Keeping Up With
Down Syndrome Association of South Texas • 2800 NW Loop 410 • San Antonio, TX 78230 • (210) 349-4372
Volume 15, Issue 3
July 2013
What’s
inside...
Executive Director................1 HUGS...................................1 Buddy Walk..........................2 Teen Club.............................3 Playgroup..............................3 Adult Matters!......................3 Kid Connection....................3 Information Meetings..........4 Mentor Orientation.............4 D.A.D.S.................................5 Day at Splashtown...............5 Thank You............................5 National Clown Week..........5 Meet David...........................6 Gabby's Moment..................7 Educational...........................7
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Message from Terri Mauldin ... Welcome to the summer issue of the Down Syndrome Association’s newsletter! Summer is in full swing with lots of events, changes, and additions to the DSASTX. The Spring Picnic was held on Sunday, May 19th and was a huge success! We had over 300 people attend, and everyone had a wonderful time. I want to thank Toyota Texas for sponsoring the event, Jack Faour and Richard Buford for doing all the grilling, the exhibitors that provided the games and activities for the guests, and all the families that came out to enjoy a wonderful day. On Saturday, June 8th, the 10th Annual Audrey’s Day at the Beach was held in Rockport, Texas. Yes, the Shockley family has hosted this event for 10 years - hard to believe! There were many families that attended this awesome event and enjoyed sun, water, food, and tons of fun. Thank you again to the Shockley family and all the volunteers in Rockport! Bill, Jackie, Ray, and Aggie always host a wonderful event enjoyed by all! Don’t forget, the Buddy Walk will be held on Saturday, September 28th at Heroes Stadium. The Buddy Walk registration site is open and ready for team registrations and donations. We are asking everyone that has registered or donated in the past to PLEASE use your login information from last year. For more information, please see the article later in this newsletter.
I hope you take a moment to read the newest section of our newsletter, Self-Advocate News by Jessaca Bond. Jessaca is a self-advocate that serves on the DSASTX Board of Terri Mauldin Directors. She will write an article from her point of view for each issue! Please read her very first article and help me thank Jessaca for her continued support and vision for the DSASTX. As you can see, we are busy, and hopefully we are providing the best support and services to individuals with Down syndrome. They are our inspiration and make our jobs so enjoyable! In order for us to be as efficient as possible, I am going to please ask everyone to call the DSASTX office if you plan to attend any of our events. At most of our events, we provide food and refreshments and we base the purchase of these items on the number of people who have RSVP’d. We also understand that plans can change after you have called the office, so please try to contact us to let us know that you will not be able to attend so we can adjust our numbers and not purchase unnecessary items. I hope everyone enjoys the rest of your summer, and I look forward to seeing everyone at the Buddy Walk on September 28th.
Self-Advocate News..............8 Volunteer Highlight.............8 HUGS Inaugural Gala.........9
Who We Are.......................11
The DSASTX H.U.G.S. Annual Giving program is an easy way to donate with a one-time, quarterly, bi-annual or monthly gift through automatic donations via a credit or debit card with amounts as low as $5. With every donation given through this program, you become eligible for the H.U.G.S. Recognition Club!
Calendar of Events.............12
Visit the DSASTX website – HUGS link to start your monthly giving today!
Fiesta Especial......................9 Outreach.............................10 Contributions.....................10
Help Us Give Support
Keeping Up With Downs
13th Annual Buddy Walk! The 2013 Buddy Walk will be held Saturday, September 28 at Heroes Stadium, 4799 Thousand Oaks (near Morgan’s Wonderland) beginning at 7:00 a.m. Please join the San Antonio community as we celebrate the gifts and diversity of children, men, and women with Down syndrome and help raise awareness of the need for acceptance and inclusion of these wonderful people! Schedule of Events: 7:00 a.m. Registration 7:00 a.m. Exhibitors and Entertainment Begins 8:00 a.m. Opening Ceremonies 9:00 a.m. Buddy Walk begins around Heroes Stadium REGISTRATION IS FREE! However, registration is still required by September 6th to guarantee a Buddy Walk T-shirt. T-shirts are not guaranteed if registering on the day of the walk. In addition, pre-registered t-shirts must be picked up prior to 9:00 a.m. at the Buddy Walk. Remember, Buddy Walk is the DSASTX’s biggest fundraiser of the year, so in lieu of a registration fee, we encourage you to make a tax deductible contribution and to raise donations from families and friends to support the programs and services of the DSASTX. Prizes will be awarded for the top fundraisers! Registration is now available online at www.dsastx.org. You may also print out a registration form and mail it in. Though registration is free, you must register in order to receive your T-shirt. You can also create your own Buddy Walk personal page to share with family, friends, doctors, therapists, and colleagues. It’s a convenient and simple way to share information about Buddy Walk and raise money through personalized emails to your supporters. Pre-Walk T-shirt pick up: Register, pick up your T-shirts, or submit donations at the Buddy Walk Pre-Walk T-shirt Pickup to be held on Saturday, September 21st from 9:00 a.m. – 12:00 noon at the Down Syndrome Association of South Texas’ office at 2800 NW Loop 410 (access road on eastbound 410 between Cherry Ridge and Vance Jackson). Remember, all pre-registered shirts MUST be picked up prior to 9:00 a.m. at the Buddy Walk or they will not be guaranteed. Prizes: For every $500 raised, the participant’s name will go into a drawing for a chance to win one of four prizes including a beach house stay in Port Aransas, a stay at the Westin La Cantera, a spot in the 2015 DSASTX calendar, or a copier/printer/scanner for the home. The deadline for submission of donations is midnight on Saturday, September 21st.
