DOSSIER DE PRENSA OCTUBRE 2013
VALLADOLID C/ Santa Lucía 19, 1ª planta Edificio INTERCIMA 47005 Valladolid. Tlf. 983 399 633 Fax. 983 217 565 firstname.lastname@example.org
ZAMORA Ctr. de la Hiniesta esq. C/ La Cierva s/n 49005 Zamora Tlf. y fax 980 557 109 email@example.com
DOSSIER DE PRENSA OCTUBRE 2013 IMPACTOS EN PRENSA ESCRITA -
Los doctores Ballesteros y Verdugo, premios de la Fundación INTRAS. El Norte de Castilla, 04 octubre.
Arroyo acoge este miércoles los Premios Intras para reconocer el trabajo a favor de la enfermedad mental. Tribunavalladolid.com, 04 octubre.
Enfermos psiquiátricos piden acercar la atención de la salud mental a los domicilios. El Norte de Castilla, 09 octubre.
Afectados piden acercar la atención de la salud mental a los domicilios. El Norte de Castilla ed. papel, 09 octubre.
Intras dota sus pisos con sistemas de seguridad y control remoto. La Opinión de Zamora ed. papel, 18 septiembre.
Psiquiatras visitan Liberalia y conocen el trabajo de Intras. La Opinión de Zamora ed. papel, 9 octubre.
La construcción de siete pisos tutelados de Intras ya está en marcha. La Opinión de Zamora, ed. papel, 09 octubre.
Premios al trabajo en favor de los enfermos mentales. El Norte de Castilla ed. papel, 10 octubre.
Marcos pide que se trate con “normalidad” a los enfermos mentales para que no vivan en un ámbito de “locura” por estar “marginados”. Agencia ICAL, 09 octubre.
Marcos pide que se trate con “normalidad” a los enfermos mentales para que no vivan en un ámbito de “locura” por estar “marginados”. ICALnews, 08 octubre.
Milagros Marcos pide que se “escuche” y “comprenda” a los enfermos mentales. La Razón, 09 octubre.
Psiquiatras visitan Liberalia y conocen el trabajo de Intras. La Opinión de Zamora, 9 octubre.
Marcos pide que se trate con “normalidad” a los enfermos mentales para que no vivan en un ámbito de “locura” por estar “marginados”. ABC, 10 octubre.
Marcos reclama que se trate con “normalidad” a los enfermos mentales. El Día de
Valladolid, ed. papel, 10 octubre. -
Marcos resalta la importancia de transmitir normalidad ante la Discapacidad. Agencia EFE, 9 octubre.
SUVOT project: a springboard for employment of people with mental health problems. Boletín Mental Health Europe, octubre.
IMPACTOS EN OTROS MEDIOS -
Personas mayores. Aperitivo COPE Zamora, 03 octubre. Intervención de Ruth Antolín
Familias. Aperitivo COPE Zamora, 17 octubre. Intervención de Eva Galán.
Desayuno Día Mundial de la Salud Mental. Informativo regional RTVE + Canal 24 horas, 9 octubre.
Desayuno Día Mundial de la Salud Mental. Informativos RTVCyL, 9 octubre.
Entrega Premios INTRAS. Informativos RTVCyL, 9 octubre.
Members’ Newsletter N° 7/2013 September 2013
MENTAL HEALTH EUROPE
Boulevard Clovis 7, B-1000 Bruxelles Tel: +32 2 280 04 68 Fax: +32 2 280 16 04 Email: firstname.lastname@example.org Website: www.mhe-sme.org
MHE News and Policy Work
Employment and deinstitutionalization agenda at meeting with EU Commissioner “Although good mental health is important to secure greater economic prosperity, it is also a value in itself regardless of economic outcomes,” said European Commissioner for Health and Consumer Policy Tonio Borg in a bilateral meeting he held with Mental Health Europe (MHE) on September 16. With Europe facing an increase in mental health problems due to the economic crisis, but also a need to use the potential of its human capital to the full extent, the Commissioner was interested in hearing about the Individual Placement and Support (IPS) method MHE is promoting, a means of getting people with even the most severe mental health problems into quality INTERNAL NEWSLETTER N° 7/2013, Page 1
employment. The Mental Health Europe delegation, which included Acting Director Karina Huberman, Policy Officer Yves Brand and Senior Policy Adviser Bob Grove, also informed the Health Commissioner about Mental Health Europe’s ongoing work in the field of deinstitutionalization. Mental Health Europe will continue collaborating with the European Commission in all matters related to the promotion of positive mental health across Europe and the protection of the human rights of people with mental health problems. The Commissioner himself encouraged Mental Health Europe to keep the European Commission informed on any developments in our work, and to keep up our fruitful cooperation.
