In Touch Newsletter July 2025

Page 1


Touch

Welcome to the NKF In Touch E-Newsletter!

If you are a new reader, welcome! Our monthly In Touch e-newsletter is your go to source for the latest updates from the National Kidney Federation.

Whether you're a patient, family member, a healthcare professional or a supporter, this newsletter is designed to keep you informed and connected.

Each month, we share the latest updates in the renal world, highlight upcoming events and campaigns and provide updates on the work we're doing to support kidney patients across the UK.

You'll also find opportunities to get involved, whether through fundraising or simply to help raise awareness.

Thank you for supporting our charity, we hope you enjoy this issue!

All the best,

The National Kidney Federation

You're Invited: The NKF Annual Event 2025

This October, we’re bringing our main event day to Sunday 12th October 2025 at the Hilton Hotel, East Midlands Airport (DE74 2YZ) and we’d love for you to be there!

This annual gathering is a fantastic opportunity for kidney patients, families, carers, and professionals to come together, share knowledge, and build supportive connections.

Whether you’re newly diagnosed or have been managing your kidney health for some time, everyone is welcome.

What to Expect...

Sponsored by

Hear from patients, experts and advocates

From personal stories to professional insights listen to patients, experts, and advocates as they share their experiences and advancements, in kidney health.

Browse Our Exhibition Hall

Discover how other organisations are making an impact in renal care and support.

Refreshments and Lunch

Enjoy complimentary teas and coffees throughout the day, plus a delicious buffet lunch.

Book Your Annual Event Ticket

Day Delegate Rate: £55 per person

NKF Members receive an exclusive 10% discount on the day delegate rate! Not an NKF Member yet? Sign up here: www.kidney.org.uk/member

Book your Annual Event day delegate ticket: www.kidney.org.uk/Event/nkf-annual-event-2025

Make a Weekend of It!

Saturday Social – 11th October 2025

Thinking of staying over the night before? Join us for a evening buffet and quiz night sponsored by Stanningley Pharma, a fun and relaxed evening for Saturday hotel guests. This is FREE for anyone staying at the hotel on the Saturday evening. (Please book your free buffet when you book your day delegate place.)

Book Your Stay

Stay on-site and enjoy the full weekend experience.

• £110 – Single room

• £120 – Double/Twin room

Price includes breakfast and parking

Rooms must be booked directly with the hotel. Please be aware other booking sites may not include breakfast or parking. Book accommodation here: www.hilton.com/en/attend-my-event/emahnhn-91m45896dc3-5095-4cd5-a177-78409d619271

For more information on the event programme, please visit our website: www.kidney.org.uk/Event/nkf-annual-event-2025

Sign Our Letter to the Prime Minister - Your Voice Matters

As a member of the kidney community and someone who cares about kidney health, we need your help. Will you sign our open letter to the Prime Minister?

The government has published a 10-year health plan, which sets out the long-term strategy for the NHS. While this is much needed, much more needs to be done to ensure kidney disease is prioritised – it has been overlooked for too long.

And we’re all in agreement. Together with the UK Kidney Association, Kidney Care UK, and the PKD charity, we’re calling on the Prime Minister to take action – starting with a national strategy on kidney disease.

A national strategy would set out how to deliver personalised care and ensure urgent action to curb the rise of kidney disease and protect more people from kidney failure.

Join us to call for government action

We need your support to make this happen. The more people who sign the letter, the harder we will be to ignore.

Have your voice heard, add your name to the letter and call for a national strategy on kidney disease.

To sign the letter, please visit: www.kidney.org.uk/news/sign-our-letter-to-the-prime-minister-your-voice-matters

Thank you very much for your support.

Peer Support for Individuals Affected by Kidney Disease

Living with kidney disease can feel overwhelming, but you're not alone. The NKF National Peer Support Service is free and confidential connecting people affected by kidney disease.

Whether you're a patient, carer or family member, our trained peer supporters are there for you to share similar lived experiences and provide guidance.

Our peers, aged 20 to 80, are DBS checked and fully trained, offering lived experiences in areas like dialysis (home, peritonal, nocturnal), transplant journeys, balancing work or studies, travelling with treatment, and more.

