CRY Update Magazine - Issue 59

Cardiac Risk in the Young Update 59 September to December 2012 News and Events

• Raising Awareness • Our Fundraisers

Cardiac Risk in theYoung (CRY) Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk Visit our websites: www.c-r-y.org.uk • www.sads.org.uk Registered Charity No 1050845

CRY

update 59 September to December 2012

Contact the Editor

Inside Update 59

Mair Shepherd mair@c-r-y.org.uk

News from the Chief Executive

Page 4

Assistant Editor

Other CRY News

Page 10

Chief Executive

Newsletter from the Deputy Chief Executive

Page 11

Contributors

CRY Screening Report

Page 12

myheart News

Page 14

Report from the CRY Centre for Cardiac Pathology (CRY CCP)

Page 16

Research News

Page 17

Great North Run 2012

Page 19

CRY Durham Riverside Walk 2012

Page 24

Run to the Beat 2012

Page 27

CRY Parliamentary Reception 2012

Page 31

CRY Great Cake Bake 2012

Page 33

Our Fundraisers

Page 39

Raising Awareness in the Media

Page 82

Fundraising Events 2013

Page 91

Alison Cox MBE

Dr Steve Cox Deputy Chief Executive Jane Proudfoot Medical Secretary to Dr Mary Sheppard Rebecca Zouvani Fundraising Manager

Now on Twitter and Facebook

http://twitter.com/CRY_UK

www.facebook.com/CardiacRiskintheYoung

View the Update online: www.c-r-y.org.uk/cry_brochure.htm

This magazine is printed on chlorine-free paper taken from a sustainable source using vegetable-based inks.

Submission guidelines We only include activities in the ‘Our Fundraisers’ section that raise £100 or more. If you would like to supply a write-up or photos for any fundraising activities that you have taken part in, please email the editor at mair@c-r-y.org.uk Entries appear in the ‘Our Fundraisers’ section according to when CRY sends official receipt of monies raised.

Articles may only appear in the ‘Raising Awareness in the Media’ section if we have permission from the publishers to reproduce the article.

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

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Meet our County

Carl and Eunice Johnson County Representatives for South West London Our story starts on 29 November 2006; I was leading a conference for teaching assistants as part of my work in Hammersmith and Fulham Children’s Services. At lunch time my phone went and it was Eunice to say that her brother had suffered a major brain haemorrhage and was in intensive care.

That weekend we went to Liverpool to see him and decided that we would go again the week before Christmas as he was now out of intensive care but not out of danger by any means.

On the morning of 13 December Eunice and I set off for Liverpool again, just as Lisa was leaving with Seth, her 6-year-old boy, to drop him off at school on her way to work at Manna Christian Centre in Streatham. This was to be the last time we saw Lisa alive.

The next day we spent with Eunice’s brother and decided to go to evening visiting and then come straight home on the evening of 14 December.

We stopped for coffee on the Lisa with her boy Seth in 2004 M42 and would usually have phoned home to say we were on the way, but for some reason this time we didn’t.

We arrived home at about quarter to midnight and Gareth’s girlfriend greeted us and said that Gareth, our son, had gone to hospital with Lisa because she had collapsed or something – I can’t quite remember what she said now. Then Seth appeared in the hall and I thought “what is he doing up at this time of night?”. It still never occurred to us in a million years what had transpired that evening before we arrived.

At about midnight Gareth came back from the hospital obviously very distressed and said he had something to tell us. We went in to the front room and he sat down on a chair and said simply “Lisa died tonight”.

I can’t remember a lot about the next couple of hours but I remember being taken to the hospital by Gareth’s girlfriend’s dad. Eunice, Seth and I sat in the back with Seth in the middle for the next fifteen minutes or so till we reached the hospital. We went into A&E and this lovely doctor took us aside and explained that Lisa had been admitted having suffered what appeared to be a heart attack. She said they had tried for an hour to revive her but were so sorry there was nothing they could do. She was crying with us.

Representative

come back. Whatever, we now didn’t have our Lisa, Gareth didn’t have his sister and Seth didn’t have his mummy.

We went home that night in total trauma. Somehow we got through the night with Seth huddled in between us. He was only 6 years old and what sense could he make of what had happened?

What had happened that evening?

As we were driving home, Lisa had put Seth to bed at about half past eight and came down to share a beer with her brother. About nine o’clock, Seth called and Lisa went upstairs, spent about 15 minutes settling him, tucked him in, put his light out, went to her room next to his and dropped dead. The first thing Gareth knew was when he heard Seth shouting “Gareth, mummy is making a funny noise”. Gareth rushed upstairs to find Lisa on her bedroom floor. He put Seth in his room on the Playstation, phoned 999 and started CPR until the ambulance arrived about ten minutes later.

When the ambulance had taken Lisa he phoned his girlfriend to say what had happened and she and her dad came across. He took Gareth to the hospital to see Lisa but, of course, she was already dead when she left the house. This was when we arrived home from Liverpool …

The next two weeks included Christmas. Lisa had already got all of Seth’s presents so we ‘did’ Christmas while we waited for the funeral on 29 December. Our church was amazing as they cooked meals for us and generally kept us going when we couldn’t do things for ourselves. We were very fortunate, too, in having a fantastic coroner in Croydon who telephoned us personally the day after the autopsy to explain exactly how and why Lisa had died so suddenly.

We were put in touch with CRY immediately and fast tracked for a family screening in January 2007 at St. George’s Hospital in south London. We cannot praise the team enough. They were so understanding and supportive and helped us begin to make some kind of sense, if ever you can, of what had happened only a few weeks previously.

A priority for us was to secure Seth’s future. Lisa was a single mum so we went through the family court and by March had secured a residence order that gave us parental responsibility for Seth and security of care for him. So Eunice and I were parents again in our late 50s. The parents of Seth’s friends have been fantastic over the past 6 years – too many stories to tell – and they have helped us to rediscover ourselves as parents again by their warmth, kindness and friendship.

So much has happened over the past 6 years since Lisa died, so many changes and challenges, so much despair, and joy. Getting to know and work with the team at CRY has really helped us and we now feel very proud every time we represent this fantastic charity and help the amazing work that it does in working to prevent families having to go through the same trauma as we had to.

I cannot describe the trauma when Gareth uttered those words “Lisa died tonight”. I turned to Seth and repeated “Mummy’s dead”, I think to convince myself as much as tell him. The whole thing ripped through us like an emotional tornado, lifting us up and throwing us every which way. I just sat on the floor in the hall sobbing over and over again “This cannot be happening to us”.

This was nothing compared to the effect of being taken in to see Lisa on the table in the hospital room. I will never, ever forget the minutes we spent in that room. It might have been half an hour or less, I don’t know. She lay there so still, yet so alive, so still, yet clearly dead. I begged God to send my baby back, but He didn’t; or, as Eunice said some time afterwards, perhaps she didn’t want to

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Our family now – Carl, Eunice, Gareth and Seth 2012

CRY update • Issue 59 • 3

News

from the

Chief Executive Alison Cox MBE CRY Founder & Chief Executive

September

Tony Gately, brother of Boyzone singer Stephen Gately, released his debut single with 10% of profits to CRY 8 October Stephen Gately’s younger brother, Tony, released the charity song “He’s Still Around” to mark the third anniversary of Stephen’s tragic death. The single is a tribute to Stephen, with 10% of profits from sales being donated to CRY.

CRY has been inspiring work in Australia 10 September An organisation in Australia called Youth Heart Watch contacted us on Facebook to share this message: “Tonight is the night that we will hopefully start to break the silence about cardiac risk in our young, here in Australia. Parents will be presenting at our Federal Parliament in Canberra, and you will be with us. We will be sharing what you have achieved and showing them one of CRY’s videos. Showing our Politicians what CAN be done. Wish our parents luck and thank you for your tremendous work.”

October 152 people took part in the 3rd CRY Durham Riverside Walk 6 October Congratulations and thank you to the 152 participants (plus dogs in CRY T-shirts!) who took part in the 3rd CRY Durham Riverside Walk on Saturday 6 October 2012. The numbers taking part this year were slightly above those of 2011, thanks to the efforts of our supporters who actively promoted the event.

For more details and pictures of the event see the CRY Durham Riverside Walk article or visit www.c-r-y.org.uk/durham_walk_2012.htm

Dad of three Tony (aged 30) was left devastated when his older brother, Boyzone star Stephen Gately, died suddenly from a previously undiagnosed heart condition on 10 October 2009.

Tony says; “As is so often the case when a young person dies suddenly, our family was left with so many unanswered questions.

Why did Stephen die, how did he die? None of us could believe that the heart of someone so seemingly fit and healthy could just stop beating.”

For more information and details on how to download the single please visit www.c-r-y.org.uk/hes_still_around.htm

CRY Representative for the West Midlands Pete Teale represented CRY with his daughter Meghan at the Bayer Dinner during the Conservative Party Conference 8 October I asked CRY Representative Peter Teale and his daughter Meghan to represent CRY at the Bayer Dinner during the Conservative Party Conference as I was unable to attend.

Peter said “We were welcomed by representatives from Bayer and they were all very interested in what CRY stands for and also our story after losing our daughter Zoe. I guess with having two people with a story helped break the ice and got their attention from the off.

We were treated to a lovely meal, where the guest speaker from the British Medical Journal spoke whilst we were eating. His main concern was the changes to the NHS that were being discussed.

We were joined by leading people from other charities like Cancer Research, Bowel Cancer UK, Heart Research, Alzheimer’s UK, Diabetes UK as well as representatives of General Practitioners.

We must admit words were used that we were not familiar with, as these people had better understandings of the changes planned.

The representative of the GPs was very outspoken about charities, saying they should not play a part in influencing GPs

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News and that they were a hindrance to GPs. That really upset the representatives from the charities and exchanges took place - I think she regretted saying this.

Just when we thought the whole evening was going to be a waste of time - and what was I going to tell Alison - my time came. The lady from Diabetes UK asked me, as a parent, how I thought the NHS should be run and what my thoughts were.

“Here goes”, I thought. I gave my personal reasons, what I thought of the NHS; I firmly believe that this is a national institution and if run properly it should be able to cater for all, and if you pay in then you should get treatment when you need it. That got me on to how families who lose children should have the opportunity to see Professor Sharma and his team - these people have the knowledge and expertise to detect possible abnormalities in remaining family members. Local cardiologists don’t have this and are risking more lives. I gave the example of my wife’s family who were seen locally and were given a drug to provoke Brugada. After having this they should have spent the evening being monitored in hospital; however they were discharged and sent home. I had everyone’s attention and mouths were open in amazement. I also had the opportunity to get CRY’S philosophy over, and Alison’s famous statement - this is the only condition that you don’t have a second chance at!!

from the

Chief Executive

Leading international sports cardiologists were invited to speak, including Professor Corrado (Italy), Professor Börjesson (Sweden) and Professor Heidbuchel (Belgium); as well as CRY’s consultant cardiologist, Professor Sharma. Other international speakers included Dr La Gerche (Australia/Belgium) and Dr O’Hanlon (Ireland). UK experts Dr Behr, Dr Scurr, Dr Sheppard and Dr Varnava were also invited to speak.

On the second day, presentations by Dr Behr, Professor Sharma and Professor Corrado were supported by a powerful talk by GP and CRY supporter Dr Tony Hillier. I spoke about the services that CRY can offer to bereaved families, from expert fast-track cardiac pathology to referrals to our well-established bereavement support programme.

We left at around 10.30pm as my 4.50am alarm clock call beckoned. We also had a lovely email back from the host saying that our points were welcomed and they were glad we went.”

Welsh Rugby Union club Cardiff Blues confirmed CRY as their nominated charity for the 2012/13 season 9 October Welsh Rugby Union club Cardiff Blues were delighted to confirm CRY as their nominated charity for the 2012/13 season. The team chose CRY because of the close link with Cardiff Blues Marketing Executive Georgina Hughes, who lost her brother Matthew to sudden cardiac death in 2007 when he was just 17 years of age.

The event also included outstanding contributions from current CRY Research Fellow Dr Abbas Zaidi and former CRY Research Fellows Dr Michael Papadakis, Dr Hari Raju and Dr Nabeel Sheikh.

CRY International Medical Conference 12 and 13 October This annual event attracts speakers and delegates from around the globe, including many of the world’s leading experts on sports cardiology and young sudden cardiac death. The 2012 conference was once again offered free of charge to delegates.

The first day focused on Sports Cardiology whilst the second day focused on inherited cardiovascular conditions and the impact of young sudden death.

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CRY update • Issue 59 • 5

News

from the

Chief Executive

November South East Regional Bereavement Support Day 3 November 23 people registered for this event, held at Wimbledon Park Golf Club. We are grateful to the James Paterson Memorial Fund for part-funding this event. Groups were led by CRY Bereavement Supporters Linda Goodwin, Barbara Holland, Bruce Lord, Steph Paterson, Vanessa Tardif and Jenny Thomas (pictured).

on Wednesday 31 October 2012.

We were alerted to the situation and the dreadful delays being experienced by many bereaved families in the area, by local mother, Sue Ainsworth (pictured).

Sue lost her son, Jonathan, in April 2010 from a previously undiagnosed heart condition, aged just 21; but the family had to wait an agonising 8 months for the local coroners service to arrange an inquest, where the results were still found to be incomplete.

Since the distress of Jonathan’s inquest, Sue has worked tirelessly to raise awareness of the failings of Teesside Coroners Service and has become a loyal and very pro-active supporter of CRY, playing a key part in our 2011 campaign to fight against proposed cuts to the Coroners Service. Thankfully, a last minute U-turn in November 2011, by the then Justice Secretary, Ken Clarke, reinstated the role of Chief Coroner for England and Wales; which ensured other parts of this ancient service were protected.

However, the problems in Teesside remained, prompting the scrutiny panel ahead of an investigation by the Office of Judicial Complaints.

It is a relief to learn that as well as immediately addressing the disturbing length of time that some families are having to wait (often up to a year, just to get a date for an inquest) the panel has recommended that when a case of sudden adult death occurs, siblings will be referred for specialist cardiac screening.

This vitally important breakthrough will unquestionably reduce the risk to other young lives.

Enduring an extensive wait for a cause of death greatly exacerbates the suffering of the bereaved. Such inefficiencies risk further terrible tragedies if other family members are possibly carrying an untreated genetic condition for which a delay could have catastrophic consequences.

Congratulations to Sue and other local campaigners for the tenacity they have shown in enforcing this review. Now that England and Wales finally have a Chief Coroner in post, CRY hopes that the discrepancies witnessed in the North East and the ‘postcode lottery’ that still exists in some parts of the Coroners Service - will soon become a thing of the past.

CRY welcomed the ‘scrutiny panel’ set to investigate failings in the Teesside Coroners Service 1 November I was delighted and extremely reassured to hear the initial outcome from the ‘scrutiny panel’ held by Middlesbrough Council

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For more information visit www.c-r-y.org.uk/coroner_service_scrutiny_panel.htm

South East myheart meeting 18 November 7 young people aged between 14 and 35 registered for the myheart meeting held at the Reigate Manor Hotel. These

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News meetings give members an opportunity to meet other young people similarly affected, receive group counselling and informally ask questions of an expert cardiologist. We are most grateful to Dr Michael Papadakis for kindly giving most of his Sunday to CRY.

from the

Chief Executive

44 MPs attended CRY’s annual Parliamentary Reception 28 November As part of CRY Awareness Week, we hosted our annual Parliamentary Reception in the Terrace Marquee in the Palace of Westminster. We were delighted that 44 MPs attended the event and that our Guest of Honour Andrew Triggs-Hodge MBE – Olympic Gold Medallist at London 2012 in the men’s coxless four rowing - brought his Gold Medal for us to see.

The evening was hosted by Kevan Jones MP (Labour - North Durham; and Chairman of the Cardiac Risk in the Young All Party Parliamentary Group), Sir Roger Gale MP (Conservative - North Thanet; and Vice Chairman of the Cardiac Risk in the Young All Party Parliamentary Group) and Dr John Pugh MP (Liberal Democrat – Southport; Vice Chairman of the Cardiac Risk in the Young All Party Parliamentary Group).

Siblings National Bereavement Support Day 24 November 11 people registered for this event, exclusively for bereaved siblings, held at the MacDonald Burlington Hotel in the centre of Birmingham. Groups were led by CRY Bereavement Supporters Joan Hillier, Vanessa Tardif (pictured) and myself.

MC for the evening was CRY Chairman Hugh Mulcahey who introduced the speakers; Anna Soubry MP, Under Secretary of State for Health; Professor Sanjay Sharma, CRY Consultant Cardiologist; Andrew Triggs-Hodge MBE, CRY Patron and Olympic Gold Medallist; and myself. During my speech, I had the pleasure of presenting Sir Roger Gale MP with a painting by artist John Bennett – who paints for CRY in memory of his daughter, Laura. This gift to Sir Roger was in appreciation of his tremendous support of CRY over the last decade.

Midlands myheart meeting 25 November 9 young people aged between 14 and 35 registered for the myheart meeting held the following day, again at the MacDonald Burlington Hotel in Birmingham in order to meet others, receive group counselling and to informally ask questions of a cardiologist with expertise in these life threatening conditions.

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CRY update • Issue 59 • 7

News

from the

Chief Executive

Anna Soubry MP launched CRY’s unique new booklet – “Young Sudden Cardiac Death: Sibling Grief” – for bereaved siblings which features 10 personal ‘essays’ from men and women who recount the personal impact of their tragedy. The authors (pictured) attended the reception and enjoyed sharing Andy’s Gold Medal.

Those involved in the new booklet were young (some even teenagers) when their brother or sister died. Some have used the opportunity of the booklet to express openly how their feelings were not understood by the many friends, family members and visitors who surrounded their parents at the time of the tragedy. Others write of how they were unable to express their own grief for fear of further upsetting their already

We loved the Great CRY Cake Bake cards sold by Sue Spurling and designed by her friends, and have seen some of the terrific pictures demonstrating the fun and hard work that contributed to this highly successful event.

For pictures from the events see the CRY Great Cake Bake article and for individual write-ups visit www.c-r-y.org.uk/Great_Cake_Bake_2012.htm

CRY Raising Awareness - Cleveland Shopping Centre November / December 2012 devastated parents. In some cases, the authors even say they felt pushed away by their mums and dads, whose own grief had simply overwhelmed them. All were unanimous that life would never be the same again.

For more details and pictures see the CRY Parliamentary Reception article or visit www.c-r-y.org.uk/CRYParliamentaryReception2012.htm.

For more details about the Siblings Booklet visit www.c-r-y.org.uk/sibling_grief_booklet_launch.htm

First CRY Great Cake Bake raised over £19,000

CRY Representatives Kenny and Maralyn Bowen were asked to do a presentation in the Life Store at Cleveland Shopping Centre and they chose CRY Awareness Week to do this, saying: “The day we did it the weather was terrible - rain, windy and cold - so we were not very busy, only giving out about 18 - 20 packs of CRY information to people. The Life Store asked us if we would like to repeat the day and said we could return any time we like.

We thought we would repeat this about four times a year, with one of those dates being in CRY Awareness Week. We left an assortment of CRY leaflets on display in the Life Store for any person to pick them up if required.

30 November The first CRY Great Cake Bake took place on Friday 30 November 2012, creating a colourful headline fundraising event for this year’s Raising Awareness Week.

We would like to thank everybody who took part in the CRY Great Cake Bake during Raising Awareness Week this year and for helping to make the event such a success. We are still finalising the amount raised but we are delighted that over £19,000 has been raised so far. 150 people signed up for Great Cake Bake packs and we received some great stories about people’s events.

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News Before we attended, the Life Store staff phoned CRY’s office and asked for a PowerPoint presentation - we assumed to go on the TV screens in the store. Imagine our surprise, shock and pride to see four pages about CRY in the main window display a size of approximately 12 feet by 8 feet!

It was also very emotional when the page with the postcard campaign picture on it was displayed, and there was our son, Ian, in the window.

We have had information from the centre that more than 210,000 people walked past the window during the week, so some of them must have seen the CRY information. This PowerPoint presentation is staying in the window all the time, so more awareness is being raised.

We were both delighted to do the presentation day, as all awareness helps, and we look forward to doing it on a regular basis.”

from the

Chief Executive

Cardiovascular Conditions and Sports Cardiology, St George’s Hospital, London.

They had travelled from West Sussex for this moving event, and had all been involved in fundraising for CRY since Gary’s tragic death in July 2011 aged just 30. A fit and active young man who had led a very healthy lifestyle, Gary had been on holiday in Portugal when he suddenly died in his sleep.

In May 2012 ten of Gary’s closest friends - including his girlfriend, Jess and younger brother, Rob - took part in the gruelling London to Brighton Challenge, trekking over 100km from Richmond Park down to the Sussex Coast, helping to raise money specifically for new ECG equipment as an important and lasting legacy to Gary.

December Saints Foundation Awards Dinner 5 December I was pleased to be invited to speak about CRY’s work at the Saints Foundation Star Awards dinner on 5 December at The Great Hall in Winchester although rather overwhelmed to find that the podium was immediately beneath King Arthurs Round Table mounted on the Great Wall of the Hall behind me. We are very proud that the Saints Foundation has chosen CRY as their charity of the year and grateful to bereaved father Nick Dee Shapland, whose daughter Claire died suddenly in 2005, for his initiative in raising awareness of CRY in the club.

Pope family donate two ECG machines to CRY’s screening programme in memory of Gary 8 December Lesley and Roger Pope from Burgess Hill were joined by a number of friends and family members as they unveiled two new ECG (electrocardiogram) machines at the CRY Centre for Inherited

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Additional fundraising efforts have included two friends taking part in skydives and another running the London Marathon.

For more information visit www.c-r-y.org.uk/pope_ecg_donation.htm

Jason McCartney MP became the 100th member of the Cardiac Risk in the Young All Party Parliamentary Group (APPG) 12 December Jason McCartney (MP for Colne Valley), seen here with Andy TriggsHodge and his Gold medal at the CRY Parliamentary Reception, has joined the Cardiac Risk in the Young All Party Parliamentary Group (APPG). This is especially significant as he is the 100th MP since the 2010 election who hopes to help CRY raise awareness of young sudden cardiac death, particularly with his fellow MP’s and in his constituency.

Jason said, “Having supported the Cardiac Risk in the Young (CRY) charity, I’m now looking forward to working more closely with the All Party Parliamentary Group (APPG), as we try to improve awareness of sudden cardiac death in young people.”

For more information visit www.c-r-y.org.uk/cry_appg_100th_mp.htm

CRY update • Issue 59 • 9

Other

CRY News

New fundraising schemes Give as you Live With ‘Give as you Live’ you can raise money for CRY at no extra cost to you. Shop online with thousands of stores and raise money with every purchase. You can shop via the Give as you Live store or download Give as you Live™ and raise money when you shop directly at your favourite online stores. Just by shopping online, you can raise over £50 for CRY without putting your hand deeper into your pocket.

For more information visit www.giveasyoulive.com/

Pink Monkey sports equipment Pink Monkey is a company that supports women taking part in charity events by creating high quality performance sportswear for them to wear. 10% of each purchase by a CRY supporter will go to the charity.

To find out more visit their website www.pinkmonkeyonline.co.uk

Christmas Cards 2012 We hope you enjoyed the Christmas cards that were chosen this year. Special thanks again to CRY Representatives Rosemary Attridge and Katy Turberville for the time they gave in helping with this. The CRY Christmas card designs proved to be popular, with stocks of several of our new designs having to be reordered to meet demand! A small selection of merchandise may still be purchased online at www.freewebstore.org/cry-online-shop.

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Single launched in Memory of Michael Cadman, profits to CRY Dean Darkie, a music student at UWS Ayr, has released a song ‘Lily Pond’ in memory of his cousin Michael Cadman. In 2007, Michael, a healthy 17 year old studying Sound Production at Perth College, died very suddenly from an undiagnosed heart condition.

Originally from Arbroath, Dean says Michael was a great inspiration to him. “Michael, my two brothers and I went to guitar lessons together.

We also recorded together a couple of times which was my first experience of recording. It feels right to be paying tribute to him through music.”

Dean wrote Lily Pond shortly after Michael’s death based on a story his gran told him.

“The story of the water bug’s transformation into a dragonfly really struck a chord with my family at the time. The story describes a dragonfly nymph whose time comes to metamorphose. When he tries to tell his nymph friends about what’s happened to him he finds he can no longer go under water. I think the story was first published as a children’s book by Doris Stickney in the 1980s but no one’s sure where we heard it first.”

On 13 December, Dean launched the song with his band ‘Rebs and the Imaginary Friends’ at the Basement Coffee House in Ayr. “Rebs has done a beautiful job of singing the song. I’m really grateful to everyone who has played on the track and the support acts who played at the launch. On the launch night we raised £215. This wouldn’t have been possible without a lot of people passionate about supporting such an important cause.”

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Other The single Lily Pond is now available to download online with all proceeds going to CRY to help raise awareness and promote free heart screenings in young people.

Hear and download the single at the following bandcamp page http://rebsandtheimaginaryfriends.bandcamp.com/track/lily-pond

eBay for charity Over the course of 2012 our supporters raised £481.46 (including Gift Aid) via eBay for Charity - this is just over £100 more than last year. If you would like to raise funds in this way see www.c-r-y.org.uk/ebay_for_charity.htm for more details.

Newsletter

CRY News

Easyfundraising and easysearch During 2012 CRY supporters raised £148.14 by shopping and searching with easyfundraising and easysearch. The majority of this was raised through online shopping via CRY’s easyfundraising link www.easyfundraising.org.uk/causes/cry/.

By using easysearch every time you search the web CRY receives 50% of the fees paid by advertising sponsors. Just use the link http://cry.easysearch.org.uk/ every time you search the web.

from the

Deputy Chief Executive

Dr. Steven Cox

asking the question of whether an athlete can over-train and damage

CRY Deputy Chief Executive

their heart. This led into a provocative discussion on some of the most cutting edge research in recent years by Dr Andre La Gerche

CRY’s International Conference – London, October 2012 Each year the CRY conference goes from strength to strength.

This

is

a

major

event

for

CRY, bringing us international recognition both for the way we conduct cardiac screening and the research this informs. Last year we filmed the first day of the conference and produced three of the presentations as video uploads for our website. This year we decided to film both days. We have been asked to produce these presentations for the European Society of Cardiology educational platform for those clinicians seeking ‘Continual Professional Development’ (CPD). We will also be placing them on the CRY website so anyone can access them.

The first day of the conference, ‘Sports Cardiology; From Theory to Practice’, opened with Dr Abbas Zaidi, CRY Research Fellow, giving an overview of cardiac evaluation of athletes. Dr Zaidi was followed

by Dr Michael Papadakis, who is now a lecturer in cardiology at St George’s Hospital, University of London, after being a CRY Research Fellow in 2007. Dr Papadakis discussed how to interpret the athlete’s ECG, taking into consideration the impact of ethnicity, gender and age. Cardiac MRI is becoming increasingly important so we were delighted that Dr Rory O’Hanlon (Ireland) gave a crash course on CMR of the athletic heart.

Research with the athletic population is important because it is part of CRY’s aim to understand the ‘norms’ for the population, and how athletic training interacts with the heart. A relatively unresearched area is the potential negative impact of sport, especially ultra endurance sports. As the Medical Director of the Virgin London Marathon, Professor Sanjay Sharma was in an excellent position to open up the debate by evaluating the impact of marathon running,

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(Belgium). He is raising the question of whether the right ventricle is the weak link of the athletic heart and if it is possible for cardiac conditions to be acquired by some athletes when they push their body to – and beyond – their personal limits.

