My Journey with Escobar Syndrome
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• Pages 6-8 Your Story Matters!: Meet Rebecca Parten: A Life Fully Lived: My Journey with Escobar Syndrome
• Pages 10-11 Judson Center: 4 Ways to Help Kids Grow Social Skills from Autism Connections
• Pages 12-13 See What’s New at STEP!: Beyond the Paycheck: The Social Impact of Disability Employment
• Pages 14-15 Nonprofit Spotlight: The Agape Project
• Page 17 We’ll Get Mansions In Heaven
• Pages 18-19 It Can’t Be Summer!
• Pages 20-21 Healing Haven: Traveling with a Child with Autism: 5 Tips for a Smoother Ride
• Page 22 Advocate Like A Mother: The Importance of Comprehensive IEP Evaluations
• Page 23 Chapters of Change: “Accessible Vacations: An Insider’s Guide to 10 National Parks” by Simon Hayhoe
• Pages 24-26 Uniquely You Hosts Bowling Fun at Bowlero Lanes & Lounge!
• Pages 27-29 Local Events
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The Importance of Comprehensive IEP Evaluations
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Traveling with a Child with Autism: 5 Tips for a Smoother Ride
the Paycheck: The Social Impact of Disability Employment
4 Ways to Help Kids Grow Social Skills from Autism Connections
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STAFF
M EE T R EBECC A PAR T EN
A LIFE FULLY LIVED
My Journey with Escobar Syndrome
When people first meet me, they usually notice my wheelchair before they notice me. But what they don’t see right away is the rich, beautiful life I’ve lived—one filled with love, purpose, and resilience. My name is Rebecca, I’m 35 years old, and I was born with a rare condition called Multiple Pterygium Syndrome, more recently known as Escobar Syndrome.
A Surprise Beginning
My diagnosis was not known during my mom’s pregnancy. It came as a delivery room surprise. I was born small, with webbing across my joints, flexion contractures in all of my joints, rocker bottom feet, and a head full of hair. My doctors immediately knew something was going on, but they couldn’t identify it right away. My mom recalls holding me for just a moment and locking eyes with me—that’s when our lifelong bond was sealed. I was taken to the NICU for observation and testing. Thankfully, I didn’t need breathing support, and after a few days, I went home. One of the first diagnoses suggested was Arthrogryposis Multiplex Congenita (AMC), a broad term that didn’t provide many answers. So, we began the long journey of specialist visits, physical and occupational therapy, and trying to understand what made my little body so different.
Children’s Hospital to see Dr. Judith Hall, a leading expert in AMC. She confirmed within minutes that I had Multiple Pterygium Syndrome, a genetic form of AMC based on physical characteristics. At the time, there were no genetic tests to confirm it—diagnoses were made through observation and exclusion.
Understanding Escobar Syndrome
Escobar Syndrome is a rare genetic condition that is autosomal recessive, meaning both parents must carry the gene mutation. The hallmark features include joint contractures, scoliosis, skin webbing, rocker bottom feet, and sometimes internal organ issues. In my case, the condition primarily affects me externally: I have scoliosis, kyphosis, restrictive lung disease, hearing loss, and low vision, which prevents me from driving. I can walk short distances, but I rely on a power wheelchair most of the time and need help with daily tasks. The rocker bottom feet also affects my every day life in what shoes I can wear and causes pain in the bottom of my feet.
The underlying cause of Escobar Syndrome is believed to involve a malfunction in acetylcholine receptors—the chemicals that send signals from the brain to the muscles. These receptors fail to transition properly in utero, affecting
While my body may continue to change, I’m not defined by my diagnosis. I am a daughter, sister, researcher, friend, and Disney lover.
how muscles develop and function. Though researchers have identified specific gene mutations, there’s still much to be discovered, especially regarding why severity varies so much, even among family members.
When I was around 14 or 15, my family participated in a research study overseas. Through a simple blood draw, researchers were able to identify two specific mutations in my case. This exciting discovery not only confirmed my diagnosis at the genetic level but also helped advance testing and potential future treatments.
Growing Up, Going to School, and Advocating for Myself
I’ve always been a determined soul. I started preschool at age 3 in the district’s special education program for kids with physical impairments, receiving services like PT, OT, and adapted gym. After preschool, I transitioned into a general education setting with pull-out therapies, and eventually transferred to our neighborhood elementary school to be closer to home. This was back in the 90s, and I was the first
While I do experience fatigue and chronic pain, I try to focus on the good.
wheelchair user to attend that elementary school. It wasn’t an easy transition for the staff or students, but my family and I helped educate them and open the door for others who came after me. It was during these early years that I began using a power wheelchair, glasses, hearing aids, supplemental oxygen, and a nighttime ventilator due to my scoliosis and restrictive lung disease.
Middle school brought more independence. I had an aide for physical support, but I remained in general education classes. By high school, I advocated to attend classes with minimal support—just accommodations like early dismissal from class to avoid crowded hallways and a study hour in place of gym.
I went on to earn a bachelor’s degree in communications from the University of Michigan–Dearborn while living at home. Later, I pursued a Master of Social Work degree at the University of Michigan–Ann Arbor. It was a major milestone for me to live on campus with the help of caregivers, paratransit, and a strong support system. My parents even stepped in to take overnight caregiving shifts when agencies couldn’t find help—proof of their unwavering support.
Work, Home Life, and Today
Today, I live with my parents, Amy and Jim, and my younger sister Cara, along with our pets—three cats, one dog, and some fish. I work part-time and remotely for the University of Michigan’s Physical Medicine and Rehabilitation Department, focusing on research studies. I love the blend of creativity and purpose it brings to my life—designing flyers, helping with study recruitment, and working on research protocols that will one day improve care for others like me.
While I do experience fatigue and chronic pain, I try to focus on the good. My days are unpredictable—some days I can work for hours, and others I need to lay down and use my ventilator for most of the day. I’ve developed secondary issues over time, like adrenal insufficiency and high blood pressure, which require constant management. But I’ve found joy in the slower pace too—through audiobooks, crafts, and visits from my best friend Danielle and her kiddos.
Challenges and Lessons Learned
Growing up with a rare condition brought many challenges. One of the hardest was undergoing a spinal fusion at just 4 years old because my scoliosis had progressed aggressively. The surgery was long and risky, but necessary to protect my lungs. Thankfully, I only remember the fun stuff—Barney videos and a Barbie McDonalds playset!
Socially, I faced awkward stares and insensitive comments. “What’s wrong with her?” is something I heard more than once. My parents modeled calm, informative responses and taught me to educate rather than get angry. As a kid, I sometimes felt left out, especially watching my sister do things I couldn’t, but my parents always focused on what I could do— and I had some amazing experiences.
