Your Child in Banyule and Nillumbik October 2019

in

Banyule & Nillumbik

We Can Help Archie Find a Cure for ECHS1D De-Stress This Spring Good Eating Strategies Out & About at Pioneer Reserve Greensborough PLUS more....

Volume 12 YOUR LOCAL

VOLUME 12

FREE To Take Home FAMILY MAGAZINE

OCTOBER 2019

June 2019

KIDS DESSERT FOR YOUR TABLE!!

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Hi & welcome to our October Issue!! .It feels like every time I sit down to write this there is always holidays - they are either coming, just been or we are in them! I remember being a kid and thinking there was never enough of them but now I know what my Mum must have felt like!!

This month is a triple birthday month for us. My hubby and Ollie celebrate their birthdays a day apart. Ollie will be turning 6 this year and is looking forward to a party with all his school friends. Prep parties are very cute and social. It’s when boys and girls invite each other before they become boys or girls only parties kind of “one in all in”. In the middle of the month my eldest nephew will be turning 15. I remember the day he was born and how thrilled and besotted we all were with him. He is still pretty cute just a whole lot bigger!

We also found out some interesting news about our bunny Gavin. He’s actually a she and her name is now Gabby. After living in a house full of boys all these years its so different to be saying the words “she and her” but I love it. She has grown so big since she joined our family and has settled in like she always lived here. Now with the nicer Spring weather we all spend time outside on the grass with her.

Spring is a good time to make changes and form some better habits. We have an article on page 14 “De-Stress this Spring” giving some tips on how we can bring some calm to our busy lives and minds. Another article on page 20 is perfect for this time of year - it’s titled “Gardening” and it’s a lovely reminder about the benefits of spending time outside with our kids. As a treat for all the help in the garden on page 25 we have a delicious recipe for Toblerone Self Saucing Pudding - I’m sure you will have many volunteers to help you even if it’s just to lick the spoon!

As always I hope you enjoy this months issue and I wish you and your family a bright and sunny month.

Sam xo

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We Can Help Archie Find A local family, the Melling family, are on a mission to save their son, Archie. Archie Melling was born on October 13, 2015, and although a little early, he was a happy, healthy little boy.

He is the Melling's third child, with older siblings, Phoebe 9 and Oliver 7. By the age of 13 months, Archie was a bubbly, curious and happy little guy. He was achieving all his milestones, almost walking unaided, eating independently and talking. On the 27th of November 2016, beautiful little Archie, experienced what is known as his first “Mito crash�

Almost 8 weeks after Archie was born, in December 2015, their daughter Phoebe was diagnosed with a rare cancer called Rhabdomyosarcoma. Given the complexities/location of her tumour and their concerns about the only treatment available in Australia, Phoebe travelled with the family to the USA for treatment. After an 18 month fight through treatment, she has many side effects of treatment that her family manage. However, she is now tumour free.

It was just 12 months after Phoebe's cancer diagnosis, that Archie collapsed. Archie was transferred to The Royal Children's Hospital, where he was placed into an induced coma.

Once Archie woke up slowly, it became apparent that everything had changed. Archie had lost all of his skills, and was like a floppy rag doll, which stiffened with very painful muscle spasms called dystonia. It took some time to establish what was wrong with Archie, as all the tests came back negative. Archie had a brain scan, called and MRI, which showed changes consistent with a condition called Leigh's disease. Archie went on to have exome sequencing (a genetic DNA test), which took 3 months to come back. When it did, Archie was diagnosed with Short-chain enoyl-CoA hydratase, ECHS1 gene deficiency (ECHS1d). An

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extremely rare mitochondrial disease affecting only about 20 children worldwide. A cancer diagnosis for Phoebe was devastating, but Archie's diagnosis was to be so much worse.

ECHS1 Deficiency and Leighs Syndrome are mitochondrial diseases. Mitochondrial diseases affect the ability of our body to break down food (metabolize) in order to produce energy.

Most of the children affected by a mitochondrial disease don't even have the energy to walk or talk. They are in great danger during infections and illnesses as mitochondria can be found in all the cells and it should produce energy. When it doesn't work properly, the organs like the heart, liver, kidneys start to shut down because there isn't enough energy to protect the body from the virus and to maintain the functions of the organs in the same time.

Archie is now 3 years old, he is quadriplegic, non-verbal, suffers pain from severe muscle

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A Cure For ECHS1D dystonia (spasms), is enteral fed (a tube into his stomach) and takes many medications. Archie has frequent admissions to hospital, with chest infections and viruses. Archie loves music (his favourite being The Wiggles), riding his (fully gait assisted) tricycle, animals, hanging out with family and friends, going to kinder and foxes.

