Special Needs Living August 2022 Digital Issue by Uniquely You

AUGUST 2022

TO GET THE DIGITAL COPY OF SNL THROUGH TEXT MESSAGE, TEXT THE LETTERS SNL TO THE NUMBER 55433.

ON THE COVER:

Meet The Doke Family

Photos by Buonanno Photography

INSIDE: • Nonprofit Spotlight: Paladin Care • Young Achievers Spotlight: Meet James Bennett • ADAPTABILITY, MOBILITY, and SENSE-AROUND • Indoor Sensory Spaces • A Broken System: Is the Medicaid Waiver Failing Individuals in Indiana Who Need It Most? • Sponsor Spotlight: Borshoff Consulting LLC • What’s the difference between educational eligibility and a medical diagnosis? • Pastor’s Corner: Calm In the Storm • Local Events and More

August 2022

More than a Trampoline Park Adrenaline is the perfect place for an adventure! Have a blast jumping on trampolines (of course), channeling your inner ninja warrior, making it to the top of the climbing wall, or challenging your friends in jousting. We are the largest indoor adventure park in Indiana, with 50,000 square feet of attractions, including our ALL NEW ropes course, warped wall, stunt fall, all sports course, harnessed climbing wall

and MORE!! Sensory Friendly Play every Monday from 11:00 a.m. - 4:00 p.m. Call or email to reserve your spot!

10080 E 121st St Suite 182 Fishers, Indiana 46037 317-572-2999 adrenalinefishers1.com events@adrenalinefishers.com Special Needs Living - Indianapolis & Surrounding Areas

317-977-2375 317-676-4222 800-609-8448 877-241-8144 800-545-7763 800-545-7763

800-622-4968 888-673-0002 800-403-0864 317-232-7800 317-925-7617 877-511-1144 317-466-1000

Arc of Indiana www.arcind.org Autism Community Connection www.autismcc-in.org Autism Society of Indiana Blind and Visually Impaired Services (BVIS) Bureau of Developmental Disabilities Services (BDDS) Bureau of Rehabilitation Services (BRS) Deaf and Hard of Hearing Services (DHHS) DHHSHelp@fssa/in.gov Disability Determination Bureau Division of Aging (IDA) Division of Family Resources (DFR) Division of Mental Health and Addiction Down Syndrome Indiana Early Childhood and Out of School Learning (OECOSL) Easterseals Crossroads https://eastersealscrossroads.org

I M P O RTA N T

NU MBERS 911 800-545-7763 574-234-7101 317-232-0570 844-323-4636 317-233-4454 317-232-7770 812-855-6508 317-233-1325 844-446-7452 855-641-8382 800-332-4433 800-457-4584 317-232-7770 800-772-1213 800-772-1213 877-851-4106 317-871-4032 800-545-7763

Emergency First Steps INSOURCE – www.insource.org Indiana Department of Education: Office of Special Education – www.doe.in.gov/specialed Indiana Family to Family - www.inf2f.org Indiana Family and Social Services Administration (FSSA) – www.in.gov/fssa/index.htm Indiana Governor’s Council for People with Disabilities (GPCPD) Indiana Resource Center for Autism Indiana State Department of Health Indiana Statewide Independent Living Council (INSILC) Indiana Works INSOURCE – http://insource.org/ Medicaid Disability Medicaid Waivers Social Security Administration (SSA) Social Security Disability Insurance (SSDI) Special Education Questions United Cerebral Palsy Association of Greater Indiana Vocational Rehabilitation Services (VR)

The Brain Center Comprehensive outpatient neuropsychological and psychological assessment services for children, adolescent, adult, and geriatric patients in whom impairments of cognitive or neuropsychiatric functioning are evident or suspected.

Scan to view the past issues of Special Needs Living

Psychotherapy for children, adolescents and adults. Neuropsychological Testing Forensic/Legal Evaluations Psychotherapy & Caregiver Consults

Scan or text the letters SNL to the number 55433 — to get the digital copy of SNL through text message

CogMed Training Animal-Assisted Therapy

317-748-0034 braincenteratgeist.com 4

August 2022

DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.

Special Needs Living - Indianapolis & Surrounding Areas

HeartSOS

Children, Adolescents, Young Adults with ASD & Related Needs

Mental Health Counseling

Anxiety, Depression, Attachment, PTSD & Relationships

Speech Therapy

Self-Advocacy, Articulation, Feeding, Apraxia & Relationships

Family Guidance

Social Communication, Emotional Regulation, Flexible Thinking & Relationships

Occupational Therapy

Executive Functioning, ADLs, Sensory Processing & Relationships Indy & Terre Haute Clinics 6

August 2022

Outpatient Services for Individuals & Families

We Hear Your SOS! Reach out at asdheartsos.com

Special Needs Living - Indianapolis & Surrounding Areas

This section is here to give our readers easier access when searching for a trusted neighborhood vendor to use. Get to know the businesses who make this magazine possible. Please support them in return and thank them if you get the chance! ABA & COMPREHENSIVE SERVICES K1ds Count Therapy (317) 520-4748

IPMG - Indiana Professional Management Group (866) 672-4764

ABA SERVICES Applied Behavior Center for Autism (317) 849-5437

CAT CARE & SITTING Bastet Cat Care & Sitting (317) 919-1948

Autism Center for Enrichment (317) 436-7080

CBD SUPPLIER Indy CBD Plus (317) 961-0191

BehaviorWorks ABA (317) 731-7777 Mindful and Modern ABA Therapies (317) 827-7777 Piece by Piece Autism Center (765) 481-2261 The Umbrella Center (463) 701-0909 ABA/COMPREHENSIVE SERVICES The Hope Source (317) 578-0410 ACCOUNTING/PAYROLL/TAXES Borshoff Consulting LLC. Sherry Borshoff (317) 902-6539 ADVOCACY/EVALUATIONS PEAS for Kids (920) 980-1172 ATTORNEY Hostetter & Associates (317) 852-2422 ATTORNEY-WILLS/TRUSTS/ ESTATE PLANNING Law Office of Elizabeth A. Homes LLC (317) 660-5004 CASE MANAGEMENT Connections Case Management (317) 440-0637

August 2022

COUNSELING SERVICE Mark 2 Ministries (317) 777-8070 DAY / BEHAVIORAL SERVICES Developmental Disabilities Systems INC. - DDSI (317) 477-8240 DENTAL CARE Children’s Dental Center (317) 842-8453 ELECTRICAL SERVICES 21 Electric (317) 449-0021 FINANCIAL Charter Advisory Corporation David Yearwood (317) 844-7416 Munder Financial James Munder (317) 238-6621 WestPoint Financial Group Gordon Homes (317) 567-2005 FUNCTIONAL MEDICINE Wholestic Nutrition (317) 429-0111 GYMNASTICS Body by GymRoots Studio (317) 579-9300

HEALTH & WELLNESS LifeVantage - Team Richards Kristin Richards (317) 698-5264 HOME CARE Amiable Home Care Inc. (317) 802-1746 HOME CARE SERVICES SafeInHome (855) 476-6665 INDOOR TRAMPOLINE PARK Adrenaline Family Adventure Park (317) 572-2999 adrenalinefishers1.com INSURANCE State Farm John Cole (317) 430-1958 INVESTMENT MANAGEMENT Dan Claxton Investment Advisory & Broker Dan Claxton (317) 250-8080 LANDSCAPING/LAWN CARE/ LANDSCAPE LIGHTING Franco Landscaping, Inc (317) 858-3858 MORTGAGE CrossCountry Mortgage (317) 666-4679 MUSIC THERAPY Dynamic Music Therapy (317) 829-6654 Resounding Joy (858) 888-0899 NEUROFEEDBACK THERAPY Indy Neurofeedback (317) 888-8500

PARKS & RECREATION Johnson County Parks & Recreation (812) 526-6809

REGENERATIVE MEDICINE/ STEM CELL THERAPY Destination ReGen (317) 522-1980

PEDIATRIC THERAPY Wee Speak (765) 446-8300

Noble (317) 375-2700

SCHOOL Dynamic Minds Academy (317) 578-0410

REAL ESTATE Encore Sotheby’s Patti & Jeff Carroll (317) 809-5839

The ALTRUIST Group, LLC (317) 547-3041 x1005

Midwest Academy (317) 843-9500

Wabash Center (765) 423-5531

SCHOOL - SPECIAL NEEDS The Fortune Academy (317) 377-0544

REALTOR Carpenter Realtors-Jeremy Page (317) 413-5311 F.C. Tucker Nicole Lyon (317) 501-0639

SUPPORT SERVICES Easterseals Crossroads (317) 466-1000

THERAPY & TESTING SERVICES The Brain Center (317) 748-0034

SCULPTURE, POTTERY & ART Ripple Mobile Arts (317) 514-8469

VIDEOGRAPHY/PHOTOGRAPHY Deliver Video Eli Walker (765) 602-1046

SENSORY SPACES Corporate Interior Solutions (317) 691-4156

Special Needs Planning & Elder Law Attorney

Here to help you put plans in place to give you peace of mind. Elizabeth A. Homes is a special needs planning and elder law attorney. She has been licensed and practicing law since May of 2014. Her practice at the Law Office of Elizabeth A. Homes LLC is focused on Special Needs Planning, Guardianships, Elder Law, Estate Planning, and Probate Work. This includes Wills, Powers of Attorney, Advanced Directives, Trusts, Trust Administration, Medicaid Planning, Special Needs Planning, Guardianship, and Probate. She is admitted to practice law in the State of Indiana. We ask "What If?" so you don't have to ask "What Now?"

Elizabeth A. Homes, Esq., MBA ehomeslaw.com | 317-660-5004 elizabeth@ehomeslaw.com 10412 Allisonville Road, Suite 200A Fishers, Indiana 46038

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MEET THE

Special Needs Living TEAM

JAMIE MCCABE Publisher & Area Director

CHRISTIA WOODFORD Publishing Assistant and Local Events

MARIA SMIETANA Editor-in-Chief

ANGIE ARLINGTON Community Engagement Coordinator / Writer and Contributor

HEATHER GREGG Photographer 21 Vines Photographyy

CHRISTIE AND NATHAN BUONANNO Buonanno Photography

KENDAL FORD Kendal Nicole Photography

ISAAC ROMAN Writer and Photographer

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WRITER & CONTRIBUTORS

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Angelica N. Gray, MA, BCBA, LBA

Aaron Olson

Sheila Wolfe

DeAndra Yates

Paul Hathcoat

Matt Knight

Dorie Zipperle

Christina McGairk Editor and Writer

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August 2022

Bike Riding for Kids The saying goes “Life is like riding a bike, to keep your balance you must keep moving.” Although this is true, bike riding is a complicated skill that requires much more than balance. Bike riding is a fun activity for kids of all ages to enjoy this summer, but it takes time and consistent practice to learn how to ride a bike. Bike riding integrates many of the following systems and skills: ● Coordination ● Trunk stability ● Motor planning ● Core and leg strength ● Spatial awareness ● Isolated ankle strength and mobility ● Established vestibular system ● Balance/Proprioception

By: Megan Siergiej, PT, DPT Physical Therapist

Where do I start?

