Decongestion
Decongestion
• circaid reduction kit
• circaid juxtafit
• circaid® profile
Great reduction results during the decongestion phase
Effective compression device throughout the transition phase
• mediven flat knit
• circaid juxtafit Maintenance
• circaid® profile
Compression devices for maintaining best therapy results.
Since February 2024 the Lymphedema Clinic at the Vendôme site of the MUHC (officially known as le Centre de soutien au lymphœdème de la Fondation du cancer du sein du Québec) has been waiting for definitive government funding for its clinical activities. Morale is up and down amongst staff and patients, depending on whether we receive positive or negative tidbits of news. Patients are incredulous when they hear the news that we are struggling for funding and are at risk of closing. The clinic has been dependent and very grateful to the foundations and donors who have supported it to date. But lymphedema requires care like any other medical condition. The time is long overdue for this clinic to move beyond charitable funding, towards becoming properly integrated within the Medicare system. This is a clinic that has received international recognition as a LE&RN Network of Excellence, a clinic that serves cancer-related lymphedema patients – all cancer types - and those with primary lymphedema from across the province, a clinic that is recognized for its leadership in teaching, research and in developing best practice guidelines. A funding request sent to the MSSS is pending consideration.
This is only one front of action. One way that patients can show support is to become members of the AQL. It would be one way to ensure that you receive advocacy news regarding this front as well as many others, relating to funding of lymphedema services in Quebec. There are other battles to fight, to ensure that patient care for Quebecers with lymphedema becomes properly resourced by government funding. Thank you for your support!
Dr Anna Towers Director, MUHC Lymphedema Clinic Member of the LAQ Board of Directors
“You should always make the best out of everything that comes your way.
Christine Raab (35) is a freelance makeup artist. She was diagnosed with breast cancer in November 2014. This was followed by many investigations and an operation during which the affected lymph nodes were removed. After the follow-up chemotherapy, Christine Raab developed lymphedema.
Since then she has been wearing a compression sleeve at work and in her private life. Christine Raab is convinced “you should always make the best out of everything that comes your way”. Her positive attitude gives other women hope and courage
You were diagnosed with breast cancer in November 2014. How did that come about?
“More or less by chance. My husband discovered a lump in the breast. My first thought was: that’s only a cyst that will go away on its own. I got an appointment with my doctor very quickly. While she was palpating the breast, I could see from her expression that it could be something she hadn’t expected. The results of the ultrasound scan also gave her cause for concern, so she ordered a mammography. That was the first time I cried.”
What happened then?
“After the mammography, they took a biopsy to find out exactly what the lump was. Then came the moment that the hospital’s breast centre told me it was breast cancer. I just sat there and said “No, that can’t be true” and I cried. The doctor then said it would be best to start chemotherapy straight away”.
The diagnosis was no doubt a shock for you.
“When I heard the word “chemotherapy” all those typical pictures immediately shot through my head. That your hair falls out and you look kind of ill. I didn’t think about having cancer and that I could theoretica““lly die, I just thought about all the other associated things.
At that time you were already working as a self-employed makeup artist. The breast cancer diagnosis must have caused some disruption.
“Yes, that’s right. At the time I was also working as a trained nursery nurse, on a self-employed basis too. I held swimming classes for children and organised childcare for events.
Medi – LAQ Platinum Partner – has kindly sponsored this content
©BVMed
“I informed the parents of my swimming classes personally. It wasn’t easy to talk openly about the diagnosis. That somehow made it all so real. Of course they were all shocked. After I had told the parents, I made a video, in which I talked about my breast cancer diagnosis. I published the video on YouTube and shared it on Facebook, so I didn’t have to tell each of my contacts, family and friends individually”.
“They planned to start the chemotherapy on 2 January 2015. The lymph nodes on the right side were removed in the weeks before Christmas, because they were also affected. Some time after the chemotherapy, I was driving the car and noticed that my right arm was really thick. I had met patients at the hospital, who had told me about their lymphedema. So I naturally went to the doctor’s surgery straight away. They quickly found that I had lymphedema and they gave me a prescription for lymphatic drainage”.