He remains a bubbly and happy little man.

When Archie was first diagnosed, the family were told there would probably never be a cure for him in his lifetime. However, much has changed recently in the world of genetics, doctors and scientists now see how targeted gene therapy is changing this. The team at UT Southwestern in Texas, America are starting preclinical testing for ECHS1. This need to do done now, in these children's lifetime.

auctions. Please invite your family and friends to join them for such a wonderful cause.

Tickets are available at www.curearchie.eventbrite.com.au The family are also in need of items for the live and silent auctions on the night. It is expected that around 400 people will attend. All proceeds will be pooled together with the fundraising efforts from the families around the world, living with this diagnosis. If you prefer or are in a position to do so, there is also an opportunity to donate via Archie's Gofundme page: www.gofundme.com/archies-embrace-cure-echs1d

The family was told there will probably never be a cure for Archie in his lifetime and currently the is no real treatment other than vitamins. Life expectancy is unfortunately, largely unknown but is usually only a few years after diagnosis.

Targeted gene therapy is changing this, and is providing hope for the future.

Around $300,000 is needed to get the clinical trial started for Archie and the other children. The total cost is unknown, however, it is far in excess of this amount. Right now, gene therapy is Archie's only hope for a improved quality of living and a longer life. It's the only hope for kids with ECHS1 deficiency, which is why this special group of families are joining together to raise funds to start gene therapy for the children as soon as possible.

A gala dinner, Archie's Embrace – Cure ECHS1D, is planned for October 12th at The Regal Ballroom, Northcote. This fun night will have a live band, beautiful dance performances, an exceptional 3 course meal including beer, wine and soft drink, with live auction and silent

The gala committee can be reached at archiesembrace@gmail.com More information on ECHS1d can be found at www.cure-echs1.com If you would like to follow Archie's journey, it can be found on Facebook at www.facebook.com/groups/167018914163302/about/

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CLAY STARS

BIRTHDAY PARTIES

Pottery Birthday Parties 2 Hour Guided Workshop Ages 7 and up 1 Set Sculpting Project Have a turn on the Potters Wheel Studio Located in Eltham

For all enquires call Brigette 0401-400-613 or 9439-8057 To advertise in Your Child in Banyule & Nillumbik call 0411 459 872

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Out and About

PIONEER RESERVE St. Helena Road GREENSBOROUGH On our search for finding a new playground this month we come across this retro one! It reminded me of playgrounds that I use to play at except there was no metal slide (I think they may have been banned after too many bottoms were burnt - oh the joys of our childhood!)

It’s located on the corner of St. Helena Road and Main Street and tucked away from the cars. You can enter the space from two sides and we parked in Joyce Avenue and walked along the path crossing the bridge under the Main Road bridge. This itself was a nice little adventure, watching the water rushing down and being underneath the traffic above.

The play area is set in an open space nestled

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amongst nature and tucked below some houses which makes it feel like a secluded secret place.

The equipment whist older is well spaced and suited to little and big kids. One section is set out like an obstacle course with monkey bars, beams, sliding handle, steps and poles. Ollie loved me timing him as he attempted to climb, swing & manoeuver his way through it. There is also a set of swings and a slide and wobble board if they dare!

There’s a covered bluestone picnic hut with table and seating plus some wooden benches in the park if you decide to stay for longer and pack some snacks. Although a rug on the grass would also be nice on a lovely spring day.

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LOCATIONS: Lower Templestowe, Balwyn, Bulleen, Box Hill North, Macleod, Northcote

Ph:0409 644 037 ivanhoe@soccajoeys.com

Pottery Classes SCHOOL HOLIDAY WORKSHOPS •Wheelwork •Mosaic Murals •Handbuilding •Sculpting •Beginners •Advanced •Children •Teens •Adults T: 9439 8057 or 0417 054 035 www.claydreamers.com.au

Claydreamers Pottery Studio Eltham To advertise in Your Child in Banyule & Nillumbik call 0411 459 872

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Why I chose a Steiner kindergarten for my children

By Sarah Wrigley

As soon as I walked into my local kindergarten I knew that this would be the kinder my children would attend. As it happened, I didn't actually have any children at the time! I first attended the kinder during one of their Autumn Festivals. My husband and I bought some native plants and some delicious homemade cake for our afternoon tea (remember, this was BEFORE children!). I'm sad to say that the plants died (most plants that come in to our possession do that) but my memory of the kinder stayed with me. The beautiful, handcrafted, timber furniture; the huge array of gorgeous timber toys; fresh flowers everywhere; chooks and the most amazing outdoor space I'd ever seen with beautiful bush surrounds that we love so much. I couldn't believe that such a kinder existed, let alone right down the street from me.

