About Keystone Inst I tute Ind IA
Keystone Institute India (KII) is a values-based national training institute designed to improve the lives of people with disability across India and to fuel a change movement on a national level, working toward a more inclusive, just Indian society where all are valued and all belong. The work of KII serves as a catalyst for the development of supports, services, and initiatives, which better safeguard vulnerable people, establishes thinking which works towards full citizenship and full lives, respects the voices and perspectives of people with disability and their families, and facilitates India moving toward a society where all have possibilities and potential, and all matter.
foreword by director - Keystone Institute India
I joined Keystone Institute India as a Director with the vision that one day, our world will be inclusive, full of connections, and abundant with opportunities for growth. I have personally and professionally benefited from the ideas and global efforts of Keystone Human Services. I take pride in saying that I am a believer and a torchbearer of Keystone’s principles and services to the best of my abilities.
Ideas and tools such as Person-Centered Planning, SRV, PATHs, and self-advocacy serve as powerful instruments for eliminating ambiguity and providing a structured framework for collaboration. They not only shape the present and future but also create meaningful, lasting impacts on individuals’ lives, empowering them to take control of their own journeys.
It is truly overwhelming to witness the impact of our work—individuals being reunited with their families, developing plans and ambitions. Professionals and practitioners are empowered with knowledge and skills, while collaborators gain the confidence to forge strong, lasting partnerships with us.
Keystone Institute India is a driving force behind global change under the leadership of Keystone Human Services International. KHSI planted the seed for transformation in 2015, which has now grown into a fully developed tree, expanding its branches and roots across India. We remain committed to our efforts and practices, engaging with broader audiences, professionals, changemakers, and direct support practitioners.
Our commitment remains unwavering. We strive to equip changemakers, professionals, and direct support practitioners with the tools to create lasting impact. As we celebrate nine years of progress, we reaffirm our dedication to ensuring that individuals with disabilities have the full right to enjoy all the good things in life.
I extend my heartfelt congratulations to the team for their dedication and leadership in bringing Jhalak—a reflection of our collective efforts—to life. This publication is more than just a glimpse of our work; it is a mirror that allows us to celebrate our successes, learn from our challenges, and step forward with renewed purpose. Jhalak beautifully captures life-changing stories, showcases the tireless commitment of our team and collaborators, and highlights the transformative power of strategic partnerships.
I envision the Keystone Institute India in collaboration with stakeholders and partners, walking in solidarity to foster change and drive meaningful outcomes in the lives of people with disabilities, their families, and their communities. Individuals are enabled, empowered, honoured, and valued. And a convoy of changemakers is supported and guided by the principles of the RPWD Act 2016 and Social Role Valorization (SRV).
shabina bano Director Keystone Institute India
letter by executive director, Keystone Institute
Dear Reader,
As I read these remarkable true tales of people’s lives, I am reminded that change is incremental. It rarely comes in dramatic, sudden, seismic shifts, but instead in tiny affirmations and indications that need to be noticed, for they are harbingers of what is to come. They are the first signs of better futures of each one of us, including people with disability, their families, and those of us who stand beside each other in mutual support.
Indeed, these “Glimpses” are exactly that. They are tiny but unmistakable signs of the times. New winds are blowing, the landscape is changing under our very feet, even if it seems almost imperceptible. In our training at Keystone Institute India, we often say “seeing is believing, but also, believing is seeing”. The authors and storytellers who have woven these glimpses are those who believed in ideas, were willing to given them a try, and so were able to discern the immense meaning in the shifts and transitions in everyday lives of individual people and organizations across the country.
What is being built here in India is not dependent on one person, or one organization – it is a network of strong and passionate people across the country who simply want better for everyone. People who yearn for a world where citizens with disabilities and other vulnerabilities take their place at the community table, contribute their gifts, and share our schools, our workplaces, our neighborhood, and the places and spaces where community happens
I invite you to savor each of these stories, mine them for meaning, and take heart that our collective efforts to create a world that works better for everyone is bearing fruit. Within each of them is a call to action, a mighty message of the changes happening incrementally, bit by bit, in front of our very eyes.
In partnership for change,
elizabeth P. neuville Executive Director Keystone Institute
Introdu C t I on
Welcome to Jhalak, a glimpse into some of the seemingly small, but powerfully impactful actions from across India, towards an inclusive Indian society where every individual is valued and everyone belongs. Since 2016, thousands of family members, professionals, and people with disabilities across India have been introduced to ideas and ways of thinking that are exciting, challenging, and a bit daunting. Founded on Social Role Valorization, these idea sets start from the rudimentary to the deeper, more advanced, highly individualized inclusive practices.
At the close of workshops and facilitated discussions, we are deeply strengthened by the networks and bonds of a shared vision, but sometimes also feeling distanced and alone as we seek to communicate our vision of living and working and sharing life alongside people with disability. We recognize that this transformation towards making the good things of life available to all, including people with disabilities, is a part of what India has to offer a world which appears increasingly polarized every day.
Our purpose within Jhalak is to offer a glimpse of some of the ways that people and organizations across India, have put the elegantly simple, but also paradoxically complex roots of Social Role Valorization to use to transform lives; steps that appear simple but are mighty in their power to alter life paths. We bring these to life through stories and images and invite you to reflect on how small change agentry steps speak of great courage and expression in a world that veers towards segregation, distance and congregation.
Consider it a bit of a curated “clearinghouse” of vision converted to action, of small steps forming the fabric of our movement towards equity, justice, and full, rich, meaningful lives. We encourage you to share and celebrate the work of building this all-embracing house. After seeing the glimpses offered, you may consider submitting other action steps you are aware of, to highlight, inspire, and challenge our community.
