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Cardiac Risk in the Young News and Events | Raising Awareness | Our Fundraisers

Update 61

| May to August 2013

In this

Newsletter CRY Golf Day 2013

|

18

West Postcard Launch

|

19

Song for Stevie

|

20

CRY Heart of London Bridges Walk 2013

| 21 - 23

Prudential RideLondon-Surrey 2013

| 24 - 27

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our Websites: www.c-r-y.org.uk www.sads.org.uk

CRY_UK

CardiacRiskintheYoung


CRY Update 61 May to August 2013 Editor Alison Cox MBE Chief Executive

Inside Update 61

Assistant Editor James Slade Newsletter Coordinator james@c-r-y.org.uk

Meet our County Representatives

Contributors Dr Steve Cox

Deputy Chief Executive

Mair Shepherd

Communications Officer

Alice Burrell

Acting Medical Secretary to Dr Mary Sheppard

Jeff Markham

CRY supporter

Rebecca Zouvani Fundraising Manager Head office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

This magazine is printed on chlorine-free paper taken from a sustainable source using vegetable-based inks.

News from the Chief Executive

2

4-9

Other CRY News

10-12

Newsletter from the Deputy Chief Executive

13-14

CRY Screening Report

15

Report from the CRY Centre for Cardiac Pathology (CRY CCP)

16

Research News

17-18

CRY Golf Day 2013

18

West Postcard Launch

19

Song for Stevie

20

CRY Heart of London Bridges Walk 2013

21-23

Prudential RideLondon-Surrey 100

24-27

Our Fundraisers

28-103

Raising Awareness in the Media

104-121

Fundraising Events 2014

120-122

On the cover – for more details regarding the events shown, please turn to the corresponding page references below. Images are listed clockwise from top left: • • • • • • • • • • • •

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CRY Heart of London Bridges Walk 2013, page 21-23 University of Nottingham fundraising in memory of Alex Reid, page 75-76 CRY Patron Matt Wells, Prudential RideLondon-Surrey 100, page 24-27 Miccoli perform at ‘Song for Stevie’ in memory of Stevie Jivani, page 20 CRY Patrons John Inverdale and Simon Halliday, Moreton Hall School fundraiser, page 99-100 Mount Toubkal Trek in memory of Emma Broad, page 33-34 an McCurdie and Paul Chambers completed the Mongol Rally, page 96-97 British Cardiovascular Society (BCS) Conference, page 17-18 Dave’s Big Bike Ride from Land’s End to John O’Groats in memory of Jack Boulton, page 32 Rome Marathon 2013, Tom Whittle ran in memory of Phil Standing and Kian Guerzoni ran in memory of Harry Faulkner, pages 82 and 44-45 Olympic Torch Bearer Leon Taylor and Dani West, Woodlands School fundraiser in memory of Sam Wright, page 91-92 Roger Maddams organised the Tour de Kent 2013 in memory of Jack Maddams, page 63-64 CRY Patron Alison Waters, Surbiton High School ‘Hockathon’, page 34-35

Submission guidelines We only include activities in the ‘Our Fundraisers’ section that raise £100 or more. If you would like to supply a write-up or photos for any fundraising activities that you have taken part in, please email the assistant editor at james@c-r-y.org.uk. Entries appear in the ‘Our Fundraisers’ section according to when CRY sends official receipt of monies raised. Articles may only appear in the ‘Raising Awareness in the Media’ section if we have permission from the publishers to reproduce the article. Images of CRY Patrons and Members of Parliament throughout have been highlighted in red. No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

Issue 61 | May to August 2013


Meet Our County Representatives been for 18 years, in Ormskirk, Lancashire. In that time, we have had the miracle that is our third child, Michael, as well as another year of living in South Africa in between.

Maureen Marshall and Hayley Crosbie (née Marshall) County Representatives for Lancashire

It was after the sudden death of our son John in 1995 that we became the first family to launch CRY’s campaign for screening. John began walking from the age of 7 months, and from that day to the day he died, football was his life! He was an extremely talented elite athlete. He excelled in everything he did, whether it was football, cricket, or running - winning a silver medal for the 800m All England Championships for Dorset County. John was destined to be a top sportsman.

My husband John and I had our eldest son, John, in Liverpool. We decided to emigrate to South Africa when our son was 3 years of age.

When he was 14, John was picked to go to Lilleshall, the FA National School of Excellence. He proceeded to play for England Schoolboys and was also capped twice for England under-16’s. Being one of the top under-16 footballers in the country, John was referred to as England’s jewel in the crown. I think this had something to do with his left foot! After leaving Bournemouth and Portsmouth FC, he then signed for Everton FC in April 1995, much to the shock of our Scouse and Liverpool supporting family!

After 3 and a half years there, we moved back to Bournemouth and had our daughter Hayley. We had 10 wonderful years by the seaside, then a big decision in both John’s work life and young John’s football life led us back up north to live where we are now, and have

With the world at his feet, and after two years at the FA National School, John went on holiday with some of the other lads from Lilleshall. The day John arrived home he was so happy; he was due to start work for Everton just days later. He lay on the couch

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with his sister Hayley to rest and watch TV and it was only moments later when Hayley came running to say that John was “making funny noises”. That was it – as simple as that - our lovely John had suddenly died at the age of 16 of cardiomyopathy. Professor McKenna contacted us with Alison’s number and that is when we started to campaign for CRY. We then found out that if John had lived just another 10 days, Everton were being screened and his condition would have been identified. We knew then that something had to be done to make people aware of these heart conditions. CRY changed our lives as it gave us answers to John’s death and gave us the opportunity to try and stop others going through what we had. CRY are doing an outstanding job of raising awareness and promoting screenings, and let’s hope that this success continues for all their hard work over the years; we wouldn’t be as far as we are without their continuous time and dedication.

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News from the Chief Executive and BBC News Points. For more information see the West Postcard Launch article or visit www.c-r-y.org.uk/ west_postcard_launch_2013.html

Alison Cox (MBE) CRY Founder & Chief Executive

May BBC South TV interview at Millbank May 2 I was interviewed for BBC South after Ella Prince suffered a heart attack aged 13, from which she recovered. Ella was diagnosed with an inherited heart defect aged 2 months old, and had undergone several operations including heart valve replacement surgery. Ella returned to school 2 weeks after the attack and she continues to manage her condition at home.

My interview with Radio Gloucestershire generated interest at Imjin Barracks with an invitation to raise awareness at their upcoming ‘Health and Fitness Day’. Imjin Barracks is home to the Allied Rapid Reaction Corps and the Service Personnel and Veterans Agency, so is a mixed military and civilian workforce. CRY bereavement supporters Linda Goodwin and Anne Reynolds (pictured) supported this day providing CRY information and answering questions about our work.

CRY Patrons John Inverdale and Simon Halliday raised £3,000 for CRY at a sporting dinner held at Moreton Hall School May 10

West Postcard May 9 CRY’s ‘12 a week’ postcard campaign continued with our 11th launch to raise awareness of the increase in statistics from 8 - 12 young sudden cardiac deaths every week, a figure that is no longer disputed. It was held in Gloucester and CRY supporters Diane Tolley, Lee-Anna Rennie and Stevie Rennie, representing bereaved families, spoke at the event. Diane’s son, Robert Poysor, died suddenly aged 15 on a bike ride and Stevie’s son, Lee-Anna’s brother, Scott, collapsed and died during rowing training age 25. His invitation to join the Olympic squad arrived the week after his death. The event was attended by 32 bereaved family members and friends and there was significant media interest in this launch, with ITV West

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Left to right: John Inverdale, Head of Sport Kate Groves and Simon Halliday

John and Simon gave a stimulating talk to the 150 guests about their sporting experiences.

Interview on BBC Look North May 10 BBC Look North interviewed me regarding sudden adult death syndrome (SADS) in relation to the sudden death of Sarah Tenwick, who died in her sleep aged 22 in 2012 of

Issue 61 | May to August 2013


News from the Chief Executive an undiagnosed heart condition. Following Sarah’s death, her mother, Teresa Tenwick-Ford, contacted CRY and the family have now been screened. Sarah’s family have since been in regular contact with CRY, organising fundraising activities including 24-hour ‘Cyclathon’ and bag-packing events at local supermarkets and a family fun day. A planned Land’s End to John O’Groats bike ride had disappointingly to be cut short after 450 miles of the 900 mile journey when the family home was burglarised and a small portion of sponsorship money stolen. BBC Radio Lincolnshire coverage of the break-in led to listeners generously pledging to donate more than £600 to replace the £350 taken. Sarah’s family intend to complete their cancelled bike ride and continue to raise money for CRY, recently setting up the Sarah Tenwick Memorial Fund.

about CRY on BBC Breakfast.

Scotland Bereavement Support Day May 19 16 people registered for this event held at Norton House Hotel & Spa in Edinburgh. Groups were led by CRY Bereavement Supporters Maralyn Bowen, Diana Bower, Angela Butler, Jennie Crean, Julie Hatton and Katherine McNamara (pictured).

CRY continues to inspire work in Australia May 10 Youth Heart Watch in Australia sent us the following message on Facebook – reminding us that although there is still so much to do we have made considerable headway in establishing our screening programme in the UK and have over 100 MP’s fighting our corner in the House of Commons: “TO CRY and your beautiful families who have lost a young one, thank you for all that you are doing to help prevent the loss of young lives to sudden cardiac arrest. Two and a half years ago I lost my son James who had just turned 16 to hypertrophic cardiomyopathy. He passed away in his sleep. In search of answers I turned to CRY and realised his loss was so preventable. The tragic loss of our young remains so silent here. There is no community screening for our young but that is my aim. Our public schools in our largest State, NSW (Sydney) do not allow defibrillators - even donated ones. This week James should have turned 19 my greatest regret is that I did not know about cardiac risk in our young. James was a UK citizen and due for football trials in the UK just a few weeks after we lost him. In his memory I hope some will like our page.”

CRY featured as ‘charity of the week’ in The Week magazine May 10 The Week is a prominent weekly magazine which chose CRY as its ‘charity of the week’ for the May 11 edition highlighting our aims with a full page of coverage. Editor Alanna O’Connell selected CRY after seeing coverage

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CRY Supporter Shelley Lewis interviewed on BBC South Today May 23 Shelley Lewis was interviewed on BBC South Today about the sudden death of her son Joseph, who died aged 20 in 2012. Shelley, a trained nurse, was with her son when he collapsed and performed cardiopulmonary resuscitation (CPR) until the ambulance arrived, but tragically Joseph could not be resuscitated.

CRY Patron Nick Easter provides signed rugby shirt for North Devon Rugby Club 7’s May 28 CRY Patron Nick Easter kindly donated a signed rugby shirt to be raffled at a rugby 7’s tournament in August held by North Dorset Rugby Club. The event will be held in memory of Max Biles who was the club’s first XV Captain and died suddenly in 2009 aged 29.

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News from the Chief Executive Also attending were Maria Hutchings and a representative from NHS England.

June CRY Patron Andrew Triggs-Hodge rowing demonstration at BCS conference June 4 CRY Patron Andrew Triggs-Hodge accepted an invitation to be on stage at the British Cardiovascular Society (BCS) conference for a demonstration overseen by Professor Sanjay Sharma, with himself and Dr John Buckley illustrating their hearts’ physiological responses to exercise. Andrew recently won his 2nd Gold Medal in the London Olympics and Dr Buckley (in picture with myself and Andy) suffers from dilated cardiomyopathy (DCM).

The Secretary of State for Health was curious about the effectiveness of screening. Dr Mackie is unpersuaded by the necessity for screening and emphasised that she does not believe ECG screening is effective. Professor Sharma disagreed, explaining why screening identifies electrical faults. The family strongly spoke in favour of people being given the option.

CRY’s new ‘A Father’s Grief’ booklet is launched on Father’s Day June 16 On Fathers’ Day 2013, CRY launched the 2nd of our Grief booklets supporting Dads who have lost a child to a young sudden cardiac death – ‘Young Sudden Cardiac Death: A Father’s Grief’. A booklet for bereaved siblings was launched in November 2012.

The onstage demonstration compared VO2 max between an Olympic athlete (on his rowing machine) and a patient with DCM (riding on the bike). VO2 max is the maximum capacity of an individual’s body to transport and use oxygen during incremental exercise, which reflects the physical fitness of the individual. CRY had a prominent and very well attended stand at the 3 day conference from June 3 – 5, displaying recent research. To find out more about the event please read the Research News section.

Meeting with Secretary of State for Health Rt Hon Jeremy Hunt June 11 Successful lobbying by the family of Claire Reed resulted in Health Secretary Jeremy Hunt agreeing to a meeting with Claire’s father, Graham Hunter, mother, Anne Hunter, brother, Pete Hunter, and husband Andy Reed. Professor Sanjay Sharma attended and Dr Anne Mackie represented the National Screening Committee.

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The booklet features stories written by 10 Dads in the hope they will help other fathers following their tragedy. There has been phenomenal press coverage of the new booklet. Each Dad got media coverage highlighting the booklet in their local press, there was national coverage from BBC Online and on July 9 The Independent published an extensive interview with Paul Clabburn that within 2 days had received 2,762 page views and 2,465 unique visitors. If you would like to download this new booklet in PDF format, please visit www.crydadsgrief.org.uk

Issue 61 | May to August 2013


News from the Chief Executive CRY Patron Alison Waters represents CRY at Surbiton High School ‘Hockathon’ June 29

To read more about the booklet launch visit www.c-r-y.org.uk/fathers_grief_booklet_launch.htm To receive a copy this booklet, and/or the Sibling’s Grief booklet please call the CRY office on 01737 363222 or email lily@c-r-y.org.uk.

Alison Waters announced as a new Patron of CRY June 17 Alison Waters is the 2013 British National Squash Champion. She became a CRY Patron following the sudden death of her friend Harry Faulkner, who was 18 when he died suddenly playing squash. Alison said “I became aware of CRY and the amazing work that they do and it was something I wanted to be a part of.”

Midlands myheart meeting June 23

7 young people aged between 14 and 35 registered for the myheart meeting held at the MacDonald Burlington Hotel in Birmingham. These meetings give members an opportunity to meet other young people similarly affected, receive group counselling and informally ask questions of a cardiologist. Jayne Slack, counsellor, and Dr Michael Griffith, cardiologist, attended. It was the first meeting for all of those attending. Adverts for the meeting in the Birmingham Metro were funded by CRY’s ‘Jeans for Genes’ grant to raise awareness of CRY’s myheart group and the services offered by CRY.

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Alison Waters joined the 12 hour ‘Hockathon’ organised by Surbiton High School in aid of CRY and the Youth Sport Trust. 90 pupils and members of staff took part in this inaugural 12-hour event.

July CRY Patron Bill Neely interviewed for Runner’s World magazine July

Left to right: Bill Neely runs for CRY at the Virgin London Marathon 2011, 2012 and 2013

CRY Patron Bill Neely was interviewed for the July edition of Runner’s World magazine. Bill has run in the last 4 London Marathons for CRY.

Zoom Media announce their charity partnership with CRY July 1 Zoom Media, the world’s leading provider of Gym TV, have chosen CRY as their first charity partner and plan to support us by providing day release of staff to assist with multiple functions including marketing, finance and technology. They will also be fundraising through sporting events, mufti days and cake sales. Zoom Media’s Managing Director, Alex Peacock, will be participating in “Run to the Beat” in London in September.

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News from the Chief Executive CRY Heart of London Bridges Walk July 7 More than 1,200 people participated in the 7th annual CRY Heart of London Bridges Walk, which was started and led by CRY Patron Kathryn Harries. I was very pleased to be at this event where most were walking in memory of a young person, although an increasing number take part who simply want to support us. A huge thank you to everyone who came to this very moving occasion.

The walk coincided with the launch of a hard hitting CRY animation video demonstrating the impact of losing a young person to sudden cardiac death. For the animation video visit www.c-r-y.org.uk/thunderclap.htm

of Cardiovascular Pathology at St George’s Medical School and will move her laboratory to St George’s (from the Royal Brompton) in September. This will have a terrific impact on the service we can offer because it will facilitate linking the pathology with families being screened at our CRY Centre for Inherited Conditions, after they have suffered a young sudden cardiac death.

Fundraising concert in memory of Matt Beadle July 14 After the success of the WestEnd Fest concert in February, friends of Matt held another fundraising concert in his memory at St Paul’s Church in Covent Garden. Matt was 32 when he died suddenly of SADS in September 2012. I was first alerted to this tragedy by CRY Patron Pixie Lott’s mum as Matt was Pixie’s dance teacher. The WestEnd Fest showcases the best in West End performing talent and the theme for the event on July 14 was ‘Mis-Cast’ which saw some of the biggest West End stars sing songs from a show they would never be cast in. I attended the event when I was given the opportunity to speak about CRY. The concert was a sell-out and superbly organised by Sabrina Aloueche and Pete Parnell.

For details and photos from the walk, please see the Bridges Walk article or visit www.c-r-y.org.uk/bridges_ walk_2013.htm

CRY welcomes announcement on Judicial Review July 9 The announcement by Jacqui Cheer of the Cleveland Police - regarding the Judicial Review on Mr Sheffield (Coroner for Middlesbourgh and region) that they are implementing changes to improve their coroner’s service and to “keep bereaved families at the centre of everything we do” - will be greatly welcomed by all affected families in the region.

Dr Mary Sheppard appointed as professor of cardiovascular pathology July 11 Mary has been appointed Professor

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CRY welcomes the long awaited overhaul of the coroners’ service in England and Wales July 25 CRY has campaigned vigorously with a very significant input from the bereaved families for several years for improvements to the coroners’ service in England and Wales, and I greatly welcomed the appointment of the new Chief Coroner and the series of changes and improvements he has pledged to implement. To read more about the proposed changes visit: www.c-r-y.org.uk/coroners_service_overhaul.htm

August 27 CRY cyclists including CRY Patron Matt Wells took part in the first ever Prudential RideLondon-Surrey 100 August 4 Issue 61 | May to August 2013


News from the Chief Executive Unsurprisingly Matt (rowing bronze Beijing 2008) was the first to arrive at our meetand-greet point in Green Park despite having 4 punctures in the race!

CRY Patron Matt Wells after the race with his 2 children

I was delighted to be asked to come and meet some of the cyclists and their supporters. It was a fantastic atmosphere on a beautiful summer day and great to see the cyclists (+ bikes) enjoying picnics afterwards on the grass in the park with their friends and families.

Thank you and congratulations to all the cyclists who took part in this gruelling event for CRY. To read more about the event please see the Prudential RideLondonSurrey 100 article or visit www.c-r-y. org.uk/ridelondon_ surrey_100_2013.htm

CRY Patron Ian Botham records voiceover for promo video August 7 CRY Patron and Honorary President Ian

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Botham has recorded the voiceover for a promotional video about CRY’s work.

Olympic rower Tom James filmed at St George’s Hospital August 9 CRY Patron, Olympic rower and gold medallist Tom James kindly joined me at St George’s Hospital to film a new video to accompany the upcoming myheart booklet. The booklet contains the stories of 10 young people who are learning to live with a life threatening heart condition. Tom wrote the introduction and contributed his experience of living with atrial fibrillation, and how he was diagnosed and successfully treated by Professor Sanjay Sharma in the run up to the Olympic Games, where he ultimately won his 2nd Gold medal.

CRY supporter Paul Clabburn appears on ITV’s “This Morning” to raise awareness of CRY’s booklet, ‘A Father’s Grief’ August 16 On Friday August 16, CRY supporter Paul Clabburn appeared on ITV’s “This Morning” to raise awareness of CRY’s booklet, ‘A Father’s Grief’. During the interview with Jeff Brazier and Jenni Falconer, Paul Clabburn spoke of the terrible impact of the death of his son Tom in October 2007, who died in his sleep from a ruptured aorta, aged just 14. To see the interview please visit www.c-r-y.org.uk/this_ morning_clabburn.htm

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Other CRY News CRY launches new resource for Dads following the sudden cardiac death of a ‘fit and healthy’ child

www.c-r-y.org.uk/fathers_grief_ booklet_launch.htm On Father’s Day, June 16th, CRY launched the latest in its series of grief booklets. The book, ‘A Father’s Grief’ – which has been compiled by CRY’s Chief Executive and Founder, Alison Cox MBE, who is a bereavement counsellor - features 10 personal ‘essays’ from men who recount and talk through their personal experiences of suddenly losing their child. It was launched to coincide with ‘Father’s Day’, a date in the calendar that is often exceptionally hard for bereaved fathers to bear; and a time that many other bereaved fathers

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across the UK may be looking for specialist support and advice, particularly from those who have been through a similar experience. Alison says: “I have supported bereaved families for over 18 years and those who have contacted us are most commonly mums. However, dads – often perceived as the ‘head of the household’ and the family member expected to ‘manage’ when faced with such a devastating situation – also need to have their grief recognised and an opportunity to talk about their own harrowing experience. Men grieve differently to women and very often their grief is not properly understood.” CRY offers telephone support with trained volunteers who have suffered the sudden cardiac death of a child, sibling or partner and have received two years of counselling training. CRY also holds regional and national bereavement support events across the UK for families who have been affected by young sudden cardiac death.

‘12 A Week’ Animation Video Launch On the 7th July 2013, CRY used the backdrop of its flagship fundraising event - the Heart of London Bridges Walk - to launch a stunning new, short animation video demonstrating the impact of losing a young person to sudden cardiac death.

on as wide a stage as possible, CRY chose to use a social media message amplification platform known as Thunderclap. Thunderclap enabled a single message to be sent out by CRY and its supporters at exactly the same time, helping create a bigger impact via the social media of Facebook and Twitter. When the Thunderclap campaign was launched by CRY, the response was fast and large. Within 24 hours, CRY had over 50% of the supporters required to launch the thunderclap. By the end of the sign up period, CRY had 164% of the required number of people signed up. 411 CRY supporters had lent their social media voice to the single message, raising awareness of the devastating tragedy of sudden cardiac death in young people. It is not too late to add your voice to this CRY awareness campaign - retweet, share and like the ‘12 A Week’ video anywhere you can to help spread the message. You can find our video at www.c-r-y.org.uk/ thunderclap.htm

Justice for James: re-opening the Inquest into the death of James Markham July 2013 CRY Supporter, Jeff Markham says: If someone you love has died, and you do not think the Inquest held and subsequent death certificate issued are a true reflection of what happened, this story will show that an Inquest can be overturned, without massive cost or legal knowledge.

To launch the video to the public

Issue 61 | May to August 2013


Other CRY News When our son James collapsed and died outside the family home in November 2001, we were all shocked. Like many victims of young sudden cardiac death he was seemingly fit and healthy and just 21 years of age. Our family GP gave the initial lead when he told us that the case sounded like a cardiac arrhythmia. That was something that we had not heard of, but in searching the internet we found CRY. Alison Cox put us in touch with the then Dr Sharma, and Dr Sharma told us he thought James had died of long QT syndrome. Initial cardiac testing of family members did not show anything abnormal, but it was agreed to closely monitor our daughter, Abi. The original Inquest came and went and we do not remember much about it. I think at the time we were just numb and worried about our surviving daughter. The Inquest recorded a verdict of “Unascertained” and “Natural Causes”.

Professor Winters, a geneticist, and he agreed to have James’ blood DNA tested. We understood at the time that this was not available through the NHS in England and so the samples were sent off to Denmark. It took three years to get the results back to the UK and during this time Professor Winters passed away. James’ case was taken up by another geneticist, Doctor Rosser, and she concluded that the results of the DNA testing clearly showed that James had died of long QT syndrome. This proved that Dr Sharma’s original diagnosis was correct. This information allowed family members to be DNA tested, and by now - 2006 - testing was available through the NHS in England. A couple of months later we had found that no other family members carried the gene responsible for James’ death. We were pleased to know our surviving daughter was not at risk, and also thought we had sufficient information to take to our Coroner to have James’ Death Certificate changed. Our Coroner, Alison M Thompson

MBE, was extremely helpful. She told us that if she were able then, based on the new evidence, she would reopen the Inquest. Unfortunately the law did not allow her to do so. This was a disappointment to us, and we left the case until early in 2012 when we decided to have one more attempt at getting the Inquest overturned. Initially we wrote to our MP, Nick Hurd, giving him all the case details. He was sympathetic and suggested we write to The Attorney General’s Office. We did this and were advised by his office to make a formal application to The High Court to have the original Inquest overturned. At this stage we took some legal advice and saw a local solicitor. He was frank in saying that he had not come across this sort of case before, but thought that - based on the firm DNA evidence - we had a good case. He advised us that should we wish, we could represent ourselves in court. This turned out to be good advice, saving us lots of money. It also transpired that throughout the process, many of the people within the legal system said that they had

It was not until a few years later that we started to question this. By now were starting to function a little more clearly and were getting expert advice and information from CRY. We believed that fit and healthy young people do not just collapse and die without good reason, and vowed to find out what had really happened to James. We were fortunate in knowing

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Other CRY News not come across this sort of case before. There follows a brief rundown of the process we went through: Evidence: This seemed to be the critical area. Our original Death Certificate had “Unascertained” and “Unknown Natural Causes”. In getting our case to court we had DNA evidence from James’ blood plus covering correspondence from a geneticist to say the death was a result of long QT. Time scale: Although we had had several abortive attempts to get this underway - and there was some correspondence with our MP that would not be needed in subsequent cases - the final process took about eight months. That is from the time of the first correspondence to The Attorney General; through submission of evidence, attending the High Court and the fresh Inquest; to receiving the new Death Certificate. Financial cost: At the outset of the process the initial advice from the local solicitor cost £50. There was the actual cost of taking the Court action, which was £465 plus the cost of photocopies (about £50). At the time, legal aid would have been available if annual income was below about £22,000. Time needed: I did not keep a record of how much actual time I spent on the case, and there were periods of little or no activity where the “process” was grinding along. However, there were two trips to The High Court in London one to submit the papers and one for the actual hearing. There was

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also a trip to our Coroner’s Office to serve the papers - I could have done this by post, but wanted to ensure she got the papers, and also ask a few questions. Skills: I had no previous legal experience, and based on our experience I do not think it necessary to employ a solicitor and certainly not a barrister. The Attorney General’s Office had a legal advisor and I found him very helpful in giving a broad overview of the process and a guide of their website and the paperwork involved. We also found out on the day of the Hearing that we may have been able to secure advice from volunteers based at the actual Courts. Court proceedings: My concerns were that the actual court proceedings would be stressful fortunately these were completely unfounded. We arrived in court with a pre-prepared statement that I thought I would need to read it out. However, when the two trial Judges entered the court, one of them told us straight away that our case had been considered in chambers and that the judgement was in our favour. We then relaxed and listened to the reading of the actual Judgement; and the whole procedure took less than half an hour. Within another month we had our fresh Inquest, and the new Death Certificate was issued a couple of weeks later. In conclusion I think the effort was worthwhile and that the process was quicker and smoother than I thought it would be. We were fortunate to have a very supportive Coroner and all the people we dealt with throughout the process were extremely helpful.

I believe that the record is now straight. We do know what happened to James and this is reflected in the legal judgement. The Chief Coroner was one of the trial judges and in his judgement he went on to say that he was in the process of drawing up new guidelines for all Coroners in England and Wales. My wife Sandra thinks that doing what I did was also to keep James’ memory alive and keep him fresh in our thoughts. That is probably true.