Celebrating the Joy
One of my all-time favorite memories is my Make-A-Wish trip to Disney World when I was 6 or 7. Doctors were unsure of my prognosis, so the wish was rushed. Since I wasn’t aware of the fragility of my health, the fact that I got to go within a month of telling my wish-granters what I wanted to do only added to the magic. We met Mickey, visited the beach, and stayed at Give Kids the World Village. For once, people didn’t stare or pity me. They treated me like a princess. The trip allowed my family to just have fun and enjoy being together.
Another special memory is Trails Edge Camp for Ventilator Dependent Children. I attended every summer from age 11 to 20. The camp was staffed by medical professionals and volunteers who made it possible for kids like me to just be kids. Horseback riding, crafts, fishing, a treehouse, and a dance (my favorite!).
Advice to Families on a Similar Journey
If you’re a parent of a child with special needs or someone with a rare diagnosis yourself, here’s my advice: Focus on the good times and the little victories. Don’t ignore the hard moments—acknowledge them, because they’re real—but don’t let them overshadow your story. Build a strong support system. Advocate fiercely. And find joy where you can.
Looking Ahead
While my body may continue to change, I’m not defined by my diagnosis. I am a daughter, sister, researcher, friend, and Disney lover. I live a life filled with deep connections, hardwon victories, and quiet moments of peace. I’ve learned to listen to my body, take things day by day, and celebrate every accomplishment, no matter how small.
I may move through life a little differently, but I’ve found my own rhythm—and it’s a good one.
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4 Ways to Help Kids Grow Social Skills from Autism Connections
SOCIAL SKILLS MATTER
A key part of a child’s healthy growth is their social development. Early on, parents learn the importance of supporting their child’s social intelligence by helping them form positive friendships and build interpersonal skills. Still, many children struggle with relationships at a young age and parents often have concerns. When a child is diagnosed with autism, this concern only grows. Read on for tips from our associate clinical manager on how you can help your child improve their social skills.
1. Practice With Adults First
All children learn social skills with adults first, generally parents, before practicing those skills with their peers. If your child is struggling with a particular skill, provide ample opportunity to practice at home. Begin by practicing the skill in small increments and provide verbal praise when your child completes the skill
• Idea in Action: To teach your child to take turns, first sit with your child on the floor while they are playing with a preferred toy. Hold out your hand and say “my turn.” Help your child to hand you the toy if they do not do so independently. Play with the toy for 1-3 seconds and then immediately give it back to your child, paired with verbal praise like, “Thanks for giving me a turn!” Continue to do this, slowly increasing the amount of time you play with the toy before giving it back.
2. Teach Skills as Rules to Follow
Children with autism are rule followers and dislike when their day deviates from a set schedule or routine. While building flexibility is a great skill, we can also use this preference for rules and routine as a basis to teach social skills. If we continue to reinforce these social “rules”, those skills will soon become learned social skills. If a child learns the “rule” that you should say hi if someone says hi to you, they will learn the skill of how to return social greetings.
• Idea in Action: If your child has an upcoming playdate, give them three simple rules or expectations to follow and then provide praise and rewards for following those rules. Examples of social rules to try could include:
• Say hi when someone says hi to me
• Ask one question
• Play one game my friend picks
• Ask a question about something I know my friend likes
3. Script Their Conversation
When teaching social conversational skills, it can often be helpful to teach “scripts” or specific sentences or questions they can use regularly in conversations. This can give the child a bank of social language skills to rely on when in social interactions.
• Idea in Action: Teach your child a list of six different “conversation starters” to use as opening questions after a greeting. This list may include:“How are you?”
• “What did you do this weekend?”
• “How is your day going?”
• “Do you want to play a game with me?”
4. Embrace Your Child’s Uniqueness
Remember that there are some amazing unique strengths that can come along with an autism diagnosis. The line between teaching our children the skills they need to make friends and engage socially, and forcing our children to fit into a set mold of what we think “social” should look like, can be very fine. It’s okay for your child to be themselves and have their own interests. We often find that as children with autism get older, they actually seek out being friends with other kids with autism. Children with autism feel most comfortable with others who “get them” and share similar interests. Help your child to both gain the skills they need socially and feel loved and
• Is your child struggling at school?
• Feeling overwhelmed navigating the special education system?
• Unsure of your child’s rights and how to advocate for them?
• Idea in Action: Get down on your child’s level and offer a hug or a high-five as you tell them, “I love you just the way you are.” It’s simple but powerful. When your child struggles with relationships, sometimes the tips above will be helpful, but other times, what your child needs most in the moment is connection with you or another trusted adult. We all need reminders that even while we are trying to grow and change, our family and friends love us just as we are.
As a parent of an autistic child, it’s normal to worry about social skills and communication. But remember, there is always hope. Your child, even with their diagnosis, is capable of positive relationships. And, good news – you are the perfect person to help them bloom into the wonderful and unique friend, partner, co-worker and community member they were born to become.
At Ready For Life Academy, located at Hope College, Ferris State University and starting fall of 2026 ~ Northwestern Michigan College, we empower individuals with intellectual and developmental disabilities (IDD) or autism spectrum disorder (ASD) with the real-world skills they need to thrive to the best of their abilities—academically, socially, and in the workforce. Through personalized instruction, hands-on experiences, and a commitment to lifelong learning, we help students build confidence, independence, and a future full of possibilities.
BEYOND THE PAYCHECK
The Social Impact of Disability Employment
When we talk about employment, it’s easy to focus on the numbers: hours worked, pay rates, and benefits. But at Services To Enhance Potential (STEP), we’ve learned that the impact of a job goes far beyond a paycheckespecially for individuals with disabilities.
For many of our members, meaningful employment is more than just a way to earn money. It’s a path to selfconfidence, connection, and purpose. It’s a way to be seen, valued, and included.
Employment Builds Confidence and Identity
One of the most powerful things a job can do is help someone believe in themselves. We’ve seen members walk through the doors of a STEP Resource Center unsure of their abilities - and leave months later with their heads held high, proud of what they’ve learned and achieved.
A job brings structure, responsibility, and routine - all things that help foster independence and personal growth. For people with disabilities, employment can be the first time they
Inclusion isn’t just about policies - it’s about presence. And employment makes that possible.
see themselves as contributors, not just recipients of care. That shift in self-perception is life-changing.
Employment Creates Social Inclusion
Workplaces are natural spaces for connection - places where people meet others, share experiences, and form relationships. For individuals with disabilities, employment offers a way to engage with their communities, meet coworkers, and participate in everyday life in meaningful ways.
These social interactions are powerful. They help break down barriers, shift public perceptions, and show the value and capability of individuals with disabilities. Inclusion isn’t just about policies - it’s about presence. And employment makes that possible.
