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Welcome!

We’re thrilled to welcome you to the world’s largest gathering dedicated to pulmonary fibrosis!

Whether this is your first Summit or you’ve joined us before, we’re so grateful to have you here with us in the vibrant city of Chicago this fall. This event brings together patients, caregivers, healthcare professionals, researchers, and advocates from across the country—and beyond—to learn, connect, and inspire one another. Your presence here helps drive our shared mission forward, and we can’t wait to spend the next few days together.

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Meal, Break, and Exhibit Hall Schedules

Thursday

Exhibit hall opens 12:30 p.m.

Welcome Reception and Poster Presentation

5:00 p.m. - 8:00 p.m.

Friday & Saturday

Exhibit hall opens 7:00 a.m.

Breakfast 6:00 a.m. - 7:30 a.m.

Morning Break 10:00 a.m. - 10:30 a.m.

Clinical Trial Innovation Series (Lunch included!)

12:15 p.m. - 1:00 p.m.

Afternoon break 3:00 p.m. - 3:30 p.m.

Dine & Delight Networking Night 6:00 p.m. - 8:30 p.m. (Friday night only!)

Exhibit Hall Hours

Visit the Exhibit Hall to meet with industry representatives, medical centers, and patient advocacy organizations.

Thursday 12:30 p.m. to 8:00 p.m.

Friday 7:00 a.m. to 5:00 p.m.

Saturday 7:00 a.m. to 1:30 p.m.

The Program

You are welcome to attend any session you’d like, unless it’s noted as a closed session. If you’re not sure what to attend, we’ve made color-coded reccommendations on each session. Use the legend below to help you plan your Summit experience!

Patients

Caregivers

Lung transplant recipient

Thursday sessions

8:00 a.m. - 4:00 p.m.

ILD in Practice: An Immersive Day for Community Pulmonologists and Fellows

Earn CME, CE, and MOC credit at PFF Summit! This is a closed session designed for healthcare providers only. A separate registration is required in order to attend.

8:00 a.m. - 4:00 p.m.

Nurse and Allied Health Network (NAHN)

EARN CE credit at PFF Summit! This is a closed session designed for healthcare providers only. A separate registration is required in order to attend.

12:00 p.m. - 1:00 p.m.

Beyond the Scars & PFF Summit

Lunchtime Program

Location: Chicago X

Speakers: Boehringer Ingelheim’s Lungs&You Patient Mentors; Bernie Williams; Jennifer M. Dixon-Johnson, MSN, APRN, AGPCNP-BC

Join us on Thursday, November 13 for a special educational session featuring New York Yankees legend and Latin Grammy nominee, Bernie Williams. Williams, who lost his father to interstitial lung disease (ILD), will be joined by Boehringer Ingelheim’s Lungs&You Patient Mentors who are living with ILD, to share stories, speak to the emotional burden of ILD, and share how they’ve learned to embrace life beyond the scars of their diagnosis.

Seasoned nurse and nurse practitioner who brings a vast amount of personal and professional experience in dealing with chronic illnesses and the aftermath of receiving life-changing diagnoses, Jennifer M. Dixon-Johnson, will moderate the conversation. With over 20 years of experience, she looks forward to facilitating the discussion.

Following the panel discussion, Dixon-Johnson will lead a thoughtful conversation on the emotional impact of ILD, offering practical tools and compassionate guidance to help patients and caregivers navigate this aspect of the journey.

Doors open at 11:45 a.m., with lunch provided before the session begins promptly at 12:00 p.m. This event is exclusively for PFF Summit 2025 attendees who are patients or caregivers. Space is limited, and registration for this event is required. Spots are available on a first-come, first-served basis.

This event is presented in collaboration with Boehringer Ingelheim. The PFF does not endorse the company, its products, or its clinical trials. Views expressed during the event are those of the speakers and do not necessarily reflect those of the PFF.

1:00 p.m. - 2:30 p.m.

Welcome to the Pulmonary Fibrosis Foundation and pulmonary fibrosis

101

Location: Chicago IX

Session Chair: Tejaswini Kulkarni, MD, MPH

Speakers: Scott Staszak; Amy Hajari Case, MD; Carla Copeland, MD

• Who we are: An introduction to the PFF

• Pulmonary fibrosis 101: A beginner’s guide

• Alphabet soup: Understanding ILD terminology and abbreviations

For information on all of the PFF’s resources, please visit the Resources Desk located on the promenade on the main conference level.

3:00 p.m. - 4:30 p.m.

Driving research and improving care: The PFF Registry and Care Center

Network

Location: Chicago VIII

Session Chair: Hyun Kim, MD

Speakers: Kevin Flaherty, MD, MS; Jessica Shore, PhD, RN; Ayodeji Adegunsoye, MD, PhD

• PFF Registry: How patients, caregivers, family, and lung transplant recipients can all participate in research

• Care Center Network: How healthcare providers and researchers work together to improve your care.

• PFF Scholars: How the PFF is supporting the future of PF research

Prefer a hard-copy of this program? Printed program books will be available for all attendees at the conference.

3:00 p.m. - 4:30 p.m.

The SILVER Series: As the PFF celebrates 25 years, learn more about your journey with PF

Location: Chicago IX

Session Chair: Lori M. Flint, BSN, RN

Speakers: Lori Reed, NP-C; Jenny Williams, PA-C; Nicole Davis, BSN, MPH, CCTC

• S - Symptoms and their management

• I – Interventions and treatments

• L – Life expectancy

• V – Vaccines and preventative care

• E – Energy and exercise

• R – Reliable resources: The dos and don’ts in navigating information and resources

WelcomeReception and

Poster Presentation

Thursday | 5:00 p.m. - 8:00 p.m.

Kick off the Summit in style at our Welcome Reception & Poster Presentation where science, community, and conversation come together! Enjoy hearty hors d’oeuvres and cocktails as you mingle with friends and colleagues and connect with some of the brightest minds in PF research.

The exhibit hall will be lined with cutting-edge scientific posters, each staffed by the researcher who helped to create it. This is your chance to walk right up, ask questions, and hear the science explained directly from the experts themselves — no lectures, no barriers, just open conversation.

As the evening unfolds, we’ll celebrate discovery with the Poster Awards Ceremony. Ten outstanding posters will receive special recognition—and the winning poster’s researcher will present their work in a dedicated conference session on Saturday. It’s more than an opening reception. It’s your front-row seat to the future of PF research, paired with a warm welcome to the PF community.