I hope this judgement will be a landmark in allowing other families that feel the same way as us to take the same action. However, I also hope that the advancement in medical science and testing means there will be fewer cases of “Unascertained Natural Causes”. We have kept all the necessary documentation and are happy to pass them on to other families, along with any advice that we can offer. If you would like more information please contact cry@c-r-y.org.uk and mark your email ‘FOR THE ATTENTION OF JEFF MARKHAM’ and CRY will forward me your message.

Issue 61 | May to August 2013


Newsletter from the Deputy Chief Executive is becoming increasingly efficient and maximising the number we test. This is largely due to prioritising family screening events where there is normally nearly 100% attendance. The significant raising awareness achieved both before and after these events impacts on the public better understanding the importance of cardiac screening as well as CRY’s work and aims.

We have been in our new office for over a month and we are finally starting to feel at home! It is such an important move for CRY for so many reasons, one of the most important is that we can finally recruit the additional staff we require to cope with the surge of interest in CRY’s work and the huge developments that are occurring. Last year we saw an incredible expansion in fundraising at a grass roots level. The number of young people CRY tested compared to the previous financial year increased by 54% with only a marginal increase in the number of events held, proving our screening programme

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Between January 1st 2013 and 2014 CRY tested just under 14,000 young people, 45 of whom will have been diagnosed with cardiac conditions that could have killed them at any time. 140 apparently fit and healthy young people will have been diagnosed with cardiac conditions that may not have been immediately life threatening, but can now be monitored to avoid major complications in their 4th decade of life. Increasing our screening programme feeds vital research. Many of you know that CRY now funds 6 Research Fellows at St George’s Hospital who spend 50% of their time in NHS clinics, fast tracking families into the CRY Centre to ensure they will be seen quickly, with all family members having their tests on the day of their referral. Their remaining time is divided between screening and research. At CRY screening events they see 2-3,000 young people annually, reviewing their ECG and discussing any worrying symptoms with them. The experience gained in these NHS clinics, and out in the field at CRY screening events under the supervision of Professor Sanjay Sharma, ensures they become specialists in young sudden cardiac death and screening. Nowhere else in the world provides such unique and intense training for dealing with inherited cardiac conditions

or familiarises trainee doctors with working with young people and their families in this unique way. It is this training and the experience of working closely with Professor Sharma that enables them to be so successful in publishing papers in the speciality areas of research they have decided to investigate. Although the majority of people CRY test are not elite athletes many of our papers focus on sports cardiology as this informs the expert cardiologist when evaluating an abnormality. It is our unique expertise in sports cardiology and how athleticism, ethnicity and gender affect the ECG that enables us to conduct screening on a general population level. To test young people you need to understand the results of ALL young people. It is CRY’s expertise in sports cardiology that gives us the authority to take forward screening in the UK. Many people cannot understand the National Screening Committee (NSC) anti-screening position. Screening is not straightforward and requires a high level of expertise to perform. The problem for the NSC is that if they supported screening there is a risk that many “non-specialists” develop screening programmes resulting in confusing and incorrect diagnoses which would create a huge burden on the NHS to correct. Our screening programme has evolved in the way it has, conducting echocardiograms, when necessary, on the day of testing, to ensure the NHS is not burdened with incorrect diagnoses. However, to do this you need a specialist doctor reviewing each patient as the tests are being done, and there are few specialists in this area of cardiology. We are very proud that as well as the 6

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Newsletter from the Deputy Chief Executive fellows we are currently funding, 13 more fellows have been trained by CRY and are now working in the NHS throughout the UK. 2013 has, unquestionably, been our most important year for research with more than 17 publications including articles in the leading cardiology journals Circulation (Dr Zaidi’s research was selected as Editor’s Choice) and Journal of the American College of Cardiology (JACC). A guideline informing how arrhythmogenic right ventricular cardiomyopathy (ARVC) should be assessed was published for the British Journal of the British Society of Echocardiography, lead by Dr David Oxborough, which we launched

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at the British Cardiovascular Society (BCS) meeting. Other papers include those highlighting how the CRY experience is changing the way young people are screened throughout the world, as well as a key paper profiling Professor Sheppard’s work at the CRY Centre for Cardiac Pathology. For me the pinnacle this year was Professor Sharma’s name leading a debate on cardiac screening in the New England Journal of Medicine which is amongst the most prestigious international journals and the oldest continuously published medical journal in the world.

extraordinary achievements made possible by our supporters over the last 18 years.

For CRY to be linked to such a high profile debate is testament to CRY’s

Steve Cox Deputy Chief Executive

Thank you for the tremendous opportunity you provide us with to help make a difference to saving young lives. Best wishes,

Issue 61 | May to August 2013


CRY Screening Report Between May and August 2013 CRY screened over 4,500 people, mostly through family memorial screenings.

(Bishop’s Stortford), Joanne Fotheringham (Ross-Shire), Dale Tennent-Butler (Hertfordshire), Marcus Armstrong (Harwich), Craig Salmon (Staffordshire), Ben Daniels (Kent), Jordan Grant (Preston), Lee Stables (Cumbria), Kira Louise Lloyd (Rhondda), Ian Bowen and Leon Ashley Manners (Cleveland), and Neil Desai (Surrey).

At our regular CRY clinics 1,059 young people were screened. Clinics were held at: University of Ulster, Jordanstown campus and Foyle College, Derry (funded by the Northern Ireland fund); Sefton Hotel, Isle of Man (funded by Craigs Heartstrong Foundation); and Colchester Hospital (funded by the Andrew Gard Memorial Fund). At the ICAP clinics 380 young people were screened. These screenings are held at the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology, in St. George’s Hospital, Tooting.

182 young people were screened at two school screenings. These were held at Queen Elizabeth Hospital School (Bristol) and Warwick University (Coventry).

Sports screenings included: Effingham and Leatherhead RFC, West Ham FC, Aston Villa FC, Roehampton LTA, Newcastle Falcons RFC, Sale RFC, Leeds Rugby Union, RFL, Northampton Saints RFC, Gloucester RFC, Harlequins RFC, Saracens RFC, Leicester Tigers RFC, London Irish RFC, Exeter Chiefs RFC, Manchester City FC, Manchester City FC Academy, Bisham Abbey EIS, Sheffield EIS, Northampton Swimming Club, AFC Wimbledon, Tottenham Hotspur FC, London Wasps RFC, Holme Pierrepont EIS, Bath RFC, Scarlets RFC, and Worcester Warriors RFC. 1,015 athletes were screened in total. 1,949 people were screened at 14 family memorial screenings. These were held in memory of Joseph Herrington (Cambridge), James Patterson (Essex), Josh Fell (Hornsea), Caroline Johnstone www.c-r-y.org.uk

CRY Screening Event in Hornchurch, Essex, funded by the James Patrick Patterson Memorial Fund 14th May 2013. This was the third annual screening event that the Patterson family have held at the Campion School in

What happens at a screening The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within your heart. The ECG involves lying down quietly and only takes 5-10 minutes. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (known as electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes 2-3 minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with

Hornchurch and once again it was a great success. 100 screenings were carried out on the pupils of James’ old school. The whole day went very well. There were a few abnormalities picked up which will have to be investigated further.

Gill, Catherine and Peter Patterson have been instrumental in bringing screening to the Hornchurch area after James died suddenly from an undiagnosed heart condition in 2005.

a personal and family history questionnaire. If a more detailed image is needed (about 5% – 10% of individuals), an echocardiogram (ECHO) can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. CRY uses top of the range machinery donated by Philips for the screening programme. The screening programme is under the aegis of Professor Sanjay Sharma.

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Report from the CRY Centre for Cardiac Pathology (CRY CCP) By Alice Burrell, Dr. Mary Sheppard’s Acting Medical Secretary at the CRY CCP. Between May and August 2013 we have received 153 sudden death referral cases and have successfully kept our average turnaround time below 14 days; with an average of 11.4 days for pathological processing, examination and completion of Dr Sheppard’s final report for the referring coroner and pathologist with times peaking slightly in recent months due to staff summer holidays. Referral numbers are generally increasing compared to those of 2012, a positive outcome, hopefully showing that knowledge of the existence of sudden cardiac death and our facilities here at the CRY research centre are increasing.

Diagnoses We were able to come to a specific diagnosis in all referred cases following the pathological processing and examination of the heart with consent from the families. In the majority of cases of sudden cardiac death there is an electrical abnormality of the heart that is the main cause for the sudden death,

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Dr Mary Sheppard, Consultant Cardiac Pathologist

and in these cases genetic follow up and screening of family members is particularly important.

New Location of CRY CCP Research Centre Dr Sheppard has recently been appointed as professor of Cardiovascular Pathology at St George’s Medical School. The CRY unit will be moving to the new laboratory there in late September 2013.

Publications • Sharleen Hill’s paper on anomalous coronary arteries was accepted by the British Journal of Sports Medicine. • Sofia de Noronha’s paper on the work of the CRY unit was accepted by Europace. • Alice Burrell’s paper on arrhythmogenic right ventricular cardiomyopathy (ARVC) is in the process of being submitted to the European Heart Journal. This will be the largest pathological study of its kind in the UK. • Katsuya Norita is working on a publication reporting the findings from the whole database of 2,500 cases of sudden cardiac death that we have received at our research centre since opening in 2007.

Teaching Dr Sheppard’s course ‘Adult Cardiovascular Pathology’ at the

Alice Burrell, Acting Medical Secretary

Saharnaz Vakhshouri, Laboratory Technician

National Heart and Lung Institute (NHLI) ran successfully for another year at Imperial College London from the 16th - 17th May 2013, with 60 pathologists from all over the world in attendance. Her course emphasises the pathological investigation of sudden death and the taking of genetic material at autopsy in order to establish any genetic causes of sudden cardiac death to enable screening of any family members who may be at risk. We have seen a positive yearly increase in the amount of referred genetic material provided with cases.

Students Recently Lydia and Dimitra Krexi have been working with us on sabbatical, researching stress and sudden death, mitral valve prolapse and pulmonary disease.

Lectures and Inquests Dr Sheppard was invited to the following international lectures: Imperial Clinical Trials trust; Worshipful Society of Apothecaries of London Guest Dinner; Post-Operative Death Meeting held at the Royal Society of Medicine, the Working Group of the European Society of Cardiology (ESC) in Marseilles, France; European Association for European Cardiovascular Pathology meeting in Amsterdam; Australia & New Zealand pathological society meeting. Dr Sheppard continues to attend inquests, attending four inquests from May to August on sudden death cases from within the UK.

Issue 61 | May to August 2013


Research News CRY’s Research Fellows are an integral part of the work at CRY. CRY funds doctors for 1-2 years who choose to specialise in the fields of inherited cardiac diseases, sudden cardiac death, screening and sports cardiology. The research that they produce advances our understanding of conditions that can lead to sudden cardiac death.

British Cardiovascular Society (BCS) Conference 2013 The 2013 British Cardiovascular Society (BCS) Conference was held from 3rd to 5th of June at the ExCeL Centre in London. CRY was in attendance, raising awareness and staging special research presentations throughout the 3 day event. Several current and former CRY Research Fellows offered the popular presentations at the CRY stand, eagerly explaining their findings and answering any queries. The presentations given at the CRY stand over the 3 days were the following: • ‘Interpreting the athlete’s ECG: Green, orange and red flags’; and ‘Cardiac adaption in adolescent athletes; Differentiating physiology from pathology’ from Dr Nabeel Sheikh. • ‘Effect of ethnicity on the athlete’s ECG’ from Dr Navin Chandra. • ‘Challenges of assessing risk of sudden cardiac death in Brugada syndrome’; and ‘Familial cardiological evaluation in sudden arrhythmic death syndrome’ from Dr Hari Raju. • ‘How to perform pre-participation screening in elite athletes: The Rugby league and UK Olympic team experience’; and ‘Right ventricular adaptation in elite athletes: differentiating physiology from ARVC’ from Dr Saqib Ghani.

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• ‘Practical guide of echocardiographic assessment in athletes’; and ‘Interpreting autopsy findings after a sudden cardiac death: Potential for erroneous diagnosis’ from Dr Michael Papadakis. • ‘Left ventricular trabeculation; Physiology, pathology or innocent bystander?’ from Dr Sabiha Gati. Another highlight of the conference was a demonstration session chaired by CRY Consultant Cardiologist Professor Sanjay Sharma and Professor Greg Whyte, with a talk and

participation in the live demonstration from Dr John Buckley (of Chester Hospital), entitled ‘Gold Medal Cardiopulmonary Exercise Testing’. Cardiopulmonary exercise testing (CPET) uses breath-by-breath respiratory gas exchange analysis to enable the assessment of the cardiovascular, respiratory and skeletal systems’ responses during exercise. Olympic gold medal winner and CRY Patron Andrew Triggs-Hodge MBE was on stage to offer the live demonstration of CPET using a rowing machine. Beside him, Dr John Buckley, who suffers from dilated cardiomyopathy (DCM), exercised using a cycling

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Research News machine, and their CPET readings were displayed and compared for the benefit of the audience. CPET is considered the gold standard for objective assessment of functional capacity in patients with cardiorespiratory disease and is commonly used to assess fitness in athletes. In cardiac patients who cannot perform maximal exercise, the readings provide a measure of exercise capacity. Professor Sanjay Sharma also enjoyed a well-attended presentation titled ‘ECG in athletic hearts’ in the ‘Hot Topic Zone’, afterward taking the time to answer questions. In another session under the heading ‘Challenges in Sports Cardiology’, consultants including Professor Sanjay Sharma and Professor Greg

Whyte offered more of their research into the analysis of cardiac anomalies in athletes. The 2013 British Cardiovascular Society (BCS) Conference was a very successful event for CRY, with

a busy stand throughout the three days and plenty of interested parties taking notice of the valuable work our Research Fellows are producing. CRY looks forward to returning to the BCS Conference in 2014.

CRY Golf Day 2013 The CRY Golf Day at Woodlands Manor Golf Club, Kent took place on Monday May 13th. We were very fortunate with the weather and even enjoyed spells of sunshine during the day! We had 15 teams take part in the competition and everybody enjoyed themselves even if they weren’t so happy with their final scores! Well done to the winners on the day who were as follows:

Team winners: Dave Jennings, Phillip Townsend, Shaun Ewen and Daniel Budd

Male winner: Graham Ritchie

Ladies winner: Gail Gardiner

We are very pleased to say that we raised a total of £4,393.50 gross, including a wonderful £930 from the auction and £500 from the raffle so we are very grateful to everybody for their generous bids and support!

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We would like to extend a huge thank you to everybody who took part in the CRY Golf Day 2013 and for helping to make the event such a success. We would also like to thank Bob Scott, Past Captain, and Woodlands Manor Golf Club for nominating CRY and donating the course and Phil Womack, the PGA Professional at the club, for all his help with organising the day. CRY received wonderful support for the auction and raffle and we would like to take this opportunity to thank: CRY Patron, Michael Hoey, for donating his tour bag; Marylebone Cricket Club for donating the England Cricket Bat; Mrs Karen Dixon for donating the Celtic shirt in memory of her son Christopher Peat; and for the anonymous donation of the signed Australian cricket top. We would also like to thank: Poult Wood Golf Centre, Tonbridge; Walmer & Kingsdown Golf Club; the London Golf Club; Hever Castle Golf Club; Nevill Golf Club; Stonelees Golf Centre and Bramley Golf Club for donating a round of golf at their courses. For a full results list and for more photos from the day visit: www.c-r-y.org.uk/CRY_Golf_Day_2013.htm

Issue 61 | May to August 2013


West Postcard Launch

Families from across the West of England came together in Gloucester to help launch CRY’s new ‘12 a week’ campaign postcard. The postcard features photos of 12 young people from the West who suddenly lost their lives to undetected heart conditions.

More than 150,000 postcards have already been distributed by

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CRY families across the UK, raising awareness and lobbying support amongst MPs. CRY supporters Diane Tolley, Stevie Rennie and Lee-Anna Rennie represented bereaved families at the postcard launch and spoke about the impact that tragedy had on their families. Diane’s son, Robert Poysor, died aged 15 on a bike ride. Stevie’s son (Lee-Anna’s brother) Scott, aged 25, collapsed and died during rowing training.

The distribution of the new postcards by CRY’s supporters across the West of England will further help to raise awareness of young sudden cardiac deaths in the region. CRY’s postcard campaigns continue to encourage MPs from constituencies across the UK to pledge their support for the Cardiac Risk in the Young All Party Parliamentary Group. For more information you can visit www.c-r-y.org.uk/west_postcard_ launch_2013.html

There was press coverage for the event, and on the following day Gloucester newspaper The Citizen announced it would be running its own appeal with the University of Gloucestershire entitled ‘Stop the Heartbreak’ in order to raise money for a CRY screening for young people in the area.

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Song for Stevie On a warm evening in June, CRY was privileged to be involved with a truly inspiring evening of arts and entertainment. ‘Song for Stevie’ was organised in memory of Stevie Jivani, who tragically died from a previously undiagnosed heart condition in April 2012. She was aged just 19. The concert, which was held at the Rose Theatre, Kingston upon Thames, was both poignant and uplifting as well as a fantastically professional evening. The programme of performers - which had been organised by Stevie’s parents, Maureen and Naz, (both healthcare professionals in the local area) - featured dancers, musical theatre, bands and a wonderful variety of poetry read by acclaimed writers, all of whom were friends of the Jivani family. The concert also provided the perfect backdrop to announce the winners of a poetry and a photography competition – both set up in memory of Stevie and both attracting a wonderfully high standard of entry. The evening was introduced and compèred by CRY Patron Phil Packer MBE, who had taken time before the event to meet and get to know Stevie’s family, adding a personal commitment to his involvement.

dangerously fast. Alessandro has had four ablation treatments and is still awaiting his last report from the cardiologist to give him the ‘all clear’. However, the band’s performance on the night was amazing and, as they continue to gather a loyal following and fan base, Miccoli goes from strength to strength. Over 600 guests attended, which made the event so positive and vibrant – just as the family had wished. CRY would like to thank all the performers who took part and the friends and family of Maureen and Naz who provided so much support and helped to make a ‘Song for Stevie’ happen. We were so proud to be associated and to be a beneficiary of the event, which raised almost £9,000.

Everyone at CRY was also delighted that up-andcoming band Miccoli were able to accept the invitation to perform, travelling from the Midlands to show their support. The band have a personal connection to CRY, following the diagnosis of lead singer 29 year old Alessandro Miccoli (who performs with his twin brother Adriano and sister Francesca) with WolffParkinson-White syndrome. This is a condition where extra electrical pathways to the heart make it beat

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Issue 61 | May to August 2013


CRY Heart of London Bridges Walk 2013

It seems as though three records may have been broken on Sunday July 7th 2013! The first British winner of the Wimbledon Men’s Singles in 77 years; soaring temperatures making it the hottest day of the year so far; and over 1,200 willing walkers travelling to central London to take part in the annual CRY Heart of London Bridges Walk – the largest number of participants the charity has ever seen. As ever, it was a poignant yet positive occasion – more so this year as the charity marks its 18th anniversary. This year was the 7th year that the event had taken place - coincidentally on the 7th day of the 7th month, with the course crossing 7 Thames bridges! Most importantly, it was incredibly moving to see so many people coming together, holding their CRY balloons and wearing personalised T-shirts, to walk in memory or support of a friend or family member. It was also an opportunity for people to meet up with friends, CRY staff and those who have offered them support, as well as commemorating CRY’s ongoing work to help reduce the incidence of young sudden cardiac death. Walkers faced the searing heat and began congregating in the Victoria Embankment Gardens from around 9.30am, where members of the CRY team, as well as lots of enthusiastic volunteers, were waiting to meet and greet them. As well as many of CRY’s long standing supporters and participants in this flagship event, there were also many new faces and supporters who had made the journey to London having been affected by the tragedy of young sudden cardiac death, and an increasing number of families walking in support of a young person who has been identified with a heart condition - often through screening.

www.c-r-y.org.uk

Before the walkers set off - at the slightly later time this year of 11am - there were introductions and speeches from CRY’s Founder and Chief Executive, Alison Cox MBE and CRY Patron Kathryn Harries, who also led a minute’s silence. Kathryn first launched the event back in 2007 and has been a keen supporter ever since. This was followed by a warm up with fitness instructor Margaret Fernandes from Eden Health Fitness Club, Ealing, who kindly gave us her time and boundless energy (especially impressive on such a hot day!). The groups then quickly and quietly filtered through the park gates and took their first steps along the Thames, heading towards Hays Galleria, where CRY’s welcoming party awaited. At the finish, walkers were presented with a certificate of thanks and fresh fruit punch made - as in previous years - by volunteer Koula Louki. Of the event, CRY Patron John Barrowman, said: “I’m so pleased to be supporting the charity’s ongoing programme of activities and fundraising, especially its flagship event which took place on Sunday July 7th. Now in its 7th year, the Heart of London Bridges Walk has raised almost £370,000. It is a very moving day that brings together hundreds of people and families whose lives have been shattered by sudden cardiac death, but who share a commitment to raising awareness for CRY.” For more details and photos from the event visit: www.c-r-y.org.uk/bridges_walk_2013.htm

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CRY Heart of London Bridges Walk 2013

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Issue 61 | May to August 2013


CRY Heart of London Bridges Walk 2013

The event simply cannot happen without our dedicated army of on-the-day volunteers. A huge thank you to: Martin Appleby, Nigel Bennett, Paul Bishop, Daryl Bradbrook, George Button, Hollie Button, Nancy Button, Krisztina Cserhalmi, Fiona Cunningham, Philip Eastty, Vernon Elmes, Colin Gallagher, Barbara Holland, Jim Holland, Carl Johnson, Eunice Johnson, Stephanie Kennedy, Juliet Lamin, John Lawless, Erin Lee, Barbara Lidbury, Julie Lockton, Koula Louki, Irena McCabe, Maureen McGregor, Vanessa Morrison, Patsy Mourtzinos, Carol Nicholls, Tony Nicholls, Jo Pickard, Pete Robinson, Sue Robinson, Christine Rumley, Alison Stokes, Tony Stokes, Linda Taylor, Thomas Telford, Becci Upson, Julien Upson, Rowena Upson, Dave Walton, Sue Walton, Bex Wilkin, Lizzi Wood, Gerry Wright and Will Wright.

www.c-r-y.org.uk

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Prudential RideLondon-Surrey 100 Thank you and congratulations to the 27 CRY cyclists who took part in the first ever Prudential RideLondonSurrey 100 on Sunday 4th August 2013. The sun was out for most of the day, along with a lovely cooling breeze which we are sure all of the cyclists appreciated throughout the ride. The atmosphere was marvellous and it was delightful to see the cyclists enjoying picnics on the grass with the family and friends who came along to support them. The CRY cyclists included CRY Patron Matt Wells, who was the first to arrive at the meetand-greet point despite 4 punctures! All the CRY riders were welcomed back by CRY staff Rebecca Zouvani, Nicola Taylor and Cara MacMillan with drinks, snacks and a goody bag. Hopefully this gave everyone a little boost of energy after completing the 100-mile cycle. Alison Cox MBE, CRY’s Founder and CEO, was also able to come along for part of the day to talk to a few of the cyclists. It was wonderful to finally meet some of the CRY cycling team, as well as their family and friends, and to put names to faces. Leith Hill, rather than Box Hill, was found to be one of the toughest parts of the route. Its steep narrow pathways created a build up of cyclists at times, making the ride far more challenging. Despite punctures, aches, pains and extreme fatigue, everyone seemed well satisfied with the day.

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Issue 61 | May to August 2013


Prudential RideLondon-Surrey 100

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Prudential RideLondon-Surrey 100

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Issue 61 | May to August 2013


Prudential RideLondon-Surrey 100 The 27 cyclists in the CRY team were: Bill Badger

(cycling in memory of Jenny Kerwood)

Jamie Bailey

(cycling in memory of Max Sheppard)

Parminder Bansal

Paul Lambson

(cycling in memory of Mark Lambson)

Shlomo Levin

(cycling in memory of Joshinder Singh Manku)

Graeme Lucas

Andrew Barnes

Mark Needham

(cycling in memory of Philip Jefferies)

(cycling in memory of Matthew Beadle)

Damaris and John Darby

Simon Rigby

(cycling in memory of Chloe Waddell)

Alex Das

(cycling in memory of Lily Webster)

Thank you again to all of the CRY cyclists. We are very grateful to you all for taking on this gruelling challenge and for choosing to do so for CRY.

Sam Jones

Gary Donnelly Sonia Eld

Stephen Shaw

(cycling in memory of Ethan Jones)

Dave Tillyer Anna Warne

(cycling in memory of Liam Wood)

Kathryn Wass

Holly Fairclough

Robin Weaser

(cycling in memory of Richard Belton)

Steve Flight

Matt Wells

(cycling in memory of Benjamin Percival)

Thomas Williams

Aaron Hemsley

Patrick Winter

(cycling in memory of Matthew Blease)

Timothy Jackson

The Prudential RideLondon-Surrey 100 will take place on

10th August 2014 If you would like to cycle for CRY, please email events@c-r-y.org.uk for further details. We have a number of charity places, and we also welcome riders with their own place to raise money for CRY. If you would like a CRY charity place please contact us by Monday 28th April 2014.

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Our Fundraisers Corrections and apologies from Update 60 Apologies to family and friends of Robert Slade, as the last issue used an incorrect photograph as Robert’s likeness. Corrected entry below:

In Memory of

Robert Slade

Andrew Griffiths took part in the Llanelli Half Marathon and raised £563.

Apologies to family and friends of Adam Pearmine, as the last issue did not state that the funds raised by the Rotary Club of Romsey Test/District 1110 in October 2012 were for the Adam Pearmine Memorial Fund. Corrected entry below:

In Memory of

Adam Pearmine

The Rotary Club of Romsey Test/District 1110 sent in a donation of £600 in respect of the Walk the Testway event held in October 2012.

Marathon 2013 and sent further donations, making a total raised of £2,000.35.

In Memory of

Frances

• Katy Herbert took part in the Virgin London Marathon 2013 and sent further donations, making a total raised of £2,929.60.

• Rhodri Harris took part in the Virgin London Marathon 2013 and raised £676.65.

In Memory of In Memory of

Philip Abraham

The ‘Abraham Party’; Mary Abraham, Chris Abraham, Richard Abraham and Claire Piggott, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £160.

In Memory of

Robert Allan

• Michael Cave took part in the Virgin London

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Rob Allen

John Wells took part in the Virgin London Marathon 2013 and raised £313.35.

In Memory of

Marcus Armstrong

Tony and Jackie Armstrong sent in a donation of £526 in respect of the Marcus Armstrong Memorial Golf Day.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

Michael and Conor Arrigan completed the Tralee Marathon and raised £2,487.83. “Our brother, PJ Arrigan, died on the 18th March 2011. He was 38 years of age. He was very active and had a very healthy lifestyle; he would do a marathon in 3 hours. He was married, with two lovely daughters. He was driving a car to the airport, where he was due to come to my stag night with my brother. To cut a long story short, he never arrived. When we got to Poland we discovered loads of missed calls and found out that PJ had died en route to the airport. The word car crash was mentioned but I heard there were underlying issues.

• Richard Feist took part in the Virgin London Marathon 2013 and raised a further £710, making a total raised of £3,575.

PJ Arrigan

There was not a mark on his body and after talking to the Garda and doctors I was told that he most likely died before the car veered off the road. The post-mortem confirmed this. It was sudden adult death syndrome (SADS)! We both decided to get tested as we are both very active and have families of our own. Arrangements were made to visit the CRY units in London (Michael) and Dublin (Conor), where we both got full and comprehensive check-ups which confirmed there were no underlying issues. It was the peace of mind that was most comfort to me; I wasn’t a ticking time bomb that could go off any minute.

