Thriving Together for 15 Years
To help insured people with life-changing diseases overcome the financial barriers preventing them from accessing treatment.
To see the day when no person goes without treatment because of an inability to pay.
2024
15 STORIES OF RESILIENCE THEIR VOICES. THEIR STRENGTH. OUR MISSION.
Message From Leadership
In 2024, The Assistance Fund (TAF) marked its 15th anniversary—a decade and a half of ensuring that people living with life-changing diseases can access the treatment they need. Since opening our doors, we have helped hundreds of thousands of children and adults with their out-of-pocket costs for critical care. Every story is unique, yet together they reveal a powerful truth: When financial barriers fall, hope and health can rise.
Our mission reached national audiences when our dedicated team of Patient Advocates was featured on “CBS News Sunday Morning,” and Spectrum News told the inspiring story of Kanwar, a patient in our Parkinson’s Disease Copay Assistance Program.
To honor this anniversary, our 2024 Impact Report highlights the journeys of 15 people whose lives have been transformed by your generosity. From first treatments to renewed independence, these stories are a testament to the resilience of the people we serve.
In 2024, we reached new heights that strengthen our ability to serve a growing community in need.
In the first quarter alone, donations increased 121% over the same period in 2023, allowing us to help more patients than ever before. We were named one of Forbes’ 100 Largest U.S. Charities and recognized by The Nonprofit Times as one of the best nonprofits to work for—both for the third consecutive year. We were also recognized by the Orlando Business Journal as the largest nonprofit in Orlando by revenue, a distinction that prompted Senator Rick Scott to send us a letter of thanks for our important charitable work.
We also earned accreditation from the Better Business Bureau’s Wise Giving Alliance, maintained top ratings from Charity Navigator, GreatNonprofits, and Candid, and joined the National Health Council to further our commitment to improving health outcomes for all.
We were also proud to welcome three outstanding new members to our Board of Directors—Linda Howard, Dan Klein, and John Rushing—whose leadership will help guide TAF into its next chapter.
As we look back on 15 years of impact, we are reminded that every success belongs to our patients, their families, and the compassionate community of donors, providers, and advocates who make this work possible. Looking ahead to the next 15 years, we will continue to broaden our impact and remove barriers to treatment—today, tomorrow, and for as long as we are needed.
Every story is unique, yet together they reveal a powerful truth: When financial barriers fall, hope and health can rise.”
Linda Howard
Danielle Vizcaino
President and CEO
Board Chair
MEASURING TAF’S 2024 IMPACT
Since 2009, The Assistance Fund has helped over 190,000 children and adults access the treatment they need to stay healthy or manage a life-changing disease. In 2024, we assisted over 45,000 people in all 50 states, Washington, D.C., and Puerto Rico through our nearly 100 disease programs.
Ever since I got that infusion, it’s been a night and day difference. I’ve lived a normal life.”
Read more of Michael’s story on page 9.
INCLUDING 748 CHILDREN
34,476
45,177 ONLINE CHATS HANDLED
PATIENTS ASSISTED
5.7 AVERAGE NUMBER OF CLAIMS SUBMITTED BY EACH PATIENT
PATIENTS ASSISTED
From Pain to Possibility
For years, Tim suffered from mysterious symptoms—tingling feet, stomach pain, and trouble with motor skills—but no doctor could give him a clear answer. After seeing 17 specialists and enduring daily pain, he finally reached a turning point on Christmas Eve 2019, when he called his doctor in desperation. Months later, delayed by the pandemic, tests confirmed Tim was living with amyloidosis. “It was a relief to finally know,” he said.
The cost of treatment was overwhelming. “When saw the copay, I didn’t know what I’d do,” Tim said. His care team connected him with The Assistance Fund’s (TAF’s) Amyloidosis Financial Assistance Program. “Without TAF, I don’t know where I’d be.” Now, Tim’s treatment has stabilized his condition. He’s focused on encouraging his siblings—many of whom also carry the genetic disease—to get tested. With his wife, children, and eight lively grandchildren nearby, Tim said, “I have a lot of bad days, but they’re helping me stay alive.”
