Exceptional Kids.May.June 2025

Page 1


¡Viva Fiesta!

The smell of flowers is in the air and the Battle of Flowers Parade is on our mind. We want our patients to experience the sights, sounds and smells of Fiesta. When mobility is hard, we use the small, light Vivo 45 to make it easier to for our patients to celebrate. Contact us today to see how we can create a unique solution for your family.

We provide ventilator-based care in the home for pediatric patients, as well as nutritional supplies and support.

The Smile That Spoke Volumes: Zachary Wiederhold’s Legacy of Love and Strength

Over the past decade, we've shared countless stories of resilience—of children and adults with special needs defying the odds, touching hearts, and teaching us what it truly means to live with purpose. One such story is that of Zachary Wiederhold, a young man who inspired everyone he met. Born with semi-lobar holoprosencephaly (HPE)—a rare brain malformation where survival beyond infancy is uncertain—Zachary lived an incredible 30 years, full of love, laughter, and unwavering strength.

When Zachary was just three months old, his parents, Erich and Joan, were given devastating news. Doctors advised institutional care, saying Zachary would never thrive at home. But Erich and Joan chose a different path— one of hope, commitment, and deep love. They refused to let a diagnosis define their son’s life.

To keep Zachary at home, Erich made the life-changing decision to leave the military because it would be too difficult to move every three years and pursue nursing. As a parent of a child with severe disabilities, he spent years learning about community resources and the challenges families face. With both professional and personal insight, Erich is uniquely equipped to help families transition to in-home

care. Today, he continues supporting patients and families as Branch Director at Entrusted Pediatric Home Care.

At home, Zachary was surrounded by love. His younger sisters became his joyful companions and “mini nurses,” always finding ways to make him smile. He made an impact with his sisters; Isabella is an RN working with special needs children and Liliana teaches in special education. Despite his challenges, Zachary thrived in his own way—attending school, graduating, walking the stage with his sister Miranda in 2014, and bringing joy into every room he entered. His smile was more than a facial expression; it was a connection to the hearts of others. Though he never spoke a word, he communicated in the most powerful language of all—Love.

Zachary found delight in everyday life. He adored the “Happy Birthday” song and lit up during family celebrations. He loved his nieces and nephews, and being included in the rhythm of family life. To know him was to witness pure, unfiltered joy. To care for him was to learn patience, compassion, and what it means to love without limits.

Zachary's journey reminds us that those with complex medical needs are not defined by their conditions; they are teachers, healers, and quiet warriors. His life was a gift, and his legacy is a beacon of hope for families told “there is no hope.”

Zachary Thomas Wiederhold May 13, 1994 – May 29, 2024

To know any child with a disability is to be changed forever. Zachary changed us all.

Publisher: Exceptional Kids, LLC

Owner &

Managing Editor: Kameron Chicoine

Graphic & Art Design:

Valor Design, Inc.

Website & Logo Design: Red Rattler Creative

Ranch Snack Mix

Prep/Total Time: 15 Min.

Yield: 32 Servings (6 Quarts)

Ingredients

1 package (12 ounces) miniature pretzels

16 cups Bugles (about 12 ounces)

1 can (10 ounces) salted cashews

1 package (6 ounces) Goldfish cheddar crackers

1 envelope ranch salad dressing mix

3/4 cup canola oil

Directions

In 2 large bowls, combine the pretzels, Bugles, cashews and crackers. Sprinkle with dressing mix; toss gently to combine. Drizzle with oil; toss until well coated. Store in airtight containers.

Nutrition Facts

3/4 cup: 185 calories, 11g fat (2g saturated fat), 2mg cholesterol, 357mg sodium, 19g carbohydrate (1g sugars, 1g fiber), 4g protein.

This is a wonderful fast-to-fix munchie. The recipe makes tons and doesn't involve any cooking. It's a cinch to package in individual snack bags, it keeps its crunch and it's a savory alternative to the cakes and pies usually offered at bake sales. Linda Murphy, Pulaski, Wisconsin

What do you do if your child has trouble with food or meals?

Making Mealtimes Fun: Helping Kids with Eating Challenges

If your child has trouble with eating, you’re not alone—and you’re definitely not failing. Many children with disabilities or special health needs face food struggles. Whether it's eating too little, too much, or not being able to eat at all, feeding issues can feel overwhelming for parents. Mealtimes can quickly become stressful. It’s exhausting when every bite becomes a battle. But remember—your relationship with your child matters more than the number of chicken nuggets they eat. Helping them enjoy food is possible, one creative step at a time.

Why Eating Can Be Tricky

Feeding challenges don’t look the same for every child. Some kids refuse food altogether or eat only certain colors, textures, or brands. Others might struggle with weight—either gaining too much or too little. A few may need feeding tubes or medical support. And sometimes, the cause isn’t clear at all.

