Balance_March25

ISSN 1916-7709

VOL 17-ISSUE 1

IN THIS ISSUE

Wildfires and disability in BC

·6·

Grow independence

· 12 ·

The journey forward

By Ruth Marzetti

H

istorically our commitment to sourcing new and emerging technologies has always been a core value of Technology for Living (TfL).

The Provincial Respiratory Outreach Program (PROP) team actively seeks out advancements in BiPAPs, ventilators, and respiratory therapy, while the Technology for Independent Living (TIL) team explores the latest in home automation devices. These innovations hold immense potential for our members, and we are determined to stay at the forefront of these developments. Our dedicated staff continuously upgrade their skills to deliver the highest standards of service and expertise.

To support our growing membership, we are excited to introduce new team members who bring fresh perspectives and valuable expertise to our organization.

Please join us in welcoming:

The struggle for accessible toilets

· 14 ·

› Malik Gantosi, Biomedical Engineering Technologist, bringing exceptional technical expertise to support members’ equipment needs. › Amy Duhra, Respiratory Therapist, passionate about education, evidencebased practices, and quality improvement initiatives.

› Cayce Chobotiuk, joining our Logistics and Operations team as a Clerk, ensuring our equipment operations run seamlessly and efficiently.

Our management team has implemented key changes to align with our growing organization: › Miranda Whiteley has stepped into the role of Operations Manager, applying her leadership and organizational expertise to this vital position. › Krysten Polsky, Wayne Pogue, and Ean Price have been promoted as Managers of PROP, TIL, and Peers, respectively. Their vision and dedication will continue to drive our programs forward.

As we grow, our commitment to fostering connection and understanding among our members remains unwavering.

Our expanded Balance newsletter continues to share authentic stories that reflect the experiences of our community. These stories remind us that the ownership of TIL belongs to the consumers who created it and who placed their faith not in others but in themselves.

BALANCE Newsletter • March 2025

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Technology for Living round up TfL at the Indigenous Disability and Wellness Gathering

BALANCE NEWSLETTER IS PUBLISHED QUARTERLY BY TECHNOLOGY FOR LIVING

 #103-366 East Kent Ave. South Vancouver, BC V5X 4N6  604.326.0175  604.326.0176  info@technologyforliving.org Globe technologyforliving.org EXECUTIVE DIRECTOR Ruth Marzetti

This year's Gathering in Victoria, marked the 10th anniversary of Indigenous Disability Awareness Month. Organized by the British Columbia Aboriginal Network on Disability Society (BCANDS), the event brought together service providers, advocates, and community members to address challenges faced by Indigenous people with disabilities.

A Technology for Living team attended, using the opportunity to network and learn. Workshops covered topics like mental health, housing solutions, and accessibility innovations. A key focus was the significantly higher rate of disability among Indigenous peoples compared to the general population.

Personal stories shared during the event highlighted both obstacles and community-led solutions. These stories shed light on the unique challenges of being both Indigenous and living

Cooling comfort for safer summers Brought to you by BC Hydro

CONTRIBUTING WRITERS

Marnie Essery • Elysse Lanz Vivian Garcia • Ruth Marzetti Richard Harrison • Wayne Pogue Shareen Pasco • Praxis SCI Lasha Seniuk • Jane Stillwell Robin Whyte

Permission to reproduce: All Balance articles are copyrighted. Non-commercial reproduction is welcomed. For permission to reprint articles, either in part or in whole, please email info@technologyforliving.org Technology for Living houses the Provincial Respiratory Outreach Program (PROP 1.866.326.1245) and the Technology for Independent Living Program (TIL 604.326.0175). PROP is funded by the Province of British Columbia Ministry of Health through Vancouver Coastal Health. TIL is funded by theProvince of British Columbia Ministry of Health and other independent funders.

Publications Mail Agreement No. 41682526 © 2025 Technology for Living

Who qualifies?

People living with physical disabilities such as • Spinal Cord Injury • Cerebral Palsy • Multiple Sclerosis • Muscular Dystrophy • Stroke • Paralysis • Post-Polio Syndrome • ALS (Amyotrophic Lateral Sclerosis)

DESIGN / EDITOR Britt Permien

Technology for Living does not research, endorse or guarantee any of the products or services within the newsletter. We strongly recommend investigating products and companies before purchasing or using them.

with a disability, like inadequate rural healthcare and underfunded disability supports.

Cultural performances, including Indigenous dance groups, added depth to the gathering.

These presentations reinforced the connection between wellness and cultural identity.

The event concluded with a sense of progress and renewed commitment. Participants left with new connections, fresh ideas, and a strengthened resolve to create more inclusive and equitable support for Indigenous communities across BC.

Nicole Whitford (TFL Lower Mainland Community Advisor) and Robin Whyte (TFL Vancouver Island Community Advisor) sporting their cooling vests.

What is Spinal Cord Institute (SCI) Climate Futures?

SCI Climate Futures is offering complimentary cooling vests to British Columbia residents with physical disabilities and thermoregulation difficulties. Our goal is to enhance comfort and build resilience against heat waves. Although these vests are not clinically proven to lower core body temperature or prevent heat-related illnesses, we are committed to supporting your well-being by improving safety and comfort during extreme heat events.