This volume of Jhalak brings to bear the hope and promise that each little step towards change brings. Change in the personal lives of people with disabilities, change in services, change in service providers, change that can touch everyone and herald a world that recognizes and values each and everyone. We offer this with gratitude and hope for many more to come. We salute and remember the small but mighty Rajasthani SRV implementation group for forming this idea, for setting us on this path, and for igniting a spark from which this small fire continues to grow.
Our vision is one where all people, regardless of ability or disability, are valued and contributing members of society. We believe that diverse and welcoming communities experience the gifts of all their members, and that such communities have much to teach us about how to live in harmony together.
Our community of practice stretches across India, and is comprised of activists, people with disabilities, advocates, family members, and those who are allies alongside vulnerable people. We are committed to learning about and using important and high-level idea sets, such as the principles of Social Role Valorization as well as person-centered inclusive practice in education, community life, vocation, home, and relationships. We are also committed to putting those ideas into practice.
We work ‘each in collaboration with each’; all are both teachers and learners, and we share what seems to “work” towards our vision freely. All of us are leaders in our commitment to better lives, whether through formal teaching, implementation, powerful role modelling, or sharing through media and writing. Our commitment to create a better world is one thing we share, along with a belief that our thinking frameworks, such as our core framework of SRV, are good guidance on the path towards such worthy work.
We invite you to share in the vision, the partnership, the hard work of creating change that brings the good things of life to us all. The work sketched in these glimpses bring to life incremental change actions which we think move the world a fraction closer towards the world we want to create.
A Poet IC r efle C t I on on Ident I
ty
A Reflection on Identity - I Am
By Rishab Anand
Editor’s Note: If ever there was a task worthy of profound reflection, it is the endeavor to craft a world where everyone belongs. This work invites us to confront deep truths about the essence of humanity, to challenge long-held assumptions about who “deserves” a good life, and to continually affirm the immeasurable value of every person. It demands that we rise to be our best selves, grounded in our worth, unwavering in our purpose, and committed to refining our roles as agents of change. Such transformation can only be nurtured on the solid foundation of truly knowing and valuing ourselves, the bedrock from which all meaningful inclusion begins. Poet Rishab Anand explores such ideas in this poem, entitled I Am.
I am because I am Let me exist in myself. Let me be lost in myself. No one can undertake my journey. Because no one can truly comprehend my destination.
I within myself am a universe of my own.
I am a pride within myself.
I am my honor; I dwell within me.
I am my Vanity.
I am the head that’s held up high.
I am the knowledge within myself, and I am the ignorance within my self.
I am my own universe.
I am a lie to my self and yet the truth that I uphold. I am a point to start with and yet the end of it all is in me.
I am the darkness within me, yet I hold the likeness of the radiant sun.
I am to myself the beginning and the culmination great. Well, I am my universe.
A Poetic Reflection on Social Role Valorization
By Shilpa Jaswal
Editor’s Note: This beautiful poem emerged during the 2024 workshop Deepening and Strengthening, organized by the Keystone Institute India in Ranchi, Jharkhand. Participant Shilpa Jaswal, affiliated with CINI, unveiled her poetic talent as she composed and shared this piece with the group. The poem powerfully captures themes of interpersonal connection and recognition of our shared humanity— an inspiring reflection of Social Role Valorization principles, emphasizing how we are more alike than different.
It’s not you who lacks something It’s not you who is downcast, Just like me and him and them
You’re a part of our community
Your life and my life are similar in many a way
Why walk apart when we’ve to walk the same way
At every cost we have this goal to achieve I won’t stop, neither must you
This tradition we have started Our ways cannot be parted
Building an Inclusive community is our goal
Achieving for everyone in the community a valued role!!
living a self-sustained life: A Journey of Purpose and Contribution
By Arva Kapasi
Editor’s Note: A beautiful reflection on the potential for all people to make positive contribution and lead a fuller life- indeed, gain the good things of life. If organizations are going to be a catalyst for this, they must also learn and grow.
In a world bustling with activity and endless pursuits, the idea of living a meaningful life often becomes overshadowed by the rush to meet basic needs. However, true fulfillment comes not just from survival but from purpose, contribution, and connection. This is the story of Mohammed Shamsher and his wife, Munira—a testament to the power of resilience, independence, and the human spirit’s capacity to thrive.
At the heart of their journey lies a beautiful truth: the essence of life is not measured by wealth or external success but by the ability to engage with others, share one’s unique gifts, and find joy in small victories. Mohammed, a creative soul at 60, and Munira, a determined individual navigating life with cerebral palsy, embody this philosophy. Despite their challenges, they strive to live a life that is not only selfsustained but also enriched with purpose and dignity.
Their path took a transformative turn when they joined the Pathways Foundation. For Mohammed, designing unique envelopes became more than just an artistic pursuit; it was a source of pride and independence. With the Foundation’s support, his creations were sold, allowing him to earn a modest income and, more importantly, a sense of accomplishment. Munira, though limited by motor difficulties, found her own rhythm by braiding fabric for rugs and mats. Together, they celebrated each other’s achievements, proving that even small steps can lead to profound impacts. They look forward to coming to work at the Pathways Foundation center every day, deriving great satisfaction from their roles.
As those of us who support them are learning, both from the amazing changes happening within our lifetimes in the hearts and minds of Indian people, as well as from what we are learning about how to include vulnerable people into everyday life, there indeed is room for everyone. All we need to do is move over and make a welcoming space. These are important lessons for the new era which is upon us.
Their newfound confidence extended beyond the Foundation. Actively participating in their community and religious activities, they became advocates of inclusion and self-sufficiency.