We were honoured this year to have Professor Hein Heidbuchel (Belgium) and Professor Mats Borjesson (Sweden) join the team of speakers. Professor Heidbuchel discussed whether the significant number of arrhythmias we see in athletic individuals is an ‘innocent bystander’ or a marker of athletic heart disease. Professor Borjesson addressed the important role that defibrillators play in athletic venues for both athletes and spectators.

Professor Domenico Corrado (Italy) is a member of the scientific committee for this conference and has played a key role within European discussions – and subsequent screening recommendations - by publishing the experience of the Italian screening programme. This year he talked about scarring of the athletic heart, continuing the discussion of how and when cardiac conditions may be acquired in athletes.

The final interactive session of the day always focuses on challenging case studies. Dr Sabiha Gati (CRY Research Fellow) and Dr Chiara Calore (Italy) applied the teachings of the day, engaging delegates in applying what they had learnt and encouraging discussion in the management of specific cases.

The second day of the conference, ‘Diagnosis and Management of Inherited Cardiovascular Disease’ opened with Dr Papadakis discussing the UK experience of sudden cardiac death in the young.

Dr Papadakis was the lead author on the paper that was published in 2008 which informed the statistic that is used in the CRY literature stating that there are at least 12 young sudden cardiac deaths each week in the UK. Dr Tony Hillier is a GP whose 21 year-old daughter, Laura, collapsed and died suddenly in 2003 whilst working in his GP practice. As a

CRY update • Issue 59 • 11

Newsletter

from the

Deputy Chief Executive

GP he gives a unique insight into the impact on the family, doctor

Dr Hariharan Raju works alongside Dr Behr at St George’s having

and community after a young sudden cardiac death. As always,

finished his CRY fellowship last year. He presented how a family

Tony’s talk was one of the most powerful of the day, ensuring that

should be evaluated after a sudden cardiac death in order to prevent

this event is much more than an academic conference presenting

further tragedies, based on our experience at the CRY Centre for

interesting topics. Alison Cox MBE then presented the important

Inherited Cardiovascular Conditions and Sports Cardiology.

role of the CRY support network. Through practitioners having a better understanding of what CRY does, Alison showed how CRY

Professor Sharma then gave an overview of the CRY screening

and the medical profession can work together to support a bereaved

programme – how it has evolved over the years to be a programme

family after a tragedy.

that is showing what can be achieved when cardiac specialists work alongside a charity like CRY, with the incredible support of the

The CRY Centre for Cardiac Pathology continues to be one of

families who are doing so much to prevent future tragedies.

the leading international centres, under the direction of Dr Mary Sheppard. She presented how she approaches the post-mortem

I presented the last talk of the day, looking at the psychological

evaluation of victims after a sudden cardiac death and why this is so

impact of CRY’s screening programme on those that participate and

important for the family and subsequent investigations.

how this relates to screening programmes for other conditions. This concluded with interactive case studies, bringing the theory from the

CRY’s Research Fellow Dr Nabeel Sheikh then gave a presentation

day into practice.

on hypertrophic cardiomyopathy; followed by Dr Amanda Varnava on arrhythmogenic right ventricular cardiomyopathy. Dr Elijah Behr,

With the films going online on the CRY website, we hope that

who works alongside Professor Sharma at St Georges and is the

thousands of people throughout the UK and beyond will now be able

author of the CRY booklet “When a Young Person Dies Suddenly”,

to benefit from these presentations delivered at the CRY conference

gave an overview of the ion channelopathies, with a particular focus

by world experts.

on Brugada syndrome.

Best wishes, Professor Corrado gave a specific talk about acquired causes of young sudden cardiac death in a non-athletic population. In the past we have usually focused on inherited and congenital conditions.

However, over the past year there has been a greater focus on the importance of addressing the ways in which conditions can develop, even after being screened.

Steve Cox Deputy Chief Executive

CRYScreening Report Between September and December 2012 CRY screened just over 3,500 people, with regular CRY clinic screenings making up the majority.

At our regular CRY clinics, a total of 1,101 young people were

986 people were screened at 7 family memorial screenings. These

screened. Clinics were held at; University of Ulster, Coleraine campus

were held in memory of Christopher Parr (Leek), Sarah Simpson

and Jordanstown campus (funded by the Northern Ireland Fund);

(Lutterworth), Reece Jeffrey (Derby), Lewis Marsh (Sandhurst),

Colchester General Hospital (funded by the Andrew Gard Memorial

Andrew Parr (Preston), Jack Maddams (Gillingham) and Tom

Fund); Cardiff University (funded by the Mark Young Memorial

Clabburn (Ealing).

Fund) and Sefton Hotel, Isle of Man (funded by Craig’s Heartstrong Foundation) .

518 young people were screened at 5 school screenings. These were held at Rawletts School (Tamworth) – funded by the West Midlands

Sports screenings included: England Cricket, Yorkshire Cricket Club,

Fund, University of Herts (Hatfield), Ravenswood School (Bromley)

GB Bobsleigh and Skeleton Teams, SKY Cycling, AFC Wimbledon,

– funded by the Ben Daniels Memorial Fund, The King’s School

Northampton Saints Premiership Rugby, Huddersfield Rugby League,

(Chester) and the Royal Grammar School (Guildford) – funded by the

Wakefield Rugby League, Salford Rugby League, London Bronco’s

Christian Thunhurst Memorial Fund.

Rugby League, London Welsh Premiership Rugby, Warrington Rugby League, St Helen’s Rugby League and the Lawn Tennis Association.

At the ICAP clinics, where those born in 1995 in the South East are

538 athletes were screened in total.

able to get free screening, 364 young people were screened. These screenings are held at the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology, in St. George’s Hospital, Tooting.

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CRYScreening Report 12,000 young people screened by CRY in 2012 In 2012, CRY screened 12,000 fit and healthy young people between the ages of 14 and 35. This is an increase of more than 40% on the number of people tested in 2011.

It is testament to the incredible support of CRY families who have dedicated so much of their time and energy to raising awareness of these treacherous conditions, developing the CRY support programmes, funding research and helping young people to be tested. In 2012, about 40 “fit and healthy” young people will have been diagnosed with a cardiac condition that is potentially life threatening, as a result of being screened by CRY. A further 120 young people will have been diagnosed with a cardiac condition that may not have been immediately

life threatening, but can now be monitored to avoid major complications in their 4th decade of life.

Thank you to everyone who continues to support CRY and everything you have done to help save the lives of young people at risk from cardiac conditions.

Dr Steven Cox Director of Screening Deputy Chief Executive

CRY Complete Successful Screening Programme for 2012 in Northern Ireland The last CRY Screening clinic for 2012 in Northern Ireland took place at the University of Ulster at Jordanstown which has been CRY’s main base since the clinic was established. A total of nine clinics were delivered meaning over two thousand people were screened in Northern Ireland.

Following a series of fundraising events the decision was taken to offer screening free of charge to the public since the costs had already been covered through an impressive array of fundraising events.

CRY Northern Ireland Representative John Lundy explains: “We often encountered the situation where a local sports club or voluntary group would do some fundraising and we would go along to receive a cheque. When we spoke to the people it often became apparent that although they

had raised the funds, their own young people might not in fact have been screened. That always struck as being far from ideal.”

“In previous years we were able to organise a screening clinic in Coleraine for local schools funded entirely by local projects. In Newry John and Joan McGuinness carried out a major fundraising effort in memory of their son Oisin and we have since hosted a clinic there at no charge. A one-off clinic was also held in Omagh a few years back supported by grant support from the local government department.”

“So yes the fundraising is important. But we also attach enormous significance to ensuring that the people that benefit actually get checked out.”

“That is why currently the screening is offered at no charge.

It means that the onus is on local people to continue the fundraising effort so other young people can benefit.”

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within your heart. The ECG involves lying down quietly and only takes 5-10 minutes. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (known as electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes 2-3 minutes to perform.

The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

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If a more detailed image is needed (about 5% – 10% of individuals), an echocardiogram (ECHO) can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.

CRY uses top of the range machinery donated by Philips for the screening programme. The screening programme is under the aegis of Professor Sanjay Sharma.

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myheart News Olympic and Paralympic Torch Relays In 2009, at the age of 17, James Bailey was diagnosed with Wolff Parkinson White (WPW). This was found during a CRY screening held at his school and was a total shock to James who considered himself to be very fit and sporty. He was due to go on a football tour only a month later but was advised it would be unwise to go, which was a huge disappointment. He was advised to stop sports and was put on medication. James subsequently underwent two ablations that same year. Fortunately the second one was successful.

Despite the seriousness of the situation, James considered himself to be very fortunate that his WPW had been discovered and treated and was very keen to do all he could to raise both funds and awareness of such conditions. He therefore arranged charity auctions to raise money and support the work of CRY. He also took every opportunity to raise awareness of such conditions and to campaign for ECGs to be available to those particularly at risk.

James says: “It was a great honour to carry the Olympic Torch and play a part in the London Olympics. Despite being extremely nervous beforehand about my ‘moment to shine’ and worrying about dropping the Torch, everything went really well and it was incredible seeing how many people turned up to cheer me and the Torch on. It really was a once in a lifetime experience and a moment I will never forget. Thanks to the local media coverage of the event I hope my participation in the Torch Relay was able to help further publicise the invaluable work of CRY. Additionally, thanks to people donating money to have a photo with my Torch, I was able to raise some more cash to help such a good cause.”

Tony Eames (32), a member of CRY’s myheart group, played an exciting role in the lead up to the London 2012 Paralympic Games by carrying the Torch on Monday 29 August as part of its 92 mile journey across Britain.

Tony, from Wokingham, also received widespread media coverage as he stood on the steps of the Shree Swaminarayan Hindu temple in Willesden, Brent. He was interviewed on both ITN and BBC news.

Tony says: “Taking part in the Paralympic Games Torch relay was a great achievement and one that signifies the progress I’ve made since being diagnosed with long QT syndrome (a potential cause of sudden death syndrome) aged 12, which caused sudden cardiac blackouts. For eight years my family doctor had treated my fainting attacks as epilepsy and attention-seeking panic attacks. It was suggested that I be sent to a psychiatric institution, something my parents refused to allow. No-one had tested my heart and all the time I was at risk of a sudden fatal attack from the rare heart condition.

“Following various investigations I was diagnosed and had the condition controlled by daily beta blockers and had a pacemaker fitted aged 18. It was difficult to overcome the challenges, however I am delighted that thanks to the medical support, today, I live a full and energetic life, focusing on achieving personal goals.”

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myheart News Your Story: Sarah Bond – Brugada Syndrome In January 2012 Sarah Bond was diagnosed with a heart condition known as Brugada syndrome. This is her story: “Brugada syndrome was something that I have had since birth yet was completely unaware of - living like any other healthy 31 year old woman; going to the gym, work and starting off newly married life with my wonderful husband James. Looking back now it still seems a bit unreal, but I know how lucky I am to have been diagnosed.

I had just finished a busy and stressful shift at work, I’m a nurse you see, and gone home. I remember being sat with James and feeling my heart start pounding with really strong palpitations, and my chest feeling uncomfortable. I was also feeling faint and looking sweaty. I did not faint and it lasted about 30 seconds which seemed forever. I knew that it wasn’t right to feel like that so we went up to A&E. I had an ECG which the nurse said looked OK and I felt a bit of a timewaster. However, the doctor then came in and that’s when I realised something was wrong with my heart. There were changes on my ECG and I was admitted to a high dependency unit for heart monitoring as he thought I had something called Brugada syndrome. I didn’t understand what or how serious it was at the time, I just got told it can make my heart beat fast and that it was a genetic condition.

After waiting 3 weeks and being monitored, I was transferred to a specialist heart hospital in Manchester where I met with my doctor. I began to realise the seriousness of this condition, and that I would have to have an ICD fitted. I remember feeling quite upset at the time and was worrying about it sticking out of my chest and the scar and how my life was going to change. It was the shock of me being fit and healthy and then this, but I’m glad it has been picked up now.

I had a Flecainide challenge prior to my surgery to see if it would provoke changes on my ECG, which would indicate true Brugada syndrome. I remember feeling very anxious throughout but the doctors and nurses looked after me. I then had my ICD implanted under my muscle, which was a little sore at first, and returned back to work a month later.

Although I had my doctor and specialist nurse, who is brilliant, to give me quite a lot of information and answer my questions, I will be honest, I didn’t really absorb the information and remember feeling fed up and alone the first month I had my ICD. I went to my heart hospital meeting for patients with ICDs but hated it as they were a lot older than me (around 60-80) and they were feeling sorry for me being young. This left me feeling very isolated.

Through looking on the internet my dad found CRY which I can honestly say has been a huge help with my recovery from being diagnosed and having my ICD fitted. I have gained a lot of information about my condition, what drugs I should avoid and

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Sarah and James Bond

being sensible with exercise, which I am. At first I was worried about having sex in case my ICD went off - you do when you are young!

I went to the myheart meeting and it was the best thing I did. Being able to talk with people my age with ICDs and conditions similar to mine, it was more like chatting with my friends than a meeting and it helped me offload all my worries to people that knew how I really felt.

Life now has changed for the better, I know how lucky I am to be here and how my defibrillator is there protecting me if I ever need it. I also wear my tops and dresses with confidence and feel quite proud of my scar. My only advice is: enjoy life, it’s what you make it!”

CRY update • Issue 59 • 15

Report from the CRYCentre for Cardiac Pathology (CRY CCP)

By Jane Proudfoot, Dr. Mary Sheppard’s medical secretary at the CRY CCP.

Dr Mary Sheppard Consultant Cardiac Pathologist

Jane Proudfoot Medical Secretary

Saharnaz Vakhshouri Laboratory Technician

Alice Burrell Laboratory Technician

Over the last four months the centre has received 72 young sudden death cases.

We always provide a final report to the referring coroner within 14 days. which occurs in both young and older people. Cardiomyopathies are also prominent within the causes of sudden death including arrythmogenic right ventricular cardiomyopathy (ARVC), hypertrophic cardiomyopathy (HCM) and dilated cardiomyopathy (DCM). In addition we have anomalous coronary arteries and diseases of the aorta. There is a wide spectrum of diseases causing sudden death and we are able to come to a specific diagnosis in all cases after the processing of the heart. Dr Sheppard works as a single practice pathologist and needs more pathologists to help in doing this work and to assist with the training of future cardiac pathologists.

Our numbers are increasing from year to year. It is a reflection of the value of the CRY cardiac pathology service that we are getting more cases referred from coroners throughout the UK. This year we received in total 234 cases. More pathologists are becoming aware of the service and are using it. This however means there is more pressure on staff to ensure our rapid turnaround. There is also considerable variation in cases from month-to-month, as reflected in the 2012 figures.

Publications Dr Sheppard has had 6 significant publications arising from her work and in addition she has been invited to review in pathology journals, emphasising the approach to the cardiac autopsy and dealing with bereaved families after sudden death.

Causes of sudden cardiac death We were able to provide a cause of death in all cases sent. The majority of cases were diagnosed as having normal hearts indicating possible electrical abnormalities as the cause of young sudden death.

We also saw a significant number due to coronary artery disease,

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Dr Sheppard is very involved in guidelines for the training of cardiovascular pathologists and, in association with the United States Cardiovascular Society and the European Association for Cardiovascular Pathology, we have published guidelines on processing cases that are referred for an opinion.

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Report from the CRYCentre for Cardiac Pathology (CRY CCP) National and international meetings

on 29 October 2012 and has settled well in to the department. In

Dr Sheppard has been invited to attend 4 international congresses,

addition we have been able to recruit a Laboratory Technician, Alice

including one on paediatric sudden death in congenital heart disease, myocarditis and cardiomyopathies. These included the ‘Perspectives in Paediatric Cardiology’ in Dubrovnik and a meeting of the International Academy of Pathology, where Dr Sheppard was also

Burrell, who helps in the processing of the hearts and in doing some research for the year until September 2013. We also have a weekly volunteer, Emily Oosthuizen, who is a Sports Physiology student from Brighton doing research work on sport and left ventricular hypertrophy.

invited to organise the cardiovascular sessions during this congress.

Dr Sheppard also spoke at the Anglo-Israeli Cardiology Conference on myocarditis.

Nationally Dr Sheppard has been involved in the training of cardiologists in the British Cardiovascular Society and also the Imperial Valve Course held at Imperial College, London.

One of Dr Sheppard’s most important roles is attending inquests where she meets families to discuss the causes of death. Last year she attended a total of 13 inquests, each of which represents a full day’s work in attending and giving evidence.

Staff changes Dr Sheppard’s previous PA has left to become a trainee teacher and Dr Sheppard was delighted that Miss Jane Proudfoot started her post

CRY Centre for Cardiac Pathology (CRY CCP)

Research News Dr Leonie Wong has joined our existing team of CRY Research

CRY’s Research Fellows are an integral part of the work at CRY. CRY funds doctors for 1-2 years who choose to specialise in the fields of inherited cardiac diseases, sudden cardiac death, screening and sports cardiology. The research that they produce advances our understanding of conditions that can lead to sudden cardiac death.

Fellows: Dr Sabiha Gati, Dr Ahmed Merghani, Dr Rajay Narain and

What was your research about?

What does axis deviation show?

The European Society of Cardiology (ESC) produce guidelines of what they call ‘normal’ and what they call ‘abnormal’ for ECG interpretation. When we do our CRY screenings, where we’re assessing athletes and the general population, I look at the ECGs and assess the ECG to see what’s ‘normal’ - which we can clear - and what is ‘abnormal’ and requires further assessment. Through our involvement with CRY, we have screened several thousand athletes and normal (nonathletic) individuals and not identified any structural problems of the heart. Based on our experience with the screening programme, we feel that there are certain criteria that are regarded ‘abnormal’ by the ESC that don’t actually need further assessment. These are the ‘axis deviation’ alone and ‘atrial enlargement’ alone. These are part of ‘group 2 ESC abnormalities’.

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Dr Abbas Zaidi.

CRY Communications Officer, Mair Shepherd, interviewed Dr Sabiha Gati about her recent research that aims to improve the screening process.

You can have a normal axis, you can have a left axis or you can have a right axis. When you have a left or right axis on the ECG it would suggest, based on the ESC criteria, that the individual could have a structural fault and be indicative of an inherited heart muscle condition.

What does atrial enlargement show?

Left and right atrial enlargement on the ECG could also suggest an inherited heart muscle condition or a structural problem with the valves.

What are ‘group 2 abnormalities’?

The ESC have published Group 1 changes (changes that are seen on an ECG) which are regarded as normal and related to exercise training changes and Group 2 changes; which are not related to the number of hours you exercise and these are suggestive of structural or cardiac abnormalities.

CRY update • Issue 59 • 17

Research News

Understanding Axis Deviation The heart is a specialised muscle that contracts regularly and continuously, pumping blood to the body and the lungs. The heart has four chambers - two at the top (the atria) and two at the bottom (the ventricles). The pumping action of the heart is caused by a flow of electricity through the heart that repeats itself in a cycle.

The normal trigger for the heart to contract arises from the heart’s natural pacemaker, the SA (sino-atrial) node, which is in the top chamber (see diagram.) The SA node sends out regular electrical impulses causing the atrium to contract and to pump blood into the bottom chamber (the ventricle).

The electrical impulse then passes to the ventricles through a form of ‘junction box’ called the AV (atrio-ventricular) node.

This electrical impulse spreads into the ventricles, causing the muscle to contract and to pump blood to the lungs and the body.

The axis is the general direction of the electrical signal as it travels through the heart when the heart contracts. If the heart is strained to the right it will cause a rightwards shift in the axis and when the heart is strained to the left it will cause a leftwards shift in the axis.

The mean electrical axis for the heart normally lies between 0 and +90°, left axis deviation normally lies at less than -30° (a negative number) and right axis deviation normally lies at greater than +110°.

A right or left axis deviation often represents a normal heart that during its development was slightly rotated either to the clockwise or anti-clockwise respectively. The rotation creates the difference in the direction of flow of electricity when the heart contracts.

Younger people often have a right axis deviation and as they grow and the chest cage expands the heart will move on its own axis towards the normal axis. In some people it can move further towards the left, so older people may often develop a left axis deviation.

What did your findings show?

we feel that axis deviation and atrial enlargement should be excluded

Based on our experience we felt that left axis deviation and atrial

from further assessment in order to make our CRY screenings more cost

enlargement don’t need further tests. So we went on to look at 2,500

effective, to improve the specificity of cardiac screenings and reduce the

athletes and compared them to just under 10,000 controls based on

false positives from what is currently 10-16% to less than 8%.

our CRY screenings of the general population. We found that 5.5% of control population. We performed ECHOs on all of these individuals – an

And a false positive is where someone is wrongly told they may have a condition?

ultrasound scan of their heart – and we found none of the individuals in

Yes, so with the false positive, you identify a left axis deviation or atrial

the athletic population nor the control population showing any structural

enlargement on the ECG (so you test positive) but you don’t have

abnormalities or features suggestive of an inherited heart muscle

an abnormality – that is, if you test positive on your ECG but your

condition.

echocardiogram shows no abnormality.

We’ve also looked at a population of asymptomatic individuals – those

What is the benefit of these findings?

without symptoms – with hypertrophic cardiomyoapthy (HCM). We

If you exclude left axis deviation and atrial enlargement from the current

athletes show these changes on their ECG compared to 4.5% of the

assessed 140 individuals and found only 1.4% of individuals had these findings – left axis deviation or atrial enlargement. You would have to screen 35,000 individuals to identify one person with HCM which tells me that this is not a cost effective process of screening individuals and

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ESC criteria you not only reduce the false positive rates – which is good as you would be causing less anxiety – but you’d be making screenings more cost effective by improving specificity without compromising sensitivity on ECG screenings.

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Great North Run 2012 Congratulations and a huge thank you to the 66 runners who took part in the BUPA Great North Run in aid of CRY on Sunday 16 September 2012.

For the third year running, CRY had a stand in the Bronze marquee which was excellent for raising awareness. The whole area that was allocated to us was branded and had plenty of literature and CRY information for runners and spectators who were not familiar with the charity and wanted to find out more. Nearly all of the CRY runners came back to the marquee and were welcomed by our wonderful volunteers, Jane, Ed, Anne and Iris, with lots of water, fruit, chocolates and sausage rolls. The sausage rolls went down a treat!

those who managed to go and meet our volunteers at the CRY stand, despite feeling emotionally and physically exhausted. As always, it was a challenging day for everyone, and especially difficult for those who were running in memory of a partner, family member or friend.

A special thank you to Garry Baxendale, Ian Jickvells, Ryan Nelson and Jack Storr who ran in CRY heart costumes. Our costumes are a great way to raise awareness for CRY. We also want to thank all

The CRY Fundraising Team

Photos courtesy of Jane, Ed, Anne and Iris.

Once again, we would like to thank each and every runner for their huge efforts in completing the half marathon and fundraising for CRY. Your time and valued support are truly appreciated. Well done!

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Photos courtesy of Jane, Ed, Anne and Iris.

Great North Run 2012

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Photos courtesy of Jane, Ed, Anne and Iris.

Great North Run 2012

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Photos courtesy of Jane, Ed, Anne and Iris.

Great North Run 2012

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Great North Run 2012 Well done and “thank you” to all the CRY runners in the 2012 BUPA Great North Run:

Photos courtesy of Jane, Ed, Anne and Iris.

Kim (ran in memory of Leon Ashley Manners) Laura Adams (ran in memory of Steve Adams) Michael Barron (ran in memory of Jamal Bos) Garry Baxendale (ran in memory of Neil Darby) Les Bewick (ran in memory of Lee Turner) William Black (ran in memory of Kyle Hancock) Nicky Brierley Gabby Broadhurst (ran in memory of David Green) Dr Jim Burton (ran in memory of Tom Burton) Stephen Clark (ran in memory of Darren Stephen Clark) Victoria Clark (ran in memory of Darren Stephen Clark) Heather Darby (ran in memory of Neil Darby) Jayne Davies-Morris Matthew Paul Dickenson (ran in memory of Luke Dickinson) Manda Elliott Michelle Embleton Laura Finnie (ran in memory of Sean Michael Farrell) Chris Gibson Kelly Gleadow (ran in memory of Graeme Bell) Samantha Graystone (ran in memory of Josh Fell) Keith Hamilton (ran in memory of John McCall) Jonathan Paul Hardman (ran in memory of Luke Dickinson) John Harrison (ran in memory of Graham Harrison) Martin Harrison (ran in memory of Graham Harrison) Stephen Harrison (ran in memory of Graham Harrison) Dwayne Andrew Head Simon Heseltine (ran in memory of Levon Morland) Shannen Hill (ran in memory of Bruno Fernandes) Barry Holcombe (ran in memory of Andrew Holcombe) Ali Jill Hornby (ran in memory of Josh Fell) Andrew John Hornby (ran in memory of Josh Fell) William Hurst (ran in memory of Chris Parr) Rich Irving (ran in memory of Sebastian English) Mike Jarrett (ran in memory of Zoe Teale) Ian Jickvells (ran in memory of Darren Clarke) Michaela Danielle Johnson (ran in memory of Matthew Blease) Harriet May I’Anson (ran in memory of Camilla Jane Irvine) David Leigh (ran in memory of Jonathan Leigh) Rebecca Leigh (ran in memory of Jonathan Leigh) John Neil McDonough (ran in memory of Matthew Wallbank) Alan Milne Mark Montgomery (ran in memory of John Magowan) Aran Morland (ran in memory of Levon Morland) Elizabeth Morrison Robert Morrison Ryan Nelson (ran in memory of Neil Darby) Matthew Nicholson Paul Nutten (ran in memory of Chris Parr) Neal Porter Allan Porter Lynne Rathbone (ran in memory of Mike Rathbone) Emma Reynolds Sarah Rippon Anna Robinson (ran in memory of Mike Scott) Mark Robinson (ran in memory of Mike Scott) Karen Shepley John Smith Stephen Sourbutts (ran in memory of Luke Dickinson) Nathan Standley (ran in memory of Darren Stephen Clark) Jack Storr (ran in memory of Jonny Leigh) Peter Teale (ran in memory of Zoe Teale) Meghan Teale (ran in memory of Zoe Teale) Judy Unwin (ran in memory of Steve Adams) Joseph Ian Hugh Anore Vavasour Steve Walker (ran in memory of David Green) Edward John Whittle (ran in memory of Matthew Wallbank)

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CRY Durham Riverside Walk 2012

Congratulations and thank you to the 152 participants (plus dogs in CRY t-shirts!) who took part in the 3rd CRY Durham Riverside Walk on Saturday 6 October 2012, on one of the sunniest and warmest autumn days of 2012. The numbers taking part were slightly above those of 2011, thanks to the efforts of our supporters who actively promoted the event.

As in the two previous years, it was a poignant yet positive occasion. It was very moving to see everyone coming together to walk in memory of a friend or family member. It was also an opportunity for people to meet up with friends and CRY staff, as well as raising awareness of CRY’s ongoing work to help reduce the incidence of young sudden cardiac death.

The walk was attended by CRY staff Rebecca Zouvani, CRY Fundraising Manager; Cara MacMillan, CRY Events Fundraiser; and Tony Hill, CRY Family Screening Manager.

Jeff Morland, who spoke about his support of CRY. He then introduced the Chair of Durham County Council, Councillor Linda Marshall and her consort Councillor David Marshall. Councillor Linda Marshall officially started the walk after a short speech about her longstanding support of CRY, including CRY being one of her official charities for the year. Finally, everyone joined in the short motivating warm-up led by Diane Carr of Lifestyle Fitness (Freemans Quay, Durham) who kindly donated her time. This was much appreciated.

Walkers began to assemble in Durham Amateur Rowing Club for registration and a welcome cup of coffee. Participants checked in, picked up a balloon and had a chat with each other whilst waiting for everyone to arrive.

