Kicking Off the 76th Annual Bleeding Disorders Conference
The National Bleeding Disorders Foundation’s (NBDF) 76th Annual Bleeding Disorders Conference (BDC) is finally here, and there’s no better place to host it than in the vibrant and welcoming city of
Atlanta, Georgia the great Peach State. Whether you're here for the first time or a returning attendee, this year promises to be an unforgettable experience filled with learning, community, and inspiration
Gathering Strength and Knowledge
For those of us living with or working within the bleeding disorders community, this conference is more than just an event it’s a chance to come together, share stories, and unite around our collective mission of improving lives Over the next few days, you’ll have the opportunity to network with other community members, learn from leading experts, and explore the latest advancements in research, treatments, and advocacy
This year’s program is packed with educational sessions that touch on everything from the latest scientific breakthroughs to practical tips for managing daily life with a bleeding disorder With opportunities for patients, caregivers, and medical professionals alike, this is your time to ask questions, seek expert advice, and gain valuable knowledge that can make a real difference in your life and the lives of others
Nathan Schaefer, Vice President of Public Policy at the Networking Hour: Chapter, Sponsored by Pfizer.
The Power of Networking and Community
One of the greatest aspects of this conference is the chance to connect with others who truly understand your journey.
Whether you're engaging in a roundtable discussion, meeting with healthcare providers, or chatting with families who share similar experiences, every conversation helps build a stronger community. These connections often last long after the conference ends, creating a support network that continues to grow
As you explore the halls and events, be sure to introduce yourself, share your story, and learn from those around you. The sense of unity at this conference is one of its most powerful features, and each of you plays a role in fostering that connection.
#TEAMNYLI
Join NBDF on Wednesdays for free, live seminars from experts on bleeding disorders.
Hear the latest research, lifestyle tips, and more in the comfort of your own home.
BE OUR GUEST!
Interested in being a speaker? Contact PR at kclark@bleeding org
Register at bleeding.org/events
Opening Session Highlight
Jeanne White-Ginder and Ryan White
The Story of Ryan White
In addition to the informative sessions, we’re thrilled to offer a special highlight that’s sure to move and inspire you during the opening session at 5 p m on Thursday, September 12, 2024 Attendees will have the exclusive opportunity to watch a sneak peek of the upcoming Ryan White documentary trailer This powerful documentary delves into the life of Ryan White, the courageous young man who became a national symbol of hope and advocacy for the entire community
BDC's Opening Session Thursday,September12th,5:00pm-6:15pm
GWCC | B102-103 - Level 1
The trailer features Ryan’s mother, Jeanne White-Ginder, who will be sharing personal stories about her son and their family’s fight against discrimination Ryan’s story of strength, resilience, and advocacy has touched the lives of millions, and this preview promises to offer a poignant reminder of the importance of education, compassion, and perseverance in the face of adversity
Don’t miss it!
Get Ready for an Unforgettable Experience
As we embark on the first day of this year’s Bleeding Disorders Conference, let’s take a moment to appreciate the incredible journey that brought us all together From the personal triumphs to the ongoing challenges, this conference is a reflection of the strength, determination, and hope that define our community
Be sure to visit bleeding.org/bdc-connections, the ffi i l BDC f th f h d l k
Unveiling Voices for Policy Change
At the Industry Stakeholder Meeting (Public Policy) on September 11, 2024, the National Bleeding Disorders Foundation (NBDF) Public Policy team once again demonstrated the incredible power of collective advocacy in shaping a brighter future for the bleeding disorders community. For those of us living with, or caring for someone with, a bleeding disorder, it’s critical to know that our voices are being heard at the highest levels of government and this session showed just how much progress is being made on our behalf
A major highlight was the continued momentum behind the Health Co-pays Act and Safe Step Act, two legislative efforts that aim to eliminate the financial barriers that many of us face when trying to access life-saving treatments.
With 10 new co-sponsors added to the Senate, these initiatives are gaining traction and moving closer to becoming law meaning that more of us will have better access to the therapies we need to stay healthy
One of the most exciting and innovative projects introduced at the session was the Voices for Policy Change initiative, a series of 16 powerful, peer-to-peer videos that break down complex policy issues into relatable stories from people like us By making these policies easier to understand, NBDF is equipping our community with the knowledge we need to advocate for ourselves, whether it’s in a doctor's office, in the workplace, or even with lawmakers.
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Unveiling Voices for Policy Change
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With the upcoming election season, NB is also turning its focus to voter engagement with its Get Out the Vote initiative. This campaign is all about ma sure that the bleeding disorders commu is informed, registered, and ready to vo the issues that impact our health and w being From postcards distributed at th conference to social media resources, they’re giving us the tools to make our voices heard when it counts the most
The meeting also included critical upda on state-level advocacy, including effor pass accumulator adjuster bills and wo with prescription drug affordability boa to ensure that we all have access to the therapies we need The NBDF team’s dedication to fighting for patient protec on both state and federal levels is a testament to their unwavering commitm to our community.
As the meeting came to a close, it was that the NBDF Public Policy team isn’t j advocating on our behalf they’re empowering us to get involved in these crucial efforts Whether it’s through rai our voices in Washington, educating ourselves and others, or simply getting to vote, we all have a role to play in securing a healthier future for the bleed disorders community. Together, we’re making a difference one policy, win at time
Industry Stakeholder Meeting
Wednesday, September 11th, 2:30 pm - 4:00 pm
GWCC | B408 - Level 4
