East County Observer - Thursday, January 13 2011

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Observer

EAST COUNTY

in focus: A&E

sports: double dribble

In this issue James Ehnes on Goodby Eddie why he prefers rock Lakewood. to fly solo. 12A

Ranch, River renew rivalry. PAGE 20A

jam vocal session point

You. Your neighbors. Your neighborhood.

SHORT   STACK

Thursday, JANUARY 13, 2011

Nick and Jennifer Tullio’s son, Grayson, 7, is battling Duchenne muscular dystrophy. Now, the Tullios are using the power in their own legs to help their son find his own.

KUDOS, QUOTABLES AND COMMUNITY

+ Ranch CERT seeks volunteers

Lakewood Ranch’s Community Emergency Response Team is looking for a few good men — and women. CERT will hold four training and certification courses throughout the month. The courses will be at 7 p.m., Jan. 13, 8:30 a.m., Jan. 15, and 7 p.m., Jan. 18, at Town Hall, 8175 Lakewood Ranch Blvd.; and at 9 a.m., Jan. 22, at an area fire station (to be determined). If a disastrous event overwhelms or delays the community’s professional response, CERT members can assist others by SEE SHORT STACK / PAGE 2A

INDEX Business Directory..................8B Classifieds................................8B Cops Corner............................5A Crossword...............................7B Neighborhood.........................1B Real Estate.............................5B Sports....................................18A Vol. 12, No. 2 Two sections www.YourObserver.com

It Works Global moves to Manatee

It Works Global, owned by Heritage Harbour’s Mark and Cindy Pentecost, will bring more than 90 jobs to the area over the next three years.

+ Jazzercise teachers a hit on NFL stage

Lakewood Ranch Jazzercise instructor Sue Encke, along with two of her students, performed with 300 other Jazzercise instructors and students during the Miami Dolphins halftime show Dec. 19, 2010. Encke, Cindy Gruenier and Cindy Palmer, along with instructors and students from throughout south Florida, performed a five-minute choreographed routine to a medley of top 40 songs as part of the show. For more information, visit www.jazzercise.com.

business sense

By Pam Eubanks | News Editor

Pam Eubanks

Jennifer and Nick Tullio with their twin children, Grayson and Emma. Grayson has Duchenne muscular dystrophy and the couple is hopeful, through research, a cure for the condition soon may be found.

ANOTHER DAY FOR GRAY By Pam Eubanks | News Editor

SABAL HARBOUR — As Sabal Harbour resident Nick Tullio raced into the last few miles of the 2011 Walt Disney World Half Marathon Jan. 8, he could feel his muscles burning. But despite the challenge of running 13.1 miles, Tullio focused on his 7-year-old son, Grayson, who suffers from Duchenne muscular dystrophy, a fatal genetic disorder that results in progressive muscle weakness. “The last couple of miles (of the run) were tougher from a fatigue standpoint,” Nick Tullio says. “When I (thought) of the challenges Grayson has when it comes to climbing the stairs or getting to bed, it puts it in perspective — and I pushed through.”

Tullio finished his first halfmarathon in about two hours, 20 minutes. With the support of friends, family and others, he raised more than $2,000 for Parent Project Muscular Dystrophy, an organization that raises funds specifically for research and finding a cure for Duchenne. The organization had about 100 runners participating in last weekend’s race, which was part of its Run for Our Sons fundraising campaign. “I had a lot of fun,” Nick Tullio says. “I’m still recovering but look forward to other fundraising, whether it be races or otherwise.”

PROGRESSION

When the Tullios gave birth to their twin children, Grayson and Emma, now 7, they had no

IN-DEPTH

Courtesy photo

Nick Tullio, with Grayson, finished his first half-marathon Jan. 8.

idea there were any potential problems. But as the children developed, Grayson’s mother, Jennifer, couldn’t shrug the fear that something may be wrong with her son. “He was slow to do things, specifically walking, crawling,”

SEE TULLIO / PAGE 8A

HERITAGE HARBOUR — There’s not much Heritage Harbour resident Mark Pentecost loves more than heading to the greenway, breathing in the fresh air and hearing his club send a golf ball whirling through the air. But it seems, Pentecost and his wife, Cindy, now are swinging harder than they ever imagined. Just more than three months after purchasing the Arthur Hills-designed Stoneybrook Golf Club, the Pentecosts are again making headlines, relocating the corporate headquarters of their direct sales company, It Works Global, from Grand Rapids, Mich., to the East County. “There are just a few times in life you get to swing for the fences,” Mark Pentecost said. “We’re getting to do that now.” The couple was slated to sign a lease on a 16,000-square-foot office space located just a few miles from their home this week, after The East County Observer went to press. “Our business is about lifestyle,” Mark Pentecost said, noting It Works offers unique beauty and wellness products through independent distributors. “We were looking for an area where we could enjoy the journey. It had been a dream of mine to (own) a golf course.” Despite looking all over Florida, the Pentecosts kept returning to the Sarasota/ Bradenton area for a place to

SEE IT / PAGE 2A


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