World Parkinson Congress 2026
by Marlene Kendrick
I was diagnosed in 2018 with PD and like most of you, had symptoms for a couple of years before that. My name is Marlene and I would like to have the chance to tell you about my experience at the 6th World Parkinson Congress in Barcelona.
It was my first time networking with researchers, medical experts, specialists, care advocates, peers and care partners. Each of the nearly 4000 attendees were working toward the same goal. Slowing progression, treating and maybe even curing Parkinson's, Our disease. I listened in on workshops that were scientific, I attended round tables to talk with the medical personnel from around the world and I partook in some very much needed exercise programs with other PWP. It is the only conference that puts everyone in the same room. I was able to ask questions of researchers and meet with so many people from around the world.
The most exciting thing personally was the change in my partner. The WPC was his first experience "seeing" others with Parkinson's and talking with them. He attended a workshop for only caregivers. It was after that one workshop that now he
realizes how important being a part of my healthcare team is. He pays attention to my symptoms and goes with me to appointments. We now meet the challenges of the future together.
As a WPC Ambassador I love telling this story and others. I hope that I can inspire you to attend The 7th WPC in Phoenix May 24-27. 2026. I hope that others hearing my story can attend and come away feeling the excitement I did.
If you wish to attend or learn more about the World Parkinson Congress go to WPC2026.ORG. If you have questions email me at marlenepk. mk@gmail.com Registration is now open at WPC2026.org/page/registration. "Parky" is the stuffed raccoon and the official mascot of the WPC!
See you in Phoenix!
SAVE THE DATE
Wednesday December 3rd at 12PM
The NW Parkinson’s Organizations are coming together to provide a virtual event "World Parkinson Congress Overview: A NW Collaboration”
Registration pro.eventbrite.com
COULD IT BE. . . THE BIG D?
Written by Kathy Teyler Jarrett
In honor of National Family Caregiver Month in November, this heartfelt article offers a personal experience from a dedicated caregiver caring for a loved one with Lewy Body Dementia. This article reflects the struggles and emotions, showing the unpredictable nature of the disease. Kathy shines a light on the vital role family caregivers play and reminds that while caregiving is incredibly hard, no one has to face it alone and there is support.
My husband Ben stood at the back door, pistol in one hand, phone in the other. He was anxiously telling the 911 operator about the seven robbers lurking in the house. “There's a leader—he's sitting in the living room telling them what stuff they should take! Yes, I’ve got a pistol on them! Tell the police to hurry!” he said shakily. There were no robbers. We were in big trouble anyway. I soon learned that a disease, a dreadful dementia, was taking over our lives, attacking Ben's brain and body and turning him into someone I barely recognized. Many of us may be facing such experiences—a spouse, parent, sibling, friend showing scary signs of a changing brain. Millions of people get a dementia diagnosis annually. Lewy Body Dementia, my husband’s disease, is far less understood. It can be extremely tough to get diagnosed—Robin Williams never did, though they tried for 18 months. Then when you do know, you are confronted with terrible questions: How do I cope? Can I keep my loved one home? What products and equipment do I need for the future? How are we going to pay for care?
Dementia caregiving is the hardest job nobody ever applies for—and there’s no pre-job training. It’s stressful, exasperating, exhausting. I cried more during caregiving than at any other time of my life. But I learned to cope. What DO you
do when your husband sees robbers who aren’t there, feels mice nibbling his toes in bed, or snakes snatching at his skin? You let the police search, you put out mouse traps, you get the doctor to check his hand and say it’s not blackening so it’s ok. How do you cope when he says you aren’t his wife, that you’re seeing someone else and he wants you gone? You get right in his line of sight and say “Hi!” and hope he recognizes you this time. You reach out, you find support and guidance, and you survive. Did I learn positive lessons from this stressful experience? Yes, things that seem trite but are still true, for more than just caregivers. What’s the hardest word to say? “Help.” But you must reach out, you cannot make it alone. Family, friends, social agencies, everything and everyone. Ask. Independence may seem brave, but it’s very lonely. Because: You cannot fill a cup from an empty vessel. You need time off to replenish and refresh or you burn out. Believe it. Me Time—it’s not selfish, it’s necessary for your sanity. Warning: You can be clever and creative and try to anticipate every new challenge, but sometimes clever will backfire and bite you in the butt—such as the time Ben had a delusion about needing to deposit a “check” that was really an old bill. For weeks, he insisted we needed to take it to the bank. Luckily, the clerk knew our situation and said she could handwrite a “receipt” to satisfy him. But when Ben tried to traverse the parking lot to check up on me, he fell and cracked his head open. Luckily, no permanent damage, but we had a scary ER trip. Yeah, try, try again. Not every solution turns out to be a good one.