Stuart Attridge

• Mrs B Munro held a BBQ at Broadbridge Farm Riding Stables in Smallfield and raised £181.

In Memory of

Alan Bain

“The Bain Family raised £500 at a CRY Awareness Day with a raffle stall, held at the Kirkwall (Orkney) branch of Tesco, and also a family darts match in memory of their son and brother Alan Bain, who died suddenly on 23rd July 2011, from an undiagnosed arrhythmia. Alan had just turned 30.” Mrs K Bain.

In Memory of

Nicholas Barnes

By doing the marathon we wanted to raise more awareness of SADS and the excellent work done by CRY in Ireland and UK. A big thanks to all those who helped support me and Conor in the months running up to, and on the day of, the marathon itself. Your support and donations made the miles a lot easier.” Michael Arrigan.

Frances Barnes sent in a donation of £100 in respect of her jewellery-making.

In Memory of

Cecilia Barriga

Mike Fleet sent in a donation of £228.

In Memory of

Lewis James Barry

• Mark Barry’s colleagues at Zurich held a collection and raised £840. • Hannah Walker sent in a donation of £250.

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Our Fundraisers In Memory of

Matthew Beadle

• The Bromley District Scouts took part in a St George’s Day parade on Sunday 28th April and raised £850. CRY Representatives Carl and Eunice Johnson attended the event. “Bromley District Scouts held their annual St. George’s Day Parade on 28th April 2013, which the Mayor and Mayoress of the London Borough of Bromley, as well as MPs and other local dignitaries, attended. Approximately 1,800 young people and adult leaders formed the parade. As a youth organisation, it was decided to take a collection for CRY to further their research work and screening facilities.” Michael Brooks, Assistant District Commissioner, Bromley District Scouts.

In Memory of

Craig Beck

‘The myheart Group’; Paula Simmonds, Joseph Tanner and Charlotte Crosley-Lo, took part in the CRY Heart of London Bridges Walk 2013 and raised £146.

In Memory of

Liam Beeson and Joan Cooke

We have received a donation of £356.42 in lieu of floral tributes for the late Mrs Joan Cooke.

In Memory of

Richard Belton

Daniel Teasel raised £610 in respect of the Virgin London Marathon 2013.

In Memory of

Jemma Benjamin

• Lisa Darnell sent in a donation of £1,998.01 in respect of the fundraising evening by the cast of Starlight Express. • ‘Team Mum & Dad’; Tony and Lynne Beadle, took part in the CRY Heart of London Bridges Walk 2013 and raised £1,282. • Tony Beadle sent in a donation of £840.63, raised in respect of the bar, raffle and cake sales during the West End Fest.

In Memory of

Lauren Benjamin, Aimee Benjamin, Luke Benjamin and Charlotte Garwood took part in the CRY Heart of London Bridges Walk 2013 and raised £100.

In Memory of

Sarah Bennett

Rian Dewar took part in the Virgin London Marathon 2013 and raised a further £165, making a total raised of £1,774.20.

Richard Beaumont

• Rebecca Beaumont and Fiona Pook took part in the CRY Heart of London Bridges Walk 2013 and raised £257. • ‘Team Daddy’; Harley-Cole, Jaxon, Alana Osborne, Margo Osborne and Nanny Lulu took part in the CRY Heart of London Bridges Walk 2013 and raised £512.

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In Memory of

Robert Betts

Debbie Shells sent in a donation of £150, raised at her friend’s 60th birthday celebrations.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

Glen, Jackie and David Bicker sent in a donation of £340, raised in respect of the cricket match held on 30th June in memory of Steven.

David Birch, Ruth Birch, Jenny Barratt, Boyd Barratt, Jess Barratt, Chris Barratt, Pauline Moores, Andrew Moores, Deborah Walton and Donna-Maria Walton took part in the CRY Heart of London Bridges Walk 2013 and raised £100.

Steven Bicker

“The match was between Goodnestone Park Cricket Club (Steven’s old club) and my side, Glen Bicker XI, with my side winning a close match, with just seven balls left to bowl in the game.” Glen Bicker.

Ben Birch

In Memory of

Steven Blair and Mark Gallagher

Alan and Emma Blair took part in the Virgin London Marathon 2013 and raised a further £345, making a total raised of £3,948.47.

In Memory of

Graeme Blenkinsop

• The 7th annual football match in memory of Graeme was held on 15th of May, organised by Graeme’s friends. “It was a lovely sunny day and the lads had a great deal of fun playing the game and enjoyed catching up with each other afterwards.” Jan and Paul Blenkinsop sent in a donation of £600. • Miss L A Bryant sent in a donation of £100.

In Memory of

Major Lesley Susan Boden and Rosina Eleanor

In Memory of

Maxwell Biles

• James Fox, of the North Dorset 7’s, sent in a donation of £1,534.42 in respect of the rugby fundraising event held on 3rd August. • Nicola Brookes sent in a donation of £180 from the North Dorset 7’s.

www.c-r-y.org.uk

We have received donations totalling £2,113.90 in lieu of floral tributes for the late Major Lesley Susan Boden and her unborn daughter Rosina Eleanor.

In Memory of

Sarah Booth

Christine Booth sent in a donation of £250 to commemorate Sarah’s 18th birthday.

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Our Fundraisers In Memory of

• Dave Boulton sent in a donation of £100 in respect of the Big Bike Ride.

• Chelmer Valley High School held their annual teachers vs sixth formers football match and raised £193.

• June Boulton sent in donations totalling £400 in respect of Dave’s Big Bike Ride. £100 each was donated by Interworx Bristol Limited, Fromevale Limited, Windmill Leisure Limited and Trustease Residential Letting, Bath.

Daniel Boreham

• The staff at Lakeland, Chelmsford, sent in a donation of £299.33.

In Memory of

Eddie Boreham

We have received a donation of £560 in lieu of floral tributes for the late Eddie Boreham.

In Memory of

Jack Boulton

• Dave Boulton gathered a team of 10 cyclists to take on the challenge of cycling from Land’s End to John O’Groats in 13 days this summer in memory of his son, Jack. “Well, we have successfully completed our challenge. It truly was a most rewarding journey for us all - the sun shone, luck was on our side and although some of the climbs were tough it was a great adventure!

• June Boulton sent in further donations totalling £200 in respect of Dave’s Big Bike Ride. • Susan Sanderson, Unum, sent in total match giving donations of £735 in respect of Dave’s Big Bike Ride. • Laura Hayman raised £690 in respect of the charity football match held in memory of Jack. • June Boulton forwarded a donation of £1,726.50, raised by Saltford Football Club, in respect of ‘Jack’s Day’. • Pupils and staff at Wellsway School, Bristol, sent in a donation of £570.43. • The sixth form charity fundraising team of Wellsway School sent in a donation of £875.34. • Sam Wickham took part in the Virgin London Marathon 2013 and raised a further £1,859.45, making a total raised of £1,921.95. • Warren Davies took part in the Virgin London Marathon 2013 and raised a further £152, making a total raised of £770.

With more donations to come we’re confident we’ll reach our target of £20,000. We received a fabulous reception at Wellsway School on 2nd July and the mini CRYride challenge was a fitting tribute.

In Memory of

I’m pleased to say we’ll be holding a screening session at Wellsway School (Keynsham) in July 2014 and will cover 14 to 35 year olds. We’ll also consider a further screening session in 2015.

The postmen and women at the Whitchurch Delivery Office, Shropshire, held a football score predictor and quiz and sent in general donations raising £263.50.

The daily blog of our ride can be seen at www.cryride.co.uk and there are more photos available there.” Dave Boulton.

Ian Bowen

In Memory of

Sam Bradley

Emma Crossey sent in a donation of £700 from a masquerade ball: “Body Society Exeter is a university society dedicated to keeping fit and having fun - running exercise classes each week including Zumba, Yoga and Interval Training. To conclude our year, we organised an after exams

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Issue 61 | May to August 2013


Our Fundraisers masquerade ball with all ticket sales going to three charities that were specially selected by members of our committee. Cardiac Risk in the Young was selected as one of the charities to support in memory of my friend, Sam Bradley, who suffered from an undiagnosed heart condition and sadly passed away whilst playing football in 2008, aged 16. I have always remembered the support CRY provided in the aftermath, organising heart screenings for other family members. The masquerade ball was held at the lovely Reed Hall at Exeter University and was attended by 90 individuals, all wearing exquisite masks. Opening with a fabulous champagne and canapé reception with music from the University Jazz Band, the 90 attendees then enjoyed a delicious main course and dessert with entertainment from a table magician. A chocolate fountain was open for use all night whilst music played into the early hours. The night raised £700 for Cardiac Risk in the Young and we hope that this money can in some way support the valuable work CRY carries out.”

In Memory of

Dave Bramwell

Lesley Young completed the Edinburgh Half Marathon and raised £645: “I ran the Edinburgh Half Marathon for CRY in 2 hours 44 minutes. Although I’m not a fast runner, I nevertheless did run every step of 13.1 miles and it meant a lot to know that I had so much support and encouragement.”

In Memory of

Wesley Bray

Robert Tan completed the Ridgeway Challenge and raised £898.

In Memory of

Emma Broad

• Julie Wright sent in a donation of £960 in respect of sponsorship for the Mount Toubkal Trek. “Julie Wright, Richard Wright, Jessica Tait, Simon Tait, Camille Cooke, Kevin Cooke, Richard Peers, Irena Tucker and Huw Tucker climbed Mount Toubkal (4167m) in Morocco in memory of our friend Emma Broad who died in May 2011, raising over £21,000 for CRY. On Saturday May 4th 2013 nine slightly anxious ‘would be’ mountaineers met up at Gatwick to set off for Marrakech. Our long planned two day climb of Mount Toubkal, the highest of the Atlas mountains, was now upon us. Our training was complete. Would our many walks in the Surrey hills, and for some a Snowdon climb, have prepared us for what was ahead? We arrived in Marrakech and quickly met up with our driver

www.c-r-y.org.uk

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Our Fundraisers who took us to the mountain village of Imlil, our base at 1700m. We settled into our kasbah for the night, men in one room, women in the other. The following morning, fully charged with mint tea, we started a seven hour walk up to the remote Refuge du Toubkal (3200m) where we would spend the night. We carried our day provisions with us, our overnight gear was carried by mules. Progress was steady, the mountains around us were sublime. We arrived mid/ late afternoon. Our guides prepared our evening meal and then the nine of us shared a very compact dormitory for the night. Despite all of us needing a good rest (we had a very early start the next day) very little sleep was had by any of us. We weren’t sure if this was due to our proximity to one another, or the altitude! We woke at 4.30am, and with our head torches on we left at 5am. We immediately encountered a long steep climb and with only our torches to guide us progress was slow. We were rewarded an hour or so later with some fantastic scenery as dawn broke. The ascent was relentless, taking us through deep snow and across never ending boulders. Eventually at around 10.30am, five and a half hours after leaving the refuge, we made it to the peak at 4167m. Summiting was an emotional experience; we got Emma’s picture out (as well as the CRY banner) and reminded ourselves why we were there. She would have been very proud. Despite a clear blue sky, the cold began to kick in quickly so we soon began our descent believing the worst was over… but coming down proved to be even harder! We made it back to the refuge by 2.30pm for a quick lunch before carrying on back down to our base at Imlil, a further five hours away. Eventually we made it back to our Kasbah at 7pm, some 14 hours after our day had started. We were elated to have successfully completed our challenge, Emma had definitely been there with us pushing us up the steep sections! We compared our blisters, packed up our gear and met our driver who was taking us back into the heart of Marrakech, 60km away, for two days’ recovery in a Moroccan riad.

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We are very grateful to all who sponsored us, we were overwhelmed by everyone’s support, thank you. Your money was well spent. It was certainly a huge challenge, but more importantly the good work which CRY can do with the funds we have raised will help prevent such tragic circumstances happening in the future.” Richard Wright. • Jessica Tait sent in sponsorship donations totalling £270 in respect of the Mount Toubkal Trek. • Julie Wright sent in a matched giving donation of £1,837.41 from Microsoft in respect of the fundraising by Richard Peers. • Keith Wallis, Surbiton Hockey Club, sent in a donation of £377.54 raised at the recent charity day. CRY Patron Alison Waters took part in the ‘Hockathon’ and talked about the work of CRY. “On Saturday 29th June, 90 pupils and members of staff took part in the inaugural Surbiton High School 12 hour ‘Hockathon’ which took place at the newly opened Oaken Lane Sports Facility. Students from years 7 to 13 participated and competed alongside staff in two teams for the chosen charities. The ‘Green Team’ represented CRY and the ‘Silver Team’ represented Youth Sport Trust (YST). The money raised was split equally between these two charities. The girls very much enjoyed playing and competing with girls in other age groups as well as a number of staff including Mr Edmonds, Mr Martin, Mr Smith, Ms Woodall and Mr Dodd. They were absolutely delighted when Principal Ms Haydon joined in and scored her first ever hockey ‘hat-trick’! We were also very honoured to be joined by two patrons from the charities, Alison Waters from CRY and Jeanette Kwakye from YST, and would like to thank them for their participation.

Issue 61 | May to August 2013


Our Fundraisers The score remained close throughout the day with the lead changing numerous times. Thanks to some competitive year 9’s with fresh legs after lunch, the game kept its pace and competitive nature all day. Final score was CRY 60-53 YST. Congratulations to everyone who took part in making the ‘Hockathon’ such a successful and enjoyable event. Special mention goes to 6th Form pupils Susie Bird, Mariella Blackmore, Nancy Picton, Bethan Baxter, Steph Gunn and Jenny McGowan-Downey for completing the full event. Special thanks go to Mr Smith, Mrs Leckie, Mrs Verity and Mr Fisk for helping the event go so smoothly and to all who donated. The total currently stands at just over £4000 with more sponsorship forms to come in.” Ms Haydon commented: “Wonderful atmosphere for 12 hours of the ‘Hockathon’. It was truly humbling to see pupils and staff enjoying themselves and playing sport whilst raising a substantial amount of money for two worthy charities. The event epitomises the Surbiton spirit. My thanks go to all those involved but especially Mr Culnane, Head of Hockey, for masterminding the event.”

In Memory of

Carolyn Louise Broussely

• We have received a donation of £173 in lieu of floral tributes for the late Carolyn Louise Broussely. • Marc Broussely, Michel Broussely, Bernadette Broussely, Clare Holden and Franc Tebillac took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £260.

In Memory of

Dominic Brown

Jamie Brown took part in the Virgin London Marathon 2013 and raised a further £220, making a total raised of £2,887.22.

In Memory of

Katrina Brown

• CRY Patron Bill Neely took part in the Virgin London Marathon 2013 and raised £4,445.60. • Louise Akhurst took part in the Virgin London Marathon 2013 and raised a further £1,060.13, making a total raised of £2,522.13. • Caroline Jones completed the Three Peaks Challenge and raised £135.

In Memory of

Michael Vernon Broadhurst

We have received a donation of £195 in lieu of floral tributes for the late Michael Vernon Broadhurst.

In Memory of

Steffani Broughton

Ian and Irene Broughton took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £870.

www.c-r-y.org.uk

• Mr & Mrs Howard sent in a donation of £100 in respect of Steve Wallaker and the Three Peaks Challenge.

In Memory of

Stephanie Browne

Astrid and Richard Browne donated a total of £880 from their fundraising event on 20th July: “A fundraising event was held in Silsoe on July 20th in remembrance of our daughter in law who died suddenly aged 34 of undiagnosed hypertrophic

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Our Fundraisers cardiomyopathy. She was 16 weeks pregnant with a second child and died in August 2011. The idea of tea and cake grew and grew until we were hosting almost a garden fête, with a raffle, tombola, cake, craft and a CRY stall as well as some music and singing during the afternoon. About 90 people came and the total money raised, which also included donations, came to £880. It was a most enjoyable afternoon.”

On May the 19th I then ran the fun run with four friends - Francesca Fleet, Thalia Baylis, Chloe Holes and James Cundy. All five of us were wearing matching CRY T-shirts and red accessories to stand out from the crowd. I had family and friends at the start and finish line who were supporting me and cheering me on. Six years ago my family raised enough money to buy a 24 hour heart monitor for SADS; this year I have raised over £1000 and every penny will go to CRY. From school alone I raised nearly £600 of that total. In a few years time I plan on doing some more challenging activities to raise money and awareness for this charity.”

In Memory of

Daniel Brydon

Joel Brydon took part in the Virgin London Marathon 2013 and raised a further £120, making a total raised of £3,469.21.

In Memory of

Francean Buckland

Freya Buckland completed the Hook Fun Run and raised £407: “As I have grown up I have begun to take more and more interest in the condition that my mum died of and so I decided that I should try and raise money to donate to CRY for screening, awareness and research. Whilst raising the money I also raised awareness throughout Robert Mays School that I attend, which caters for students aged between 12 and 16. At school I raised money by hosting a cake sale. Friends and teachers at school also sponsored me for the Hook Fun Run which I was running a few weeks later.

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Issue 61 | May to August 2013


Our Fundraisers In Memory of

Alex Buckler

Mrs M Juneman sent in a donation of £216 in respect of the coffee morning held in memory of Alex.

In Memory of

Dr Jennifer Bucknell

• Ann and Dorian Mead took part in the Virgin London Marathon 2013 and raised a further £1,656, making a total raised of £2,652. • Hillary and Bill Durrant sent in donations totalling £248.62: a personal donation of £126; and a donation from the Horton Millennium Committee of £122.62.

In Memory of

Isaac Ruben Burdett

• Mark Chellum completed the Bexhill Half Marathon, the Brighton Half Marathon, the Bath Half Marathon and the Brighton Marathon and raised £1,595. • Oliver Burdett completed the Brighton Marathon and raised £5,203. Oliver Burdett also sent a matched giving donation of £250 from ICAP. Total raised: £5,453.

In Memory of

Craig Burke

Janine Curran completed the Liverpool Half Marathon and raised £300.

In Memory of

Robert Burns

Doreen, Jimmy and Paul held a five-a-side football tournament in memory of Robert and raised £1,200.

www.c-r-y.org.uk

Nathan Butler Angela Butler sent in donations totalling £230: “Nathan’s dad, Phil, organised a sports quiz on 5th April attended by around 50 people, which was a great night of fun and raised £130. A friend of mine, Karen Brereton, works at Staffordshire Police, where they have a tuck shop and the money raised is donated to a different charity each month. For the last month they raised £100 which they have kindly donated to CRY.”

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Our Fundraisers In Memory of

Nathan Butler and Liam Wood

Adam Lawton took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £1,942.

In Memory of

Michael Cadman

Dean Cargill sent in a further donation of £150 in respect of the Lily Pond single in memory of Michael.

In Memory of

Darren Casement

Tracey Greaves completed the Deep River Rock Belfast Marathon and raised £931.53.

In Memory of

Adele Cashman

“Emily ran the Edinburgh Marathon on 26th May, with three other girl friends, in memory of Adele Chasman who sadly died, aged 30 years, on 5th November 2012.” Elaine Charlesworth (Emily’s mum) sent in a donation of £435.

In Memory of

In Memory of

Stephen Carey

Graham Lewis Cataldo-Davies

Joy Bowman sent in a donation of £500 from family and friends.

In Memory of

Jake Carney

“My sister-in-law Jane Carney and a couple of work colleagues ran the Manchester 10K race. None of them were runners, but trained very hard and managed to raise a grand total of £370.” Mr D Carney. Jane Carney added: “We decided to do the race hoping it would help us get fit and raise some money. We all agreed to run for CRY in memory of my nephew Jake Carney. Surprisingly for Manchester the weather was really sunny and the atmosphere was amazing. I have never run before and hope to try and keep running as I really enjoyed it.”

The Lincoln College Oxford JCR charity fund sent in a donation of £225.

In Memory of

Paul Caudery

• Stephanie Allen completed the Marathon Des Sables and raised £1,495. • We have received a matched giving donation of $151.03 from Google in respect of Stepanie Allen and the Marathon des Sables.

In Memory of

Anthony ‘Budgie’ Child

Chris Gordon completed the Deloitte Ride across Britain and sent in £215.

In Memory of

Phillipa Chowne

Team ‘4 Pip’; Lisa Chowne, Andrew Chowne, Neil Hoose and Ruth Hoose, took part in the CRY Heart of London Bridges Walk 2013 and raised £200.

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Issue 61 | May to August 2013


Our Fundraisers

daughters, Erin and Sadie, and Cheryl’s little boy, Freddie.

In Memory of

Trina Christopher and Cheryl Christopher-Webber

• ‘Team Trina and Cheryl’; Vivienne Christopher, Roy Christopher, Jacqueline Foster, Alan Webber, Marian Webber, James Webber, Stephen Tulip, Hannah Bell, Anne Blythe, Clare Emily Carr, Emma Connell, Julie Wilkinson, Helena Lancaster, Lee Wainwright, Ian Lancaster, Claire Davies, Gareth Davies, Martyn Denny, Lone Jensen, Julia Dickinson, Mark Dickinson, Jenny Dikomite, Jamie Dikomite, Paul Fairhurst, Tima Judic, Jodi Feehan, Ian Ferguson, Irene Forgie, Jimmy Forgie, Laura Gibbs, Harry Gibbs, James Goodyer, Niamh Goodyer, Lorraine Heath, Gayle Cole, Alison Brown, Jenny Ponting, Ellen Hinton, Michael Hinton, Amy Johnson, Sally Pickford, Maggie Longstaff, Gary Longstaff, Amy McConville, Steve McConville, Chris Merchant, Daphne Merchant, David Merchant, Katherine Merchant, Lindsey Miller, Paul Nowak, Sally Nowak, Eoin O’Flynn, Natasha O’Mahony, Julia Parkinson, Lisa Pennington, Matthew Doherty, Vicky Ravenscroft, Nicola Richardson, Stuart Richardson, Natalie Sharp, Jackie Stoves, David Tansey, Trina Taylor, Tracy Boegli-Taylor, Beat Boegli-Taylor, Natasha Tubbritt, Theresa Wade, Simon Ray, Dawn Welch, Tony Ashcroft, John White, Karen Lee, Jonathan Southam, Ceria Southam, Nicola Porter, Andrew Wright, Wilawan Horsham, Brian Horsham and Laura Greaves, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £13,240.70.

The group was led by Trina and Cheryl’s mum, Vivienne, following the deaths of the sisters from previously undiagnosed heart conditions: Trina in 2005 and Cheryl in 2012. Amongst the walkers were Trina’s two

www.c-r-y.org.uk

• Jill Potter completed the Women’s 10K in Blackpool and raised £270. • Eccleston St Mary’s COE Primary School sent in a donation of £150, raised by the Year 6 pupils during a recent production. • Shabaz Ahmed, AA Law Solicitors, sent in a donation of £500.

In Memory of

Tom Clabburn • John Stanton, Regeneration & Housing RBE, sent in a donation of £1,291.65 raised in respect of sponsorship from the Ealing Council Apprentices wearing ‘onesies’ in memory of Tom.

During this year’s National Apprenticeship Week (11-15 March), the theme was ‘Apprentices Deliver’. To celebrate the week, apprentices at Ealing Council undertook the challenge to wear a onesie to work for a whole working day, raising money for a nominated charity.

CRY was chosen as the nominated charity, as

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Our Fundraisers

some of the apprentices had previously been involved with CRY and had witnessed some of the fantastic help and support they offer.

thinking of Tom kept me going.

One of those taking part, John Stanton, was a close friend of Tom Clabburn, from Ealing, who died of an undiagnosed heart condition in 2007 at the age of 14.

Panos and I have had so much support from family, friends and Munson’s customers and that has been wonderful and motivating.

“Tom and John were very good friends and we’re extremely grateful to John and his colleagues for thinking of CRY.” Paul Clabburn (Tom’s dad).

We are thrilled with the money raised and being able to help to fund more free heart screenings for young people in Ealing.”

• Vicky Pearson sent in £100 in respect of the Ealing Eagles 10K (Munson’s Coffee Running Crew). Panayiotis Sinnos - barista at ‘Munson’s Coffee and Eats’ in St Mary’s Road, Ealing - Vicky Pearson and her niece Lucy Gillett took part in the Ealing Eagles 10K at Gunnersbury Park on Sunday May 19th. Ms Pearson, a family friend of Tom, who died aged 14 in 2007 from an undiagnosed heart condition, said: “If someone had said to me in January that I’d be running a 10K in May, I’d have laughed it off as madness. However it’s amazing what can come from a throwaway line over a cup of coffee. I’m new to running and there were many ‘never again’ times on the run and Gunnersbury has some sneaky hills but

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Mr Sinnos added: “Vicky could barely run 1,000 metres four months ago and now she’s completed the longest run she’s ever done. She’s an inspiration to all of us.” Tom Clabburn’s mum, Claire Prosser, said, “We really appreciate the efforts of Vicky, Lucy and Panos. Vicky’s family and Munson’s have been a great support to me and to CRY over the past few years, helping us raise thousands of pounds.”

• Claire Prosser sent in a donation of £875 in respect of the recent book sale outside Munson’s Coffee and Eats in South Ealing in memory of Tom.

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Our Fundraisers

The money raised will fund heart screenings for young people in Ealing.

“I’m very grateful to family and friends for turning out on such a wet and windy day and once again to Munson’s for all their support.” Claire Prosser

• ‘Team Tom’; Paul Clabburn, Claire Prosser, Ellen Clabburn, Neil Prosser, Samantha Prosser, Ruth Arulanandam, Romello Arulanandam, Helen Barnes, Wendy Andrews, Gina Bentley, David Bentley, Tim Carpenter, Baerbel Carpenter, Alastair Clunas, Anne Guillot, Angelique Halliburton, Jacky Herns, Shane Samarawikrema, Sue Howells, Andy Howells, Faith Howells, Danny West, Claire Matthews, Pete Matthews, Grace Matthews, Alison Montgomery, Peter Scott, Linda Panzer, Gottfried Panzer, Anne Marie Reilly, Jim Ballantyne, Kate Riley, Robin Gould, Alan Rodney, Helen Lewis, Stephanie Smith, Tess Gomm, Jack Ewins, Mervyn Fletcher, Suzanne Fletcher, Lisa Neaverson, Tony Birse, Hazel Easterbrook and Jamie Sanders, took part in the CRY Heart of London Bridges Walk 2013 and raised £1,387.

• “After 5 days of cycling in a searing heat wave throughout the UK, the whole team completed the Investec Ashes Cycle Challenge with a smile on their face and a tear in their eye!

I only did 3 days due to childcare arrangements, but it was a privilege to be involved in the event. It was certainly a challenge and slightly harder than we all expected, particularly over the Pennines and Peak District hills in the 30+ degree heat.

I’m delighted to confirm that due to everyone’s generosity we should have raised around £250,000 for various charities. I have raised £2,615 - or £2,888.75 with Gift Aid - of which 75% will go to CRY and 25% to the official charity of the event, the Lord’s Taverners.

I did the ride to raise funds for CRY in memory of my late brother Nick. Nick died 18 months ago at the age of 37, from what we later found to be a blocked artery which caused his heart to stop. There were no prior symptoms, just a sudden cardiac arrest whilst he was sleeping.” Christopher Clay.