Adaptive Trikes

Balance Bikes:

Adaptive trikes provide additional support and accommodations for children who may have more difficulty riding a standard tricycle or bicycle. Adaptive trikes can provide children with increased social opportunities, improved independence with mobility, and additional strengthening and endurance exercise.

A balance bike is a smaller bike without pedals in which kids push off the ground with their feet to propel the bike. Research has shown balance bikes develop more rapid development of coordination and balance in young children, making the transition to a standard bike much quicker. Whether your child is 18 months or 7 years old, a balance bike is a great place to start when learning to ride a bicycle with pedals.

Bicycle with training wheels/Trikes:

If your child is young and able to fit on a tricycle, this is a great place to start when learning how to pedal. Tricycles have a wider base of support and the pedals sit anterior making it easier for kids to propel the bike forward.. A bicycle with training wheels is great for kids who have mastered a trike or who are too big to fit on standard trikes. Bikes with training wheels encourage the development of coordination needed to reciprocally pedal without the added balance and stability component.

Encourage Independence: ● ● ● ● ●

Weight shift side to side with feet on the ground Weight shift side to side with feet on pedals Start on a small decline Ride on a level surface with no obstacles in sight Introduce stopping and starting once they are independent with riding

K1ds Count Therapy, LLC Brownsburg, IN 1 (317) 520-4748 kctherapy.com

● ● ● ● ● ●

ABA Therapy Speech Therapy Occupational Therapy Physical Therapy Mental Health Services School Services

Special Needs Living - Indianapolis & Surrounding Areas

Noble has been expanding opportunities and enhancing the quality of life for people with disabilities since 1953.

At Noble, our goal is to meet the needs of the children and adults so they can “Dream It. Live It.” every day.

If You Can Dream It,

We Can Help You Live It. Learn more at MyNobleLife.org,

on social media, or at 317-375-2700.

• Family & Support Services • Youth Services • Adult Life Services • Employment • Therapies • Advocacy

olutions

CREATIVE FIRST IMPRESSIONS. We create exceptional, consistent branding in your corporate space. Make a creative first impression with artistic elements, custom furniture, and innovative displays from Corporate Interior Solutions.

Since 2000, CiS has been offering our cutting-edge services in Indianapolis and beyond. Call our office at (317) 890-1100 and request a consultation today.

"Our team recently had the privilege of completing three projects for the Visually Impaired Preschool (VIP) in Indianapolis! We were able to bring a creative, fun element to millwork in this project that made it come to life."

317-890-1100 • cisindy.net •

Offering free or for-donation Biblical Counseling and Relationship Coaching for families within the Special Needs Community. Coaching - Consulting - Collaborating Follow us on Facebook for exciting updates @mark215

August 2022

@CiSIndianapolis

YOUR CHILD DESERVES TO REACH HIS FULLEST POTENTIAL AND BECOME A VALUABLE PART OF HIS COMMUNITY

Looking for physical, occupational, or speech therapy for kids? Choose a family-friendly therapy center that makes parent education a priority. According to the Center for Disease Control, 15% of children between ages 3 and 17 have encountered some form of a developmental delay.

Is your child developing at the "right" pace? REQUEST A CHILD DEVELOPMENT EVALUATION TODAY! Contact Kristin Richards Today!

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Indy Neurofeedback is Changing Lives! Do you or someone you love suffer from ADHD, Anxiety or Autism? Let Us Help You Explore Your Options.

Neurofeedback is a non-drug, non-invasive solution to symptoms related to brainwave dysregulation. It's natural and offers a fix to the problem, not just a bandage that masks the symptoms. "We followed the same path most of the other autism parents do with GFCF, DAN Dr., supplements, HBOT. What really made a difference in our son’s attention span, executive processing skills, and anger management was neurofeedback through INDY Neurofeedback and Leanne O’Neil." ~Maria S. (parent)

Schedule a consultation today! 8801 N. Meridian, Suite 306, Indianapolis, IN 46260 (317) 888-8500 • www.indyneurofeedback.com

WeeSpeak Lafayette • 765-446-8300 35 Executive Dr, #5 • Lafayette, IN 47905 weespeaktlc@gmail.com • weespeaktlc.com

A.C.E. Is Growing Exceptional Learners From The Ground Up! We recognize that every individual with Autism is unique in terms of his or her challenges and strengths. Whether you are a family who has just received an Autism diagnosis, you have an older child in the later stages of treatment, or anything in between, ACE will create an Applied Behavior Analysis (ABA) therapy program that will work for your child and your family. IN HOME & CLINIC-BASED SERVICES In-Network With Most Insurances

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SYSTEM

IS THE MEDICAID WAIVER FAILING INDIVIDUALS IN INDIANA WHO NEED IT MOST? By Tammy Short

There is a silent travesty happening in the state of Indiana. It is rarely discussed but affects a population that desperately needs representation. I’m speaking about the lack of service providers willing to accept disabled individuals with especially difficult behaviors and/or high medical needs. This is a systemic problem, and it is nothing short of discrimination against a group of individuals who require more care than other disabled individuals. Indiana implemented the Medicaid waiver in 1981. The purpose of the waiver was to provide services to special-needs individuals living at home with their families or in a residential setting that had support staff and behavior management. The waiver also made it possible for individuals living in state-run hospitals and other institutions to be incorporated back into society in the least restrictive environment that met their needs. On paper, this sounded wonderful. But the state was ill-prepared, and the program was grossly underfunded and understaffed. That was 41 years ago. Forty-one years! And yet here we are today, still struggling and fighting for the rights of those same individuals. While I am advocating for their needs, I am also advocating for my daughter, LeeAnn. She was born in 2000 when it was still rare for girls to be diagnosed with autism. At the time, the odds were one in 750 compared to one in 45 today. But it was absolutely evident by 18 months that something

August 2022

was dreadfully wrong with her. She received her autism diagnosis at age 2. Throughout her life, I have had multiple issues trying to find providers to serve her. I struggled to obtain home healthcare under the Medicaid waiver and then struggled with keeping direct support staff. Caregivers would quit or never show up, replacements would not be sent, and there were never any consequences. As my daughter began to age out of the school system, it was harder and harder to find anyone to care for her on a consistent basis. My workplace was very wonderful and allowed me to work from home. But without reliable support, I essentially already had a full-time job taking care of my daughter. It was almost impossible to do either job well, so I left my nursing career to become her caregiver. As a result, my income dropped by over $60,000 a year, and I became extremely isolated and overwhelmed. I never dreamed I would have even more issues while seeking a suitable day program for her. I toured approximately seven programs in Indianapolis, Fishers, Castleton, and Cumberland. There were two programs that I really liked. One of the programs said they had a waiting list but could not or would not give me the number of people on the waiting list nor where she would be on that list. They did an intake evaluation, but I never heard back from them, despite routinely calling for updates. The second program, thankfully, accepted her. They said she would do well with one assistant, which she has, so her day program has been a total success. But my husband and I still struggled

to find a full-time residential placement for her. My daughter’s story is not unique. Every disabled individual has different requirements, and it is not asking too much to want these requirements to be met. For example, while seeking day programs for her, I asked about the use of restraints, as my daughter is so self-injurious that she will sometimes bang her head to the point of concussion if she isn’t physically restrained. The places I spoke to did not offer restraint options. However, I am a nurse and well-trained. Her behavior support plan supersedes any company’s policies and procedures, so a behavior support plan that calls for restraint would have to be followed. To me, it’s a red flag when I get shut down just for asking questions and informing a provider about my child’s needs. This unwillingness to provide care or to follow someone’s care plan is evidence of a healthcare crisis that is compounded by staffing shortages. The inability to maintain staff to care for the very vulnerable sub-group of individuals with high behaviors (self-injury, aggression, outbursts, meltdowns, impulsivity, and many others) makes the waiver essentially useless in many cases. I believe it would be so very simple for Indiana’s Bureau of Developmental Disabilities Services (BDDS) to require that providers serve a certain percentage of individuals with high behavioral issues and/or high medical needs. BDDS sets forth a whole list of requirements for companies applying to be waiver service providers, so there is no reason that reliability should not be a requirement. Additionally, I strongly feel there

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should be streamlined training for all direct support staff. BDDS is currently working diligently to streamline all case management so that consumers receive the same type of support. Why would they not do the same thing for direct support staff? When I spoke to BDDS as well as providers to get their input and to add their perspectives to this story, I wanted to know why they do not track, monitor, or ensure access to providers. Unfortunately, their responses left more questions than answers. One would believe BDDS would be able to easily access the percentage of individuals with waiver services who cannot utilize their funding, yet this is not the case. They confirmed to me that they do not have the ability with their current technology to run a report to see who has a Community Integration and Habilitation (CIH) waiver and what percentage of those recipients are not able to utilize their benefits. I was flabbergasted. They did confirm that they are working towards improving their computer technology so that they can do these things and streamline the care for those individuals in the future, but they attribute the lack of services to lack of staffing. I scoff at that because I strongly feel it is more a lack of accountability than anything else. There are no requirements to serve this population in general. Each provider is a private institution with its own “rights” to pick and choose whom they serve. Many providers have chosen not to serve individuals with high behaviors or medical issues, and there are currently no requirements for providers to do so in order to remain certified. BDDS “hopes” to streamline care by condensing case management and utilizing case management services to make sure that everyone is on the same page regarding expectations of services rendered. And that is a positive change! But until BDDS changes the certification process to require service for the individuals with the greatest need, there will be no true change for this population. The