September just seems to have flown by! Between a very fruitful bilateral meeting with the European Commissioner for Health and Consumer Policy Tonio Borg, where we discussed strategies for getting young people with mental health problems into employment, and submitting our Progress funding application, we did not even notice the leaves turning yellow and weather getting chilly. If you haven’t yet, we invite you to read our newly-published position paper on access to services for people with severe mental health problems who are homeless, available on our website. We have already disseminated the position paper at several events around Brussels, and will continue doing so both on and offline. September also allowed us to prepare for World Mental Health Day, and the many events we will participate in during the upcoming months. Board member Nigel Henderson will talk about recovery at the EU Presidency conference on mental health in Lithuania, we will hold two advocacy events on deinstitutionalization, and also a National Focal Point training where we hope to see many of you present. Overall, a very busy month behind us, and even busier ones ahead. As always, I hope you enjoy reading this newsletter, and welcome your comments and suggestions. Karina Huberman, MHE Acting Director
Highlights Employment and deinstitutionalization top agenda at meeting with EU Commissioner DSM- 5 does not help children MHE delivers presentation on e-mental health
New Section: Beyond DSM 5 for such disorders too low. DSM4 tried to contain the diagnostic and the medical model DSM- 5 does not help children On May 22, the American Psychiatric Association (APA) published the DSM-5, the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders. DSM was a thin handbook in the 1970s, with a few dozens of diagnoses, but with each new edition hundreds of new, poorly-specified and poorlyresearched syndromes are being added. The third and ‘third revised’ editions added 112 new disorders, almost doubling the number of mental disorders said to exist; and DSM-4, from 1994, added 58 more. Compared with this huge increase of new disorders, DSM-5 only comes with 15 new diagnoses. But introduces new problems. Many diagnoses (the new ones but also many of the previous ones as well) come with clearly lowered thresholds. Moreover, although field trials have shown them to be very unreliable, they were kept in the manual in the same manner! Other problems are the elimination of the bereavement exclusion clause that means that depression can now be diagnosed in the recently bereaved after just two weeks, or the extension of generalized anxiety criteria that will help many psychiatrists prescribe more antidepressants to anxious people. We can see that DSM-5, as previous editions, is part of a wider reshaping of our understanding of health, turning significantly large numbers of human conditions into treatable disorders through pathologising everyday experiences. As Dr Allen Frances, Professor Emeritus at Duke University and former Chair of the task force that developed DSM-4, writes: ‘If people make the mistake of following DSM- 5, pretty soon all of us may be labeled mad.’ But DSM- 5 is specially a disaster for children assigned behavioral disorders. It sets the threshold INTERNAL NEWSLETTER N° 7/2013, Page 2
inflation that followed earlier editions but failed to anticipate or control the over-diagnosis of autism, attention deficit disorders and bipolar disorder in children that has since occurred. Related to the 40- fold increase in diagnoses of bipolar disorder in children, DSM-5 apparently tries to correct this - by introducing a new disorder! Now children exhibiting prolonged temper tantrums can be diagnosed with disruptive mood dysregulation disorder. Dr. Leibenluft, a NIMH researcher who contributed to the “creation” of this new disorder, when asked about it, said “I’m about 65% pro-DMDD,” which is a good illustration that there’s very little certainty in psychiatry. In fact there is no evidence at all not only of the existence of this “disorder,” but of the utility of the label. The Economist reported that 11% of American school-aged children have been diagnosed with attention-deficit/ hyperactivity disorder (ADHD) and that DSM 5 would likely lead to even more ADHD diagnoses. Considering the majority of those diagnosed are on prescription drugs, this is a worrying development. We have no data of what will happen to the thousands of children around the world who are taking stimulants. But DSM will help to expand this way of managing children who symptomatically show hyperactivity, no matter which is the reason behind it, as it is easier and a big business to see it as neurobiological problem treatable with drugs. As we see, diagnoses in psychiatry are controversial, changing with time and decided through the consensus of interested groups. Homosexuality was a diagnosis till the rights movements pushed to put it out of DSM, while DSM task forces pushed to include other new diagnoses as gaming addiction, ADHD, etc. DSM is one of many possible “stories”