Voices from the communities:

“I like having a cooling method that I can wear.

It also is quite comfortable to wear and not too cold.” — 2024 recipient “The cooling vest provides me with muchneeded cooling to my body, which makes this hot weather bearable.” — 2024 recipient Scan the QR code to apply for a complimentary cooling vest or go to bit.ly/sciclimate2025

BALANCE Newsletter • March 2025

BITS & BYTES FROM TIL Technology for Living (TfL) is excited to welcome Malik Ganotisi as our newest Biomedical Engineering Technologist.

Malik joins us with enthusiasm and a fresh perspective, ready to make a meaningful impact in his role supporting both the TIL and PROP programs. His focus will be on maintaining and adapting assistive technologies that empower people with physical disabilities.

With a commitment to learning and growth, Malik is eager to contribute to TfL’s mission of enhancing independence and quality of life.

Welcome, Malik!

CONTACT US!

We are always happy to discuss any member's needs. Simply phone us at 604.326.0175 or send an email to

📞

🔿 info@technologyforliving.org TIPS & TRICKS Fingerbot and Switchbot can't control touch-sensitive buttons?

TIL is now offering the Fingerbot Touch, which features touchsensitive activation, offering faster and more intuitive control of previously inaccessible buttons and touchscreens.

Fingerbot Touch can be operated using the integrated physical buttons, through the app, or using voice control.

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Assistive Tech Innovations at CES 2025

By Wayne Pogue

CES

2025, the world's largest and most influential consumer technology trade show, took place in Las Vegas from January 7-10.

This year, industry leaders, innovators, and tech enthusiasts showcased the latest advancements in consumer electronics across various sectors including a range of innovative devices designed to improve the lives of people with physical disabilities. From mobility aids to smart technologies, these advancements highlight the potential of technology to foster independence and inclusivity.

Many of the groundbreaking technologies presented at CES 2025 were showcased on-site and are not yet available to the public. As such, detailed information and direct links to these innovative products are currently limited. However, this article provides an exciting glimpse into the future of assistive technology.

Exoskeletons for Mobility The StrideAssist X5 exoskeleton is a modular, wearable device that aids lower-body mobility. It integrates with a smartphone app to track walking patterns and rehabilitation progress, making it user-friendly and effective.

Assistive Smart Home Solutions The VoiceAid Hub operates smart home systems with advanced voice recognition, even for individuals with speech impairments. The AutoLift Cabinet System allows users to adjust kitchen cabinet heights via voice command or app, enhancing accessibility.

Wearable Health Monitors The PulseGuard+ wrist device monitors vital signs and alerts caregivers during emergencies, while the PostureMate helps users maintain proper posture with gentle reminders to reduce chronic pain risks.

Next-Generation Wheelchairs

AI-Powered Communication Tools

The SmartGlide 360 wheelchair features autonomous navigation using AI and LIDAR sensors, enabling seamless movement through complex environments. The FlexiTilt Pro offers a lightweight, foldable design with adaptive suspension for smooth rides across various terrains.

The SpeakEasy Pro converts text to speech and vice versa, aiding communication for individuals with speech impairments. The GestureTalk Translator bridges the gap between sign language users and non-signers by converting gestures into spoken words.

Accessible Transportation The MobilityPod is an autonomous vehicle designed for wheelchair users, featuring automated ramps, adaptive seating, and voice-controlled navigation for a hassle-free experience.

These cutting edge innovations highlight the potential for a more accessible future for all, paving the way for greater independence and inclusion.

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BALANCE Newsletter • March 2025

INHALE / EXHALE A new Obesity Hypoventilation Syndrome (OHS) peer group is now available at PROP. Held over Zoom on the first Saturday of every month at 11 a.m., these sessions include expert presenters and discussions on managing OHS. The group offers education, resources, and a supportive space to connect with others who understand the challenges of OHS. Some videos will be recorded and shared afterwards, so don't worry if you can't make it.

To join, email lseniuk@technologyforliving.org.

This is a great opportunity to learn, share, and find community support.

CONTACT US!

If you need respiratory advice or support please contact the PROP team at phone-alt 1.866.326.1245

IDEA CORNER We’ve updated our phone system with new options to better help you. Thank you for your patience as we work through any kinks to ensure everything runs smoothly.

We appreciate your understanding and look forward to continuing to assist you with improved service and efficiency!

PROP: Where RT students meet community care

By Elysse Lanz, RRT

T

he journey to becoming a Registered Respiratory Therapist (RRT) in B.C. typically begins with acceptance into Thompson Rivers University's accredited program in Kamloops—the only one in the province.

The program consists of 2-3 years of academic and lab-based learning, culminating in the pivotal clinical year where students apply their knowledge in hospital placements across BC. While much of the clinical year focuses on mastering hands-on skills in acute care settings, students are also introduced to 'community care' and life outside the hospital. In 2024 Technology for Living (TfL) was thrilled to welcome clinical-year students from Royal Columbian to join the Provincial Respiratory Outreach Program (PROP) and experience the unique aspects of being a PROP Respiratory Therapist.

The students usually start their day with an office tour, where they learn about the program's fascinating story and its member-driven roots. Students are often visibly in awe when they hear about TfL's unique history.