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cherry-picking of individuals with low to no behaviors and fewer medical needs will continue with no repercussions. I would like you to ask yourself this question: If leaving high-needs individuals with their families to incorporate them into society was successful, wouldn’t you expect to encounter individuals with high behaviors or high medical needs when you’re out in public? Most likely, you’ve hardly ever seen any. Where do you think those people are? They’re sitting at home behind closed doors under the watchful eyes of their family, or if they are lucky enough, with their caregiver. They can’t go out into society because they don’t have staffing or the appropriate behavior management because they can’t find a provider to take their case. I have spoken with multiple families, and their stories are so sadly similar. My daughter is a whole person, deserving of the same love, care, and attention as anyone else. Although autistic, she absolutely loves people

and approaches new people by asking what their birthday is. I take her out into the community every single day, and I manage her behaviors even though they are sometimes intense and severe. I refuse to be one of those families trapped at home, afraid and feeling unable to be a part of the community. I pick and choose what I do with her so that it is the least stressful for us but also rewarding for her. Many families cannot do this. Many families find it absolutely unmanageable to leave the home. I highlighted a few of their stories here: CH has two sons on the autism spectrum, who live with CH and her husband. The younger son has high behaviors, and the older son has no behaviors. Over the years, they struggled to find care for their sons, especially their high behavior son. When the waiver kicked in, they were thrilled, thinking that things would be better. They found a waiver provider for their sons. Unfortunately, shortly after attaining the provider, they were

unable to get any staff to serve her son with high behaviors; however, her son with no behaviors had all of the services he needed. This infuriated CH because her younger son definitely needed services yet couldn’t get them. CH terminated services with that company and became direct support staff for her children. This posed its own issues, namely isolation and exhaustion. CH mentioned how she and her husband have not been able to go out for a date or to any family gatherings together because one must stay back and care for the high behavior son. This is certainly isolating for both her son and the family. Another mom, CG, has a son with bipolar disorder and autism. He has occasional aggressive outbursts towards others. He also displays self-injurious behaviors. Two of his behaviorists have quit. One felt he could not handle him, and the other quit because her company thought he was “too dangerous.” One provider would only see the son if one of the parents was present. CG had high hopes for a Participant Assistance and Care (PAC) provider who shared culinary interests with her son, but the provider was only available on Sundays. On the day before the Super Bowl, he didn’t return any texts. Then, the morning of Super Bowl Sunday, he texted that he was called into work at his primary job, and since they were offering more hours, he was quitting on the spot. He left the family with no warning, leaving them heartbroken and without a PAC provider. This was devastating for their son. His family was left to pick up the pieces alone. CG reports that they have applied for the CIH waiver and have been denied. These families, and so many others, should not have to live this way. As a mother, a nurse, and a special-needs advocate, I implore you to reach out to your state representatives, congressmen, governor, and BDDS to demand better care for our most vulnerable population. You may reach out to me directly at Tammynurse4u@gmail.com.

August 2022

PEAS for Kids PEAS for Kids specializes in educational consultation, advocacy, and customized assessment plans for children (grades PK-12+). Assessment plans address emotional concerns and learning disabilities such as Dyslexia, as well as characteristics of Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder (ADHD).

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PEAS for Kids strives to utilize the results of our evaluations to provide recommendations for, and work with parents in advocating for their child's educational needs within the school setting.

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Looking for Services? ABA Therapy

ABA is an intensive, one-on-one therapy program that teaches language, social skills, and daily living skills while decreasing maladaptive behavior through environmental modiﬁcation and positive reinforcement. Skills taught include requesting, commenting, conversational skills, social skills, toileting, dressing, and feeding. Mastery of these foundational skills allow children to be more independent and successful in their day to day activities.

Behavior Consultation

Our BCBAs are here to help facilitate treatment and to meet with families on a regular basis to discuss their child's progress and any problems they are experiencing at home or in the community. We believe in as much collaboration as possible to ensure generalization of skills and behaviors to all the environments our children are in.

*this service is provided in home through the BDDS Medicaid Waiver

Looking for a Career? We are looking for a clinic-based BCBA with a heart for helping underserved populations in small town communities. Soft skills required for this job include: ability to work as part of a team, great communication, ﬂexibility, and excellent interpersonal skills. We offer competitive pay based on experience, medical, dental, and vision insurance, 401K, life insurance, short term disability, yearly professional conference opportunities, CEUs, and re-certiﬁcation reimbursement.

BCBAs

We are looking for ABA therapists to work one-on-one with children and adolescents diagnosed with autism. All necessary training will be provided upon hire and leads to Registered Behavior Technician certification from the Behavior Analyst Certification Board. Soft skills required for this job include: ability to work as part of a team, great communication, patience, flexibility, and excellent interpersonal skills. We offer competitive pay based on experience, medical, dental, and vision insurance, 401K, life insurance, short term disability, and an exceptional time off policy.

RBTs

At Piece by Piece, we believe in bringing ABA quality therapy to communities that do not readily have access to services for children with autism.

Visit our website for more information www.piecebypiececenter.com

August 2022

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Helping People Make Smart Choices About Their Money for the Reasons That Are Important to Them • Creating your financial road map and providing guidance through life’s transitions • Celebrating 35 years of serving clients at Charter Advisory Corporation • One of only 29 recipients to have been named an Indianapolis-area Five Star Wealth Manager award winner each year since 2012 Working towards the realization of your dreams is paramount in our relationship with you. The process of understanding your current financial situation is vital in making prudent decisions towards your future goals. We will walk with you, with experienced guidance, toward your financial destination. 250 E 96th Street, Suite 200 • Indianapolis, IN 46240 • Phone: 317-844-7416 dyearwood@charteradvisory.com • www.charteradvisory.com

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Special Needs Living - Indianapolis & Surrounding Areas

By Christia Woodford

LOCAL EVENTS Important Note: Prior to attending any events, please be mindful of any COVID-19 restrictions. Please review the state mask executive order. There are exemptions within the order, including that children under 2 years of age should not wear a face-covering due to risk of suffocation, and any person with a medical condition, mental health condition, or disability that precludes wearing a face covering is not required to do so. Since COVID-19 is still among us, there is a possibility that the events listed and places to go could be canceled, rescheduled, or closed. Please confirm event status and listed details in case event details have changed since posting.

Note: Don’t forget to apply for the Access Pass! The Access Pass Program allows families that meet the specific requirements listed below to visit The Children’s Museum of Indianapolis and all participating locations for $2 per family member per visit for up to two adults and all dependent youths living in the household. Qualifications include the following: • Hoosier Healthwise Insurance (Indiana’s health care program for low-income families, pregnant women, and children) • SNAP (Supplemental Nutrition Assistance Program) • TANF (Temporary Assistance for Needy Families) • Apply here: https://www. childrensmuseum. org/visit/hours/ access-pass MUSEUMS The Children’s Museum of Indianapolis Museum by Moonlight

August 2022

Aug. 27, 2022 8 p.m.–midnight Are you ready for what will be another big night of big fun for big kids only (21-plus)? The entire museum will be open, including the outdoor areas of our sports wonderland — the Riley Children’s Health Sports Legends Experience®. Other fan favorites will include: • Walking the red carpet • Silent Disco with DJ Big Baby • Lots of laughs with ComedySportz: Improv Comedy with a Twist • Live entertainment • Snap a selfie with the Circle City Ghostbusters • Paint a canvas with our visiting artists • Discover the science of alcohol Grab a few drinks, eat delicious bites, and channel your inner child at the party of the year! Ticket information: Early Bird: $80 members and non-members Standard: $85 members, $90 non-members Last-minute: $95 members, $100 non-members

Various Events Aug. 1–Aug. 31 Opens at 10 a.m. 3000 N. Meridian St. Indianapolis, IN 46208 317-334-4000 https://www. childrensmuseum.org/ visit/calendar? date=01/08/2022

Christia Woodford – Publishing Assistant and Local Events

Conner Prairie-Indiana’s Living History Museum SENSORY-FRIENDLY HOURS The second Sunday of every month, from 10 a.m. to noon, will be Sensory-Friendly Hours at Conner Prairie! Enjoy a calm environment. Check in with Guest Relations stating that you are here for SensoryFriendly Hours. You will get free admission and may stay as long as you wish. Various events Aug. 1–Aug. 31 13400 Allisonville Road, Fishers, IN 46038 Phone: 317-776-6000 or 800-966-1836 https://www. connerprairie.org/ events/list/ SPORTS Indiana Fever Aug. 3, 6, 12, 14 Gainbridge Fieldhouse and Indiana Farmers Coliseum Indianapolis, IN https://www.wnba.com/ schedule/ Indy Eleven Aug. 6, 13, 20, 27, 31 Carroll Stadium, Indianapolis, IN https://www. ticketmaster.com/ indy-eleven-vs-newyork-red-indianapolisindiana-05-21-2022/ event/ 05005C3FBFB5483D Indianapolis Indians Aug. 2, 3, 4, 5, 6, 7, 16, 17, 18, 19, 20, 21, 23, 24, 25, 26, 27, 28 Victory Field, Indianapolis, IN

https://tickets-center.com/search/ Indianapolis-Indians-tickets/ FAMILY FUN Indianapolis Zoo Animals & All That Jazz 5:30–8:30 p.m. June 16–Aug. 4 Free for zoo members. Included with regular zoo admission. THURSDAY NIGHT CONCERT SERIES 1200 West Washington St., Indianapolis, IN 46222 317-630-2001 Hours: 9 a.m.–4 p.m. Monday–Thursday, 9 a.m.–5 p.m. Friday–Sunday Various events scheduled daily. Check calendar for events. https://www. indianapoliszoo.com/visit/daily-schedule/ Naturally Inspired Silent Auction Aug. 18, 5:30–7:30 p.m. Ascension St. Vincent Dolphin Gallery Come celebrate the artists from the Naturally Inspired Paint Out and help us bring this year’s art series to a close. Enjoy drinks and light hors d’oeuvres while you mingle and meet the artists. Plus, you can bid on the art your heart has fallen in love with and take it home with you! The Studio Movie Grill 3535 W. 86th St., Indianapolis, IN 46268 317-315-8113 Sensory-friendly screenings of perm_ media Photos movies! Check the website for movies and times. https://www.studiomoviegrill.com/movie/ special-needs-screenings Wild Play Wednesdays Second and fourth Wednesdays through the summer 2–4 p.m. W.S. Gibbs Memorial Park 4521 Gibbs Road, Danville, IN Join the naturalists at the W.S. Gibbs Memorial Park playground for engaging nature play on the second and fourth Wednesdays of each month this summer from 2 to 4 p.m.! Each session will bring something new and different, so don’t miss out! Discover new ways of playing outside!

