PFF Summit - Saturday mobile

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Welcome!

We’re thrilled to welcome you to the world’s largest gathering dedicated to pulmonary fibrosis!

Whether this is your first Summit or you’ve joined us before, we’re so grateful to have you here with us in the vibrant city of Chicago this fall. This event brings together patients, caregivers, healthcare professionals, researchers, and advocates from across the country—and beyond—to learn, connect, and inspire one another. Your presence here helps drive our shared mission forward, and we can’t wait to spend the next few days together.

Let’s begin with some helpful tips about using this digital program. Look for the icons in the toolbar at the bottom of this program.

View in full screen. Click the X. We recommend viewing this program in full screen on desktop and mobile.

Use the search tool. Enter keywords to find something specific.

View the full program at-a-glance. Click three dots, followed by “Grid View” to quickly scroll through the program’s pages.

Meal, Break, and Exhibit Hall

Schedules

Thursday

Exhibit hall opens 12:30 p.m.

Welcome Reception and Poster

Presentation 5:00 p.m. - 8:00 p.m.

Friday & Saturday

Exhibit hall opens 7:00 a.m.

Breakfast 6:00 a.m. - 7:30 a.m.

Morning Break 10:00 a.m. - 10:30 a.m.

Clinical Trial Innovation Series (Lunch included!) 12:15 p.m. - 1:00 p.m.

Afternoon break 3:00 p.m. - 3:30 p.m.

Dine & Delight Networking Night 6:00 p.m. - 8:30 p.m. (Friday night only!)

Exhibit Hall Hours

Visit the Exhibit Hall to meet with industry representatives, medical centers, and patient advocacy organizations.

Thursday 12:30 p.m. to 8:00 p.m.

Friday 7:00 a.m. to 5:00 p.m.

Saturday 7:00 a.m. to 1:30 p.m.

The Program

You are welcome to attend any session you’d like, unless it’s noted as a closed session. If you’re not sure what to attend, we’ve made color-coded reccommendations on each session. Use the legend below to help you plan your Summit experience!

Patients Caregivers Lung transplant recipient

Lost a loved one

Healthcare professionals & researchers

Saturday sessions

8:00 a.m. - 10:00 a.m.

Plenary Session

HOPE for tomorrow: Emerging from the past and heading into the future

Location: Sheraton-Chicago IV-VII

Ballroom

Session Chair: Mary E. Strek, MD

Keynote speaker: James Fraser, PhD

Speakers: Jessica E. Shore, PhD, RN; Kevin Flaherty, MD; Nicholas Banovich, PhD; Susan Jacobs, MS, RN; Harold Collard, MD, MS

• Welcome! Daily remarks and announcements

• PFF Registry: Past lessons, present impact, future promise

• KEYNOTE ADDRESS: Unlocking the future: How Artificial Intelligence (AI) is transforming pre-clinical drug discovery

• Harnessing multi-omics: How molecular diagnostics is shaping the future of medicine

Continued on the next page

• Legisl ative advocacy in a changing climate: Challenges, progress, and hope for the future

• Live panel discussion and audience Q&A

10:30 a.m. - 12:00 p.m.

Exposed! Understanding the hidden triggers and management of exposurerelated ILDs

Location: Chicago VIII

Session Chair: Jennifer Wescoe Singley, M.Ed., NCC

Speakers: Bhavika Kaul, MD, MAS; Mary Porteous, MD; Cathryn T. Lee, MD, MS

• What are exposure-related ILDs? Causes and key consideration

• Resources for Veterans: What is out there and how to obtain

• Am I at risk? How to recognize if you have exposure-related ILD and taking steps to limit further exposure

10:30 a.m. - 12:00 p.m.

Managing respiratory illness when it hits

Location: Chicago IX

Session Chair: Xiaoping Wu, MD, MS

Speakers: Dominic Paula, RN, BSN; Jamie Lederer, MSN; Shweta Sood, MD, MS; Jenny Williams, PA-C

• Navigating ailments: Bronchitis, COVID, pneumonia, and influenza in the setting of ILD

• Exacerbations or flares: When ILD rapidly deteriorates

• Dealing with illnesses and rejection: For lung transplant recipients

• Treatment and expectations: What to expect during recovery

10:30 a.m. - 12:00 p.m.

Is it in your DNA?

