Salford Institute of Dementia Newsletter Autumn 2019

NEWSLETTER/

AUTUMN/WINTER 2019

ISSUE 6

Welcome from Director We have another packed newsletter with the selected highlights of the work of the Dementia Institute team over the last 6 months. Dementia Action Week 2019 was a busy time with several events over a three-day period including a comedy sketch bringing to life the challenges and satisfactions of caring for someone living with dementia, music, clowns, and games designed to support people living with dementia all featured. Our open day during Dementia Action Week, with plant and bake sale, was a great success, such a success that we had a further plant and bake sale to mark International Alzheimer Month in September 2019. Thank you to all who donated the scrummy cakes and to those who bought plants and bakery items.

Our groups in the Dementia Hub continue to be enjoyed by many members from the Greater Manchester area. In this newsletter we report on the evaluation of one of these groups, our Music Café, with Music In Hospitals and Care. This music café has proved so popular that further funding has been secured to run this group for another year, and an additional music group with the Hallé Orchestra has also just started. Music is indeed a powerful medium to provide support and stimulation for people living with dementia and BBC Music Day this year, on 26th September, focussing on dementia, reflects that many others believe this too!

We are delighted that two long-term supporters of the Dementia Institute, Hazel Blears and David Medlock, were awarded honorary degrees at the University July graduation ceremonies and we offer them our warm congratulations for this acknowledgement of their personal achievements.

One of our Community Engagement Officers, Chris Sewards, was awarded his MSc in Dementia Care (with Distinction) and one of our Dementia Associates, Gail Bowker, won a Spirit of Salford award. Well done to all! Along with the good news we have also had sad news that several of our members or their relatives have passed away. Their work with us, and many other

community groups, and their commitment to improving the lives of others with dementia and their care partners is a fitting legacy that we hope many other people impacted by dementia will benefit from in the future. The image below shows team spirit from across Greater Manchester in the annual boat race, raising awareness can be a lot of fun as well as helpful! We can all help to improve the lives of people living with dementia and it is a real pleasure for the whole Dementia Institute team to work with so many different individuals who have demonstrated very different ways they can contribute to this improvement and change agenda. If you would like to volunteer with us at one of our groups, or if you have ideas for a collaborative project, or if we could support your work in any way we would be delighted to hear from you. By working together we can all contribute to making a real difference in peoples lives.

Professor Anthea Innes Coles-Medlock Director, Salford Institute for Dementia

SPOTLIGHT ON MEMBERS OF THE TEAM/ PROFESSOR ANYA AHMED/ (Professor of Social Science) Anya has a background in social policy and sociology and is the User Led Partnerships Lead in the Dementia Institute. She has led a range of externally funded projects focusing on the needs and experiences of less heard communities and older people and BME communities and dementia, including the Camden Somali Dementia Aware Project and Delivering Inclusive Dementia Services for BME communities in Salford. She has published widely on ageing and migration. She is a member of the ESRC Peer Review College, the Social Policy Association Executive Committee, a member of the Editorial Board for the journal of Social Policy and Society and the Journal of Social Inclusion and a trustee of the charity ‘Knowledge for Change’ (K4C).

DR LYDIA MORRIS/ Lydia is a Clinical Psychologist. She is currently working on a Dementia Institute project developing and evaluating communication training for care partners of people living with dementia (Empowered Conversations). She is committed to developing theoretically based interventions that work well and better meet peoples’ needs. Her research focuses on enhancing the well-being of family care partners of people living with dementia and those they support. Central to this is having an understanding of the perspectives of people living with dementia, family carer partners and professional carers.

CONGRATULATIONS! This year, two people who have supported SID have received Honorary Doctorates from the University of Salford. Our warm congratulations and thanks to them both for their support for our work at the Dementia Institute.

HAZEL BLEARS/ Hazel was born and raised in Salford and is a passionate advocate for the city and its people.

She has campaigned throughout her life for a fair deal for working people and for recognition of the skills and talents of Salfordians. Hazel worked as a lawyer in private practice and local government for 20 years. She was also a councillor on Salford City Council for eight years and was elected as MP for Salford in 1997. Whilst an MP, Hazel held ministerial roles in Health, Police and Counter Terrorism and was Secretary of State for Communities and Local Government. For three years, Hazel worked with the Salford Institute for Dementia.

She is also a long-standing trustee of the Social Mobility Foundation and an Alzheimer’s Society Ambassador.

