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QUARTERLY UPDATE

CARDIAC RISK in the YOUNG

CRY Patrons: Rob Andrew MBE, Jeremy Bates, Ian Botham OBE, Mark Cox MBE, Nick Gillingham MBE, Professor WJ McKenna, Sir Steve Redgrave CBE.

Winter 2001 - Issue 31


MEET OUR REPRESENTATIVES Divisional Representative for the South - Sally Reid As a mum who has not lost a child, how did I become involved with CRY and Fund Manager to the Lewis Marsh Memorial Fund? Lewis Marsh was a local lad who died in May 1998 three weeks before his 14th birthday. He had been a member of the football team that my husband managed for a few years before concentrating on tennis. My son also played in the team and I had met his parents Gill and Barry on the side of the football pitch at various times. When Lewis died it sent shock waves around the community. Sandhurst has over the years expanded from a village to a town, but the village atmosphere has remained and Lewis had touched many people in his young life, as he was active in so many diverse areas. My husband and I went to his funeral representing the local Boys Football Club and read about CRY on the order of service. I was horrified to read how common this was. I have three sports mad lads and I also work in the health arena. I felt so strongly that something should be done that I spoke to the boys club chairman to see if we could raise some money for CRY. We met with Alison and I realised that maybe we could actually set up a community-testing programme for our area. Gill and Barry gave us their blessing and the Lewis Marsh Fund was set up. Gill has since become a very active member of the fund and we have become close friends sharing the laughter, tears and frustration involved with making people realise how important this all is. We thought it would take us years to reach our target - how wrong we were! We kicked the fundraising off with a pre-season 11-a-side friendly tournament in Lewis's memory. The response was fantastic with over 90 teams competing and we raised just under £5,000. The tournament has now become an annual event. The support we have received from everyone who knew Lewis in some way has been unbelievable and we have now purchased three ECG machines - placing two in local surgeries which we can use for the testing programme and donating one to the cardiac unit at our local hospital. We have now carried out four screenings - the last one being a real challenge at the annual tournament. I was delighted to become Southern Representative for CRY. Due to my work I never miss an opportunity to raise awareness and will speak to anyone who is interested!! I can go on for hours about CRY! I have a great team of volunteers and two excellent nurses who carry out the testing. We hope to be able to continue testings as often as possible. We have picked up some positive results which St. George’s are following up. Like many involved with CRY, I believe the way forward is school screening and feel if the government would only recognise this problem with our young people, then we would not have to spend time and money working for ethical approval in all education authorities. I must just add that I also have a very supportive family - needless to say my lads have all been tested. They are also fervent supporters of CRY as is my husband and the families of the team.

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Winter 2001 NEWSLETTER by the Chief Executive CRY stormed into the new year with its busiest week to date and the fantastic news that Ian Botham OBE has agreed to be the Honorary President of CRY's Centre for Sports Cardiology. On Monday January 7 CRY's Chairman Dr Greg Whyte and myself were invited by Ian and Kathy Botham to visit them at their home. In spite of their very tight schedule, including departure the following day for Spain followed by Ian's tour to India and New Zealand, they found the time to take us out for a superb lunch to learn about CRY.

website were jammed for the rest of the week. A special thank you to Sheila Clarke who kept in contact with Lorraine Kelly updating her on CRY's development and our Patron Mark Cox who took the opportunity to mention CRY to presenter Andrew Castle when having an interview the previous week. As well as having our number displayed on the screen for most of the interview, CRY had a 24 hour hyperlink on the GMTV website - the fourth largest website for Television.

Ian first heard of CRY through Jay Lewin an old schoolfriend and now Assistant Manager of the Goldenstone Leisure Centre in Yeovil. The Centre started fundraising for an ECG machine in memory of Sarah Louise Williamson who died suddenly aged 7, in her father’s arms during a swimming session in the children's pool at the centre. Jay broke her golden rule not to take advantage of her friendship with Ian and asked him to accept Goldenstone’s cheque for £7000 for CRY - and Ian broke into his recent book tour to fulfil this request.

The Bucknell Family We are hugely grateful to the support of the Bucknell family in helping us raise awareness of Cardiac Risk in the Young in this way - giving the opportunity to highlight the incidence of young sudden cardiac death, information on how to pursue screening, and help to inform and reduce the isolation of bereaved families who have suffered from such a tragedy.

Ian and Kathy Botham On Wednesday January 9th, Lorraine Kelly had 6½ minutes on GMTV hearing from Keith Bucknell, accompanied by wife Debbie and daughter Jodie, about CRY and the sudden cardiac death of their son Jamie, 7 weeks earlier during an English class at school. Jamie had passed out twice before he died. The first time was in the swimming pool when it was "officially" decided he had hit his head, the second time he was taken into hospital and dismissed after tests.

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The immense courage of the Bucknell family in being able to discuss this so soon after Jamie's death in so public a forum, cannot be overstated. 6 million viewers learnt about CRY and our 3 telephone lines and

On Thursday January 10th CRY's Trustee Dr Sanjay Sharma was invited to be the "expert" explaining Long QT Syndrome on Channel 4's Richard and Judy show. This programme has a viewing audience of 2 million and was a prelude to the widely advertised programme Bitter Inheritance on Channel 2 later that evening. The story tracked the history of the Gorry "family curse" where 17 young members had mysteriously and suddenly died over a number of years, and in various parts of the world, with the diagnosis given as different causes - drowning, asthma, epilepsy, blood clots. It was not until Neil Halliday started compiling the family tree that he discovered the appalling catalogue of death and recognised that the family carried an undiagnosed genetic cardiac condition putting them horribly at risk. Special thanks to Andy Tait who gave the programme presenter information about CRY ensuring we were one of the nominated referral organisations for this programme which had a viewing audience of 3 million. Also to Doreen Harley who contacted Neil Halliday (a neighbour in North Wales) who has been learning from her about CRY and our aims.


As a result of all of this publicity between January 9th and 18th we had 2607 hits on our website, 700 phone calls (500 in 3 days!) and still the requests for information are pouring in. The fortitude of our indefatigable CRY team who covered the response manning our 3 lines in carefully organised relays had to be seen to be fully appreciated. Answering the phone non-stop for hours at a time takes a very special skill and our CRY staff had an abundance of it.

CRY's office was certainly a hot spot in January and in spite of the blast of arctic weather that hit us at the time, the tin roof on our building was positively steaming with endeavour! February is going to be busy too! Whickham School, a huge secondary school in Newcastle has chosen CRY for their School Charity week from February 4 - 8 in memory of student Paul Hindmarsh who died in 1999 during a Newcastle United Football match. This is the first time a school has dedicated an entire week of fundraising to CRY and it is being followed on February 21, 22, 23 by The Boat Club from University College London doing a 48 hour Rowathon raising money and awareness of CRY at Covent Garden. We have sent 25 red CRY T shirts for the ladies team and 25 black CRY T shirts (not so easy to spot in the middle of the night?) for the men so if you are in the London area any time in the 48 hours, "especially during those between midnight and breakfast", they would be delighted if you could pop by and say hello.

We are lucky indeed. I would just like to take this opportunity to say how often those who contact us have expressed their gratitude for the solace given by those people on "Talking Point" who so freely give of their time to talk to and support other bereaved families. My experience is that although there are times when a professional counsellor is undoubtedly able to help, usually families will want to just talk to someone else who has gone through a similar experience to themselves - and survived. Our "Talking Point" families offer a very special service where, having learnt how to cope with their own grief, they have found a way to give comfort to others.

Students at Whickham school

Finally I would like to conclude by saying that, unbelievably, I have just had my first experience of CRY nostalgia! I was recently contacted by BBC TV who were wanting to talk to Maureen and John Marshall about a programme including a profile on the sudden death of their son John. John was one of 16 elite "cream of the country" junior footballers elected to attend the FA John Marshall School of Excellence in Lilleshall. He died suddenly in 1995 at the end of his second year, on "caps" day just before he was due to join Everton, having been struggling with his fitness for sometime. It was John and Maureen who launched CRY's campaign with the national press in 1995 and campaigned with CRY for screening in football. Professor Bill McKenna and myself visited FA Chairman Keith Wiseman, Chief Executive Graham Kelly and Chief Executive of the Football Players Association Gordon Taylor, to talk to them about the importance of a screening programme in football. Although sadly the FA did not progress this with CRY they have incorporated it for all their YTS squads since John's tragic death. After John died the Marshall family went to live in South Africa for a time - it was great to hear that they have now resettled in Lancashire, talk about CRY's development, and share with them the incredible progress we have made - that their courage kick started just 6 years ago.

