DONOR DIGEST
A LETTER FROM THE CEO
Friend,
As we close the year, I’m reminded of the power of one voice a voice that unites everyone in our blood and bleeding disorders community. Each day, our team, doctors, clinicians, and chapters work together to make sure those with inheritable blood and bleeding disorders are supported and informed.
In 1948, NBDF was founded by Betty Jane and Robert Henry to fund research and connect with clinicians for their son, Lee, when hemophilia treatment was limited. As word spread, people gathered across the country for support, blood drives, and giving, forming our first chapters and a strong community.
Today, that community drives us forward. We’ve made strides, but our work is not done. We’re committed to ensuring that every person with an inheritable blood or bleeding disorder has access to best treatment and care, education, advocacy and support.
Your support fuels research, services, and advocacy, empowering the voices of our entire community.
Thank you for standing with us.
Warm regards,
Phil Gattone Chief Executive Officer National Bleeding Disorders Foundation bleeding.org
The National Bleeding Disorders Foundation’s 76th Annual Bleeding Disorders Conference (BDC) in Atlanta, Georgia, was a resounding success!
Attendees gathered from across the nation to connect, learn, and share in the vibrant and welcoming atmosphere of the Peach State. The conference provided an invaluable opportunity for members of the inheritable blood and bleeding disorders community including patients, caregivers, and medical professionals to engage in educational sessions, gain insights from leading experts, and explore cutting-edge research and advancements in treatment. Highlights included sessions on scientific breakthroughs, practical management strategies, and networking events that fostered lasting connections among community members. This year's event not only advanced knowledge and advocacy but also strengthened the network of support and understanding within the inheritable blood and bleeding disorders community, underscoring the collective mission to improve lives and inspire hope.
The Red Tie Soiree was a memorable evening of unity, fine dining, and heartfelt storytelling, dedicated to supporting the National Bleeding Disorders Foundation's mission. Guests enjoyed a silent auction, an exciting live auction, and moving stories from the inheritable blood and bleeding disorders community
The evening honored Brian Andrew, NBDF’s Pathway to Cures Investment Committee member and former Board Chair, recognizing his commitment to advancing the foundation’s goals.
The evening was also marked by the moving words from Margo SchwartzNewton from BDAI sharing her story and NBDF’s imprint her family’s journey. This impactful event underscored NBDF’s dedication to finding cures and preventing complications for inheritable blood and bleeding disorders through innovative research, education, and advocacy
The National Bleeding Disorders Foundation would like to honor the life and legacy of our dear colleague and friend, Neil Frick, Senior Vice President for Medical Programs and Information, who passed away earlier this year. Since joining NBDF in 1998, Neil dedicated his life to advancing our mission, providing unwavering support to the bleeding disorders community, and making an indelible impact on countless lives.
Neil’s kindness, expertise, and tireless advocacy defined his work and touched everyone who had the privilege of knowing him. His contributions will forever be woven into the fabric of our foundation, and his memory will continue to inspire our efforts moving forward.
Thank you to the many community members, stakeholders, and friends who have shown remarkable support for one another during this difficult time, as we all acknowledge the profound impact of Neil's passing. On behalf of Neil’s family, we are deeply grateful for the continued love and support in recent months.
COLLIN PALMER
TORI ABEYTA SIDHART NAMBIAR
NATALIE LYNCH
STEPHANI DALBY
The NYC Marathon happened November 3rd, 2024, and NBDF had 5 runners representing the inheritable blood and bleeding disorders community. This incredible team of runners raised nearly $20,000 to support individuals
and families with inheritable blood and bleeding disorders. Next year, NBDF hopes to have representation in 4 major marathons across the United States (NYC Half Marathon, NYC Full Marathon, Denver Marathon and San Francisco Marathon) in a shared goal: to raise vital funds and awareness for those who rely on our programs and services.
Spots are limited! If you are interested in participating, email Victor Da Silva at vdasilva@bleeding.org.
YOUR GIFT MATTERS
DONATE BEFORE DECEMBER 31ST.
If you’ve already made a gift this year-end, please know how deeply grateful we are for your generosity. You have been an essential part of our mission, and your impact is felt every day by those we serve. We cannot thank you enough for standing with us and making a difference in so many lives.
If you haven’t had a chance to give, there is still time! By making a gift before midnight on December 31st, you can make a meaningful impact and also take advantage of 2024 tax deductions.
Every dollar counts and every act of generosity strengthens our shared mission of supporting individuals and families living with inheritable blood or bleeding disorders.
LEAVE A LASTING LEGACY THROUGH PLANNED GIVING
Leaving a legacy is a gift that costs nothing during your lifetime. There are many ways to plan an estate or legacy gift to help NBDF’s mission, like a bequest in your will or living trust, a charitable gift annuity of cash or stock, or by designating NBDF as the primary or contingent beneficiary in your planning. By planning today, you ensure that NBDF continues to provide research, education, and advocacy for individuals and families affected by inheritable blood and bleeding disorders.
For more information about planned giving, please contact Beth Whitehouse, Vice President of Advancement at bwhitehouse@bleeding.org or visit our website today
WARM WISHES FOR A JOYFUL HOLIDAY SEASON