By sharing their creations and engaging with others, they demonstrated that everyone, regardless of their circumstances, has something valuable to offer.
Their story reminds us that life’s essence lies in belonging and contribution. In a society that often equates success with productivity, Mohammed and Munira challenge the norm by showing that true success is rooted in the joy of giving and the courage to embrace one’s journey. They inspire us to look beyond limitations, celebrating the triumphs that come from perseverance and community support.
As we reflect on their journey, let us remember that living a self-sustained life goes beyond independence—it is about creating a space where we can thrive, connect, and leave a meaningful mark. Through their resilience, Mohammed and Munira have redefined what it means to live with purpose, reminding us all that our contributions, no matter how small, can light the way for others.
Sam: Redefined
By Dr. Manisha Bhattacharya
Editor’s Note: Dr. Bhattacharya is a practicing psychologist as well as a national expert on Social Role Valorization. She applies her knowledge of SRV within her practice and writes here about her observations and learning from Sam’s life.
In 2018, I first met Sam. He was 13 years old - quiet, introverted, but with a warmth that resonated in his smile. At that time, his life was structured with typical adolescent routines: a full day at school, swimming lessons, tuition classes, painting, and the occasional vacation. Sam thrived in his community, attending an inclusive school where he studied through the NIOS board. He was the kind of person who preferred to listen rather than speak, finding comfort in being around others. He had been diagnosed with some medical condition as well but his world, like most teenagers, was defined by a balance of regular experiences and activities that gave him a sense of connection and belonging.
However, everything changed when Sam transitioned to a special school in 2018. The shift, intended to meet his evolving needs, had an overwhelming impact on his life. It wasn’t just an academic change; it was a loss of his valued roles, and with that, his sense of identity began to unravel. The once quiet, smiling young boy began to show signs of distress withdrawal, frustration, and, eventually, self-harm. The very things that had once brought him joy, like painting and swimming, were no longer of interest. He stopped eating, and his interactions with others became increasingly hostile. Sam’s behavior was becoming a manifestation of his inner turmoil he was losing his sense of self.
This profound shift was not just about his changing behavior - it was about the devaluation he was experiencing. In a new environment that marked him by his condition, Sam was identified not by his strengths or potential, but by his struggles. He was cast into negative roles: the “sick” child, the “problem” to be managed, the “aggressive” individual in need of therapy. It was heart-wrenching to watch as his identity became tied to labels, and his life was reduced to a series of medical treatments and restricted experiences.
At the time, I was also new to the principles of Social Role Valorization (SRV), which emphasizes the importance of creating valued roles to combat the devaluation that many people with disabilities face. It became clear to me that the stress Sam was experiencing was rooted in this very devaluation, loss of his roles, his sense of purpose, and his place in the world. The rejection, the segregation, the loss of control over his own life, it was all too clear. But SRV gave me a framework for understanding how to help Sam regain his dignity and sense of self.
The guiding principle of SRV is simple: to counter the negative roles imposed on individuals, we need to provide them with positive, valued roles. If someone experiences rejection, they need acceptance. If someone is controlled, they need autonomy. If someone is defined by their disability, they need opportunities to demonstrate competence and skill. And so, this became the starting point of Sam’s journey towards reclaiming his life.
We began with small steps. The first step was to integrate Sam into the local swimming club. This was not just about swimming, it was about giving him a place where he could be seen as a peer, a member of the community, someone with value. As Sam became more comfortable, we began exploring other roles that could restore his sense of purpose. His parents, who were initially considering residential
services, shifted their focus. Instead of removing him from his home environment, they began to see his potential for autonomy and independence.
One of Sam’s greatest joys had always been traveling, and his parents began to tap into that passion. What started as short drives evolved into day-long trips, and eventually, week-long vacations. These journeys allowed Sam to reclaim the role of a traveler, something he had lost when his life became confined to the structure of special schooling. As Sam regained his love for travel, he began to experience new roles: the adventurer, the explorer, the vacationer. His world opened up again.
But it didn’t stop there. Sam’s life was not limited to the roles of a patient or a passive participant. He returned to painting not in a drawing copy, but on canvas, as any skilled artist would. He became a regular customer at a local shop, participated in community life, and even took on the role of a responsible citizen by casting his vote in the last election. He was an independent commuter, navigating local transportation on his own, and a traveler who could explore the world again.
The real breakthrough came when his parents embraced the concept of Customized Employment. This approach, which tailors work opportunities to a person’s unique interests and strengths, opened a new chapter for Sam. Despite still working towards completing his Class X exams, Sam found parttime employment at a local travel agency. He began booking tickets, printing documents, and taking on responsibilities that many might not have thought possible for someone with his background. This shift wasn’t just about work it was about Sam being seen as a valued contributor to society, a role he had long been denied.
As I reflect on Sam’s journey, I am reminded of the power of SRV and the transformation it can bring. It is not just about overcoming challenges or providing therapy. It’s about seeing individual human beings for who they truly are and helping them carve out their own space in the world. Through the restoration of valued roles, Sam has moved from a life of devaluation and despair to one of autonomy, dignity, and connection.
Today, Sam’s life is filled with meaningful roles that enhance his sense of worth and his place in the world. His parents, once unsure of his potential, now stand as champions of his ability to live a full and independent life. They have come to understand that true empowerment comes not from isolation, but from integration through relationships, opportunities, and the support to thrive.