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JAN SMITH CRY`S ADMINISTRATOR REPORTS FROM CARDIOLOGICAL SCIENCES ST GEORGE`S HOSPITAL MEDICAL SCHOOL A warm welcome to the News section from St George's. We have a busy few months ahead with preparation work for some significant projects and I know that many of you are planning to run CRY community projects too. Your drive to raise awareness doesn't diminish and I hope we can help many of you achieve your goals this year. We rounded up last year with the Allan's Mobile Screening on 24th and 25th November. A big thank-you to Mandy and Denis for finding such a terrific venue for the team. The screening went well, and our thanks go to staff at the Newcastle Clinic for being so helpful and to the Allan family for their commitment to this project. We look forward to working with the Allan Family again, since we hear that a second screening might be in order. We hope so! For full details of the Allan's November 2001 screening, please see Steve's report. ECG Community Screenings CRY has also been invited back to Millfield School in Somerset and we will be there on 8th and 9th of May. We very much look forward to working with the pupils and staff of Millfield School in the spring 2002. We are making steady progress with our Programme for ECG Testing in Western Isles of Scotland. We have the amazing good fortune to be

working with a local person in the Western Isles, who happens to be the retiring Headmaster of the School in which Joanne Fotheringham was based. We could not hope to link in with a more appropriate person, and we are extremely grateful to Mr George Moody for his support and interest in this very special project. We intend to begin ECG testing in mid May, working over a period of 4-6 weeks with local, approved ECG Technicians.

New Equipment for the CRY Centre of Sports Cardiology - Cypress Portable Echo A forum was recently set up, primarily aimed at Echo Technicians who work with the Cypress Echo, which is a relatively new piece of portable scanning equipment. The Cypress Echo has excellent image quality and a multi-media capacity, which means that our Technicians will be able to e-mail Echo scans taken onsite to other doctors with similar systems. The equipment records the Echo scan onto video, hard drive and disk. Since its launch last June, over 1,000 units have been sold world-wide. It is now acknowledged by specialists to be the best portable Echo available and is comparable with larger Echo machines in terms of its ability to report, review and quantify findings. With financial support provided by the Lewis Marsh Memorial Fund CRY has been able to place an order for this new system. We hope that this equipment will be with us in March 2002. A sincere and heartfelt thank-you to all those who have given their time and support so generously to this project, particularly Gill Marsh and Sally Reid for their agreement to use accrued funding in this way. The Echo will be housed at the CRY Sports Cardiology Centre at the British Olympic Medical Centre. When not operating at our mobile screenings, the machine will be in use at the British Olympic Medical Centre. Full details of our Sports Cardiology Unit will be provided in the next issue. Sports Screenings A fast track screening was organised by our Chairman Dr Greg Whyte, in conjunction with the British Olympic Boxing Team at Crystal Palace National Stadium on Saturday, 8th December. Dr Sanjay Sharma, Dr Sam Firoozi and Lorna Carby were in attendance and screened the bulk of the team in record time some achievement with a 7.30am kick-off. We attended an LTA Screening in Bath on 11th December, which went ahead in spite of some severe delays with trains. With Monica Harries on ECG and Lorna Carby on ECHO, the team caught up and even completed the day a little early. The LTA are now reviewing their practice for all medical procedures and CRY will be part of their future plans. Although we will continue to visit Tennis centres around the country for the foreseeable future, The Lawn Tennis Association are in the process of reviewing medical procedures and CRY will be linking in to provide cardiac screenings at two major centres and players will effectively come to us. The new format for LTA screenings is scheduled to be in place for September 2002. Donation of CRY ECG Machines

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Four surgeries in Norfolk are now up and running with their new CRY ECG machines. Machines have been placed with Dr PJ Strickland and Partners in Dereham, Dr Hughes and Partners at Mattishall, Dr Kelly and Partners at Reepham, and Dr Brisley and Partners at the Taverham Surgery. All Practice Managers have confirmed that the machines were put to immediate use after the training session, and that they have proved invaluable when dealing with patients outside the surgery.


Upcoming Family Mobile Cardiac Screenings Maralyn and Kenny Bowen's Mobile Screening is now finally scheduled for 16th and 17th March 2002. The team will comprise Sam Firoozi, our Cardiologist and David Oxborough and Adele Doherty as our ECHO/ECG team. Steve Cox will be managing the event. Maralyn will reserve three places for emergencies. If you know of someone who is interested in attending, would you please forward his or her details onto me in the first instance. This way the family is protected from potentially awkward situations with persistent callers. Our next family screening is with Irene Wickers and Granville Staff in Darwen, Lancashire. We're aiming to be with them on 8th of June - for the first of our double ECHO screenings. More on this a few paragraphs down. The Lamb family in Newcastle has also expressed an interest in holding a Screening in September, so we will be looking to finalise details with them shortly. Kate and Robi Fox have also confirmed their interest in holding a screening in Suffolk - date to be agreed. They deferred their donation of an ECG machine to 16th January, and had a wonderful reception from the Framfield Surgery where the machine has been placed. Two photographers were present, and we hope to have a picture for you for the next issue. A sincere thank you goes to Kate and Robi and all their supporters - word of their hard work even reached the House of Commons! For future information, CRY will be looking at operating mobile screenings in one day, wherever possible, with the use of Two Echocardiograms and Two Echo Technicians. As you know, the number of supportive technicians linking in with CRY is growing, but we are very much aware that those who support our screenings usually work full time, often in very demanding environments. It's essential that people working in this field have time to recoup at the end of a week, hence our desire to operate screenings during a weekday rather than a weekend. We will still operate a full screening, but complete all procedures on the Saturday with our Technical team and Doctor leaving for home. CRY staff will remain on if the return journey is too far to complete at the end of the day. We hope this method will allow us greater flexibility for fitting in family screenings, it won't be so difficult to find venues, and most importantly, we can undertake more cardiac screenings during the year. When booking for a screening, we will confirm whether your event will be a one day or two-day event. New Fundraising Projects for CRY Families - Defibrillators An additional Fundraising Project is now available through CRY. Some of you have expressed an interest in fundraising for a Defibrillator, and we have located a lightweight, yet very robust unit with a solid reputation for performance. Housed in a small backpack, the equipment weighs about 4 kilos and is very easy to transport. It has both audible and visual instruction signals, so the operator will be able to use the machine in both noisy and poorly lit situations. The machines have a five-year warranty, and anyone undertaking responsibility for this equipment will be trained. The machine will require a weekly test in order to keep it in good working order. CRY's charge for these units is £3,600 - which includes your 25% contribution. Our aim is to provide CRY families with a number of fundraising projects, which will suit everyone's financial range. Defibrillators can be offered to gyms and leisure centres, sports clubs and weekend league sporting groups, such as football and rugby teams. For further details please contact me on Tel No 020 8 725 5098 and I will forward paperwork accordingly. We have also asked our Cardiac team for their final thoughts on two other pieces of very useful, but less expensive medical equipment. Once we have their input, I will notify you of these further choices. In St. George’s Any CRY Marathon Runners, who are seeking cardiac screening, should contact me no later than Friday, 15th March in order to ensure your screening appointment is met. We have been securing information space wherever appropriate in the Hospital, and are moving through the various cardiac units, now trying for information board space up in the Gym and Library. We aim to take an information pack further afield in early June to two further groups who would value knowing about CRY. Dr Sanjay Sharma now Consultant Cardiologist at Lewisham University Hospital, has also just gained his M.D …….with a Distinction (but of course!). Congratulations to Sanjay, who continues to work at a spectacular pace. Dr Sharma has been able to accommodate referrals coming through as a result of the GMTV programme. Anybody seeking information on referrals, please contact me here at St George's. Finally, some personal news from our Dr Sam Firoozi. Sam and his wife Sahrin, became parents in the early hours of 16th January 2002. Little Shahab made his entrance into the world a few weeks early, which was a bit of a surprise to his parents. Both are well, thriving and back at home. Shahab means "shooting star" and his Mum and Dad feel it's a truly fitting name for such a beautiful boy. We send our love and good wishes to Sam and his family at this very happy time. I will be away in mid February, for an annual break, and will report back in for our next issue. In the meantime, please don't hesitate to contact me if you any queries regarding our clinical procedures, or CRY local community projects. With all good wishes, Jan.