With new funding from the National Lottery Community Fund we're expanding our reach and training more peer supporters.

If you would like to reach out to have a chat with one of our Peer Supporters, please call our NKF Helpline on 0800 169 09 36 or email helpline@kidney.org.uk.

Thanks to the National Lottery players' support for helping us to continue our lifeline of services when our supporters need them most.

We're Growing and We Need You!

Thanks to the incredible success of the NKF National Peer Support Service, demand is growing and we’re looking for more volunteers to be peers.

To do that, we need more passionate, understanding volunteers who want to support others.

We’re especially looking for people aged 30 to 60 who can share real, lived experiences such as:

• A father with a young family who has balanced dialysis with work and parenting.

• A mother with a young family who has balanced dialysis with work and parenting.

• A male supporter with APD experience (overnight peritoneal dialysis) willing to share their insights into managing their treatment from home.

If you’re ready to give back, and would like to connect and make a real difference, we would love to hear from you with your interest in becoming a NKF Peer Supporter. Please contact our Helpline team on 0800 169 09 36 or email helpline@kidney.org.uk.

You Need to Know 5 Years Later

Dr. Hellena Habte-Asres Lead Clinical Academic Research Nurse in Diabetes & Chronic Kidney Disease (CKD) at Royal Free London NHS Foundation Trust will present on the impact of COVID-19 on people with CKD, what we know now and how to live well with CKD in the post pandemic world.

This webinar is sponsored and funded by Pfizer Limited.

To reserve your place to our webinar, sign up for free today: www.kidney.org.uk/Event/nkf-webinar-series

Catch Up Anytime, Anywhere!

Our past events and webinar recordings are available on our YouTube Channel ready for you to explore whenever it suits you. We've covered a wide range of important and often overlooked topics including travel and dialysis, foot care, skin care, sexual relationships, mental health, diet and so much more.

Whether you're looking for practical advice, emotional support or just want to feel more informed, empowered and connected, there's something for everyone.

Check out the NKF Webinar Series today and subscribe to our channel to stay updated with the latest content designed to support you on your journey.

www.youtube.com/@nationalkidneyfederation5995

Celebrating South Asian Heritage Month

Did you know that South Asian Heritage Month runs between 18 July and 17 August?

We will be re-sharing stories on our social channels throughout the month to feature people of South Asian Heritage with a connection to organ donation, highlighting how their roots have affected their route in life.

Through these stories we want to inspire people to:

- Confirm their decision on the NHS Organ Donor Register - Enhance their awareness of living donation

If you are not sure if you have already registered your decision, you can check on the NHS App in England and in Wales, and there is no harm registering again, it just shows how much you want to be an organ donor.

If you have not yet registered your decision to be an organ donor, please consider registering your decision on the NHS Organ Donor Register and encourage your family members to do the same. Two minutes now can save up to nine lives. Visit: organdonation.nhs.uk

Discuss living kidney donation with your family members, especially if someone in your extended family is waiting for a kidney transplant. Take your first step and find out more at: organdonation.nhs.uk/livingdonation

To get involved...

• Reshare some of our content on your socials

• If you're a business or organisation, why not include a feature on your intranet or newsletter?

• See if you have anyone internally who has experience of organ donation in some way

• If you're involved in a South Asian community group or a faith group, consider arranging a talk or event during South Asian Heritage Month to raise awareness of organ donation

DAYLife Summit 2025

Home Dialysis Summit, DAYLife, InterCEPT and the UKKA Home Dialysis Special Interest Group are pleased to announce a follow-up Summit taking place this September

This year’s event will focus less on policy and strategy, and more on practical steps that centres can take to improve access to - and retention on - home dialysis, alongside relevant educational content.

Please note: This event is for healthcare professionals only.

To register visit: www.ukkidney.org/health-professionals/events/daylife-summit-2025

Sheffield Kidney Institute Open Evening

Are you a kidney patient in the Sheffield area? The Sheffield Kidney Institute are hosting an open evening on Friday 25 July from 4pm-6pm in the foyer of the Sorby Renal Department.