The Ripple Effect: Families and Communities Benefit Too The benefits of employment don’t stop with the individual. Families often report seeing their loved ones grow in confidence and happiness. Employers gain dedicated, loyal team members. And communities become more inclusive when people with disabilities are visible and actively contributing.
“It’s more than a job - it’s an opportunity to shine,” said one STEP Employment Representative. “We’ve seen members start volunteering, making friends, even helping others find work. The ripple effect is real.”
Your Partnership Makes It Possible
These outcomes don’t happen by accident. They happen because of strong partnerships - because employers are willing to open their doors, because families support the journey, and because organizations like STEP are committed to providing the tools and support people need to succeed.
Through our employment programs, vocational training, and Resource Centers, STEP helps individuals build the skills and confidence needed for success in the workplace and beyond. And thanks to our business partners and supporters, we’re able to say something powerful to every member who walks through our doors: “You have value. You have something to give. And we believe in you.”
At STEP, we see every day how employment transforms lives - not just financially, but socially, emotionally, and personally. When a person is empowered to work, they’re empowered to dream, to grow, and to participate fully in their community.
So yes - employment brings a paycheck. But beyond that, it brings pride. It brings purpose. It brings the kind of change that ripples outward, building stronger individuals and more inclusive communities.
And that’s something worth celebrating. For more information about STEP, please visit www.stepcentral.org.
Empowering And Enriching The Lives Of People With Disabilities.
The Agape Project
Run for All and All for One
BY ANGIE ARLINGTON
Imagine you signed up to run in a local race, perhaps a local 5K walk/run that raises funds for a charity. You train. You make sure you have good shoes. You talk some friends into doing it with you. It’s about being active and having some fun. You show up on race day well prepared and ready go. Now add to it. You aren’t just running. You are also pushing a person with a disability and that person is riding in a special chair.
Continue to imagine. This time don’t be the runner. This time be the individual with the disability who can only participate with other people’s assistance. This time you need an organization to work with the race director ahead of time and you need someone to provide the chair. You are depending on people to greet you and your family and to move you into the chair. You are depending on them to understand your condition and keep you safe.
Imagine one last time. This time be the observer who watches the runners and the individuals in the chairs cross the finish line, receive their medals, and share some hugs. You can be a part of that grand experience.
The Agape Project enhances the lives of individuals with disabilities by sharing the exhilaration and excitement of racing as one community. The organization coordinates with race directors of running events and then arrives early on race day to set up an area where runners and riders are greeted. Time is spent placing individuals in the running chairs and making sure that runners and riders are matched up and comfortable with each other and with the race.
“We’re
allowing individuals with disabilities to participate in races. It’s a great way to get them away from their normal activities and into a new environment where people are caring for them and cheering them on. A typical reaction from the runners
and from the families of the individuals is ‘when do we get to do this again?’”
—PHILIP
“We’re allowing individuals with disabilities to participate in races. It’s a great way to get them away from their normal activities and into a new environment where people are caring for them and cheering them on. A typical reaction from the runners and from the families of the individuals is ‘when do we get to do this again?’” Philip Smith, Agape Project president, explains. “We offer an opportunity for people who cannot participate in a running race on their own. They participate with us. It’s a fantastic opportunity for children and for adults to be active and to be outside and moving with our support.”
The Agape Project is planning 8 or 9 events for 2025. People who are interested in running, riding, or volunteering should subscribe on the website so they will receive email notifications regarding the schedule. Most races will be 5K’s and some will be longer. The Agape Project uses Hoyt running chairs, offering a fast, smooth, and safe ride.
The Agape Project is always looking for volunteers. Each event offers an opportunity to help set up, interact with the runners and riders, and help close. Supporting is a rewarding experience and a fun way to give back. Anyone interested should reach out directly to info@ theagapeproject.com. Website https://www. theagapeproject.com/
myrelationshipsproject.com @myrelationshipsproject
Providing classes, coaching, and groups for neurodivergent individuals and their familes and caretakers.
Delivering training and consultation for practitioners, educators, and organizations to enhance neurodivergent-affirming practices in their service delivery and workplace.
A PICTURE IS WORTH A THOUSAND WORDS CELEBRATIONG YOUR GRADUATES!
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Chiari Awareness Craniofacial Acceptance
Duchenne Muscular Dystrophy Fetal Alcohol Spectrum Syndrome Awareness Hydrocephalus Awareness
National Spinal Cord Awareness
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Sepsis Awareness
Deaf Awareness Month
PROFESSIONAL EXPERT SPOTLIGHT IN UNIQUELY YOU!
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We’ll Get Mansions In Heaven
BY JESS RONNE /JESSPLUSTHEMESS
We’ll get mansions in Heaven one day So they say…
To us weary caregivers As we humbly bow and pray.
And we cuss And we moan And we weep And we groan
Uniquely You Rise & Shine Event Team
We are starting a Uniquely You Rise and Shine Event team. We’re thrilled to bring impactful events to life that connect, uplift, and support the special needs community. As a team member, you’ll have the opportunity to share your ideas and collaborate with us to plan meaningful and exciting future events. If you are interested in joining, please submit your application below. Let’s make a difference together!
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Our souls Laid bare Before His holy throne.
Our tears born of pain And also of love A life not imagined But planned from above.
Or so it seems As we drown in the deep Fighting for services Supplies and for sleep!
And we wipe and we bathe And help in all the ways Our children who need us For the rest of their days.
We’ll get mansions in Heaven one day So they say…
But I say-
I don’t need a mansion
Neither here nor there But I do need much more Than just a simple prayer
A meal would be nice Or maybe a break For my caregiving duties Are a lot, goodness sake.
If you see a caregiver
Please offer your time For blessing their heart Just adds to this rhyme.
Caregivers need help! We need to be seen And more than just words Or thoughts that demean
We’ll all need care
At one time or another So let’s elevate the status Of every father and mother.
Caregivers are the backbone Of each society We must keep their light bright For you, me,and we.
Just keep livin.
It Can’t Be Summer!
BY KRISTIN DILLON, DISABILITY ADVOCATE & FOUNDER OF IT CAN’T
BE
ZERO, A COALITION FOR AUTISM EQUITY IN SCHOOL-BASED EXTRACURRICULAR PROGRAMS.
“Any plans this summer?” she asks. And because I don’t even know her, I opt for one of my artfully rehearsed therapistapproved responses that let me dodge this triggering question, when I’d much prefer a blunt and unrelatable “NO.” What she doesn’t know is that summer is the biggest, longest expression of what already crushes special needs families during the school year, with winter breaks, spring breaks, long weekends, half days, snow days, field days. In one Michigan school district, data showed over 875 extracurriculars were offered in the 2023-24 school year, including breaks. This is how many were adaptive or inclusive: zero. These activity deserts launched It Can’t Be Zero, a budding awareness and advocacy platform designed to bring schools, families and adaptive recreation orgs together, to provide equitable school-based opportunities. And now, it can’t be summer.