The Waterpark in Carmel 1195 Central Park Drive W., Carmel, IN 46032 The Waterpark in Carmel is your destination for fun in the sun! Come surf the waves on the FlowRider®️, scale the wall of the AquaClimb®️, grab a treat from the snack bar, and enjoy your own private cabana in style. With features for every age and ability — from a kiddie pool to the lazy river to adventure slides — we have everything you need for a five-star familyfriendly day! The Waterpark is open daily from 11 a.m. to 7 p.m., May 28 through Aug. 7. Want to splash with us all summer long? Buy a season pass today! Summer Break Series at The Artcraft Theatre Every Tuesday at 10 a.m. 57 N. Main St., Franklin, IN 46131, 317-736-6823 The Artcraft Theatre is pleased to welcome back “Summer Break,” a weekly series of familyfriendly films taking place on Tuesdays this summer. Your $5 admission fee includes a small popcorn/ beverage combo! https://indywithkids. com/events/summerbreak-series-at-theartcraft-2022-07-19 THE ARTS Beef and Boards The Honky Tonk Angels July 14–Aug. 14 Escape to Margaritaville Aug. 18–Oct. 2 9301 Michigan Road, Indianapolis, IN 46268

317-872-9664 https://www. beefandboards.com/ Online/default.asp Jubilate Choir Butler University, Lilly Hall, Room 133 Wednesdays, 6:45–7:30 p.m. Director: Lauren Southard Start Date: Sept. 22, 2021 For more information, contact Lauren Southard at 317-940-8065 or lsouthar@icchoir.org. Gigi’s Playhouse Various classes during the week 5909 E. 86th St. Indianapolis, IN 46250 317-288-8235 indy@gigisplayhouse.org EVENTS Indiana State Fair July 29–Aug. 21 1202 E. 38th St., Indianapolis, IN 46205 We are thrilled to welcome our beloved fairgoers back to the Great Indiana State Fair this summer. https://www. indianastatefair.com/p/ state-fair 1st Annual Terre Haute Resource Fair Aug. 13, 11 a.m.–2 p.m. Happiness Bag Inc. 3833 Union Road, Terre Haute, IN A free event to provide community resources to people with disabilities. There will be more than 30 agencies, interactive activities, raffle prizes, and food trucks. Connections Case Management, Happiness Bag Inc., and Hometown Waiver

Solutions will be hosting. Our hope for this event is to provide community resources to Vigo and surrounding counties for families and individuals with intellectual and developmental disabilities. We will have an interactive area for music therapy and recreation therapy. There will be food trucks and lots of vendors available. We would love for your organization to be a part of the event and have a booth. The cost will be free for attendees. We are asking each booth to raffle off an item of their choice for the event. The link to register is https://forms.office. com/r/h6nCn4hP7v. Breakfast with a Purpose 2022 by Purposeful Living INC Board Tuesday, Aug. 16 8–10 a.m. 502 E. Events Centre 502 E. Carmel Drive, Carmel, IN 46032 Join Purposeful Living INC for our free networking and fundraising breakfast. This event is for all women — business women and stay-athome moms, married or single. We are projecting this to be our best event yet. It will be a time of inspiration, networking, and motivation, all with the purpose of raising awareness and funds for Purposeful Living. By invitation only. Seats are limited. If you are interested in our sponsorship opportunities, please

email sponsor@purposefullivinginc.org to learn more. Purposeful Living INC is here to serve the modern woman: The woman who looks like she has it all together but behind closed doors she’s hurting, searching, or lonely. We are here to love, to walk alongside, and to encourage women to be all God created us to be: peaceful, joyful, and authentic. To learn more about Purposeful Living INC, go to www.purposefullivinginc.org https:// www.eventbrite.com/e/breakfast-with-apurpose-2022-tickets-256863023217. Special Needs Living Family Fun Day Aug. 19, 4–7 p.m. iBeach 31 17341 Westfield Park Road, Westfield, IN 46074 Volleyball, bar, games, corn hole, frisbee, beach toys, chairs, tables, music https://www.eventbrite. com/e/342958436917 Organizations are welcome to have a table to pass out information and connect with the community. You are also encouraged to post this event and share with your community. Family2Family Aug. 23 Family2Family is hosting a virtual workshop on government benefits, SNT, and ABLE. Register at training@inf2f.org Airport Day Aug. 27, 10 a.m. Indy South Greenwood Airport brings the community together for a fun-filled day of activities, exhibits, and food. Free parking and admission. Attendees will see World War II aircraft, vehicles, and live re-enactors. Our local Young Eagles chapter will offer free plane rides for kids ages 8 to 17. Paid aircraft and helicopter rides available as well. Several flight training schools will be onsite for those interested in learning to fly. Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.

Special Needs Living - Indianapolis & Surrounding Areas

ADAPTABILITY, MOBILITY, and SENSE-AROUND

By William Hume

have a partially disabled right leg. My range of motion is very limited in that leg, but at least I don’t have pain from advanced joint arthritis. I can’t drive anymore, so my wife, Jeanine, takes me along for the ride. We have 300 horses of turbo-charging, so she gives me my daily thrill ride. My whole viewpoint is ADAPTABILITY, MOBILITY, and SENSE-AROUND: a physical disability, even vision impairment or compromised hearing, should not stop life’s greatest pleasures from being enjoyed by a disabled person. By sense-around, I mean technology which allows special needs individuals have sight and sound enhanced with advanced dimensional innovation. In this editorial regarding handicap seating at stadium events, be it sports, car racing, music concerts, or more, I want to create a vision of practical access for everything from a walking cane to wheelchairs. As you will see, handicapped fans can have the best seats in the house. As a retired gentleman, age 74, from decades in the civil engineering field, I’ve seen all kinds of structures planned, designed, and built. Going forward, to future stadium design and remodeling, we special needs individuals should be given priority. Let’s get to it! To begin with, all handicap and special needs stadium seating should be at ground level. Ground level is the best “see level” as well. Disability stadium seating in front can be an architectural and structural engineering ground anchor for a stadium deck. The dimension of being closest to our sports heroes on the field or race drivers on a track elevates our sense of importance. Sensory

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perception for the visually impaired can be enhanced with real-time announcing on provided headsets that bring special three-dimensional explanations. For hearing loss fans, big screens would feature ASL interpretation. Hopefully, this read will inspire and compel handicapped and special needs individuals to advocate for innovative stadium seating designs. One of our close encounters with handicap seating this year was at the Indianapolis Motor Speedway for the “500.” Attending the Indianapolis 500 with my wife, Jeanine, I reserved two ADA seats, handicap Paddock row. Great location, as this area is the front row on a 9-foot wide and elevated planked steel panel deck, located right across from the starting line, Pagoda Tower and winner’s podium. The intention for providing for of disability seating at IMS is good, but the execution is not. Unfortunately, the “handicap seats” are old card table chairs the Speedway has owned for ages. The chairs were missing for our two designated spots. A Speedway attendant located two seats from someone else’s spot! Chaotic way to host a handicapped individual for sure. Two race fans next to us did not have chairs either, were not as lucky, and sat on a cooler and the other on on the deck floor the whole race! Listen up, Speedway — get new chairs that are cushioned with drink holders for the comfort of a disabled person. That’s just the beginning of my fix. I will suggest a design that will require a deconstructing and then a quality new structure. I’ll be an innovative problem solver here. Presently, the handicap area is bolted steel and aluminum planks and

tubing. Disassemble that and build a cantilevered concrete deck wider with more access ramps in addition to the stairways. Space the handicap wheelchair area with two companion chairs of new design mentioned, mapped out in stripes with 3M

reflective traffic paint and divided with tube railings. place the pedestrian walkway directly behind the separated forward handicap row. This way handicapped fans and bleacher seat fans will be separated completely. As it was race fans walked right through

the wheelchair area and made havoc of drinks and coolers disabled fans had brought with them. I had two beer cans knocked over right after I bought them. Glad our hot dogs didn’t get squished. The Indianapolis 500 is a fantastic motorsports event and an incredible experience. A few improvements to the disability seating will make attending more comfortable for loyal fans today and future special needs race fans in the future. If a competition wheelchair race hasn’t been planned for the 2023 “500,” it should be. At the 2.5-mile track, a two-lap event of 5 miles for 33 fast men and women competitors in traditional rows of three based on a one-lap qualification run with a pole position would be fun to see. Winner gets a “baby” Borg-Warner trophy and a promotional contract with a wheelchair manufacturer. Some new sports venues, such as SoFi Park in Los Angeles, and Allegian Stadium in Las Vegas, are great for ADA seating. These two stadiums have no traditional bench seating, which should be removed from existing sports venues for all fans. This article is a call to action and timely implementation. Before I became partially disabled, I would try to help any physically challenged person I could, anywhere, with whatever assistance I could perform. That’s what I was taught to do. A historic facility, the Indianapolis Motor Speedway can build a better fan experience for those race fans with special needs. William Hume spends time in retirement writing opinion editorials nationally regarding infrastructure, transportation, agriculture, politics, and motorsports. William’s disability originated from athletic injuries during his university years.