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REPORT FROM STEVE COX New General Leaflet A major project that has been on the backburner has been the finalising of our new flier. We have waited until we could officially announce Ian Botham before we did a big run. Hence some of the delays you may have experienced in their arrival. With the new demand created by GMTV and a number of upcoming events, we needed to put something in place quite swiftly and hope you are all pleased with the new format. To help cut down on time spent in update the different posters/fliers/leaflets we have incorporated our aims, and achievements, screening information, information on Sudden Cardiac Death, as well as our patrons onto the one flier. This will save hugely on the cost of printing 1 flier instead of sending out 4 different leaflets, as well as administration etc. It is very difficult to keep the balance between constantly updating the literature with lots of small print jobs in the CRY office (this keeps costs down by utilising our printer and minimising the wastage of outdated materials) and doing a large run which saves significant amounts of time and money when there is no wastage. On this occasion we have printed 10,000 fliers in colour. A large run like this significantly brings down the costs, to less than we were previously charged for black and white. We hope you like the new flier and please call us if you would like a batch sent out to you. CRY can also supply flier presenters if you know of a place/ reception desk etc, where this batch could be placed. Gift Aid If you can, please use gift aid. We will not ask any more than address, signature, date and home address and this will donate an additional 28% to CRY. Help us make your donation go further. If you pay income tax or capital gains equal to the tax reclaimed by CRY on the donation you are eligible. This declaration means we can reclaim the tax on a donation you have already paid (income/capital gains) tax on. CRY Website Search Engines

Updating the Web

If you have typed in any particular search phrase which you would expect us to rate highly on - and we don’t - please contact the office and we will make the necessary adjustments.

Dave Gregory has been busy submitting our site to a number of health sites. If you find a website which does not mention CRY, please send the details into the office. Alternatively you could contact them yourselves asking them to visit our website and to list us. One area this is of particular importance to CRY is in those hospitals which are aware and supportive of CRY’s work.

Accessing the Web Please inform us if you have any problems accessing the web.

London Marathon 2002 After our most successful year to date at the attached to their hearts, deciding to take them once London Marathon, we are well on our way to having again on the 26.2 mile excursion!!!! a team of well over 100 runners again this year. We look forward to seeing the heart costumes on the All 16 heart costume places are booked, and all the day with a number of runners including Caroline golden bond places filled, so we look forward to a Gard, Mark Orchard, Neil Ditch, Terry Brokenshire, successful a year as last year. and Mat Wilson from last year, growing rather CRY Brochure Over the past year there have been a considerable amount of changes to the Brochure with medical information being updated by our CRY cardiologists, new articles, updated CRY representatives information. Please give us a call if you would like to have an updated version sent through to you. This includes a new front cover which can double for a CRY general poster as well. We hope you feel it portrays the message that CRY is seeking to promote, in the importance of screening, as well as the nature of the conditions.

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Please give us a call if you would like to have an updated version of the CRY brochure sent through to you.


SUDDEN UNIDENTIFIED DEATH AND THE PATHOLOGIST I am a consultant Histopatholgist and although most of my work involves diagnosis of disease in the living, I carry out some 200 post-mortem examinations every year. This week I have carried out several on young people under thirty years old. Three died in road crashes, another of a drug overdose. These are tragic but explicable, although no less painful for grieving parents. I have also seen several elderly men with massive heart attacks or perforated ulcers. These were unexpected but again the causes are something most non-medical people have heard of and can relate to. Once or twice a year I see previously fit young people who die suddenly with no apparent cause. These deaths are a difficult diagnostic challenge for us, and even more so since we know what a tragedy these events are for relatives and friends of the deceased. These cases are totally unlike the road crash victims or the heart attacks in which pathological findings are usually clear-cut. Sometimes there are features of a previously undiscovered cardiomyopathy or valvular heart disease but often the findings are minor or non-specific. This means that unnatural causes such as drugs and alcohol have to be looked for, even though they can usually be later discounted. This alone may be distressing for grieving relatives, especially when these investigations delay registration of death. But these have to be done so that we may confirm to the coroner and relatives that we looked for all possible causes of death, even though there was no other evidence to support such a possibility. Sometimes the parents wish to arrange even more complex investigations so that no stone is left unturned. There is a craving to seek an explanation, however remote. At the completion of the investigation there may be an inquest even though there is no evidence of an unnatural or suspicious cause of death. The inquest though seems to carry some kind of social stigma, linked to suspicion of foul play. Most inquests are nothing of the sort and designed only to establish cause of death and not to attribute blame. The atmosphere, though, is not helped by the rather formal, quasi-judicial nature of the proceedings and the presence of the press. Maybe a more informal atmosphere of someone's office would be more appropriate for this type of case rather than a courtroom. I find these deaths professionally unsatisfactory even though I know that I have done my best to establish the cause. It is hard to attend an inquest and basically to admit to failure. Families long to be told that their loved one died of a specific illness and not an unspecified or ill-defined entity such a sudden death syndrome, even though it amounts to a "natural" cause of death. There is often a feeling that something was missed in the past, that trivial symptoms had been ignored or that something could have prevented the death. I attempt to allay these fears, especially when I can find very little that could reasonably have been predicted during life. I try to translate difficult medical concepts into simple layman's terms and give the relatives plenty of opportunity to interrupt and ask questions. It can be difficult to maintain a balance between over-simplification without being patronising, and medical accuracy although sometimes the relatives know more than I do especially those that use the Internet! In many respects our job has been made more difficult by the restrictions placed upon us since the Alder Hey scandal. In the recent past it was considered good practice to retain whole organs so that second opinions or further tests could be carried out. Few pathologists now do this for fear of retribution. This means that much important information about these deaths is now lost forever, but who can blame us? Some pathologists have been verbally abused, had their children bullied and have had to give up the profession following disclosure that organs or tissue had been retained. This is frustrating for us as a professional group but clearly public and political opinion is against us. This is despite the undoubted good that may come out of some of these post-mortems in terms of knowledge, public health, and future research and, not least, the benefit to the bereaved in coming to terms with a tragic loss. I hope this article has gone some way in helping families understand a little better the difficulties that we face with this type of death and the work that we do. Pathology has had some unwelcome publicity in the recent few years so it is nice to be able to redress the balance a little.

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My Daddy paints me rainbows

My Daddy paints me rainbows, The sunshine is His smile, He sits upon huge fluffy clouds To watch me all the while, The raindrops on my nose he sends To let me know he cares And that he'll always Love me, And forever will be there. He visits me most every night, To kiss me in my dreams, And gently holds me in my sleep And then, how close he seems, Thats how I know he's never gone, And there's no need to cry, For while he lives on in my heart He'll never, never die. Jacob & Rhys (with just a little help from Mum Ruby) penned this wonderful poem in memory of their beloved Daddy, Ellis. They would like to share it will any little people who have lost a Daddy like they have, and hope it helps to bring them comfort each time they read it. IF YOU WOULD LIKE A COPY PLEASE SEND AN SAE WITH YOUR REQUEST Printed with the kind permission of Ruby Adams


Although we do not have an interview from Julie this time we will look forward to hearing from her in the next update.

