2020 Fall/Winter Heartbeat Newsletter

Page 4

The Patrick Family at their home in Energy Illinois six years after staying at RMHC St. Louis for Charlie's surgery.

MEET THE PATRICK FAMILY Charlie's family found comfort and care in the Ronld McDonald House and Ronald McDonald Family Room.

I

n the spring of 2014, Julie and Ryan Patrick heard the heart-breaking news that their three-year-old son, Charlie, was diagnosed with Rasmussen’s Encephalitis. The incredibly rare brain disorder targets one hemisphere of the brain that causes seizures and development disorders. Charlie’s doctors recommended a surgery called a hemispherectomy, which disconnects the right region of the brain from the left. While the operation would stop the progression of the disease, Charlie would be left with diminished use of the left side of his body. The Patrick family traveled two hours from their home in Energy, Illinois, to seek treatment at St. Louis Children’s Hospital. On May 21, 2014, the day of Charlie’s surgery, the Patrick family found out they had secured a room at the Ronald McDonald House. “This was a tremendous relief because, at the

3

Heartbeat • Fall/Winter 2020

time, we didn’t know how we were going to afford housing. Just knowing that my wife and I had a safe, affordable, and comfortable place to stay and freshen up every day was such a blessing to us,” says Ryan. After the surgery, Charlie underwent therapy at the hospital for the next five weeks to learn how to adapt to the use of one hand and how to walk again. Thanks to RMHC, he was never alone. “One of us would stay with Charlie, and one of us would go to our room at the House,” says Ryan “It was so nice to know that every other night I would not have to sleep on the uncomfortable chair in the hospital room.” While the whole family was going through such a difficult time in their lives, the little things in the in-hospital Ronald McDonald Family Room made such a difference. Ryan and Julie could be down the hall from Charlie to grab a quick snack, take a


Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.
2020 Fall/Winter Heartbeat Newsletter by Ronald McDonald House Charities of St. Louis - Issuu