Special Needs Living - Indianapolis & Surrounding Areas

Connections Case Management, Happiness Bag Inc., & Hometown Waiver Solutions present our

1ST ANNUAL TERRE HAUTE DISABILITY RESOURCE FAIR

Saturday, August 13, 11a-2p

Free

Over 30 Vendors

Happiness Bag, Inc. 3833 Union Rd. Terre Haute

Food · In t er ac t i v e Activitie s · Ve nd o rs · Ra ffle s Questions? info@connections-in.com · https://fb.me/e/1YqZNCZhD

August 2022

sponsor of the month Maria Smietana —Editor-in-Chief

Borshoff Consulting LLC Sherry Borshoff holds a Bachelor of Science degree in accounting and is the founder and owner of Borshoff Consulting LLC, a full-service tax consulting firm Sherry Borshoff located in Carmel, IN. Sherry has been an enrolled agent with the IRS since 2016. An enrolled agent (EA) is a federally licensed tax practitioner who has technical expertise in the field of taxation and who is licensed by the U.S. Department of the Treasury to represent taxpayers who are unable to pay and taxpayers who wish to avoid or recover penalties. Unlike CPAs, who may or may not choose to specialize in taxes, all EAs specialize in taxation and are required by the federal government to maintain their professional skills with continuing education. Aside from needing help to resolve tax problems, there are many good reasons to choose an EA as your tax professional. Here are just a few of the things an EA can do for you as a small business owner/taxpayer: • Income tax returns • Individuals, corporations, partnerships, LLCs, estates, farms, and trusts • Payroll/payroll tax returns • 940/941 filings • W2s and 1099s • Bookkeeping • Sales tax returns • Accounts receivable billing/invoices • Accounts payable management

• Assistance with budgeting and bill paying • Tax planning • CFO functions • Management advisory services • Cashflow management strategies • Strategies to enhance your business • Advice on business decisions and tax consequences • IRS representation • Negotiate IRS settlements and collections • IRS audit representation • Tax-related litigation support • Start-up and business consulting

changes. She still believes that all small businesses should grow and prosper without consuming the entire life of their owner. Contact information: Borshoff Consulting LLC 317-846-1005, ext. 3 www.borshoffconsulting.com

Tax preparation and tax compliance services also remain a very big part of what the firm offers, which means yearly and sometimes monthly or quarterly tax filings for small to medium businesses. It also means helping taxpayers who haven’t filed their taxes for several years get caught up and compliant. One pertinent piece of advice that Sherry offers: “If you have a refund on a return that is more than three years past due, you will not be allowed to collect that refund. I have seen past clients who have unwittingly left money on the table by not having filed their returns in time to get the refund due them.” As Sherry strives to build the best tax representation firm in the Indianapolis area and continues to grow her portfolio of business services, one thing never

Special Needs Living - Indianapolis & Surrounding Areas

pastor’s corner By Paul Hathcoat

Calm In the Storm

Mark 4:35-41 NLT 35 As evening came, Jesus said to his disciples, “Let’s cross to the other side of the lake.” 36 So they took Jesus in the boat and started out, leaving the crowds behind (although other boats followed). 37 But soon a fierce storm came up. High waves were breaking into the boat, and it began to fill with water. 38 Jesus was sleeping at the back of the boat with his head on a cushion. The disciples woke him up, shouting, “Teacher, don’t you care that we’re going to drown?” 39 When Jesus woke up, he rebuked the wind and said to the waves, “Silence! Be still!” Suddenly the wind stopped, and there was a great calm. 40 Then he asked them, “Why are you afraid? Do you still have no faith?” 41 The disciples were absolutely terrified. “Who is this man?” they asked each other. “Even the wind and waves obey him!” How Was Jesus so Calm? While the disciples and Jesus were floating in the water, “a fierce storm came up. High waves were breaking into the boat, and it began to fill with water” (Mark 4:37). We all know this story, but do we live the lesson out during our own storms? Jesus was

August 2022

found sleeping in the back of the boat, and the disciples were watching the waves, feeling the wind, and hearing the lightning crash around them. They were focused on the storm and even woke Jesus up by shouting, “Teacher, don’t you care that we’re going to drown?” (v. 38b). Jesus woke up and said, “Why are you afraid? Do you still have no faith?” (v. 40). I imagine that Jesus was hoping that the disciples would react differently to a difficult situation. I imagine that He would have liked them to remain calm, place their trust in Him, and continue to stay focused on the bigger goal/plan instead of the temporary storm that they were experiencing. Why is it so hard for us to embrace the difficult times in our lives? Why does it take us so long to recognize that the “storms” we face are actually the life events that are setting the stage for our greatest platforms from which to show and share our faith? The hardest times in our lives have the greatest potential for us to share the Gospel and how it has been planted and grown within us. This story reminds me of what my heart and mind often look like. I frantically run around trying to fix

everything. I try to form my identity, gain grace, insulate my heart, make the right decisions, and clean up the mess when I don’t. Waves of confusion strike, waves of panic crash, and life becomes an exhausting battle driven by the fear of capsizing. In the fog of my own failing efforts, I tend to forget the help that is right beside me. Why is Jesus’ presence so easy to forget? Often, it’s usually because we seek solutions instead of seeking a relationship with the one who can solve things. The serious lack of understanding is not the ‘how’; it’s the ‘who.’ When we really know Jesus, we can stop searching for security, grace, identity, and freedom because He is all those things. We can walk through the storms grateful for them and what they will produce in us by going through them. Can you imagine with me a version of yourself that literally welcomes the next storm? Can you imagine a time when the waves may be crashing down around you, the winds may be blowing over your shelter, and the lightning is striking your boat, but you are resting quietly in the back of the boat, planning how your current experience is going to fuel your future purpose? Imagine that!

Book your personal studio class with your child, family or friends and have the entire studio. With over 20 years experience, Jeremy South offers student guided classes in fused glass, handbuilding in clay, pottery wheel, STEM and recycled art. Choose your personal class design. Classes held inside/outside Northwood Christian Church located at 4550 Central Avenue, Indianapolis. Covid-19 safety followed.

A gentle approach in art for your child or family. Visit ripplemobilearts.com for class information or call 317-514-8469

BASTET CAT CARE & SITTING

Accommodating all feline family members including special medical & behavioral needs. Teaching and Giving Injections, Medication, Nail Trims and Minor Grooming,Vet Transports, Cat Sitting

Owner AJ Gegenheimer, RVT Bonded & Insured with Pet Sitters Association

(317) 919-1948 | bccs95@gmail.com Serving the westside of Indianapolis, Avon, Brownsburg, Plainfield, Zionsville Special Needs Living - Indianapolis & Surrounding Areas

Indoor Sensory Spaces Do you have a thought, idea, or information that you would like to see in this section in an upcoming issue? Email Paul Hathcoat at phathcoat@wrcc.org.

***Individuals who qualify for Indiana’s Access Pass may visit several of these sensory-inclusive venues at a reduced cost. Please visit https://www. childrensmuseum.org/visit/accesspass to learn more.

Adrenaline Family Adventure Park

10080 E. 121st St., Suite 182, Fishers, IN, 317-572-2999 Sensory Friendly Sundays, 9:30– 11 a.m.,******** June__ and Adrenaline Family July__ ****** Adventure Park No music; helpers included; lights are not dimmed for safety. Discounted admission of $10 (one ticket per jumper and support person). Sensory hours scheduled monthly for weekends (call for details). https:// www.adrenalinefishers1.com/

Allen County War Memorial Coliseum Arena Expo Center

deck, identification wristband). https://www.memorialcoliseum.com/ plan-your-visit/accessibility-ada https://www.memorialcoliseum.com/ contact-us/contact-us

AMC Theaters: Castleton Square 14

showings. https://www.amctheatres. com/movie-theatres/indianapolis/ amc-indianapolis-17 https://www. amctheatres.com/help

Banker’s Life Fieldhouse - Kulture City Sensory Friendly Certified

AMC Theaters: Castleton Square 14 Banker’s Life Fieldhouse - Kulture City Sensory Friendly Certified

6020 E. 82nd St., Indianapolis, IN, 317-577-9538 Partners with Autism Society to create sensory-friendly film showings. Lights are dim, sounds are low, and patrons may freely walk about during the film. Offered on second and fourth Saturdays each month. Contact theater for specifics on showings. https://www.amctheatres. com/movie-theatres/indianapolis/ amc-castleton-square-14

AMC Theaters: Indianapolis 17

125 S. Pennsylvania St., Indianapolis, IN, 317-917-2500 Sensory-friendly bags (headphones, fidgets, lap pads, badging) available at Guest Relations on Main Concourse between Sections 19/20; club level across from Suite 29; balcony level across from Sections 106/107. Sensory wall located in Section 13. Accessible https://www.bankerslifefieldhouse. com/ pacersinsider@pacers.com

BellaBoo’s Children’s Play and Discovery Center

AMC Theaters: Indianapolis 17

Allen County War Memorial Coliseum Arena Expo Center

4000 Parnell Ave., Fort Wayne, IN, 260-483-1111 Sensory-friendly with sensory kits available at the communications desk (weighted comfort item, headphones, several small fidgets, communication

August 2022

BellaBoo’s Children’s Play and Discovery Center

4325 S. Meridian St., Indianapolis, IN, 317-784-0989 Partners with Autism Society to create sensory-friendly film showings. Lights are dim, sounds are low, and patrons may freely walk about during the film. Offered on second and fourth Saturdays each month. Contact theater for specifics on

2800 Colorado St., Lake Station, IN, 219-963-2070 Sensory play, tranquil palette, tactile play, low ceilings, manipulatives and fidgets, no speaker system, and five quiet rooms available as needed. $11 per person. With access pass, $2 per person. Sensory events are scheduled

year-round (call for details). https:// lakecountyparks.com/262/Bellaboos

Chuck E. Cheese Sensory Sundays

Booth Tarkington Civic Theatre

Chuck E. Cheese Sensory Sundays

Booth Tarkington Civic Theatre

3 Carter Green, Carmel, IN, 317-843-6315 Inclusive sensory-friendly performances, trained staff, quiet areas available. Please contact access@civvictheatre.org for story synopsis, social stories, and additional resources. A relaxed environment where patrons may speak or leave as necessary. Sensory-friendly performances year-round (call for details) https://www.civictheatre.org/ accessibility access@civictheatre.org

1-888-778-7193 Opens two hours early on the first Sunday of the month. Dimmed lighting, music off or low, Chuck E. limited appearance, smaller crowds, no admission fee. Birthdays can be celebrated during this time at select locations. Various locations (Avon/ Columbus/Evansville/Greenwood/ Indianapolis/ Kokomo/Muncie). https://www. chuckecheese.com/events/ sensory-sensitive-sundays

Connor Prairie

Civic Theatre of Fort Wayne “Project Lights Up”

303 E. Main St., Fort Wayne, IN, 260-4228641, x226 No-cost sensoryfriendly

The Children’s Museum of Indianapolis

Civic Theatre of Fort Wayne “Project Lights Up” Children’s Museum of Indianapolis

3000 N. Meridian St., Indianapolis, IN, 317-334-4000 Sensory-friendly resource page on the website. Download sensory map, social narrative, and visual checklists that highlight sensory-heavy areas of the museum. Playscape area for younger children with mats and water tables. Ask the concierge desk for a sensoryfriendly kit (headphones, fidgets, roller toys). Quiet rooms available. Call for information on sensoryfriendly events scheduled year-round. https://www.childrensmuseum.org/ visit/accessibility customerservice@ childrensmuseum.org