In Memory of

Nick Clay

• Miss A M Harding sent in a donation of £400 in respect of the Investec Ashes 2013 Cycle Ride in memory of Nick.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Ian, Andrew and Iris Cooper

Barrie Cooper sent in a donation of £240, in lieu of floral tributes, in memory of his mother, Iris, who recently passed away.

In Memory of

Daisy Cope

Mr & Mrs Cope sent in a donation of £920 in lieu of floral tributes for their daughter, Daisy.

In Memory of

Craig Cowland

Lawrence Warman completed the Tough Mudder on 8th June and raised £322.

In Memory of

Richard Credland

Sandra and Vicky Credland took part in the CRY Heart of London Bridges Walk 2013 and raised £100.

In Memory of

Robert Crozier

In Memory of

Lynne Corden

• Edna Beadsmoore sent in a donation of £9,114, raised in respect of the golf day on 5th May in memory of Lynne. • Barclays Bank sent in a matched giving donation of £3,000 in respect of the golf day in memory of Lynne on behalf of Charlotte Harrison, Carol Hayford, Emily Torr and Anne Beadsmoore.

In Memory of

Christopher Joseph Cosgrave

Louise Crozier and Thomas Eden took part in the CRY Heart of London Bridges Walk 2013 and raised £252.

In Memory of

Dominic Cullen

Kate Edginton sent in a donation of £666.66: “In November 2012 Westbury-on-Severn Young Farmers Club held our annual bonfire night raising money for charities. Despite the poor weather we ploughed on through and had a record-breaking number of people through the gates.”

We have received a donation of £257.87 in lieu of floral tributes for the late Christopher Joseph Cosgrave.

In Memory of In Memory of

Bruce Cousins

• Jackie Cousins sent in donations totalling £425: £152 raised at a spring plant sale; £127.50 raised at a summer bring and buy stall; and £145.50 raised at her recent collectables stall.

Simon Cullum

• Marilyn Cullum sent in a donation of £191, raised at the Gorleston Clifftop Gala. • Team ‘The Daddy’; Marilyn Cullum and Judy Burton, took part in the CRY Heart of London Bridges Walk 2013 and raised £120.

• Jackie, Alan and Hannah Cousins took part in the CRY Heart of London Bridges Walk 2013 and raised £111.

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Issue 61 | May to August 2013


Our Fundraisers In Memory of

Stuart Cutler

Natalie Cutler sent in a donation of £157: “This money was raised by our six year-old grandson, Kai. He had a stall at the Trinity Baptist Church Craft Fair at which he sold earrings made from Lego bricks, pony necklaces and window hangers made from Hama beads. He spent months working with his mum making things to sell. Kai was only two years old when his Uncle Stuart died and gave out lots of CRY leaflets during the three days the fair was on. We were very proud of him.”

In Memory of

Ben Daniels

• Samuel Tyler took part in the Virgin London Marathon 2013 and raised a further £1,730.30, making a total raised of £3,673.72. • Ravens Wood School held a nonuniform day and raised £264.25. • Jacqui Gough, Jamie Gough, Gerard Gough, Maddie Barron, Jo Wright, Dene Houlden and Michael Wright took part in the Virgin London Marathon 2013 and raised £115.

In Memory of

Karl Deal

Chris Deal took part in the Virgin London Marathon 2013 and raised a further £125, making a total raised of £1,415.

In Memory of

Claire Dee-Shapland

Nick and Eve Dee-Shapland took part in the CRY Heart of London Bridges Walk 2013 and raised £190.

In Memory of

Matthew Dewhirst

• Sue and Chris Dewhirst sent in the following donations: £782 in respect of the Harry Whitehouse skydive and £376 from Michelle Potts and the ‘Buy for CRY’ event; totalling £1,158. • Jo Whitehouse completed a skydive and raised £1,376.50. • Sue and Chris Dewhirst sent in a CAF donation of £200 in respect of the sponsored row on 7th September. • Samuel Lewis completed the Zambezi River Challenge and raised £654.

• The students, parents and staff at Ravens Wood School sent in donations toalling £2,526.45.

In Memory of

• Old Wilsonians’ Cricket Club completed the Bromley My Time Cycle Challenge and raised an additional £1,155 making a total raised of £1,293.50.

• Project One Consulting sent in a donation of £500 in respect of Jackie Hassell’s fundraising in memory of Aaron.

• Sam Durman completed the Men’s Health Survival of the Fittest Challenge and raised £140. • We have received a donation of £143 from A & H Farmer.

www.c-r-y.org.uk

Aaron James Dixon

• Deborah Dixon completed a skydive and raised £351.53.

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Our Fundraisers In Memory of

Adam Donnelly

• Barry Dennis took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £2,289.10. • ‘Team Donnelly’ and the ‘Twickenham Criers’; Jed Donnelly, Sian Donnelly, Lisa Donnelly, Jeff Hewitt, Julie Donnelly, Rachel Hewitt, Cheryl Morgan, Rochell Apbs, Karen Hawes, James Johnson, Amanda Vuong, Martin Anyim, Angie Borzychowski, Ciorsdan Taylor, Rachael Lawton and Many Norton, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £510. • Sophie Cooke completed the Bogle Stroll and raised a total of £425.

In Memory of

Adam Drawbridge

Les and Sarah Drawbridge took part in the CRY Heart of London Bridges Walk 2013 and raised £500.

In Memory of

David Eastty

Linda Eastty, Margaret Clark, Diana Yorke-Wade and Roger Boston and raised £380.

In Memory of

Sebastian English

• Camilla Keates raised £345 in respect of the Virgin London Maratheron 2013.

• Jackie Saunders sent in a donation of £500. • Tom Tardif, Hazelveare House, Lord Wandsworth College, sent in a donation of £109.01.

In Memory of

Sean Farrell

Ian Richards has forwarded donations totalling £210 in respect of the recent screening in memory of Sean.

In Memory of

Harry Faulkner

• Richard Horswill ran 100 lengths of a squash court and raised £240. • Joe Staunton sent in an additional donation of £239.26 in respect of the ‘Squashathon’ in memory of Harry, making a total raised of £724.26. • Donna Faulkner sent in a donation of £1,443.35 raised at the recent memorial day in memory of Harry. • Kian Guerzoni sent in sponsorship donations totalling £571.71 in respect of the 2013 Rome Marathon: It was an absolutely fantastic day, with over 13,000 runners taking part - although it was a slow start to the run because of the large numbers, it was an incredibly enjoyable one once you got going, passing famous places in Rome such as the Olympic Village, Piazza Venezia, Piazza del Popolo, the Spanish Steps, the Trevy Fountain and, of course, the Colosseum where we started and finished the race.

The crowd support was incredibly helpful with military bands setting a tempo, rising DJs pumping inspirational themes and the general population of Rome shouting encouragement to everybody as they went along - all of this boosted by the presence of even more people given the recent Papal elections and the Ireland - Italy match for the Six Nations.

Overall, it was an incredible experience and in a weird way I still can’t believe I’ve actually run a

• Olivia and David Chapple sent in a donation of £100 in respect of Steph Hunter’s 50th birthday. • Mr G Owens sent in a donation of £200 in memory of his late wife’s great nephew, Sebastian, who would have celebrated his 25th birthday in June.

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Issue 61 | May to August 2013


Our Fundraisers

a weird way I still can’t believe I’ve actually run a marathon - the only thing that makes it real to me is the medal that is sitting proudly in my room and the running bug that led me to look up more marathons for the future...

In Memory of

Josh Fell

• Nick Prout completed a three day cycling event in the French Alps and raised £525.

It was a pleasure to do this to raise money for CRY.”

• Rich Fell sent in total donations of £1,593 which was raised at the Ex-Tigers Charity Football Match and Family Fun Day held on 5th May in memory of Josh, and £45 donated from a coffee morning after an over-sixty keep fit session. • Donna Fell sent in a donation of £2,910 raised during Josh’s Memorial Day on 5th May. • Rich Fell sent in donations totalling £350; £250 from the Ale Festival and £100 as a donation from Rich’s employer to commemorate his 25 years of service. • Donations totalling £204 were received at the recent screening in memory of Josh. • The Yorkshire Follies sent in a donation of £250. “We are a bunch of relative strangers who have come together to achieve something special. We all want to change our lives, become fitter and make a difference whilst raising funds for worthy causes.” Ray Birch. • Reckitt’s sent in a donation of £1,000.

In Memory of

Josh Fell and Mr Thomson

Rich Fell sent in a funeral donation of £335 in memory of the late Mr Thomson.

In Memory of

Therese Field

• William Gilbey sent in a donation of £468.50 raised in respect of his 24-hour Challenge which consisted of a 12-hour swim and 12-hour cycle.

www.c-r-y.org.uk

• Tara Field sent in a donation of £600, raised in respect of a staged musical theatre compilation evening ‘One Singular Sensation’ in memory of Therese. Tara Field additionally held a

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Our Fundraisers charity show and a raffle in June and raised £120, making a total raised of £720. • Dane Court Grammar School sent in a donation of £445.23 raised from the Great Cake Bake, non-school uniform days and other events.

In Memory of

tickets for us, they sold all the tickets and now said they will double the £915.

Every single penny from the raffle and auction went to CRY because Elise Fleetwood is a close friend of Andy’s sister. Thomas Fleetwood, Elise’s husband, sadly passed away unexpectedly on 18th October 2011 aged 28 - the coroner could only explain his death as a result of sudden adult death syndrome.” Jackie, ‘Andy Wilsher Sings’.

Thomas Fleetwood

• Elise Fleetwood took part in the Virgin London Marathon 2013 and raised a further £861, making a total raised of £3,771.60. • Elise Fleetwood sent in a donation of £500 in respect of the 30th birthday celebrations. • Richard Patient took part in the Virgin London Marathon 2013 and raised a further £861, making a total raised of £3,671.60. • On Friday 17th May, ‘Andy Wilsher Sings’ held a tribute night at the Witham Public Hall in memory of Thomas Fleetwood. Andy Wilsher performed numbers from Michael Buble and Robbie Williams and the night raised £2,776. “On Friday we held a Michael Bublé and Robbie Williams tribute night. 230 guests attended and the night was a huge success! We thought we would hold a raffle in between so I started collecting prizes. We ended up getting some amazing prizes including hotel stays, family photo-shoots, facials, and golf days. We also got some signed photos from This Morning, Celebrity Juice, signed footballs with photos etc... so we decided to do a silent auction for some of the prizes. In the end we had 50 raffle prizes and 18 auction prizes!

We raised £915 on the raffle and £473 on the auction.

Then I found out that Barclays will double your raffle money if they sell the tickets, so we asked four Barclays employees to come along and sell

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• Gary Pick sent in a donation of £280 in respect of the charity football match.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

Nolan Foley

Jane Barrow took part in the Virgin London Marathon 2013 sent additional donations, making a total raised of £801.20.

In Memory of

Andy Forbes

Mark Anderson took part in a charity football match and raised £800.

In Memory of

Sophia Forrester

George Gaunt completed the Lincoln 10K and raised £100.

In Memory of

Dave Forway

was determined to complete it regardless of how long it would take. I chose to support a smaller heart related charity, hence why I chose CRY. Specifically, I chose to raise funds for the Joanne Fotheringham Memorial Fund within CRY. Joanne, a friend and fellow pupil at Ullapool High School in the north of Scotland, passed away suddenly in April 1997 aged just 24 from a hidden heart defect. She was a Gaelic Medium Primary School Teacher on the Isle of Lewis at the time of her death. Since then, her parents, Alex and Fraser, have worked tirelessly raising funds to enable local screening of young adults in an attempt to detect anyone with a hidden heart defect. The money raised from Joanne’s fund has enabled a third screening of young adults to take place in Ullapool in May 2013. I completed the marathon in 4 hours 19 minutes and 52 seconds and I was so delighted and so happy to have raised money and awareness of CRY. I raised £1,835 on my Virgin Money Giving page, and with offline donations and Gift Aid the total should be in the region of £2,200.”

Sally Forway, Denise Forway, Steve Busby and Zena King took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £415.

In Memory of

Joanne Fotheringham

Julian Peukert completed the Edinburgh Marathon and raised £1,835: “Following the sudden death of my mum Christine Peukert on 1st November 2011 from a heart attack, I decided I wanted to do something positive and at the same time challenge myself and get a bit healthier. I decided to run the Edinburgh Marathon on Sunday 26 May 2013 in memory of my mum. I had never done a marathon before so a lot of training was needed but I

www.c-r-y.org.uk

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Our Fundraisers Many thanks for their help and to all the people who willingly gave up their time to bake cakes, donate raffle prizes, and run the raffle.

In Memory of

Isaac Fowler

Accord Office Supplies sent in a donation of £250 in respect of their recycling projects. Helen Fowler nominated CRY.

In Memory of

Rhian Nadine Fry

• Colleen Fry raised a total of £500 in respect of the event at Maresfield Village Market:

Thank you to Mr and Mrs Budd for their donation of £100. Also a special mention to Nicole Budd who doesn’t just bring one cake to an event, she brings loads.”

• Colleen Fry sent in additional donations totalling £530: £250 raised by Uckfield & District Lions Youth Club; £180 raised from an open garden charity afternoon on 19th July; and £300 raised in respect of a jazz party.

In Memory of

Jake Gallagher

• Sarah Pyatt sent in a donation of £605 in lieu of floral tributes for her son, Jake. • Sarah Pyatt, Linda Holland and Shanenee Rogers took part in the CRY Heart of London Bridges Walk 2013 and raised £250.

In Memory of

Lauren Gallagher

Blanche Gallagher sent in donations totalling £238: Centra Stores raised £100 from their collection box; and the staff at Ulster Bank held a ‘Come Dine with Me’ event and raised £138.

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“Maresfield Village Market on 6th April was held to help raise funds for the future heart screening of 6th form pupils at Uckfield’s Technology College in East Sussex. Heather Park (left), Poppy Damazer (centre), Bethany Batson (right) and Alicia Kent helped out on the day and raised well over £100 serving refreshments to the local villagers and £500 was raised towards this screening project.

In Memory of

Sarah Elizabeth Gamble

Sarah Mankelow completed the Nottingham Half Marathon and raised £320.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

• Donations totalling £160 were received at the recent screening.

Steve Watson completed the Just Walk event and raised an additional £222, making a total raised of £382.

Andrew Gard

Lisa Clare Goddard

• Caroline Gard sent in a further donation of £3,108.81 which represents ongoing fundraising during her year as Lady Captain of the Frinton Golf Club, making a total raised of £4,058.81.

In Memory of

Stephen Gately

• Tony Gately completed a skydive and raised £616.17. • Olaf Bitter, Lenie Keizer, Heidi Lee, Debbie Woolley, Silvia Wunsch, Ivan Mostyn-Scott and Catherine Mostyn-Scott took part in the CRY Heart of London Bridges Walk 2013 and raised £160.

In Memory of

Philip Goillau

In Memory of

Eamon Gavaghan

Kieran Knowles took part in the Virgin London Marathon 2013 and sent in further donations, making a total raised of £2,200.06

Tom Steggall sent in an additional sponsorship donation of £130 in respect of the half marathon he ran in memory of Philip, making a total raised of £717.

In Memory of

Ashley Goodwin

In Memory of

Salena German

Jackie German sent in donations totalling £279 from the collection box in her brother’s village shop.

www.c-r-y.org.uk

“I enclose a cheque for £282 from the Gloucester Youth Football League, for whom I have been a Committee Member for 29 years (15 as Chairman) before retiring earlier this year and being elected President. The money represents a bucket collection taken on the door at the League’s recent presentation evening.” Geoff Goodwin.

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Our Fundraisers In Memory of

In Memory of

Team Lianne; Sophie Thomas, Keiran Walker and Carole Walker, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £225.

• Fiona Campbell completed the Bognor Prom 10K Road Race and raised £184.

Lianne Gould

David Green

In Memory of

• We have received a donation of £151.10 in lieu of floral tributes for the late Sheila Green (David’s grandmother).

The pupils of St Edward’s Primary School held a fitness day and cake sale and raised £517.50.

In Memory of

Jordan Grant

In Memory of

Darren Greeves

Tracey Greeves sent in a donation of £510.

Adam Green

• Tom and Judy Green sent in donations of £170 raised by Will Webster and Stan Lowe who completed the Market Drayton 10K in memory of Adam. Shown in the photo are Chris Sanders, Tom Sanders, Will Webster, Stan Lowe and Molly Lowe.

In Memory of

Oliver Griffin

• Chloe Hughes took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £752.61. • Halliford School, Shepperton, held a family fun day and raised £825.

In Memory of

Rochelle Grogan

• ‘Rochelle’s Rubies’; Sophie Grogan, Sharon Thorpe, Mehmet Ahmetoglu and John Burton, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £692.50. • Tom and Judy Green sent in donations totalling £172: Judy raised £105 from the sale of her handmade cards and Tom had a dress down day at work raising £67. • Martin, Lawrence, Ben Green and friends completed the 22 mile Bridgnorth Walk and raised £305. • Sarah and Bruce Holden (Adam’s aunt and uncle) and friends sent in a donation of £100 from their holiday.

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In Memory of

Joe Grove

Martha Grove, Penny Grove, Stephen Grove, Ellen Grove, Richard Gibbons, Kevin Keely, Sam Culpin, John King, Alison Matthys, Laura Routley, Chris Wilott and Adam Worth took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £1,530.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

Leanne Haddrell

Mary Haddrell sent in donations totalling £190; a bucket collection and cake sale raised £140 and the local church donated £50.

In Memory of

Matt Hadfield

‘Team Matt’; Diana Garretts, Andy Hunt, Marc Hadfield, William Arkell, Julia Arkell, Eraldo D’Atri, Haidee Gonsalves, Michael McAughtrie, James Hogan, Darryl Hogan, Sally Hogan, Caroline Jaggard, Tim Jaggard, Pete Jones, Julie Chung, Andrew Murray, Maja Naskret, Nick Holman, Monika Stachurska, Dan Watts-Read and Laura Wilkinson, took part in the CRY Heart of London Bridges Walk 2013 and raised £2,855.

In Memory of

James Haggerty

Bethany Philips completed a tandem skydive and raised £895.

In Memory of

Joseph Halliwell

Katy Bradshaw completed the Manchester 10K and raised £267.11.

In Memory of

John Hammond

Claire Hammond and Michael Girling took part in the CRY Heart of London Bridges Walk 2013 and raised £107.

www.c-r-y.org.uk

In Memory of

Thomas Hardman

• Michael Grogan completed the ‘not drinking alcohol in January’ challenge and raised £700. • Leeds Met Carnegie Athletic Union sent in a donation of £631.50. • Linda Bradshaw sent in a donation of £431.11 in respect of fundraising at Leeds Metropolitan University. • The Postgraduate Team at Oldham Education Centre sent in a fundraising donation of £245. • Adrian Schonfeld took part in the Virgin London Marathon 2013 and raised a further £1,733.58, making a total raised of £2,469.78. • Katie McNally completed the Edinburgh Marathon and raised £200. • Hannah Partington completed the Greater Manchester Marathon and raised £515. “Five months of training, five hours of running and one full day of lying in bed to recover! Well worth it all in memory of Tom Hardman. I am proud to say that on the 28th April after five hours of running around the streets and roads of Greater Manchester proudly sporting a CRY T-shirt, I finally completed the Manchester Marathon and raised a grand total of £656 in memory of my friend Tom. I unfortunately had to hobble over the finish line because of an ankle injury that occurred 10 miles in, but I wanted to make Tom and all my sponsors proud and I hope that I succeeded! I would like to thank everyone who supported my training for the months before the marathon, everyone who sponsored me, those who came to support me on the day, (in particular my boyfriend for making sure I crossed that finish line with my dodgy ankle!) and Tom’s parents for being there to greet me at the finish line with flowers and a much

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Our Fundraisers needed Lucozade! Thank you so much to everyone for your support, I couldn’t have done it without you! I hope that my efforts have raised awareness of CRY and can stop what happened to Tom happening to someone else.” Hannah Partington.

just wanted to contribute. Many local businesses donated items for the barbecue, raffle, tombola, lucky dip and refreshments. The sun shone down and the Lemons, to the disbelief of everyone, won in the last over of the match and we were proud to hand over the Tom Hardman Trophy to Scott in front of a loud and cheering crowd. We could not have organised this event without the help of our wonderful friends and family.”

In Memory of

Graham Harrison

• Stella Burke sent in a further donation of £1,284.30 in respect of the 10K Bupa Manchester Run on 26th May, making a total raised of £2,719.30. • Hayden Arrowsmith sent in £450 raised from the inaugural Leeds Varsity Twenty20 cricket match. • Richard and Margaret Hardman sent in a donation of £1,650:

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“On 22nd June a charity cricket matched, organised by the Heywood CC Patio Supporters, was held to raise money in memory of Tom for CRY. This involved Tom’s brother, Scott, captaining a team called Tommy’s Lemons (‘lemon’ was a word Tom often used to call his friends.) What an amazing day it was, Tom was very much loved and the whole of Heywood came to show their support. Their generosity was overwhelming and many

John Harrison took part in the Virgin London Marathon 2013 and raised a further £2,251, making a total raised of £3,237.

In Memory of

Lizzi Harrison

Dave Johns sent in a donation of £414 raised by Wheelz at their summer dance held on 13th July.

In Memory of

David Harrop

Mrs Harrop forwarded a donation of £318.85 which was raised by Dave’s niece Grace, who took part in the Manchester 10K Run. “Grace thoroughly enjoyed the run even though she did not do much training because of revision for her A

Issue 61 | May to August 2013


Our Fundraisers levels. The atmosphere was fantastic and strangers were handing her money for CRY recognising the importance of this charity. It was a very emotional day as her Uncle Dave meant a great deal to her.” Liz Moston.

In Memory of

Matthew Hesmondhalgh

• Mark Hesmondhalgh sent in sponsorship donations totalling £1,495 raised in respect of the Land’s End to John O’Groats ‘Ride for Matt.’ • “Please find enclosed a donation of £365.13 which was raised at a fantastic ‘Retro Disco’ held at the Kenlis Arms, Barnacre on 19th April - the day that would have been Matt’s 24th birthday. We are so grateful to a dedicated group of good friends, neighbours and family for joining us at this event and making a difficult day special in so many ways. Some folks added to the fun by wearing outfits to depict the groups and characters of the era.” Paula Hesmondhalgh.

In Memory of

Jon Hayman

Liz Hayman hosted an evening meal and afternoon tea and raised £166.54.

In Memory of

Joe Herrington

• Donations totalling £183.50 were made at the recent screening. • Brad Herrington sent in a donation of £139.98 on behalf of Thomson Airways in respect of their inflight collections.

www.c-r-y.org.uk

• Bilsborrow Young Farmers Club raised £4,780 in memory of Matthew. CRY Representative Ruth Lowe collected the cheque on behalf of CRY.

“We raised the money for Matthew Hesmondhalgh’s Memorial Fund. Matt had previously been a member of Bilsborrow Young Farmers Club and when members heard of his sudden passing it really did shock the community. With the support of Paula, Matt’s mum, we realised that some fundraising had to be done to make everyone aware of young sudden cardiac deaths, as they are more common than people realise. To raise the money we held Bilsborrow Young Farmers Club Charity Ball with all proceeds donated to Matt’s fund at CRY. We sold tickets for the event, which was held at Barton Grange Hotel. With more than 180 guests we knew that the night would be a success. We held a raffle and also an auction where members even gave themselves

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Our Fundraisers as prizes to do jobs from joinery work to babysitting! With many past and present members attending we had lots of people willing to contribute. Overall the club raised £4,780 to go towards a screening event which Paula is currently organising and as a club we were very proud!” Louise Richardson. • “For 7 years the United Parish of St Peter’s Church in Scorton, All Saints’ Church in Barnacre and St John’s Church in Calder Vale have held a Christmas appeal to raise funds for charities that are either based locally or from which a local person has benefitted. Nominations are made by parishioners and to date around 40 worthy causes have been supported! On a warm June evening we were invited to join the congregation and representatives from 6 local charities, for a wonderful farm service. During the evening my friend Kath and I were presented with an amazing £345 from the latest appeal to go to CRY in memory of Matt. “ Paula and Barry Hesmondhalgh and Kathy Wrathall.

In Memory of

Matthew Hesmondhalgh and Tom Salthouse

• Paula Hesmondhalgh sent in donations totalling £100 in lieu of floral tributes for the late Tom Salthouse: £75 from JA Jones; £10 from I Tomlinson; £15 from IM Mason, which will go towards local screenings in memory of Matthew Hesmondhalgh.

In Memory of

Oliver Hewitt

• Dan Bates sent in an additional donation of £718 in respect of the John O’Groats to Land’s End Cycle ride, making a total raised of £1,868. • Grace Collins raised £250 in support of her taking part in the Virgin Money London Marathon 2014.

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In Memory of

Richard Hill

Nicola Hill sent in donations totalling £1,800 in respect of fundraising for the Trans Pennine Challenge.

In Memory of

Jonathan Hooper

Peter and Diane Hooper took part in the CRY Heart of London Bridges Walk 2013 and raised £100.

In Memory of

Ian Hoggarth

• James Baker completed the ‘Ian Hoggarth Cycle Challenge’ and raised £747.51. • Mark Smith completed the Nott de Tour cycling event and raised £710. • Thomson Reuters sent in a matched giving donation of £378.75 in respect of Paul Jacques’ Outlaw Triathlon.

In Memory of

Andy Holcombe

Barry Holcombe took part in the Virgin London Marathon 2013 and raised a further £465, making a total raised of £1,752.25.

In Memory of

Paris Holden

• Caoimhe McAteer sent in a donation of £1,318.79 raised during her recent fundraising event in memory of Paris:

“On Sunday 6th May my best friend Paris Holden passed away. To help CRY prevent this happening to other families and friends, my partner and I decided to organise a fundraiser. On the night we raised a total of £2,803.27.

Issue 61 | May to August 2013


Our Fundraisers

We decided that we would donate half of the money raised to CRY and the other half would be donated to Paris’ headstone.

• Wendy Lord sent in a further donation of £550 raised during her birthday celebrations, making a total raised of £570.

CRY is an amazing charity and we hope the money we all raised can prevent the pain of losing someone special.”

• Stoke Coventry Club raised £1,000. CRY Representative Sarah Gadsby collected the cheque on behalf of CRY on Saturday 27th July.

In Memory of

Nicholas Holland

Gemma Holland sent in a donation of £400: “This was raised at a raffle at our annual Caravan and Motorhome Rally in memory of my late husband, Nicholas Holland. It was a great weekend which included a cinema and popcorn night, dog show, raffle, hog roast and live entertainment. It was our biggest rally to date and we were told by our customers, the best yet!”

In Memory of

Stuart Hollywood

Stephen Hollywood sent in donations totalling £590.

In Memory of

David Holmes

Jane Holmes sent in donations totalling £340 from the party she held on 4th May in memory of her husband.

In Memory of

Philippa Holmes

Andrew Williams completed the London to Brighton Challenge and raised £1,828. • Paul Marshall took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £3,259. • Mark Smith completed a tandem skydive and raised £1,155.

www.c-r-y.org.uk

In Memory of

Joseph Horkan

• The Heathrow Community Fund sent in a matched giving donation of £250 in respect of Sean Horkan taking part in the Dragon Ride in the Brecon Beacons.

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Our Fundraisers • “I am pleased to enclose a cheque for £200. Our coffee shop, in Epsom Methodist Church, is staffed entirely by volunteers which enables us to plough our profits back into local charitable causes and we are delighted to support CRY on this occasion.” Carol Thorley, Coffee Cup Committee.