Hazel is passionate about empowering people to take leading roles in their communities and in making commercial organisations be more socially responsible.

Her favourite saying is “Doing Good is Good Business”.

DAVID MEDLOCK/ David was born in Bath and attended King Edwards School before moving to study Environment Health here at the University of Salford. Upon graduating he worked for Tameside Borough Council, serving the borough as an Environmental Health Officer. In 1979 he changed careers and joined the family engineering design firm, The Hebron Medlock Group based in Bath. The company, now known as Stitec Limited, was started by David’s father Len in 1951 and was sold in January 2019. In 2007 David served as The High Sheriff of Somerset, an office which represents the Sovereign in the County. He has been Deputy Lieutenant of the county since 2008 and has served as Vice Lord Lieutenant for six years. From 2003 to 2014 David served as Pro Chancellor of the University of Bath. David is an active Freemason and has recently been appointed to the rank of Provincial Grandmaster for Somerset by command of the Duke of Kent. The two charitable trusts set up by the family have contributed over £40 million to various good causes throughout the country and abroad, the Dementia Institute is one of those good causes that has benefitted from a generous donation from David’s family Trusts.

SPIRIT OF SALFORD AWARD

Gail was up against 300 nominees and was only made aware that she had been nominated when she was contacted to say she was in the final 10 the Spirit of Salford Award for Best Health Achievement. Gail said “I am grateful to the university for nominating me. It was quite a surprise when I found out I was a nominee and an even bigger surprise that I was a winner�.

The awards celebrate the excellent work of individuals and community groups who make Salford such a great city for everyone, well done Gail!

And finally congratulations to Chris Sewards Community Engagement Worker at the Dementia Hub, who has been awarded an MSc Dementia Care (with distinction) at the University of Manchester after three years part-time study.

DEMENTIA ASSOCIATES/ At the Salford Institute for Dementia, we are passionate about involving families impacted by dementia in all our activities. We are proud to have the support of a Panel of voluntary Dementia Associates who provide advice on the research, education, outreach and support activities we do. In each newsletter we introduce different members of this Panel, as a means of celebrating their positive influence on the work we do here at the Institute.

MARIO AND MARIA DELLA-CERRA / Maria and Mario have been dementia associates for the past year and have engaged in many different activities at the Dementia Hub. Maria was diagnosed with Vascular Dementia in 2015 and they were referred to the Institute by a social worker who suggested that the Hub would be a good way for them to both engage with stimulating social activities.

Maria and Mario met at an Italian Dance in Manchester and once talking, realised that they were both from the same area of Italy. This provided a good conversation starter and they have now been married for forty years. Mario was from a farming background, however when he moved to live with Maria, he realised there was a lack of farming areas within Manchester. This led him to use his skills and knowledge to work within landscaping and after completing a three-year apprenticeship, he and Maria set up their own successful landscape business. During this time, they worked for a range of clients including lottery winners and local councils.

Mario has been able to use his excellent knowledge of horticulture to develop and progress the work of the dementia garden at The Hub. His skills and contacts have enabled the development of the garden enjoyed by many of the attendees of the Good Life Club.

Through being Dementia Associates, Maria and Mario have had the opportunity to learn more about dementia and to speak with other people who are affected by dementia. The Institute allows them to meet and connect with a diverse range of people who are at different points in their journey with dementia. They are also passionate about raising awareness of dementia to the wider public and fundraising for various dementia related causes.

PAM WILLIAMSON/ Pam became involved with the Dementia Institute in 2013 and became a Dementia Associate in 2016. She cared for her husband Peter who was living with dementia until he passed away in 2011. Pam and Peter met through their church and were married for almost fifty years.

They were keen walkers and would spend most weekends going on different routes around Greater Manchester and Derbyshire. They also enjoyed travelling to different holiday destinations and were also involved in Folk and Morris Dancing. Alongside these hobbies, Pam was a primary school teacher for over thirty years and through the dementia community has met some of her old students.

Through Pam’s experience of caring for her husband, she became passionate about trying to improve the lives of those who are living with dementia or caring for someone living with the disease. She also has a keen interest in new and current research surrounding how the lives of people living with dementia can be improved and how carers can be supported. In her role as a Dementia Associate, Pam uses her knowledge of dementia to support others who are in a similar situation.