395 S. Heritage Way, Pendleton, IN, 765-744-1606 Sensory-friendly fitness center, staff trained and certified. Sensory classes “Sweet Pea” and “Ninja Classes.” Gymnastics classes are available. Prices vary. Sensoryfriendly childcare and sensory-friendly birthday parties available as well. https://communitysw.com/ info@ communitysw.com

performances. Trained therapy dog onsite, sensory-friendly kits (headphones, fidgets, weighted neck wraps). Sensory-friendly performance guide on the website. Reduced lighting (30%), sounds, and patron capacity. Call for details. https://www.fwcivic. org/plup EWadewitz@FWCivic.org

13400 Allisonville Road, Fishers, IN, 317-776-6000 Opens one hour early on the third Sunday of the month, 10 a.m. to noon. Dimmed lighting and noises. Quiet spaces located in Welcome Center/ Prairie Town/Tree Top Outpost/Civil War Journey. Quiet boxes (fidgets, weighted blankets, lavender lotion). Sensory-friendly trained staff wears badging. Sensory guests are welcome to stay all day. Free admission. Check for seasonal sensory events. https:// www.connerprairie.org/explore/ things-to-do/sensory-friendly-hours/ https://www.connerprairie.org/ about/contact/

Embassy Theatre

Community Sports and WellnessSensory City Certified

125 W. Jefferson Blvd., Fort Wayne, IN, 260-424-6287 Sensory kits available; notify usher or staff member of need. http://

Embassy Theatre

fwembassytheatre.org/ info@ fwembassytheatre.org Community Sports and Wellness-Sensory City Certified

Special Needs Living - Indianapolis & Surrounding Areas

Hamilton East Public Library - Fishers Kulture City Sensory Friendly Certified

5 Municipal Plaza, Fishers, IN, 317-579-0300 Sensory-friendly bags Hamilton (headphones, fidgets, East Public lanyard badging) are Library - Fishers available at the circulation Kulture City desk. Headphone zones, Sensory quiet spaces. SensoryFriendly Certified friendly events are planned year-round. https://www.hepl.lib. in.us/ info@hepl.lib.in.us

Hamilton East Public Library - Noblesville Kulture City Sensory Friendly Certified

Hamilton East Public Library Noblesville Kulture City Sensory Friendly Certified

Library Plaza, Noblesville, IN, 317-773-1384 Sensory-friendly bags (headphones, fidgets, lanyard badging) are available at the circulation desk. Headphone zones, quiet spaces. Sensory-friendly events are planned year-round. https://www. hepl.lib.in.us/ info@hepl.lib.in.us

Indiana Repertory Theatre Inc.

140 W. Washington St., Indianapolis, IN, 317-916-4841 Call for sensoryIndiana State Museum and friendly Historic Sites performances. Story guides/ social narratives, sensory intensity, and visual cue guides all available online, or ask house management. https://www.irtlive.com/your-visit/ accessibility sgeis@irtlive.com

Indiana State Museum and Historic Sites

Indiana Reparatory Theatre Inc. 30

August 2022

650 Washington St., Indianapolis, IN, 317-232-1637 Please call for consultation prior to the visit. Can advise on which days and times are quieter, where to take sensory breaks, and which galleries to visit or avoid. Sensoryfriendly events scheduled periodically (call for details). https://www. indianamuseum.org/accessibility/ museumcommunication@ indianamuseum.org

Lucas Oil Stadium - Kulture City Sensory Friendly Certified

500 S. Capitol Ave., Indianapolis, IN, 317-262-8600 Sensory-friendly bags (headphones, lap pad, verbal cue cards, fidgets, lanyard identifying sensory concerns) are available at Guest Services Kiosk behind section 121. Designated quiet areas, sensory signage, accessible. https://www.lucasoilstadium.com tour@icclos.com

Regal Theaters My Way Matinee: Fort Wayne Regal Coldwater Crossing

211 W. Washington Center Road, Fort Wayne, IN, 844-462-7342 My Way Matinee sensoryRegal Theaters: My Way Matinee: friendly Regal Village Park showings. Lights dim, sounds low, and patrons are free to express themselves and move about. Second and fourth Saturdays each month at 10:30 a.m. Contact the theater for more information on specific films. Special discounted price available. https:// www.regmovies.com/theatres/

regal-coldwater-crossing/0169# https://www.regmovies.com/rcc/ contact-us

Regal Theaters My Way Matinee: Regal New Albany

300 Professional Court, New Albany, IN, 844-462-7342 My Way Matinee sensory-friendly showings. Lights dim, sounds low, and patrons are free to express themselves and move about. Second and fourth Saturdays each month at 10:30 a.m. Contact the theater for more information on specific films. Special discounted price available. https://www.regmovies.com/theatres/ regal-new-albany/1522#/ https:// www.regmovies.com/rcc/contact-us

Regal Theaters My Way Matinee: Regal Village Park

Regal Theaters: My Way Matinee: Fort Wayne Regal Coldwater Crossing

Regal Theaters: My Way Matinee: Regal New Albany

2222 E. 146th St., Carmel, IN, 844-462-7342 My Way Matinee sensory-friendly showings. Lights dim, sounds low, and patrons are free to express themselves and move about. Second and fourth Saturdays each month at 10:30 a.m. Contact the theater for more information on specific films. Special discounted price available. https://www.regmovies.com/theatres/ regal-village-park/0147#/ https:// www.regmovies.com/rcc/contact-us

Rhythm! Discovery Center

110 W. Washington St., Suite A, lower level, Indianapolis, IN, 317-275-9030

Noise-reducing headphones and disposable earplugs are available. Caregiver admission is free. Lower crowds on Sundays and weekdays after 2 p.m. https://rhythmdiscoverycenter. org/ rhythm@pas.org

Science Central Serenity Dance Connections

Science Central

10 a.m. or Tuesdays from 5 to 5:30 p.m.). Tumbling mats, rock wall, tumble air track. Free trial classes; prices vary. Sensory-

Senses Playroom Gym

3535 W. 86th St., Indianapolis, IN, 317-315-8113 Sensoryfriendly screenings are all Studio Movie Grill-College Park shown at noon. Lights dimmed, low volume, patrons free to move about and talk. Free for special needs children and their siblings. Adult tickets available for pre-noon pricing. https://www. studiomoviegrill.com/movie/specialneeds-screeningshttps://www. studiomoviegrill.com/locations/ indiana/college-park/2021/9/30

The Eiteljorg Museum Senses Playroom Gym

1115 E. State Road 44, Shelbyville, IN, 317-370-8238 Tactile wall, sensory bins, crawling tunnel, snuggle swings, bubble lamps, lava lamps, crashpad. Three unique rooms of sensory exploration. Best for ages 1 to 6 years; $6 per child. http:// sensesgym.org/ hforville@gmail.com

Serenity Dance Connections

600 W. Northfield Drive, Suite 2000, Brownsburg, IN, 317-852-0355 Sensory movement/development classes (two Saturdays per month at

The Park at Traders Point Christian Church

friendly events (call for details). https://www. serenitydanceconnections.com serenitydanceconnection@gmail.com

Studio Movie Grill — College Park

1950 N. Clinton St., Fort Wayne, IN, 260-424-2400 Special Abilities Days. Sensoryfriendly lighting, low ambient sound, extra staff, access to a quiet room, tactile stimulation demonstrations, and smaller crowds. Free, but must pre-register for the event. Check for extra dates to be added. https:// www.sciencecentral.org/programs/ programs-on-site/aws-foundationspecial-abilities-days.html https:// www.sciencecentral.org/about-us/ contact-us.html

reduced rate of $7.50, and companions or aides are free of charge. https:// eiteljorg.org/policies/accessibilityservices https://eiteljorg.org/contact

The Eiteljorg Museum

500 W. Washington St., Indianapolis, IN, 317-636-9378 Inclusive public spaces. Noisecanceling headphones are located at the front desk. Social narratives are available online. Quiet garden area for sensory breaks. Admission is at a

Therapeutic Sensory Gym at Rhodius Park

6590 S. Indianapolis Road, Whitestown, IN, 317-769-5557 Indoor park with designated quiet spaces. Special needs days first Friday each month (must reserve a spot) when the park is closed to the general public. Currently closed due to COVID-19. Check Facebook for updates on reopening. https://www. facebook.com/TradersPointCC/ https://tpcc.org/the-park info@tpcc.org

YMCA of Greater Fort Wayne

5680 YMCA Park Drive W., Fort Wayne, IN, 260-7554961 Several YMCA of Greater Fort Wayne sensory rooms to choose from depending on location (Jorgensen, Caylor-Nickel Foundation, and Lehman). Five stations with ball pits, lava lamps, massage chairs, bubble tubes, and color tiles. Call for more specific information on each room. Adaptive and sensory-friendly programming is available as well. Sensory events are scheduled yearround (call for details). https://www. fwymca.org/program-registration/ adaptive-inclusive rebekah_coffey@ fwymca.org

Special Needs Living - Indianapolis & Surrounding Areas

DO YOU WANT TO CONNECT WITH OTHER PARENTS? Are you looking for parenting tools that can help you? Is your child on the Community Integration and Habilitation and Family Support Waivers in the State of Indiana? If so, then you should participate in our Empact Parenting programs that we are hosting in May! Learn more and register via this link: https://bit.ly/3vG5nem

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Music Therapy can help individuals of all ages and abilities, including those with:

August 2022

Alzheimer’s Disease and Dementia ° Autism ° Cerebral palsy Developmental Disabilities ° Down Syndrome End-of-life care (Hospice) ° Intellectual Disabilities Mental health ° Neurological disorders Psychiatric disorders ° Rehabilitation

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Independence Park - a place to PLAY for ALL

Amiable Home Care Inc. is a multi-service home care agency. We specialize in helping individuals from all age groups. We assist with errands, light house work, medication reminders, bathing, food preparation, and lots more! We accept A&D and TBI Waivers. For private pay, ask about our rates.

