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Friday

PFF SUMMIT Innovating Together

25 Years Together: Honoring the Past, Building on the Present, Innovating for the Future

Welcome!

We’re thrilled to welcome you to the world’s largest gathering dedicated to pulmonary fibrosis!

Whether this is your first Summit or you’ve joined us before, we’re so grateful to have you here with us in the vibrant city of Chicago this fall. This event brings together patients, caregivers, healthcare professionals, researchers, and advocates from across the country—and beyond—to learn, connect, and inspire one another. Your presence here helps drive our shared mission forward, and we can’t wait to spend the next few days together.

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Meal, Break, and Exhibit Hall Schedules Thursday Exhibit hall opens 12:30 p.m.

Welcome Reception and Poster Presentation 5:00 p.m. - 8:00 p.m.

Friday & Saturday Exhibit hall opens 7:00 a.m.

Breakfast 6:00 a.m. - 7:30 a.m.

Morning Break 10:00 a.m. - 10:30 a.m.

Clinical Trial Innovation Series (Lunch included!)

12:15 p.m. - 1:00 p.m.

Afternoon break 3:00 p.m. - 3:30 p.m.

Dine & Delight Networking Night 6:00 p.m. - 8:30 p.m.

(Friday night only!)

Exhibit Hall Hours Visit the Exhibit Hall to meet with industry representatives, medical centers, and patient advocacy organizations.

Thursday 12:30 p.m. to 8:00 p.m.

Friday 7:00 a.m. to 5:00 p.m.

Saturday 7:00 a.m. to 1:30 p.m.

The Program You are welcome to attend any session you’d like, unless it’s noted as a closed session. If you’re not sure what to attend, we’ve made color-coded reccommendations on each session. Use the legend below to help you plan your Summit experience!

Patients

Lost a loved one

Caregivers

Lung transplant recipient

Healthcare professionals & researchers

Friday sessions

8:00 a.m. - 10:00 a.m.

Plenary Session 25 Years in Clinical Trials: Celebrating achievements, key learnings, and advancing care Location: Sheraton-Chicago IV - VII Ballroom Session Chairs: Ayodeji Adegunsoye, MD, PhD, FACP, FCCP; Hyun Kim, MD Keynote speaker: Karen Mancera-Cuevas, DrPH, MS, MPH, CHES Speakers: Ilene Hollin, PhD, MPH; Donna R. Dinkin, DrPH, MPH; Marilyn Glassberg, MD • Welcome! Daily remarks and announcements • KEYNOTE: Beyond representation: Building equitable clinical trials for all populations • A patient-centered approach: The critical importance of endpoints • The other side of the protocol: A patient’s clinical trial experience • From setbacks to success: Learning from clinical trial failures and the road ahead • Live Panel Discussion and Audience Q & A

FRIDAY, NOVEMBER 14

10:30 a.m. - 12:00 p.m.

Tools for monitoring your PF: The role of imaging, lung function tests, and more Location: Chicago X Session Chair: Aahd Kubbara, MD Speakers: Aahd Kubbara, MD; Tadashi Allen, MD; Renee Bergtold, MSc, RRT, RPFT • Making sense of your high-resolution CT (HRCT) • Interpreting the numbers: Understanding pulmonary function tests (PFTs) and their results

10:30 a.m. - 12:00 p.m.

Research in the pipeline: What might the next 25 years hold?

Location: Chicago IX Session Chair: Murali Ramaswamy, MD Speakers: Cathryn T. Lee, MD, MS; Imre Noth, MD;

FRIDAY, NOVEMBER 14

• The next chapter: Emerging research in ILD • Decoding disease: The role of biomarkers in ILD and pulmonary fibrosis • Your role in discovery: What to know about clinical trial participation

10:30 a.m. - 12:00 p.m.

In it together: Conversations and resources for caregivers, advocates, and family Location: Chicago VIII Session Chair: Lanier O’Hare, PhD, CRNP Speakers: Bridget A. Graney, MD; Julie Rossignol; Rick Tidwell; Brandi Ellis • The evolution of caregiving: Key advancements over the last 25 years ◊ Community resources to help care for your loved one: Respite care, Meals on Wheels, and more ◊ Social acceptance of counseling and support groups ◊ Technological advancements: smartphones and apps • Perspectives from the caregivers: Three personal stories of dedication and compassion • Conversations and connections: Audience interactive discussion about caregiving facilitated by the panel

FRIDAY, NOVEMBER 14

10:30 a.m. - 12:00 p.m.

Genetics and genetic testing: A new standard of care Location: Sheraton IV-V Session Chairs: Joyce Lee, MD; Chad A. Newton, MD Speakers: Chad A. Newton, MD; Jeremy Katzen, MD; Janet Talbert, MS, CGC • The cutting edge of precision medicine in ILD: What’s hot, what’s new • Exploring the evidence: Genetic testing in ILD – friend or foe?

