Source Winter 2025

SOURCE

FOR KIDS, TEENS

NDIS

FUNDING PERIODS: what’s happening?

PRODUCTS +

A guide to NDIS meal prep & delivery

• Walkers

• Safety

• Indoor play

KEEPING OUR KIDS SAFE IN THE COMMUNITY

Natural distasters & disability

Seats To Suit Busy Little Lives

From playtime to mealtime, and more

Winter is the perfect time to slow down and savour the little things – shared meals, storytime, messy play. With the right seat, these moments can be more accessible, more comfortable, and so much more enjoyable.

Activity chairs offer a stable and supportive base for sitting at the table, playing on the floor, or participating in learning and therapy.

Catering from mild to complex postural needs, they give families the flexibility to support their child in whatever activity the day brings.

Ready to explore the options that suit your daily routines? Discover our seating solutions today.

HELLO

Hello and welcome to our Winter 2025 issue of Source Magazine!

As the weather cools and we find ourselves spending a bit more time indoors, it felt like the perfect time to explore a theme that sits at the heart of every parent and carer’s world: safety. For families of kids, teens and young adults with disability, safety isn’t just about preventing bumps and bruises. It’s about building routines, adapting environments, preparing for the unexpected, and creating a world where our kids can thrive without fear, and safely.

So, in this issue, we’re exploring safety from all angles. We take a closer look at strategies for managing wandering behaviours, share road safety tips for travel and community outings, and explore how to help young people navigate the digital world with greater confidence and protection. There’s also guidance for families facing the threat of natural disasters - a topic that’s increasingly relevant in our changing climate.

We’re proud to share the powerful story of Kathrine Peereboom and her advocacy through Spectrum Support, as she works to make the world safer and more inclusive for autistic individuals and their families.

Of course, we’ve included much more. You’ll find practical insights on topics like dysarthria, drooling, co-regulation, and orthotics, plus a roundup of indoor play products for cooler days. We also take a closer look at how drumming can support sensory processing and integration.

I hope this issue brings you practical support, a few fresh ideas, and a gentle reminder that you’re not alone. We’re here beside you - learning, sharing, and growing together.

Much love,

CONTENT EDITOR: Nicole Davis

HEAD OF SALES & BUSINESS DEVELOPMENT:

Matthew Rainsford, matthew@sourcekids.com.au 0409 418 362

HEAD OF EVENTS: Naomi Sirianni, naomi@sourcekids.com.au 0447 755 043

GRAPHIC DESIGN: Emma Henderson

PUBLISHER/CEO: Emma Price

CRASH CLOUD

Crash Cloud is a must-have for every kid’s playtimeperfect for chilling, jumping, tumbling, and crashing. It’s the ideal landing pad for all their wild adventures! Flip it on its side into the Cocoon position, and it becomes the comfiest, most supportive seat, cradling the body in therapeutic comfort. Filled with unique Therapeutic Sensory Foam, it provides deep pressure input to soothe the nervous system and support motor skill development. Perfect for resting, reading, or unwinding, Crash Cloud creates a cosy retreat in any bedroom, playroom, office, or living room. comfortcloud.com.au @comfortcloud.com.au

FUN PHIX WHEELIES SET

Build, race, and explore with the 250 piece Funphix Wheelies Set. Thanks to the 6 wheels, this creative construction kit keeps kids entertained for hours as they design, build and drive buggies, planes, rocket ships and more! This next level educational STEM toy also boosts creativity, hand-eye coordination, fine motor skills and problem-solving, all while having fun. funphix.com.au | @funphixaustralia 250 PIECE SET

MYDRIVESCHOOL

Help your young person get a feel for the road from the comfort and safety of their own home. myDRIVESCHOOL is a simulation game to teach teenagers how to drive online, with graduated pass/fail learning modules. It’s fun, safe & it works! myDRIVESCHOOL programs can be delivered in full simulators, with multi-screens, on motion platforms, in Virtual Reality or as simply as on a PC/laptop with portable force feedback steering wheel and pedal set. Goals allowing, it can be used by NDIS participants as an assistive technology for ‘specialised driver training’, ‘capacity building’ or ‘personal care & safety’. mydriveschool.com

BACK ZIP WONSIE

These zip back jumpsuits are designed to help provide dignity by making it difficult for the wearer to remove on their own. The design offers stronger protection against unwanted undressing and access to nappies and other incontinence products. The range features a tab top and a strong zip which allows for easy access for carers to undress when required, but the zip is located on the side of the back to prevent rubbing on the spine. wonsie.com.au

LAP WEIGHTED BLANKET

The Lap Weighted Blanket is perfect for kids to use on the couch or for travel in the car. Weighing 2.3kgs and covering 91cm x 122cm, the high quality stitching and quilting ensures that no matter how your kids use their weighted blanket, the weight remains evenly distributed. All Weighted Blankets Australia’s blankets are made from a super soft cotton and polyester blend that feels lush and cosy against your skin. weightedblankets.au | @weightedblankets.australia

SOURCE MOBILITY & EQUIPMENT EGUIDE

COMFORT ME RAFFY

Raffy the soothing, talking, plush companion is a beautifully made, safety-certified emotional support toy designed to help kids manage anxiety. With six touch points that activate a soothing Raffy voice and two relaxing soundtracks, this wonderfully soft plush toy is designed to bring comfort and inspire resilience. kittyandraffy.com @kitty_and_raffy

Did you know that we have an amazing FREE resource to help you if you’re looking to acquire or replace valuable assistive technology products for your child or young adult? We’ve covered manual and powered wheelchairs, pushchairs and strollers, bikes and trikes, standers, walkers, seating and positioning, bathroom aids and beds and sleep systems. sourcekids.com.au/atguide

TIME TIMER BRAILLE

The Time Timer Braille 8” with Black Disk is built with a high contrast disk and braille numbers. The open-face design allows for a tactile experience to aid in setting the timer while also encouraging Braille education. assistivetech.com.au

SUPPORT YOUR SELF

Providing community and connection for disability support workers. The intention of Support Your Self is to assist in the prevention of ‘burn out’ within the support worker community. This is done by co-creating safe, positive environments where self-care tools and strategies are shared and taught. supportyourself.com.au @supportyour.self

Kathrine Peereboom is a powerhouse, rewriting the rules for safety, support, and disability advocacy not just for her three sons, but for all Australians –and soon, her work is going worldwide.

Bridging the safety gap

WWhen Kathrine Peereboom’s sons were diagnosed with profound intellectual and developmental disabilities, she was launched into a world most parents don’t expect to navigate – one filled with long waitlists, delayed milestones, and concern for her children’s safety. But instead of letting fear consume her, she channelled it into something powerful: A campaign of action for understanding, empathy, and change.

Today, she is the founder of Spectrum Support, an organisation training police officers and other first responders across Australia to better understand how to interact with people on the autism spectrum. She’s also the creator of iSafe Connect, a voluntary tech platform that empowers people with disabilities – or their caregivers – to share key information with emergency services. Both initiatives are rooted in Kathrine’s firsthand experience as a mother, and both aim to make one thing easier: Living safely and with dignity in a world that often doesn’t understand.

IN THE DEEP END OF PARENTING

Kathrine’s three sons – Oliver (11), Joshua (10), and Tyler (9) – each have their own complex needs, including autism, ARFID, ADHD, and severe intellectual disabilities, among other diagnoses. But their unique personalities shine through – for example, Tyler, the youngest, is talkative, sharp, and “a 29-year-old trapped in a nine-year-old’s body,” Kathrine jokes. The Peereboom household is full of love, laughter, and a lot of Wiggles music.

But behind the warmth is a carefully managed environment that reflects the real challenges of raising children with profound disabilities. Safety is a constant concern, particularly because one of Kathrine’s sons has a habit of eloping if a door is left unlatched, even briefly.

“We’ve got the house locked down,” Kathrine says. “But once, when he was younger, he got out at five in the morning, and was lost for an hour-and-a-half. I went running through the neighbourhood, barefoot in my nightie, screaming for him.

“People saw him walking along the streets – non-verbal, alone in just a nappy – and no one stopped until two nurses who were on their way to work saw him and pulled their car over, then kept him safe until the police got there.”

That experience – terrifying and

unforgettable – sparked Kathrine’s research into how first responders interact with autistic individuals. “When I started understanding what my children’s lives were going to be like, honestly, the only thing that I was really concerned about was their safety,” Kathrine says.

“I knew in the core of my being that they were going to be loved, they were going to be spoiled, they were going to be given every opportunity, because that’s who me and my husband are, that’s who our family are. What worried me was what happens when we’re not there to protect them? That’s what kept me up at night, what drove me to start researching.”

BUILDING SPECTRUM SUPPORT

What Kathrine found when she went looking was, to be frank, nothing. No programs, no training, no systems to support safer, more informed interactions between police and neurodivergent people. So she created one herself.

Spectrum Support began with autism training for law enforcement, but has since expanded to include sessions on online safety, communication strategies, de-escalation techniques, and traumainformed response. Kathrine’s sessions

are always full. Police ask questions. They stay after class. They care.

“I’ve had detectives with autistic kids themselves tell me they’re personally afraid to call for backup during a meltdown at home because other police officers might not understand what autism looks like,” she says. “They’re dealing with the same things we are. Complex jobs, complex home lives.”

Kathrine is fiercely protective of both the disability community and first responders. “I serve both,” she says. “If we don’t talk to each other, people get hurt. That’s the reality.”

ENTER ISAFE CONNECT

Kathrine’s latest initiative, iSafe Connect, is an evolution of that mission. The platform allows individuals or caregivers to voluntarily disclose key information

like diagnoses, de-escalation strategies, and medication needs to first responders via app-based wearable tech and secure Bluetooth beacons.

“It’s about choice,” Kathrine explains. “Not surveillance. Choice is what creates safety.”

Users control what information is shared, who sees it, and when. The system is being trialled by Queensland Police officers, and it’s already creating buzz: It allows geofencing (ideal for known runners), SOS alerts, emergency contact info, and real-time updates.

she’s focussed on getting it right at home.

“One of my sons has severe anxiety, and when he’s anxious, he goes into a fight or flight response,” she explains. “His triggers can change every few weeks. And it’s my role to pay attention to his triggers, to change his de-escalation strategies, and to communicate these changes to others in his life.

“It’s about choice,” Kathrine explains. “Not surveillance.

Choice is what creates safety.”

More importantly, it takes the burden of communication off families in those high-stress moments of crisis. “It means that when you’re panicked, in a meltdown, or can’t speak, the right information is already there,” she says.

Kathrine hopes to expand iSafe Connect nationally and then globally. But for now,

“I’m trying to prepare my children for the world they live in. It’s important that we learn who they are in order to do that. We need to understand our loved ones’ capacity, so we can follow through with information and action that will help them. This is where iSafe Connect can bridge the gap.”

THE PERSONAL COST OF ADVOCACY

Behind the scenes of Kathrine’s inspiring professional life is a very human story of burnout, grief, and rebuilding.

Kathrine is open about the toll this journey has taken on her mental health. She’s lost friendships, family connections, and many of the things she once thought would be part of motherhood. “I thought I’d be taking the kids to soccer and having big family holidays,” Kathrine says. “That didn’t happen.”

For a long time, she felt like she had to be everything to everyone. It nearly broke her. But over time, she began creating small rituals to support her own wellbeing.

“I take mini staycations now – just two nights, somewhere cheap and quiet,” Kathrine says. “It took me a while to even learn how to relax again. But I’ve learned to notice the signs now, when I’m starting to feel overwhelmed. And I plan these time-outs- scheduled time away from everything, which I can look forward to and which keeps me going when things are difficult.”

show up. And that matters. I’m proud of that.”

RESILIENCE WITH A DOSE OF REALISM

Kathrine’s story isn’t one of easy triumph. She rejects toxic positivity and the idea that disability is always a gift. “I don’t say disability is a superpower,” she says. “It’s complicated. It’s hard. But It’s our children’s lives, and we need to prepare them for the world.”

Hope with instructions. Not a promise that things will get easier, but a roadmap for navigating when they don’t.

She’s also frank about the emotional rollercoaster that parents ride, especially when support is scarce, and the system is stretched. “You’re allowed to feel emotional. You’re allowed to have days in your pyjamas. Just don’t stay there forever.”

‘bible’ – a folder or document with their info for support workers. Make it easy for others to help you.”

Kathrine shares that some of her children’s support workers now come to her with suggestions to update the “bible” – a profile of each of her children, talking about who they are, what their foods are, their toileting or nappy routines, medications, and also the things they’re working on, the things that will trigger them, and the cool things they love to do. “Our caregivers are very observant and know my boys well,” she explains. “I find that they’re even more willing to learn about my kids when they can take a look at this little book that shows they’re real people, not just diagnoses.”

Music is also her outlet. A singer and dancer, Kathrine regularly spends time at the inclusive dance studio she founded for children with disabilities. “Even if I don’t choreograph anything or don’t feel inspired because it’s been a hard day, I still

Over the years, she’s rebuilt her social circle. “Now I’ve got people in my life who just say, ‘Let’s go for a walk’ or ‘Tell me what’s going on.’ I don’t need them to fix it. I just need them to get it.”

Her advice for other parents is equally grounded. “You’ve got to learn your child. Their triggers, their de-escalation strategies, what works for them. And then teach it to everyone else. Create a little

That document, like everything Kathrine creates, is about preparedness. About reducing the emotional labour. About making life easier – for parents, carers, and kids.

LIGHTING THE WAY

Kathrine Peereboom isn’t trying to be inspirational. She’s trying to be useful. Her work is practical, scalable, and rooted in lived experience. Her advocacy is shaped not by theory but by the day-to-day chaos of real family life.