In my case, our summer hangs on whether mini-me qualifies for extended school year (ESY) - a.k.a. summer school
Department of Education says we’re not allowed to call ‘summer school’. We’re hoping they offer the full-time one, a paltry blend of three-hour mornings, three days a week for six weeks. Then there’s the stacking of days and hours around it: Is there enough time, money, insurance to bind summer camps, therapies, and/or vacation? If ESY isn’t offered... how much advocating energy do I need to burn writing emails and making phone calls going to bat for supports, transportation, insurance verifications, grant applications, TSA Cares, Facebook Group polls, autism navigator services, Medicaid labyrinths and IEP check-ins, topped with a big red bow of data-driven decisions.
But wait there’s more! We’re stressing anyway because summer school ends the first week of August. And when August 1st falls on a Friday, the ESY groundhog sees its shadow, and we have another four weeks before school starts again.
ON A TUESDAY. FOLLOWING. LABOR. DAY....... ...........WEEKEND.
Think I sound like a walking anxiety attack now? Remind me to say that to the doctors around 4th of July, when my family’s collective sleep deprivation from the changes in routine has fully kicked in.
Now I’m an active parent in my local metro-Detroit community, and blessed with a tribe of savvy special needs mama bear friends. Summer is a puzzle we find ourselves in every year, and the formula remains the same: panic stirred with helpful ideas, hilarious experiences, trial, error, and a bit of luck. If you’re sweating summer
We’re thinking: Register for ALLLL the summer camps now, and beg for a refundable deposit. ESY can squeeze around it, and if you don’t qualify--oh well, cuz your kiddo’s off to summer camp. Yay. There’s no way we’re letting you spend your summer stuck in the backyard with a bubble machine, blow-up pool, and sidewalk chalk, in between timekilling car washes, long drives, and a sun that doesn’t set until 9pm. We did that during covid, and we’re done.
WHAT ABOUT SUMMER CAMP
You’re thinking: Are there any in the district that keep my child connected to school peers? How about a special needs camp - do they have the staff ratios and allergen-free-ness we require? How many weeks does it run, and am I still high risk for that bubble machine backyard plan?
We’re thinking: These questions are vital, but they get you nowhere fast. Get down to brass tacks: Look for a local Miracle League, YMCA and Special Olympics. If you’re in metro Detroit, check out Friendship Circle, JCC, Team GUTS, FAR Therapeutic Arts & Recreation, and Camp SkyWild. Even local churches for the win: as Mama C. flexed, “one year, we had literally nothing. We found a local church offering a summer day camp. ‘Could my child with Down syndrome participate?’ What a surprise when they said yes! ‘We’ve never done that before, but let’s give it a try.’ It was so great, she went back every summer for six years.”
DO WE SCALE UP THERAPY HOURS
breath... exhale... and let’s walk through and effort? School won’t have the data
then all the fun summer things will be waitlisted, and that’s still a sham plan. As my girl R. said “one time ESY offered us an hour of speech therapy per week,
longer to shower and leave the house.”
You’re thinking: During the school year, it’s really hard to tack on clinic-based therapies, especially when the demand for after-school hours is at a premium. Maybe we can use the summer to catch up, and do a day program with ABA, speech, OT and PT in a clinic.
We’re thinking: The allure of a fulltime clinic program sounds practical, but can you do that from an insurance perspective? From someone on the inside, “it’s so hard when this comes up. Insurance companies require clinical justification for authorizing therapy hours. So going from a few hours or no
time therapy in the summer sends blazing red flags. Every insurance is different, so do your homework and plan ahead, as staffing for one-on-one therapy is a hot commodity during the busy summer.” Another idea: check out therapies that don’t go through insurance, like recreation, music, or art therapy. LifeLab Kids offers a range, including a cool Tech Program that builds skills like playing digital piano and exer-gaming. Out-ofpocket cost worrying? See if the clinic can offer bulk discounts, credit or payment plans. If you want to look into behavioral or psychiatric therapies, Oakland County Mental Health Funding Assistance offers reimbursements up to $4000 for insurance co-pays, deductibles, and more.
WORKING PARENTS NEED TO WORK
You’re thinking: How will this new routine impact my work? Do I need to adjust my hours for drop-offs and pickups? Will I have to take vacation days all summer, just to stay sane? Am I eligible to take unpaid FMLA leave? We’re thinking: All the above.
But don’t forget to join the festivities, and make that a routine. Bowlero Lanes in Royal Oak, a certified autism center, offers sensory-friendly bowling every Wednesday from 4-6pm. Spend a rainy day at the new-ish Gather Grounds in
job training and social opportunities for people with intellectual disabilities. Try a sunny day at Bower’s Farm, which hosts Diverse Learners Days for children ages 3-17.
DO WE VACATION OR STAYCATION
You’re thinking: Let’s stay within 2-3 hours of home, and drive somewhere for a night or two. Do we find a hotel or rent a house, and how long can we be away? If we fly somewhere, how far can we go and can we get help at the airport and on the plane?
We’re thinking: Travel has gotten pretty rad for our families, and social media, YouTube, and the web really is amazing for this. Sign up for a free, no-hassle webinar with Autism on the Seas. Call up TSA Cares to learn about their support services, or sign up for a flight simulation with Wings for Autism/Wings for All. The Detroit airport (DTW) has an accessibility team - email accessibility@wcaa.us and ask about their offerings, such as the very chill multi-sensory room and the free Sunflower program.
We’re also thinking: Maybe travel’s one thing too many this year, but you’re up for day adventures and research.
Check out special screenings at Emagine theatres, or brave an All Abilities Indoor Skydiving Night at iFly. Dream mode only this year? We got you. Apply for the America the Beautiful-National Parks Access Pass, a free lifetime pass for US citizens with permanent disabilities, and start pinning the years ahead.
WHAT ABOUT STAFF SHORTAGES
We need a 1:1 for some of these things (behavioral support, nurse, aide). Where do we find them?
And please don’t do the cringe-smile thing and say there’s no individualized staff, but parents can participate. What child over the age of four thinks it’s cool when mom or dad crashes their party.
Blank stare. Time seems to reveal Covid was when invaluable supporters were abducted by aliens, taken up in the Rapture, or changed careers. But if you have (or want to apply for) respite funds from Community Mental Health (CMH), you can work with a support coordinator on hiring respite services for summer camp. Pro tip: you may even be able to recruit your own background-checked special needs caregiver on care.com, or ask your favorite para-pros and clinic interns if they’re interested in a summer gig.