Understanding genetics and familial pulmonary

fibrosis

Location: Chicago X

Session Chair: Joyce Lee, MD

Speakers: Chad A. Newton, MD; Jennie Vagher, MS, CGC; Bess Flashner, MD

• Overview of familial pulmonary fibrosis (FPF)

• The role of genetic testing in those with FPF

• The role of testing and screening in family members

• What does your family need or want to know

10:30 a.m. - 12:00 p.m.

The innovators’ journey: Past breakthroughs and future visions

Location: Sheraton IV-V

Session Chairs: Amy Hajari Case, MD

Speakers: Sachin Chaudhary, MD; Toby Maher, MD, PhD; Sydney Montesi, MD

• Science in motion: Innovations in symptom management in ILD

• Innovations in advanced therapeutics and what lies ahead

• Transforming ILD care: Innovations in precision medicine and the road ahead

10:30 a.m. - 12:00 p.m.

Research in the pipeline: Paving the way for tomorrow’s breakthroughs

Local: Chicago VI-VII

Session Chair: Mitchell Olman, MD, MA

Speakers: Ksenija Bernau, PhD; Rebecca Anna Gersten, MD; Peter H. Schafer, PhD;

Poster presentation winner

• Shaping the future: PFF Scholars making an impact

• Collaborative breakthroughs: The latest updates from the PROLIFIC Research Consortium

• Spotlight on Excellence: Presenting the winning poster’s research

12:15 p.m. - 1:00 p.m.

Clinical Trial Innovation Series

Lunch included!

Location: Chicago VI-VII

Featuring: Avalyn Pharma; Insmed; Pulmonary Fibrosis Foundation

The popular Clinical Trial Innovation Series returns! In this session, enjoy lunch while learning about the latest developments in clinical trials for those living with pulmonary fibrosis and interstitial lung disease.

The PFF does not endorse the companies or its trials, and views expressed during the event may not reflect the views of the PFF.

1:30 p.m. - 3:00 p.m.

Comprehensive medical care: Managing common medical conditions that often occur with

PF

Location: Chicago X

Session Chair: Harold Collard, MD, MS

Speakers: Lori Reed, NP-C; Paul Wolters, MD; Margaret Salisbury, MD

• Understanding symptoms: Identifying and managing them effectively

• The evaluation process for conditions related to PF: Why it matters and how it guides treatment

• Medical conditions in focus:

◊ Pulmonary hypertension (PH)

◊ Gastroesophageal reflux disease (GERD)

◊ Sleep apnea (OSA)

1:30 p.m. - 3:00 p.m.

Stronger together: Benefits of a comprehensive support system

Location: Chicago VIII

Session Chair: Kathleen Lindell, PhD, RN, ATSF, FAAN

Speakers: Lanier O’Hare, PhD, CRNP; Shivani Kumar, MD; Kathryn Fenwick, DNP; Rebecca AnnaGersten, MD

• Setting up your personal care team: What can your support system do to help, even from afar

• Anxiety and depression: How to identify and manage symptoms

• Palliative and hospice care: Understanding the differences

• Getting support: How to find the support that is right for you

1:30 p.m. - 3:00 p.m.

The Practicalities of PF and serious illness: Paperwork, estate planning, insurance, and more

Location: Chicago IX

Session Chair: Devi Kumar-Nambiar, JD, MBA

Speakers: Kathryn C. Casey, JD; Devi Kumar-Nambiar, JD, MBA; Carson Lamb, JD

• What’s next? Your toolkit for how to navigate paperwork: advance directives, wills and trusts, bills, assets, death certificates, and more

• Securing what matters: Estate planning for you and your loved ones

• Understanding changes to Medicare

1:30 p.m. - 3:00 p.m.

From trainee to expert: Navigating the path to becoming a leader in ILD care or research

Location: Sheraton IV-V

Session Chair: Ayodeji Adegunsoye, MD, PhD, FACP, FCCP

Speakers: Mary E. Strek, MD; Patricia J. Sime, MD FRCP FACP ATSF

Panelists: Katherine Partyka, MD; Ayodeji Adegunsoye, MD, PhD, FACP, FCCP; Xiaoping Wu, MD, MS

• Building a successful clinical career in ILD: Challenges, opportunities, and strategies

• Navigating your research journey in ILD: Key strategies for career growth and impact

• Real cases, real-time wisdom: Fellows and residents present challenging cases to a panel of experts

1:30 p.m. - 3:00 p.m.