What she offers is something rarer than inspiration: Hope with instructions. Not a promise that things will get easier, but a roadmap for navigating when they don’t. “What I’ve learned, especially in the last few years, is that I have to make sure that my cup is full,” she says. “Because if I’m happy, if I’m thriving, then it filters down to my kids, to my family.”

It’s not always pretty. It’s not always perfect. But it’s powerful. And it’s making a difference.

SUPPORT STRATEGIES FOR SAFETY AND WELLBEING WANDERING and Autism

If you’ve ever felt that heart-sinking moment when someone you love wanders off, you’re not alone. Many autistic individuals and their families experience this, and while it can be really distressing, we’re here to share some friendly, practical tips to help keep everyone safe.

UNDERSTANDING WANDERING

Both children and adults on the autism spectrum might wander for different reasons. Sometimes it’s because they’re running away from something overwhelming, other times they’re drawn to something interesting - or they might

simply get a bit disoriented. This can happen at home, at school, or even in busy places like shopping centres or on holidays. Often, the person may not even realise what’s happening. Recognising when wandering occurs is important because it can expose someone to busy roads, water hazards, or other unsafe situations.

WHY DO AUTISTIC PEOPLE WANDER?

There isn’t one simple answer. Every person is unique, and the reasons for wandering can vary a lot. For some, especially those who are nonverbal or have other challenges, it might be hard to explain what they’re feeling, even when

using alternative communication tools. Even those with strong language skills can find it tough to share their emotions when things feel overwhelming. Here are a few common reasons:

Escaping Overwhelm: A noisy, crowded, or otherwise stressful situation might prompt someone to wander off in search of calm.

Chasing a Favourite Interest : Sometimes, if they spot a pool, beach, or another favourite spot, the temptation can be irresistible.

Curiosity and Exploration: Just like anyone else, many autistic individuals are curious about the world around them and might wander to explore something new. Understanding what’s behind the wandering is the first step in addressing it with empathy.

HOW CAN WE ADDRESS WANDERING?

There are plenty of ways to help reduce wandering and keep everyone safe. Here are some friendly strategies that you might find helpful:

Build a Local Support Network

Community Awareness: Let your neighbours, local shop owners, and community members know about the individual’s needs. A supportive community can help keep an eye out and give you a heads-up if they see your loved one wandering.

Emergency Services: It can also be helpful to chat with local police, fire, and ambulance services. Sharing a recent photo and a few details about triggers or communication styles can make a big difference if an emergency arises.

Modify Environments for

Safety

Home Safety: At home, ensure that doors, windows, and other exits are secure. Simple measures like locks or alarms help prevent accidental wandering.

Quiet Spaces: Create a safe, quiet spot where the individual can retreat if they feel overwhelmed by noise or sensory input.

Visual Aids: Tools like visual schedules or social stories can clearly show what’s safe and what isn’t, especially in places like around water or in busy public spaces.

Teach and Reinforce Safety Skills

Communication Tools: Consider using speech therapy or alternative communication methods - like picture cards or communication devices - to help the person let you know if they’re feeling uncomfortable.

Safety Education: Regular, friendly conversations about personal safety (like understanding stranger danger) can empower them to make safer choices.

Positive Reinforcement : Celebrate and reward safe choices, whether it’s staying close to a carer or sharing how they feel instead of wandering off.

Prepare for Unfamiliar Settings

Pre-Visits and Social Stories: When introducing someone to a new place - like a new school or community centre - try visiting a few times first. Social stories can also help them know what to expect.

Extra Supervision: In unfamiliar environments, having extra support from family, friends, or professional carers can really help.

Safety Plans: Work together with local authorities and community organisations to set up a safety plan. Simple emergency drills can help everyone feel more prepared if something unexpected happens.

Develop a Safety Plan

Wearable Identification: Bright, distinctive clothing and an ID tag with current contact details can be real lifesavers.

Emergency Preparedness: Keep a file with a recent photo, details about any triggers, and emergency contacts handy. It’s smart to share this information with local emergency services and your support network.

Community Involvement: Introducing the individual to local emergency service teams can help create familiarity and ease should an emergency occur.

Seek Professional Support

Sometimes wandering can be complex, and professional help can really make a difference:

Positive Behaviour Support (PBS): Working with psychologists or behavioural therapists experienced in PBS can help uncover the reasons behind wandering and teach alternative coping methods.

Tailored Interventions: Professionals can create personalised strategies - like setting up a “quiet corner” for sensory overload or finding new ways for the individual to express distress.

ADDITIONAL CONSIDERATIONS FOR AUTISTIC ADULTS

Wandering isn’t just a concern for children; autistic adults face similar risks. When planning for adults:

Adapting Support Plans: Tailor safety measures to respect their independence while keeping them safe.

Community Integration: Encourage engagement with local services and support networks that truly understand their needs.

Empowerment: Help them understand their own safety needs and include them as much as possible in planning.

Wandering can be challenging and sometimes dangerous, but with a compassionate, flexible approach, families and carers can really help reduce risks and boost safety. Remember, finding the right strategy might take some time and adjustment. Patience, persistence, and a strong support network are key.

For more information and practical advice, visit autismawareness.com.au and check out our Autism Safety Series, where parents share their personal experiences and tips that work for them. Together, we can build safer, more inclusive communities for everyone.

Empowering Families with Mobility and Independence

At Astris PME, we help families like Mary’s discover greater freedom with our innovative range of Assistive Technology equipment. Our tailored solutions are designed to support children and teens with diverse needs, empowering independence and making everyday life easier.

Partnering with therapists, we ensure the best outcomes for kids of all ages. With an extensive range of trial equipment, finding the perfect solution has never been simpler.

Enjoy free trials across NSW, ACT, VIC, QLD, and WA. Contact us today and take the first step toward greater mobility and independence!

Meet Mary, one of our inspiring clients, using the Rifton Activity Chair to support her daily routine—supplied by Astris PME.

NATURAL DISASTERS NATURAL DISASTERS

and what to do

How natural disasters affect children and teenagers with disability, autism or other additional needs

Natural disasters can be distressing, unpredictable, sudden, dangerous and frightening. You often have to act quickly when they happen. And they might mean that you and your child have to leave home or interact with a lot of unfamiliar people.

Natural disasters can be traumatic for all children and teenagers. They can be particularly challenging for children and teenagers with disability, autistic children and teenagers, and children and teenagers with other additional needs.

For example...

➜ Children and teenagers with intellectual disability or developmental delay might find it difficult to understand what’s happening in a natural disaster. They might not understand what to do, or they might have difficulty following instructions.

➜ Autistic children and teenagers might be sensitive to changes in their routine or environment, have strong sensory sensitivities to unexpected sounds or smells, have particular fears, or find unfamiliar social environments challenging.

➜ Children and teenagers who have a physical disability or need medical equipment or mobility aids might need help moving to a safe place, finding emergency power sources or getting access to medical treatment.

➜ Children and teenagers with mental health problems might find

that their symptoms get worse during an emergency and that they need specialised care.

Preparation for natural disasters is particularly important if your child has a disability, is autistic or has other additional needs. Preparation includes developing an action plan. It’s also important to organise information about your child, pack an emergency bag, and prepare your child for emergency situations.

DURING A NATURAL DISASTER OR WHEN YOU NEED TO EVACUATE: WHAT TO DO

Follow your action plan

Your action plan tells you what to do, when to do it, where to go and who to ask for help. Your action plan will help you respond quickly, stay calm and meet your child’s needs in this stressful situation.

Stay calm

You’re best able to help your child with their emotions when you’re calm yourself. Staying calm also helps you think clearly and make decisions. And when you’re calm, you’re showing your child that stress is normal in these situations, but you can manage it.

Explain what’s happening

If there’s time, it’s good to explain the natural disaster in a way your child can

we might need to leave our house and go to Grandpa’s farm’.

Your child might have questions about what you’ve told them or what they’ve seen or heard in media coverage of the natural disaster. If you can, take time to answer the questions, or let your child know that you’ll answer them when you’re all safe.

Your child will need reassurance, so remind them that you’ll follow your family’s natural disaster plan and keep them safe. For example, ‘We have a plan to keep everyone safe. We know what to do’.

Give clear instructions

Your child needs instructions in a clear and direct way that works for them. For example, you could use a visual schedule if you have one, or you could give instructions one step at a time.

If you have time, check that your child understands what they need to do by getting them to say the instructions back to you.

Be prepared to go over the instructions several times.

Things to tell emergency support workers

When you arrive at the emergency shelter or evacuation centre, it’s essential to explain your child’s needs. This will help emergency support workers look after you and your child. For example:

• ‘My child needs access to power for their assistive device.’

• ‘My child’s medicine needs to be refrigerated.’

• ‘My autistic child is easily overwhelmed and needs a quiet space to calm down.’

If you need help later too, it’s OK to ask.

Things to ask

You’ll probably have some questions about how to meet your child’s needs at the shelter. For example:

• ‘Are there accessible toilets and where are they?’

• ‘Is there someone who can watch my child

Helping your child feel safe

When you’re confident your child is physically comfortable, the most important thing is to help your child feel safe, calm and in control:

• Keep nap times, mealtimes and medicine schedules as regular as possible.

• Make sure your child can have their comfort items, fidgets or special interest items, or find new ones if you need to.

• Encourage your child to use headphones or earplugs and sunglasses if they find the shelter environment too noisy or visually stimulating.

• Try calming exercises with your child – for example, grounding, belly breathing or shake it out.

• Do activities to help your child cope with the environment at the emergency shelter – for example, making a safe space or moving with the room.

• Encourage your child to choose from these activity guides for children with diverse abilities raisingchildren.net.au/ guides/activity-guides/children-withdiverse-abilities. These guides have ideas for play and wellbeing. Your child can do activities on their own, with you or with other children.

• If your family has been separated during the evacuation or your child is concerned about their friends or other family members, explain the situation to your child. If possible, reassure them that all family members are safe.

This article was originally published on the Raising Children Network website and has been republished with permission. Raising Children Network provides free, reliable, up-to-date and independent information to help your family grow and thrive together. Designed for busy families and full of practical tips, they have the answers to hundreds of parenting questions, where and when you need them. Raising Children Network is there for you, every step of your parenting journey. Learn more at raisingchildren.net.au

Ask a PLAN MANAGER!

Assistance with Social and Community Participation

getting out in the community and making friends is an important part of life for every child. And, the NDIS Assistance with Social and Community Participation budget is designed to help.

But what activities and supports are covered and how does it all work? Experienced Leap in! plan manager, Tabitha answers some of your most frequently asked questions.

What is Assistance with Social and Community Participation?

Assistance with Social and Community Participation (officially called Assistance with Social, Economic and Community Participation) is one of the Core supports budgets. You can use this funding to improve your child’s ability to participate in community, social and recreational activities.

Can you provide some examples of activities covered?

Sure! There is a range of activities the NDIS may cover:

• Support to participate in recreational and sporting activities

• Group-based activities such as music lessons or coding classes

• Visiting the local library or attending an event

• Building skills to participate in social and community activities.

How do I know if I can use my child’s funds from this budget to pay for a support worker?

The NDIS looks at whether your child needs extra help compared to other children their age because of their disability.

As parents are generally expected to help their children get to and from activities, it’s unlikely transport will be funded. The NDIS also won’t usually fund support for activities where a parent or carer would typically stay and help.

What types of assistance can a support worker provide?

Assistance with Social and Community Participation can fund a support worker to provide communication support (including Auslan and interpreting) or assistance with completing activities. It can also cover personal supports such as helping your child use the bathroom or eat if more assistance is needed for such tasks due to a child’s disability.

Help! My child has run out of Assistance with Social and Community Participation funds but needs a support worker over the next few months.

The good news is that Assistance with Social and Community Participation is a Core support, so it’s flexible! That means you can also pay for a support worker with Assistance with Daily Life or Consumables funding.

What are some things you can’t pay for?

Generally, you can’t use NDIS funds to buy things everyone has to pay for including:

• Concert tickets

• Entry fees

• Class fees

• Uniforms

• Memberships

• Meals

• Coaching

• Class fees

• General equipment costs.

Leap in! is Australia’s leading NDIS plan manager. Want to know more about your child’s plan and how their budgets can be spent? Register here for a free session. You can also call us on 1300 05 78 78 or email crew@leapin.com.au to learn more.

ROAD SAFETY RULES!

Navigating road safety can be a challenge, especially for children and young people with disability who may need extra support to manage behaviours in the community or understand and follow safety rules. Here are some practical tips to help keep everyone safe while empowering your child or young person to build their understanding of road safety in a way that suits their needs.

UNDERSTANDING THE RISKS

Children are naturally curious, which makes it essential to set clear boundaries about where they can and cannot go - both at home and in public. For children with disability, who may process information differently or have limited awareness of danger, this becomes even more critical. Many accidents occur close to home, such as in driveways or quiet streets, so vigilance in these familiar spaces is vital.

CLEAR AND CONSISTENT COMMUNICATION

When teaching road safety, it’s important to keep messages simple, clear, and consistent. Visual aids like charts, social stories, apps, or video tutorials can be incredibly effective. Repetition is key and practice makes perfect!

Remember, children often mimic the behaviours they see. Be a role model by demonstrating good road safety habits yourself.

Here are some specific tips to support safety at home, in the car, and when out walking or wheeling.

AT HOME

• Never leave car keys where children can access them.

• Before reversing out of your driveway, walk around your car to check for children or obstacles - especially if your child uses mobility aids that may be less visible.

• Create a separate outdoor play area away from the driveway. Establish a clear rule that the driveway is not for playing.

IN THE CAR

Car safety is especially critical for children and young adults with disabilities, who may require additional support to stay secure during travel.

Appropriate restraints: Ensure your child uses an age - and abilityappropriate car seat, booster seat, or special-purpose harness. These devices can provide the necessary support for children with low muscle tone, mobility challenges, or behavioural needs.