Christmas Disco in memory of Julian Wort Shirley Wort’s local soft play centre called 'Junction 21' offered her the use of their hall and disco for the children's Christmas Disco party. A great time was enjoyed by all the youngsters , some danced , some played others just wanted to see Father Christmas who was waiting in his Grotto. Another great evening, £172 was the grand total raised towards Julian’s Memorial Fund.

Jade Laws raised £55 in sponsorship at Weymouth’s ‘Water fest’ in memory of Laura Moss. Jade used to swim with Laura Sally Kibble and the students at Croydon High School held a Christmas event and raised £58 for CRY.

West Kirby Grammar School made the generous donation of £166 in memory of Laura Duff

The Emmbrook School in Wokingham held a Carol Concert and donated their proceeds to CRY in memory of James Cann who was a pupil at the school and where Stephanie, his mother, worked. Students at the Stroud High School in Gloucestershire donated £55.65 from monies raised during their Autumn Term.

In memory of Dominic O’Loughlin The Smith Family and Crossley Heath School in Halifax raised £395 on behalf of the Dominic O’Loughlin Memorial fund. A further cheque of £1000 we donated by Clifton Rangers Y.F.C. as part of the proceeds of the annual 6-aside football competition held in Dominic’s memory. Hipperholm G.S. sent in a cheque in Dominic’s memory.

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My London Marathon By Suzanne Pringle Hi my name is Suzanne and I am a Mother of two and this year I ran the London Marathon for the first time. Jill Marsh has asked me to write about my experience. I started my training on January 2nd. In the mornings, I would either go for a run or to the gym, which afterwards, put me in a good mood for the rest of the day. I don’t like the winter or the cold, coming from New Zealand, I still can’t get used to it, but I found the training helped me. Gradually my runs became longer and I found I had bags of energy. My friends kept following my progress and I must say I even surprised myself with my determination. March arrived, not a good month as I turned 40 and they cancelled the Reading half marathon, which I was going to use as a part of my training. My training eased off though I did manage to run at least twice a week. By the beginning of April I started to be really positive about the marathon. I decided to run for CRY. I have known Jill since my eldest son Daniel started Plus Three nursery four years ago. Both my sons will be encouraged to participate in sports so I heartily endorse the screening of children, as my own two will be screened at the age of 14. The day before the marathon, my husband and children went up to London Arena in Docklands to register my number and microchip. The microchip was attached to your shoe and timed your progress throughout specific stages of the marathon, it was really exciting and even my husband was excited. I didn’t sleep too well the night before, as I was so nervous. The day the marathon arrived, I was up at 05:OOam. By the time I had walked the dog, made lunches for everybody and consumed so many litres of water, I was ready. As we left for London we had planned on driving to Richmond to catch a train. But Jeff decided we should drive to Waterloo station, in order to catch a train direct to Maze Hill which was the starting point of the race. By this time I was still drinking lots of water. When we arrived at Maze Hill station there was so many people, runners of all ages and sizes. The walk or hike from the station to the starting area meant walking up a very steep hill which even then tired me out. I had been suffering from blisters, so at the exhibition at London Arena the day before, I picked up some spray. When we got to the top of Maze Hill, I gave my feet a good spray. There were thousands of runners including people who were dressed up in all sorts of different costumes. The atmosphere then was fantastic, everybody both was gearing themselves up, laughing and joking. After stripping down to my running clothes, I had to hand in my race bag to one of the many trucks that were by the starting point. Then it was big hugs and kisses to my husband and boys before proceeding to my start point, which was identified depending on my number. I started chatting to some of the girls around me. who were asking about my preparation and the longest I had run in training. I mumbled 12 miles two weeks ago, and then wondered what I had let myself in for. Suddenly we started walking and it was over 5 minutes before we crossed the start line. It was the best feeling ever. All along the route there were hundreds/thousands of people encouraging us all, it was very emotional. The pubs and bars had music playing. it was very much a party atmosphere. By mile 15 1 knew then that I could do it. I felt good and carried on. I didn’t know where I was heading for, so just followed the crowds. As I passed the 19-mile mark, I also passed Stephen Redgrave. He is very tall in real life. Nice body though! Bv mile 23, I had teamed up with another girl and decided to run the last few miles together. As the end drew near the miles seemed longer. Mile 25, we both made a dash for it. I crossed the finish line punching the air I had done it. I received my medal and had my photograph taken and also received numerous other things. All I wanted to do at that stage was to see my family. I borrowed someone’s mobile to contact Jeff, who was with me soon after. It was so emotional. Jeff and the boys were so proud of me. They didn’t get the chance to see me running, but still enjoyed themselves. My brother and family met up us soon after, it was great. The day after the run I couldn’t walk down the stairs, but by Tuesday I was feeling okay and Wednesday I went for a run. My running has since eased off since the marathon, although I am doing the BUPA great south run in October. My boys are also doing the junior run which is half a mile, so will have to get them out training with Jeff

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I know it is easy for me to say having run the marathon, but I believe anyone has a marathon in them. You don’t have to train everyday. It is a wonderful feeling to achieve by yourself, for yourself and no one can take it from you. So as you are reading this, you could be writing this next year. Go on! Go for it! What have you got to lose? You only gain.


Our Fundraisers

Ray Downton Charity Leg Waxing, 12 July 2000 Mrs C Power organised a Leg Waxing and raised a total of £567 for CRY. In June 2000 a sponsored swim was held by the Barclaycall Sports and Social Club for Screening in the North East. The successful event raised an incredible £1,250 recently sent in by Jo Cross. This cheque was accompanied by the proceeds of the Bowlam Lake card which once again sold well over Christmas. ‘On 8th September my dance group put on a show at the Theatre Royal, Margate to raise money for CRY. We did this in memory of my sister Therese who died suddenly on 9th April 1997. The theatre was packed and we had an audience of around 350. We had a cast of around 60, aged between 2 and 40. The numbers included tap, ballet, modern, and jazz routines to songs like Top Hat, Thriller, Let’s Face the Music and Dance, Cabaret, and pop songs. We had 2 vocalists as well. We also had a raffle, which was greatly supported. I aim to put on another charity event next year to mark Therese’s 21st Birthday and the 5th Anniversary of her death.’ Tara Field.

Therese

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Our Fundraisers CRY’s very own Manjula finished the Flora Light Fun Run for CRY - 2nd September 2001 ‘When Steve came back to the office after the Marathon and brought some leaflets about Flora Marathon Fun Run for Women, I was just toying with the idea of 'doing the marathon'. But what clinched the matter was when someone looked at me in a mocking sort of way and said 'Yes, I'm sure you can do it'. I decided that I was going to do it and prove it to them and myself that I could. So I filled the application form and sent off the £12. Then it was a matter of training. The first time I walked more than my usual evening walk 'round the block' I thought 'What have I landed myself in for!' But as time progressed, and I walked more and more, slowly my confidence built up, especially with encouragement from my husband. By the time September 2 was drawing nearer, I was nearly sure about the walk but then, other fears started creeping up - like being, jostled, pushed aside, even trampled on! How wrong I was. Though there were 20,000 of us there everyone behaved perfectly. And I must say it was an enjoyable experience in every way. Even with a bit of jostling and rough overtaking, I finished quite comfortably and the sense of achievement was great! Not only did I walk for my own health, I walked for 'CRY' and managed to collect a grand(!) sum of £115 on the way. So who knows, I might even do it again next year!’ Manjula Radia

At the request of the ‘Worshipful Master’ W Bro. Dennis Beer, the Pilgrims’ Way Lodge donated £250

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Christine Evans, Teresa and Pat fundraised at their hairdressing salon in Ockley, Surrey, for various charities by selling second hand clothing brought in When Chad Loveday died last by their clients. They retain 80% of the year, Debbie Loveday asked for sale for their chosen charity and give donations to be made inplace of 20% back to their client. flowers, which raised near- CRY was one of the chosen Last year they chose CRY ly £100 for CRY. charities at the Ingham and donated £100. Infirmarys’ staff re-union and received a cheque for Sarah Broadley, The RAG £150 Mark Cox donated £250 havchair of the University of ing received this from the For a number of Surrey Students’ Union send in years, Walton-on- Bromley Lawn Tennis and a cheque for £370 after they Naze Rowing Club Squash Rackets Club for chose to fundraise for CRY. have donated £100 opening their centre. The friends and family and work col- to CRY leagues at Black and Decker The Charities Committee of NM Maltby, Bingham & Brown (Sheffield Castle Rothschild & Sons Ltd agreed to Market) and Midland Mainline (Sheffield) of support CRY and donated £750. Jason Howell, who himself has The Hull University Althletic Hypertophic Cardiomyopathy, The Kirkbymoorside helped to raise £250 when Jason Union kindly donated £189.39. Town Brass Band at had his The Hampshire County hair the Charity Millennium Council nominated CRY shaved off. Concert at Pickering Castle on 1st July as their charity and 2000 donated £200 to CRY. There were donated £276.78 seven bands in total which took an A group of friends equal share of the £1,400 profit made to entertaining and singing to elderly residents donate to their chosen charity. were invited to give a donation to a chosen charity CRY was selected as the husband and daughter of Claire Fivash both have had ICD devices fitted within the last 12 months. £150 was donated on behalf of the ‘Robins’ singing group.