Through her first-hand experience of caring for someone living with the disease, Pam can provide both emotional and practical support to a wide range of attendees within the Hub. Pam is also the treasurer of The Carers and Ex-Carers Support Group. This provides specific support for carers of people living with dementia through numerous group sessions and trips. Pam’s passion and experience in supporting people living with dementia to have worthwhile lives provides a valuable perspective which contributes to the work of the Institute.

CONDOLENCES/ We benefit from the contribution of many people living with dementia and their care partners and over the last few months we have been sad to hear about the deaths of various members or their partners or family members.

Natalie Yates-Bolton pays tribute to one of the first advisors to the Dementia Institute; Pat Foy pays tribute to her husband and all who have supported her since his death, and we would also like to remember other associates who have lost a relative living with dementia in the last few months. We thank you all and our thoughts are with you and your families at this time.

DR MICHAEL HOWORTH/ Mike Howorth was one of the first advisors for the dementia work undertaken at the University of Salford that led to the establishing of the Salford Institute for Dementia. The first event organised by the forerunner of the Institute (the Dementia Design Group) was a listening event held to guide our understanding of what matters most in hospital design for people with dementia. Mike attended this event in his role as an Open Doors Support Network Facilitator, a pioneering role where people with dementia were employed by Greater Manchester Mental Health NHS Foundation Trust. Mike was a keynote speaker at the Salford Institute for Dementia Human Rights and Dementia conference, an auditor in the hospital environments for dementia project, a contributor to the European Union funded Positive about Dementia (POSADEM) project, and most importantly our wise advisor and friend.

MALCOLM FOY / By Pat Foy I would just like to say how grateful I am for all the support I received from the associates and friends at The Hub following Malcolm’s death.

Unfortunately, Malcolm was unable to take advantage of The Hub because of the severity of his Alzheimer’s but I find it so rewarding to see how it has progressed. It doesn’t seem that long ago when it was just an idea being bandied about and now look what we have, a safe and beautiful place to go and enjoy and meet new friends. The joy on the faces of the cared for and their carers, all getting involved with the activities is wonderful to see. Long may it continue and thankyou again for all your support.

Malcolm and Pat met on 4th January 1962 and were married 3 years later on the 18th September 1965. This year would have been their 54th wedding anniversary. The couple met at the Wishing Well in Swinton and were inseparable from then on. Malcolm worked most of his career in the newspaper printing industry whilst Pat worked as a secretary.

They even ventured into retail together buying their own newsagency.

Malcolm and Pat have two daughters, Nicola and Stephanie, who make them extremely proud. We would also like to thank Pat for her incredible stamina and commitment to supporting others who have dementia or who are supporting someone living with dementia. The kind donation from those who attended Malcolm’s funeral to Hub activities is very much appreciated and will contribute to enabling us to continue to provide activities in the Hub.

BOB BURROWS/ We offer our sincere condolences to one of our Associates Kath Burrows whose husband sadly passed away on the 14th May. Bob and Kath Burrows both worked in the military on Anglesey, he was a Gunner and she was a Radar Operator. They met in January 1970 and married in August of the same year, then spent the next 49 years together. Bob spent 10 years in the Royal Artillery including two tours of Northern Ireland. Then in 2010 at the age of 61, Bob was diagnosed with Young Onset Mixed Dementia (Alzheimer’s/Vascular). Bob stayed at home supported by Kath until 2015 when the condition meant that he required 24-hour specialist support. Bob spent 3 years in a nursing home in Bradford which became a regular 6-hour round trip for Kath to visit her husband. Kath’s commitment never wavered even when Bob was moved to Wiltshire for 10 months, managing to regularly visit with the support of their family.

FREE CAR-PARKING/ We are pleased to be able to offer free car parking at the university when attending any of our groups and activities. Email Lesley Waring l.waring1@salford.ac.uk to register your car.

For more information about any of the activities of the Institute, please call 0161 295 2363 or email dementia@salford.ac.uk

BBC WORLD MUSIC AND DEMENTIA DAY/ Salford Institute for Dementia worked collaboratively with many stakeholders on BBC Music Day to help realise the aim of bringing music to everyone in the UK living with dementia by 2020.

