St Wilfrid's Hospice Impact Report 2022-23

Impact Report 2022-2023

Welcome to the 2022-2023 St Wilfrid’s Hospice Impact Report. This year has been one of change and collaboration, as we welcomed a new Chief Executive Officer (CEO) and strengthened our work with other local hospices.

In January 2023 we welcomed Colin Twomey - formerly our Clinical Services Director - into the role of CEO, having wished David Scott-Ralphs a happy retirement and thanked him for his stalwart service over the previous five years.

Despite such a significant change, the organisation did not lose focus or momentum as we concluded the final year of our five-year, Closer to You, strategy and committed to new strategic priorities for the coming five years.

Our ongoing collaboration with all hospices working across Sussex continued to strengthen - with the ultimate aim of enhancing patients’ experiences of end of life care, through increased consistency of service delivery, better standardisation of quality measures and maximising the effective use of our very specialist resources.

More locally, our collaboration with St Michael’s Hospice - which serves the people of Hastings and Rother, has resulted in an increased number of shared posts at Director level. This has enabled both hospices to respond better to local variations in need, whilst increasing standardisation of services and equity of access across a larger area of East Sussex.

It was our first year of operating the service free from the limitations imposed by the demands of the covid pandemic. Whilst the levels of take-up for our inpatient services have not returned to pre-pandemic levels, our community support services have increased their reach, as have our bereavement services. Satisfaction levels expressed by patients and other users of our service remain high, as do engagement levels with all of our feedback mechanisms.

The communities of Eastbourne, Seaford, Pevensey, Hailsham, Uckfield, Heathfield and the surrounding villages continue to give us a tremendous amount of support; through their voluntary work with us, through their incredibly generous fundraising efforts and through their support of our trading activities in our shops.

In addition to all that, they continue to be the most effective ambassadors; championing the importance of locally available, high-quality hospice care for local people at the end of life.

On behalf of all members of the Board of Trustees I convey our thanks to our supporters, staff and volunteers for their dedication and ongoing commitment.

Shaun O’Leary Chair of the Board of Trustees

Our Mission

Enabling people to live well at end of life

Our Vision

A community where people talk openly about dying, live well until the end of their life and where nobody dies alone, afraid or in pain

Our Values

Compassionate

We care about each other. We will go out of our way to recognise when someone needs our help or support and will respond to the very best of our ability.

Professional

We use our knowledge and skills individually and collectively to deliver the best service possible to those we support. We proactively seek to improve and enhance our skills, taking pride in developing ourselves and others.

Progressive

We’re forward looking and thinking. We pursue opportunities to improve and find better ways of doing things through new ideas and approaches.

Respectful

We treat people with dignity and respect, always acknowledging and respecting people’s individuality. What makes us different makes us better.

What we do

St Wilfrid’s Hospice is a local registered charity, providing high-quality whole-person care for people with any life-limiting illness towards the end of their lives. We support the physical, emotional, psychological, spiritual and practical needs of our patients. We also support their families and carers. This is in the hospice building, in patients’ own homes and in local care homes.

Where we are

Our catchment area covers a population of 245,000 people in Eastbourne, Seaford, Pevensey, Hailsham, Heathfield and Uckfield and all points in between.

We couldn’t do any of this without you. Thank you!

Your support means that people like Mark can spend their final days at home

‘We were all so thankful for everything St Wilfrid’s did’

When Mark Peppé, local artist and illustrator, was diagnosed with pancreatic cancer and told he may only have three months to live, his family knew that they wanted him to stay at home. St Wilfrid’s Hospice was able to make that happen, allowing Mark what two of his children, Luke and Gemma, describe as ‘the perfect death’.

‘Dad was a painter and an illustrator and he had a lovely studio at home in Willingdon village that he spent all his time in,’ explained Gemma. ‘That is where you could find him; if he wasn’t on a walk, he was painting. And his studio walls were lined with books about art because that’s what he was just completely immersed in.