Our Fundraisers

Dance at the Methil Com Ed Centre in memory of Andy Tait On the 20th October a dance was held in memory of Andy Tait at the Methil Com Ed Centre’s Sequence Dance Club and raised £300 for Andy Tait’s memorial fund. Andy died at the the age of 26. At post mortem the cause of his death was Hypertrophic Cadiomyopathy. He was a serving Police Officer with Fife Constabulary and was extremely fit. He played football from his early years at primary school which was carried on at secondary school. He was a very good golfer and he combined this activity with playing juvenile football with various clubs in the Glenrothes (Fife) area. He was also a keen runner and upon joining the Police in 1974 he continued with soccer and took up weight training.

Carol Wood (in a CRY T shirt in the centre) and two friends participated in the Great North Walk. It was a lovely fine day with fantastic company and she raised £200 for the David Cross Memorial Fund.

Walker Roast advertising donated £100 in memory of David James Bruce of Layer Breton Colchester who was a very popular member of their staff and is sadly missed.

St. Mary the Virgin, Farleigh in Surrey made a generous donation of £100 as part of their congregation’s charitable giving at Christmas

Helen Stanbra ran the Robin Hood Marathon and raised with her running partner £500 for CRY Mr Myers of the The Elizabeth Masonic Lodge No Ms Cathy Bakewell MBE, for7262 donatwarded a generous donation of ed £155.78 £132 from the Liberal Democrat to CRY Group on the County Council instead of sending each other Ben Cooper Christmas Cards this year. from Sheffield ran the Nottingham half marathon and raised £144.50 13


Our Fundraisers In memory of Stephen Lamb Each year the Throckley Carpet Bowls Club choose a charity or group which benefit children and young people, to donate money to at their Charity Carpet Bowls Competition. This year they raised £300 from entry fees and a Grand Raffle which is held on the day of the Competition in October. A number of members of the Northumberland Carpet Bowls Association knew about CRY’s work in screening young people and from this they chose to support the Stephen Lamb Memorial Fund. The club is made up of 30+ members aged between 9-82 years. They play carpet bowls each Monday evening and some also on Thursday evening. At present the club is top of the local league, (which they are rather proud of). They hold three competitions a year, which attracts entries from the Newcastle and Northumberland areas. On the 5th of November CRY received a number of cheques totalling £5,300 for Stephen’s fund. This included £250 from Dudley Masonic Lodge and £5050 from all Stephen’s family, friends, neighbours and the generous people of Northumberland

In memory of Neil Wickers and David Staff Darwen Catholic Club at Wellington Fold, Darwen, held an event and raised £113 Mr Clifford Davis donated £100 instead of Christmas presents this year. Mr Raymond Langford made a generous donation of £100 to Neil and David’s memorial fund after reading an article about in the local paper. He lives in Canada now but lived in Darwen before hand and £80 was raised Mr Kevin Smith still receives the local We at the Ineos Sports and Social Club paper weekly. are not ?!$!?~# apples, cherThe heart costumes ries or tomatoes, we’re hearts

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made their first appearance at this year’s Great North Run with Granville Staff, Gillian Haddow (David’s cousin) and Ken Sibbering (David’s Uncle) raising awareness of a good healthy diet of apples, cherries and tomatoes. Together they raised over £200.


Our Fundraisers

Broadways Charity football match in memory of Ian Strange The Broadways Memorial Charity Football Match was held once again this year and a wonderful day was enjoyed by all. Caroline Gard (CRY’s Divisional Rep for the East) kindly attended and gave a wonderful, rousing talk listing the aims of CRY. £351 was raised for Ian’s memorial fund. Derek the DJ

Waiting for the balloons

Ian’s Dad presenting the prizes

Caroline giving a CRY speech

Fancy Dress Disco in memory of Stewart Howard Two clubber

Oops upside your head

Where’s Harry Potter

Alright for drinks

Group photo

Committee members organised a fancy dress disco and raised an icredible £626 for Stewart Howard’s Memorial Fund.

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Our Fundraisers Charity Night in memory of Ian Bowen at the Pig and Whistle A charity night in the Pig and Whistle organised by the Manager Paul Wood. The group was called Soul Survivior.

Soul survivor

It was a great night even though a few people had headaches the next morning. I wonder why? £500 was raised in total on the night.

Great North Runners in memory of Nigel Edgar On Saturday 15th September 2001 Dawn and Scott Hubbocks completed the Junior Great North Run. They are seen here at the Gateshead International Stadium with their medals. Fiona and Mike are seen making their way towards the baggage buses at South Shields after completing the Great North Run from Newcastle to South Shields the day after. In all on completing their respective races, the Hubbocks household raised an incredible £557 towards Amanda Edgar’s Counselling Course fees.

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Amanda is looking to complete the course after her husband Nigel died suddenly in his sleep on the 18th August 1998. Many apologies for our mistake in the last brochure for mixing up Ken Byrne and Nigel Edgar.


Jay Lewin, having been a school friend of Ian’s during their time at Buckler’s Mead, asked if he could accept the cheque.

Sarah Louise Williamson died suddenly from “natural causes” during a swimming lesson at the centre nearly three years ago, after which the pool’s lifeguards decided to turn the tragedy into positive action by raising enough money to buy an ECG machine in her memory.

Ian Botham received a cheque for £7,000 from staff at the Goldenstones Pools and Leisure Centre on behalf of CRY. Fundraising events included an auction of promises, sponsored swim, face painting at local fetes and runners at the London Marathon.

In memory of Sarah Louise Williamson

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IN MEMORY OF PHILIP BARLOW Philip Barlow was an exceptional person. Everyone that met him wanted and became his friend because he seemed to have that inner 'sparkle/magic' that only a few people seem to have. He was kind, thoughtful, loving and a 'gentle-man'. Phil listened to everyone's troubles and niggly problems and if he could help in any way, he would be the first there to lend a hand - and he was also a good cook! No wonder I snapped him up quick and married him! In the few years we were together I never heard him criticise anyone or put anyone down, he just seemed to love everyone for what they were and accept people without judgement. But he was not a pushover or weak man. When things got tough, he spoke his mind and was strong in his beliefs and opinions, although very open minded and approachable. Phil's funeral was attended by over 250 people, family, friends, work colleagues, gathered from all over the world, who came to say their last farewells. We had 7 funeral cars which a close friend had organised because he said, we want everyone who sees this funeral procession to know that today we are burying a very special person - not monied, powerful or titled but a very much loved, dear friend - our Phil. Just before the funeral I spoke to our vicar, the Reverend Rob Bebb (who had married us so shortly before and had become a friend - he was a 'Star-Trekie' fan and we had brought him a 'Star-Trek' tee-shirt back from our honeymoon, which he loved and always seemed to be wearing every time we saw him!). I said "you know, I feel like I shouldn't say this to you of all people, but I think that someone up there has made a mistake in taking Phil from this world when we need such a loving man down here". The Reverend Bebb replied "you know, and I, of all people shouldn't say this - but I think you're right". Being a very modest man, Phil would be very embarrassed to have all this fuss made about him. He will be very sadly missed, but will always be in our thoughts and very happy memories. Phil and Dave Long (past London Marathon winner) organsied and set up the Coventry City London Supporters Club CCLSC when Phil lived in London. SInce his death Dave has set up a player of the year trophy called the Phil Barlow Player of the Year Season Trophy’ Phil with Dave Long

For the past few years all our friends and family had attended a Black Tie' do every Christmas and my late husband, Phil, was its Founder Member. His idea being that everyone has a party at Christmas or New Year, so lets have one big party with family and friends at one venue, i.e. our local Conservative Club and there's no stress and no washing up!!! So, without hesitation, after his sudden death in July 1998, the following December 'Black tie' do was dedicated to his memory and CRY the charity chosen, to which £1,060 was raised by raffles and donations on the night. The following year £1,500 was raised and we have organised fundraising walks, dinner dances etc. ever since and over £6,000 has now been raised for CRY.