Finally, there’s a saying I took to heart: Hot water softens a carrot but hardens an egg. I chose to be an egg, hardened but not hard. Now, to help others, I run a local caregiver support group that lets
me give back. And I’ve written a book for those who care for people with LBD or Parkinson’s Disease Dementia. "You Are Not Alone: Dealing with Lewy Body Dementia" has been a heartfelt project for me that I hope can help people desperate for what I learned in my own on-the-job training. Caregiving, the toughest job you’ll ever have. But there is hope, there is help.
Your spouse or caregiver could join the local support group for either Lewy body dementia or Parkinson’s disease Dementia caregivers - details on pg 7.
Other related book recommendations:
• Living with Lewy’s: Empowering Today’s Dementia Caregiver—Amy J. Throop & others
• A Caregiver’s Guide to Lewy Body Dementia—Helen Buell Whitworth& James Whitworth
• The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life—Nancy L. Mace
• The Complete Eldercare Planner—Joy Loverde
• Loving Someone Who Has Dementia —Pauline Boss
• Dementia with Lewy Bodies and Parkinson’s Disease Dementia—Dr. J. Eric Ahlskog
What is the Give!Guide?
Give!Guide is Willamette Week’s annual effort to raise funds for—and draw attention to—the good works of Portland-area nonprofits. Give!Guide has raised more than $64 million for hundreds of local nonprofits since its inception in 2004. As always, this campaign begins on November 1 and closes at midnight on December 31
In 2024, Give!Guide raised $8,870,380 for 250 local nonprofits (and the Oregon Cultural Trust) from 16,336 donors. The grassroots campaign is supported by numerous local businesses, provides fun and exciting incentives to donors, and emphasizes giving by Portlanders under the age of 36 to build a culture of citizen engagement.
Everyone wins! Give a donation to PRO and other nonprofits of $10 or more and receive a coupon for a freebie from a local business (such as tacos, baked goods, or chocolates)--these goodies arrive in your email inbox immediately following your gift, along with your donation receipt.
There are also multiple exciting “Big Give Days” throughout the season, when donors’ gifts also automatically enter them to win fabulous prizes such as getaways, shopping sprees, and amazing products, thanks to the generosity of Portland businesses.
PRO intends to offer incentives to a small number of donors who give early in the season—stay tuned for more details!
“The Hidden Parkinson’s Symptom That Could Be More Dangerous Than Tremors”
Written by Jean Donovan
Most people think of Parkinson’s disease as shaky hands and stiff movements. But there’s another silent, overlooked threat affecting nearly half of patients: neurogenic orthostatic hypotension (nOH).
nOH is a sudden and sustained drop in blood pressure when standing up, caused by nerve damage in Parkinson’s. At first, it might sound harmless—just a little dizziness. But the truth is alarming: this condition can trigger dangerous fainting spells, serious falls, head injuries, and even hospitalizations. Many patients and even doctors chalk it up to “just getting older.”
That oversight comes at a cost. When the brain doesn’t get enough blood flow, it’s not just balance that suffers. Patients may experience brain fog, worsening memory, blurred vision, and crushing fatigue. Over time, nOH and its partner condition, supine hypertension (high blood pressure when lying down), have been linked to increased risks of dementia, heart attacks, strokes, kidney damage, and even premature death.
The good news? These cardiovascular conditions are both detectable and treatable. However, since symptoms are often absent or misleading, patients can and should learn
how to take their own orthostatic vital signs at home—especially in the morning, after meals, or while lying in bed— when problems are most likely to show.
With awareness, home monitoring, and the right treatment plan, patients can protect not just their safety, but also their long-term health and independence.