Students then explore PROP's equipment fleet, gaining hands-on experience with devices previously only encountered in PowerPoint slides. This practical exposure is invaluable for their future careers, and it's fantastic to see these concepts 'click' in real-time. Some students even try their hand at emergency

scenarios reviewed during tracheostomy and ventilator classroom days.

A highlight of the experience is accompanying PROP RTs on home visits to TfL members.

It's a proud moment to walk into a home and have a member greet us by saying, "This program has changed my life!" Students observe as RTs introduce new equipment, provide education, and explore ways to better support members at home, including connections with other TfL programs like the Technology for Independent Living (TIL) and Peers programs.

This experience at TfL offers students a perspective beyond the hospital setting, emphasizing that respiratory care extends into the community. It's a great reminder that learning is ongoing, and there's always something new to discover from each other. Members have shown time and again that unique solutions often arise from unique circumstances, and when we work together, great things can happen.

Special thanks go to PROP RT Michael Bossaer for facilitating this opportunity, to the eager students for their willingness to learn, and to the TfL members who have been instrumental in the students' journey to success.

BALANCE Newsletter • March 2025

MEET LINDA MCGOWAN

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Discover the joys of travel with “Diverse Destinations”

By Robin Whyte

C

Linda (a TFL board member) is an avid world traveler who uses a wheelchair. Encouraged by her children to embrace new experiences, she had a unique encounter on her first trip to Nepal. Local women crafted a special basket that allowed her to be carried by a sherpa through challenging terrain.

This experience highlighted the universal care and support among women worldwide. The women ensured Linda's comfort by adding straw, a T-shirt under her knees to prevent scratching, water and sunglasses, before giving the goahead with their local expression 'JamJam' (meaning 'Let's go’).

CONTACT US!

We are always happy to discuss any member's needs. Simply phone us at 604.301.4208 or send an email to

urious about accessible travel?

Looking for an engaging and inspiring event? Join us this summer for Diverse Destinations, a workshop designed to empower wheelchair users and travellers with mobility challenges while providing an entertaining and informative experience.

Thanks to a generous grant from the Victoria Foundation, we're bringing this exciting event to Langford and two other locations in Greater Victoria. This support allows us to share valuable resources and create an inclusive, inspiring space for our community, Here’s what makes Diverse Destinations a must-attend event: › Insider travel tips for navigating air travel, ferry services, and more › The latest details on Hullo, the new accessible ferry connecting Nanaimo and Vancouver › Guest speakers with disabilities sharing entertaining travel stories, practical advice, and inspiration

📞

🔿 peer@technologyforliving.org TIPS & MORE CanAssist at UVic seeks applicants for a 3-year, Ministryfunded initiative creating customized tech to overcome work barriers. If you’re 16+, in BC, have a disability, and are not employed by the public sector, you may qualify—no fees or means test. Complete the online request form—get the tech you need! Visit canassist.ca to learn more.

The workshops will feature brand-new information designed to help wheelchair users feel more comfortable and confident about travelling.

Whether you’re dreaming of a weekend getaway, planning a local trip, or considering a journey to far-off destinations, you’ll leave with practical resources to help make your travel dreams a reality.

Our incredible guest speakers will not only share their travel tips but also take you on a journey to exciting local spots

and distant places. Their stories will be both entertaining and informative, making this event enjoyable for anyone who wants to learn more about accessible travel options.

Even if you’re not actively planning a trip, this presentation promises to be engaging and inspiring—a great way to connect with others and explore the possibilities of accessible travel.

This free event is made possible for Technology for Living members and the public through the generosity of the Victoria Foundation. Don’t miss your chance to connect, learn, and feel inspired!

Let the world become more accessible— one destination at a time!

EVENT DETAILS The 3 events will take place in the Greater Victoria this spring.

For more information email: peer@technologyforliving.org Watch our social media channels for further announcements.

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BALANCE Newsletter • March 2025

Wildfires and Disability Navigating Climate Change in British Columbia

By Jane Stillwell

C

limate change poses significant challenges for British Columbia, particularly in the form of increasing wildfires.

These natural disasters have far-reaching consequences, affecting ecosystems, weather patterns, and human health.

While wildfires impact the entire population, people with disabilities face unique and often more severe challenges that can jeopardize their safety and well-being.

projections indicate a higher likelihood of extreme fire weather events in the coming years, emphasizing the urgent need for both individual and community-level adaptation strategies.

The vulnerability of the disability community

Evacuation during a wildfire presents unique and significant challenges for people with disabilities. Those with mobility restrictions may struggle to evacuate quickly and safely, while people with sensory impairments may miss crucial emergency alerts. Dependence on assistive devices and life-sustaining equipment further complicates evacuation logistics. Power outages, common during wildfires, can render vital medical equipment useless, posing a substantial threat to people dependent on these technologies. The disruption of established care routines and support networks caused by wildfires can leave many people with disabilities feeling isolated and unsupported.

The disability community, encompassing a broad spectrum of physical, cognitive, and sensory impairments, experiences heightened vulnerabilities during climate-induced disasters.

The intersection of disability and environmental challenges requires a nuanced understanding of the barriers that hinder access to resources, information, and safe evacuation during wildfire events. Disparities in mobility, health risks, communication, and social support structures combine to create a precarious situation for disabled people in wildfire-prone areas.