DETERMINED
Family, Faith, and a Second Chance
For Shelia, family is everything. A lifelong resident of Greensboro, North Carolina, she cherishes time with her daughter, son, and three grandchildren—two of whom she’s adopted. Her love of family and faith keeps her grounded. Shelia’s life took a turn after exposure to asbestos in childhood led to a diagnosis of pulmonary hypertension. When doctors gave her a grim prognosis, she was overwhelmed.
“I left the doctor’s office, walked out to my car, and started crying,” she said. Thankfully, her care team referred her to The Assistance Fund’s Pulmonary Hypertension Copay Assistance Program. She was approved within minutes.
“Without TAF’s help, I would have to sell my home,” Shelia said. “My heart is just full of gratitude.” Now 83, Shelia is focused on enjoying life with her grandkids and embracing each day as a gift. “I’ve learned to take things one step at a time.”
$3,946 AVERAGE TOTAL
Art, Ocean, and Support
Eleanor left Massachusetts in the late 1970s, drawn to the ocean and a life steeped in art. She settled in Portland, Oregon, where the coastal beauty and creative community felt like home. There, she met her husband—a photographer who had been capturing local artists like her—and they’ve been making art together ever since. “I couldn’t imagine living without an ocean,” she said.
At 35, Eleanor had melanoma removed from her thigh. It returned 20 years later, and treatment came with a staggering price tag: over $15,000 a month. Her doctor referred her to The Assistance Fund’s Melanoma Copay Assistance Program, which helped cover the cost. “I never could have afforded it without help,” she said. Since beginning treatment, Eleanor’s scans have shown no evidence of disease. Grateful for the support she received, she now mentors others through the AIM at Melanoma Foundation. “When you’re facing hard decisions, it helps to have someone who’s been there,” she said.
Still Going Strong
At 69, Harold is still going strong as a real estate broker in Macomb County, Michigan. So when a routine illness turned out to be idiopathic pulmonary fibrosis (IPF), he was stunned. “I thought my doctor was just going to talk about pneumonia,” Harold said. “IPF really came out of the blue.” The shock of the diagnosis was followed by financial stress— his medication cost $10,000 a month. “Even with insurance, my portion would’ve been thousands,” he said. “There was no way could afford that.” A local support group referred Harold to The Assistance Fund’s (TAF’s) Idiopathic Pulmonary Fibrosis Copay Assistance Program. “I filled out the application online and within 10 minutes was approved,” he said. “I can’t tell you how relieving that was.”
Now, Harold mentors others with IPF, sharing advice and encouragement. “I just want to help them through it,” he said. Still working and staying positive, Harold says his treatment has made all the difference. “Thanks to the treatment, I’m living a full and happy life,” he said. “My doctor calls me his poster boy.”
From Fear to Hope
Optimism, hope, and embracing the unknown— these values guide Narah, a Miami resident born in Brazil. She finds joy in everyday adventures with her Maltese pup, Ben, and faces life’s challenges with a smile. That mindset was tested in 2023 when Narah was diagnosed with Fabry disease, a rare genetic condition that affects multiple organs.
After years of unexplained pain and hospital visits, her diagnosis brought clarity—but also fear. “When you get a diagnosis of a rare disease, it’s kind of scary,” Narah said. “In the beginning, you ask, ‘Am I going to die?’”
At the National Fabry Disease Foundation’s Fabry Family Conference, Narah learned about The Assistance Fund’s Fabry Disease Financial Assistance Program. “I was diagnosed in June, and by September, found TAF,” she said. “They’ve been such a big help.” Now, with support from TAF, Narah is planning to start a podcast to raise awareness and help others facing rare disease diagnoses feel less alone.
TO THRIVE
TAF is helping me to lead a normal life.”
Finding Relief and Reclaiming Life
After years of living in pain, Lisa finally learned she was living with hereditary angioedema (HAE) at age 29. The diagnosis meant she could receive proper treatment. Instead of debilitating abdominal attacks lasting days, now they’re infrequent and only last hours.