that may be told with respect to human suffering. Who and how was this narrative developed? Who benefits? What is gained and what is lost with the adoption of this “new” version of psychiatric “reality”? When we talk about children we should be especially cautious of the way the DSM and biomedical narrative that was, until recently “applied” to adults, is being adopted so quickly, so straightforward and with no criticism in problems related to children. It is a huge market, but we really want to risk childhood for such unclear science? Should we begin to view DSM diagnoses as social constructs instead of discovered (neurobiological?) truths about the individual, they might begin to lose their superstitious power over our society. There are other, perhaps more socially desirable alternatives to replace this “labeled” vision of children (and adults)? We need to think about what these labels do not tell us. They do not answer what is wrong or what happened in a person’s life. These labels do not tell how to help a child to develop strengths and find way to deal with becoming an adult. Even for those who believe that the drugs we prescribe may be helpful, we know the labels do not tell us much about what specific drug will be effective. Even for those who believe that we will understand extreme states by deconstructing the fundamental workings of the brain, we also know these labels do not inform us about brain function or dysfunction. Perhaps the publication of the DSM-5 will help discuss the profound limitations of psychiatric labels.
MHE delivers presentation on e-mental health On September, MHE spoke at a European Parliament event focusing on web-based solutions
for employment and education of people with disabilities. The meeting was presided by Member of the European Parliament Kinga Göncz, who is also the chair of MHE’s Coalition on Mental Health and Well-being. E-mental health and its application in the field of social inclusion was the focus of MHE’s presentation (available on the members-only section of our website), featuring insightful hands-on examples from our members. E-mental health is use of Information and Communications Technology (ICT) to support mental health and care. Examples range from prevention and diagnosis through online tests, applications to monitor moods, live therapy sessions via chat, readymade online therapy modules, and self-management information and advice. E-mental health has been gaining prominence as a result of its advantages - enabling anonymity, easy access for otherwise hard-to-reach groups, greater user empowerment and control of interventions, and cost effectiveness. Thus, MHE member Makshivim net in Israel developed an online portal (http://www. makshivim.info - http://makshivim. com) enabling access to a full range of solutions – virtual rehabilitation services, moderated peer to peer communication, counseling on employment, and a job search platform. Another member GGZ Nederland, contributed the example of online self-help support to prevent mental health problems at work, accessible anonymously through https:// www.sterkopjewerk.nl/ and http:// www.inbalansopjewerk.nl. MHE’s contribution met an enthusiastic feedback. To note in particular is our exchange with Ms Göncz on the challenges and opportunities for further developments – including appropriate governance to mitigate online risks and implications of social media peer support on isolation. INTERNAL NEWSLETTER N° 7/2013, Page 3
Spotlight on Homelessness MHE publishes position paper on Access to Services and Extreme Exclusion MHE is glad to announce the launch of our Position Paper on “Access to Services by People with Severe Mental Health Problems Who Are Homeless”. The paper is the fruit of work by the MHE Task Force on Social Inclusion of Vulnerable Groups, which includes practitioners working directly with homeless people. Homelessness and mental health problems go hand in hand and are bi-directionally linked in a cause- and-effect relationship. For homeless people with severe mental health problems, lack of service access due to discrimination, the absence of adequate policy and practical solutions, and social indifference makes them one of the most marginalized groups. The newly-launched position paper formulates a number of hands-on solutions and an overarching vision of solidarity, to counter extreme exclusion. Eradicating stigma is at the centre of the recommended approach. In practical terms, the focus is on services that should be integrated, personalized and based on mutual trust and acceptance. Politically, social investment, social protection and a legislative environment that supports equal access play a key role. The paper calls for an EU Action Plan on Homelessness with a comprehensive mental health perspective to mobilize initiatives across Europe accordingly. We invite you to consult and disseminate the position paper, which is available here.
