AQL EXPRESS JAN-FEV2025 EN by Association québécoise du lymphœdème/Lymphedema Association of Quebec

GIFT DOUBLE Your goes

Until February 28th,, your gift for lymphedema goes double!

Yes! Donate, and the friendly partners of the LAQ will match your gift!

The leading compression manufacturers are pumped to burst with generosity. So give generously to support people living with lymphedema. Thousands of Quebecers are affected by this chronic swelling and need the LAQ’s help.

GO AHEAD! Take advantage of your 2024 tax deductions by donating before February 28th.

HELP TWICE AS MANY PEOPLE BY GIVING TODAY!

IT’S EASY TO MULTIPLY THE IMPACT OF YOUR GIFT.

JUST CLICK ON THIS BUTTON MY GIFT GOES DOUBLE

Thank you for supporting the activities of the Lymphedema Association of Québec (LAQ), the only organization dedicated to helping people living with lymphedema and advocating on their behalf.

A huge thank you to our partners, who are doubling your donations until February 28!

THE LAQ

BY YOU and FOR YOU!

THREAT OF COUNTER-TARIFFS on access to compression: an injustice for patients

The counter-tariffs proposed by the Canadian government could directly impact compression garments and supplies manufactured in the United States, transiting through the U.S., or containing materials of American origin. Such a measure would have devastating consequences for patients who rely on these essential products to maintain their quality of life and prevent severe complications.

Compression garments are a cornerstone of treatment for lymphedema, lipedema, and chronic venous insufficiency, which can lead to lymphedema. Prescribed by healthcare professionals, these garments are not just accessories—they are medical necessities. There are no viable Canadian-made alternatives for many of these specialized products.

If these counter-tariffs come into effect, the cost of compression garments could rise sharply, making them even less accessible to patients. Currently, RAMQ only covers 75% of the cost, or up to a capped amount, leaving many patients to shoulder a significant financial burden. For those with lipedema or venous insufficiency, private insurance reimbursement is often even more limited. An increase in costs would unfairly penalize thousands of Canadians who depend on these medical devices.

The Lymphedema Association of Québec (LAQ) firmly opposes the inclusion of compression garments in these counter-tariffs and urges the government to exempt these essential medical products from any trade sanctions. We call on policymakers to recognize that healthcare must never be used as a bargaining chip in economic disputes.

We encourage our members and partners to take action and raise their voices. The well-being of those living with lymphede-

ma and other conditions requiring compression therapy cannot be jeopardized by policies that fail to consider their reality. We must act now—before this looming threat turns into a crisis.

Together, let’s protect access to essential care.

Anne-Marie Joncas President,

LAQ

TAKE ACTION!

In collaboration with the Canadian Lymphedema Framework, LAQ has submitted a letter to federal and provincial decision-makers. Our follow-up efforts will be strengthened by the results of our online petition.

POSTING

JOB OFFER

Assistant General Manager

Make the difference!

Are you a dynamic leader with a strategic vision?

Would you like to put your management, development and advocacy talents to work for a vital cause?

The Lymphedema Association of Québec (LAQ) is looking for an Assistant General Manager to help raise its profile and defend the rights of lymphedema sufferers.

Reporting to the Interim Executive Director, you will play a key role in the organization’s operational management, partnership development and community mobilization. You will participate in administrative management and advocacy activities, while ensuring the growth and sustainability of the LAQ.

We are looking for a passionate manager with excellent leadership skills, strong networking abilities and expertise in organizational development. Experience in an associative or healthcare environment is an asset.

Apply before February 28, 2025 and join a committed team!

The Lymphedema Guide 2025 is here!

The essential tool for navigating Québec’s lymphedema care network is back, with an improved and even more accessible 2025 edition!

An enhanced directory to better guide you

This year, 5,000 copies of the Lymphedema Guide 2025 were printed and distributed to healthcare professionals, patients and our regular, professional and corporate members. This new edition is distinguished by the addition of photos illustrating the different stages of lymphedema, providing a valuable visual reference for a better understanding of this condition and its evolution.

Simplified access to information

The 2025 Lymphedema Guide is available in both print and digital versions The online version includes an interactive map that makes it easy to locate the resources available in each region. In addition, regular updates will be made to ensure that information is always up-to-date and adapted to the needs of patients and caregivers.

GET YOUR COPY NOW!

Regular, professional and corporate members: your copy has been mailed to you. If you haven’t received it yet, write to us at aql@infolympho.ca

Need more copies? An online order form is available for institutions, companies and therapists: Order 2025 material

Join the network!

Are you a healthcare professional or specialist company interested in being listed in the 2025 Lymphedema Guide? Join now to appear in the online version, updated throughout the year:

Become a professional member

Become a corporate member

Thank you to all our members, partners and sponsors, who help to raise the profile of lymphedema resources in Québec!