Consult a qualified occupational therapist or equipment supplier for advice on selecting and fitting specialised equipment.

Be mindful of restrictive practices when using any equipment, ensuring it’s only used for safety and with the child’s comfort, dignity, and consent in mind wherever possible. Always check relevant laws and guidelines to ensure compliance.

Mobility and Accessibility for Children and Adults Ltd. (MACA) macahub.org is a great resource for checking the most up to date guidance on restrictive practices and their usage within motor vehicles.

Positioning: Encourage entering and exiting the car on the kerbside to avoid stepping into traffic.

Unloading safely: If you’re unloading items, wait to take your child out until you can give them your full attention. Similarly, if your child uses a wheelchair, ensure it is secure and the brakes are engaged before you step away.

Communication: Explain the importance of seatbelts and other restraints in a way your child can understand. Visual aids or stories can help reinforce why “clicking in” keeps everyone safe.

Routine: Establish a predictable car routine to reduce anxiety and support understanding. For example, your child might respond well to a checklist or a countdown system when getting into the car.

WALKING OR WHEELING ALONG THE ROAD

Road rules: Start with simple, age or developmental-level appropriate rules like holding hands, using crossings, and waiting for an adult. Adjust these as your child gains confidence and independence. The basics: Rehearse the STOP, LOOK, LISTEN, and THINK protocol regularly. Turn it into a fun, repeatable routine to help it become second nature.

Driveways: Teach children to treat every driveway as a road, stopping to check for cars before crossing.

Mobility equipment: If your child uses a scooter, bike, wheelchair, or other mobility aid, ensure it’s fitted with working brakes, and teach them how to stop quickly if needed. There are numerous adaptations that can be utilised on different pieces of equipment so work with your child’s OT and equipment provider to find a solution that maximises their safety.

Visibility: For children who walk or wheel independently, brightly coloured or reflective clothing can help them stay visible, especially in low-light conditions. Distraction: If your child is easily distracted crossing the road or has a tendency to run when you are out walking, distraction techniques can help redirect attention away from unsafe behaviours and towards safer alternatives. For example, you can engage your child in simple, interactive tasks such as counting cars of a specific colour, spotting road signs, or singing a song about crossing safely.

TAILORING FOR INDIVIDUAL NEEDS

Some children or young adults may take longer to learn these skills, so patience and understanding are essential. Look at how road safety and safe community access can be worked into your person’s NDIS goals if they have an NDIS plan, and work with an OT on strategies you can work on that best suits learning styles. Breaking tasks into manageable steps, practicing in quiet or controlled environments, and celebrating progress - no matter how small - can make learning road safety more achievable and less overwhelming.

Here’s to safe and happy travels for your family!

Continence Management

At Atlas McNeil Healthcare Community, we understand how incontinence can affect not just daily routines, but also a child’s emotional wellbeing and sense of independence. Whether you’re a parent or a carer, we know every child is unique – their age, personality, medical needs, and lifestyle all play a part in how you manage their care. That’s why we provide more than just medical supplies – we offer personalised support, safe and effective solutions, and expert guidance tailored to your child’s individual needs. Because when kids feel secure and supported, they can thrive – and so can you.

Your Child’s Safety, Comfort, and Confidence Come First

Scan the QR Code to explore the wide range of children’s incontinence products.

Navigating

THE DIGITAL WORLD

THE DIGITAL WORLD

Resources to help young people with disability explore the internet with awareness, confidence, and independence.

The internet is an incredible tool –it connects us with friends, helps us learn new things, and provides endless entertainment. But it also comes with risks, and young people with disability can be particularly vulnerable to online dangers like scams, cyberbullying, and inappropriate content.

Understanding how to stay safe online is just as important as learning how to navigate the real world, and thankfully, there are several resources out there to help young people with disability build their digital safety skills, set boundaries, and gain confidence in managing their online interactions. Whether it’s learning how to spot a scam, protect personal information, or handle unwanted messages, the right tools can make a huge difference. Here’s a roundup of some great resources and services to support online safety.

ONLINE SAFETY ACADEMY FROM ENDEAVOUR

This free resource from Endeavour Foundation is designed specifically for people with intellectual disability. Covering key topics like privacy, scams, and cyberbullying in an easy-tounderstand way, the program has been designed with accessibility in mind and

includes animation, video content and text to speech activities. The four modules are self-paced, so participants can learn at their own speed and build confidence in navigating the online world safely. It’s a great starting point for developing essential digital skills in simple, engaging way. endeavour.com.au/disability-services/ online-resources/online-safetyacademy

SECCA INTERNET SAFETY CARDS

SECCA exists to ‘enrich the lives of people with disabilities through education and therapeutic support, in relation to sexuality and relationships’. Among their suite of resources are six free, easy-tounderstand cards that cover important topics like privacy, online relationships, scams, and cyberbullying.

Designed to support different learning styles, they can be used as conversation starters or structured lessons to help people recognise risks and make safer choices online. The cards can be stuck around a screen or wall near the computer as a constant reminder, providing cues to support online safety, appropriate behaviours, and safe relationship development. secca.org.au/resources/ internet-safety-cards/

Interaction Services Online Safety Training

This online training educates young people with intellectual disability and their support networks to navigate online safety concerns and empowers them to have safe and positive experiences online. Developed in collaboration with Australia’s leading cyber safety experts, ySafe, the training is available on a custom-built learning platform that includes accessibility features such as AUSLAN interpretation, visual tools and audio media to support users with diverse learning needs. interactionservices.org/ online-safety

eSafety – Living with Disability

Another great page from the Australian Government's eSafety Commissioner is this useful starting point to access online safety advice, research, and resources such as easy read guides tailored for people with disability. It covers key topics like recognising online abuse, setting privacy controls, and safely using social media, with clear, accessible information for young people, parents, and support workers. For parents of younger children there’s the "Growing Up with Good Online Safety Habits" video section, which helps young people develop healthy digital habits from an early age. These short, engaging videos break down essential online safety skills in a way that’s easy to understand and apply in everyday life. esafety.gov.au/communities/ living-with-disability

LIFESTART WEBINAR

eSAFETY GUIDE –

eSAFETY

COMMISSIONER

As a parent or carer, it’s almost impossible to keep up with the endless stream of apps, games, and social media platforms that our teens and young people are using. That’s where the eSafety Guide from the eSafety Commissioner comes in. This regularly updated resource provides clear, easy-to-understand information on the latest platforms, including their safety features, privacy settings, and potential risks. It’s a go-to tool for parents, carers, and young people looking to navigate the digital world with confidence, making it easier to set boundaries and encourage safe online habits. esafety.gov.au/key-topics/ esafety-guide

GOOD THINGS

Good Things Australia is all about bridging the digital divide, helping people of all abilities build the skills and confidence to navigate the online world safely. They run programs and provide resources to support digital inclusion, including training for people with disability, older Australians, and those with limited digital experience. Their work focuses on making technology accessible and empowering individuals to use the internet for education, connection, and independence. Through their network of community partners, they’re helping more people get online and stay safe while doing it. goodthingsaustralia.org

The Lifestart Keeping Safe Online webinar focuses on helping parents and caregivers teach young people with disability how to navigate the online world safely. It covers practical strategies for setting boundaries, understanding privacy settings, and dealing with risks like cyberbullying. The session provides helpful tips and resources, ensuring families feel confident supporting their loved ones to use the internet in a safe and responsible way. You can access the webinar along with additional resources on their website. lifestart.org.au/keeping-safe-online

GROOMING OR UNWANTED CONTACT

While it’s natural to trust others, the internet connects us to many people, not all of whom have your child’s or young person’s best interests at heart. The eSafety Commissioner has excellent resources for parents on keeping your child safe from unwanted contact online. esafety.gov.au/parents/big-issues/ unwanted-contact

At Leap in!, we’re sharing real-life stories from our members about their disability and their experiences with the NDIS. These stories highlight different journeys, disability types and the ways members use their NDIS funding to support their goals.

Today, we’re sharing Lisa and her son Hugo’s* story. Lisa talks openly about Hugo’s diagnosis, their journey with the NDIS and how they use his funding to best support his needs and goals.

LIVING IT LIVING IT

Real-life stories from people on the NDIS, brought to you by Leap in!

LISA AND HUGO’S JOURNEY WITH THE NDIS

From the moment Hugo was born, mum Lisa knew he was a special little boy. But as he grew, Lisa noticed he was sensitive to loud noises, seemed easily agitated and had trouble settling at daycare.

People on the outside often misunderstood Hugo’s behaviour.

“Sometimes I felt disappointed by their judgment,” Lisa recalls. “They’d say he was naughty or needed more discipline, but they didn’t see the bigger picture.”

Lisa spent hours online looking at

conditions like autism, ADHD and Sensory Processing Disorder (SPD). “It was overwhelming,” she says. A local child nurse referred Hugo to a pediatrician, who diagnosed him with Fetal Alcohol Spectrum Disorder (FASD), ADHD and Global Developmental Delay. “There’s guilt as a parent because you see your child’s struggles,” Lisa explains.

Hugo received his first plan through the Early Childhood Approach and learning how to use NDIS funding became Lisa’s focus to help Hugo work toward his goals.

HUGO’S 12-MONTH NDIS PLAN

HUGO’S CURRENT NDIS GOALS INCLUDE

➜ To become more independent with his self-care skills

➜ Feed himself using cutlery and have a varied diet

➜ Extend on language and communication skills

➜ Be able to clearly communicate needs and wants verbally and to increase his receptive language skills

➜ Extend playing and learning skills

➜ Extend on his attention span and participate in activities for a longer duration of time

➜ Extend on physical development

➜ Improve awareness of depth perception and visual perception when exploring his environments

➜ Engage in parallel play regularly and participate in group activities.

How Hugo’s funding is used

Most of the funding covers weekly occupational therapy, speech therapy and physiotherapy. The OT helps Hugo with sensory sensitivities, speech therapy improves his communication and physiotherapy helps strengthen his muscles and calm his nervous system.

”Therapies all connect,” Lisa explains. “When Hugo feels settled physically, he can better focus on speech or OT activities. I didn’t realise how sensitive my child was to the environment until we started sensory therapies.” To make the most of their funding, Lisa takes therapy breaks during school holidays and uses therapy techniques at home, like trampoline time, animal walks and sensory play.

HOW HUGO'S FUNDING IS USED

Therapy type Frequency What's covered

Occupational therapy 1x per week

Speech therapy 1x per week

Physiotherapy 1x per week (moving to fortnightly to manage budget)

LIFE AT HOME AND SCHOOL

Lisa now works part-time to balance her job with caring for Hugo. He recently started prep at a mainstream school that offers an inclusion support program. “We were worried he would regress but he’s wanting to go, which is a massive change!” she says.

Still, Lisa notes that navigating the NDIS can be complex. She encourages other families to look for clear, simple information and offers some advice:

Lisa's notes

1. Prioritise your primary therapy. Focus first on the most important therapy for your child’s needs. Get onto waitlists as early as possible

2. Include travel and reports. Make sure you factor in travel and report writing time, not just therapy appointments, when budgeting your funding

3. Find the right provider. Choose therapists who genuinely understand and connect with your child. If it doesn’t feel right, trust yourself to move on

4. Advocate with confidence. Your child’s needs come first. Don’t be afraid to speak up and ask questions

5. Be patient and kind to yourself. Change happens over time. Remember you’re doing your best, and every little step forward is a win.

Travel, therapy appointments and report writing

Travel, therapy appointments and report writing

Travel, therapy appointments and report writing

Lisa calls the NDIS a “lifeline” for her family. “Without it, these therapies would be out of reach, so even though there’s a lot of information and changes out there, we are very grateful.”

*Only Lisa’s first name is used and her son’s name has been changed. Both Lisa and Hugo are Leap in! members and no photographs have been included to protect Hugo’s privacy.

SAFETY FIRST!

From managing medical alerts to preventing bumps and burns, check out these solutions to help take the stress out of staying safe.

ROAD SAFETY SONGS

PLAY SCHOOL: EVERYDAY HELPERS

From the Fire and Rescue Services to paramedics and the SES, ‘Everyday Helpers’ play a vital role in ensuring community safety and care. These videos from ABC iview do a great job of explaining the different ways these services work to keep us all safe in our communities. iview.abc.net.au

Music can be an effective way of helping children and young people with disability learn about their world. This selection of songs from Starting Out Safely, Victoria’s early childhood Road Safety Education program, delivers essential road safety messages in a fun and engaging way. Through catchy melodies and simple lyrics, children can learn important concepts like holding an adult's hand while crossing the street, recognising traffic signals, and always wearing a helmet when cycling. childroadsafety.org.au

SOS SURESAFEGO PLUS 4GX MEDICAL ALERT WITH FALL DETECTION

The SureSafeGO 4GX SOS SmartWatch is the ultimate personal safety device, designed for people with disability and the elderly who want to stay protected without sacrificing style or simplicity. With its sleek and subtle design, it provides advanced and innovative medical alert systems, two-way communication and GPS tracking.

The SureSafeGO smartwatch is equipped with automatic fall detection and a medical alert function, which can instantly notify emergency contacts if the wearer experiences a fall, as well as no-movement detection, complete water resistance and heart rate monitor and step counter.

RRP: From $479 // personalalarms.net.au

BUSHFIRE BOOK: HOW TO PREPARE AND BE AWARE

An accessible and reassuring picture book that teaches children what they need to know about bushfires so they can understand what's happening and be smart and prepared, not scared. RRP: $19.99 littlefarmers.com.au

household's must have!