“It interrupts your life,” she said. “The fear of that happening was overwhelming.”
Through TAF’s Hereditary Angioedema Financial Assistance Program, Lisa’s copay costs are taken care of. Instead of worrying about how to get her treatment, she focuses on her kids, grandkids, and spreading the word about TAF assistance at events like the HAEA National Summit.
“TAF is helping me to lead a normal life,” Lisa said.
TIM
SHELIA
NARAH
LISA
ELEANOR
HAROLD
Despite a Diagnosis, Bob Never Misses a Game
Bob and his wife, Sandy, are always on the move. Whether it’s going for walks near their Iowa home, doing daily push-ups, or picking fresh strawberries from the garden, Bob stays active and grateful for the small things in life. “It’s family, people, and my faith,” Bob said. That faith was tested when Bob was diagnosed with prostate cancer in 2024. The cost of his treatment was a huge concern until Bob’s local pharmacist told him about TAF’s Prostate Cancer Copay Assistance Program.
All About Family
When Demetris first felt tingling in her fingers, she ignored it. Then it spread to her hands. It was 2020, the height of COVID, and she spent days in the hospital without answers. “It was a scary time,” Demetris said. Eventually doctors diagnosed her with neuromyelitis optical spectrum disorder (NMOSD) and recommended TAF’s NMOSD Financial Assistance Program to alleviate the financial burden. Overwhelmed, a nurse navigator helped Demetris and her husband, Tyrone, with the application process. “If they hadn’t pushed for it, we would’ve given up,” she said. Now, TAF helps with her infusion costs and “is a big, big help.”
“When I found out I qualified, a big rock was lifted off me,” he said. “I had no idea there was anything like this.” Thanks to his treatment, Bob and Sandy can focus their energy on attending their grandkids’ local sports games. Even if there are three events in a day, they’re in the stands cheering with pride. “I wish I could thank the people who donate,” Bob said. “TAF put me at ease.”
Demetris’ grandkids, ages one through 19, keep her busy. Fridays at her Jacksonville home mean treats, love, and laughter. “If you want to make God laugh, tell him your plans,” Demetris said. “I just keep going.”
LIVES MADE
Fighting a Rare Disease, Surrounded by Love
For over 10 years, Tom has navigated life with Pompe disease, a rare disease that progressively weakens muscles. When diagnosed, he understood that without treatment his health would be severely impacted. Pompe disease, Tom said, is something “most doctors have never heard of.” Thankfully, Tom’s doctor encouraged him to apply for TAF’s Pompe Disease Financial Assistance Program after seeing TAF’s booth at a conference.
“TAF assistance isn’t just life-easing, it’s lifesaving,” Tom said. “I would die without access to the medication.” Tom spent his career manufacturing packaging for medical equipment and electronics. Though the disease makes mobility a challenge, it hasn’t stopped him from working as a small business owner or making the most of time with his wife and their four grandkids. “Our granddaughters are here pretty much every day,” he said. “I can start doing the things want to do, rather than the things have to.”
250,000 CLAIMS PAID OVER
With Costs Eased, Arthur Can Tend to What Matters
Arthur moved to North Carolina to pursue his information technology career as a Network Specialist. So when he began experiencing arm and leg weakness in 2014, he found he couldn’t keep up with the physically demanding work. A few months later, Arthur was diagnosed with chronic inflammatory demyelinating polyneuropathy (CIDP). “My condition made it difficult for me to focus,” he said. “It resulted in me being wheelchair bound.”
A nonprofit recommended he apply for TAF’s CIDP Financial Assistance Program. The program helps patients with out-of-pocket expenses. Without TAF, Arthur’s weekly infusions would cost thousands of dollars. “I’m most thankful that can take care of myself,” Arthur said.
Since retiring, Arthur still loves spending time on his laptop. But he’s found a new hobby: hydroponics, or growing plants without soil. His garden has leafy greens, lettuce, tomatoes, and more. “It’s become kind of more than just a hobby,” Arthur said. “It’s like therapy.”