The fifth BBC Music Day took place on Thursday 26th September 2019 with events and broadcasts across the week. The theme this year was music and wellbeing; the power of music to inspire, to bring us together and make a positive impact. Greater Manchester colleagues involved in music and dementia came together for its music and dementia initiative, BBC Music Day 2019. The Bridgewater Hall hosted Manchester’s first dementiafriendly music festival for people living with dementia, their families, friends and care partners. Organised by ‘So Many Beauties’ and ‘Music in Hospitals and Care’ in collaboration with Bridgewater Hall, Salford Institute for Dementia supported the festival with a stand to exhibit our work as well as volunteers to help out on the day.

The festival provided a safe space for people of all ages to explore different musical activities. There were relaxed performances of familiar songs and tunes, as well as performances of music created with people living with dementia. Participants joined in discussions, played instruments and created new pieces of music on the day. A range of support organisations were present to provide information and advice for people wanting to find out more about living with dementia.

RESEARCH/ In this issue of the newsletter we focus on one of the research evaluations undertaken by staff at Salford Institute for Dementia for the groups we run at the Dementia Hub on University of Salford campus.

EVALUATION OF THE MUSIC CAFE/ Since our last Newsletter in the Spring, we have been busy evaluating the various groups in the Dementia Hub to really pin down ‘what works and why’. Earlier in the year we completed a 12-month evaluation of our popular Music Café in collaboration with Music in Hospitals and Care. The music café was a great success following 12 monthly sessions of performances from very talented musicians.

The music café also provided an opportunity for attendees to meet new people in the local area and draw on essential peer support from people experiencing life in similar ways. In fact, the Music Café was so well attended that we have started a further run of 12 more sessions with Music in Hospitals and Care from 23rd September 2019 and every 3rd Monday of each month thereafter.

The impact of music on our wellbeing is well recognised and much work continues regarding the various ways that music can be delivered in dementia care settings. ‘Music can promote a range of hugely beneficial outcomes for people with dementia….and when used appropriately and in a meaningful way, the use of music has no known negative impacts’ (Bamford & Bowell, 2018). Much of the evidence from research has been based in a residential care setting therefore, the purpose of this evaluation was to understand the potential impact of live music performances for people living with dementia and their care partners in a community setting.

The design of this evaluation provided a ‘before, during and after’ structure to the music café to address the overall research question ‘Has the Music Café led to meaningful impact and improvements in well-being for people living with dementia?’ The ‘before’ aspect comprised qualitative interviews with attendees once before the music cafes

commenced. The ‘during’ phase was ‘in the moment’ observations of wellbeing using Dementia Care Mapping as a research tool. The ‘after’ part of the evaluation comprised interviews and focus groups with all attendees as well as the musicians that had performed over the course of the 12 months.

If you would like to know more the evaluation report of our Music Café can be found on our website.

The next evaluation to be completed will be our Dementia Associates Panel initiative. We then have three more evaluations that have recently started in the Dementia Hub and these will be reported on in subsequent Newsletters.

EDUCATION/ There are many different ways to learn about dementia and we are always looking for new ways to help inform others in their quest to learn more about dementia.

This year the nursing team piloted the delivery of the Dementia Friends sessions to large groups of students.

250 first year under-graduate nursing students recently attended the Dementia Friends sessions delivered by Dr Natalie Yates-Bolton and Katie Davis. 200 of these students made written commitments to undertake dementia friendly actions as part of becoming a dementia friend. Dementia Friends sessions have been delivered to groups of between 15 and 30 people previously; the level of engagement in the dementia friends learning activities was just as positive in these lecturer theatre size groups and we will be repeating this approach to delivery at the start of the new academic year.

POSTGRADUATE/ Undergraduate MA Nursing students requested a visit to the Dementia hub to inform their understanding of the impact of environments on the experience of people living with dementia, so that they can use this knowledge when they begin their first qualified nurse roles in March 2020. The opportunity to undertake such visits will be added to the Dementia Friends sessions for undergraduate nurses in the upcoming academic year.

In addition, Dementia as a global health issue has been included in a new theme ‘Nursing in a Global Health Context’ in the undergraduate Contemporary Issues in Nursing module. This facilitated the exploration of approaches to dementia that are currently being used in other countries and included discussion of the transferability of different approaches to dementia between countries. The social and political drivers of dementia care provision are explored in this second-year module.

REGIONAL/ As development work continues on the Greater Manchester Teaching Care Homes project, dementia has been identified as an aspect for enhancement of the workforce development of the Greater Manchester care home sector. The Empowered Conversations programme which was developed through a KTP between the University of Salford and the Salford based social enterprise Six Degrees has been included in the Health Education England funded component of the GM Teaching Care Homes workforce development programme.