SURVIVAL FAMILY FIRST AID KIT PLUS

Because bumps, burns and scrapes are all part of the roughand-tumble of home life, the comprehensive SURVIVAL Family First Aid KIT PLUS provides you with everything you need to help protect your family in an emergency. Every item is clearly labelled and can be accessed quickly and easily by every member of the family. You’ll also receive a strong and sturdy wall bracket to store the kit in a prominent, accessible area. RRP: $285.95 // safetyex.com.au

MEDICAL IDS

You can't always be there to protect your child - but MedicAlert can. A kids' medic alert ID will speak for your child when they can't speak for themselves. Kids of all ages, from toddlers to teenagers, can benefit from wearing a medical alert ID if they have a chronic medical condition like asthma, severe allergies, diabetes, autism, epilepsy, or a bleeding disorder. RRP: Various // medicalert.org

KIDSAFE

A fabulous organisation covering SA, VIC & QLDKidSafe is a leading not-forprofit organisation dedicated to preventing unintentional childhood injuries through education, advocacy, and practical safety solutions. Their online resources, events and training modules help families, carers, and professionals reduce risks at home, in transport, and in the community. You’ll also find an online store on each website stocked with useful items to support the safety of all family members.

kidsafeqld.com.au

kidsafesa.com.au

kidsafevic.com.au

NIGHT GLOW RAMPS

Ramp Ability's Night Glow Ramps enhance safety for wheelchair users, with integrated "glow in the dark" guidance strips, providing clear visibility in low-light conditions and high-visibility during the day. These weather-resistant, impact-resistant, and UV-resistant strips are recessed into the ramp to prevent trip hazards and have a life expectancy exceeding 10 years outdoors. RRP: contact supplier // rampability.com.au

HOME SAFETY VALUE PACK

Help keep cupboards and drawers securely closed to help prevent curious souls from slamming their fingers or accessing potentially dangerous contents, and cover dangerous electrical outlets to help protect children from electric shocks. The Dreambaby Home Safety Value Kit 46-pieces contain everything you need to help make sure your home is as safe as possible. It includes: 10 safety catches, 30 outlet plugs, 2 cabinet sliding locks, 2 multi-purpose latches, and 2 doorknob covers.

RRP: $45.95 // dreambaby.com.au

EMPOWERING MOVEMENT FOR ALL ABILITIES

By CONNIEHANSEN has been redefining mobility since 1990, when they launched the groundbreaking PETRA Running Bike in Denmark — helping people with Cerebral Palsy experience the thrill of running, racing, and moving freely.

Now proudly distributed in Australia by RTD since 2018, this innovative range is designed for toddlers, children, teens, and adults with physical challenges who want to move with confidence, purpose, and joy.

Together, RTD and By CONNIEHANSEN bring world-class mobility products to families, therapists, and schools across Australia.

“I wanted to create equipment that lets people run all out — using their

– Connie Hansen, Founder

RTD – Rehab Technology Distributors is a family-owned Australian business supplying high-quality rehabilitation and mobility equipment across Australia and New Zealand. We partner with leading global brands to deliver innovative, reliable assistive technology through our trusted dealer network. Working closely with healthcare professionals, we’re committed to empowering independence, participation, and improved quality of life.

Cavalier Walker

Stable, supportive mobility aid

More than MOBILITY MOBILITY

Five-year-old Chelsea is smart, sassy, and unstoppable – and thanks to her adaptive gear and dream team of supporters, she’s taking on the world at full speed.

At five years old, Chelsea is already an unstoppable force. She’s clever, cheeky, kind-hearted, and fiercely independent – a firecracker, as her support team lovingly puts it. Diagnosed with Spinal Muscular Atrophy Type 1, Chelsea’s world involves more equipment than most parents ever dream of. But for Chelsea, each piece of assistive gear is more than just functional; it’s a gateway to greater freedom, play, and inclusion.

Chelsea has been working with occupational therapist Chloe from EveryKid in Western Sydney for several years. The relationship between them is

more than clinical – it’s full of laughter, understanding, and deep trust. “She’s been a firecracker since I met her at 18 months,” says Chloe. “She’s had so many hospital stays, so many interventions. But she’s so resilient. So full of personality. And when she’s happy and smiling, it lights up the whole room.”

When it came time to find some new assistive equipment to give Chelsea more independence and freedom, Chloe knew exactly who to call. Lena and Leon from Dejay Medical have become known in the disability community for their generosity, responsiveness, and depth of knowledge.

“They know what they’re talking about,” says Chloe. “But it’s more than that. They genuinely care, and they’ll do just about anything to make sure a child has the right equipment for their needs.”

That’s exactly what happened with Chelsea. Chloe and Lena worked together to trial the Special Tomato Sitter, a supportive, adaptive seat which Chelsea quickly claimed as her own. “The second she trialled it, she loved it,” Chloe says.

Now affectionately nicknamed “Rapunzel”, the sitter is a staple in Chelsea’s everyday life. “It can sit at the dining table, have a tray on or off, or be a

floor sitter,” says Chelsea’s mum, Caitlin. “It’s so versatile, and it’s given Chelsea more independence in how and where she sits – and let’s be honest, she’s got opinions about where she wants to be!”

At the same time Chelsea’s sitter was getting sorted, the team turned their attention to mobility. Chelsea needed something light and adaptable that she could use in her daily routines and outings. Her motorised wheelchair is a significant part of her life, but it’s not easy to transport. Enter “Tinkerbell” – that is, Chelsea’s new Ottobock Kidevo Wheelchair.

Rehab, who had worked with Chelsea in the past. “Children like Chelsea get really good benefits from being part of the club – not just physically, but socially and emotionally,” explains Jasmin.

The relationship between them is more than clinical – it’s full of laughter, understanding, and deep trust.

Designed for easy use and comfort, Tinkerbell gives Chelsea more freedom in the community – whether she’s heading to an appointment, going out with family, or simply exploring her world.

Perhaps the most exciting addition to Chelsea’s growing fleet of adaptive tech is “Ariel”, her Theraplay Terrier Trike. With its vibrant colour and supportive frame, Ariel gave Chelsea a new way to experience fun, movement, and inclusion. Caitlin explains, “Chelsea’s little brother got a bike for his birthday at around the same time the trike arrived, so we can take both bike and trike to the park and they can ride together. She used to watch from the sidelines, but now she can be a part of the fun.”

Leon from Dejay is known as the guru when it comes to adaptive sports equipment, and when he first trialled the trike with Chelsea several months ago, it was an immediate hit. “She wanted to keep riding,” Chloe recalls. So keep riding she did – Chelsea’s next move was to join the Summit Adaptive Sports Club (SASC), a monthly inclusive sports initiative run by physiotherapist Jasmin from Summit

SASC is a passion project, born from the Summit Rehab team’s frustration at the lack of inclusive, accessible sport opportunities for kids with disabilities. The club meets once a month, and all participants can engage in accessible, fun, sport-based activities using a wide range of adaptive equipment. Whether it’s a trike, walker, wheelchair, bike, handcycle, or frame runner, every child is encouraged to participate in a way that works for them. All games and activities are adapted by Summit Rehab’s physiotherapists, so no one’s left out. Parents often describe it as one of the only places where their children can play and participate on equal footing with their peers – and even with their siblings, who are encouraged to come along too.

“We wanted to take a step back from therapy and just make it purely about fun,” Jasmin explains. “You get to meet new friends and just enjoy being with others outside a clinical setting.”

– T-shirts for every child who attends – so that each kid could feel like part of a team. It’s the kind of detail that matters. “Having a club shirt might sound like a small thing,” says Chelsea’s mum Caitlin, “but it’s not. That kind of inclusion means everything.”

Caitlin knows the emotional weight of parenting a child with high needs. There’s grief, joy, exhaustion, fierce love – and a staggering amount of admin. But watching Chelsea thrive, move with confidence, and make friends through sport has been worth every appointment and phone call.

“She’s been in hospital more times than I’ll probably ever be in my whole life,” Caitlin says. “But she’s so resilient. And when I see her and her brother riding together, both smiling, it just reminds me why we do it.”

Caitlin has some sage advice for other mums of disabled children. “All those hospital appointments, all the therapy appointments, the equipment, the trials, no matter what, they will look back and see you there,” she says. “Through it all, smiling. Being their biggest cheerleader.”

“We wanted to take a step back from therapy and just make it purely about fun,”

In addition to supporting families like Chelsea’s through one-on-one equipment trials, Dejay plays an ongoing role in the club itself. Leon attends the sessions, bringing demo gear, offering guidance, and even helping kids trial new equipment in the moment. “He’s just got this way of figuring out how to make anything work,” says Jasmin.

Dejay also sponsored the SASC uniforms

And although she once swore she’d never work in disability, Caitlin now dreams of becoming a paediatric physio herself. “I want to give back the support that I’ve received to another family – because they deserve it.”

Rapunzel the sitter, Tinkerbell the wheelchair, and Ariel the trike aren’t just devices to Chelsea and her family. They’re freedom, fun, and friendship on wheels.

To find out more about Summit Adaptive Sports Club, fill in the enquiry form at form.jotform.com/241392521622046

Dysarthria is caused by brain or nerve damage to the speech muscles.

IN CHILDREN A guide to DYSARTHRIA

Dysarthria is a motor speech disorder that makes it difficult to use or control the muscles of the mouth, tongue, palate and vocal chords for speech. These muscles can become weak, move slowly or not move at all making speech challenging.

HOW DOES DYSARTHRIA AFFECT CHILDREN?

The impact of dysarthria can be varying, depending on the area of the nervous system affected. Some children with dysarthria will have trouble speaking and children can also experience difficulty with chewing and swallowing.

WHAT ARE THE SYMPTOMS OF DYSARTHRIA?

As mentioned above, the impact of dysarthria from child to child will vary. Some of the symptoms of dysarthria are included below and children can experience one or more of these:

• “Slurred” speech where sounds are not spoken clearly

• Issues with voice pitch where it may be too high, too low, monotone or have breaks

• Speaking too loudly or too softly so that speech is hard to hear

• Slow speech or rapid, very fast speech that can sound like mumbling

• Speech can sound hoarse, breathy or strained

• Voice can tire easily and sometimes voice tremors can occur

• Voice can sound nasal (whiney) and denasal (congested)

• Drooling or poor control of saliva

• Chewing and swallowing difficulty.

HOW IS DYSARTHRIA DIAGNOSED?

Dysarthria should be formally diagnosed by a qualified speech pathologist. They will assess your child’s speech and provide appropriate treatment to help. Assessment can involve observing your child eating and drinking, listening to their speech and doing an oral-motor examination where your speech pathologist will ask your child to make different movements with their mouth and tongue.

WHAT HAPPENS IF MY CHILD IS DIAGNOSED WITH DYSARTHRIA?

If your child is diagnosed with dysarthria, treatment and therapy will be tailored to their needs and will depend on the symptoms that they have. Your child’s speech pathologist will work with you to set some goals and treatment may involve special exercises to improve muscle strength and strategies to lessen the impact of dysarthria.

Examples of some of speech therapy goals for children with dysarthria are:

• Helping your child to be better understood

• Improving breathing so that your child can speak louder

• Providing family members, carers and teachers with strategies to improve communication

• Learning to use alternative methods of communication if appropriate.

Examples of strategies to help a child with dysarthria work towards their goals:

• Taking a breath before speaking

• Looking at others when speaking

• Slowing down speech

• Speaking in shorter sentences.

Your child’s Speech Pathologist should work closely with you and others in your child’s support network to help your child to meet their goals.

HOW CAN I HELP MY CHILD?

There are some simple steps that you and others can take improve communication with your child, they include:

• Reduce distractions and background noise

• Watch your child when they talk

• Let your child know when you’re having difficulty understanding them

• Ask yes or no questions if you are having still difficulty understanding what they are trying to say.

HERE TO HELP

The Xavier team of experienced speech pathologists support children and young people throughout Brisbane and the greater Brisbane area with communication and feeding challenges. For further info and to check availability in your area, call 1800 XAVIER or use their simple online form and they’ll be in touch.

By Xavier Xavier supports children and young people with complex disability and related health needs to live the best lives possible with their families. Supporting children and young people throughout the greater Brisbane area with their dedicated team of allied health professionals, short-stay respite at Xavier Place and community services. xavier.org.au

Space to connect. Time for you.

MyTime is your space to connect with others who understand, share experiences, and take time for yourself.

Free and welcoming

Led by trained facilitators

Pre-school aged children are welcome

Group-based peer support for parents and carers of children with disabilities or additional needs.

MyTime member

Managing

EXCESSIVE DROOLING IN CHILDREN

WITH DISABILITY

disability - it can persist beyond the typical developmental stages. While it may seem like just a minor inconvenience, excessive drooling can have a real impact on comfort, health, and social interactions. Parents and caregivers often wonder if their child’s drooling is something to be concerned about and what can be done to manage it effectively.

to exploring treatment options, therapy techniques, and home strategies.

When should I be concerned if my child is drooling?

Drooling is common in infants and toddlers, but if it continues beyond the age of two or interferes with daily activities, it may require further evaluation. Persistent drooling can indicate underlying medical or developmental conditions. If drooling leads to frequent skin irritation, dehydration, choking risks, or social difficulties, it’s time to seek professional advice.

comfort, and confidence. Constant moisture can cause skin rashes, infections, and dental problems. It may also impact speech development, feeding, and social interactions, leading to self-consciousness or bullying.

What causes excessive drooling?

Drooling can result from several factors, including: Neuromuscular impairments: Conditions like cerebral palsy, autism, or Down syndrome can affect muscle control in the mouth and throat. Oral sensory challenges: Some

How should persistent drooling be assessed?

A healthcare professional-such as a paediatrician, speech-language pathologist, or occupational therapist – can evaluate the underlying causes of drooling through:

Medical history and physical examination

Assessment of oral-motor skills and swallowing function

Postural and sensory evaluations

Saliva production analysis

The goal is to determine whether the issue is related to muscle control, sensory awareness, or another medical condition, allowing for an effective treatment plan.

children struggle to sense when saliva builds up, leading to delayed swallowing.