Richard Shaw left (player of the year), Brian Richardson (with trophy) (Chairman of CCFC), to his right Rod Dean (Chairman CCLSC) and many friends

Phil loved children, although he had none himself, and they adored him. He was an avid sports fan, so CRY was the ideal charity for us to choose, for family and friends to be a part of and donate to. CRY is tireless in their pursuit of early screening for all children to detect any heart problems, especially Cardiomyopathy. Phil died of hypertrophic obstructive cardiomyopathy; it took the Pathologist almost ten days to find out what had caused his sudden death.

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It goes without saying that this was a huge shock to me and his family and friends because Phil was always very active and fit. He regularly swam up to First Black Tie do 60 lengths a day, played badminton and we would ride our bikes nearly every weekend together with friends. Phil loved sport of any kind but especially football. He had trials for Coventry City when he was a teenager and could have had the opportunity to play for them, but he Phil with was persuaded to go to University instead by his father. He became a teacher for a while, and later his granddaughter (also called backpacked around the world, finally settled in London. Then he moved to Merseyside, started to Molly support Tranmere Rovers FC and we met on a blind date arranged by mutual friends.


IN MEMORY OF PHILIP BARLOW 27.5.95 Wedding Day Mollie’s mum Charlotte on left, Phils mum Kath on right

It was love at first sight and we were married exactly a year to the day we met. Second marriage for me, first for Phil, we were both 42 and finally we'd found our soul mates. We were inseparable and our combined social lives were a little hectic to say the least! We enjoyed and loved life and each other to the full. It was as if fate was telling us to do everything we could together now because time was short. We only had 4 years together. I felt like the world had stopped and the light had been turned off. I ate, breathed and slept Phil. He was more than my life. He was my strength and spirit.

We had so many future plans and now they were all gone, suddenly there was no purpose to anything anymore. Just going through the motions of day to day existence. Family and friends were exceptional and I was never left alone for almost two years and I can never thank them enough for all they have done for me. I feel like I am only now, 3 years later, coming out of a very deep black hole. Phil had shown no signs or symptoms of being ill and if only, as CRY so strongly suggest, he had been screened earlier, may be all the heartache we have suffered at his loss could have been avoided. No other family and friends need go through what we have been through. Phil would have been proud to have supported CRY. Natalie ‘Molly’ Barlow

Bet honoured at 'Top Table' in memory of Phil Barlow CRY was the benefactor when an old bet was honoured in Coventry at my wedding to Allan Lawson. In his wedding speech Allan explained about a bet that had been made between his best man, Gary Hogg, and himself, a long time before. Being single 'squaddies' out in Germany they were, shall we say, cynical about love! The bet was that IF one of them was stupid enough to get married, that they would hand over 1,000 German Marks (£320.00 in sterling) to the other, at the top table. Allan, a proud Scotsman, found it very painful to hand over the 1,000 DM's especially after seeing the satisfied look on Gary's face. It became easier to bear when Gary stated that he wasn't going to 'drink it' but that he'd donate it to charity. No hesitation was required by anyone on the top table - it had to go to 'CRY'. Thank you to Gary and Allan for the donation. We did have a lovely wedding day. There was one person missing though, my Uncle Phil. Hopefully with more donations like this it could stop Once upon a bet..... Long, long ago in the far away land of Germany, two young soldiers sat putother premature and tragic deaths like his. ting the world to right's over a few drinks. Joanne Lawson (nee Barlow)

'CRY's COVENTRY DINNER DANCE My sister Joanne and myself, Natalie, knew that we wanted to do some sort of fund raising event after the death of my Uncle Phil. We quickly talked my Mum & Dad (Richard & Mavis) to get involved and soon we were organising a 'Dinner Dance' for 120 people!

The subject of women came up. This was no ordinary conversation and it evolved into a discussion that neither of the two soldiers would ever get married and if they ever gave up their carefree 'singley' life, that would be it! As both felt so strong a bet was agreed. Conditions were simple: 1.A sum of 1,000 DM's was the stake 2.If either of the two got married, the other would be the Best Man 3.On the Wedding Day a 1,000 DM note would be presented to the winner at the Top Table This was many years ago, now it's time, the bet is due! I, Allan Lawson hereby pay Gary Hogg, 1,000 DM's Dated: 18/8/00

It wasn't easy, there was a lot of sleepless nights (mainly by Mum!) worrying that we wouldn't sell the tickets and a lot of phoning and begging for prizes for the raffle. But the night came off and it was a roaring success. Everyone had a great time and the dancing went on till late in the night. The best news was, with money from the tickets, raffle and some extra money from Barclays Bank & AXA Sun Life, we had raised over £3,000 for CRY - a massive achievement! A lot of people asked us when the next one was so you never know….. One word of warning though (and this is no criticism of CRY), if you do take on a fund raising initiative for a particular appeal, make sure you ring fence your efforts BEFORE the event (we learnt the hard way!). Natalie Barlow

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In memory of Andy Gard Andy Gard died suddenly 2 days before his 18th Birthday on 27th July 1997.

Essex Chamber of Commerce donated £250

Over the past five years there has been incredible support from the Frinton Community, holding many local events including their repeatedly successful quiz nights.

Frinton Quiz night Cheers Allan!

Jo, Peter, Tom & Nick on their way to their 1st booby prize!

Colin handing out the papers - very serious!

Jenny and Colin, with one of their girls at the raffle table

The night raised £1400 for Andy’s memorial fund.

Clacton Police v Forest Gate

The event raised £900

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In memory of Robert Poyser Robert Poyser collapsed while cycling in Bewdley with his friends. The Post Mortem showed he was born with a heart condition which could have killed him at any time. I was thrilled when my brother-in-Law a firefighter on White Watch at Oldbury Fire Station rang and said that Neil Pentor a colleague on his watch who organised a Charity Golf Tournament each year had chosen CRY as this years recipient in memory of Robert. Oldbury’s White Watch held a Car Wash to raise money for the tournament prizes. It was held on the 7th September hosted by Dudley Golf Club. The day was thankfully dry and full of hilarity and of course good golf! I was invited to the evening presentation of prizes which was a real delight as I have never been kissed by so many different men! It was a wonderful evening full of Black Country humour and overwhelming generosity and I felt privileged to receive on CRY’s behalf and in memory of my son Robert Poyser such a magnificent cheque just a few days before what would have been his 21st Birthday. The donation has grown to the amazing cheque I now forward of £2930-00. Diane Tolley Neil Pentro just having presented the cheque to Diane

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In memory of Julian Wort

THE SPONSORED HEAD SHAVE August 19th 2001 The day started with 8 brave men (with hair) on a bright Sunday morning. My son-in-law Steve Rusbridge (owner of Badcox Barbers), was first in the chair, having had his hair dyed bright red the day before he was eager to be shorn!! Then the other seven took their turn in the chair, watched by family , friends and whoever was passing by the shop, plus plenty of coffee. FROME had eight bald men, all for the good of CRY. The event raised ÂŁ2,185 , Steve himself raised ÂŁ1,250.

