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Cardiac Risk in the Young Update 58 May to August 2012 News and Events

• Raising Awareness • Our Fundraisers

Cardiac Risk in theYoung (CRY) Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk Visit our websites: www.c-r-y.org.uk • www.sads.org.uk Registered Charity No 1050845


CRY

update 58 May to August 2012

Contact the Editor

Inside Update 58

Mair Shepherd mair@c-r-y.org.uk

Meet our County Representative

Page 3

Assistant Editor

News from the Chief Executive

Page 4

Chief Executive

Other CRY News

Page 9

Contributors

Newsletter from the Deputy Chief Executive

Page 12

Report from the CRY Centre for Cardiac Pathology (CRY CCP)

Page 13

CRY Screening Report

Page 15

Research News

Page 16

CRY Raising Awareness Event at the Welsh Assembly

Page 20

CRY Heart of London Bridges Walk 2012

Page 21

CRY at the Royal Society Summer Science Exhibition

Page 24

Our Fundraisers

Page 27

Raising Awareness in the Media

Page 71

Fundraising Events 2013

Page 79

Alison Cox MBE

Dr Steve Cox Deputy Chief Executive Jemma Reilly Ayton Medical Secretary to Dr Mary Sheppard Rebecca Zouvani Fundraising Manager

Now on Twitter and Facebook

http://twitter.com/CRY_UK

www.facebook.com/CardiacRiskintheYoung

View the Update online: www.c-r-y.org.uk/cry_brochure.htm

This magazine is printed on chlorine-free paper taken from a sustainable source using vegetable-based inks.

Submission guidelines We only include activities in the ‘Our Fundraisers’ section that raise £100 or more. If you would like to supply a write-up or photos for any fundraising activities that you have taken part in, please email the editor at mair@c-r-y.org.uk Entries appear in the ‘Our Fundraisers’ section according to when CRY sends official receipt of monies raised. Articles may only appear in the ‘Raising Awareness in the Media’ section if we have permission from the publishers to reproduce the article. No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

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Meet our County

Representative

Ian Broughton County Representative for Ayrshire My name is Ian Broughton and I live in a small town called Beith in Ayrshire. I’m married to Irene, have three children, Siobhan, Scott and Steffani and a granddaughter called Taylor. CRY came into our lives following the death of our 17 year old daughter Steffani. She died in her sleep on the 2nd September 2007. It was the saddest, most traumatic day that we could ever imagine. It changed our world forever. How do you ever start to comprehend how a healthy young person who has everything in life to look forward to goes to bed at night and by the morning they are gone? Steffani was a kind, caring, loving girl who always went out of her way to help others, always putting them first. She lived life to the full and was always on the go. She was so loyal, vivacious and funny, singing and dancing around the house, entertaining everyone, and telling us the latest gossip. How I miss those chats. The night she died we had been out celebrating our 25th Wedding Anniversary. Steffani was going out that night as well to an 18th birthday party with her best friend, they went everywhere together.

explained to us that Steffani’s heart was like a sponge where all the holes were closing up and the electrical impulses could not get through, they said it was like a switch going off, she would have mercifully felt no pain.

I offered to take them but she said they had a taxi booked. Prior to that night, wherever she wanted to go I took her and went back for her (dad’s taxi). This was the first time ever I hadn’t taken or collected her. She was always happy for us to be wherever she went, never embarrassed and seemed proud to show her friends how much we cared for her.

We found CRY while we were trawling the internet looking for answers as Steffani had never been ill. How could this not have been picked up? Why didn’t we see anything was wrong? What could we have done to prevent this? We spoke to Alison, who was so comforting during those tragic first months when we had so many questions. She was the only one we could turn to for answers. CRY held a bereavement support day at which we met other families and friends who had lost someone young as well. The day was very hard but it was also very comforting to be able to share our emotions and feelings with people who were going through the same sad, devastating experience. I believe that day helped everyone immensely.

We were in bed when she came home having got a lift from some older friends, making sure her friend got home first. This was Steffani all the time, always considering others first. She came home and went to bed. During the night she seemed a bit restless and out of sorts. Irene checked that she was okay, made her comfortable and went back to bed. In the morning I was getting ready to go out. Strangely there was no noise coming from Steffani’s bedroom. Usually there would be the clicking of the keyboard from her computer, Bebo or MSN chatting about what has been happening or catching up with the latest gossip. Irene went upstairs to check and came back down saying there was something wrong with her. I ran upstairs and found her still and motionless. She looked asleep. As I looked at her lying there I knew that there was something seriously wrong. I didn’t want to believe it but I could tell that she had gone. A part of me died then too. The post mortem showed no alcohol or drugs which was no surprise to us but what was the silent killer that came to our house and stole our wee girl? After a few weeks we were told that the cause of death was fibrosis of the left ventricle. It was

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Until then we had never heard of SADS and were shocked to learn that at least 12 apparently healthy young people were dying every week due to undiagnosed heart problems. CRY is now part of our family. Irene is training to become a bereavement counsellor while I have volunteered to become an area representative in Scotland. I want to do something to help CRY and raise awareness. CRY do so much to help others through their bereavement support, raising the awareness of Cardiac Risk in the Young, supporting research and screening youngsters to help prevent the loss of another young life. We have had to find a “new normal” for our family but it will never be the same without our little ray of sunshine. We think of her every day.

CRY update • Issue 58 • 3


News

from the

Chief Executive Alison Cox MBE CRY Founder & Chief Executive

May Bereaved families from across Wales attend an event at the National Assembly to raise awareness of sudden cardiac death in the young 2 May The event brought together bereaved families and Members of the Welsh Assembly, just weeks after the sudden collapse of Bolton midfielder, Fabrice Muamba. The shocking events on the pitch at White Hart Lane on 17 March have led to even greater calls for cardiac screening in young people, especially those involved in sport. Media attendance was good and coverage was achieved in The Cardiff & South Wales Advertiser (18/05/12), The Flintshire Evening Leader (05/05/12 and 07/05/12) and the South Wales Evening Post (04/05/12). CRY Representative, Anne Thomas, was interviewed by BBC

TV Wales about the loss of her son, Gareth, who died in his sleep aged 21 in 2007; and about what should be happening regarding testing. The interview can be viewed online at www. bbc.co.uk/news/uk-wales-17913464 For more information see the article in this Update on the National Assembly event or visit www.c-r-y.org.uk/welsh_assembly_2012.htm

CRY is announced as the official charity of the 2012 FA Cup Final

about what happened when his son Ashley died in 2007 from

3 May

Professor Sanjay Sharma were also interviewed, providing

CRY was the nominated charity recipient of £1 from every

information on CRY; the campaign for screening, why it is so

programme sold at the FA Cup Final on Saturday 5 May.

important and the difference it could make; why screening is

an undiagnosed heart condition, at the age of 35. Myself and

not in place yet in the UK but is in Italy; and how expensive

CRY supporters Paul Clabburn and Claire Prosser interviewed on BBC Radio 4

it would be.

6 May

Professor Sharma interviewed on Today programme on Radio 4

Paul

Clabburn

Prosser

and

were

Claire

interviewed

11 May

by Paddy O’Connell for the

Professor

Sunday

was

morning

programme

magazine

Sanjay

interviewed

Sharma by

BBC

‘Broadcasting

Health Correspondent, Adam

House’. They talked about

Brimelow, who has become a

the loss of their son, Tom,

strong supporter of CRY with

who died suddenly aged 14 in

a real interest in screening and

2007; and about the work of

research.

CRY.

Interviewed on Radio Gloucestershire 9 May Following the sudden death a young rugby player in Gloucester,

To read more about this story visit www.bbc.co.uk/news/ health-17983489

Radio Gloucestershire recorded a piece about the importance of cardiac screening. CRY supporter Geoff Goodwin spoke

4 • CRY update • Issue 58

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News Midlands Regional Bereavement Support Day

from the

Chief Executive

12 May

Interviewed for the Swindon Breakfast Show and the Wiltshire Breakfast Show

19 people registered for this event, held at Eastwood Hall in

14 May

Nottingham. Groups were led by CRY Bereavement Supporters

I was interviewed about Swindon Football Club’s pledge to start

Maralyn Bowen, Jennie Crean, Julie Hatton, Joan Hillier, Bruce

screening all players.

Lord, Sian Regan, Anne Reynolds and Sarah Willis (pictured).

Midlands myheart meeting 20 May 10 young people aged between 14 and 35 registered for the myheart meeting held at the MacDonald Burlington Hotel in Birmingham. These meetings give members an opportunity to meet other young people similarly affected, receive group counselling and informally ask questions of a cardiologist. Cardiologist, Dr Michael Griffith; inherited cardiac syndrome specialist nurse, Lorraine Cadd; and Counsellor, Jayne Slack, attended.

Appointment of Chief Coroner announced 22 May The Lord Chief Justice, following consultation Chancellor, that

His

with

the

announced Honour

Judge

Lord today Peter

Thornton QC is to become the first Chief Coroner of England and Wales when he takes up post in September 2012. HHJ Thornton is currently a Senior Circuit Judge at the Central Criminal Court (the ‘Old Bailey’). He also has experience of the coroner system, having conducted the inquest in 2011 into the death of Ian Tomlinson during the G20 protests; and heard a number of Judicial Reviews on coronial matters. HHJ Thornton will begin to familiarise himself with the current challenges facing the coroner system over the next few months, in advance of formally taking up post. CRY was very actively involved in the fight back against removing the position of Chief Coroner, a position that had been agreed with cross-party support under the Labour Government.

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CRY update • Issue 58 • 5


News

from the

Chief Executive

Interviews following the announcement of the appointment of Chief Coroner

‘Art in Motion’ Exhibition and Auction at Windlesham School

22 May CRY supporter Sue Ainsworth was interviewed by Radio Tees FM and CRY supporter Maralyn Bowen was interviewed by BBC Radio Tees regarding the appointment of a Chief Coroner. Sue and Maralyn worked very hard in their communities to raise awareness and emphasise the importance of having a Chief Coroner in post.

30 May Windlesham School held an art exhibition and auction in memory of past student Max Lowry, with all monies raised being donated to CRY. I was overwhelmed with the quality and scope of the art exhibition and enjoyed it so much I was the last to leave! We are most grateful for the stunning sum raised of £5,250, which represents an enormous amount of hard work and commitment from everyone involved. The cheque was presented to Professor Sharma for CRY at the Royal Society Summer Science Exhibition.

CRY chosen to benefit from fundraising at the 2012 British Cardiovascular Society Conference 28-30 May We were delighted to be chosen as the charity to benefit from fundraising at the 2012 British Cardiovascular Society Annual Conference. The focus of our fundraising efforts was a “Cyclathon” that ran throughout the course of the 3-day conference. As well as raising funds and awareness for CRY, the Cyclathon also offered delegates the chance to win some great prizes. Our thanks to everyone who supported and took part in the CRY Cyclathon and especially to Olympic Gold Medallist Rebecca Romero (winner of the Women’s Individual Pursuit in Beijing 2008) who visited the CRY Cyclathon after taking part in another cycling demonstration at the conference and before going on to complete her leg in the Olympic Torch Relay!

July Professor Sharma interviewed again on Today programme on Radio 4 BBC Health Correspondent, Adam Brimelow, interviewed Professor Sanjay Sharma about his published paper about cardiac adaptation of black athletes. To read the research article visit www.c-r-y.org.uk/cry_research.htm

Lawrence Okoye is announced as a new Patron of CRY

Money raised during the conference was for CRY’s myheart network, which offers help, support and information to fit and healthy young people suddenly diagnosed with a life-threatening heart condition. To read more about the event visit www.c-r-y.org.uk/bcs2012.htm

6 • CRY update • Issue 58

3 July Lawrence Okoye is an Olympic athlete and the GB discus record holder. On becoming a CRY Patron, he said “I have a strong affinity with CRY after a 16 year-old school friend of mine died suddenly. If you are fit and healthy the only way that you can find out whether you are

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News

from the

Chief Executive

carrying an undiagnosed heart condition that could kill you is to be tested. CRY give young people the chance to know. Worth thinking about? It could save your life.”

CRY chosen as one of the lead exhibitors at the 2012 Summer Science Exhibition at The Royal Society in London 3-8 July CRY was honoured to be one of twenty organisations chosen to exhibit at the 2012 Summer Science Exhibition at The Royal Society in London. CRY’s exhibit focused on the athlete’s heart and the changes that result when a young person engages in exercise. The exhibit also demonstrated CRY’s cardiac screening programme via a series of short videos featuring GB discus thrower and CRY Patron, Lawrence Okoye; and displayed a huge picture of CRY Patron Matt Wells being screened.

For further details and photos, see the article on the Summer Science Exhibition or visit www.c-r-y.org.uk/royalsociety_ report.htm

CRY Heart of London Bridges Walk

Other features of the CRY display included a functioning model of the heart and circulatory system; an ultrasound (echocardiogram) probe that allowed visitors to look at their own heart; the chance to spend 3 minutes cycling on a Wattbike (http://wattbike.com/uk/) - and maybe win a CRY goody bag! - whilst a CRY Research Fellow explained what happens to the heart during exercise; with plenty of CRY staff on hand to answer visitors’ queries.

15 July 940 adults, children and family dogs participated in the 2012 CRY Heart of London Bridges Walk. The 6th annual walk was started by former Gladiator (Zodiac) Kate Staples and led by CRY Patron Kathryn Harries. Most were there in memory of a young person, although many participants came to simply support CRY. A huge thank you to everyone who participated in this very moving and humbling occasion. For more details and photos from the walk, see the Bridges Walk article or visit www.c-r-y.org.uk/bridges_walk_2012.htm

It was a great thrill for our doctors to meet CRY Patron Pat Jennings, who brought his grandson; and we were very proud to be able to show him off to other members of the public at our stand! CRY Chairman Hugh Mulcahey was my guest at the soiree and was delighted to try the bike on the CRY stand. Many of the scientists who attended this massive dinner of over 1,000 people were fascinated by the CRY information.

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CRY update • Issue 58 • 7


News

from the

Chief Executive

South East myheart meeting 29 July 9 young people aged between 14 and 35 registered for the myheart meeting held at the Reigate Manor Hotel. These meetings give members an opportunity to meet other young people similarly affected, receive group counselling and informally ask questions of a cardiologist. Our thanks for the time that Dr Michael Papadakis always give us in support of this group, who are most appreciative of having the opportunity to question him about their medical concerns. We are most grateful to Rosemary and Graeme Attridge who look after us so well at their lovely hotel.

CRY Patron Andrew Triggs-Hodge MBE wins a Gold Medal at the London 2012 Olympic Games 4 August CRY Patrons did brilliantly too, with Andrew Triggs-Hodge winning gold in the men’s coxless four and Lawrence Okoye (discus) and Matt Wells (rowing) both qualifying for their respective finals. Lawrence’s jubilant dance on qualifying for the men’s Discus final was a real highlight of the Games!

August CRY Supporters carry the Olympic and Paralympic Torch May-August The summer has been dominated by the Olympic and Paralympic Games in London and we were delighted to learn that at least 6 CRY supporters (that we know of!) were chosen to take part in the Olympic and Paralympic Torch Relays. James Bailey, David Cleaver, Gabby Broadhurst, Mike Fleet and Sue Williams all carried the Olympic Torch on various dates between May and July; and CRY myheart network member Tony Eames carried the Paralympic Torch on 29 August.

We are hugely proud of them and it is impossible to even guess at the amount of time and effort dedicated to succeeding at this massive event – the ultimate accolade for an elite sportsperson. Andrew became a CRY Patron in 2010 and, like so many of our Patrons, has a personal connection to the charity. In 2008 a good friend, who had seemed extraordinarily fit, died without warning on a rugby pitch. Just a year later, another friend and fellow rower - again without warning - died on the rowing machine whilst warming up. Scott Rennie was fit and strong and vying for a slot in the GB rowing team, but was denied his chance. Lawrence became a CRY Patron in 2012 because he felt a strong affinity for the charity after a 16 year-old school friend of his died suddenly. Matt became a CRY Patron in 2010 after a friend of his wife’s died suddenly of a cardiac arrest and he was screened through CRY’s fast-track athletes screening service.

8 • CRY update • Issue 58

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Other

Northern Ireland Updates Northern Ireland Patrons The CRY screening programme in Northern Ireland has attracted support from some of the biggest names in local sport. Among the high profile sportsmen associated with CRY are footballer Jonny Evans of Manchester United and Northern Ireland; professional golfers Graeme McDowell and Michael Hoey (pictured); Ulster and Ireland rugby player Andrew Trimble; and All Ireland winning Gaelic football captain, Brian Dooher. The interest in local sport is massive in Northern Ireland and CRY has been greatly encouraged by the support of these Patrons in increasing the profile of its Northern Ireland screening clinic. John Lundy explains: “We have been very honoured with the Patrons who have come on board. The Patrons have contributed in a real way to developing and promoting the clinic. Graeme McDowell organised a golf event for us in 2009 to coincide with my son Aaron’s anniversary. Between memorabilia auctions and donations, we raised a significant sum that has gone towards funding a Research Fellow and providing our annual CRY screening programme.” “Jonny Evans has lent his weight to the campaign also. He is a busy man with Manchester United but he has taken time to involve himself in the promotion of the clinics. Michael Hoey also has visibly increased the profile of CRY through a regular piece he writes for the Newsletter paper in Belfast. Michael also carries the CRY logo on his cap and bag. It is great visibility on the European Tour.” John also pointed to recent CRY association with the Irish News which has opened the door to the entire GAA community. Patron Brian Dooher is a high profile GAA player who has lent his support to CRY as a Patron. In addition, Ulster Rugby have been longstanding supporters of CRY, with former Ireland international Gary Longwell and current Ulster and Ireland star Andrew Trimble both Patrons of CRY.

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CRY News

John added: “The value of having high profile individuals on board, supporting what we do, is invaluable. They appreciate and understand the work we are doing and although they have other major time commitments, they have each - in their own way - helped us along.” The involvement of the local sporting community has not just extended to high profile sports. John’s local camogie team, Eoghan Rua, have won two All Ireland championships at Croke Park, carrying the CRY name on their jerseys. City of Derry Rugby club are another outfit that wear the name on their kit; and the IFA have been longstanding supporters of CRY, with the familiar red CRY heart appearing on their training gear. The Patrons value the charity and the work it does. We value their time and their efforts.

Pictured at the Launch of the 2012 screening programme, from left: Jessica Delargey, IFA; John Lundy, CRY NI; Jonny Evans; Jim Grattan, Child Welfare Manager IFA

Local Fundraising in Focus Coleraine Council 3 Peak Challenge

Charity

Climbers

A team of walkers from Coleraine Borough Council geared up and set off on the 3 Peaks 24 hour Challenge on 5-6 July 2012, to raise funds and awareness for CRY. Director of Leisure & Development, Richard Baker, who began his post in September 2011, is a keen mountaineer and within a month of starting his post, had initiated “The Team Challenge Event” The challenge included travelling, walking and climbing the 3 Peaks in 24 hours. Luckily for the walkers, two volunteers undertook the task of driving the climbers to and from each mountain. The team consisted of staff and a Councillor f rom CBC. Physical endurance and team work were the order of the day….but to what purpose – the commitment and enthusiasm would not mean very much without taking up the gauntlet for CRY.

CRY update • Issue 58 • 9


Other

CRY News

...Local Fundraising in Focus

At the Launch of the Coleraine Borough Council 3 Peaks Challenge, from left: Garry McGrotty (CRY), Lucille Wright, John Lundy (CRY), Anna Kelly, Alan Simpson (Radio Ulster), Helen Perry and Janis Bolan The intrepid adventurers trained hard and completed the challenge within the 24 hours, along with aching muscles, sore knees and the deluge of rain that followed them up Ben Nevis and Snowdon. Thankfully the rain had ceased for Scafell Pike – and at 4.30am the scene at the top was amazing.

North Down Cycling Club Coastal Challenge Raises £5.5K In mid October, before heading off on their various regular Saturday morning club runs, members of the North Down Cycling Club (NDCC) took a few minutes out to present cheques totalling some £13,000 to four local charities. CRY was among one of the beneficiaries of the annual Coastal Challenge. John Lundy was present to receive a cheque for £5,500 from the club.

He went on to say it was a real pleasure both to be able to support such worthwhile causes and to see the Coastal Challenge event grow over the years to become one of Ulster’s most popular cycling events - attracting an eclectic mix of participants who find the event both long enough to provide a good run for club cyclists, yet short enough to provide an achievable target for the novice rider.

The money had been raised during the summer through the Club’s major sporting event of the year, ‘The North Down Coastal Challenge’, when over 1,000 cyclists spent an enjoyable day making their way round the Ards Peninsula, including a well-earned lunch stop in Portaferry. Club Chairman Ian Blaney expressed his sincere thanks to those who had made the event possible, including the club members who assisted on the day, the PSNI who helped ensure the safe running of the event and, of course, the event sponsors Bike Dock. John Lundy with Tim Johnston of North Down Cycle Club

10 • CRY update • Issue 58

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Newsletter

from the

Deputy Chief Executive short videos featuring GB discus thrower, UK record holder and CRY Patron, Lawrence Okoye – who of course also competed for GB in the London Olympics.

Dr. Steven Cox CRY Deputy Chief Executive 2012 provided some unique opportunities to raise our profile as the key organisation that is pushing forward research into young sudden cardiac death and screening, thanks to our involvement in the British Cardiac Society (BCS) annual conference (May 28 – 30) and the Royal Society Summer Science Exhibition (July 3 – 8). Each year CRY attends the BCS annual conference to raise awareness of CRY’s work. In the year of the London 2012 Olympic and Paralympics Games, the key theme of the BCS conference was the importance of maintaining a healthy heart through exercise. It was expected to attract well over 2,000 healthcare professionals, three-quarters of whom would be consultant cardiologists or trainee cardiologists. This year CRY was invited to host a 3-day static bike ‘cyclathon’ at the conference, using the amazing ‘Wattbike’ kindly provided by Cranlea. This fundraising challenge across the 3 day event encouraged delegates to take part to see how many metres they could clock up in a 5 minute ‘slot’. The BCS conference is a hugely prestigious event and we were delighted to be given this opportunity to engage in such a fun and energetic way with the many leading cardiologists and experts attending the event! This was always going to be an ‘interesting’ event, especially as we were asking delegates to take off their suits, put on a CRY T-shirt and jump on an exercise bike for 5 minutes, pushing themselves as hard as they could. The response was unpredictable and fantastic! As the ‘cyclathon’ developed over the 3 days it got increasingly serious, with participants doing warm-ups and taking a more strategic approach to hitting their target. Olympic Gold Medallist Rebecca Romero (winner of the Women’s Individual Pursuit in Beijing 2008) jumped on the bike on the second day for a photo call; followed by an excellent ride by Professor Greg Whyte. The competitive spirit culminated with Graham Sheldon topping the leaderboard with a distance of 3,943 metres in his 5 minute slot. The event gave an opportunity to profile the excellent research that CRY is involved in and quality of doctors who are working within CRY’s programme; and Professor Sanjay Sharma’s brilliant presentation in the main auditorium was very well received. CRY Research Fellows Dr Michael Papadakis and Dr Abbas Zaidi were also invited speakers in the main auditorium and their confident delivery was a terrific example of the incredible progress CRY has made over the past 15 years with regards to the quality of our research fellowship grants and the team we continue to develop under the leadership of Professor Sharma. The success of the BCS conference paved the way for a truly unique event for CRY, the Royal Society Summer Science Exhibition. CRY’s exhibit focused on the athlete’s heart and the changes that happen in the heart when a young person engages in exercise. The exhibit also explained CRY’s cardiac screening programme via a series of

12 • CRY update • Issue 58

Other features of the CRY display included a functioning model of the heart and circulatory system; an ultrasound (echocardiogram) probe that allowed visitors to look at their own heart; and the return of the ‘cyclathon’ which proved to be so popular at the BCS - this time with a chance to spend 3 minutes cycling on the Wattbike with a CRY Research Fellow explaining what happens to the heart during exercise. For several months leading up to the event I worked alongside Professor Sharma and the press teams from both CRY and the Royal Society to agree on CRY’s key messages from the research; the format of the stand; and to develop a strong media story. Over the weekend leading up to the opening of the exhibition we worked round the clock to build an innovative and interactive display to attract the crowds. I don’t think I have ever worked so many hours in 10 days or been so exhausted in my life! It was amazingly uplifting when one of the first supportive tweets about the event came from comedian Eddie Izzard! Every morning when the public started arriving there was a steady trickle of young people coming through to the exhibition. On the first day we were quite surprised that the numbers seemed quite low. However, within an hour the surge started and it was a case of ‘all hands on deck’. Over the weekend the numbers were extraordinarily high. During school hours, most of the visitors were school children, and we were delighted that pupils were able to attend from Ravens Wood School (in memory of Ben Daniels) and from Windlesham House School (in memory of Max Lowry). It was shocking just how many people who came across us by chance had been closely affected by young sudden cardiac death. We were incredibly lucky to have Professor Sharma at the event every day with his team - an astonishing commitment in view of his massive work load immediately prior to the Olympics, where he was the consultant cardiologist. Watching our medical team one minute explaining to young children how the heart works and the next discussing our research with the most highly respected academics in the world was a terrific experience. I managed to persuade my six year old daughter to join the general public and attend one of the days and was delighted to see at first hand how important this educational initiative was in helping young people to engage with their heart and demystify what was going on inside their own body. The dynamic mix of world leading research, hands-on understanding of the human heart and a rolling social media campaign, meant that CRY was able to constantly communicate with a wide and captive audience of both health professionals and the public. We are very grateful to the Royal Society for giving us this once-in-alifetime opportunity to profile our work.

Steve Cox Deputy Chief Executive

www.c-r-y.org.uk


Report from the CRY

Centre for Cardiac Pathology

(CRY CCP)

By Jemma Reilly Ayton, Dr. Mary Sheppard’s medical secretary at the CRY CCP.

Dr Mary Sheppard Consultant Cardiac Pathologist

Jemma Reilly Ayton Medical Secretary

Dr Sofia de Noronha Research Assistant

Saharnaz Vakhshouri Laboratory Technician

Over the last four months the centre has received 64 sudden death cases.

The line graph shows our average turnaround time per month for the period of May to August in 2012. Our aim is to provide a final report within 14 days; as you can see each month has been much lower than our target of 14 days turnaround.

