Spring Newsletter 2024

Spring Newsletter 2024

Welcome to your Spring Newsletter 2024!

We are thrilled to share our news with you and hope that you enjoy reading about all of the amazing and impactful work that your kind and generous support allows our local hospice charity to deliver. In the last few months I have had the privilege of spending even more time with many of our patients and their families and can honestly say that they are an inspiration to me.

Our work At Home, Closer to Home, at our Poole Hospice and in our hubs across Swanage, Wareham, Wimborne and Bournemouth is growing and expanding, and we continue to work in close collaboration with local GPs, the NHS and other healthcare providers. We are so pleased that our ethos of partnership working is improving care and focusing not only on ‘what’s the matter with the patient’ but, importantly, on ‘what matters to the patient’. With your continued support we hope to do even more in the coming year. Thank you so much for making this possible.

With all best wishes, as ever

Clare Gallie

CEO

Contents

2: Welcome from Clare

3: Dates for your diary

4 & 5: How our Breathlessness service gave Ray his independence back

6 & 7: Clinical news

8 & 9: Community Champions

10 & 11: Volunteer voices

12 & 13: It’s Spring clean season

Dates For Your Diary

An Audience with Paul Gough Friday 19th April, The Fine Gallery, Durlston Castle, Swanage

Fire Walk Friday 17th May, Ashley Cross Green

Wimborne Folk Festival Friday 7th, Saturday 8th & Sunday 9th June, Willow Walk, Wimborne

Sand Polo (Charity Partner) Friday 12th & Saturday 13th July, Sandbanks Beach

Skydive 21st September

Candles in the community events will return to Poole, Swanage and Wimborne!

Be the first to hear about our upcoming events, follow us on social media.

Instagram: @lm_hospicecare

Twitter: @LMHospiceCare

YouTube: Lewis-Manning Hospice Care

Facebook: Lewis-Manning Hospice Care

Check our website for upcoming events and challenges!

How our Breathlessness service gave Ray his independence back

Ray, aged 67, is happily married with two step children. He has always been fit and active and has enjoyed many careers, including travelling around the country on the road as an engineer.

Ray had to retire early when he began to struggle with his breathing due to his lung disease. As his disease progressed it got more difficult for him to breathe, and the effort of breathing made his muscles tense and painful. Ray experienced breathlessness attacks, which turned into panic attacks, and sometimes resulted in 999 calls.

“IT FELT REALLY HORRIBLE, I WAS VERY LOW AT THAT TIME. I COULDN’T GET OUT OF THE HOUSE DUE TO FEAR OF [BREATHLESSNESS] ATTACKS… AND I DIDN’T WANT TO BE HERE ANYMORE.”

When Ray first came to our Breathlessness service, he was severely impacted by his breathlessness. Activities such as having a shower and getting dressed were very difficult and his wife was having to help him. This was increasingly hard for her due to her own health conditions.

Our Specialist Respiratory Physiotherapist taught Ray strategies to manage his condition more effectively, such as breathing techniques and pacing. We gave him a handheld fan which he now carries everywhere.

car, go to the shops, out for lunch and even take his dog for walks using his mobility scooter.

Ray said, “It helps me a lot and gives me more air when I need it.”

The Breathlessness Team looked at ways to reduce the effort in day-to-day tasks such as using a toweling robe, in order that his wife doesn’t have to help dry him after a shower. We also worked with Ray’s respiratory team who ensured he was on the right medication.

With our support, Ray began to understand the relationship between panic and breathlessness and adjusted his routine. Our Complementary Therapist helped him to feel calmer and more relaxed. We taught him mindfulness techniques so if panic does set in, Ray is able to notice the thoughts and feelings and allow the panic to pass.

Prior to coming to Lewis-Manning Ray was having panic attacks every day.

“Coming to Lewis Manning has helped with my breathing, the team have taught me how to breathe slowly… and control my breathing. The complementary therapy has been brilliant, it has helped me to relax, my breathing feels easier, and my chest feels clearer… I am enjoying my life again.”