Many people who took part walked in memory of a young person who they had lost to young sudden cardiac death, including Kasia Ber, Ian Bowen, Leslie Elkington, David Elliot, Dean Henderson, Ian Johnson, Faye Linton, Stewart McEwan, Paul McGlynn, Levon Morland, Sara Pilkington and Sam Wright. This year we welcomed back a team of young walkers from the F.C Easington football club, walking with the Ber team.

Just before midday we assembled outside, Rebecca Zouvani made a short speech to thank everyone for coming and introduced

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CRY Durham Riverside Walk 2012 Kenny Bowen also led a group of walkers who wished to take part in the slightly shorter, wheelchair friendly version of the walk.

The Rowing Club kindly opened the bar and provided delicious toasties for CRY staff and the walkers on their return. Everyone seemed to enjoy the day and most people stayed outside with their food and drinks, making the most of the sunshine.

We never forget that most of the walkers who take part in the ‘Durham Riverside Walk’ do so for a very personal reason – and all of us at CRY appreciate their tremendous effort and courage.

After photographs the walkers set off on the walk, picking up a bottle of water and a cereal or chocolate bar on the way. Following the beautiful River Wear, walkers had a striking view of Durham Cathedral. The autumn sunshine and colours of the trees lining the river bank provided a stunning backdrop for the walk.

We are very grateful to the event sponsors Durham Amateur Rowing Club for providing a great venue at a discount, and to Mark Bell and his team for making us so welcome; to Northumbrian Water for kindly donating bottles of water; to Joe Crow and Radflex for donating chocolate bars; to Radisson Blu, Durham Hotel for donating accommodation and breakfast at their luxury hotel for our staff, and to Lifestyle Fitness for providing a fitness instructor.

Thank you to all our volunteers for their help before, during and after the event - organising and attending meetings; promotion; driving; taking deliveries; pre-event telephone calls and emails; marshalling; marking out the route; designing the walk leaflet and booklet; distributing walk leaflets; providing first aid cover; registering walkers; inflating balloons; warm up; handing out water, chocolate bars, certificates and forms; and clearing up. We really couldn’t run an event like this, so far from the CRY office, without the help of dedicated volunteers: Sue Ainsworth; Debbie Anderson; Beryl Anderson; John and Diane Ber; Kenny and Maralyn Bowen; Diane Carr; Lucy Clifford-McBrinn; David (Joe) Crow; Mark Gilbank; Danielle Headley; Jean Johnson; Allison Johnston; Carolyn King; Bruce Lowes; Jeff Morland; Steve Percival; Janette Pollard; and Gary Tidbury.

We really appreciated the time and help of all of the volunteers and special thanks to Jeff Morland and Steve Percival for once again making it all happen.

After crossing Bath Bridge and breaking away from the river momentarily for a detour, the 7km route looped back around to finish at Durham Amateur Rowing Club, where each walker was welcomed back by CRY Representatives Kenny and Maralyn Bowen, and presented with a certificate and complimentary CRY pen.

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CRY update • Issue 59 • 25

Photos by Ian Cooper, Steve Percival, John Thirlwall and CRY staff.

CRY Durham Riverside Walk 2012

To see more photos from the day, please visit www.c-r-y.org.uk/durham_walk_2012.htm.

26 • CRY update • Issue 59

www.c-r-y.org.uk

Run

to the

Beat 2012

Thank you and congratulations to the 43 runners who took part in Run to the Beat in aid of CRY on Sunday 28 October 2012.

Even though it was a very cold day the music and atmosphere helped to keep everyone in good spirits.

CRY did not have a charity marquee at the event but set up a ‘meet-and-greet’ stand to welcome back our fantastic runners.

Volunteer photographers Gavin Boyce, David Playford and Matt Jackman were situated at different points along the route to capture shots of CRY runners as they battled through the icy wind to complete the half marathon.

The stand was manned by CRY staff Cara MacMillan, Nicola Taylor and volunteer Gavin Boyce. Cara and Nicola gave out goody bags to CRY runners and thanked them, while Gavin took photographs of our runners with their medals.

Nicola and Cara thoroughly enjoyed meeting all the runners who worked so hard to support us. We would like to thank our volunteers Gavin Boyce, David Playford and Matt Jackman for kindly taking photographs of the event.

Well done and “thank you” to all the CRY runners who took part in Run to the Beat 2012: Lewis Andrews (ran in memory of Stevie Jivani) Hannah Ashton Joseph James Aston Danielle Bidos Kayleigh Blackburn (ran in memory of Adam Rowbottom)

www.c-r-y.org.uk

Jodie Brooks (ran in memory of Charles Curtis) Nicola Carter (ran in support of James Murray) Beth Champion Helen Clancey Chronnell (ran in memory of Liam Daniel Chronnell) Daniel Connell Niall Connell Stephen Donoghue Suzanne Dray Caroline English (ran in memory of Liam Daniel Chronnell) Higor Gil Sam Gilbey (ran in memory of Alex Ciccui/Arpaillange) Emma Goater Claire Guest (ran in memory of Ralph Murwill) Scott Hitchman (ran in memory of Stevie Jivani) Mandy King (ran in memory of Paul Wilkins) Laura Hutchings Kate Lloyd (ran in memory of Sebastian English) Raymond Maher (ran in memory of Ralph Murwill) Charles Matthews (ran in memory of Ben Daniels) Amy Mercer Caris Newson Elizabeth Nixon (ran in memory of Niamh Herlihy) Rebecca Perry (ran in memory of Shannon Powell) Elizabeth Porter (ran in memory of Alex Watley) Susannah Povey (ran in memory of Ollie Marsden) Alexandra Reed Bethany Roberts (ran in memory of Funda) Georgina Smith (ran in memory of Sebastian English)

CRY update • Issue 59 • 27

Run

to the

Beat 2012

Briony Rose Kirsty Smith (ran in memory of Ben Newton) Hossen Solim Victor St. Ange Ellie Tait (ran in memory of Emma Broad) Fiona Taylor (ran in memory of Thomas Fleetwood) Christopher Tongue Emma Wade Alison Wiggins (ran in support of James Murray) Olivia Wise (ran in memory of Charles Curtis) To see more photos from the event visit: www.c-r-y.org.uk/rttb_2012.htm

28 • CRY update • Issue 59

www.c-r-y.org.uk

Run

www.c-r-y.org.uk

to the

Beat 2012

CRY update • Issue 59 • 29

Run

to the

Beat 2012

If you would like to run for CRY in the next Run to the Beat Half Marathon on Sunday 8 September 2013, please e-mail events@c-r-y.org.uk for further details.

30 • CRY update • Issue 59

www.c-r-y.org.uk

CRY

Parliamentary Reception

2012

On Wednesday 28 November 2012 CRY held its annual Parliamentary Reception at Westminster. The reception was hosted by Sir Roger Gale MP, Dr John Pugh MP and Kevan Jones MP and was the key event in CRY’s Raising Awareness Week. Guest of Honour was CRY Patron Andrew Triggs-Hodge MBE - Olympic Gold Medallist at London 2012 in the men’s coxless four rowing.

The evening received excellent cross-party support, with over 40 MPs and Members of the House of Lords attending to show their support for CRY’s campaigning. We are very grateful to all those Parliamentarians who found the time to attend.

Other guests were CRY families, Bereavement Supporters and Representatives; CRY myheart Network members; CRY Patrons Rob Andrew MBE, Jeremy Bates, Simon Halliday, Bill Neely, Phil Packer MBE, Andy Scott and Matt Wells; medical professionals; representatives from sporting organisations; CRY Trustees; CRY Research Fellows; CRY staff, and many others.

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CRY update • Issue 59 • 31

CRY

Parliamentary Reception

2012

During her speech, Alison Cox presented Sir Roger Gale MP with a painting to thank him for his tremendous support of CRY over the years and also thanked everyone for attending.

The Reception received extremely positive feedback from those There were a number of speakers at the event. MC for the evening was CRY Chairman Hugh Mulcahey and he introduced: Anna Soubry MP, Under Secretary of State for Health; Professor Sanjay Sharma, CRY Consultant Cardiologist; Andrew TriggsHodge MBE, CRY Patron and Olympic Gold Medallist; and Alison Cox MBE, Founder and Chief Executive of CRY. As part of her speech, Anna Soubry MP officially launched CRY’s new ‘Sibling Grief’ booklet. The young authors of this booklet - who have all lost a brother or sister to young sudden cardiac death - were also in attendance at the Reception.

32 • CRY update • Issue 59

who attended, with many MPs and other guests commenting on what a good evening it had been. It was a powerful reminder of CRY’s various services and initiatives, and the continued importance of CRY’s work.

Visit

www.c-r-y.org.uk/CRY_parliamentary_reception_2012.htm

for further photos from the event.

For more information about the ‘Sibling Grief’ booklet launch visit www.c-r-y.org.uk/sibling_grief_booklet_launch.htm

www.c-r-y.org.uk

CRY Great Cake Bake 2012 The first CRY Great Cake Bake took place on Friday 30 November 2012, creating a headline fundraising event for Raising Awareness Week. We would like to thank everybody who took part in the CRY Great Cake Bake and for helping to make the event

• Sophie Bates raised a total of £81.22 in memory of Cecilia Barriga.

• Alison Berridge: “It was tiring, but a good day! Sorry I didn’t

get any action shots ... too busy making coffee! Considering we only moved here on 30 July, I think we had a fair turn out.

Total raised, including the £40 from cake sales from the week before, stands at £204.50.

such a success.

Money is still coming in but we are delighted to say that we have raised over £19,000 so far. We had 150 people sign up for CRY Great Cake Bake information packs and we are really pleased that we have had such a positive response to the idea.

The following people organised events: • Lyn Ansell: “We had to have our CRY Cake Bake in the previous week instead for business reasons and due to illness I wasn’t really able to promote our event. However, I made lots of cakes myself and sold them to our staff and we raised £37! There was some cake left and I took it into the care home where my Dad is and they enjoyed it.”

• Anna Aristodemou held her event over two days at her

hair salon ‘A Cut Above’ and raised £78.39, including £31.50 from the sale of CRY Christmas cards.`

• Sinead Bode raised a total of £177.70, at her salon, in memory of Adam Donnelly.

• Lisa Bramwell: “Judy Broad and I organised the event in memory of Dave Bramwell and Emma Broad. We raised £1,048.80 which I have posted to the CRY office.

Photo courtesy of Gill Shaw

• Annabelle Barwick at

We had a raffle, sold merchandise, sold cakes to take home and drank lots of coffee and tea. The money is to be used for the screening event in February 2014 which is being funded by the Dave Bramwell Memorial Fund. We hope to make it an annual event!”

Derby Homes: “Our cake bake event was a great success raising over £330 for CRY our charity of the year [at Derby Homes].

Hopefully we can get this to reach £350 as we are still selling cakes.

The event really bought teams together and provided a bit of fun whilst raising loads for charity.

Once again many thanks to everyone in the team who made cakes and Bacon Butties (you know who you are!).”

www.c-r-y.org.uk

• Judy Brookes raised a total of £220 in memory of Greg Brookes: “We held a coffee morning at our house which was well supported by friends and neighbours. Most people brought cakes to sell and some of those who couldn’t come either sent a cake or a donation.

CRY update • Issue 59 • 33

CRY Great Cake Bake 2012

We provided coffee and scones and also held a ‘guess how many sweets in the tin’ competition. Many people asked when the next one will be - we may do one in the summer as well as next November.”

• Suzanne Dallas raised a total of £28.81 by selling cakes to the Ambulance service and the offices of EDMC.

• Caroline Davies raised a total of £150 in memory of Sebastian and Howard English.

• Allie Davies and Sophie Spink raised a total of £463.59 from their cake bake that was held at Marlborough College in memory of Sebastian and Howard English.

• James Firman raised a total of £156.36.

• Mandy Ghaleb raised a total of £50 in memory of Robert Allan.

• Emma Gibb at Eastcote Hockey Club: “The weekend was

a success, and the total amount of money raised for CRY reached a whopping £418 with, believe it or not, cake left over!”

• Melissa Butler at Fidler & Pepper Solicitors: “I am pleased

to say that all the cakes went down well and we had quite a few of our clients that were very happy to donate to a worthy cause. A lot of our staff were happy to help with all the baking as well.

We had a raffle as we decided it would be a nice addition to all the cakes, which helped raise more money. We are pleased to say we raised £100.54.”

• Cardiff Blues raised a total

of £189. Their staff and players baked cakes and sold them at their match with Montpellier as part of their fundraising for CRY during their ‘charity of the year’ support.

Jane, •

David and Anne Carney raised a total of £96 in memory of Jake Carney.

• Linda Goodwin held her cake bake in memory of Ashley

Goodwin: “My cake bake went really well raising £231 which includes the [Christmas] card sales. People were so generous.”

• Tom and Judy Green raised £580 in memory of Adam Green.

• Susan Harnetty raised a total of £200.

• Christine Abram from Heartfelt Group – Preston: “We held a

Great Cake Bake / coffee morning at Woodplumpton Village Hall in Preston on 3 December and raised £376.50. Six bereaved families and one whose son has been saved by screening joined together to raise awareness for CRY.

• Lesley Cassie at Rosebery

School: “Staff and pupils at Rosebery School raised £175 in memory of Max Turner - we raised £125; plus £50 because I am donating my winnings from a raffle at School.”

• Janie Clark: “I think my CRY Great Cake Bake Tea Party went

well! I managed to get 12 friends to come for tea. A few people couldn’t come but they very kindly sent me a donation. The event started at 3.00 pm with a glass of Prosecco (Elderflower for the drivers!). I had bought 3 baking books (Good Food 101: Cakes and Bakes; The Hummingbird Bakery Cookbook; How to Bake - Paul Hollywood) for a raffle so we had the draw before starting the tea along with sandwiches, scones, tea bread, cakes and biscuits. Needless to say I had made too much but leftovers will freeze for Christmas! I managed to make £425 which included entrance and the raffle.”

We had dozens of beautiful cakes to sell – made by friends and family - and a superb raffle. We are grateful to all who donated items and made cakes. We are now forming a group called HEARTFELT and we aim to work together to raise awareness and fundraise for heart screening in Preston. We

• Jennifer Cox held a cake bake and raffle in memory of

Benjamin Percival: “I held my CRY Cake Bake on Friday and raised £566.95, which was absolutely amazing and such a lovely afternoon.”

34 • CRY update • Issue 59

www.c-r-y.org.uk

CRY Great Cake Bake 2012 donated that in the end two sales were held and over £300 was raised on cake alone. We like cake in my office.

want to support each other and fundraise together - this was our first attempt and it was a great success.”

The money raised will be going to CRY’s Research Fund.

• Anita Hawkins at Mercury Pharma held a cake bake and raised a total of £1,149.02 in memory of Reece Jeffery, which included a matched giving donation.

Colleagues also donated other things which I could sell for a donation to CRY; these included diaries, a West Ham United football hat and curtain tie backs! The grand total is now £365.”

• Sharna Jackson at Yorkshire Bank, Mansfield: “All staff at my workplace (Yorkshire Bank, Mansfield) contributed and all of our generous customers supported and donated. Many people were aware of my friend Craig Wilson’s passing and were happy to support this fantastic charity.

We managed to raise £250. Although I’m sad to have come across this charity in the circumstances I have, myself and work colleagues will be more than happy to support any future events in memory of my amazing friend Craig.”

• Deb Holley raised a total of £430 from her cake sale and raffle, in memory of Jack Thomas.

• Mark Howgill and Dulwich Prep School raised a total of

£578.98 by holding a cake bake and a music concert for CRY.

• Suzanne Hunter: “My only child, Alice, died on 25 May 2012 of sudden cardiac death, aged 20. She had been tested for cardiac problems before this, but nothing showed up and even the post mortem could not give us any reasons why her heart decided to stop.

Before this date I had never heard of sudden cardiac death nor of the charity CRY. I was given the link to CRY by two friends, one of whom is a pathologist in this field and the other who had lost her husband in a similar way.

One of the only ways of making some sense out of this tragedy was to try and raise awareness of the problem and also to raise some money which would hopefully help to prevent other families having the same experience as mine.

I saw information about the CRY Great Cake Bake on CRY’s website and decided that this was something that I could do.

So I advertised that a Cake Sale would be held and sat back to await donations of cake. So much cake was baked and

• Christine Jones: “I had a wonderful ‘Cake bake’ fundraising

event on 1 December, for friends and family. It was also in memory of my son, Tim Jones, who passed away suddenly on 23 December, 4 years ago. We raised £200 plus (donations still to come) and everyone seemed to enjoy the day. I am grateful to CRY for their support and information at a time when I was experiencing unbelievable shock and devastation at the loss of my son. Thanks again!”

• Sandra and Nick Jones raised a total of £915: “An amazing

and emotional morning with our friends in memory of Ethan.”

• Zoe and Nicole Karanicola raised £53.30 from their cake

making. Their father, who works at a police station within Avon and Somerset Constabulary, took the cakes to work and staff made donations.

• Katie Lambert and Conny Carter raised a total of £228.72 in memory of Adam and Jenny Lambert and Trevor Carter.

• Koula Louki raised £461. She had around 30 people popping in and out throughout the day. She made cakes, macaroons, sandwiches, soup and bread and people were making donations to attend and to take items home with them.

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CRY update • Issue 59 • 35

CRY Great Cake Bake 2012

She also held a raffle with a homemade Christmas cake as a prize. The event was held in memory of her son Andrew on 30 November as it was St Andrew’s day.

• Rhian Lowe raised a total of £150 from the 2nd Ansdell

• Stephanie Mayou raised a total of £250: “We held a CRY coffee and cake morning as part of ‘The CRY Great Cake Bake’. Our incredibly generous family, friends and neighbours came along and ate cake in order to raise money in memory of my brother Jonathan Hooper.”

• Lisa McNeice at Barclays Bank: “Our cake bake was a huge success and it turns out the office are a competitive bunch!

As such, we are going to bake every Friday between now and Christmas and all the money raised we will collate and give to CRY. Once we’ve totalled the amount and gathered the photos I will send the info on to you. I know that so far we have well over £100 and that’s before the pound-for-pound matching by the bank.”

Guides’ bake sale in memory of Luke Rutter.

• Jo Lyons at Royal United Hospital, Bath: “I work at the Royal

United Hospital, Bath, and myself and my hard working team raised £287.30. It’s in memory of my daughter Ashleigh Lyons.”

• Cat Miller: “Last December I lost one of my best friends, Pippa

Chowne, just 15, to sudden arrhythmic death syndrome, and since then I’ve always wanted to contribute to Cardiac Risk in the Young. When I heard about CRY Awareness Week, I knew it was the perfect opportunity to raise the charity’s profile in my school.

Friday 30 November was the big day! We started off by selling red ribbons to many of the students and teachers as they came into school that morning. At break we held our much anticipated cake sale.

• Katie Marley: “I thought I’d let you know how much we raised

at our school Christmas Fete; we raised £103.82 by selling the cakes and Christmas decorations that we made. We are so happy at what we raised!”

I had previously organised a cake sale back in May for the same cause which went down a treat, and the students knew this time would be even bigger and better. We laid the vast array of flavours out in our school dining room, and decorated the tables with red ribbons and CRY balloons. The amount of students that arrived for the sale was pretty overwhelming, and even with my team of friends who had offered to help sell the cakes, a couple of teachers were still needed to control the student flow so it didn’t end up as a mad rush! With over 8 different flavour cupcakes, each individually decorated, and many other fantastic concoctions my friends had brought in, there was something for everyone!

Throughout the rest of the day we continued to sell ribbons and receive donations in the collection tin. I also had many a teacher approach me to say they were going to donate online at home.

Overall, the whole week managed to raise £423.10, as well as boosting the charity’s profile. I know this money will be put to extremely good use, and if it can prevent just one young person from losing their life, I know it was all worth it. I am

• Debbie Marshall raised a total of £177 in memory of Paul Marshall.

Left to right: Catherine, Katarina, Hannah, Becky, Jasmine, Zoe

36 • CRY update • Issue 59

www.c-r-y.org.uk

CRY Great Cake Bake 2012 Facebook. We also sold some at work, school and the local community centre. We raised £200 which I’m very proud of, and trust the money will be used for this good cause and help others before it’s too late.”

SO pleased with how it all went, and I’m looking forward to another similar experience.”

• Lesley Sellens raised a total amount of £869.29, including £144 from the sale of CRY Christmas cards and merchandise.

• Juliette Morton at Bosch

Rexroth, Wakefield: “On Friday 30 November we held a cake sale at Bosch Rexroth’s Northern Facility, Wakefield, where I brought in lots of homemade cupcakes and sold them in memory of Jonathan Leigh and raised a fantastic £72 for CRY.”

• Carol Nicholls raised a

total of £30 at a small family tea party

Auntie Bow, Will, Chloe, Stephanie and Maddie

• Sheltons Solicitors, Hucknall Office: “Our cake bake day

was a success. We raised £65 which is very good for one office and the fact that we sold them to each other. We are now back on our diets ...that is until next week when we start our Christmas fuddle!”

• Estelle Sherlock raised a total of £28 in memory of Martyn Luckett.

• Clare Skinner at Marylebone Cricket Club, Lord’s Cricket

Ground: “£100 was raised this morning and hopefully we will get a little more than this as some of the cakes were taken to other parts of the ground after lunch.

• Dianne Parr raised a total of £200 in memory of Christopher Parr.

• Maisa Patel raised a total of £425 in memory of Shamil Hamid.

• Joan Rawling held her cake bake in memory of Darren Rawling: “We had a fabulous time at the CRY coffee morning last Friday and we raised an amazing £232. We even managed to show the David Walliams video up on a screen.

Hope all other fundraisers had as much fun as we did.”

• Sukhy Sandhu held her cake bake in memory of Sundesh

Mall: “We had two great events and sold a lot of cakes on

www.c-r-y.org.uk

Angus Fraser, former England fast bowler and current Managing Director of Cricket for Middlesex CCC got involved and can be seen in the picture holding a plate of cakes in front of the Lord’s Pavilion.”

CRY update • Issue 59 • 37

CRY Great Cake Bake 2012 • Christine Slater raised a total of £220 in memory of Tim Jones.

• Emma Small at Fraser Brown Solicitors raised a total of £74.47.

• Angela Smith raised a total of £70 in memory of Kevin De Silva.

• Jennifer Smith: “I held my CRY Cake Bake on Friday and raised £566.95... which was absolutely amazing and such a lovely afternoon.”

• Lucy Stevens raised a total of £575.35 in memory of Andrew Stevens.

• Linda Stiller: “We collected £250.50 during the Cake

Bake week, in memory of our dear son David, by selling home-made cakes to work colleagues and friends. It was a privilege to take part in such a worthwhile cause and my family and I hope that the event was enjoyed as much by others who participated, and that it was a great success.

We look forward to being able to raise more money for CRY with any similar future events.”

• Nicola Storr: “I held a bake sale at work and raised £120

in total. And my mum had a Coffee Morning and Afternoon Tea and raised £500 in total. We were both so pleased with the amount of people who helped us and baked some truly delicious treats, and for everyone else who came along and donated for such a great cause. These events were in memory of my brother, Jonathan Leigh, who I’m sure would be so proud of our efforts. And we are pleased to be able to donate £620!”

• Diane Tolley raised a total of £162 in memory of Robert Poysor.

• Janice Tuite at University of Kent: “The Finance

department, in Registry, at the University of Kent raised £188.84 on Friday for the Great Cake Bake. Along with the Cake Bake I organised back in the summer (raising £790), my son’s girlfriend’s fundraising at her school and the recent Christmas card order, I think we have raised about £1,200 in the last six months. I will do my best to keep the momentum going in the future too!!!!”

• Hilary Wagstaff: “I held a cake sale in memory of Ethan

Jones who died nearly 2 years ago of an undetected heart defect and for whom there is a memorial fund at CRY.

We have raised £650. I had great fun baking and I had lots of generous donations of beautiful cakes! All the cakes sold to lots of hungry boys at the school!”

• Elaine Ward: “My Great Cake Bake was more of a Coffee

Morning on Friday 30 November at my house. I raised £280. Lots of my Inner Wheel Ladies brought cakes which we ate, sold and raffled. A friend of mine made and donated some craft items, my husband made some stained glass

38 • CRY update • Issue 59

angels and I sold some CRY Christmas cards. We were having such a good time, I forgot to take any photos!”

• Emily Wilson: “We held a very successful cake bake sale

at my daughter’s school and raised £86.” Emily also held a raffle for a hand knitted nativity set, raising a total of £136 in memory of Pixie Wilson.

• Tracey Withers: “£812 raised on Saturday morning all in Jack Thomas’ memory. The generosity of everyone involved was overwhelming. Already have requests to do it again!”

• Jo Wootton at King’s School, Worcester: “The rowers held

a Great Cake Bake at the King’s school, Worcester and managed to raise £162 in the fifteen minute break time!

This, combined with the money already raised through smaller sales, brings our current total to over £300. We hope to significantly add to this through sponsorship for our 24 hour ‘ergo challenge’ which is taking place.”

After the success of this first CRY Great Cake Bake, we are pleased to announce that the 2013 CRY Great Cake Bake will be taking place on Friday 29 November 2013.

For more information or to register for your information pack please email ben@c-r-y.org.uk

www.c-r-y.org.uk

Our

Corrections and apologies from Update 58 Apologies to family and friends of Paul Wilkins as the last issue incorrectly reported that funds raised amounted to £1,300. Corrected entry below: In Memory of Paul Stephen Wilkins Pam Oates sent in donations totalling £1,800 in respect of the annual Charity Night, in memory of Paul.

In Memory of Glyn Eric Speed took part in the Virgin London Marathon 2012 and raised a further £600 making a total raised of £2,335.

In Memory of Philip Abraham Christopher Abraham, Mary Abraham, Alfred Azzopardi, Valerie Azzopardi, Marlene Beveridge, Laura Burton, Marie Cassidy, Stephanie Caws, Nicky Chapman, Rose Chapman, Janet Dowling, Janet Gotham, Vickie Keegan, Carol Moger, Claire Moger, Melissa Moger, Anne Moores, Paul Moores, Gill Kiernan, Stefan Palmer, Pauline Pitt, Hilary Price, Stanley Price and Enza Romano took part in the CRY Heart of London Bridges Walk 2012.

To date, £451 has been raised.

In Memory of Steve Adams Laura Adams and Judy Unwin took part in the Great North Run 2012 and raised £615.

In Memory of Marcus Armstrong • Tony Armstrong sent in a donation of £200 raised by Steve Folwy, the coach at Ipswich Town FC.

• Tony Armstrong forwarded a donation of £150 which was raised at the Larksfield and Douglas Road Street Party for the Jubilee celebrations in memory of Marcus.

• “I recently married and the kind man who supplied my

wedding car refused to accept any money and instead requested that I donated money to a chaity of my choice” Helen Armstrong sent in a donation of £100.

In Memory of Carl Ashcroft Chelsea Petty forwarded a £200 charitable work donation from St Helena’s School.

Fundraisers

• David Brown, President of the Reigate Rotary Club, sent in a donation of £250.

• Rosemary Attridge sent in a donation of £167.70 from her friend, Mrs Munro who held a fundraising event in memory of Stuart and £160 from her card making.

• Rosemary Attridge sent in a donation of £170.50 in respect of the sale of her hand made cards.

In Memory of Raj Bagga Ravi Sudera and Dips Kalsi took part in a golf event at the Humberstone Heights Golf Club on 6 July, 14 hours to complete 101 holes, and raised £16,887.60 in memory of Raj. This event was also supported by Raj’s family and friends.

In Memory of Cecilia Barriga Mike Fleet sent in a donation of £562 from a recent collection.

In Memory of Lewis Barry Beth Gordon completed a Bungee Jump and raised £195.

In Memory of Gideon Baws Tony Baws forwarded a donation of £100 from Bill and Helen.