In the end, SRV is about seeing people for who they can become not for their conditions, but for their potential. Sam’s story is a testament to the power of this approach, showing how the simple act of reimagining one’s role in society can lead to profound and lasting change.
the Power of self-Advocacy: A Journey of Growth and Connection
By Kushi Acharya
Editor’s Note: On July 27th & 28th 2023, Ms. Kushi Acharya participated in the Advocacy Retreat, a pilot advocacy event in Bengaluru, and distinguished herself as a potential leader and facilitator. On April 8th 2024, she accompanied the KII team to Pondicherry and then to Tamil Nadu, serving as a member of the faculty team and emerging leader in the capacity building workshop for self-advocates entitled My Voice My Choice.. In this Jhalak, she reflects on this experience and its impact on her.
Self-advocacy is not just a skill—it is a gateway to empowerment. It is about recognizing your worth, setting boundaries, and finding your voice in a world that often overlooks diverse experiences. For many, the path to self-advocacy begins as a personal journey of discovery and grows into an inspiring mission to uplift others.
My own journey, from being a self-advocate to becoming a facilitator and trainer, has been one of profound learning, personal growth, and connection. It reached a pivotal moment when I was invited to lead a self-advocacy program in Pondicherry. As I prepared for this transition, I felt a mix of excitement and nervousness. The thought of standing before others as a guide felt surreal, yet it ignited a sense of purpose within me.
Arriving in Pondicherry, I was reminded of my own early steps as a self-advocate. The familiar materials brought back memories of discovering my strengths and learning to articulate my needs. This time, the roles were reversed. I was the facilitator. The sessions unfolded with activities centered around understanding personal preferences, establishing boundaries, and fostering a sense of self-worth.
What struck me most was the resilience of the participants. Despite the challenges they faced, their courage to share their stories and support one another was humbling. We laughed together during group exercises like navigating obstacles blindfolded, and we grew closer through activities that encouraged self-reflection and connection.
A visit to the Srishti Foundation, a village dedicated to empowering individuals with disabilities, deepened my understanding of independence and inclusion. Meeting Karthik, the founder, and seeing the residents joyfully engaged in their daily lives reaffirmed the importance of creating spaces where everyone can thrive. The lush greenery, the companionship of animals, and the sense of purpose among the residents made the experience unforgettable.
One moment stands out: during a break, a fellow self-advocate and I worked together to reunite a lost puppy with its mother. Despite the language barrier, our shared gestures and celebration of this small success reminded me of the universal language of compassion and teamwork.
Leaving Pondicherry was bittersweet. The connections formed during those days—the participants, the animals, and the shared moments of growth—left a lasting imprint on my heart. Reflecting on the journey, I realize how much I have grown, not just as a facilitator but as a person. The nervousness I initially felt gave way to a sense of accomplishment and a deeper understanding of selfadvocacy’s transformative power.
This journey reaffirmed my belief that self-advocacy is about more than standing up for yourself. It is about creating spaces where everyone feels valued, connected, and empowered. It is about turning individual growth into collective strength, proving that our shared humanity can overcome any challenge.
As I move forward, I carry with me the lessons, laughter, and bonds formed in Pondicherry. The experience has not only shaped me as a facilitator but has also deepened my commitment to empowering others. Self-advocacy, I have learned, is not a destination but a lifelong journey—one that becomes richer when shared with others.
Indigenous Games and farm talks: Pathways to a strong Inclusive society
By Monalisa Beypi
The gifts that are held within a community, a village, a society – how can those gifts be brought out, appreciated, and fully used for everyone’s benefit?
This is at the heart of work towards the full inclusion of people with disabilities in everyday life. After all, a society thrives when all contribute, and all belong. We know that schools are most effective in educating young people when they are supported by the local community, and when local people believe in and invest in the transformational power of education.
Karbi Anglong is a district located in the northeast state of Assam, well known for the hills and natural beauty, and a paradise for nature lovers and photographers. As in many rural areas, families and community members have often been distanced from their local schools, which often adopt culturally alien strategies and methods which may not speak to local families, local students, and local traditions. We know well that good inclusion starts with good schools which have unwavering support from parents, local leaders, siblings, and the local community which surrounds the school.
Shishu Saroti, an organization committed to inclusion and located in Assam, has harnessed the regional and local gifts in rural parts of Assam to build support for schools, increase inclusive practice, and reconnect everyone with education. In July 2020, Ms. Monalisa Beypi from Shishu Saroti learned about Asset-Based Community Development as a strategy, got a fire in her belly for making change, and put the ideas to use, along with the change agents at Shishu Saroti.
Rather than focusing on limitations, they decided to prioritize existing strengths, skills, and resources within the community, contributing to engagement and local pride by recognizing local talent, cultural traditions, social networks, and available resources. This approach empowered community members to take charge. This method leads to what we might term cultural coherence, as communities are more likely to maintain progress when they actively shape and implement their own initiatives. Furthermore, a sense of pride and empowerment is instilled, as people witness the tangible impact of their contributions, resulting in stronger engagement and long-term growth.
The Inclusive Education Program Karbi Anglong, Assam led by Lisa, set a goal to cultivate a sense of ownership, collaboration, and collective responsibility among all stakeholders, including teachers, students, parents of children with and without disabilities, school management, village education committees (SMCs and VECs), Matri Gots (mothers’ groups), and the broader community.
Action was directed towards investing in the rich cultural tradition of sports and games that are a part of indigenous societies of the region, rather than imposing mainstay school sports such as cricket and football. Adapting such culturally coherent sports and games enables students the chance to make sure everyone can play, including students with
disability, and piques the interest and commitment of local people who take pride in their own traditions of sport and games. Initiatives like Inclusive Indigenous Sports are crucial for bridging the gap between schools and communities by fostering a sense of community, encouraging collaboration, and demonstrating that everyone has a valuable role to play in the educational journey. Through active engagement, communities reclaim their agency and play a significant part in their children’s education, leading to a more inclusive and interconnected educational environment.