‘He was very dedicated to his art, painting wherever he was - at tennis matches, in his hospital bed - but he was also a real family man. His

The Peppé family, with Gemma and Luke at the front

favourite company would be his children and his grandchildren. He was a real gentleman, very polite and generous and would always do the right thing. He was my rock.’

‘Dad’s diagnosis was a bit of a shock really,’ said Luke. ‘We knew right away that St Wilfrid’s Hospice would have involvement in dad’s care. We were very certain about what pathway we wanted; we wanted him to stay at home and to get help from the hospice.’

Gemma moved in with her parents for the last two months of her father’s life and describes the care that St Wilfrid’s provided as amazing. ‘The hospice made regular visits in the last month, twice a day to start with and by the end it was four times a day.

‘It meant that he could retain his dignity. Because dying and cancer is messy, there are a lot of things that –being his daughter – he didn’t want me to do. Or that my mother couldn’t do. It just meant that four times a day, really friendly faces would come in and not only care for him but also give us a time to ask questions and be reassured.

‘St Wilfrid’s helped overnight sometimes too, which was amazing. By that point we had moved my father’s bed into his studio and I was working full time by his bedside. I was exhausted, and my mother got exhausted as well. St Wilfrid’s gave us a night sitter for a couple of nights and it just meant we could get a full night’s sleep.

‘After he died we were all so thankful for everything St Wilfrid’s did for him and our family, we felt so lucky that he had been able to fulfil his wishes and spend his final days at home in the studio that he loved.’

We rely on your donations to offer our services free of charge to patients like Mark and their families and carers.

If you would like to donate to St Wilfrid’s Hospice please visit stwhospice.org/donate

‘The sum the hospice has to raise each day to continue offering care to people like our father is outstanding. We would urge anyone who is able to to support this fabulous cause.’

Luke Peppé

Feedback means so much and helps us to work out how to improve our services for the future.

You told us

IPOS

Integrated Palliative Outcome Scale (known as IPOS) is one of a suite of measures we use at the hospice. It assesses 17 areas: physical, psychosocial, social and spiritual; the diagram shows the key five.

IPOS captures the patient’s main concerns, other symptoms they are experiencing and whether they have any other unmet needs such as practical issues or wanting more information. Scores are taken (from 0 to 4) and reassessed at a later date with the hope that the scores have reduced, indicating an improvement.

2022-23 avg earliest scores

2022-23 avg latest scores

Comparison based on between 208 to 243 records in 2022-2023 where an initial assessment elements score existed followed by at least one later score for the same element.

St Wilfrid’s VOICES is a survey adapted from a national tool from the Office of National Statistics. The survey is sent out to bereaved family members and carers and their comments and opinions are of great value. The St Wilfrid’s VOICES Survey 2022-2023 achieved a response rate of 34%

91% of respondents felt the care they received on the Inpatient Unit was outstanding or excellent.

75% felt that they got as much advice and support from the Community Team as they needed when caring for a relative or friend.

88% of respondents said they were extremely likely to recommend St Wilfrid’s Hospice to friends and family.