The event will be hosted by pre-dialysis nurses Gwyn Somers and Debbie Douglas, with support from the transplant team and attendance by a patient who has undergone a kidney transplant.

NKF Helpline Advisor, Linda Pickering, will also be in attendance with pre and post transplant information folders.

Why attend?

- Gain useful knowledge for you and your family

- Empower yourself to manage your condition

- Make informed choices about your care

- Build a positive approach to kidney health

Refreshments will be available.

To attend the open day, please contact your local Sheffield Kidney Nurse Specialist on 0114 2269390/2266934

A Carer's Perspective on Attending UK Kidney Week 10 -

12 June

Sue Collins shares with us her perspective of attending UK Kidney Week in Bournemouth last month, to represent the Kidney Information Network (KIN). The Carers KIN offers an online space to connect with other families and partners of people with kidney disease to be able to share, ask questions and find encouragement: https://www.kidneyinfonet.org/kin/carers-kin/

“I booked into my hotel with a wonderful sea view from my room and the sun was shining. The conference centre for UK Kidney Week was just a short walk from the hotel, I checked in and browsed through the conference programme. It was a jam packed 3 days with a variety of lectures, talks, abstracts, poster displays, exhibitions stalls, networking, and of course the highlight session for me, ‘Caring for our Carers’.

So much was happening at the same time in different locations, so it was a case of working out what was the most interesting topic for you, highlighting that session in the programme so you knew where you were going and at what time.

There were 100’s of poster presentations located on different floors, covering every renal topic possible from Paediatrics to Geriatrics. I spent a long time browsing, some were very scientific, with it being a healthcare professional event.

I was particularly interested in topics relating to the end of life, palliative care and patient education. It was apparent that care and the facilities available were very different throughout the UK. Two posters discussed research studies that had been undertaken in my local area that I wasn’t aware of. One was at the regional renal centre titled ‘Setting up a renal support care service’ and the other one at my local hospital, ‘The loneliest disease: The role of social networks in CKD self management – A systematic review’. I have taken the researchers contact details and plan to contact them as they were really interesting findings.

Currie Moore had organised the carers session so well and prepared the venue with leaflets and the KIN information banners.

It was a lovely sunny day and I wore a cardigan! And I wasn’t going to take it off! I had knitted it during those last months – the wool is my favourite merino /yak and linen. The garment is full of mistakes, one sleeve is shorter than the other because the pattern is complicated, and I kept picking it up knitting a few rows and putting it down to do caring bits but it didn’t matter it was knitted with love and somehow gave me a warm hug.

Our session went really well and received so much positive feedback. I don’t know if it will be able to be shared at a future Zoom meeting, I know I would like to hear it again.

Several carers I met were interested in joining the KIN Facebook Group so hopefully we will be welcoming them soon.

Currie also presented an abstract regarding vascular access dilemmas which was an interesting session and included a talk from a patient who had experience of vascular access and he discussed the pros and cons.

Carers/patients weren’t able to access the main exhibition hall but there were 8 exhibitors outside to view which included the National Kidney Federation, Kidney Care UK, Kidney Research UK and they were all very friendly and had leaflets, pens and calico bags etc.

I spent time at the NKF stall, I had used their Helpline throughout my journey and they were expecting a visit from me – they even knew who I was and it was great to see them in person.

Harrogate is the venue for UK Kidney Week in 2026, 10-12 March. If you get the opportunity and are able to attend, it’s a great experience, you will enjoy it and meet some like-minded people. (I know it’s not easy being a carer and going away to something like this, but if the venue is local and you are able to attend you definitely would enjoy it).

Between lectures/poster presentations and enjoying meeting and chatting to people in the designated carers area I found time to do some sight-seeing.

If you haven’t been to Bournemouth before, here is a glimpse of what you can do (early in the morning before sessions and late afternoon/evening after sessions).

The open top bus round trip from Bournemouth pier to Poole was good fun.

An evening walk from Bournemouth Pier to Boscombe Pier – you can enjoy lovely scenery, say hi to the wild goats grazing on the cliffs, see the Red Arrow Memorial Sculpture remembering one of the pilots who sadly lost his life whilst flying at the Bournemouth Air Display. I even almost got involved and filmed for a TV programme You Bet for ITV which was being filmed on the beach in Boscombe.