Poor posture: Difficulty maintaining an upright head position can make saliva control harder.

Dental or structural issues: Problems like misaligned teeth or enlarged tonsils can contribute to excessive drooling.

Increased saliva production: While less common, some medical conditions or medications can cause excessive saliva output.

How can my child’s drooling be treated?

Treatment depends on the severity and underlying cause of the drooling. Options may include:

• Oral motor therapy: Strengthening muscles involved in swallowing

• Postural adjustments: Improving head control and positioning

• Behavioural techniques: Teaching children to be more aware of saliva and swallow frequently

• Medical or surgical interventions (if necessary).

A combination of these strategies is often the most effective approach.

Can speech therapy help?

Yes! Speech therapy can be a valuable tool in managing drooling. Speech-language pathologists (SLPs) work on strengthening the muscles involved in swallowing and improving saliva control. Therapy may also focus on increasing the child’s awareness of saliva and teaching strategies to manage it more effectively.

What might happen in a speech therapy session for drooling?

A speech therapy session may include:

• Exercises to strengthen lips, tongue, and jaw muscles

• Techniques to improve oral sensory awareness

• Swallowing drills to encourage better saliva control

• Use of cues or reminders to prompt swallowing

• Training in proper head positioning and posture

Sessions are typically tailored to the child’s specific needs and abilities.

What medical interventions are there?

If conservative methods don’t provide sufficient improvement, medical interventions may be considered, including:

MEDICATIONS: Anticholinergic drugs can help reduce saliva production but may have side effects.

BOTULINUM TOXIN (BOTOX)

INJECTIONS: Temporarily reduce saliva production by targeting the salivary glands.

SURGICAL PROCEDURES: In severe cases, surgery to reposition or remove some salivary glands may be an option. These treatments should always be discussed with a healthcare provider to weigh benefits and risks.

What activities can I do at home to help my child?

There are many simple strategies you can incorporate into daily routines to help manage drooling (always consult with a therapist or help provider before carrying out any home strategies):

• Encourage regular swallowing by prompting your child to swallow throughout the day

• Oral motor exercises, like blowing bubbles, sucking through a straw, or practicing lip closure, can improve muscle tone

• Use chewy foods (like carrot sticks or dried fruit) to strengthen jaw muscles and encourage active chewing

• Promote good posture, especially while eating or engaging in focused activities

• Provide absorbent clothing (such as waterproof bibs or scarves) to help manage saliva and keep your child comfortable.

Drooling can be challenging, but with the right combination of therapy, interventions, and home-based strategies, significant improvements are possible.

Consulting healthcare professionals and exploring different treatment options can help your child feel more comfortable and confident in daily life.

Your child’s rights in healthcare Navigating the River

Navigating the healthcare system for a child with disabilities can feel like battling against a current of bureaucracy and red tape, writes Monique Power.

Caring for your child with disability or medical complexities can feel like an unpredictable journey. Some days, everything flows smoothly. Other times, you’re fighting against the current, trying to secure the care and support they need. Through all of this, your child’s fundamental rights should act as clear markers, guiding you toward the dignity, care, and respect they deserve - these are outlined in a document called The Charter on the Rights of Children and Young People in Healthcare Services in Australia.

At the heart of this journey is what’s best for your child - the steady current that should direct every healthcare decision. You might find yourself up against red tape, delays, and frustrating obstacles, but the focus should always be on what benefits your child most, not what’s easiest for the system.

shouldn’t have to battle through a maze of barriers just to get the medical support your child needs. Timely, appropriate, and specialised care should be a given, not a fight.

Your child is more than a diagnosis. They have a unique personality, dreams, and relationships that shape who they are. Their care should reflect that, respecting your family’s values, culture, and beliefs instead of treating them as just another medical case.

Information is your map. You deserve clear, accessible guidance on your child’s healthcare

Your child has the right to be heard. Their thoughts, emotions, and preferences matter, even if they don’t communicate in typical ways. It’s crucial that healthcare professionals listen, making sure your child’s voice shapes their care plan rather than being an afterthought.

Every child deserves access to the highest standard of healthcare. You

As a parent or carer, you are the raft keeping your child afloat. You know them better than anyone, and your insight is invaluable. Healthcare providers should recognise your expertise and work alongside you, not against you.

Information is your map. You deserve clear, accessible guidance on your child’s healthcare - free from medical jargon and confusion. Whether through simple language, visuals, interpreters, or alternative communication methods, you should never be left in the dark about what’s happening or what comes next.

As your child grows, they should have more say in their care. Just like learning to paddle their own boat, they need space to make choices and take on responsibilities. Encouraging their independence helps prepare them for adulthood and ensures

they aren’t left struggling when the time comes to transition to adult healthcare.

Your child’s safety should never be in question. They have the right to be protected from harm, neglect, and mistreatment in every healthcare setting. Strong safeguards should be in place to ensure they are treated with respect and dignity, always.

Beyond medical treatments, your child deserves a life filled with joy, learning, and connection. Healthcare settings should support play, education, and personal

Beyond medical treatments, your child deserves a life filled with joy, learning, and connection.

expression because childhood isn’t just about managing conditions - it’s about living.

The shift from paediatric to adult healthcare can feel daunting. Without proper planning, it’s easy to feel like you’re being thrown into uncharted waters. This transition should be handled carefully, giving your child the tools they need to take control of their own health when the time comes.

As a parent or carer, you are your child’s most powerful advocate. Healthcare

shouldn’t feel like an upstream battle - it should be a system that works with you, not against you. By knowing your rights and standing firm, you can push for a system that prioritises dignity, respect, and accessibility, ensuring your child gets the care they deserve.

If this journey ever feels overwhelming, remember - you don’t have to do it alone. Speak up, connect with advocacy groups, and demand better policies. Learn about hospital procedures, escalation processes, and patient rights so you can navigate the

system with confidence. You’re not just holding on for the ride - you’re steering the course, making sure your child gets the best possible future.

By Monique Power RippleAbility

is a paediatric specific disability provider, helping families navigate complex systems of support and build their capacity to advocate for appropriate supports and services for their child. monique@rippleability.org rippleability.org

Doing what I love is my kind of independence

Created in collaboration with people with disability, Mable’s Can-do Guides provide useful tips and information to help kids achieve independence by accessing the experiences they love.

Lights, camera, action: Mable’s Can-do Guide to the movies

For kids and teens, going to the movies is a rite of passage and if you have a disability, it might take a bit more planning. We asked our community to share their top tips for making the most of the cinema experience.

1 Enquire about seating

Sometimes, accessible seating isn’t published online, so it can be kept available for people who need it. Try calling the cinema to check if they’re available.

3 For Deaf or hard-of-hearing viewers

Some cinemas have assistive listening systems, such as hearing aid loops and infrared systems that transmit straight to hearing aids or headsets, providing better audio clarity.

2 Quiet spaces and breakout areas

Many cinemas will provide a designated quiet space. These spaces are available for people who need a break from sensory stimulation.

4 For blind or low vision attendees

Ask the cinema for their audio description headsets, which provide an audio narration of the movie’s key visual elements.

5 Check out access options ahead of time

Before going to a new cinema, review its accessibility features online. Many cinemas will offer closed captioning, open captions, and audio descriptions. Some cinemas also host sensory screenings so patrons with sensory difficulties can enjoy a film in a calm and comforting environment.

Discover more tips to help your child access great experiences

From movies to live sport, music events, and more, visit Mable’s Can-Do Guides at mable.com.au/guides to learn how people with disability are doing the things they love.

HOW ORTHOTICS COULD SUPPORT A YOUNG PERSON TO ACHIEVE THEIR GOALS

Orthotics come in all shapes and sizes, can be used on various parts of the body, and can provide fantastic support for someone living with a physical disability to achieve their goals.

Sometimes bodies need extra support or protection to assist muscles and bone structures to line up, so movement can improve – an orthotic can be great for this. A young person may even have foot orthotics already, as many people do!

One of the best ways to determine if someone needs orthotics is to consider their goals. Are they looking to stretch a particular muscle at night, keep up with friends at school, or perhaps play a particular sport? Orthotics can help with positioning, stretching, walking, running, sleeping, and protection.

It may also be helpful to discuss these goals with a physiotherapist, who can work with the young person to create a plan to achieve them and provide further support when starting to use orthotics.

The best way to find orthotics that are right for a young person is to have an assessment with an orthotist. Novita has a team of highly qualified orthotists who use world-class technology to assess and make orthotics. Our orthotists love to work with children, their families, and physiotherapists to help them get the most from their orthotics.

Having a clear goal of what the young person would like to achieve will help the orthotist prescribe suitable orthotics.

Reasons a young person might need

orthotics:

1. BALANCE

Does the young person often lose balance?

2. ALIGNMENT

Does someone’s walking look different from other people’s?

There are lots of reasons for this, but one of the most common is that sometimes feet and legs are not aligned correctly, which can lead to poor alignment of the knees, pelvis, and spine. This is not always visible, so it’s important to speak with a physiotherapist who can assess standing, sitting, and walking posture and provide advice on what area of the body may need support.

Ankle Foot Orthotics, Foot Orthotics, Ankle Braces, Orthopaedic Boots, and other stabilising braces can be used to support the foot and ankle to improve balance. It’s also important that the body is allowed to move as designed, so an orthotist and/or physiotherapist may suggest working on muscle strength and movement before trying an orthotic.

Many physical disabilities and acute injuries affect muscle and bone structures in ways that mean someone has to compensate when walking, sitting, and standing by moving a little differently. Orthotics help to change the alignment of the body to make walking and standing more symmetrical and in line. Orthotics can be used all day to help with walking, for part of the day, or even just for specific activities such as sport.

Having a clear goal of what the young person would like to achieve will help the orthotist prescribe suitable orthotics. Sometimes orthotics are also recommended to ensure ongoing movement as they get older and to prevent other conditions such as osteoarthritis.

3. FATIGUE AND PAIN

Does someone get tired quickly from walking or feel pain in their legs at night?

If a child finds that they are easily tired or fatigued, or experiences pain, orthotics

can provide fantastic support to keep them going for longer. Maybe their goal is to keep up with peers during activities, be able to run faster, or reduce pain when participating in physical exercise.

Ankle Foot Orthoses made with different materials, including 3D print and carbon fibre, can be very beneficial for reducing fatigue due to their lightweight and/or energy-storing properties. Night-time resting AFOs are helpful for providing calf stretches when excessive muscle tone is present.

Ankle Foot Orthoses, Knee-AnkleFoot Orthoses, Rocker Shoes, and other walking braces can improve efficiency in walking. For example, people post-stroke who experience foot drop may be at risk of tripping over, as walking can be exhausting and their feet may not be able to clear the ground – instead, their toes scrape or catch as they walk. Ankle Foot Orthoses are designed to lift the foot at the appropriate time and facilitate a heel-totoe and safe gait pattern.

4. PLUS

Other reasons someone may benefit from orthotics include:

• Post-surgery rehabilitation

• Sports injury management

• Sitting position/wheelchair positioning

• Stretching

• Protection of joints

• Prevention of muscle tightness and contracture

• Osteoarthritis

• Swelling control

NovitaTech’s team of highly trained orthotists can assess a young person’s needs and prescribe, make, and fit the right type of orthotic to support them in reaching their goals. NovitaTech uses the latest 3D scanning technology and Computer-Aided Design Software (CAD) to make orthotics, ensuring a precise fit and fast turnaround time.

If you would like more information or to book a consultation, call the friendly team at NovitaTech on 1300 668 482 or contact enquiries@novitatech.com.au

EXERCISE

LIVING WITH

Chronic Fatigue

A common question I get is how to cope with fatigue ‒ especially when it’s chronic.

Chronic Fatigue

SLEEP

A FEW THINGS TO KEEP IN MIND

• Chronic Fatigue Syndrome is a very real and legitimate condition. Its medical name is Myalgic Encephalomyelitis (ME).

• It’s not something that can be ‘cured’ simply by being more active.

• It is absolutely not the fault of those who experience it, and it says nothing about their strength or character.

Now that we’ve cleared that up, let’s talk about what we do know about chronic fatigue – and how to approach living with it.

Myalgic Encephalomyelitis doesn’t have a single known cause, but it’s been linked to things like infections, trauma, immune system issues, and even genetics.

Here are some strategies that can help support you in navigating and reducing its impact.

One of the more peculiar (and deeply frustrating) issues facing those living with chronic fatigue is that sleep becomes harder to achieve – causing sleep anxiety. Sleep is the cornerstone of good health and should be the number one priority. Sleep is all about routine, some things to consider are:

Morning sun exposure – it sets the circadian rhythm for the day and has been linked to better moods and better sleep.

Sleep hygiene – you may or may not have heard of this one. Sleep hygiene is about setting the conditions for better sleep. No screens, bright lights or alcohol before bed is a great start. Dim lighting at night, non-digital activities like reading a book are also helpful.

Routine – your body is a prediction machine and LOVES routine. Eat breakfast every day at the same time and you’ll start getting hungry then. Same with sleep, being consistent with bedtime and waking up helps your body get in a rhythm. Even if it’s to get in bed to read a book. It’s about 7-9 hours of sleep ‘opportunity’ every night at the same time.

Exercise is important in managing chronic fatigue, the art is in how you approach it, and the name of the game here is ‘pacing’. A common mistake I see is people decide to go for a walk every day to ‘do something’ or tick the exercise box and it often leads them to be being done in for the rest of the day. It can make things worse and lead to post-exertional malaise (PEM). So, what do you do? The answer is less, more often. Counting steps is a great way to increase your activity level without relying on the big daily walk. Take a few extra steps going from room to another, checking the mail, whatever. It also provides a benchmark for the future.