Views on care 2022-23

Your team is excellent, everything they do is geared around patients - their comfort, pain relief, dignity and overall requirements. Don’t go changing. You are all perfect. All play an important part! Large family which feels well supported in the hospice and at home. After a few days the anxiety levels dropped and all the family felt comfortable. Cannot fault the care given by the hospice. Patient feels hospice care has made a great difference to his wellbeing. His family feel well supported. The medical and nursing staff give him as much information as he needs about his condition. All I can say - it’s extremely good - The nurses are caring and the food is good. I feel extremely lucky to have been given a place here. I feel better than when I came in. Was apprehensive about coming in as his wife died here 3 or 4 years ago. Patient feels safe and comfortable and so happy to be in the hospice. Also, the family have peace of mind that patient is being well cared for. I am in the right place. All is good. Pain is still not quite under control. Staying in the hospice is not just beneficial to him but also to his family who feel very supported by all. Anxiety levels have dropped for her and her family since her admission to the hospice. Her family feels supported. Is happy to be here. Brilliant care. Only good words to say about the team and the hospice in general. Care is simply phenomenal! She has many friends who visit. Everybody is very polite and the care is excellent! Excellent Care! Family were finding caring for her difficult at home. She now feels safe and is getting enough information about her condition. Family and friends feel supported and feel they can ask the medical and nursing teams any questions. Family and patient feel well supported. They have meetings with the medical and nursing teams and have been given all the information about the situation. Family feels supported. Patient has no worries about being here. Family feels supported. Symptoms coming under control. Family feels very well supported and are amazed at the care they are receiving at the hospice. Feels he is in seventh heaven! Feels he is in the right place. Looking forward to friends visiting. Feels more comfortable being in the hospice. Her family are getting support and she feels she will when deciding about her future care. Feels that he and his family and friends are well supported. Feels well supported and so do his family. Feels well supported as do her family. Loves being here. Friends feel well supported. Patient is getting enough information about her condition. Going home tomorrow. Feeling anxious. She knows she can ring in anytime for support and the family can do the same. Has been happy to be in the hospice. He is feeling much better being in the hospice. Family feel they are supported by the IPU Team. Her family feel supported by the hospice team. Feels she can ask the staff any questions about her condition. Superb. Can’t have done any more. Very good. It’s a massive relief to have the Nurse Line. It’s the whole thing and peace of mind. They are absolutely fantastic. I can’t speak highly enough of St Wilfrid’s.

Anonymised comments from patients being cared for on our Inpatient Unit and in the community during the 2022-23 financial year. These are gathered as part of routine monitoring to help us understand the impact our care has had on a patient’s symptoms and general wellbeing.

Some content Our people

The staff and volunteers at the hospice are a huge part of the St Wilfrid’s story and are at the heart of everything we do

In 2022-2023, St Wilfrid’s employed 234 staff and there were more than 480 volunteers supporting our work in over 45 roles.

1. Her Majesty The Queen Hospice President

2. David Dimbleby Patron

3. Duke of Devonshire Patron

4. Dr Joan Hester Patron

The Board of Trustees guides the hospice’s ambitions, helping us to provide the best care.

5. Shaun O’Leary Chair

6. Jane Butler Chair of the Clinical Governance Committee

7. David Turner Chair of the Income Generation Committee

8. Fiona MacIntyre Chair of the People Committee

9. Melanie Richardson Chair of the Audit Committee

10. Duncan Adams

11. Giles Meyer

12. Lauren Chambers

13. Dr Mark Barnes

14. David Holdsworth Appointed 13 September 2022

15. Beryl Hobson Appointed 13 September 2022

The Leadership Team sets our goals and steers the hospice’s course so that we can provide the best care possible.

16. Colin Twomey Chief Executive Officer

17. Dr David Barclay Medical Director

18. Andrea Dechamps Patient & Family Support Director

19. Pam Russell Development Director

20. Darren Mackenzie Finance & IT Director

.

Your support makes all the difference!

Did you know?

Every £1 spent on fundraising raised £4.36

£3,848,600 was left through gifts in wills

£1,100,000 largest legacy

£289,699 donated in memory

7,603 players in the Local Hospice Lottery

8,760 hours were given by IPU Host volunteers covering 1,095 breakfast, lunch and dinner times

£19,160 was won in prizes

3,240 hours of home visits and 360 hours of telephone calls made by our Community Support Volunteers and Telephone Befrienders

11,556 facebook followers

864 hours completed by Young Clinical Volunteers supporting our clinical team

Services in numbers

In 2022-2023 we supported 2,350 patients and family members. 1,603 of these were patients.

The Inpatient Unit

Our spacious en-suite inpatient rooms all look out onto the courtyard or orchard gardens.

Patients are admitted for short stays and, while some will die in the hospice, many are discharged having had their symptoms brought under control .

188 patients 206 admissions

21 The average number of days a patient stayed

Care at Home Team

The team delivers personal care to patients at home to enable them to remain in familiar and comforting surroundings.