In Memory of

Marilyn Amelia Hudson

We have received a donation of £188.13 in lieu of floral tributes for the late Marilyn Amelia Hudson.

• Sean Horkan, Beverley Horkan, Sophie Lawrence, Colin Lawrence, Claire Smith and Andrew Smith took part in the CRY Heart of London Bridges Walk 2013 and raised £125.

In Memory of

Christopher Hynd

Mrs Hynd sent in donations totalling £259. Thanks go to Gran Yvonne, Helen, Yvonne, Gillian and Jill for their donations.

In Memory of

Stewart Howard

Jane Howard sent in a donation of £275 which was raised at the Spring Fayre.

In Memory of

Richmond Ime-Albert

In Memory of

Paul Hubbard

Olayinka Seriki hosted the Out of Africa Gala Dinner on 27th April and raised £1,265.25.

Mrs S J Hubbard sent in a donation of £1,400.47 from the football match in memory of Paul: “My husband, Paul Hubbard, sadly passed away in February 2012 of natural causes. Paul worked for Wincanton Logistics as an operations manager at the Stafford warehouse on the Screwfix contract. After his death, management and staff wanted to remember Paul in some way and as he was involved in the social side of things, especially when it came to football, they decided to organise an annual memorial match. On Saturday 10th August the second memorial match took place.”

In Memory of

Camilla Irvine

• L’Anson Brothers Limited sent in donations totalling £500. • Will L’Anson sent in an additional donation of £100. • Isabel Radford sent in a donation of £100 in respect of the cycling challenge around the Ile de Re in memory of Camilla.

In Memory of

James Jackson

Matt Miller took part in the Virgin London Marathon 2013 and raised a further £206, making a total raised of £785.20.

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Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

Hayley Louise James

Stevie Jivani

Family and friends of Hayley James held a karaoke evening and raised £250.

In Memory of

Phillip Jefferies

The ‘AXA-PPP Clinical Team’; Susan Bateup, Lyn Whiteman, Carl Bateup, Beverley Barnes, Andrew Barnes, Yvonne Rorke, Barry Rorke, Tina Jenner, Angela Goddard, Clare Newell, Susan Pennett, Mike Pennett, Sally Knight and Penny Edmunds, took part in the CRY Heart of London Bridges Walk 2013 and raised £100.

• Maureen Jivani sent in donations totalling £170 in respect of the poetry competition in memory of Stevie. • Washik Parkar completed the London to Paris Bike Ride and sent in donations totalling £2,206.30, making a total raised of £2,356. • Sophie Whiteman and the Kingston Clinical Assessment Service (KCAS) held a cake sale and raised £202.22.

In Memory of

Caroline Johnstone

• The students and staff at Birchwood High School raised £2,000.

In Memory of

Reece Jeffrey

• The Ecclesbourne School Business Group forwarded a donation of £508.58: “We have had recent success in staging two events in order to raise money to support CRY. On 8th March we held a cheese and wine evening which proved to be a success and received lots of support from all the guests who attended. We also held an Easter fair which was collaboratively run by our year thirteen business group and year seven students.”

“Throughout the school year both students and staff have organised a series of fundraising events including Hallowe’en, Valentine’s and Easter ‘own clothes’ days, cake sales, talent shows, book collections, fitness challenges and much more.” Miss G L Flint, Birchwood School.

• Sophie Martin took part in the Virgin London Marathon 2013 and raised £980.

• Landau Forte College, Derby, sent in donations totalling £1,486.83.

In Memory of

John Jenkins

Nancy Jenkins sent in a donation of £125.

www.c-r-y.org.uk

In Memory of

Darren Joliny

Claire Crawford completed a running event and raised £170.

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Our Fundraisers In Memory of

Ethan Jones

Keith Weston sent in donations totalling £343 raised in lieu of payment for a series of talks in memory of Ethan: £53 from Crayfield Club; £40 from Worcester Park Civil Service Fellowship; £50 from Swanley WI; £40 from St John’s Fellowship; £50 from Capel WI; £40 from Phoenix Retirement; and £70 from Claygate Probus.

In Memory of

Horace Jones

We have received a donation of £447.11 in lieu of floral tributes for the late Horace Jones.

• Neil Kellogg forwarded a donation of £120 raised in respect of the West Park School reunion. • Leah Kellogg and Ashley West held a quiz night at Spondon Cricket Club and raised £255. • “Kieren and George are 14 years of age and this year are taking part in the Duke of Edinburgh’s award scheme at the Bronze stage - hopefully progressing through the next two years onto Silver and Gold. They too have been playing cricket at Spondon CC since their Primary School days and have now progressed into senior cricket for Spondon CC played on a Saturday afternoon. Their D of E volunteer project was to raise money for CRY.

In Memory of

John Jones

Martin Jones took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £292.50.

On 9th June 2013 the boys organised and held a coffee and cake afternoon and evening at Kieren’s home. This involved planning, promoting, marketing and serving the many guests that attended the function, raising nearly £100 on the day.” Neil Kellogg.

In Memory of

Lee Jordan

Jonathan Vose completed the Trail Race and the Wilmslow Half Marathon and raised an additional £313.11, making a total raised of £563.11.

In Memory of

Claire Keen

Gail Prince ‘gave up alcohol’ and raised £293.

In Memory of

Joseph Jon Kellogg

• Neil Kellogg forwarded a donation of £120 raised in respect of the West Park School reunion.

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In Memory of

Blair Kerr

Don Whyte completed the Dubai Marathon and raised £1,285.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

Jennifer Kerwood

• Claire James completed a tandem skydive and raised £680: “On Saturday 16th February Jenny suddenly collapsed whilst at football training. Despite a huge effort by the coaches at Hutton FC and the paramedics Jenny could not be revived and sadly passed away a short time later at Queens Hospital. The autopsy results showed that Jenny suffered from what is known as Bland-White-Garland syndrome. It is a congenital cardiac defect. In very simple terms the left coronary artery is incorrectly placed to the pulmonary artery. It means the rest of the heart has to work harder to compensate. To mark one year on since Jenny’s death I decided to do a tandem skydive on Saturday 15th February in Peterborough. This was the second attempt after the jump was postponed due to bad weather two weeks previous. When I got to the airfield the weather was perfect and I was not feeling that nervous. After an initial safety talk from one of the instructors I watched as a couple completed their jump and before I knew it I was called to get strapped into my harness. I was the last one to jump and so I was the first one onto the plane, I was feeling quite calm as adrenalin had taken over my whole body. It was only when I saw all the other people jumping out of the plane that the nerves kicked in and I thought to myself, “What am I doing? Do I really want to do this?” but before I could finish re-thinking it all, the instructor was sitting at the edge of the plane and I was just dangling 12,500 feet in the air. As we landed there was a strong tailwind so we both fell back which resulted in the instructor falling into a muddy puddle, much to everyone’s amusement. I thoroughly enjoyed the day and would definitely consider doing another jump in the future.”

www.c-r-y.org.uk

• Claire James completed the Big Fun Run and raised £115. • Mr P Clarke sent in donations totalling £509.70 raised in respect of the charity football matches in memory of Jennifer. • Emma Wade took part in the Virgin London Marathon 2013 and raised a further £689, making a total raised of £1,800. • Simon Pettitt took part in the Virgin London Marathon 2013 and raised a further £585, making a total raised of £1,090. • Jack Ellis took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £186. • Ross Kerwood raised £2,335 in support of his taking part in the in the Virgin Money London Marathon 2014. • Elizabeth Kerwood, Martin Kerwood, Lindsay Swain, Hannah Swain, Jeremy Drake and Fiona Clayton took part in the CRY Heart of London Bridges Walk 2013 and raised £125.

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Our Fundraisers In Memory of

In Memory of

Robert Knott took part in the Virgin London Marathon 2013 and raised a further £108, making a total raised of £2,420.

Nina Ndubisi completed a Slimming World Challenge and raised £643.42.

Joseph Korting

In Memory of

Judith Krish

‘Walking for Jude’; Jonathon Krish, Gillian Krish, Julia Good and Kati Nairn, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £1,905.

In Memory of

Jack Ladley

Samuel Davies sent in a donation of £471.20 raised at the Harry Potter Movie Event, held at Chetham’s School of Music, and sent in a donation of £228.80 from a fundraising event held in December 2012.

Philip Lamin

In Memory of

James Lancaster

Martin McColl Ltd sent in a donation of £1,280 in respect of the Lancaster family golf day.

In Memory of

Michael Land

• Ruth Cain (Michael’s mum) held a charity auction evening on 20th April to commemorate Michael’s 30th birthday and raised £2,665.

In Memory of

Adam Lambert

• Mark Roberts completed the Newham Classic 10K Run and raised £460. • Vicky Gee, Luke Knight, Amelia Evangelista, Dalia Tilsiter, Andy Tilsiter and David O’Cooper took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £812.34.

In Memory of

Adam and Jenny Lambert

Jane Lambert, Louise Gear, Martin Gear and Freddie Bagley took part in the CRY Heart of London Bridges Walk 2013 and raised £470.

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• Ian Roberts, Rod Stewart Fan Club, raised a further £819.71 in respect of the Rod Stewart Appreciation Weekend, making a total raised of £8,023.71.

In Memory of

Michael Land and Jonathan Leigh

Adam Haywood completed a skydive on 27th April and

Issue 61 | May to August 2013


Our Fundraisers raised £130 in memory of Michael and £130 in memory of Jonathan, making a total raised of £260.

In Memory of

Adrian Lawrence

‘The Misfits’; Kaz Huseyin, Suzanne Knott, Tom Hance, Nicola Goss, Katie-Marie Evans, and Margaret Penn, took part in the CRY Heart of London Bridges Walk 2013 and raised £105.

In Memory of

Joe Lewis

David Lewis, Shelley Lewis, Oliver Lewis, Leuan Lewis and Daisy Austin took part in the CRY Heart of London Bridges Walk 2013 and raised £1,310.

In Memory of

James Loach

Claire Loach completed a 10K walk and raised £680.

In Memory of

Max Lowry

Every year the Pink Tie Club holds a charity golf day to benefit one or more charities. CRY was one of the beneficiaries of the Pink Tie Club’s charity golf day in 2012, when funds were raised in memory of Max Lowry. CRY Representative Paul Daniels was invited to attend the club’s 2013 event in order to be presented with a cheque for £5,095.

In Memory of

Jason Langdon

We have received a donation of £695.15 in lieu of floral tributes for the late Jason Langdon, who passed away on 8th April 2013, aged 26 years.

In Memory of

Daniel Larkin

Tricia Larkin completed the Wirral Coastal Walk and raised £320.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Steven Lowry

Ahoghill Rovers Football Club completed the Belfast Marathon and raised £878.

In Memory of

Martyn Luckett

• St Nectario’s Church recently held a coffee morning and raised £144.16. • Brenda Luckett forwarded donations totalling £125. Special thanks go to Mick Croome and Lis Green. • Brenda Luckett forwarded £300 in respect of funeral donations for the late Clifford Henry Chidley and £20 from Nigel and David. • Launceston Motor Cycle Club sent in a donation of £300. A special CRY cake was donated for auction at the Motorcycle Trials.

In Memory of

Martyn Luckett and Marjorie Luckett

We have received a donation of £146.10 in lieu of floral tributes for the late Marjorie Luckett.

In Memory of

Claire Machin

Chris Southwell completed the Three Peaks Challenge and sent in £8,595. David Irish, Kirsty Nethersell, Andrew Clarke, Jennifer Johnston, Hadley Baldwin, Dave Machin and Rhys Ifan also completed the challenge. “The weather was kind, and apart from the odd rogue sheep at Wasdale Head, the roads clear. The final team member crossed the line back at the Pen-y-Pas carpark at 4.20pm on the Saturday afternoon. Tired, sore, but elated, the team have raised over £10,000 for CRY in memory of Claire Machin, who died suddenly from dilated cardiomyopathy in May 2010, aged 39.” Dave Machin.

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Issue 61 | May to August 2013


Our Fundraisers at Gillingham FC; a relatively gentle 15 mile ride to Sittingbourne FC along the back lanes around the Swale estuary, a full day 50 mile route through north Kent to Margate or ‘the lot’; a three day 200 mile challenge visiting 20 football grounds in Kent with overnight stops at Margate and Maidstone. Football was a key theme: the ride went from ground to ground across the county with many of the clubs opening up their facilities to feed and water the riders.

In Memory of

Andrew Macleod

• “I was privileged to receive a cheque for £300 from a committee member of the Western Isles Classic Car for the Andrew Macleod Memorial Fund. This is yet another motoring organisation which Andrew supported and was a member of during his life, having enjoyed many excursions in a variety of different classic vehicles, most of them much older than himself (and some even older than I, hard to believe, I know).” Murdo Macleod. • Murdo Macleod sent in donations totalling £150: £100 was donated by Mrs Catriona Stewart; and £50 by Mrs Peggy Macdonald. • Murdo Macleod forwarded donations totalling £1,700: £1250 from the Nicolson Institute; £100 from Kenneth Murray; £100 from George Chlad; £100 from Mary Murray; £100 from James Tait; and £50 from Martin Maciver. • Mrs D Macleod sent in a donation of £100.

In Memory of

Jack Maddams

• Roger Maddams forwarded donations totalling £4,210.90 in respect of the Tour de Kent 2013 in memory of Jack:

“What an event! An absolute joy from start to finish, which brought a touch of the Olympian Spirit to the roads of Kent through the infectious spirit of the many volunteers providing cake, bag transport, event flag movement and other duties to the 191 riders who took part.

The idea for the event came from casual conversation over a few drinks at a party, as many do. From “a couple of friends riding round some football grounds in Kent to raise a few quid for charity” grew a ride that aimed to be as inclusive as possible, and not necessarily aimed at the hard-core sportive rider. The ride had three options, all starting

www.c-r-y.org.uk

And what food and water we had. One comment that summed up the vibe was ‘this was the only long ride I’ve been on where I’ve put weight on.’ Clubs such as Faversham Town, Herne Bay, Margate, Deal Town, Folkestone Invicta, Maidstone United, Tonbridge Angels, Dartford and Gillingham put on a great welcome for the riders. Stops were never more than 20 miles apart: riders never felt they were hanging on for a short break and a recharge. The army of 30 volunteers moved the refreshments, moved the route flags, moved the overnight bags and moved the bonhomie on from ground to ground. A pub lunch was arranged at the picturesque stop of

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Our Fundraisers the King Ethelbert Inn in Reculver at the start of the Viking Coastal Trail on Day 1.

The three day ride gave cyclists a good workout. The 50 miles of Day 1 were reasonably straightforward: the highest climb was a mere 120m above sea level at Mickleburgh Hill coming out of Herne Bay, but with glorious Kentish scenery on stretches such as around the Swale estuary, the hop fields, oast houses, apple and cherry orchards, and yellow oilseed fields between Teynham and Faversham and the section along the sea wall into Margate. This was after a carnival-like start at Gillingham FC: BBC South East News, the Gillingham FC cheerleaders and the club mascot, Tommy T the comedy horse, waving the riders off.

Day 2 was an altogether tougher day: a 80 mile route taking on climbs up the White Cliffs to Dover Castle, up to the Battle of Britain Memorial at Capel near Folkestone and the climb off the marsh from Hythe. This was interspersed with cycling joy: the flat traffic free route across the championship golf courses of Sandwich, the fly down Dover Hill, the road at Sandgate next to the sparkling sea: the sun magically shone all weekend in this year of miserable weather.

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Day 3 took the riders on a 70 mile route out from Maidstone to Tonbridge, the big challenge of River Hill en route to Sevenoaks, the Darenth Valley up to Dartford, the views across the working River Thames around Gravesend and back to the Medway Towns. The hard liners had the option of a punishing 10 mile loop up to the top of the North Downs to visit Lordswood and Chatham Town FC, or a corner-cutter and back to the hero’s welcome at Gillingham FC. The riders entered through the players tunnel, parked their bikes by the manager’s dug out, into the home dressing room for a shower, ice bath or use of the lovely warm hydro pool before assembling for the after-ride party at the club’s Blues Rock Café. 400 riders and guests enjoyed the hot meal, live music, DJ and raffle that raised £500 for Help For Heroes… …which was a small part of the fundraising achieved by the ride. Over £60,000 was raised for the main ride charities of CRY and Take Heart Mercy Mission.”

• Ian Tyce completed the Tour de Kent 2013 and raised £370. • Matthew Campbell completed the Tour de Kent 2013 and raised £210. • Mark Patterson completed the Tour de Kent 2013 and raised £197.50. • Melissa Young completed the Tour de Kent 2013 and raised £102.50.

Issue 61 | May to August 2013


Our Fundraisers • Gareth Anstice completed the Tour de Kent 2013 and raised £456. • Ashley Ellison completed the Tour de Kent 2013 and raised £246.17. • Colin Bryant completed the Tour de Kent 2013 and raised £824. • Daniel Appleton completed the Tour de Kent 2013 and raised £957.50. • Paul Chamberlain completed the Tour de Kent 2013 and raised £410. • Danny Rayfield completed the Tour de Kent 2013 and raised £152.50. • Luke Johnson completed the Tour de Kent 2013 and raised £252.50. • Additional donations totalling £555 have been received in respect of the Tour de Kent 2013 in memory of Jack. • Faversham Mission Brass Band raised £920 at an event on Friday 17th of May.

“A talk was given from my husband, Rob, telling our story about our son Jack, the work of CRY and the Tour de Kent. A raffle, thanks to generous donations; and cake sale, thanks to Nan, aunties and friends, was also held. A lovely evening was had and our big ‘thanks’ go to Faversham Mission Brass and everyone who supported this wonderful evening.” Mrs Lesley Sellens.

In Memory of

Fabian Maingot

In Memory of

Leon Ashley Manners

Julie Hatton sent in a donation of £2,986 raised in respect of the Salsa events and raffles held to commemorate Leon’s 18th birthday: “I held 3 Salsa dance events last year at Nidd Hall Hotel, Harrogate, on July 14th, September 16th and December 22nd. We had such fun at all three events and people’s generosity continues to amaze me. We held dance classes, shows, raffles, and Nicolai was even waxed for charity. All for the love of my Leon Ashley Manners who would have been celebrating his 18th birthday on 27th December 2012. I wanted to celebrate Leon’s 18th in a positive and loving way, hoping to spare another family the heartache of losing a child so suddenly, and to pay for 100 young people to be screened in Redcar and Cleveland in August 2013. Each event we held grew in numbers but also in love; the amount of support I felt from friends and people I know only a little through dancing felt tremendous and helped me face December with positivity rather than great sadness. I would like to thank my family, friends, and everyone who attended. And special thanks to Tori and Ary, Greg, Pete, Mike, Prince, Tevin, Nicolai, V, DJ and Montunno. The total raised from these dance events is £3,505, some of which has been donated online.”

Candice Maingot, Elise Maingot, Nathalie Prodano and Rico Brown took part in the CRY Heart of London Bridges Walk 2013 and raised £400.

In Memory of

Darren Timothy Mannering

Julie and Doug Platt (Darren’s parents) and Amanda Turner (Darren’s sister) sent in a donation of £400 which was raised by his family and friends who held a coffee and children’s fun day on 27th July.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

James Markham

Jeff Markham, Sandra Markham and Anita Evans took part in the CRY Heart of London Bridges Walk 2013 and raised £137.

In Memory of

Oliver Marsden

Sassie Tickle completed the Torbay Half Marathon and raised £360.

In Memory of

Lewis Marsh

Gill Weston sent in donations totalling £5,500: £2,500 from Sandhurst Football Club Tournament; £750 from Sandy Vallance and family; £100 from Roz Corby; £1,089 from Quiz Night at Sandhurst Football Club; £145 from Mandy’s Firework Night; £221 from the Royal Swan Pub Quiz Night; £125 from Paul Withers; and £570 from general donations.

In Memory of

Karl Mansfield

Susan Mansfield sent in donations totalling £435: £400 from an Easter Hamper Raffle organised by Lorraine Inman and Rena Herminam and supported by employees of Shop Direct Group, Oldham; and £35 from the Baby Boogies mother and toddler group at the Salt Cellar Cafe in Oldham.

In Memory of

John Marshall

• Michael Vella sent in a donation of £2,000 from the Skem Athletic National Girls Football Tounament. CRY Representatives Maureen Marshall and Hayley Crosbie attended the Skem Football Tournament on the weekend of the 8th and 9th of June.

In Memory of

Mark Marden

Donna Palmer completed the Major Series and sent in an additional donation of £315, making a total raised of £490

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Issue 61 | May to August 2013


Our Fundraisers • Matthew Nicholson took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £4,660.

In Memory of

Amanda McCarthy

• Pete McCarthy took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £1,848.40. • Karen McCarthy, Jim McCarthy, Kerry McCarthy, Jordan McCarthy, Peter McCarthy, Evelyn Kalmar, Richard Kalmar, Patricia Rosenberg and Graeme Rosenberg took part in the CRY Heart of London Bridges Walk 2013 and raised £580.

In Memory of

Paul McGlynn

Patsy Gilthorpe sent in a donation of £802.15 raised at the coffee morning at McGlynn’s and £130 from her cousin, Tim Price, and his friends.

• Hayley Crosbie sent in a donation of £2,610 raised in respect of the charity evening and golf day.

In Memory of

Dean Mason

• Donations totalling £245 were received at the recent screening. • Gwenfair Mason sent in a donation of £298.27 raised at the equine event at Norton Villa by the Red Kite Trec. • Carl Daniels completed the Amman Triathlon and raised £234.56.

In Memory of

John McCall

• Edel Fearon held a spin class at the Orchard Leisure Centre, Armagh, and raised £1,680.

www.c-r-y.org.uk

In Memory of

Karen McGowan

Derek McGowan sent in a donation of £1,811 raised at a recent fundraising event.

In Memory of

Simon McNamara

• Mike McNamara forwarded donations totalling £600 from the Nottinghamians Rugby Club who hosted a rugby match as part of Nottingham High School’s 500th Anniversary celebrations:

“Simon was at the school from 1990 until 2001. The game was against ‘The Pinks’ - a team run by Si’s brother, Jonny, and who raise money for CRY in a variety of ways.”

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Our Fundraisers • Mike McNamara sent in a donation of £435 which was raised at the recent cricket match in memory of Simon. • Nick Pritchett took part in the Virgin London Marathon 2013 and raised a further £375, making a total raised of £2,680.60. • Hugh Drummond took part in the Virgin London Marathon 2013 and raised a further £520, making a total raised of £3,531.20.

In Memory of

Luke Meekings

Sue Meekings sent in a donation of £200 which was raised at a BBQ fundraiser in memory of Luke: “Friends and family of Luke Meekings, who died on the 24th June 2008 aged 24, joined together on the 23rd June 2013 to remember Luke and raise funds for CRY. After the BBQ everyone gathered in the garden to release white helium filled balloons and raise a glass in memory of Luke. A total of £200 was raised for the Luke Meekings Memorial Fund. The picture shows the balloons being released by four generations of family and Luke’s friends from school, work, and Middleton and Bognor Hockey Club, of which he had been an enthusiastic member and committed player for many years.”

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In Memory of

Joshua Merrick

• A charity night was held at Burnage Rugby Club on 27th April in memory of Josh and raised £3,011. • Carmel Merrick took part in the Virgin London Marathon 2013 and sent additional a further £1,033.97, making a total raised of £3,359.25. • Sam Jennings completed the Tough Mudder challenge and raised £1,514. • Karen Merrick forwarded a donation of £409.

In Memory of

Richard Merriman

• Nicola Merriman raised £2000 at her 50th birthday celebrations: “We had a fantastic night with many fabulous prizes kindly donated by different companies in our local area for our raffle, plus one item for auction; a signed football shirt from Fabrice Muamba. A special thanks to Bo Avenell for donating a fabulous diamond and sapphire ring, and my big brother, Steve, for his kind donation after selling his guitar. A big ‘thank you’ to the band, The Ruse, for playing at the event, especially Joseph, a band member and very good friend of ours, for organising it, and who played in memory of Richard. The raffle and auction raised £2,000 towards our total for screening for young people at a local venue.” Nicola Merriman.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

Elizabeth Mockler

Nicola Lloyd completed the Brighton Marathon and raised £365.

In Memory of

Nelson Monhon

Rob Drag took part in the Virgin London Marathon 2013 and raised a further £400, making a total raised of £1,933.

In Memory of

Levon Morland

Jeff Morland sent in donations totalling £234: “Rhiannon Phillips organised a night of entertainment at West Rainton Village Hall on 10th May which included children from our local primary school, Steve Percival, Nick Phillips (Rhiannon’s dad), myself and Rhiannon. £125 was raised from raffles and sales of our ‘Don’t Cry’ CD which Steve made with the involvement of many local singers and musicians. Second, a spiritual evening was held at the Durham City Radissan Hotel on 4th June with psychic medium, Debra Chalmers. A raffle on the night raised £109 for CRY.”

In Memory of

Luke Morris

• Nicola Merriman sent in a donation of £325 raised at a tombola stall.

Ian and Debra Morris sent in a donation of £350 which was made in lieu of wedding gifts.

• Nicola Merriman forwarded a donation of £500 from Ashbridge Staff Social Activities Club. • Tom Cowley took part in the Virgin London Marathon 2013 and raised a further £197.50, making a total raised of £1,884.50.

In Memory of

• Bradley Hudson took part in the Virgin London Marathon 2013 and raised a further £197.50, making a total raised of £1,884.50.

Glenys Jones completed a fishing event in July and raised £200.

www.c-r-y.org.uk

David William Moss

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Our Fundraisers In Memory of

Paul Mulford

Colin and Sandra Mulford took part in the CRY Heart of London Bridges Walk 2013 and raised £120.

In Memory of

Andrew Murch

• The staff and pupils at Breadalbane Academy held a ‘Burns Supper’ earlier this year and raised £1,189.53. • Hazel Murch forwarded a donation of £250 from the Dunkeld and District Strathspey and Reel Society.

In Memory of

John and Jamie Owens

Stephen Nuttall sent in a donation of £241.73 raised at the charity football match in August 2012: “This year, the John and Jamie Owens charity match was kicked off by Charlie, the grandson of the Mayor of Stockton, Cllr Lynne Apedaile, who was a guest on the day. West Middlesbrough Academy put up a spirited defence of the Trophy against a skilful Norton side who eventually outclassed them and went on to win 4 – 1. The Trophy was presented by the mayor to the winning team. The crowd was entertained by the Melissa Jacques School of Dance who performed after the match and the Congolese Drummers were kept busy throughout as they provided a drum roll every time a goal went in!’

In Memory of

Ralph Murwill

Catriona Burns took part in the CRY Heart of London Bridges Walk 2013 and raised £100.

In Memory of

Richard James Northedge

Pat and Derek sent in a donation of £100 to commemorate Richard’s birthday on 1st July.

In Memory of

Thomas Padmore

‘Tommy’s Team’; Paul Padmore, Karen Padmore, Louise Padmore and Oliver Bailey, took part in the CRY Heart of London Bridges Walk 2013 and raised £290.

In Memory of

In Memory of

Megan O’Branski completed the Edinburgh Marathon and raised £165.

David Pal sent in a donation of £240:

Leon J O’Branski

In Memory of

Alex Osborn

Form 9MTA, Biddulph High School, Knypersley, sent in a donation of £194.18.