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CRY update • Issue 58 • 13


Report from the CRY

Centre for Cardiac Pathology

(CRY CCP)

Contributor to International Guidelines 1. Stone JR, Basso C, Baandrup UT, Bruneval P, Butany J, Gallagher PJ, et al. Recommendations for processing cardiovascular surgical pathology specimens: a consensus statement from the Standards and Definitions Committee of the Society for Cardiovascular Pathology and the Association for European Cardiovascular Pathology. Cardiovasc Pathol. 2012;21(1):2-16. Epub 2011/03/01.(Guidelines)

Meetings attended Dr Sheppard has attended one international meeting and six national meetings from May to August 2012: International Diagnoses The pie chart shows the diagnoses that were made during

1. European Association of Echocardiography/Societa Italiana Di Ecografia Cardiovascolare Teaching course, ‘Update in

May - August 2012, indicating once again that channelopathies

valvular heart disease: from clinical imaging to therapeutic

(structurally normal heart) predominate.

innovations’. 8th May, 2012, Milan. Speaker on ‘Sudden death in VHD’. National

Publications 2012

1. British Association Tissue Bank Meeting, Oxford, 10th May Peer reviewed papers

1. Desai S, Sheppard MN. Sudden cardiac death: look closely at the coronaries for spontaneous dissection which can be missed. A study of 9 cases. Am J Forensic Med Pathol. 2012;33(1):26-9. Epub 2012/03/24. (Paper) 2. Silvanto A, de Noronha SV, Sheppard MN. Myocardial infarction with normal coronaries: an autopsy perspective. J Clin Pathol.

2012. Workshop moderator.

2. Association of Clinical Pathology, National Training Scientific Meeting, The Royal Institute of Architects. Invited speaker

‘Iatrogenic heart disease’, 28th June 2012.

3. Cardiovascular Pathology Course, NHLI, Imperial College

London, 17th and 18th May 2012. Organiser and speaker.

4. Medical Grand Round, Royal Free Hospital London, 25th May

2012. Epub 2012/03/02. (Paper) 3. Norita K, de Noronha SV, Sheppard MN. Sudden cardiac death

2012. Invited speaker

caused by coronary vasculitis. Virchows Arch. 2012;460(3):309-

5. National Scientific Meeting, ACP London, 28th and 29th June

18. Epub 2012/02/07. (Paper)

4. Laszlo Hegyi, Khin Thway, Cyril Fisher & Mary N Sheppard.

2012. Invited Speaker.

6. Medical Grand Round, 6th July 2012, Jersey. Invited speaker.

Primary cardiac sarcomas may develop from resident or bonemarrow-derived

mesenchymal

stem

cells:

use

of

immunohistochemistry including CD44 and octamer binding protein 3⁄4. Histopathology.2012.04299. (Paper)

Inquests attended Since the beginning of January, Dr Sheppard has attended nine coroner court inquests, including the Ian Tomlinson case which

5. Sundeep Singh Kalra, Eltigani Abdelaal, Robert Marcus, Mary

took place in July 2012.

Sheppard, Jonathan Byrne. Fooled by the heart (Cardiac Lymphoma). Lancet 2012; Vol: 379; 1460. (Paper) Invited

Staff changes

Reviews in Journals

At the end of August Jemma Ayton, Personal Assistant to Dr

1. Sheppard MN. The fittest person in the morgue? Histopathology. 2012;60(3):381-96. Epub 2011/06/15. (Review) 2012. Epub 2012/01/31. (Review) Mary

N

Sheppard.

Diseases

Jane Proudfoot will be starting as Dr Sheppard’s PA on October 29th.

2. Sheppard MN. Approach to the cardiac autopsy. J Clin Pathol. 3.

Sheppard, left her post to start a PGCE in Primary Education.

A new member of staff has joined the CRY CCP Team - Alice Burrell, who is doing a year placement as a laboratory technician.

of

blood

vessels.

Surgery; Volume 30:8, August 2012: 370-76 (Review)

Alice has a Masters degree in Chemistry and wishes to pursue a career in science within the NHS. We have a weekly volunteer, Emily Oosthuizen. She is currently doing a BSc in Sports and Health Sciences in Brighton.

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CRYScreening Report Between May and August 2012 CRY screened just over 3,300

1,473 people were screened at 12 family memorial screenings.

people, with family memorial screenings making up the majority.

These were held in memory of Caroline Johnstone (Bishops Stortford); James Patterson (Hornchurch); Huw Lewis (Tenby);

At our regular CRY clinics, a total of 432 young people were

Tom Clabburn (Tottenham Hotspur FC); Graham Davies

screened. Clinics were held at the University of Ulster, Jordanstown

(Gloucester); Marcus Armstrong (Harwich); Joanne Fotheringham

Campus; and Foyle and Londonderry College, Derry.

(Ullapool); Ben Daniels (Kent); Ben Crean (Altrincham); Luke Rogers (Haverfordwest); Dave Bramwell (Weybridge) and Sean

Sports screenings included GB Badminton; GB Canoeing/

Farrell (Gateshead Stadium).

Kayaking; GB Paralympic Swimming; Warwickshire County Cricket Club; Kent County Cricket Club; Lancashire County Cricket Club;

331 young people were screened at 3 school screenings. These

Tottenham Hotspur FC; Millwall FC; Manchester City FC; Burnley

were held at Queen Elizabeth Hospital School (Bristol), Warwick

FC; West Ham United FC; Watford FC; Oxford United FC; AFC

University and Birchwood High School (held in memory of

Wimbledon; the Lawn Tennis Association; Leicester Tigers RFC;

Caroline Johnstone).

Saracens RFC; Worcester Warriors RFC; Sale Sharks RFC; Harlequins RFC; London Irish RFC; Bath RFC; Exeter Chiefs

At the ICAP clinics, where those born in 1995 in the South East

RFC; Gloucester RFC; Leeds Carnegie RFC; England Rugby 7’s;

are able to get free screening, 259 young people were screened.

England Women’s Rugby; Huddersfield Giants RL; and Hockey

These screenings are held at the CRY Centre for Inherited

Wales. 902 athletes were screened.

Cardiovascular Conditions and Sports Cardiology, in St. George’s Hospital, Tooting.

Report on CRY screening at Tottenham Hotspur FC, May 23 2012, sponsored by the Tom Clabburn Memorial Fund

Chief Executive Officer, and Maria Abraham, the foundation’s Health and Wellbeing Manager. They couldn’t have been more hospitable or supportive.

A sunny day. A clear blue sky. The sort of day made for families, for the beach, for a barbecue. But for us it was a different sort of family day, a CRY screening day in our son Tom’s name at Tottenham Hotspur FC’s White Hart Lane stadium.

They recognised that heart screenings fitted with the type of health initiatives the foundation was already involved in. Further, they understood the importance of access to screening for all young people, not just those at the top of their sporting professions. So a plan emerged in which executive boxes would be used for the screenings with a large function room used as a waiting room. Part of the publicity for the event would be a mention in the programme for Tottenham’s last match of the season. That, no doubt, helped to ensure the screenings were quickly fully booked.

It meant an awful lot to me. Spurs are my team, always have been. They were Tom’s team too. He stuck with them through thick (not much) and thin (plenty) despite living in west London. White Hart Lane was our place, where we’d go to watch a game and chat about football, life, the universe. It was one of the ways we got to know each other. And then it was all over. Just like that, as countless CRY families know and have experienced. Tom died aged 14 in 2007. We’d been to watch Spurs play not long before. He watched them on the TV the afternoon before we lost him. So I hadn’t been back to the Lane, hadn’t wanted to. And when I saw the pictures of Fabrice Muamba collapsed at the stadium it brought back a lot of memories. Like others, I fervently hoped he’d pull through and, somehow, he did.

On the day, the foundation’s Nicola Banks looked after things for the club and the screenings ran like clockwork. The CRY medical team remarked upon how good the facilities and layout were and how low the drop out rate was. So they were happy. And Spurs were happy. Was I happy? I was. I would rather have been at the stadium with Tom for a game, of course I would. I miss him every day. But this screening felt like a fine way to continue to remember him. Paul Clabburn.

It occurred to me that part of the reason he’d survived was that he was an elite athlete who had highly qualified medical staff close at hand, unlike most young people. It also occurred to me that Spurs have a track record of working in their local community, one of the most deprived parts of London. So I approached the Tottenham Hotspur Foundation, which leads the community work, including health programmes, and asked if they’d consider hosting a screening. In no time at all I found myself back at the stadium, along with CRY’s Steve Cox, to meet Grant Cornwell MBE, the foundation’s

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CRYScreening Report What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within your heart. The ECG involves lying down quietly and it only takes 5-10 minutes. Small stickers are placed at strategic points on your chest, arms and legs. Flexible leads (known as electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of your heart is recorded and printed out. This part of the process only takes 2-3 minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more

detailed image is needed (about 5% – 10% of individuals), an echocardiogram (ECHO) can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of your heart’s structure and how well it is functioning. This takes about 30 minutes to perform. CRY uses top of the range machinery donated by Philips for the screening programme. The screening programme is under the aegis of Professor Sanjay Sharma.

Research News CRY’s Research Fellows are an integral part of the work we do at CRY. CRY funds doctors for 2 years who choose to specialise in the field of inherited cardiac diseases, sudden cardiac death, screening and sports cardiology. The research that they produce advances our understanding of conditions that can lead to sudden cardiac death. Our current Research Fellows have completed their 2-year fellowship with CRY. Earlier this year Dr Hariharan Raju and Dr Nabeel Sheikh left and in October Dr Saqib Ghani and Dr Martina Muggenthaler will also leave CRY. Dr Abbas Zaidi and Dr Sabiha Ghati will be staying on for another year, and will be joined by two new Research Fellows – Dr Rajay Narain and Dr Ahmed Merghani.

Donations Julie Donnelly donated £19,000 in memory of her son Adam Donnelly to fund the CRY Research Fellows. The Northern Ireland Fund pays £20,000 per year to fund a CRY Research Fellow.

CRY Communications Officer, Mair Shepherd, interviewed Dr Martina Muggenthaler and Dr Sabiha Ghati about what their plans are now their 2-year fellowship has ended.

What have been the highlights during your time as a CRY Research Fellow?

Dr Martina Muggenthaler

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Whilst with CRY, I have really enjoyed working with families and at screenings and trying to make a difference to people. I have also learnt a lot about inherited cardiac diseases and about the adaptation of the heart to exercise – something I did not know much about before. In the last year I have also started CRY’s bereavement counselling course. Working with people with inherited diseases, and with bereaved families, plays a big part in my current and future career. I think the bereavement course gives me more experience in how to communicate with bereaved families, how to behave and how to better understand their viewpoint. In clinic, one often does not have the time to go into detail about a family’s experience, how it is for them and how they feel when they come to clinic. I thought the course would help me develop better skills for communicating with families when they come to clinic - how they would like to be talked to or what they don’t like. The course is quite challenging and

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Research News

upsetting at times, but it is also proving to be very valuable and rewarding. Last but not least, the two years with CRY have enabled me to get further funding from the Medical Research Council (MRC) to complete my PhD. Everyone at CRY has been very supportive and I am very grateful for the experience of having been a CRY Fellow.

What is your PhD project? My PhD projects involves studying the genetics of inherited cardiac conditions, specifically looking for genetic modifiers in hypertrophic cardiomyopathy (HCM) and long QT syndrome. We know there are certain mutations in certain genes that cause HCM. In general we can identify an underlying mutation in 50 - 70% of families with HCM. If you look at a family with HCM, there are usually some members of the family who are more severely affected than others. HCM causes a thickening of the heart muscle and may cause abnormal heart rhythms. The amount of thickening may vary significantly between individuals in the same family. Some affected family members may get symptoms when they’re in their 20s or 30s; and others may be in their 60s and never have had a problem and wouldn’t know they have the disease if they hadn’t been screened for it. So there is an enormous variation in how people are affected by HCM, even though all affected members of one family carry the same underlying mutation. The theory is that this varying degree of severity is caused by additional factors. So you have the underlying mutation – the potential to develop HCM – but then other things have to contribute for someone to develop signs and symptoms of the disease. Those factors include environmental factors (lifestyle, diet, maybe exercise); age; maybe ethnicity; and other genetic factors – so-called genetic modifiers.

What’s a genetic modifier? A genetic modifier is a change in our DNA that occurs in addition to the underlying mutation. A genetic modifier may either worsen or ameliorate the phenotype of a genetic disease. The phenotype is the clinical expression of the disease; so, what you can see - what someone actually has. The thickening of the heart muscle and abnormal heart rhythms are the phenotype of HCM and the genotype is the underlying mutation. So, if you have the genotype, you have the mutation. However, there might be additional genetic factors present in some family members that make the disease (phenotype) worse or protect some members of the family from developing overt signs of HCM. I’m trying to find some of these genetic modifiers that exist in addition to the underlying mutation, that either make the disease worse in some individuals or protect them from it.

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And by finding these genetic modifiers, does that then hopefully improve treatment? One of the potential benefits of finding genetic modifiers is that it would help our understanding of the disease process. If you know the pathological pathways that are involved in the disease development our understanding of why some people are more affected than others would improve. At the moment the actual process of why the thickening of the heart muscle develops in HCM is only partly understood. We know the causative mutations are mainly in the genes encoding the sarcomeric proteins – parts of the heart muscle cells that mediate the contraction of the heart muscle – but how that then actually leads to the hypertrophy in the heart muscle isn’t completely understood. If we can find genetic modifiers, they might point us to certain pathways that are involved in that process of developing this hypertrophy and it may help us understand the process. This information could then potentially lead to the development of new treatments. At the moment, there isn’t a treatment available that prevents the hypertrophy from progressing. If you carry the underlying mutation, you either develop the thickening or you don’t. If you do develop it there are treatments to ameliorate symptoms and support the heart, but there isn’t any medication that can prevent the hypertrophy from progressing. Maybe in the future we can find novel targets for new treatments that might interfere with the disease process the actual process of this thickening happening. Another potential benefit of identifying these genetic modifiers is that in the future they could be used to improve risk stratification for people. So, for example, there’s a family that has a mutation and certain members of that family additionally have specific genetic modifiers that we know put them at higher risk. These members could then have additional therapies, for example a defibrillator. Other family members who don’t have those modifiers are at lower risk and are less likely to have a problem in the future so they may need less frequent follow-ups and may not need a defibrillator. At the moment, the decision whether people need preventative therapy like defibrillators is mainly based on the occurrence of certain clinical signs and symptoms - for example whether someone has a lot of thickening of the heart muscle or had an episode of syncope. Genetic modifiers may improve risk stratification in the future.

And your project is also looking at long QT syndrome? Yes, I’m looking at long QT syndrome following the same principles as with HCM - trying to find genetic modifiers. I haven’t published anything on this research yet, as this kind of research takes a long time to complete. I have to collect the clinical data first, which involves finding suitable families and then conducting ECGs, ECHOs and 24 hour monitors on them. Following that, the genetic studies are performed and only when those are finished will we hopefully have some valuable results!

CRY update • Issue 58 • 17


Research News

How did you investigate these changes in athletes? We did a study to assess the prevalence and significance of these changes in highly trained athletes. For our screenings with CRY, we’ve assessed athletes through ECG and echocardiography. We have looked at 2,000 athletes and compared them to a control population – the general population from CRY screenings of just under 5000 individuals - and we have found that athletes develop a higher prevalence of these changes compared to the control population.

Dr Sabiha Ghati

So you’ve been at CRY about 2 years, what has your research focussed on? There’s a special condition called left ventricular noncompaction (LVNC) and basically what that portrays is a spongy appearance in the heart muscle, which is associated with electrical abnormalities, strokes and sudden death. There’s a high prevalence of this condition in the heart failure population (24% of African / Afro-Caribbean); and with athletes there have been case reports suggesting that they also develop these changes, this spongy appearance to the heart muscle. The significance of this anomaly is unclear in the athletes and we have to try and distinguish between cardiac re-modelling from athletic training and those who actually have this condition called LVNC. If you consider this high prevalence you have to ask the following questions; ‘is there actually a high prevalence of this condition; or is this mimicry of the condition secondary to increased blood volume on the heart from athletic training?’ So, we’re looking into the hypothesis of whether this is a part of an increased blood volume to the heart or whether it’s part of LVNC.

You mention that there is sponginess to the heart muscle. Is it over the entire heart muscle or is it just focussed in one area? It’s focussed in the main chamber of the heart called the left ventricle.

Can you also explain what you mean by cardiac re-modelling? During regular exercise an athlete pumps 30 litres of blood per minute, and if you are exercising for more than 2 hours per day that leads to an enlargement of the heart and wall thickness, and that’s what I mean by cardiac re-modelling.

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People who don’t train so hard pump 5 litres of blood, whereas athletes who are training 20-30 hours a week are pumping 30 litres of blood; and pumping 30 litres of blood causes changes to their heart muscle and they can develop this sponginess to the heart muscle. By assessing our athletes we’ve found that actually 10% develop sponginess compared to none of the control population. Also, athletes of African / Afro-Caribbean origin exhibited a higher prevalence compared to Caucasian athletes. What is significant is that a small minority of the athletic population - 0.9% - develop a triad of (i) reduced heart function on the ECHO, (ii) sponginess and (iii) electrical changes on their ECG, raising the possibility that they may have an underlying heart muscle condition. We’ve followed these individuals over the last 3 years and we haven’t identified any adverse effects, but they need longer follow up to see if they develop this condition LVNC. The conclusions from this study are that a high proportion of athletes exhibit conventional criteria for LVNC, highlighting the non-specific nature of the current diagnostic criteria in certain populations. However there is a small minority of athletes who have a triad of reduced function on their echocardiogram, sponginess and bizarre ECG changes, raising the possibility of this heart muscle condition. Furthermore, studies have shown that in heart failure patients we have identified a high prevalence of LVNC - i.e. the spongy appearance to the heart muscle - and these individuals fulfil criteria for this condition. It’s unclear whether these changes that they develop represent a primary heart muscle disorder or whether they’re secondary to an increase in blood volume on the heart. One way to investigate this is to assess pregnant ladies because they actually develop a natural increase in their blood volume during pregnancy and, if our hypothesis is correct that these changes occur because of an increased blood volume, these pregnant ladies should develop these changes during pregnancy and they should disappear post-pregnancy - up to 6 months post-pregnancy, as the blood volume goes back to normal state. So, we’re assessing pregnant ladies with echocardiography during pregnancy and post-pregnancy at the 6 month post-partum stage.

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Research News

We’ve done a pilot study and the pilot study shows that African / Afro-Caribbean pregnant ladies develop more sponginess to the heart muscle than Caucasian pregnant ladies, but we need to follow them through at the post pregnancy stage to see if these changes regress. The results of this study will allow us to prevent over-diagnosis of LVNC; will have important therapeutic implications in these individuals; and also call into question the development of more stringent criteria for the diagnosis of LVNC, which will assist us in our inherited cardiac diseases clinic.

As part of your position as a Research Fellow, you’ve been working at the CRY screening clinics. Can you tell me a little about those? I’m currently based a St George’s University and University Hospital, Lewisham where I’m involved in the inherited cardiac diseases clinic and the Marfan clinic; and apart from that I’m also an active member of the pre-participation screening programme for athletes and the general population. With the clinics at St George’s and Lewisham we are involved in assessing new patients and following patients up. We see them in a ‘one-stop clinic’ where they’d come and see us, we take a clinical history, do a physical examination, carry out the necessary tests on the day and give them their diagnosis and a management plan and then follow them up as required.

What do you find most rewarding about being a CRY Research Fellow? I like doing the CRY screenings, in particular the family screenings, especially when you meet the family who have lost their loved one and gone to great effort to set up the CRY screening and to screen all those individuals and identify people who need further assessment. When you report back to the family that we’ve identified ‘x’ number of individuals that

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need further tests and you see the satisfaction and relief on their faces that they’ve been able to help those individuals, it’s rewarding for us. On top of that, working with Professor Sharma in the inherited cardiac diseases and sports cardiology clinics at St George’s and University Hospital, Lewisham is rewarding because I’ve developed a better understanding of these conditions and I hope I can take that away with me for my future career in inherited cardiac diseases and Sports cardiology.

What has been a highlight from your time at CRY? Working at the Royal Society, promoting CRY to the general public; to be able to show people what their hearts look like; to explain it to them and just to see the fascination on their faces when they look at their own hearts on the screen in real time. It was a good moment for me.

You’ve been with CRY for 2 years and are staying for another year. What are your plans? My plan is to complete the MD project I talked about earlier before I leave, and to hopefully publish several papers. I also hope that from working with CRY and with Professor Sharma that I’ve learnt about inherited cardiac diseases and sports cardiology and how to manage athletes who present with bizarre ECG changes and what tests to do on them. I’ve been able to refine my skills in echocardiography and cardiopulmonary exercise testing for these individuals, which I don’t think I would have been able to gain had I just carried on with clinical training. I hope that when I go back into my clinical training, I’ll complete clinical training and acquire a consultancy post in inherited cardiac diseases and hope to carry on working with CRY.

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CRY Raising Awareness Event at the Welsh Assembly

Bereaved families from across Wales attended an event at the National Assembly on Wednesday 2 May, to raise awareness of sudden cardiac death in the young. The event highlighted the fact that at least 12 apparently fit and healthy people (aged 14 – 35) die every week in the UK from previously undiagnosed heart defects. Worryingly, 80% of these young people will have had no symptoms. To help illustrate these shocking figures and the devastating impact of sudden death in young people, 12 life-sized cut-out silhouettes (which have become a well-known and emotive feature at CRY events) were on display. The event in Wales – which brought together bereaved families and Members of the Welsh Assembly – came just weeks after the sudden collapse of Bolton midfielder, Fabrice Muamba. The shocking events on the pitch at White Hart Lane on 17 March led to even greater calls for cardiac screening in young people (especially those involved in sport). Mark Isherwood AM, Welsh Conservative Member for North Wales, spoke at the event thanking CRY for bringing together families and politicians to highlight the tragic heart conditions affecting the young. To read more about the event visit www.c-r-y.org.uk/welsh_assembly_2012.htm

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CRY Heart of London Bridges Walk 2012

Photo courtesy of Ash Knotek After the wettest summer since records began, the sun shone down on the 940 people who had travelled to London on Sunday 15 July to take part in the 6th annual CRY Heart of London Bridges Walk. As ever, it was a poignant yet positive occasion. It was incredibly moving to see so many people coming together to walk in memory of a friend or family member. However, it was also an opportunity for people to meet up with friends, CRY staff and those who have offered them support; as well as celebrating CRY’s ongoing work to help reduce the incidence of young sudden cardiac death. Walkers began congregating in the Victoria Embankment Gardens from around 9am and they couldn’t miss the team from CRY who were all waiting to meet and greet them at the gates, with their bright red T-shirts and the many balloons and banners tethered to the gazebos! Soon, more and more walkers started to arrive – encouraged by the rare blue skies – and before long it became apparent it was going to be the biggest and best Bridges Walk to date! As well as many of CRY’s long-standing supporters and participants in this flagship event there were many new faces and supporters who had made the journey to London, having been affected by the tragedy of young sudden cardiac death; been diagnosed with a cardiac condition; or just wanting to support CRY. Whilst following the same route as previous years, the 2012 Walk took in some new sights, including the world famous ‘Shard’ which towered high and glistened in the sunshine. As well as the main route, Cara MacMillan from the CRY fundraising team led a group of walkers who wished to take part in a slightly shorter version of the walk, avoiding bridges where there was difficult access or high stairs to climb. This group was slightly bigger than usual, due to the growing number of babies and young children in buggies who also want to join in the fun!

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Before the walkers set off at 10.30am, there were introductions from CRY Patron Kathryn Harries (who first launched the event back in 2007 and who has been a keen supporter ever since) and CRY’s Chief Executive and Founder, Alison Cox MBE, who also led a minute’s silence. This was followed by a warm-up with fitness instructor Kirk Douglas and then the official start by former ITV Gladiator (Zodiac), Kate Staples. The groups then quickly filtered through the park gates and took their first steps along the Thames – heading towards Hays Galleria, where CRY’s welcoming party awaited. The first few groups and individuals arrived back by noon, with others taking a slightly more leisurely stroll! We never forget that most of the walkers who take part in the Bridges Walk do so for a very personal reason – and the whole CRY team thanks them for their tremendous effort and courage.

CRY would like to say a huge “thank you”

to all the volunteers who helped make the day such a success - we couldn’t have managed without you! Lara Badger; Miriam Barriga; Lauren Beacham; Carla Beard; Pezo Benjamin; Sam Benjamin; Gavin Boyce; Karen Burke; George Button; Nancy Button; Paul Clabburn; Krisztina Cserhalmi; Kirk Douglas & Louie; Philip Eastty; Emma Gibb; Johnny Glover; Mary Guinan; Barbara Holland; Jim Holland; AP Juttla; John Lawless; Julie Lockton; Mike Lockton; Koula Louki; Irene McCabe; Veronica Mwondela; Matt Nagamootoo; Maria Nearchou; Ashlea Phillips; Jo Pickard; Pete Robinson; Sue Robinson; Kate Staples & Yolande; Alyson Stokes; Tony Stokes; Erin Tierney; Lesley Tierney; Michaela Thorpe; Julien Upson; Rowena Upson; Will Upson; Susan Walton; Gerry Wright.

For more details and photos from the event visit: www.c-r-y.org.uk/bridges_walk_2012.htm

CRY update • Issue 58 • 21


CRY Heart of London Bridges Walk 2012

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CRY Heart of London Bridges Walk 2012

Photos courtesy of Gavin Boyce

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CRY update • Issue 58 • 23


CRY Heart of London Bridges Walk 2012 myheart members take part in the Bridges Walk “It was great to walk the London Bridges Walk in support of CRY in memory of Craig Beck. My friend Zuzana Topham, my Mum and her husband, my sister and my daughter who is seven years old, joined me and we walked with the myheart group. CRY has supported us since we first were referred to them after my brother suddenly died. It was a lovely experience to do the walk; we met so many people in similar situations as us. We felt supported and felt we helped support others, while raising money to help save other lives, and the continuation of research into genetic heart conditions. This walk gave us the opportunity to raise awareness of CRY with the people sponsoring us from places of work, local school, friends and family.

CRY

at the Royal

Photo courtesy of Paula Simmonds

Even though this Walk was emotional, it was a pleasure to be involved in.” Paula Simmonds.

