Beyond Being There; for “All of Us”: Understanding the Potential of Accessible Technology to Enhance Inclusive Global Governance and the Disability Community
Dr. Derrick L. Cogburn Professor and Kogod School of of Director,
Information Technology
Analytics,
International Service Executive
Business International Communication and Development, School
Institute on Disability and Public Policy American University Prepared for the Brendan Sailing 2022 Navigating Differences Symposium St. Mary's College of Maryland, 23 July 2022
• My Wife and Family • Dr. Noemi Enchautegui de Jesus • Sean Manuel Cogburn Enchautegui • Kimberly Cogburn Goffinet • Dr. Courtney Dawn Cogburn • Academic Organizations • American University • School of International Service • International Communication • Kogod School of Business • Information Technology and Analytics • Syracuse University • School of Information • Burton Blatt Institute • University of Michigan • School of Information • Center for Research on e Work • Government and Private Research • CSIS GIIC • CSIR South Africa • CRS – Congressional Research Service • International Organizations • World Bank • UNECA • UNESCAP • UN GAID • Funding Bodies • National Science Foundation • The Nippon Foundation • JPMorgan Chase • WK Kellogg Foundation • Microsoft Research • Hewlett Packard • Board Service • US Chess Center • Global Universal Design Commission • Seafarers Foundation • Seafarers Yacht Club of Annapolis • Annapolis Maritime Museum • Brendan Sailing • Skipper, Sea Scout Ship 1959, Annapolis My Background: Derrick Cogburn
Introduction • Citizens and “global governance” • “Multistakeholder ” participation • “Cyberinfrastructure” and “effective” global governance • Inclusive global governance and the disability community
Jim Hollan and Scott Stornetta (1992) CHI – ACM Conference on Human Computer Interaction Beyond Being There
Beyond Being There: A Blueprint for Advancing the Design, Development and Evaluation of Virtual
National Science Foundation NSF Building Effective Virtual Organizations
KatherineThomasJonathonOrganizationsCummings,Finholt,IanFoster,CarlKesselman,andA.Lawrence(2008)
Myhill, W., Cogburn, D.L., Samant, D., Addom, B.K., Blanck, P. (2008) Assistive Technology Developing Accessible CyberinfrastructureEnabled Knowledge Communities in the National Disability Community: Theory, Practice, and Policy Accessible Cyberinfrastructure
Why Accessible Global Governance ? • More than 1 billion persons with disabilities in the world (World Bank/WHO, 2011) • Approximately 15% of every country's • United Nations Convention on the Rights of Persons with Disabilities (CRPD) and annual Conference of States Parties (COSP) • Moving from Millennium Development Goals (MDGs) to Sustainable Development Goals (SDGs)
MillenniumGoalsDevelopmentMillennium(MDGs)2000-2015Development Goals (MDGs)
TRANSFORMING OUR WORLD: THE 2030 AGENDA FOR SUSTAINABLE DEVELOPMENT UNITED NATIONS Converging Opportunities for Accessible Global Governance
• Adopted on 13 December 2006 • Open to signature 30 March 2007 • Designed to protect the rights and freedom, and ensure inclusion for persons with disabilities • Paradigm shift from ‘Health Based Approach’ to a ‘Rights Based Social Justice Approach’ • Convention • 164 Signatories • 185 Ratifications • Optional Protocol • 94 Signatories • 100 Ratifications To promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms by all persons with disabilities, and to promote respect for their inherent dignity (Article 1, CRPD) UN Convention on the Rights of Persons with Disabilities (CRPD )
Article 8 – Awareness Raising
“States Parties undertake to adopt immediate, effective and appropriate measures: (a) To raise awareness throughout society, including at the family level, regarding persons with disabilities, and to foster respect for the rights and dignity of persons with disabilities; (b) To combat stereotypes, prejudices and harmful practices relating to persons with disabilities, including those based on sex and age, in all areas of life; (c) To promote awareness of the capabilities and contributions of persons with disabilities. Convention on the Rights of Persons with Disabilities (CRPD
UN
)
Article 9 Accessibility “To enable persons with disabilities to live independently and participate fully in all aspects of life, States Parties shall take appropriate measures to ensure to persons with disabilities access, on an equal basis with others, to the physical environment, to transportation, to information and communications, including information and communications technologies and systems” @derrickcogburn @aseanidpp aseanidpp.org - @idpp_global idppglobal.org UN Convention on the Rights of Persons with Disabilities (CRPD )
“States Parties shall take all appropriate measures to ensure that persons with disabilities can exercise the right to freedom of expression and opinion, including the freedom to seek, receive and impart information and ideas on an equal basis with others and through all forms of communication of their choice, as defined in article 2 of the present Convention, including by:
d) Encouraging the mass media, including providers of information through the Internet, to make their services accessible to persons with disabilities;
Article 21 – Freedom of Expression and Opinion, and Access to Information
c) Urging private entities that provide services to the general public, including through the Internet, to provide information and services in accessible and usable formats for persons with disabilities;
a) Providing information intended for the general public to persons with disabilities in accessible formats and technologies appropriate to different kinds of disabilities in a timely manner and without additional cost;
b) Accepting and facilitating the use of sign languages, Braille, augmentative and alternative communication, and all other accessible means, modes and formats of communication of their choice by persons with disabilities in official interactions;
UN Convention on the Rights of Persons with Disabilities (CRPD )
e) Recognizing and promoting the use of sign languages.”