Louise, our Specialist Respiratory Physiotherapist said “Breathlessness is a cruel symptom that impacts all aspects of people’s lives. It has been a privilege working alongside Ray, enabling him to regain independence and quality of life. His breathlessness is still there but he lives with it differently and is less afraid. I am really proud of the work that we do and the service that we offer to help people live more comfortably with their difficult symptoms. We will continue to support and empower people like Ray living with breathlessness”

What’s new?

Lulworth and Swanage NEW Day Hospices Opening Soon!

Lulworth - Every Wednesday from 1-4pm at Lulworth Village Hall

Swanage - Every Friday from 10am-3pm at Swanage Cricket Club

We have been working with patients and groups in Purbeck to identify what services the community needs. Together, we have identified a need for support to help battle loneliness and isolation. Our clinical team have worked hard to create these two new day hospices for anyone impacted by a life-limiting illness to join.

To join any of our Day Hospices, please speak to a member of the clinical team or fill in a referral form on our website.

Care South Mini Bus

Working in partnership with Care South, we are thrilled to be able to use their mini bus! From this spring, Care South will share their mini bus with us once a month so we can take our patients out for day trips. We are really looking forward to taking small groups out to have a lovely day, whether it be at the beach, or at a coffee shop!

Lymphoedema team opens another day clinic at AECC Clinic in Boscombe

Linda, Es, Kath and Kate are thrilled to be working at the AECC Clinic in Boscombe, Bournemouth for another day of the week. Every Tuesday, Wednesday and Thursday they are there to provide local patients with care and treatments for secondary lymphoedema. They also operate in our other hubs including Poole. To be referred, please speak to a healthcare professional.

Community Champions

Families supported by Lewis Manning enjoyed a trip on the Polar Express.

We collected and recycled over 1000 Christmas trees.

We got into the spirit at our Christmas wreath workshops

We were one of Bournemouth Bay Run’s chosen charities!

Candles in the community events raised £20,000 Dunelm delivered kindness to our patients.

We were delighted that Jeff Mostyn, Kate Adie and Mandy Hickson all gave talks to help us raise vital funds.

We were the Rotary Club of Poole’s chosen charity for their Centenary Dinner.

Our Assistant Accountant Flo is running the London Landmarks Half Marathonl

Team Mazars took on the 5k Run Bournemouth.

Meet Chris!

Meet Chris North, one of our volunteer drivers! Chris volunteers as a patient driver, helping to safely transport our patients to our Day Hospice in Wareham.

We asked Chris…

What is your reason for volunteering? I am retired and have spare time which I wanted to put to good use, I think what I am now doing helps people.

What do you most like about volunteering with Lewis-Manning?

I looked to do various charity work. After talking to the Lewis-Manning staff in Swanage. I like the principles of the charity and their dedication to their Hospice patients was second to none. Also I was told that there was a shortage of volunteer drivers transporting patients.

What do you hope to get out of volunteering?

I find it very rewarding and the people I have transported are very grateful for what I do for them. I love seeing their smiling faces when they are going out for the day. We all have a good laugh when I am driving and sometimes I feel the journey is not long enough!

Tell us something about you! I love living in Swanage and the slow pace of life here. I feel so lucky to have this opportunity to help people who are not as lucky and as fit and able as me.

Below are just a few benefits of joining our volunteering team:

• Make a positive difference to people’s’ lives.

• Improve self esteem, confidence and wellbeing.

• Diverse roles available across the Clinical, Retail and Fundraising teams.

• Gain invaluable work experience.

• Gain new skills and make new friends.

Join our volunteer patient drivers team!

Email Lyndsey.howard@lewismanning.org.uk or call 01202

708470 and ask to speak to our Volunteer Manager.

Chris and Sue, Occupational Therapist

It’s Spring Clean season!

Spring is finally here, the perfect time to declutter your home and wardrobe ready for the new season! But before you buy new clothes and throw away your pre-loved items, consider donating them to your local LewisManning charity shop instead. Giving longer life to clothes is one of the most sustainable actions we can take and our shops are always looking for your donations, including clothes, shoes, accessories, bric-a-brac, gifts, even furniture!

For every tonne of clothes reused in charity shops, 11 tonnes of CO2e is saved and every item we sell helps raise funds to support people with lifelimiting illnesses across East Dorset and Purbeck. So, you can help us turn sofas into support and clothes into care by popping into your local LewisManning shop and donating your pre-loved items today. Visit lewis-manning.org.uk/shops

Scan the QR code to find your nearest shop!