You now wear a compression sleeve. Can you explain how it works?
“At the outset, when the arm is really thick, they work with gauze and inelastic bandages. These are applied very tightly using a special technique, so that the lymph fluid is squeezed out by the pressure.
The compression sleeves work on the same principle. Once the bandages have made the arm relatively thin again, you go to a surgical appliance retailer, who measures you for a compression sleeve”.
What happens, if you leave the compression sleeve off once in a while?
“One or even two days without a sleeve isn’t really bad for me. But it always depends on the severity of the lymphedema and on the situation. In summer, you are more likely to accumulate lymphatic fluid, but it’s different in winter. Principally, everything that constricts the arm is bad, because it impedes lymphatic drainage. For instance, you should be careful with bras, heavy shoulder bags and the like. That’s why I personally find it easier to wear the sleeve all the time, because then I don’t have to pay attention to so many things”.
Is there anything else, whereby the sleeve restricts you?
“Not really. It enables me to spend my days perfectly normally. Without it, my lymphedema could be quite painful. The bandaging techniques wouldn’t be a long-term alternative. You can compare it with having a plaster cast on your arm. You can hardly move the arm and the tight bandages are painful. I wouldn’t be able to work at all. So the sleeve makes my entire day-to-day life much simpler”.
Your job means you are in contact with a lot of people. Are they curious? Do they ask a lot of questions?
“Of course the children ask what I’m wearing on my arm. So I explain to them the best I can what a sleeve is for. I’m also asked a lot during my makeup appointments. Depending on the situation, I tell them about lymphedema and how it came about. Many clients are initially a bit shocked, because they didn’t really want to address such a serious subject. But I don’t find it bad at all”.
As a makeup artist, you have a lot to do with the subject of beauty. Has your attitude towards beauty changed?
“During the first week of chemotherapy I absolutely refused to look in the mirror. I slowly began to feel better in the second week and started putting on makeup again.
This had a positive effect on my personal well-being. You look in the mirror and you no longer look so ill. Even my bald head was no longer that bad. I simply replaced the eyebrows and eyelashes that had fallen out. You can convince yourself: ‘I look good, so I feel good too’. I made videos about this and published them on YouTube”.
What would you like to say to other women with similar illnesses?
“That’s easy: no matter how bad the situation is, you just have to make the best of it”!
In Québec, only 2.5% of the lymphedema population is enrolled in the RAMQ compression garment program*. This population is expected to grow as a result of screening/diagnosis by the health care system and awareness efforts by the Lymphedema Association of Québec (LAQ).
To be eligible, the patient must be registered with the RAMQ and diagnosed with primary or secondary lymphedema. A medical prescription is required when purchasing the 1st supply. This prescription has a lifelong validity.
The prescription must indicate the presence of lymphedema and specify the affected limb or body part, as well as the side, if applicable. Future purchases will require no further, prescriptions.
Covered supplies for adults1 per affected limb per 12-month period
RAMQ assistance is set at 75% of the cost of the garments up to the maximum amount covered, before taxes and delivery charges.
• 1 set of multi-layer bandages
• 3 elastic daytime compression garments
• 1 non-elastic compression garment (velcro)
• 1 nighttime compression garment
• 1 accessory for compression garment
1 Children and teenagers have access to double the quantity of supplies. These individuals and adults beneficiary of last-resort financial assistance or participating in the Aim for Employment Program have access to 100% assistance up to the maximum amount covered, before taxes and delivery charges.
The 12-month period begins with the purchase of the first garment. If it is necessary to wear multiple garments in combination for the same limb, one garment of each type is covered per period. The claimer has 12 months after the date of purchase to submit a claim to the RAMQ.
The list of maximum amounts allocated can be consulted on the RAMQ website: https://bit.ly/3vsHV22
*Percentage based on Canadian prevalence data (CLF) and RAMQ enrollment (2020 –6000 registrations)
• The intensive decongestive lymphatic therapy will have been completed before the first measurement for the compression garment.
• Always provide a non-elastic (Velcro) reduction garment for anyone who does not have access to intensive decongestive therapy or is refractory to multi-layer bandages BEFORE ordering the first daytime garment.
