YOU and FOR YOU! THE LAQ
MARCH: LYMPHEDEMA AWARENESS MONTH
A Victory for the MUHC Lymphedema Clinic
March, Lymphedema Awareness Month, is a time to recognize the challenges faced by those living with lymphedema or chronic edema. This year, it is also a moment to celebrate a major victory for the community: the secured funding of the McGill University Health Centre (MUHC) Lymphedema Clinic.
After a year of uncertainty, this essential center of expertise for patients in Québec has received crucial financial support. Thanks to the decisive intervention of the MUHC’s senior management and the generosity of the Cedars Foundation and the MUHC Foundation, funding has been secured for the next three years. This recognition of the Clinic’s value marks a significant step forward, reinforcing the importance of specialized lymphedema care.
We extend our deepest gratitude to the dedicated individuals and philanthropic organizations whose commitment made this outcome possible. Their support ensures the continuity of care and follow-up for many patients who, without this clinic, would have limited access to specialized treatment.
The tireless advocacy for patients, the online petition that gathered over 15,000 signatures, and the letters of support from the LAQ, CLF, LE&RN, our international and national partners—and especially from patients themselves—have made a real impact. While government funding is still under negotiation, this progress is an encouraging step forward.
However, challenges remain. To maintain all current services and activities, including research, additional funding
is still needed. The goal is clear: to prevent any reduction in services and avoid further extending the already lengthy waiting list, which has stood at six months for some time.
This victory is proof that collective efforts can drive meaningful change. Let’s continue raising awareness, advocating for better care, and ensuring access to essential treatment for those affected by lymphedema and chronic edema. Thank you all for your support—together, it’s less of a burden.
Anne-Marie Joncas President, LAQ
The threat is STILL LOOMING
To everyone who has signed and shared this petition—thank you! Your support is making a difference, and we now have 2,112 signatures between our English and French petitions calling on the Canadian government to exempt medical compression garments from the proposed 25% retaliatory tariffs.
But our fight isn’t over. These tariffs threaten lifesaving, medically necessary garments that lymphedema, lipedema and chronic venous insufficiency (CVI) patients across Canada rely on—garments that are not made here and are already costly without this added burden. They will also threaten the businesses that supply these essential products, driving up costs even further.
We need to keep the momentum going! Please continue to share this petition and urge others to sign. More importantly, take the next step: write or email the government officials listed on the petition and let them know why these tariffs must be stopped. Every voice matters.
Together, we can make sure that the Canadian government understands the real impact of these tariffs. Let’s keep pushing for what’s right!
Petition
Thank you for standing with us!!
FACES of lymphedema
Eugénia Bonzulo: Pirouettes for Lymphedema Awareness
Eugénia Bonzulo is not the type to remain still. Founder of the Ballet Nouveau Siècle school in the 1960s and former teacher at the Sherbrooke Ballet Academy, she has dedicated her life to movement and physical expression. Today, although she has put away her ballet slippers, she continues to move with energy, walker in hand, and inspire those around her.
For over 30 years, Ms. Bonzulo has lived with lymphedema in her leg. Rather than letting it hold her back, she has chosen to take action by raising awareness among the residents of Glenmount Residence, where she lives, about the importance of compression and physical activity. Her initiative? Offering a small personal gift—scarves, gloves, and other treasures from her collection—along with an informational leaflet from the AQL, in exchange for a donation to the organization.
Raising Awareness, Informing, and Inspiring
With her Buddhist meditation practice, Eugénia has a constructive approach to challenges: «When faced with a problem, it’s important to always phrase things positively. That’s how you encourage others to improve.» This philosophy also guides her relationship with healthcare professionals: instead of criticizing, she prefers to share information to promote better management of lymphedema.
She is also motivated by a deep desire to educate people: «Lymphedema is not cured with a pill, but with movement and well-fitted compression garments.» Too often, she sees residents suffering from leg swelling, unaware that solutions exist. By distributing AQL literature, she hopes to not only break prejudices but also encourage those around her to adopt healthier lifestyle habits.
A Huge Thank You, Eugénia!
A loyal AQL member since 2007, Ms. Bonzulo is a model of resilience and generosity. Thanks to her, many have learned about lymphedema and how to better manage it. We salute her commitment and hope her initiative will inspire others to raise awareness about this still little-known condition.
How about being inspired?
Here are three simple ways to raise awareness of lymphedema/ chronic edema and support the AQL:
• Give an AQL leaflet to your healthcare provider.