AND LAST BUT NOT LEAST
You’re definitely thinking: who’s paying for this! And I’m gushing to share some incredible camp scholarships, organizations, nonprofit charities and online funding directories that have our backs. Apply yesterday.
And when summer’s over, and school starts that Tuesday after Labor Day, know I’m right there with you, all over again. This time in full-throat advocacy mode with It Can’t Be Zero, a coalition of special needs parents working with school districts and adaptive recreation groups to slay the barriers our kids face accessing school-based programs. With enough of us coming together to shed light on these issues, we just might have the key to next summer.
Any plans this summer? Let’s discuss: kristin@itcantbezero.org
TRAVELING WITH A CHILD WITH AUTISM 5 Tips for a Smoother Ride
BY JOCELYN COOK
WITH SUMMER VACATION upon us, many families are gearing up for vacations and road trips. But the idea of traveling with a child with autism can be overwhelming for both parents and for the child. Children with autism often thrive in structured, familiar routines, so hitting the road or the sky to a new destination has the potential to be stressful and create an environment for meltdowns or other disruptive behaviors. Even with the possible challenges, there are many benefits to experiencing new things. So here are some tips for your text trip with your child with autism.
1. Plan Day Trips Before Week-Long Adventures
If you have not traveled away from home with your child before, start with a few day trips to help prepare them for a bigger event. Brainstorm some activities your child enjoys that are a short drive away and include an overnight stay in a hotel - this will give them the hotel experience while still close enough to home if things go sideways. Having a few day trips as “practice,” you and your child will be more prepared for possible issues that may arise on a longer trip.
2. Pick A Destination That Will Interest Your Child
during times they become overloaded. Some helpful items to consider bringing include fidgets, a weighted blanket, sunglasses or noise-cancelling headphones. In addition, be sure to pack a few of their favorite toys/stuffed animals, videos, and books. Include your child, if possible, by asking what they want to bring.
For children who have trouble communicating, consider purchasing a type of wearable accessory that has their and your information on it. There are also a variety of GPS tracking devices that can be used for children prone to wandering.
4. Build A Vacation Music Play List
For many kids, they will just go with the flow of any vacation. But for a child with autism, it is important to choose a place that fits with their personality, interests, strengths and sensory processing abilities. You can also research certified autismfriendly destinations – there are so many now.
3. Remember Important Items to Pack
Different beds, foods, smells and sounds can create sensory overload. Remember to bring items your child uses to cope
Create a list of songs your child (and the entire family) will enjoy. A road trip playlist can both entertain and comfort your child when they are in a new setting. If your child really loves music, involve them in the selection of songs.
5. Utilize the Power of Visuals & Role Playing
Showing your child what will happen and when it will happen can relieve stress and reduce anxiety. Creating visual supports using pictures and captions allows your child to process what to expect. A visual calendar to count down the days is also helpful.
Along with visuals, role playing “transitions” – changing from one situation to another - a few weeks before a trip will allow your child time to process what he or she might expect on vacation.
We hope these tips are helpful as you prepare to travel with your child with autism. Happy summer adventuring! To learn more about the comprehensive autism services at Healing Haven, visit thehealinghaven.net
The Importance of Comprehensive IEP Evaluations
BY MARIA GIANCOTTI, M.ED. - STUDENT ADVOCACY MICHIGAN
When a child is struggling in school, one of the most powerful tools a parent can access is a comprehensive evaluation through the school’s special education process. This evaluation is the foundation for determining eligibility for special education services and designing an Individualized Education Program (IEP) that truly meets the child’s unique needs. Yet far too often, evaluations are incomplete or too narrow in scope, missing key areas that could support the student’s growth. Understanding your rights under the Individuals with Disabilities Education Act (IDEA) and knowing what a comprehensive evaluation should include are essential steps for every parent.
WHAT DOES IDEA SAY?
Under the Individuals with Disabilities Education Act (IDEA), school districts are legally required to conduct a comprehensive evaluation before determining whether a child qualifies for special education services. According to 34 C.F.R. § 300.304, evaluations must:
• Be tailored to assess all areas of suspected disability
• Use a variety of assessment tools and strategies
• Not rely on a single procedure as the sole criterion
• Be administered by trained personnel
• Be technically sound and valid for the purpose used
• In short, evaluations must be individualized, thorough, and aimed at identifying all the child’s educational and functional needs — not just those related to the suspected disability.
THE EVALUATION PROCESS: KNOW THE STEPS
Here’s a brief breakdown of how the process works:
1. Referral: A parent, teacher, or professional can request an evaluation. This request should be in writing.
2. Consent: The school must obtain written consent from the parent before starting any assessments.
3. Evaluation Timeline: In Michigan, the school has 30 school days (federal law is 60 calendar days) from the date of consent to complete the evaluation.
4. Eligibility Determination: Once the evaluation is completed, a team — including the parent — meets to determine eligibility for services.
5. IEP Development: If eligible, an IEP is developed using data gathered from the evaluations.
WHAT SHOULD BE EVALUATED?
A truly comprehensive evaluation looks at the whole child — academically, socially, emotionally, and behaviorally. Here are key areas to consider:
• Cognitive/Intellectual Functioning: IQ testing or assessments that measure processing, reasoning, and memory.
• Academic Achievement: Reading, writing, math, and other subject-specific skills.
• Speech and Language: Receptive and expressive language skills, articulation, fluency, and pragmatics (social language).
• Occupational Therapy: Fine motor skills, handwriting, sensory processing, and daily living skills.
• Physical Therapy: Gross motor skills such as walking, posture, and coordination.
• Social-Emotional and Behavioral Functioning: Emotional regulation, social skills, mental health concerns, and behavior patterns.
• Functional Behavior Assessment (FBA): For students with challenging behaviors, this helps identify the cause and potential interventions.
• Executive Functioning: Attention, organization, planning, impulse control, emotion regulation, task initiation, task completion and self-monitoring.
• Adaptive Behavior: Daily living skills and independence, especially important for students with intellectual disabilities or autism.
Parents can and should request evaluations in any area they believe may impact their child’s ability to learn. If the school declines, they must provide a written explanation called a Prior Written Notice (PWN) (34 C.F.R. § 300.503).
DON’T
FORGET ABOUT REEVALUATIONS
Once a child is found eligible for special education, the law
appropriately identified and addressed. The reevaluation must follow the same legal standards as the initial evaluation and consider whether the child continues to qualify as a student with a disability under IDEA.
(34 C.F.R. § 300.303)
INDEPENDENT EDUCATIONAL EVALUATIONS (IEES)
If you disagree with the school’s evaluation, you have the right to request an Independent Educational Evaluation (IEE) at the school district’s expense (34 C.F.R. § 300.502). This can provide an outside perspective and often leads to a more accurate understanding of the child’s needs.