• Order daytime garment one at a time (prevents improper fit due to variations - weight, self-management, others).
• Schedule appointments for reliable measurements - preferably in the morning.
• Possibility of applying to RAMQ for multiple garments in combination for the same limb.
• Accessories include rubber glove, sleeve donner, stocking donner, skin adhesive, etc.
• Renew the daytime garment 3 times a year. Velcro and nighttime garments must be renewed once a year.
• Wearing the daytime compression garment at all times ensures optimal volume control. Follow medical indications for other garments.
• Every garment is unique to its owner and should not be altered other than by the manufacturer or the fitter.
• Client with private insurance: may claim from the insurer the portion not covered or any garment in excess of the RAMQ program.
• Client without private insurance: can claim the expense on their tax return.
• First Nations people living on and off reserve with a valid Québec health insurance card may be eligible for the RAMQ program. Otherwise, they are eligible for supplies and equipment through the Non-Insured Health Benefits (NIHB) Program.
• Orthotists-fitters linked to RAMQ’s SELAT system offer instant reimbursement upon purchase.
• Clients dealing with an orthotist-fitter or service provider not connected to SELAT can submit their own claim using the form available on the RAMQ website: https://www.ramq.gouv.qc.ca/en/media/2871
• Encourage learning about self-management which contributes to the stability of the affected limb volume. Self-management coaching is offered free of charge by the Lymphedema Association of Québec.
Night-time compression garments are a valuable asset for people living with lymphedema. Unlike daytime compression garments, they are designed to provide moderate pressure during sleep, helping to prevent the build-up of lymphatic fluid without the risk of causing undue strain on blood circulation. These garments help maintain swelling reduction while offering superior night-time comfort to multi-layer bandages, which can be time-consuming to apply and uncomfortable.
One of the main reasons why daytime compression garments should not be used at bedtime is that their pressure level is too high, which can lead to complications such as a tourniquet effect if the garment folds up during sleep. In addition, daytime compression garments, often made from nylon and spandex, lose their elasticity if used at night, reducing their effectiveness during the day when compression needs to be stronger to support a moving limb.
Several types of night-time compression garments are available, including non-elastic Velcro wraps and quilted garments. Velcro wraps are easy to adjust, which is particularly useful for people who experience volume fluctuations, while quilted garments feature foam channels that stimulate lymphatic circulation by exerting directional compression towards the trunk. These options enable patients to better manage their condition and be more independent.
Choosing the right night-time compression garment is a personal decision that must take into consideration several factors, such as lymphedema severity, skin condition, and compression tolerance. Consultation with a specialized therapist is essential to ensure the suitability of the chosen product, to verify that the garment meets the patient’s specific needs, and to ensure that the night garment is not contraindicated.
MEASURE your improvements
Here is our tape WITH guidelines
Se Reconstruire Centre de santé du sein has been established for over three years as an NPO and charitable organization. The Center offers breast cancer patients a humane approach that addresses both physical and psychological suffering, all in a reassuring multidisciplinary setting.
Dr. Cathie Guimond, surgeon and young mother, was leading a hectic life until breast cancer put the brakes on her career and a car accident disrupted her plans for good. It was then that she reoriented her life and founded the Se Reconstruire Centre de santé du sein organization to make a positive, real and concrete impact for each person throughout the course of the cancer journey. This dynamic and inspiring woman decided to turn a negative experience into a project of hope.
“When we’re supported and welcomed in a warm environment, we find the energy we need to transform and rebuild ourselves. We discover our inner strengths. We can see ourselves differently, and bring out the wonders that are hidden within us. And so we transform ourselves. We relearn to love ourselves, to find ourselves beautiful, to trust ourselves. Despite the scars and physical imperfections that illness has left on our bodies, we rebuild a new life. We find the wings to live our true nature to the full, in perfect harmony with our deepest essence. Like the butterfly emerging from its chrysalis, the woman who has undergone a mastectomy must begin her flight towards a new life. At the Center, she will receive state-of-the-art care lavished with empathy.”