Mobilization simply happened! Schools extended their reach beyond the classroom to engage parents, local leaders, and cultural experts in the process. The Indigenous games become a focal point for community gatherings, where individuals from diverse backgrounds could celebrate their shared heritage.
This collective involvement reinforces the connections between schools and the community, fostering a shared responsibility for the education and cultural preservation of the younger generation. Complementing this effort, the Farm Talks program further strengthened community mobilization. Local farmers were invited to share their expertise in farming, cultivation, and harvesting techniques with students. This initiative not only provided students with practical insights into traditional agricultural practices but also encouraged intergenerational learning. Through these talks, village elders imparted their knowledge, instilling in students a sense of pride and dignity in their agricultural heritage. These discussions also initiated conversations about sustainable practices, the impacts of climate change, food security, and nutrition.
Together, these initiatives—Inclusive Indigenous games and Farm Talks—have promoted deeper community involvement in education. Schools in Karbi Anglong have become models of how education can integrate traditional knowledge and mobilize communities. This approach offers a blueprint for other regions to follow, creating stronger bonds between schools and their communities, and ensuring that cultural legacies endure for future generations.
stepping up and stepping out: Individual transformation
By Geeta Mondol
Each of us – every single one of us- enters the world poised and ready to learn and grow, and that amazing potential lasts until the day we leave this world. Isn’t it true in your own life? Indeed, when the conditions are right, we humans can accomplish spectacular things, no matter what our circumstances are. This is a positive assumption held by great teachers, excellent parents, and all those in a society who seek to uplift everyone.
Sometimes, growth can only happen when we stretch ourselves – when we step out of the everyday and the usual into fresh new territory. This developmental push can lead to exponential growth points in our lives. New experiences, being a bit uncomfortable, meeting new people, trying new things, all push us into a growth zone that makes us bigger, catapults us into a state of openness and learning, and helps us grow bigger and closer towards our potential.
Can you remember a time when you said “yes” to a challenge? Can you reflect on how you have grown as a result? A little risk, carefully undertaken, with a safety net, is an invaluable way forward.
Unfortunately, many people with developmental disability are less likely to be confronted with real challenge, high expectancies, and chances to put a toe into the water of new experiences and even risky situations. The comfort of over-protection, shielding from discomfort and stress, and treating people with developmental disabilities as eternal children in need of forever supervision - almost always with the best of intentions - can prevent growth.
I’d like you to meet Samarpan, a young adult who is a young artist, a man of deep faith, a neighbor, a community member, and a man who loves to travel. He is also a man who lives with autism, which can shape and perhaps lower the expectations of those around him. When he was just entering his twenties, Samarpan and a circle of family and friends got together to discuss his future. One of the discoveries we made was that Samarpan is at heart an explorer and an adventurer. He longs to travel, to see the snow, to be an effective big brother to his younger brother, and to be a man as he sees it.
Our little circle realized that Samarpan will only fill out his destiny if he is able to take some risks – a bit terrifying for his loving parents, a bit stressful for him, but necessary if he is to “become”. The first step was a walk to the neighborhood store alone, for a sandwich. His Dad trailed behind him, keeping a distance so Samarpan would not know he was being observed by a watchful and worried parent. His Mom Geeta stayed home and prayed frantically for his return. He safely came home with a full belly and a deep pride in his own independence.
The next year, he ventured on a “cousins only” trip –the very first time he went without his parents. He returned safe, sound, and with a new confidence in
his step and a slightly different set to his shoulders. One that spoke to an expanded role as a cousin, family member in high standing, and a capable competent man who can be trusted.
This year, he took the biggest risk and challenge yet. An emerging artist who uses multiple media, Samarpan in known for his work. It has been supported by his family, and he has great natural talent, honed through long hours of daily work at it. However, an artist must be immersed in the art of others to rise to his craft. They must cultivate their emergence by being in the company of fellow artists, and experiment in community.
Samarpan left his family home for one full week, away from all family and in the company of only other artists. He took an Artist’s Residency, where he would live, share space, and share creation on an equal footing with the other artists. This was a big step, a big risk for Samarpan, and a scary proposition for his family. They all proved up to the challenge, of course.
They prepared carefully to stack the deck for success. With some help from his father, he registered for the residency. He started waiting eagerly for it, packing his suitcase in preparation. The day before the Residency began, he nearly lost his nerve. Would he be able to stay without his parents there? Would people tease him? How would he communicate? His parents soothed his fears with a promise - if he called his parents, they would come and pick him up - a safety net. This allowed him to live with his fears and move forward.
Six full days he stayed. Halfway through, he struggled with communication with others and called his parents several times. They were ready to keep their promise, but Samarpan said he wanted to stay
and see it through, and he did. He painted, experimented, collaborated with other artists, and grew as an artist and more importantly as a person. On the day of the exhibition, he explained the deeper meaning of his work, and, proudly exhibited the results of his week. He returned a little “bigger” than before, a bit more secure, a bit more of his huge potential realized.
This developmental growth did not happen all by itself: it happened because Samarpan was permitted to take a risk, even encouraged and supported to take that risk. It happened because people believed in his potential. It happened because everyone – Samarpan, his family, the other artists, managed their natural fear and allowed him the grace and space to grow.
uncaged: A Journey of freedom and reunion
By Sangeeta Bhatt
Editor’s Note: Author Sangeeta Bhatt is a Family Reunification Specialist who works closely with men and women who have been institutionalized in custodial facilities to help them find their way back to community, contribution, and belonging by establishing trust, working to trace extended families, healing rifts and wounds, and sparking new pathways in life. This compelling story details one woman’s experience with finding ways forward.