Article 24 Education “States Parties recognize the right of persons with disabilities to education. With a view to realizing this right without discrimination and on the basis of equal opportunity, States Parties shall ensure an inclusive education system at all levels and lifelong learning” @derrickcogburn @aseanidpp aseanidpp.org - @idpp_global idppglobal.org UN Convention on the Rights of Persons with Disabilities (CRPD )
Our Dream, Realized: ASEAN IDPP To help stimulate the creation of a cadre of leaders in the ASEAN Region who can help develop and monitor public policy related to disability issues and the implementation of the UN Convention on the Rights of Persons with Disabilities through the creation of the world's first virtual graduate institute on disability and public policy for the ASEAN region.
Article 29 Participation in Political and Public Life “To ensure that persons with disabilities can effectively and fully participate in political and public life on an equal basis with others, directly or through freely chosen representatives, including the right and opportunity for persons with disabilities to vote and be elected” UN Convention on the Rights of Persons with Disabilities (CRPD ) @derrickcogburn @aseanidpp aseanidpp.org - @idpp_global idppglobal.org
Article 30 –
c) Enjoy access to places for cultural performances or services, such as theatres, museums, cinemas, libraries and tourism services, and, as far as possible, enjoy access to monuments and sites of national cultural importance.
4. Persons with disabilities shall be entitled, on an equal basis with others, to recognition and support of their specific cultural and linguistic identity, including sign languages and deaf culture.
3. States Parties shall take all appropriate steps, in accordance with international law, to ensure that laws protecting intellectual property rights do not constitute an unreasonable or discriminatory barrier to access by persons with disabilities to cultural materials.
2. States Parties shall take appropriate measures to enable persons with disabilities to have the opportunity to develop and utilize their creative, artistic and intellectual potential, not only for their own benefit, but also for the enrichment of society.
UN Convention on the Rights of Persons with Disabilities (CRPD )
“1. States Parties recognize the right of persons with disabilities to take part on an equal basis with others in cultural life, and shall take all appropriate measures to ensure that persons with disabilities:
Participation in cultural life, recreation, leisure and sport
a) Enjoy access to cultural materials in accessible formats;
b) Enjoy access to television programmes, films, theatre and other cultural activities, in accessible formats;
Article 30 Participation in cultural life, recreation, leisure and sport 5. With a view to enabling persons with disabilities to participate on an equal basis with others in recreational, leisure and sporting activities , States Parties shall take appropriate measures:a)Toencourage and promote the participation, to the fullest extent possible, of persons with disabilities in mainstream sporting activities at all levels;
d) Encouraging the mass media, including providers of information through the Internet, to make their services accessible to persons with disabilities; e) Recognizing and promoting the use of sign languages.”
a) Providing information intended for the general public to persons with disabilities in accessible formats and technologies appropriate to different kinds of disabilities in a timely manner and without additional cost;
UN Convention on the Rights of Persons with Disabilities (CRPD)
d) To ensure that children with disabilities have equal access with other children to participation in play, recreation and leisure and sporting activities, including those activities in the school system;
b) Accepting and facilitating the use of sign languages, Braille, augmentative and alternative communication, and all other accessible means, modes and formats of communication of their choice by persons with disabilities in official interactions;
c) To ensure that persons with disabilities have access to sporting, recreational and tourism venues;
b) To ensure that persons with disabilities have an opportunity to organize, develop and participate in disability specific sporting and recreational activities and, to this end, encourage the provision, on an equal basis with others, of appropriate instruction, training and resources;
c) Urging private entities that provide services to the general public, including through the Internet, to provide information and services in accessible and usable formats for persons with disabilities;
(e) To ensure that persons with disabilities have access to services from those involved in the organization of recreational, tourism, leisure and sporting activities.