You’re invited to...

The launch of the new House Clearance Shop by Lewis-Manning Hospice Care!

288 Lymington Road, Highcliffe, BH23 5ET

Thursday 25th April 2024 11:00am

Pop along to meet the new team, enjoy some refreshments and take a look around the new Highcliffe House Clearance Shop, full of fantastic and sustainable bargains to buy.

Rosa first met us at a charity networking event many years ago, when she was helping to run a support group called The Living Tree for local cancer patients. The day she was due to come to a follow-up meeting to see if Lewis-Manning could work with them, Rosa was ill so she couldn’t attend, and her friends told our team Rosa may need some of our help.

Rosa has rare genetic conditions known as Lynch Syndrome and Muir Torre Syndrome, which both increase the chance of cancers in the body. Rosa has experienced bowel, stomach, breast and skin cancer, and more, including severe arthritis.

Since first getting cancer when she was 42, Rosa, now aged 64, has led support groups Butterflies to help others in

Dorset. She has also raised an amazing family including two children, two grandchildren and four cats, and has lived abroad in Tenerife and Crete.

Rosa has benefited from our Wareham Day Hospice, home visits, virtual support in the pandemic, and ongoing online sessions.

“FROM THE VERY BEGINNING, IT INCREASED MY SELFCONFIDENCE. DOING THE PAINTING, AND SEEING IT, AND REALISING IT LOOKS GOOD WAS AMAZING FOR MY CONFIDENCE.”

“AT LEWIS-MANNING, YOU CAN BE AS ILL AS YOU WANT, BUT NOT HAVE TO WORRY ABOUT IT.”

She bonded with others in the sessions and was able to make social connections, leading to crocheting and knitting groups, and fostering some life-long friendships. Rosa’s first piece of watercolour art now hangs proudly in her home. She now paints, draws and also writes to help support her mental wellbeing.

“Creative art has given me support, freedom and confidence.”

Rosa kindly agreed to read one of her poems at the Opening Evening of our Patient Art Exhibition at the Lighthouse, Poole, and showed an audience of patients, charity supporters, staff and volunteers her art.

We are very grateful for this and are so proud to see Rosa have such confidence and strength in her powerful words.

Rosa’s art is part of our Art Exhibition at the Lighthouse, Poole, open from 5th – 26th April 2024. Come along for FREE and be inspired by our incredible patients like Rosa!

Friday 5th April to Friday 26th April 2024 Lighthouse, Poole, Dorset, BH15 1UG

THE EVENT RAISED A LEAD-ING

£15,000

MUDDY DOG DASH 2024 YOU’RE PAW-SOME!

Back in March, we hosted our second Muddy Dog Dash! Over 400 of you came along with your furry-friends to take on a 2.5km and 5km obstacle course around Upton Country Park, weaving through poles, scrambling under nets, splashing through water and getting VERY muddy to raise money for our hospice.

After dashing through the finish line, all runners (both two and four-legged) were awarded a certificate, a rosette and a doggy bag full of goodies. We encouraged sponsorship of £50 per dog, which could

provide a session with a nurse and a therapy dog reducing anxiety, helping patients facing a terminal illness. In total, you helped us raise an incredible £15,000 for Lewis-Manning Hospice Care, just imagine the incredible difference this will make to local lives.

Thank you!

Scan to watch the video!

Fab Fundraiser Finley!

Six-year-old Finley took on the Muddy Dog Dash with his dog Hugo. “Money raised will go towards providing sessions with a therapy dog helping people who are very poorly just like in the Hospital Dog book. This is important to me because people might be close to dying and need a special buddy like Hugo to help them when they feel sad, scared and poorly. This is when Hugo helps me.”

A tree-mendous community effort! Christmas Tree Collection

In January, a team of festive volunteers came together to support our Christmas Tree Collection & Recycling service!

With their help, over 1000 Christmas trees were collected across BH1BH23 postcodes and recycled (that’s over 6.5 tons of chippings going back into local community projects) and thanks to your kind donations, you helped us to raise over £18,000.