8,132 Visits made

133 Patients

Living Well

The Living Well Service provides group support, physiotherapy, occupational therapy and complementary therapy to patients and their families and carers.

753 patients

6,564 contacts

24/7 Nurse Line

A telephone advice and support line for patients, family members, carers and healthcare professionals.

13,516 Initial contacts

Patient and Family Support

Counsellors and Social Workers support patients and their family members through unfamiliar circumstances, thoughts and emotions. The team also offers spiritual support to people of all faiths and none.

1,074 Individuals supported across all services

2,987 Counselling support sessions

158 Young people received counselling sessions via the Seahorse Project

Community Team

A range of healthcare professionals support patients and their families at home and in local care homes. They liaise closely with Primary Care Services such as the patient’s GP and District Nurses.

6,319 Face-to-face contacts

1,396 Patients supported

Reflecting back...

Last year...

Á Priority: Develop a new strategic framework for 2023-2028.

c Progress: We spent time engaging with patients, carers, relatives, our volunteers and workforce to build our next strategy, which was approved and will be rolled out in 2023-2024.

Á Priority: Extend community nursing visits to 10pm and work with other Sussex hospices on a shared approach to out-of-hours support.

c Progress: We did not achieve extension of nurse visiting to 10pm, partly due to challenges of recruitment. We made good progress with collaborative work to provide 24/7 access to advice across East Sussex. A pilot will start in 2023 for a shared telephone advice line.

Á Priority: Develop a ‘virtual ward’ approach to managing the most complex patients in the community.

c Progress: Initial planning has taken place, working with healthcare partners, to embark on a pilot project in 2023. This included scoping work to assess the preferred model of delivery.

Á Priority: Further develop digital health approaches including patient symptom reporting.

c Progress: We assessed a number of applications that enable patients to self-report their symptoms and we will work during 2023 to implement the preferred option. Hand-held devices were introduced across the Inpatient Unit to improve access to patient data, reduce risk and increase effectiveness.

Á Priority: Make progress on initiatives to improve Equality, Diversity and Inclusion (EDI).

c Progress: We agreed a new equality statement to ensure clarity and consistency across the organisation. We took part in a national project which looked at the quality of information collected about patient’s demographics. A group was set up to guide delivery of EDI initiatives, and a steering group was established to guide EDI work. A range of teaching sessions focused on EDI were put in place for the workforce. Accessibility of the hospice website was improved with a new toolbar. A staff LGBT network was established.

The priorities from last year and the ones we have planned for the coming year

Á Priority: Increase patient and family feedback to inform our services.

c Progress: A survey of patients and bereaved relatives was undertaken to inform the development of a new St Wilfrid’s strategy. We worked with our local Healthwatch and took part in their engagement exercise to gain views on end of life care provision.

Á Priority: Install a new patient database, SystmOne, to allow better sharing of information.

c Progress: Following a year-long project, the switch to SystmOne was completed at the end of March 2023. The project included putting in place the processes to share information with the wider health service to improve access to patient data.

...looking forward

Priorities for the year to come:

Á Establish new ways to work in partnership for the benefit of patient care. We will pilot a 24/7 telephone helpline in partnership with three neighbouring hospices.

Á Improve care at home for patients with complex needs. We will undertake a pilot of the virtual ward including evaluation to inform next steps.

Á Reduce inequities in access to end of life care. We will grow our knowledge and skill to ensure we can show leadership in implementing approaches which will make a positive impact on providing equitable access to end of life care across our communities.

Á Demonstrate our impact and outcomes using digital approaches. We will work with hospices across Sussex to implement a project to improve accuracy and reporting of data.

Á Demonstrate excellence in quality improvement approaches. St Wilfrid’s will establish a new model of quality improvement and demonstrate its effectiveness.

Á Work well in partnership to ensure the best use of resources and most effective outcomes for patients and families. We will partner with others to establish joint activity to achieve best outcomes.