British Columbia’s wildfire crisis

British Columbia has experienced record-breaking fire seasons in recent years, with longer, hotter, and drier summers creating ideal conditions for wildfires. These events have led to widespread evacuations, significant property damage, and tragically, loss of life. Rising temperatures, altered precipitation patterns, and the proliferation of invasive species all contribute to the escalation of wildfire severity. Scientific

Evacuation challenges for people with disabilities

Creating a personalized emergency plan

Creating a personalized emergency plan is paramount for people with disabilities. This plan should address each person’s unique needs and circumstances. Key steps include identifying accessible evacuation routes, which requires prior research and planning to locate physically

BALANCE Newsletter • March 2025

accessible routes that avoid potential hazards. Collaborating with local emergency services to tailor evacuation plans and registering with the local fire department about one’s disability status and location can facilitate timely and appropriate assistance during emergencies.

A comprehensive emergency kit should include essential medications, assistive devices, spare batteries, sufficient water and food supplies for several days, and specialized items such as wheelchair ramps or communication devices.

Establishing a reliable support network is crucial, encompassing family members, friends, neighbours, caregivers, and local disability support organizations.

It’s important to utilize assistive technology like GPS tracking devices, mobile apps for emergency communication, portable generators, and power banks for medical equipment.

Additionally, comfort items to help manage stress and anxiety should be part of a complete emergency kit.

Staying informed and connected

Maintaining access to accurate and timely information during a wildfire emergency is crucial. Persons with disabilities should register for emergency alerts and notifications tailored to their specific needs and ensure information is provided in accessible formats. Reliable sources of information, including battery-powered or handcrank radios and alternative communication methods, are essential. Designating a communication point with family or support networks is also important.

Community and government response

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techniques, connecting people with support groups, and fostering a sense of community can offset psychological risks.

Advocating for inclusive emergency planning and preparedness is crucial for protecting the rights and safety of people with disabilities. For peers, that means actively participating in community initiatives, engaging with government agencies, and raising awareness about the specific challenges faced by the disability community.

Networking within the disabled community can also be a valuable tool for sharing experiences and strategies. Longterm strategies should focus on climate change mitigation and adaptation measures to reduce the risk of wildfires and improve community resilience.

It is clear that the intersection of climate change, wildfires, and the experiences of the disability community presents a critical area for attention and action. By prioritizing preparedness, accessibility, and collaboration, we can ensure the safety and well-being of all British Columbians during wildfire emergencies.

Stay informed and prepared: Resources for British Columbians with disabilities BC Ministry of Emergency Management and Climate Readiness Access links to EmergencyInfoBC, PreparedBC, BC Emergency Alerts, and more: www2.gov.bc.ca/gov/content/safety/ emergency-management

Effective emergency response requires a coordinated effort from individuals, communities, and government agencies. Communities can foster support by checking on vulnerable people during emergencies, helping during evacuations, providing support during the recovery process, and conducting community workshops on emergency preparedness for people with disabilities. Governments play a crucial role by providing accessible emergency information and alerts, establishing accessible evacuation routes and shelters, ensuring adequate transportation for people with disabilities during evacuations, collaborating with disability organizations to address specific needs, and funding and promoting training for emergency responders on inclusive emergency response methods.

BC Wildfire Service Up-to-date information on wildfires and evacuation notices: www2.gov.bc.ca/gov/content/safety/wildfire-status

Wildfires and evacuations can be incredibly stressful, particularly for people with disabilities. Access to mental health services should be readily available before, during, and after a wildfire event. Promoting stress-reduction

Remember: Your safety is paramount.

Don't hesitate to seek help or evacuate early if you feel at risk.

Emergency Management BC 24/7 Emergency Coordination Centre: 1-800-663-3456 PreparedBC Resources for creating personalized emergency plans www2.gov.bc.ca/gov/content/safety/emergency-management/preparedbc

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BALANCE Newsletter • March 2025

A Breakthrough in Wound Care Health Canada approval improves access for treatment of all skin wounds

By Praxis Spinal Cord Institute

T

anelle Bolt accidentally fell asleep on a heat pad and woke up with a second degree burn the size of a lemon on her right hip. This would be a cause for alarm for anyone, but as she lives with a spinal cord injury (SCI), Tanelle needed to act extra quickly. Luckily, a friend shared a new wound treatment and Tanelle’s recovery was swifter than most.

Developed by Calgary start-up NanoTess, NanoSALV Catalytic helps heal wounds and persistent skin conditions by allowing the natural healing process to happen faster. NanoSALV Catalytic is a Health Canada approved technology shown, in a feasibility study led by Alberta Health Services, to accelerate healing of pressure injuries.

The technology is a wound care treatment matrix–in the form of a gel–that aims to increase the speed of healing wounds, reduces inflammation, and provides infection control for everything from small skin tears to chronic wounds. The gel can be easily applied in both healthcare settings and in the home.

NanoSALV supports the 3 “i”s – accelerating the healing of injured skin, reducing inflammation and irritation, and offering broad-spectrum infection control within its protective matrix.