• Navigating the conversation: How to counsel patients during the genetic testing process

10:30 a.m. - 12:00 p.m.

Differentiating PPF from IPF: Lessons learned from the last 25 years and what we hope to learn in the next quarter century FRIDAY, NOVEMBER 14

Location: Chicago VI-VII Session Chair: Justin Oldham, MD, PhD Speakers: Kevin Flaherty, MD; Justin Oldham, MD, PhD; John S. Kim, MD, MS • From IPF to PPF: The evolution of how we define and distinguish IPF from PPF ◊ How we began ◊ Where we are now ◊ What we need to know for the future of fibrosis care

12:15 p.m. - 1:00 p.m.

Lunch included!

Clinical Trial Innovation Series Location: Chicago VI-VII Featuring: Boehringer Ingelheim; Chiesi Farmaceutici S.p.A.; MAVRIC-IPF; United Therapeutics The popular Clinical Trial Innovation Series returns!

In this session, enjoy lunch while learning about the latest developments in clinical trials for those living with pulmonary fibrosis and interstitial lung disease.

The PFF does not endorse the companies or its trials, and views expressed during the event may not reflect the views of the PFF.

FRIDAY, NOVEMBER 14

1:30 p.m. - 3:00 p.m.

Breathe easy: Using supplemental oxygen Location: Chicago X Session Chair: Rebecca Smith, AAS, RRT, RPFT, AE-C Speakers: Susan Jacobs, MS, RN; Kara Kotyuk, RRT-NPS • Understanding oxygen therapy: How to get the oxygen you need • Oxygen equipment and you: Guidelines for safe usage and maintenance • Breathe on the go: Portable oxygen solutions for travel by car and air

1:30 p.m. - 3:00 p.m.

Transplant decision: Navigating the crossroads Location: Chicago IX Session Chair: Dan Dilling, MD Speakers: Anil J. Trindade, MD; Karen Smoot; Gary Johnson Sr.; Anita Clos, MA, MSW

FRIDAY, NOVEMBER 14

• To transplant or not: Understanding the choices and challenges ◊ When ineligibility or the decision not to pursue is the path ◊ What to expect if you decide to move forward with a lung transplant • Lung transplant patient panel: Insights and recommendations for before, during, and after

1:30 p.m. - 3:00 p.m.

Exploring types of ILD: IPF, connective tissue disease-related ILD, hypersensitivity pneumonitis, unclassifiable ILD, and more Location: Chicago VIII Session Chair: Patricia J. Sime, MD FRCP FACP ATSF Speakers: Farah Madhani-Lovely, MD, MPH, MBA, FCCP; Scott M. Matson, MD • The spectrum of ILD: Understanding the different types • Journey to the right diagnosis • Comparing ILDs: Key similarities and differences across types

FRIDAY, NOVEMBER 14

1:30 p.m. - 3:00 p.m.

From paper to practice: Adapting guidelines to clinical practice Location: Sheraton IV-V Session Chair: Anthony J. Esposito, MD Speakers: Jonathan Chung, MD; Flavia Castelino, MD; Anna Podolanczuk, MD • Evidence in action: Translating updated treatment guidelines to patient care ◊ The Fleischner Society guidelines on quantitative CT ◊ A multi-disciplinary approach: Guidelines for treating connective tissue disease-associated interstitial lung disease (CTD-ILD) / systemic autoimmune rheumatic diseases (SARDs) ◊ Updated incidental findings: The ATS (American Thoracic Society) guidelines on ILA (interstitial lung abnormalities)

1:30 p.m. - 3:00 p.m.

Advancing care through clinical trials: Because every patient matters

FRIDAY, NOVEMBER 14

Location: Chicago VI-VII Session Chair: Hyun Kim, MD Speakers: Mark Hamblin, MD, FCCP; Joyce Lee, MD; Alison DeDent, MD, MAS • Expanding access: How to overcome enrollment barriers • Reusing trial data: How a second look at data can drive breakthroughs in medicine • Remote, rural, and ready: Designing clinical trials that reach every community

3:30 p.m. - 5:00 p.m.

Navigating ILD across the lifespan: Strategies for every stage Location: Chicago VIII Session Chair: Steve Jones, BSc hons Speakers: Kathleen Lindell, PhD, RN, ATSF, FAAN; Bridget Collins, MD; Kristin B. Highland, MD, MSCR; Erica Farrand, MD • Discussing your diagnosis with loved ones: Guidance for all generations • Living with ILD: Strategies for balancing home, work, and health • Beyond the diagnosis: Relationships and family planning • Representation matters: Engaging diverse representation in ILD research

FRIDAY, NOVEMBER 14

3:30 p.m. - 5:00 p.m.

Beyond the medicine cabinet for those living with ILD and lung transplant recipients Location: Chicago X Session Chair: Janell Reichuber, MSN Speakers: Emilie Klemptner, MS, RD; Rebecca Smith, AAS, RRT, RPFT, AE-C; Lori M. Flint, BSN, RN • Nutrition matters: Tips for managing medication side effects, GERD, and weight • Fitness: The importance of pulmonary rehab and other forms of exercise • Finding support: Emotional wellness and resources

3:30 p.m. - 5:00 p.m.