• Share our posts on social media.
• Invite your loved ones to donate to the AQL on your birthday.
Discover our resources to share
LYMPHEDEMA MONTH 2025 Special
GET READY FOR LYMPHEDEMA AWARENESS MONTH!
Every day in March, we’ll be sharing insights on chronic edema, including lymphedema and other conditions such as lipedema and chronic venous insufficiency (CVI), which can cause lymphedema. Get informed, discover helpful tips, and access resources to better understand, manage, and live with these conditions. ESSITY — manufacturer of JOBST compression garments—supports LAQ during Lymphedema Awareness Month! Thank you very much!
What is lymphedema?
KEY FIGURES
Did you know that 1.25 million Canadians are living with lymphedema?
Globally, more than 250 million people—women, men, and children of all backgrounds—are affected by this condition.
And that’s just the tip of the iceberg! Many more are living with lipedema or CVI, conditions that cause chronic swelling and require proper management.
FOR MEMBERS ONLY
Become a LAQ member HERE
The LAQ is the only organization in Québec fully dedicated to supporting people with lymphedema/chronic edema. We’re here to inform, guide, and support you!
Lymphedema is a chronic, degenerative disease of the lymphatic system that can cause pain, chronic swelling, deformities, and serious complications. It is important to know that lipedema and CVI can cause lymphedema, and that for this reason they are managed with a similar approach.
Compression, physical activity, a balanced diet, and motivational support are key pillars of effective management!
SELF-CONFIDENCE
Living with chronic swelling such as lymphedema, or swelling that can develop as a result of lipedema or CVI, can affect body image and self-confidence. But small daily actions can help you reclaim your body and feel good every day!
Simple ways to boost your well-being:
✔ Celebrate a small victory every day! Put on your favourite sweater, treat yourself to a massage, do your nails, or take 10 minutes to stretch.
✔ Enjoy a guilt-free meal. Cook a dish you love and share it with someone special.
✔ Be kind to yourself. Swap self-criticism for positive thoughts and acknowledge every little step forward.
THE 4 CAUSES OF LYMPHATIC DYSFUNCTION
The lymphatic system plays a crucial role in fluid circulation and immunity. When it malfunctions, it can lead to lymphedema or other conditions associated with chronic edema
Four main causes:
1. Lymph node removal (e.g., after cancer treatment).
2. Damage to the lymphatic vessels (e.g., trauma, infection).
3. Venous insufficiency overloading the lymphatic system.
4. Congenital malformation of the lymphatic system (primary lymphedema).
FOR MEMBERS ONLY
Become a LAQ member HERE
It is important to know that lipedema, a distinct disease, can be complicated by the addition of lymphedema. Whatever the cause, you can take action to reduce risks and better manage the condition!
Learn how here
MONTH 2025
LYMPHEDEMA ALSO AFFECTS CHILDREN
When lymphedema appears at birth or during puberty, it is called primary lymphedema. It results from a genetic malformation affecting the structure or function of the lymphatic system
◆ It cannot be cured, but with time and appropriate care, it can improve and be better controlled.
◆ Early diagnosis & medical follow-up = better quality of life for affected children.
♥ Every child deserves the right support to grow up with confidence!
➔ Find out more here https://infolympho.ca/en/daily-life/ my-child-has-lymphedema/
WORLD
LYMPHEDEMA DAY
On March 6, the LAQ stands with patients, loved ones, and healthcare professionals to demand better care for lymphedema and chronic edema!
Our key demands:
✔ End the underfunding of specialized treatments in the healthcare system.
✔ Ensure equitable access to specialized care for all those affected.
✔ Waive Canadian counter-tariffs on compression garments for products from the United States.
Make your voice heard!
FOR MEMBERS ONLY
Become a LAQ member HERE
SIGN AND SHARE the petition for an exemption from counter-tariffs on compression garments
LYMPHEDEMA
MONTH 2025
CONSULT A CERTIFIED THERAPIST
Healthcare professionals are not always properly trained to treat lymphedema and chronic edema. That’s why it’s essential to consult a certified therapist who is a member in good standing of the LAQ!
◆ You’ll be in the hands of a specialist trained in chronic edema treatment.
◆ You’ll receive care that follows established standards and is tailored to your condition.
◆ You’ll get personalized advice to help you manage your daily life more effectively.
Find a therapist near you
CHRONIC ISSUE
Thousands of people from all backgrounds live with chronic and disabling swelling.