Society Summer Science Exhibition

6 days, 2 press briefings, over 10,000 visitors, over 200 blog posts, more than 300 ECGs performed, around 1 million miles clocked up on the CRY exercise bike (Wattbike), 20 team members working round the clock, 6 CRY Research Fellows, 1 Professor….all adds up to one amazing week for CRY at the Royal Society’s Summer Exhibition 2012. During this exciting Olympic year, the team at CRY – led by consultant cardiologist, Professor Sanjay Sharma and Director of Screening, Dr Steve Cox - were delighted to be selected as one of twenty exhibitors at the world famous Royal Society Summer Science Exhibition. The Royal Society is a Fellowship of the world’s most eminent scientists and is the oldest scientific academy in continuous existence. This prestigious exhibition showcases the most exciting cuttingedge science and technology research. It provides a unique

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CRY

at the Royal

Society Summer Science Exhibition

opportunity for members of the public to interact with scientists and ask them questions about their work. It was therefore a great chance for the CRY team to meet and greet a huge and varied audience across a period of six days and to communicate the charity’s key messages to thousands of interested and enthusiastic young people. Due to the recent huge amount of interest in sports medicine and the effects of exercise on the heart, CRY was also selected as one of just four exhibitors who would enjoy a higher profile at the Exhibition and who would also be invited to present at an exclusive national press conference a few days before the official opening.

The research that Professor Sharma and CRY presented was entitled: “The Athlete’s Heart – Young Hearts for Life”. The research explored the structural and electrical functioning of the heart and how it responds to exercise.

hub, for a continuous live stream of blog posts and Tweets direct from the Exhibition. During the second press preview day on Monday 2nd July, the exhibit was visited by Claudia Hammond from BBC World Service. She recorded a three minute news programme, featuring her taking part in a full cardiac screening! Professor Sharma, Dr Steve Cox and the six CRY Research Fellows led the way in speaking to and educating the many thousands of people who visited the CRY exhibit across the week. The first visitors started coming through the doors at 10am, with the last ones often not leaving until 9pm. On two consecutive nights, the CRY team also welcomed special guests to the stand during the Society’s evening ‘soirees’, as VIPs and distinguished fellows from the Royal Society took part in a tour of the 20 stands. This was a particular highlight of the week, as it gave the CRY team the opportunity to discuss their research with some of the most eminent researchers in the world. Perhaps the most talked about part of the CRY exhibit was the ‘Cyclathon Challenge’ where visitors - ensuring they were well hydrated first! - were invited to hop on an exercise bike and see how many metres they could clock up in 3 minutes. This was to help demonstrate the effect of exercise on the heart and many of the participants were encouraged to have an immediate look at how their own heart was ‘behaving’ after such strenuous exercise, using the Echo probe.

It also looked at the importance of experts understanding the fundamental differences between a ‘normal’ heart and an athlete’s heart; and taking on board appropriate considerations when individuals are being screened. The CRY exhibit comprised two areas where ECGs could be taken and hand-held demos with the Echocardiogram (ultrasound) probe could take place; a static exercise bike (Wattbike) for the CRY ‘Cyclathon’ challenge; stacks of CRY information and leaflets for visitors; a functioning model of the heart and circulatory system; big screens where new videos with Olympic hopeful and CRY Patron, Lawrence Okoye, were broadcast; and a social media

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As part of the challenge, there was a competition to see which visitors could cycle the furthest in 3 minutes - with so many enthusiastic teenagers at the event, the competition was fierce! The top female cyclist at the end of the event was Kirsten Lillie who travelled 1932 metres; and the top male cyclist was Neil Thompson who travelled 2188 metres. Both win a CRY goody bag for their efforts - congratulations to them; and CRY would like to thank everyone who took a turn on the bike!

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CRY

at the Royal

Society Summer Science Exhibition A number of CRY supporters volunteered to help out at the exhibit and were invaluable in assisting the CRY team over the course of the week. Special thanks to CRY Representatives Carl and Eunice Johnson (who lost their daughter Lisa to SADS in December 2006, aged 30); and CRY Representative Julie Donnelly (whose 17 year old son Adam died suddenly in July 2004 from an undiagnosed heart condition).

Amongst the many visitors who came to the CRY exhibit over the week was CRY Patron and football legend, Pat Jennings, who came along on Tuesday 3rd July with his grandson Niall. Pat talked to Professor Sharma and the CRY Research Fellows about various aspects of the exhibit and Niall had a look at his own heart with the Echo probe.

Special thanks as well to Julie Donnelly’s daughter (Adam’s sister), Sian Donnelly. Sian has been diagnosed with the condition Brugada syndrome and took part in a demonstration whereby Professor Sharma could show on the Echocardiogram the differences between a ‘normal’ heart and the heart of someone with Brugada syndrome. www.c-r-y.org.uk/royalsociety_report.htm

Pat Jennings with his grandson Niall and CRY Research Fellows

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Our

Corrections and apologies from Update 57 Apologies to family and friends of Amy Black as the last issue referred to funds being raised in memory of Rebecca Black. Corrected entry below: In Memory of Amy Rebecca Black Catherine Dunn sent in a donation of £600 from the proceeds of the sale of Terry’s disc ‘Glamorous Cake Stall Holder’, in memory of Amy. Apologies to family and friends of Jack Maddams as the last issue referred to funds being raised by Roger Maddams when it should have stated Rob Maddams and friends. Corrected entry below: In Memory of Jack Maddams Rob

Maddams,

Wayne

Cripps,

Sam

Sweeney and Richard Heard toured around football grounds of Britain in August 2011, raising

funds

and

awareness. Through

completing the ‘100 grounds in 100 hours’ challenge they raised £3,416.54 Apologies to family and friends of Paul Wilkins as the last issue referred to funds being raised in memory of Stephen

Fundraisers

In Memory of Steve Adams J Hemstalk sent in a donation of £430 in respect of the Leeds Town Hall Thai Boxing Show on 28 April. In Memory of Paul Agnew Suzanne Agnew took part in the Lisburn Half Marathon in June and raised £175 in memory of her brother, Paul. “On 20 June 2012 I ran the Lisburn (Northern Ireland) Half Marathon in memory of my brother Paul Agnew. I spent around 6 months training for the race, building up to 10 miles the week before the race. I was never very sporty so this was a big achievement for me. I was very determined to complete the race and raise some money for my favourite charity CRY. I completed the race in 2 hours 13 mins and I managed to raise £175. We lost Paul in 1988 from sudden death syndrome. Very little was known then about the condition and my family knew even less. CRY reached out to my family and offered them support. This meant the world to my parents, as Paul’s death was so sudden and unexplainable. CRY made it clear that we were not alone and they offered advice and guidance. I will continue to raise money for CRY when I can and have recently decided to give CRY badges as wedding favours for my wedding in March. This is me at the race....not bad for a couch potato eh?!” Suzanne Agnew.

Wilkins. Corrected entry below: In Memory of Paul Stephen Wilkins Pam Oates sent in a donation of £1,200 in respect of the annual Charity Night, in memory of Paul, making a total raised of £1,300.

In Memory of Glyn Eric Speed took part in the Virgin London Marathon 2012 and sent in further donations of £895, making a total raised of £1,735. In Memory of Liam James Bell raised £958 for the FA Cup party 2012 in memory of Liam. In Memory of Philip Abraham Christopher Abraham, Mary Abraham, Alfred Azzopardi, Valerie Azzopardi, Marlene Beveridge, Laura Burton, Marie Cassidy, Stephanie Caws, Nicky Chapman, Rose Chapman, Janet Dowling, Janet Gotham, Vickie Keegan, Carol Moger, Claire Moger, Melissa Moger, Anne Moores, Paul Moores, Gill Kiernan, Stefan Palmer, Pauline Pitt, Hilary Price, Stanley Price and Enza Romano took part in the CRY Heart of London Bridges Walk 2012. To date, £438 has been raised.

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In Memory of Robert Aitken Sarah Sinclair and her son Connor Crocker sent in a donation of £484.20 from the fundraiser which took place in June 2011. In Memory of Robert Allan • Pooja Patel and Matthew Allan took part in the BUPA 10K and raised £605.

• Duncan Hayward took part in the Paris Marathon and sent in donations totalling £1,889.20.

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Fundraisers In Memory of Marcus Armstrong Tony Armstrong sent in a donation of £800 in respect of the raffle held at the Marcus Armstrong Memorial Golf Day at Harwich & Dovercourt Golf Club.

In Memory of Carl Ashcroft and Mr W T Yoxall Mrs S Yoxall sent in a donation of £375 in memory of her husband, W T Yoxall.

In Memory of Stuart Attridge • Richard Feist took part in the BUPA 10K and raised £201.20.

• Rosemary Attridge sent in donations totalling

£400 from the sale of her hand made cards.

Merv Allen sent in a donation of £112.12 raised at the Blacksmith’s Stand at the South of England Show.

In Memory of Raj Bagga Jayanne Jennaway, Next Directory, sent in a matched giving donation of £200 in respect of the 100 holes of golf in a day on 6 July. In Memory of Esme Rose Balp “Please find enclosed a cheque for £600. My husband Martin and I ran the Hastings Half Marathon in March dressed as the Flintstones to raise money for CRY. We were blissfully ignorant of your organisation and the tremendous work that you do until our good friends lost their 18-year-old daughter to an undiagnosed cardiac condition just days before Christmas last year.” Maria Rolph. In Memory of Cecilia Barriga • Mike Fleet sent in a donation of £120 in respect of Olympic Torch photos and bookmarks.

• Mike Fleet sent in a donation of £120 in memory of Cecilia. •

Penny Echevarria took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £2,396.70.

• Mohsin Harahara took part in the Virgin London Marathon 2012 and raised £130.

In Memory of Lewis Barry The Out of the Saddles fundraising event took place on 7 January at the Manchester Velodrome and raised £4,500 which has been split between two memorial funds - Peter Hinchliffe and Lewis Barry. CRY representative Ian Scanlan attended the event.

In Memory of Mark Batson Kate Batson took part in the Hinckley Half Marathon and raised £605. On Sunday 13 May 2012, Kate completed the 13 mile course in a time of 2hrs 33mins 40secs. CRY is close to her heart after losing her brother Mark, who passed away in his sleep aged 33 in January 2010. In Memory of Craig Beck Anna Richens, Paula Simmonds and Zuzana Topham Romano took part in the CRY Heart of London Bridges Walk 2012 and raised £312. In Memory of Claire Beer Simon Beer took part in the Virgin London Marathon 2012 and sent in further donations of £309, making a total raised of £1,751.

In Memory of Graeme ‘Tinka’ Bell Gemma Cannell sent in a donation of £600 from the 150 Social Club at West Denton Fire Station. (To date they have raised £7,158.70).

In Memory of Sarah Bennett Rian Dewar took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £3,231.20.

In Memory of Richard Bethell Mrs Carol Jones, Holland-on-Sea (York Road) Bowling Club, sent in a donation of £114.20 raised by the Ladies Club, in memory of her grandson, Richard Bethell, who died 8 years ago at the age of 10 of an undiagnosed heart condition. In Memory of Robert Betts • Elliott Abbs raised £950 in respect of the Gear 10k.

• “Please find enclosed money raised from the

Great East Anglian Run (GEAR) which took place on 6 May, and from my husband’s ‘Goodbye’ which took place on 20 March. My brother Chris, sister Debbie, friends Lisa and Mark and close friend Elliott ran the 10K and myself, Mae, Rose and Isla did the Fun Run to raise money and awareness of your charity and good work and research you carry out.” Mrs Kim Betts sent in a further donation of £295, making a total raised of £1,245.

• We have received a funeral donation of £542.61, in lieu of floral tributes, for the late Robert Betts.

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Our In Memory of David Bick “Please find enclosed a cheque for £600. This was raised by the pupils of Rawlett School who held a fundraising day, whereby the pupils wore everyday clothes instead of their usual school uniform, they also had home-made cakes and white elephant stalls and held raffles. I believe teachers and pupils made a concerted effort to raise these funds to enable young people within the Tamworth area to be screened for any underlying cardiac defects. I felt priviledged to receive this cheque, it made me realise that perhaps the youngsters of today are just as understanding and caring as the youth of previous generations.” Ursula Bick. In Memory of Steven Bicker • Glen and Jackie Bicker held a charity cricket match on 22 July and raised £416.

• Glen and Jackie Bicker got maried on 27 May and requested a donation to CRY in lieu of gifts. They sent in a donation of £205. In Memory of Lydia Bird • Cathy Bird sent in a donation of £726 in respect of the Cuban Cycle Ride.

Fundraisers

again organised by Graeme’s friends. They raised the fantastic sum of £550. It was certainly a very wet day but the lads still managed to enjoy themselves in the rain with much hilarity.” Jan and Paul Blenkinsop sent in a donation of £550.

• Jan and Paul Blenkinsop sent in an additional donation of

£120 in respect of the football match in memory of Graeme. Total £670.

• “I am a very good friend (and work colleague) of Paul

Blenkinsop and his wife Jan. Graeme was such a lovely lad and I saw first-hand the devastation his death caused to the family. I recently took part in a Cyclo-sportive; I cycled 116kms on the island, mainly the west Wight area which is fairly hilly (I should have known better) and raised £100 in memory of Graeme.” Gary Copllett.

In Memory of Daniel Boreham “I am pleased to enclose a cheque for £189 which was raised at our annual Teachers vs. Sixth Formers football match. This is in memory of Daniel Boreham, a former sixth former, who died suddenly.” Mrs C Mills, Pastoral Manager, Chelmer Valley High School, Essex. In Memory of Jack Boulton • Dave and June Boulton sent in donations totalling £2,349.02 from the Jack Boulton Memorial Football Match which took place on 25 May.

• Cathy Bird sent in a donation of £4,326.81; £4,020 from the St Patrick Night’s Dinner Dance, £240 from the Cuban Cycle Ride and £66.81 from a collection in a local pub where her brother’s band played.

In Memory of Lydia Bird and Sebastian English Andy Bird took part in the Virgin London Marathon 2012 and sent in further donations of £935, making a total raised of £2,510. In Memory of Steven Blair • We have received a funeral donation of £375, in lieu of floral tributes, for the late Steven Blair.

• Hunter Blair completed the cycle/walk around the Great Cumbrae Island and raised £4,140. • Susan Blair sent in a donation of £1,300 in respect of the

sponsored walk/cycle around the Great Cumbrae in memory of her son, Steven. Total raised: £5,440. In Memory of Mathew Blease Karen Blease forwarded a donation of £100 from the Bedfordshire and Hertfordshire Women’s Football League.

In Memory of Graeme Blenkinsop • Lesley Ann Bryant sent in a donation of £100 in memory of Graeme, who died on 4 August 2006. “A wonderful young man.”

“We are pleased to inform you that a further football match was held on 29 April in our son’s memory,

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“On 25 May 2012, a football match was played at Saltford playing fields, in memory of Jack Boulton. Contested by

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Fundraisers

Saltford FC and Keynsham CC, both clubs which Jack had played for and where he had many friends and team mates. The hot May night brought out the local crowds and, alongside the football match, there was a barbeque, raffle, auction and later on a race night which in total raised £2,349.02.

The football match was won by a late goal by Saltford FC 3 goals to 2.

It was a great night with huge support and a loving testimony to Jack’s memory.” June and Dave Boulton.

• Ross Lawson took part in the Bath Half Marathon and raised £215.

• June Boulton sent in a donation of £1,330.60 from the auction held at the Bird in the Hand (local pub) cider festival.

“The Bird in Hand at Saltford raised £1,330.60 from their charity auction which they ran along side their annual Cider festival on the weekend of 8 July 2012. They donated the proceeds to CRY in the memory of Jack.” June Boulton. In Memory of Ian Bowen • “Please find enclosed a cheque for £331.50 which was raised by postmen and women at Whitchurch delivery office in Shropshire from the proceeds of a football predictor during the 2011/12 season.” Gary Watson.

• Maralyn Bowen sent in donations totaling £130 from the Chester screening held on 12 April.

In Memory of Emma Broad • We have received a cheque for £500 which was raised from a cake sale held at St George’s College in Weybridge. “This event was held in memory of Emma Broad who passed away on 22 May 2011 at age 16. As the first anniversary was approaching, her closest friends at St George’s College in Weybridge all helped in organising this cake sale. We charged £2 to all the sixth form students who received a CRY hockey badge (as Emma played hockey for England) and everyone added a touch of purple to their uniform Emma’s favourite colour. Throughout the day we sold a variety of food which Emma loved - purple iced cupcakes, cokes, crisps, cadbury’s chocolate, and personalised bags of Emma’s favourite pick and mix sweets. Attached are photographs of Emma in a purple dress and in her England hockey kit from a tournament in

In Memory of Dave Bramwell • Lisa Bramwell sent in a donation of £2,000.

• Lisa Bramwell sent in donations totalling £550 which were received at a screening event.

In Memory of Ken Bray “One of our senior members, Ken Bray, recently passed away. His wish was that donations be made to CRY in lieu of flowers. On behalf of our association I enclose a cheque for £100 in memory of Ken and in apppreciation of the work that you do.” Bob Marais, Secretary, Sefton Park Community Association.

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Our Valencia where she scored a goal just a few weeks before she passed away last year. There are also photographs of some of Emma’s friends selling food on our ‘Purple Day’. Thank you for everything, I really appreciate the help you have given me.” Victoria Amico.

Fundraisers

Council in respect of the Dorset Voices Evening, performed by the New Hardy Players. A further donation of £212 has been received from the retired teachers of Kings School, Bruton for their Coffee Morning.

• Christel Thunell took part in the BUPA 10k on Sunday 27 May and raised £1,455.

In Memory of Dr Jenny Bucknell • “The students completed a whole range of activities, including cake sales, sponsored walks/silences, gardening, commissioning drawings, donating paper round money, a danceathon, chores around the house etc.” Ben Slatter, Head of Year 9, Cleeve School, Cheltenham, sent in a donation of £1,355.93.

• David and Simon Bucknell completed the Two Moors Walk Devon (106 miles) over 6 days and raised £2,315.

• Janyce Holmes raised £130 in respect of the Junior Hockey

In Memory of Craig Burling Gareth Troake took part in the Hull Marathon and raised £175.

Tournament in memory of Emma.

• “On behalf of the members of Surbiton Hockey Club we are

pleased to be able to make a donation from funds raised at our recent Charity Day held in memory of Emma Broad - a promising junior hockey international who tragically died in September following a cardiac arrest.” Keith Wallis, Honorary Treasurer, Surbiton Hockey Club, sent in a donation of £1,204.10.

• Jessica Tait held a fundraising morning and raised £361. In Memory of Shaun Broster Chris Broster sent in an additional donation of £401 in respect of the Liverpool Half Marathon: “Thank you to family and friends, who sponsored me.” Chris Broster. In Memory of Steffani Broughton Matthew Watson-Broughton held a quiz, raffle and auction at the Calendonia Bar and Restaurant in Budapest and raised £230.

In Memory of Katrina Brown • James Brown took part in the Virgin London Marathon 2012 and sent in further donations of £3,236 making a total raised of £6,491.60.

• Annabel Cosgrove took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £2,383.90. In Memory of Alex Buckler • Charles and Rosalind Buckler sent in a donation of £200 which is a match giving donation from the Parochial Church

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In Memory of Robert Burns Doreen, Jimmy and Paul held a five-a-side memorial tournament in memory of Robert and raised £1,100.

In Memory of Nathan Butler Angela Butler sent in donations totalling £385; £10 from Maxine Ogen, £50 from Arthur Butler for the sale of plant boxes he made and £325 raised at a charity Golf Day at Wolstanton Golf Club. In Memory of Graham Button Paul Bishop, Alison Button, Debbie Button, Hollie Button and Michael Button took part in the CRY Heart of London Bridges Walk 2012 and raised £130. In Memory of Peter Button Faiga Button sent in a donation of £281.50 and £5.45 raised at the Bowls Match Pair at the Francis Drake Bowls club on 16 June. In Memory of Andrew Calvin Michelle Calvin took part in the Belfast Marathon and raised £626.25. In Memory of Trevor Mark Carter “This money was raised in memory of our lovely son Trevor Mark Carter, who died last year, aged 37 years. Trevor’s boss, and also a great friend, Bruce Thompson came up with the idea of holding a memorial gig in Bristol and that all the bands that Trevor played in over the years (he was a really keen musician),

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Fundraisers

would all reform and play once more in his memory and they did. There were eight bands playing, about 125 people came along and we all had a really brilliant evening, with one of Trevor’s brothers being the compere and his other brother played in one of the bands.” Jenny and Ron Carter sent in a donation of £500.

“Claire Prosser, Paul Clabburn and friends raised £1,212 from a book sale in Ealing. It’s the 8th sale since Claire and Paul’s son Tom Clabburn died aged 14 - and raised a record amount. The money raised will go to Tom’s fund at CRY to support heart screenings in the area.

A cheque for £120 was also given to Tom’s fund by colleagues of Claire Prosser at the BBC - Kevin Steele, Richard Jarrett and Ray Alexander - from their leaving do.” Paul Clabburn.

Bruce Thompson In Memory of Darren Casement Sophie Crothers and Jay Greeves sent in a donation of £312 from their fundraising. In Memory of Guy Champney • Rhiannon Lloyd-Ellis took part in the Virgin London Marathon 2012 and sent in further donations of £135.50, making a total raised of £2,130.50.

• Victoria Smith took part in the Virgin London Marathon 2012

In Memory of Harry Clarke “Together with our lovely family we successfully climbed Grisedale Pike in the Lake District on Friday 8 June, in memory of our beloved son, Harry, who died tragically on 23 May 2006, from anomalous coronary heart circulation. We had a fantastic, memorable time celebrating what would have been Harry’s 18th

and sent in further donations of £135.50 making a total raised of £2,130.50.

In Memory of Phillipa Chowne • The Croft Preparatory School sent in a donation of £681 from a collection during the Year 6 summer play performances.

• Andrew Chowne, Lisa Chowne, Neil Hoose

and Ruth Hoose took part in the CRY Heart of London Bridges Walk 2012 and raised £210. In Memory of Tom Clabburn • Claire Prosser sent in a donation of £257 raised at her father, Gordon’s, 80th birthday party.

• Ruth Akins, Jim Ballantyne, David Bentley,

Edward Bentley, Baerbel Carpenter, Tim Carpenter, Paul Clabburn, Alastair Clunas, Maruta Eager, Tess Gomm, Robin Gould, Angelique Halliburton, Rita Jones, Helen Lewis, Claire Matthews, Grace Matthews, Pete Matthews, Alison Montgomery, Christian Panzer, Gottfried Panzer, Linda Panzer, Chris Pearson, Gina Pierce, Jonathan Piggott, Claire Prosser, Gordon Prosser, Neil Prosser, Samantha Prosser, Anne Marie Reilly, Kate Riley, Alan Rodney, Mike Scott and John Stanton Romano took part in the CRY Heart of London Bridges Walk 2012. To date, £397.50 has been raised.

• Claire Prosser sent in a donation of £1,212 from the book sale and £120 from three BBC colleagues.

32 • CRY update • Issue 58

year and we are sending this donation with much love to the wonderful charity, CRY , with thanks and love to all our wonderful family and friends for their support.” Lewis, Lisa and Jack Clarke and family sent in a donation of £1,301.90. In Memory of David Cochrane The Lodge Hopetoun St. John, No. 1232 held a sponsored walk and raised £951.50. In Memory of James Cody • David J Cocks, Treasurer of the Ramsgate Masonic Centre, sent in a donation of £125 from the recent Ebbsfleet Rose Croix meeting.

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Our • Mrs Lillian Norfolk has been holding fundraising events

throughout 2012 in the memory of her nephew James, including a charity quiz evening on 20 July, and has raised £2,230 in total.

Fundraisers

In Memory of Richard Credland Sandy Credland and Victoria Credland took part in the CRY Heart of London Bridges Walk 2012 and raised £100. In Memory of Jonathan Crowhurst Laurence Banks, Rachel Banks, David Crowhurst and Mary Crowhurst took part in the CRY Heart of London Bridges Walk 2012 and raised £100. In Memory of Robert Crozier Christie Costiff sent in a donation of £150 from the SLH Tri Club UK Charity Swim. In Memory of Simon Jon Cullum • Pat Pearsons, Perenco UK, sent in a donation of £2,000 in memory of Simon and towards the local screening day to be held in June/July 2014.

“All of the events were a great success raising a lot of money for a well deserved charity. Organising the event helped my sister keep busy through a very difficult time. I know the money will help CRY to continue their projects.

• The PTA at Wroughton Junior School, Great Yarmouth, raised £255.55 from the sales of Easter eggs, plus a Coffee and Cake sale. CRY Supporter Marilyn Cullum collected the cheque on behalf of CRY.

I would like to acknowledge my company TK Maxx as Jo Murphy and the team there gave a very generous donation. All money has been raised in the memory of my nephew James Cody. Please find some photos from one of my events, I’m the one in the silly hat!” Mrs L Norfolk.

In Memory of Andrew Coles and Andrew Parr “Please accept this cheque for £1,060 raised at the Charity Night on 25 May. This night was in memory of our son, Andrew Coles, and also to raise awareness of CRY and inform people about the screenings. We would like the money to be paid into the Andrew Parr Memorial Fund to help fund the next screenings in Preston. Many thanks for all you do and the hope that you give to so many people.” Ann & Keith Coles and family. In Memory of Ronald Coombes and Lily Mrs M Salt sent in a donation of £215 in memory of Ronald Coombes and his great granddaughter Lily. In Memory of Joanne and Natasha Coombs Martin Clackett sent in a donation of £1,000 from a recent charity football Fun Day. In Memory of Adam Connolly Freddie Corlett took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £2,431.

• Marilyn Cullum sent in £1,296.35 from Tony’s Boxercise Marathon Training Day.

“On 28 July, Tony Norman of Tony’s Boxercise did an 8hr marathon exercise class in Great Yarmouth. People paid £4 per class and the event was very well attended with a great atmosphere. Cass and Alfie Cullum helped on the day by taking the money for the classes on the door. Tony raised a fantastic amount of just over £1,200 on the day and I would like to say a big ‘Thank You’ to him and everyone who took part and also to those who were unable to attend but still donated.” Marilyn Cullum.

In Memory of Bruce Cousins • Jackie Cousins sent in a donation of £147 raised at the car boot sale. • Jackie Cousins sent in a donation of £110 raised at the second car boot sale, in memory of Bruce.