This phenomenal amount ensured that our incredible clinical team could provide vital care and support to our patients, many of whom are living alone and isolated, over the festive period and we can continue providing extraordinary care in 2024.

Our Christmas Tree Collection service will be back for 2025!

YOU HELPED US TO RAISE OVER £18,000 Read

Wendy and Arthur’s Story

Arthur was diagnosed with Parkinson’s Disease when he was 53. He and his wife, Wendy, attended a local Parkinson’s Support Group and somebody there mentioned Lewis-Manning Hospice Care.

On Arthur’s first visit to Day Hospice, he was very nervous, and Wendy stayed with him all day. They soon felt at ease with the others at Day Hospice.

Wendy said:

“EVERYBODY WAS FRIENDLY - THE STAFF AND THE OTHER PATIENTS. STRAIGHT AWAY, ARTHUR WAS QUITE A CHATTERBOX, AND VERY SOON MADE GOOD FRIENDS WITH THREE OTHERS. THEY GOT NICKNAMED THE FOUR MUSKETEERS BECAUSE THEY SPOKE SO WELL TOGETHER.”

Since then, Arthur has been a part of Lewis-Manning Day Hospice and has benefitted from good company and care including complementary therapies and creative art. Arthur attends every Wednesday, which helps Wendy with some muchneeded respite as his full-time carer. Wendy has also recently been diagnosed with Parkinson’s.

Wendy and Arthur said:

“We are not going to be defined by Parkinson’s.”

“Parkinson’s is different with everybody that you talk to. Mine is shaky from the start, but Arthur’s is not so shaky so often, it’s more rigid.”

“This shaking business really annoys me because I try hard not to shake.”

“You worry a lot about what you look like, but here, you don’t have to.”

EDUCATION, EDUCATION, EDUCATION!

In January we welcomed our Trustee and Academic Advisor, Dr Jackie Dominey, to the hospice. Dr Jackie held an insightful teaching session focussing on Motor Neurone Disease for our clinical team, alongside Dr Sue Baron, Principal Academic in Nursing, Programme Lead for MSc Adult Nursing and our five Lewis-Manning Hospice Care scholarship students from Bournemouth University.

Lewis-Manning Hospice Care’s Day Hospice Clinical Team Manager and Family Support and Bereavement Lead, Debbie and Jo, delivered six engaging workshops to over 100 student nurses for Bournemouth University’s “Preparation for Practice” week.

We are delighted that our partnership with Bournemouth University resulted in us both being shortlisted for the Student Nursing Times Awards.

Debbie and Jo have also delivered training for Agincare to help their teams work on advanced care planning and communication including difficult conversations.

Saturday 21st September 2024

Old Sarum Airfield, Salisbury

To register, please visit: www.lewis-manning.org.uk/challenges

fundraisingteam@lewis-manning.org.uk

Scan for more information

CHARITY GOLF DAY

In March, we were thrilled to have 12 teams join us at Ferndown Golf Club. Together, they raised £12,000.

MSP CAPITAL VOLLEYBALL CHAMPIONSHIPS

MSP Capital held a volleyball tournament on Bournemouth beach with almost 30 corporate teams taking part. All teams made donations to take part and MSP Capital match funded the donations to give a total amount of £7500. Thank you, Team MSP!

PERENCO

A huge thank you to Perenco UK Ltd who have raised a fantastic £1283.10 by hosting a dinner and dance, selling pizza to staff on International Pizza Day and hosting a bake sale. The team have also collected clothes and books donations for our retail shops.

PULFORD PUBLICITY

Pulford Publicity announced Lewis-Manning Hospice Care as their charity of the year! Having experience of family members being affected by cancer and following their visit to our ‘Candles on the Beach’ event, we are delighted that they have chosen to support our charity and it was a pleasure to invite Ben, Janine, Simon and Louis to the hospice.

STEWART’S PARTNERSHIP LAUNCH

Stewart’s Garden Centre, Christchurch and Broomhill centres, have kindly chosen Lewis-Manning as their charity of the year!

Grow some sunshine this summer!