You keep moving, and sometimes, the world accommodates your path. This is a tale of a woman who chose to carve her own destiny, leaving her home many years ago due to personal convictions that were challenging for others to understand. In her own words, she desired to live “a life dedicated to God, free from social shackles.” With a decision to redefine herself, she gave herself a new name, receiving support from the kind world at some turns, and yet having her own struggles.
However, as life unfolded and circumstances changed, she landed in a state-run residential facility in Dehradun. The institution was a dark contrast compared to the life she had lived in Ashrams (spiritual retreat centers) and other places. She found herself locked away, apart from community and heavily controlled for the convenience of others. Desiring independence, she initially engaged by asking help from our team to find a haven in Ashrams in Vrindavan. Although the reunification team primarily focuses on reunifying individuals with their family members - her independence and desire for freedom took precedence and we started looking for a suitable place for her. But fate had other plans. Despite our best efforts, we struggled to find the right home for her.
Then, the winds changed directions, and she decided to entrust us with details of her family life and history which had not been disclosed to anybody for years. This revelation ignited a fire of hope within us, and perhaps owing to her unfaltering dedication to the almighty, we managed to find her family in Assam and connected her with her brothers via video call in just one day.
When the moment finally arrived for Vrinda to meet her family, it was a beautiful sight to behold. After 17 long years of separation, eyes filled with tears and heart filled with happiness, they embraced each other. What was truly heartening to see was the devotion and dedication of her brothers to their sister, as they did not marry, holding onto the belief that they would one day reunite with her. After enduring the pain of separation for so many years, they were finally together again. It was the power of the bond between brothers and sister, their unwavering faith, courage, resilience, and love which led to a long-awaited reunion.
Vrinda ji returned home with her brother, but of course this transition was not without struggles. Vrinda found herself in a world that felt both familiar and strange. She actively participated in household work – waking up early to clean, cooking with her brother while the other worked to support the family financially. Yet, despite her desire to contribute, she sometimes found it difficult to accept the love she was getting from her family, struggling with the belief that she deserves this sort of life.
Her brothers, resolute in their support, understood her and allowed her to take life at her pace. They ensured that she received medical, physical and emotional support. They tried hard to create a safe space for her to share her thoughts, and with time she slowly started telling them things kept hidden in her heart. This is surely just the beginning for her and her family.
Sometimes, I wonder what memories must be keeping her awake in night. What secrets did she hold of those long 17 years away from home? What dreams might she have lost and what happiness must she be missing? Would she freely embrace the love and warmth her family, neighbors, and community shower on her?
One thing is certain. Vrinda ji is a determined woman who takes life on her own terms. She had chosen to carve her own life path. Each day is a chance of self-discovery for her, as she learns to navigate the dilemmas in her heart – the complexities of love, family and personal freedom. Life’s challenges sometimes take us to places that we never expected, yet sometimes that path brings us closer to what we seek. Her journey is not just about freedom and reconnecting but also finding her own identity. It will entail lots of mistakes, learning and re-learning, but those mistakes she would make on her own terms. However, now she is not alone on that path - she has her brothers and community looking out for her. With the constant support of her family, her future looks promising, enabling her to embrace a destiny which is filled with love, challenges, resilience, and the power of choice and autonomy.
soch Ke rang: Colors of Inclusion
By Anjali Dada
Editor’s Note: Anjali Dada and her husband Anuj are active members of the All-India SRV Leadership Alliance, and they work with such focus to bring inclusive practice to life within their own family, within their organization, Soch, and across the nation.
Ever since encountering the ideas of Social Role Valorization, we have been resolute in making inclusion the cornerstone of our mission.
Our journey with Keystone Institute India has been one of learning, reflecting, and evolving alongside the All-India SRV community. Along the way, a simple yet profound realization dawned on us: “Inclusion begins with us.” This understanding became the foundation of every awareness program and campaign we designed at Soch. We made it our vision to actively engage and include the community around us in everything we did.
A Seed of Thought
While co-founder Anjali Dada, a watercolor artist, interacted with fellow artists in the city, one common grievance emerged: the absence of a dedicated art platform in the region. This observation lingered in the background until serendipity struck in 2023.
A volunteer who had been part of our earlier Light It Up Blue campaigns for Autism Awareness approached us with an idea: a fundraiser featuring her paintings to support Soch.
Delighted, we asked ourselves, “Why stop at one? Why not bring more of us together?”
That small seed of thought took root, and within a month, it blossomed into a movement. We rallied 23 artists—neurotypical and neurodiverse—from across the country to create something truly unique: soch Ke rang (sKr) (Colors of Thought), the first inclusive art show and fundraiser of its kind in the region.
A Phenomenal Beginning
The debut event, SKR 1.0, held in Jalandhar, exceeded our wildest dreams.
The art show featured the work of 23 neurodiverse and neurotypical artists, attracting over 400 visitors who came together to celebrate diversity and creativity. Dressed in blue—the color of Autism Awareness—the community was awestruck by the talent on display.
For many artists, this was their debut, and we were thrilled to showcase their work. But we were even more determined to focus on their identity as artists, not as individuals defined by a condition. Only upon request—from the artists themselves or their families—did we share details about their conditions.
In fact, we made deliberate changes to some descriptions, replacing terms like “nonverbal” with empowering phrases such as “communicates through art.”
A Ripple Effect
The success of SKR 1.0 led to requests from the neurodiverse community in Chandigarh to bring the event there. SKR 2.0 was held at the prestigious Chandigarh Golf Club in May 2023, followed by SKR 4.0 in Jalandhar and SKR 5.0 in Amritsar.