In Memory of Gareth Thomas Beckett “Please find enclosed a cheque for £393 that was donated at my son’s golf memorial day held on 8 October at Knebworth Golf course. Gareth passed away to SADS on 14 September six years ago. We have held a golf day in Gareth’s name every year.

Graham Jones has always organised a special day for this event with fantastic raffle prizes. Darren Nash has always sponsored the trophies. This year Volkswagon sent numerous raffle prizes and a very special gentlemen, George Smith, joined us for the first year and raised money by not shaving for a few weeks. His enthusiasm encouraged many others to donate. From our family I would like to say ‘thank you’ to all those people who donated prizes and financially supported the day. Thank you for helping my son’s memory live on.” Sandra Pikesley (Gareth’s mum).

In Memory of Richard Belton Mrs A Belton sent in a donation of £500.

In Memory of Graeme ‘Tinka’ Bell Kelly Gleadow took part in the Great North Run 2012 and raised £416.

In Memory of Stuart Attridge • Rosemary sent in a donation of £350 from Mr & Mrs W Westbridge and £20 from Mr & Mrs R Howlett.

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CRY update • Issue 59 • 39

Our

Fundraisers In Memory of Sarah Bennett Kerrie Player and Emma Preston took part in the CRY Heart of London Bridges Walk 2012 and raised £425.

In Memory of Kasia Ber • Bhana Baker, Christopher Baker, Julie Bellerby, Peter Bellerby, Chris Ber, Diane Ber, John Ber, Debbie Brady, Nicola Brady, Adam Bradley, Janet Brown, Claire Burlinson, Denise Dunn, James Dunn, Laura Dunn, Martin Dunn, Michael Dunn, Mick Dunn, Nora Dunn, Vicky Dunn, Margaret Fitzpatrick, Tommy Fitzpatrick, Anita Foster, Gavin George, Daniel Gething, Sarah Graham, Alan Hodgson, Thomas Hunt, Jade Jepson, Jeff Kincade, Julie Kincade, David Laidler, Peter Lamb, Shirley Anne Lamb, Claire Lavery, Dawn Lavery, Amy Mckenna, Kyle Osborn, Stacey Proudlock, Ross Pygall, Luke Saxton and Dawn Sanderson Taylor took part in the CRY Durham Riverside Walk 2012 and raised £770.

• Diane Ber forwarded a donation of £266.50 raised by F.C.

Easington who held a charity football match in memory of Kasia: “The day went really well with a great buffet and a singer/guitarist. All the footballers wore a CRY T shirt during their warm up and the sun shone all day!”

Mayor attended and thoroughly enjoyed the evening. Our local newspaper, Tamworth Herald, provided a write up and photos of the event, which pleased us greatly as it raised awareness of the organisation and mentioned our forthcoming screening on 27 and 28 October. The cheque was given to us by Simon and Lyn Rider who are Directors of Bolehall Manor Club. They worked tirelessly to organise the event.” Ursula Bick sent in a donation of £1,068.

Left to right: Ursula Bick, Tina Clements (Tamworth Lady Mayor) and Simon Rider

• “Please find enclosed a cheque for £350. This was

raised on 27 and 28 November when we held a weekend ECG Screening at Rawletts School. Whilst families and individuals were waiting to be tested we offered refreshments (tea, coffee, biscuits and fruit squashes) at a nominal charge. Voluntary donations were also given towards the next screening in the West Midlands.” John and Ursula Bick.

In Memory of Edd Billig The Waverley Singers held a concert at the Farnham Maltings on 4 November and sent in a donation of £470.

In Memory of Edd Billig & Chris Caroline Hatwell completed the Richmond Park 10K and raised £240 in memory of Edd and Chris.

• Diane Ber sent in the following donations: £100 from the Royal Signals Association; £90 from Diane’s neighbour, Susan, in lieu of gifts on her 60th birthday; and £115 from Raynaor Garside from the sale of her CD’s.

In Memory of Robert Betts Jonathan Parish, CITB Construction Skills, sent in a donation of £130, raised at a five-a -side football competition he organised at his workplace in memory of his colleague, Bob Betts.

In Memory of David Bick • “On 17 August Bolehall Manor Club, Tamworth, held a Charity Party Night for CRY (West Midlands). It was a very successful evening, with a disco, raffle and tombola, also an excellent buffet was provided. Tamworth’s Lady

40 • CRY update • Issue 59

In Memory of Lydia Bird • Cathy Bird sent in donations totalling £3,540; Albany Road Church Ladies Circle £525, Ms D Briere de I’Isle Engelhardt, Moondance Foundation, £3,000 and a patient donation of £15.

• Cathy Bird sent in a donation of £735 which was raised

from the sale of raffle tickets before the performance of Bugsy Malone at the New Theatre Cardiff.

• Cathy Bird raised £705 in respect of the Cuba Cycle Challenge, making a total raised of £1,671.

In Memory of Kelly Blair Jamie Blair completed the Edinburgh Half Marathon and raised £480.

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Our

profit which is included in the donation. I organised a Keynsham and Saltford torch relay for all the schools and sports clubs in the area. I then created a photo story of the event which I sold at a small profit to raise funds. During Olympic/Paralympic Week we had a ‘fun fair’ for the students on the artificial pitch. The profit from this event is also included. I do hope that this donation will support the great work that you are doing.” Louise Riddoch, Director of Specialism, Wellsway School.

In Memory of Mathew Blease • Mark Blease completed the British 10K and raised £515.

“I wasn’t really actively looking for sponsorship but wanted to give some more back to CRY for all the help you have given me over the years since my brother passed away.

I mentioned it to my colleagues at work and my total has rocketed! I can’t thank every one of my colleagues at Skechers enough at how wonderful they have been.

Also a big thank you to my family and friends who willed me on and sponsored me, making the 6 miles that much easier knowing I had their support.

The day was great, perfect temperature and a little sprinkle of rain to keep me cool, along with music played around the route to keep me motivated. Fantastic support on the day by all the crowds that came to spectate.

Although I was separated from my friend at 2km, and forgot my watch to time myself(!) I managed to keep a good steady pace and finished just outside my 1 hour target time at 1 hour 4 minutes.

• Fiona Bell sent in a donation of £500 which represents

donations received, in lieu of gifts, at her anniversary dinner.

• June Boulton sent in a donation of £292 in respect of sponsorship for the Bristol Half Marathon on 30 September.

• CRY has received a matched giving donation of £175 from Unum.

In Memory of Jamal Bouzid Hilary Fulton took part in the CRY Heart of London Bridges Walk 2012 and raised just under £100.

In Memory of Ian Bowen Maralyn Bowen and her friend, Lil, held a Tombola in Morrison’s and raised £170.

In Memory of Dave Bramwell & Emma Broad Lisa Bramwell and Judy Broad took part in the CRY Great Cake Bake 2012 and raised £1,048.80.

In Memory of Emma Broad • Judy Broad sent in a donation of £135.80.

• Kathryn Lane took part in a charity Hockey

Match on 11 December and raised £250.

•Saskia Ruys completed the Windsor Half Marathon on 7 October and raised £300.

All in all, I had a fun day running around the streets of London in memory of my brother Mathew.” Mark Blease.

• Jessica Stevens took part in the CRY Heart of London Bridges Walk 2012 and raised £110.

In Memory of Jack Boulton • “I am delighted to enclose a cheque for £1,055 which we would like to donate in memory of Jack Boulton, one of our students, who sadly died in August 2009 whilst playing football at his local club in Saltford. The money has been raised in a number of ways as we celebrated the lead up to the London 2012 Olympic and Paralympic Games. Over three years ago we adopted the 7 Olympic and Paralympic Values as our whole school values and each term we have a particular focus on each value. During ‘Inspiration’ term I organised a Wellsway’s Got Talent Show which raised a significant amount. We had a large number of wristbands made with the 7 values on and sold them to make a small

www.c-r-y.org.uk

Fundraisers

“On the 11 December at Oakham School on a foggy (and almost frozen) hockey pitch, 16 staff and 16 pupils battled it out to not only receive glory, but more importantly to raise money for the charity CRY in memory of Emma Broad, a past team mate and a friend.

Everyone who was involved had a wonderful time, getting into the spirit and dressing up (staff were meant to be athletes and pupils were ‘mathletes’, but the outfits did vary a little). Those who came to watch supported brilliantly and

CRY update • Issue 59 • 41

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Fundraisers

helped our fundraising efforts by donating, taking penalty flicks at half time and purchasing hot chocolate to prevent hypothermia from setting in.

Thank you to everyone who played, helped, supported and donated in any way. We managed to raise £250 which was a huge achievement! Special thanks should go to Emma’s Mum (Judy Broad) and her cousin who came up to support; as well as Jackie Sharp (England Under 16 Manager) who also attended.

• Hillary Mead sent in a donation of £1,350 from the Yesterday’s Farming Agricultural Show.

• Richard Findall completed the Blenheim Triathlon and raised £435.

• Hillary and Bill Durrant

sent in £300 raised from public donations in appreciation of being able to watch Bill carry out his Pole Lathe Turning craft from May to the end of September at various Village Street Fairs and Agricultural shows.

• Mr R Rowe sent in a

Thank you as well to the staff who agreed to play (and were beaten 3-2, I should add) and probably did not feel like moving much the next day! It was a great event and I’m proud we could support the charity and remember Emma in this way.” Amelia Milton & Kathryn Lane.

donation of £250.95 raised at the collection from the Knowstone Church Thanksgiving service on 29 September.

In Memory of Greg Brookes Judy Brookes took part in the CRY Great Cake Bake 2012 and raised £220.

In Memory of Alex Buckler • Charlotte Buckler and Christel Thunell took part in the Bupa London 10,000 and raised £1,505.

• “The annual Ballands Bowmen Shoot took place on our farm once again this month. They very generously always hold a raffle for CRY in memory of Alex and this year was no exception. The enclosed cheque for £196 is the result of the raffle, the usual ransoming of lost arrows found on the course and donations.” Rosalind Bucker.

In Memory of Dr Jennifer Bucknell • The South Molton Vintage Rally Club sent in a donation of £3,000 raised at the Tractor Runs and Vintage Rally weekend in June.

•Sophie

Howles sent in a donation of £1,350 raised at the Memorial Dinner held on 30 June in memory of Jennifer.

42 • CRY update • Issue 59

• “On 31 October I had another ‘milestone’ birthday and

being of an age where material things are no longer of vital importance I asked friends and family if they wished to make me happy in celebrating could they think of CRY. They all came up trumps and I enclose a donation of £225 in memory of Jenny.” Hillary Durrant.

• Hillary and Bill Durrant sent £150 which was raised by

a raffle at the Chaffcombe Village Hall Harvest Supper evening on 12 October.

• “On 28 October we held a Quiz Night at the Lordleaze Hotel,

Chard. The quizzes are held regularly and raise money for various needy causes. We approached the organiser last year and we were fitted into the new season for the Sunday Quiz to be run, including the raffle for the benefit of CRY and in memory of Jenny. Thanks to our advertising efforts we managed to achieve some 16 teams and the grand sum of £200 was raised. Needless to say Bill and I were in the team which just managed to keep off the bottom!” Hillary and Bill Durrant.

www.c-r-y.org.uk

Our In Memory of Robert Burns Doreen, Jimmy and Paul Burns sent in photos from the fivea-side football tournament that raised £1,100.

Fundraisers

In Memory of Nathan Butler & Elsie Gleaves “Please find enclosed cheques totalling £250.50. This has been donated by my Uncle Jack Gleaves and cousin Susan Gleaves from funeral donations following the sad loss of their mum, Elsie Gleaves.” Angela Butler.

In Memory of Graham Button Paul Bishop, Alison Button, Debbie Button, Hollie Button and Michael Button took part in the CRY Heart of London Bridges Walk 2012 and raised a further £686 making a total raised of £816.

In Memory of Paul Buxton John Buxton completed Liverpool 10K Tunnel Run raised £100.

the and

In Memory of James Cann Stephanie Cann sent in a donation of £150, in lieu of gifts at their Golden Wedding anniversary.

In Memory of Jake Carney “My brother Peter and I have just completed Hadrian’s cycleway, a ride not dissimilar to the Coast 2 Coast which we undertook last year.” Dave Carney sent in a donation of £330.

In Memory of Trevor Carter, Adam Lambert &

Jenny Lambert

Katie Lambert and Conny Carter took part in the CRY Great Cake Bake 2012 and raised £228.72.

In Memory of Nathan Butler • “Please find enclosed cheques totalling £1,875 which are donations received during a fundraising day at Porthill Park Cricket Club for the Nathan Butler Memorial Cricket Tournament. The day was a huge success organised by one of Nathan’s friends, Dan Hancock. The tournament consisted of six teams of six players playing two matches each and then going forward into the semi final and the final. The winners were the “All Stars” team. Friends and family helped us to provide teas for the players, a BBQ, a bouncy castle, penalty shoot out, face painting and netball shoot, as well as organising a raffle with many lovely prizes donated by local businesses. The event went on well into the evening and a good time was had by all.

Nathan would have been proud that so many people donated so generously in his memory. Part of the donation of £500 was from our local Royal Bank of Scotland.” Angela Butler.

• Anthony Davies raised £575.50 in respect of the Potters ‘Arf Marathon, in memory of his nephew, Nathan.

• Dean Wilton raised £351 in respect of the Potters ‘Arf

In Memory of Carmen Catanescu Lisa Haynes sent in a donation of £1,000 from the sales of beauty products.

“My sister Lisa raised £1,000 from a charity sale that she organised in October. My girlfriend Carmen died suddenly on the 25 September from a ruptured aortic. View my story here: www.c-r-y.org.uk/haynes_my_story.htm” Stephen Haynes.

In Memory of Luke Chapman • Tracy Bourne completed a sponsored walk on 22 and 23 June and sent in a donation of £450.

• Tammy Turner sent in a donation of £100 raised by her son

and his football team in memory of their close friend, Luke.

In Memory of Sam & Beverley Anne Chawner We have received a funeral donation of £676.22, in lieu of floral tributes, for the late Beverley Anne Chawner.

Marathon in June.

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In Memory of Anthony (Budgie) Child • Angela Child sent in a donation of £1,190, raised at the annual CRY Line Dance event in memory of her son, Anthony, who passed away 7 years ago.

• Angela Child forwarded a dontion of £100 from her friend Louise, who held a raffle at her Line Dance Social.

In Memory of Derek Chowne We have received a funeral donation of £291.40, in lieu of floral tributes, for the late Derek Chowne.

In Memory of Pippa Chowne • ‘4PIP’ - A concert to pay tribute to a very special young lady. “We were all very shocked and upset just before Christmas by the sudden death of Pippa Chowne at just 15. When we came back to school as 5H, Pip’s tutor group, we discussed what we could do in a positive way to remember her. Bradley Gill suggested a concert and very quickly it all fell into place with many members of the fifth year wanting to contribute in some way. It took less than a month to put together, under Bradley’s direction, and with help and support from Malcolm Wyatt our Theatre and Events technician. It was an evening of entertainment, music, dance, reading and poetry including original material and a special photomontage put together by Anu Bose. Shiskha Gill made heart shaped biscuits using Pip’s own recipe to sell during the break. We supported Cancer Research UK because Pip used to volunteer in their shop in Leamington Spa and CRY. The evening was a huge success, brilliantly led by Marcus Gill, Andrew Dobson and Charlotte Cooper, who introduced each Act explaining the reasons behind them. Megan Evans, 5F, also recorded a CD in memory of Pip

for which she asked for voluntary contributions to go to CRY. The total raised for CRY was £3,019.36.” Alyson Heath, Tutor, Bablake School.

“It gave me hope, seeing everybody pull together” Andrew Chowne - Pip’s father.

“It was very much the pupils’ idea and I think it was a remarkable tribute to a very special young lady. The performances came from the heart and beautifully expressed how much we all valued Pippa as a friend.” Mr. Watson.

• Ann-Marie Stephens held a Zumba evening and raised £822.50.

In Memory of Liam Chronnell Caroline English took part in Run to the Beat 2012 and raised £545.

In Memory of Tom Clabburn • Ruth Akins, David Bentley, Edward Bentley, Baerbel Carpenter, Tim Carpenter, Paul Clabburn, Alastair Clunas, Mariita Eager, Tess Gomm, Robin Gould, Angelique Halliburton, Rita Jones, Helen Lewis, Claire Matthews, Grace Matthews, Pete Matthews, Alison Montgomery, Christian Panzer, Gottfried Panzer, Linda Panzer, Chris Pearson, Gina Pierce, Jonathan Piggott, Claire Prosser, Gordon Prosser, Neil Prosser, Samantha Prosser, Kate Riley, Alan Rodney and Mike Scott took part in the CRY Heart of London Bridges Walk 2012 and raised a further £172.50 making a total raised of £570.

• Rajeev Gupta raised £238 in respect of the Bhangra Class fundraising event.

• Lewis Cudd took part in the Bupa London 10,000 and raised £205.

• Helen Barnes sent in a donation of £108 from the sale of books to her work colleagues.

• Paul Clabburn sent in a donation of £100.

In Memory of Darren Clark • Debbie Clark sent in a donation of £1,119.65 raised at various fundraising events in memory of Darren.

• Stephen Clark, Victoria Clark and Nathan Standley took part in the Great North Run 2012 and raised £1,055.

In Memory of Nick Clay Adele Taylor completed the Hell Up North run on 3 November 2012 and raised £5,180.

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Our In Memory of Ian Michael Cooper, Andrew Michael Cooper &

Fundraisers

kids games with prizes etc. We also had Dominic Cullen memorial wristbands made which we sold

Ronald John Harrison

Sandra Cooper sent in a funeral donation of £346.50 in memory of her father, Ronald John Harrison, who passed away on 24 June. He was the ‘lovely grandfather’ to her two deceased sons, Ian Michael Cooper and Andrew Michael Cooper, both cardiac cases.

In Memory of Matthew Cooper “Please find enclosed a donation of £100. I am Matthew’s mum and have recently got married and instead of presents we asked if people would donate to your charity. Keep up the good work. Your screening with Professor Sharma is so worthwhile for families like ours; my son Daniel has been given the all clear which mentally has helped me.” Debbie Angel (formerly Cooper).

In Memory of Sarah Corbett & Lee Jordan Tim Hook took part in the Bupa London 10,000 and raised £202.

In Memory of Marion Corre-Labat Genevieve and Rosie Helson took part in the Bupa London 10,000 and raised £585.

In Memory of Bruce Cousins • “ E n c l o s e d is a donation of £278 being the proceeds of a raffle held at a disco and get-together, organised by our son’s friend, Nathan Fereday, to mark the third anniversary of Bruce’s death. Bruce’s two year old niece, Daisy, wore her first Sheffield United football kit. Bruce, being a lifelong “Blades” season ticket holder would approve of her outfit although would not be happy with their recent ‘form’!” Jackie Cousins.

Auction prizes included rugby tickets, signed rugby shirts and signed balls among other great items. The game wasn’t too serious with a lot of people having played the day before, it was refereed by ex-international referee Chris White and was attended by a few professional rugby players from Gloucester RFC and Worcester with a couple having a little run out (Shaun Knight, George Porter).

It was an extremely sad and difficult day for everyone involved however it was quite a humbling experience to know that we were doing something good in memory of a great individual and to see so many people turn up was testament to the type of person he was.” James Correia.

• Jackie Cousins sent in a donation of £109 which was raised from the sale of items donated by family and friends at a car boot sale in Denaby.

In Memory of Robert Crozier Louise Crozier, Angela Edgerton and Blaise Jenner took part in the CRY Heart of London Bridges Walk 2012 and raised £252.

In Memory of Dominic Cullen James Correia sent in a donation of £5,202.17 raised at the Charity Fun Day on 9 September in memory of Dominic.

“On the day we had huge support and raised £5,202.17. The money was raised through a raffle, auction, cake sale, food and

www.c-r-y.org.uk

In Memory of Simon Cullum • Maralyn Cullum sent in a donation of £1,596.46 raised at the Fundraising Concert on 19 October in memory of Simon.

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Fundraisers

• Tony Norman took part in a Boxing event in July and raised £340 in memory of Simon.

“On 28 July Tony Norman of Tony’s Boxercise did an 8hr Marathon exercise class in Great Yarmouth.

People paid £4 per class and the event was very well attended, it was a great atmosphere.

Cass and Alfie Cullum helped on the day by taking the money for the classes on the door. Tony raised a fantastic amount of just over £1200 on the day and I would like to say a big ‘Thank You’ to him and also everyone who took part and also those who were unable to attend but still donated.”

In Memory of Charlie Curtis Olivia Wise took part in Run to the Beat 2012 and raised £375.

In Memory of Stuart Cutler Nigel Sterrick sent in the following donations in memory of Stuart; £1,004 from a sponsored walk across the Forth Road Bridge on Sunday 29 July 2012 and £478 raised at a 50’s themed Retro Party Night, Sunday 6 October.

On Sunday 26 August 2012 the Scottish Friends of CRY Group held a sponsored walk over the Forth Road Bridge to raise money and awareness.

“Thank you so much for your help recently with the Forth Road Bridge Walk, we had over 30 people attend, and the star of the show was the stilt walker Jon Milligan who was a great hit on the bridge.

I have spoken to other members of Scottish Friends of CRY and we have decided to make it an annual event in Scotland to mirror that of the London Bridges Walk and the Durham Riverside walk.”

Natalie Cutler.

“We also held a stall for CRY at the Gorleston Clifftop Gala on the day. The event was well attended and we handed out lots of information leaflets and raised £150.

Also on the day I was presented with a £500 cheque from Samantha Hood on behalf of Darby & Liffen Estate Agents for Simons Memorial fund, which was fantastic so a big Thank You to Owen Darby and Samantha.” Marilyn Cullum.

In Memory of Ben Daniels • Martin Hendry completed the London to Paris cycle ride and raised a further £1,575, making a total of £4,200.

• Martin, Patrick, Chris, Edna, Alec and Michael (The Wheeler Dealers) raised £2,625 in respect of the London to Paris Cycle Ride on 4 May. • Sean Thomson raised £1,838 in respect of the John O’Groats to Land’s End event.

• Nichola Carter completed the Cranbrook Triathlon and raised £1,075.

• Helena Daniels sent in a donation of £1,000 raised during

the enterprise week at Ravens Wood School, £30 from Emma Siddiqui and family and £117 donated by Old

46 • CRY update • Issue 59

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Our Elthamians Cricket Club junior members who had their photographs taken with an Olympic torch and its bearer.

• “My wife Janice and two sons, Christopher and Nicholas,

In Memory of Sarah Didinal Kate Parkinson sent in a donation of £150 in memory of her friend, Sarah.

and myself climbed Ben Nevis over the Jubilee weekend.

Scotland certainly faired better in the weather stakes, which made our challenge much the pleasanter - there was snow on the top and the views were fabulous. We did this in memory of Ben Daniels. My eldest son, Christopher, played in the same football team.” Charles Shopee sent in a donation of £775 and £750 from the Beckenham Round Table.

• Ravens Wood School sent in a donation of £300.

In Memory of Christopher Dixon • Aimee Freeman sent in a donation of £284 in respect of the sponsored walk from Swanage to Studland in memory of Christopher.

• Mrs P Peat sent in a donation of £230 in

respect of Aimee Norman’s sponsored walk in August 2010.

• Vanessa Mogridge sent in a donation of £150, raised in respect of John Turnbull’s GR11 Pyrenees Trek in June.

• Rob Kennedy took part in the Bupa London 10,000 and raised £285.

• Dean Houlden, Halena Houlden, Nigel Walton, Sharon

Walton, Jo Wright and Michael Wright took part in the CRY Heart of London Bridges Walk 2012 and raised £116.84.

In Memory of Margaret Jean Dolan We have received a funeral donation for £180, in lieu of floral tributes, for the late Margaret Jean Dolan.

In Memory of Adam Donnelly • Julie Donnelly sent in donations totalling £5,400 which was raised at the Ball held on 29 September in memory of Adam.

In Memory of Neil Darby Gary Baxendale took part in the Great North Run 2012 and raised £300.

In Memory of Paul Davies Darren Caddick, Nicola Caddick, Clare Chamberlain, Dave Chapman, Shelly Chapman, Benita Davies, Gill Godfrey, Carl Harrison and Lindsey Harrison took part in the CRY Heart of London Bridges Walk 2012 and raised £140.

In Memory of Michael Dean Patricia Dean sent in a donation of £100 in memory of her son, Michael, who died suddenly in 1993.

In Memory of Neil Desai Adam Bews completed the Lake Placid Half Marathon and raised £645.

Fundraisers

“On 29 September, we held the 4th CRY ball in memory of Adam at the Hilton, Dartford Bridge. This was the biggest event we have had so far with 180 people attending - the evening started with a 3 course dinner followed by after dinner speeches by Rob Sellens whose son Jack (through the CRY screening programme) was identified as having a heart condition. Thankfully, he was treated and is now fully recovered and fitter than ever – it was great that people attending could hear first hand how their money is used by CRY.

In Memory of Kevin De Silva James Firman and Paragon Law took part in the CRY Great Cake Bake 2012 and raised £156.36.

In Memory of Matthew Dewhirst • Sue Dewhirst sent in a donation of £629 in respect of the sponsored row in memory of Matthew.

• Sue Dewhirst sent in a donation of £506

raised at two fashion events on Thursday 13 and Friday 14 September.

In Memory of Luke Dickinson • Matthew Dickinson, Jonathan Hardman and Stephen Sourbutts took part in the Great North Run 2012 and raised £835.

• Matt Dickinson sent in donations totalling £179.58; £152.79

from the Green Squirrel public house and £26.79 from the Crown House public house collection boxes.

www.c-r-y.org.uk

Sian (Adam’s sister) also spoke which was a very moving and emotional talk about her own personal experience of how important the screening programme is after being diagnosed with Brugada syndrome and having an ICD fitted. She also gave a big thank-you to her cousin Paul Williams who, in August, had cycled 280 miles from Anglesey to London and had raised £3,400 through his fundraising page and through HSBC who matched some of the sponsorship.

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Fundraisers • Sinead Bode took part in the CRY Great Cake Bake 2012 and raised £177.70.

In Memory of Adam Drawbridge • Elsie Drawbridge sent in a donation of £200 in memory of her grandson, Adam.

• Ann Fleming sent in a donation of £100 in memory of her great nephew, Adam.

We were also presented with a cheque from Gwenda Parry (Julie’s cousin) who, as President of the Anglesey Soroptimist Society, nominated CRY as their charity and they raised £1,256.63 in the year of her office.

This was followed by an auction of items that had all been kindly donated by various people and companies. Our niece Sara Williams managed to get a signed Fabrice Muamba Bolton FC shirt for us to auction which was the biggest seller on the night - raising a fantastic £500.

There was a raffle with lots of prizes and then all took to the dance floor until 1am.

As ever, we are so grateful for the very generous support of everyone who attended – the evening was a great success and raised £5,315.” Jed & Julie Donnelly.

In Memory of Neil Drew Philip Drew sent in a donation of £265.75 in respect of the golf day in memory of Neil.

In Memory of Leslie Elkington Amanda Law, Jack Paling, Perry Paling and Mark Taylor took part in the CRY Durham Riverside Walk 2012 and raised £309.10

In Memory of Peter Elliott “Please find enclosed a cheque for £1,135.59 raised at the tribute night held at Eden Court Theatre on Monday 1 October 2012. Peter passed away in May 2010 at the age of just 21. He was an amazing peson who made such an impact on so many people and his sad passing is still being felt today. We screened the Michael Jackson film ‘This Is It’ as Peter was such a big fan. There was also a raffle held and cupcakes were baked, all of which helped towards our total. So many people gave us their time and generosity in honour of Pete and for such a good cause.” Kimberley Lee and Graeme Watson, on behalf of Eden Court Theatre, Inverness.