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Dr Abani Kumar Pal

“My father was formerly the consultant in Accident & Emergency Medicine at Ysbyty Glan Clwyd in Rhyl, North Wales. He died from cardiac failure and, although he did not specify charities for any donations, I know he would be very supportive that I have asked for money to be donated to Cardiac Risk in the Young. He spent his whole life caring for others as a hospital doctor, and he was aware of my experience of losing fellow competitors from sudden cardiac death in the sports of fell running and orienteering.”

Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

Chris Palmer and Martin Spencer-Palmer

‘The Andersons’; Ian Palmer, Karen Palmer, Sarah Buttery, Emma Geddes and Gillian McSweeney took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £579.50.

In Memory of

Gregory Palmer

Sheena Palmer recently celebrated her 90th birthday and sent in £500 received in lieu of gifts, in memory of her grandson, Gregory.

Christopher Parr

• Barbara Francis completed the Cheshire Triathlon and raised £200. • The Leek United Building Society forwarded a donation of £350 from Legal & General. • The University of Aberdeen sent in a donation of £1,352.39. • Thomas Brunt took part in the Virgin London Marathon 2013 and raised a further £145.87, making a total raised of £2,252.93.

In Memory of

In Memory of

Paul Parker

James Paterson

Katrina Parker and Jackie Ellis took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £115.

Heather Stanley completed the Great Glen Way Walk and raised £505.

In Memory of

Joe Parkinson

In Memory of

James Patrick Patterson

Holly Parkinson sent in a donation of £750 raised at the football tournament held in memory of Joe.

• Kevin Wilson and Sid Curtis held a charity golf day on 12th July and raised £1,800.

In Memory of

Andrew Parr

Ann Coles sent in £280 raised during a fashion show held by her sports and social group from work: “CRY was nominated to receive the proceeds from the raffle and we had a stall selling home made cakes and naming a cuddly toy. The cakes were made by myself and other members of the Heartfelt Group. We also gave out leaflets and promoted future events and screenings, so it was a successful and enjoyable evening.”

www.c-r-y.org.uk

• Catherine Patterson took part in the Virgin London Marathon 2013 and raised a further £625, making a total raised of £4,130. • Claire Lil took part in the Virgin London Marathon 2013 and raised £1,633.10.

In Memory of

Kevin Patterson

• Ken Rigelsford took part in the Virgin London Marathon 2013 and raised a further £605,

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Our Fundraisers • James Clifford took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £3,428.62.

In Memory of

Damien ‘Dee’ Patton

• Nuala Patton and the ‘D Team’ completed the Lisburn Fun Run on 19th June and sent in £1,350.01.

“On the 19th June 2013 our family and some friends took part in the Lisburn Fun Run to raise money and awareness of CRY.

We were very successful in our efforts and raised £2,433.01. We were pleased with this amount.

The reason for doing this was because on the 1st August 2011 we lost a precious member of our family to SADS.

Born on the 23rd August 1980, Dee was 30 years old, tall, good looking, happy, fit and healthy. He had never spent a day in hospital from his birth and apart from the odd cold was never sick.

• Sinead Elmore completed the Flora Women’s Mini Marathon and raised £202.

In Memory of

Jennifer Pearce

He loved life, his girlfriend Jen, his two older brothers John-Paul and David and us, his parents. He had lots of friends, had a degree in Fine Art & Design, played guitar and was a gifted songwriter.

His main focus was drumming in a group called ‘Spiral Force’ with his older brother, John-Paul, being the lead singer.

Nothing could have prepared us for this tragedy, but with the help of family and friends and CRY we are slowly finding our feet.

Special thanks to Connie MacGrath and the Elmores who ran the Belfast Marathon 2012 and Dublin Marathon 2013 in memory of Dee and to aid CRY. To everyone who donated... thank you.

Keep up the good work, CRY.” Nuala and Alan Patton.

• Sandra Pearce sent in a donation of £1,030 for the West Midland ECG Fund in respect of her parents’ diamond wedding anniversary dinner.

In Memory of

Adam Pearmine

Tony Butcher held an open garden event and raised £950.

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Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

Liz Tristram and Sharon Percival held a quiz night and raised £506.

Holly Parker took part in the Virgin London Marathon 2013 and raised a further £609.60, making a total raised of £2,173.10.

Benjamin Percival

In Memory of

Christopher Phillips

• Gemma Butterfield took part in the Virgin London Marathon 2013 and raised a further £682.40, making a total raised of £2,267.40. • Gemma Butterfield completed the Worksop Half Marathon and raised £246.

In Memory of

Duncan Phillips

• We have received a donation of £1,451.97 in lieu of floral tributes for the late Duncan Phillips. • Heather Phillips, Nick Baldwin, Kairen Bradford, Tony Bradford and Jules Fayle-Parr took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £1,076.

In Memory of

Jack Phillips

The Royal Wootton Bassett Academy sent in a donation of £147.50.

Hannah Pickering

In Memory of

Sara Pilkington

• Erna Scurr completed the Bath Half Marathon and raised £345. • We have received additional donations of £1,641.64 and Millie Jessel has forwarded £440 of online donations raised in respect of the fashion show, organised by Harriet Bamford at Durham University in memory of Sara, making a total raised of £4,106.64. • Jonathan Pilkington forwarded a donation of £250 from Mr & Mrs C G Whewell. • Elizabeth Hilditch completed the Perch Challenge and raised £150. • Phil Nichols raised £255 in respect of the Bupa Great Manchester 10K Run. • Penny Bell sent in a donation of £270 in respect of the Perch Challenge. • Len Kruse sent in a donation of £100 in respect of the Perch Challenge. • Neville Sullivan sent in a further donation of £361 in respect of the Bupa Great Manchester 10K run, making a total raised of £586.

In Memory of

Rebecca Phillips

• Julie and Peter Phillips forwarded a donation of £300 from Councillor Mrs Mary Munson (Hadleigh Town Council) as a final amount raised in her mayoral year. • Hadleigh Farmers’ Agricultural Association sent in a donation of £500 raised at the Hadleigh Show.

www.c-r-y.org.uk

In Memory of

Gary Pope

Elaine Box, Fox Williams LLP, sent in a donation of £887.05 raised in respect of various fundraising held at Fox Williams.

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Our Fundraisers In Memory of

Michael Pope

• Michael Drabble completed the Paddock Wood Half Marathon and raised £695.

“In February 2013 the Birkenhead Scouts Gang Show held their bi-annual show at the Gladstone Theatre in Port Sunlight, Wirral.

In Memory of

Every two years we have an audience collection for CRY in memory of one of our cast members, James Poynton, who passed away in 2006. James was a talented and enthusiastic member of the cast whose happy and bubbling personality is sadly missed but still lives on. This year the show also created the ‘James Poynton Spikey Award’ (named after James’ fun hair design!) which is awarded to a young member of the cast for enthusiasm and spirit.

Helen Porter sent in donations totalling £250 from the collection box, car boot sale, and talk she gave to the church group in memory of Alan.

This year the show is delighted to be able to donate £350 to support the wonderful work CRY undertake.” Graham Lysaght, Birkenhead Gang Show Producer.

• Team ‘Fox Williams’; Ozlem Mehmet, Sean Williams, Rebeca Evans and Charlotte Allan, took part in the CRY Heart of London Bridges Walk 2013 and raised £465.

Alan Porter

In Memory of

Craig Daniel Powell

Team ‘Pringle’; Mark Powell, Helen Fleming, Nathan Harris, James Rowe, Howard Williams, Anne Rowe, Rebecca Barnard, Michele Davies, Marlene Upham, Rodney Upham, Lynda Evans and Karen Fleming, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £828.70.

In Memory of

Matthew Price

In Memory of

Shannon Powell

Northwood College, Middlesex, sent in a donation of £1,114.66 in memory of their former pupil, Shannon.

Greg Murdoch took part in the Virgin London Marathon 2013 and raised a further £765, making a total raised of £3,201.

In Memory of In Memory of

James Poynton

Andrew Kayley, Show Treasurer, sent in £350 from the Birkenhead Gang Show; “the money was raised from the sale of CDs, donations collected from the audience and a prize draw held at our after-show cast party.”

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Bobby Puri

‘Team Bobby’; Amit Puri, Akash Puri, Nisha Puri, Nirdosh Puri, John Puri, Neenu Puri, Vishal Puri, Neetin Puri, Joyti Puri, Reena Puri, Stephen Puri, Nira Puri, Radhey Shayam Puri, Sunita Puri, Renu Renu, Morarji Dashna, Harpreet Dhesi, Aneka Lal, Tejpaul Oubhie, Susan Pal, Surish Pal and Charanjit Sembi, took part in the CRY Heart of London Bridges Walk 2013 and raised £108.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

Stuart Pybus

Joan and Gerry Pybus sent in donations totalling £225 which was donated, in lieu of presents, by their brother-in-law and niece, in respect of their 60th and

In Memory of

Timothy Rattray

Claire Bishop took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £818.

In Memory of

Edward Reading

Sean Reading took part in the Virgin London Marathon 2013 and raised a further £555, making a total raised of £1,800.50.

In Memory of

Claire Louise Reed

We have received a donation of £1,225 in lieu of floral tributes for the late Claire Louise Reed.

• Andy Reed sent in a donation of £200.

In Memory of

Alex Reid

• Lisa James, University of Nottingham, sent in a donation of £256.88 in memory of Alex, and further donations of £1,435.50 were received in respect of fundraising activities at the University of Nottingham, making a total raised of £2,008.58.

“Throughout the busy academic year, physiotherapy students from the University of Nottingham have been raising money for CRY in memory of Alex, the daughter of one of the academic lecturers, who died suddenly the previous summer at the age of 16.

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SUPA, the Student Union Physiotherapy Association, along with KARNIVAL, the University of Nottingham Students’ Fundraising Organisation, organised various events throughout the year to raise money for the Alex Reid Memorial Fund within CRY, with donations still being received. ▪ The fundraising started with a simple cake sale situated at the Clinical Sciences Building (CSB) at Nottingham City Hospital, where the physio students’ division is based. There was a huge variety of cakes and biscuits, including Alex’s favourite, Rocky Road. In total, £316.20 was raised. ▪ Two ‘taping and strapping’ courses were held throughout the year to allow students to advance their skills in certain taping techniques used in clinical practise and sporting occasions, whilst expanding their knowledge and understanding of the tape used. Proceeds raised from the courses were also added to the grand total. ▪ Each year SUPA organises hoodies and stash for students to buy. This year an additional £1 charge could be added for delivery of the products to individual’s homes. This extra £1 was donated to the CRY, which added £27 to the total. ▪ Pancake Day and what better way to raise money than by selling chocolate, jam, lemon and banana pancakes to staff and students at the CSB! A small group of 1st year students from the Nottingham University charity organisation “KARNIVAL” raised over £50 for CRY. ▪ One weekend in May, over 20 physio students, three lecturers and one dog took to the hills of 75


Our Fundraisers (current physio student) chaired the event and it was a fantastic success with some incredible bids being placed!

Yorkshire to hike up the three famous peaks “Peny-gent” (691 metres), “Whernside” (728 metres) and “Ingleborough” (723 metres). The aim was to complete the 24.5 mile hike in under 12 hours.

The event was a huge success with everyone enjoying the day and completing the hike! Unfortunately the weather wasn’t brilliant and visibility was poor, however it didn’t dampen any spirits and over £800 was raised.

This is the second year the physio students have taken on the challenge and they hope to advance to the national Three Peaks Challenge next year.

▪ Physiotherapy students at the University of Nottingham have fantastic opportunities to gain experience in many areas of physiotherapy to advance their skills in ways which may not be possible elsewhere. For a number of years, the students have helped out giving post-event massages at sporting events such as The Robin Hood Marathon and various Touch Rugby events. This year, two lecturers took 19 students who volunteered their time to help treat injuries, provide strapping/taping and provide massage to 20 teams. The experience gained was huge with a variety of interesting injuries being treated, acute and chronic - including a suspected ankle fracture, subluxed glenohumeral joint, thumb and finger sprains as well as partially ruptured muscles. The donations received from the event totalled £128. ▪ The final event organised by SUPA was the end of year Physiotherapy Ball, where a Charity Auction was held in memory of Alex. Heather and Haz

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The largest bid was £250 for a Sunday Roast hosted by Heather and her family, for up to 6 people. One lucky student and his 5 friends bid the highest on this prize, which helped raise a grand total of £1,410 on the night. A big ‘thank you’ to all those who donated auction items: Derby County FC; Q Hotels - Aldwark Manor Golf and Spa Hotel; Nottingham Theatre Royal; CRY; Nottinghamshire County Cricket Club; Physiotherapy lecturers and students; Capture Arcadia.

The fantastic fundraising by the physiotherapy students at University of Nottingham has not gone unnoticed and a huge ‘thank you’ goes out for all of the donations received. The students always manage to raise funds each year for various charities, however the focus this past academic year has been on CRY and we hope to continue to support the charity for many years to come, highlighting the importance of cardiac screening in the young.” Charlotte Wade, Vice President of the Student Union Physiotherapy Association.

• Paula Dixon completed the Liverpool Half Marathon and raised £551. • Sheffield High School for Girls sent in a donation of £938.28, raised in respect of end of year fundraising events. • “I am pleased to be able to send you a donation for £250.71 in memory of Alex Reid, a pupil from

Issue 61 | May to August 2013


Our Fundraisers our school who died last year, and was raised by those women and girls who played netball with her.” Katherine Salmon, Sheffield High School for Girls.

rugby balls from Redruth RFC, Cornish Pirates RFC and the Royal Navy Rugby Union.

• Katherine Salmon, Sheffield High School for Girls, also sent in a donation of £328 raised at the staff ‘do’.

In Memory of

Tom Reid

Steve Cass, Base Warrant Officer for Culdrose, was overwhelmed by the generosity of the donations: “Both events were brilliantly supported by friends and members of the Mess. A big thank-you has to go to the committee led by Chief Petty Officer Richie Hackett who put it all together and raised this money for the Debbie Rendle Memorial Fund.”

The Year 11 students at Garforth Academy held a sponsored walk and raised £2,490.

In Memory of

Debbie Rendle

• Jill Tasker sent in a donation of £1,163.54 in respect of the fundraising events at Royal Naval Air Station Culdrose:

“Senior Non-Commissioned Officers from Royal Naval Air Station Culdrose proudly presented a cheque to CRY after two money raising events in the Warrant Officers and Senior Rates Mess. On hand to receive the cheque were Sylvia and Leon Pezzack who set up a memorial fund for their daughter Debbie Rendle. Debbie, a mother of three and married to a Culdrose senior rate, was also a champion Cornish rower who died without warning and with no previous symptoms in February 2007. The cause was later established as sudden adult death syndrome (SADS). St Piran’s Day was celebrated in style with a Party organised for a second year, bringing together talent in the shape of the Culdrose Military Wives Choir, Mousehole Male Voice Choir and Cornish comedienne Anna Keirle who entertained service personnel and friends. Mess committee members worked feverishly selling raffle tickets with prizes generously donated by local shops and businesses. The second event was organised around a “Six Nations Rugby Super Saturday festival” for the final three games of this year’s Six Nations competition. Prizes donated this time included match tickets, replica kits and signed

www.c-r-y.org.uk

• The Foundation Degree Event Management students of Cornwall College held a St. George’s fun day on 23rd April and raised £366.66. The fun included games and prizes, ‘soak the tutor’, a barbeque, music, cakes, and a raffle.

The students, who were in their second year of studying the Event Management foundation degree, awarded by Plymouth University, at Cornwall College Camborne, planned and hosted the event after a unanimous decision to support the charity.

Gail Angove one of the tutors who volunteered to be soaked, said: “Being in the stocks was very invigorating and I actually enjoyed it! The students have shown fantastic teamwork and it’s been a great event, so I’m really pleased with their efforts.”

Sylvia Pezzack was invited to the event by the students. Sylvia said: “I’m really pleased to be here and I think it’s marvellous that the students organised something like this to help raise awareness of such an important issue. Now we can hopefully bring a screening unit to Camborne

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Our Fundraisers later this year, to try and save more lives, so I’d like to thank the students for all their hard work.”

• Sylvia Pezzack sent in a donation of £445 raised in respect of the recent fundraising and raising awareness event held in Mousehole.

In Memory of

Scott Rennie

• Sylvia Pezzack sent in a donation of £150 in respect of sponsorship from the Ticknall/Caolville sponsored cycle ride from John O’Groats to Land’s End.

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Martin Pezzack and his life-long friend Jason Jenkin joined a small team of riders who were raising funds for three worthwhile charities: Cancer Research at Queen Elizabeth Hospital, Birmingham; Cardiac Risk in the Young; and Great Ormond Street Children’s Hospital.

• Paul Hallett took part in the Virgin London Marathon 2013 and raised an additional £300, making a total raised of £2,693. • Jo Hallett took part in the Virgin London Marathon 2013 and raised an additional £220, making a total raised of £2,527. • Julie Farr took part in the Virgin London Marathon 2013 and raised an additional £290, making a total raised of £1,476.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

CRY Representative Benita Davies attended Bourneville Police Station on 3rd June to collect a cheque for £678.70. This was raised by Sergeant Simon Williams and colleagues of Luke Rolfe.

Vicky Porritt sent in donations totalling £2,514: £358 raised at the Great Cake Bake Coffee Morning and Raffle; £211 raised by Edward Timofte in respect of his sponsored run and bike ride; £215 raised by Austin Kennedy who had a donation bucket in his shop; and £1,730 raised by Sarah Clarke who organised a waxing night and charity afternoon.

Luke Rolfe

Demi Sharif

In Memory of

Adam Rowbottom

Ulrike Rowbottom sent in a donation of £288.56 from the Larkmead School Sixth Form Support, who took part in the London to Berlin Cycle Ride in memory of Adam.

In Memory of

Tom Russell

Ailsa Butterworth took part in the Virgin London Marathon 2013 and raised a further £495, making a total raised of £5,570.77.

In Memory of

Jack Sheriff and Louise Bignull

Carol Thorpe completed the Just Walk and raised £262. In respect of the Bupa Great Manchester 10K run, making a total raised of £586.

In Memory of

Sammy Shirley

In Memory of

Craig Salmon

Lindsay Horsnall sent in a donation of £150 in respect of the screening held in memory of Craig.

In Memory of

Neil ‘Kyamatik’ Schuyleman

Catherine Burton, Steve Burton, Georgie Davies, Andrew Davies, Helen Davies, Peter Davies, Anna Georgakakos, Minas Georgakakos and Ann Edwards took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £1,797.

In Memory of

Tabitha Shapland

Amanda Shapland sent in a donation of £100 in lieu of gifts on the occasion of her 60th birthday.

www.c-r-y.org.uk

Simone Thornett sent in a fundraising donation of £600.

In Memory of

Joshua Shotton

Dr Jamie Shotton sent in a donation of £500.

In Memory of

Gregg Shoults

• Susanne Boundy, Fiona Shoults, Melissa Shoults, Alice Tilley, Jennie Tilley, Nick Biley, Yasemin Hassan-Ryan, Lynn Pearce, Annette Rooke and Sarah Hillsley took part in the CRY Heart of London Bridges Walk 2013 and raised £110. • Apetito Limited sent in a matched giving donation of £500 in respect of ‘Greggstival’, held in memory of Gregg.

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Our Fundraisers In Memory of

In Memory of

Jamie Simpson

Ben Simpson

Nicholas Oliver took part in the Virgin London Marathon 2013 and raised a further £377, making a total raised of £1,902.

Adam Grainger sent in £1,616.79 raised at the annual charity golf day in memory of Ben: “Despite the predicted thunderstorms competitors turned out in their droves to remember Ben and make the day a great success. Fortunately the rain held off for the majority of the day and allowed the golfers to get round without getting too wet! Congratulations to Ian Ritchie who won the day with an impressive score of 67. However, the real winner of the day was CRY for whom we managed to raise £1,616.79.”

In Memory of

Sarah Simpson

Hilary Simpson, Lynne Patrick, Linda Atkins, Julian Atkins, Drew Haigh and Emily Haigh took partin the CRY Heart of London Bridges Walk 2013 and raised £220.

In Memory of

Aashi Sinha

• Mr & Mrs Hora and Gidea Park College sent in a donation of £105 in memory of Aashi. • St Mary’s Hare Park School held a production of ‘Gel’ and the ‘Music in May’ event and raised £1,650.

In Memory of

Kevin Smart

Debbie Smart, Stephen Smart, Louise Smart, Lynn Smart, Steve Kite and Colin Heckford took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £425.

In Memory of

David Smiley

James Wibberley completed the Hastings Half Marathon and raised £1,000.

In Memory of

Christopher Simpson

• Annabel Allam completed the Trek to Thailand and raised £4,665. • Charity Challenge sent in a donation of £100 in respect of Annabel Allam’s Trek to Thailand.

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In Memory of

Aubrey Smith

Francesco Migneco completed the StraMilano and raised £305.43.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

• ‘Team Smiffy’; Tony Smith, Elaine Smith, Aimee Smith, Chris Smith, Adam Hobbs, Alex Murphy, Pippa Murphy, Samantha Murphy, Susan Murphy, Alan Murphy, Tim Scudder, Jenneh Phipps and Mike Wheeler, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £140.44.

Julia, Maureen and Richard Smith took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £782.

Charlie Smith

• Anthony Smith completed the Just Walk on 11th May and raised £160.

In Memory of

Lewis Smith

John Sherlock, Nick Allcock and the Nova Raiders Cycling Club sent in a donation of £500, raised in respect of the 335 miles in 3 days cycling event over the Scottish Highlands. “The organised event went off as planned - the team travelled the 330+ miles into the Scottish wilderness on Thursday 6th June before commencing the 3 day, 335 mile epic. The route included 5,954 metres of climbing - some as steep as 21%. The team were inspirational and battled through all the tests and challenges; and we were blessed with exceptional weather throughout!” John Sherlock.

www.c-r-y.org.uk

Robert Smith

In Memory of

Carlo Spiotta

Marco Nardon sent in a donation of £230 in respect of a sponsored bungee jump.

In Memory of

Timmy Spooner

Kristopher Hawkins took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £2,799.69.

In Memory of

Rupert Spurling

• Sue Spurling sent in a donation of £520 which was raised at Cameron and Freya’s 2013 cake sale. Sue Spurling also sent in £931.08 in respect of Cameron and Freya’s 2012 cake sale.

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Our Fundraisers In Memory of

In Memory of

Natalie Stewart

Claire Squires

Cliff Stewart, Gwen Stewart, Alexa Stewart, Nathan Blunt, Helen Woods, Jenny Woods and John Sneed took part in the CRY Heart of London Bridges Walk 2013 and raised £220.

The ‘Squires Effect’ took part in the Virgin London Marathon 2013, and sent a further £1,862.34, making a total raised of £2,760.02. The ‘Squires Effect’ comprised Chris Bowes, Martin Chorley, Lucy Marlow, Tom Nutt, Richard Picton, Nicola Short, Lisa Snare and Martin Winch.

In Memory of

Ian Strange

In Memory of

Phil Standing

Patricia Strange sent in a donation of £100 to commemorate her son’s birthday.

• Claire Gent completed the Singapore Zoo Run and raised £453.27. • Tom Whittle completed the 2013 Rome Marathon and raised £1,430.01. Tom also sent in a donation of £500 from Linklaters LLP in respect of his fundraising, making a total raised of £1,930.01. • Lloyd’s TSB, London SE1, sent in a matched giving donation of £1,500 in respect of the memorial run completed by Breda Fleming, Krishna Manek and Andrew McNiff.

In Memory of

Tony Strike

Michelle Strike, Mark White, Samantha Hughes, Paul Bushnell, Jackie Sampson, Claire Sampson, Pip Saia, Stacey Baston, Scott Bartlett and Zoe Bartlett took part in the CRY Heart of London Bridges Walk 2013 and raised £835.

In Memory of

Paul Sykes

• Ernst & Young LLP sent in a matched giving donation of £1,000 in respect of the Phil Standing Run. • Kim Marshall took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £1,942.70. • Paul Goodwin took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £392.50.

• Sam Jones took part in the Virgin London Marathon 2013 and raised a further £170, making a total raised of £1,865.50. • ‘Team Sykes’; Patrick Sykes, Carly Sykes-Blowers, Edward Blowers, David Dillon, Susan Dillon and Patricia Berry, took part in the CRY Heart of London Bridges Walk 2013 and raised £120.

In Memory of In Memory of

Ben Steele

We have received a CAF cheque for £100 on behalf of Sarah Bailey.

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Courtney Strugnell

The ‘Maltesers’; Lara Strugnell, Phillip Strugnell, Shannen Strugnell, Gary Leeson, Frances Leeson and Glen Leeson, took part in the CRY Heart of London Bridges Walk 2013 and raised £175.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

Jim Tantram

We have received a donation of £315.67 in lieu of floral tributes for the late James ‘Jim’ Tantram.

I even managed to beat my supporters back to the Don Valley Stadium from the half way point in the city centre.

In Memory of

I thoroughly enjoyed my experience of being a CRY runner and have achieved both my targets - to run under 1 hour 45 minutes and to raise over £500 for CRY.

James Taylor completed the Sheffield Half Marathon and raised £607.65:

I would say to anyone thinking about taking on a challenge like this for CRY, please do, it’s a truly fantastic experience and you might just surprise yourself!”

Ian Taylor

“On Sunday 12th of May I ran the Sheffield Half Marathon in what was my second half marathon but first fundraising effort. I wanted to run for CRY after losing my dad, Ian Taylor - a fit, seemingly healthy young man - to a sudden cardiac arrest far too young; and also because the idea of at least 12 families a week being devastated by the loss of a family member, as mine were, is truly upsetting and I’d like to do as much as I can to reduce this. After weeks of hard training, involving seemingly endless evenings trying to keep up with my cross country champion friend over the hills surrounding the area I live, I had built up to running 10 and a half miles and was getting quicker and quicker and starting to feel confident about the run. Eventually the day came and I took up position with the other runners aiming to run a time of around 1 hour and 45 minutes, which would have been an improvement of 5 minutes on my time from last year. In excellent running conditions of clear skies with a cooling breeze I had an almost perfect run and was making good headway and maintaining a quick pace. Regular inspections of my watch appeared to indicate that I had made my way around the first half of the course too quickly and I was in danger of wearing myself out. However, the much hillier environment I’d trained in had left me very fit and equipped with a real determination, so I pushed myself as hard as I could to maintain the speed I was travelling at and managed to finish the 13.6 mile course in 1 hour 34 minutes and 5 seconds - a time I was staggered by!

www.c-r-y.org.uk

In Memory of

Suzanne Taylor

Beryl Ewing sent in a donation of £100 in memory of her daughter: “A few months ago I started to make celebration cakes (mostly for friends, family and colleagues at Royal Mail). As I was still practising I decided to donate any money I made to CRY.”

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Our Fundraisers In Memory of

Sarah Tenwick

Teresa Tenwick-Ford sent in donations totalling £150: Mr F Grimes donated £100 and Mr and Mrs Turner donated £50.

In Memory of

Christian Thomas

Katie Thomas completed a skydive and sent in donations totalling £510.

In Memory of

Gareth Llywelyn Thomas

• Anne Thomas sent in a donation of £230 in lieu of gifts to celebrate Alma’s 90th birthday (Gareth’s nan).

In Memory of

Zoe Teale

• Donations of £456 were sent in from the recent screening in memory of Zoe. • Peter Teale forwarded donations totalling £487.09: £467.09 from the Parents Association quiz night in memory of Zoe and £20 from parents at Oldswinford School in respect of the screening. • Pete Teale forwarded a donation of £582, raised by Waitrose in Lichfield.