An exceptional partner

Thank you to Essity, Diamond Sponsor for its essential support in enabling the LAQ to accompany people living with chronic swelling/lymphedema.

Together, we’re changing lives!

The psychological burden of living with chronic swelling

An invisible but very real burden

Although often perceived through their physical manifestations, lymphedema, lipedema and chronic venous insufficiency createin addition to chronic swelling - a considerable psychological burden for those who have to deal with these conditions on a daily basis. Beyond the tangible changes in physical appearance and functional capabilities, these diseases impose an emotional burden that can profoundly affect the mental health of affected individuals. It is therefore crucial to recognize this impact and adopt a comprehensive, integrated treatment approach.

The psychological impact of lymphedema and lipedema

The psychological suffering associated with chronic swelling can be multifaceted. Patients often feel a real sense of loss: loss of their former body image, loss of comfort and sometimes even loss of self-confidence. The visibility of the condition can lead to feelings of embarrassment and social anxiety, causing them to feel judged or observed.

What’s more, the chronic nature of these diseases requires ongoing management, which can lead to feelings of frustration and fatigue. The functional limitations associated with lymphedema and lipedema can also restrict professional opportunities and social interactions, fostering the emergence of depressive and anxious states.

Complete decongestive therapy: an integrated approach

To treat lymphedema and lipedema, Complete Decongestive Therapy (CDT) is often considered the gold standard. This twophase program begins with an intensive phase to reduce the volume of the affected limb, followed by a maintenance phase to preserve this reduction. This approach combines several essential elements, including manual lymphatic drainage (MLD), compression therapy, skin care and exercise, to meet patients’ physical and psychological needs.

therapeutic approach not only reduces swelling and physical discomfort, it also plays a crucial role in patients’ emotional wellbeing.

The gentle, rhythmic movements of MLD induce deep relaxation, soothing the autonomic nervous system. This treatment is particularly beneficial for people living with lymphedema, lipedema or chronic venous insufficiency, whose daily preoccupations with comfort and body image generate constant stress.

MLD also offers a moment’s respite from the ongoing management of swelling. What’s more, the human contact involved in this therapy promotes the release of oxytocin, a hormone associated with stress reduction and relational well-being.

A holistic approach for a better quality of life

Recognizing the psychological burden of chronic swelling, it becomes essential to adopt a treatment approach that encompasses mental health support. In addition to DBT and MLD, other strategies can promote psychological well-being, such as psychological counseling, peer support groups and stress management techniques, including meditation, yoga and deep breathing.

Healthcare professionals should also incorporate psychological assessment as part of care for chronic swelling, and refer patients to mental health specialists if necessary. Open dialogue about the emotional challenges of lymphedema, lipedema and chronic venous insufficiency can help break down isolation and encourage patients to seek the help they need.

FOR MEMBERS ONLY

Become a LAQ member HERE

An integrated approach, taking into account both the physical and psychological dimensions of chronic swelling, is essential to improve the quality of life of those affected by these complex conditions. By raising awareness of the psychological impact of lymphedema and implementing appropriate support strategies, we can help these patients regain balance and a better quality of life.

Manual lymphatic drainage: a physical and emotional benefit

A key element of CDT is manual lymph drainage, a specialized technique that stimulates the flow of lymphatic fluid. This

To find a CDT therapist, consult the LAQ Guide

IN REAL ACTION

RAISING AWARENESS AT THE CONGRÈS DES MÉDECINS FRANCOPHONES DU CANADA

On October 23 and 24, the LAQ was honoured to take part in the Congrès des Médecins francophones du Canada, held at Place Bonaventure. This event, featuring 22 hours of training led by renowned speakers, was an ideal opportunity to raise awareness of lymphedema screening and diagnosis among healthcare professionals. We included LAQ information material in the delegate kits, reinforcing our mission to disseminate knowledge. Our warmest thanks to the organizers for their hospitality and commitment to the advancement of lymphedema care.

COMMITMENT AT THE OIIQ CONGRESS: “IT’S NOT JUST SWELLING!”

On December 3, at the Ordre des infirmières et infirmiers du Québec (OIIQ) Congress at the Palais des congrès de Montréal, the LAQ made its mark. Under the theme “Rallions nos forces”, we raised awareness of the importance of lymphedema screening among the 3,200 professionals in attendance. Our booth attracted a record crowd, testifying to the growing interest in this condition. Our gratitude goes to Nathalie Côté, nurse and certified therapist, for her dedication and invaluable answers to the many questions asked by attendees.

PRESENT AT THE CONGRÈS DU PROGRAMME QUÉBÉCOIS DE CANCÉROLOGIE (PQC)

On November 14 and 21, the LAQ took part in the Congrès du Programme québécois de cancérologie (PQC). The PQC aims to coordinate efforts in the field of cancer to provide accessible, quality care for patients. Our presence highlighted the importance of early detection of lymphedema in cancer patients, thus promoting optimal management.

