Study Summary
Context & Impact: Why conduct this study?
Compassionatecareandcontinuousqualityimprovementarecrucialforlong-termcare(LTC) residents'well-being.Measuringthemiskeytoenhancingcarequality.ManyLTCresidents struggletocommunicateduetocognitiveimpairments(e.g.,dementia,braininjury),sowerely ontheircarepartnersforinput.Currently,novalidatedtoolsexisttomeasurecompassionfrom thecarepartner'sperspective;developingsuchatoolwillprovidevaluableinsights,leadingto improvedresidenthealthoutcomesandcarepractices.
Purpose: What is the goal of this study?
Becausetherearenovalidatedtoolsavailabletomeasurecompassionfromtheperspectiveof thesecarepartners,thepurposeofourstudyistodevelopandvalidateanewtool,theSinclair CompassionQuestionnaireforCarePartners(SCQ-CP).
Participants: Who is eligible to participate in this study?
Phase1EligibilityCriteria:CarePartners
VisitsaresidentataSJCGLTCfacility(i.e.,BethammiNursingHome andHogarthRiverviewManor(HRM))atleastweekly Canspeak,read,andwriteinEnglish 18yearsofageorolder
Phase2EligibilityCriteria:Residents&CarePartnerDyad
CarepartnervisitstheresidentataSJCGLTCfacilityatleastweekly
TheresidenthasaCognitivePerformanceScalescorelessthanor equalto1
Boththecarepartnerandresidentcanspeak,readandwriteinEnglish Carepartneris18yearsofageorolder
Contact: Who is the main contact for this study?