Dr Kris Hollands organised an #ElderWisdom social media event. #ElderWisdom (https://elderwisdom.ca) sees older adults share a seat on a garden bench with someone else from the community and share with them a pearl of wisdom. The aim is to start conversations between older adults (with or without dementia) and members of the community to ignite a joint approach to combat ageism by highlighting the talents and wisdom which older adults with dementia have to offer.

INTERNATIONAL/ The School of Health and Society has hosted two intensive programmes for nurse, pharmacy and dentistry educators from Thailand. As part of their programme on approaches to reflective learning, the value of reflecting on the stories of service users and carers was included.

As part of this aspect of the programme the delegates learnt about the valuable involvement of people living with dementia and their carers in the work of the Salford Institute for Dementia. The delegates visited the Dementia hub in the Allerton building and reflected on how they could implement aspects of this facility in their organisations in Thailand.

PUBLIC ENGAGEMENT/ Dementia Action week is one of the big events in SID’s calendar and this year our contributions focussed on our CREATIVITY theme.

DEMENTIA ACTION WEEK/

This year’s dementia action week was a great success, generating interest from a broad audience from across Salford. Dementia Action Week 2019 (DAW2019) was a celebration of how creativity can act as a key ingredient in living well with dementia. The events of DAW2019 showcased the vision of SID’s Creativity theme, which aims to bring together those working in the creative industries and people working on and living with dementia. This year’s events spanned three days from 20th-24th May. DAY 1/

The first day was all about introducing people to dementia and exploring narratives associated with dementia. The day began with Dementia Friend’s training (delivered by Maria King) and Four Seasons Health Care’s excellent Dementia Experience, which involved participants donning Vaseline-covered goggles, ungainly gloves, and noisy headphones in order to simulate some aspects of what it might be like to live with dementia. It was great to see that these sessions were attended by staff and students across the university as well as people from the general public. Next on day one’s agenda was round

robin, “speed dating” event, where participants had six minutes to speak to someone who experiences dementia every day, either because they live with it or work with it. In the afternoon, we hosted workshops exploring the relationship between different creative pursuits and dementia. There were three workshops.

Photography lecturer, Lawrence George Giles, hosted a workshop on his Recollections project, which uses tailored photographic images to facilitate conversation.

In another workshop Dr Richard Talbot explored how clowning can be used to encourage people to engage with the creative process. And music for health practitioner, Holly Marland (together with her kora) hosted a workshop using music and rhythm to interact with diverse audiences.

In the evening, there was a screening of The Leisure Seekers complete with popcorn. The headline event for day one focussed on exploring dementia narratives.

This event, which was chaired by Professor Margaret Rowe, featured a contribution from the institute’s patron, Christopher Eccleston. The event centred on an excellent performance by comedian Steve Day, whose set used music to showcase the life of his father who had dementia. Steve’s performance was followed by a discussion with fantastic contributions from Salford’s 2018 Alumni Achievement award winner and Bradford Teaching Hospitals’ chief nurse, Karen Dawber and SID community engagement worker, Chris Sewards. Thanks to the panel’s insightful points, and some brilliant contribution from the audience, the event was a great success.

DAY 2/

On the second day, the Institute for Dementia hosted an open day in our Dementia friendly Hub and Garden.

The open day was advertised through flyers, posters and social media in the weeks running up to the event and we are happy to say that we had an extremely busy day with a garden and hub full of visitors.

The highlight of the day was the hanging baskets which were made to order by our talented Dementia Associates from an array of plants bought at auction.

We are very grateful to Ashley Waller Auctioneers for their generosity and quality of the plants for auction, this place is well worth a visit www.ashleywaller.co.uk We also had a cake sale at the open day with a wonderful array of baked goods donated by our Associates and staff at SID as well as a ‘mocktail’ bar and a candle stall.

DAY 3/

Day three was an exploration of communication and dementia. The first event was a collaboration between Salford social enterprise, Six Degrees and SID. The day included a workshop focusing on the collaborative work between Six Degrees and University of Cardiff linguist, Professor Alison Wray and potential future opportunities for collaborative project between Six Degrees, Professor Wray and the University of Salford. Later, Dr Jack Wilson chaired a workshop demonstrating how nonlinguistic behaviours can be crucial for understanding the relationships between carers and people living with dementia. On the evening, Professor Wray delivered a lecture on her research. All the day’s events were attended by undergraduate students from the University of Salford.