Eating issues can be tied to:

• Sensory sensitivities

• Low muscle tone

• Reflux or motor coordination issues

• Medication side effects

• Anxiety or body image struggles

Even if you don’t know why it’s happening, if you’re concerned—or if your doctor is—it’s okay to ask for help.

Team Up with the Right Experts

There’s no one-size-fits-all fix, but building a team makes a big difference. Here’s who can help:

• Doctors and pediatricians – Start here for a medical checkup and referrals.

• Nutritionists – Review your child’s diet and suggest supplements or alternatives.

• Speech or occupational therapists – Help with chewing, swallowing, and texture sensitivities.

• Your child’s care team – Keep track of everything in a care notebook and look for a “medical home” provider to coordinate support.

Creative Solutions from Real Families

You don’t have to do this alone. Here are fun, flexible strategies that other parents swear by:

q Sneak it in. Hide spinach in smoothies or tuck veggies under melty cheese. Get creative with food combos!

q Make it fun. Rename foods (“superhero bites,” “power pizza”) or invent silly food games.

q Try new textures. Some kids love crunchy, others prefer soft. Explore warm, cold, smooth, or even frozen options.

q Think beyond the plate. A smoothie, milkshake, or fortified drink can be a full meal. Try PediaSure or protein powder if recommended.

q Show, don’t tell. Use measuring cups to show portion sizes in a fun way—make it a science experiment!

q Ditch the clock. Forget traditional mealtimes. Let your child eat when they feel ready.

q Let them lead. Give choices and avoid pressure. Let your child have a say—even if it’s just which plate to use.

Smart Tips for Saving Money

Feeding challenges can be costly—but there are ways to save:

• Buy in bulk—stock up on go-to favorites when they’re on sale.

• Use coupons and discount programs.

• If eligible, apply for WIC for formula and supplements.

• G-tube feeding? You can make nutrient-rich blends at home from everyday grocery items.

You’ve Got This

Supporting a child with feeding challenges takes patience, creativity, and a whole lot of deep breaths. Some days will feel like a win, others might not. But progress isn’t a straight line—and you're doing better than you think.

Your child’s eating issues aren’t your fault. Keep trying, keep adapting, and keep celebrating the little victories—because one day, they add up.

RESOURCE DIRECTORY

For our complete list of resources go online to www.ExceptionalKidsTexas.com

ABA THERAPY

◆Autism Treatment Center

210-590-2107

15911 Nacogdoches Rd Building 2 www.atcoftexas.org

Mindcolor Autism

833-646-3222

8507 Culebra Rd Suite 101 info@mindcolorautism www.mindcolorautism.com

Shelby May Behavioral Consulting 210-239-7181 shelbynunn@maybehavior.com www.maybehavior.com

ACUTE/SKILLED CARE

LifeSpan Home Health Pg 2

877-434-3153

6243 IH-10 W Suite 375 www.lifespantx.com

ADAPTIVE SPORTS (COMPETITIVE & RECREATIONAL)

◆Kinetic Kids

210-748-5860

11931 Starcrest Dr info@kinetickidstx.org www.kinetickidstx.org

BEHAVIORAL HEALTH

◆Pathways Youth & Family Services 210-733-7117

1919 NW Loop 410 Suite 201 www.pathway.org

CHILDREN'S MENTAL HEALTH SERVICE

Clarity Child Guidance Center 210-616-0300

8535 Tom Slick info@claritycgc.org www.claritycgc.org

COUNSELING PROVIDERS

Catholic Charities 210-377-1133

San Fernando Community Center 231 W Commerce

DENTAL CARE

Dentistry for Little Folks

Nelly Gonzales, DDS 210-679-4747

9646 W Loop 1604 N

Dentistry for Little Folks

Jennifer Ochoa, DDS 210-679-4747

9646 W Loop 1604 N

RESOURCE DIRECTORY

For our complete list of resources go online to www.ExceptionalKidsTexas.com uDonateu

DURABLE MEDICAL EQUIPMENT & SUPPLIES

Wave Healthcare Pg 3

866-935-9283

121 Interpark Blvd #300 www.wavehealthcare.com

EDUCATION ADVOCACY RESOURCES

101 ADVOCACY, LLC

210-722-9974

www.101advocacy.com

EDUCATIONAL SERVICES

A.I.M. Educate

210-838-5351

10127 Morocco St #202 privateclinic@aimeducate.com aimeducate.com

Texas School, Community & Public Policy Liaison TBI SOS 4 Kids Project Center on Brain Injury Research and Training (CBIRT)

University of Oregon cmagrane@uoregon.edu

FINANCIAL SERVICES

Catholic Charities

210-293-1009

202 W. French Place

www.ccaosa.org

GENERAL COMMUNITY RESOURCES

www.unitedwaysatx.org

2-1-1 Texas is a free, anonymous social service hotline available 24 hours a day,

7 days a week, 365 days a year.