This summer, GROW SOME SUNSHINE for Lewis-Manning with our sunflower seeds! Pop into your local Lewis-Manning shop OR Stewart’s Garden Centres to get yours! Share your pictures with us on social media using #growsomesunshine

TRUST SUPPORT

We would like to extend our heartfelt thanks to all of the generous Trusts and Foundations who have donated towards our hospice services this year, helping us with our mission to provide outstanding hospice care. We would like to say a special thanks to Walk the Walk, Going for Bust and Hospital Saturday Fund who have supported our Lymphoedema Clinic and The Access Foundation who have enabled us to expand our virtual service. Thank you also to The Valentine Charitable Trust and Talbot Village Trust for their commitment to the Hospice over the years.

We remain incredibly grateful for all of the support from our loyal donors; grants from Trusts and Foundations are a very important source of income for Lewis-Manning Hospice Care. Do you know a Trust or Foundation - or anyone connected with one - that might be able to support us?

Please let us know by emailing fundraising@lewis-manning.org.uk

THE BIG GIVE

In December, Lewis-Manning Hospice Care took part in the UK’s biggest match funded campaign: the Big Give Christmas Challenge, raising an incredible £30,985 for our Family Support and Bereavement Service. Thank you to everyone who gave so generously including The Pierrepont Trust, The Reed Foundation, MSP Capital Ltd, Renova Clinic, Startech and our fabulous individual donors and supporters for helping us exceed our target!

We will be taking part in the Big Give again in December 2024. Follow us on social media to find out when and how you can double your impact!

There are so many ways to get involved! SCAN THE QR CODE TO SEE ALL VOLUNTEER VACANCIES BEFRIENDERS & THERAPY AND MANY MORE!

Lewis-Manning Hospice Care provides extraordinary care to people living with a life-limiting illness and their loved ones, across East Dorset and Purbeck. PATIENT DRIVERS

A word from our charity partner

Care South is a not-for-profit charity and a leading provider of care homes, assisted living developments and care at home services across the south of England.

This is the second year of our partnership, and we are delighted to be supporting residents and clients in their care, and patients of ours, with opportunities to be part of superb events, help fundraise, raise awareness of our services – and have fun at the same time. From meeting celebrities, joining local community events, special Christmas wreath making workshops, sunflower growing competitions and much more, here are just two examples:

Looking back on last year, one of our highlights was welcoming Care South residents Hazel and Peter to An Audience with Kate Adie in September. They both got to speak with her and receive a signed copy of her book! Hazel said “I have loved every minute of tonight. Kate is someone I saw an alliance with as we both worked in male dominated environments. She was fantastic. I will remember this forever.”

We also loved having Care South involved in our Muddy Dog Dash! They had a lovely VIP viewing area for residents, families and team members, so they could enjoy watching the dogs and runners getting muddy, whilst staying warm and dry! “Many residents in our care used to own pets, and whilst they may no longer be able to care for their own, we make sure they are still able to enjoy seeing them by either coming to us or making a trip out to see them.”

If you, or someone you know would benefit from a little extra support in their own home, or moving into a care home, visit care-south.co.uk

Making a positive difference

Peter Harding Wealth Management (PHWM) an Appointed Representative of St. James’s Place Wealth Management, is proud to continue their support for Lewis Manning Hospice Care

In October last year, Clair Smith and Nancy Bushell from the Peter Harding team took part in two major challenges and raised a fabulous £512 for Lewis-Manning Hospice Care!

Peter commented, “It’s been great to hear about the impressive growth of the hospice’s services to the local communities that it serves to support patients and their families with life limiting illnesses.

“We are committed to continuing our support to Lewis-Manning, it’s important to us as a business and brilliant to know that it is making a positive difference to them, and we’re very proud to have been able to facilitate these funds via the St. James’s Place Wealth Management Charitable Foundation.”

About St. James’s Place Charitable Foundation

The St. James’s Place Charitable Foundation is an independent charity regulated by the Charity Commission and established in 1992 by St. James’s Place plc (SJP) to reflect the philanthropic interests of the business and the wider SJP community.

The St. James’s Place Charitable Foundation funds small and medium sized charities across the UK and overseas working with children who are disadvantaged physically, socially or economically. We also fund hospices, mental health charities and cancer support charities.

To find out more about Foundation head to our website www.sjpfoundation.co.uk

Registered Charity No. 1144606