DAILY JOURNAL

I know, a bit of a weird suggestion but hear me out. Chronic fatigue is different for everyone and can come in short waves of better/worse, so it’s helpful to record your days to see if there are any patterns. It also can link certain diets or routine to improved or worse symptoms. A daily journal can be as complicated as you like, some good inputs are:

• Sleep schedule times

• Food log

• Activity log

• Weather observation (known to affect moods)

• Agenda for the day

Your health professionals will also love you for this as well!

There are so many more tips and tricks I can tell you – if you’d like some more support feel free to get in touch or ask for a follow up article and I’ll be more than happy to oblige. Until then, keep moving, get lots of rest and be kind to yourself and others.

Tommy Trout, Inclusive-AF, inclusive-af.com

SUPPORTING KIDS’ GOALS

From Playtime to Pillow Time

It started as a family business – and that care is still at our core. GTK has been supporting families and paediatric therapists for over 30 years. And while we’ve grown, we’ve never lost that personal touch.

We work alongside therapists to match the right assistive technology to each child’s goals and environments –not just for today, but for what’s next.

That includes supporting wheeled mobility, alternate (leisure) seating, standing, walking, bathing and sleeping – because when a child needs support in one area, they often need it across the whole day. We take a 24-hour positioning approach to ensure comfort, participation and safety, around the clock.

From complex seating and mobility to bathroom, classroom and play solutions.

Our Team spreads across 5 locations covering QLD, NSW and Victoria. We are ready to bring genuine clinical know-how to support opportunities that allow our kids to create special memories.

GET LOCAL SUPPORT FROM A TEAM WHO KNOWS THEIR STUFF – AND TRULY CARES

The power of

co-regulation

Learn how staying calm and connected can help your child build emotional resilience for life.

You may have heard of the term ‘co-regulation’ before, but what exactly does it involve?

Co-regulation is an essential tool to foster the development of selfregulation skills in children and young adults. Children experience emotions like anger, frustration, and stress, and coregulation provides a safe and supportive environment for them to handle these intense feelings, ultimately learning how to self-regulate over time.

In this article, we’ll explore coregulation and share valuable tips for parents to effectively co-regulate with their children.

WHAT IS CO-REGULATION?

Co-regulation is defined as the process through which a child acquires selfregulation skills by interacting with a calm and trusted adult. It goes beyond merely calming one tantrum or meltdown. Coregulation involves consistent modelling and teaching of essential self-regulatory strategies over time. This rewiring of the brain equips children with the ability to self-regulate in the long term. Coregulation is essential for children of all ages, helping them recognise and manage their emotions, leading to a healthier, more controlled response to challenging situations. Ultimately, co-regulation leads to self-regulation.

Children don’t have the ability to recognise when they are becoming out of control, so they rely on a trusted adult to offer tools and strategies to support their

needs. The key factor is to be consistent and provide a calm, respectful and safe environment to calm their dysregulated nervous system. Over time, the child will develop a greater understanding of their own body clues and regulation needs. For example, they may start to learn that when their voice gets louder and fists clench, they need to take a break. On average, the first 7 years of a child’s life will be focused on co-regulation. However, many children older than 7 (including adults!) still require support to regulate their emotions.

THE IMPORTANCE OF CO-REGULATION

Co-regulation holds immense significance for human development for several key reasons outlined below:

1

Attachment and trust: Coregulation is the cornerstone for building secure attachments and healthy social relationships. From birth to young childhood, children rely on their caregivers to calm their emotions. When a baby cries, their caregiver will soothe them. This is an example of co-regulation, which builds secure attachment and trust.

2

Emotional development from birth to adulthood: Children cannot selfregulate their emotions, until they can co-regulate with a trusted adult. It is the foundational step required in order for individuals to better understand their feelings and develop healthy ways to calm themselves. As a co-regulated child ages, they will be able to navigate life’s

complexities and challenges with an ability to regulate their emotions independently.

3

Improving mental health:

Co-regulation is essential for promoting emotional wellbeing and reducing stress and anxiety in children. Children who experience co-regulation in childhood will develop a greater sense of self, improve self-confidence and reduce the risk of future mental health challenges.

4

Improving behaviour: Co-regulation demonstrates positive social behaviours and boundaries. A child will observe their trusted adult and how they respond in a period of dysregulation. This will influence the child’s behaviour in social

environments, helping them handle conflicts more effectively.

Improving relationships with parents & caregivers: Co-regulation strengthens the parent-child bond by providing a safe and secure environment for the child when they are experiencing challenging emotions, ultimately strengthening the whole family unit.

CO-REGULATION STRATEGIES FOR PARENTS & CAREGIVES

Here are some practical strategies to employ when co-regulating with your child. Remember, every child is unique, so adjust these strategies to your child’s needs

and temperament. The ultimate goal is to provide a safe and secure environment where your child feels supported and loved. Remember, when a child is dysregulated, they will not be able to access their “thinking” part of their brain and cannot make rational decisions at the time. So reduce language, co-regulate and ride the wave.

➜ Maintain your calm: This can be difficult, but it is essential! Imagine that you are upset, and someone starts shouting at you. It will make you feel significantly worse. From the moment your child starts to become heightened or distressed, take a few deep breaths, stay calm and don’t raise your voice. You are modelling emotional control for your child.

➜ Connect with Your Child: Connect with your child by getting on their level and looking in to their eyes. You may also hold their hands, give them a gentle touch or put your hands on their shoulder. This reassures them that they are safe and not alone in their emotions.

➜ Validate and label emotions: In a moment of chaos, it is important that your child feels heard, but remember to limit your words. Help them understand their emotions by labelling them: “I can see you are angry” or “you are really upset right now,” It is not a time for teaching and threatening. Even if it seems trivial, acknowledge and label their emotions.

➜ Provide a safe space: Do not leave your child alone or shut them in a room. Respect your child’s need for space if they request it but remain nearby to ensure their safety.

➜ Model deep breathing: Deep breathing is a simple but widely used coping skill which can be very powerful in reducing stress. Start by modelling deep breathing, and your child may soon join you or start to regulate through the rhythm of your breaths.

➜ Calm through sensory strategies: Depending on your child’s preferences, sensory strategies like a weighted blanket, gentle rocking or turning the lights off can help the nervous system during moments of dysregulation.

In conclusion, co-regulation is a vital process for improving self-regulation capacity in children. It fosters secure attachments, promotes healthy relationships and social boundaries, and improves overall emotional wellbeing.

If you would like to learn more about co-regulation and how we can help your child, please call Occupational Therapy Helping Children on 9913 3823 or email hello@occupationaltherapy.com.au.

Leckey

REGULATED RHYTHM REGULATED RHYTHM by

How drumming supports sensory integration for kids with disability

Rhythm can be a powerful tool for helping children with disability regulate their bodies and minds. In particular, hand drumming with instruments like the djembe is gaining attention for its ability to support sensory integration in a way that’s fun, social, and deeply grounding.

ENGAGING THE WHOLE BODY - AND BRAIN

Drumming is a multi-sensory activity. When a child plays a djembe, they’re not just hearing rhythm – they’re also feeling the vibration through their hands and arms, coordinating movement between both sides of the body, and often responding to visual cues and group dynamics. This full-body engagement helps activate multiple sensory pathways at once, which is a key element of sensory integration therapy.

Sensory integration refers to the brain's ability to process and respond appropriately to information from the senses. For many children with disability –particularly those with autism, ADHD, or sensory processing disorder – this process can be challenging. Rhythmic activities like drumming offer a structured and predictable way to experience sensory input, which can help build tolerance and improve motor planning over time.

BACKED BY RESEARCH

The benefits of rhythm-based activities for children with disability are supported by a growing body of research. A 2011 study published in Evidence-Based Complementary and Alternative Medicine found that group drumming significantly reduced stress and improved social resilience in participants, while also boosting immune function (Bittman et al., 2011). While this study focused on adults, the physiological and neurological mechanisms – such as rhythmic entrainment and regulation of the autonomic nervous system – are also relevant to children.

A more targeted study in The Journal of Music Therapy (Kim, Wigram & Gold, 2009) explored how rhythm-based improvisation supported children with autism. The study showed improved joint attention, turn-taking, and emotional expression – skills that are often more difficult to develop in traditional therapy settings.

Drumming also supports bilateral coordination and fine motor skills, both of which are crucial for activities of daily living. Because the djembe is played with both hands, it encourages cross-body movement, helping to strengthen the communication between the left and right hemispheres of the brain.

REGULATING THROUGH RHYTHM

One of the most immediate benefits of drumming is its impact on regulation. Many children with disability experience dysregulation – feeling overstimulated, anxious, or disconnected from their environment. The steady pulse of the drum can offer an anchor. Rhythmic patterns engage the parasympathetic nervous system, helping bring the body into a calmer, more balanced state.

In practice, this might look like a child arriving to a drumming session feeling tense or distracted, and within minutes, their breathing slows, their focus sharpens, and they begin to engage with the drum and the group.

Drumming is also accessible – it doesn’t require verbal communication, which makes it a particularly powerful option for non-speaking children or those with limited verbal skills. It’s a way of participating, expressing, and connecting that’s immediate and non-judgmental.

CONNECTION AND CONFIDENCE

Beyond the sensory and motor benefits, drumming can offer something equally important: belonging. Group drumming fosters connection without the pressure of spoken language or fixed outcomes. There’s room for improvisation and expression, but also structure and predictability – elements that are often comforting for children with disability.

As confidence grows, so too does engagement. For some children, it might be the first time they feel part of a group activity without feeling overwhelmed. For others, the drum becomes a safe outlet – a way to express energy, emotion, and individuality.

MOVING FORWARD

Programs that use hand drumming with djembes in schools, therapy settings, and community centres are already seeing the positive effects. And as more educators and therapists explore rhythm-based approaches, the evidence continues to grow. While drumming won’t replace other forms of therapy, it can be a deeply supportive addition – one that meets children where they are and helps them move toward greater regulation, connection, and expression.

By African Drumming

A smart evolution in complex seating

The CareFlex SmartSeat Pro II is a highly adjustable seating system for users with complex postural and pressure care needs.

Its innovative design allows postural asymmetries to be stabilised, accommodated, and—where possible—corrected from the feet to the pelvis, spine, and head.

Key features and benefits:

• Tilt-in-space and back angle recline

• Multi-adjustable back and head system for tailored support

• Durable, high-quality construction built for long-term use

• Comfortable and versatile

The SmartSeat Pro II delivers the adaptability you need—backed by CareFlex quality you can trust.

Find out more

JACK THE SILLY-YAK Meet

Music, movement and Coeliac awareness with heart

Our Source Disability Expos aren’t just about discovering products and services –they’re also packed with fun, entertainment, and inclusive activities for the whole family.

One of the highlights? Our vibrant stage program! From music to movement, there's always something to get involved in. At our recent Adelaide expo, we were thrilled to welcome Jack and Alex’s Silly-Yak Adventure – a joyful, musicfilled performance that helped kids learn about Coeliac disease through creativity, movement and play.

We caught up with Alex, Jack’s creator to find out more about the story behind the Silly-Yak…

What inspired you to create the character Jack the Silly-Yak?

It all started with an idea and stepping outside my creative comfort zone. I realised how little there was out there representing kids with chronic illness and educating them in a "here is how to manage your illness, so you can learn how it fits into your life not having your illness

control your life" kind of way. I took a design course while at Uni and that really pushed me into a new creative world, and while trialling collage crafting, Jack was born. It was in that moment, holding his little paper fun self that I knew he had power and a story to tell.

How does Jack help children understand Coeliac disease and what role does music play in Jack’s adventures?

Jack helps children and adults alike understand Coeliac disease through play, creativity and fun. Music and play are universal, and I strongly believe every child deserves to be seen, have fun and learn. That is what I do with Jack; we make a child with Coeliac disease feel seen, and every child at our shows be heard. Through music we talk about the glutinous grains - ‘The B.R.O.W’ – and through interaction we learn how we have to work together to find the best gluten-free foods and support one another. Through movement and laughter, we get to be our full silly selves and understand that an illness shouldn't define or separate us.

Can you tell us about the Giggle and Learn series and how it engages children?

Giggle and Learn is an online free miniseries with three episodes and heaps of downloadable activities; it is my way of ensuring that Jack the Silly-Yak is accessible to all kids with Coeliac disease, and kids who love silliness and creativity wherever they are. Each episode contains easily digestible gluten-free information so kids alongside their Big Yaks (aka adults) can start making safe and fun changes. It’s also something their friends can watch to help them understand what their besties are going through. We laughed a lot on set while filming these and I have heard lots of feedback that our audience have done the same while watching them.

What has been the most rewarding feedback you’ve received from parents?

Hearing kids being inspired to write their own books and be empowered through what I have done with Jack the Silly-Yak to tell their Coeliac stories has been so amazing. Also hearing from parents of kids without Coeliac disease that they love my music and enjoyed learning at our Jack and Alex's Silly-Yak Adventure shows is such a highlight, Jack the Silly-Yak is here to represent but also educate our friends and family too.

Are there any upcoming projects or new characters joining Jack’s world?

We have shows happening in Newcastle, Sydney and Melbourne this year and very excitedly I’m doing some work with Coeliac Australia, so stay tuned! I also have heaps of new music to share and am hoping to release that in an EP sometime this year.

Can you share a fun fact about yaks that kids might not know?

I so wish I knew some fun facts haha! All I know is that they are cute and look very cuddly.

Learn more about Jack at jackthesillyyak.com

INDOOR PLAY

Ideas for busy minds and bodies when it’s cold outside

COSMO EXPLORE

INDOOR PLAY GYM

Home play gyms or indoor gyms are a fun way to keep your kids active and happy on rainy days, snowy days, and days when it’s just too hot to play outside.