MHE participates in EP event Criminalisation of Homelessness In line with our campaign to disseminate the new MHE position paper on homelessness, on
September 18 MHE participated in the European Parliament hearing organized by FEANTSA and Housing Rights Watch, with the support of Member of the European Parliament Sylvie Guillaume. Based on a joint report by the organisers, the hearing focused on the adverse human rights situation that homeless people are increasingly facing in several European countries. Speakers, representing or working closely with homeless people in Hungary, Greece, France and the UK provided their account of inhumane treatment such as repeated fines and imprisonment merely for being in the street. To address the issue, experts on the panel pointed towards the EU Charter and UN Human Rights treaties. It is not only about taking action in court, but embedding these instruments in the design and implementation of policies addressing homelessness. The speakers also echoed the MHE position paper on partnership with users and non-discrimination. MHE Social Policy Officer intervened regarding the strong link between homelessness and mental health problems and the implications for service design and delivery. At EU level, a new European Fund for the Most Deprived will be introduced. In addition, FEANTSA called on the European institutions to take a proactive role in combating homelessness and reiterated MHE’s call for an EU Strategy on this issue.
MHE takes part in “Cities for Active Inclusion” final conference On September 25, MHE took part in the event concluding the “Cities for Active Inclusion” project coordinated by the Eurocities network. “Cities for Active Inclusion” is a partnership between nine cities in Europe with the aim of stimulating
exchange, deepening research, and supporting the formulation of effective policies on social integration. The project conclusions pointed to the need for more visibility of EU active inclusion initiatives, allocating funding specifically to this area, broadening its scope to include prevention and early intervention, as well as improving coordination between government levels to enable a ‘bottom-up’ approach. Importantly, the project also highlighted the benefit of involving new partners such as civil society. As local authorities, cities have an important role in facilitating inclusion. They have decisionmaking power in de-centralised governance models, provide public services, and are in direct contact with beneficiaries and therefore well placed to record
and respond to social trends and indicators. In line with the MHE position paper, cities can therefore be instrumental in advancing service solutions required by homeless people with mental health problems. Indeed, homelessness was often mentioned during the conference as one of the core issues in European cities. Thus, Member of the European Parliament and chair of its Employment Committee Pervenche Berès called for an indicator on homelessness in the EU framework. MHE took the opportunity of the event to distribute our position paper to participants representing European institutions, civil society, and of course municipal authorities from across the EU. For more information, please click here.
News from MHE Members SUVOT project: a springboard for employment of people with mental health problems Research about employment and mental health shows that people with mental health problems are less likely to be in employment than any other disadvantaged group. The SUVOT (Spicing Up Vocational Training) project, funded by Lifelong Learning Program (LdV Development of Innovation), tackles the challenge of providing vocational training for people with mental health issues to help them improve knowledge and competencies and gain employment, as it is proven that it helps the recovery process of the person. The SUVOT project (http://suvot. intras.es) is based upon the ‘Recovery’ model, specifically developed for people with mental health problems which is based on the belief that ‘recovering’ does not necessarily mean cure (‘clinical recovery’) but it focuses on the need of empowering people with mental illness to INTERNAL NEWSLETTER N° 7/2013, Page 4
build their own project of life beyond illness (‘social recovery’). Based on that, SUVOT has allowed some people with mental illness in Spain, Slovenia and Germany to recover their life and enter the cooking labour market without necessarily ‘recovering from’ their illness. Fundación INTRAS and OZARA, both members of MHE, in cooperation with partners from Germany and Poland, are about to finish this 3-years European initiative to train people with mental health problems in the cooking sector. SUVOT complements the technical knowledge about cooking with an innovative methodology of experiential learning that facilitates the learning process by simulating real situations in a safe environment. Cooking related content is mixed with sessions based on socio-drama and roleplaying that help set and develop social concepts such as teamwork, conflict solving, social and labour relationships, decision-making, communication skills, etc.
As a result, a complete vocational training course lasting for a year has been implemented in Spain, Slovenia and Germany with excellent outputs: 15% of the trainees have been hired in a social catering firm and they are now developing their own professional career. Furthermore, the course has become a regular training offer at the institutions participating in the SUVOT project. A teaching manual and a textbook have been produced in five languages, collecting all the teaching units, the experiential methodology exercises and valuable feedback from professionals. These materials are available freely on the SUVOT website. Upon request, a DVD including didactic videos and additional materials to improve the learning of the trainees is also available. The manual includes the experiences of the pilot training implemented at INTRAS Foundation (Spain), OZARA (Slovenia) and CJD (Germany), with people suffering from mental health problels, between May 2012 and May 2013. Each training session was delivered to a group of 10-12 trainees per country, and improved by taking into account the views and needs of the learners.