The NanoSALV Catalytic Advanced Wound Care Treatment Matrix is being adopted across Canada at a fast pace after receiving Health Canada approval as a medical device. “NanoSALV is making our lives easier because this is designed for us,” shares Tanelle, a T5/T6 AIS A Complete paraplegic in BC, who sustained her injury in 2014 while free jumping off a bridge. “I used the gel for two months. The dressing never stuck to the wound, the infection immediately started to come out of it, and I watched as new tissue formed, all from the comfort of my home.”

Tanelle, who is a successful entrepreneur and accessibility advocate, believes having access to a treatment like NanoSALV is one more way to empower people to pursue active, independent lifestyles.

“NanoSALV is a game-changer for healing all types of wounds,” Tanelle believes. “Everyone, regardless of having an SCI, should have it in their toolkit to manage their skin health and wound recovery, so they can remain healthy and active.”

To learn more about NanoSALV, scan this QR code to visit wwwnanotess.com.

TfL staff (RTs & biomeds) have a limited supply of free samples of NanoSALV, so please ask during your next visit.

The current standard of care for treating wounds is to clean the wound and apply a dressing/antimicrobial dressing to keep the wound protected. Antimicrobials are good at eliminating bacteria, but a clean complex wound without bacteria commonly does not heal due to many factors. Therefore, a holistic approach with advanced technologies that actually accelerate healing is needed.

This innovation has been helpful for those with an SCI, as they manage the occurrence of developing a pressure injury from daily activity.

The Balance newsletter is for informational purposes only. Technology for Living does not endorse or recommend specific products or services.

Readers should exercise their own judgment when considering any product or service mentioned.

BALANCE Newsletter • March 2025

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Are You Kidding Me? Ponderings as I reset my smart home

By Vivian Garcia

A

couple of years ago, I was chatting with Ean Price (Technology for Living (TfL) Peer Team Lead / Innovations Strategist), and he insisted that I download the form to Apply for TIL Services from technologyforliving.org and sign up, as “I am a good fit.”

Leerily, I followed his lead and shortly I was contacted to set up a home visit with an assistive technologist. The tech brought a box of equipment to assemble and connect my new smart home.

It was a seamless experience including an Alexa greeting: "Good morning, Vivian. You look dazzling today."

Luv it! Soon my home was talking to me and answering questions in both useful and dubious ways.

And then the internet went out…

Music stopped, air conditioners stilled and the doors needed keys. "I can’t connect to the WIFI", "Sorry I didn’t get that…" and "There was a glitch", was all the support I received.

I do love tech, yet…

There was a learning curve. When I updated my smart phone, I accidentally slayed my bed’s voice control app.

After foolishly updating my router, I learned I had to reset my entire home. Resetting the WIFI and password to the old letters and numbers was impossible.

A low-tech solution to a high tech problem, I held a pole up to my smoke alarm to reset it while clutching a picture of the QR code to reconfigure it.

For the rest, I sorted through shelves to find the boxes where I stored printed copies of QRs to reconfigure my various devices. I opened my fifteen-page passwords doc and called neighbours—offering gifts for their assistance in resetting my outdoor cameras. The router couldn’t discern 2.4G from 5G, and I had to call the provider to split the WIFI. Merci?

Wasn’t I promised a smart home? I had to pull out the QRs, passwords and my stick to reset the house again.

I bought the neighbours more gifts. I learned some new terms and voice commands like, Sync all devices.

And the Nest devices required a Help Chat and online PDF file.

I bought a new smart phone. Lacking dexterity I broke the chip. Oops. I had to change my phone number. Crisis!

My emotional support ATM (Automatic Talking Machine) had been hushed and (apparently) I no longer dazzled.

I had to reset the house again and I started to act like Ned Ludd.

My WIFI provider offered more speed for less money.

Update five, here I go!

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BALANCE Newsletter • March 2025

While rifling through the QR codes and passwords, I seriously considered putting some of my devices back in their original boxes. Then I remembered, I spent years building patience for times like this. I used to send letters via Canada Post. I missed the olden days when people, hobbies and freedom mattered. Now I spend my time troubling with tech to make my life easier.

Remotely back in charge I resolved to change the loop. I pulled out my collection of old, dependable remotes. Two for the TVs, two for the VCRs, two for the Dysons, two for the air conditioners, one for my bed, one for streaming, four for the fan lights, and one each for the record player and the Chromecast.

Ean said I could set up a Universal Remote Control and I dropped my phone.

While filing QR codes, I mulled the dark side of brainy tech.

What if smart tech turns against me?

For instance, while initiatives like Mozilla's Common Voice (commonvoice.mozilla.org) aim to promote language diversity, they also raise concerns about voice impersonation. The rise of virtual AI and deepfakes could take scams to unsettling new heights, and the idea of avatars in online meetings or AI agents replacing human therapists, teachers and doctors makes me uneasy.

Not in my head As I dropped my stick, I considered the implications of using tech, such as brain implants by companies like Precision Neuroscience, Synchron, and Neuralink. I have lingering questions and fears around the ethics and privacy of this. Do we really want researchers to read our thoughts and store our secrets? They have analytics for that.

There are other options. Dragon NaturallySpeaking, Google Project Gameface, Cephable, DeviceABLE, NaqiLogix Earbuds, Augmental Mouthpad, Munevo and others come to mind.