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AWARDS: Top 3 teams – the top 3 fundraising teams as of midnight September 21st will receive VIP canopies, a goody basket and recognition on the day of the walk. The team that raises the most money will walk with the Honorary Buddy. Corporate Sponsors: Thank you to Valero, HEB Tournament of Champions, Avnet, Grande Communications, Speech and Language Center at Stone Oak, Royal Management, The Gordon Hartman Family Foundation, River City Community Church, AHMSA International, North Park Lexus, Whataburger, Deerfield Animal Hospital, Institute for Women’s Health, Mr. W Fireworks, Broadway Bank, Frito Lay, Children's Hospital of San Antonio and Allstate for their sponsorship of Buddy Walk 2013. If you know of a company that is interested in sponsoring the Buddy Walk, please contact the DSASTX office at (210) 349-4372. Walk Day Volunteers: If you are interested in volunteering on the day of the walk, please register online at www.dsastx.org or contact the DSASTX office at (210) 349-4372 or info@dsastx.org.
Presented by:
www.dsastx.org
Teen Club
The Teen Club is open to all teens with any disability between the ages of 13 and 17. The goal of the Teen Club is to foster friendships, stimulate socialization, and increase positive self esteem. Chaperones will be in attendance at each event. The cost of Teen Club events will be covered by the DSASTX for the teen and one special needs, age-appropriate friend. Please RSVP for each event to Kerin Croft at kcroft@dsastx.org or (210) 3494372. SATURDAY, JULY 27 – FAMILY SWIM DAY Pam Stephens Center, 6530 Wurzbach, 78240. 10:00 a.m. - 1:00 p.m. Lifeguards will be on duty. SATURDAY, AUGUST 24 – DSASTX DAY AT SPLASHTOWN 3600 IH35 N, San Antonio, TX 78219 Checkin at 10:30 - 11:00 a.m. See page 5 for more details. SATURDAY, SEPTEMBER 28 – 13th ANNUAL BUDDY WALK 7:00 - 11:00 a.m. Heroes Stadium, 4799 Thousand Oaks Drive http://dsastxbuddywalk2013.kintera.org
Adult Matters!