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Fundraisers In Memory of Ben Daniels • We have received a donation of £1,170 from Helena Daniels; £800 from the Ex Blues Junior Football Club, and £270 from the 12th Bromley Brownies and their Sponsored Skipathon, plus £100 from Mr A Rodgers.

• Helena Daniels sent in donations totalling £688.28; £120

from Samuel Montagu Youth Centre, £416.28 from ltham United Reformed Church ‘Songs of Praise’ service held on 1 July and £152.80 from the screening day held on 30 June.

• Helena Daniels sent in a donation of £100 in respect of

sponsorship for Geoff Heppell, who completed a bike ride in memory of Ben.

• Marilyn Cullum sent in the following donations; £359.25 from

the bucket collection at Great Yarmouth Racecourse, £110 from the collection at the Dumfoundus gig and £100 from the Rebels Charity Bingo.

• Judy Burton and Marilyn Cullum took part in the CRY Heart of London Bridges Walk 2012 and raised £437.80.

• Marilyn Cullum sent in £150 from Gorleston Clifftop Gala Stall.

• Marilyn Cullum forwarded a donation of £500 from Darby & Liffen (East Anglia) Limited.

“We had a stall for CRY at the Gorleston Clifftop Gala on Sunday 28 July. The event was well attended and we handed out lots of information leaflets, we also raised £150. Also on the day I was presented with a £500 cheque from Samantha Hood on behalf of Darby & Liffen Estate Agents for Simon’s Memorial Fund, which was fantastic, so a big ‘Thank You’ to Owen Darby and Samantha Hood.” Marilyn Cullum.

• Keith Parkinson sent in donations totalling £586.20 in respect of the Brighton Marathon.

• Helena Daniels sent in a donation of £1,000 from Ben’s

grantparents, Elaine and Michael Dawson and a donation of £100 from Christine and Rob Borrowman (family friends).

• Val Busby, Ex-Blues JFC, sent in a donation of £800. • “On 25 May 2012, myself and my family ran a music quiz

in aid of The Ben Daniels Fund and CRY. The quiz was held at Manor Oak Primary School where I teach and was a huge success. There was a great turnout and many local businesses supported the evening by donating prizes for a raffle. Everyone had a great sing-a-long and in total we raised a fantastic £1400!! Thank you to everyone who supported the event.” Hannah Green forwarded a cheque for £1,400.

In Memory of Ryan Darby Nicola Acuta took part in the BUPA 10K and raised £250.

In Memory of Laura Day Brenda Day and Ian Day took part in the CRY Heart of London Bridges Walk 2012 and raised £120. In Memory of Stuart Cutler David and Natalie Cutler forwarded a donation of £100 from the nurses at NHS24 in Dundee.

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In Memory of Claire Dee Shapland • DW & JC Smalley sent in a donation of £200.

• Mr M A Robins sent in a donation of £100.

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Our In Memory of Timothy Delaney We have received a funeral donation of £276.02, in lieu of floral tributes, for the late Timothy Delaney. In Memory of Neil Desai • Charlotte Hine took part in the Skipton MiniTriathlon and raised £290.

• Thissa De Silva took part in the Virgin London

Marathon 2012 and sent in further donations of £1,266 making a total raised of £1,686.

In Memory of Adam Drawbridge Les Drawbridge and Sarah Drawbridge took part in the CRY Heart of London Bridges Walk 2012 and raised £500.

In Memory of David Eastty Roger Boston, Margaret Clark, Linda Eastty, Leslie Thompson and Diana Yorke-Wade took part in the CRY Heart of London Bridges Walk 2012 and raised £435. In Memory of Howard and Sebastian English Amanda Earlam took part in the CRY Heart of London Bridges Walk 2012 and raised £110.

In Memory of John Dick Malcolm Dick took part in the CRY Heart of London Bridges Walk 2012 and raised £152.50. In Memory of Luke Dickinson and Leonard Dickinson We have received a funeral donation of £425, in lieu of floral tributes, for the late Leonard Dickinson (grandfather of Luke). In Memory of Aaron Dixon Sharen Stables forwarded a donation of £2,378 from Deborah and Gary Dixon and their daughter in memory of their son Aaron, who passed away on 4 September 2011, aged 23 years. The money was raised at a Charity Bike Ride on Sunday 6 May. In Memory of Alan James Dobbin We have received a funeral donation of £400, in lieu of floral tributes, for the late Alan James Dobbin.

Fundraisers

In Memory of Sebastian English • “As you are probably aware, Sebastian’s Aunt Phyl, my wife, died last December. We had always made a point of making a donation to CRY on what would have been Sebastian’s birthday and I want to maintain that habit. He would have been 24 this year. I enclose a cheque for £100 in very fond memory of a wonderful boy.” Wynne Owen

• CRY

Patron Simon Halliday took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £9,270.

In Memory of Martin Doig Jan Doig and Liz Thompson took part in the Pathfinder March 2012 event and raised £320. In Memory of Adam Donnelly “I am enclosing cheques that were collected by CRY at my recent birthday. I decided to come up with the idea of donations instead of gifts and my wonderful friends did not let me down. This amount has been collected in memory of Adam Donnelly, of whom his parents, Jed and Julie, dear friends of mine were also in attendance at my party. Truly a lovely couple.” Cheryl Morgan sent in a donation of £465.80. In Memory of James Dowthwaite We have received a funeral donation of £119.10, in lieu of floral tributes, for the late James Dowthwaite who passed away on 29 March 2012. In Memory of Samantha Doyle Christine Doyle took part in a sponsored head shave and raised £1,025.

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In Memory of Sebastian English and Mike Sorby Charlie Hargreaves completed the Reading Half Marathon on Sunday 1 April and raised £820. Ben Smith and Charlie Hargreaves who ran the Reading Half Marathon for CRY In Memory of Sean Farrell Kate Donnachie completed the Great North Run 2011 and sent in an additional donation of £162. In Memory of Leanne Faulkner Grant Faulkner sent in a donation of £1,048.10 from the Leanne Faulkner Trust in respect of fundraising in Portugal.

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Fundraisers In Memory of Josh Fell • Donna Fell sent in a donation of £500 from Café 10 and £1,500 from Hornsea Rotary Club.

banana. We set off again heading for the summit climbing through a meadow with the road snaking its way to the top. I really enjoyed this climb getting into a nice rhythm pedalling at a good cadence, I had completed my first Col. The descent was great fun again with the road snaking its way down, tricky at times due to pot holes and cracks to be avoided, but still my first proper descent and was having a great time. At the base of the climb we joined the road to Flumet where we stopped for our lunch stop, trying to find shade as the temperature had risen to over 30oC.

• Donna and Rich Fell held a Coffee Morning with tombola and raffle on 14 July and raised £465 in memory of Josh.

• We have received a donation of £100 from the Seaton Village Coffee Club.

• Richard Fell sent in a donation of £250 from the Leven Wives Group who had a cake and plant stall on Saturday 16 June.

• John Nolan took part in the Hull Marathon on 8 April and sent in a donation of £249, making a total amount raised of £289.

• Donna Fell sent in a donations totalling £2,306. • Nick Prout took part in the Classic Cols of the Tour de France between 29 June and 1 July and raised £318.06.

• Nicholas Prout sent in an additional sponsorship donation of

After lunch it was straight into the climb of Col des Saises, although the profile showed a different story, this was much longer than the first and quiet a lot steeper with gradients going up to 12%. I was hoping to finish the first day having still got my lowest gear in reserve, but I needed it today, which was a bit of a worry for the following days. There wasn’t much at the summit, but our support van was there with water and snacks. We then sent off for our next stop in Albertville, well I thought the descent from Aravis was good but this one was excellent - long and fast with a few patches of loose grit on the roads to keep you on your toes (and brakes). It was a pleasant ride down the main road towards Albertville when, puzzled, we came across a marker arrow at a round about pointing up another Col. Being good children we followed it going up and up. We discussed the climb saying ‘I’m sure this wasn’t on the profile of the day’ eventually we came to a T-junction and started heading back down joining the same road we were on earlier. Apparently the organisers decided to add this climb in to slow us down, NICE!

£105 in respect of the Classic Cols of the Tour de France cycle ride in memory of Josh. Total donated £1,289.50.

Excerpts from Nick Prout’s diary of his ‘CLASSIC COLS OF THE TOUR DE FRANCE’ charity cycling challenge. “CHALLENGE DAY 1. We set off from our hotel trying hard to remember to ride on the right side of the road. We rode out of Annecy heading towards our first mountain climb of the day, Col De Aravis at 1,487m riding through the town of La Clusaz on the road out of the town we had our first water stop of the day for topping up bottles and a CHALLENGE DAY 3. The Col Du Telegraphe and the Col Du Galibier, our first climb today, are usually tackled together especially in the Tour as they follow on from each other. Therefore it was out of the hotel and straight into it through the village and out towards the Col. The weather was not so nice today with a light drizzle to start with but the wind had also woken up. The first part of the climb was quite a gradual drag up the valley with the odd steeper section to get you working, as we got nearer the actual Col we saw the road cross a bridge then ramp up the side with another hairpin corner section for the start of the proper climb. Because we had started at 1,300m we soon found ourselves in a barren landscape with the wind and rain becoming

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a major factor in this climb and towards the top on one section was a head wind plus a gradient of around 10%. It got very blustery and you had to be very careful when going around corners in case the wind caught hold of you, as on this climb it was sheer drops off the edge of the road. The water stop at the summit was very welcome as I had a couple cups of tea to warm me up, looking down at the descent which looked amazing if it was sunny but in these freezing conditions it looked very daunting, we put every bit of clothing we had on and set off cautiously as it was hard to keep control of the bike with frozen hands and strong wind.

“We held this memorial day event a year and a day after losing our son Josh as he was a mad Hull City fan and he loved to play football himself, this event was everything Josh would have loved, as he also loved his friends and family too. The event was a charity football match against Ex-Hull City players and our team which was Felly’s United which was made up of friends, work colleagues and some people we have met along our fundraising journey.

We had over 500 people turn up and share in our first big fund raising memorial day which we plan to do every year.

We also had 2 teams of Josh’s friends playing a match in the afternoon, most wearing their Hull City shirts in memory of Josh and most with a personal message to Josh printed on the back.” Rich Fell.

We decided lunch was going to be a café today so found a café in La Grave and ordered a croque monsieur ham & cheese sandwich and hot chocolate which was delicious and definitely hit the spot. While in the café we managed to miss a very heavy rain shower so when we emerged it was light rain again along a road with a few tunnels along the way, one which went extremely dark in the middle which got scary as my front light wasn’t particularly bright. We travelled along this road, the scenery was spectacular and you could just stand and look at it for hours, but we had Alpe D’Huez to climb. This is the most famous climb we were tackling on this challenge so it was great to be in the wheel tracks of the pro’s of previous years, reading their names which were painted across the road. A few people told me that it got easier as you got nearer the top but it didn’t after the first steep section it kept pretty much around 10% again. Towards the top I could see two of the cyclists in our group in front of me and began to try and bridge the gap as I got nearer the finish. I turned hairpin no 1 and thought right I can really start to up the pace I then came across hairpin no 0, whose idea was a hairpin numbered 0?, but still feeling good I kept changing up the gears and racing to the finish. I went past the first support van but I wanted to finish at the Tour finish line which was further up. I didn’t quite manage to catch the other two but I did get close. Then it was back to village centre for well earned hot chocolate and purchase a Alpe D’Huez Cycling jersey as a souvenir of a fantastic trip with great company, breathtaking scenery and the satisfaction that I had completed my cycling challenge of a life time and raised a great deal of funds in memory of Josh Fell for CRY.” Nick Prout. To read the full diary visit www.c-r-y.org.uk/Nick_Prout_TDF_2012.htm

• Donna Fell sent in donations of £520 and £1,800 from the

Josh Fell Memorial football match and Family Fun Day held on 10 June. To date £3,633.75 has been raised from this event.

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In Memory of Therese Field Tara Field sent in a donation of £400 from a Quiz Evening in memory of Therese.

In Memory of Sheila Fitzpatrick We have received a funeral donation of £110, in lieu of floral tributes, for the late Sheila Fitzpatrick. In Memory of Sean Patrick Flanagan We have received a funeral donation of £283.55, in lieu of floral tributes, for the late Sean Patrick Flanagan.

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In Memory of Thomas Fleetwood Elise Fleetwood sent in a donation of £1,450 raised at the fivea-side Football Tournament and Fun Day on 5 August held in memory of Tom.

In Memory of Laura Fox Kate and Robi Fox sent in donations amounting to £300 in memory of Laura. £100 of this donation came from the Flaming Fryer of Wickham Market.

In Memory of Rhian Nadine Fry Colleen Fry sent in a donation of £100 from the Table Top Stallholders at the charity market in Buxted Village.

In Memory of Rhian Nadine Fry and William Lynn Fry We have received a funeral donation of £171, in lieu of floral tributes, for the late William Lynn Fry who passed away on 11 May. In Memory of Victoria Furlong James Carroll took part in the Virgin London Marathon 2012 and sent in further donations of £465, making a total raised of £1,995. In Memory of Matthew Gadsby Michael Rhodes, the Queens Head, Tamworth, sent in a donation of £121.20 from the counter top collection box.

In Memory of Lauren Gallagher Blanche Gallagher sent in a donation of £121 collected from the charity box at Centra Stores.

In Memory of Nolan Foley David Foley took part in the BUPA 10K and raised £200.

In Memory of Sophia Forrester Wiliam Forrester sent in a donation of £500 in respect of Sophia’s Gang Three Peaks Gold Challenge.

In Memory of Joanne Fotheringham • Karen MacLeod and Kathleen Russel sent in a donation of £350 in lieu of presents for their father’s 70th birthday.

• Alex Fotheringham forwarded cheques for £100 from Mrs Jenny Kermode and £20 from Mrs Yvonne Munro. • Alex Fotheringham sent in a donation of £200 from the Bingo Night at the Rotary Club and further donations amounting to £97.

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In Memory of Andrew Gard “Please find enclosed a cheque for £1,500 from ‘The Worshipful Company of Tin Plate Workers Charity’. This is the 69th City Livery Company, who while supporting their trades, develop and encourage education and charitable activities. A friend of mine Ian Chamberlain - is this year the Master of this company and has put this generous donation to CRY, as he wants to support the work - particularly that in Colcheser and other screening events.” Caroline Gard. In Memory of Jamie Gentleman Terry Anderson took part in the Virgin London Marathon 2012 and sent in further donations of £480.50, making a total raised of £2,443. In Memory of Salena German Jackie German sent in donations totalling £550; £111.60 from a car boot sale, £348 from the Fete in Felstead, £87.10 from the collection boxes and £3.30 as a donation from her granddaughter.

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Our In Memory of Alexander Goodman Rosemary Goodman sent in a donation of £230 which was raised at an afternoon tea with friends and the selling of her hand made cards.

In Memory of Stewart Goodwin “Please find enclosed a donation of £700 in memory of Stewart Goodwin who passed away in the Summer of 2011. Stewart was a member of the 2008 cohort at Warwick Medical School. The donation is made on behalf of the Warwick Medical School ‘Medics Revue’.” Warwick Medics Revue.

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would no longer need my mum or dad to sign the form for me. It took me two attempts as the weather was too bad the first time, but it was well worth the wait! It was the best experience of my life and knowing it was for such a great cause made it so much better. Everyone had a great day and I hope to do it again in the next few years. The charity night was a great success with all of Craig’s friends and family gathering to remember him and raise money for charity. The signed rugby ball went for £300! Everyone had a great night and all took part. It was well worth the stress of organising it.” Linsay Graham.

In Memory of Ewan Gordon Mr & Mrs Gordon sent in a donation of £100 in memory of their grandson, Ewan. “Never a moment passes, never a day goes by, he is always with us.” In Memory of Andrew Graeme Paul Graeme sent in a donation of £100 from an audit he was undertaking. In Memory of Craig Graham Linsay Graham took part in a Skydive and held a Charity night on 19 August 2011 and raised £2,058.67 in memory of Craig.

In Memory of Jordan Grant • “We were asked to raise money for CRY by Janice Johnstone in memory of Jordan Grant, who died earlier this year. Janice carried the Olympic Torch in Preston on 23 June and she kindly allowed us to borrow it so that staff and pupils at the school could have their picture taken with it for a donation to CRY. Janice’s sister is an English teacher at our school.” Staff and Pupils at Pleckgate High School sent in a donation of £150. “I went to meet the Scottish Rugby Team on the 18 March to try and publicise my skydive in aid of CRY, in memory of my big brother Craig Graham. All the men were very nice and I got my photo taken with each of them individually as well as the group photo, and they all signed my CRY top for me too. I also got a ball signed which we auctioned at the charity night. I had always wanted to do a skydive since my big brother’s friend did one just after Craig had died. So for my 18th birthday I asked if I could do a skydive, since I

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• Janice Johnstone took part in the Liverpool Half Marathon on 18 March and raised £324.

• Lisa Grant sent in the following donations; £2,000 from

Nigel Ranson, Our Lady’s Catholic High School, Preston; £841.88 from Emma McGrath, Our Lady & St Edward’s Catholic Primary School and £159.02 from Nomita Lillystone, Proceeds of Crime Unit, Preston Police Station.

• “We held a charity football tournament at Cardinal Newman

College as Jordan was a student of ours who sadly passed away this year. Over 80 students got involved and it was a fantastic day. Special thanks must go to Josh Heap, Scott Craven, Jonny Shaw, Oliver Symonds and Tom Connor who organised the tournament from start to finish.” Jemmi Garvin, Teacher of PE and Sport, Cardinal Newman College, sent in a donation of £350.25.

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• Janet Bisby took part in the 7.5 mile Kayak and Cycle ride on 1 April and raised £350.

In Memory of Emma Greaves “Please find enclosed a donation for £935. This money was raised by family and friends sponsoring Emma’s fiance, Matt and his friend Chris, when they took part in the Great Manchester Cycle Ride on 4 June. My daughter Emma was only 29 when she died on 3 December 2011, leaving her family and friends shocked and devastated.” Adriene Smith. In Memory of Adam Green • Tom and Judy sent in a donation of £2,560 from the Bridgnorth Walk on 4 June. “On Monday 4 June a group of us walked the Bridgnorth Walk www.bridgnorthwalk.org in memory of Adam Green (my son).

The full walk for 14 to 39 year olds and anyone 40 and over who wishes to complete the full route is 22 miles and goes to the summit of Brown Clee Hill (at 546m, the highest point in the West Midlands).

We also got an interview with Adam Green (name coincidence) of BBC Radio Shropshire which went out a few times ahead of the walk and on the BBC Local Radio news on the day!” Tom Green.

• Tom and Judy Green sent in an additional donation of £3,160 from the Charity Lunch held on 22 July.

• Tom and Judy Geen sent in a donation of £274 from sponsorship for the Bridgnorth Walk on 4 June and late ticket money for the Charity Lunch in July.

• Tom and Judy Green sent in donations of £50 and £635 from the fundraising weekend at the Peel Arms in Ashley and the Bridgnorth Walk.

In Memory of David Green • Lauren Berry sent in a donation of £125 in respect of the Tandem Skydive.

“I jumped from 10,000 feet in clear conditions at Army Parachute Association. It was the first time that I had made a parachute jump. I was motivated to jump for the charity because a friend, David Green, died on the 1 December due to a undiagnosed heart condition. I wanted to raise awareness of CRY and help raise funds to support CRY’s important work.

The whole experience was amazing, it was so nice to know I was doing it for a friend.” Lauren Berry

(L to R) Tom Green (Adam’s Brother), Tom Green (Adam’s Dad), Jack Coleman, Martin Green, Lawrence Green, Gemma Bache, Mark Bache and Emily Bache

• Tom and Judy sent in donations totalling £199 in respect of the Charity Lunch on 22 July and ASDA in Market Drayton.

• Steve Walker took part in the Great North Run on Sunday 16 September and sent in a donation of £300.

In Memory of Oliver Griffin • Barbara Griffin forwarded a dontion of £101 from Slimming World, Egham, following a talk she gave to them about her experience and CRY.

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Our • Gareth Ilbery took part in the Virgin London Marathon 2012 and sent in further donations of £580.33, making a total raised of £1,799.53.

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In Memory of Graham Harrison • Christine Iveson sent in an additional donation of £590 in respect of the Paris bike ride.

• Shaun Hobson took part in the Hull Marathon

In Memory of Leanne Haddrell Kate Grundy raised £1,324.63 in respect of the Mount Kilimanjaro climb.

In Memory of Matthew Hadfield • Diana Garretts sent in a donation of £100, a Wedding Anniversary gift in memory of Matthew.

and raised £460.

In Memory of Ryan Harrison • “Please find enclosed a cheque for £325 in memory of Ryan Harrison, my wife’s nephew. This money was raised during my year as Master of the Boundary Lodge, No 7695, in St Albans, Herts.” John and Denise De’ath.

• Teresa Harrison and Karen Mumford took part in the CRY Heart of London Bridges Walk 2012 and raised £501.

• Sarah Conway, Eraldo D’Atri, Diana Garretts, Marc Hadfield, Amanda Hogan, James Hogan, Nick Holman, Andy Hunt, Oliver Hunt, Peter Jones, Maja Naskret, Denise de Paor, Eimear Quinn, Liam Quinn, Ben Rigby, Orla Ryan, Robert Ryan, Tom Sampson, Monika Stachurska, Gemma Warrick, Mark Warrick, Matilda Warrick and Dan Watts-Read took part in the CRY Heart of London Bridges Walk 2012. To date, £225 has been raised.

In Memory of Jake Hawkins Paul Taylor took part in the Virgin London Marathon 2012 and sent in further donations of £1,265 making a total raised of £3,078.18.

In Memory of James Haggerty Kelly Bishop, The Horse & Groom, Essex, held a Charity Beer & Music Festival Weekend, The BIG Little Beer Festival and raised £1,371 in memory of her cousin, James.

In Memory of Mark Henwood David Faulkner, Treasurer of The Customs & Excise Mark Henwood Memorial Account sent in a donation of £129.45.

In Memory of Shamil Hamid The Monday Club, Kuwait held a charity fundraising night on 4 May at the British Embassy, Kuwait and raised £3,335.13.

In Memory of Mark Hearn We have received a donation of £115, in lieu of floral tributes, for the late Mark Hearn.

In Memory of Joe Herrington • Brad Herrington sent in a donation of £726.66 raised from Thomson Airways onboard collections.

• Mayfield

Primary School, Cambridge, held a Cake Sale and raised £300.63.

In Memory of John Hammond Michael Girling and Claire Hammond took part in the CRY Heart of London Bridges Walk 2012 and raised £104.50. In Memory of Kyle Hancock • Ian and Debbie, Liam and Shay sent in a donation of £1,200. “The money is from friends and relatives’ donations at Kyle’s funeral and a charity five-a-side football tournament which took place last December.”

• The pupils of Bradwell Junior school sent in a donation of £231 from the ticket sales and raffle takings at their school play in memory of Kyle Hancock, who was a pupil at the school from 2000 - 2004. Kyle’s mum is a mid-day supervisor at the school.

• We have received a donation of £200 from the Auto Service Tuning Centre and £50 from C Rogers.

• Paul Carter took part in the Cambridge Half Marathon on 11 March and raised a further £221.35, making a total raised of £251.35.

• Jason Copeland took part in the Cambridge Half Marathon In Memory of David Hargrave Ian Welch raised £680 in memory of David.

and raised £1,060.

• Andrew and Gemma Gapper took part in the Cambridge Half Marathon and raised £455.

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• Adam Ginsman took part in the Cambridge Half Marathon and raised £1,582.50.

• Cameron Murdoch took part in the Cambridge Half Marathon and raised £365.

• Paul Rowe took part in the Cambridge Half Marathon and raised £118.55.

• Emily Walker took part in the Cambridge Half Marathon and raised £155.

On Sunday 11 March a team of 21 friends and family took part in the Cambridge Half Marathon in memory of Joe Herrington:

“When I first saw that Cambridge was going to have it’s first half marathon for 18 years, I wondered who I knew that may want to run in Joe’s honour to raise money for CRY, I first rang Steve Bass who had expressed an interest in running the London Marathon but could not get accepted. Steve said ‘yes please’ to the Cambridge run; then I rang Paul Carter, I knew he ran regularly and he jumped at the chance. Then it was the turn of Joe’s head coach at Cambridge Rugby club, David Cleaver, I asked and he said ‘yes’ straight away.

So, with three runners, I e-mailed friends and rugby parents asking for their support. Amazingly by the end of the day we had 15 runners and 2 relay teams of 3 running the event. Adi Venni, Jason Copeland, Judith Dixon, Cameron Murdoch, Adam and Carrie Glinsman, Andrew Townsend, Mojo Rathbone, Craig Nethercott, Debbie Roberts, Simon Rosen and Paul Rowe all signed up for the whole run. Andy and Gemma Gapper, Simon Gibbs were Team Gapper and Emily Walker, Faye Peckham and Joe’s sister Rebecca Herrington were Team Walker. Then 3 weeks before the event Jaki Harold contacted us to ask if she could run for Joe and CRY.

Most of these were not ‘runners’ and most had never attempted anything like this, at least not for a number of years.

We could not have asked for better weather, although it may have been a bit warm for running, it was far better than the previous cold, wet windy Sunday. The day was perfect for all of the spectators to watch.

Although the day was very emotional for Daniela and I, the feeling of pride outweighed any sad thoughts. To think what all these people were going through for Joe and for us. It

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was a massive achievement for them and something they can truly be proud of.

There were a variety of finish times, I didn’t manage to get a shot of Cameron running as he was so quick and I missed some of the relay teams. But when I saw the faces of them running, the look of determination and the look of pain on some, it really filled me with a sense of admiration.

I know Joe was there watching with us, and we all knew he would have been laughing his head off at the grimacing on his coaches faces, but he would also have been cheering the loudest.

After the run a few of us went back to the house for a well earned beer and sandwich.

Daniela and I sincerely thank each and every one of Team Joe, the runners and their families and all the amazing sponsors.” Brad Herrington.