In Memory of Howard & Sebastian

English

Allie Davies and Sophie • Spink took part in the CRY Great Cake Bake 2012 and raised £463.59.

• Caroline Davies took part in the CRY Great Cake Bake 2012 and raised £150.

• Julie Donnelly sent in a donation of £1,256.63 raised by

fundraising at the Anglesey Soroptimist Club, £90 from Our Lady of the Rosary Golf Society and £145 from Mick Kirwan who organised a five-a-side football tournament.

In Memory of Sebastian English • Mr R Kimber, Lord Wandsworth College, sent in a donation of £500 raised at the 9th Charity Ride which took place in Wales over six days in July: “The pupils were mostly 13-year-olds, many having never done anything like this before.”

• Rich Irving took part in the Great North Run 2012 and raised £299.

• Susan Joyce sent in a donation of £100 in memory of Sebastian.

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Our In Memory of Leanne Faulkner Michelle Faulkner sent in a donation of £1,545.95 which was raised at the Charity Race Night in memory of Leanne.

In Memory of Jenny Finney The Finney family (Katharine, Jack, James and Simon) completed the Great South Run 2012 and sent in a donation of £260.

In Memory of Josh Fell • The Rotary Club of Hornsea & East Riding sent in the following write-up after raising £1,500.

In Memory of David Fisher We have received a funeral donation of £156.55, in lieu of floral tributes, for the late David Fisher.

“The Rotary Club of Hornsea & East Riding held three events in spring 2012 for CRY in memory of local boy Josh Fell who was a pupil at Hornsea School and Language College, who died on 9 June 2011.

In Memory of Thomas Fleetwood • Elise Fleetwood, Tom’s wife, sent in donations totalling £16,992 from Tom’s Memorial five-a-side Football Tournament and Family Fun Day on Sunday 5 August. This included a matched giving donation of £1,000 from Deutsche Bank and £750 from the Amec Group.

“A fantastic concert packed Toll Gavel Church in Beverley in February, organised jointly with the Rotary Club of Beverley, with Ti Amero – a group of four fabulous men originating from Hull and local pupils from Longcroft School in Beverley and John Murray jazz pianist and his friends.

“A 60’s night in the Floral Hall in Hornsea in March brought back memories of its hey-day with local original 60’s band Chapter 4.

“At our annual Hornsea Third Marathon, held on 1 April, the team event winners from the 10 Coffee Shop in Hornsea (Mike Atkinson, Joanne Forrest, Lewis Forrest, Dan Gilliott, James Harrison and Pete Marson) all managed and massaged by Tim Bunch, kindly gave the whole of their £500 team sponsorship prize from Nuffield Health to CRY.

Fundraisers

“We are delighted to have given this marvellous amount of £1,500 in memory of Josh, who was such a valued member of the local school community and are so glad too that the runners from 10 Coffee Shop made it up to £2,000. Josh was a young man who just went out for a game of football with his mates but who never came back. Everyone will remember him.” Andrew Eastwood, Rotary President.

Family and friends of Tom, who died suddenly last year, held a football tournament and fun day in his memory on Sunday 5 August 2012.

Elise organised the huge event, which more than 1,000 people attended at Rayleigh Town Sports Club. Tom was 28 when he died suddenly after returning from a game of squash last year and CRY has helped Elise since Tom passed away with advice and support. This was a way to give something back and do something positive in such a difficult and sad time.

Elise said: “The day was so incredible and emotional. To see that many people turn out to celebrate Tom’s life was just amazing. Tom spent eight years playing for Rayleigh Boy’s Football Club.”

• Donna Fell sent in donations totalling £998,50; Hornsea

Slimming World Club donated £798.50 from a sponsored Bike Ride and the Reverend Knapton and his wife donated £200.

• Donna Fell sent in a donation of £543.75 raised by Dawn

Douglas in respect of sponsorship for the Lyke Wake Walk.

• Ali and Andrew Hornby took part in the Great North Run 2012 and raised £480.

• Sharon Eastwood sent in a further

donation of £423.10 in respect of her static line parachute jump, making a total raised of £518.10.

• Carter Sellars completed the Leeds Junior Run and raised £138.

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“It’s been overwhelming but there’s been a constant flood of offers of raffle prizes, people giving time and doing so much for us.”

Sporting challenges proved very popular, with friends and family volunteering to walk, run and cycle to help us reach the £10,000 target.

It was an idea dreamt up in the pub and resulted in 30 teams turning out and offering wonderful support for the event. There were stalls, a DJ, bouncy castle, pamper treatments, a raffle and an auction including Chelsea captain John Terry’s signed boots worn in the 2006 World Cup.

College friends around the country raised money in many different ways, including a pub quiz, a cake sale and running 100m wearing a heart costume at the Olympic track.

In June, Sophia’s Gang members battled against the elements and successfully completed the Yorkshire Three Peaks Challenge and National Three Peak Challenge – climbing Ben Nevis, Scafell Pike and Snowdon in under 24 hours!

Dad and his partner Ishbel impressively cycled 220 miles around France in 5 days and climbed two of Scotland’s highest mountains - raising over £5000 in total!

By mid-June we passed the £10,000 target. We set a new target - £20,000.

Ambitious yes, but I had witnessed the force of Sophia’s Gang over the first 6 months and it was not to be underestimated.

More events followed including primary school pupils raising money at The Gleddings Preparatory School and 10 of us climbing Snowdon. We love our mountains!

As we approached Sophia’s birthday I experienced a rollercoaster of emotions and we were so close to £20,000…

On 3 October, Sophia’s Gang rallied round and amazed me once again as we flew past £20,000 and hit £21,153.75! (including Gift Aid).

Reaching £21,000 in time for Sophia’s 21st birthday, I am a very happy sister and extremely proud of everyone involved in Sophia’s Gang.” Natasha Forrester.

• “I write on behalf of the employees at Olympus KeyMed,

who held a Dress Down Day and raffle on Friday 3 August to support CRY. This charity was nominated after a member of staff’s close friend received support after her husband unexpectedly passed away in 2011 at the age of 28 years old. The amount raised by the employees reached an amazing £841.33. The Directors have agreed to donate a further £841.33 as a corporate donation and therefore I am pleased to enclose a donation for £1,682.66.” Zoe Chapman, Olympus Social Club Secretary and Event Organiser.

In Memory of Sophia Forrester • Sophia’s Gang raised £21,153.75 (including Gift Aid) to commemorate Sophia’s 21st birthday.

“What started as a few of us meeting up for Christmas drinks discussing doing one walk for CRY in memory of my sister Sophia (right) evolved into slightly more than that…

‘Sophia’s Gang’ was created; a group of Sophia’s family and friends from school, college and university. In January 2012 the challenge was set to raise £10,000 by 4 October 2012 – Sophia’s 21st birthday.

We wanted to raise awareness of the great work of CRY and the challenge provided a good opportunity for everyone who missed Sophia to work together in her memory.

One of the first events Sophia’s Gang held was An Evening with Adele Parks, in Preston. As Sophia’s favourite author, Adele was the perfect special guest and the evening was great fun and as a result Sophia’s Gang raised over £1000 that night.

Tim Forrester and Ishbel

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Our

Fundraisers

from Dan Moraga, £386 from Jennifer Munro, £360 from Jason McCouaig, £175 from Martin Pearson, £952 from Lucy Salmon and £974 from Fay Sharpe.

Franky Jones and Billy Silcock on top of Ben Nevis (as part of National Three Peak Challenge)

“Fifteen staff members of the Zibrant meetings and events agency, including Joint Managing Director, Fay Sharpe, have completed a 482-mile cycle ride from their offices in Paris to global operations base in Derby over six days to raise over £15,000 for charity. They were welcomed on their return by the Mayor of Derby, Councillor Lisa Higginbottom, at a party supported by leading meetings industry brands.

The ‘Tour de Zibrant’, which took place from the 21 to the 26 of July, supported three charities: Cardiac Risk in the Young (CRY), which raises awareness of conditions that can lead to young sudden cardiac death; Send a Cow, which supports communities in Africa by providing livestock and training; and Muscle Dreams, which delivers amazing and unforgettable experiences for children and young people in the UK suffering from the muscle wasting disease Muscular Dystrophy.

Natasha Forrester and Adele Parks

• Myles Taylor completed the National Three Peaks Challenge in 24 hours and raised £125.

In Memory of Homi Framroze Taylor Rose Law LLP sent in a legacy donation of £1,500 from the estate of Homi Framroze.

Says Fay Sharpe, Managing Director – Sales and Marketing, for Zibrant, ‘The Tour de Zibrant has been an amazing experience and a terrific show of teamwork – we’ve had enormous hills, punctures, the odd collision, emergency gel seats, and gone through vast quantities of chamois cream – but we made it. It is a great privilege to be able to support these very deserving charities and we are very grateful for all the sponsorship received. Also I am so very proud of the team for showing such incredible spirit.

Although we trained hard in advance, most of us are not ‘proper’ cyclists and it was very tough at times, but no one was giving in and it was a truly uplifting experience.

In Memory of Max French Alison James took part in the Bupa London 10,000 and raised £210.

In Memory of Lyndsey Galligan McLaughlin James Galligan sent in a donation of £100.

In Memory of Sarah Gamble The ‘Tour de Zibrant’ cycle challenge took place in July 2012. We have received the following sponsorship donations: £256.54 from Dan Allsop, £590 from Simon Crossley, £857.50 from Gareth Crowder, £150 from James Goulder, £520 from Natalie Harper, £280 from Christopher Holt, £701.99 from Richard Money, £357

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Fundraisers

In Memory of Stephen Gately • Claire Gately forwarded a matched giving donation of £500 from Tony’s employer, First Travel, in respect of the Great Scottish Run in memory of Stephen.

In Memory of Ashley Goodwin Linda Goodwin took part in the CRY Great Cake Bake 2012 and raised £231.

In Memory of Craig Graham Lindsay Graham sent in a donation of £300 in respect of a Charity Night in memory of her brother, Craig.

In Memory of Jordan Grant • Preston City Council sent in a donation of £633.

• Lisa Grant sent in the following donations: £551.05 from the Halloween Party organised by Annie Chew and £114.55 from the Cake Sale, organised by Carolyn Lonsdale.

• Susan Harnetty took part in the CRY Great Cake Bake 2012 and raised £200.

In Memory of Salena German Jackie German sent in a donation of £100 from a collection box.

In Memory of Alexander Christian Goodman • “Please find enclosed a cheque for £515. This money was raised from the sale of hand-made Christmas cards with the usual refreshments and raffle. We had a glorious day and everyone said how much they enjoyed it. In the morning we served tea, coffee and Christmas nibbles. In the evening friends from the Scraptoft wine circle (of which we are members) made a wonderful home made mulled wine. I think this may have helped the evening along just a bit!” Rosemary Goodman.

• “Please find enclosed a donation of £400. This was raised by holding a Cream Tea in August. Because of the inclement weather we could only invite 30 people. As usual we held a raffle and sold second hand books, potted plants and home made preserves. This time a colleague of Alex also came with her handmade jewellery, which was greatly enjoyed.” Rosemary Goodman.

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In Memory of Adam Green • Tom and Judy Green took part in the CRY Great Cake Bake 2012 and raised £580.

• Tom and Judy Green sent in a donation of £308.50 in respect of additional sponsorship money for the Bridgnorth Walk and proceeds from the sale of Judy’s hand made cards.

• Tom and Judy Green forwarded a donation of £200, in lieu of sending Christmas cards, from Liz Prince.

• “On Friday 30 November Katie Marley,

Rachel Ward and Beth Wilson held a CRY awareness stall at the Madeley High School Christmas Fair. They made their own Christmas decorations and sold them, along with cakes for CRY. Adam had also attended Madeley High School and members of staff remembered him and praised the girls for their help in raising awareness.” Tom and Judy Green sent in a donation of £105.

In Memory of David Green • Four Deanery Catholic Schools in West Sussex (3 primary schools and 1 secondary school) joined together in a special service at Arundel Cathedral on Wednesday 5 December. CRY volunteer Sally Ashworth attended the event and gave a short talk about the work CRY does and the support it offers families.

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Our

“Very sadly, approximately 18 months ago, we learnt that a former pupil of ours (and our secondary school), David Green, had died for no apparent reason. Within time the cause was linked to his heart. His mother, Gabby Broadhurst, was asked to be an Olympic torch bearer in our home town of Bognor Regis and came into school to talk to the children about this special event. She allowed all the children to have their photo taken with the torch.” Sharon Reynolds, Deputy Head, St Mary’s Catholic Primary School. The total amount raised at this event was £1,912.08: St Philip’s Catholic Primary School £631.52; St Richard’s Roman Catholic School £200; St Philip Howard Catholic High School £200; St Mary’s Catholic Primary School £553.98; and bucket collection at the service £326.58.

In Memory of Kyle Hancock • “We are pleased to send you a donation of £815 which has been raised for our beloved son Kyle Hancock’s memorial fund for CRY,

by Brendan Flannery, a gentleman who lives in our village and decided to take part in the annual Village Fell race during the village carnival week and Well Dressings this August. Mr Flannery is a gentleman in his 50’s and completed the five mile race up very steep hills and over local moorlands with semi-professional and experienced fell runners in a time of 34 minutes. The winning time was 26 minutes and the event attracted over 100 competitors. He had not competed before and spent a lot of his own time in training and preparation for this race which is a testament to his commitment and dedication and we thank him for what he has achieved.” Ian Hancock and family.

• Steve Walker took part in the Great North Run 2012 and raised £350.

In Memory of James Green “Having finally decided to re-marry, I enjoyed a fabulous wedding day on 20 October surrounded by family and friends - including James’ family, which was lovely. My new husband, Will, and I felt we would rather guests make a small donation to CRY than give us gifts.” Shelagh Green sent in a donation of £220.

In Memory of Oliver Griffin Owen Griffin sent in donations from John and Mark Crook, Mrs Y Joyn and Mr L Ford amounting to £200.

In Memory of Rochelle Grogan Mehmet Ahmetoglu, Michael Thorpe and Sharon Thorpe, took part in the CRY Heart of London Bridges Walk 2012 and raised £1,118.20.

In Memory of Matthew Hadfield Sarah Conway, Eraldo D’Atri, Diana Garretts, Marc Hadfield, Amanda Hogan, James Hogan, Nick Holman, Andy Hunt, Oliver Hunt, Peter Jones, Maja Naskret, Denise de Paor, Eimear Quinn, Liam Quinn, Ben Rigby, Orla Ryan, Robert Ryan, Tom Sampson, Monika Stachurska, Gemma Warrick, Mark Warrick, Matilda Warrick and Dan Watts-Read took part in the CRY Heart of London Bridges Walk 2012 and raised a further £70 making a total raised of £295.

Fundraisers

• CRY volunteer Dani West attended a presentation day on

Sunday 7 October and collected a donation of £1,987. The money was raised from a sailing and cycling trip and a sponsored walk. Dani gave a speech about CRY.

“Kyle’s neighbour and lifelong friend Calum along with his brother Rory Mackenzie went to Southport and participated in a sponsored 12hr sailing race on the 30 June 2012. They came 2nd and with help from their parents with collecting buckets on the day and setting up Team Mackenzie through Virgin Money Giving, raised a magnificent total of £1,045.” Ian Hancock.

In Memory of Joseph Halliwell • Joanna Halliwell sent in a donation of £415 in memory of her son, Joseph.

• Joanna Halliwell took part in a sponsored walk on 9 September and raised £260.

In Memory of Shamil Hamid Maisa Patel took part in the CRY Great Cake Bake 2012 and raised £425.

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“On the 12-15 July the Bradwell Cycle club, who do an annual ride for charity, rode around the Isle of Man and dedicated the ride to Kyle along with other charities and raised £800 for CRY.”

“In October 2011 my best friend Kyle Hancock passed away in his sleep, due to sudden adult death syndrome.

Me and Kyle’s dad, Ian Hancock, went on BBC Radio Sheffield to talk about Kyle and what we wanted to do to raise money for CRY. We invited people to come along and also explained why we are wanting to do stuff like this.

Finally, we chose to do a sponsored walk from the Sheffield Wednesday ground to the Sheffield United ground and back. We chose that because Kyle supported Sheffield Wednesday and I supported the Blades and even though they’re derby rivals Kyle and I were still best friends. This sponsored walk took place on Saturday 21 July at 11am.

We rang The Sheffield Star and someone from the team came along and took photos of us before we set off.

I am so proud of everyone who came along and joined in on the walk, it meant a lot to everyone. The experience of the walk has now made me realise that I would love to do more events in the future to raise money for CRY.

Kyle will have been so proud of everyone too and I hope he realises how much he means to everyone, I’m so glad I met such a lovely lad like Kyle.” Paige Salt.

After a few months of losing Kyle, I decided I needed to do something to raise money for CRY, so I asked Kyle’s family, my family and also some friends to see if they would come along and join me on a sponsored walk in memory of Kyle. Kyle meant a lot to us all so we wanted to show everyone how much we will miss him.

• “We are pleased to forward you a donation of £810 which

has been raised with a lot of help from the GMB Trades Union for our beloved Kyle’s memorial fund. The money was raised through Paige Salt’s sponsored walk in July from Sheffield Wednesday’s ground Hillsborough to Sheffield United’s ground, Bramall Lane.” Ian Hancock and family.

• William Black took part in the Great North Run 2012 and raised £808.04.

In Memory of Laura Hardman • Claire Cage took part in the walk from Stonehenge and raised £278 in memory of Laura and her boys.

• Jo and Simon White sent in a donation of £200, in lieu of gifts for their joint birthday and anniversary celebrations, in memory of their friend, Laura.

In Memory of Elizabeth Harrison Phil Harrison raised £120 in respect of the Pianothon.

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Our In Memory of Graham Harrison • “A quiz night was held earlier this year in memory of Graham, my nephew, who died over four years ago, unexpectedly and without warning. We don’t need to hold these events to remember Graham, as we think about him each day, but I think it is a great way to mark Graham’s memory by helping CRY to help others.” Pam Woodcock sent in a donation of £220.

• Christine Iveson raised £155 in respect of the London to

Paris Cycle Challenge, in memory of her nephew, Graham.

In Memory of Jennifer Hawes John Hawes and Marilyn Hawes took part in the CRY Heart of London Bridges Walk 2012 and raised £100.

In Memory of Sarah Ellen Hayes • CRY has received a funeral donation of £364.52, in lieu of floral tributes, for the late Sarah Ellen Hayes.

• Helen Hayes sent in a donation of £300.

In Memory of Thomas Headington Ken Headington sent in a donation of £653.50 raised at our ‘Tommy’s Happy Days’ memorial football festival held on 26 August 2012.

In Memory of Joseph Herrington Brad Herrington sent in the following donations: Cambridge Rugby Club and Judith Dixon £310; Chesterton Community College £794.03 raised at a non-uniform day and £89 from the Arbury Aces Football Club. Total £1,193.03.

In Memory of Matthew Hesmondhalgh • Paula Hesmondhalgh sent in donations totalling £715 toward the Lands End to John O’Groats (LEJOG) ‘Ride for Matt’; £500 from the Sequence Steppers Charity Dance Group a group of friends who get together fortnightly to hold dances, raffles and home-made refreshments, donating the profits to charities and local worthy causes; £200 from Frank Thackeray and £15 from sponsors of the ride.

• Stephen Bates completed the LEJOG ‘Ride for Matt’ on 7 August and raised £1,210.

• Emma Galbraith sent in a sponsorship donation of £836 in respect of the LEJOG cycle ride in August.

• Paula Hesmondhalgh sent in the following donations; £25

from Dr Sykes towards the LEJOG ‘Ride for Matt’, £300 from Garstang and District Lions, £100 from Central Lancs VMCC and £29.50 from Karen Davies.

• CRY received a matched giving donation of £700 from www.c-r-y.org.uk

Fundraisers

Santander in respect of Andrew Chiverton and the LEJOG cycle event.

• “Throughout August this year, a group of friends and I

took part in a bike ride from Lands End to John O’Groat’s.

The team did extremely well, battling all sorts of weather conditions as well as aches and pains, broken bikes and broken bones. The driving force behind their extreme determination was to raise as much money as possible in memory of my best friend, Matthew, who we sadly lost to SADS in August 2011.” Zoe Catterall sent in a donation of £320 in memory of Matthew.

• D C and E Consiglio sent in a donation of £120.

• Paula Hesmondhalgh sent in donations totalling £1,301.92;

Lizzy Miller raised £1,015 in respect of the LEJOG ‘Ride for Matt’ and Andrew Chiverton and the customers at the Eagle & Child pub, Garstang, and Bilsborrow Post Office and stores raised £286.92 in memory of Matthew.

• Chris Davenport took part in the LEJOG cycle ride and sent in a donation of £940.81.

In Memory of Laura Hillier Tony and Joan Hillier sent in donations totalling £691.15; £443.65 was raised by themselves at their CRY stall at the Blisworth Canal Festival on 11th and 12th August; £247.50 which represents sponsorship from Matthew Otten for the British Gas Swim Series 2012.

In Memory of Peter Hinchliffe Dr Hinchliffe sent in a donation of £1,601.30 in resepct of the Peter Hinchliffe Memorial Ride held on 4 November.

In Memory of Andrew Holcombe Barry Holcombe took part in the Great North Run 2012 and aised £350.

In Memory of Lauren Holly Nick Butler sent in a donation of £625.28.

In Memory of Stuart Hollywood Stephen Hollywood sent in a sponsorship donation of £100 from the Mountain View Social Club in respect of the Mourne Mountains Trek.

“We trekked up Slieve Donard (highest mountain in Northern Ireland) on 13 October 2012 for Cardiac Risk in the Young and it was truly a remarkable day. Myself and my best friend Jonathan Goodwin set off at 7am for the hour and a half drive to the foothills of the Mournes in County Down from Belfast.

Once we arrived there, there was a sense of trepidation and apprehension at the mammoth task that lay ahead, but we were thankful at least that it was a surprisingly beautiful morning after the previous week’s downpour of rain!

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Once we set off on the trek, I began to feel a real sense that Stuart was walking with us, urging us on to get to the summit. The feeling was very overwhelming and suddenly the trek, which ordinarily takes over 6 hours to reach the summit and back, was complete in just over 3 hours. Not bad for a non-gym goer!!

We talked of Stuart a lot during the walk and I firmly believe he gave us the strength and conditions for the day. As you can see from the pics, the sun followed our every move. I believe that sun was him, guiding and supporting us.” Stephen Hollywood.

raise funds. Among the lots this year were items such as one day shooting for 9 guns, a 10 day holiday in Sri Pah Wah, Phuket, Thailand (Voted Best View in the world 2011) and even a horse.

Polly is my sister who died in 2006 from cardiomyopathy. Since then, my family have raised funds every year and support CRY in all that they strive to achieve.” Sophie Hughes.

In Memory of Alice Hunter Suzanne Hunter took part in the CRY Great Cake Bake 2012 and raised £365.

In Memory of Christopher Hynd Malcolm Roy completed the Edinburgh Marathon and raised an additional £326, making a total raised of £406.

In Memory of Camilla Irvine Harriet May I’Anson took part in the Great North Run 2012 and raised £610.

In Memory of Sarah Anne James Lin Edroff, Kath Osborne and Kyle Osborne took part in the CRY Heart of London Bridges Walk 2012 and raised just under £100.

In Memory of Nathan Jennings “Nathan’s Charity Day was held at the Mid Kent Golf Club on 29 September. The weather was great and the response even better.” Dave and Jenny Jennings sent in a donation of £1,450.

In Memory of Reece Jeffrey Anita Hawkins at Mercury Pharma took part in the CRY Great Cake Bake 2012 and raised £1,149.02, which included a matched giving donation.

In Memory of Jonathan Hooper • Doreen Jolly sent in a donation of £320 raised at the Preston Guild Wheel long distance walk on 18 August.

In Memory of Stevie Jivani Scott Hitchman took part in Run to the Beat 2012 and raised £880.

• Stephanie Mayou took part in the CRY Great Cake Bake 2012 and raised £250.

In Memory of Stewart Howard Jane Howard sent in a donation of £430 which was raised at a Christmas Fair with donated items from Tesco.

In Memory of Cecil Thomas Hudson We have received a funeral donation of £165, in lieu of floral tributes, for the late Cecil Thomas Hudson.

In Memory of Pollyanna Hughes “Please find enclosed a donation of £1,375 which we raised from a charity auction at our annual Polo Ball. Each year, we hold a charity Ball at the Cambridge County Polo Club and an auction to

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In Memory of James

Johnsen

&

Leon

“We are Dancing for Charity and have over 100 members who come together every week to enjoy modern jive and at the same time raise funds for local charities. One of our members, Margaret Wilson, has lost both her sons in their early twenties and supports your charity.”

Sue Rowley sent in a donation of £1,000.

In Memory of Ian Johnson • “Our first ever coffee morning to raise money for CRY was such a huge success we are already planning our next one!

It was held on a sunny Saturday morning on 8 September 2012, in Lanchester Methodist Church, County Durham, in

www.c-r-y.org.uk

Our memory of my husband and Laura’s father, Ian Johnson, who died from Brugada syndrome in 1999 at the age of 39.

The idea came from my friend Denise Blackburn, who looks after the Church and adjoining Church Hall. It started out as an ordinary coffee morning with homemade cake stall, then ideas came rolling in of other ways we could raise money.

In the end, as well as homemade cakes, we sold generously donated nearly new shoes and bags, books, bric-a-brac, costume jewellery and homemade ginger beer. Friends and family worked really hard behind the scenes collecting things to sell, baking cakes, manning the stalls and serving teas and coffees.

We all had a fantastic day and the fact that we made £790 for CRY was an added bonus. The amount we raised totally exceeded our expectations and one thing’s for sure, it couldn’t have been done without the dedication

Fundraisers

In Memory of Alex Kaiser • Sarah Hoare sent in a donation of £175 in respect of the Kaiser Challenge.

• Rob Spaul sent in a match giving donation of £300 from

his employer, MBDA Systems, in respect of the Berlin Marathon.

In Memory of Matthew James Kamis Trina and Albert Kamis recently held a Car Boot sale and raised £127.

of good friends and family and the generosity of the local community.” Jean and Laura Johnson.

• Denise Blackburn, Jean Davison, Lesley Ibbetson, Jean

Johnson, Ruth Johnson, Jacqueline Smith, Christine Todd and Christine Walker took part in the CRY Durham Riverside Walk 2012 and raised £104.

In Memory of Simon Johnson Emma Hemingway completed the BUPA Greater Manchester Run and raised £122.

In Memory of Ethan Jones • Sandra and Nick Jones took part in the CRY Great Cake Bake 2012 and raised £915.

• Hilary Wagstaff took part in the CRY Great Cake Bake 2012 and raised £650.

Ellie Kamis, Matthew’s niece helped at the boot sale and donated her teddy In Memory of Eleanor Rose Keeler Chris and Annette Keeler sent in a donation of £200 in memory of “their beautifully talented daughter, Eleanor, who collapsed and died from CAA three years ago. The 2 October is the third anniversary of her death.”

• David Barlow took part in the CRY Heart of London Bridges Walk 2012 and raised a further £230 making a total raised of £360.

In Memory of Joseph Kellogg • Neil Kellogg sent in a donation of £690 from Donna, Ali and Carrie who took part in the Three Legged Race earlier this year in the village of Spondon in memory of Joseph.

• Keith Weston sent in donations amounting to £165 in

• Neil Kellogg sent in a donation of £322 in memory

respect of recent public speaking.

• M J and S M Bohlling sent in a donation of £115.

In Memory of Tim Jones • Christine Slater raised a total of £220 in memory of Tim Jones.

of Joseph.

In Memory of Jennifer Kerwood • Mr S Greig completed the cycle ride from Bishops Stortford to Canary Wharf and back (80 miles) and raised £1,565.