I also enjoyed hearing the brass band playing in the bandstand at Bournemouth Winter Gardens and visited the Aviary – I had such fond memories of this and didn’t know a new rescue aviary replaced the old building and homes 200 homeless tropical birds looked after by volunteers. (It was a bit smelly) but the colourful birds had lots of fresh fruit and veggies to eat and you can ‘adopt’ one of the exotic species. And then before heading home, I spent a good few hours at the Russell Coates Art Gallery and Museum. The current exhibition was all about May Morris the younger daughter of William Morris – her original designs for embroidery and wallpaper were superb and something that I am interested in.

This is life after being a carer – selfishly doing just what you want to do and not rushing or thinking about other people. Yes, it's great going out with family/friends, but I enjoyed exploring on my own at my own pace – no set plan just enjoying the moment. I had a lovely time, thank you to Currie for organising my place and promoting the KIN in such a positive way.”

NKF Helpline - 0800 169 09 36

The Risk of Missing Dialysis

This information is for patients who are attending for regular haemodialysis sessions in the Renal Unit or at a satellite dialysis centre. It gives information on why dialysis is so important and what you should do if you want to miss a dialysis session.

Why is dialysis so important?

Dialysis is a treatment to remove waste products and fluid from your body when your kidneys are no longer able to do this.

If these waste products are allowed to build up, it can make you very unwell and if left untreated, can lead to death.

Your doctor has prescribed a dialysis programme for you that will reduce the amount of toxins in your blood and keep you feeling well.

If you choose not to complete your full prescribed dialysis time, or miss a dialysis session, this can have a bad effect on your health and lead to other long term health problems.

Sometimes things happen that may mean you cannot attend dialysis or you need to leave early While it’s not advised you miss any of your prescribed treatment, the unit do understand and are more than happy to discuss rearranging a dialysis session in an emergency or for a special occasion. It is not advisable to miss regular dialysis sessions, and your doctor will discuss this at your clinic appointment.

If you do decide that you do not wish to complete your prescribed treatment time, the nursing staff will ask you to sign a disclaimer form.

This form is used to inform your local Clinical Commissioning Group (CCG) as these are the people that pay for your treatment.

What if I want to miss a dialysis session?

It’s not advised that you miss a session. If you are feeling unwell, it is still important to attend for your dialysis as this may help you to feel better.

However, if you wish to rearrange a dialysis session, please speak to the nurse in charge of the shift in advance. They will discuss with you your best option to ensure that you still achieve your prescribed dialysis treatment.

If you do not wish to come for dialysis on the day you are due to attend, it is important that you take the following action:

Please call your dialysis unit and speak to the nurse in charge as early as possible before your appointment time.

If you do not make contact with the dialysis unit and the nurses are unable to reach you, they will have to send out a paramedic ambulance to your address in case you have been taken ill and are unable to contact you.

It is important that you make contact with the unit to avoid the nursing staff having to call out the emergency services.

The National Kidney Federation cannot accept responsibility for information provided. The above is for guidance only. Patients are advised to seek further information from their own doctor.

Dialysis leaflets are available from the NKF Helpline about dialysis. These titles include:

- The Risk of Missing Dialysis

- Introduction to Haemodialysis

- Home Dialysis: The Advantages

- Dialysis Line Insertion

- Fistula Care

- Having a Fistula & Living with a Fistula for Dialysis

- Home Dialysis Peer Support Service

- My First Haemodialysis

- Fluid Balance on Dialysis

- Introduction to Peritoneal Dialysis

- What is Peritonitis

- Myth Busting Home Therapies

- Protecting Your Feet During Dialysis

- Holiday Guidelines for Haemodialysis Patients

- Dialysis Patient Emergency Card (credit card size for patients to carry in their wallet/purses)

To request any of the above leaflets or our Dialysis Information pack, which includes all the above leaflets as well as 60 page book Patient Support Pack, please contact the NKF Helpline:

Email: helpline@kidney.org.uk

Call: 0800 169 0936

The NKF Helpline is open Monday to Thursday 08:30am - 5:00pm and Friday 08:30am - 12:30pm.

www.kidney.org.uk

Help Us Spread Kidney Awareness at Your Local GP Surgery

The NKF Helpline team have been working very hard to connect with local GP surgeries up and down the country to raise awareness about the importance of early detection of kidney disease.