The Swedish Corner Wallbars - S4 is a climbing frame designed specifically for corner walls, ideal for homes or centers where space is a constraint. This playset comes with monkey bars, massage-effect ladders, a rope climber, gymnastics rings, and a spider net.

RRP: $729

tinnitots.com.au

BELOVED BEAR BOARD

The Beloved Bear is a special friend to help keep little hands busy.

On the bear you’ll find all sorts of shapes and moving parts to help develop the agility of little fingers and motor skills.

It’s also a great way to learn about numbers, shapes and colours. And behind the closed blue doors you’ll find symbols of all four seasons.

Often referred to as a fidget board, Beloved Bear can be useful for children who self soothe through repetitive movements.

RRP: $250 // avantinnovations.com.au

Cosmo is an award-winning, interactive therapy and inclusive training system designed to help early learners and people with special education needs train their physical, cognitive and communication skills. Every learner is different. That’s why Cosmo has been designed to be hands-on, customisable and versatile. It has activities for everyone and above all, it’s fun!

RRP: $870 spectronics.com.au

FLY HIGH IN THE INDOOR SKY!

Safe, fun and accessible for people of all abilities, the iFLY team offers adrenaline-driven flights for all. Indoor skydiving is a great experience to try with friends and family. With a glass tunnel, it allows spectators to watch and cheer on from the front seats as you free fall and enjoy the freedom of flight. RRP: various // iflyworld.com.au

SUNNY MARKERS

These are great for indoor creative sessions!

Designed to be short and thick in shape and size, Sunny Markers helps develop the small muscles in the hands and promotes ideal finger positioning for control, comfort and ease.

Perfect for home, classroom or therapy use to help children feel confident during learning and play.

RRP: $24

sunnymarkers.com.au

MIND CLIMB

Located at Clip & Climb in Berwick, Vic, MindClimb is a fun, safe and therapeutic program for people with learning disabilities that uses Clip & Climb’s vast variety of engaging climbing structures. Participants with additional needs complete closely supervised climbing exercises tailored to individual abilities. The sessions also improve social participation and help emotional regulation. Parents can relax in the on-site café and watch the action above, as participants use heaps of playful energy and gain a wonderful sense of achievement.

clipnclimbberwick.com. au/mindclimb

LITTLE WORLD SENSORY KITS

These beautiful Little World kits from Little Busy are designed to provide an engaging sensory experience where kids can explore and get creative. Even if sometimes that exploration is a little messy... Use them at home on a rainy day, take them to cafes or on a planeanywhere you want to keep little people a little busy!

RRP: $55 // littlebusy.com.au

TAKE PLAY HOME!

Change up your indoor play as often as you like! Toy Libraries provide local families a range of quality fun and educational toys, games, puzzles and activities to borrow or hire for a minimal fee. With over 290 around the country you can find your nearest attoylibraries.org.au

Borrow it, dont't buy it!

Blood test breakthrough

A breakthrough blood test developed by researchers at the University of Melbourne and Murdoch Children’s Research Institute (MCRI) is set to bring new hope to parents of babies and children with rare genetic diseases, offering faster and less invasive diagnoses.

has a greater chance at survival as they can begin treatment far sooner, if available,” he said. “Even in cases where a child has died from an undiagnosed genetic disease, this new test can be carried out on tissue samples to determine the mutation responsible. This can bring closure for families and inform future IVF decisions to help them have children who haven’t

The research team tested the new method against a currently used enzyme test for mitochondrial diseases - rare disorders that severely affect cellular energy, leading to organ failure and, in some cases, death. They found the new test to be more sensitive, more accurate, and

Dr Daniella Hock from the University of Melbourne said the new test also stacks up economically.

Melbourne explained the potential of the new test:

“If our blood test can provide clinical diagnoses for even half of the 50 percent of patients who don’t get a diagnosis through genome sequencing, that’s a significant outcome. It means those patients don’t have to undergo unnecessary and invasive testing.”

There are over 7,000 rare diseasesdefined as those affecting fewer than 1 in 2,000 people - many of which are serious, progressive, and genetic in origin.

Professor David Thorburn from MCRI highlighted the emotional and medical impact of getting a faster diagnosis.

“By providing patients and their families with a rapid clinical diagnosis, the patient

“A recent health economics analysis showed that our test could be offered at a similar cost to the enzyme test currently used for mitochondrial diseases but is far more cost-effective because it screens for thousands of genetic diseases instead of just a few.”

Backed by a $3 million grant from the Australian Government’s Medical Research Future Fund, the team is now recruiting 300 patients with a range of genetic conditions to further study the test’s broader impact.

In time, it’s expected the test will become a diagnostic service offered by the Victorian Clinical Genetic Services – opening the door to earlier answers, better outcomes, and renewed hope for families navigating the uncertainties of rare disease.

Stick to it

What is it about stickers that kids love? To be honest, it’s not just kids – we know of a fair few adults who also adore a pretty sticker or two! And (additional benefit alert!), whether they’re nice to look at, functional or just a bit of fun, stickers are a great tool for our kids who need some fine motor help. Stickers are also the perfect tool to have laying around in the cold winter months when you need a quick, cheap fix for bored minds and hands.

When using stickers as part of fine motor activities for children that need to develop these skills, it’s important to choose stickers that are easy to peel and manipulate. Avoid stickers that are too small or have intricate designs that may cause frustration. Once you’ve found your perfect set of stickers here are some activities to try…

STICKER SORTING: Provide a variety of stickers in different shapes, colours, and sizes. Encourage your child to sort the stickers based on these attributes, using their fingers to peel and place the stickers into designated categories.

STICKER PUZZLES: Create simple sticker puzzles by cutting a picture or design into pieces and sticking each piece onto a separate sticker. Your child can then reassemble the puzzle by placing the stickers in the correct order.

STICKER ART COLLAGE:

Start with a blank piece of paper or a canvas and a collection of stickers and try to create a collage by sticking the stickers onto the surface to form a picture or design. This activity helps improve handeye coordination and creativity.

STICKER TRACING: Draw outlines of shapes, letters, or numbers on a piece of paper. Have your child trace these outlines using stickers, peeling them off and carefully placing them along the lines. This activity promotes fine motor control and precision.

STICKER STORIES: Encourage storytelling by giving your child a blank book or paper with stickers related to different characters or objects. Ask them to create a story using the stickers as visual prompts, arranging and sticking them onto the pages as they narrate the tale.

STICKER PUPPETS: Place face/ body part stickers on fingers and hands and create a puppet show! Great for language development too.

STICKER MAZE: Draw a maze on a piece of paper and provide stickers for your

child to use to navigate through the maze. They can place stickers along the correct path, enhancing their fine motor control and problem-solving skills.

STICKER TIC-TAC-TOE:

Draw a tic-tac-toe grid on paper and use stickers as game pieces. The child can take turns with a partner placing stickers in the grid to play the game, promoting strategic thinking and finger manipulation.

STICKER TRANSFER

ACTIVITIES: Provide stickers on a sheet of wax paper or plastic. Encourage your child to peel off the stickers and transfer them onto another surface, such as a greeting card, bookmark, or art project. This activity works on finger dexterity and coordination.

STICKER RELAY RACE:

This one is great for gross motor skills and also blowing off some steam! Set up a relay race where players have to peel a sticker from one point and transfer it to another designated point before passing the task to the next participant. This activity incorporates speed, coordination, and fine motor skills in a playful competition.

For parents of children with special needs, every outing can feel like a risk. Safe & Found empowers you with Australia’s most comprehensive support network, designed to quickly reunite you with your child if they wander. Because every child deserves to feel safe — and every parent deserves peace of mind. Learn more about how Safe & Found can be your essential safety partner.

safeandfound.org.au

A HANDY GUIDE TO

NDIS Meal Preparation & Delivery

NDIS Meal Preparation & Delivery

Want

to know what the NDIS covers when it comes to meal preparation

and delivery? We reveal all.

Do you find meal preparation challenging?

The National Disability Insurance Scheme (NDIS) may be able to offer support. Depending on your circumstances, funding can be unlocked for assistance with shopping, food preparation, skill development programs and even meal delivery.

How does it all work?

In this article, we give you the lowdown on how the NDIS funds meal preparation and delivery, including what is and is not included.

Does the NDIS fund meal delivery?

Yes, but only if it is deemed reasonable and necessary within your NDIS plan. The NDIS can help cover the costs associated with delivering meals relevant to your specific needs. But this funding does not cover the basic cost of ingredients – more on that below.

To find out if you are eligible for funding, it is best to talk to your NDIS Planner or Support Coordinator directly.

Who can access this funding?

If you live alone with minimal support, and shopping and cooking safely is a challenge for you, the NDIS may consider meal delivery to be essential.

Your NDIS Planner will look at your unique needs and circumstances. Here is what they will consider:

• The supports you have to prepare meals.

• How much time a Support Worker would need to help you prepare meals.

• Whether there are any likely changes that will limit your friends', carers' or support workers' ability to assist you with meal preparation.

• What participants with a similar situation to yours have access to in their plans.

• What programs are available in the community to help you prepare meals.

Is

there

a catch?

In cases where the NDIS does choose to fund meal delivery, it will not pay for the individual ingredients required to cook that meal. This is because these ingredients are considered ‘everyday expenses’.

As it is tricky to itemise the cost of each ingredient in every meal, the following split generally applies:

• 70% of costs are for meal preparation and delivery: the NDIS funds this.

• 30% of the costs are for ingredients: the NDIS does not fund this.

NOTE: IT IS BEST TO CLARIFY THESE COSTINGS WITH YOUR NDIS PLANNER OR SUPPORT COORDINATOR.

What about funding for meal preparation?

Separate to meal delivery, NDIS funding for meal preparation is available, where applicable. It would typically form part of your core supports budget.

This funding exists to help participants build their skills to plan and prepare healthy meals. As part of this, you would need to buy supports that help you achieve this goal.

You could choose to instead use this funding to have meals prepared and delivered for a limited time, but this will not help you build your skills.

Here are two common scenarios in which meal preparation funding may be applied:

1. TAILORED SUPPORT FROM A SUPPORT WORKER

This is the most popular way to access NDIS funding for meal assistance. A Support Worker may help you with your shopping needs and to cook at home. Example: Ava gets 1:1 support twice a week to plan meals, shop and cook.

2. DEVELOPING MEAL PREPARATION SKILLS

You may have goals that extend beyond mastering basic cooking skills. If so, the NDIS can fund programs for skill development.

Example: Archie attends a cooking program at a Learning and Lifestyle Hub to help gain independence.

To summarise, NDIS funding is available for meal preparation and/ or delivery. But as with anything in the NDIS world, there is no one-size-fits-all approach.

If you think funding could help you, schedule a review meeting with your NDIS Planner.

NEED HELP?

Navigating the NDIS can be tricky, but you are not alone. At Endeavour Foundation, our NDIS specialists are available to guide you through this complex scheme. These specialists regularly advocate for improved NDIS funding outcomes for our clients and have even created their own escalation pathways with the National Disability Insurance Agency (NDIA). Get in touch to see how we can support you.

Visit endeavour.com.au/contact-us or call 1800 112 112. Want more news, updates, tips and other information relevant to you? Check out more insightful articles from Endeavour Foundation at endeavour.com.au/about-us/our-stories/blog-posts

LONG SLEEVE LEG SUIT

• 1.5 Tog Rating.

• Two way zip, fold over cuff on the sleeve and leg.

• Zip cover and top tab with a stud.

• Sizes 04 to 16

LONG SLEEVE SLEEPING BAG

• 0.5, 1.5 or 2.5 Tog Rating.

• Two way zip, fold over cuff on the sleeve.

• 100% cotton outer and lining.

• Sizes 06 to 14

• A stroller that can be used as a secondary chair.

• It is an excellent chair for children who do not have complex positioning needs.

• Available in 3 frame sizes: 12”, 14” and 16” seat widths and allows for some degree of adjustment.

• Available colours; Big Sky Blue, Rosso Red, Snowberry Pink Huckleberry Purple and Galaxy Purple.

and

100% woven cotton sleeveless sleeping bag

Bringing you tips and advice about your assisitive technology from Australia’s leading professionals.

5

TIPS FOR

A SUCCESSFUL BED APPLICATION

Applying for funding through the NDIS can feel overwhelming, especially when it comes to securing a high-sided bed that will keep your child safe and supported at night. Whether you’re new to assistive technology or have been through the process before, these five tips can help you build a strong case and increase the chances of approval.

1.

COMPLETE EVERY SECTION OF THE NDIS FORM

Make sure to fill in all the prompts on the NDIS Assistive Technology assessment template. It may seem like a lot of paperwork, but every detail helps the NDIS team understand why the bed is needed. Leaving sections blank could lead to delays or even a declined application.

2. KEEP LANGUAGE CLEAR AND SIMPLE

Avoid using clinical jargon or complex terms. Instead, explain your child’s needs in plain, everyday language, just like you would when talking to a friend or family member. Focus on how the bed will help your child stay safe, sleep better, or be more independent, and how this connects to their goals.

3.

SHOW HOW THE BED MEETS NDIS CRITERIA

• The NDIS looks for equipment that is “reasonable and necessary,” so it’s important to tick all their boxes. Your application should show how the bed:

• Is needed because of your child’s disability (not a general medical issue)

• Supports their goals and aspirations

• Helps them take part in everyday life

• Offers good value compared to other options (like overnight care)

• Has a positive, proven benefit.

4.

BACK UP YOUR RECOMMENDATION

Make it clear why this specific bed is the right choice. If the bed needs to be canopy-free, fully enclosed, or have a specific design, explain exactly why. Mention any other options you’ve

5.

INCLUDE SUPPORTING DOCUMENTS AND A QUOTE

Letters from therapists, caregivers, or even your own reflections as a parent can make a real difference. You can also include relevant research or insights into similar products. And don’t forget to attach a formal quote from the supplier; it’s a required part of the application and helps NDIS assess the overall cost.