Adult Matters! is a social program specifically designed for adults with special needs ages 18 and older. The focus is on providing an environment to help them further develop their social skills, build friendships among other adults with special needs, and offer them safe and appropriate interactions within the community. In order to foster that environment, we encourage them to invite an age-appropriate peer (another adult with special needs) to participate with them. DSASTX will pay the participation fee for both of them. Please RSVP for each event to Kerin Croft at kcroft@dsastx.org or (210) 349-4372. SATURDAY, JULY 27 – FAMILY SWIM DAY Pam Stephens Center, 6530 Wurzbach, 78240. 10:00 a.m. - 1:00 p.m. Lifeguards will be on duty. SATURDAY, AUGUST 24 – DSASTX DAY AT SPLASHTOWN 3600 IH35 N, San Antonio, TX 78219 Checkin at 10:30 - 11:00 a.m. See page 5 for more details. SATURDAY, SEPTEMBER 28 – 13th ANNUAL BUDDY WALK 7:00 - 11:00 a.m. Heroes Stadium, 4799 Thousand Oaks Drive http://dsastxbuddywalk2013.kintera.org
Playgroup Playgroup is a playtime for children ages 0-3. The DSASTX will pay for entry fees to these activities (if applicable) for the child with Down syndrome and their siblings. Please RSVP for each event to Kerin Croft at kcroft@dsastx.org or (210) 349-4372. SATURDAY, JULY 27 – FAMILY SWIM DAY Pam Stephens Center, 6530 Wurzbach, 78240. 10:00 a.m. - 1:00 p.m. Lifeguards will be on duty. SATURDAY, AUGUST 24 – DSASTX DAY AT SPLASHTOWN 3600 IH35 N, San Antonio, TX 78219 Checkin at 10:30 - 11:00 a.m. See page 5 for more details. SATURDAY, SEPTEMBER 28 – 13th ANNUAL BUDDY WALK 7:00 - 11:00 a.m. Heroes Stadium, 4799 Thousand Oaks Drive http://dsastxbuddywalk2013.kintera.org
Looking Forward • NOVEMBER Playgroup / Kid Connection – Magic Theater Teen Club / Adult Matters – Life Skills & Culture • DECEMBER 2013 Annual Holiday Party
Kid Connection
Kid Connection is our gathering designed for family social activities. We welcome all children with special needs and their families! Our events are specifically designed for ages 4 - 12. The DSASTX will pay the admission for the individual with Down syndrome and their siblings. Parents are responsible for their own admission. A discounted rate will be offered when possible. Please RSVP for each event to Kerin Croft at kcroft@dsastx.org or (210) 349-4372. SATURDAY, JULY 27 – FAMILY SWIM DAY Pam Stephens Center, 6530 Wurzbach, 78240. 10:00 a.m. - 1:00 p.m. Lifeguards will be on duty. SATURDAY, AUGUST 24 – DSASTX DAY AT SPLASHTOWN 3600 IH35 N, San Antonio, TX 78219 Checkin at 10:30 - 11:00 a.m. See page 5 for more details. SATURDAY, SEPTEMBER 28 – 13th ANNUAL BUDDY WALK 7:00 - 11:00 a.m. Heroes Stadium, 4799 Thousand Oaks Drive http://dsastxbuddywalk2013.kintera.org
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Parent Information Meetings SAN ANTONIO – NORTHSIDE Coker United Methodist Church 231 E. North Loop Rd. Gibbs Room 1108 San Antonio, TX 78216 Our Northside Parent Information Group is held the 1st Tuesday of each month from 6:00 p.m - 8:00 p.m. A light dinner is served. Childcare is available with a required RSVP to Coker UMC at (210) 494-3455 x 245 at least 48 hours in advance. Please leave a detailed message when making a reservation. Tuesday, august 6 Topic: Buddy Walk Talk Speaker: Terri Mauldin Tuesday, september 3 No meeting due to Buddy Walk Join us September 28, 2013 at Heroes Stadium! Tuesday, october 1 Topic: Bullying Speaker: Dot O'Donnell BOERNE St. Peter the Apostle Catholic Church, Room 148 FLC 202 W. Kronkosky Street, Boerne, Texas 78006 Our Boerne Parent Information Group is held on the 2nd Tuesday of each month from 6:00 p.m. - 8:00 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at (210) 349-4372. We look forward to seeing you there! Tuesday, august 13 Topic: Buddy Walk Talk Speaker: Terri Mauldin Tuesday, september 10 No meeting due to Buddy Walk Join us September 28, 2013 at Heroes Stadium! october 2013 Picnic in the Park – Details to follow
SAN ANTONIO – SOUTHSIDE De Paul Family Center 7607 Somerset Road San Antonio, TX 78211 Our Southside Parent Information Group is held the 3rd Tuesday of each month from 6:00 p.m. - 7:30 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at (210) 349-4372. We look forward to seeing you there! TUESDAY, august 20 Topic: Buddy Walk Talk Speaker: Terri Mauldin TUESday, september 17 No meeting due to Buddy Walk Join us September 28, 2013 at Heroes Stadium! TUESday, october 15 Topic: Music Therapy and Down syndrome Speaker: Cheryl Moore, Music Therapist NEW BRAUNFELS Gruene United Methodist Church 2629 East Common Street, New Braunfels, Texas 78130 Our New Braunfels Parent Information Group (serving Comal and Guadalupe counties) is held on the 3rd Thursday of each month from 6:00 p.m. - 7:30 p.m. A light dinner is served. Childcare is available with a required RSVP to the DSASTX office at (210) 349-4372. We look forward to seeing you there! THURSDAY, AUGUST 15 Topic: Buddy Walk Talk Speaker: Terri Mauldin THURsday, september 19 No meeting due to Buddy Walk Join us September 28, 2013 at Heroes Stadium! THURSday, october 17 Topic: Music Therapy and Down syndrome Speaker: Cheryl Moore, Music Therapist
Parent to Parent Mentor Orientation
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www.dsastx.org
D.A.D.S.