Jean has played a vital role in bringing visibility to nOH. By partnering with PRO and sharing her personal journey, she has helped educate 100s individuals and brought over 4,500 views (and counting) of this education series which continues to make an impact. Jean remains committed to raising awareness, and we’re proud to support her dedication. Stay tuned for more educational content as we continue shining a light on nOH together
Calendar of Events
Some of the details on these (and other programs) are still being finalized as we go to print. Please check our website (parkinsonsresources.org) or the event registration site (pro.eventbrite.com) for the latest information! It is critical that you register, so that we may plan materials and send links in time for virtual programs.
Want to stay current with updates and new program additions that occur between the quarterly print publication? Sign up for our emails! Call PRO if you aren’t receiving email from us at 800426-6806.
WELLNESS
Communication Skills Group
Fridays at 11 AM
New session starts Oct 10 No class Nov 28 -------- VIRTUAL Parkinson’s can take a toll on voice strength and clarity – research shows that people with Parkinson’s speak about 60% less than similarly-aged people without Parkinson’s! Join us to see if practice might help you avoid this situation.
This virtual series is led by Julia Robinson, Speech-Language Pathologist from Legacy Health. Just as you exercise your body to maintain movement, participating in voice exercise will help to maintain your voice clarity, volume and breathing! This class is great whether you have participated in speech therapy or not; practicing within a group setting allows for some fun social connection as well!.
Thank you to Legacy Health for your support and partnership with this program.
Sing-Along
Thursday Oct 30, Nov 20, and special Holiday Sing-Along Dec 18 at 2 pm
PRO Office Beaverton and Online -------- HYBRID
A fun and supportive hybrid in-person and "virtual" song circle to practice projection, voice control and coordination through the joy of singing! Each session will start with a practice vocal warm-up and then sing your favorite songs with guitar accompaniment.
Movement Classes
Tuesdays, Oct 7 - Dec 30, at 11:30 am - 12:30 pm
Fridays, Oct 3 - Dec 19, at 1:00 - 2:00 pm -------- VIRTUAL
This exercise program is designed to increase flexibility, strength, balance, and coordination, as well as improve communication, voice power and speech clarity. Drawing from yoga, tai chi, and dancing this seated exercise program focuses on doing movements with ease, moving intentionally and slow completion of movements one at a time. It is great for those concerned with balance, needing the support of a chair, or simply hoping to add to an existing exercise program. Taught by Anne Cooper.
McMinnville Movement Series
Thursdays at 11 am I Oct 2 - Dec 18, No class Nov 27
McMinnville Senior Center -------- IN PERSON
The focus is on mobility and safety, with movements that improve strength, balance, endurance, and flexibility. Classes are designed to accommodate varying degrees of ability and limitations. Movements include gentle stretching, both seated and standing exercises, and hand-eye coordination. The class is a light-hearted, friendly environment of camaraderie where all are welcome with open arms! We share moments in life that bring a smile and a laugh! Instructed by longtime local fitness trainer Bill Wilson, BA, CPT-CSCS (ret.) who brings many years of expertise working with neurological challenges.
Mindfulness Meditation Class
Wednesdays at 12:15 - 1 pm New sessions Oct 22 - Nov 26, and Jan 14 - Feb 18
-------- VIRTUAL
Studies reveal the benefits of the practice, including reductions in symptoms related to anxiety, depression, stress, chronic pain and more. Recent studies now specifically assessing the benefits of mindfulness for Parkinson’s Disease confirm promising results. This class is about befriending the mind so that we can to the best of our ability work with the stressors in our life. Using the breath as our guide allows us to discover our innate capacities of compassion and wisdom to work with our lives. Instructor Martha McJacobs has been a mindful practitioner and teacher for over 40 years.
Carepartners are welcome to attend. Thank you to Washington County for sponsoring.
EVENTS & ACTIVITIES
The Dalles: Living Well with Parkinson’s Disease
October 2 (Thursday) 10:45 am Waters Edge Health & Wellness, The Dalles
-------- IN PERSON
Join us for the second installment of our three-part Rural Outreach Initiative (ROI) series. In this talk, we will focus on lifestyle strategies to live your best life. This is for the person living with Parkinson's as well as care partners. Between visits to the doctor, the daily choices you make can help you better manage your symptoms. Key points we address include bringing in expert, exercise guidelines, nutrition recommendations, reducing isolation, managing your mood and finding resources. Whether you are new to PD or you have been living with it for many years, there will be
something of interest to everyone along with opportunities to ask questions.