FINAL THOUGHTS: EMPOWERMENT THROUGH KNOWLEDGE
Evaluations are not just about qualifying for services — they are about understanding your child’s strengths and challenges in a meaningful way. As a parent, you have a seat at the table and a voice in shaping your child’s future. Insist on thorough,
from the start. If you need support in the IEP or 504 process, contact us at 248-372-9770 or visit our website at www. studentadvocacymi.com.
CHAPTERS
OF CHANGE
Get Ready! Get Set! Read!
“Accessible Vacations: An Insider’s Guide to 10 National Parks” by Simon Hayhoe
BY REBECCA PARTEN
Traveling to America’s National Parks is something that my family has talked about off and on over the years. Surprisingly, I haven’t been to any of the National Parks here in Michigan but I have been to the Great Smoky Mountains. Therefore when I saw that a guidebook called Accessible Vacations: An Insider’s Guide to 10 National Parks, by Simon J. Hayhoe, was available on NetGalley (a website where you can get free access to books pre-publication in exchange for an honest review) I became excited. Sadly, I was overall disappointed with the book and ended up giving it three out five stars. The title led me to think the book would be geared primarily toward the
‘average tourist’ who happens to have a disability, whereas in reality it was written for a multitude of audiences: researchers/historians, National Park Service employees, tourists and teachers/educators. The book is split into three major sections:
• History of accessibility within the entire National Parks Service
• Types of “Access Needs” and technologies that people with disabilities may utilize
• Profiles of 10 different Parks spread across the continental United States
Overall, I had high hopes for this book but was disappointed. I felt like the choice of parks profiled and the information provided was not as helpful
as I’d wanted. If I was planning a trip to one of the parks I’d still have a lot of research that I would need to do.
You can read a longer section by section review on my blog by going to https://rollinwithrebecca. com/2022/02/10/accessible-vacations/
July 2025
All the Way to the Top: How One Girl’s Fight for Americans with Disabilities Changed Everything https://www.amazon.com/All-Way-TopDisabilities-Everything/dp/1492688975
August 2025
The Chance to Fly series by Ali Stroker https://www.amazon.com/dp/ B0CKXBK2XM?binding=audio_ download&ref=dbs_dp_rwt_sb_pc_taud
Uniquely You Hosts Bowling Fun at Bowlero Lanes & Lounge!
On April 15th, the Uniquely You community came together for a vibrant and joy-filled evening at the iconic Bowlero Lanes & Lounge in Royal Oak, MI. From 4:00 PM to 6:00 PM, families and friends stepped back in time to enjoy the retro charm of this 1957 vintage-style boutique bowling alley.
The event featured FREE bowling, complete with complimentary shoe rentals, and guests had the option to choose from two exciting one-hour sessions. Laughter echoed through the lanes as kids, teens, and adults rolled strikes and spares, creating lasting memories together in an inclusive, welcoming space.
Thanks to Healing Haven & MIABLE for joining us to connect with the community!! We are so thankful for our supporters who help make Uniquely You and the events we do free to the community!!
Thank you to everyone who joined us for this special event. We love creating opportunities to connect, celebrate, and support our amazing community. Stay tuned for more events with Uniquely You—where there’s always something for everyone!
As part of its commitment to Detroit area special needs communities, Bowlero Lanes & Lounge (BLL) in Royal Oak, MI
hosts a recurring weekly young adult drop-in league designed for bowlers with special needs related to physical, cognitive and/or neurological challenges, including families with members on the autism spectrum.
The ongoing young adult drop-in league has grown into a community of regularly-attending families who support one another and enjoy the fun together each week with the help of Bowlero’s trained and helpful staff.
BLL co-owner, Kelly Elliott, spent 15 years as a certified school psychologist. “With my background, I knew that people with autism and special needs face limited options for recreation, and so, we really wanted to help fill in that gap.”
Elliott shared feedback from one of their customers, Jill (a teacher), who said, “It is such a joy to watch all the students having fun. It is also wonderful to see the parents’ joy in
“We love that we can offer a fun, safe space for these families where they know they won’t be judged, and know that our staff will understand what they need.”
ELLIOTT
watching their children participate in the league and socialize with each other. They are all so appreciative!”
Designated a Certified Autism Center (CAC, https:// certifiedautismcenter.com/) by the The International Board of Credentialing and Continuing Education Standards (IBCCES), the venue is recognized for having successfully completed extensive training from leading autism experts. Each CAC ensures all families with autism and other sensory disorders are properly accommodated. BLL stands as the only bowling alley in the State of Michigan with the designation.
Offering a low-sensory experience during the weekly league, there is no music in the alley, and lighting is dimmed in bowling approach areas. Sensory aids are available by request at the front counter at any time, and include weighted blankets/ vests, noise-canceling headphones, and visual timers. The ADAcompliant facility features an accessibility ramp, bowling ball ramps and lane bumpers, making the experience accessible to nearly everyone of any age or physical condition.
Said Elliott, “We love that we can offer a fun, safe space for these families where they know they won’t be judged, and know that our staff will understand what they need.”
Weekly Young Adult Special Needs Bowling League
Every Wednesday, 4-6pm.
$10 per player
Play with friends or be assigned to a group
Parents, guardian and caregiver spectators welcome Soda, juices and simple snacks available for purchase
Location Bowlero Lanes & Lounge 4209 Coolidge Hwy Royal Oak, Michigan 48073
Contact Kelly Elliott
248.321.7567
kelly@bowlerodetroit.com
Reference article: https://ibcces.org/blog/2021/04/13/ bowlero-lanes-scores-big-offers-fun-for-everyone/
Local Events
BY CHRISTIA WOODFORD
Is there a local event for the special needs community you would like us to promote in an upcoming issue?
Email us at jamie.olson@n2co.com.
Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 museums throughout the United States simply by presenting their EBT card and a photo ID. Check here for participating museums. https://museums4all.org/
MUSEUMS
Impression 5
June 18 from 5:30 pm - 7:30 pm and June 22 from 9:30 am - 11:30
Impression 5 Science Center, 200 Museum Dr., Lansing, MI 48933
Explore your Science Center with select exhibits altered to reduce sounds, scents, and lighting stimuli. Guests can expect a limited building capacity, pop-up activity, and map designating the sensory experiences in each exhibit. Thank you to MiABLE for supporting Sensory Friendly.
Admission: Regular admission prices apply. Free for members.
Abrams Planetarium Sensory Friendly Shows
755 Science Road, East Lansing, MI
These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and the star talk. Information about what to expect during the show will be provided when you purchase tickets.