Dads Appreciating Down Syndrome, or D.A.D.S., is a committee or community group (within a local Down syndrome support organization) of fathers of children who happen to have Down syndrome. We hesitate to call ourself a “support group”, even though we do, in many ways, support each other. We invite expert speakers to discuss medical, educational, financial, social, and any other issues that affect our children’s lives. And of course, we share stories and experiences that are unique to fathers of children with Down syndrome. SATURDAY, JULY 20 – MORGAN'S WONDERLAND Father/Child day at Morgan's Wonderland Dads pack a lunch and bring the kids out for our father/child day at Morgan's Wonderland. 9:30 a.m. checkin. 11:30 a.m. gather for lunch in the picnic area to the right behind the Event Center. Please RSVP by July 18 to the DSASTX office at (210) 349-4372 or kcroft@dsastx.org. SATURDAY, SEPTEMBER 28 – 13th ANNUAL BUDDY WALK 7:00 - 11:00 a.m. Heroes Stadium, 4799 Thousand Oaks Drive http://dsastxbuddywalk2013.kintera.org NOVEMBER MEETING Details to follow
DSASTX Day at SPLASHTOWN
Thank you to Mary Jane Hardy for donating proceeds totaling $10,000 from the sale of her book, Spiritual Treasures of Downtown San Antonio. If you would like to order the book, please email Mary Jane directly at hardykenjane@sbcglobal.net.
Saturday, August 24 Splashtown is located at 3600 IH 35 North, San Antonio, TX 78219. Check-in from 10:30 to 11:00 a.m. Families must arrive by 11:00 a.m. so that tickets may be purchased – no exceptions! DSASTX will provide free admission for individuals with Down syndrome (ages 0-12) and their siblings (ages 17 and under). OR DSASTX will provide free admission for teens and adults with Down syndrome (ages 13 and up) and one friend with special needs. Any additional tickets for parents, friends, adult siblings, and extended family (grandparents, aunts, uncles, cousins, etc.) will be charged the group rate admission. You MUST RSVP to (210) 349-4372 or email Kerin Croft at kcroft@dsastx.org no later than Monday, August 19th.
National Clown Week will be celebrated at Morgan's Wonderland on Saturday, August 10 from 11:00 a.m. 2 p.m. It will be in the event center. There will be lots of colorful clowns doing facepainting and greeting, along with a show at 1:00 p.m.
Don’t forget your towel and sunscreen!
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Meet David
Our first son, David, was born July 31, 1991. It was not long after his birth that he required oxygen and began a downward spiral that required a 16-day stay in the Newborn Intensive Care Unit. David had persistent fetal circulation along with other heart defects. He was transported by Air Life to a facility that had “ECMO”, a special heart-lung bypass machine. David was hooked up with more tubes and wires that seemed to completely cover his little body. At this point we were told to wait and see what would happen. With God’s David Berube grace, prayer, and the miracles of modern medicine, David showed slight improvement, and did not require “ECMO”, but remained on a ventilator. Day by day his condition improved and on day 17 of life he was allowed to come home. The journey was not easy for him, but he continued to improve while meeting new obstacles. At the age of 6 months, David began therapy at the Brighton School in San Antonio. He received therapy to help core development and motor skills. He began walking with a walker at 3 years of age, and at this point, he started public school. He was enrolled in the Pre-school Program for Children with Disabilities at Brauchle Elementary where he attended for 7 years. Within 6 months of starting school and seeing all the other kids walking and running, David was able to begin walking on his own. Soon afterward, David was participating in Special Olympic events to include the 50 meter dash and standing long jump. What an accomplishment for a child that required a walker! When David was 7 years old he became very sick. Nothing he ate agreed with him, and he was losing weight. After several weeks of tests and many trips to the doctor, David was diagnosed with Celiac Disease. After the diagnosis was made, we learned that David needed to be on a gluten free diet. Within 6 months of putting him on this special diet, his recovery was no less than remarkable. His health improved rapidly and again he was a happy and active child. David meticulously sticks to his gluten free diet and is able to discern which foods are “safe”. Thanks to a very special instructional assistant, David learned all the letter sounds and now reads quite well. Thank God for those “special” teachers. In 2006 David attended Sandra Day O’Connor High School and was in several inclusion classes: keyboarding, nutrition, horticulture, and spanish. David did well and