We’re committed to supporting you and your family if you’re affected by kidney disease, reminding you that you’re not alone and that we’re here to empower you with practical knowledge to help you in your everyday life.

Pictured above are two fantastic GP surgeries (Harlow in Esssex and Johnstone in Scotland) that have kindly displayed our NKF support services in their waiting rooms.

Could you help us spread the word by speaking to your local GP practice?

Ask if they would be willing to display a poster, show our free support services on their waiting room TV, or display our early detection information booklets. Every small action can make a big difference and we want to be able to help as many people as possible and provide them with information they may need.

If you do speak to your GP reception team, we’d love to hear about it, please let us know by emailing helpline@kidney.org.uk.

Fresenius Medical Care UK & Ireland: Kasonde Konie’s story

Twenty-five years ago, Kasonde (53) was first diagnosed with CKD. Like many in the UK, she had little previous awareness or experience of the condition, so it was a totally new experience as she learned to adapt to her new reality. She described being diagnosed as an experience that “crash landed” on her.

Throughout the early stages of her relationship with in-centre dialysis, Kasonde described herself as “not faring very well”, as she repeatedly contracted infections and found issues with transport to access the treatment.

The impact of home dialysis

After struggling for a couple of years, Kasonde decided to look for alternative treatment options. She had done extensive research and discovered that home dialysis might be a better option for her if she was a suitable candidate. Home dialysis allows those with CKD to receive their treatment within the comfort of their own home. This meant that Kasonde was largely responsible for administering and timing her dialysis plan – removing the need to travel to a dialysis centre. Many people even opt to dialyse while they sleep. An increased amount of time on dialysis can lead to improved health outcomes for those with CKD, and potentially ease the restrictions on diet and fluid intake that would previously have been in place. And with the additional flexibility and convenience it brings, it can be a “life-changing” treatment option for those that are suitable for the pathway.

Kasonde transitioned to home dialysis in 2002 – a decision she described as life-changing. The transition allowed her to live life to the fullest, getting back her independence, and improving her health condition. Reflecting on this change, Kasonde concludes that home dialysis fundamentally allowed her to “manage the condition rather than the condition managing her”. Having experienced life with home dialysis as an option, Kasonde would find the idea of returning to in-centre treatment “unimaginable”.

Read more of Kasonde Konie's story here: https://freseniusmedicalcare.com/en-gb/media/newsroom/kasonde-konie-story/

*Please note that the patient's story includes one patient's opinion on their treatment options. To ensure that the best treatment options are provided, these should be discussed and agreed with a Healthcare professional*

Use 111

If you need urgent medical help but you’re not sure where to go, use 111 to get assessed and directed to the right place for you.

Call, go online or use the NHS App.

Together We Walked with a Purpose - Thank you!

We want to say a huge thank you to everyone who took part in our sponsored walking challenge. Whether you walked, donated, shared your story, cheered others on, or simply helped to spead the word, you've made a difference.

We've raised over £20,000 and are still counting! More importantly, we've raised incredible awareness for our charity, the services we provide, and the personal stories that show just how important our work is.

If you would like to donate and support our incredible #KidneyStrutters it is not too late. Donate via our Best Foot Forward Challenge JustGiving page: www.justgiving.com/campaign/bestfootforward2025

Sarah Shares Why She Took on the Challenge...

“There are two, well, three reasons really to why I decided to sign up for the challenge.

The first reason is very close to my heart, my Dad who is 90 this month has poor kidney function, for the last 12 months his function levels have been hovering between 23%-25%. So, whilst he seems thankfully stable, there is always the worry at the back of our minds that the kidneys will deteriorate further, and I am well aware of what this can lead to due to my work.

