Maintaining Patient Trust

We always act in the best interest of patients affected by Fibrotic conditions.

PharmaNest interacts indirectly (via the Sponsors that we serve) with patients for the purposes of conducting clinical research, supporting patient advocacy groups and improving disease awareness. The intent of these activities is to enhance patient education, access to medicines and care. As such, and even indirectly, we are committed to always acting with transparency and responsibility in all of our patient interactions.

All direct and indirect activities with patients, including research, must adhere to the Code and the Company’s policies and applicable procedures, which reflect applicable laws and industry codes focusing on patient interactions.

Communications with patients

We are committed to ensuring our communications with patients focus on providing the information they need to make informed, personal medical decisions. Such communications must be tailored for patient audiences and not healthcare professionals.

Privacy and patient information

We respect the privacy of every patient. During our business activities, we may come into contact with or obtain patient personal information. We comply with patient privacy laws, which among other things, may require that only pseudonymized digital images are transferred to us, and that Sponsors and collaborators obtain patient consent before patient information may be used for business activities.

Research

We strive to ensure our research activities are conducted to high standards, especially those involving interactions with research subjects via our partnership and services delivered to Sponsors and / or Academic research Organizations. All research subjects must be provided with complete and full disclosure of the purpose and nature of the activity in which they seek to participate.

We must never deceive, mislead, or inappropriately induce individuals to participate in our research activities.

Patient organizations

We interact with patient organizations to improve patient care by advancing education and awareness. All interactions with patient organizations should be consistent with the mission of the patient organization

While, in some instances, we may provide support to patient organizations in a manner consistent with the Code and the Company’s policies and applicable procedures, any such support should be properly documented and structured to maintain the independence of the organizations