STRONGER
Staying Strong for Her Furry Family
assistance isn’t just lifeeasing, it’s lifesaving.”
After over 20 years in Southern California, health complications forced Deborah to retire from her career in the pharmaceutical industry. She relocated to Alabama, which offered more space and a lower cost of living, but her heart still belongs in the Bear Republic. “Once you’ve lived in California, it’s part of you,” Deborah said. Soon after she moved, Deborah was diagnosed with primary immunodeficiency. Relying on Social Security income, Deborah realized she couldn’t afford the expensive copays for her treatment. That’s when her rheumatologist referred her to TAF’s Primary Immunodeficiency Financial Assistance Program.
“I’m grateful that the right people did the right things and got me into the program,” she said. Deborah now focuses on managing her health and caring for her family of pets. Her three dogs and two cats keep the house teeming with excitement. “I don’t know where I’d be without TAF,” Deborah said.
Saving More Than Sight
Helayne and Michael have been married over 40 years, building a life of love, laughter, and countless Tampa Bay Lightning hockey games. That changed in 2024 when Michael began experiencing debilitating migraines. He spent days in isolation, unable to tolerate light and sound. “When we couldn’t go, we had to watch them on TV,” she said. “It wasn’t the same.”
The migraines, he learned, were cancer spreading and leading to neurotrophic keratitis. But treating it meant paying $11,000 a week for treatment. His cornea specialist encouraged Michael to apply for TAF’s Neurotrophic Keratitis Financial Assistance Program. Within minutes of calling, Michael was enrolled in the program for the year. The program doesn’t cap the amount of assistance patients can receive, giving the couple peace of mind. “TAF’s one of the most wonderful organizations I’ve ever encountered,” Helayne said. “Without TAF, my husband would’ve lost his eye. It’s made all the difference in the world.”
ARTHUR
HELAYNE & MICHAEL DEBORAH
DEMETRIS
A Shock Diagnosis, a Life Recentered
Steven’s always been active. When he’s not lifting weights or exercising, he’s climbing mountains. So when his annual physical turned up blood results that weren’t quite right, Steven was in shock. Doctors discovered hepatocellular carcinoma, the most common form of liver cancer. “My whole world stopped on that day,” Steven said.
Steven’s hospital’s financial assistance department told him about TAF’s Hepatocellular Carcinoma Copay Assistance Program, and he applied right away. The program provides financial assistance with copays that can cost thousands of dollars. “When saw how many people were involved with TAF, realized ‘wow, guess I’m not one man on an island,’” Steven said. “Somebody’s out here with me.”
Now retired, Steven and his wife enjoy the beach and growing flowers at their Virginia Beach home. “I think TAF was a sort of divine intervention,” he said.
Healthier Days, Stronger Dad
Michael’s childhood wasn’t easy. For nearly eight years he suffered, missing school and normal teenage activities like being with his friends because of unexplained pain. “It was incredibly hard. Not just for me, but for my parents,” Michael said. “We didn’t know what was happening.”
Finally, at age 19, Michael learned he was living with Fabry disease, a rare genetic disease. For years, his insurance included his preferred specialist and infusion center, but when Michael’s employer-based health insurance changed in 2023, he risked losing access. That’s when he went online to find TAF’s Fabry Disease Financial Assistance Program. “TAF definitely came in the nick of time,” he said.
Now, Michael and his wife can focus on raising their teenage son, racing him to sports events and school events while trying to enjoy the little things. “Ever since I got that infusion, it’s been a night and day difference,” Michael said. “I’ve lived a normal life.”
Support That Keeps Debbie Dancing
When Debbie was diagnosed with multiple sclerosis, she was convinced it was an inner ear infection. With no family history, she couldn’t believe the news. “Of course, you think you know everything yourself,” she said. “I was in denial.” She got in touch with the MS Society, where she learned about The Assistance Fund. TAF assistance ensures she can access the injections that reduce her symptoms.