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made many friends, as one of his God-given talents is his social abilities. In 2008 O’Connor began their first AFJROTC program. We approached the instructor about David participating in JROTC; he enthusiastically said “SURE!” David did well in the program, thoroughly enjoyed the military background, and was very proud to wear his uniform. David attained the rank of Major and was appointed as the Unit Chaplain; he was an inspiration to his underclassmen. He would stand at the podium on stage in front of a packed auditorium during change of command ceremonies and at the military ball to recite commencement prayers. Many times his fellow cadets would congratulate him on his performance telling him that they could not have done it. He was also a member of the Color Guard where on several occasions he was asked to carry the American flag at football games and other functions requiring presentation of Colors. David continued to participate in Special Olympics during his high school years. He is proud of his medals and awards; not bad for a guy that could not walk when he started school. In 2010 David graduated from high school and moved on to the Nellie Reddix Center where he continued to learn life skills and trade skills to include culinary arts and working at local job sites. This was a great experience for him as he developed lifelong skills. David wants to be independent, find a job, and someday live on his own. In March 2012, his training began in Mixed Martial Arts. David has been training 2 hours a day 4 times per week in Brazilian Ju Jitsu. He simply enjoys it because it helps to keep him fit. The training has also helped his balance, concentration, and ability to focus. He has competed in tournaments and done well on his level. David is currently a yellow belt and was recently promoted to assistant instructor for the Special Needs Program at the Dominion Martial Arts Academy in Helotes where David trains. His social skills are truly one of his greatest assets. David enjoys people, and people enjoy David. His favorite pastimes are music, dancing, and eating. He spends hours on his computer arranging music on his iPod and recording CDs. He truly enjoys grooming himself and takes pride in his appearance. He is very meticulous about his clothes, jewelry, and all of his possessions. David is very helpful around the house. He maintains his own clothes, cleans house, does dishes, empties trash, and feeds his dogs. David has a younger brother who is very proud of him and loves to tell others of his brother's accomplishments. David has been a true gift to our family. He has a gift of communicating with the elderly, those in need, and all kinds of pets. He is patient and thoughtful beyond his years. We cannot imagine having to live a day without David, as he has been a blessing to us and to all that meet him.
www.dsastx.org
Gabby's Moment Educational I just read one of the greatest quotes I have ever seen. “It's OK to grieve the child that you thought you were going to have, because in grieving that, it helps you to celebrate the one that you've been given.” I had that chance recently to celebrate one of the greatest moments in my daughter Gabriela’s life. On February 16, 2013, Gabriela was crowned the 2013 Fiesta Especial Page. As I watched my baby girl walk out on stage by herself and receive her sash and crown, I thought to myself, “There isn’t anything she can’t accomplish.” It has truly been an adventure serving on the 2013 Royal Court. We received invites to all types of events and were able to meet Royals for every court. Our personal favorites were King Rey Feo and King Antonio. Along with meeting Royals, Gabriela was able to collect Fiesta Medals to add to her scrapbook to commemorate her year on the 2013 Royal Court. Below are a few special moments we would like to share from the different events we attended.
9th ANNUAL TEXAS PARENT TO PARENT CONFERENCE http://txp2p.org/training/conference.html Friday & Saturday, July 26-27 Embassy Suites, Spa & Conference Center 1001 McCarty Lane San Marcos, Texas THE ARC OF SAN ANTONIO Intervention Strategies for Aggressive Children Saturday, July 27 from 9:00 a.m. - 12 noon Presented By: Dr. Steven Gonzalez, Clinical Director of South Texas Behavioral Institute Location: The Arc of San Antonio, Pam Stephens Center, 6530 Wurzbach Road, 78240 RSVP by July 24th. Registration is required as seating is limited. To register contact Heather Long, LBSW at hlong@arc-sa.org or by phone (210) 490-4300 ext. 113. Workshop objectives include: • Gaining an insight to the temperament of a child • Learning triggers that cause aggression • Avoiding negative/punishment contingencies • Rewarding positive behavior • Self-reflection of our behavior during interventions Child Care Option Available: The Respite Care of San Antonio offers Family Day Out at the Pam Stephens Center on Saturdays from 9:00 a.m. - 4:00 p.m. You MUST register with Respite to utilize this service. Contact Kathy Ramirez at (210) 737-1212 to apply. 22nd ANNUAL TEXAS AUTISM CONFERENCE http://txautism.esc2.net/default.htm Thursday & Friday, October 17-18, 2013 American Bank Center 1901 N. Shoreline Blvd. Corpus Christi, TX 78401
E-Mail us your photos! Are you taking a trip, or have an adventure or milestone to share? Occasionally in this newsletter we have extra space and we would like to fill those spaces with your photos! Photos must be the original, hi-resolution file, and not sized down. Photos taken off the internet are not suitable for print. All photos submitted will be archived for possible future use and all photos will be considered. Email your photos to: info@dsastx.org
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Self-Advocate News Volunteer Highlight By Jessaca Bond Hi! My name is Jessaca Bond. I am a self-advocate on the Down Syndrome Association of South Texas Board of Directors. I have always had an interest in wanting to help other people like me. This article is my first attempt at sharing information that may be helpful or of interest to the Down syndrome community in general. I hope to contribute to each quarterly newsletter.