TRANSFORMING OUR WORLD: THE 2030 AGENDA FOR SUSTAINABLE DEVELOPMENT UNITED NATIONS Converging Opportunities for Accessible Global Governance
Converging Opportunities for Accessible Global Governance
Disability in the 2030 SDGs • Declaration • Human Rights Para 19 = 1 • Vulnerable groups - Para 23 = 1 • Education Para 25 = 1 • Goals and Targets • Goal 4: education = 2 • Goal 8: employment = 1 • Goal 10: reduce inequality = 1 • Goal 11: inclusive cities = 2 • Goal 17: Data collection = 1 • Follow-up and Review • Data disaggregation - para 74.g = 1 TRANSFORMING OUR WORLD: THE 2030 AGENDA FOR SUSTAINABLE DEVELOPMENT UNITED NATIONS
• CAT1 – Specific focus on disability – 11 references Text Mining the 2030 SDGs • CAT2 – Broader focus on vulnerable population (based on Paragraph 23) • “People who are vulnerable must be empowered. Those whose needs are reflected in the Agenda include all children, youth, persons with disabilities (of whom more than 80 per cent live in poverty)” – 18 references • CAT3 – Broadest focus on inclusion universalityand – “for all” and – the principle of “Leave no one behind” – 17 references Based on the IDA IDDC report on inclusion of persons with disabilities in the 2030 Development Agenda https:// tools/files/2030_agenda_comprehensive_guide_for_persons_with_disabilities.pdfiddcconsortium.net/sites/default/files/resources-
Converging Opportunities for Accessible Global Governance 5ReferencestoDisability 15ReferencestoDisability DIAUD Network: Disability Inclusive and Accessible Urban Development
ICTs and Accessible Global Governance 1. Study supported by a grant from The Nippon Foundation 2. Prepared for presentation and publication at HICSS 51, 2018 3. In collaboration with UNISDR organizing GP2017 • Wanted the conference to be “inclusive and accessible to persons with disabilities” 4. Compares webconferencing and MRP devices in facilitating ”accessible global governance” 5. Worked with the Disability- Inclusive Disaster Risk Reduction (DiDRR ) Network, # AllofUs
Accessible Webconferencing Bb Collaborate Ultra 3. Video 8. Mark-UpSlides 1. Personal Settings 9. CaptionsClosed 5. Chat Exit 10.ContentSharing 4. Feedback 6. Participant List 7. Media/ContentWindow More Settings
Mobile Remote Presence (MRP) Devices – Robots 1. Portable videoconferencing System 2. Mounted on a mobile robotic base 3. Allows a remote user to move around in the robot’s environment 4. Consists of both a physical robot and an interface used to pilot the robot 5. Can perhaps increase the “perceived presence” of virtual participants 6. Facilitate participation in formal meetings 7. Contribute to impromptu social encounters
IDPP Double Robot Driver’s License 1. Access the Double 2. Turn on the Main Camera 3. Access the Downward Camera 4. Navigate Straight 5. Navigate Corners 6. Adjust the Speaker 7. Adjust the Height 8. Take Photos 9. Invite Passengers 10. Dock the Double
Mobile Remote Presence (MRP) Devices – Robots
Mobile Remote Presence (MRP) Devices – Robots
Mobile Remote Presence (MRP) Devices – Robots
• Dr. Derrick L. Cogburn – Email: • dcogburn@american.edu • dcogburn@idppglobal.org – Twitter: • @ derrickcogburn (Twitter) • @ idpp_global (Twitter) – Skype: • Derrick_Cogburn – Offices: • Faculty Office: 245 SIS Building • IDPP Offices: 610 Spring Valley Building Contacts