Understanding grief: Navigating life transitions and coping with loss Location: Chicago IX Session Chair: Rebecca Anna Gersten, MD Speakers: Erica Dixon-Johnson, DNP; Dana Goo Holiona, LCSW; Rev. Pamela N. Floyd, MD, MPH, MDiv FRIDAY, NOVEMBER 14

• Finding support: Exploring social support and counseling resources for you and your loved one • Honoring yourself, your peers, and your loved ones

3:30 p.m. - 5:00 p.m.

Beyond the Medicine Cabinet: Non-pharmacological management of ILD and what to know to help your patients Location: Chicago VI-VII Session Chair: Timothy Whelan, MD Speakers: Jennifer Kolmos Applebey, RN, BSN ; Krishna Thavarajah, MD, MS; Rachel Potter, LCSW • Fueling fragile lungs: The critical role of nutrition in advanced lung disease • Pulmonary rehab in practice: Evidence-based gains in function and quality of life • Mental health matters: Strategies for management and care

FRIDAY, NOVEMBER 14

3:30 p.m. - 5:00 p.m.

The power of many: Leveraging multi-omics for next-gen personalized medicine Location: Sheraton IV-V Session Chair: Aparna Swaminathan, MD, MHS Speakers: Sonye K. Danoff, MD, PhD; Manoj Maddali, MD, MS; Jonathan A. Kropski, MD; Stephen Humphries, PhD • From patients to people: The rise of personomics in personalized healthcare • The power of proteins: Driving precision medicine with proteomic insight • Clinicalomics uncovered: Making sense of multidimensional patient data • The image speaks: Harnessing radiomics for precision diagnostics

FRIDAY, NOVEMBER 14

Dine and Delight

Networking Night Friday: 6:00 p.m. - 8:30 p.m.

Before you head out to explore Chicago’s nightlife scene, join your PFF Summit community for an evening designed just for you. The Dine & Delight Networking Night is your chance to relax, connect, and celebrate with fellow attendees in a warm, welcoming setting.

The evening is hosted by Broadway star and PFF Board member, Julie Halston!

Enjoy a complimentary dinner featuring a variety of flavors, paired with live entertainment that sets the perfect tone for community. The evening brings together speakers, guests, and members of the PF community to share stories, laughter, and inspiration.

This isn’t just a meal; it’s a moment.

A chance to build meaningful connections, continue important conversations, and create memories with people who understand the journey. Whether you’re here to network, to unwind, or to simply enjoy the company, Dine & Delight offers the perfect close to your conference day.

FRIDAY, NOVEMBER 14

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A very special thank you to our sponsors!

Diamond

Gold

Silver

Medical Center

A special thank you to our Summit Program Organizing Committee!

Co-Chairs Ayodeji Adegunsoye, MD Hyun Kim, MD Karen Smoot Heather Bachert, MSN, ANP BC Brad Bemiss, MD Zoe D. Bubany, MBA Amy Case, MD Anita Clos Sonye Danoff, MD, PhD Alison DeDent, MD Laura Devitt Jolene Fisher, MD Kevin Flaherty, MD Lori Flint, RN, BSN Kate Gates Dot Ivey Heather Kagel Yet Khor, PhD

Seth Klein Aahd Kubbara, MD Teja Kulkarni, MD Jamie Lederer, MSN, CRNP Joyce Lee, MD Kathy Lindell, PhD, RN Chad Newton, MD Justin Oldham, MD Janell Reichuber, APRN Julie Rossignol Mary Beth Scholand, MD Jessica Shore, PhD, RN Rebecca Smith, AAS RCPRRT,RPFT, AE-C Matt Taylor, DO Iaszmin Ventura, MD

A very special thank you to our exhibitors!

Accessia Health Accredo by Evernorth Association of Pulmonary Advanced Practice Providers Avalyn Pharma Boehringer Ingelheim Bristol Myers Squibb Brainomix Calluna Pharma Celea Therapeutics / PureTech Health Cumberland Pharmaceuticals CVS Specialty Gossamer Bio, Inc. Insilico Medicine Insmed Liquidia Technologies, Inc. MannKind Corporation

Mediar Therapeutics Northwestern Medicine Canning Thoracic Institute Orsini Pulmonary Fibrosis Foundation Pulmonary Hypertension Association Rules-Based Medicine, an IQVIA business Scleroderma Foundation of Greater Chicago Team Telomere Thomas Jefferson University Three Lakes 12-20 United Therapeutics Vicore Pharma

PFF SUMMIT Innovating Together

25 Years Together: Honoring the Past, Building on the Present, Innovating for the Future

pffsummit@pulmonaryfibrosis.org 844.TalkPFF | 844.825.5733

Updated: November 11, 2025