- Dr Cathie Guimond, founder
Today, Se Reconstruire Centre de santé du sein offers personalized information, pain management and psychological support services under one roof. These include endermotherapy to reduce adhesions, acupuncture to relieve neuropathic pain and the side effects of hormone therapy, and 3D nipple tattooing. Related wellness services include psychological support, social work, kinesiology and free information workshops on surgery and hair prostheses. Low-cost post-operative bras, external breast prostheses and other products tailored to patients’ needs are also available on site. All the therapists specialize in breast cancer treatment.
The Régie de l’assurance maladie du Québec (RAMQ) informs us that two new features have been introduced to streamline the reimbursement claim process for the External Breastforms Program. These prostheses are often worn by women with lymphedema of the upper limb who have undergone a mastectomy.
Firstly, it is now possible to submit a claim online using the form available on the RAMQ website, in the section dedicated to the program. This new procedure is designed to simplify the process for the insured person, facilitate the transmission of the claim and reduce the time required to obtain reimbursement. The Web form is easy to complete. All the person needs to have is the information concerning their situation close at hand. However, a paper version of the form is still available. RAMQ updated this version on March 26, 2024.
Secondly, RAMQ no longer requires the medical prescription, invoice and proof of payment when filling out the claim form, except in the case of aplasia or unsatisfactory breast reconstruction. Despite this, drugstores and specialty stores may still require a prescription.
LYMPHEDEMA PROFESSIONALS!
garment by medi
LAQ EDUCATION AND SUPPORT GROUP IN GASPÉ
MEETING IN PERSON ON NOVEMBER 2, 2024 AT 10:30 A.M.
Join us for an exclusive medi webinar on nighttime compression!
Discover how our nighttime compression product can transform the management of lymphedema with insights from our expert, Mélissa Gélineau, Associate in Technical and Medical Training. This webinar offers a unique opportunity for healthcare professionals to gain a detailed understanding of the benefits of the circaid® profile and learn how it can enhance patients’ quality of life
Your next online education and support group takes place on October 24, 2024, at noon.
RISK REDUCTION with Marize Ibrahim, Certified Lymphedema Therapist, MUHC Lymphedema Clinic - Discover strategies to prevent complications and deal with them effectively. ZOOM presentation in French. Bilingual Q&A. This free event organized by the LAQ will take place on Thursday, October 24 at noon.
Registration REQUIRED
We look forward to seeing you!
This lymphedema event is made possible by the dedication of volunteer therapists and the Lymphedema Association of Québec. The LAQ’s mission is to support people at risk and those affected by lymphedema, while raising awareness of lymphedema as a chronic disease among health professionals.
Welcome to the second meeting of the LAQ Côte-de-Gaspé education and support group.
Co-hosted by Gabrielle Côté, a person living with lymphedema, and Chantal Leblanc, a certified lymphedema management therapist.
When: November 2, 2024 at 10:30 a.m. Where: 189 rue Jacques Cartier, Gaspé
You have lymphedema or are at risk. You are a closed one helping. This group will introduce you to the self-massage and help you find the support you need.
For registration and information: Chantal: 581-887-2784
Gabrielle: 450-651-1504
Next LAQ online group: Let’s get moving at home with Maude Jubinville, certified therapist, November 19 at noon.
We reached our goal of $10,000 and then some!
Thank you to all our donors and partners who are committed to supporting people living with lymphedema. The funds raised will help us continue our mission of raising awareness and educating you about lymphedema, while providing you with the services you so appreciate. Thank you everyone for your incredible support of the LAQ!
Surrounded by her entire
The Actimed Laboratoire orthopédique team mobilized to run 5 kilometers with joy! Thank you so much for your support in person and in donations.
Let’s go for lymphedema!
Thank you to the therapists who entered the “One gift, one ticket” contest for a free treatment.
The lucky winners of a free treatment are: - Françoise Lemieux, Centre-du-Québec - Sonia Roberge, Centre-du-Québec - Anonymous winner, Mauricie - Myriam Sabourin, Montérégie - Anonymous winner, Bas-Saint-Laurent
Merci à tous les participants à ce concours pour votre générosité !