At each location, we connected with local artists, and the response was heartwarming. Media coverage and support from noteworthy individuals helped amplify our efforts. The vibrant energy of these events celebrated art and creativity in ways many cities, including Jalandhar, had never experienced.
Sustaining the Momentum
Our journey led us to another critical realization: sustainability and continued visibility for our artists are essential. From this thought was born the “Artist in spotlight” initiative, with the tagline, “Meri soch Meri Pehchan” (My Thoughts, My Identity).
This initiative partners with cafes, home stores, and art curators across the state to showcase the work of talented artists. Through rotating displays, engaging social media reels, and curated content, we spotlight the philosophy and artistry of each individual, ensuring they receive the recognition they deserve.
A Defining Moment
One of the most poignant affirmations of our mission came during an art show, when a visitor remarked, “I didn’t see ‘them’…
I only saw art.” This was our “aha” moment—a testament to the power of inclusion and the realization of our dream.
What began as a small idea has grown into a beautiful reality. Soch Ke Rang is more than an art show; it is a movement that celebrates diversity, inclusion, and the boundless potential of human creativity. Together, we are proving that inclusion truly begins with us.
new Possibilities: Growth for All
By Elizabeth Neuville
In 2019, 8 women with disability joined the community, after decades of institutionalization in large, segregated custodial institutions. The dream we shared along with them was for them to live everyday lives, surrounded by friends, neighbors, meaningful work, contribution and valued roles. Respect, opportunity, dignity, and belongingness were to be the hallmarks of their new lives.
But who would walk alongside them? A team of women from the local community – a typical Uttarakhand town – was to be recruited to provide day-to-day support – to guide, support, accompany, and safeguard their return to the community. We wondered what skills and experiences these support workers would or should have – should they be special educators, after all, they would be working with people with developmental disabilities? Should we seek out people with experience in schools, after all, there will be much to teach these women, so long separated from the how-to’s of everyday life? Should they be protectors with experience in security, as the women were so vulnerable to the manipulation of others? How about motherly people, as certainly the women could use some nurturing care after years of uncaring minders? Maybe we should employ people who have lots of experience with sick people – maybe nurses, as they would need health care and even assistance in intimate care?
Well, we decided that the main role of the staff is giving supportive accompaniment, being collaborators and allies to the women they serve, effective matchmakers for friendships, and savvy community builders. They should be people who themselves are respected within the community, who have valued roles themselves, and who are eager to learn themselves. We were not disappointed with the team of 8 who joined us to support the women. On the first day of training, they were full of questions, full of dreams… “can we take them places in the community, like to the market?
How should we treat them – are they going to like us?” Many were nervous – can I do this important work?
Some had education past 12th, some did not. Some were married, some had children, some did not. Each was given chances to dream of the futures they would help create, and the ways that the women they work with would likely grow and develop.
I don’t think any of us imagined the journeys they were on, and how the growth we see in the lives of the women they serve would be mirrored in the growth of each of these “Community Support Professionals”. Over the years, they have taught lessons about contribution to everyone they cross paths within their town and beyond. They have been loyal, even faithful, to the women they serve even during times of trial and trouble, seeing each other through the dark times of COVID. They have learned all sorts of skills as they help the women they serve gain different sorts of employment. They have learned financial management, relationship building, technology, and documentation. They have mentored new staff, served as role models to the women they serve, and become themselves important wage earners within their families. One by one, they have decided they want to learn to drive, after all, they understand so clearly now that freedom and control can be gained, that risking a little can give big gains, and that being in the driver’s seat has benefits. Starting with two wheelers, four of the 8 staff are now drivers, with others following in their footsteps.
What wonderful mentors, strong change agents, and local leaders. Who better than to walk alongside others as they all take their places within society?
Across the country, the role of “support worker”, or as it is called “Direct Support Practitioners” is rising as a dignified and respected field. No more can we expect that a person in the role of caregiver will make inclusion happen for another person. If people with disability, particularly developmental disability, are to take their place in schools, workplaces, and the town square, we need people such as this team and the individual people who form the team. Much is to be learned from them, from their own developmental growth, and from the capacity and competency they have brought to bear on some of the most important work there is to do in the world.
the Answer to “What After us?”: A family’s Journey of Hope and Inclusion
Dhruv’s journey as shared by his dad Gopan TP with the editor.
Editor’s Note: In this compelling conversation, Gopan mentions the Star Raft Project, a method for building long-term Circles of Support developed by Canadian David Wetherow. You can learn more about this at thestarraftproject.com
Every parent of a child with disabilities carries the weight of one profound question: What after us? This question is not just about the future but about ensuring their child’s happiness, safety, and ability to thrive in a world that may not always be welcoming. For Dhruv and his family, this existential question became a driving force, transforming their lives and reframing their approach to parenting and community.
Dhruv, a 15-year-old with autism and dyspraxia, possesses a gift that sets him apart: an extraordinary talent for music. From reciting complex Sanskrit shlokas as a toddler to identifying musical notes by ear, Dhruv’s unique abilities revealed themselves early. However, like many families, his parents grappled with challenges—speech delays, struggles with motor planning, and an education system that often failed to provide a truly inclusive experience.
The turning point came when Dhruv’s parents decided to step away from traditional molds and place their faith in his strengths. Music became the anchor of his learning journey. This decision led them to the Bangalore School of Music, where Dhruv was embraced not merely as a student with special needs but as a musician with extraordinary potential. With supportive teachers and an inclusive environment, Dhruv flourished, taking on the valued role of a performer and musician.