Á Ensure a sustainable workforce for now and the future. We will implement new approaches to improve career pathways and progression.

Á Commit to developing as an environmentally sustainable organisation. We will install solar panels to improve future energy resilience.

Á We will grow our funding and strengthen future resilience. We will expand our retail operation and further diversify our fundraising approaches.

Where the money

comes

from...

...and where it goes

The cost of care

£42 meals for a patient for a day

£84 running a community car for a day

£118 a nurse for a day £19,318 all the services provided by St Wilfrid’s for one day

Gifts in Wills for 2022-23

We are always amazed by the generous legacy gifts left to us by so many kind supporters. Donations like these really help us to plan better care for our patients, essentially giving back to the future.

There were 74 legacy gifts left to the hospice last year

67 of these totalled £993,000

7 totalled £2,310,000

The largest gift was £1,100,000

A total of £3,848,600 was left to us in wills

For legacy gifts under £100,000 the average gift was £14,820

The smallest gift was £50

We are very grateful for all these gifts, which ensure that we can care for future hospice patients.

If you want to find out more about leaving a legacy in your will to St Wilfrid’s Hospice, please contact Rozelyn Bristowe on 01323 434214 or at rozelyn.bristowe@stwhospice.org .

2022-2023 highlights

1. Colin Twomey took the reins as CEO in January 2023 after we bid a fond farewell to David Scott-Ralphs.

2. In May 2022 Rainbow Run welcomed 600 participants, raising over £44,000.

3. We celebrated Queen Elizabeth II’s Platinum Jubilee with a street party for volunteers in June 2022.

4. Her Royal Highness The Duchess of Cornwall (now Her Majesty The Queen) was appointed as our President in August 2022.

5. In December 2022 guests enjoyed our first winter ball , and raised £74,855.

6. We welcomed Community Support Volunteers onto the ward for the first time in December 2022. They provide companionship to patients staying at the hospice.

7. The Living Well Hub was launched in April 2022, providing group support, physiotherapy, occupational therapy and complementary therapy to patients and their families and carers.

8. Our new furniture shop on Langney Road in Eastbourne opened in September 2022.

9. In May 2022 17 Wilfriders took on an epic 300-mile cycle ride to Paris and raised over £42,000.

10. Rev. Richard Coles hosted an even t at All Saints Chapel in Eastbourne in February 2023, inviting guests to support St Wilfrid’s Hospice.

11. Our Seahorse Project received further funding from Children in Need in June 2022, allowing us to continue supporting bereaved children and young people aged 6-18.

12. In March 2023 Bereavement Help Points were re-launched, providing a safe space for anyone who is bereaved to share their experiences and seek support.

4.

5.

6.

7.

8.

9.

10.

11.

12.

How could you help?

Host or join an event

From bake sales and raffles to fun runs and skydives, support from our community makes a huge difference. Visit stwhospice.org/events to sign up to an upcoming event or phone 01323 434241 to discuss your fundraising idea with our team.

Play the lottery

From just £1 a week, you’ll be in with a chance of winning £2,000 every single week along with 200 other cash prizes and a rollover that reaches up to £25,000! Run by the Local Hospice Lottery, you can find out more at stwhospice.org/lottery or call 0800 316 0645.

Volunteer with us

We’re always looking to welcome new faces to our amazing team. If you have some time to spare and would like to make a difference

in your local community, we would love to hear from you. Visit stwhospice.org/volunteering or contact vsteam@stwhospice.org .

Leave us a gift in your will

Our Make a Will Month takes place in September each year. Leaving a gift in your will – whether a percentage of your estate or a fixed sum – is a wonderful way to support future generations.

Find out more on page 19.

Make a donation

It costs over £19,000 a day to ensure we’re there for those who need us. Support St Wilfrid’s with a regular gift, a one-off donation or by giving in memory of a loved one. If you can Gift Aid your donation, we are able to claim an extra 25p for every £1 donated at no cost to you. Visit stwhospice.org/donate for further details.