We can talk to our smartphones and computers, we can use facial movements (open sourced on GitHub at github.com/phuselab/openFACS) to drive our wheelchairs, work our computers and play video games, so, why do we want to jump into body hacking and upgrades?

What happens when a company shuts down, or we change our mind, or the Ethics Commissions are unavailable or if the crew overseeing our brain is having a good or a bad day? Let’s not forget issues with satellites, weather, headaches, upgrades and hackers.

Moreover, tech is unreliable and I don’t like change.

After shelving boxes, and closing my password files, I opened an email from Ean, “...(you’re) a little all over the place… You should simply be able to change the SSID and password on the new router to match the old router.”

I'm wary of nanobots and the trend toward digitizing our minds. Keystrokes aside, I want to unplug; I as an individual matter… or do I? My computer flashed something about Ghostbots (virtual representations allowing people to interact with simulated versions of deceased people) and I cried, “We can plan our own hauntings?”

I’m not ready!

Sigh. I turned off my phone. I need professional help. I’ll call Technology for Living in the morning.

Disillusioned and angry, I raised my stick to reset the smoke alarm. I went through the usual steps and once again it voiced, “something went wrong.”

▶ Dragon NaturallySpeaking (nuance.com/dragon.html)

“Fire Alarm! FYI! I am thinking about Oct. 24, 1975 in Iceland! Here is a homonym for you!” Bang! No wonder TfL does not offer fire alarms!

MORE INFO ▶ Precision Neuroscience (precisionneuro.io) ▶ Synchron (synchron.com) ▶ Neuralink (neuralink.com) ▶ Google Project Gameface (tinyurl.com/Google-Gameface) ▶ Cephable (hcephable.com) ▶ NaqiLogix Earbuds (naqilogix.com) ▶ Augmental Mouthpad (augmental.tech) ▶ Munevo (us.munevo.com) ▶ DeviceABLE (tinyurl.com/DeviceABLE)

BALANCE Newsletter • March 2025

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CKNW Kids’ Fund supports Technology for Living YAT (Youth Assistive Technology) initiative

By Richard Harrison

T

echnology for Living (TFL) is a BC non-profit that envisions a more inclusive and equitable world for BC youth with mobility issues through assistive technology.

disease and disability on youth, their family, and society. The CKNW Kids' Fund donors are actually contributing to a better future for everyone.

Assistive technology can be a positive change-making force in the world. Specifically, we focus on underserved youth who are sometimes excluded because of their disability, who are left out and can't participate because of barriers that exist. We are trying to use assistive technology so young people and adults can reach their full potential in and out of the home.

Support from the CKNW Kids' Fund gives us the consistent ability to adapt and respond to community needs.

Because of the CKNW Kids' Fund and the support of its caring and generous donors, we can give kids and their families a little more independence.

We specialize in custom solutions tailored to meet your specific needs. Our technicians and biomeds collaborate with the youth, their family and care team to provide solutions using voice control, and specially designed switches sensitive to touch or breath. These solutions enable greater independence and access to essential devices such as TV controls, adaptive gaming systems, smartphones, lamps, fans, blinds, and door openers.

Door openers are extremely important. If someone can't open a door on their own, they can't participate in what is going on on the other side of the door or get out of the house in case of an emergency. Technology for Living aims to promote better understanding of issues faced by youth with disabilities, and the CKNW Kids' Fund mobilizes support for their dignity, rights and well-being, decreasing the impact of

TfL's Youth Assistive Technology (YAT) initiative assists youth aged 9-18 in British Columbia with limited mobility by providing home environmental control systems. This community-based project focuses on fostering independence and active participation within the community.

"Handling doors is difficult in a wheelchair and it requires the help of others which means less independence. Personally, while my family could easily help me in opening my home door, I had to rely on their help to move in and out of my own home which can be a hassle as I could only go outside when someone is with me or at home.

However, with the door opener I no longer had to rely on others who had to take time to make sure I was safe. Now I can open the door at my own will and I can return whenever I like since I no longer have to coordinate when I am coming home.

Overall, the door opener has greatly improved my life independence by allowing me to do an essential task on my own."— Yat user Funding for our services and equipment comes from donations and community grants. You can help by supporting the CKNW Kids' Fund or Technology for Living on their respective websites.

MORE INFORMATION www.cknwkidsfund.com www.technologyforliving.org/donate

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BALANCE Newsletter • March 2025

Accessible green spaces grow independence

By Shareen Pasco, DIGA Program Coordinator

In

2020, the COVID-19 pandemic brought unprecedented challenges to communities worldwide, highlighting the critical importance of food security and mental well-being. Amid the uncertainty, the Disabled Independent Gardeners Association (DIGA) launched an initiative that has since blossomed into a source of resilience, nourishment, and community connection: The Home Gardening Planter Initiative.

When the pandemic disrupted supply chains and limited access to fresh produce, DIGA identified an opportunity for its roster of gardeners with disabilities to address pressing food security concerns, isolation, and barriers to accessing nutritious food. This opportunity saw DIGA distributing free accessible gardening planters to its members, providing the tools for members to grow their food from home.

The initiative's goals were twofold: to help gardeners cultivate fresh produce independently and to promote the therapeutic benefits of gardening. The connection between gardening and improved mental health is well-

documented in research studies worldwide. Nurturing plants offers a sense of purpose, accomplishment, and connection to nature.