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In memory of Julian Wort On November 29th 2001, two local ladies helped Shirley organise a prize Bingo for CRY, a great evening was enjoyed by all. Her daughter Debbie was the caller for the evening, Tea, Coffee, and Hot Mince Pies, were served in the interval, and also raffle a was held during the evening. £307 was raised on that evening. One lucky guy with Scooby Doo with Shirley’s Grand son (age 8) who won some eggs in the raffle

A sponsored walk was arranged for April but due to the Foot and Mouth restrictions it did not take place until October, but then Mrs Alice Lock and Mrs Ruth Brooks completed TEN miles! and raised £358. Weston Vinyl is a local factory where Julian worked for six years. His former colleagues from the Sports and Social club organised a Cabaret evening on Dec 1st, and donated all the Raffle money, totalling £292, from the evening, to CRY. The Frome and Warminster Round Table attended our local agriculture show and the profit of £100 for the Coconut Shy Stall was dontated to CRY.

The Raffle Table The booksellers at the Bingo Debbie the Bingo Caller (Shirley’s G/daughter)

A Prize Bingo raised £307 and an Adult Disco another Shirley (left), with her mum and nieces waiting for ‘Eyes Down’.

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In memory of Christian Thomas Christian died at the age of 15 from Hypertrophic Cardiomyopathy on 23rd October 2000. He collapsed while on his way back home to Creigiau, Cardiff and then died two hours later, despite efforts by a local nurse, ambulance crews and doctors to resuscitate him. Christian was a mountain bike enthusiast and the top scorer in his school’s rugby team. He died on the first day of the half term holiday. The Creigiau Girl Guides organised a sponsored skip in memory of Christian Thomas and raised £218 for Christian’s Memorial Fund. Ysgol Plasmawr in Fairwater, Cardiff have already raised £2,500 in his memory, this was presented to Maureen Ward, CRY’s Divisional Representative for South Wales, by Graham Henry, the Welsh Rugby Coach, a number of months ago. A concert was held at the Llanday Cathedral, including the Aber Valley Male Voice Choir, seen here under the famous Epstein Statue, and the school choir This money has been ringfenced to go towards funding a screening programme in Wales in the near future. Maureen with Graham Henry

Carole, his mother said, ‘If there was anything we could have done we would have done it because there is nothing worse than losing a child, so now we want to make other parents aware that this can happen. We also want to get involved in raising money for research. This way his death will not have been in vain.’

Aber Valley Male Voice Choir

The school choir in the Llanday Cathedral

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Graham Henry with Christian’s friends

Katie (Christian’s sister) who sang at the concert and her father


In memory of Andrew Ball Andrew Ball dropped dead at a football match at the age of 16. He was six foot tall, 12 stone and a great sportsman, enjoyed playing cricket, rugby and was a member of a Birmingham Boys League Football team. The Post Mortem showed he played soccer for five years with a severely abnormal heart. On 12th August 2001 the 5th Annual Kiddiminster Flat Green Bowling Competition raised an incredible £700 for the memorial fund of Roy and Gill Ball’s son Andrew. The day was the best weather wise and was the largest amount raised to date at the competition. Phil Sturman was the winner of the Singles and runner up John Head. The doubles was won by Phil Sturman and Steph Lokje, with the runners up Pete Hopkins and Andy Lancet. Thank you to the licensee’s Kath and Eddie Robinson and Julia and Alan the licencees daughter and son in law and everyone that attended their very special day at the Weary Traveller, Sutton Road, Kidderminster. A further special thanks to Lorraine Lokje (raffle) and Helen on the Bar-B-Q. Rob Smith gave a special donation of one hundred pounds. Roy and Gill’s son in law Tony Barker and daughter Julie Barker have also given huge support to Andrew’s Memorial Fund and the new licensees are continuing to support CRY. Other funds raised in Andy’s memory include £120 sent in by Roy and Gill from Collection Tins over the last 12 months and £100 from Kings Norton Masonic Lodge

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In memory of Leon Manners Leon Ashley Manners died at the age of 4 of a heart defect in July 1999. He used to get coughs and colds and get a bit chesty. He had been for a chest X-ray but nothing was picked up. On the 22nd of September Julie Hatton held a sale at the Beacon Public House in Middlesborough with a Tombola and Raffle The sale and raised £275.

In the bar 8 pool team members, Ian, Keith, Mick, Tony, Geoff, Dave, Steve,

and Neil held a 24 hour pool marathon from 12 noon Saturday until 12 noon on the Sunday. They raised £1343.50 in sponsorship money. Whilst that was going on in the

At last they made it 12 noon finish and all still looking bright eyed

I’m just pretending to sleep, honest

Caught falling asleep Geoff has been playing for 15 hours by this time

lounge Rockin Robin the Karioke host did a strip tease and raised £70 plus a few wolf whistles and screams. The cooks Diane and Marie did a fantastic job at making sure the pool team didn’t go hungry.

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In memory of Scott Jackson I ran the Great North Run in memory of my partner Scott Jackson who died suddenly on the 15th November 2000. Scott was a fit, healthy 32 year old who lived life to the full. He was a wonderful, loving, genuine person who had the gift of making people laugh. People remember Scott with a smile - he is greatly missed by everyone who had the privilege of knowing him. Preparing to run the Great North gave me something to focus on during an extremely difficult time running became my therapy. Scott’s family and I were overwhelmed by the support and encouragement received by everyone wanting to sponsor me and help raise money for CRY. It is a great comfort to know that the money raised will help support and hopefully prevent other families and friends having to suffer the pain of losing someone they love. Rachel Allan Rachel raised £2,582.80 in memory of Scott

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In memory of Ian Merchant

Ian was 22 when he died suddenly on the 25th September 1995, from what is believed to have been Wolf Parkinson White. Ian was a very bright, fun loving person, who achieved excellent results both at school and University finishing at Exeter with a first in Accountancy. He had finished his first year with Price Waterhouse while continuing his studies to become a Chartered Accountant. Ian had just become engaged and was due to be married the following March. Since 1997 the incredible amount of almost five thousand pounds has been raised in memory of Ian. This includes a huge amount of donations from Collection Boxes held in Dennis’ shop, with personal donations from his parents, Barbara and Dennis, generously rounding up the numbers, usually to the nearest 100. Some of their other huge donations include one from the Freemasons’ Grand Charity who donated £1500 to Ian’s fund, and the incredible efforts of Chris Mintern who raised over £1500 a number of years ago at the London Marathon.

What are we doing here?

I wonder if it’s too late to go home?

It was your idea!

I’m not sure I can do it

What are we looking for again?

OK. It’s not that difficult

Sally Mitchell of Hertfordshire and a team of CRY fundraisers did a parachute jump She jumped in memory of Ian and raised a wonderful I amount of £270.

think something is wrong!

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A Song from the Heart In memory of Lewis Marsh It was a great privilege to be invited to attend the show "A Song from the Heart" put on by The Guildford School of Acting in aid of The Lewis Marsh Memorial Fund. This raised a fantastic total of ÂŁ3,400. Lewis's beautiful sisters Sorrelle and Chevaun were star performers in the show which was a superb and very moving tribute to Lewis. I found it quite astonishing that these young people, many with so little experience, had such great presence and confidence on the stage putting on the most dazzling performances. The show was given a tremendous reception by the very supportive audience, many of whom were friends of the Marsh family.

