Kreatywne Stany Chorobowe: AIDS, HIV, RAK /// Creative Sick States: AIDS, CANCER, HIV

Page 286

● Creative Sick States ● professionalization, transnational relations, STIs, biopharmaceuticals and the pharmaceutical industry, funding, research, prevention, testing policies, palliative care, and art. Many of these issues, presented via excerpts from archived oral histories, art works and artefacts, were put on display in EUROPACH’s concluding exhibition, HIVstories: Living Politics, which toured several European cities over the course of 2020 (europach.phils.uj.edu.pl/project-outcomes/exhibition/). UNPACK I N G TH E AR CH I VE

To illustrate the complexity of the archive, we unpack below three dimensions of its collection that lend it a broader framework than those of many existing projects documenting the unfolding history of the epidemic. These dimensions include: HIV/AIDS Policy Worlds, Ambiguities in the Dominant and the Mar­ ginal, and the Geopolitics of the Archive.

AGATA DZIUBAN TODD SEKULER JUSTYNA STRUZIK

EUROP E A N HIV/AI D S P OL I CY WOR L D S

The European HIV/AIDS Archive documents the dynamic and complex character of several HIV policy worlds that have emerged in Europe over time. Rather than conceptualizing policies as static and imposed ‘top-down’ by politicians and governing bodies, we draw on the work of Cris Shore and Susan Wright, who grasp policies as lived realities that are co-constructed, negotiated, and acted upon by a multiplicity of actors.1 Accounting for policy worlds means approaching policies as contested instruments of governance that bring about different—and often unexpected—practices, relations, collective identities and forms of subjectivity. It also involves questioning the realization and enactment of policies in the everyday practices of actors such as people living with HIV and AIDS, representatives from communities affected by the virus, advocates and activists, politicians and policy-makers, health care workers, employees of aid organizations, and artists. The oral history interview method is uniquely equipped to capture how various HIV policy worlds are made, negotiated, and lived. This research and archiving strategy, emerging from critical race, queer, and feminist activism 1

284

See, e.g., Cris Shore, Susan Wright, ‘Conceptualising Policy: Technologies of Governance and the Politics of Visibility’ in Cris Shore, Susan Wright, and Davide Però eds, Policy Worlds: Anthropology and the Analysis of Contemporary Power (New York, 2011), p 1–26


Articles inside

Żywa pamięć o aktywizmie HIV/AIDS w Europie

1min
pages 264-281

Immunity and Its Deficiencies: Between Biomedicine and Necropolitics, Amidst Two Pandemics Jacek Zwierzyński

22min
pages 309-322

A jutro cały świat…”. Wracając do wystawy „Ja i AIDS” Luiza Kempińska

17min
pages 237-250

And Tomorrow the Whole World …’: Revisiting the ‘Me and AIDS’ Exhibition Luiza Kempińska

21min
pages 251-264

Odporność i jej niedobory między biomedycyną a nekropolityką. Dwie pandemie

18min
pages 293-308

A Living Memory of HIV/AIDS Activism in Europe

12min
pages 283-292

Early Exhibitions on AIDS and the Ethics of Curating Paweł Leszkowicz

15min
pages 225-236

Wczesne wystawy AIDS a etyka kuratorska Paweł Leszkowicz

20min
pages 207-224

Activist ‘Sick States’: The Shared (and Forgotten?) Inspiration Behind Two Patients’ Movements—the Amazons and People Who Are HIV-Positive Edyta Zierkiewicz

20min
pages 139-152

Aktywistyczne „stany chorobowe”. Wzajemne (i zapomniane?) inspiracje dwóch ruchów pacjenckich – Amazonek i osób seropozytywnych Edyta Zierkiewicz

15min
pages 123-138

Choroba jest faktem społecznym” Z Barbarą Porwoł rozmawia Zofia nierodzińska

16min
pages 23-40

Disease is a Social Fact’ An Interview with Barbara Porwoł by Zofia nierodzińska

20min
pages 41-56

Amazons’ Archive

16min
pages 73-90

Audre Lorde’s Cancer Experiences Dagmar Schultz

20min
pages 109-122

Archiwum Amazonek

12min
pages 57-72

Przeżycia z rakiem Audre Lorde Dagmar Schultz

18min
pages 91-108

Kreatywne Stany Chorobowe: AIDS, HIV, RAK. Wstęp

6min
pages 8-13

Creative Sick States: AIDS, CANCER, HIV: An Introduction

10min
pages 14-22
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