#UKHIF
HEALTH & SOCIAL CARE INTEGRATION FORUM
Regional Forum Summary Report Leeds 24th September 2015
The #UKHIF summary report is split into two clear sections and follows the panel format of the forum in Leeds. Each section captures the key issues and solutions discussed during the panel sessions highlighted by delegates. The topics covered by this report include: - Achieving a successful city wide care record, what can other cities learn from Leeds and how can they replicate the model? - Identifying uses of data outside of direct care, what are the opportunities/benefits? The outcomes from each of the sessions will be used to develop the agendas and discussion themes for the #UKHIF forum in December and into the series in 2016. As with all the forums we encourage you to contribute points to the agenda in the build up to the meeting to ensure the very latest challenges are being addressed. This is a platform for development and a rare opportunity to speak openly with stakeholders from right across the industry so please take advantage and contribute as much as you can to the future agendas...
Panel 1 - Achieving a successful city wide care record, what can other cities learn from Leeds and how can they replicate the model? Topics for Discussion: - Realising the benefits of an integrated record. How has Leeds built momentum for a city-wide record and what’s next for the Leeds Care Record? - What’s been implemented to empower citizens in Leeds to access and make use of the Care Record via personal control of personal data? How does Leeds work with citizens so they feel the Care Record is personal and relate to it? - How to determine the best footprint – Leeds? Leeds City Region, West Yorkshire? Yorkshire & Humber? Based on recent experience, what footprint should other areas focus on? Discussion Summary: The Leeds care record was functional within 3 years despite having a target of 5 years. The success was due to creating a language and strategy that everyone understood and achieving the agreed objectives outlined below. - Integration of records - Get the systems talking - Apply Business Intelligence Leeds developed a 2 page integration strategy, a very unique approach and something that should be replicated across Advisory Group
#UKHIF
HEALTH & SOCIAL CARE INTEGRATION FORUM
Regional Forum Summary Report Leeds 24th September 2015
the country to help senior officials create a health and social care strategy. It’s agreed that the NHS needs to create an environment where it’s OK to try new things, making a conscious effort to change the culture to improve processes within the NHS and replicate best practice. Throughout the discussion focus kept coming back to executive leadership, integration needs to be seen as a resolution to wider problems. Clinicians need to stand up and relay the importance of the use of technology to integrate care. Patients don’t really care about how it’s done, they want a health and social care system that is effective and look to clinicians to lead this. 3 key elements to achieving integration, People, Processes and Technology. You need to create a language that people within health and social care will buy into and allow them to see the benefits for their organisation. Leeds data model takes lots of pockets of information to give an overall view of the city such as activity in hospitals. Agree on what we mean by exchange of information and stick to it so long as patients get the best service possible. There’s an awful lot of technology in place in NHS already, trusts need to empower their ICT teams to use what they already have and integrate this with new solutions. Convincing executives for technology investment is very difficult so stakeholders need to learn how to build a business case that clearly shows an impact on the quality of life years.
Panel 2 - Identifying uses of data outside of direct care, what are the opportunities/benefits? Topics for Discussion: - How can sharing of data improve patient outcomes and deliver health economic value? How do we develop an approach to digital healthcare co-designed with patients and the public? - Making use of data to understand a population and create a more preventative approach to care. Taking the public with you, how do you engage citizens to buy in to new approaches? - How can information help Leeds meet its productivity challenge? - Designing citizen journeys and data sharing based on user centric, trusted, attribute exchange. Enabling citizens to share personal data and be the point of integration for health and care, how can we get to this point? Discussion Summary: What is the threshold between primary and secondary data? Is it black and white? Data to inform a patient – primary Data to make a decision on investment within NHS – Secondary How far should we go with anonymous data? If it helps improve patient services, should it be provided to the private sector?
Advisory Group
#UKHIF
HEALTH & SOCIAL CARE INTEGRATION FORUM
Regional Forum Summary Report Leeds 24th September 2015
Already collecting vast amounts of data from patients, quite often asking patients more than twice. Is there a way to create a single core data set? How can we unlock the data that’s being held in all data sets? Understanding the good and bad data and how to use it correctly. Preventative services, population health management. It was agreed that the major benefit of using data outside of direct care is the potential to prevent members of the public becoming patients in the first place. Data analytics will identify gaps in care, if you should be on a certain medication the data will make sure you take it. Prevention outcomes, can you trust your analytic model to commission for preventative activities? Getting patients involved at the beginning of the planning process, let them articulate what they want and explain to them all the benefits of collecting their data. There are groups of people with common needs, use secondary data analytics to answer these and create a preventative approach to their care plan. The service you will receive will be reflective of the amount of data you allow to be shared, it’s the only way to create a fully preventative service We put trust in the NHS to treat and care for ourselves and our family, why are we so worried about them taking care of our data? GPs and other frontline healthcare providers need to build patients trust and understanding of what the collection of data will achieve. Moving focus to population health management, people working better together to manage populations differently on a wider scale. Business Intelligence has a big role to play in lower level decision making in hospitals. How can analytics work throughout the organisation rather than just the top level? Drive integration of services through analysis of patient data. What does the NHS need to actually do to capitalise on existing data and improve services. Healthcare providers need to understand the true value of existing data and work towards a single source of data creating capacity to do more with what we’ve already got. A strategy needs to be in place to clarify the data collected, being clear about what we are using and sharing to prevent the public becoming patients. Data collection will enable the delivery of good healthcare, compressing the workflow to improve clinicians ability to spend more time with patients with constant access to the required information. Biggest benefit of collecting data is to improve the processes that organisations follow. Not about technology in the first instance, focus should be on the processes. If a GP surgery isn’t providing enough appointments, use the data to develop a strategy and implement a process to make the change. Use technology to enable the process. Suppliers need to react to these process shifts and provide solutions that answer the requirements. Rather than everyone trying to do the same thing, how can we get the exchange of information right and create a common policy? It’s about the patient and the public, not the technology or the system. When will we have a common strategy to integration?
Advisory Group