In Memory of

Dale Tennent-Butler

• Kerry Hoar took part in the Virgin London Marathon 2013 and raised a further £2,005.20, making a total raised of £3,876. • Robert Harding took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £1,631.

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• Anne Thomas, Trefor Thomas, Roger Nutt, Angela Nutt, Stephen Nutt, Wayne Griffiths and Jayne Griffiths took part in the Virgin London Marathon 2013 and raised £125.

In Memory of

Guy Thomas

‘Team Thomas’; Lisa Thomas, Amy Thomas, Tonie Thomas, Elizabeth Thomas, Ben Thomas, Clare Jefferies, Laura Smith, Hayley Carr, Mark Bowron, Edward Brooks and Jordan Mills, took part in the CRY Heart of London Bridges Walk 2013 and raised £226.

In Memory of

Jack Thomas

Tracey Jones took part in the Virgin London Marathon 2013 and raised a further £526.50, making a total raised of £1,176.50.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

Oliver Thompson

Mr & Mrs Thompson sent in a donation of £595 in lieu of floral tributes for their son, Ollie, who died in his sleep on 15th July.

In Memory of

Christian Thunhurst

Anna Gray completed the Outlaw Half Triathlon and raised £510.

In Memory of

Scott Thurlow

Michael Thurlow, Marcell Thurlow, Wendy Thurlow, Chris Thurlow, Mark Thurlow, Cathryn Simpson and Vanessa Gardezi took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £300.

In Memory of

Hannah Turberville

• Nicki Burgess completed a skydive and has so far raised £2,430: “Perhaps I should start by sharing with you where this crazy idea of throwing myself out of an airplane came from and how I come to be jumping for CRY. If I’m honest, a tandem skydive or parachute jump has always been on my ‘bucket list’. What moved it off the list into physically doing something about it was: a very energetic 71 year old dear uncle; a newspaper article; and a few glasses of wine! It took a while to coordinate dates, but myself and my Uncle Graham did a tandem skydive on June 1st! It was an easy decision to jump for charity, but why CRY? Back in February 2007 we very sadly lost a dear little friend, Hannah. She was only 7, the daughter of two of our closest friends Chris and Katy, twin to Lucy and sister to Oliver. Hannah was a special little person, full of life and made us smile and laugh on so many occasions.

www.c-r-y.org.uk

We loved spending time with her. The whole family had enjoyed a skiing holiday in February but unfortunately the night before they were due to come home Hannah very suddenly and without warning died. Recently I have also had the sad news that Harry - the son of an old work friend, Donna Faulkner - died suddenly without warning of a previously unknown heart problem. Hearing that news made jumping for CRY even more relevant and worthwhile. So to the day itself - June 1st! Having woken up to stunning sunshine and blue skies I knew it was going to be a great day! We had been told to arrive at the airfield at 8am to register and then receive our briefing. All pretty straightforward and having found out we would be in the 6th plane up that morning we had plenty of time for a bacon butty! The guys at the centre worked my character out quickly and suggested wearing their one and only bright yellow jump suit (when everyone else was wearing navy and red) - there I was like a little yellow canary! One thing was for sure, no-one was going to miss me! Just before noon we were called... and without any time to think what we were about to do, we were off... up, up and away! A 15 minute flight to take in the amazing the views of the Cheshire countryside and 10,000ft came all too soon. I heard the ‘1 minute’ call and next thing the door was opened and I was shuffling forward sitting on the lap of my instructor Paul. Before I had time to realise I was hanging out of the door I was freefalling through the air at 120mph. What an amazing feeling! In 30 seconds we’d fallen a mile and Paul opened the chute. Time to take in the fall and enjoy the ride... leisurely over the next five minutes we descended to the ground to the joy of family and friends that had turned up to support me. A safe landing followed,

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Our Fundraisers with no broken bones and the biggest smile on my face - I had done it!

In Memory of

Writing about it right now actually makes me feel quite emotional. Thinking about the fantastic experience that I had, the fact that I found courage and strength to go for it and that I have had the love and support of so many family and friends helping me raise so much for CRY and remember such a dear little friend. Thanks Hannah for your inspiration!”

Joyce Turnbull sent in a donation of £100 in memory of Sian, to commemorate her birthday on 7th July.

Sian Turnbull

In Memory of

Chloe Waddell

Mrs F Waddell sent in donations totalling £472.39.

In Memory of

Richard Waight

Ken Waight sent in a donation of £7,250: “I refer to our recent golf day in memory of our son Richard. We had an excellent day, with 22 teams of four taking part, more than in either of the two previous years. Included in these numbers were six FA Premier League referees, including Mike Dean, Martin Atkinson and Mark Clattenburg.”

In Memory of

Neil Walden

‘Team Neil’; Ros Walden, Peter Walden, Zoe Connor, Steven Conner, Anna Jackson, James Jackson, Tony King, Amy Soldier, Amee Prendergast Moon, Eve Dustin, Nancy Johnson, Julion Arnions, Ed Hickey and Bazon Inquai, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £780.

In Memory of

Thomas Wall

• Mrs Watters sent in a donation of £500.

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Adam Smith took part in the Virgin London Marathon 2013 and raised £2,638.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

Matthew Wallbank

Duncan Rogers completed the Manchester 10K and raised £350.

Suzanne Cushway, Lynn Studd, Ruth Bamford, Lois Wilkes, Hollie Farrow, Amy Brown, Lean Pearson, Venetia Rozier, Sophie Turner and Jade Prewer, took part in the CRY Heart of London Bridges Walk 2013 and raised £352. • Jamie Robinson completed the Thurston 10K Fun Run on 5th May and raised £212.

In Memory of

Alex Watley

• Ashley Thorne took part in the Virgin London Marathon 2013 and raised a further £623.20, making a total raised of £2,277.28. • Stephen Mills took part in the Virgin London Marathon 2013 and raised a further £120, making a total raised of £970. • Sam Kirby completed the Bath Half Marathon and raised £190. • Martin Terrill held a fundraising event and raised £510. • Paddy Roadnight completed a cycle challenge and raised £340. • Stephen Mills completed the Reading Half Marathon and raised £1,682.50.

In Memory of

Lily Webster

• ‘Lily’s Lovelies’; Melanie Webster, Richard Webster, Jack Webster, Kelly-Lee Jarvis, Lorraine Anderson, Becky Presland, Sam Paterson, Bethan Stott, Judy Booth, Gary Brown, Nick Cavill, Katie Sharpe, Lesley Dingli, Emma Farnish, Mark Smith, Amanda Fellingham, Mark Fellingham, Luke Fellingham, Alexander Fellingham, Nigel Fellingham, Amanda Fellingham, Alya Ryder, Kieron Smith, John Smith, Sara Green, Carol Holmes, Toni Jarvis, Clare Karen, Georgina Lambert, Heather Marchant, Heather McMurray, Lona Davis, Karen Pinn, Delia Prior, Eve Randall, Gordon Salt, Margaret Salt, Katie Salt, Richard Smith, Robbie Salt, Cathy Alerbertella, Stella Sharman, Gabrielle Smith, Adam Smith, Joe Smith, Angela Smith,

www.c-r-y.org.uk

In Memory of

Lily Webster and Florence Coombes

Melanie Webster sent in a donation of £110 in respect of donations made at Lily’s great grandmother’s funeral and £324 from Deansfield High School, who held a charity evening.

In Memory of

Sally Emma Wells

• The Buckingham School donated £542 from their 6th form prom fund: “Sally died suddenly of a cardiac arrest at just 17 years of age. Whilst Sally was not a pupil at our school, she was a local teenager who was very popular with many of our students, particularly our head girl, Kayleigh Watts, who was her best friend. The 6th form students have chosen to donate to CRY from money raised for their 6th Form Prom Evening.” Jessica Parish, Kayleigh Watts

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Our Fundraisers and all the sixth form students at the Buckingham School. • Margaret Wells, Simon Wells, Kayleigh Watts, Toria Brazier, Emma Brazier, Diane Lambert, John Lambert, Lucy Piosek, Katie Townsend, Kaye Mater and Paige Hemming took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £808.

In Memory of

Paul Stephen Wilkins

• Pam Oates held her annual charity night on 13th January and raised £1,170. • Emily Love took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £2,731.95. • ‘Team Wilko’; Pam Oates, Bill Oates, Perry Brookes, Katie Locke, Ashley Palmer, Steve Young, Michelle Palmer, Martin Wright and Deborah Wright, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £650.

The afternoon started off with a set of rock covers from Vera Cruz, who had to be on early as they were off to play another venue later. They were followed by Strangeways who played a set of punk covers from such as The Clash and The Sex Pistols. This was followed by solo artist John Doyle who played a variety of songs from The Police to Richard Thompson. One of the guitarists from Strangeways then swapped over to bass guitar and went on to do another set with Iron Maiden tribute band Blood Brothers. Tom, who had been standing in on drums for Vera Cruise, rejoined his usual band Black Russian Roulette who took to the stage playing a set of rock covers. The evening was closed by Bad Horsie who played a set of 80s and 90s songs, rocked up in their own particular style (‘Waterloo’ played in the style of Metallica!). The Atherton Botanical Gardens Club provided the room free and also made a donation from the bar takings and selling of food. Amy’s dad Dave provided the sound and lighting equipment whilst mum Julie and sister Nic helped on the door and with ‘roadie-ing’ duties.” Dave Williams.

In Memory of

Amy Williams

Julie Williams sent in donations of £1,331.01 raised at a fundraising event held in memory of Amy. “Each year family friend and ex-publican John Thompson has a charity fundraising event in memory of the chef, Tony Boardman, who worked for him at his pub, The Glass Barrel, in Tyldesley, Greater Manchester. Tony sadly died shortly after the pub closed in 2008. This year’s fundraiser was in aid of CRY and in the memory of Amy Williams. The event took place at The Botanical Gardens club, Atherton, on the 1st June 2013 where nearly 200 bikers and rock music aficionados gathered to watch and listen to several local bands, all of whom played for free. Items were donated for an auction and several cash donations were made at the event and afterwards.

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In Memory of

David Williams

Sue Williams forwarded a donation of £1,950 raised in respect of the Ash Music Festival, organised by Mike and Lyndsey Armitage in memory of David.

Issue 61 | May to August 2013


Our Fundraisers In Memory of

In Memory of

Joe Williams

• ‘Team YNWA’; Tom Williams, Karen Abarian, Martyn Archer, Sarah Archer, Jamie Challen, George Clarkson, Charles Clarkson, Tracey Clarkson, Lisa Croxon, Tracey Ellis, Leslie green, Margaret Ixer-Pitfield, Danny Gyngell, Rachel Harvey, Hilary Howard, Katie Lacey, Poppy Lawrence, Samantha Pain, James Pain, Jeanie Phillips, Katie Phillips, Lynsey Reed, Andrew Rogers, Laurence Rogers, Erich Schulze, Marie Schulze, Philipp Shulze, Hannah Smith, Avril Taberner, Matthew Burt, Luke McClean, Ben Pain, James Forster, Laura Buchan and Laura Schulze, took part in the CRY Heart of London Bridges Walk 2013 and raised £1,365.

The friends and family of Joe Williams travelled from Staines to walk in memory of the 23 year old who had died two months previously.

James Wilson

Paula Thomson sent in donations totalling £250.87: £124.46 raised at a staff coffee morning and £126.14 from a dress down day for staff and pupils of Usworth Colliery Primary School.

In Memory of

Pixie Belle Wilson

Lucy Marshall completed a Vegas skydive and raised £332.16: “In July 2010 I lost my beautiful niece Pixie Belle, aged 13 months. We were told that the cause was sudden infant death, yet she was such a healthy and happy little girl. We started fundraising for SIDS (sudden infant death syndrome) and SUDC (sudden unexpected death in childhood). In 2012 it would have been Pixie’s 3rd birthday and the 2nd anniversary of her death. The SUDC Program came back with results from further tests giving us a reason as to why Pixie died. Little Pixie died from myocarditis, which is inflammation of the heart muscle, caused by a virus in her case.

• We have received a donation of £420 in lieu of floral tributes for the late Joseph Stephen Williams. • Alex Gwilliam sent in a donation of £106.59 in respect of the cake sale at the Harpenden branch of Nationwide. • Nationwide Building Society, Swindon, sent in a donation of £400 which represents donations received in respect of nominations for the Community Match scheme. • Samantha Larman, Nationwide Building Society, sent in a donation of £235.47 raised by the customers of the Feltham branch of Nationwide. Samantha Larman also sent sent in a further donation of £605.80. • The staff, children and parents of Laleham Church Playgroup raised £570.

www.c-r-y.org.uk

We are so thankful for all the help and support The SUDC Program gave and would now like to help with fundraising for CRY. I decided to do a skydive because I’m always up for pushing myself out of my comfort zone and wanted to link that with raising money for CRY. On April 24th 2013, my fiancé and I jumped from an airplane overlooking the Grand Canyon and Hoover Dam in Las Vegas. It was one of the scariest and most amazing experiences of our lives! As you can see in the pictures, I had a little bear with me. She is called Betty and has been on a big journey herself since Pixie left us in 2010. She’s travelled all over the world to Australia, America, Singapore, Germany, and even up Mount

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Our Fundraisers Kilimanjaro; and then was auctioned to raise money for Pixie’s charity. I was lucky enough to win the auction as she had accompanied me to Australia and Kilimanjaro, so I felt a special bond with her. I decided I wanted her to join me in the skydive, luckily she made it down safely with me. I will continue to support and raise funds for this fantastic charity!”

In Memory of

James Wood

Gill Wood sent in a donation of £510: “We held our annual family tennis tournament day, called the James Wood Memorial Trophy, on Sunday 26th May this year. This event is held in memory of my eldest son James who died from a still undiagnosed heart problem at the age of 15, ten years ago. The aim of the day has always been to encourage parents to play tennis with their children and to bring the family together. This was certainly achieved this year with a record turn out and we raised £510 in aid of CRY. We were incredibly lucky with the weather and the sun shone most of the day, which in itself helped the day to be a light, happy and fun day which James would have loved.”

In Memory of

Liam Wood

The staff and pupils of St Wulstan’s Catholic Primary School held a ‘beat the teacher’ penalty shoot out and raised £1,567.85.

In Memory of

Linda Wood

We have received a donation of £599.25 in lieu of floral tributes for the late Linda Wood.

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Issue 61 | May to August 2013


Our Fundraisers In Memory of

Julian Wort

• Julie Peet took part in the Virgin London Marathon 2013 and raised £560. • Shirley Wort forwarded a donation of £264.45 in respect of sponsorship for Dave Meagor, who completed the Frome Half Marathon in July 2012.

In Memory of

Sam Wright

• Dani West and the ‘Friends of Sam Wright’ held a charity gala dinner and silent auction at the Genting Club, Riverlights, Derby and raised £1,900:

“On Friday 14th June 2013, Genting Club Riverlights, Derby, hosted a corporate charity fundraiser. Our 70 guests enjoyed a champagne reception on arrival, before being able to view and discuss the many fantastic auction prizes donated by local businesses.

I presented a short welcome speech followed by a wonderful speech about CRY from Paralympian, Olympic Torch Bearer and passionate CRY supporter Leon Taylor. Guests were able to socialise and relax during a delicious three-course meal provided by the venue.

Silent auction prizes included a tour of the Houses of Parliament, a VIP tour of the Red Bull Racing factory in Milton Keynes, signed Olympic merchandise, and tickets to local attractions and events including Derby Theatre, Uttoxeter Racecourse and Derbyshire County Cricket Club.

The highest bidder of the night was Chris West, buying a bespoke painting by artist Tony Howell, for £525!

Overall it was a hugely successful evening, raising £1,900 for CRY, and is sure to be repeated in the future!”

www.c-r-y.org.uk

• The second annual fundraiser at Woodlands School was held on 13th July and raised £4,000 in memory of Sam. CRY volunteer, Dani West, attended on behalf of CRY:

“After a successful fundraising fair at Woodlands School in April 2012, the ‘Friends of Sam Wright’ committee decided that it would become an annual event.

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Our Fundraisers Saturday 13th July 2013 promised to be a day filled with fun and excitement, and lots of sunshine at Woodlands School in Allestree, Derby. With the bar and the BBQ at the ready on the front lawn, and stalls of every kind set up inside the school hall, our event was officially opened by the Mayor of Derby at 10:00am. Crowds turned up in their hundreds to enjoy the weather and the festivities, which included a bouncy castle, an outdoor laser-tag game, a ‘sponge the teacher’ game and many other activities. Derby County Football Club mascot Rammie made an appearance with Paralympian and Olympic Torchbearer Leon Taylor for photo opportunities. We had various acts and entertainers performing throughout the day, including some of Sam’s friends from school.

• Rachel Redsell took part in the Virgin London Marathon 2013 and raised a further £353.75, making a total raised of £2,240. • Pete Gilmore took part in the Virgin London Marathon 2013 and raised a further £499.39, making a total raised of £1,309.39.

In Memory of

Stella Constance Yeates

CRY has received a donation of £305 in lieu of floral tributes for the late Stella Constance Yeates.

General Fundraising

To finish off a busy day of fundraising and enjoyment, we drew the raffle, which had over 60 prizes! Top prizes included an iPad Mini, signed Olympic merchandise and Derby County FC merchandise.

• Altrincham Grammar School for Girls’ Prom Committee (2012) had a sum of money left over from their prom and decided to donate it to CRY. Olivia Prickett, Treasurer, sent in a donation of £229.

We were so pleased to announce the next day that we had raised £4,000 for CRY, and a further £1,000 to be used by the school for the purchase of a life-saving defibrillator.” Dani West.

• Pamela Andrews completed the Inverness Half Marathon and raised £475. • Melanie Atkinson sent in sponsorship donations totalling £760.10 in respect of the Kilimanjaro Trek she completed in June. • On Sunday 14th July 2013 a group of 16 cast and crew from the Axmouth Children’s Theatre took part in a sponsored walk. Malcolm Henty sent in a donation of £312.28, making a total raised of £427.28:

• We have received £242 from a fundraising day held at Westfield, Derby, on Saturday 20th July. CRY volunteer Dani West attended and she was joined by Olympic Torchbearer Leon Taylor for photo opportunities and to chat to visitors about the work done by CRY. • Shelley Brockley, Derby North District Scout Council, sent in a donation of £100 which represents part of the collection taken at their recent St George’s Day parade.

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“On a blistering hot Sunday morning the youngsters of ACT (Axmouth Children’s Theatre) set out on a seven mile sponsored walk to raise awareness and money for Cardiac Risk in the Young. Originally, a few of them had planned to go to London to do the CRY 7 Bridges Walk but the logistics of getting the kids there early on a Sunday morning proved prohibitive. So with CRY’s permission they designed their own walk, but this time it was to be approximately 7 miles and take in 12 different bridges in memory of the 12 children who die each week through undiagnosed heart conditions.

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A total of 16 cast and crew took part, departing from Axmouth Bridge the walk took them up through Seaton and out onto the marshes and then to Colyford Common Nature Reserve. Eventually emerging in Colyford they then set off up the River Coly and out into Cowhayne Lane before crossing into Colyton, they then walked through Colyton and out across the fields the other side for some distance, having arrived at the furthest point Bridge 11, the youngsters took a welcome break in the cooling river. Retracing their route led them back to Colyford Bridge, where they turned right and crossed a field to Bridge 12 before heading back to Colyford Tram Station to complete the walk. All in all it was a very hot, but rewarding day.”

• Nick Baird took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £4,183.40. • Mia Barrett completed a skydive and raised £260. • John Battle took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £1,916. • Charlotte Belcher took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £1,880. • Belfast High School sent in a donation of £1,470 from the recent screening. • The students in Hawks House, Berkhamstead School, sent in a fundraising donation of £152.30. • Sarah Birch completed the Great Midlands Fun Run and raised £416.56. • Kiran and Simona Bissoo completed the Richmond Half Marathon and raised £135. • Amy Clear, Boarding Schools’ Association (BSA), sent in a donation of £250. • David Bott took part in the Virgin London Marathon 2013 and raised a further £450, making a total raised of £2,416. • Caroline Braikford opened her garden as part of the Dore Festival and raised £214. • Breathing Space Spa, Harpenden, held a 10th Anniversary event and raised £2,010. CRY Representative Katy Turberville collected the cheque. • Briggs Equipment UK sent in a donation of £147.90 from a jeans day. • The British School of Paris sent in a donation of £5,600.

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General Fundraising • Charlotte Pattison-Rideout, Sodexo, sent in a donation of £1,000:

• Craig Cornwell completed the Run Armagh and raised £200.

• David Crow completed a 47 mile sponsored bike ride, from Allenheads in Northumberland to Roker in Sunderland, and raised £200.

“We have a small pot of money available at HMP & YOI Bronzefield’s Women’s prison in Ashford, Surrey. I recently asked for a vote on which charities we wanted to support and I am delighted to let you know that CRY was selected. This is all the more poignant as one of our staff members recently experienced the sudden cardiac death of a young close friend.”

• Astrid Browne sent in a donation of £1000 from ‘Give Mondays’. • Alice Burrell, acting medical secretary at the CRY Centre for Cardiac Pathology, and Philippa Burrell completed the Edinburgh Half Marathon and raised £700. • Sarah Butterworth took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £930. • Cardiff Blues sent in a donation of £800 in respect of recent fundraising. • Catalent Pharma Solutions, Lancashire, sent in a donation of £120 as part of their Reward and Recognition Scheme. • Caterham & District Round Table 274 held a firework display and sent in a donation of £1,500. • Centrica Prod Serv sent in a donation of £3,615. • The children, parents and staff from Chancel Primary School took part in the Rugeley Charter Fair Parade and raised £349.67. • Chris Chapman completed a triathlon and raised £344. • CMS Cameron McKenna LLP sent in a donation of £500. • Rob Crane took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £396.

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• Louise Crawford, Dalriada School, sent in £300: “The World Aid Group is the charity group in Dalriada School. We have organised a variety of events this year, e.g. a talent show, coffee mornings, bun sales, our own version of ‘Take Me Out’, and an old-fashioned sports day, to name a few.” • Nigel Cree took part in the Virgin London Marathon 2013 in memory of his cousin and sent a further £180, making a total raised of £4,130.01. • Hanna Daly raised £150 in respect of the Virgin London Marathon 2013. • Kim and Zoe Davies took part in the Virgin London Marathon 2013 and raised a further £1,441.80, making a total raised of £1,801.80. • Emma Davis recently celebrated her Silver Wedding Anniversary and sent in an additional donation of £280 in lieu of gifts, making a total raised of £300. • The Day Lewis Pharmacy PLC held a charity fun day and raised £187.40. • Derby Homes sent in a donation of £950 as CRY was their Charity of the Year 2012/13. • Mr C Burrowes, ‘Make My Day Better’, sent in a donation of £1,000:

“‘Make My Day Better’ is the charity arm of DialAFlight and the Lotus Group which supports a variety of projects around the world.”

• Andrew Duggan completed the Great North Swim and raised £140. • Dulwich Preparatory School held an upper school cake sale and raised £147.41.

Issue 61 | May to August 2013


General Fundraising • Amy Dutton completed the Bupa Great Manchester Run and raised £215.

• Adrian Fearn raised £207 in respect of the Virgin London Marathon 2013.

• Obi Ebizie completed an Olympathon on 27th and 28th June and raised £130:

• The School League ‘Gaselee’ of Felsted Preparatory School raised £2,464.62 from various events during the year.

“I decided to take part in the Olympathon because of my love of sports and to raise funds. I had the fantastic opportunity to take part in a wide range of sports for 26.22 hours.”

• David Whincup, Managing Director, sent in a donation of £200L

“The Educare Children’s Nursery celebrated 15 succesful years in business last week with a fun day for parents and children. It was well supported and various fundraising activities took place. A total of £200 was raised and one of our deputy managers, Vicky Morris, proposed that the proceeds should be donated to CRY.”

• Ewell Rotary Club sent in a donation of £450. • ExeWing Fundraisers held a sci-fi day at Pecorama, Devon, on 30th June and raised £3,825. • Graham Fairbairn sent in a donation of £928.09 in respect of the Viva La Rock Reunion event:

“On 27th April 2013 a Viva La Rock Reunion was held in Peterborough at the Brewery Tap to raise money for CRY. It was 25 years since the original club closed down and many of the guests hadn’t seen each other for many years. It was also an opportunity to remember friends who had passed away due to sudden adult death syndrome over the past years. Many of the guests donated generously and over £900 was raised on the night. The gig was a complete success and great fun was had by all. Hopefully this will now become an annual event.”

• Richard Fisher donated £260 from various fundraising events. • Ryan Fisher completed the Paris Marathon and raised an additional £332.50, making a total raised of £382.50. • The ‘Four Pillars Hotels’ team; Michelle Ager, Anna Bambrook, Rachel Bambrook, Peter Bowl, Vicki Bowl, Sharon Chadwick, Adrian Crook, Dennis Flynn, Carol Fothergill, Chantelle Gallacher, Justin gough, Nikki Gough, Alistair Graham, Lisa Harvey, Liz Heneghan, Alison Hodgson, Caroline Howkins, Linda Howkins, Ariana Kicka, Kerry Lewis, Abby Mason, Kelly Middleton, Anne Patten, Elma Prentice, Richard Prentice, Jessica Saunders, Tristan Stayte, Katherine Swingler, Daniel Swingler, Lindsey Wakeley, David Wann, Haydn Wells and Helen Wilce, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £749.

• Garstang Musical Productions sent in a donation of £225. • Richard Garthwaite completed a canoe challenge from Devizes to Westminster and raised £587.60.

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General Fundraising • Michael Glazebrook took part in the Virgin London Marathon 2013 and raised a further £650, making a total raised of £1,818.75.

the roads. To drive a small town car that is built for safely negotiating the weekly shopping run across some of the worst quality ‘roads’ and roughest terrain imaginable was interesting to say the least. Despite fitting a sump guard and suspension blocks to increase our chances of not breaking the most vulnerable parts, we still managed to crack the sump whilst driving through the Gobi desert (and towing another car at the time!). Luckily for us, we were rescued by fellow rallyers Ruben & Miguel, both Spanish mechanics. Such was the instinct for survival and ‘esprit de corps’ among the multinational rallyers that we spent much of our 1,000 mile journey across Mongolia travelling in convoy. Every effort was made to ensure the cars made it to their destination – nothing appeared to be unfixable. Ingenuity and improvisation counted for everything in such a remote environment. A pair of flip flops were zip-tied into a broken suspension spring, providing enough support to get a stricken Suzuki Alto to Ulaanbaatar, only to then be removed and returned to their owner’s feet!

• Goldman Sachs sent in matched giving donations totalling £11,500 in respect of Ian McCurdie and Paul Chambers’s Mongol Rally fundraising event.

On Sunday 14th July Ian McCurdie and Paul Chambers set off as competitors in the 2013 Mongol Rally. They raised a total of £17,460 (£18,533.75 including Gift Aid).

“Riot police and river crossings, blatant corruption and mindless bureaucracy, and of course mechanical breakdown. These are the things that threaten to get in the way of a small car driving over 9,000 miles across 19 countries in aid of charity. Such are the challenges of the Mongol Rally, an event that sees more than 200 small cars set off from the UK and attempt to drive across one third of the earth’s surface on some of its worst roads to reach the capital of Mongolia, Ulaanbaatar.