For more photos visit www.c-r-y.org.uk/Cambridge_Half_Marathon_2012.htm

• “Please find enclosed a cheque for £171.25. Cambridge Rugby Union Football Club (CRUFC) raised this money through a Charity Wax Event in which 5 players (Bryn Jenkins, Alex Kelsall, James McMaster, Harry Robbins and Ben Cooper) were nominated to have their chests waxed in

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Our preparation for their own heart screenings due to take place in the coming weeks. One player (Michale Ayrton), who was already bare in that area, nominated himself to have his lower legs waxed, all in aid of a good cause. Anyone could pay/bid to rip a strip off the players, supervised by our professional therapist Michelle Jacobs who donated her time and supplies to be part of the event. This proved very popular, especialy among the players themselves, getting their own back on one another! The Joe Herrington Memorial Fund was an obvious choice for us. Wanting to keep the memory of Joe alive, further promote the wonderful work his mum and dad, Daniela and Brad are doing, and donate to CRY, a charity close to our hearts having been directly affected by SADS.” Stephanie (CRUFC Physiotherapist). In Memory of Matthew Hesmondhalgh • Paula Hesmondhalgh sent in a donation of £442 which was raised at two events, the Race Night held on 24 March and the Retro Disco Night on 12th May. “In March we held a race night in memory of • my best friend, Matthew Hesmondhalgh, who passed away last August, due to SADS. The night was a great success where everyone had an enjoyable time.” Zoe Catterall sent in a donation of £1,162.40.

• Andrew Chiverton took part in the Le-Jog cycle ride and raised £603.

• Paula Hesmondhalgh sent in the following donations in memory of Matthew: £85 in respect of funds donated by visitors to the Claughton Paris Council Official Beacon Lighting, hosted by Mrs Edwina Miller, on 4 June this year; £942 from a fabulous event organised by Matt’s friends, Rachel Norcorss, Emma Galbraith and Zoe Catterall, taken after the event. “On 22 July 2012 we held a rounders tournament and family fun day in memory of our friend Matthew Hesmondhalgh at Guys Thatched Hamlet, Preston. Eight teams entered the competition with some taking part in the fancy dress, along with a Young Farmers Tug of War competition, bouncy castle, raffle, face painting, tombola and

Fundraisers

cake stall to name a few. Overall it was a fantastic day and we raised £924 with help from local business and people.” A final donation of £33 from Simon Milward-Hopkins in memory of Julian Millward-Hopkins. Total raised: £1.060. In Memory of Greg Highwood-Mack Emma Dew, Marketing Director, Advanced Health & Care sent in a donation of £1,145.61 raised at the Charity Dinner held in May 2011.

In Memory of Laura Hillier • Tony Hillier sent in donations amounting to £222; £202 was from collections during the Family Screening Day on 28 April and from Sarah Fraser in Blisworth. Also £20 was donated by Mr & Mrs A M Orton.

• Tony Hillier sent in donations totalling £1,700 in respect of the British Gas Swim Series 2012 in London, Ipswich, Windermere and Salford. In Memory of Peter Hinchliffe The Out of the Saddles fundraising event took place on 7 January at the Manchester Velodrome and raised £4,500 which has been split between two memorial funds - Peter Hinchliffe and Lewis Barry. CRY representative Ian Scanlan attended the event. In Memory of Liam Hipkin Julie Rust took part in the Great North Run 2011 and raised £200.

In Memory of Nicholas Holland • Gemma Holland sent in donations totalling £1,275; £50 was donated by her husband’s great Aunt and Uncle; £225 was raised at a Caravan Rally held at the family business and £1,000 was donated by a parent at the primary school where her husband attended as a child.

• Charlie Holland took part in the Virgin London Marathon 2012 and raised £3,005. In Memory of Philip Holland We have received a funeral donation of £1,500, in memory of the late Reverend John Eddison in respect of the Phillip Holland Memorial Fund. In Memory of Philippa Holmes Matt Tingle sent in a donation of £615 in respect of the charity bike ride on a tandem from London to Paris.

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In Memory of Jonathan Hooper • Peter Hooper took part in the BUPA 10k on Sunday 27 May and raised £395.

In Memory of Christopher Hynd Andrew Hynd took part in the West Highland Way walk and raised £3,763 in memory of his brother, Christopher.

• “On 17 May I celebrated my 60th birthday. I requested that people gave a donation to CRY instead of a gift.” Sue Mayou sent in a donation of £175 in memory of Jonathan. In Memory of Kieran Horn We have received a funeral donation of £1,500, in lieu of floral tributes, for the late Kieran Horn. In Memory of Stewart Howard • Jane Howard sent in donations totalling £2,085.25; £655.25 from Brian Savage in lieu of floral tributes in memory of his wife Sheila; £10 from Mrs Aylott; £920 from the car boot sale run by Jane (Aran Renewable Energy donated a van for the day) and £500 from the sale at Serenity Hair and Beauty Room which hosted a cake and tea sale.

• Jane Howard sent in a donation of £2,300 in respect of the car boot sale held at Tesco on Easter Sunday. In Memory of Paul Hubbard “Please find enclosed a cheque for £852.74 that we have raised through a fundraising event on site. Unfortunately we recently lost a colleague, Paul Hubbard. We held a charity football match and social evening in memory of Paul.” Darren Burrows, Operations Manager, Wincanton, Stafford.

In Memory of Camilla Irvine • Janey Airth sent in a sponsorship donation of £400 in respect of the Burton Leonard 10K in July 2011.

• “Please find enclosed a donation of £220 from a funeral collection for Mrs Mabel Singleton. Her family chose to support CRY in memory of our daughter.” Wendy Irvine

• Wendy Irvine sent in a donation of £1,430 which was raised at the local Clay Pigeon Shoot at Thirn, North Yorkshire. In Memory of Gary Jackson Nicola Heritage sent in a funeral donation of £525, in lieu of floral tributes, in memory of her husband, Gary. In Memory of Reece Jeffrey • Lisa Jeffrey sent in a donation of £650 which was raised at the Charity Golf Tournament in memory of Reece.

• The students of Landau Forte College, Derby raised £811.57 at the Derby 10K.

In Memory of Joseph Hughes • “This donation is made in memory of Joseph Hughes. Joe died tragically in April this year, aged 17. He had plans to climb the Three Peaks to raise funds for the charity in memory of a friend of his who passed away with the condition. Part of the funds were raised via colleagues of Joe who worked for Yorkshire Bank, the second donation has been made on behalf of Yorkshire Bank, again in memory of Joe.” Lucinda Scott, Yorkshire Bank, sent in a donation of £456.50.

• We have received a donation of £548.31, in lieu of floral tributes, for the late Joseph Hughes. In Memory of Matthew Hughes Fay and Paul Hughes sent in a donation of £1,000 from the Charity Auction Dinner held on 2 March which was organised by Mrs Mandy Gee in memory of Matthew. In Memory of Pollyanna Hughes George Hughes sent in an additional sponsorship donation of £100 in respect of the Berlin Marathon, making a total raised of £1,738.

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“We all had a super day at the Derby 10K we are ever so pleased about the amount we have managed to raise for CRY so far. It is a cause we hold very dear to us especially after tragically losing one of our students to an undiagnosed heart condition last year. It was also the first time that the College submitted a student team which made things even more competitive on the day.

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It was an extremely well set up event and I urge anyone (regardless of how fit you are) to just have a go cause in the end it’s about helping others that really matters.” Mario Petronzi.

• Derbyshire County Football Association sent in a donation of £1,000 from the recent screening event held at the club. In Memory of Michael Johnson Barry and Jeanne Johnson sent in a donation of £395 and a Gift Aid scheme cheque of £25. In Memory of Jade Johnstone Janice and John sent in donations totalling £400 in memory of Jade; £50 from W P Horsley and £350 from The Romany Pub.

In Memory of Ethan Jones • “My name is Lucy Wagstaff and I go to Guildford High School. Recently my form (7HR) held a cake sale to raise money for CRY, a charity that we as a form decided upon. CRY is a charity that is very close to my family’s heart. On 2 December 2010, my brother Matthew’s close friend, Ethan Jones, died from an undetected heart condition. He was six years old. With our small cake sale we managed to raised £100.” Lucy Watstaff, on behalf of all of 7HR, sent in a donation of £100 in memory of Ethan.

• David Barlow took part in the CRY Heart of London Bridges Walk 2012 and raised £130. In Memory of Jordan Olivia Jones Joanne Bird completed the Manchester Marathon and sent in a donation of £286.30. In Memory of Alex Kaiser • Lloyds TSB sent in a matched giving donation of £500 in respect of Sam Knightly completing the Kaiser Cardiomyopathy Challenge on 5 July in memory of Alex.

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In Memory of Joe Kellogg • Emma Hammersley took part in a sponsored walk and raised £527.

• Keith Beswick sent in a sponsorship donation of £200 in respect of Donna Kellogg’s Kilimanjaro Trek.

Alison Inwood, Donna Kellogg and Carrie Davies climbed Mount Kilimanjaro in memory of Joe Kellogg between 21 and 30 June 2012.

“Doing some kind of fundraising challenge for CRY seemed the only right thing to do after my fiancé Joe died from SADs in July 2011.

Myself, Joe’s sister, Donna and friend Carrie all decided to take on the heights and challenges that Mt Kilimanjaro had to offer us, standing at 5,895m above sea level (ASL), it’s the highest any of us had ever been.

For the months leading up to the trek we were set on raising money and awareness for CRY, and other spare weekends would be taken up with training. Friends and family would come and support us for everything, including scaling the 3 peaks of this country (Snowdon, Scafell & Nevis). It stood all 3 of us in good stead for the days ahead and trekking up the tallest freestanding mountain in the world.

We were a group of 20, mixture of ages and personalities but we worked as a team from day one. Some had not camped before and others hadn’t walked much further than their local shop before setting off up the mountain.

It took 6 days in total to get up and down Mt Kilimanjaro. The days consisted of long treks through different terrains including the rainforest on day 1, continuing up through the clouds on day 2, bits of scrambling on days 3 & 4. The weather was interchangeable throughout therefore we had to use all our different kit to make sure we didn’t get too hot, cold or wet!

• Nick Day sent in a donation of £300 in respect of the Kaiser Challenge, in memory of Alex.

• Rob Spaul sent in an additional donation of £250 from his employer, in respect of the Kaiser Challenge. In Memory of Mr Kamis Sunil Mukerjea took part in the Virgin London Marathon 2012 and sent in further donations of £966.53 making a total raised of £1,756.53. In Memory of Matthew Kamis • Trina Kamis held a Tombola event in March and raised £110.

• Shaun Kamis took part in the Virgin London Marathon 2012 and sent in further donations of £866, making a total raised of £3,401.

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Waking up and seeing that you’re above the clouds was just exhilarating, it was usually a blanket of clouds but occasionally they broke up and we caught a glimpse of the world below.

Our highest camp was Barafu camp at 4,600m ASL, it had taken ten hours trekking the day before to get to and yet we had just a few hours to eat and rest here ready for ‘summit night’. We rose from our tents at 11pm, forced some porridge and ginger biscuits down us and layered up to keep warm (x8 layers on top!), our trekking poles were out and off we went in the pitch black, nothing but the stars and head torches for light!

Summit night without doubt was the hardest, but also most amazing part of the trip. We had to contend with the altitude effects as we were getting higher and higher, the elements battering us (the wind was so cold, our drinks bottles had to be stored next to our body heat so they wouldn’t freeze) and the fact we’d had hardly any sleep for ~24 hours.

Sunrise was at 6am, it was a beautiful sight, we could see the curvature of the earth, and this was a massive energy boost for us. Our next target was to get to Stella Point, 5,790m ASL. Here we had a black tea, a sit down and some much needed chocolate raisins, in preparation for our final push to Uhuru Peak.

We reached Uhuru peak about 9.30am on 27/06/12, the views and experience were exhilarating and it took all our physical, emotional and mental strength to get there but there was no doubt we had an abundance of that when we just remembered that it was all being done in the memory of Joe Kellogg, the most amazing person I have ever known, he’d have been so proud.” Alison Inwood.

In Memory of Peter Graham Kelly We have received a funeral donation of £121.84, in lieu of floral tributes, for the late Peter Graham Kelly, who passed away on 2 June.

In Memory of Joseph Korting • Rob Knott took part in the Reading Half Marathon on Sunday 1 April and raised an additional sum of £355, making a total raised of £410.

• Tom Marsters took part in the Reading Half Marathon on Sunday 1 April and raised £153.

• Amy Thomas took part in the Reading Half Marathon on Sunday 1 April and raised £210. In Memory of Judith Krish Tim Froggatt, Felicity Good, Julia Good, Gillian Krish, Jonathan Krish and Kati Nairn took part in the CRY Heart of London Bridges Walk 2012 and raised £2,925. In Memory of Adam Lambert Mark Roberts completed the Newham Classic 10K Run and raised £815. In Memory of Anthony Lancaster • Amanda Lancaster completed the Coast to Coast event and raised a final amount of £1,365.

• Amanda, Nellie and Ken (the ‘Adventure Trio’) sent in a donation of £389 from the Coast to Coast Cycle Ride. In Memory of Robert Lancaster • Sherry Murray sent in a donation of £563 in respect of the London to Brighton Bike Ride on 27 May.

• Sherry Murray completed the London to Brighton Night Ride in May and raised £225. • The Grove Independent School, Milton Keynes, sent in a donation of £287.57.

In Memory of Jenny Kerwood • Martin Kerwood sent in a donation of £1,200 from the British Embassy in Berlin.

• Martin Kerwood sent in a donation of £614.34 from some of the mothers from the Billericay Pre School who ran a half marathon in memory of Jenny.

• Martin Kerwood sent in a donation of £411.70 raised at the ‘Strawberries and Cream’ stall at the Diamond Jubilee Fair at Stock in Essex. The stall was run by Mrs Jenny Aylett. “Jenny is a friend of our family and offered to donate the takings from her stall to CRY upon hearing of the death of our daughter.” Martin Kerwood. •

“I enclose a cheque for £250 from the Ilford North West District Scout Council. Every year at their AGM they make a donation to Charity. This year, at the request of our friend Paul Danvers (who is on their committee), the charity chosen was Cardiac Risk in the Young, in memory of Jenny.” Martin Kerwood.

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• Carly Hilton, Martin McColl Limited, sent in a donation of £1,500 which was raised at a recent charity auction. In Memory of Daniel Larkin “Please find enclosed a cheque for £500. The money was raised when myself and three of my friends completed the Wirral Coastal Walk in May in memory of my son Daniel. Family and friends sponsored us to complete the very tough 15 mile walk, which we did despite it being a very hot day. I hope our donation can help in a small way for you to continue the excellent work.” Tricia Larkin. In Memory of Martyn Lee Lianne McDonald took part in the BUPA Great Manchester Run on 20 May and raised £469.

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Our In Memory of Vicky and Phillip Lee “Cliff and Jean would like to thank everybody concerned who donated to a raffle at the Dolman Theatre and raised £212. Special mention to Jackie Davey and students who put on a wonderful show at the Dolman Theatre Newport and for the donation of prizes and to Penny and students for announcing the prizes and winning tickets on stage during the show, also to Mary and David, family of Cliff and Jean, for selling the tickets.” Cliff and Jean Lee sent in a donation of £212. In Memory of Jonathan Leigh Zoe Storr completed the Three Peaks Challenge on 7 July and sent in a donation of £140.10.

Fundraisers

of the way to gain this time. Power walking up the track seemed like no time at all, and then reaching the rocks which were to be scrambled up seemed like a daunting task at first. Once we made progress up the rocks, time was ticking away fast, but we were doing really well. Sarah was struggling at this point and so Sara being the awesome motivator, pushed her to the very top, meanwhile I gained some surprising energy from somewhere and started running with 23 minutes to go and passing a group who told me it was roughly 20 minutes to the top, I couldn’t risk walking. I ploughed through managing to reach the top by 8.52am. It was an incredible experience and I loved every minute.” Zoe Storr.

“Due to a much later arrival up north than expected we took a sensible option, or what seemed like the more sensible option at the time, to stay and sleep in the car at Ben Nevis car park. Freshened up and packed we set off on our first mountain, Ben Nevis. We had all prepared ourselves well with plenty of layers after seeing the forecast over the past weeks, however to our delight it turned out beautiful and within 30mins of walking we had all built up a sweat and had to take off the layers. It was a long but pleasant walk and despite having had minimal sleep we all felt good and managed to reach the top with no problems. Arriving back at base, Ni and Rach had set out clean clothes and a fabulous picnic to eat. Without much delay we had a quick sort out and got back on the road to head to Scafell. Along route we hit a diversion sign, which set us back a little, we then got stuck down a very narrow road where buses were trying to get down but couldn’t, so we ended up having a two hour set back for our challenge. The original time of arrival would have meant we would have almost completed the second mountain in the light, however due to the hiccup we had, we didn’t arrive till just before 10pm and therefore it was just starting to get dark. I was exited for the adventure and experience of climbing a mountain in the dark. We managed to reach the top in good time at 12.10am and back down for 2.30 to then head on to Snowdon.

To read the full write-up visit www.c-r-y.org.uk/Zoe_Storr_3PeaksChallenge.htm In Memory of Alison Linforth “Please find enclosed a cheque for £381.18 being funds raised by my work colleagues at RBS Brindley Place, Birmingham during a week of fundraising in February. This included a quiz, a sweepstake, balloon popping and a casual dress day all in memory of our daughter, Alison.” Mr & Mrs Linforth. In Memory of Faye Linton Kathy Bowmaker sent in a donation of £100 from Castletown Methodists Church.

In Memory of John-Paul Lipscombe-Stevens Vicki Lipsombe-Stevens sent in a donation of £200 from collections and £350 from Aylesbury Hockey Club.

Arriving at Snowdon at 6.55am knowing it took roughly 2hrs to get up to the top was a bit worrying for us all, however we were determined not to let that get to us and push ourselves every step

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Fundraisers In Memory of James Love-Smith Morrison Cooper held a Remembrance Party in memory of James and raised £317.82.

In Memory of Max Lowry Stuart Edwards took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £800.

In Memory of Steven Lowry “Please find enclosed a cheque for £703.16, remaining proceeds from our charity football match held on 28 July. We collected donations at the gate and also had a BBQ and refreshments. The event was held in memory of Steven Lowry, Captain of Ahoghill Rovers who died in November 2011 from a cardiac related condition.” Tamsin Armstrong.

The Ahoghill Team, including Kathryn Gillen, Steven’s fiancée (4th from left) and Tamsin Armstrong, match organiser from Lisbellaw United (5th from right) “Lisbellaw United were delighted to welcome Ahoghill Rovers on Saturday 28 July 2012 for a football match in aid of CRY. The match was held in memory of Steven Lowry, the Ahoghill captain who died in November 2011 from a cardiac related condition. We collected donations at the gate in lieu of an entry fee, and also had a BBQ and refreshments for sale, with all proceeds going to the charity. There was a great turnout, both from the home support and the travelling Ahoghill fans, including the ‘Ladies Committee’. Even the heavy showers didn’t dampen the spirits, and fans enjoyed a great game of football with Lisbellaw emerging victorious. Thank you to everyone for their support.” Tamsin Armstrong.

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In Memory of Martyn Luckett • Charlotte Luckett (Henderson) sent in a donation of £20 from Kelly Roach and £477.54 from Portmore Golf Club, towards the screening event to be held in 2013.

Brenda Luckett sent in donations totalling £134. In Memory of Aaron Lundy Richard Douglas sent in a sponsorship donation of £100 in respect of the Belfast Marathon.

In Memory of Jack Maddams Roger Maddams sent in a sponsorship donation of £100 from Mr Shuab Morza in respect of the Etape du Tour bike ride in the Alps in July. “My nephew Dave Wigley & I rode the Etape du Tour for CRY on 8 July. This was basically the longest, nastiest, most mountainous Alpine stage of the Tour de France which turned out to be the greatest race ever for Britain, with Bradley Wiggins winning, Chris Froome coming second and stage wins for Mark Cavendish and David Millar. Our stage was the one from Albertville to La Toussuire, with us keen amateurs riding the route on the Sunday (with full Tour support of motorised police, support vehicles and the like) with the pros riding it on the next Thursday. One slight difference was that the winning time for the real race was just over 4 and a half hours...we rode for over 11 hours! The route was around 100 miles long, but the difficult bit being that it went up for 5,000 metres of vertical ascent. I train by riding up the likes of Sanderstead Hill in Croydon: about a mile long and rises up about 200 metres. The first big climb of the day was the Col de la Madeleine: about 15 miles long and 2,000 metres up! That took over 2 hours alone, and it was followed by similar big beasts of the Cols de la Croix de Fer, Mollard and La Toussuire. The day was hot too; started in the rain which then made the day very humid when the sun started to shine. But what a great experience: 6 months of training including commuting from Kent to Croydon each day over the winter was all paid back by being

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Our able to say “did that”. Sweaty climbs, whizzy descents, heart-inmouth hairpin bends (a relief going up as they give a little piece of flat road, terrifying coming down!) and the occasional drinks station which provided much relief.

In Memory of Mark Marden Thomas Cook, York, held a fundraising event and raised £430.

Next year: the Tour de Kent: 30 football grounds in a 3 day, 250 mile route at Whitsun 2013 in conjunction with Gillingham FC. Look out for our ride at www.justgiving.com/tourdekent13 - and if you would like to join us for part or all of it, please contact me at rogerjmaddams@aol.com” Roger Maddams, Proud father of Jack Maddams (8/4/90 – 30/3/08). In Memory of John Magowan Rishka Magown sent in a donation of £100 from Mrs J L Humm.

Fundraisers

In Memory of Oliver Marsden • Dominic Humphries sent in a donation of £190 from the Exeter Chiefs Auction.

• Kevin Marsden sent in a donation of £1,196.40 in respect of the Ollie Marsden Memorial Match which took place on 28 April. • Melanie Allday sent in a donation of £100 in respect of the Oliver Marsden screening event on 20 March.

• Tim Barker took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £2,155.01.

In Memory of Laura Main • Walker Road School, Aberdeen, sent in a donation of £295.34.

In Memory of Lewis Marsh • Gill Weston sent in donations from Mrs Godrey Bowers, Mrs Gladys Harwood, Julia Millar and Tim Douglas and the Warren School of Dancing, which amounted to £1,400.

• “On behalf of our retail students, I am delighted to enclose a cheque for £1,060.05. This has been raised within the Charity Box Shop, and with the Learning Opportunities Department, where we raised money for different charities each month. I knew Laura personally and she was also due to enrol at this college just days after she died last year.” Fiona Duff, Lecturer, Learning Opportunities Department, Aberdeen College.

• Dorothy Sim took part in the Baker Hughes 10K on 20 May and raised £875.

• “I recently completed the London to Paris Cycle Challenge (9 - 13 May ) in aid of CRY and in memory of my beautiful friend Laura Main.” Natalie Mair sent in an additional donation of £110.

Suzanne Penycate took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £2,307.78. In Memory of John Marshall • Maureen Marshall forwarded a donation of £654 from Darren and Colin who completed a bike ride from Leeds to Liverpool.

• Maureen Marshall forwarded a donation of £500 from Augton Wives and Mothers Group, who chose CRY as their Charity of the Year. In Memory of John Henry Marshall Harrison We have received a funeral donation of £563.50, in lieu of floral tributes, for the late John Henry Marshall Harrison. In Memory of Dean Mason Gwenfair Mason sent in a donation of £250 from Hardcastle Young Farmers. In Memory of Daniel Matthews Janet Blandford sent in a donation of £276 in memory of her nephew, Daniel. In Memory of Justin Meek Josh Fraser took part in the Forest of Dean Half Marathon on 1 April and raised £125.

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Fundraisers In Memory of Alan John Mercer • Soroptimist International of Bury sent in a donation of £100.

• Joan Mercer held a Cheese and Wine party and raised £210 in memory of her son, Alan. In Memory of John Millar Kirsty MacMillan sent in donations totalling £1,410 in respect of the West Highland Way. In Memory of Andrew Mogg • Sam Mogg took part in the Virgin London Marathon 2012 and sent in further donations of £107.31, making a total raised of £3,557.31.

• Mike Taylor took part in the Virgin London Marathon 2012 and sent in further donations of £107.31 making a total raised of £3,557.31. In Memory of Jonathan Morgan • North York Lodge No. 602 sent in a donation of £200.

• Matt Woods took part in the Virgin London Marathon 2012 and sent in further donations of £176, making a total raised of £436. In Memory of Tom Morgan Sue Jackson sent in a donation of £271 in respect of sponsorship for Duncan, Graham and Ian Jackson and the Three Peaks Challenge in memory of Tom.

In Memory of Levon Morland • Jeff Morland forwarded a donation of £101 from the staff at Northumbrian Water who held a Dress Down Day.

the club on 26 June and gave a talk about CRY. We have also received an additional donation of £20 from Mrs R Hatfield and Mrs M J Moss. In Memory of Duncan Mulholland Joanne Coates took part in the Brighton Half Marathon and raised a further £613, making a total raised of £713. In Memory of Andrew Murch Sheena and Rob Webster sent in donations totalling £521; Jimmy Wright donated £400 from being the overall winner at the Sheep Shearing and Novice Dog Trial competition and Sam Jacobs who had his hair tidied up by one of the shearers at the event donated £121. In Memory of Amanda McCarthy Michael McCarthy raised £460 in respect of the Brighton Half Marathon.

In Memory of Tommy McDermott-Headington Ken Headington, The FA, sent in a donation of £300 raised at Tommy’s Memorial football tournament in August 2011. In Memory of Greg McFarlane Andy Kerr took part in the Virgin London Marathon 2012 and sent in further donations of £465.94, making a total raised of £1,750. In Memory of Carl McGraffen Wendy Douglas and Eddy Cooper took part in the Edinburgh Marathon on 27 May and raised £394 in memory of Ed’s brother-in-law Carl, who died in November 2011.

• Aran Morland raised a further £155.60 in respect of the cycling event in memory of Levon. • “Please find enclosed three cheques totalling £1,375. These are all the proceeds and donations from “Kelfest 2012” which was held on 7 July at Holly House Farm, Kelfield, York, which is the home of Jim Henderson, Chairman of the Coptrin Group. The cheque for £1,250 from Coptrin is the profits from drinks sales and sales of T-shirts and hoodies which are specially designed and printed for the event. The £75 cheque is from a local pub quiz team who saved up their winnings for CRY. The £50 cheque from Mr & Mrs Woods is a personal donation to the Kelfest pot.” Jeff Morland. In Memory of Libby Moss The Inner Wheel Club, Melton Mowbray, sent in a donation of £650 in memory of Libby. CRY Supporter Rob Maddams attended

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In Memory of Oisin McGuiness Paul McGuinness took part in the Sheffield Half Marathon and raised £1,710.