Whether linked to cancer, chronic venous insufficiency, or lipedema, chronic edema can lead to lymphedema, a progressive disease with serious complications.
The LAQ is actively working to improve the care of those affected.
We collaborate with key healthcare stakeholders, including the Centre suprarégional du lymphœdème at the MUHC, a leading resource for understanding and treating chronic edema.
FOR MEMBERS ONLY
EAT BETTER TO FEEL BETTER!
Become a LAQ member HERE
A healthy diet and proper hydration can make a real difference in managing lymphedema, chronic edema, chronic venous insufficiency (CVI), and lipedema.
Our recommendations based on Canada’s Food Guide:
Limit caffeine and alcohol, as they can dehydrate you.
Reduce salt, which promotes water retention.
Cut down on refined sugars and ultra-processed foods.
Watch your intake of saturated fats, as they put extra strain on the lymphatic system.
Stay hydrated! Eight glasses of water a day help your body better drain lymph fluid.
Everyone is different! Find the balance that works for you.
GET MOVING!
Exercise is the key! Staying active promotes lymph circulation and helps manage chronic edema, lymphedema, lipedema, and CVI.
Why is it important?
The muscles in our legs and arms naturally compress the lymph, aiding its drainage.
Good news: You don’t need to be an athlete!
Do what you enjoy and what suits your abilities:
Take a walk in the sunshine
Swim at your own pace
Try yoga or gentle stretching.
TAKE CARE OF YOURSELF!
TAKE CONTROL WITH SELF-MANAGEMENT!
GOOD NEWS: You can play an active role in managing lymphedema, chronic edema, lipedema, or CVI! With the right strategies, you can improve your daily comfort.
Knowledge is power!
Understanding your condition and applying best practices are key to effective management.
Discover concrete actions that can make a real difference
FOR MEMBERS ONLY
Become a LAQ member HERE
Self-care is essential, especially when living with chronic edema, lymphedema, lipedema, or CVI! Adopting healthy habits can improve your well-being and make managing your condition easier.
Simple habits to include in your routine:
• Moisturize and protect your skin to prevent infections and irritation.
• Pay special attention to your hands and feet, as they are often more vulnerable.
• Practise relaxation and deep breathing for positive effects on both body and mind.
• Embrace yourself and celebrate every small victory!
Get more self-care tips here
STIMULATE YOUR LYMPHATIC CIRCULATION!
Did you know that certain massage techniques can help improve lymph circulation and reduce heaviness?
Manual Lymphatic Drainage (MLD) is a gentle and specialized technique that helps redirect lymph fluid to areas where it can circulate better. Performed by certified therapists, it can also be learned as self-massage to extend its benefits at home!
➔ Learn more about this essential approach: https://infolympho.ca/en/daily-life/the-referencetreatment/
➔ Find a certified therapist near you: https://infolympho.ca/en/interactive-map/
COMPRESSION YOUR ALLY!
Compression garments aren’t just accessories; they’re a key tool for managing chronic edema, lymphedema, lipedema, and CVI daily.
Why wear them?
✔ Reduce swelling by preventing excess lymph buildup.
✔ Improve lymphatic circulation for better comfort and mobility.
✔ Relieve pain and help prevent complications.
A well-fitted garment makes all the difference! Consult a specialized therapist to find the right compression for you, and trust your orthotist to ensure a proper fit.
➔ More info here: https://infolympho.ca/en/gettinginformed/compression-garments/
FOR MEMBERS ONLY
Become a LAQ member HERE
LYMPHEDEMA
MONTH 2025
JOIN OUR SUPPORT GROUPS!
You are not alone in living with chronic edema, lymphedema, lipedema, or CVI! The LAQ offers virtual support groups—safe spaces to ask questions, share experiences, or simply listen.
Free and open to all!
➔ Sign up here: https://infolympho.ca/en/getting-informed/ support-groups/
➔ Want priority access? Become a member of LAQ and get early registration for our sessions! https://infolympho.ca/en/become-a-member/
COMPRESSION & CHRONIC EDEMA
Compression garments are a cornerstone in managing chronic edema, lymphedema, lipedema, and CVI But for them to work effectively, proper fit is key!
Ensure your compression garments are:
• Selected based on your specific needs
• Properly fitted to the size & shape of your edema
• Prescribed after evaluation by a specialized therapist
➔ Find a certified therapist near you: https://infolympho.ca/en/getting-informed/lymphedemaguide/
➔ Everything you need to know about compression garments: https://infolympho.ca/en/getting-informed/compressiongarments/
FOR MEMBERS ONLY
Become a LAQ member HERE
FREE SUPPORT SERVICE
Direct access to specialists through the Therapeutic Support Program!