Helping young people find a space to speak up The Transpace* project (www. transpaceproject.eu), run by several MHE members such as Pro mente Upper Austria, Way-out Psychiatric Self Help Association and Fundación INTRAS, has been launched in Valladolid, Spain to create a unique and innovative opportunity for young people threatened with violence to develop new ways of finding their voice and creating a space to speak up. The project, funded through the EC Daphne programme, runs until December 2014 and will develop an innovative training
programme that can be employed transnationally but with local flexibility. The project will work with 240 young people in 6 different countries – Austria, Bulgaria, Germany, Hungary, Italy and Spain – using a unique approach that combines the techniques of psychodrama and the concept of transitional space to explore and define a time and place for those under threat to reflect and act. Children in the programme will learn how to “let go” and relinquish the space of the others just as they will learn how to demand their own space through a set of practical techniques. The partners have completed extensive quantitative and qualitative research with the target groups in all participating countries to understand the nature of the local violence and the similarities and differences between different social and cultural contexts and backgrounds.
This research will inform and help construct the methodology for the training programme. The full report compiled by University of Maribor is now available from Roy Smith on info@transpaceproject. eu The training will be informal in nature employing many disciplines in “learning by doing.” It will be in two phases: the first, an international “Train the Trainers” workshop being held in Sofia, Bulgaria, 24-27 September 2013, followed by learning workshops for the target groups in each country. The young people will be able to express their learning and experiences in diverse ways such as workshops, social media and even an international Art Contest. We would welcome the interest and observations of MHE members. Please contact Henar Conde on email@example.com (Fundación INTRAS – Project Coordinator) or Roy Smith on firstname.lastname@example.org
EU Institutions and other bodies Tenth session of the Committee on the Rights of Persons with Disabilities: adoption of concluding observations on Austria The CRPD Committee’s tenth session took place in Geneva on September 2-13. During the first week, interactive dialogues were held with Austria, Australia and El Salvador, and the Committee also adopted lists of issues on Azerbaijan, Costa Rica and Sweden. All public sessions, including the opening, reviews of Austria, Australia and El Salvador, and the meeting with States
Parties were webcast live by the International Disability Alliance and all documents can be read here. The next session of the CRPD Committee will take place from March 31 to April 11, 2014 during which the Committee will review Azerbaijan, Costa Rica and Sweden. A pre-sessional week will be held on April 14-17, 2014, when lists of issues will be adopted on Belgium, Denmark, Ecuador, Korea, Germany, Mexico and New Zealand.
Call for contributions for INTAR Conference The International Network Toward Alternatives and Recovery (INTAR), in partnership with the Liverpool Clinical Commissioning Group, Liverpool Mental Health Consortium and University of Liverpool is making a preliminary announcement and call for contributions for the INTAR 2014 Conference, to be held in the University of Liverpool on June 2527, 2014. INTAR gathers survivors, professionals,family members,and advocates from around the world to work together for new practices towards emotional distress and what is often labelled as psychosis. Based on leading research and successful innovations, INTAR believes the over-reliance on diagnosis, hospital and medication fails to respect the dignity and autonomy of the person in crisis. Self-defined recovery must be at the centre of ethical care. As such, the key themes of the conference are: The key themes are: • Social injustice and mental health • Securing human rights in psychiatric care • Cultural diversity and mental health • Creating and developing healing communities • Arts and madness To submit your idea for any of the above please email INTAR@ liverpoolmentalhealth.org by December 31.
For more information, please contact MHE Human Rights Officer Gabor Petri at email@example.com
Do you wish to share information, make an announcement or contribute to the Members’ Newsletter? Do you have thoughts on the content or the layout of our publication? We would love to hear from you! Please send your opinions or contributions to firstname.lastname@example.org This publication is supported by the European Community Programme for Employment and Social Solidarity (2007-2013). This programme was established to financially support the implementation of the objectives of the European Union in the employment and social affairs area, as set out in the Social Agenda, and thereby contribute to the achievement of the Lisbon Strategy goals in these fields. The seven-year Programme targets all stakeholders who can help shape the development of appropriate and effective employment and social legislation and policies, across the EU-27, EFTA and EU candidate and pre-candidate countries.