The CRY music badge, in memory of Lewis, seemed to be on the lapel of every person who attended. It was a wonderful evening, thoroughly enjoyed by all those lucky enough to attend. Alison Cox Founder & Chief Executrive The South Berkshire Scout Group have donated the profits from the 2000 badge of ÂŁ900. They have been 30 incredibly supportive of CRY


ECG SCREENING #4 In memory of Lewis Marsh 1st & 2nd September Each year the local boys football club has organised what is known as The Lewis Marsh 11-a-side PreSeason Friendly Tournament. It covers teams from the ages of under 8 to under 17 (well actually this year the under 17's didn't come). It raises a fantastic amount for the fund and is a great weekend of fun and sport. I say this with double pride being a member of the club and also Fund Manager for the Lewis Marsh Fund. This year I took a deep breath and announced to the team of volunteers that we would hold an ECG testing session at the same time for the lads who were coming to the tournament! By the weekend of the tournament we had about 60 forms back and a few extra non-participants to test. I felt pretty disappointed but warned everyone that over the weekend we could get more. So there we were, about to have a bit of lunch before starting and suddenly outside the building we could see hordes of young footballers heading our way! The tournament was running early and they had had their rest period. We had been expecting two teams at that particular time - we got five - all with paperwork to be checked and lads to be tested. Well we really did spring into action. More teams followed and in three hours we tested about seventy youngsters. The efficiency of the team and the two nurses was pretty astounding! Kim was on 'stripping' duty - that is asking the boys to remove their shoes, tops and jewellery. She was so organised - folding their shirts and keeping little piles of belongings neat and tidy. After an hour of this the smell from the sweaty feet (they had been playing football remember!) and trainers began to take their toll and she turned a rather peculiar colour but she gallantly continued! The next day was slightly slower until about three o'clock when we let half of the team go as we felt we could cope with the few left to come. (when will we learn). The few increased to an extra twenty-five. Everyone agreed that it was a most rewarding weekend - we had chatted and reassured the lads and their parents and coaches. The lads all wanted to know two prominent things - was it a needle and would it hurt! Obviously they take in very little from the information sent out or listen to their parents! So what's new!! We also spent time speaking to so many people who wanted to know more about CRY and took the leaflets home with them. We had tested 120 young people. So far on our previous testing days we had not had any come back with a positive result. We felt in our hearts that this time we would not be so lucky - the youngsters came from such a wide area. We were right and sadly we did pick up some that needed a follow-up. But although I feel sadness for those youngsters and their families, I also feel relief that they have been picked up and perhaps another tragedy has been avoided. To the team - well done girls!! We learnt a lot and will probably change a few things for next time - yes there will always be a next time I hope! The tournament itself yet again a great success raising £5,000 - £3,000 of which will pay for the testings. The Sandhurst Boys Football Club raised £5,600 at their tournament in September 2000. We have purchased an ECG machine to donate to Frimley Park Hospital with this money. It is our local hospital and the cardiac consultant there is fully supportive of our work.

Sally with the Major of Sandhurst Peter North, and the Chairman of the Club Phil Sigley

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Mobile Screening in memory of Richard Allan The Allans held their first screening on the 24th and 25th of November in memory of their son Richard Allan. Many of those being screened were friends of Richard and have been incredibly supportive of thier fundraising since his death. We were pleased to meet Arlene Golightly, Richard’s Middle School Head Mistress, who has been an active group member from the start. On the Saturday morning an interview went out on the local radio highlighting the issues surrounding the screening. After an initial lost signal the piece went out on the 10 oclock morning news. Many thanks to all those who helped out over the weekend including Yvonne Hetherington (who helped John as a scribe) , Pam Bell, Janet Allan, Mandy’s sister who were a fantastic help, helping out John in the ECHO room - putting up with the tropical heat produced by the ECHO, and of course Denis and Mandy. Thank you also to the Newcastle Clinic and Guy Stephenson, an Osteopath & Dr who lost 2 close young relatives to Sudden Death, for volunteering their incredible facilities for the weekend. The CRY team for the weekend was John Pither on ECHO, Julia De Courcey on ECG, Dr Sam Firoozi (consultant), Tony and Steve. Once again the journey up took many hours longer than anticiapted but thanks to the receptionist for waiting after hours, the van arrived and the rooms were set up. ‘We all enjoyed the weekend..hard work getting all those young ones there on time...lovely to see the relief on their faces afterwards (they all knew Richard and had concerns about their own health).Everything went well to plan! Thanks to the CRY mobile team...dedicated people. Enjoyed the radio interview in the rain...some of our friends did hear it. We look forward to the next one and maybe getting some of the GP's and Specialists off their bums to come and observe!’ Denis and Mandy

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BULLETIN BOARD Zip Wires, High Ropes Courses and Raft Building - you can be taking part in all these exhilarating activities and more as part of a unique two-day residential adventure Challenge being promoted by CRY.

MOBILE PHONES - Recycle and donate to CRY We now raise money by recy-

CRY is currently looking for teams of eight people to take part in this nation wide Team Challenge which is taking place at cling old mobile phones. If you purpose-built Outward Bound centres set in idyllic locations across the UK. are in contact with a company

who is replacing their mobile Teams take on a variety of mental and physical challenges over a two-day phones, or simply have access to period which is designed to promote teamwork within an enjoyable outdoors a large number (more than 10), environment in the Lake district, North Wales or the Scottish Highlands. please contact the office and we

will help you dispose of them

No previous experience is needed as all training is provided and if your team while benefitting CRY. (Phones raises the minimum sponsorship level of £2,800 for CRY then all your team should include batteries and members get to take part for free!

chargers)

If you would like more information please contact the office.

Give as You Earn Before you embark on any commitment to project funding please call JAN SMITH If you make regular donations to for details of forms required to regulate CRY you may be interested in this. This should be a great timesaver, as donating through your payroll. This you need to check your information is enables you to make a pre tax donacorrect before proceeding. The definitive tion with a 10% bonus added by the government if made through ‘Give guide to CRY projects for ring fenced as you Earn’ funding is now available from Jan.

Blaze is an organisation best known for their Firewalking Experience. If you are interested in something completely differentlike learning how to walk barefoot across broken glass, experience being a fall guy or bodyguard or ‘simply’? surviving the call of the wild for 5 days and nights - you may finally have found the place to be. For more information on these events either contact the office or go to their website www.blazefirewalking.com. There are a number of different events on offer to those who are wishing to fundraise for CRY.

BLAZE E MAIL CONTACTS

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CRY head office - cry@c-r-y.org.uk Keeley Ashley - keeley@silentwhistle.co.uk Roy & Gill Ball - royandgillball@selcroftavenue.freeserve.co.uk Nigel & Jenny Cole - nigel1949@hotmail.com Jo & Charlie Cross - chascross@compuserve.com Caroline Gard - carolinegard@hotmail.com Alan & Gloria Moss - mosses@exite.co.uk Tim & Sylvia Salisbury - thesalisburys@cwctv.net Granville Staff (work) - granville.staff@darwen.deconorth.com Jan Smith - jsmith@sghms.ac.uk Adrian Woodhead - adrian@woodhead88.freeserve.co.uk Doreen Harley - doreenharley@btinternet.com Sally Reid - sally.reid@virgin.net

More and more people are using email as a fast and convenient way of communication. If you would like to be put on our CRY list, please email us with your details.


BULLETIN BOARD RING FENCED FUNDRAISING Please remember that unless you notify us and get the necessary documentation and confirmation from the office for “ring fenced” fundraising before you start a fundraising venture, all funds raised will be used for CRY Core Funding. Retrospective “ring fencing” is unfortunately just not possible. CRY cannot be responsible for any “ring fenced” fundraising unless it has been authorised. “Ring fenced” fundraising is for specific projects only. After the successful conclusion of the authorised project, fundraising will bedirected again to CRY Core Funding. Because of the appeal of certain projects, some will have a waiting list

CRY will be inviting all MP’s to a reception in the House of Commons on April 15th. Please lobby your MP, with information on CRY, to attend. Please give me a call

If you would like laminated colour copies of any of the pages in the brochure please or email me if you contact the office, stating quantity and have any suggestions which page. on how you would If you would like CRY to consider any item for Bulletin Board please fax details (including your item) through to Steve on 01737 363444 Please bear in mind when organising fundraisings that it would be brilliant if you could take photos of your great day. It would also be extremely useful if, when you write in to the office, that you clearly state how much was raised, and by whom.

like the content of your future fundraising pages to be laid out in the future. Regards Steve Cox

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Profile for Cardiac Risk in the Young

CRY Update Magazine - Issue 31  

CRY’s quarterly update magazine with news and information about the charity and our supporters. Registered Charity 1050845.

CRY Update Magazine - Issue 31  

CRY’s quarterly update magazine with news and information about the charity and our supporters. Registered Charity 1050845.