• Christine Jones took part in the CRY Great Cake Bake 2012 and raised £200.

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Fundraisers

• Russell Cattell completed the Challenge, which involved

Ward took part in the CRY Heart of London Bridges Walk 2012 and raised £1,286.99.

• “Please find enclosed a Community Matters cheque for

In Memory of Robert Lancaster Nick Hardy sent in a donation of £130 in respect of Sherry Murray’s London to Brighton cycle ride.

• Ady Wren completed the 15 Peaks (Mad Mountain

In Memory of Michael Land • David Leece organised a charity football match and raised £831.06.

cycling from Bishops Stortford to Canary Wharf and back again (a total of 80 miles) and raised £817.

£348 in memory of Jennifer Kerwood. Jennifer was a member of staff who sadly passed away at the age of 22.”

Terri Boyce, Waitrose, Bracknell.

Marathon) and raised £219.

• Paul Miller sent in a donation of £312, raised by the Hutton Ladies Football Club’s tournament in memory of Jenny Kerwood.

• Derek Stark Tournament 2012 - Basildon Referees Society,

Sunday 26 August 2012. “We have put on this tournament annually in support of good causes and mainly as a result of the untimely death of our president, Derek Stark who died as a result of a heart attack. This year was also particularly pertinent to us due to the death of a young lady from a heart condition, Jenny Kerwood, whilst playing football locally, being known personally to a number of the clubs and officials.

The tournament was split into two separate competitions, men in the morning followed by a women’s tournament in the afternoon. Throughout the day a raffle and sale of pin badges increased the money raised, in adition to the sponsorship and entry fees.” Paul Clarke, Vice President, Basildon Referees Society, sent in a donation of £750.

• Paul Garnett,

Specsavers, sent in a donation of £395 raised during the Treadmill Challenge, ‘The Specsavers CRY Cup’ in memory of Michael.

• Tony Bunney and Claire James took part in the CRY Heart of London Bridges Walk 2012 and raised £298.

In Memory of Judith Krish Tim Froggatt, Felicity Good, Julia Good, Gillian Krish, Jonathan Krish and Kati Nairn took part in the CRY Heart of London Bridges Walk 2012 and raised a further £1,910 making a total raised of £4,835.

In Memory of Sunny Kumar Jane Brigstock completed the Three Peaks Challenge on 1 September and raised £200 in memory of Sunny.

In Memory of Adam

Lambert

&

Jenny

•

The Rambert Theatre School held a dance event on Sunday 7th October, ‘Dance in Heaven as you danced on earth’ to commemorate the 20th anniversary of Jenny’s death. Sara Mather organised the event as she and Jenny studied together at the Rambert.

Martin and Mary Appleby, CRY supporters, attended the event. Sara sent in a donation of £2,018.

• Freddie Bagley, Amelia Evangelista, Louise Gear, Martin

Gear, Vicky Gee, Euan Hinshelwood, Luke Knight, Jane Lambert, Julia Lambert, Katie Lambert, Robert Lambert, David O’Connor, Mark Roberts, Jessica Talbott and Chris

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In Memory of Mark Law Hing Choy Amanda Breed took part in the Olympia Park 10K Run Munich and raised £180.

In Memory of Doreen Lawson Caroline Bryant, Treasurer, West Tanfield PCC, sent in a funeral donation of £150 in memory of Doreen Lawson.

In Memory of Giles Leaver Stephen Holmes took part in the Bupa London 10,000 and raised £226.

In Memory of Martyn Lee Steph Lee sent in a donation of £2,500 which was raised from an auction at the Boxing Night held in memory of Martyn.

“A Charity fundraiser was held on Saturday 9 June to raise money for CRY for the Martyn Jordan Lee Memorial Fund – this was held on what would have been his 19th Birthday – and raised £2,500 for the fund.

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Our Over 400 people bought tickets in advance for the night and many more paid on the door, added to that number were members of Boxing Club Northside in Clayton and boxers who came from as far as Birmingham and Wales to compete for the Martyn Lee Memorial Cup.

Fundraisers

In Memory of Jonathan Leigh • Jack Storr, Rebecca and David Leigh took part in the Great North Run 2012 and raised £1,803.01.

•

Nicola Storr and Isobelle Leigh took part in the CRY Great Cake Bake 2012 and raised £620.

In Memory of Huw Lewis Lucy Lewis completed the Wales Half Marathon and raised £235.

In Memory of Joseph Lewis Teresa Smith sent in a donation of £200.

In Memory of Faye Linton Team Linton took part in the CRY Durham Riverside Walk 2012 and raised £234. Team Linton were Kris Coates, Laura Downey, Jon Linton, Lynda Linton, Catherine Redman and Audrey Young.

In Memory of Max Lowry • Marco Franchi took part in the JLL Property Triathlon and raised £2,655.

• Windlesham House School sent in a donation of £4,364.53, raised by the children, staff and alumni in memory of Max. “We really enjoyed raising money for CRY and the children loved coming up to Parliament and meeting the patrons.”

The evening started with a Ten Bells Salute for Martyn. There were 7 bouts throughout the night and all boxers were presented with trophies by Craig Watson – the former Commonwealth Champion.

An auction and a raffle were held to raise further funds. Prizes donated included: Stone Roses Tickets, VIP Parklife Tickets, A Ricky Hatton signed glove and many more.” Stephanie Lee. In Memory of Steven Lowry • “Please find enclosed cheques to the value of £2,559. This was raised at a dinner in memory of our daughter’s fiance Steven Lowry. Steven was captain of our local football team ‘Alghill Rovers’ and died suddenly on 8 November 2011 following training, from a cardiac condition.” Trevor Gillen.

• Barbara Gillen raised £460 in respect of the Belfast Marathon.

• Tamsin Armstrong raised £160 in respect of the Charity Football Match in memory of Steven.

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Fundraisers In Memory of Martyn Luckett Brenda Luckett sent in donations totalling £2,099.13: £2,000 was raised at the annual Motorcycle Trials School; Morrison’s Collection Day £89.13 and £10 from Spencer Dennis.

“There were around 70 people who took part in the trials school, who all had an amazing time. We had a barbecue, band and a bar; and a large Prize Draw which raised a lot of money.

These are the people who worked hard to raise all this money.”

Brenda Luckett.

In Memory of John Magowan Mark Montgomery took part in the Great North Run 2012 and raised £550.

In Memory of Laura Main • Kayleigh Ferries completed the Edinburgh Marathon and raised £2,933.24.

• Natalie Mair completed the London to Paris Cycle challenge and raised an additional £2,910, making a total raised of £3,010.

• Tracey Mair raised £1,935 in respect of the London to Paris Cycle Challenge.

• Carol Main sent in a match giving donation of £1,000 from

Baker Hughes in respect of the 10K run in memory of Laura.

• Alison Lawson completed the Baker Hughes Aberdeen 10K and raised £540.

In Memory of Sundesh Mall Sukhjit Sandhu took part in the CRY Great Cake Bake 2012 and raised £200.

In Memory of Ashleigh Lyons Jo Lyons at Royal United Hospital, Bath took part in the CRY Great Cake Bake 2012 and raised £287.30.

In Memory of Andrew Macleod • Murdo Macleod sent in donations totalling £3,000; £1,265 from himself and wife Dolina in appreciation for the help and support received from Alison Cox and Ruth Lowe, who have assisted and supported them, and £1,735 from the Lewis Car Club raised at a commemorative Drag Race at Stornoway Airport on 9 June in memory of Andrew.

• Dolina Macleod sent in a donation of £100 in memory of her son, Andrew.

In Memory of Jack Maddams • Roger Maddams sent in a donation of £1,096.25 in respect of a parachute jump in memory of Jack.

• Roger Maddams completed the Etape du Tour Challenge

(Act 1) on 8 July and raised a further £2,238.65, making a total raised of £2,338.65.

• Su Jackson-Smith, Janet Maddams, Roger Maddams, Debbie Robertson, Lisa Standen and Rosalind Wicker took part in the CRY Heart of London Bridges Walk 2012 and raised £310.

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In Memory of Oliver Marsden “I organised a gig at the end of term in a pub called the Talking Heads in Southampton on 17 June. People who played were from the Music Department of Southampton University. Approximately 50 people attended and it was a wonderful night in memory of my friend Ollie Marsden who passed away on 22 October 2008.”

Esther Robinson sent in a donation of £200.

In Memory of Lewis Marsh Gill Weston sent in donations totalling £2,500: £1,300 from Sandhurst Boys & Girls Football Club, £150 from Mr Widdowson and £30 from Sandie Vallance.

In Memory of Paul Marshall Debbie Marshall took part in the CRY Great Cake Bake 2012 and raised £177.

In Memory of Dean Mason • Gwenfair Mason sent in a donation of £875 raised by the Llawhaden Young Farmers Club.

• Gwenfair Mason sent in a donation of £400 raised by Camrose Vintage Working Day at their annual show.

• Mrs G Mason sent in a donation of £280 raised at an Equine TREC competition held at Norton Villa.

In Memory of Daniel Matthews The football students at Hartpury College sent in a donation of £405.07.

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Fundraisers

In Memory of James May Caroline Allen sent in a donation of £617.50 in respect of sponsorship for the China Trek.

In Memory of Sara McNeice • Jacqui Hanrahan completed the BUPA Great Manchester Run and raised £505.

In Memory of John McCall Janette and Malcolm Pollard sent in donations totalling £2,000 received in lieu of gifts to celebrate their Ruby Wedding Anniversary, donations included; £100 from David and Linda Hayes; £200 from B & W Thygesen; £100 from Edward Hester; £100 from Adele Williams; £100 from Ian McCall; and £100 from Paul Dean.

• Sarah Penrose completed the BUPA Great Manchester

In Memory of Amanda McCarthy Louis Martin completed the London Triathlon on 23 September and raised £284.28.

In Memory of Scott McCollin Lloyds TSB sent in a match giving donation of £500 in respect of Maria Burr who held an ‘Old Skool’ fundraising event on 23 November in memory of Scott.

In Memory of Nicholas McCool Donna Gilchrist completed the Manchester 5K Fun Run on 11 August in memory of her son, Nick and raised £420.50.

In Memory of Greg McFarlane John McFarlane sent in a donation of £185.70 which was raised during the Mini Office Olympics held at Fife Libraries and Museums headquarters in Kirkcaldy.

In Memory of Carl McGraffin Mark and Barbara Brown completed the Edinburgh Marathon and raised £142.

Run and raised £308

In Memory of Philip Meaney Anne Marie, Stacey and Stephanie Meaney took part in the CRY Heart of London Bridges Walk 2012 and raised £773.

In Memory of Ian Merchant Barbara and Dennis Merchant sent in a donation of £160 made up of £137 from the collection box and a personal donation of £23.

In Memory of Richard Merriman We have received funeral donations of £245, in lieu of floral tributes, for the late Richard Merriman.

In Memory of Rónán Molloy Coalisland in County Tyrone hosted ‘Run for Rónán’ on Saturday 28 July 2012. The run was organised by the Molloy family, to commemorate the 20th anniversary of the death of their son and brother Rónán and to raise funds for CRY. The Molloy Family and the ‘Run for Rónán’ Committee sent in donations totalling £7,664.86. The donations were divided in the following way; £1,916.21 towards research and £5,748.65 for the Northern Ireland fund.

“The event was hailed a huge success by those who attended and ran, local media, and indeed by the family themselves, raising well in excess of £8,000. More than 200 people took part in the 5k fun run/walk, and 106 runners in the competitive 10k run. First female to cross the 10k line was Karen Alexander, and first male was Christopher McPeake.

In Memory of Oisin McGuiness Conor Cole took part in the Crooked Lake Triathlon on 9 June. Although the training was intense the day turned out to be both fun and rewarding for Conor as he completed the event in great time, cheered on by a great crowd of family and friends as he crossed the finish line. Conor Cole sent in a donation of £456.

The family also took advantage of creating a Virgin Money Giving web page, and are particularly grateful to those friends and family who contributed from overseas or those who were unable to make it on the day. Indeed, friends from as far away as Washington DC and Vancouver, Canada, were running for Rónán on the same

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day in memory of their beloved friend. The funds have been designated to both CRY’s Research and Northern Ireland funds.

The family are extremely grateful to their committee and the wide circle of family and friends, without whose assistance and support the day would not have been possible. Special thanks are also extended to local traders and sponsors for their generous gifts, donations and sponsorship, all of which added to a final figure well in excess of expectations.” Kevin Molloy.

• Sue Ainsworth sent in a donation of £302 in respect of

the Eaton Gallon Charity Walk on 25 August in memory of Jonathan.

In Memory of Levon Morland • “Please find enclosed a donation of £3,034 which represents the proceeds from our Grand Charity Night held on 7 September. The night was organised by Jack Doyle and Jeff Morland and held at the Chilton Hotel and Country Pub near Houghton-le-Spring. The hotel provided delicious food for the 200 guests, a disco and the venue. The guest speaker was Kevan Jones MP, founder member of the CRY All Party Parliamentary Group (APPG) and original chairman of it. Entertainment was provided by Barkin’ Billy and the Scrapyard Dogs. A great time was had by all. Thanks to all the sponsors - Northumbrian Water Ltd., Browell Smith & Co., Solicitors and Thompson Solicitors, Newcastle. There were also a number of mayors and councillors present and in particular Cllr Linda Marshall, Chair of Durham County Council, who has adopted CRY as one of her charities during her year as the Chair. Thanks to everyone who came and supported the event and bought lots of raffle tickets to help raise the cash.” Jeff Morland.

• Aran Morland and Simon Heseltine took part in the Great North Run 2012 and raised £1,435.

• Richard Ainsley, James Bryson, Justine Bryson, Tom

Heseltine, Elaine Lawler, John Lawler, Alan Morland, Brendan Morland, Evan Morland, Kelly Morland, Marianne Mortemore, Michelle Percival, Steve Percival, Rhiannon Phillips, Emily Philo, Ted Philo, Carole Robson and Steven Warrior took part in the CRY Durham Riverside Walk 2012 and raised £380.

• Jeff Morland forwarded a donation of £250 from the West Rainton and Leamside Village Partnership.

• Jeff Morland forwarded a donation of £200 from the Peterlee Branch of Unite.

In Memory of Liam Morefield Sue Lawrence sent in a donation of £125 from her employer, Ecclesiastical Insurance (who are celebrating their 125th anniversary this year). “I would like to donate this in memory of my cousin’s son, Liam Morefield, who died suddenly and unexpectedly at a young age, a couple of years ago.” Jo Lawrence.

In Memory of Jonathan Morgan • Matt Woods took part in the Virgin London Marathon 2012 and raised a further £176, making a total raised of £436.

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In Memory of Luke Morris Ian Morris sent in two donations; £500 which was donated by Luke’s grandfather’s friends and family for his 80th birthday which he requested to be donated to CRY and £250 which was donated by Luke’s friends and family in memory of Luke on the fifth anniversary of his death, organised by his sister Laura Jade Morris.

In Memory of Nicholas David Morris “Please find enclosed a donation of £600 raised at our biennial golf day on 1 September in memory of our late son and brother who died on 14 August 2000 from viral myocarditis aged just 17 years. 24 golfers took part in the day and friends and families joined them later for a prize-giving and a raffle.” Liz, Dave and Will Morris.

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Our In Memory of Pauline,

Rosaleen & Matthew Moyle

Kathy Moyle sent in a donation of £200 from the East Budleigh Football Club Bingo event.

In Memory of Paul Mulford Colin and Sandra Mulford took part in the CRY Heart of London Bridges Walk 2012 and raised just under £100.

In Memory of Andrew Murch • Lucy Irvine completed the Tough Mudder Challenge (along with Jenny Wright) on 14 July and raised £1,060.

•

“Please find enclosed the following donations; £250 from Aberfeldy and Kinloch Rannoch Medical Practice, where the staff held a ‘bake-off’ (which my wife Hazel and I were privileged and delighted to judge) in aid of CRY. The amount also included the proceeds from a ‘guess the baby’s weight and sex’ competition as the registrar was expecting a baby during her year at the practice. I have also made an online donation of £320 to CRY on behalf of two friends (Marjorie Fearn and Sheila Beattie of Aberfeldy, Perthshire) who make and sell flower brooches in aid of CRY and Wearit-Pink. These have proved incredibly popular and continue to sell well.” Gordon Murch sent in donations totalling £570.

• Gordon Murch sent in a donation of £250 from Aberfeldy & District Rotary Club in respect of the Highland Perthshire Marathon and Half Marathon which took place in September 2012.

In Memory of Ralph Murwill Bob Lester took part in the CRY Heart of London Bridges Walk 2012 and raised £220.

In Memory of Pardeep Nagra Kully Nagra raised £1,410.01 in respect of the Tough Mudder Challenge.

In Memory of Ben Obiora • Paul Boulderstone completed the Manchester to Blackpool Bike Ride and raised £205.

• Paula McNicholls forwarded a donation of £200 from Dove

Hales Football Club in memory of Ben, who collapsed and died on 21 April 2012 whilst playing football.

In Memory of Kerry-Anne Offord Maureen Horn sent in a donation of £120.

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Fundraisers

In Memory of Thomas Paul Padmore Oliver Bailey, James Henderson, Karen Padmore, Louise Padmore and Paul Padmore took part in the CRY Heart of London Bridges Walk 2012 and raised a further £595 making a total raised of £947.

In Memory of Nicola Paginton Stan and Judy Paginton sent in a donation of £100 in memory of their daughter, Nicola, who died of Sudden Cardiac Arrhythmia.

In Memory of Paul Parker Jackie Ellis and Katrina Parker took part in the CRY Heart of London Bridges Walk 2012 and raised £212.

In Memory of Joe Parkinson • “My name is Maureen Gildea, on 28 July 2012 myself and four others, Dionne Gildea, Dave Welsh,Carl Russell and Gary O’Keeffe took part in a charity skydive event, jumping from 14,000ft in aid of CRY in memory of a very special person Joe Parkinson.

Joe sadly collapsed and died on 1 Februrary 2012 while he was out jogging due to an undiagnosed condition, Bicuspic Aortic Valve. Joe was 21 years old and such a lovely boy, full of energy, enthusiasm, love and fun. It was a privilege to have known Joe and he is missed so much by all his family and friends leaving a huge gap in all our lives that we hope will heal with time.

We would be grateful if you could publish this as we would like to thank all who have supported us and donated to this worthy cause in Joe’s memory in the hope that this will prevent this happening to another family.” Maureen, Dionne, Dave, Carl and Gary sent in £1,452.25.

• Nicola Storey completed the Three Peaks Challenge and raised £310.

• Paul Boden took part in the Sleepless in the Saddle 24 hour Mountain Bike Ride and raised £200.

“The Sleepless in the Saddle 24hr race started well with fine weather and a dry track. My plan was to ride double laps of the 13km off road course, stopping thereafter for drinks and food. After completing four laps the heavens opened with 30 minutes of monsoon conditions, heavy rain, strong winds and thunder and lightning… in the woods on a wet, steel framed bike probably isn’t the best position to be in when fork lightning is visible!!

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The heavy rain had damaged most areas of the course. One section was closed due to the severity of damage making it unrideable. Lap times almost doubled due to course conditions making the night laps a tiring and dangerous time to be out. After a couple of hours of sleep I managed to get two more laps in the morning sun taking my total lap total to 8, just sneaking over the 100km distance mark.

Strangely it was a very enjoyable experience and one that I’m planning to tackle again next year. Thank you everyone for your sponsorship, messages of support and for the trackside help at the event.” Paul Boden.

In Memory of Andrew Parr • Chris Smith held a Curry Night and raised £724.50.

• Ruth Lowe forwarded a donation of £455 from the members of St John Baptist Bowling Club, Fulwood.

• Ruth Lowe forwarded donations amounting to £154 from the recent screening at Myerscough College. £100 was donated by Mike Himbury in respect of his son Max being screened.

• “Please find enclosed a cheque for £189.22 raised by our

Whittle Green Street Party which was held to celebrate the Preston Guid. Preston Guild is a historic celebration dating back to 1179 when King Henry II granted Preston the right to have a Guild Merchant and market town status. It’s the only Guild still celebrated in the UK and as such is unique.

It only takes place every 20 years, hence the phrase ‘every Preston Guild’ meaning something doesn’t take place very often. There have been many activities during this last week, including numerous street parties. I was thrilled when the residents voted unanimously to donate to CRY in memory of Andrew.” Ruth Lowe.

• Ruth Lowe forwarded a donation of £386.06 which was raised at a recent collection at Preston North End Football Club.

In Memory of Christopher Parr • Thomas Bourne took part in the Bupa London 10,000 and raised £1532. This included a matched giving donation of £100 from The Cooperative, Manchester.

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Dianne Parr took part in the CRY Great Cake Bake 2012 and raised £200.

• William Hurst took part in the Great North Run 2012 and raised £390.

• Paul Nutten took part in the Great North Run 2012 and raised £420.

In Memory of Kevin Paterson • “Kevin Paterson was a very popular and highly respected senior member of KPMG Birmingham. He unfortunately passed away, whilst running the half marathon in

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Birmingham, on Sunday 21 October 2012. In Kevin’s memory the family have asked that donations made from our monthly ‘dressing down day’ should be donated to your charity.” Richard Fenton, Partner, KPMG sent in a donation of £1,300.

• Richard Fenton, KPMG LLP, sent in a donation of £1,351.32.

• Rachael Rossborough, Pertemps People Development

Group, sent in a donation of £400 in memory of her friend, Kevin.

In Memory of James Patrick Patterson Kevin Wilson and Sid Curtis sent in a donation of £2,800 raised at the Charity Golf Day on 6 July in memory of James.

In Memory of Jennifer Pearce Solihull School sent in a donation of £1,100 in memory of Jenny. Sandra Pearce went in to the school and spoke about the work CRY does.

In Memory of Adam Pearmine • Josette Pearmine raised £1,857 in respect of the Reading Half Marathon.

• Charles Pearmine sent in a donation of £300.

In Memory of Matthew Pearson “We held a charity event on 16 November. We hired a hall and held a charity disco and ran a raffle on what would have been Matthew’s 18th Birthday.

The evening was a great succes - all his old friends, family and head master attended the evening.” Sherry Pearson sent in a donation of £1,835.

In Memory of Benjamin Percival Jennifer Cox took part in the CRY Great Cake Bake 2012 and raised £566.95.

In Memory of Chris Phillips Diane Caira, Angela Hourigan, Antony Hourigan and John Rowson took part in the CRY Heart of London Bridges Walk 2012 and raised £1,219.

In Memory of Jack Phillips • Jamie Reynolds raised £187 in respect of the Nijmegen March, making a total raised of £721.

• “The money was raised by employees at Turbomeca

Limited who sponsored Malcolm Smithers and Brian Penniall (also employees) on an epic cycle ride across the Alps, taking in part of the Tour de France route; a truly amazing ride! I hope this goes some way to helping CRY in their endeavour to help bereaved families such as Jack’s.”

Lyn Whittle sent in a donations totalling £965.

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Our

However, it wasn’t just the cyclists who found it challenging as the support vehicle driver spent 47.22 hours with the engine running; used 411 litres of fuel; had one side mirror smashed by a campervan driven by a crazy Italian; and developed his own set of clutch pedal blisters as he managed to clock up 1672 miles of constant gear changing!

“Malcolm Smithers and Brian Penniall successfully managed to complete their Pau to Barcelona sponsored bike ride as part of a 16 man cycling team.

Reported to be one of the hardest events they’ve ever taken part in, they experienced 400 miles of temperatures at times exceeding 40 degrees; 15% gradients up to 3 hours at a time; and ascending Cols such as the 2100 metres high Col Du Tourmalet. However, the pain quickly subsided as they were treated to some of the most hairraising fast descents - the longest of which was measured at 30 miles.

Fundraisers

Only 7 riders managed to complete the whole route (out of the 16) without taking a breather in the support vehicle.

Malcolm, Brian and Lyn would like to take the opportunity to thank everyone who helped them collect £965 of sponsorship money for their charity of choice, CRY.” Lyn Whittle.

In Memory of Rebecca Phillips Julie Philips sent in the following donations in memory of Rebecca; £2,500 from Hadleigh & Boxford Medical Practice Charitable Trust, £500 from the Hadleigh Thrift Shop, Ipswich, and £30 cash donations. Total £3,030.

In Memory of Sara Pilkington • The Mike Gooley Trailfinders Charity sent in a donation of £5,000.

Other team statistics include:

• In all, 5 mountains completed during the 4 days of the ride • Consumption of over 500 litres of water (about 135

• Ann Tunwell took part in the Walking the Dales Way Walk in September and raised £1,771.25.

litres/day)

• • • •

• Collingwood College, Durham University, sent in a donation

10 punctures

of £1,000.

2 slow speed crashes 1 pack of blister plasters

• John and Karen Ridyard sent in a donation of £544.66 in respect of the Austin Healey Club Tatton Park Knutsford Car Rally held on 18 and 19 August in memory of Sara.

Maximum recorded speed of 53 mph

• Janice Kettlewell celebrated her 60th birthday on 11 August and asked for a donation to CRY in lieu of presents. She sent in a donation of £105.

• A Rowe Limited, Manchester, sent in a donation of £100.

In Memory of Charlotte Pitstra • Ali McCabe completed the Buachaille Dash in June and raised £525.

• Greg Hartwell completed the Buachaille Dash in June and raised £391.

In Memory of Gary Pope • John Aitken, David Broadley, Andrea Cleverly, Gavin Davies, Jess Furlong, Craig Harrison, Craig Nichol, Rob Pope, Stefan Porter and David Simmons took part in the London to Brighton challenge and raised £7,214.35.

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“In July 2011 my very close friend Gary Pope passed away suddenly from Sudden Cardiac Death. After a couple of months, a group of friends and I began to look for something that we could do in his memory, to raise money for CRY and, just as importantly, to show his family how much Gary had meant to us.

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Eventually we found the ‘London to Brighton Challenge’, which was to take place on 12-13 May 2012. The Challenge is to walk 100k non-stop, from Richmond Park in London all the way down through Surrey and Sussex, finishing in Brighton on the south coast.

The idea of taking on the challenge captured our imaginations very quickly, and soon we had a team of ten willing to take on this insane task – Gary’s younger brother Rob Pope, his girlfriend Jess Furlong, and 8 very close friends (John Aitken, Stefan Porter, David Broadley, Gavin Davies, Andrea Cleverly, Craig Harrison, David Simmons and Craig Nichol). I don’t think we fully appreciated what we had agreed to do.

After many weeks of varying levels of training, Saturday 12 May 2012 arrived, and it was an early start – we had to be at the start point in Richmond Park by 6:15am, an hour before our allotted start time, so it meant a 4am awakening which was a tough enough challenge already.

Then we had the inspirational sight of Mr Motivator working up the entrants to get the adrenaline going. After 10 minutes or so of comical/embarrassing jigging about, we set off.

The first positive sign was the weather - it was absolutely beautiful with not a cloud in the sky. This was nothing short of a miracle after the 6 weeks of solid rain we had endured leading up to the walk!

The first 12k or so were largely a picturesque wander along the banks of the Thames, and the first rest stop was reached without too much trouble.

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As we made our way to the next rest stop, at 25k (near Coulsdon), the first signs of blisters were beginning to appear in the group, but the sun was out and spirits were still high amongst our team of ten.

Over the next 13k to the next rest stop (near Godstone) was when legs and shoulders (from heavy backpacks) really began to ache.

The next stage was 16k long, the longest without a break, and this was where things really started to get tough.

My legs were beginning to hurt rather a lot and the first signs of fatigue were making themselves felt. Others were beginning to suffer very badly from blisters, and it seemed no amount of plasters or Vaseline could help.