Anne-Marie Joncas, LAQ President, welcomed Luc Mathieu, OIIQ President , to our booth.

COLLABORATION WITH THE CANADIAN ASSOCIATION OF NURSES IN ONCOLOGY (CANO)

On December 9, the LAQ took part in the Canadian Association of Nurses in Oncology (CANO) conference. This national organization is dedicated to excellence in oncology nursing across Canada. Our participation was aimed at reinforcing nurses’ knowledge of lymphedema, thus ensuring better support for oncology patients.

DEFENDING THE SUPRAREGIONAL LYMPHEDEMA CENTRE AGAINST BUDGET CUTS

The LAQ is actively pursuing its efforts to represent the interests of patients by opposing the massive budget cuts threatening the Supraregional Lymphedema Center. We expect a decision soon and remain determined to preserve this essential community facility.

INTERPROVINCIAL MEETING WITH THE CANADIAN LYMPHEDEMA FRAMEWORK (CLF)

Our participation in the multi-province meeting organized by the CLF was most enriching. Bringing together the nine provincial associations, this event fostered the exchange of resources, discussion of common concerns and coordination of efforts for concerted action across the country.

COLLABORATION WITH

The LAQ is in constant dialogue with Dr. Julian Diaz-Abele of the CHUM and Dr. Joshua Vorstenbosch of the MUHC, both microsurgeons. Together, we are exploring preventive surgical interventions for patients undergoing major lymph node resection during oncology surgery. This technique, called lymphatic-venous anastomosis, aims to preserve and restore lymphatic flow, thereby reducing the risk of developing lymphedema.

MEETING

The LAQ also took part in the Annual General Meeting of the Regroupement des organisations communautaires en oncologie (ROCO). This group aims to support and promote community organizations working in oncology, thereby strengthening the support network for cancer patients.

DEVELOPMENT OF RESOURCES IN COLLABORATION WITH A CHUM SEXOLOGIST

Following an in-depth analysis of of our survey, the LAQ is collaborating with a CHUM sexologist to develop lymphedema-specific educational materials. This initiative aims to address the intimate and often overlooked aspects of the condition, offering holistic support to patients.

TWO EPISODES OF THE “SANTÉ VOUS MIEUX” PODCAST IN PREPARATION!

The LAQ is collaborating with Dr. Èvelyne Bourdua-Roy and neuroscientist Sophie Rolland to produce two episodes of the podcast Santé vous mieux. These episodes will address crucial lymphedema-related themes and will be available soon. Stay tuned!

Thanks to these many actions, the LAQ continues to defend patients’ rights and raise awareness among healthcare professionals. Give or join us in advancing the cause of lymphedema!

All about RAMQ and Insurances (in french) avec Nathalie Côté

Your next online education and support group takes place on Wednesday, February 26 at NOON by Zoom

EVERYTHING ABOUT RAMQ AND INSURANCE

with Nathalie Côté, certified lymphedema therapist, nurse and fitter - Learn how to make the best use of financial support from RAMQ and your private insurer for the purchase and renewal of your compression garments. Discover strategies to minimize your compression bill while making optimal use of RAMQ’s generous compression garment program.

ZOOM presentation in French. This free event organized by the LAQ will take place on Wednesday, February 26 at NOON. Free registration MANDATORY.

EXCLUSIVE WEBINAR Overweight, lymphedema and lipedema: Better understanding for better action with Dr. Anna Towers

Your next online event takes place on Monday, March 10 at 7 p.m. by Zoom

As part of World Lymphedema Month, the Lymphedema Association of Quebec (LAQ) invites you to an exceptional webinar hosted by Dr. Anna Towers, a leading Quebec and Canadian lymphedema expert. Overweight, lymphedema and lipedema: what are the links? These conditions are often interconnected and can impact management and quality of life.

Dr. Towers will share her clinical expertise and the latest scientific data to better understand and act. Don’t miss this unique opportunity to ask your questions to a recognized expert!

Monday, March 10 at 7 p.m. Free registration MANDATORY.

We look forward to seeing you!

These lymphedema events are made possible by the dedication of volunteer therapists and the Lymphedema Association of Québec. The LAQ’s mission is to support people at risk and those affected by lymphedema, while raising awareness of lymphedema as a chronic disease among health professionals.

IN THE SPOTLIGHT

Cours de thérapie aqualymphatique

Donné par MAUDE JUBINVILLE, MT Thérapeute certifiée en lymphœdème

En collaboration avec l’Association québécoise du lymphœdème (AQL)

HURRY UP! ONLY 2 PLACES LEFT IN THIS GROUP.