City of San Antonio - Utility Assistance

210-207-7830

Hill Country MHDD Centers

358 Landa Street, Suite 300, New Braunfels 888-315-3277

http://www.hillcountry.org

Kerr County MH Center 955 Water Street, Kerrville 888-445-5232 http://www.hillcountry.org

RESOURCE DIRECTORY

For our complete list of resources go online to www.ExceptionalKidsTexas.com uDonateu

GENERAL

COMMUNITY RESOURCES

Project Warm - Bexar County Dept of Community Assistance 210-335-3666

Salvation Army 210-226-2291

226 Nolan St

San Antonio Food Bank 210-337-3663

5200 Old Hwy 90 West

Society of St. Vincent de Paul 210-225-7837

WIC Program 210-207-4906

MEDICAID WAIVER PROGRAMS

CDS in Texas Pg 2 210-798-3779 Toll Free 866-675-7331 www.cdstexas.com

CLASS - Medically Dependent Children's Program 877-438-5658

DBMD-Deaf/Blind Multiple Disabilities Program 877-438-5658

Disability Services of the Southwest 210-798-0123

6243 IH-10 West Suite 114 www.dsswtx.org

HCS - Home & Community-Based Services Program 210-832-5020

MDCP - Medically Dependent Children's Program 877-438-5658

LifeSpan Home Health Pg 2 877-434-3153 6243 IH-10 W Suite 375 www.lifespantx.com

Texas Home Living Waiver 210-832-5020

NATIONAL ORGANIZATIONS

American Red Cross 210-224-5151

Cerebral Palsy Foundation ucp.org 210-520-1686

Muscular Dystrophy Association (MDA) 800-572-1717

National Alliance for Mental Illness (NAMI), SA 210-734-3349

National Down Syndrome Society 800-221-4602 www.ndss.org

RESOURCE DIRECTORY

For our complete list of resources go online to www.ExceptionalKidsTexas.com uDonateu

NATIONAL ORGANIZATIONS

Scleroderma Foundation www.Sclerodema.org

Spinal Bifida Association Texas Chapter 972-238-8755

Williams Syndrome 800-806-1871 www.Williams-syndrome.org

OCCUPATIONAL THERAPY

uAutism Treatment Center

210-590-2107

15911 Nacogdoches Rd, Building 2 www.atcoftexas.org

CHCS-ECI (Early Childhood Intervention)

Specializing in Infants & Toddlers, Birth to 36 Months Easy to refer, no medical referral needed Call 210-261-3300 or visit www.chcs-eci.org Medicaid, CHIP, Private, all insurances accepted Sliding scale available

San Rafael Healthcare Inc Pg 15 210-255-1466

4203 Gardendale St #C105 www.sanrafaelhealthcare.com

PEDIATRIC

HOME HEALTH & PRIVATE DUTY NURSING

Entrusted Pediatric Home Care Pg 16 512-532-4800

2921 Steck Ave A-120, Austin www.entrustedphc.com

Entrusted Pediatric Home Care Pg 16 210-447-1650

4502 Centerview Dr, Suite 233, San Antonio www.entrustedphc.com

Entrusted Pediatric Home Care

16 254-935-0450 2027 S 61st Street, Suite 121, Temple www.entrustedphc.com

Entrusted Pediatric Home Care Pg 16 469-827-7500

275 W Campbell Rd, Richardson www.entrustedphc.com

Entrusted Pediatric Home Care Pg 16 713-829-7149

24624 Interstate 45 N Suite 241, Spring www.entrustedphc.com

Entrusted Pediatric Home Care

16 915-343-7744

1790 Lee Trevino Dr Ste 202, El Paso www.entrustedphc.com

San Rafael Healthcare Inc

15 210-255-1466

4203 Gardendale St #C105 www.sanrafaelhealthcare.com

PHYSICAL THERAPY

CHCS-ECI (Early Childhood Intervention)

Specializing in Infants & Toddlers, Birth to 36 Months

Easy to refer, no medical referral needed Call 210-261-3300 or visit www.chcs-eci.org

Medicaid, CHIP, Private, all insurances accepted Sliding scale available

RESOURCE DIRECTORY

For our complete list of resources go online to www.ExceptionalKidsTexas.com uDonateu

PHYSICAL THERAPY

San Rafael Healthcare Inc Pg 15

210-255-1466

4203 Gardendale St #C105 www.sanrafaelhealthcare.com

San Antonio Parks and Recreation Department

210-207-3018

PRESCRIBED PEDIATRIC EXTENDED CAR CENTER (PPECC)