In Memory of Simon McNamara • Nottingham Moderns Rugby FC held a Real Ale Festival in memory of Simon and sent in a donation of £500.

• Alex Drummond took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £3,045. In Memory of Pardeep Nagra • Ben Wilding took part in the Marathon Des Sables and raised £4,114.

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Our • The Royal Mail Charities Trust sent in a match giving donation of £200 in respect of fundraising by Dalbag Nagra and his colleagues. In Memory of Daniel Newman • Lee Beetles took part in the Virgin London Marathon 2012 and sent in further donations of £320, making a total raised of £2,176.20.

• Leanne Silver took part in the Virgin London Marathon 2012 and sent in further donations of £709.12, making a total raised of £3,333.18.

• Estelle Gold and Keith Gold took part in the CRY Heart of London Bridges Walk 2012 and raised £125. In Memory of Toby Northcote-Green Lucy Barratt, Juliet Burton, Mark Burton, Fiona Callender, Jim Callender, Nell Dodge, Monica Feilden, Jonathan Fox, Tricia Hazell, Clodagh Hemming, Richard Hemming, Bara Kaestle, Nicola Kaestle, Rebecca Kaestle-Cavallo, Adam NorthcoteGreen, Alastair Northcote-Green, Amanda Northcote-Green, Emma Northcote-Green, Jake Northcote-Green, James Northcote-Geen, Jennifer Northcote-Green, Peta NorthcoteGreen, Vanessa Oetzel, Rebecca Schneider, Alexander Thomas and Onneke van Waardenburg took part in the CRY Heart of London Bridges Walk 2012. To date, £3,125 has been raised. In Memory of Richard James Northedge Pat and Derek Northedge sent in a donation of £100 in memory of their son Richard’s birthday on 1 July. In Memory of Ben Obiora Paula McNicholas sent in a donations totalling £1,850 in memory of her son, Ben. £1,000 of this donation was raised at a bucket collection during a recent away match for FC United of Manchester. In Memory of Sean O’Brien James Appleby and Lochlainn Appleby took part in the Great London Swim and Great East Swim and raised £100. In Memory of John and Jamie Owens “We enclose a cheque given by the company of Craig Owens, who is the uncle of John and Jamie Owens, who both died of SADS. You will have on record, the John and Jamie Owens Trophy is an organisation set up to raise funds for CRY following their sad deaths. We hold a football match each year to raise funds and awareness.” Suzanne Fletcher, chair of John and Jamie Owens Trophy, forwarded a donation of £590. “The annual football match, now in its seventh year, was played on Sunday 5 August. The match was between a Select VI from Norton Ancients and a multicultural team, mainly African, called West Middlesbrough Academy. The Mayor of Stockton, Councillor Lynne Apedaile, kicked the match off.

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Fundraisers

By popular demand the African Drummers were there to give the day an international flavour. Entrance to the event was free, to enable all to be able to come along, with fundraising at the match and many donations given. The event has traditionally been held to honour the memory of John Owens, a youngster who died tragically aged just 17 as a result of sudden adult death syndrome. John had volunteered to be part of the Stockton International Family Centre football team; a mixed team of young men seeking asylum. John played an important part as a good team player, and a crucial role in showing what community cohesion is all about. The game has proved to be a fitting tribute to the unforgettable teenager, and we hope that a lot of people will come along and enjoy the day. Tragically John’s younger brother, Jamie, died 2 years ago, also from SADS, and the trophy match is held in honour and memory of both.” James Hadman.

The team captains and Stockton Mayor from the 2011 game In Memory of Thomas Paul Padmore Oliver Bailey, James Henderson, Karen Padmore, Louise Padmore and Paul Padmore took part in the CRY Heart of London Bridges Walk 2012 and raised £352. In Memory of Simon Pangborn Vanessa Tardif sent in a donation of £1,039.19 which was raised at a Bag Pack at Marks & Spencer. “In June, we did a bag pack at Marks & Spencer in Camberley to raise funds for CRY and in memory of Simon Pangborn. We had a fantastic day raising awareness and an astonishing £1,039.19. We felt very supported by the general public who passed through the tills and seemed genuinely interested in and supportive of our cause. It was an absolute pleasure to work alongside the Marks & Spencer staff who were all extremely helpful and friendly. In such a busy store, we were able to reach a large number of people and we would like to thank Marks & Spencer, The Meadows, in Camberley for the opportunity to pack bags for their customers.

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Our heartfelt thanks and appreciation to all our dear friends who came out on the day to offer their precious Sunday time to help raise funds and keep Simon’s memory alive.” Vanessa Tardif and Gill Pangborn.

bodies by the end of the day but everyone who took part, helped or just came to watch said they had had a brilliant day and here’s to next year when it all happens again.” Pauline Parker (Andrew and Rob’s Mum).

In Memory of Andrew Parker Rob Parker sent in a donation of £2,000 raised at the seven-a-side over 30’s football match on 19 May in memory of Andrew.

In Memory of Andrew Parr • “Our close friends held a Jubilee Street Party and it was decided that any money raised from a raffle and tombola would be donated to CRY. As there are only 15 houses in Whittle Green I thought it was a wonderful and generous amount and was very touched that they had made this gesture.” Ruth Lowe sent in a donation of £172.80.

• Carole Falcus, Queen Elizabeth School Charity Team, sent in a donation of £800.

• “Please find enclosed a cheque for £192 raised by holding a Quiz Night at the Ancient Oak, a local eating establishment. Fifty to sixty regulars enjoy a quiz there every Wednesday evening and we were delighted when Gary, the manager, agreed to donate a Wednesday evening to CRY. He was very generous and donated three raffle prizes and provided a free hotpot supper.” Ruth Lowe. “What started out as a bit of banter between friends on a stag weekend in Madrid last November, turned into a reality on 19 May this year when 100 footballers all over the age of 30, came together to play in QUEEN ELIZABETH 2ND DIAMOND JUBILEE OVER 30’S 7-A-SIDE FOOTBALL COMPETITION, all teams playing for The Andy Parker Cup. All the players taking part had varying

• “Please find enclosed a cheque for £250 donated by Councillor Bobby Cartwright at a presentation evening held at the Town Hall. My friend Christine was a great help and support to Bobby in her mayoral year and we were delighted when she chose to donate to CRY.” Ruth Lowe. In Memory of Christopher Parr • Sarah and Barbara Francis took part in the Cheshire Triathlon (sprint) on 27 May and raised £225.

• Louise Butler, Ross Dearden and Jessica Adams took part in the Potter Half Marathon on 10 June and raised £578.

Kenny and Rob who organised the day

In Memory of James Patrick Patterson • Tim Deeks and Matthew Adshead held a charity disco and raised £1,346.

• “Please find enclosed a donation of £385 wich represents the proceeds of a raffle held at the Campion Old Boys Club lunch recently. James was a regular player for the club right up to a week before he died of an undiagnosed heart condition and ever since then the club and individual members have been very generous in their support and contributions to CRY.” Mr B Sams. In Memory of Michael Patterson Kevin Patterson made an online donation of £341 from his local Taekwondo Club in memory of his son, Michael. levels of fitness, some were able to sprint round the pitch like they had never been away, others smelt of wintergreen and Fiery Jack and where not as able to sprint but just about jog. There where lots of laughs and sadness too and a lot of tired, aching

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In Memory of Adam Pearmine • Charles and Karen Pearmine sent in a donation of £2,435 in memory of Adam.

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“We held a football ‘tournament’ on 20 May. This involved a team of ‘oldies’ i.e. dads and general ‘has beens’ and teams of Adam’s mates, a total of almost 50 players. All was played in a great spirit, there were no injuries and honour was satisfied all round. It was a great tribute.

Afterwards there was a hog roast and appropriate liquid refreshment for players and supporters. Thanks to everyone and a very special thank you to NuStar Terminals Ltd, who one of the oldies works for, for their tremendous gesture of £1,000 to the Fund.” Karen Pearmine.

Fundraisers

Mitch and Shaun want to hold an annual event in her memory; Patridges (local store) went round with collection boxes at the Jubilee Street party and the staff paid to wear Fancy Dress for the day and they held a raffle and raised £236.20; Plumb Mate, a local plumbing and heating supplier, held a raffle at their annual golf day and raised £122; St Mary’s Church of England Voluntary Aided Primary School had a stall at their Jubilee Party and raised £71.52; a friend of Rebecca’s took a collection box to work and raised £66.55; a collection box was taken to work by a friend of the family who works at Standstead Airport and raised £37.44 and £164.29 was donated by friends and family. In Memory of James Stanley Phillips We have received a funeral donation of £350, in lieu of floral tributes, for the late James Stanley Phillips. In Memory of Sara Pilkington • Diana Stephenson sent in a donation of £380 in respect of the charity bike ride she took part in on 27 May plus a donation of £333 which was raised at the Cake Bake in April.

• Josette Pearmine completeted the Reading Half Marathon on Sunday 1 April and sent in a donation of £1,907.

• Julie Pilkington sent in a donation of £200. • Jonathan Pilkington held 21 fundraising events and raised £1,960.

In Memory of Benjamin Percival Darren Tristram took part in the London to Paris Cycle Ride on 18 April and sent in a donation of £115. In Memory of Jack Philips • “I’m thrilled to let you know that our Diamond & Stars Party, held on 2 June, in memory of Jack Phillips raised £7,721. The party was a huge success; everyone celebrated the Diamond Jubilee in style - it couldn’t have rained any harder but that did not dampen anyone’s spirits. So many kind, generous people made this event possible and we shall always be indebted to them. Nick Dee Shapland (CRY Representative) made the most heartfelt speech and addressed the challenges CRY face. I am so pleased we did so well and it was a great distraction. Clearly our lives have changed but none more so than Louise and her daughters Kate and Lizzie - they enjoyed the event and were touched by the success of it.” Hillary Walter sent in a donation of £7,721.

• Bradon Forest School BTEC Music Group raised £581.95 at the Riffs Bar Night on 18 May.

• Tracy Ayling held a Charity Night and raised £3,357. • James Reynolds took part in the Nijmegen March (100 miles) and raised £534. In Memory of Rebecca Phillips Julie Phillips sent in donations totalling £2,486. Hadleigh Town Council donated £1,000, The Brewers Arms Pub held a Children’s Fun/Playtime and an evening event with a live band and hog roast. Tickets were sold and a collection box was used and they raised £788. As Rebecca was a regular at the pub the managers,

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• Collingwood College held a Fashion Show in memory of Sara and sent in a donation of £1,600.

• Marie Moston sent in a donation of £921. • The Old Ellesmerian Lodge, Macclesfield, sent in a donation of £500. In Memory of Charlotte Pitstra “Please find enclosed a cheque for £1,518.63 by way of donation to your charity. My Squadron has been raising money for CRY throughout our six month deployment in Afghanistan, through a variety of raffles, quizzes and other events that we have run. CRY was chosen by my soldiers as our main charity in remembrance of Lieutenant Charlotte Pitstra, who sadly passed away just over 2 years ago whilst on a military ski trip, one of her main passions. Charlotte is still fondly remembered by many of my soldiers.” A S F Hutton, Major, Royal Signals, Helmand ICS Signal Squadron. In Memory of Charlotte Pitstra and

SSgt Stuart Williamson “I am 25107760 SSgt David Tuck and I am a serving soldier in the British Army. I am currently stationed at the Army Training Centre (Pirbright) and am responsible for the administration, discipline and welfare, as well as the delivery of training to recruits who wish to make the transition from civilian to solder. In December 2008 my Troop Commander, Lt Charlotte Pitstra sadly died, aged 24, whilst representing the Royal Signals at the annual Corps Ski Championships. In September 2010 a friend, SSgt Stuart Williamson died at home, aged 39. He had only 8 weeks left to serve in the British Army and was planning to retire at his home in Germany with his family. Recently I organised a challenge which saw soldiers from the Training Centre, cycling, running and

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tabbing from Pirbright to Sheffield and five other events within a six month period. The money raised will be split between Cardiac Risk in the Young, ABF The Soldiers Charity, Shades and Help for Heroes.” David L Tuck sent in a donation of £900. In Memory of Gary Pope Jonathan Barker sent in a matched giving donation of £240.52 for Google London Staffing Teams. In Memory of Alan Porter Helen Porter sent in a donation of £1,063.50 from two charity events. The first was a Bag Pack held at Iceland on 5 May and raised £243. The second was a Remembrance Birthday Party to commemorate Alan’s 29th birthday, held on 11 May. During the night they held a tombola and an auction and raised £820.50.

Out of this tragic loss, Mark has helped us recognise your charity and the value of the work you do to help sudden death in young people be reduced.” Paul Phelps, on behalf of Castleford Panthers ARLFC. In Memory of Gemma Quew Martin Baldwin took part in a Tandem Skydive and sent in a donation of £1,131. “Myself and Andrew Quew took part in a skydive on 28 July 2012. We made our jump from Neatherhaven Airfield near

In Memory of Phillip Poultney We have received a donation of £100, in lieu of floral tributes, in memory of the late Phillip John Poultney. In Memory of Shannon Powell • Wendy Hare, Treasurer, Barnet Copthall SC, sent in a donation of £500.

• Tim Hannah, Ealing Southall and Middlesex Athletics Club, sent in donations amounting to £2,737 from the fundraising sports quiz.

• Tim Hannah, Ealing Southall and Middlesex Athletics Club, sent in sponsorship donations totalling £1,327.81, in respect of sponsorship for the young athletes from

Salisbury, unfortunately our first attempt was abandoned due to bad weather at the last minute, but we were able to jump the following week.

• Tim Hannah, Ealing Southall and Middlesex Athletics Club, sent in a donation of £188 from Waitrose in respect of the Mini Marathon and Sports Quiz.

• Sali Lewis sent in a donation of £363 which was raised at a Coffee Morning.

• Victoria Taylor took part in the Virgin London Marathon 2012 and sent in further donations of £155, making a total raised of £4,701.55. In Memory of Mark Price “We are writing to offer you a donation of £200 in memory of our dear friend and team mate, Mark Price. Mark died in the early hours of Sunday 12 February 2012, after briefly complaining of feeling ill, then suddenly collapsing and dying. At the time Mark was out on his regular Saturday night jaunt in his favourte nightclub in Pontefract with a group of friends. He was 23 and would have celebrated his 24th birthday on 25 April, which he had already been busy planning weeks before his death. Mark was a lovely lad who lived life to the full and enjoyed playing rugby from his early teens. He played for many local clubs and was a committed team player with Castleford Tigers and enjoyed supporting the matches with his dad, Darren. As an only child he has left behind a heartbroken family and many, many friends.

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Our Gemma was only 30 when she died suddenly on 26 May 2011, she was a friend to all who met her and was an amazing wife to Andrew and mother to their daughter Catlin whom was only 2 years old when she lost her mother. Myself, I have been good friends with Gemma and Andrew for many years, and was one of her best men at their wedding in 2004. We have opened a Memorial fund in Gemma’s name to hopefully raise enough money to be able to bring a screening unit to the Isle of Wight in the near future.” Martin Baldwin. In Memory of David Quinney Mick and Dot Quinney sent in a donation of £100.

In Memory of Olivia Raby Jim Kershaw took part in the Greater Manchester Marathon and raised £1,015. “I’m please to say I completed the marathon last Sunday despite the horrendous weather conditions! Whilst I found the marathon was particularly gruelling for me I have to acknowledge the people of Greater Manchester for braving the elements and lining most of the course and giving us encouragement and support (Jelly Babies, Haribos & HobNobs!). Lots of them gave a special acknowledgement to the charity runners, I’m sure they were colder than the participants. A special thanks goes to my colleague Romy Beddows who has made it her mission to publicise the fundraising for her family.” Jim Kershaw. In Memory of Ed Reading “On behalf of League Edstreme I would like to give CRY a cheque for £100 from our CRY Cup competition which played its first Group Stage games at the beginning of this month. This competition is held each season in our 7-a-side football league raising money for CRY.” Sean Reading, League Edstreme partner. In Memory of Alex Reid CRY has received a funeral donation of £100, in lieu of floral tributes, for the late Alex Reid.

In Memory of Tom Reid Halina Reid sent in a donation of £6,266.58 from Marks & Spencer, Leeds in respect of them having chosen CRY as their Charity of the Year for 2011.

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Fundraisers

In Memory of Debbie Rendle • Sylvia Pezzack sent in donations totalling £446; £104 in one of the CRY tins collected by her son Martin and daughterin-law Debby at their Village Store, plus £50 and £396 were raised at her Coffee Morning and Cream Teas events. • Sylvia Pezzack sent in donations totalling £731.13; £701.13 from the Warrant Officer at RNAS Culdrose Naval Air Station and £30 which was donated by friends. In Memory of Scott Rennie • Kings St Alban’s School, Worcester took part in a walk from Severn Stoke to Worcester on 2 May in memory of Scott and raised £3,672.63. • Phil Cowin took part in the Virgin London Marathon 2012 and sent in further donations of £220, making a total raised of £2,546.30. • Hannah Brown took part in the Virgin London Marathon 2012 and sent in further donations of £250, making a total raised of £1,635. In Memory of Luke Rogers • Angela Rogers sent in a 70th birthday party donation of £205. • Angela Rogers sent in a donation of £180 from Narbeth Rugby Club. In Memory of Liam Ross Colin Ross raised £655 from his Fundraising page and £1,159 from the Liverpool Santa Run.

In Memory of Luke Rutter The Lytham Ladies Circle sent in a fundraising donation of £600. “On Saturday 24 September 2011, members of Lytham Ladies Circle (www. lythamladiescircle.co.uk) and their families packed bags in the local M&S food store raising a total of £355. Lytham Ladies Circle Chairman Samantha Tinsley has chosen CRY as her charity for the year, supporting the local high school who are also busy raising funds.” Julie Brown, Publicity Officer - Lytham Ladies Circle.

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Fundraisers In Memory of Craig Salmon Gemma Bamford held a St George’s Day fundraising BBQ, followed by an evening of bands, food and laughter and raised £1,515.

“On Saturday 21 April 2012 we held an event for CRY in Memory of Craig Salmon, my fiancé, who sadly passed away very suddenly on 14 June 2009 from an undetected heart default. The day was a HUGE success, we had a funfilled family afternoon, with face painting, cake stalls, games, BBQ, followed by an evening of bands, food and laughter!!! The day began at 12.30pm at The Bulls Head, Marchington. We had a magician, stalls and lots of other activities throughout the afternoon to keep everyone entertained. The weather wasn’t kind to us all day but despite the showers the support from friends, family and the whole village was amazing. The main event of the day was a ‘bed race’ where a team from the Bulls Head went head to head with My Team, on a half mile race around the village!!! Unfortunately my team lost but big congratulations to landlord Phil’s Team who came home as champions. We all made it round in one piece and had the whole village cheering us on. The day soon became the evening and after a quick change, we were able to set up ready for the bands to arrive. The evening consisted of fabulous music, lots of laughs and great food. We sold tickets for the event and had a fabulous turnout. I would like to say a HUGE thank you to everyone who helped make this event a great success and help raise so much for the fabulous cause.

We are raising money to fund 2 screening days in June next year where CRY will arrange to screen up to 200 young people in our local area. They will provide ECG tests and any people found to have issues can then be tested further and hopefully prevent the heartbreak that we have dealt with since the sudden death of Craig in June 2009 from undetected heart defects. We have reached our target already to do 1 day of screening but have lots of other events planned to hopefully be able to achieve our target.” Gemma Bamford (fiancée of Craig Salmon).

In Memory of Stewart Sands and

Marcus Armstrong “The donation of £200 was raised at a recent ‘Talent Evening’ run by Stewart’s friends at a local Progress club. Stewart was the prime mover for getting this evening into the club’s calendar. Unfortunately he never saw the fruits of his work. We are invited each year to attend by the organiser, Mrs Eileen Bladon. £60 was raised this year, the balance of the cheque is further money collected from a sponsored swim that was held in Stewart’s name at his local swimming club, plus a small donation from ourselves.” Derek and Geraldine Sands sent in a donation of £200. In Memory of Chloe Sary-Bool Gill Stedman, Lady Captain, St George’s Hill Golf Club, sent in a donation of £390 which was raised by the Ladies at the golf club at the Lady Captain’s charity event in memory of Chloe; the granddaughter of one of the lady members who died sudenly at the beginning of July, aged 16. In Memory of Aaron Sayer Bungay High School Science College recently held a non-uniform day and sent in a donation of £443.64. In Memory of Neil Schuyleman Andrew Davies, Helen Davies, Peter Davies, Ann Edwards, Anna Georgakakos and Minas Georgakakos took part in the CRY Heart of London Bridges Walk 2012 and raised £760. In Memory of Mike Scott Lady Lumley’s School, North Yorkshire, held a nonuniform day and raised £386.40.

In Memory of John Scrowston and Josh Fell Janet Fraser sent in a funeral donation of £260, in lieu of floral tributes, for the late John Scrowston. In Memory of Mark Sharp Joanne Hunter took part in the Garioch 10K and raised an additional £1,795, making a total raised of £2,896.

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Our In Memory of Luke Shaw “Please find enclosed a cheque for £4,115 raised in memory of Luke Shaw who died, aged 20, on 9 February 2011. Luke is the son of one of our detective sergeants on the Major Crime Unit in Derbyshire who has been deeply affected by the loss of his son. He wished the proceeds of this year’s Policeman’s Ball

In Memory of Ben Simpson • Penny Simpson sent in a donation of £100. • Joe Simpson sent in a donation of £800. • “We continue our celebration of Ben’s life with a round of golf with family and friends in Bournemouth. We also take this opportunity to promote CRY’s wonderful work.” Penny, Rob and Joe sent in a donation of £250.

to be donated to CRY as they were an enormous help to him and his family at the time of his son’s death. The Ball was held at Derbyshire County Cricket Club in the Marquee on 12 May 2012 and approximately 250 people attended. It was a cracking night with music from two local bands and a vodka ice luge that proved quite popular! We would like to donate the money raised in memory of Luke who was a much loved son and big brother.” Paul Callum and Maria Neads, East Midlands Special Ops Unit. In Memory of Jack Sheriff Terry Ha took part in the Virgin London Marathon 2012 and sent in further donations of £3,637, making a total raised of £7,362.17.

In Memory of Madeline Siddall “On May Day the church organises a village celebration with stalls, May Queen and King and fun events, and as part of this the Young Rockers the Church’s teenage members - had a stall to raise money for CRY.” Peter Lord, Treasurer to Ashover PCC, sent in a donation of £167.25.

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Fundraisers

“The Ben Simpson Open was finally met with glorious sunshine for the first time in a number of years so anticipation of a cracking round of golf had reached fever pitch. Bacon rolls were hoovered down in record time in order for people to get outside and enjoy the sun. Big Steve Hill showed the young guns how it was done by defeating Bazza Bristow in a nail biting play-off to win the One Putt challenge. Prizes were also won by Robin Gadd, Popsy, Luke and Nev with John Gadd taken home the dreaded clown. But the overall winner was Adam Grainger, a very fitting champion having been ever present at all previous Opens. Congratulations to Adam and a massive thank you to everyone involved for continuing to celebrate Ben’s life in the most fitting way possible!” Joe Simpson.

• Ian Ritchie took part in the Virgin London Marathon 2012 and sent in further donations of £2,655, making a total raised of £4,665. In Memory of Martyn Simpson Amy Curling, Ben Curling, Cheryl Curling, Perry Curling, Sam Curling, Nigel Davis, Caroline Edwards, Gareth Edwards, Irene Edwards, Julie Edwards, Steven Edwards, Terry Edwards, Valerie French, Lucy Gould, Martyn Gould, Sofie Gould, Anne Herbert, Jackie Mowat, Oli Roony, Alison Simpson, Lesley Simpson, Neil Simpson, Richard Simpson and Kyle William took part in the CRY Heart of London Bridges Walk 2012. To date, £286.34 has been raised. In Memory of Sarah Simpson Lynne Patrick and Hilary Simpson Padmore took part in the CRY Heart of London Bridges Walk 2012 and raised £200.

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In Memory of Andrew Skinner Allan Mudie raised £1,050.50 in respect of the Paris Marathon.

In Memory of Kevin Smart Steve Kite, Joanne Rentle, Deborah Smart, Louise Smart, Lynn Smart, Stephen Smart, Andrea Thompson, Ian Thompson, Colin Walsh and Emma Walsh Padmore took part in the CRY Heart of London Bridges Walk 2012 and raised £470. In Memory of David Smiley • “On behalf of Benenden School, I am pleased to attach a cheque for £1,312.62. The girls, with the help of myself, Louise Hall and the staff held a 24 hour Squash Marathon and a sponsored walk to raise money for CRY in memory of our late colleague, David Smiley.” Dr Hugo Petzsch, Deputy Head. Peter Hopkisson and Debbie Hopkisson took part in the • Hastings Half Marathon and raised £3,397. In Memory of Jason Smith Graham Griffin raised £433 in respect of the Paris Marathon 2012.

“Cameron, Freya and I held a cake sale in 2011 to raise money in memory of Rupert. It was such a fantastic day that we decided to do the same this year. As many people had wanted to support us last year but lived too far away, as well as selling cakes at the cake sale, friends have illustrated a set of 10 ‘Cupcake’ themed cards - and a website has been set up to sell them online: www.sprinklecolour.com. All the proceeds from the cards will go directly to Cardiac Risk in the Young. As a charity they are trying to raise awareness of the need for screening to detect heart conditions that might otherwise go undiagnosed. Additionally, they have also been very helpful already with detailed heart screening for Cameron and Freya and will continue with this in the future. The house was stocked with cakes and cards – and we raised over £700 on the day! It was a brilliant event and we were so happy with the result, as well as all the wonderful support and help we were given. Please feel free to share this website with friends...the more awareness the better!” Sue Spurling.

In Memory of Maureen Ann Smith and Marcus Armstrong Mr B Smith sent a donation of £590, in lieu of floral tributes, for his late wife, Maureen Ann Smith. In Memory of Robert Smith Julia Smith took part in the CRY Heart of London Bridges Walk 2012 and raised £1,815.

In Memory of Rupert Spurling Sue, Cameron and Freya held a cake sale on Saturday 12 May 2012 in memory of Rupert Spurling and have raised £1,512.

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In Memory of Lee Philip Stables • Sharen Stables sent in a donation of £1,116 from the Derby Arms and their cycle ride in memory of Lee. Sharon Stables sent in a donation of £200 from • Mike McPhillips who took part in a Skydive.

