COVER STORY
JONATHAN PITRE
The Butterfly Child Jonathan Pitre was born in Russell, ON with a severe form of the rare skin disease, epidermolysis bullosa (EB). The slightest touch causes his skin to blister and tear, leaving him in constant pain. Though he is only 14-years old, it is clear that Jonathan is wise beyond his years, and will let nothing hold him back in spreading his wings. An inspiration to many, Jonathan has worked tirelessly to raise awareness about EB in hopes of helping others with the disease to come out of the shadows. Jonathan is an Ambassador for DEBRA Canada with which he has raised thousands in hopes of one day finding a cure. Together they have also started the Ambassador Wish Campaign to help others with EB experience their dreams.
8 | February 2016
Jonathan talks about being open to the differences people have, and being kind to them, the way we dream more people would. FACES had the very fortunate opportunity to talk with Jonathan and hear his story, and learn about some of the things he has been able to experience. We expect big things from Jonathan in the future; you rock, don’t ever change. First off, tell us how you have been doing lately? Did you have a good Christmas? Yea I had a great Christmas! My grandmother came down from New Brunswick and it’s been a while since I have been able to see her so it was great to be able to see her again. I also had a great road trip to Boston. I’ve been doing well, though my body has been doing a bit rough recently, but I’m