Amidst whispers of ‘mid-life crisis’, we took on this challenge in a four door Smart car and, perhaps against the odds, we succeeded and raised just over £18,000 for CRY along the way. Our journey was full of incident and adventure, taking us across deserts, over mountain ranges and through great swathes of breathtaking expansive wilderness. From the relative comfort and familiarity of Europe, through the exotic (and hot) Silk Routes of Central Asia to the spectacular steppe region of Mongolia, we travelled through regions seldom visited by tourists and largely untouched by modern life. The warmth and generosity of the local people we met along the way, most of whom lived simple lives with few possessions, was at times overwhelming and certainly one of the most memorable aspects of our adventure.

Highlights along the way were many and varied, but most memorable were the scenery and the people. The scenery was ever changing and spectacular, from the Gates of Hell in the Karakum desert in Turkmenistan to the mountain passes of the Transfagasaran highway (Jeremy Clarkson’s ‘best road in the world’) to the huge valleys of central Kyrgystan to the stunning storm clouds, rainbows and wild eagles in Mongolia. We met so many kind, friendly people, including Turkmen truck drivers, vodka drinking Kazakh mothers, proud Georgian businessmen, endless enthusiastic Mongolian children and of course many other rallyers from all over the world, each with their own stories to tell.

This was very much the trip of a lifetime. We had lots of adventure, raised some funds for a really worthwhile cause and came home with our faith in the human spirit fully restored. But what next…?!” Ian McCurdie & Paul Chambers, the ‘Old Blues Brothers’.

Our greatest challenge was probably the quality of

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Issue 61 | May to August 2013


General Fundraising Linda Sterrett, Natalie Sterrett, Vanessa Sterrett, Michael Crotty, Laura King and Brian Allen, took part in the CRY Heart of London Bridges Walk 2013 and raised £780.70. • Rob Hughes took part in the Virgin London Marathon 2013 and raised a further £196, making a total raised of £959. • Jane Gransden sent in a donation of £120 in respect of the event on board the Edith May Sailing Barge which took place during the May Day bank holiday weekend. • Jessica Grante took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £150. • Kim Gunn took part in the Virgin London Marathon 2013 and raised a further £484.45, making a total raised of £2,088.65. • The Haberdashers, Holt School, Berkshire, sent in a fundraising donation of £535.13. • Health Management City Limited held a cheese and wine evening and raised £344. • Helen Hinton sent in a donation of £1,626.60: “We held an afternoon tea and auction at our home. It was a fantastic day and lovely weather. It was held in our garden in a marquee loaned to us by some friends. We wanted to raise funds for CRY after our son suffered a cardiac arrest last year. Luckily he survived, and became a dad for the first time yesterday.”

• The Inglewhite Congregational Church sent in a donation of £312.30. • Aimee Jarrold took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £956. • Andrew Johnston took part in the Virgin London Marathon 2013 and raised a further £1,415, making a total raised of £1,495. • Kerstin Menday, Ken Blanchard Companies, nominated CRY to receive a donation of £320. • Ian Kennedy raised £150 in respect of the Virgin London Marathon 2013. • Cathie Carday, Kickzdance, sent in a donation of £176. The BKD Performers held a dance show at the Old Woking Community Centre in Surrey on Saturday 20th July. They raised the money for CRY from sales of programmes for the show.

• Benjamin Holdsworth took part in the Virgin London Marathon 2013 and raised a further £195, making a total raised of £1,522. • Colin Hubbard took part in the Virgin London Marathon 2013 and raised a further £1,177, making a total raised of £1,768.38. • ‘Lauren and the Pace-Makers’; Lauren Hughes, Adam Hughes, Josh Van Cuylenburg, Jamie Hawley, Elena Boyle, Katie Seymour, Trudi Steel, Ryan Steele, Clare Pepper, Martin Pepper, Rachel Holden, Joe Graver, Babak Mansourjah, Lisa Reynolds, Chris Sterrett,

www.c-r-y.org.uk

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General Fundraising • Leo Koch completed the Coast to Coast Irish Style and raised £670. • Rabbi Shlomo Levin completed the RideLondonSurrey and has sent a further donation from Professor David and Dr Jeanne Kutz, making a total raised of £11,128. • Leicester Grammar Junior School sent in a fundraising donation of £163.77. • The London Hardwood Club held their annual lunch in January and sent in a donation of £625.

Thank You Ulm - Jun 10, 2013 9:50 pm

Today we are finally leaving Ulm after unexpectedly staying here for a week. We didn’t expect to be stranded here due to the flooding but we could not have asked for a better place to be than Ulm. Everyone here has been so welcoming and generous.

Jockenstein - Jun 12, 2013 9:28 am

We are off! Yesterday we set off from Passau and made it to the Jockenstein lock. Straight out of a James Bond set, the last German lock came complete with henchmen in uniforms riding trollies. Today we crossed the border into Austria passing some amazing scenery.

Good start - Jun 13, 2013 8:29 am

We got off to a good start yesterday, clearing four locks and 133km, well above our 100km a day target. The views as we are rowing are incredible. Lots of little picture perfect Austrian villages squeezed onto the mountainside. Today the target is to get to Vienna. It means another monster day of 130km plus so fingers crossed the lock keepers continue to be kind to us.

On the run… - Jun 17, 2013 7:55 pm

• Longdean School, Hertfordshire, have four houses who each raised money for CRY. CRY Representative Katy Turberville collected the cheque for £2,021.68 on 19th of July 2013. • Eammon Lundy completed a tandem skydive and raised £332. • Valerie Malcolm sent in a sponsorship donation of £100 in respect of Mark Hughes and the Row the Danube Challenge.

Jon Cowie and Mark Hughes, Team H2Row, decided to take on the challenge of rowing the river Danube for CRY and another charity. They were the first rowers ever to attempt the 3,200km journey, which took four weeks to complete and saw them pass through ten countries between the Black Forest and the Black Sea with lots of adventures and problems to overcome.

Extracts from their blog are shown below, and the full version can be found at http://www.c-r-y.org. uk/Row_The_Danube.htm

“Update - Jun 04, 2013 12:48 pm

The boat has safely arrived thanks to Gary from Aquila Logistics so we are good to go… except for the record flooding – the worst in 500 years. We learnt a new German word; Katastrophonalarumn.

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It was a bit of a slow start today when we thought me might get stopped and/or arrested as the Hungarians had shut the Danube to all but essential traffic. It did allow is to refuel on water and some food though and we set off when part of the river re-opened. The river is obviously high and there are signs all around that there has been a lot of damage. Belgrade: Red Star Rowing Club Jun 22, 2013 3:07 pm

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tracker and Ardbeg for vinyl-wrapping the boat), to Forth Corinthian Yacht Club for giving us free yard space, to Sabrina for designing our logo, to Ant Clifford for driving Fight & Spirit down for her refit, to Francis Carnegy and Emma Coley for providing our comprehensive (and untouched!) first aid kit, to Teems Marine Surveys in Glasgow, and John Higson for ocean rowing wisdom!

Today we made it to Belgrade. Our friend Pedja, who is to take ‘Fight & Spirit’ on her next adventure, met us in his kayak and escorted us a short way up the Sava river to Red Star Rowing Club. We were treated to a great welcome, a fantastic lunch (fresh food!), and our first shower in 12 days… amazing. Now we’re on the go again. Here’s hoping the Iron Gates are open…

There are many more: thank you.

Finally, thanks for following us and encouraging us along the way. When the proceeds from selling the boat come through and are added in, we look likely to exceed the £10,000 fundraising target.” Jon Cowie and Mark Hughes, Team H2Row.

The end: thank you - Jul 06, 2013 9:52 am

We’ve made it to Constanta - intact. We need to say thank you to many people, without whom this project wouldn’t have got off the ground. Some who deserve special thanks are: Mike Whipp for donating such a solid Manx ocean rowing boat; all of our new friends at Ulm Rowing club (especially Jörg for his master canal logistics throughout; Connie, Michael and family for putting us up and entertaining us for over a week; Hans for driving us and boat to flooded Passau; and to Claudia Barth et al for confirming our taste for German wheat beer…) Thanks to Charlie Blair (the original Danubian rowing pioneer) for bagpiping us through Vienna, to Imola Varga for keeping the Hungarian river police on our side, and to Predrag Tripkovic and team for the amazing lunch and shower at Red Star BC in Belgrade. Thanks too to everyone who helped our early crowdfunder effort to source oars, to all of the people and companies who encouraged and sponsored us (especially Gert at Trackplot for providing the GPS

www.c-r-y.org.uk

• ‘Team IKKI’; James, Ethel and Stephen Merry, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £175. • Caroline Metcalfe completed the Forest of Dean Half Marathon and raised £420. • Pip Mitchell completed the Coast to Cotswold Challenge and sent in an additional donation of £2,715.50, making a total raised of £3,150.00. • Miss V Stearns, Moreton Hall, sent in a donation of £3,381.80 raised in respect of the sporting dinner with CRY Patrons John Inverdale and Simon Halliday.

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“We all enjoyed a different but very entertaining sporting evening in the Musgrave, in early May. John Inverdale and Simon Halliday came up to ‘talk sport’ to the guests and Inverdale showed why he was catapulted into frontline sports presenting with consummate story-telling and anecdotes from the past.” Chris Dixon (parent).

• Rosemary Palmer completed the Lincoln 10K and raised £120:

• John Murrell sent in a donation of £100. • Nationwide Building Society, Swindon, sent in ‘Community Match’ Scheme donations totalling £200.

“I’ve completed my first 10K today, having run the Lincoln 10K. My husband and son ran it last year and I vowed I would never do it! However, a few months later I got into running on the treadmill at the gym and gradually built up my distance and the determination that I would run the 10K after all!

• Harriet Hill and Rosie Leatherland, Newcastle University Students’ Union, sent in a donation of £1,073 raised during RAG Week 2013. • New Line Learning Academy, Kent, sent in total donations of £490.78. • Falcon House, Newstead School, Kent raised £907.11 during their charity week with a variety of events, including a non-uniform day and lunch time juke box. • Donations totalling £215 were received at the recent screening held in Northern Ireland. • Oundle School, Peterborough, recently held a collection in the chapel, and raised £622.49. • Kate Ovens completed a half marathon and raised £140:

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“This was the second time I ran the Fleet Half Marathon, but instead of beating my time last year (which was my aim) I fell very short of it, as I sadly broke my toe on the 6th mile. But, I pushed on and finished which I feel was an even bigger challenge to have overcome, and I’m so glad that I did it! I’m so pleased my money is going towards CRY’s research and hopefully I’ll be able to raise even more money in the future!”

My other son, Ben, had a cardiac condition causing supra-ventricular tachycardia and needed a surgical procedure, which he has recently had with a very successful outcome. He had been quite affected by his condition which meant he couldn’t exercise without fear of having an episode and was on medication.

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My niece has the same condition and is having her procedure later this month. Ben is now planning to join the gym and start running as well, with a view of running with us next year. I am very happy that I have managed to raise quite a lot of money for CRY, and it has also helped with my incentive to do the run.”

• The Partnership, Kent, held a luncheon at the Guild Hall on 14th June and presented CRY Representatives Carl and Eunice Johnson with a cheque for £1,000.

in Waitomo, the street markets of Hong Kong, took part in lugeing and zorbing in Rotorua, and climbed the Auckland Sky Tower. The tourists chose CRY as their tour charity and donated all profits from the sale of their tour brochure to this fantastic cause. A total of £3,502.02 was raised for CRY through this venture.”

• Steve Morgan sent in a donation of £4,000 raised at the golf day at Pontypridd Golf Club on 7th July. • Nick Power completed the Paris Marathon and raised £1,370.01. • Daisy Price took part in the Virgin London Marathon 2013 and raised a further £585, making a total raised of £3,026. • The students of Priory Community School, Weston-Super-Mare, sent in a donation of £4,126.75 from various fundraising activities held during the year. • Queen Elizabeth Hospital, Bristol, held a fundraising day and raised £772.27. • Dean Rawlinson took part in the Virgin London Marathon 2013 and sent additional donations, making a total raised of £355. • Alan and Liona Riding completed the Wall Challenge, Carlisle - Newcastle, and raised £141. • The Royal Berkshire Club sent in a donation of £172 from the collection tin. • Doramy Chaumeton forwarded sponsorship donations totalling £1,000 in respect of the Royal Grammar School Guildford’s rugby and hockey tour to New Zealand:

• The students of Royal Holloway, University of London, raised £134.14 during their RAG charity initiative. • Michael Withers, MD, Sagential Group PLC, sent in a donation of £500. • The Freemasons of L5892, Seven Stars Lodge, Essex, sent in a donation of £500. • Robert Shearing completed the South Coast Triathlon and raised £213. • CRY Consultant Cardiac Pathologist Dr Mary Sheppard; Robert, Alison and Maureen Sheppard; ‘The Long Family’: Mary-Louise, Jonathan, Francesca and James Long; and Annette and Ray Walsh took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £1,451. • The Shropshire Junior Football Team held a presentation and charity award day on 15th June. CRY Representative Ian Morris collected a cheque for £500.

“63 boys and 8 staff from RGS Guildford travelled to Hong Kong and New Zealand in August 2013 on a joint hockey and rugby tour. The tourists experienced both cultural and adrenaline-burning opportunities during their trip. In addition to playing some highly competitive sport, they visited the glow-worm caves

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General Fundraising • The Silver Cross Youth Club, Maidstone, held a 24 hour famine and sleepover in June and raised £250.

“Members aged 11-18 plus club leaders starved themselves from breakfast on a Friday until a group club breakfast on the Saturday morning - missing lunch and dinner at school, work and their homes. Then in the evening the regular two hour youth club meeting was extended so that members played table tennis, pool, etc. through much of the night, and sleep was rarely on the agenda at the sleepover. One of our young leaders, Ross, suggested that we did this event for CRY; he has had some cardiac issues himself.” Gary Nevill, Silver Cross Youth Club Leader.

“The Lord Mayor of Armagh City and District Council, Councillor Sharon Haughey-Grimley, has requested that the collection taken at a service in the cathedral on 24th March, to celebrate the 400th anniversary of Armagh as a borough, be allocated to two of her charities for the year, namely CRY and the Society for St Vincent de Pauo.”

• St Piran’s School, Berkshire, sent in a fundraising donation of £415.80. • Deborah Steer took part in the Virgin London Marathon 2013 and raised a further £110, making a total raised of £1,188.50. • Linda Stewart completed the Edinburgh Marathon and raised a further £272, making a total raised of £482. • The students of Arden House, Stockport Grammar School, raised £810. • Megan Stonach completed the Aberdeen 10K and raised £100. • Adam Tempest completed a cycle ride from John O’Groats to Lands End and raised £322. • TG Clothing in Harrogate, a Leeds University Enterprise Scheme, sent in a donation of £355.26. • Mark Higgins, Thomas Franks Limited, sent in a donation of £175 in respect of fundraising at Sibford School.

• Becky Smith completed the Brighton Marathon and raised £1,593.64. • Lee Smith completed the Derby 10K and raised £360. • Teresa Smith raised £150 in respect of a ‘week of silence’. • St Ann’s School, Hanwell, sent in a donation of £102.10. • Eric Marshall, Honorary Treasurer of St Patrick’s Cathedral Board, sent in a donation of £106.50:

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• Simon Nead, Thomas Franks Limited, sent in a donation of £201 in respect of fundraising at Cranbrook School. • “I enclose a cheque for £744.10. This was raised by two students from our school: Harry Chandler, Year 10, and Joshua Parker, Year 11. They had their heads shaved in front of a hall full of students watching on. The funds came from sponsorship from family and friends and students paying to watch the event on the day.” Maxine Turner (House Co-ordinator), Thomas Adams School, Shropshire.

Issue 61 | May to August 2013


General Fundraising • Usborne Publishing Limited sent in a matched giving donation of £300 in respect of Bromley Bowls Club’s fundraising. • Helen Vengry completed the Great Manchester 10K Run and raised £120. • Rachel Voller sent in a sponsorship donation of £750 in respect of the Kilimanjaro Trek, and Unison, University College London Hospitals, sent in a donation of £1,000 in respect of sponsorship for Rachel Voller’s Kilimanjaro Trek, making a total raised of £1,750. • On Sunday 7th April, Richard Thompson, an employee of Thomas Franks, walked from his home in Swanley, Kent, to Wembley Stadium to watch Southend United in the Football League Trophy Final. He collected sponsorship for the walk and has so far raised £370.

• Nicola Wadland completed the Brentwood Half Marathon on 24th March and raised £495.

• Pat Timmins, Wellington Evening Townswomen’s Guild, sent in a donation of £200, which was raised by opening two gardens, serving wine and cakes, and a raffle.

“The walk was long and arduous, but not too painful, although it did need the medicinal values of a hot bath and a ‘large’ G&T to aid recovery, particularly as my beloved Southend United lost!” Richard Thompson.

• Daniel Watson completed the Stockton Duathlon and raised £118.50.

• Jack Welton completed the Mini London Marathon and raised a total of £950. • Richard Hood sent in donations totalling £835 in respect of Westbury Celtic FC tournaments in 2012 and 2013. • Georgina Wharmby completed the Manchester 10K and raised £115.50.

• Jen Treasure completed the Tower of London 10K and raised £180. • “Please find enclosed a donation of £590 raised by our Ladies Festival, Trinity Lodge, Margate, Kent. CRY was the chosen charity of the evening by the Worshipful Master and his Lady.” Maurice Kennett, Trinity Lodge 7021. • The ‘Slimming World Team’; Janet Tucker, Joan Tucker and Kim Cooper, took part in the CRY Heart of London Bridges Walk 2013 and raised a total of £220. • United Utilities PLC sent in a donation of £250.

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• Kevin Williams sent in a donation of £189 in respect of the Forest of Dean Half Marathon. We additionally received a matched giving donation of £245 from Legal and General, making a total raised of £434. • The All England Lawn Tennis and Croquet Club (The Club) sent in a collection box donation of £197.10. • Wombourne Parochial Church Council sent in a donation of £300. • Sally Woodward Gentle took part in the Virgin London Marathon 2013 and raised a further £146.20, making a total raised of £2,047.64.

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Raising Awareness in the Media Headline page index National articles are highlighted in red Page 105

1,000 riders saddle up for coastal charity push Belfast Telegraph 14.06.13

Page 105

Heart charity benefits as ‘positive’ Aashi mourned Brentwood Gazette 22.05.13

Page 106

Bill Neely Runner’s World 01.08.2013

Page 107

The Doddington squad and Ben Newton’s mother Cheryl show off the new training tops Cambridgeshire Times 19.07.13

Page 107

Tragic Sam ‘would have loved’ charity fun day Derby Evening Telegraph 15.07.13

Page 107 Brother raising money for CRY after sudden death of sister Debbie Derby Evening Telegraph 29.07.13 Page 108

Crowds roar as Dragon Boat racing returns to the lake Doncaster Free Press 18.07.13

Page 108

Tracey Greeves walked 12 miles in the Belfast Marathon Down Recorder 14.08.13

Page 109

‘Don’t go through the same pain we have’ Gloucestershire Echo 10.05.13

Page 109

Mum launches appeal to remember son, 27 Hemel Gazette 31.07.13

Page 110

Match will remember ex-league man Tommy Lancashire Telegraph 01.05.13

Page 110-111

Inspirational lives: Alex and Fraser Fotheringham Highland Life 09.07.13

Page 111

Clubbing together in footballer’s memory Welwyn Times 14.08.13

Page 112

Testing 200 hearts in memory of Josh Hull Daily Mail 20.05.13

Page 112

Kris’s legacy will be to help stop further heart tragedies Leicester Mercury 11.06.13

Page 112

Get entries in soon for cycle challenge Stornoway Gazette 30.05.13

Page 113

Charity marathon duo’s record breaking run Milngavie and Bearsden Herald 02.05.2013

Page 113

Football contest will be memorial to lawyer Nottingham Evening Post 29.08.13

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‘When you lose a child, you bleed and keep on bleeding’ The i 09.07.13

Page 116

Screening in memory of James Patterson Romford Recorder 17.05.13

Page 116

Olympic hopeful, 16, in tragic death Sale and Altrincham Messenger 01.08.13

Page 117

We’re running in memory of ‘angel’ Claire Southern Daily Echo 04.05.13

Page 117

Bike ride to honour friend Sunderland Echo 27.05.13

Page 117

Family remembers Craig with heart screening Uttoxeter Advertiser 19.06.13

Page 118

Goodnight my angel That’s Life! 11.07.13

Page 119

Teacher joins big names for bike ride Bath Chronicle 01.08.13

Page 119

Grieving mum’s mission to highlight condition Solihull News 12.07.13

Page 120-121

‘I still expect Phil to walk through the door’ The Mail on Sunday 04.08.13

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Issue 61 | May to August 2013


Fundraising Events 2014 and also welcomes any ‘own place’ cyclists for the 2nd RideLondon 100. Starting at The Queen Elizabeth Olympic Park, participants will cycle the roads across London and into Surrey, following the famous road race route of London 2012, finishing 100 miles later on The Mall. They will be followed by some of the world’s greatest cyclists who will be taking part in RideLondon Classic, so riders must be able to finish this exciting new challenge in less than 9 hours. To find out more please contact the fundraising team.

Run to the Beat powered by Nike+ September Join the CRY team for this musical 10K. CRY has a number of charity places and also welcomes any ‘own place’ runners who would like to run for CRY. To find out more please contact the fundraising team.

Bupa Great North Run September 7

The Great North Run has grown over the course of its history to become the world’s biggest half marathon. CRY has a number of charity places and also welcomes any ‘own place’ runners who would like to run for CRY. To find out more please contact the fundraising team.

Bristol Half Marathon September 21

The race will start and finish in Bristol’s historic Harbourside. The scenic, sea-level route will take runners past the Harbourside, out and back along the Portway, through the stunning Avon Gorge, and pass twice under Brunel’s famous Clifton Suspension Bridge, along Cumberland Road then around the old city before returning to Anchor Road. We don’t have any charity places but would welcome any ‘own place’ runners who would

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like to run for CRY.

Windsor Half Marathon September 28

The setting for the Windsor Half Marathon is one of the most beautiful in the UK, the start and finish being the Long Walk with Windsor Castle as the backdrop. CRY has a limited number of charity places for this event and also welcomes any ‘own place’ runners who would like to run for CRY. To find out more please contact the fundraising team.

CRY Durham Riverside Walk October 4

The 5th CRY Durham Riverside Walk will start and finish at Durham Amateur Rowing Club. The 7km walk is in the beautiful Wear Valley, following the river, with views of the city and cathedral. Please e-mail events@c-r-y.org.uk to register your interest and we will advise you when online registration opens.

Bupa Great Birmingham Run October 19

The course takes in some of the city’s most iconic sights including the Bullring, the Cadbury’s factory in Bourneville and Edgbaston cricket ground. Live music from ‘bands on the run’ keep you motivated every step of the way and thousands of supporters turn out to cheer finishers across the line on Broad Street in the heart of the city centre. We don’t have any charity places but would welcome any ‘own place’ runners who would like to run for CRY.

Bupa Great South Run October 26

The Bupa Great South Run is Europe’s leading 10 mile road race, with 21,000 runners. It is

on a fast, flat course through Southsea, Portsmouth and passes some of Portsmouth’s naval heritage, including HMS Victory and the Mary Rose. We don’t have charity places but would welcome any ‘own place’ runners who would like to run for CRY.

Cardiff Half Marathon October 5

The route takes runners past the capital’s most iconic landmarks with beautiful scenery and historic building. The predominately flat and fast course makes it ideal for beginners and professionals alike. We don’t have any charity places but would welcome any ‘own place’ runners who would like to run for CRY.

Royal Parks Half Marathon

October 12

This popular event encompasses several of the picturesque royal parks of London. We don’t have any charity places but would welcome any ‘own place’ runners who would like to run for CRY.

CRY Awareness Week November 22-30

If you would like to be involved in CRY Awareness Week 2014 please e-mail ben@c-r-y.org.uk. As well as the opportunity to hold an awareness stand or event, we look forward to building on the success of our Great Cake Bake. We are holding our third annual event on Friday 28 November. We will have special packs to send out which include recipes by top chefs; hints and tips and other goodies to help with your event.

Parachute Jumps

Assorted dates For further details, please visit www.c-r-y.org.uk/parachute_Jump.htm

Issue 61 | May to August 2013


CRY Update 61 Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support service, the CRY Centre for Cardiac Pathology (CRY CCP) at Royal Brompton Hospital, the CRY Centre for Inherited Cardiac Conditions and Sports Cardiology at St. George’s Hospital and the CRY myheart Network to

support young people living with potentially lethal cardiac conditions. CRY has also required funding to support medical research into YSCD, to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth. Whether you are carrying out your own activity or taking part in an organised event such as the Virgin London Marathon or the Bupa Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of free fundraising challenge

events, including parachute jumps, white water rafting and a selection of trekking and cycling events. For more information visit www.c-r-y.org.uk/ free_fundraising_events.htm or contact the CRY office to request a fundraising ideas pack. There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to: www.c-r-y.org.uk/donate.htm All your help is greatly appreciated.

Our Patrons The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our charity.

Current Patrons of CRY: Rob Andrew MBE,

John Barrowman, Jeremy Bates, Ben Brown, Mark Carruthers, Clive Clarke, James Cracknell OBE, Brian Dooher, Nick Easter, Jonny Evans, Baroness Finlay of Llandaff, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Tom James MBE, Pat Jennings OBE KSG, Rob Key, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell MBE, Professor William McKenna, Bill Neely, Lawrence Okoye, Phil Packer MBE, Sir Steven Redgrave CBE, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, Andrew Trimble, David Walliams, Alison Waters, Matt Wells, Ray Wilkins MBE, Sir Clive Woodward OBE.

Sir Ian Botham OB

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be

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screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.” To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm

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Cardiac Risk in the Young Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other abnormalities leading to sudden arrhythmic death syndrome (SADS). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. CRY aims to reduce the frequency of YSCD by working with cardiologists and family doctors

to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young. CRY believes cardiac screening should be accessible to all young people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. The Charity aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD. In addition, CRY publishes a range

of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.cr-y.org.uk/medical_conditions.htm

CRY is always extremely grateful for grants or donations from Trusts and Foundations. We would like to thank the following Trusts and Foundations for the very generous support they have given us: ABBA Trust • Albert Hunt Trust • Artie White Foundation • Aspen Insurance UK Charity Committee • Biggart Trust • The Black Family Charitable Trust • The Celtic Charity Fund • Charlotte Marshall Charitable Trust • Sir Cliff Richard Charitable Trust • The Davy Foundation • Edward Joseph Colclough Trust • Fitton Trust • The Freemasons’ Grand Charity • Gordon Fraser Charitable Trust • Gwyneth Forrester Trust • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • Malcolm Chick Charity • Miss W E Lawrence 1973 Settlement • Munro Charitable Trust • Muriel Edith Rickman Trust • Pharsalia Charitable Trust • The Sobell Foundation • Shuttlewood Clarke Foundation • Sir James Roll Charitable Trust • Sir Jules Thorn Charitable Trust • Tudor Foundation, Inc.

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our Websites: www.c-r-y.org.uk www.sads.org.uk

CRY_UK

CardiacRiskintheYoung

Profile for Cardiac Risk in the Young

CRY Update Magazine - Issue 61  

Some pages have not been reproduced in this edition due to NLA licensing.

CRY Update Magazine - Issue 61  

Some pages have not been reproduced in this edition due to NLA licensing.

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