Unveiling the Invisible Universe
June 15, 11:30 am
For thousands of years humans observed the light coming from the night sky with their eyes. In the beginning of the 17th century, the invention of the telescope by Galileo revolutionized our knowledge of the Universe. Finally, in the 20th century with the advent of rockets, it became possible to go above the earth’s atmosphere and observe X-ray and gamma ray radiation which are the marks of the hot and violent Universe. But it is not only light that can give us information about the cosmos. Neutrinos and cosmic rays also provide vital information. Finally, the detection by the LIGO experiment of gravitational waves from two merging black holes opened a new window in astrophysics. This show presents images of the cosmos as revealed by all these different messengers.
Under the Weather
June 15, 1:00 pm
The stalwart heroes of The Zula Patrol are on an expedition collecting samples of weather for scientist Multo’s research. When the Zula gang inadvertently hurts their loyal pet Gorga’s
feelings, he decides to leave Zula and find another planet to live on. Villain Dark Truder then tricks Gorga into helping with his latest nefarious scheme to rule the universe. The Zula Patrollers find out and go after him-in the process learning all about weather, both terrestrial and interplanetary. Based on the hit TV series.
Cost: Adults, $5.50, Students and senior citizens, $5.00, Children (age 12 and under), $4.50
Friends of Abrams Planetarium Members, Free Free with Museums For All (with valid EBT, Medicaid, or WIC card and photo ID)
https://www.abramsplanetarium.org/Programs/Sensory.html
Ella Sharp Museum
Sensory Time
Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203
During Sensory Friendly Hours, the Ella Sharp Museum will open its galleries at 9 a.m., an hour before the museum opens to the public. Families with members who are neurodiverse, autistic, or have other sensory processing disorders or cognitive disabilities are welcome to visit the museum for a quieter experience in a more controlled environment. Designated quiet zones will allow visitors to decompress and experience the museum at their own pace.
Before each program, families are invited to browse our “pre-visit” materials to help them prepare for their visit including social narratives and maps of our facility. These pre-visit materials are also available to help families plan for visits that take place outside of program hours and a sensory backpack is available at the front desk for use.
To provide the most sensory-friendly environment possible, we will limit the capacity for these special times to 50 people. https://ellasharpmuseum.org/classes-and-events/sensory-time/
Grand Rapids Children’s Museum
Sensory Friendly Play
Aug. 4, Nov. 3, 4:00 pm- 7:00 pm
Together with Autism Support of Kent County, GRCM welcomes families to play in a calmer, quieter environment outside of regular Museum hours.
• Registration required.
• Various Events Scheduled
• Jan.1 - Jan. 31 various events scheduled
• Grand Rapids Children’s Museum, 11 Sheldon Ave NE, Grand Rapids, MI 49503
• Check calendar for Sensory Friendly evenings https://www.grpm.org/visit/
• https://www.autismsupportofkentcounty.org/ new-products/p/2024-night-at-the-gr-childrens-museum
SPORTS
TheraplayYoga: Therapeutic Playful Yoga for Diverse Abilities
Adaptive Yoga Studio, 2015 E. Michigan Ave. Lansing, MI 48912
Inclusive & Accessible Yoga for Diverse Bodies, Brains, and Abilities. Check website for schedule. Gloria@TheraPLAYoga. com https://theraplayoga.com/
FAMILY FUN
High Caliber Karting – Sensory Friendly Sundays
June 1,11:00 am - 2:00 pm $50
High Caliber Karting and Entertainment1982 W Grand River Ave #800. Okemos, MI 48864
The first Sunday of every month, High Caliber offers Sensory Friendly Hours from 11 am – 2 pm! Got someone in your life who would love to drive a go kart or play some arcade games but needs it to be sensory friendly? High Caliber is making strides and opening its facility earlier on the first Sunday of every month! https://highcaliberkarting.com/sensory-hours/
Adult Adaptive Social Engagement: Diner’s Club
June 2, First Monday of the month. Ages 14+ check,website for times and to register enjoy a meal with friends at various local restaurants. This opportunity is designed to support persons with special needs. Participants pay for their own meal, beverage, and tip. Spots are EXTREMELY limited, so you must pre-register so that we have enough assistance and space reserved. Selected restaurant will be emailed the week before the program. https://rararecreation.org/programs/social_engagement.php
Fascination Factory Sensory Friendly Play
June 3, 2:30 pm- 5:30 pm 2295 E Lincoln St; Suite 150, Birmingham, MI
What to expect in our new sensory sensitive hours: Back door locked for safety No music Noise Cancelling Headphones Oral chews offered at check-in Calming corner tent Minimized Capacity Families $30.00 https://autismallianceofmichigan.org/ events/list/?tribe-bar-date=2024-10-01
Together Let’s Sing, Dance and Jam!!
June 4, 6:30 pm- 7:30 pm Virtual
Please join us for our monthly “virtual” music therapy event!! Please RSVP by February 25 to Cathy Blatnik at blatsie63@ yahoo.com with your name, age, contact phone number and e-mail address
DNR Outdoor Adventure Center Sensory Friendly Play
June 8, July 13, Aug. 10, Oct. 5 10:00 am- 12:00 pm
Outdoor Adventure Center, Globe Trading Company Building, 1801 Atwater St, Detroit, MI
The DNR Outdoor Adventure Center welcomes friends and families with sensory processing differences to our sensoryfriendly building hours! Enjoy the opportunity to explore and experience the OAC with building sounds and ambient noises at a lower volume. During your visit, there will be a quiet room with sensory materials available to use, and a limited building capacity. At noon, the building will open to the public, with volumes returning to standard operating levels. All staff are KultureCity-certified to ensure the best possible experience. Various Activities scheduled May 1- May 31 Check website https://www.michigan.gov/oac
Detroit Zoo
Sensory Friendly Evenings Second Monday of Every Month June 9, 10:00 am -!2:00 pm
Throughout 2025, we’re bringing you Sensory-Friendly Hours — a monthly opportunity to experience the Zoo with adjusted lighting and quieter surroundings.
• These special hours, hosted once a month from opening until noon, are tailored to meet the needs of guests with sensory sensitivities and different sensory needs. During this time, the Zoo and its attractions remain open to all, with thoughtful adjustments to ensure everyone can enjoy a welcoming and accessible experience.
• Reduced or altered volume and lighting throughout the Zoo and at special attractions
• Limited effects and adjusted lighting in the 4D Theater
• KultureCity sensory bags equipped with noise-canceling headphones, fidget tools and verbal cue cards will be available to guests who may feel overwhelmed by the environment. Guests can check out the bags at Customer Care, the 4D Theater and the Park Safety Office.
• Weighted lap pads and strobe glasses are available upon request.
• A dedicated indoor space is available near the wolf habitat for those who may need a quieter and more secure space.