Presented by Mike Mulligan, PRO’s Community Health Education Coordinator and Anna Saltonstall, PDPT, Physical Therapist with Columbia River.
Vancouver: Preparing for the Unexpected
October 9 (Thursday) at 2 pm Boomerang Therapy Works, Vancouver -------- IN PERSON
Illness, family obligations, and medical needs can all come unexpectedly for any of us, and for those of us in crucial roles as caregivers (for ourselves or others), it is important to plan ahead. In this in-person discussion, Mike Mulligan, PRO Community Health Education Coordinator, will assist participants to identify the steps to take to get prepared and reduce the stress of the unknown.
Parkinson's & Your Family: The Role of Genetics in the Disease
October 13 (Monday) 11:30 am -------- VIRTUAL
In this informative virtual discussion led by neurogenetics researcher Dr. Ignacio Mata, PhD, we will explore the latest updates about genetics and its relationship with Parkinson's Disease. Dr. Mata will also share information about the impact research has on our understanding Parkinson's, how it informs the efforts to develop new treatment options, and why it is important to participate in research studies. Dr. Mata is currently Associate Staff at the Genomic Medicine Institute (GMI) at the Cleveland Clinic Foundation (CCF) and Assistant Professor of Molecular Medicine at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University (CCLCM-CWRU). He has worked in the field of Parkinson's disease (PD) genetics for more than 20 years.
Beaverton: Parkinson's Disease: More than Motor Symptoms
October 16 (Thursday) 12 pm
PRO Beaverton Office and Virtual -------- HYBRID
Join us in-person at our Beaverton office or virtually for this hybrid discus-
sion from PRO annual sponsor, Acadia. In it, Sherrie Gould, MSN, NP-C will introduce the non-motor symptoms of Parkinson's including hallucinations and delusions. She will describe the symptoms most often associated with Parkinson's related hallucinations and delusions and explore how you can talk with your healthcare providers about these symptoms and establishing an effective treatment plan. Ms. Gould will be joined by an Acadia Ambassador who will share the first-hand perspectives of a person with Parkinson’s managing these non-motor symptoms. A light lunch will be provided.
Bend & Beaverton: Imagine Your Days with More Consistent Good On Time
Bend: October 25 (Saturday) 1 pm, Partners In Care
Beaverton: November 1 (Saturday) 1 pm, PRO Beaverton Office -------- IN PERSON
You and your family are invited to join us in either Bend or Beaverton for this event presented by PRO’s annual sponsor, Supernus. In this educational talk led by Dr. Pinky Agarwal, MD, FAAN, you will learn about a new treatment option for Parkinson's, ONAPGO. ONAPG is a continuouse apmorphine insfusion, for the treatment of motor fluctuations (OFF episodes) in adults with advanced Parkinson’s disease (PD). Learn about why "ON" and "OFF" times can happen in Parkinson's, how ONAPGO works, and how to determine if this might be a good option for you to discuss with your care team. Dr. Agarwal is a movement disorder neurologist at Booth Gardener's Parkinson's Care Center in Kirkland Washington and a professor at the University of Washington. She has been a part of more than 100 clinical trials including the clinical trial for Onapgo.
Beaverton: Advanced Family Caregiver Workshop
November 13 (Thursday) at 1 - 4 pm PRO Beaverton Office
-------- IN PERSON
The advanced stages of Parkinson's disease may last anywhere from sev-
eral months to several years. Intensive, around-the-clock assistance is often required. In the advanced stages of PD families are called upon to make difficult decisions about their loved one's care. Even with the understanding that Parkinson's disease is progressive, it is hard to be prepared. This in-person education workshop at PRO’s Beaverton office will prepare family members and caregivers to approach the advanced stages of the disease with more confidence. Recognizing every family situation is unique, the program will educate caregivers about the issues and decisions impacting quality of life. Our presenters will include a movement disorder specialist, hospice representative, an elder law attorney.