In Memory of Shannon Taylor “I ran the Aberdeen Baker Hughes 10K Run on 20 May in memory of my sister, Shannon Taylor, who died on 24 January 2012. I completed the run in 1 hour 7 minutes 26 seconds which I am very proud of as I had never done anything like this before.” Jodie Taylor sent in a donation of £350.

In Memory of Kevin Stentaford Daniel Rands took part in the North Lincolnshire Half Marathon and raised £465.

In Memory of Vicki Taylor Ian Taylor sent in a donation of £1,567.65 in respect of the Tennis Bounceathon and Quiz.

In Memory of Vicky Stockton Julie Stockton sent in donations totalling of £745 in respect of her Trek in memory of Vicky.

• In Memory of Benjamin Stokes Zoe Stokes sent in a donation of £203 in respect of the 100 miles bike ride her boyfriend, Rob Merry, took part in on 12 May. In Memory of Ian Strange Patricia Strange sent in a donation of £100 to commemorate her son’s birthday on 10 May. Ian died aged 21 on New Year’s Eve 1998. In Memory of Cameron Strathie The Bank of Scotland sent in a matched giving donation of £895 in respect of Deborath Strathie cimbing Ben Nevis in April in memory of Cameron.

In Memory of Paul Sykes Tom Britton took part in the Virgin London Marathon 2012 and sent in further donations of £520, making a total raised of £3,575.30.

• • •

In Memory of Zoe Teale • Peter Teale forwarded a donation of £703.53 from the West Midlands Salvation Army Charity Concert held in memory of Zoe. • Lara Langston sent in a donation of £310.11 from the University of Exeter Swim Club. Julie Teale sent in a sponsorship donations of £3,174.30 from the Birmingham Canal Walk and City Walk on 20 May, making a total raised of £3,224.30. Peter Teale forwarded a donation of £973.55 from the Old Swinford Hospital School in respect of their “It’s a Knockout” event. Peter Teale sent in donations totalling £188.65; £41 from Dudley House, £35 from Prospect City Bands, £33.45 from Witley, £27 from Potter House and £52.20 loose money. Peter Teale forwarded a donation of £150.43 on behalf of the European Youth Music Group.

In Memory of Dale Tennent-Butler • Angela Tennent-Butler sent in donations totalling £339; £100 from Ronnie Squibb and further donations amounting to £239 which represent offline donations for the skydive by Deborah Goodwin. • Alan George, George Hale, Deborah Goodwin and Karl Griggs took part in a skydive in memory of Dale and raised £1,000.

In Memory of Hannah Taylor Charles Bull sent in a donation of £120.95 from the charity boxes in the two Homecraft Shop premises.

In Memory of Keith Taylor “We recently organised a veterans football tournament in memory of a team mate, Keith Taylor, who died from an as yet unexplained heart attack, aged just 38. We had all played alongside Keith over many years for Bluntisham Rangers Football Club and were all shellshocked by his sudden death.” Cameron de Silva sent in a donation of £550 in memory of Keith.

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• Angela Tennent-Butler sent in a donation of £512 in respect

of Karl Griggs’ skydive. “As part of a series of charity events in memory of Dale Butler and to raise awareness of heart conditions, a group of five

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took part in a tandem sky on Sunday 13 May. The Skydive for CRY 5: Deborah Goodwin, Alan George, David Oates, George Hale and Karl Griggs will take to the skies at altitudes of up to 13,000 feet and on exit from the aeroplane will travel at speeds of up to 120 mph!!

The 5 were motivated to jump for the charity because their friend Angela Tennent-Butler lost her son Dale to SADS in December 2009. To further their cause, the 5’s friend Seamus Byrne, of Abbots Langley is currently awaiting a heart transplant. Although in his forties, had heart screening been available when he was younger then he may not be dependent on the ventricular assist device (VAD) that is keeping him alive and well.” Angela Byrne.

In Memory of Dean Thomas Kelly Reynolds-Lewis took part in a tandem skydive and raised £450. In Memory of Gareth Llywelyn Thomas Anne and Trefor Thomas took part in the CRY Heart of London Bridges Walk 2012 and raised £422.

In Memory of Jack Thomas • Sian Tothill, MotoNovo Finance, sent in a donation of £1,000. • Sara Williams forwarded a donation of £100 from Steven James who took part in a skydive in memory of Jack. Dave & Jan Norris • sent in a donation of £3,156.28 raised at the London Open Taekwondo Championships, held at the Guildford Spectrum on 8 July. • “My name is Emily Brown and I am 16 years of age. On 12 February this year I lost my amazing boyfriend Jack Thomas to unknown causes. His family discovered CRY soon after he passed away and decided that it was such a wonderful charity that we should start a fund under Jack’s name, so we could eventually set up heart screening in the area in which I live. Since then, his family, friends and I Emily and Zoe at the prom have been fundraising for

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CRY. Many events have been organised, but I felt the need to get my school involved as so many people in my school were close to Jack. I organised a collection to be put in place at our end of school prom on 28 June and we managed to raise £150 for CRY and Jack.” Emily Brown. “On Sunday 17 June I went to Swansea • Airfield, South Wales. It was a glorious day, the sky was blue and the sun was shining. I was slightly nervous of the fact that I was about to jump out of a plane at 13,000 ft. I was raising money for CRY in memory of my son, Jack Thomas, who fell asleep on 12 February 2012, at the age of 15. Jack was sat with his girlfriend on the sofa laughing and pulling faces at her as she was taking photographs of him. All of a sudden Jack went limp and unresponsive. His heart had stopped beating. Despite the efforts of the Paramedics and staff at the Royal Gwent Hospital, Jack sadly passed away. Jack had never been ill and was a fit, healthy and intelligent young man who had just won an academic scholarship at Cardiff Sixth Form College where he planned to study Biology, Chemistry, Maths and Double Maths. Jack was a Second Dan in Taekwondo and had travelled to Europe and all around the UK representing Wales in competitions. Jack first became British Champion at the age of 8 and had won over 150 medals, most of which were Gold. There were six of us altogether doing the tandem skydive, two of which were female. The girls were Lauren Stone- who is 17 years old and one of Jack’s best friends and Taekwondo sparring partner - and myself, June Thomas, Jack’s mother. The four men were Jamie Davis, Jack’s cousin; Steve James and Andy Withers, who trained with Jack at Taedwondo Wales; and Dave Phillips who is the father of Bethan Phillips, who also trained with Jack at Taekwondo Wales. Jack was planning to do a skydive in October with Lauren for her 18th Birthday. Lauren, Dave and Andy were the first to go up in the plane. There were a number of friends and family at the airfield all there to give us support. As we all looked up at the sky we could see three little dots coming towards us and it wasn’t long before we realised that it was them falling through the sky. Everyone started cheering and within no time at all they had all landed safely. Lauren and Dave were very excited and wanted to go up again. Andy, well that was a different story. Andy is ‘scared stiff’ of heights and it took everything he had to go through with the jump. I knew he would go through with

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Our it as he was doing it for Jack. When he walked through the door I gave him a hug and told him how proud I was of him. I asked Andy if he would do it again and without hesitation he replied ‘No’. Everyone in the room burst into laughter. It was then my turn, along with Jamie and Steve. I can honestly say for a person who does not like taking off or landing in an aeroplane I was not nervous. As my instructor tapped me on the shoulder we shuffled towards the door; I was calm and before I knew if I was falling through the sky at 120 mph. All the way down I kept shouting ‘this is for you Jack, this is for you.’ We all landed safely and wanted to go straight back up. It was fantastic and I know Jack would have loved it. Jack was a loving son and brother and we miss him dearly and don’t think we will ever come to terms with losing our handsome boy. He will remain in our hearts and thoughts forever.” June Thomas sent in a donation of £1,586 from the skydives, making a total raised of £2,628.

Fundraisers

In Memory of Christian Thunhurst John Thunhurst sent in a donation of £500 in respect of the Golf Day in memory of Christian. “16 intrepid golfers braved the wind and enjoyed the sunshine at Wycombe Heights on 26 May for the annual Christian Thunhurst Memorial Golf Tournament and were sent off by his 5 year-old son Dominic, who then went to join other offspring and parents at a nearby activity farm. The two groups reunited in the afternoon for a reviving BBQ attended by 29 adults and 36 children. It was a great day brilliantly organised and hosted, and has produced a £500 donation to CRY funds.” John Thunhurst.

In Memory of Scott Thurlow Cathryn Simpson, Chris Thurlow, Marcelle Thurlow, Michael Thurlow and Wendy Thurlow took part in the CRY Heart of London Bridges Walk 2012 and raised £300. In Memory of James Todd Ms L Todd, Rocket Medical Plc, sent in a donation of £200 from Mr B Carr, on behalf of Caztec Electrical Contractors.

• “On 26 May Jayne Newman-Lomax and myself of Caerphilly County Borough Council organised a fundraising evening at the Council’s Social Club, Ty Islyn, Pontllanfraith. I assisted in selling tickets for the evening and also raffle tickets to help raise money for the fund. Colleagues of ours were very kind in donating items for us to raffle and were also generous in purchasing raffle tickets on the night. In additon to the raffle, Kenyon Williams of CCBC and his band ‘The Highway Star’ were very kind and gave up their time to perform for us on the evening. All in all it was a very successful evening and we are pleased to enclose a cheque for £654 which is the total money raised on the evening.” Deb Holley. In Memory of William James Thomson Anne Lowther sent in a donation of £754 which was raised by her cousin, Mark McFern and four of his colleagues from Dumfries & Galloway Constabulary, who ran the Stranraer Half Marathon on Saturday 2 June. She also enclosed £100 which was collected in memory of her mum’s friend, Mrs Julia Cheetham, who passed away recently. Mrs Cheetham’s step daughter, Lady Ann Pilling, kindly donated this to CRY.” Shirley Wort.

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In Memory of James Turner Alison Turner took part in the Great Limerick Run and raised £1,028. In Memory of Neil Walden Hannah Armstrong, Andrea Chappell, Steven Connor, Zoe Connor, Rachel Curry, Sarah Farrell, Harriet Glover, Edward Hickey, Jo Hickman, Bazen Inquai, Anna Jackson, James Jackson, Linda Jackson, Victoria Jones, Ben King, Jane King, Tony King, Mark Pentney, Pam Pentney, Emma Philip, William Phizacklea, Danny Spencer, Louise Spencer, Amanda Stephens, Chris Stephens, Peter Walden, Rosalind Walden, Ruth Wassermann and Daniel Watson took part in the CRY Heart of London Bridges Walk 2012. To date, £207 has been raised. In Memory of Thomas Wall • Alastair Ward Booth raised a final amount of £1,400 in respect of the London Santa Run 2011. Louis-Joseph Tarrant-Cunin took part in the London Santa • Run 2011 and raised £755.

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In Memory of Colin Wallace Wall We have received a funeral donation of £185, in lieu of floral tributes, for the late Colin Wallace Wall. In Memory of Alex Watley Alison Hyde took part in the BUPA 10K and raised £165.

In Memory of Lily Webster • Ace INA Services UK Limited sent in a donation of £4,960. • Lorraine Anderson, Freya Bamford, Rhian Bamford,Barry Baxter, Dionne Baxter, Rachel Bergstrom, Daniel Booth, Cassie Bradford, Nick Cavill, Daniel Carr, John Cushway, Sophie Cushway, Suzanne Cushway, Lesley Dingli, Jayne Elliott, Emma Farnish, Hollie Farrow, Alexander Fellingham, Amanda Fellingham, Luke Fellingham, Mark Fellingham, Sandra Garner, Kurt Goatham, Sara Green, Caitlin Haynes, Bethany Jane Henson Mendez, Carol Holmes, Danielle Jarvis, Kelly-Lee Jarvis, Danny King, Georgina Lambert, Grace Lambert, William Lambert, Jane Little, Adrian Luscombe–Whyte, Nigel Luscombe–Whyte, Heather Marchant, Stuart Martin, Kim Moss, Callum Padmore, Sam Paterson, Jane Pearson, Karen Pinn, Becky Presland, Delia Prior, Eve Randall, Jay Reece, Kate Rigden, Martin Rigden, Gordon Salt, Jenni Salt, Katie Salt, Kieran Salt, Rebbecca Salt, Rhys Salt, Robbie Salt, Stella Sharman, Mrs Clare Sims, Adam Smith, Angela Smith, Gaby Smith, Helen Smith, Mark Smith, Laura Spink, Ryan Stewart, Bethan Stott, Lynn Studd, Claire Thompson, Jack Webster, Melanie Webster, Richard Webster, Sammie Wells, Ellen Welsh, Ruth Welsh, Ben Whyte, Lois Wilkes and Olivia Zarkos-Smith took part in the CRY Heart of London Bridges Walk 2012. To date, £2,227 has been raised.

In Memory of Matthew Wilkins Michael Wilkins sent in donations totalling £306.40, in lieu of floral tributes, in memory of his mother, Margaret Wilkins, who sadly passed away on 31 March. In Memory of Sam Wilkinson Stephen James-German took part in the Virgin London Marathon 2012 and sent in further donations of £1,218.75, making a total raised of £1,658.75. In Memory of David Williams Sue Williams sent in a donation of £1,700 from Mike and Lyndsay Armitage, at the Lion Brewery Pub, from their fundraising Ash Music Festival.

In Memory of Margaret Williams “I recently held an event to celebrate my retirement as a primary school teacher in Cynlais Primary School, Ystradgynlais, Swansea. I decided to charter a river barge called the Black Prince and sailed out of Swansea Marina and up the River Tawe as far as the Swansea City Football Stadium called the Liberty Stadium. I asked all my guests for a donation to your charity. I lost my wife suddenly to a cardiac arrest in 2007 and have two children who have been screened by yourselves in Pontypridd, South Wales. Since losing my lovely wife so suddenly and tragically I have been very aware of the need to have young people regularly screened and view your charity as providing a very important role.” Huw Williams sent in a donation of £183 in memory of his wife, Margaret.

In Memory of James Whittle and Dale Tennent-Butler We have received a funeral donation of £545, in lieu of floral tributes, in memory of the late James Whittle. In Memory of Stewart Whittle and Dale Tennent-Butler “I enclose a donation of £750 for CRY from the partners and staff of Gardiner & Theobald LLP. This is in memory of Stewart Whittle, who sadly died on 7 May. Stewart was a Partner and long standing member of the firm. CRY was very dear to his heart and the family requested that all donations should be made to the Dale Tennent Butler Memorial Fund.” SJM Jenkins, Gardiner & Theobald LLP. In Memory of Neil Wickers • Bill and Irene recently celebrated their Golden Wedding anniversary and held a family get together. They requested a donation in lieu of presents and raised £455. Irene Wickers sent in a donation of £155 from • the Two Gates Bowling Club.

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In Memory of Lee Wilson “I enclose a cheque for £130 raised from donations in lieu of presents at a friend’s Golden Wedding Anniversary. She decided to donate to CRY as my son Lee died at the age of 19 from SADS.” Carole Wilson. In Memory of Nathan Wilson Shelley Magill has forwarded a donation of £300, in respect of Scott Macmillan who took part in the Belfast Marathon in memory of Nathan.

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broke through (a rare event here). However the last 3 miles was a little punishing! My official course time was 1:49:30, a full 30 seconds ahead of my personal target and I finished 1661st overall, 291st in my category. Not sure what they are trying to say here!!

In Memory of Rianna Wingett Nikki May took part in the Virgin London Marathon 2012 and sent in further donations of £900, making a total raised of £2,593.01.

In Memory of James Wood • Pauline Wallace sent in a donation of £1,000. • “I am delighted to enclose a cheque for £277.72. This money was raised at the Broxbourne Tennis Club’s annual tournament held in memory of James. The competition was held on Sunday 22 April. Despite the weather taking the normal course of wind and rain, 16 couples, consisting of a parent and child, braved the elements. We also put on refreshments for those taking part in the event and any spectators. It is a real fun day, encouraging children to play with their parents and this really reflects the fun James used to have whilst he was a member of the Club.” Gill Wood. In

Memory

Fundraisers

I chose your charity in memory of a family friend, Sam Michael Wright, who collapsed and died suddenly last December, aged just 19 years.” Mick Conway.

of

Julian Wort

• Shirley Wort sent in donations totalling £113.01; £63.01 from collection boxes at the Kingfisher takewaway and Chung Ying takeaway and £50 from Asda from the Community Life Fundraising Scheme. • Shirley Wort sent in a donation of £200 from the customers and staff of the Packhorse Pub, Frome who recently held a Summer Draw in memory of Julian. In Memory of Sam Wright • Natalie Mart sent in a donation of £164 in respect of Nick Bull who ran the Derby 10K in April. • The school council of Lawn Primary School, Derby, sent in a donation of £200 in memory of Sam, who was a pupil at the school. • Luke Earle and Danielle West took part in the CRY Heart of London Bridges Walk 2012 and raised £146. • Kevin Wright sent in a donation of £200. • Mick Conway took part in the Edinburgh Marathon and raised £105.

Mick Conway with loyal supporters, daughters Amelia (right) and Louisa (left)

• Lynwen Davison sent in a donation of £110 in respect of fundraising held at the Woodlands School in memory of Sam.

• “I am pleased to enclose a cheque for £7,382.86 in memory of our son Sam Wright who tragically passed away on 11 December 2011 aged 19 from SADS. Dani West, a friend of Sam’s, was our main fundraising organiser along with his girlfriend Izzy Davison, ourselves and many other friends. We held a charity fundraising day on 14 April at Woodlands School where they were once pupils. The day was very successful after lots of planning and commitment by family and friends coming together to show their support in memory of Sam” Elaine and Kevin Wright.

“I’m pleased to report that all went well during last weeks Edinburgh half marathon. Fortunately, the 08:00 start time meant that we were nearly half way around before the sun

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“On Saturday 14 April 2012, a whole community came together to celebrate the life of Sam Wright. Organised by friends and family of Sam, a craft fair at Woodlands School in Allestree, Derby raised over £7,000.

General Fundraising • “The 2nd St Albans Rainbows raised some funds for CRY by holding a sponsored silence, which some girls found a real challenge!” Mrs Morag Puri, Guider, sent in a donation of £100.

• Ms S Agnew and Mr N Rocks sent in a donation of £100 in lieu of wedding favours.

• Thomas Ainsworth raised £172 in respect of the Liverpool Half Marathon.

• Andrea Lunn, Archbishop Sentamu Academy, sent in a donation of £100.76.

We had over 40 stalls selling goods such as cakes, jewellery, toys, clothes, beauty products, books, cards and many more. We had a number of beauty treatments running throughout the day including reflexology, massages and nail painting, as well as entertainment in the form of belly dancing and a BMX demonstration. On top of all this we had around 10 different games and activities for all ages to get involved, from face painting to skittles, and even a ‘Sponge the Teacher’ game, kindly run by volunteer teachers from the school.

• “We are pleased to enclose a cheque for £504.05 which was the profit from our Young Enterprise company. We decided to donate to CRY because a few years ago the brother of one of our close school friends suffered a cardiac arrest whilst rowing and CRY was very helpful in supporting him and his family.” Lavinia Armfield.

• Mel Atkinson sent in a sponsorship donation of ‘£100 from her employer, Mitchells & Butlers in respect of the Kilimanjaro Trek.” Mel Atkinson.

• Barclays Bank sent in a CAF donation of £750 in respect of Clare Sinclair.

• Tom Barras took part in the London to Brighton Cycle ride on 31 October 2011 and raised £250.

• Karrie Bassett took part in the BUPA 10k on Sunday 27 May and raised £191.

We held a raffle for which we sold over 2,500 tickets and advertised top prizes (iPad 2, signed Red Bull F1 hat, signed Derby County Merchandise) through local magazines, newspapers, radio stations and over the internet. Overall the event was a huge success and we had the pleasure of welcoming BBC East Midlands News Reporter James Roberson to run a story about it. We are hoping to make this an annual event in order to continue raising money and awareness for CRY.” Dani West.

• Eileen Batchelor and Joy Jarvis took part in the CRY Heart of London Bridges Walk 2012 and raised £264.

• Martin Bates sent in a donation of £100 in respect of the CRY Heart of London Bridges Walk 2012.

• John Battle took part in the Virgin London Marathon 2012 and sent in further donations of £491, making a total raised of £2,583.

• The Beacon School, Banstead, sent in a donation of £230 after they pubished the ‘Cupid’s Arrow Booklet’ containing Valentine messages which the students sent to each other.

• The Belper Nursing Cup Charity Competition took place on

64 • CRY update • Issue 58

23 May. CRY volunteer Dani West accepted a donation of £500 at the Welcome Tavern, Derbyshire, on behalf of CRY. “The presentation of cheques to the three nominated charities was made last week at the headquarters of Belper United, final winners of this year’s Belper Nursing Cup Charity Competition. Representing CRY, Dani West expressed

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General Fundraising thanks for the £500 donation to their funds. Dani lost a good friend to cardiac arrest last year.

• Bolton Wanderers FC Former Players Association invited CRY Representative Dionne Young to collect a cheque for £250 at a presentation evening on 6 June.

John Edwards, Chairman of the Belper Nursing Cup Charity Competition, made the presentations, thanking all Clubs who participated in this year’s Competition and who helped to raise the funds donated. He also thanked Dave and Liza Poplar of the Welcome Tavern, which is the headquarters of Belper United, winners of the Nursing Cup 2012, and where the presentation was held.” Vickie Newey.

• Patricia Brough sent in a donation of £295 which was raised in lieu of presents on the occasion of the 100th birthday celebration for her aunt, Mrs Emily Bowyer.

• Andrew Brown took part in the Virgin London Marathon 2012 and sent in further donations of £366.20, making a total raised of £2,637.81.

• Bridgeway Consulting Limited, Nottingham, held a Summer Party and sent in a donation of £405.60.

• Ian Bruce raised £585 in respect of the Paris Marathon. • The Bulldog Trust sent in a donation of £250. The winning team captain accepting the Belper Nursing Cup from our town mayor, with our chairman, John Edwards, in attendance, and Dani West holding the trophy at the cheque presentation evening

• Mathew Callaghan sent in a donation of £485 in respect of student Aisling Bassett’s skydive.

• Luis Castro and Gabriella Olmos took part in a tandem skydive, and raised £125.

• Jeff Blackett took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £2,225.

• Richard Dean, Caterham & District Round Table Charitable

• The Blanchard Foundation sent in donation of £370. Kerstin

Trust Fund, sent in a donation of £500 from their Charity Firework display held in November 2011.

Menday nominated CRY for this donation.

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CRY update • Issue 58 • 65


Our

Fundraisers

• “We read about the excellent work you’re doing to try and monitor and control cardiac events in young people and were inspired to make our termly donation to you of our library fines, which we always donate to charity.” Mary Olive, Librarian, Charterhouse Library, sent in a donation of £489.80.

• The year 9 students at Cleeve School, Cheltenham were involved in various charity challenge activities during the year and sent in a donation of £135.62.

• “Our club, Colchester and Tendring Athletic Club, recently helped to organise the Colchester 10K road run, together with the Colchester Rotary Club.” John Hyland, Senior Athletic Coach, sent in a donation of £100.

• Graham Thornton, Rotary club of Colchester Trinity, sent in a donation of £100 from the Colchester Trinity 10K Charity Race on 13 May.

• “The Community Café at St Dunstan’s is a community based project run from our village church and staffed entirely by volunteers. Through careful housekeeping the volunteers have been able to save small amounts of money over and above that needed to cover expenses. Consequently, each volunteer has been asked to nominate a charity which he or she would like to sponsor for a one-off payment of £100. When the Community Café finds it can afford to make that payment, one of the chosen charities is selected. We are very pleased to be able to send CRY £100 under this scheme. One of our hard-working volunteers, who waits at tables once a month, is a particular supporter of your charity. She will be very pleased indeed to see that we have been able to support the important work that you do.” Sue Rolley, The Comminuty Café at St Dunstan’s, East Grinstead.

• Jonathan Cook took part in the Virgin London Marathon 2012 and sent in further donations of £581, making a total raised of £1,591.

• Greig Cosgrove completed the Edinburgh Half Marathon in May and raised £330.

• Keith Crichton raised £633.50 for his Premier Predicition event.

• William Nicol, Treasurer, Cumbrae Parish Church of Scotland, sent in a donation of £140 from a retiring offering.

• “My name is Claire Surgeoner and I am a member of Dalriada’s ‘World Aid Group’. Throughout the year we have been holding a series of fundriaising events in school, which our pupils have generously donated to. After reading about the valuable work that your charity undertakes, and hearing how you have helped so many people, we would like you to accept a donation from us of £350. We hope this helps

66 • CRY update • Issue 58

your charity to continue the inspirational work you are doing.” Claire Surgeoner, Secretary of World Aid Group, Dalriada School, Co Antrim.

• The students of Ighthan House, Dartford Grammar School for Girls, sent in a donation of £774.74 from their fundraising week. Also the students in 9K sent in a donation of £49.12 which is part of the school’s philanthropic collections.

• Mrs A Roberts, on behalf of Dartford Grammar School for Girls, sent in a donation of £156.83 which was raised during their weekly philanthropic collection.

• Gwyn Davies took part in the Marathon Des Sables and sent in additional sponsorship donations of £601.

• Warren Davies took part in the Bath Half Marathon and raised £284 for CRY.

• Rachel Davis took part in the Virgin London Marathon 2012 and sent in further donations of £1,465.50, making a total raised of £1,640.50.

• Carolyn Davison took part in the Virgin London Marathon 2012 and sent in further donations of £265.20, making a total raised of £1,915.

• Derby Homes chose CRY as their charity for 2012. Helen Samuel sent in a donation of £100.

• Dr J E Backhurst sent in a donation of £100 from the Diageo Foundation for CRY.

• Richard Doust took part in the BUPA 10K on Sunday 27 May and raised £225.

• Sean Dowd took part in the BUPA 10K and raised £401.35. • David and Patricia Dunston sent in a donation of £100. • Justin Elborough took part in the Brighton Marathon and raised £231.

• “This is a donation raised by the school community by holding a ‘Run’ from Blackheath to the School. We are very pleased to be able to help CRY in this way.” Vic Broncz, Charities Coordinator, Eltham College, sent in a donation of £2,000.

• Nick Elwig took part in the BUPA 10K and sent in an additional sponsorship donation of £304, making a total raised of £859.

