• Comparing ILDs: Key similarities and differences across types
1:30 p.m. - 3:00 p.m.
From paper to practice:
Adapting guidelines to clinical practice
Location: Sheraton IV-V
Session Chair: Anthony J. Esposito, MD
Speakers: Jonathan Chung, MD; Flavia Castelino, MD; Anna Podolanczuk, MD
• Evidence in action: Translating updated treatment guidelines to patient care
◊ The Fleischner Society guidelines on quantitative CT
◊ A multi-disciplinary approach: Guidelines for treating connective tissue disease-associated interstitial lung disease (CTD-ILD) / systemic autoimmune rheumatic diseases (SARDs)
◊ Updated incidental findings: The ATS (American Thoracic Society) guidelines on ILA (interstitial lung abnormalities)
1:30 p.m. - 3:00 p.m.
Advancing care through clinical trials: Because every patient matters
Location: Chicago VI-VII
Session Chair: Hyun Kim, MD
Speakers: Mark Hamblin, MD, FCCP; Joyce Lee, MD; Alison DeDent, MD, MAS
• Expanding access: How to overcome enrollment barriers
• Reusing trial data: How a second look at data can drive breakthroughs in medicine
• Remote, rural, and ready: Designing clinical trials that reach every community
3:30 p.m. - 5:00 p.m.
Navigating ILD across the lifespan: Strategies for every stage
Location: Chicago VIII
Session Chair: Steve Jones, BSc hons
Speakers: Kathleen Lindell, PhD, RN, ATSF, FAAN; Bridget Collins, MD; Kristin B. Highland, MD, MSCR; Erica Farrand, MD
• Discussing your diagnosis with loved ones: Guidance for all generations
• Living with ILD: Strategies for balancing home, work, and health
• Beyond the diagnosis: Relationships and family planning
• Representation matters: Engaging diverse representation in ILD research
3:30 p.m. - 5:00 p.m.
Beyond the medicine cabinet for those living with ILD and lung transplant recipients
Location: Chicago X
Session Chair: Janell Reichuber, MSN
Speakers: Emilie Klemptner, MS, RD; Rebecca Smith, AAS, RRT, RPFT, AE-C; Lori M. Flint, BSN, RN
• Nutrition matters: Tips for managing medication side effects, GERD, and weight
• Fitness: The importance of pulmonary rehab and other forms of exercise
• Finding support: Emotional wellness and resources
3:30 p.m. - 5:00 p.m.
Understanding
grief: Navigating life transitions and coping with loss
Location: Chicago IX
Session Chair:
Rebecca Anna Gersten, MD
Speakers: Erica Dixon-Johnson, DNP; Dana Goo Holiona, LCSW; Rev. Pamela N. Floyd, MD, MPH, MDiv
• Finding support: Exploring social support and counseling resources for you and your loved one
• Honoring yourself, your peers, and your loved ones
3:30 p.m. - 5:00 p.m.
Beyond the Medicine
Cabinet: Nonpharmacological management of ILD and what to know to help your patients
Location: Chicago VI-VII
Session Chair: Timothy Whelan, MD
Speakers: Jennifer Kolmos Applebey, RN, BSN ; Krishna Thavarajah, MD, MS; Rachel Potter, LCSW
• Fueling fragile lungs: The critical role of nutrition in advanced lung disease
• Pulmonary rehab in practice: Evidencebased gains in function and quality of life
• Mental health matters: Strategies for management and care
3:30 p.m. - 5:00 p.m.
The power of many: Leveraging multi-omics for next-gen personalized medicine
Location: Sheraton IV-V
Session Chair: Aparna Swaminathan, MD, MHS
Speakers: Sonye K. Danoff, MD, PhD; Manoj Maddali, MD, MS; Jonathan A. Kropski, MD; Stephen Humphries, PhD
• From patients to people: The rise of personomics in personalized healthcare
• The power of proteins: Driving precision medicine with proteomic insight
• Clinicalomics uncovered: Making sense of multidimensional patient data
• The image speaks: Harnessing radiomics for precision diagnostics