Paul “Trey” Edwards is currently volunteering with the Adult Continuing Education (ACE) program at the DSASTX. He tutors Phillip Montalvo 90 minutes weekly in reading and math. Reviewing his application and references, we quickly discovered what a busy young man Trey is. He currently attends UTSA where he has been president and national council board member of Alpha Chi (a top 10% honor society) and national council student representative for Region 1. If this were not enough, he has also worked as a paramedic for the last 5 years and is currently applying for Dental School, as well! Jessaca Bond
I have been a board member for the past three years and really enjoy it. I like volunteering, learning new things, and making a difference in my community. My hobbies are photography, reading, and listening to music. I would like to reach out to my peer group especially; if you have any comments or suggestions that you would like to share, please feel free to email me at caseybond@ earthlink.net. On June 8, 2013, my family and I drove from San Antonio to Rockport beach for Audrey’s Day at the Beach. This event is open to all families in the Down syndrome community. It is put on by Audrey's family to honor her memory, as she was with them only a short while. The drive was very long, but it was worth it! There were many activities: fishing, swimming, and kite flying to name a few. They also served a wonderful lunch of BBQ brisket, potato salad, beans, and cole slaw. If you want to go, you should make reservations for a hotel for the weekend because the activities start at 8:30 in the morning. Many families make a weekend adventure of it. If you have a young family with kids, I would recommend this to you!
Born in Bryan, Texas, Trey was involved in sports and volunteered for the Buddy Walk in College Station which led him to volunteer for the DSASTX Buddy Walk last year. When asked about his involvement with those with Down syndrome, Trey says that he feels blessed to be around such happy people. All of this led to his work with the ACE tutoring program, and we are very happy to have his enthusiasm as a volunteer. Trey quickly developed a great relationship with Phillip, and with his help, Phillip is now able to read his first book through a special reading program designed for non-readers. He is also progressing in math skills and is learning to use the calculator. Trey thoroughly enjoys the tutoring experience and would like to add another student once his schedule settles down. In addition to tutoring duties, he stays to clean the tutoring area; he definitely goes beyond the call of duty! It’s a pleasure to have such an exceptional tutor volunteer as part of the ACE program! We are always actively searching for volunteers for the ACE tutoring program. If you would like to volunteer as a tutor for one of our adults with Down syndrome, we welcome you! Please contact Oralia Lara at olara@dsastx.org for more information.
On June 11, 2013 I attended a legislative breakfast. The host was the San Antonio Nonprofit Council. The guest speaker was Representative Joaquin Castro. He talked about what is going on in Washington, D.C. He also talked about a bill called the A.B.L.E. Act that could help people with disabilities be able to save more money for themselves for their future. Congressman Castro is co-sponsoring this legislation. If you would like to learn more about this, you could contact Congressman Castro or your representative. I really enjoy doing this. I hope it’s informative and enjoyable to read.
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Phillip Montalvo and Paul "Trey" Edwards
www.dsastx.org
2014 Inaugural Gala March 20, 2014
In honor of the Gordon Hartman Family Foundation Gala Chairs - Maria & Pete Hey
The Fiesta Especial® Royal Court gives children and adults with disabilities the opportunity to be in a highly visible position among other community leaders during the Fiesta® celebration. The court spends about two months visiting local schools, hospitals, senior care facilities and a number of events in support of other Fiesta® programs. Following their reign with Fiesta Especial®, court members are invited to participate in 4 additional community service projects throughout the year. Their role as court members is to represent individuals with disabilities in the public eye, representing one segment of the wonderful and diverse tapestry of individuals that make up the culture, heritage and community of San Antonio. For more information on how to get involved with Fiesta Especial® or the Royal Court, you can visit www.FiestaEspecial. com.