• Linder Myers Solicitors, sent in a donation of £500 from the Enid Slater Charitable Trust.

• Chris Sykes, Godalming & Villages Lions Club, sent in a donation of £150.

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Our

Fundraisers

the Year and sent in a donation of £103.46.

a meal at Henry’s Oriental. With thanks to Thornbury Golf course agreeing to charge a discounted rate we had a total of 22 golfers on the day. We had various competitions such as nearest the pin and the longest drive while on the course and had prizes (donated by local businesses) for anyone who took part. With special thanks to Abraham’s Jewellers who donated a perpetual trophy and have kindly offered to engrave it with the winners’ names each year. As this was a great success we have decided to make this an annual event. The total raised on this one day was £585.09. The reason behind my choice to support this wonderful charity is that I myself have been affected by a sudden cardiac arrest. At 28, whilst playing in a weekly five-a-side football match I sudddenly collapsed. Thankfully my team mate Dave Ford who was trained in first aid by the territorial army performed CPR and saved my life. I have since been fitted with an ICD, and remain undiagnosed. The charity days are a great way to raise awareness as well as money for this worthy cause!” Gary Isles sent in a donation of £1638.09.

• Susan Harnetty sent in a donation of £200.

• Garry James took part in the Virgin London Marathon 2012

• The Ladies Fundraising Committee ‘Papayia Eleousa’, Greek Orthodox Cathedral of the Dormition of Theoktokos & St Andreas, Birmingham, sent in a donation of £200.

• “Please find enclosed a donation of £779.74 that has been raised by donations from the employees at our Croydon and London office, on our recent charity fundriasing event.” Helen Koukoulis, Groupama Insurance Co. Ltd.

• Amanda Williams, GSH Group, sent in a donation of £100. • Lynda Hall took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £308.

• Simon Hall took part in the Paddock Wood Half Marathon and raised £142.50.

• Hankley Common Golf Club chose CRY as their Charity of

• Susan Harnetty took part in the CRY Heart of London Bridges Walk 2012 and raised £270.

• Margaret Rawding sent in a donation of £5,000 from the late Lawrence Harris, a Solicitor who practiced in Manchester for 73 years, who passed away in 2011 in his 101st year. During his lifetime he was a great supporter of charitable and needy causes.

• Shaun Hopper took part in the Virgin London Marathon 2012 and sent in further donations of £1,333, making a total raised of £1,750.

• Lauren-Emily Hughes, Clare Pepper, Michael Crotty, Natalie Sterett and Martin Pepper took part in the CRY Heart of London Bridges Walk 2012 and raised £885.50. • “Parents and staff from Hornsby House School collected £1,082.92 during the charity concert and would like to support CRY.” Paulina Hofmajster, Hornsby House School.

• The Inner Wheel Club of Basildon sent in donations totalling of £950. • “We have recently been fundraising for CRY. The first donation was by Hanson UK who selected CRY as the charity of the month after my wife nominated it. She raised money by organising a lunch time Bingo game with prizes, a raffle where local businesses donated various gifts, as well as collecting a £1 fee for ‘dress down Friday’. From these events £553 was raised. Hanson agreed to charity match the sum up to £500 giving a total of £1,053. The second cheque was raised by organising a charity Golf Day, followed by

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and sent in further donations of £245, making a total raised of £1,830.

• Jenna Baxter, Brightleaf Events, sent in a donation of £776.04 which was raised by the students of Jewel and Esk College.

• Anthony Joannides sent in a donation of £210 in respect of the CRY Heart of London Bridges Walk 2012.

• Kate Johnson took part in the BUPA 10k and sent in an additional sponsorship donation of £127, making a total raised of £511.

• Chris Jordan took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £2,284.12.

• Adrian Jose took part in a skydive and raised £146.

• Craig Kennedy took part in the Meadows Half Marathon on 4 March and raised £370.

• Chantelle Simper, The Law Debenture Pension Trust Corporation Plc, sent in a donation of £100 on behalf of Bob Scott.

• Jackie Leonard (now past Lady Captain) of the Walton Heath Golf Club, sent in a donation of £2,025.53 which was raised during her year as Lady Captain.

• Mary Holt Goldsmith, Bursar, Loose Infant School, Kent, sent in a donation of £190 which represents the proceeds from the Year One Easter production.

CRY update • Issue 58 • 67


Our

Fundraisers

• LSA Technology & Performing Arts College sent in a donation of £100.

• Jayesh Makan took part in the BUPA 10K and raised £585. • Gareth Markland completed the Deagu Marathon, South Korea and raised £120.

• Emma Martin sent in a sponsorship donation of £108 in respect of the Belfast Marathon. Her friend, Heather McAllister also took part in the event.

• Karen Mason took part in the Two Castles 10K Run and raised £164. • The residents of Mead Court hold a monthly raffle and sent in a donation of £110. • Barbara Meineck sent in a donation of £100. • James, Ethel and Stephen Merry took part in the CRY Heart of London Bridges Walk 2012 and raised £150.

• Alex and Pauline Miller celebrated their Diamond Wedding Anniversary on 21 April and sent in a donation of £180 in lieu of gifts.

• Mills & Reeve LLP sent in a donation of £340 from their office Charitable Trust.

• Jacqui McKell completed the Helensburgh 10K and raised £910.

• Samantha McNaughton took part in the CRY Heart of London Bridges Walk 2012 and raised £137.

• N Jones Charitable Trust sent in a donation of £100. • Newedge UK Financial Limited sent in a donation of £222.40

• Linda Wainwright, The Parish Church of St George the Martyr, Waterlooville, sent in a donation of £148.11 from a retiring collection after church services and a contribution from coffee mornings.

• Guy Parker took part in an independent run from Gigg Lane to Reebok Stadium on 3 June and raised £301.

• Eddie Partridge raised £150 in respect of the Newmarket Town Plate event.

• Eddie Partridge recently rode in a four mile charity horse race at Newmarket and raised £3,000.

• “Please find enclosed a cheque to the value of £107.51 which was collected and raised by the staff and partners at Penningtons Solicitors LLP following a Dress Down Day held at the end of April 2012.” Jennifer Henwood, Penningtons Solicitors LLP.

• Andrew Penny took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £2,157.89.

• David Phillips sent in a donation of £600 in respect of his skydive.

• John Powell, Ashley Holden and Rachel Carson sent in a donation of £205.

• Kathryn Rafferty took part in the Run Armagh 10K and raised £175.

• Dean Rawlinson took part in the Virgin London Marathon 2012 and sent in further donations of £100, making a total raised of £231.

• Margaret Rees sent in donations totalling £428.25 from knitting chicks, eggs, rabbits and other items for CRY.

in respect of the Book People.

• Amber Nicholls held a Pampered Chef Party and raised

• William Watt sent in a donation of £175 from the Ceilidh held by the Rotary Club in Arbroath.

£129.30.

• Eleanor Lamont, No 1 Inner Wheel, Inverness, sent in a donation of £150. • The staff at Northern Ireland Electricity Limited sent in a

• “My name is Andrew Martin and I play for Rottenrow Hockey Club in Glasgow. On Saturday 12 May our club held a ceilidh along with our sister club, Blue Sox Hockey Club, in aid of CRY. We managed to raise £1,000 for yourselves through ticket sales, a raffle and a silent auction.” Andrew Martin.

donation of £284.

• The Oundle School Chapel held a collection and sent in a donation of £422.75.

• Jeanne Pargeter sent in a donation of £100 from the Farm

• “The Student Workshop is an enirely student-led, departmental drama society at Royal Holloway, University of London. We aim to assist student’s development alongside their academic degree by putting on productions, professional workshops, Q&A sessions, and social events, amongst many

Women’s Club Luncheon.

68 • CRY update • Issue 58

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Our other activities.” Adam Penny, the Student Workshop, sent in a donation of £200 from one of their recent productions, after a sudden, very sad loss from their membership/student body.

• “Please find enclosed a cheque for £820.04. This is from a Red and Green Day we held at Royal Wootton Bassett Academy. We had a brilliant day raising money for a fantastic charity!” Ellie Taylor.

• Andrew Russell sent in a donation of £3,476.26 from the Dom Lilley Select -v- Birmingham City football match 2011.

• Santander, Milton Keynes, sent in a donation of £200 in respect of a dress down day.

• Bob Scott sent in donations totalling £1,361.08 from money raised during his time as Club Captain for Woodlands Manor Golf Club. This included £250.08 from whenever someone hits their ball out of bounds and they are invited to make a contribution, £200 from the international Challenge, ‘an annual event where a team from England takes on a team from around the world’ and £711 raised at the Captain’s Day on 21 July.

• Louise Sharkey raised £120.01 on her online fundraising page for CRY.

• Robert Simpson took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £1,939.95.

• Teresa Smith took part in a Sponsored Silence and raised £150.

• “I enclose a cheque for £888.17. The college council at St George’s is asked annually to choose two charities to support with some of the funds raised by the school over the course of the academic year. At our most recent meeting, more than 20 councillors between the ages of 11 and 18 were agreed that the work of CRY represents an extremely deserving cause. We are happy for our donation to be used on any of your current projects.” Cameron Henderson-Begg, Secretary of the College Council.

• Kim Shepherd, Hon. Treasurer St Mary’s Church, Dorset, sent in a donation of £210 which was raised the The Bridge Benefice group of churches at a Lent Luch in Sturminster Marshall, Dorset.

• Charlotte Stafford took part in the Virgin London Marathon 2012 and sent in further donations, making a total raised of £1,861.53.

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Fundraisers

• Stalmine St James’ Church PCC, Lancashire, sent in a donation of £250 from the Parochial Church Council.

• Adrian Stevens and Adrian Jose took part in a skydive on 14 April and sent in a donation of £793.50.

• Garry Stockley sent in a donation of £105. • Raimund Streitenberger took part in the Three Peaks Challenge and raised £202.

• Mr D Tailor sent in a donation for £226.28 in respect of the Bike 100 and Havoc up Scafell Pike events.

• Joseph Tanner, myheart member, took part in the CRY Heart of London Bridges Walk 2012 and raised £470.

• John Taylor took part in the BUPA 10K and raised £384. • R D Thomas sent in a donation of £750. • Donna Stanley, Thomas Franks Ltd, sent in a donation of £228 raised at a Cake Fete.

• Philip Thompson took part in the Liverpool Half Marathon and raised £435.

• Max Thompson took part in the Liverpool Half Marathon and raised £427.

• Daniel Thompson took part in the Liverpool Half Marathon and raised £550.

• “We recently held a scarecrow trail around our Derbyshire village and enclose a donation of £750 with our good wishes.” Kay Thornewill, Ticknall Scarecrow Committee.

• Eliza Kwong, Tottenham Hotspur Foundation, sent in a donation of £2,000 in respect of the Bolton Shirt Auction held in April.

• Tudor Capital Europe LLP sent in a match giving donation of £425.

• “My 23-year-old son had a cardiac arrest in June last year. Luckily, thanks to his brother knowing CPR and the support of his girlfriend, along with the expertise of the paramedics, he survived. With this in mind, I decided it would be the perfect opportunity to raise awareness of this problem and fundraise at the same time. I organised a cake sale and raffle on 30 March.” Mrs Janice Tuite sent in donations totalling of £790.

• David Morris, University College London Union, sent in a donation of £230 from the Chartiy Dodgeball Tournament in March.

CRY update • Issue 58 • 69


Our

Fundraisers

• James Brown, University of Derby, sent in a donation of

whole school, to raise awareness of our cause. To spread the

£1,485 in respect of the 8th annual Buxton to Derby Bike Ride.

(which we sent to them) on the school’s website and we

word even more, we asked the ICT staff to put up a message asked them to show the poster on the interactive noticeboard.

• Miss P Varela raised £215.

Moreover, because we wanted to reach out to people who were not only in our school, we created a fundraising page on your website and we posted it on our facebook and twitter accounts daily to ask people to contribute to this worthy cause and to raise awareness of CRY. During assembly, we also led a little presentation explaining what CRY was about.

All in all, we had great fun raising money for the charity; the 18 pupils in my form, aged 11-18, brought cakes in every day and they were extremely eager to sell them, extending the cake sale to their lunches, if all the cakes had not been sold. One of the girls even made delightful cupcakes (of which I hereby attach a picture) with CRY messages on them. We ended up raising £168 in 4 days through the cake sale and £215 through the fundraising page.

We are extremely proud of this outcome, since the staff and pupils at St Anselm’s and our friends and family are now more aware about CRY. Also, the amount raised is the highest amount a form has ever raised in our school and I know first hand that it could not have been for a greater cause!!

I wanted to share this with you as I am extremely proud of my form and I am grateful to them, all my friends and family who have supported me throughout this hard time and

“I am Patricia Varela, a teacher at St Anselm’s

have shown how much they care through their effort and

Roman

donations.” Patricia Varela.

Catholic

Secondary

School

in

Canterbury and I am also the form tutor of 10M at our school. Each week a form will do a fundraising event to raise money for a charity of their choice, however, half of the money raised will also go towards our house charity, which is Alzheimer. My boyfriend, aged 23 at the time, had a cardiac arrest on 13 June 2011, but thankfully he recovered and he’s leading a normal life again. After this painful event, we heard about CRY and since I have always wanted to raise money for your charity; now from 19th-23rd March it was my form’s charity week so I started talking to my form about your charity and they were quickly convinced that CRY would be our chosen charity. Two boys of my form have heart problems as well as a boy’s twin sister (who is in another form), so the pupils felt drawn towards this cause.

What we decided to do was to bake cakes, cookies, brownies etc. and to sell these during form time, which is between 12.05 and 12.35 every day (we know that this is unhealthy, but when eaten with measure a little treat will not be harmful and it is a good way to attract pupils’ attention). We also created a poster, made 100s of copies of it and hung them around the

70 • CRY update • Issue 58

• Giles Cook, W A Ellis LLP, sent in a donation of £100. • The pupils of the Wallace High School, Lisburn, sent in a donation of £251.19.

• Felicity Ward took part in a nine mile walk and raised £185.

• Beth Watson raised £645 in respect of the Brighton Marathon. • Hazel Watson, Tony Watson and Christine Marshall took part in the CRY Heart of London Bridges Walk 2012 and raised £110.

• Wellington College Belfast sent in a donation of £710. • Jack Welton raised £545 in respect of the London Mini Marathon 2012.

• “It is with pleasure that I enclose a cheque for £884.68 following the completion of a successful intra-service

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Raising Awareness football tournament from some of the staff at West Midlands Ambulance Service. The tournament was held on Sunday 15 July. It was a successful day where two groups of 6 teams played each other with the top four from each group playing in the CRY Cup, and the other four teams playing in the Fast Aid Black Country Shield. Also enclosed is a cheque for £40.50 from the sale of CRY merchandise”. Garry Parcell, Paramedic, West Midlands Ambulance Service NHS Trust.

• Verity Westcott took part in the Cambridge Half Marathon and raised £488.10.

• “We held a non-school uniform day, balloon race, stalls and a teachers vs. pupils race. Also my dad took cakes to site and people donated for them (always popular at 10 o’clock). This was a joint charity day which myself and the other Deputy Head pupil organised.” Murrie Kybird, Westley Middle School, Bury St Edmunds, sent in a donation of £230.89.

• Rebekah Whittaker completed the Greater Manchester Marathon and raised £278.

• “Please find enclosed a cheque for £140 which was raised by myself and Wayne’s sponsored Snowdon climb on 14 July. We had a great time climbing Snowdon despite awful weather, waterproofs were worn for all of the day! T-shirts were worn but were obviously covered, but by talking about your charity and spreading the word people have responded well.” Lynne Wildgoose.

in the

Media

• Lyndon Williams took part in the Virgin London Marathon 2012 and sent in further donations of £440, making a total raised of £2,308.64.

• James Wilson raised £445 on his online fundraising page. • “In January 2011 one of our students died suddenly after school whilst with his friends. As a consequence his friends and fellow students decided to raise money for your charity. At Windsor High School and Sixth Form the students and staff work very hard to raise money for charities that are close to our heart. This involved various methods, such as sponsored silences, cake sales and one group of students even did their own sponsored run. As such we managed to raise £640 for your charity. I hope it can be used to good effect to help in your aim to raise awareness of YSCD and SDS.” Mrs Leacy, Head of Stuart House, Windsor High School and Sixth Form, Halesowen.

• James Wright sent in a sponsorship donation of £100 in respect of Alex Prior and the Three Peaks Cycle Challenge.

• CRY supporter, Sam Crabb, collected a cheque for £200: “The Young Enterprise Team won the Somerset final and are at Bristol for the Regional final. They raised the funds by running a Summer Sports Camp and felt that CRY should be the main charity they helped.”

• “Please find enclosed a cheque for £350 from the Walton United 6th Annual Golf Day.” Mark Woods (Treasurer), Youngs Homes, Norwich.

Headline page index Page 72 Grieving bride in bike epic The Sun 07.07.12

Page 76 Football fun day raises cash for charities

Page 72 Grace’s race to tick off 23 achievements

Harwich & Manningtree Standard 25.05.12

Express & Star (Wolverhampton) 16.06.12

Page 76 Footballer’s family walk in his memory Dover Mercury 05.07.12

Page 72 Mum Carly backs heart screenings

Page 76 Friends rally in memory of Matt Lancashire Eve Post 27.07.12

Harwich & Manningtree Standard 15.06.12

Page 76 Radisson risk is worth it Sunderland Echo 09.05.12

Page 73 Climb in memory of Michael Pontefract & Casatleford Express 26.07.12

Page 77 Young are at risk of sudden death South Wales Echo 03.05.12

Page 73 Dog show for charity Express & Star (Wolverhampton) 22.08.12

Page 77 Couple add support to sudden death charity

Page 73 Horse show tribute is for Hannah Colchester Gazette 25.07.12

South Wales Evening Post 04.05.12

Page 74 Young winners give back to community Western Gazette 19.07.12

Page 77 Fiancee’s charity bike ride in memory of tragic Alex

Page 74 Charity match to be held in Jack’s memory The Bath Chronicle 17.05.12

Manchester Evening News 10.07.12

Page 74 Super slimmer saddles up for bike challenge Hull Daily Mail 23.08.12

Page 78 £30,000 raised in memory of tragic teenager Hull Daily Mail 13.06.12

Page 75 Family plans to honour tragic son by saving others’ lives

Page 78 100-mile relay tribute to sudden death victim Alex

Evening Chronicle (Newcastle upon Tyne) 05.06.12

Southern Daily Echo 25.06.12

Page 75 Family proud at Kasia knockabout Sunderland Echo 09.08.12

Page 78 Olympic torch fires Leon’s charity idea Derby Evening Telegraph 03.08.12

Page 75 Cricket match in Dale’s memory raises £1,800

Page 78 Plea for action over tragic early deaths

The Watford Observer 31.08.12

Express & Star (Wolverhampton) 11.08.12

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CRY update • Issue 58 • 71


Fundraising Events 2013 Please contact Ben or Cara on 01737 363222 or e-mail events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events in 2012 & 2013, visit www.c-r-y.org.uk/upcoming_events.htm All CRY participants in mass participation events that contact the CRY team (whether you have your ‘own place’ or a CRY charity place) will receive a fundraising pack containing sponsor forms, information, helpful tips and a t-shirt.

A few ideas... Virgin London Marathon 21 April 2013 Every year CRY has a number of guaranteed Golden Bond places for this event, however all places for 2013 are now full. If you have your own place and would like to run for CRY or already have a CRY place and would like to run in a CRY Heart Costume, please contact the CRY Fundraising team on 01737 363222 or email events@c-r-y.org.uk.

Just Walk 11 May 2013 Just Walk is an exciting charity sponsored walk for anyone wanting to fundraise. This walk is open to anyone who is keen to get their walking boots on and hike for CRY - you can choose either 10km, 20km, 40km or 60km routes - so something for everybody. This charity walk offers enthusiastic walkers the chance to experience a breathtaking charity walk over the picturesque South Downs in West Sussex. Now in its 7th year!

BUPA 10,000 27 May 2013 CRY has a number of charity places for this popular event and we also welcome any ‘own place’ runners who would like to run for CRY. Please contact events@c-r-y.org.uk to register your interest or for more information.

Kilimanjaro Trek 20-29 June 2013 Immerse yourself in the tranquillity of the jungle, spectacular wildlife and breathtaking glaciers - experience something that others will only ever dream of! If you are interested in taking part for CRY please email ben@c-r-y.org.uk.

CRY Heart of London Bridges Walk 7 July 2013 Join us on the 7th CRY Heart of London Bridges Walk to raise awareness and funds for CRY. The walk’s 8km (5 mile) route will start at Victoria Embankment Gardens and finish at Hays Galleria, near London Bridge. Please email events@c-r-y.org.uk if you would like to register your interest and we will advise you when registration opens.

RideLondon 100 3-4 August 2013 Hot on the heels of cycling’s amazing success at the London 2012 Games and Bradley Wiggins’ stellar achievement at the Tour de France, we are proud to be promoting London’s great new cycling challenge - RideLondon 100. Starting at The Queen Elizabeth Olympic Park, participants will cycle the roads across London and into Surrey, following the famous road race route of the 2012 Games, finishing 100 miles later on The Mall. They will be followed by some of the world’s greatest cyclists who will be taking part in RideLondon Classic, so riders must be able to finish this exciting new challenge in less than 9 hours. You can apply for your own place in the ballot and CRY also has a number of charity places. To find out more please email events@c-r-y.org.uk.

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Run to the Beat 8 September 2013 CRY hopes to have a number of guaranteed places for this event and also welcomes any ‘own place’ runners who would like to run for CRY. Please contact events@c-r-y.org.uk to apply for a place, or if you have your have your own place, for a runners’ pack

Great North Run 15 September 2013 CRY has a number of charity places for this event and we are also delighted to welcome any runners who would like to run for CRY and who are successful in the public ballot. Please send an email to events@c-r-y.org.uk if you are interested in a CRY charity place; are an ‘own place’ runner or would like to run in a CRY heart costume.

CRY Durham Riverside Walk 5 October 2013 The 4th CRY Durham Riverside Walk will start and finish at Durham Amateur Rowing Club. The 7km walk is in the beautiful Wear Valley, following the river, with views of the city and cathedral. Please e-mail events@c-r-y.org.uk if you are interested in taking part or would like to volunteer at this event. We will then notify you when registration opens.

Royal Parks Half Marathon 6 October 2013 If you are interested in this popular event, that has a route encompassing several of the picturesque royal parks of London, please contact cara@c-r-y.org.uk. We don’t have any charity places but would welcome any ‘own place’ runners who would like to run for CRY.

The Big Heart Bike Ride in Jordan 8-15 November 2013 The Big Heart Bike Ride is a very special and unique event - it is the first Open Challenge of its kind whereby everyone taking part will be raising funds for the heart charity of their choice. You can make a real difference in the fight against heart disease by signing up. It entails five days of consecutive cycling for a distance of 350km from Jerash to the beautiful city of Petra via the Dead Sea. For more information email events@c-r-y.org.uk.

CRY Awareness Week 23 November-1 December 2013 If you would like to be involved in CRY Awareness Week 2013 please e-mail ben@c-r-y.org.uk. As well as the opportunity to hold an awareness stand or event, we are looking forward to continuing the success of the first Great Cake Bake that formed part of the 2012 Awareness Week, by holding our second annual event on Friday 29th November and will have special packs to send out with hints and tips and other goodies.

Parachute Jumps Assorted dates For further details, please visit www.c-r-y.org.uk/parachute_Jump.htm

CRY update • Issue 58 • 79


Cardiac Risk in the Young Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other abnormalities leading to sudden arrhythmic death syndrome (SADS). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. CRY aims to reduce the frequency of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young. CRY believes cardiac screening should be accessible to all young

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people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. The Charity aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD. In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.c-r-y.org.uk/medical_conditions.htm

Our Patrons

The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our Charity. Current Patrons of CRY: Rob Andrew MBE, John Barrowman

Jeremy Bates, Ben Brown, Mark Carruthers, Clive Clarke, Mark Cox MBE, James Cracknell OBE, Brian Dooher, Nick Easter, Jonny Evans, Baroness Ilora Finlay, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Pat Jennings OBE KSG, Robert Jones MBE, Rob Key, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell MBE, Professor W J McKenna, Bill Neely, Lawrence Okoye, Phil Packer MBE, Sir Steve Redgrave CBE, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, Andrew Trimble, David Walliams, Matt Wells, Ray Wilkins MBE and Sir Clive Woodward OBE.

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.” To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm

Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support service, the CRY Centre for Cardiac Pathology (CRY CCP) at Royal Brompton Hospital, the CRY Centre for Inherited Cardiac Conditions and Sports Cardiology at St. George’s Hospital and the CRY myheart Network to support young people living with potentially lethal cardiac conditions. CRY has also required funding to support medical research into YSCD, to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth Whether you are carrying out your own activity or taking part in an organised event such as the Virgin London Marathon or the Bupa Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources.

To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm If you would like to join our fundraisers, CRY also offers a range of free fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events. For more information visit www.c-r-y.org.uk/free_fundraising_events.htm or contact the CRY office to request a fundraising ideas pack. There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to: www.c-r-y.org.uk/donate.htm All your help is greatly appreciated.

CRY is always extremely grateful for grants or donations from Trusts and Foundations. We would like to thank the following Trusts and Foundations for the very generous support they have given us: ABBA Trust • Albert Hunt Trust • Artie White Foundation • Aspen Insurance UK Charity Committee • Biggart Trust • The Celtic Charity Fund • Charlotte Marshall Charitable Trust • Sir Cliff Richard Charitable Trust • Edward Joseph Colclough Trust • Fitton Trust • The Freemasons’ Grand Charity • Gordon Fraser Charitable Trust • Gwyneth Forrester Trust • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • Malcolm Chick Charity • Miss W E Lawrence 1973 Settlement • Munro Charitable Trust • Muriel Edith Rickman Trust • Pharsalia Charitable Trust • The Sobell Foundation • Shuttlewood Clarke Foundation • Sir James Roll Charitable Trust • Sir Jules Thorn Charitable Trust • Tudor Foundation, Inc.

Profile for Cardiac Risk in the Young

CRY Update Magazine - Issue 58  

CRY’s quarterly update magazine with news and information about the charity and our supporters. Registered Charity 1050845. Some pages have...

CRY Update Magazine - Issue 58  

CRY’s quarterly update magazine with news and information about the charity and our supporters. Registered Charity 1050845. Some pages have...