The pain we could deal with through the various painkillers we had taken with us, but the tiredness could only be postponed so long by the various energy bars and tablets (all of which are pretty unpleasant by the way). This stage took us through to the 53k stop (Felbridge), where hot food was served. This proved a lifesaver for a few of us and seemed to replenish energy levels.

Unfortunately though, it was the point at which many walkers dropped out and this included 2 of our own group, who were suffering from severe blisters and fatigue.

After an emotional goodbye to the guys who had stopped, the 8 of us remaining ploughed on - and by this point it was 10:30pm so out came the head torches. It was surreal to be walking through the countryside in the dead of night but it didn’t make the distances seem any shorter.

It was 11k to the next stop (West Hoathley) and I still felt

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Our OK at this point, although I had a running battle with my left knee to keep it working. However, the blisters, aching legs and extreme tiredness were to account for another 2 members of our group at around the 65k mark and we were then down to 6 remaining.

By this point it was around 1am, and those of us who remained had now been walking for about 18 hours. It seemed surreal to think about that, but even worse when we considered we still had over 30k to go!

We were all extremely tired by this point, and the next stage, whilst it was ‘only’ 8.5k, proved very difficult. There were many narrow, muddy paths and seemingly endless stiles to negotiate.

It was energy sapping, and took around 4 hours to get to the next stop at 74k (Scaynes Hill). Sadly this was where I had to drop out through extreme tiredness and fatigue, but the 5 remaining walkers were to plough on through the pain barrier.

Craig Nichol and David Simmons, who had set the pace for our group for most of the walk, went on to complete the full 100k in a little over 26 hours, which was an incredible achievement.

Behind them, Gavin Davies, Craig Harrison and Jess Furlong dragged themselves through the last 25k, ignoring the agony of blisters and damaged feet, to finish the course in around 33 hours – an awesome example of the power of the mind over matter!

Through taking this on, we have so far raised over £6,500 for CRY, which is absolutely fantastic. Each and every one of us thought that the Challenge was an amazing experience, and something which we are sure Gary would have been proud of – and he was probably chuckling somewhere too, thinking how crazy we were to do this for him.” John Aitken.

• David McNiven took part in a Skydive and raised £260.

In Memory of Michael William Leonard Pope (‘Popey’) Emma Pope sent in a donation of £2,470 which was donated at the funeral service to celebrate the life of her brother Michael Pope, ‘Popey’, on 2 July.

Fundraisers

In Memory of Craig Powell • Mark Powell and Helen Fleming forwarded donations totalling £4,000 from Tata Steel in respect of the BBC filming Doctor Who at the Llanwern site.

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Michelle Davies, Alun Evans, Lynda Evans, Sam Evans, Anthony Fleming, Helen Fleming, Karen Fleming, Luke Powell, Mark Powell, Anne Rowe, Jim Rowe, Mich Sexton, Marlene Upham, Rod Upham and Howard Williams took part in the CRY Heart of London Bridges Walk 2012 and raised £1,003.50.

In Memory of Shannon Powell The girls at Northwood College, Middlesex, sent in a donation of £645.54 from various fundraising, in memory of their friend and classmate, Shannon.

In Memory of Robert Poysor Diane Tolley took part in the CRY Great Cake Bake 2012 and raised £162.

In Memory of Gemma Quew Martin Baldwin sent in a donation of £1,143.41 in respect of the Skydive in memory of Gemma, making a total raised of £2,274.41.

In Memory of David Quinney Mick and Dot Quinney sent in a donation of £100 from family and friends.

In Memory of Darren Rawling Joan Rawling took part in the CRY Great Cake Bake 2012 and raised £232.

In Memory of Nick Read Adam Read sent in a donation of £300 in respect of the Bristol Half Marathon in memory of his brother, Nick. “My brother, Nick Read, collapsed and died from undiagnosed heart problems 600m from finishing the Bristol 2011 half marathon. Myself and his friends agreed CRY was a brilliant charity to fund whilst running the Bristol 2012 Half Marathon in his memory.” Adam Read.

In Memory of Alex Reid • Katharine Solomon, Sheffield High School for Girls, sent in a donation of £11,582.16 raised at a Fete in memory of Alex. CRY supporters David and Isobelle Leigh represented CRY by manning a stall at the event.

• Anna Butler, SIPA Nottingham University, sent in a donation of £316.20 raised at the Bake Sale held in memory of Alex.

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Fundraisers At 15,000 feet the plane door opened and me and my instructor shuffled to the edge. In no time at all, we were flying through the air in a 1 minute freefall drop at 125mph!

• Sheffield High School for Girls sent in a donation of £100.

• Sally Hancock held a Candle Party on 3 December and raised £140.

• Katharine Solomon, Sheffield High School for Girls, sent in a further donation of £229.85 which represents continued fundraising in memory of Alex.

• St Mark’s Church, Broomhill, Sheffield sent in a donation of £208.66 from a retiring collection at the funeral in July in memory of Alex.

• Rosalyn Barber sent in a donation of £315 which was raised at a Coffee Morning at Kiveton Park Primary Trust Health Centre on 13 October.

• “Please find enclosed a cheque for £1,000 for the Alex

Reid Memorial Fund. This was raised at a charity cricket match held at our club on 4 September. Alex was known at the club by many of our members as her boyfriend, Matt, plays cricket for us and at the time of her death we were organising a charity cricket match - the Michael Vaughan X1 v England Legends X1. Michael and our committee kindly agreed to donate one of the auction prizes to raise money for CRY as our way of helping both families and I am pleased to say this raised £1,000.” Julie Lister, Events & Fundraising Co-ordinator, Sheffield Collegiate C.C.

The noise was incredible during freefall but when the parachute opened, the contrast was unbelievable.

It was so peaceful once the canopy was opened and because it was such a clear day, we could see for miles around. It was beautiful.

The landing was very smooth and I couldn’t wait to run over to my family, who were watching from the spectator area, to tell them how AMAZING that was!

Alex was a very special girl and she always wanted to a do a parachute jump when she was old enough. This one was for you Alex.” Hayley Bushell.

• Hayley Bushell took part in a tandem sky dive on 14 October and raised £285.

“The weather was perfect for jumping from 15,000 feet out of a plane, with clear blue skies and very little wind, so I couldn’t wait to get up there!

After some initial nerves, once I was strapped into my harness I felt extremely safe and my instructor reassured me that all the necessary safety checks had been carried out.

In Memory of Anton Reid “Further to our charity fundraising Ball on 22 September 2012, I am enclosing cheques amounting to £2,520 with the help of Cannon Street Baptist Church, Handsworth, Birmingham and Asda, Bloxwich, Walsall. We were honoured and blessed to have Fabrice Muamba attend, who spent the evening with surprised guests. Fabrice gave a speech and danced the night away with all who attended this event.

Fabrice attending was like the ‘icing on the cake’ for me. As you are aware the Fabrice incident was identical to my son, Anton Reid, collapsing on the football pitch.” Sonia Bailey.

In Memory of Tom Reid Garforth Academy held a charity cricket match and raised £503.50.

In Memory of Debbie Rendle • Sylvia Pezzack sent in donations totalling £325: £150 from the Mousehole Methodist Women’s Club, £100 from the Mousehole Sea Salts & Sail Association and £75 from Lyn Watson.

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Sylvia Pezzack sent in the following donations: £121 from Newlyn Trinity Keep Fit ladies, £100 from the Mousehole Carnival Committee, £20 from a friend in lieu of Sylvia’s 70th birthday and £661 which was raised at Sylvia’s last fundraising event.

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Our In Memory of Scott Rennie • Hannah Brown took part in the Virgin London Marathon 2012 and raised a further £160 making a total raised of £1,795.

•

Bill Brigden completed the Great West Run and raised £300.

Fundraisers

In Memory of Neil ‘Kymatik’ Schuyleman • Andrew Davies, Helen Davies, Peter Davies, Ann Edwards, Anna Georgakakos and Minas Georgakakos took part in the CRY Heart of London Bridges Walk 2012 and raised a further £625, making a total raised of £1,385.

• Stevie Rennie sent in a donation of £200 from Kaltech.

In Memory of Lesley Roberts SAGE Publications Limited sent in a donation of £100, as part of their Olympic Charity Scheme.

In Memory of Luke Rogers Angela Rogers sent in a donation of £920: £495 from Luke’s friend’s father’s 60th Birthday celebration and £425 from the sale of books.

In Memory of Adam Rowbottom Ulrike Rowbottom took part in the CRY Heart of London Bridges Walk 2012 and raised £190.

In Memory of Mick Rowlinson Sophie Brook sent in a donation of £520 in respect of a charity walk in memory of her dear friend and colleague, Mick Rowlinson, who passed away on 29 May. “A number of employees and family members, including Kerry, Mick’s daughter, took part in the eight and a half mile ‘Pateley Bridge by way of Brimham Rocks’ Walk and it took approximately two hours to complete.” Sophie Brook.

In Memory of Luke Rutter • Jill Rutter sent in a donation of £1,050 in respect of the Keswick to Barrow Walk in memory of Luke.

• Rhian Lowe from the 2nd Ansdell Guides took part in the CRY Great Cake Bake 2012 and raised £150.

In Memory of David Sanger Paul Barton took part in the Outlaw Triathlon on 1st July and raised £920.

• Sarah Cole and Emma Edwards took part in the Bupa London 10,000 and raised £1,110.

• Cathi Wye took part in the Fleet Half Marathon 2012 and raised £200.

In Memory of Kevin

Sayer

Mrs S Forder sent in a donation of £263 raised at the charity football match on 26 August in memory of Kevin.

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Fundraisers

In Memory of Karen Schwartz Jean Mowforth held a barbeque to celebrate the Village Hall being 100 years old and in memory of her daughter, Karen, who passed away on 6 November 2009 and raised £275.

Durham has raised £2,000 for charity as part of a nationwide bike relay by the 31 Radisson Blu and Park Inn hotels across the UK.

In Memory of Mike Scott Anna and Mark Robinson took part in the Great North Run 2012 and raised £1,303.80.

Over 150 cyclists worked together to complete a 1300+ mile relay between each hotel, starting in Scotland on 6 May and finishing in Southend-on-Sea 15 days later, on 20 May. All together, the hotels have raised over £20,000 which will be distributed between a host of good causes across the country.

In Memory of Hariett Sellers Milly Preston took part in the Jane Tomlinson’s Leeds Half Marathon and raised £580.

Neal Holloway, General Manager from the Radisson Blu Durham said: “We cycled over 70 miles on our leg of the relay. It was a pretty tough challenge but we all helped each other through and managed to have fun along the way. The thought of the difference our sponsorship money will make to CRY UK helped to spur us on!”

In Memory of Jack Sheriff Elizabeth Sheriff sent in the following donations: £100, Terry Ha and Saleem Richmond completed the Windsor Half Marathon; £100, Natasha Merighi and Stefania Gazzini completed the Trenton Half Marathon; £81.33, collection boxes; and £80.30, Moulsham High School student collection at the Jack Sheriff Memorial Rugby Match.

The bike relay is part of the hotel’s Responsible Business Programme - one of the strongest in the hospitality industry.

The bike relay team was supported by a number of local and national sponsors, including main sponsors Leisure Connection and Bibendum. Additional sponsors included: ALD, Adavid, Birtwistles, Bluebell, Brakes, Coca Cola, Hobart, Matthew Clarke, MRP, Perry Scott Nash, Positive Safety Training, RDL, Reynolds and Tudor.

In Memory of Joshua Shotton Lynda Sattelle sent in a donation of £100.

In Memory of Ben Simpson Rob and Penny Simpson sent in a donation of £132, in respect of the winnings from guessing the length of the speeches at Joe and Bethan’s Wedding on 22 September.

In Memory of Sarah Simpson “I just wanted to say a huge ‘thank you’ on behalf of my family for your assistance in organising the screening, which we feel was a huge success.

Can you please pass on my personal thanks to the whole of the CRY team on the day and of course Tony, operations director. I organised a raffle on the day for a signed England rugby shirt which raised £180. This is by no means the end of the story for us - we will continue to support CRY in whatever way we can to raise public awareness of these potentially tragic conditions which continue to cut short young lives and are a tragedy for the bereaved families.” Colin Simpson sent in a donation £180.

In Memory of Andrew Sims Samantha Clarke forwarded a sponsorship donation of £1,500 from The Pamela Champion Foundation in respect of the Everest Base Camp Challenge.

In Memory of Michelle Sinclair Neal Holloway took part in the Radisson Blu Relay, Durham to York cycle event and raised £815.

A team of five intrepid cyclists from the Radisson Blu

70 • CRY update • Issue 59

Participating in this leg of the relay and the cyclists who can be seen in the photo were: Danielle Hedley Pace – Supervisor and Responsible Business Co-ordinator, Rhys Faulkner-Walford – Executive Chef, Karen Armstrong – Accounts Assistant, Nicola Sutcliffe – Restaurant Team Leader, Rachel Abbs – Health Club Attendant and Jamie Short – Support Vehicle.

In Memory of Kevin Smart Steve Kite, Joanne Rentle, Deborah Smart, Louise Smart, Lynn Smart, Stephen Smart, Andrea Thompson, Ian Thompson, Colin Walsh and Emma Walsh took part in the CRY Heart of London Bridges Walk 2012 and raised a further £2,050 making a total raised of £2,520.

In Memory of David Smiley • Kate Steel organised a 24 hour swimming teachathon and raised an additional £810, making a total raised of £2,460.

www.c-r-y.org.uk

Our

Fundraisers

• Benenden School, Kent, sent in a donation of £1,854.50

More recently, they have been making lots of Christmas decorations which they have sold at a craft fair, raising further funds.” Sue Spurling sent in a donation of £140.

• “Please find enclosed a cheque for £1,250. This is part of

In Memory of Lee Philip Stables Sharen Stables sent in donations totalling £658: £115, Class of 1962 Reunion; £262.50, Jenny Windle’s 50th Birthday Party; £40, cross stitch picture donated by Mrs Squires; £40, Brocklebanks Fruit & Veg; and £200.50 from charity boxes.

in memory of David Smiley, who was a tennis coach at the school.

the profits made from the recent Hedgehoppers Party held in Tunbridge Wells. Many of the girls who attended the party are at Benenden School and have been greatly saddened by the premature death of their teacher, David Smiley, at the beginning of this year.” Carol Franks, Treasurer.

• Steve Smiley forwarded a donation of £300 in respect of the Podplus 3 Lakes 5K in memory of his son, David.

In Memory of Aubrey Smith Julie Kyle, Lloyds Banking Group, Edinburgh, sent in a donation of £500.

In Memory of Rupert Spurling “My daughter Freya and her friend Mary have been really busy over the past few months. They love making various craft items and decided to start selling them to raise funds for CRY in memory of Freya’s dad, Rupert Spurling.

In Memory of David Staff Jonathan Stubbs, Darwen Dashers Running Club, sent in a donation of £600 from the David Staff Memorial Fell Race.

In Memory of Philip James Standing We have received a funeral donation of £461, in lieu of floral tributes, for the late Philip James Standing.

In Memory of Kevin Stentaford Daniel Rands completed the Lincolnshire Half Marathon and raised a further £212.50, making a total raised of £677.50.

In Memory of Andrew Stevens Lucy Stevens took part in the CRY Great Cake Bake 2012 and raised £575.35.

In Memory of David Stiller Linda Stiller took part in the CRY Great Cake Bake 2012 and raised £250.50.

During the summer, they set up a stall outside their houses to raise money and were also able to sell items at their Brownie pack.

In Memory of Cameron Strathie Amber Tully completed the 51 mile cycle ride from Glasgow to Edinburgh on 9 September and raised £233.

In Memory of Adam Swanwick Louise Ayre sent in a donation of £495 in respect of various fundraising in memory of Adam.

In Memory of Paul Sykes Patricia Berry, Edward Blowers, Sarah Fuller, Deborah Hyder, Patrick Sykes, Carly SykesBlowers, and Becky Weller took part in the CRY Heart of London Bridges Walk 2012 and raised £544.

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Fundraisers In Memory of Alaina Taylor Sonya Taylor sent in a donation of £100 to commemorate Alaina’s birthday.

In Memory of Hannah Taylor Charles Bull sent in the following donations in memory of Hannah: proceeds from Hannah Taylor Memorial Horse Show held at Wix Equestrian Centre on 21 July, £1,144.13; proceeds of Bric-a-Brac stall, Harwich Sea Festival, run by Hannah’s nan, £270; donation boxes, £26; and Inner Wheel Club, Dovercourt, £50.

Total £1,490.31 In Memory of Zoe Teale Pete Teale, Meghan Teale and Mike Jarrett sent in a donation of £125 in respect of them taking part in the Great North Run 2012.

In Memory of Dale Tennent-Butler Angela Tennent-Butler sent in a donation of £952.50 which was raised by Langlebury Cricket Club.

• Angela Tennent-Butler sent in donations totalling £950; Kings Langley Services Club donated £750 and £200 represents sponsorship for a skydive.

• Deborah Goodwin took part in a skydive and raised £880.

• David Oates took part in a skydive and raised £595.

• Angela sent in donations totalling £1,717: £1,000 was

donated by the Revue Variety Company and £567 from the Kings Langley Services Club. The remainder was donated by friends.

In Memory of Jack Thomas • Donna and Allan Elliott took part in an 85 mile cycle ride from Blackwood in South Wales to Brean Sands in Somerset on 3 August and raised £2,095.

• Grant Thomas and Emily Brown completed the Cardiff 10K and raised £1,142.

“On 9 September 2012, Emily Brown (Jack’s girlfriend) and I ran the Cardiff 10K in memory of my son Jack. It was a warm, sunny morning as we headed into Cardiff for the race. We were not sure what to expect as neither of us had entered a race like this before. We were welcomed by over 3,000 competitors and even more spectators.

Thousands lined the race route cheering us on making it a really enjoyable but emotional experience. I achieved my target of less than 1 hour, crossing the line in 54.14 mins and Emily crossed the line in 1hr 12 mins.” Grant Thomas.

• “On 10 September at Harleys Lodge in Oakdale, Lee

Gameson, Medium, and Lyn Martin, Spiritualist Artist, donated their time to demonstrate their talents. It was a very interesting and successful evening with approximately 100 people in attendance. Raffle tickets were also sold during the evening and I am very pleased to enclose a cheque for £807 in memory of my son, Jack. I would like to say a ‘thank you’ to Lee and Lyn for their support and also Glen and Deb Dunn for the use of the function room at Harleys.” June Thomas.

• Jamie Davis took part in a tandem skydive and raised £185.

• “On 25 August, along with a few friends,

I took part in the Cardiff 5K Fun Run in memory of my brother Jack. My father, Grant Thomas, also ran with me for support and company. It was a great day and we all had a lot of fun. It took me 24 minutes to run the course and I was so

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Fundraisers

In Memory of Scott Thurlow Cathryn Simpson, Chris Thurlow, Marcelle Thurlow, Michael Thurlow and Wendy Thurlow took part in the CRY Heart of London Bridges Walk 2012 and raised a further £195 making a total raised of £495.

In Memory of Hannah Turberville Katy Turberville sent in donations totalling £155; £135 from Harpenden Explorer Scout Unit Carol Service held on 6 December; and £20 from Allianz where Chris works. It was from a ‘Silly Tie’ competition held during the Christmas Lunch - Chris won with a newspaper tie.

proud of myself that I was able to complete the race in memory of my brother.”

Owain Thomas sent in a donation of £180.

• “On Saturday 27 October

2012, a very good friend, Mairwen Bull, organised a fundraising evening at Harleys Lodge in Oakdale.

It was a fantastic evening where two bands, the Meteors (who played 60s and 70s music) and Baptism of Fire (who are a young group of 15-year-olds, some with whom were good friends of Jack) donated their time to support our evening. The evening was a sell out and along with the sale of raffle tickets we raised a fantastic £780 in memory of their good friend and our son, Jack. I would like to say ‘thank you’ to Mairwen for organising such a successful evening and to all the members of the Meteors and Baptism of Fire for their support. I would also like to thank Glen and Deb Dunn for the use of the function room at Harleys.” June Thomas.

In Memory of Andrew Underwood Kevin Norfolk completed the Lyke Wake Walk on 3 June and raised £283.

In Memory of Richard Waight Simon Titmus took part in the Virgin London Marathon 2012 and raised £195.

In Memory of Neil Walden Ros Walden sent in a donation of £400 from a fundraising event in her village in memory of her son, Neil, who died from Brugada Syndrome in July 2010.

In Memory of Matthew Wallbank • Edward Whittle took part in the Great North Run 2012 and raised £990.

• John Neil McDonough took part in the Great North Run 2012 and raised £210.

In Memory of Mavis Ward Caroline Goodall sent in a donation of £363 raised at a kickboxing event. Online donations from Leah Coleman plus a donation from Tower View School makes a total of £523 raised.

• Emily Brown cycled across the Golden Gate Bridge on 23

In Memory of Alex Watley • Benjamin Rhymes took part in a 24 hour football match and raised £1,174.

• Mr D Torkington took part in the Cardiff Half Marathon and

• Alison Hyde took part in the Bupa London 10,000 and raised £370.

August and raised £935.

raised £530.

• Deb Holley took part

in the CRY Great Cake Bake 2012 and raised £430.

• June Thomas

and Tracey Withers took part in the CRY Great Cake Bake 2012 and raised £812.

www.c-r-y.org.uk

In Memory of Lily Webster Lorraine Anderson, Freya Bamford, Rhian Bamford, Barry Baxter, Dionne Baxter, Rachel Bergstrom, Daniel Booth, Cassie Bradford, Nick Cavill, Daniel Carr, John Cushway, Sophie Cushway, Suzanne Cushway, Lesley Dingli, Jayne Elliott, Emma Farnish, Hollie Farrow, Alexander Fellingham, Amanda Fellingham, Luke Fellingham, Mark Fellingham, Sandra Garner, Kurt Goatham, Sara Green, Caitlin Haynes, Bethany Jane Henson Mendez, Carol Holmes, Danielle Jarvis, Kelly-Lee Jarvis, Danny King, Georgina Lambert, Grace Lambert, William Lambert, Jane Little, Adrian Luscombe-Whyte, Nigel Luscombe-Whyte, Heather Marchant, Stuart Martin, Kim Moss, Callum Padmore, Sam Paterson, Jane Pearson, Karen Pinn, Becky Presland, Delia Prior, Eve Randall,

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Jay Reece, Kate Rigden, Martin Rigden, Gordon Salt, Jenni Salt, Katie Salt, Kieran Salt, Rebbecca Salt, Rhys Salt, Robbie Salt, Stella Sharman, Clare Sims, Adam Smith, Angela Smith, Gaby Smith, Helen Smith, Mark Smith, Laura Spink, Ryan Stewart, Bethan Stott, Lynn Studd, Claire Thompson, Jack Webster, Melanie Webster, Richard Webster, Sammie Wells, Ellen Welsh, Ruth Welsh, Ben Whyte, Lois Wilkes and Olivia Zarkos-Smith took part in the CRY Heart of London Bridges Walk 2012 and raised a further £340 making a total raised of £2,567.

In Memory of Hayley Wishart Danielle Wishart took part in the Ignis Asset Management women’s 10K in Glasgow and raised £220.

In Memory of Christopher Wheatley Catherine French took part in the Bupa London 10,000 and raised £247.

“From a local rapper to a glam-rock covers band, our collection of music acts were ready to take to the stage on Saturday 25 August for an evening of enjoyment and fundraising.

In Memory of Paul Wilkins Perry Brookes, Lisa Field, Russel Fogarty, Nikki Freegard, Mandy King, Katie Locke, Jeanette Mason Dick, Bill Oates, Pam Oates, Ashley Palmer, Michelle Palmer, Deborah Sears, Abby Thomas, Andrew Thomas, Janet Thomas, Scott Thomas and Steve Young took part in the CRY Heart of London Bridges Walk 2012 and raised £340.

In Memory of Sam Wright • Kevin Wright sent in a donation of £1,023 raised by Mark Wright at the CRY music gig in memory of Sam.

In Memory of Laura Williams Brenda Williams, Elise Jones, Hollie Jones and Tara Jones took part in the CRY Heart of London Bridges Walk 2012 and raised £225.

In Memory of Sarah Kathleen Williams Tricia Williams sent in a donation of £250 from the London Freight Club in memory of her daughter Sarah, who died on 19 September, aged 25 years.

In Memory of Craig Wilson • We have received a funeral donation of £1,340.16, in lieu of floral tributes, for the late Craig Wilson.

Volunteers provided endless amounts of refreshments and snacks to over 150 guests at the gig which took place at St Nicholas Church Hall in Allestree, Derby.

• Sharna Jackson at Yorkshire Bank, Mansfield, took part in the CRY Great Cake Bake 2012 and raised £250.

After an energetic few hours of music, dancing and socialising, we took a moment to reflect on the main reasons for the event and were delighted to announce that over £1000 was raised.

In Memory of Kevin Wilson • Josh Thompson completed the Snowdonia Walk for the Duke of Edinburgh Silver Award and raised £187.

• Mark Cotson, Rhein FC Committee, sent in a donation of £200 raised at the annual charity match in memory of former player, Kevin.

In Memory of Nathan Wilson S Magill sent in a sponsorship donation of £300 in respect of Scott Macmillan who took part in the Belfast Marathon in memory of Nathan.

In Memory of Pixie Wilson Emily Wilson took part in the CRY Great Cake Bake 2012 and raised £136, which included money from a raffle for a hand knitted nativity set.

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Mark Wright, who organised the gig in memory of his brother Sam, hopes to run the event again in the future, making it bigger and better, but most importantly raising even more money.” Dani West.

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Our

Fundraisers

• Melanie Stone forwarded a donation

Stallholders selling hand-made goods each contributed items to the raffle draw, and volunteers ran a tombola and cupcake stall, from which all proceeds were donated to CRY.

• Hamish Rogers took part in a hair slashing/hacking event

An estimated 50 people attended the event and the final figure raised was £200.” Dani West.

• Ashgates Accountants, Derby, sent in a donation of £246.

In Memory of Corben Wylie Claire Wylie took part in the Royal Perthshire Half Marathon and raised £610 in memory of Corben.

“On 1 September 2012 I ran the half marathon in memory of my son, Corben. Corben was taken from us on 25 June 2011. He had an undiagnosed heart condition named long QT syndrome. This was my first half marathon event. It was an emotional day but I was so pleased that I did it. It is important to help CRY raise awareness and money for research to try and stop this happening to other families.” Claire Wylie.

of £950 in respect of a skydive undertaken by James Stone and Dan Cudworth.

and raised £262.

They held an in-house draw raffle and weekly car park raffles (enabling a member of staff to use the company car park each week instead of public parking); plus contributions from clients who use the car park on football match days as they are based near Derby County football stadium at Pride Park.

• “The Directors/Partners from Ashgates Accountants contributed £50 each, making a £200 donation in memory of Sam.” Ashgates Corporate Services Ltd.

• CRY volunteer Dani West attended a Craft and Gift Shop Fair at Woodlands School in Allestree, Derby on 29 September and collected a cheque for £200.

General fundraising • William Adams raised £3,432 in respect of the Tour of Wales.

• Julie Hinton sent in a donation of £330.51 from her close friends, Mr & Mrs C Andrews, who recently got married and wished to highlight CRY’s work. Julie’s son suffered a cardiac arrest earlier this year but is now making a good recovery.

• Rosemary Attridge sent in donations totalling £451.25 from the sale of CRY Christmas cards.

• Dr Anthony Barron raised £739 in respect of the London to Brighton Run in May.

• Michas Barry completed the Three Peaks Challenge and raised £563.

• Alison Berridge took part in the CRY Great Cake Bake 2012 and raised £204.50.

• Adele Brearley held the annual Let’s Dance Christmas dance in Woodley and raised £200.

• Nicky Brierley took part in the Great North Run 2012 and raised £241.70.