Many thanks to
With MAUDE JUBINVILLE, MT Certified Lymphedema Therapist
In collaboration with the Lymphedema Association of Quebec (LAQ)
Date / Time : October 17 to December 12, 2024 10:30AM – 11:30AM
Location: Centre Aquatique Desjardins 850, rue Turcot Saint-Hyacinthe QC J2S 1M2
Fees: $177 / 9 courses including your LAQ membership (mandatory) Fee if you are already an LAQ member: $135
Payment Cheque or wire transfer
Book early, places are limited (maximum 12 people)
Registration : Contact Maude Jubinville jubinville.maude@gmail.com 514 928-4185
Requirement : Membership in the LAQ for access to:
• Exclusive educational tools
• The LAQ newsletter
• The quarterly Pathways magazine
• VIP invitations to virtual support
This course is designed for people suffering from lymphedema / lipedema / venous insufficiency.
Become a LAQ member
Exclusive LAQ member benefits
• Monthly newsletter L’info AQL
• Printed quarterly Pathways magazine
• Self-management booklet Learning to take charge
• Cellulitis Assistance Card
• Self-measurement guidelines for arms and legs
• L’info AQL Surgery edition
• VIP invitations for support education and groups. plus events
• A Members’ Area containing all your tools, plus all RAMQ program documents, including the Request for Review form.
• Your tools are mailed to you AND accessible in your online Member Section
The annual dues for Regular Members are $42.
I want to be a member!
The LAQ is proud to welcome 5 new regular members who joined us in September:
Francine Allard, Sabiha Azibi, Lucie Beaudry-Charbonneau, Gabrielle Chapados, Carmen Lepage
Welcome also to Sylvie Fenet, a new experienced therapist member from the Montreal area.
We sincerely hope that you’ll find the support you need from the LAQ to help you live well with lymphedema. And we sincerely thank you for your support!
Thank you to our September donors!
Give generously!
DONATIONS WALK TO COME
LISTING IN THE 2025 GUIDE AND SPONSORSHIPS
Corporate and professional members, you have received an email from the LAQ to:
- Renew your membership and be part of the LAQ 2025 Directory
- Participate in our Annual Sponsorship Program
- Take advantage of our new Honorary Gala Partnership Program
As the only organization dedicated to lymphedema, the LAQ offers you unique visibility with people at risk of lymphedema, affected by lymphedema, as well as with the professionals who diagnose and treat them AND with healthcare decision-makers.
Sponsorships and partnerships are offered on a first-come, first-served basis. Don’t miss these golden opportunities!
Body Image is something that everyone deals with. This is especially true for those living with Lymphedema. Negative body image has the potential to develop into Physical, Psychological or Social problems such as isolation, depression or an eating disorder.
Small simple daily things we can do to improve our Body Image. It’s up to you to choose what you want to put into practice. Whatever you can fit into your daily challenge:
• Make sure to achieve at least one small victory every day that makes you feel good about your body. EX: Wear your favourite top or buy a great new top for yourself. Donate an hour of your evening to massaging your body. Do your nails. Do a 10-minute exercise or stretching that jacks up your endorphins.
Become a LAQ member HERE
• Make a delicious guilt-free healthy meal or dessert. Share that meal with someone. Even if it is only posting pictures of them online.
• Be kind to yourself. Make sure every day to say something kind to yourself. Congratulate yourself for every small or big achievement you do.
AND YOU…
What are your favourite self-pampering activities?
What habits are you trying to create for your Body Image?
What kind words and inspirational quotes do you use to motivate yourself towards loving t he body you live in?
What are your struggles and what support are you looking for?
Putting on lymphedema compression garments can sometimes be difficult, but there are a number of tools that can simplify the task. Rubber gloves provide a better grip to prevent tearing. Nylon aids are also effective in reducing friction during donning.
The “Butler” device is a metal structure that keeps the sleeve or stocking open. It facilitates donning and doffing, particularly for people with poor muscle strength, arthritis, flexibility or back problems. Consult your orthotist fitter to help you choose the right tools for your needs.
Make it easy to put on your compression and you’ll quickly see the results. When shopping for donning and doffing aids, consult the LAQ Lymphedema Guide, Products and Services section.