Have questions or concerns? The LAQ offers a unique support service:
◆ Our volunteer therapists answer your concerns and guide you to the right resources.
◆ Free & available 24/7: Leave a message, and a professional will call you back within 24 to 48 hours
➔ Learn more and contact the service here: https://infolympho.ca/en/getting-informed/therapeutic-supportprogram/
COMPRESSION & RAMQ
Did you know that RAMQ can reimburse your compression garments?
If you’ve been diagnosed with lymphedema, you may be eligible for reimbursement on:
• Compression bandages
• Custom-made or ready-to-wear compression garments
• Essential compression accessories
• A medical prescription is required.
Talk to your healthcare professional for more details!
➔ Find out more about the program here: https://infolympho.ca/en/getting-informed/the-ramqprogram/
EXPLORE OUR RESOURCE GUIDE!
Looking for reliable information on chronic edema, a certified therapist, or a retailer of compression garments? The Lymphedema Guide has you covered!
Why use it?
◆ Updated annually
◆ Essential reference for people living with chronic edema/lymphedema in Québec
◆ Quick access to key resources
➔ Check it out here: https://infolympho.ca/en/gettinginformed/lymphedema-guide/
FOR MEMBERS ONLY
SELF-MEASURING IMPORTANCE
Become a LAQ member HERE
Easily track your edema with self-monitoring!
Self-monitoring is a simple and effective way to manage chronic edema, lymphedema, lipedema, or CVI while detecting changes early.
Key tips:
• Stable edema? Measure your limb once a month
• Fluctuating condition? Increase measurement frequency
• Keep a record to track your progress
• Consult a therapist if swelling increases despite self-bandaging
Our measuring tape + explanatory booklet is available on our website a practical tool to track your progress!
➔ Steps to follow: https://infolympho.ca/en/daily-life/steps-to-follow/
➔ Order your measuring tape here: https://infolympho.ca/en/product/tape-measure-for-leg-with-instructions/
AVOID DIURETICS!
CAUTION! Diuretics do not treat chronic edema/ lymphedema or lipedema!
They help eliminate excess water, but lymph is not water. Their use may be ineffective or even risky, depending on your condition.
Always consult your doctor before taking a diuretic.
➔ Find out more here https://infolympho.ca/en/daily-life/ the-reference-treatment/
HYDRATE!
Drinking enough water helps maintain healthy skin and promotes lymphatic circulation. But we know it’s not always easy!
Three simple tips to drink more water:
• Keep a water bottle with you at all times
• Add a touch of flavour: lemon, cucumber, orange
• Limit coffee, sugary drinks, and alcohol
What’s your best tip for staying hydrated? Share it in the comments!
➔ More advice here https://infolympho.ca/en/daily-life/ cellulitis-and-complications/
INFO FOR PROS
FOR MEMBERS ONLY
Become a LAQ member HERE
The LAQ provides healthcare professionals with free educational materials designed to assist both therapists and their patients.
Why request these materials?
✔ To better inform your patients about chronic edema/lymphedema
✔ To offer reliable and accessible resources
✔ To enhance your clinic with educational tools
➔ Order your materials here https://infolympho.ca/en/getting-informed/free-essentials/
HOW TO STAY MOTIVATED?
Find your passion! Incorporate an activity into your routine that brings you joy
• Choose an activity you love
• Adapt it to your lifestyle and budget
• Cultivate confidence and well-being
Give yourself this gift: a moment for yourself every day!
➔ Need inspiration? https://infolympho.ca/en/someexamples-of-adapting-to-life/
YOU ARE NOT ALONE!
1,25 million
Lymphedema affects 1.25 million Canadians
If you feel isolated or worried, you are not alone!
◆ More and more trained professionals are available to help
◆ The LAQ provides support, resources, and guidance
◆ Need to talk to a volunteer therapist? Our Therapeutic Support Program is here for you.
➔ Contact us here https://infolympho.ca/en/gettinginformed/therapeutic-support-program/
FOR
LIVING WELL WITH CHRONIC EDEMA IS POSSIBLE!
MEMBERS ONLY Become a LAQ member HERE
Managing chronic edema/lymphedema means adopting daily habits that promote well-being:
✔ Balanced diet and good hydration
✔ Wearing appropriate compression garments
✔ Regular, adapted physical activity
A specialized therapist is essential to guide you and adjust your care.