The Fiesta Especial® Royal Court is an opportunity to help create visibility for the leadership and contributions that individuals with disabilities make in our community each and every day. Now in its third year of operation, the Fiesta Especial® Royal Court experience continues to develop and blossom. In 2013, the Fiesta Especial® Royal Court members raised over $16,600 which went to programs and services for children and adults with disabilities, as well as to help underwrite the cost of local school children from special education programs to attend the Fiesta Especial® event for free as part of the City of San Antonio’s Fiesta® celebrations in April.
Serving together, Melanie R. Cawthon, MS Director of Marketing & Resource Development, RMI PMO Commissioner, Fiesta Especial® Co-Founder, AccessAbility Fest and disABILITYsa.org Reaching Maximum Independence, Inc. 6336 Montgomery Dr., San Antonio, TX 78239 (210) 656-6674 ext. 101 Cell: (210) 508-8429 • Fax: (210) 656-0199 www.rmihomes.org / www.AccessAbilityFest.com
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Outreach
We would like to welcome our newest families to the Down Syndrome Association family! If you know someone who has a child or family member with Down syndrome, please let them know about the DSASTX and the services we provide. We’d be happy to reach out to help in any way possible! Dan Benjamin, Parent of Raeanna Benjamin Maria Anchondo, Parent of Amanda Anchondo John Hanzalik, Parent of Natalie Hanzalik Stella Sanchez, Parent of Frederick Sanchez Gina and Michael Wilburn, Parents of Noah G. Wilburn Jose Luis and Roselia Villafuente, Parents of Angel Villafuente Liz Garcia, Parent of Emma Garcia Robert Dorn, Parent of Alice Dorn Amy Cerda, Parent of Ella Cerda Karl and Andrea Pichler, Parents of Sara Pichler Christine and Oscar Velasquez, Parents of Lucas Velasquez Nicole and Phil Perez, Parents of Gracelyn Perez Martha and Gustavo Castro, Parents of Emilio A. Castro La Marlo Kwaja, Parent of Michael Kwaja Hilda Gonzales, Parent of Javier Gonzales Raquel Canizales, Parent of Vanessa Canizales Leslie Cortez, Parent of Julie Escobedo Erica Grijalva, Parent of Adrian Diaz Kandy Amaro, Parent of Kaitlynn Maldonado Magda Branecka and Kenny Rafati, Parents of Daniel Rafati Stephanie and Daniel Battle, Parents of Lisa Martinez and Ysidro Martinez Nadine and Michael Sheehin, Parents of Patrick Sheehin Mary Tort and Luis Flores, Parents of Brianna Flores Iris Otero, Parent of Rodrigo Alarcon Debbie Lumbert, Sibling of Darrell Lumbert Christina Cantu, Aunt of Marcarius Cantu Ruby Sanchez, Sibling of Crystal Sanchez Alfonso Morales and Dantihza Aravjo, Parents of Yamileth Morales La Salle and Nikole Vaughn, Parents of La Salle Vaughn Jr. Leslie Cortez, Parent of Julie Escobedo Amos and Jenny Salas, Parents of Tevin Salas
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Contributions
We sincerely appreciate the following people who have so generously donated to the Down Syndrome Association. Your contributions help us offer a variety of programs for the members of our organization. A.P. Gentry Aimee Sinclair Alamo Title Company Aldo Piscina Andrea Palen Anthony Stevens AT&T United Way Employee Giving Campaign Barbara Spinner Belarmino A. Castellanos Bill Cade Broadway National Bank Caroline Szepessy Carolyn Richards Catherine Lockard Center for Maternal-Fetal Care Christine Velasquez Christopher Warczak Cleone-Dee Thompson-Moss Cliff Lowe Conrad Housler Curtis Lehew Darlene Keelor David Kipp David Lott David Stephenson Dean Craig Debbie Albright Deerfield Animal Hospital Denis Dempsey Derek Tschirhart Dina Coover Dorothy Johnson Douglas Boyer Ellen Gabrielson Elva Herrmann-David Excel Title Group Frost Bank Gary Leach George Massey Gregg Greebon HDR, Inc. HEB Charitable Trust Institute for Women's Health J Steven Lopez James Nitschke Jane Rasmussen Janice Troy Jeff Drew Jefferson Bank Joe Moore Jordan Samfield
www.dsastx.org Juan Ludwig Kathy A. Carrizales Keller Williams Legacy Kelly Toepperwein Kurt Stahl Lance Parker Laura Gruner Lee Willis Lisa Drozdick Lizette Feld Lorese Carper Lydia Beach Maria Hey Maria Weaver Mary Jane Hardy Mary Mahon McCombs Foundation Michelle Pettit Mr. W Fireworks Nancy Palo Nancy Townsend Nathan Roppolo Nnovative Marketing Noe de la Garza North Park Lexus P.E.C. United Charities, Inc. Paracutin Civic and Educational Foundation, Inc. Paul Davila Philip Zaccaria PNP Petroleum 1, LP Polly Toepperwein Rachel Langas Raul Santiago Rick Villarreal Rick Wyckoff River City Community Church Rocky Garcia Ruby Tuesday Sharon R. Conable Sherrie Shirky Stacey Bendele Stephen Ramseur Susan Drolet Taylor L. Conable Terri Mauldin The Allstate Foundation The Gordon Hartman Family Foundation The Harvey E. Najim Family Foundation Therapy2000, Inc. Tony and Geraldine Aine Toyota Motor Engineering & Manufacturing North America Trilogy Pizza TRUiST United Health Group - Employee Giving Campaign Valero Energy Foundation Victoria Morency Virgina Egal Wendy Whitnah
Who We Are mission statement The DSASTX's mission is to provide support and services to children and adults with Down syndrome and their families.