Intensive care, fragile lungs: Managing ILD in the ICU

Location: Chicago VI-VII

Session Chair: Ross Summer, MD

Speakers: Ross Summer, MD; Tejaswini Kulkarni, MD, MPH; Corey D. Kershaw, MD, FCCP; Rade Tomic, MD

• When time matters most: Managing rapidly progressing ILD in the ICU

• Crisis in the lungs: Acute exacerbations in IPF

• From viral storm to fibrosis: Navigating COVID-related ARDS and ILD

• Immediate post-transplant care: Essentials from surgery to ICU

3:30 p.m. - 5:00 p.m.

PF medications explained: What to expect and making sense of the benefits and risks

Location: Chicago X

Session Chair: Justin C. Hewlett, MD

Speakers: Timothy Clifford, PharmD; Bridget A. Graney, MD; Gautam George, MD

• Your medications: what to expect

• Antifibrotic treatments: Weighing the options

• Managing connective tissue diseaserelated ILD (CTD-ILD) with medications

3:30 p.m. - 5:00 p.m.

Join us! Participate in volunteer efforts at the PFF through legislative advocacy, Hill Day, fundraising, and support groups

Location: Chicago IX

Session Chair: Wayne Pan, MD, PhD, MBA

Speakers: Kate Gates, MSc; Bill Schmidt; Jamie Hillner; Rebecca Hall; Seth Klein; Dionn C. Tunis

• Your voice matters: Legislative advocacy and PFF Hill Day

• Starting a support group that works

• Getting involved! Participating in the PFF Walk and other events

3:30 p.m. - 5:00 p.m.

Life after transplant: Navigating the journey of renewal

Session Chair: Renea Jablonski, MD

Speakers: Fred McLafferty, MD; Monsurat Okesanjo, RN; Ashley Johnson Whiting, CRNP; Mike Gordon

• Living with immunosuppression: Longterm effects and management

• What comes next? Understanding the realities and next steps

◊ Precautions, medication management (transplant coordinator)

◊ What do I do now for medical care?

◊ What do I do now in my every day life?

3:30 p.m. - 5:00 p.m.

The Case Files: A Multi Disciplinary Discussion (MDD)symposium

Location: Chicago VI-VII

Session Chair: Bradford Bemiss, MD, MSCR

Speakers: Tadashi Allen, MD; Iazsmin Bauer Ventura, MD, MSc; Vijayalakshmi Ananthanarayanan, MBBS, MD; Yet Hong Khor, MBBS, FRACP, PhD

• Complex cases, collaborative minds: A study of interesting cases

We hope to see you in November of 2027 for the next PFF Summit in Bellevue, Washington! (Seattle area)

A very special thank you to our sponsors!

A special thank you to our Summit

Program Organizing

Committee!

Co-Chairs

Ayodeji Adegunsoye, MD

Hyun Kim, MD

Karen Smoot

Heather Bachert, MSN, ANP BC

Brad Bemiss, MD

Zoe D. Bubany, MBA

Amy Case, MD

Anita Clos

Sonye Danoff, MD, PhD

Alison DeDent, MD

Laura Devitt

Jolene Fisher, MD

Kevin Flaherty, MD

Lori Flint, RN, BSN

Kate Gates

Dot Ivey

Heather Kagel

Yet Khor, PhD

Seth Klein

Aahd Kubbara, MD

Teja Kulkarni, MD

Jamie Lederer, MSN, CRNP

Joyce Lee, MD

Kathy Lindell, PhD, RN

Chad Newton, MD

Justin Oldham, MD

Janell Reichuber,

A very special thank you to our exhibitors!

Accessia Health

Accredo by Evernorth

Association of Pulmonary Advanced Practice Providers

Avalyn Pharma

Boehringer Ingelheim

Bristol Myers Squibb

Brainomix

Calluna Pharma

Celea Therapeutics / PureTech Health

Cumberland Pharmaceuticals

CVS Specialty

Gossamer Bio, Inc.

Insilico Medicine

Insmed

Liquidia Technologies, Inc.

MannKind Corporation

Mediar Therapeutics

Northwestern Medicine Canning

Thoracic Institute

Continued on the next page

Orsini

Pulmonary Fibrosis Foundation

Pulmonary Hypertension Association

Rules-Based Medicine, an IQVIA business

Scleroderma Foundation of Greater Chicago

Team Telomere

Thomas Jefferson University

Three Lakes 12-20

United Therapeutics

Vicore Pharma

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