“The people at TAF are phenomenal,” Debbie said. “If you call, they’re not in a hurry. They take the time to talk to you and really sound like they want to listen and help you.” Thanks to our donors’ support, TAF helps thousands of people like Debbie continue to stay active. Her passions include attending Zumba classes and spending time with her two grandkids. “No matter how small your contribution is, it helps so many people,” Debbie said.
The people at TAF are phenomenal. If you call, they’re not in a hurry. They take the time to talk to you and really sound like they want to listen and help you.”
100,000
94% of TAF expenditures provide direct financial assistance to patients
DEBBIE
STEVEN
NEARLY CALLS HANDLED
MICHAEL
THEIR VOICES. THEIR STRENGTH. OUR MISSION.
Understanding patient needs begins with listening to their stories and elevating their voices in all we do. In 2024, The Assistance Fund supported more than 45,000 people living with life-changing diseases. Yet, countless others continue to face the burden of high out-of-pocket medical costs. Our work is far from done.
Engaging Patients and Communities at Conferences
Because each disease and patient community is unique, TAF regularly participates in patient-focused conferences to connect with individuals, caregivers, and like minded, patient-centric organizations. These events allow us to broaden our reach, deepen our impact, and ensure the patient voice remains at the heart of everything we do.
In summer 2024, TAF once again exhibited at Parent Project Muscular Dystrophy’s Annual Conference, where more than 1,400 children, families, providers, and advocates gathered in Orlando, Florida. Led by President and CEO Danielle Vizcaino, TAF staff volunteered their time over three days to help ensure the event’s success.
We’re proud to offer our Duchenne Muscular Dystrophy Financial Assistance Program, which helps hundreds of families each year worry less about costs and focus more on what matters most.
“As a mom, hearing their stories of resilience was both emotional and deeply inspiring,” Danielle shared.
Amplifying the Patient Voice Through Media
We also work to amplify patient stories through local and national media, helping bring greater awareness to our mission and the people we serve.
In January, “CBS News Sunday Morning” featured TAF in a national story exploring the rise of artificial intelligence in customer service. The segment made a powerful point: technology can’t replace the empathy and human connection our Patient Advocates provide every day.
“When you call, sometimes you just need someone to listen,” said Gineris, a TAF Patient Advocate.
The story aired on the most-watched Sunday morning news program in the country, introducing thousands of new viewers to TAF and the importance of compassionate, person-centered care.
Later in the year, we had the privilege of meeting Kanwar, a man living with Parkinson’s disease whose story was featured in our 2023 Impact Report. After receiving critical support from TAF, Kanwar defied the odds and generously shared his journey on Orlando’s Spectrum News.
When he visited our Orlando headquarters, staff were thrilled to meet him in person, thank him for his courage, and witness the strength that defines so many of the patients we serve.
“We work hard because there’s a person on the other side,” Danielle said.
Events allow us to broaden our reach, deepen our impact, and ensure the patient voice remains at the center.”
Learning From the Patients’ Perspective
Just as we go out to meet patients, we’re honored when they come to us.
At our 2024 in-person staff event, we welcomed Sumaira Ahmed, Founder of The Sumaira Foundation, for a powerful conversation with TAF’s Director of Patient Advocacy, Stephanie Marshall. Diagnosed with neuromyelitis optica spectrum disorder (NMOSD) a decade ago, Sumaira transformed her personal diagnosis into purpose, founding an organization that builds community, raises awareness, and advances research for NMOSD.
Her visit reminded us of the very real impact of our NMOSD Financial Assistance Program and left staff feeling energized by her strength and commitment.