I work for a company called Independence Products, and we supply via prescription, shower protection pouches which allows both Haemodialysis and Peritoneal Dialysis patients the ability to shower safely without compromising themselves by infection.

Pictured: Sarah smashing out her steps

I have seen the huge difference this makes to people’s lives, we take a shower without thinking about it as this is the normal routine for us and we feel much fresher afterwards, but this isn’t easily possible for a dialysis patient due to the high infection risk so our products make personal care tasks so much easier. We receive some amazing testimonials which I find so heart warming.

The third reason is more personal. I have recently been on a health kick and have managed to lose 32kg since February this year and I am trying to lose a bit more, and I thought the step challenge for such a great cause would motivate me to be more active and raise money, to coin a phrase ‘kill two birds with one stone’.

I am so happy that I have managed to obtain a substantial amount for the Best Foot Forward Challenge so the National Kidney Federation can continue to provide vital support to patients and their families and even though I hit my target of 70,951 steps in 11 days I am still out walking and am currently on 133,007 steps and counting…”

Take on a challenge and change a life

Are you looking for your next big adventure or a meaningful way to make a difference? Take part in one of our incredible fundraising events! Whether you're chasing adrenaline with a tandem skydive, running in iconic events like the Robin Hood Half Marathon this September or the Cardiff Half in October, or cycling from Vietnam to Cambodia this November - there's something for everyone. Looking ahead, we're trekking under the magical Northern Lights in March and walking in the footsteps of legends on our Dalai Lama trek next October 2026. These once in a lifetime experiences aren't just about the challenge, they're about changing lives by raising funds for a vital support service that makes a real impact.

Prefer something closer to home?

Why not host your own fundraising event! From coffee mornings and bake sales to raffles, quiz nights or unique ideas of your own, every pound you raise helps us continue supporting those who need us most. However you choose to get involved we'll be with you every step of the way. Sign up, get inspired and be part of something truly life changing.

To send in your fundraising idea email pete@kidney.org.uk.

Patient Participation Opportunities

Are You Living with the Kidney Condition Membranoproliferative Glomerulonephritis?

NICE (National Institute for Health and Clinical Excellence) is currently reviewing the effectiveness of a new drug Pegcetacoplan for people aged 12 and over living with primary complement 3 glomerulopathy or primary immune-complex membranoproliferative glomerulonephritis.

To support this review, the National Kidney Federation is gathering experiences from those affected by the condition.

If you’d like to get involved or have a conversation about your experience, please email nkf@kidney.org.uk by Wednesday 6 August.

Exploring Kidney Conditions Through Creative Arts

An exciting project exploring how creative arts can increase awareness and understanding of what it is like to live with a kidney condition

What are we doing?

We are running a small creative workshop for 6-8 people in Bristol in September. Together we will explore the role that the creative arts can play in sharing stories and experiences of living with kidney conditions.

Who are we looking for?

People aged 18 or over from a wide range of different backgrounds who:

• Live with a kidney condition

• Care for or support someone with a kidney condition (past or present)

• Understand and speak English

No arts or creative experience is needed, just an interest and willingness to explore these under the guidance of an experienced creative arts facilitator.

What is involved

• Participate in a creative workshop (in Bristol 10th or 12th September 2025)

• Discuss creative methods and reflect on the experience of taking part

• Discuss how arts could be used to bring people together to share stories about living with kidney conditions and to improve public understanding

Interested?

Please contact the research team who will send you a key information document for you to read and an expression of interest form.

Email: little-whispers-project@bristol.ac.uk

Have you had a kidney transplant in the last two years?

Would you like to help us better understand how patients feel about their transplant health care?

We are looking for people to take part in an interview study.

We want to design a survey to measure the patient experience of kidney transplant care.

We are asking kidney transplant patients to be involved to help us write and test the survey. We want to be sure the survey works for patients and is about what really matters to them.

If you think you might be interested, you can find out more here:

07379 076 571

TransplantPREM@nhsbt.nhs.uk

https://www.odt.nhs.uk/information-for-patients/

What Questions Do You Think Research Should Answer About Organ Donation and Transplantation?

