WELCOME TO THE 2024 RED TIE SOIREE
Dear Friends and Supporters,
just our collective strength, but the individual contributions that make our community so vibrant and effective
This evening, we have the privilege of honoring Brian Andrew, member of NBDF's Pathway to Cures Investment Committee and former NBDF Board Chair. Brian's unwavering commitment demonstrates how one person's dedication can shape the direction of an entire organization and serves as an inspiration to us all. Your presence here is a powerful statement of belief in the importance of our work and in the potential for positive change. Whether you've donated, participated in our auctions, or lent your voice to our cause by attending, know that your individual contribution resonates far beyond this single evening
As you participate in tonight's events, remember that you are an integral part of a powerful movement that believes in the power of research, education, and advocacy to transform lives Every voice, every action, brings us one step closer to having timely access to quality medical care, therapies and services Thank you for being here, for lending your voice essential part of the NBDF community T creating a brighter future for all those aff bleeding disorders
With deepest gratitude,
Phil Gattone, M.Ed. President and CEO, National Bleeding Disorders Foundation
RED TIE SOIREE SPEAKERS
BOB ROIG
Soiree Emcee
PHIL GATTONE M. ED.
NBDF President & Chief Executive Officer
DR. SHARON RICHARDSON
NBDF Board Member & Soiree Committee Chair
BRIAN ANDREW
Chief Investment Officer
Merit Financial
MARGO SCHWA
Bleeding Disorde
Community Mem
HemophiliaAlliancehas grantedover$24,000,000 amongstthecommunityfrom 2009-2023,andfundsthe HemophiliaAlliance Foundation,anindependent nonprofitorganization, whichawarded $675,000across variousprojects andcommunity organizations in2023.
Our Mission
The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.
ABOUT T BLEEDIN FOUNDA
Since 1948, the foundation has supported the inherited blood and bleeding disorders community through research, education, and advocacy.
The National Bleeding Disorders Foundation (NBDF), formerly the National Hemophilia Foundation, is dedicated to finding cures for inheritable blood and bleeding disorders through research, education, and advocacy. Founded in 1948 by Robert and Betty Jane Henry, parents of a child with hemophilia, the organization has expanded to serve people with all bleeding disorders, including hemophilia, von Willebrand disease, and platelet disorders. With 52 chapters nationwide, NBDF has funded over $22 million in research, supports families, and advocates for healthcare access, continuing the Henry’s mission of bringing the community together to drive change.
Learn more about NBDF at bleeding.org.
D I N N E R
L I V E A U C T I O N
M I S S I O N M O M E N T P A D D L E R A I S E A F T E R P A R T Y
Brian Andrew, CFA®, Chief Investment Officer of Merit Financial, has been the founding chairperson of the Pathway to Cures Investment Committee since November 2022. Brian previously served as Chair, Treasurer, and Board of Directors member at large for the National Bleeding Disorders Foundation from 2007 to 2009 and 2013 to 2021. He has also served as Board President and Treasurer of the Great Lakes Hemophilia Foundation.
With nearly 40 years in the financial services industry, Brian enjoys understanding the economy and markets and helping advisors build investment strategies for their clients while assisting non-profit organizations with making sound investment decisions. Brian received his B.S. in Finance from the University of Minnesota and completed the CFA®/Harvard Investment Management Program. Brian likes to travel with family, ski, and enjoys motorcycle travel.
I am honored to be recognized by the National Bleeding Disorders Foundation this year at the Red Tie Soiree. I have been involved with the bleeding disorders Community for over 25 years and see the difference the chapters (shout out to my local chapter Great Lakes Hemophilia Foundation) make in families lives. I have been honored to serve on the GLHF and NBDF Board of Directors with some amazing people who care deeply about the Community. Most importantly, I have seen the dedication of the chapters' and national staff in making a difference in health care, advocacy and education for the Community.
Brian Andrew -
2024 MISSION MOMENT
MARGO SCHWARTZ-NEWTON
BLEEDING DISORDERS ALLIANCE
ILLINOIS COMMUNITY MEMBER
Representing a VWD type 3 family, Margo SchwartzNewton is thrilled to be on the board and serve as secretary of Bleeding Disorders Alliance Illinois (BDAI) and strives to use her skills and experiences to support the mission of BDAI and help grow its reach and robustness. Living with a rare and severe bleeding disorder in the family has given her the opportunity to learn, advocate, educate, and build a community with wonderful, supportive people she may never have met otherwise.
With a master’s degree in collaborative piano from the Cleveland Institute of Music, Margo works with many instrumentalists, singers, and choirs and has performed with Kol Zimrah Jewish Community Singers in Paris for a European premiere and in Berlin for the Louis Lewandowski Festival. A jill of many trades, she serves as pianist, administrator, and communications coordinator for several organizations and is a certified Salesforce administrator. On the rare occasion when Margo has free time, it is spent playing tennis enjoying the company of her extraordinarily supportive husband and very imaginative child.
Our Special Thank You to the
NDBF BOARD MEMBERS
Philip M Gattone, M.Ed.
Amy L. Dunn, MD
James R. Christensen, Jr.
Joseph Alioto, MD
Joseph J. Helfert II
Kelly Wornall
Lucas Taylor
Megan Lee
Paulette Bryant, MD
Peter Kouides, MD
Ryan Griffith
Joe Alioto, MD
Lisa Boggio
James Christensen, Jr.
Eldon Ham
Joe Helfert II
Jeannie Moy
Lucas Taylor
Len Valentino, MD
KIMANDSCOTT
MARTIN