Wellness & Exercise Program for Parkinson’s Disease at Hofstra University (WE-PD at HU)
Rida Nasir, Dr. Rebecca States, PhD
Health Sciences, Physical Therapy Department ;
Hofstra University
Introduction
Parkinson’s Disease (PD) is a progressive neurodegenerative disorder that targets dopamine-producing neurons in the brain. It is the second most common degenerative brain disease in the U.S., with prevalence expected to rise by 20% by 2030 (Parkinson’s Foundation, 2024). Men and those aged 60+ are at higher risk, though cases occur as early as 40. Diagnosis involves medical history and physical exams PD is characterized by tremors, rigidity, bradykinesia, cognitive decline, sleep disturbances, and emotional challenges, with symptoms varying widely. While the cause remains unclear, genetic and environmental factors play a role. Treatments aim to improve quality of life through medications, physical therapy, lifestyle changes, and, in advanced cases, deep brain stimulation.
The WE-PD program was established at Hofstra University to address the physical and emotional needs of individuals with PD through structured, evidence-based exercises The program offered free 1-hour exercise classes twice a week, led by Dr States These sessions aimed to improve participants’ physical capabilities, balance, and overall quality of life.
Methodology
Participants for the WE-PD program were screened by Dr. States and a graduate assistant using standardized evaluation tools. These included the PIH (Personal Information and Health History) form, ABC (Activities-specific Balance Confidence) Scale, SEE (Self-efficacy for Exercise) Scale, PDQ8 (Parkinson Disease Quality of Life Questionnaire), and a routine evaluation form. Physical tests such as the 6-minute walk test and gaitRITE test (4.6 m) were conducted, and clinical assessments including the Modified Hoehn and Yahr scale, MoCA (Montreal Cognitive Assessment), and vital sign measurements were recorded.
All evaluation data were initially documented on paper forms during participant interactions The research assistant digitized these forms and implemented a Google Docs-based system for realtime electronic data entry and organization This system streamlined the data collection process and ensured accuracy and accessibility for future analysis.
Throughout the program, the research team collaboratively refined the forms to make them more concise and tailored to the needs of the evaluation process The research assistant played a central role in adjusting wording, removing redundant questions, and adding necessary elements to enhance clarity and usability
Project Aims
The primary objective of the WE-PD program is to enhance physical and emotional well-being for individuals with PD by providing accessible, evidence-based exercise interventions. A critical aim was to develop and refine evaluation tools for tracking participant progress The project also sought to establish a system for efficient data collection and analysis while ensuring the program's sustainability and scalability. Collaborative efforts between faculty, graduate assistants, and the research assistant focused on streamlining patient screening and evaluation processes. This included designing concise forms and continually improving data entry protocols to reduce redundancies and improve accuracy.
References and Acknowledgements
Preliminary Outcomes
In the program’s first year, 14 participants were screened and enrolled, all of those eligible actively participated The digitization and refinement of evaluation tools facilitated efficient data management and provided a framework for future scalability. Initial feedback highlighted the program’s acceptability and its potential to positively impact participants’ physical and emotional health. While long-term outcomes are yet to be fully analyzed, the groundwork laid during this phase has set a strong foundation for ongoing research and improvements.
Discussion
The WE-PD program demonstrates the feasibility and importance of communitybased exercise interventions for managing PD. By addressing both physical and emotional needs, the program supports improved quality of life and fosters a sense of community among participants. The research assistant’s contributions in developing and refining evaluation tools and streamlining data processes helped assure the program’s success. Future plans include expanding participant enrollment, refining evaluation methods further, and conducting longitudinal studies to assess the sustained benefits of exercise in PD management. Collaborative efforts will remain central to achieving these goals and advancing the understanding of therapeutic interventions for PD.