Visiting their website, I discovered that the kinder was a Steiner kinder. I had only ever vaguely heard of the Steiner approach to education. A quick internet search and I had enough of an understanding to believe that this approach was ideal for young children.

The focus on fostering children's connection to the natural environment, celebrating the seasons, maximising creativity and opportunities for imaginative play, just made sense to me. I later found out that the kinder also provides food for the children.

This would be bonus enough (anything that makes my life easier is welcome) but it's wholesome, homemade, organic food! I think in some ways this sealed the deal for my husband and I. It made us feel that the kinder's philosophy was closely aligned to our own.

Fast forward a few years and we now had two delightful sons – Albert and Sebastian – and Alby was at last ready to go to three-year-old kinder! We were so excited for him. He was a sociable little 3-year-old who was ready to make friends and gain some independence from us and his younger brother.

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The kinder did not disappoint! Alby settled quickly and easily in to the rhythms of the morning program.

I think the homely feel of the kinder really helped and the focus on just the right amount of stimulation for the children – not too much and not too little. Six months on and Alby still loves kinder. He is thriving in the warm, supportive environment provided by both the physical surrounds and the wonderful teaching staff. We couldn't be happier and can't wait for Sebastian to start kinder! We believe the kinder is providing a solid foundation for our children's social, physical and emotional development and will set them up for primary school, whether they attend a mainstream or Steiner school. We are so grateful to have access to such a unique and nurturing learning environment.

Sarah Wrigley is mother to Albert, 3, and Sebastian, 2.

Albert attends Yandell Kindergarten in Greensborough, a Steiner Kindergarten. www.yandellkindergarten.com.au

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PRELOVED BABY & KIDS MARKET STALL HOLDERS

WANTED Sunday 15th December 10am - 1pm OLD SHIRE OFFICES 60 Beverley Road Heidelberg

Direct to Public Fresh Cut Flowers - Wholesale Flowers for every occasion: Birth/Birthday, Wedding/Anniversary, Functions, Corporate Accounts, Delivery Available

www.balashiflowers.com.au

Stall cost: $50 with table & chair provided (limited tables available) $45 providing your own table Please Note - This is Preloved Baby & Kids Only No Business Stalls

Contact: Lisa 0423 220 895 leesaj09@hotmail.com

Shop 3 67 Beard Street Eltham To advertise in Your Child in Banyule & Nillumbik call 0411 459 872

9439-3462 19

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REMEMBRANCE DAY 2019 Yarra Plenty Regional Library is proud to participate in Fun Palaces 2019.

On Saturday 5 October all library branches will transform into Fun Palaces 10.00am to 1.00pm - Eltham, Rosanna & Watsonia 1.00pm - 4.00pm - Diamond Valley & Ivanhoe Drop by to make, learn and explore!

Fun Palaces celebrate the unique skills and passions of local people - run by, for and with the community.

Activities bring art, science, craft, tech, digital, heritage and sports - but above all PEOPLE - together, to CREATE, have FUN and build communities from grassroots up! for ibrary Local L today. s t your u ie o it v k c ti Che g ac ov.au f excitin a list o ww.yprl.vic.g w r o

Fun Palace Illustration by Emily Medley - www.emilymedley.co.uk

‘Tis

Friends of Kangaroo Ground War Memorial Park Inc. Invite you to hear about the Shire to which WW1 veterans returned.

Service Starts sharp at 10.30am 10th November 2019 375 Kangaroo Ground Yarra Glen Road, Kangaroo Ground

the Season....Advertise NOW!

Invest in your business, Target your Market for Christmas and the New Year.......

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Banyule & Nillumbik

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In The Kitchen OM Indu G You lge rself !!

Toblerone Self-Saucing Pudding Ingredients l l l l l l

60g unsalted butter 1/2 milk 1/2 cup caster sugar 1 cup self-raising flour 2 tablespoons cocoa powder 150g Toblerone milk chocolate, coarsley chopped

l l l l l l

1 1/4 cups boiling water 3/4 cup firmly packed brown sugar 2 tablespoons cocoa powder, extra, sifted Double cream to serve Caramel spread, warmed, to serve 50g packet mini Toblerine milk chocolate, or milk chocolate chopped

Method 1) Preheat oven to 18 0C/160C fan forced. Brush a 1.5L (6-cup) ovenproof dish with melted butter to grease and place on a baking tray lined with baking paper.