“After being inspired by local news and events related to the death of teenager Sam Wright, Phoenix Trader and Events organiser Allie Sanderson hosted a gift and shopping day at Woodlands School in Allestree, Derby.

www.c-r-y.org.uk

During September and October 2012, Nicky Brierley set herself the challenge of completing three runs from the Great Run series: the Great North Run - 16th September; the Great Birmingham Run - 21st October; and the Great South Run - 28th October.

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“This year I set myself the challenge of running 3 Great Runs - the Great North, the Great Birmingham (both half marathons) finishing with the 10 mile Great South.

I choose to run for CRY as I am a nurse working within the field of cardiology.

• The

My challenge started in September with a long trip up to Newcastle for the Great North Run. The atmosphere is amazing. I think everyone has a tear in their eye when ‘Abide With Me’ is played as you wait on the start line thinking of the reasons you are running. The Red Arrows’ fly-past also helps to make it a truly special day. I got to high-five Ellie Simmons and Mo Farah and was still smiling 13.1 miles later when I realised some Mo magic had rubbed off and I had run a personal best of 2 hours 17 minutes.

The day was rounded off by a very warm welcome by the CRY team in the Charity Village.

• Mr T M Byrne sent in a donation of £185.66.

Bromsgrove Preparatory School, Worcester, held a Great Cake Bake on 24 November and raised £127.10.

• Andrew

Brown completed the Derby University annual Buxton to Derby Bike Ride and raised £355.

• Paul Brown completed the London to Brighton Cycle Ride on 16 September and sent in a donation of £160.

• Melissa Butler and Fidler & Pepper Solicitors took part in the CRY Great Cake Bake 2012 and raised £100.54.

• Cardiff Blues RFC took part in the CRY Great Cake Bake 2012 and raised £189.

• “Cor y Gleision/Cardiff Blues Choir held a celebratory concert on 30 September to celebrate their successful tour of Torrevieja in the summer. We raised money for CRY as it is the Cardiff Blues’ nominated charity for the 2012/13 season” Eiddwen Thomas (Treasurer) sent in a donation of £370.

• “Two years ago, my grandson James Ellis was diagnosed

with Wolff-Parkinson-White syndrome. He was a very keen, talented sportsman and began to have some minor symptoms, mostly when he was playing football. He was referred to the Freeman Hospital in Newcastle-upon-Tyne, where he has had two cardiac ablations to stabilise his heart and is fine at the moment. This is when I became aware of CRY. I have been Lady Captain of Castle Eden Golf Club for this year and chose CRY as my charity. I enclose a cheque for £1,030 which has been raised by the Ladies Section through various events and kind donations.”

Ann Ellis.

• Jennie Chamberlain sent in a donation of £100 in lieu of giving Christmas presents to her family.

While many of the other runners probably had a well earned rest I continued with my training and five weeks later I was again on the start line, this time in Birmingham. I found Birmingham very tough, who knew there were such big hills in Birmingham? The crowd kept me going - it is great when a total stranger shouts your name to support you and I eventually finished in 2 hours 25 minutes. Disappointment was put into perspective when the sad news was released that a runner had died shortly after finishing. It has later been announced that his family and friends have set up a fund raising page in his memory for CRY.

Just one week later I was lining up yet again to start the Great South Run feeling very apprehensive after a hard run only a week earlier. This time I had an amazing run completing the 10 mile course in 1 hour 38 minutes. I walked back to my hotel wearing my three medals with pride. Three Great Runs 2012 and over £200 raised for CRY.” Nicky Brierley.

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• “Our school holds a bi-annual Charity Walk

to raise funds for charities chosen by our school’s Student Leadership Team. This year our walk took place in July and over 700 students were sponsored to take part in an 8 mile walk through the Cotswolds, leaving school at 9am and returning just before it was time to go home at 3.30pm. Over 100 members of staff also took part.” John Sanderson, Principal, Chipping Campden School, sent in a donation of £4,106.41.

• Anita Foster, Chorlton BDC Sports & Social Club,

Manchester, sent in a donation of £150 from a recent fundraising event.

• Clacton Leisure Centre held a Cardio-Dance Carnival and raised £200.

• Janie Clark took part in the CRY Great Cake Bake 2012 and raised £425.

www.c-r-y.org.uk

Our • Jonathan Cook took part in the Virgin London Marathon 2012 and raised a further £125 making a total raised of £1,716.

• Greig Cosgrove completed the Edinburgh Marathon and raised a further £170, making a total raised of £500.

Fundraisers

• Eastcote Hockey Club took part in the CRY Great Cake Bake 2012 and raised £418.

“The event kicked off on Saturday 1 December, lacking potential cake buyers due to the Ladies 2’s match being cancelled due to the pitch being frozen. However, this didn’t put off the members of the club, as well as their family and friends, from bringing in the marvellous selection of cakes they had slaved away baking in order to donate.

As the morning moved on and the weather warmed up, thankfully pitches were defrosting and ten more teams were able to play throughout the day - promising plenty of cake sales to refuel!

As is evident from the photos, people were very generous in their donations of cake. We had beautifully decorated cupcakes, bakewell tarts, coffee cake, flapjacks, chocolate chip cookies, gingerbread, brownies, and of course the traditional Victoria sponge to name just a few!

After some of the men’s matches cake sales were booming!

With the help of all of the keen volunteers, cakes were continuously restocked and it looked like we hadn’t even made a dent! After a good day’s work at the clubhouse we had already beaten our target of £250 and had tons of cake still sitting in its tupperware!

On Sunday 2 December we opened up the cake stall at the earlier time of 10.30am whilst Colts training was underway on the astro. After a hard session of training, hungry parents and children came in for a treat of cake and warmed up with tea, coffee or hot chocolate - the profits of which the Club kindly donated towards the total amount of money raised.

Despite receiving even more cake donations from willing bakers, the cakes were steadily diminishing throughout the day as the mixed game took place in the afternoon. When the teams returned, with a 6-1 win to South Bucks, no-one lost out on cake!

The weekend was a success, and the total amount of money raised for CRY reached a whopping £418; with, believe it or not, cake left over!

• “Early this year I swam across the Solent to raise funds for

the West Wight Sports Centre. They very generously allowed any funds over £250 to be split between themselves and a charity of our choice. A friend of mine died six years ago at the age of 26 from sudden cardiac death, so my charity of choice is CRY.” Natasha Cottrell sent in a donation of £231.

• Ted and Iona Coutts took part in the Perthshire Half Marathon on 1 September and sent in a further £553, making a total raised of £1,179.

• Crowthorne Village Singers held a concert on 14 December

2011 and sent in a donation of £494. CRY supporter, Gill Weston, attended the event.

• Darrington Feast and Fayre held their annual Fun Run on 23 June and sent in a donation of £250.

• Gillian Davie sent in a donation of £540 in respect of the Highland Perthshire Half Marathon on 1 September.

• Gillian and Kevin Davie sent in a donation of £350 from the Heartland Motorcycle Club Rock Night in Aberfeldy.

• Jayne Davies-Morris took part in the Great North Run 2012 and raised £561.09.

• Michael Davies completed the Birmingham Fun Run on 19 August and raised £250.

• CRY supporter Ann Meek forwarded a

donation of £1,000 raised by the children at the Dene Magna School, Gloucestershire in respect of Phil Packer and the Brit Challenge 2012. Jackie Fraser collected the cheque on behalf of CRY. “The children did enormously well to raise so much for charity.” Ann Meek.

• HSBC Trust Company, Southampton, forwarded a donation of £2,000 from the Dixie Rose Findlay Charitable Trust.

• Richard Doust took part in the Bupa London 10,000 and raised £300.

• “Please find enclosed a cheque for £150. The Over 60s

Club which I run, had a Bring-and-Buy sale and this was the result. My daughter and I do all we can to promote CRY because of the help she has received. She married in June and together with her husband did a walk around the cricket ground where the reception was held to make the guests aware. As a result, several youngsters went for check ups at Gateshead in the following weeks.” F M Duffy.

• Nick Dunmur completed the 8th annual Buxton to Derby Bike Ride and raised £215.

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Fundraisers

We would like to say a massive ‘thank you’ to everyone who supported the event and the generous donations that were made. Also thanks to all of the volunteers who helped out throughout the weekend and Eastcote Hockey Club for hosting the event in their clubhouse.” Emma Gibb.

• On Friday 7 September 2012, Edinburgh Ladies Public

Bowling Association (ELPBA) held their annual charity event and raised £446.65.

As I ask the various Clubs to nominate a charity, a decision was only made about 8 days before the event. Mrs Jean Ramage is one of our members and her daughter, Shelagh Green, is the CRY representative for Edinburgh/Lothians.

As the ELPBA don’t have a cheque book, the funds raised were paid into my Club’s bank account and you will see that the enclosed cheque for £446.65 is from Stenhouse Community Bowling Club but the money raised was by the ladies of the ELPBA.

The winners won the grand old prize of a packet of Maltesers each. The usual uniform for playing bowls is Greys and Whites, but on this occasion we used the colours of your logo - Red and Black.

We all had a lovely day and, thank goodness, the weather stayed fine for us.”

Anita Hogg, Secretary, Edinburgh Ladies Public Bowling Assocation (ELPBA)

• Manda Elliott took part in the Great North Run 2012 and raised £429.

• Michelle Embleton took part in the Great North Run 2012 and raised £711.40.

• Elizabeth Emmington completed the Freckleton Half Marathon and raised £510.

• The Rotary Clubs of Epsom and Ewell sent in a donation of £5,103.02 for the purchase of a portable ECG machine for CRY’s screening programme.

• Matt Findlay raised £250 in respect of the London to Southend 52 mile bike ride.

• Paul Frossell completed a 100km bike ride and raised “Our small bowling association now has only 4 clubs in it and we run a charity event each year with 48 ladies playing a bowling competition at the Stenhouse Community Bowling Club; and this was held on 7 September 2012. We also have a raffle, a tombola stall, an arts & crafts stall and sell home-baking, jams and chutneys. The men in our Club sold the raffle tickets and looked after us by serving us with tea and coffee.

£133.

• Chris Gibson took part in the Great North Run 2012 and raised £260.

• Raymon Gompelmon completed the Bike 100 Challenge and raised £197.32.

• Gary Goodrich sent in a donation of £180 in respect of a sponsored bike ride.

• Nathan Goss raised £300 in respect of the British Gas Great North Swim.

• Mark Goulsbra and the Wales Cycle Speedway Team took

part in a cycle ride from John O’Groats to Land’s End on 5 August and raised £215.50.

• June Gransden held a fundraising day on 27 November

during Raising Awareness Week aboard the sailing barge, Edith May and raised £400.

• Derek Greenwood, Chairman, Runcorn Linnets FC, sent in a donation of £125, raised at a recent football tournament.

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Vere Whites Hotel in Bolton, where I was presented with a cheque for £100. The whole experience was the first in what is hoped to be a long and mutually beneficial partnership between Lancashire Tennis and CRY and I can’t wait for next year. Who knows, I might just dust off my old racquet and have a go myself! I also enclose an additional cheque for £15 from the sale of CRY wristbands on the day.” Sue Jarvis, County Representative, Lancashire.

• David Hay sent in a donation of £100.

• Dwayne Andrew Head took part in the Great North Run 2012 and raised £350.

• Heartfelt Group – Preston took part in the CRY Great Cake Bake 2012 and raised £376.50. The money raised will be going to CRY’s Research Fund.

• Helmores UK LLP sent in a donation of £500 in respect of their email Christmas Greeting.

• Gary Henderson raised £385.50 in respect of the Pandemonium on the Podium event which took place on 18 August.

• Trevor Langley and Westfield Health Scheme held a Charity Golf Day and raised £150.

• “Please find enclosed a cheque for £400 as a donation

to your charity. This represents part of the profit from our musical ‘Show Hits’ performed in September 2012 at our venue the Tractor Shed in Latchingdon, a small village in Essex.” Gillian Bridle, Treasurer, Latchingdon Arts and Drama Society (LADS).

• Hertfordshire County Council sent in a donation of £450.

• Liz Hickingbotham completed the Lancaster Castle Marathon and raised £413.

• Helen Hinton completed the Cardiff Half Marathon in October and sent in a donation of £260.

• “I am enclosing a donation for £372.37 which was raised by students in our year group during charity week last term.

The students carried out a number of activities including throwing sponges at teachers, wearing wacky hats and running cake stalls. Year Groups in the school each support a different charity and we would like our year group to continue to support CRY through to Year 11.” Fiona Bacon, Year 9 Manager, Howard of Effingham School.

• Mark Howgill and Dulwich Prep School took part in the CRY Great Cake Bake 2012 and raised £578.98 by holding a cake bake and a music concert.

Fundraisers

• The Lodge of Honour No. 526, Cannock, sent in a donation of

£100 raised during a charity collection at one of their meetings.

• The Worshipful Master, Officers and Brethren of Lodge

Southern Light No. 114 (Order of Women Freemasons) sent in a donation of £1,500.

• Koula Louki took part in the CRY Great Cake Bake 2012 and raised £461.

• LSA Technology & Performing Arts College, Lancashire, sent in a donation of £452.85.

• Pete Maidment took part in the Virgin London Marathon 2012 and raised £1,059.14.

• The Marine Resources Team Southampton held their annual Boat Show and raised £312.50.

• Mrs J Hussain sent in a donation of £132 in respect of sales of the monthly quiz sheet.

• Sion Jenkins completed the Welsh Marathon and raised £142.

• Ian Johnson took part in the Chester Half Marathon and raised £250.

• Mrs Valda Joyce sent in a donation of £160 in lieu of gifts for her 80th birthday.

• “In August 2012, David Parry, Tennis Development Office,

North West, contacted CRY to see if there was anyone who could man a CRY stand at the Lancashire Tennis Championships at the Bolton Arena between 24 August and 2 September. Happy to oblige, I set up a CRY display that remained on site for the duration of the championships and manned the stand on 28 August. This was the day of the event for 12 - 18 years olds and I spent the day speaking with both parents and teenagers about CRY, giving out leaflets and outlining CRY’s mission. It was really great to see youngsters enjoying competitive sport and I thoroughly enjoyed the day. David then kindly invited me and my husband Ken to the Awards Evening, at the De

www.c-r-y.org.uk

“The 2012 Marine Resources Boat Show party, held on Thursday 20 September, was once again a resounding success. Over 500 people attended the event raising over £620 for our nominated charities CRY and The Ellen MacArthur Cancer Trust.

CRY update • Issue 59 • 79

Our

Fundraisers

Exhibitors and industry professionals danced the night away at Wahoo bar until the early hours of the morning, letting off some steam after a busy week at the PSP Southampton Boat Show. Some fantastic raffle prizes were won on the night with further prizes awarded during the week.

• Jo Metherell held a Zumba Fitness charity event and raised £118.

• Pippa Miller sent in donations of £1,135 (£725 of this was donated by AXA Investments Managers) in respect of Carols for Causes.

• Ms A Kay, Moorhouse Consulting, raised £4,032.70 in respect of the Moorhouse Pedibus Olympic Challenge 2012.

• Alex McKie walked the West Highland Way and raised £260.

• Daniel Ring, Newedge UK Financial Ltd., sent in a donation

of £235 raised at an event held at their offices by The Book People on 12 September.

• Paul Parkes raised £107.50 in respect of the British Gas Great North Swim.

Marine Resources would like to thank all the generous companies who donated raffle prizes as well as Printing Crazy and 2ndHandDinghies.com for their continued support. Special thanks has to go to the team at the TheYachtMarket for sponsoring this year’s free drinks for the first 250 through the door.

James Ward, Managing Director of Marine Resources said: “This event just gets bigger and better every year.

We are always really pleased to offer an event for all the boat show exhibitors and other marine industry people to get together and have some fun.

It really is those guys who come along who make the night.

The atmosphere is always buzzing and we are more than happy to keep putting it on as long as people want to come”.

After last night’s efforts on the dance floor the Marine Resources team think they should award a prize for the best dance moves, which should surely be awarded this year to the team from the British Marine Federation and National Boat Shows who performed a fantastic dance off.” Anna Scott.

For more photos visit www.c-r-y.org.uk/Marine_Resources_2012.htm

80 • CRY update • Issue 59

• Suzanne Parkes raised £200 in respect of the British Gas Great North Swim.

• Holly Parkinson sent in a donation of £100 from the Lower Lane Tuck Shop.

• Chris Paton completed the Etape Caledonia Cycle Challenge on 13 May and raised £150.

• The Peters Marland Social Group chose CRY as their charity of the year and presented CRY representative, Charlotte Luckett, with a donation of £125 at their social group meeting on 2 October.

• Allan and Neal Porter took part in the Great North Run 2012 and raised £1,770.

www.c-r-y.org.uk

Our • “My name is Richard Putnam and on 24 May my brother

Matthew and I embarked on a 175 mile journey across some of the toughest terrain in Wales; our aim was to travel by foot from south to north Wales in 8 days. We carried food supplies and filled up our Travel Taps in mountain springs, sleeping under a basher at night. We started in Chepstow working northwards until Offas Dyke; then north through the Brecon Beacons, along the Black Mountains, up to Snowdonia National Park eventually, and – in need of a shower – arriving at our destination, Colwyn Bay. It was the hardest eight days of my life! The recent terrible events involving the professional footballer Fabrice Muamba inspired both myself and Matthew to put on our Bergen’s and strap on our boots to try and raise as much money as possible for the CRY charity. “ Richard Putnam sent in a donation of £766.50.

• Emma Reynolds took part in the Great North Run 2012 and raised £235.

• Mr & Mrs I Richmond sent in a sponsorship donation of £100 for Crispin Morton.

• Sarah Rippon took part in the Great North Run 2012 and raised £220.

• Danielle Roberts took part in a tandem skydive and raised £130.

• Caroline Robinson sent in a donation of £5,000.

• The Rydon Group Charitable Trust sent in a donation of £100.

• Alan Eagle, Santander Foundation, sent in a matched giving donation of £250 in respect of Ian Smith and the month end Dress Down Day.

• St Anselm’s Catholic School chose CRY as

its charity of the year and sent in a donation of £172.02 from fundraising events held by forms 10M, 7S and 11S.

• Mrs N Gillett, St Nicholas CE VA Primary

School, Dorset, sent in a donation of £100 which was raised by the children in her class at a recent Book Sale.

• Lesley Sellens took part in the CRY Great

Fundraisers

• Gillian Sinclair completed a 47 mile sponsored bike ride on

Sunday 9 September from Allenheads in Northumberland to Roker in Sunderland, and raised £260.

• Clare Skinner sent in a donation of £120.

• Hossen Solim took part in Run to the Beat 2012 and raised £215.

• Connell McGinley, South Eastern Trust ICT Department,

Ulster Hospital, sent in a donation of £1,242.50 in respect of the Belfast Marathon.

• Jenny Bamber, Springfields Fuels Limited, sent in a donation of £200 from the Oxide Fuels Complex.

• Sandra Stevenson-Revill completed the 8th annual Buxton to Derby Bike Ride and raised £163.50.

• Craig Stone completed the Ironman 70.3 and raised £384.50.

• Mark Sutton took part in the Bupa London 10,000 and raised £200.

• “Please find enclosed a donation of £200, half of which was

raised at our monthly meetings and the rest by a coffee and croquet morning at our President’s home. Sadly, no croquet as it was too wet but members were still very generous.” Ann Davy, Treasurer, Sutton Coldfield Vesey Ladies Probus Club.

• Ryan Taylor completed the Edinburgh Marathon and raised £220.

• Donna Thompson completed the Nottingham Half Marathon in 2 hours and 11 minutes and raised £235.

• Todwick

Primary School, Sheffield, sent in a donation of £241.04 from their Harvest Festival.

• Janice Tuite and The Finance

Department, in Registry, at the University of Kent took part in the CRY Great Cake Bake 2012 and raised £188.84.

Cake Bake 2012 and raised £869.29, including £144 from the sale of CRY Christmas cards and merchandise.

• Kathleen Turner and her sister took part in the Great

• Russell Seymour took part in the Bristol Half Marathon and

• Alistair Turvill took part in the Buxton to Derby Cycle Ride

raised £676. Thus included a matched giving donation of £308 from his employer, the Bank of Ireland.

• Karen Shepley took part in the Great North Run 2012 and raised £342.

• Shire Pharmaceuticals Limited sent in a donation of £600 in

respect of their two-day exhibiting at the CRY Conference on 12 and 13 October.

www.c-r-y.org.uk

Limerick Run and sent in a donation of £145.66.

in June and raised £150.

• Richard Varrall raised £1,025 in respect of the Dover to Land’s End ride.

• Joseph Vavasour, Elizabeth and Robert Morrison took part in the Great North Run 2012 and raised £968.51.

• Keith Warriner completed the 309 Miles for CPR event and raised £260.

CRY update • Issue 59 • 81

Fundraising Events 2013 Please contact Ben or Cara on 01737 363222 or e-mail events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events in 2013, visit www.c-r-y.org.uk/upcoming_events.htm All CRY participants in mass participation events that contact the CRY team (whether you have your ‘own place’ or a CRY charity place) will receive a fundraising pack containing sponsor forms, information, helpful tips and a t-shirt.

A few ideas...

Bupa London 10,000 27 May 2013 Due to the popularity of this event our charity places are now filled.

However, we would welcome any ‘own place’ runners who would like to run for CRY. Please contact events@c-r-y.org.uk for more information.

Kilimanjaro Trek 20-29 June 2013 Immerse yourself in the tranquillity of the jungle, spectacular wildlife and breathtaking glaciers - experience something that others will only ever dream of! If you are interested in taking part for CRY please e-mail ben@c-r-y.org.uk.

CRY Heart of London Bridges Walk 7 July 2013 Join us on the 7th CRY Heart of London Bridges Walk to raise awareness and funds for CRY. The walk’s 8km (5 mile) route will start at Victoria Embankment Gardens and finish at Hays Galleria, near London Bridge.

To register online visit www.c-r-y.org.uk/bridges_walk_2013.htm

Prudential RideLondon – Surrey 100

Windsor Half Marathon 29 September 2013 CRY has a limited number of charity places for this event also welcomes any ‘own place’ runners who would like to run for CRY. Please e-mail nicolat@c-r-y.org.uk to apply for a place, or if you have your have your own place, for a runners’ pack.

CRY Durham Riverside Walk 5 October 2013 The 4th CRY Durham Riverside Walk will start and finish at Durham Amateur Rowing Club. The 7km walk is in the beautiful Wear Valley, following the river, with views of the city and cathedral. Please e-mail events@c-r-y.org.uk if you are interested in taking part or would like to volunteer at this event. We will then notify you when registration opens.

Royal Parks Half Marathon 6 October 2013 If you are interested in this popular event, that has a route encompassing several of the picturesque royal parks of London, please contact cara@c-r-y.org.uk. We don’t have any charity places but would welcome any ‘own place’ runners who would like to run for CRY.

3-4 August 2013 Hot on the heels of cycling’s amazing success at the London 2012 Games and Bradley Wiggins’ stellar achievement at the Tour de France, we are proud to be promoting London’s great new cycling challenge – RideLondon 100. Starting at The Queen Elizabeth Olympic Park, participants will cycle the roads across London and into Surrey, following the famous road race route of the 2012 Games, finishing 100 miles later on The Mall. They will be followed by some of the world’s greatest cyclists who will be taking part in RideLondon Classic, so riders must be able to finish this exciting new challenge in less than 9 hours. CRY has a limited number of charity places for this event. To find out more please e-mail nicolat@c-r-y.org.uk.

The Big Heart Bike Ride in Jordan

Run to the Beat powered by Nike+

23 November-1 December 2013 If you would like to be involved in CRY Awareness Week 2013 please e-mail ben@c-r-y.org.uk. As well as the opportunity to hold an awareness stand or event, we are looking forward to continuing the success of the first Great Cake Bake that formed part of the 2012 Awareness Week, by holding our second annual event on Friday 29 November and will have special packs to send out with hints and tips and other goodies.

8 September 2013 CRY has a number of charity places for this event and also welcomes any ‘own place’ runners who would like to run for CRY. Please contact events@c-r-y.org.uk to apply for a place, or if you have your have your own place, for a runners’ pack.

Great North Run 15 September 2013 CRY has a limited number of charity places for this event and we are also delighted to welcome any runners who would like to run for CRY and who are successful in the public ballot. Please send an e-mail to events@c-r-y.org.uk if you are interested in a CRY charity place; are an ‘own place’ runner or would like to run in a CRY heart costume.

www.c-r-y.org.uk

8-15 November 2013 The Big Heart Bike Ride is a very special and unique event - it is the first Open Challenge of its kind whereby everyone taking part will be raising funds for the heart charity of their choice. You can make a real difference in the fight against heart disease by signing up. It entails five days of consecutive cycling for a distance of 350km from Jerash to the beautiful city of Petra via the Dead Sea. For more information email events@c-r-y.org.uk.

CRY Awareness Week

Parachute Jumps Assorted dates For further details, please visit www.c-r-y.org.uk/parachute_Jump.htm

CRY update • Issue 59 • 91

Cardiac Risk in the Young Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

These include conditions such as arrhythmogenic right ventricular cardiomyopathy (ARVC); hypertrophic cardiomyopathy (HCM); Wolff Parkinson White syndrome (WPW); long QT; Brugada syndrome; and other abnormalities leading to sudden arrhythmic death syndrome (SADS).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

CRY aims to reduce the frequency of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young.

www.c-r-y.org.uk

CRY believes cardiac screening should be accessible to all young people aged between 14 and 35.

CRY also works to guide and support families and close friends affected by YSCD. CRY aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD. In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.c-r-y.org.uk/medical_conditions.htm

Our Patrons

The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our charity.

Current Patrons of CRY: Rob Andrew MBE, John Barrowman

Jeremy Bates, Ben Brown, Mark Carruthers, Clive Clarke, Mark Cox MBE, James Cracknell OBE, Brian Dooher, Nick Easter, Jonny Evans, Baroness Ilora Finlay, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Pat Jennings OBE KSG, Robert Jones MBE, Rob Key, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell MBE, Professor W J McKenna, Bill Neely, Lawrence Okoye, Phil Packer MBE, Sir Steve Redgrave CBE, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, Andrew Trimble, David Walliams, Matt Wells, Ray Wilkins MBE and Sir Clive Woodward OBE.

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm

Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support service; the CRY Centre for Cardiac Pathology (CRY CCP) at the Royal Brompton Hospital; the CRY Centre for Inherited Cardiac Conditions and Sports Cardiology at St. George’s Hospital and the CRY myheart Network to support young people living with potentially lethal cardiac conditions. CRY also requires funding to support medical research into YSCD; and to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth.

Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of overseas trekking and cycling events.

For more information visit www.c-r-y.org.uk/free_fundraising_events.htm or contact the CRY office to request a fundraising ideas pack.

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone.

For further information telephone 01737 363222 or go to: www.c-r-y.org.uk/donate.htm All your help is greatly appreciated.

CRY is always extremely grateful for grants or donations from Trusts and Foundations. We would like to thank the following Trusts and Foundations for the very generous support they have given us: ABBA Trust • Albert Hunt Trust • Artie White Foundation • Aspen Insurance UK Charity Committee • Biggart Trust • The Celtic Charity Fund • Charlotte Marshall Charitable Trust • Sir Cliff Richard Charitable Trust • Edward Joseph Colclough Trust • Fitton Trust • The Freemasons’ Grand Charity • Gordon Fraser Charitable Trust • Gwyneth Forrester Trust • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • Malcolm Chick Charity • Miss W E Lawrence 1973 Settlement • Munro Charitable Trust • Muriel Edith Rickman Trust • Pharsalia Charitable Trust • The Sobell Foundation • Shuttlewood Clarke Foundation • Sir James Roll Charitable Trust • Sir Jules Thorn Charitable Trust • Tudor Foundation, Inc.