SPECIAL THANKS/

The institute would like to give special thanks to everyone who helped during the week, especially Mario, Maria, Gail, Ron, Sandra, Pam, Jackie, Mike, Liz, Joy, Leo, Pat, Lesley, Frances, Kath, Vera, Cherryl, Doreen and George.

ALZHEIMER’S SOCIETY ANNUAL SHOW/

Earl’s Court, London, 7th and 8th June 2019 Enjoying a prime spot at the show, the Salford Institute for Dementia had a stand that was manned by SID staff and Associates welcoming a plethora of visitors over the two days of the show.

Research Associate Dr Sarah Kate Smith, Professor Andrew Clark and Dementia Hub administrator Lesley Waring represented the Institute, with Sandra Jones and Vera Shaw representing the user led Associates Group. Sandra and Vera answered many questions about the Institute’s governance structure, of which they are an integral part.

Chris Sewards, one of our Community Engagement officers, who is also the Dementia Lead for Aspire CIC a Salford based social enterprise also attended.

Although Aspire is a Salford based CIC there was a lot of interest regarding how the organisation operated and its links with the Institute for Dementia.

Sarah, Andrew, Sandra and Vera presented a 20-minute paper at the show titled `Working in partnership with people impacted by dementia to deliver research, education and public engagement’ highlighting the essential user led element of collaboration.

WELCOMING THE COMMUNITY WITH ACTIVITIES IN THE DEMENTIA HUB/

We have enjoyed many activities in the Dementia Hub over the last six months and we have chosen a few to highlight here.

During one of our SID’s Cafes, we invited a Clinical Reflexologist to come along and talk to café attendees about how reflexology can positively impact wellbeing.

Some of our SID’s Café members enjoyed a short reflexology session on their hands or feet.

We also had a wonderful afternoon when the Mobile Museum of Memorabilia visited the Dementia Hub. We were tasked with guessing what an array of artefacts were used for from the past which led to much laughter and discussion throughout the afternoon.

We celebrated the 50th Anniversary of the Moon Landing with quizzes and conversation focused on the event. We were very lucky that one of our Associates, Sandra, brought in copies of newspapers from that day 50 years ago, a really wonderful way to remember such an iconic event.

Salford Institute for Dementia were invited to speak

by Salford City Radio in May this year. This radio programme ran for 12 weeks and focused specifically on the topic of dementia, engaging speakers from numerous groups and networks around Salford. Chris Sewards, Sarah Kate Smith and Lesley Calvert spoke about the various groups in the Hub to raise awareness of available activities to engage people living with dementia and their care partners in the community.

DISSEMINATING OUR WORK/ We are passionate about our research work and in the last few months we are proud to have produced an excellent range of books, articles and conference presentations documenting and celebrating what we have been doing.

Two notable conference events since our last newsletter are the Alzheimers’ Society Annual Conference in London and the Salford Research Beacon Conference.

ALZHEIMERS’ SOCIETY ANNUAL CONFERENCE/ Anthea Innes, Lesley Calvert and Chris Sewards presented together at the London Alzheimer Society conference this May on the work and contribution of the Dementia Associates Panel.

Those who attended their presentation were very interested in the model we have at Salford where people living with dementia, alongside care partners, work to advise the Institute on its research, education and awareness raising activities.

FESTIVAL OF RESEARCH BEACON CONFERENCE/ As part of the University of Salford’s Festival of Research, a beacon conference, ‘Healthy Ageing:Fusing Power and People’ took place on the 25th June. This event celebrated the world leading research in Orthotics, Prosthetics, Dementia and Ageing.

The keynote talk for this event was co-delivered by Dr Gemma Lace and Dr Jack Wilson, who lead on Knowledge Translation and Public Engagement and the Creativity Research theme at the Institute of Dementia respectively. Their talk, ‘The Salford Institute for Dementia: Nothing About Us, Without Us’, highlighted the importance of putting families impacted by dementia at the centre of all we do.

OTHER CONFERENCE PRESENTATIONS INCLUDE/ • Morris, L., Mansell, W., Williamson, T.; Wray, A. and McEvoy, P. (2019, July). Empowered Conversations: Communication training for carers. Poster presented at the World Congress of Cognitive and Behavioural Psychotherapies, Berlin.