• All Inclusive Playground Remodeled in 2020 featuring an Interactive YALP & Sona Arch • 3 Rentable Shelters • Wheelchair Accessible Trail with JCPL Storywalk • Wheelchair Accessible Basketball Court 2100 S Morgantown Rd Greenwood, IN 46143 812.526.6809 www.jocoparks.com Follow us on Facebook! @injocoparks @jocoind

Providing Behavioral Health Services under the Family Supports Waiver (FSW) and Community Integration and Habilitation Waiver (CIH). We currently offer Participant Assistance and Care (PAC) Structured Family Caregiver Levels 1, 2, 3 Family and Caregiver Training Wellness Coordination Residential Habilitation & Support and Day Habilitation Attendant Care and Respite

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Special Needs Living - Indianapolis & Surrounding Areas

young achievers spotlight By Zach Elliott

meet

Zach Elliott — Writer

JAMES BENNETT

James’ booth

If there is anything that James Bennett loves as much as Disney and Winnie the Pooh, it’s making treats and accessories for his canine customers. James, who turned 21 in May, works in tandem with his mother, Yvonne, through their company, JB Treats, to prepare gluten-free dog treats and accessories like bandanas and fleece pet mats. James also enjoys designing and making custom, handpainted treat jars. Throughout his life, James has battled challenges related to autism, anxiety, and sensory processing issues. Early on, it was a goal to remain on task for more than 5 minutes. Receiving speech and occupational therapy through First Steps, a state-sponsored organization dedicated to connecting families with developmentally delayed children with services to aid their development, and working with a private behavior

therapist, James was able to complete his high school education. An active runner, James joins his mom and sister, Celestia, who is a first-year communications student at Indiana State University, in various fun runs like the Mini Marathon, Color Run, Disney Virtual Run, and Drumstick Dash. They also enjoy hiking. James, in particular, enjoys being outdoors and has helped a goat farmer on weekends for the past two years. An avid Disney fan, James’ favorite vacation spot is Walt Disney World. For his 21st birthday, James, his mom, sister, and grandmother all took a trip there. James’ love for Disney spills over into his work, too — he’s added a hidden Mickey Mouse on a custom-designed treat jar for a fellow Disney lover. JB Treats, created in April of 2021, is the culmination of the desire to find a job opportunity that James could pursue post-high school and the James and Mom at Disney

August 2022

Graduation

joy it brought him to bake treats for the Bennetts’ dog, Oreo. Starting with treats, they have slowly added products that James is involved in making. He’s learning to sew the overthe-collar bandana and pet mats they sell, and he bakes Celebration Cakes for dogs, too. At fairs and events, James will help set up a tent to sell his products. JB Treats also takes online orders, and James helps with the packaging. He takes immense pride in filling orders for customers in either case. Always a hard worker who strives to do his best, James combats anxiety with the same commitment that he gives to his work, using yoga, breathing exercises, and more. It’s a daily challenge, but one he takes on with aplomb. In his smile, you can see the pride in all the effort he has put into school, work, and his personal life, and all the opportunities yet to come.

James and Celestia at graduation

Special Needs Living - Indianapolis & Surrounding Areas

non-profit spotlight By Angela Arlington

Angela Arlington – Community Engagement Coordinator – Writer and Contributor

PALADIN CARE About: The mission of Michigan City-based Paladin Care is to serve as advocates for persons with disabilities, nondisabled children, seniors, and their family members. They provide supports and opportunities to learn, grow, and enjoy a meaningful life. They offer day services, residential services, intermediate care facilities, transportation, respite care, community employment, behavioral support, and run Head Start of Laporte County. Currently, Paladin Care is approved to provide services in LaPorte, Lake, Jasper, Newton, Porter, Pulaski, St. Joseph, and Starke counties in Indiana. History: “Paladin is a 501(c)(3) that traces its roots back to 1967 when a group of local parents gathered in a garage to create Michiana Resources, dedicated to enhancing the lives of their children and others in the community living with disabilities. Nine years later, a pair of local women founded a similar nonprofit, Parents and Friends, which operated a residential living program intended to help those with disabilities live independently while receiving support,” explained Development and Marketing Officer Melissa Bohacek. “Over the next several decades, the agencies began to expand into the service [areas] of their counterpart, with Michiana Resources considering adding residential living and Parents and Friends looking into day services. They did not want to compete with each other, so instead, they merged in 2017 after several years of talks. The new name became Paladin after an internal contest.”

August 2022

Logo

Over the past several years, Paladin has brought several other nonprofits under its umbrella, including Barker Woods Enrichment Center, which supported children with disabilities, in 2018, and the Child Care Consortium, which hosted the LaPorte County Head Start program, in 2019. Starting in 2018, Paladin also partnered with the Arc of Northwest Indiana, another disability support organization expanding its reach into Lake County. Supporting: “Paladin is in the process of a capital campaign to turn existing warehouse space within our building into classrooms and sensory-friendly spaces to learn, relax, and grow,” Bohacek said. “We are accepting donations and matches to help make this a reality for our community. We also offer a variety of events and invite anyone interested in learning more about Paladin to come by for a visit or volunteer with us.” Paladin is always interested in learning what new kinds of supports are needed. “We have expanded our behavioral supports and intend to develop a program for older adults living at home with family members,” Bohacek added. Paladin participants have started raising chickens and ducks. The local 4H has agreed to let adults show the birds at the fair and to allow the chickens to be judged. Testimonial: “I like coming to Paladin and seeing my friends. We do art projects and work on goals. They helped me to learn math and history. My staff listen to me and make me feel happy.”

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August 2022

Sans Gluten

By Christina McGairk

PEANUT BUTTER SANDWICH, BABY CARROTS W/ RANCH, CHOCOLATE CHIP COOKIES, & FRUIT

Wow! Can you believe it? Summer break came and went. Some kids are already back to school, while others are trying to squeeze in the last bit of summer fun before they hit the books. Parents, on the other hand, like me, may be a little glad that their kids are going back to school and not eating them out of house and home. Speaking of food, most schools offer gluten free lunch options, which I didn’t know at first when TiTi changed school systems. So I would pack her lunch. More specifically, I would prepare gluten free bento box lunches for her. Not only are they aesthetically pleasing to the eye, but they also keep food fresh, help with portion control, and it’s easy to put together (no foil or plastic wrappers needed). I always tried to incorporate a protein, a carb, fruits and vegetables in TiTi’s bento lunch box. Here are a couple of examples of gluten free bento lunch boxes I created for TiTi when she was younger.

This was one of TiTi’s favorites. She absolutely loved peanut butter and who doesn’t love gluten free bread? I will say if you have a peanut allergy, use sunflower butter or just omit it altogether. TiTi was also in a carrot and ranch phase at the time. So I always made sure to throw that in the mix. Although she doesn’t like most sweets, one thing she could never resist is chocolate chip cookies. Of course I always made sure I added fruit. TiTi prefers fresh fruit like grapes, blueberries, strawberries, etc, but every once in a while I would throw in a fruit cup like the mango one shown in the picture. Here’s how to construct this gluten free lunch idea. • Gluten Free Bread • Peanut Butter (or sunflower butter for peanut allergy) • Baby carrots • Ranch Dressing • Gluten free chocolate chip cookies • Fresh fruit or fruit cup

HAM & CHEESE ROLL-UPS, TORTILLA CHIPS, SALSA & GREEN GRAPES

This bento box lunch idea was actually something I threw together real quick that morning. Usually I prepped her lunch the night before, but there were some nights I worked late and just went straight to bed as soon as I got home. But TiTi didn’t mind because all of her favorite things were all in one box. Here’s how to construct this gluten free lunch idea. • Low sodium deli honey ham • Organic colby jack cheese slices • Certified gluten free corn chips • Organic black bean and corn salsa • Green grapes Honestly, you can’t go wrong with gluten free bento boxes. Just use gluten free ingredients of course, make sure it’s something your child likes, and keep it healthy with a special treat.

If you would like to share gluten-free tips, tricks, info, etc., in an upcoming issue of Special Needs Living, email us at SpecialNeedsLivingIndy@n2pub.com. Special Needs Living - Indianapolis & Surrounding Areas

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AUG. 19, 4–7 P.M. iBeach31 17341 Westfield Park Road Westfield, IN 46074 Come out and enjoy a relaxing evening for individuals with special needs and their families. This event is a great opportunity to connect and build relationships with others in the community and enjoy some fun. All ages welcome. • Volleyball • Games • Corn hole • Frisbee beach toys • Music • Bar on site

To RSVP: Scan the QR code or click this link: https://www.eventbrite.ca/e/specialneeds-living-family-fun-day-atibeach31-tickets-342958436917 Scan to RSVP

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August 2022

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By DeAndra Yates Photos By Buonanno Photography DeAndra Dycus — Writer and Contributor

THE RESILIENCE

When you hear the words “You’re pregnant,” every emotion that you could possibly feel arises. Joy, fear, adoration, nervousness, and everything in between begin to take over. You then start to exhibit that “pregnancy glow,” beaming “just because.” As you enter the second trimester, you begin to exhale because you feel safe to share your good news about the miracle growing inside you. But then a cough changes it all. It sounds simple, but truthfully, it begins a complex journey. That dry, annoying cough led to a diagnosis of CMV for Jacky Doke. CMV stands for cytomegalovirus, an infection that can have mild to severe effects on a fetus. According to the CDC, CMV is the most common infectious cause of birth defects in the United States. About one in 200 babies is born with congenital CMV (cCMV). It is the No. 1 cause of newborn hearing loss, but can also cause vision loss, intellectual impairment, and other neurodevelopmental disorders. The cough is often overlooked, so it causes missed or late diagnosis of the virus, which leads to delayed treatment of the potential long-term health complications in the baby. On Feb. 21, 2007, Emory Doke was born to Jacky and her husband Bob in Noblesville, IN. Blood tests had revealed to Jacky prior to delivery that her baby boy was infected with CMV. He had microcephaly (smaller than normal head size) and although he passed his newborn hearing test, Jacky noticed that he exhibited signs of poor hearing as a toddler. He was diagnosed with degenerative hearing loss at age 3, so his hearing has been tested regularly since then. By 6 months of age, Emory showed obvious delays in physical development, including poor muscle tone (hypotonia) and delayed motor coordination--he didn’t walk till age 5 ½. Eventually, doctors settled on an overall diagnosis of global developmental delay (GDD) for Emory. Because the infection left a calcification in Emory’s frontal lobe, he is left-side dominant, meaning he has little use of his right side. As his mom puts it, “he knows his right hand is there, but he seldom uses it.” And although he is somewhat verbal, he has his own language, which makes it difficult for others to communicate with him. Fortunately, speech therapy has helped him make great strides in that area. Jacky and her husband accepted the life-changing circumstances surrounding Emory’s entry into the world and decided to deal with challenges head on. At the time, they already had an 18-month-old daughter, Abbey. A year after Emory was born, the Dokes had another baby boy, Hunter. They also have 42