Health Care for Kids

210-951-4840 16019 Nacogdoches Rd Suite 119 www.healthcareforkids.com

SPECIAL

NEEDS ADULTS

uMarbridge Foundation 512-282-1144

2310 Bliss Spillar Road, Manchaca TX info@marbridge.org Marbridge.org

SPEECH THERAPY

CHCS-ECI (Early Childhood Intervention)

Specializing in Infants & Toddlers, Birth to 36 Months Easy to refer, no medical referral needed Call 210-261-3300 or visit www.chcs-eci.org

Medicaid, CHIP, Private, all insurances accepted Sliding scale available

San Rafael Healthcare Inc Pg 15 210-255-1466

4203 Gardendale St #C105 www.sanrafaelhealthcare.com

STATE ORGANIZATIONS

Customer Service Line (Ombudsman) 877-787-8999

www.hhsc.state.tx.us

Department of Assistive & Rehabilitative Services NOW Texas Work Force www.twc.state.tx.us

North Field Office 210-561-8600 12000 Network Blvd #210

West Field Office 210-522-8010 5309 Wurzbach, Suite 102

Northeast Field Office 210-590-5740 10303 Nacogdoches

South Field Office 210-927-8300 1011 Ada St

Fresh Strawberry Breakfast Tacos

TOTAL TIME: Prep/Total Time: 30 min.

YIELD: 6 servings.

Ingredients

• 2 tablespoons butter

• 6 flour tortillas (6 inches)

• 1/3 cup cream cheese, softened

• 1 tablespoon honey

• 1/2 teaspoon ground cinnamon

• 1/3 cup vanilla yogurt

• 1-3/4 cups quartered fresh strawberries

Directions

1. In a large skillet, heat 1 teaspoon butter over medium-low heat. Add 1 tortilla; cook each side until light golden, 1-2 minutes. Transfer to wire rack. Repeat with remaining butter and tortillas.

2. Beat together cream cheese, honey and cinnamon; slowly mix in yogurt until blended. Spread tortillas with cream cheese mixture; top with strawberries.

Nutrition Facts

1 taco: 225 calories, 12g fat (6g saturated fat), 24mg cholesterol, 280mg sodium, 25g carbohydrate (8g sugars, 2g fiber), 4g protein.

When our son was growing up, this was one of his favorite breakfasts. I've used low-fat ingredients in the past with good results, too.—Joan Hallford, North Richland Hills, Texas

San Rafael: Delivering Hope for San Antonio

For parents of children with complex medical needs, every day can feel like an uphill battle. San Rafael Healthcare, San Antonio’s trusted home health provider, is here to ease that journey. Specializing in high-acuity pediatric care, San Rafael brings expert nursing services and compassionate support directly into the homes of families, where it’s needed most.

One father shared his heartfelt experience: “When we rst started with San Rafael Healthcare, we were overwhelmed by my daughter’s medical challenges. e nurses quickly became part of our family, providing not just care but reassurance and hope. ey’ve made an impossible situation manageable.”

San Rafael understands the unique challenges of high-acuity care. eir specialized team works closely with families to create customized care plans tailored to each child’s needs. From ventilator management to feeding tube care, their skilled nurses deliver life-sustaining treatments with unmatched dedication and expertise.

Have you ever wished for a partner to help carry the weight of your child’s medical needs? at’s exactly what San Rafael provides. eir team doesn’t just o er care – they o er connection, understanding, and a steadfast commitment to improving the quality of life for their patients and their families.

Every child’s story is di erent, but the mission remains the same: to ensure children with complex medical needs receive the highest standard of care in the comfort and familiarity of their own homes. For parents, this means peace of mind knowing their child is in capable hands, surrounded by love and family.

San Rafael Healthcare isn’t just a home health provider – it’s a source of strength for families navigating life’s toughest challenges. With their expert support, parents can focus less on the stress of medical logistics and more on cherishing the moments that matter most.

Let San Rafael Healthcare be your partner in care. Visit their website today to learn how they can help your family on this journey.

Providing Private Duty Nursing Services for infants, children, and adults across Central Texas.

Entrusted Pediatric Home Care is the leading provider of pediatric nursing services in Texas. Our clinical team works with physicians and case managers to ensure children transition safely home from the hospital.

Whether it is 24 hours a day, 7 days a week, or a few &hour shifts per week, we have you covered.

Our comprehensive approach to care includes coordinating with your team of medical professionals to implement the best possible outcomes for your child.

"You guys make an amazing team and are changing families' lives for the good! We could not be more thankful for all the e ort you put in to making the transition to Entrusted go so smoothly. Not only that, but y'all hit the ball WAY out of the park finding us excellent nursing sta . Thank you for all of the many hours in the o ce and on call that it takes to make our lives better. We couldn't be happier to call Entrusted our family."

Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.