Innovative Design for Accessible Gardening Since launching the Home Gardening Planter Initiative, DIGA has distributed 26 accessible planters to gardeners throughout British Columbia's Lower Mainland. Each planter is thoughtfully designed with the specific needs of people living with a wide range of disabilities in mind.

They feature raised, ergonomic designs that accommodate various physical limitations and work well with different mobility aids. Furthermore, these self-watering planters are engineered to maximize vegetation yield, providing a sustainable and effective gardening solution. Partnering with the Tetra Society of North America to adapt the planters, dedicated volunteers meticulously build and modify each planter by hand, ensuring that they meet the unique requirements of our gardeners.

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Along with the planters, recipients receive comprehensive guides that offer easy-to-follow instructions for growing various fruits, vegetables, and herbs. Many participants have enthusiastically embraced this opportunity, experimenting with diverse crops such as tomatoes, lettuce, peppers, and basil. They can customize their gardens according to personal dietary preferences and adjust growing practices based on individual needs and conditions, resulting in a tailored and rewarding gardening experience.

Cultivating Independence and Well-being In just a few years, this initiative has yielded remarkable results. Collectively, DIGA gardeners have grown approximately 1,000 pounds of fresh, nutritious food, significantly reducing their reliance on store-bought produce. For many participants, the planters have become a vital resource for improving their diets and maintaining independence.

Beyond the tangible benefits of fresh produce, the initiative has fostered a sense of empowerment. Gardeners often speak of their pride in growing their food and the joy of sharing surplus crops with friends and neighbours.

Joe Tannenbaum, one of the first participants to receive a home planter says, "The impact of the initiative is best understood through the experiences of the gardeners themselves. I really appreciate the support I have received from DIGA. It has provided me with a lovely planter which I can easily keep on my back porch. I've enjoyed the ever-changing growing stages and colours of the flowers and plants throughout the summer.

Thank you, DIGA."

Growing a Supportive Community While the Home Gardening Planter Initiative began as a response to the pandemic, it has grown into a long-term program with far-reaching benefits. DIGA hosts in-person and virtual gardening workshops where members can share tips, celebrate their harvests, and connect with fellow gardeners. These workshops help build a supportive community that promotes knowledge exchange and encouragement from each participant. DIGA has also partnered with local organizations to source seeds and supplies, ensuring the program remains sustainable. Plans are underway to expand the initiative and distribute an additional 50 planters in the coming years.

The Home Gardening Planter Initiative highlights the importance of designing programs prioritizing accessibility and inclusion. By addressing physical barriers and providing

tailored resources, DIGA has created a model that other organizations can replicate in their communities.

Gardening is not just about growing food—it's about growing independence, resilience, and connection. For disabled individuals, the ability to nurture a garden represents far more than sustenance; it symbolizes selfreliance and possibility.

As the Home Gardening Planter Initiative continues to flourish, DIGA remains committed to its mission of fostering food security and well-being for disabled gardeners. The program's success serves as a powerful reminder of the potential for community-driven initiatives to address systemic challenges and create lasting change. Through the simple act of gardening, DIGA is transforming lives— one planter, one seed, and one harvest at a time.

To learn more about the Disabled Independent Gardeners Association (DIGA) visit digabc.org. If you would like to be placed on the waiting list for one of these planters, please email us at info@digabc.org.

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The struggle for accessible and inclusive public toilets

By Lasha Seniuk

T

he ongoing battle for accessible public toilets is a fundamental issue that touches on basic rights, human dignity, and the needs of all people with disabilities, as well as other marginalized groups. Finding a wheelchairfriendly washroom takes planning, patience, and courage.

A simple day trip, shopping excursion, or social outing can quickly become an awkward maze of frustration and regret.

"I have been in public washrooms where the wheelchair accessible stalls are only slightly bigger than regular stalls and provide no extra means of support. Handrails, transfer boards…forget about it. And getting your wheelchair in those doors? No way. You just get stuck," said Peter, a middle-aged retired professional living with Parkinson's Disease.

"Since I have had to transfer from my walker to a wheelchair, I just don't go out anymore." — Peter Daily stimulation, mental well-being, and social inclusion are vital to all forms of health and healing. When you feel the world is leaving you behind, it erodes your confidence and becomes increasingly easy to fall into depression and helplessness.

As of January 2025, municipal codes for wheelchair accessible washrooms include specific requirements for stall dimensions, door features, and grab bar placements.

However, these guidelines are often insufficient, poorly maintained, or simply not included in the design and upkeep of many public buildings.

"Planning any kind of an outing is a major effort," explains Peter. "Many of these businesses are only doing the bare minimum to comply with guidelines that, for the most part, aren't adequate or even enforced."

People with health conditions, such as irritable bowel syndrome (IBS) or Crohn's disease, also require more accessible toilets with a higher degree of privacy and cleanliness. Social anxiety, physical strain, and embarrassment are just too high a price to pay. In these circumstances, it's easier to not go out at all.

Poorly maintained or inadequate equipment is also a concern. Business owners and restaurateurs often assume that the mere appearance of safety devices satisfies the requirements. Transfer boards and support structures, if provided, are rarely acceptable.

