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Jeanne White-Ginder
One Voice, Many Hearts: BDC 2024 Opens with Emotional Tribute to Past and Future
In a night that will be remembered for years to come, the Bleeding Disorders Conference 2024 kicked off with an opening ceremony that seamlessly blended history, hope, and harmonies As the lights dimmed in the packed hall, attendees found themselves on an emotional journey through the past, present, and future of the bleeding disorders community.
BDC's Opening Session
Thursday,September12th,5:00pm-6:15pm
GWCC | B102-103 - Level 1
Dawn Rotellini, Chief Operating Officer for the National Bleeding Disorders Foundation (NBDF), set the stage with a captivating narrative of the foundation’s evolution, punctuated by audience giveaways that had everyone on the edge of their seats. The foundation's new identity, showcased at Bleeding.org, symbolized a fresh chapter in its storied history.
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One Voice, Many Hearts continued
The air filled with angelic voices as the Georgia Boy Choir's rendition of "One Voice" provided a poignant reminder of the power of unity a theme that would resonate throughout the evening.
Ryan Griffith, NBDF Board Chair, took the stage with palpable enthusiasm. "Wow! How about that for a conference opener!" he exclaimed, leading another round of applause for Dawn Rotellini and the Georgia Boy Choir Griffith's words painted a vivid picture of the NBDF's journey, from "a small group of families fighting for a better future to a powerful community united by our shared commitment." His call to action for attendees to share their experiences using #BDC2024 set the tone for an engaging and interactive conference
In a moment of gratitude, Griffith acknowledged the sponsors whose support made the event possible, underscoring the collaborative spirit that drives the community forward.
NBDF President and CEO Phil Gattone took center stage, delivering a stirring keynote on "The Power of One Voice " His words, echoing the choir's melody, emphasized the strength found in collective advocacy and the digital amplification of their cause.
But it was the “Phil & Friends" segment that truly brought home the personal impact of the foundation's work
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One Voice, Many Hearts contin
From heartfelt tributes to fallen leadership, the segment painted
The highlight of the evening cam documentary. As scenes flickere only by occasional gasps and sn Ginder, Ryan's mother, whose presence and words left not a dry eye in the house
In a touching finale, the NBDF announced a $10,000 donation to the National AIDS Memorial, bridging past struggles with future hope
As attendees filed out, the buzz was palpable. This wasn't just an opening ceremony; it was a rallying cry, a remembrance, and a renewal of purpose. The message was clear: in the world of bleeding disorders, every voice counts, and together, they form a chorus of change.
Stay tuned for more coverage as BDC 2024 unfolds, promising insights, innovations, and inspirations in the days to come #BDC2024 is more than a hashtag it's a movement
Tequila, Roundups, and Big Dreams: How Bleeding Disorders Orgs are Shaking Up Fundraising
Hey there, BDC Daily readers! Hold onto your hats, because this year's Bleeding Disorders Conference just showed us that our community leaders aren't just thinking outside the box they're tossing the box out entirely!
Remember when fundraising meant bake sales and car washes? Well, Bridget Tyree, Executive Director of the Gateway Hemophilia Association, from the Gateway Hemophilia Association is here to spice things up literally She turned a wine tasting into a tequila fiesta! "We brought 200 people to a local restaurant, raised $60,000, and created a win-win situation for everyone involved," Bridget told us with a grin. Now that's what we call raising spirits!
But wait, there's more! Stephanie Dupree, Development Manager of the Nevada Chapter of NBDF, is proving that small change can make a big difference Her chapter's partnering with local businesses including a marijuana dispensary for a roundup campaign. As Stephanie puts it, "It's about finding partners who align with our mission and are eager to support the community." Who knew your spare change could pack such a punch?
Now, if you're an innovator like Nooshin Kumar, Executive Director of the Hemophilia Association of San Diego County, you might be thinking, "How can I possibly do all this?" Well, Nooshin’s got a pro tip for you: "We've pared down our calendar to key events and developed a strong MOU with our local treatment center." It's all about working smarter, not harder, folks!
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Tequila, Roundups, and Big Dreams continued
But let's dream big for a moment Phil M Gattone, President and CEO of the National Bleeding Disorders Foundation, is shooting for the stars. "We're aiming to secure million-dollar donations by partnering with financial institutions and connecting with high-net-worth individuals," he shared. The secret ingredient in all of this? Teamwork! As Phil put it, "By sharing our compelling stories and working together, we can open doors to new funding opportunities."
Diversification of Funding: Navigating a Changing Fiscal Environment
Thursday,September12th,11:00am-11:50am
GWCC | B313b-314 - Level 3
But wait folks, Bridget summed it up perfectly: "We're not just fundraising We're building communities, forging partnerships, and creating experiences that resonate with donors and supporters alike " So, there you have it Our community isn't just facing challenges we're tackling them head-on with innovation, education and advocacy ideas. Stay tuned for more updates from the Bleeding Disorders Conference, where we're not just talking about the future of care and support we're creating it!
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Georgia World Congress Center Building B
A Vision for Tomorrow: NBDF's CEO Energizes Chapters with Bold Plans
Chapter Highlight
In a dynamic meeting that buzzed with enthusiasm, NBDF's President and CEO Phil Gattone captivated chapter representatives with his vibrant vision for the bleeding disorders community The atmosphere was electric as Phil shared his insights and plans for the future
With genuine passion, Phil took the audience on a journey through the organization's rich 76-year history, acknowledging the living legends who've shaped our community "We've come a long way," he remarked warmly, "and we're just getting started "
But Phil's focus was squarely on the future
He outlined an ambitious six-point plan for community improvement: access, innovation, organization, sustainability, vision, and community engagement His energy was contagious as he detailed each point, painting a picture of a brighter future for all those affected by bleeding disorders
"We need solutions that work now," Phil emphasized, his determination evident "Our focus is on innovations that address immediate needs " The audience nodded in agreement, recognizing the importance of timely, effective care
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Join NBDF on Wednesdays for free, live seminars from experts on bleeding disorders.
Hear the latest research, lifestyle tips, and more in the comfort of your own home.
BE OUR GUEST!
Interested in being a speaker? Contact PR at kclark@bleeding org
Register at bleeding.org/events
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Meet NBDF’s CEO
Thursday,September12th,10:00am-11:00am
GWCC | B313b-314 - Level 3
The BDC registration team is ready to welcome attendees! Meet Anna Sprovskaya, Frenil Dand, and Jenny Tran, who are making sure everything runs smoothly.
��: Dawn Rotellini/Instagram
NBDF's executive officers
Dawn Rotellini, Peter Harvey, Michael Recht, and actor Greg Grunberg share smiles at BDC 2024's Exhibit Hall. A perfect blend of advocacy and star power!
��: Dawn Rotellini/Instagram