This transformation extended beyond Dhruv’s musical journey. His family adopted an outlook rooted in SRV (Social Role Valorization), a framework that emphasizes empowering individuals to occupy valued roles in society. By equipping Dhruv with skills aligned with his strengths and surrounding him with a supportive community, his parents began constructing a life of dignity and independence for him.
Central to this effort is the concept of the “circle of support,” inspired by the Star-Raft Project. The family has been intentional in building a network
of allies—friends, mentors, and community members—who will stand by Dhruv, ensuring his wellbeing and continuity of care even when his parents are no longer around. This collaborative, personcentered approach gives Dhruv not just security but also the opportunity to thrive as a musician and individual.
The journey of Dhruv and his family is a testament to resilience and innovation. It challenges societal notions of normalcy and success, proving that every child has potential waiting to be nurtured. It also provides a roadmap for other families facing similar questions, showing that the answers lie not in fear of the future but in embracing the present with creativity, love, and purpose.
By reimagining possibilities and building a strong, inclusive community, Dhruv’s parents have found hope. They no longer fear the question of what after us? Because they are creating a future where Dhruv can lead a life of joy and fulfillment—on his terms, in his community, and through his music.
Their story is an invitation to all of us: to make space, to build support systems, and to recognize the potential in every individual. In doing so, we can create a world where no parent needs to ask, “What after us?” Because the answer is already woven into the fabric of community and care.
Gopal takes his Place and his space: An upward trajectory
By Ms. Pinki Das
Editor’s Note: Pinki Das is a committed professional, mentor, and change agent, influencing and teaching people across India about the power of social roles. She knows firsthand about it, because Pinki has walked alongside Gopal, her son, towards a bigger life. This reflection on the changes in his life mirror the changes we know are happening across the country when people harness good ideas and put them into practice with people we care deeply about.
Gopal is a 19-year-old young man who is keenly perceptive, has a great sense of fun, and is drop-dead handsome. Call me biased, but he is the apple of my eye. Besides being the great love of my life, he has also been a great teacher to me, and is my much beloved son.
One thing I know is that competency and social image are mutually influential, with the potential to either enhance or diminish one another. A person’s perceived or actual competency often positively impacts their social image, as competence is a widely valued trait across societies. Conversely, individuals with a strong social image tend to gain more opportunities for competency enhancement. However, those with a poor social image whether due to stigmatization or other factors are typically provided fewer opportunities for development.
This dynamic is particularly evident in Gopal’s life. He has a disability accompanied by complex support needs. To his disadvantage, Gopal’s social image has largely been shaped by his perceived limitations, and he has faced barriers to both education and development. He was never welcomed to regular schooling or to interact with typically developing peers, instead participating in specialized programs for individuals with disabilities. Within these programs, he often faced further segregation, with opportunities being primarily reserved for individuals with fewer support needs. As a result, Gopal has long been perceived as someone with limited capabilities.
Recognizing the impact of these societal perceptions, we embarked on a journey to enhance both his competencies and social image. Our approach involved not only improving his skills but also changing the perceptions of those around him. The principle we applied is rooted in the Conservatism Corollary, which emphasizes preventing, reducing, and compensating for existing challenges. Gopal’s image as a dependent individual, shaped by years of limited exposure, required a deliberate strategy to reduce his dependency and develop his communication skills. Given that he is unable to communicate through speech, we focused on using adapted communication methods to help him express his needs and preferences, allowing him to communicate more effectively with others.
Simultaneously, we worked to increase his visibility and participation in community life by involving him in typical, everyday activities. Gopal began shopping for groceries at local stores (customer),
watching movies at the theater (movie buff), and dining out at nearby restaurants (foodie). Over time, these simple yet powerful actions helped integrate him into the fabric of our community. For example, the owner of our local grocery store now knows that Gopal’s favorite snack is Lay’s chips, and he even invites him to family gatherings. Similarly, the staff at our local KFC recognize his preferences and appreciate his thoughtful behavior, such as arranging chairs after meals. These small interactions were vital in transforming Gopal’s image from an invisible, dependent individual to a recognized and valued community member.
As Gopal’s participation in community life expanded, so did his contributions. At home, he took on ageappropriate responsibilities, such as filling water bottles, chopping vegetables, setting the table, and watering plants. These tasks, although simple, were accomplished with great pride, and with the support of his teachers, Gopal gradually built competencies in these areas. His confidence grew as he began to show interest in cooking, preparing meals on weekends, and even helping with small community events. He now contributes by arranging chairs at local gatherings or organizing materials for events. On occasion, he bakes cakes or prepares pakoras (Indian snacks) for neighbors during festivals, further cementing his role as a responsible and active member of the community.
Through consistent exposure, competency development, and active participation, Gopal’s social image has undergone a remarkable transformation. From being perceived as a dependent person, he is now seen as a responsible family member, an enthusiastic exerciser, an amateur dancer, a budding chef, an adventure sports enthusiast, a budding artist, a movie lover, a traveler, and even a musician. His journey underscores the profound impact that competency enhancement and societal inclusion can have on transforming both individual lives and collective perceptions.
ACK noW led G e M ents
Keystone Institute India thanks all who contributed to this effort through their powerful stories and images:
Rishab Anand
Shilpa Jaswal
Arva Kapasi
The Pathways foundation
Mohammed and Munira
Manisha Bhattacharya
Kushi Acharya
Monalisa Beypi
Shishu Saroti
Geeta Mondol
Samarpan Mondol
Sangeeta Bhatt
Family Reunification Team, KII
Anjali Dada
Soch Ke Rang - SOCH
Elizabeth Neuville
Community Lives Team, KII
Gopan TP
Dhruv Pisharody
Pinki Das
Gopal Das