August 2022

of the Doke Family

four cats--Margo, Tikka, Verna, and Dee Dee--and 18 ducks that are part of the family at Doke Duck Farm. A reallife example of This Is Us! When I was working with Jacky to complete this story, she received a call from Emory’s school informing her that he had gotten sick and needed to be picked up. My initial thought was, “Oh, the joys of motherhood.” Motherhood comes with so many challenges coupled with even more memorable moments. Jacky shared that her biggest challenge is making sure that there is coordination between the family and the school system so that Emory is provided the proper supports for his success. She added that he made great progress in junior high and is about to start as a freshman in the life skills program at Noblesville High School. Another challenge is “intentionally educating family and friends on how the world is not always accessible for us,” Jacky said. “Until you live this life, you just don’t know how often the seemingly small things are anything but. For example, if we are invited to go out to eat, we need to make sure the space we are going to is accessible

for a wheelchair. Even though Emory is ambulatory, he uses a wheelchair for longer distances, so the family always needs to plan ahead. Are there steps? Is it a tight space? Also, what does the restroom situation look like? ADA is an important factor when going anywhere. “Unfortunately, we cannot simply jump in the car and go somewhere,” Jacky said. “That has improved over the years as Emory has become a bit more independent. But we still need to adapt more than the world adapts to us.” Jacky went on to say that her best advice to herself and to other specialneeds families is to give yourself grace in this space. Be patient and give grace. While it’s very easy to become irritated with access challenges, it’s better to adapt to the situation and then reach out to those who can assist to make it better. For example, if a space like a restaurant is not ADA compliant, let them know. Until a voice is raised, it goes undetected as an issue. But do so in a kind manner. Ears tend to listen more to calmer voices. There is a way to advocate firmly while being pleasant. It is imperative to be your child’s biggest advocate. Although Emory’s disabilities were seen very early in his life, it took nearly 11 years for Jacky to find community with other parents and children who have the CMV diagnosis. The joy in her voice when sharing about that community is heartwarming. Having community removes the feeling of isolation. You know others out there get you, and that is key when navigating a journey of any diagnosis, especially one that is so easily overlooked. Although Emory is ambulatory, he still requires lots of assistance at times, especially for his basic needs. “We welcome all support, but our family has been key in making sure we all have what we need,” Jacky said. The Doke family recently took their very first family vacation. “We took two weeks from the day-today life and adventured by truck to Florida,” Jacky said. Their first stop was Jacksonville to see the Atlantic, then off to Orlando to see Disney World. Jacky was so impressed by how exceptional Disneyworld

is in accommodating visitors with accessibility issues. That lessened the stress and worry and enabled her family to enjoy themselves that much more. From a mother’s perspective, she was able to exhale. The trip ended with a visit to Naples to see great-grandma and visit the Gulf of Mexico. “The trip was amazing,” Jacky said. “We had our expected bumps, but it went as smoothly as possible, and we are looking forward to doing it again! Life is precious and can appear to be so short. Traveling and exposing our children to the world around us will happen again. We just must do it and not consume ourselves with the worry of what could be and simply take the moment to embrace what is.” As all the Doke children enter their teen years, life comes with new challenges. Like his siblings, Emory is growing, and the family must learn to adapt to his larger stature. Emory requires a lot of support--he needs assistance with eating, toileting, and dressing, among other things--and that’s harder as an individual becomes larger and heavier. He also started having seizures about four years ago, adding an extra layer of complication to his condition. But it was obvious early in the conversation that this family doesn’t sit around waiting to figure it out; they jump in, all hands on deck, and they get it done. Together, Jacky and Bob have embraced Emory’s needs and work to make life and all its challenges just a thing they do, not a thing that does them. “He’s smart and very aware,” Jacky said of her son. “He’s on par with other kids cognitively, but because of his speech difficulties, he can’t always express his thoughts. He loves to leaf through photo albums and books with lots of pictures.” Best of all, Emory has a great attitude given everything he has to deal with, something that brings his mom obvious joy. When asked how her family finds resiliency, Jacky said, “What are you supposed to do? We just dive in! We go with the flow and we don’t always make big plans. Our life is filled with big obstacles at times, so we embrace all that comes with it. Simply put, ‘this is us.’” To learn more about CMV, please visit www.nationalcmv.org.

Special Needs Living - Indianapolis & Surrounding Areas

WHAT’S THE DIFFERENCE BETWEEN

AND A

EDUCATIONAL ELIGIBILITY

MEDICAL DIAGNOSIS

By Lani M. Jones, PsyD, HSPP

As a new school year is upon us, parents are often scrambling to ensure that appropriate school accommodations and IEPs are in place and ready to go in order to ensure their student’s academic success. However, there’s often a flurry of confusion and frustration regarding “diagnoses” made on an IEP and how those determinations differ from medical diagnoses made by professionals outside of the school setting. Navigating through all of the terminology and acronyms, understanding laws, and figuring out how to ask the right questions to get the needed answers can quickly become overwhelming. Families are often surprised to learn that even though their student has an IEP, that educational documentation does not automatically translate to a medical diagnosis or access to services in medical and community settings. If a student is receiving adequate supports from the school, parents may wonder if a medical diagnosis is even necessary. In addition, a medical diagnosis does not automatically mean that a student will qualify for school accommodations and services. If needed, both a medical and a school evaluation can be pursued simultaneously. What’s the difference between educational eligibility and a medical diagnosis? Educational eligibility is determined by the Individuals with Disabilities Education Act (IDEA) and is typically only recognized within the school system. The educational system has

August 2022

established criteria for determining if a student is eligible to receive school-based accommodations and/or therapies through an IEP or 504 plan. There are 13 different IDEA eligibility categories to consider in order to determine eligibility for an IEP. A 504 plan, in contrast, is broader and has less stringent requirements than an IEP. The school evaluation determines if the disability or area of difficulty is negatively impacting academic performance in the general education curriculum. Based on the student’s presenting needs, the school evaluation is often completed by a school psychologist, speech-language pathologist, occupational or physical therapists, and other therapy providers and includes input from teachers, parents, school personnel, and any other significant people in the student’s life. The school may review a medical diagnosis or outside evaluation for additional input in order to better understand the student’s needs. A Case Conference will be held with the parents, teachers, and professionals to determine what the needs of the student are and to discuss the results of the evaluation. Parents are encouraged to be active participants in these meetings, as they are often the student’s best advocates. The team will also consider what impact the area of difficulty has on the student’s academic performance. Based on those results, the school will determine if the student is eligible for services and what those services will look like (e.g., classroom accommodations, alternative classroom environment, ongoing therapies). Educational eligibility and a medical diagnosis don’t always

align. For example, a student with a medical diagnosis of attention-deficit/ hyperactivity disorder (ADHD) may meet educational eligibility under the category of Other Health Impaired (OHI). Another example is that a student with a medical diagnosis of generalized anxiety disorder may meet educational eligibility under the category of Emotional Disability (ED). A medical diagnosis does not necessarily guarantee a student will meet educational criteria for additional accommodations. What does a psychology evaluation look like? In Indiana, an evaluation is typically completed by a doctoral-level psychologist. An evaluation is often completed across three office visits: intake, testing, and feedback. The evaluator will meet with the individual and caregivers to complete an initial diagnostic interview to gather history and further information about the presenting concerns. The evaluator will determine if an evaluation, including testing, is needed in order to rule out or differentiate any possible diagnoses. At the testing appointment, the evaluator will administer any needed psychological tests in order to gain a better understanding of the individual’s strengths and weaknesses. The assessments may include paper-and-pencil tasks, play-based activities, and/or parent- or selfreports assessing multiple areas of development, such as cognitive, adaptive, emotional, and/or social communication skills. Possible diagnoses may include autism spectrum disorder, intellectual disability, learning disorders, ADHD, or mood disorders. At the feedback session, the evaluator will discuss

all of the testing results, diagnoses, recommendations, and next steps; answer any questions from the family; and will provide a copy of the evaluation report.

completing psychological evaluations related to neurodevelopmental disabilities. She also provides ongoing treatment and therapy to children, adolescents, and adults.

More information can be found at providencebehavioralgroup.com.

How might an outside evaluation benefit my child? Even if your child is being fully supported by an IEP, accommodations, and therapy supports within the educational setting, a medical diagnosis from a qualified healthcare professional (e.g., psychologist, physician, or psychiatrist) outside of the school setting can provide access to a variety of additional services in the medical and community environments, such as additional therapies or ongoing financial supports. Graduating from or aging out of the school system is often a natural time for an outside evaluation. When an individual transitions to life after high school, be it in a supported living environment, vocational training, or postsecondary institution, further documentation to provide access to resources may be needed. An evaluation can aid in documenting any ongoing disabilities and may provide more information about current needs in a new environment. In addition, most colleges and universities will not recognize any results from an IEP and will require a medical diagnosis and documentation in order to provide accommodations. If you’re wondering if a psychological evaluation may be right for your child, discuss your concerns with their primary care physician. Then, if needed, the physician can make the appropriate referral to a provider(s) to best meet your child’s needs. Dr. Lani Jones is a licensed clinical psychologist and First Steps provider. She has extensive expertise in

Special Needs Living - Indianapolis & Surrounding Areas

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August 2022

Special Needs Living - Indianapolis & Surrounding Areas

Building Brigh ter Futures Since 1997 Th e Applied Beh av ior Ce n te r fo r Au ti s m is In dia n a’s lo n ges t run n in g ABA th e ra py prov id e r. F ou n de d in 1997 by th e m o th er o f a ch ild wi th au tism, AB C h as si n ce open e d 12 locati o n s th rou g h o u t th e sta te an d de v e lo pe d a n in- h o u s e res e a rc h d e pa r t m en t . W e offe r a wider v a rie ty o f se r v i ces fo r ch il dre n an d te e n s with autism, including: Ea rly Child h ood I n te r v en tion

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Special Needs Living August 2022 Digital Issue

Articles inside

WHAT’S THE DIFFERENCE BETWEEN EDUCATIONAL ELIGIBILITY AND A MEDICAL DIAGNOSIS

The Resilience of the Doke Family

Sans Gluten

Non-Profit Spotlight: Paladin Care

Young Achievers Spotlight: Meet James Bennett

Indoor Sensory Spaces

Pastor's Corner: Calm In the Storm

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Broken System-Is The Medicaid Waiver Failing Individuals in Indiana Who Need It Most?