• Included with Zoo admission | Free for members | No event registration required https://detroitzoo.org/events/sensory-friendly-hours/
Sensory Friendly Jump at Launch Lansing
June 11, 4:00 pm- 8:00 pm $17
1982 W. Grand River Ave., Okemos, MI 48864
1st and 3rd Wednesday of every month**
Special 2 hr reduced pricing. Additional discount for more than one participant. Reduced music volume. No special effects lights. Free rental of noise reducing headphones and/or sunglasses. Rental items must be returned at conclusion of visit to be sanitized and stored for the next guest to use. Program will be postponed during school and holiday breaks (including Christmas, Spring, and Summer Breaks)
Park will be open to all guests to enjoy are park on these evenings, however this is typically a low volume evening for our park so their should be plenty of space for all to enjoy. https://launchlansing.centeredgeonline.com/areas/ area/7bddf13d-221f-4833-a2fd-41f0d17bb22b
Inclusive Game Night
June 27, 6:00 pm- 7:30 pm
Therapeutic Concepts, LLC 38257 Mound Road, Building D, Sterling Heights, MI
For the whole family focusing on inclusion, safety, and enjoyment! $10 per family, register online https:// therapeuticconceptsllc.com
MJR Digital Cinema Sensory-Friendly Film
Check the website for movie times
100 East Maple Road, Troy, MI, 48083, United States https://www.mjrtheatres.com/sensory-friendlyfilms?fbclid=IwAR1JnETT-4LqVME0tv0TkWPiYH5lckEcSi4ou3EcdA4eyfbqJYLgmReJ00
Legoland Discovery Center Michigan
Sensory Friendly Morning Check website for upcoming dates
4240 Baldwin Rd, Auburn Hills, MI 48326
During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.
Sensory-sensitive adults are welcome to visit during Sensory Friendly Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10 am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10 am.
Tickets are limited and must be purchased online in advance for this special event.
https://www.legolanddiscoverycenter.com/michigan/ tickets-passes/
Sealife Michigan Sensory Friendly Morning Check website for upcoming dates
4316 Baldwin Road, Auburn Hills, MI 48326
During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.
The aquarium will open to the general public with normal lighting, sound, etc. at 10 am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10 am.
Tickets are limited and must be purchased online in advance for this special event. Please check https://www.visitsealife.com/ michigan/what-s-inside/events/sensory-friendly-mornings/
ARTS
GiGi’s Playhouse
10:00 am- 6:00 pm Monday- Thursday, Friday 10:00 am- 4:00 pm
19799 W. 12 Mile Road Suite L15, Southfield, Michigan
Various fun classes in art, dance, cooking, yoga and many more! Virtual or in person through out the month. See calendar: https://gigisplayhouse.org/detroit/ sfcalendar/?eventId=a0VVS000001ahnZ2AQ
REC-IT Class: Inclusive Art
June 12, 1:00 pm- 2:00 pm
1709 John R Road, Troy, MI 48083
Join us for in-person art classes. Participants will learn new artistic skills using a variety of mediums, such as: acrylic painting, oil pastels, watercolor, and mixed media. Class includes group and individual instruction and meets on the 2nd and 4th Thursday of each month. In order to promote inclusion for all, we request a maximum of 4 individuals from any one agency. All levels of experience and ability are welcome. This class is limited to ten (10) participants, don’t miss out! To register: rec-it@dnemichigan.org
EVENTS
Come Join Scout Troop 1197! First All Inclusive Troop! 4920 Groveland Rd, Ortonville, MI 48462
The ONLY troop of its kind in MI, troop 1197 is being held right now at O.A.T.S. (Offering Alternative Therapy with Smiles) in Ortonville for those with special needs ages 11 and up. The troop, designed with experienced scout leaders, will include typical scouting activities including camping and outdoor skills. For more information, email walkonoats@gmail.com
Disability Dirt Days at Holly Oaks ORV Park
June 1, Sept. 21 and Oct. 19, 2025, 11:00 am- 3:30 pm
Holly Oaks ORV Park, 14551 Shields Rd, Holly, MI 48442
Ages 10 and up with disabilities are invited to experience off-roading at Holly Oaks ORV Park with rides provided by volunteers. Rides are provided for the participant and one guest. Registration required. https://www.oakgov. com/community/oakland-county-parks/parks-trails/ holly-oaks-orv-park
DiversAbility Day at Independence Oaks County Park
June 26, 4:00 pm- 7:00 pm 9501 Sashabaw Road, Clarkston, Michigan
Enjoy kayaking, a boat ride, archery, use of adaptive equipment and more at DiversAbility Day. It also includes a hot dog lunch. Registration required. To register – Call 248-221-8040 or email OCPrecreation@oakgov.com
This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!
ABA SERVICES
ABA Pathways (734) 203-0181 www.ABAways.com
Budding Behavior Therapy (248) 622-5191 www.buddingbehavior.hi5aba.com
ABA SERVICES - IN HOME
Benevolent Behavior Therapy (947) 300-6700 www.benevolentbehaviortherapy.com
ABA/ BEHAVIORAL & AUTISM SERVICES
Healing Haven (248) 965-3916 www.thehealinghaven.net/
Key Steps ABA Therapy (248) 561-0130 keystepsaba.com
ADVOCACY
Student Advocacy Michigan (248) 372-9770 www.studentadvocacymi.com
ATHLETIC TRAINING
Autastic Athletics LLC. (248) 224-4151 www.autastic-athletics.com
ATTORNEY-WILLS/TRUSTS/ESTATE PLANNING
Chalgian & Tripp Law Offices PLLC (248) 799-2711 www.Mielderlaw.com
COMMUNITY SUPPORT
Gigi’s Playhouse Detroit (248) 225-5616 gigisplayhouse.org/detroit
Judson Center (248) 837-2020 www.JudsonCenter.org
Work and Play Special Needs Resource Center Inc. (734) 780-6795 www.workandplaycenter.org
EMPLOYMENT AND TRAINING SERVICES
Services To Enhance Potential (STEP) (734) 718-0483 www.stepcentral.org
FINANCIAL MIABLE (844) 656-7225 mi.savewithable.com
POST SECONDARY ED/LIFE SKILLS
Ready For Life (616) 248-3775 rflnetwork.org
PRINT SOLUTIONS: APPAREL & BEYOND POSSiBiliTEEs, LLC (616) 613-0386 www.POSSiBiliTEEs.shop
PRIVATE HIGH SCHOOL
AIM High School (248) 702-6922 www.aimhighschool.com
RELATIONSHIP SUPPORT/SEXUAL HEALTH
My Relationships Project (313) 489-0043 www.myrelationshipsproject.com
SPECIAL NEEDS TRUST
Springhill Pooled Accounts Trust (248) 269-1319 springhillpooledtrust.org