EXECUTIVE DIRECTOR Terri Mauldin 210-349-4375 • tmauldin@dsastx.org
community outreach coordinator Kelly Toepperwein 210-349-4372 • ktoepperwein@dsastx.org
Special Events Coordinator Kerin Croft 210-349-4372 • kcroft@dsastx.org
Bookkeeper Cynthia Smith 210-349-4372 • csmith@dsastx.org
adult continuing education director Oralia Lara 210-349-4372 • olara@dsastx.org
BOARD OF DIRECTORS Chairperson – Edward Leos Vice Chairperson – Michelle Pettit Secretary – Vacant Treasurer/Finance – Eric Swellander Member at Large – Debbie Albright Member at Large – Jessaca Bond Member at Large – Barbara Samfield Member at Large – Tim McIntosh Member at Large – Christy Anderson Member at Large – Noe de la Garza Member at Large – Lamont Jefferson Member at Large – Stephanie Anderson Member at Large – Dr. Scott McLean Member at Large – Lisa Drozdick
The DSA is on Facebook!
Become our Friend at http://www.facebook.com/pages/ Down-Syndrome-Association-of-SouthTexas/145682488784297
DSA
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Calendar of Events july 2 San Antonio Northside PIM: Solutions to Picky Eating, Coker UMC, 231 E. North Loop Rd. Gibbs 1108, 6 - 8 p.m. 9 Boerne PIM: Kinetic Kids Programming, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6 - 8 p.m. 16 San Antonio Southside PIM: Speech & Feeding Therapies, De Paul Family Center, 7607 Somerset Road, 6 - 7:30 p.m. 18 New Braunfels PIM: Summertime – Behavior Strategies & Social Aptitude, Gruene UMC, 2629 E. Common St., 6 - 7:30 p.m. 20 D.A.D.S.: Father/Child Day at Morgan’s Wonderland, 5223 David Edwards Dr., 9:30 a.m. 27 DSA Family Swim Day: ARC Pool at the Pam Stephens Center, 6530 Wurzbach, 10 a.m. - 1 p.m. august 6 San Antonio Northside PIM: Buddy Walk Talk, Coker UMC, 231 E. North Loop Rd. Gibbs 1108, 6 - 8 p.m. 13 Boerne PIM: Buddy Walk Talk, St. Peter the Apostle Catholic Church, 202 W. Kronkosky St., Boerne, Room #148 FLC, 6 - 8 p.m.
august 15 New Braunfels PIM: Buddy Walk Talk, Gruene UMC, 2629 E. Common St., 6 - 7:30 p.m. 20 San Antonio Southside PIM: Buddy Walk Talk, De Paul Family Center, 7607 Somerset Road, 6 - 7:30 p.m. 24 DSA Family Day at Splashtown: 3600 IH-35 North, Check-in at 10:30 a.m. september 28 Buddy Walk – Heroes Stadium, 4799 Thousand Oaks Drive october 1 San Antonio Northside PIM: Bullying, Coker UMC, 231 E. North Loop Rd. Gibbs 1108, 6-8 p.m. 15 San Antonio Southside PIM: HCS/Medicaid Waiver Programs, De Paul Family Center, 7607 Somerset Road, 6 - 7:30 p.m. 17 New Braunfels PIM: Music Therapy and Down syndrome, Gruene UMC, 2629 E. Common St., 6 - 7:30 p.m.
RETURN SERVICE REQUESTED Down Syndrome Association of South Texas 2800 NW Loop 410 San Antonio, TX 78230 Nonprofit Org U.S. Postage paid San Antonio, TX Permit No 1126