2) Place the butter and milk in a large microwave-safe bowl. Microwave on High, stirring every minute until melted and combined. Stir in the caster sugar.

3) Add the flour and cocoa, and stir until well combined. Stir in the chopped Toblerone. Spoon into greased dish. Use the back of a spoon to smooth the surface.

4) Combine water, brown sugar and 1 tablespoon of the extra cocoa in a large jug and stir until well combined. Gradually pour over pudding mixture.

5) Bake for 35-40 minutes until a cake-like top forms and a skewer inserted into the centre comes out clean.

Set aside for 10 minutes to cool slightly.

6) Dust with remaining extra cocoa. Spoon cream on top. Drizzle with the caramel & sprinkle with chocolate

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Kids Corner

SPOT THE DIFFERENCES

Are you good are finding things? There are 10 differences to find. Can you find them all?

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Find out what's on near you at www.schoolholidayrescue.com.au /schoolholidayrescue To advertise in Your Child in Banyule & Nillumbik call 0411 459 872

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Handy Numbers Emergency Numbers Ambulance Fire Police

}

DIAL 000

Hospitals Austin Hospital.......................................................... 9496 5000 Royal Children’s Hospital (Parkville).......................... 9345 5522

Crisis Centres Poisons...................................................................... 13 11 26 Kids Help Line............................................................ 1800 551 800 Parentline Victoria..................................................... 13 22 89 Lifeline....................................................................... 13 11 14 Suicide Helpline - (Victoria only)............................... 1300 651 251 Nurse-on-Call............................................................ 1300 606 024 Child Protection - (After Hours Service).................... 13 12 78 Domestic Violence Crisis Centre............................... 1800 015 188 or 9928 9600 Sexual Assault Service (After Hours)......................... 9497 1768 Centres Against Sexual Assault................................. 1800 806 292 Victims of Crime Helpline......................................... 1800 819 817 LifeCircle - HOPELINE................................................ 1300 364 673 SANDS* Vic...*Stillbirth & Neonatal Death Support 1300 072 673 Australian Breastfeeding Association Helpline 1800 686 268 Compassionate Friends Helpline 1800 641 091

Your Local Police Station

Diamond Creek ........................................................ 9438 8300 Eltham....................................................................... 9430 4500 Greensborough......................................................... 8432 8200 Heidelberg................................................................ 9450 8000 Hurstbridge............................................................... 9718 2111 West Heidelberg [Not 24hr Station]......................... 9457 5777

Other

Banyule City Council Office....................................... 9490 4222 Nillumbik Shire Office............................................... 9433 3111 If you provide a free essential service to our community and would like your phone number included on this page please call 0411 459 872

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What’s On

in & around Banyule & Nillumbik

Run for the Firies Sunday, October 27 - 8 AM Eltham North Adventure Playground Wattletree Rd Eltham North Tickets · $25 - $40 www.registernow.com.au

Halloween Fun Night Thursday October 31 4:30 PM – 6:30 PM Diamond Valley Library Civic Drive Greensborough

Find out how toChild promote upcoming 29 To advertise in Your in Banyuleyour & Nillumbik call 0411event 459 872Ph: 0411 459 872

Index & Contents

Your quick guide to everyone and everything in Your Child...

Guardian East Ivanhoe ELC

12 Out & About

Articles 6

We Can Help Archie Find A Cure For ECHS1D

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Leadership

25 In The Kitchen

Greensborough Plaza

26 Kids Corner 28 Handy Phone Numbers

The Costunery - Heidelberg Fancy Dress

29 What’s On

Home With Income Industria Cafe

10 Benefits of Martial Arts Training for Kids

Business Opportunity

14 De-Stress this Spring 16 Why I Chose a Steiner Kindergarten for my Children

Inflatable World Bundoora Ivanhoe Hotel Little Flyers Learning Centres

Your Child Magazines

Many Little Creations

Advertisers

Nestoras College

18 Guardian

Ani Art

Northern Shukokai Karate

20 Gardening

Balashi Flowers

Play Therapy Melbourne

22 Fast At Everything

Bizzy Bees

Ready Steady Go Kids

Claydreamers

School Holiday Rescue Socca Joeys

Regulars

Clay Stars Birthday Parties Diamond Valley SFC Occ Care

St. Margarets Church Eltham

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Dynamic Vegies

Yandell Pre-School

24 Good Eating Strategies

Editors Notice Board

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Booking Deadline for November issue 18th October

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All material in Your Child magazines is Copyright and may not be reproduced without written consent of the publisher.

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