Joke Ameryckx

KWALITEIT VAN LEVEN

AYA DIGESTIEVE ONCOLOGIE

PATIENTS’ PERCEPTIONS OF THE INFORMATION RECEIVED DURING DIAGNOSIS AND TREATMENT: IS THERE AN ASSOCIATION WITH LONG-TERM QUALITY OF LIFE IN COLORECTAL CANCER SURVIVORS?

ONDERZOEKSPROJECT

PEV PSYCHO-ONCOLOGIE

PROBLEEM- EN DOELSTELLING(EN)

To investigate the information provided during diagnosis and treatment of colorectal cancer (CRC) as perceived by long-term survivors and its association with sociodemographic, clinical, lifestyle, psychological characteristics as well as with the long-term health-related quality of life (HRQoL).

ONDERZOEKSOPZET

In 2015, CRC survivors who were followed by seven Flemish hospitals and diagnosed with CRC between 2008 and 2010, as registered by the Belgium Cancer Registry, received a written questionnaire on information provision (EORTC QLQ-INFO25) and HRQoL (EORTC QLQC30).

RESULTATEN

CRC survivors indicated to receive (quite) a lot of information about their disease, medical tests and treatment, while regarding other care services they reported to have received no or little information. However, only a minority would have wanted to receive more information. The provided information was evaluated satisfying and helpful. In multiple logistic regression analyses, information provided on the disease, medical tests, self-care and the perceived helpfulness of the information varied by patient’s education. Age was significantly linked to disease and treatment information, whereas the treatment modality was associated with information on treatment, other care services, places of care and self-care. The perceived helpfulness of the provided information was related with HRQoL.

KLINISCHE- MAATSCHAPPELIJKE- EN/OF WETENSCHAPPELIJKE RELEVANTIE

Although CRC survivors evaluated most of the information they obtained as helpful and satisfactory, it seems that there is room for improvement for informing patients on psychosocial, supportive and aftercare matters. The perceived quality of the information can be improved by taking individual preferences on receiving information into account, which in turn can improve HRQoL during survivorship.

ALGEMENE INFORMATIE

• Projectverantwoordelijken: prof. Theuns, Cindy De Gendt, Gilles Macq • Uitvoerder: Joke Ameryckx • Organisatie: Cédric Hèle instituut - PEV psycho-oncologie • Contactgegevens: joke.ameryckx@gmail.com • Termijn project: 1/09/2018 – 1/09/2020