Social considerations play a key role in the quality of acceptance for those living with disabilities and for those experiencing marginalization. Our culture, unfortunately, has a stigma surrounding the idea of accessible or inclusive toilets, viewing them as "special" facilities rather than essential for human dignity.

For transgender and nonbinary people, using public washrooms can be an uncomfortable and sometimes unsafe experience due to societal norms and prejudices. Genderneutral or inclusive restrooms can help mitigate these risks and provide a safer environment for everyone.

Public awareness campaigns are vital in addressing these misconceptions. Universal design principles aim to make toilets that are not only accessible but also comfortable and functional for everyone. Various advocacy groups are pushing for more inclusive restrooms, lobbying for legislative changes, raising public awareness, and engaging in grassroots efforts to improve toilet access for all individuals.

The ongoing battle for accessible and inclusive toilets is not just about physical space but about ensuring equal dignity and rights for everyone, regardless of their abilities, gender, or needs.

It requires multifaceted solutions, including advocacy, design innovations, policy reforms, and greater public awareness.

Above all, don't stay silent.

You have a right to be included.

To make a difference, you can use the online feedback tool on the AccessibleBC (tinyurl.com/AccessibleBC) website to share your experiences with barriers to government services and programs. Join your voice with others online or in your community to bring about change. Take your family, friends, and colleagues with you on a day trip to show them your reality. Contact local business owners, favorite restaurants, and community centers to ask them to take action.

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A fob, an app, and newfound freedom

By Marnie Essery

At

just 14 months old, Maliyah was diagnosed with Spinal Muscular Atrophy. Now 16, she’s not letting this hold her back. In high school, she is tackling a challenging Science Coop accelerated program with determination and enthusiasm.

In 2023, Maliyah’s family reached out to Technology for Living’s Youth Assistive Technology (YAT) program, seeking solutions to enhance her independence. The YAT program, serving BC residents aged 9 to 18 with limited mobility, provided Maliyah with an automatic door opener — an assistive device that has had a profound impact on her daily life.

“The automatic door opener has been life-changing”, Maliyah shares. With a fob in her purse and an app on her smartphone, she now has the freedom to come and go as she pleases. Whether it’s heading off to school, welcoming her piano teacher, or spontaneously deciding to go for a walk, Maliyah no longer needs to rely on family or friends for these tasks.

As she puts it, these advancements “open the door to unlimited possibilities.”

Beyond her journey with assistive technology, Maliyah has a passion for crafting and philanthropy. During her year of homeschooling in grade 7 due to Covid, she and a friend started an Etsy store selling handmade lanyards and bracelets. Maliyah decided to use her craft skills for a greater purpose, donating the proceeds to various causes. So far, she has been able to raise over $8,000 for various charities.

From January to March 2025, Maliyah plans to donate her Etsy store proceeds to Technology for Living. (etsy.com/ca/shop/DoubleMdesigns20)

This newfound independence has opened up a world of possibilities for Maliyah. She can now invite friends over and welcome them into her home on her own terms.

“It’s so convenient. It’s improved my independence and given me the ability to enjoy many hobbies.”— Maliyah While the door opener has been transformative, Maliyah acknowledges that challenges remain. Light switches are still out of reach, and she dreams of having more tools to help her cook independently in the kitchen. Alexa was suggested as a solution, but Maliyah wasn’t comfortable with the idea of something always listening. She wonders what other adaptive devices have helped people in similar situations.

Maliyah encourages others to explore organizations like Technology for Living, recognizing the positive impact they can have. “It might not be easy to ask for help,” she admits, “but I hope people use the opportunities offered by organizations like Technology for Living to help live life to the fullest and have a better quality of life.”

Maliyah’s story underscores the importance of continued support and innovation in assistive technology for young people with disabilities.

Maliyah’s story demonstrates how assistive technology can enhance independence and enable young people with disabilities to pursue their interests and contribute to their communities.

To learn how assistive technology can make a difference in your life, or to share suggestions about assistive devices that others have found helpful, please contact us at til@technologyforliving.org or yat@technologyforliving.org.

We’ll be sure to pass along your feedback to Maliyah.

For more information about our organization, history, and services, visit our website at technologyforliving.org.

☆ Donate to TFL ☆ Supporting individuals with disabilities fosters a sense of belonging. Play a role by providing autonomy, respect, dismantling barriers, and instilling confidence.

BROUGHT TO YOU BY

April 26, 2025 | 10am – 3pm

Become an essential part of building a society where everyone, regardless of their abilities, is accepted and given the space to flourish. Join us in shaping a future where inclusivity is not just a goal but a lived reality.

Your donation to TfL can becomes a catalyst for creating a more inclusive and accessible future for those facing mobility challenges.

Scan the QR code to make a meaningful impact.

Awards announcements at 2 pm for this year’s winning entries Technology for Living, the proud host of this prestigious and innovative annual competition, is inviting you to join us for our signature event, showcasing assistive technologies developed by students and people with disabilities.

To RSVP & other info: info@simoncoxcompetition.com

Blusson Spinal Cord Centre

818 W 10th Ave, Vancouver, BC V5Z 1M9 SUPPORTED BY The Morris & Helen Belkin Foundation

LOHN FOUNDATION

Stuart Belkin Education Fund