WANT MORE SUPPORT?

This article is a summary of Medifab’s three-part series designed to walk you through every step of the highsided bed journey, from choosing the right option to submitting a strong NDIS application.

This article was written by an occupational therapist and paediatric product trainer at Medifab, a leading supplier of complex rehab technology (CRT). Medifab's team of specialists across Australia and New Zealand is dedicated to supporting children and adults with disabilities and medical conditions. Find out more at medifab.com/au/

Periods Funding

You’ve probably noticed how fast things have been changing with the NDIS since last year’s review. Updates have come thick and fast - sometimes it feels like just as you get your head around one change, another one arrives. It’s a lot to keep up with, and it can be overwhelming.

And, a pretty significant change came into effect recently. From 19 May, NDIS funding is now released in smaller instalments called Funding Periods, rather than all at once. This means many participants will manage their plans a little differently day to day.

HERE’S WHAT YOU NEED TO KNOW…

Previously, NDIS participants would generally receive their entire plan budget upfront, available for a full 12 months. Now, that funding will be broken into smaller instalments over the course of the plan. These will vary based on the type of support and will be released quarterly, monthly, or upfront depending on the support category.

According to the NDIA, this approach is designed to make plan management more responsive over time and to ensure funding is used more effectively.

WHO’S AFFECTED?

These changes apply to:

• All new NDIS plans created after 19 May 2025

• Existing plans when they are reassessed or renewed

If your current plan was approved before 19 May 2025, the theory is that you will continue under the old funding model until your plan is updated.

What you need to know about the latest NDIS changes

WHAT ARE FUNDING PERIODS?

A Funding Period is a timeframe that determines when a portion of your NDIS funding becomes available. Instead of receiving your total plan funds at once, you’ll receive scheduled instalments based on the category of support.

The three main types of funding periods are:

• Quarterly (every 3 months): Most supports fall into this category.

• Monthly: Common for Home and Living supports such as Supported Independent Living (SIL).

• Upfront: Used for purchases like Assistive Technology or Home Modifications that require full payment at the time of purchase.

You’ll be able to see the number and timing of your funding periods in the NDIS portal, and your Plan Manager or Support Coordinator (if you have one) will also have access to these details.

IS YOUR PLAN STILL FLEXIBLE?

• Yes - some flexibility remains depending on the type of support and how your plan is managed:

• Core Supports remain flexible in how you use them, unless restrictions are stated in your plan.

• Capacity Building Supports are generally flexible (within the specific categories) unless otherwise noted.

• Capital Supports are typically fixed and itemised, just as they have been under the previous system.

DOES THIS APPLY TO CHILDREN TOO?

Yes. These changes apply to all participants, including children and those in the Early Childhood approach. The funding period structure will be used across all new plans regardless of age.

WHEN DO FUNDING PERIODS START?

Funding begins from the start date of your NDIS plan, not the beginning of the calendar month. For example, if your plan begins on 1 March, that’s the start of your first funding period. If you’re on quarterly funding, the next release will be 1 June.

WHAT IF YOU DON’T SPEND IT ALL?

Unused funds roll over into the next funding period within the same plan. However, leftover funds at the end of the plan won’t carry over into a new plan.

Example

You have $36,000 allocated for therapy, with funding released quarterly in equal amounts of $9,000 each.

QUARTER 1

$9,000 ALLOCATED. If you only spend $6,000, then $3,000 will roll over

QUARTER 2

$9,000 + $3,000 rollover = $12,000 available. If you spend $10,000, then $2,000 will roll over.

QUARTER 3

$9,000 + $2,000 rollover = $11,000 available. If you spend $11,000, no rollover.

QUARTER 4

$9,000 allocated. If you spend the full amount, no rollover.

Note that this information is correct at the time of going to press. For the most recent updates and answers to common questions, visit the NDIS website’s Frequently Asked Questions page. ndis.gov.au/changes-ndis-legislation/frequentlyasked-questions-about-legislation

This rollover system allows some flexibility during the plan but remember, leftover funds do not carry over once the plan ends.

CLAIMING AND OVERSPENDING

You must claim supports within the correct funding period. If a support crosses periods, you may need to submit split claims. If your costs exceed the available amount in a given period, you’ll need to wait for the next funding release. You can’t borrow from future periods. If your plan no longer suits your needs, talk to your planner about a reassessmentyou may be able to adjust the frequency of funding or request changes.

HOW TO PREPARE

Participants: Speak with your support coordinator or plan manager to understand how your plan will be structured under PACE and how to plan ahead for funding periods.

Watches and Reads

Books and shows on

FILM KIDS

EZRA

Ezra is a touching film about Max - a comedian, and his 11-year-old son, Ezra, who is on the autism spectrum. As they take a cross-country trip together, the film explores the challenges of co-parenting, the bond between father and son, and the power of understanding. The role of Ezra is played by William A. Fitzgerald, a young autistic actor, who brings a genuine and powerful authenticity to his character.

Binge

• unisex onesies to help keep wandering hands out of nappies & pants

• deters inappropriate undressing & other challenging behaviour

• range includes back-zips & tummy access styles for tube feeding

• large sizes for kids & adults (great for aged care)

• soft cotton fabric & tag-free to minimise irriation

• adaptive swimwear, bibs, bandanas & bedding protection also available

Film Kids is a heartwarming Aussie documentary about a group of teenagers with intellectual disabilities who set out to make their own short films. As we follow their creative journey, we also get a glimpse into their lives—and the love, grit, and challenges faced by their families and teachers along the way.

SBS OnDemand

TENACIOUS: FIFTEEN ADVENTURES ALONGSIDE

DISABLED ATHLETES BY PATTY CISNEROS PREVO

Meet fifteen remarkable athletes who use adaptive equipment in this beautiful and truth-telling picture book. A downhill skier whose blindness has sharpened her communication skills. An adaptive surfer who shreds waves while sitting down. A young man who excels at wheelchair motocross-but struggles with math. Tenacious tells their stories and more, revealing the daily joys and challenges of life as an athlete with disabilities. amazon.com.au

SILLY-YAK BOOK (FOR LITTLE COELIACS)

Jack loves to be silly in lots of ways, singing, playing and pretending, but his tummy changed the other day. What he likes to munch, crunch and chew is now made from something new!

Read along as Jack the Silly-Yak learns how to find the best gluten free foods and get back to being his best silly Coeliac self after being diagnosed with Coeliac Disease!

A book full of creativity, imagination and fun for all kids on a gluten free diet! jackthesillyyak.com

Brisbane-based manufacturer of customisable, high-quality furniture and equipment for children and adults with disabilities, supplying nationwide. Our skilled team crafts a range of equipment including posture chairs, therapy benches, toilet steps. We also create height-adjustable electric, tilt, and hand-wound tables to your specific needs.”

CONTACT

PH: 07 3392 6649

EMAIL: sales@capfurniture.com.au

THE NON-VERBAL PRINCESS BY JESSICA FREW

The Nonverbal Princess is inspired by the real-life experiences of actress and model Jessica Frew. This story challenges traditional fairy tales by focusing on inclusivity and the importance of equality for those with disabilities. It gives a voice to the voiceless, showing that everyone deserves to be seen and heard. Suitable for all ages, this book aims to change how we view disability and highlights the value of diversity. amazon.com.au

Waterproof

Accident Undies for Day & Night Protection

✅Full waterproof outer, keeping clothing dry and accidents discreet. Feel the wet for sensory feedback.

Adjustable absorbency to suit your child’s needs.

Sensory friendly Bamboo Cloth Lining. Unisex style with sizes up to 30kg.

WALKERS

Encourage mobility & participation with the right walker for use at home, school or social environments.

COMES IN 4 SIZES PACER

Manufacturer: Rifton

Suppliers: APEX Mobility, Medix21 Australia

Weight: 50 to 200kg | Height: N/A

• The versatile Pacer Gait Trainer comes in 4 sizes and is fully adjustable, without the need for tools.

• Front swivel wheels enhance ease of turning and make it skid-resistant, so it’s ideal for indoor use.

• Can be configured in so many ways, accommodating every ability.

BUDDY ROAMER

Manufacturer: Moorings Mediquip

Suppliers: RTD Australia

Weight: Up to 100kg

Height: 70cm to 200cm

• A posterior walking aid that provides partial weight-bearing support. Designed to meet mild, moderate and complex users’ needs.

• Central positioning bar with abduction pad to help improve gait.

• Handholds and bumper bar, as well as shoulder positioners minimise fatigue.

Manufacturer: Circle Specialty | Supplier: Alivat

Weight: N/A | Height: N/A

• The Klip can also be used in the anterior position.

• A variety of positioning accessories are available and can be added or removed as the walking skills evolve.

• The Klip is a lightweight posterior gait trainer for kids, teens and young adults with disability who require support and assistance with their day to day walking.

TREKKER

Manufacturer: Drive Medical

Supplier: APEX Mobility

Weight: Up to 100kg

Height: Up to 100cm

• Trekker Gait Trainers offer varying levels of support for children who require assistance with walking.

• Prompts such as forearm platforms, trunk supports, hip positioners and thigh prompts mount anywhere, tool-free, onto the frame and are easily removed when no longer needed.

• Available in 3 sizes: Tyke, Junior and Youth.

MYWAY+

Manufacturer: Leckey

Supplier: Sunrise Medical

Weight: 25 to 80kg | Height: 59 to 149cm

• MyWay+ is a unique open frame gait trainer which cleverly supports children in an upright, hands-free position.

• Improves stepping to maximise opportunities for exploration, interaction, and participation.

• New 7” caster allows easy manoeuvrability and locks at 90 degrees to allow side stepping.

MALTE

Manufacturer: Schuchmann

Supplier: APEX Mobility

Weight: Up to 100kg

Height: N/A

• A backwards stop prevents unwanted rolling back; lower armrests with grips.

• The padded seat can be easily folded back; EVA steering wheels make the walking aid manoeuvrable.

• The posterior support pad can become a backrest in one single easy step. POSTERIOR SUPPORT

FLUX

Manufacturer: Hoggi

Suppliers: RTD Australia, Medifab

Weight: Up to 100kg | Height: Up to 182cm

• A posterior walking aid which promotes natural walking movements.

• Grows with you — adaptable, with height, vertical and horizontal adjustments. Comes in four sizes.

• Sturdy anti-tippers to keep the user safe, a fold-away seat that can be moved aside to ensure easy walking, plus has the ability to carry a school bag.

COME AND TRY!

Most of these products will be on display at our expos: sourcekids.com.au/ disability-expo Register for free tickets

C Y MUSTANG

Manufacturer: R82

Supplier: Etac

Weight: Up to 80kg

Height: 50 to 180cm

• Tilt in Space promotes a natural gait pattern.

*Chat to a product specialist about your child’s individual needs

• Easy access frame with gas height adjustment allowing ease of transfer.

• Anterior or posterior set up allowing increased adaptability as the child develops.

NIMBO

Manufacturer: Drive Medical

Supplier: APEX Mobility

Weight: Up to 125kg | Height: Up to 104cm

• The Nimbo line of posterior walkers support from behind for those requiring a more upright posture, which helps promote trunk extension.

• Front swivel wheels enhance manoeuvrability and ease of turning.

• Tool-free height adjustments, folds easily and comes in five sizes.

GRILLO

Manufacturer: Ormesa

Supplier: APEX Mobility

Weight: 35 to 110kg

Height: 75 to 190cm

• Wheel features include anti-reverse, rear drag, front and back directional locks. Wheels are suitable for both indoor and outdoor use.

• Adjustments are fast and safe and can be made while the child is in the walker.

• Comes in 4 sizes, with rear and front-drive options.

CRUISER

Manufacturer: Hoggi | Suppliers: RTD Australia, Medifab

Weight: Up to 100kg | Height: N/A

• With a compact design, the Cruiser anterior walker is ultramanoeuvrable and is the perfect companion for the first steps.

• The newly designed brake can be operated with little effort, even by small children.

• Scissor folding mechanism allows the Cruiser to achieve a minimal folding size.

MEYWALK

Manufacturer: Vela | Supplier: RTD Australia

Weight: Up to 135kg | Height: N/A

• Meywalk4 mimics natural gait and with its “three clicks and you’re in” easy transfer system, it means you spend less time adjusting and more time walking.

• Use it facing backwards in ”disco position” for therapy and activities.

• Tilt in space: posterior or anterior pelvic support for natural hip rotation and 360˚ controlled steering. Has tool-free adjustment and comes in four sizes.

CROCODILE

Manufacturer: R82

Supplier: Etac

Weight: Up to 80kg | Height: 70 to 180cm

• A walking aid aimed at harmony, balance and rhythm for children and young adults who need supplementary assistance with their daily walking.

• Placed behind the child, the frame allows freedom of movement and facilitates walking in the upright position.

• Now available in 4 sizes.

NURMI NEO

Manufacturer: Ottobock

Supplier: Ottobock

Weight: Up to 55kg | Height: N/A

• Lightweight and robust, stable frame provides a high level of support and stability.

• Practical folding mechanism of the Nurmi Neo allows for easy fold, and fits into the boot of any car.

• This flexible walking aid is available in three sizes and various colour frames.

MARCY

Manufacturer: Schuchmann | Supplier: APEX Mobility

Weight: Up to 65kg

• The handles can be adapted in height and width and adjustable forearm supports stabilise the gait for extra stability.

• Friction brakes on the rear wheels slow down the speed, the optional parking handbrake gives more control, in combination with the lower armrests.

• Comes in four sizes; sizes 3 and 4 can be folded down for easy transport.

Reader-friendly, informative and brimming with the latest products on the market.

Helping parents and allied health providers choose the best wheelchairs, strollers, bikes and trikes, walkers, standers, beds and seating, to suit their child’s unique needs.