NEXT SESSION FALL 2026 ONLY

Maude Jubinville, certified lymphedema and aqualymphatic therapist, invites you to discover this ultra-effective technique, specially designed for people living with lymphedema, lipedema or chronic venous insufficiency.

Date: February 20 to April 17, 2025

Schedule: Every Thursday, 10:30 a.m. to 11:30 a.m.

Location: Centre Aquatique de Saint-Hyacinthe (850, rue Turcot)

Prerequisites: LAQ membership

Cost : $202 (including annual LAQ membership) $160 (if you’re already an LAQ member)

To register: jubinville.maude@gmail.com

MÉTHODE TIDHAR®

DR. NICOLE PAQUETTE, HONORARY MEMBER

A life dedicated to lymphedema patients

The Lymphedema Association of Québec (LAQ) is honoured to award Dr. Nicole Paquette the title of Honorary Life Member, in recognition of her exceptional commitment to patients living with lymphedema.

A deeply human commitment

Dr. Paquette first became interested in lymphedema through her family’s history. Confronted at first hand with this reality, she chose to put her expertise at the service of those affected, by constantly deepening her knowledge of this complex disease and its skin complications.

An expert, caring eye

Throughout her career in dermatology, Dr. Paquette has welcomed and cared for lymphedema patients with a rare blend of professionalism and humanism. Her comprehensive approach and attentive listening have enabled many people to obtain appropriate care, often in situations where an expert eye made all the difference.

Well-deserved recognition

Today, the LAQ would like to express its gratitude. Her support, commitment and generosity have left a lasting mark on our community.

Thank you, Dr. Paquette, for everything you have done and continue to do for patients living with lymphedema. Your caring and dedication are an inspiration.

Dr. Nicole Paquette, left, with her family (photo taken in 2010)

Support our actions!

RENEW YOUR MEMBERSHIP

EXCLUSIVE LAQ MEMBER BENEFITS

• Monthly newsletter L’info AQL

• Printed quarterly Pathways magazine

• Self-management booklet Learning to take charge

• Cellulitis Assistance Card

• Self-measurement guidelines for arms and legs

• L’info AQL Surgery edition

• VIP invitations for support education and groups, plus events

• Your tools are mailed to you AND accessible in your online Member Section

• A Members’ Area containing all your tools, plus all RAMQ program documents, including the Request for Review form.

The annual dues for Regular Members are $42.

I renew my membership!

- Éric Beaulieu

- Sylvie Beaulieu

- Marie-Claude Desautels

- Marianne Drouin

- Linda Laroche

- Linda Paulhus

- Julie Prégent

- Élaine St-Michel

- Johanne Taschereau

- Mélanie Trottier

- Suzanne Verret

Regaining motivation with lymphedema

Living with lymphedema takes time, energy and discipline. Between daily care and exercise, it’s easy to feel overwhelmed. Where do you find the motivation to keep going? Here are a few strategies for staying the course and taking good care of yourself.

The power of support groups

Sharing your challenges, victories and tips with others living with lymphedema can break the isolation and boost your motivation. These exchanges offer encouragement and practical advice. You might even find an exercise partner!

Find an activity you enjoy

Don’t choose an exercise just because it’s recommended. If you hate swimming, choose another activity that suits you and fits naturally into your routine. The most important thing is to move in a way that gives you pleasure.

Respect your body and its limits

Back to Basics

Get informed to move forward

Understanding your condition, your needs and best practices helps you make informed choices. The more you know, the more you can adjust your care and optimize your well-being.

Reward yourself

Every effort deserves to be celebrated. Whether it’s a comforting drink, a relaxing break or a new compression accessory you love, give yourself small rewards to keep your motivation up.

Mentoring: giving to better receive

FOR MEMBERS ONLY

Mentoring someone new to lymphedema management can be inspiring. Helping others reminds us to take care of ourselves and reinforces our commitment to our own care.

Become a LAQ member HERE

The essentials to remember

• Know yourself and respect your limits.

• Set yourself realistic goals and make them part of your daily routine.

If 30 minutes of exercise seems too much, start with 5 or 10 minutes. Split up your efforts and adapt your routine according to your energy at the time. Taking it easy and listening to your body are essential to avoid exhaustion.

• Find pleasure and support in your journey.

• Be kind to yourself and celebrate every bit of progress!

AND YOU, what are your tips for staying motivated?

TIP OF THE MONTH

MOISTURIZE YOUR SKIN!

For people living with lymphedema, good skin hydration is essential to prevent dryness, irritation and infection. Well-moisturized skin is more resistant and protects better against external aggression.

Our advice:

✔ Hydratez quotidiennement avec une crème émolliente adaptée.

✔ Nettoyez immédiatement toute coupure ou éraflure avec de l’eau propre et appliquez un antiseptique si toléré.

✔ Protégez-vous du soleil en appliquant un écran solaire à large spectre et en portant des vêtements couvrants.