The UK Organ Donation and Transplantation Research Network are running a survey for anyone affected by organ donation and transplantation to let us know what you think are the most important questions that should be answered by research. They want to hear from patients, their loved ones, carers, and living donors to understand what organ donation and transplantation research should focus on to improve patient outcomes.

Your ideas will help them to identify the research needed to help improve access, care and treatment for people with organ failure and transplant patients. They want to know your questions; no matter how large or small, they are all important.

The UK Organ Donation and Transplantation Research Network are running this survey to support NHS Blood and Transplant (NHSBT) to identify their research priorities for the next round of funding from the National Institute for Health and Care Research (NIHR). They also want to generate questions from patients and the public to co-design with researchers.

To enter the survey, visit: www.ukodtrn.org/au-news/shape-the-future-of-research-519

Are you an informal caregiver for someone receiving peritoneal dialysis?

Do you feel emotionally or physically exhausted from caregiving?

Can you help us? Researchers at Coventry University are looking for participants to take part in a study exploring compassion fatigue in informal caregivers of individuals receiving peritoneal dialysis

We would like to hear from you if:

• Have been a caregiver for a minimum of 12 months

• Provide unpaid ongoing care of a loved one receiving peritoneal dialysis

• Experience symptoms of compassion fatigue, such as emotional exhaustion, stress or feeling overwhelmed due to care giving

• You are aged over 18

• Are willing to discuss your caregiving experiences in a research interview

• Are fluent in English and can participate in a remote interview (via Microsoft Teams.

What will I be asked to do?

The study will involve taking part in an interview with the lead researcher, Natasha Neilan, to share your experiences. The interview will take place online and will last around 60 minutes. A date & time that suits you can be arranged.

You will be invited to an initial screening phone call before participation For your participation, you will also receive a £20 shopping voucher!

ANONYMITY AND CONFIDENTIALITY WILL BE STRICTLY UPHELD

Research Ethics Number: P185233

If you are interested in participating or would like more information, please contact neilann@Coventry.ac.uk

LET’S STAY CONNECTED.

Let’s work together to spread awareness of kidney disease, and support patients and fa i ies on our journey. Scan to follow us on social media:

NKF KPA Members

Currently there are 51 Kidney Patient Associations (KPAs) who are members of the NKF. Please find the details below of the KPAs available or for more information please contact the NKF office on 01909 544 999 or email chris@kidney.org.uk

Addenbrooke's KPA

Barts Renal Patients' Association

Bradford KPA

Bristol Area KPA

Chesterfield KPA

Colchester KPA

Coventry & Warwickshire KPA

Doncaster and Bassetlaw Kidney Association

Dorset KPA

Dudley KPA

Dumfries & Galloway KPA

Exeter & District KPA

Friends of Derriford Hospital Kidney Unit

Gloucestershire Kidney Patients' Association

Guy’s & St.Thomas’ KPA

Heart of England KPA

Humberside KPA

Ipswich & District Kidney Association

Isle of Wight KPA

Kent KPA

King’s KPA

Kernow KPA

Leicestershire KPA

Lister Area KPA

Liverpool KPA

Manchester Royal Infirmary KPA

Manx KPA

North East Kidney Patients' Association (NEKPA)

Northamptonshire KPA

North Staffs & South Cheshire KPA

Nottingham and Notts KPA

Orkney KPA

Queen Elizabeth Hospital KPA

Royal Derby KPA

Royal Free Hospital KPA

Royal London Hospital KPA

Sheffield Area Kidney Association (SAKA)

Scottish Kidney Federation

Shropshire KPA

Six Counties KPA

South Eastern KPA

South East Scotland KPA

Southport Kidney Fund

St Helier and Surrey KPA

Tyneside KPA

United Norwich KPA

Wessex KPA

West London KPA

West Riding KPA

Wrexham Maelor KPA

Ysbyty Gwynedd KPA

Associate Members

British Association of Social Workers (BASW) Danielle's Flutterbyes

K.D.A.R.S

Kidney Cancer UK

UK Renal Social Work Group

If you are a Kidney Patient Association that would like to become an NKF member please contact chris@kidney.org.uk or call 07908 845713.

Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.