2024 FINANCIALS
Thanks
$177 MILLION $176,944,596
• TAF is incorporated 2018
• TAF opens its 50th disease program
• TAF raises over $200M for the first time 2020
• March: COVID-19 pandemic changes life in America
• TAF’s Provider Portal launches
• TAF launches disease program waitlists
• December: First vaccines are approved as “new normal” begins
2023
• TAF receives top marks from Charity Navigator
$494 MILLION $494,449,009 TOTAL NET ASSETS
• TAF opens first disease program
• TAF raises over $100M for the first time
• TAF provides financial assistance to its 100,000th person
• TAF launches online reenrollment process
• TAF celebrates 10 years of providing financial assistance 2021
ASSISTANCE PROVIDED $328 MILLION $327,843,364 TOTAL REVENUE AND SUPPORT $200 mil $380mil $100 mil
• For the first time, TAF named in Forbes’ America’s Top Charities list
• In the face of the pandemic, TAF announces it raised over $380M in 2020, the most in its history 2024
• TAF staff are featured on “CBS News Sunday Morning”
• TAF joins National Health Council
• TAF receives accreditation from BBB’s Wise Giving Alliance
• TAF provides financial assistance to its 200,000th person
• TAF celebrates 15 years of providing financial assistance
WAYS TO GIVE LEADERSHIP
Join the momentum of 2024’s movement, powered by more than 2,400 individual contributors who gave so we can provide financial assistance to people living with life-changing diseases. TAF offers several convenient ways for you or your loved ones to give. You can specify that your gift go to one of our nearly 100 disease programs or give an unrestricted gift, allows us to direct your donation toward the greatest need. Rest assured, ninety-four cents of every dollar you give to TAF provides direct financial assistance to patients, and all gifts are tax-deductible.
TAF’S Champion Program
TAF’s Champions are our most committed donors. Through a monthly commitment, our Champions provide crucial, consistent funding so we can continue to help thousands of people who desperately need it. Learn more at tafcares.org/monthly-donors
Online
Go to TAFcares.org/donate to donate directly through our website. You can also donate in honor or loving memory of someone.
Phone
To donate over the phone, please call (855) 421-4610 to speak with someone from our Philanthropy Department.
Download, print, and complete the Giving Form from the “Other Ways to Give” page on the TAF website and mail it to: The Assistance Fund 8427 Southpark Circle, Suite 100, Orlando, FL 32819.
Donor-Advised Funds (DAFs)
Recommend a grant from your DAF charitable giving account. It’s an easy and flexible way to support patients with life-changing diseases.
Vehicle Donation:
Donating your vehicle through Charitable Adult Rides & Services (CARS) is a simple way to support TAF while receiving a tax deduction. It’s a hassle-free process with free pickup service. Call 855-500-RIDE or visit tafcares.careasy.org for more details.
Employer Matching
Many employers offer a matching gift program and often match gifts from full- and part-time employees, retirees, and spouses. TAF’s employer matching gift program provides an easy way to increase the impact of your donation. Visit tafcares.org/donors/employer-matching to learn more.
WHO CONTRIBUTED IN 2024 JOIN
2,400 INDIVIDUALS
Executive Leadership
Danielle Vizcaino, President and CEO
Steve Alsene, Chief Financial Officer
Gerald Lauria, Chief Development Officer
John D’Angelo, Senior Vice President of Business Intelligence
Board of Directors
Social Media
Donate to TAF through our Facebook page by clicking the “donate” button at Facebook.com/AssistanceFund
Start a Fundraiser
You can launch a pre-built, customizable fundraiser at giving.tafcares.org/-/XDSHZDMP
Planned Giving
Leave a legacy and make a lasting impact by including The Assistance Fund in your estate plans. Visit tafcares.myplannedgift.org and choose the giving option that works best for your goals. TAF has also partnered with FreeWill to offer a unique opportunity for you to create your own legal will. It’s free, easy, and only takes a few minutes!
Visit tafcares.org/freewill for more information.
Linda Howard, Chair
Sharon Patterson, Vice Chair
Tom Bailey
Lawrence Hatch
Daniel Klein
Jeff Milford
John Rushing
John Wagner
Independent Medical Advisors
Robert Bermel, M.D.
Thomas Fountaine, M.D.
Brian Rini, M.D., FASCO
8427 Southpark Circle, Suite 100
Orlando, FL 32819
www.TAFcares.org TEL: (855) 845-3663
FAX: (833) 789-1228
FAX: (855) 430-0590
