Welcome!
We’re thrilled to welcome you to the world’s largest gathering dedicated to pulmonary fibrosis!
Whether this is your first Summit or you’ve joined us before, we’re so grateful to have you here with us in the vibrant city of Chicago this fall. This event brings together patients, caregivers, healthcare professionals, researchers, and advocates from across the country—and beyond—to learn, connect, and inspire one another. Your presence here helps drive our shared mission forward, and we can’t wait to spend the next few days together.
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Meal, Break, and Exhibit Hall
Schedules
Thursday
Exhibit hall opens 12:30 p.m.
Welcome Reception and Poster
Presentation 5:00 p.m. - 8:00 p.m.
Friday & Saturday
Exhibit hall opens 7:00 a.m.
Breakfast 6:00 a.m. - 7:30 a.m.
Morning Break 10:00 a.m. - 10:30 a.m.
Clinical Trial Innovation Series (Lunch included!) 12:15 p.m. - 1:00 p.m.
Afternoon break 3:00 p.m. - 3:30 p.m.
Dine & Delight Networking Night 6:00 p.m. - 8:30 p.m. (Friday night only!)
Exhibit Hall Hours
Visit the Exhibit Hall to meet with industry representatives, medical centers, and patient advocacy organizations.
Thursday 12:30 p.m. to 8:00 p.m.
Friday 7:00 a.m. to 5:00 p.m.
Saturday 7:00 a.m. to 1:30 p.m.
The Program
You are welcome to attend any session you’d like, unless it’s noted as a closed session. If you’re not sure what to attend, we’ve made color-coded reccommendations on each session. Use the legend below to help you plan your Summit experience!
Patients Caregivers Lung transplant recipient
Lost a loved one
Healthcare professionals & researchers
Thursday sessions x
8:00 a.m. - 4:00 p.m.
ILD in Practice: An Immersive Day for Community Pulmonologists and Fellows
Earn CME, CE, and MOC credit at PFF Summit!
This is a closed session designed for healthcare providers only. A separate registration is required in order to attend.
View the program here!
8:00 a.m. - 4:00 p.m.
Nurse and Allied Health Network (NAHN)
EARN CE credit at PFF Summit! This is a closed session designed for healthcare providers only. A separate registration is required in order to attend.
View the program here!
12:00 p.m. - 1:00 p.m.
Beyond the Scars & PFF
Summit Lunchtime Program
Location: Chicago X
Speakers: Boehringer Ingelheim’s Lungs&You Patient Mentors; Bernie Williams; Jennifer M. Dixon-Johnson, MSN, APRN, AGPCNP-BC
Join us on Thursday, November 13 for a special educational session featuring New York Yankees legend and Latin Grammy nominee, Bernie Williams. Williams, who lost his father to interstitial lung disease (ILD), will be joined by Boehringer Ingelheim’s Lungs&You Patient Mentors who are living with ILD, to share stories, speak to the emotional burden of ILD, and share how they’ve learned to embrace life beyond the scars of their diagnosis.
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Seasoned nurse and nurse practitioner who brings a vast amount of personal and professional experience in dealing with chronic illnesses and the aftermath of receiving life-changing diagnoses, Jennifer M. Dixon-Johnson, will moderate the conversation. With over 20 years of experience, she looks forward to facilitating the discussion.
1:00 p.m. - 2:30 p.m.
Welcome to the Pulmonary Fibrosis Foundation and pulmonary fibrosis 101
Location: Chicago IX
Session Chair: Tejaswini Kulkarni, MD, MPH
Speakers: Scott Staszak; Amy Hajari Case, MD; Carla Copeland, MD
• Who we are: An introduction to the PFF
• Pulmonary fibrosis 101: A beginner’s guide
• Alphabet soup: Understanding ILD terminology and abbreviations
For information on all of the PFF’s resources, please visit the Resources Desk located on the promenade on the main conference level.
3:00 p.m. - 4:30 p.m.
Driving research and improving care: The PFF Registry and Care Center
Network
Location: Chicago VIII
Session Chair: Hyun Kim, MD
Speakers: Kevin Flaherty, MD, MS; Jessica Shore, PhD, RN; Ayodeji Adegunsoye, MD, PhD
• PFF Registry: How patients, caregivers, family, and lung transplant recipients can all participate in research
• Care Center Network: How healthcare providers and researchers work together to improve your care.
• PFF Scholars: How the PFF is supporting the future of PF research
3:00 p.m. - 4:30 p.m.
The SILVER Series: As the PFF celebrates 25 years, learn more about your journey with PF Location: Chicago IX
Session Chair: Lori M. Flint, BSN, RN
Speakers: Lori Reed, NP-C; Jenny Williams, PA-C; Nicole Davis, BSN, MPH, CCTC
• S - Symptoms and their management
• I – Interventions and treatments
• L – Life expectancy
• V – Vaccines and preventative care
• E – Energy and exercise
• R – Reliable resources: The dos and don’ts in navigating information and resources
WelcomeReception
Thursday | 5:00 p.m. - 8:00 p.m.
Kick off the Summit in style at our Welcome Reception & Poster Presentation where science, community, and conversation come together! Enjoy hearty hors d’oeuvres and cocktails as you mingle with friends and colleagues and connect with some of the brightest minds in PF research. and Poster Presentation
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The exhibit hall will be lined with cuttingedge scientific posters, each staffed by the researcher who helped to create it. This is your chance to walk right up, ask questions, and hear the science explained directly from the experts themselves — no lectures, no barriers, just open conversation.
As the evening unfolds, we’ll celebrate discovery with the Poster Awards Ceremony. Ten outstanding posters will receive special recognition—and the winning poster’s researcher will present their work in a dedicated conference session on Saturday. It’s more than an opening reception. It’s your front-row seat to the future of PF research, paired with a warm welcome to the PF community. Come curious, leave inspired.
A very special thank you to our sponsors!
A special thank you to our Summit
Program Organizing
Committee!
Co-Chairs
Ayodeji Adegunsoye, MD
Hyun Kim, MD
Karen Smoot
Heather Bachert, MSN, ANP BC
Brad Bemiss, MD
Zoe D. Bubany, MBA
Amy Case, MD
Anita Clos
Sonye Danoff, MD, PhD
Alison DeDent, MD
Laura Devitt
Jolene Fisher, MD
Kevin Flaherty, MD
Lori Flint, RN, BSN
Kate Gates
Dot Ivey
Heather Kagel
Yet Khor, PhD
Seth Klein
Aahd Kubbara, MD
Teja Kulkarni, MD
Jamie Lederer, MSN, CRNP
Joyce Lee, MD
Kathy Lindell, PhD, RN
Chad Newton, MD
Justin Oldham, MD
Janell Reichuber,
A very special thank you to our exhibitors!
Accessia Health
Accredo by Evernorth
Association of Pulmonary Advanced Practice Providers
Avalyn Pharma
Boehringer Ingelheim
Bristol Myers Squibb
Brainomix
Calluna Pharma
Celea Therapeutics / PureTech Health
Cumberland Pharmaceuticals
CVS Specialty
Gossamer Bio, Inc.
Insilico Medicine
Insmed
Liquidia Technologies, Inc.
MannKind Corporation
Mediar Therapeutics
Northwestern Medicine Canning
Thoracic Institute
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Orsini
Pulmonary Fibrosis Foundation
Pulmonary Hypertension Association
Rules-Based Medicine, an IQVIA business
Scleroderma Foundation of Greater Chicago
Team Telomere
Thomas Jefferson University
Three Lakes 12-20
United Therapeutics
Vicore Pharma