Take care of yourself and celebrate every effort you make.
You are unique!
➔ Find resources near you https://infolympho.ca/en/interactive-map/
BAUERFEIND WEBINAR for healthcare professionals
Understanding compression with Véronique Bordeleau
Tuesday, April 9, 2024 | 12 p.m. (noon) | ZOOM (in French)
OPTIMIZE YOUR EXPERTISE IN MEDICAL COMPRESSION!
This exclusive webinar, presented by Véronique Bordeleau, a nurse specializing in phlebology and manager at Bauerfeind, will give you a better understanding of the role of compression in the management of chronic edema.
On the program:
• The key principles of medical compression
• Indications and contraindications
• How to choose and adjust compression garments correctly ZOOM presentation in French. This free event organized by the LAQ will take place on Wednesday, April 9 at NOON. Free registration MANDATORY. Bauerfeind is proud to be a Platinum sponsor of the LAQ.
FOR PATIENTS AND PROFESSIONALS
LAQ Education and Support Group
How to self-assess properly
with Maude Jubinville, certified lymphedema therapist
Wednesday, April 16 at 7 p.m. ZOOM (in French)
BETTER UNDERSTANDING YOUR BODY MEANS BETTER MANAGEMENT OF YOUR LYMPHEDEMA!
Self-assessment is an essential skill for monitoring the progression of lymphedema, adjusting treatments and preventing complications. By learning to recognize changes in your condition, you become the actor of your own well-being.
With Maude Jubinville, certified lymphedema therapist, discover:
• How to monitor the progression of your lymphoedema (volume, skin, sensations)
• The signs to look out for to prevent complications
• Good practices for adapting your care and communicating better with your medical team
ZOOM presentation in French. This free event organized by the LAQ will take place on Monday, April 16 at 7:00 PM. Free registration MANDATORY
We look forward to seeing you!
This lymphedema event is made possible by the dedication of volunteer therapists and the Lymphedema Association of Québec. The LAQ’s mission is to support people at risk and those affected by lymphedema, while raising awareness of lymphedema as a chronic disease among health professionals.
Listen to two episodes of the
“Santé vous mieux” podcast about lymphedema!
The LAQ teamed up with Dr. Èvelyne Bourdua-Roy and neuroscientist Sophie Rolland to produce two episodes of the Santé vous mieux podcast. Episodes 76 and 77, which address crucial issues related to lymphedema and chronic edema, are now available!
LISTEN!
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EXCLUSIVE LAQ MEMBER BENEFITS
• Monthly newsletter L’info AQL
• Printed quarterly Pathways magazine
• Self-management booklet Learning to take charge
• Cellulitis Assistance Card
• Self-measurement guidelines for arms and legs
• L’info AQL Surgery edition
• VIP invitations for support education and groups, plus events
• Your tools are mailed to you AND accessible in your online Member Section
• A Members’ Area containing all your tools, plus all RAMQ program documents, including the Request for Review form.
The annual dues for Regular Members are $42.
I want to become a member!
The LAQ is happy to welcome 14 new
– Rwaida Al-Eryani
– Claudine Bertrand
– Suzanne Cadieux
– Linda Deschênes
– Elisabeth Kutter
– Diane Labelle
– Céline Leduc
– Yvon Léonard
– Johanne Mireault
– Isabelle Pelland
– Sonia Roy
– Priscilla Silva
– Jocelyne Sirard
– Suzanne Veilleux
We are delighted to welcome Ortho Cousineau, a Maniwaki establishment, as a new corporate member of the LAQ! A member in good standing of the AOPQ, Ortho Cousineau offers the services of orthotists specializing in the adjustment of compression garments. We are happy to have them on board and to see them listed in the LAQ’s Lymphedema Guide.
TIP OF THE MONTH
TAKE YOUR MEASUREMENTS, TAKE CONTROL!
Po properly manage chronic edema, it is essential to monitor the progress of the affected limb.
Self-measurement allows you to check whether your strategies - exercise, diet, compressionare working... or whether some adjustments are necessary!
Our advice:
✔ Take your measurements once a month if your edema is stable, more often if it varies.
✔ Record your results to detect any upward trend.
✔ If the volume increases despite good monitoring, consult your therapist.
Good monitoring means better control of your condition!
Learn more about self-management here
An exceptional partner
Thank you to Essity, Diamond Sponsor for its essential support in enabling the LAQ to accompany people living with chronic swelling/lymphedema.
Together, we’re changing lives!