• Lace, G. (June 2019) Alzheimer’s Research UK Yorkshire Network Meeting, 28th June 2019, ‘Dementia and Public Engagement’ • Morris, L., Williamson, T.; Yates-Bolton, N., Watson, J. and McEvoy, P. (2019, May). Developing and evaluating training for family care partners to enhance communication and relationships between carers and people living with dementia. Oral presentation presented at the Alzheimer’s Society UK Annual Conference, London.

• Morris, L., Mansell, W., Williamson, T., Wray, A. & McEvoy, P. (2019, May). Empowered conversations: a communication training and approach for carers of people living with dementia.

Oral presentation, presented at the Perceptual Control Theory conference, University of Manchester, UK. • Innes, A, Calvert C and Sewards C (May 2019) User-Led Partnerships and Service Improvement Alzheimer Society Annual Conference, London • Morris, L. & Smith, E. (March 2019). An introduction to Empowered Conversations. Oral presentation, presented at Making Research Count, Salford, UK • Lace, G. (March 2019) Work/Life Balance in Dementia Research’ Alzheimer’s Research UK National Meeting, Harrogate, March 2019.

• Neha Tomar, Sarah Withers, Gemma Lace (March 2019) ‘The influence of adipokines in neurodegeneration’, (Poster presentation) Alzheimer’s Research UK National Meeting, Harrogate, March 2019.

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DISSEMINATING OUR WORK/ BOOKS/ Dr Sarah Smith’s new co-edited collection focussing on technology in dementia care is now available and Prof. Anthea Innes’ new co-edited book focussing on remote and rural dementia care will be available soon.

Both books bring together examples from different countries, one highlights how technology can help to enhance the lives of people living with dementia and the second showcases how others have addressed the challenges of providing support to people living with dementia in rural areas.

WE HAVE ALSO HAD VARIOUS PROJECTS ACCEPTED AS PEER REVIEWED PAPERS/ • Bowker, R., Calvert, L., Allcroft, F., Bowker, G., Foy, P., Gandy, J., Jones, S., Bushell, S., Clark, A and Innes, A. (accepted for publication in January 2019) ‘Our voice started off as a whisper and now it is a great big roar’: The Salford Dementia Associate Panel as a model of involvement in research activities. Dementia.

• Scholar, H., Innes, A., Haragalova J and Sharma M (accepted July 2019) ““Unlocking the door to being there” The contribution of creative facilitators in supporting people living with dementia to engage with heritage settings.” Dementia • Campbell, S, Clark, A J, Keady, J, Kullberg, A, Manji, K, Rummery, K and Ward, R. (2019) ‘Participatory social network map making with family carers of people living with dementia’, Methodological Innovations, 12 (1).

• Dall PM, Skelton DA, Dontje ML, Coulter EH, Stewart S, Cox SR, Shaw RJ, Čukić I, Fitzsimons CF, Greig CA, Granat MH, Der G, Deary IJ, Chastin SFM (2018) Characteristics of a protocol to collect objective physical activity/sedentary behaviour data in a large study: Seniors USP (understanding sedentary patterns). Journal for the Measurement of Physical Behaviour.

• Astell, A.J., Smith, S.K., Potter, S. & Preston-Jones, E. (2018). Computer Interactive Reminiscence and Conversation Aid (CIRCA) groups – delivering cognitive stimulation with technology. Alzheimer’s and Dementia: Translational Research and Clinical Intervention. doi. org/10.1016/j.trci.2018.08.003 • Smith, S.K., Mountain, G.A. & Hawkins, R.J. (2018). Qualitatively exploring the suitability of contemporary technology in encouraging the social participation of people living with the moderate stages of dementia. Dementia doi.org/10.1177/1471301218802897 • Smith, S.K. & Astell, A.J. (2018). Technology-Supported Group Activity to Promote Communication in Dementia: A Protocol for a Within-participants study, Technologies, vol 6, issue 33, pp. 1-12 • Astell, A.J., Gradisek, A, Smith, S.K., Potter, S. & Black, B. (2018) INLIFE - Independent Living Support Functions for the Elderly: Technology and Pilot Overview. Intelligent Environments doi:10.3233/978-1-61499-874-7-526

FOR MORE INFORMATION ABOUT THE SALFORD INSTITUTE FOR DEMENTIA: Visit: www.salford.ac.uk/salfordinstitute-for-dementia Tel: 0161 295 2363 Email: dementia@salford.ac.uk @InstForDementia Salford Institute for Dementia