Beaverton: CPR for the Parkinson’s Community
November 15, (Saturday) 9 am - 1 pm PRO Beaverton Office
-------- IN PERSON
This class will be open to all members of the PRO community. The Adult CPR/ AED course incorporates the latest science and teaches students how to respond to breathing and cardiac emergencies for victims about 12 years and older. Course includes choking. Students who successfully complete this course will receive a certificate for Adult CPR/AED valid for two years. Physical requirements to be able to successfully participate and complete this course are explained in the class description on the PRO Eventbrite site.
PRO would like to thank Sean Richardson with CPR Lifesaving Inc. for making this class available to the members of the PRO community.
Exercise Roundtable
November 18 (Tuesday) at 3 - 4:30 pm
-------- VIRTUAL
We talk about it often – exercise is the single intervention that has been shown to slow the progression of Parkinson’s. But what are the options? How are exercise recommendations evolving? And what are the first-hand experiences of participants in PD-specific classes? Join
what are the first-hand experiences of participants in PD-specific classes? Join this informative virtual roundtable discussion with exercise instructors, researchers, and individuals living with Parkinson’s.
Preparing for the Unexpected December 4 (Thursday) at 1 pm
VIRTUAL
Illness, family obligations, and medical needs can all come unexpectedly for any of us, and for those of us in crucial roles as caregivers (for ourselves or others), it is important to plan ahead. In this in-person discussion, Mike Mulligan, PRO Community Health Education Coordinator, will assist participants to identify the steps to take to get prepared and reduce the stress of the unknown.
Exploring DBS
December Date and Time TBA -------- HYBRID
Presented by PRO annual sponsor, Boston Scientific, this in-person roundtable discussion with a local healthcare provider will be held at our main office in Beaverton. For those of you not in the Portland metro area, you will have the option to join the discussion virtually. This will be an excellent opportunity to learn more about DBS and get your questions answered.
SOCIAL, COMMUNITY & FUN
Beaverton: Dance and Drum for PD
Oct 1 - Dec 10 (Wednesdays) at 11:30 am - 12:45 pm No class Nov 26
PRO Beaverton Office -------- IN PERSON
A relaxed, upbeat class where creativity takes center stage—using live music, engaging rhythms and imaginative movement to make staying active feel fresh and inspiring. Come as you are to explore, connect and build community! Caregivers or partners are welcome but not mandatory. Organized by Dance for PD® Oregon, $20 per class - discount or waived fee options available! Register at https://danceforpdoregon.org/take-a-class-1
Eugene: Parkinson’s Research - We NEED You!
Oct 18 (Saturday) at 12:30 - 2:30 PM
Eugene Family YMCA -------- IN PERSON
If you are living with Parkinson's disease, or know someone affected, you know there is so much we do not know about the disease. Research hopes to improve the accuracy of diagnosis, find biomarkers that lead to earlier diagnosis, develop better treatments and ultimately find a cure. Local researchers from the University of Oregon need your help! After the one-hour lecture, attendees are warmly encouraged to stay for a relaxed 30-minute social gathering—an opportunity to mingle, connect and continue the conversation.
Register through the Eugene Family YMCA: https://www.eugeneymca.org/ or (541) 686-9622.
Beaverton: Date Night & Intimacy: Reconnecting PD Partners
Oct 28 (Tuesday) at 5 - 7 pm
PRO Beaverton Office -------- IN PERSON
Parkinson’s can drive couples apart; but there are many wonderful ways to link them back together. Please join us October 28 for a 2-hour exploration of music, dance, talking and of course, eating and drinking!
Judith Sachs, creator of CLOSE CONTACT for COUPLES with Parkinson's, and Dr. Kelly Rees, sex therapist, will lead a fun-filled excursion for couples designed to bring them back to a time of natural ease and connection. We’ll delve into ways to approach one another with eye contact, touch and laughter. Come have fun with us!
RSVP at 609-577-1928 or Judith@anyonecanmove.com.
BOARD OF DIRECTORS
Chair: Justin N. Smith
Vice Chair: Scott Philips
Treasurer: David de Fiebre
Secretary: Laurie Ayers Pino
Immediate Past Chair: Kelly Sweeney
Directors at Large: Kristin Whitney
Elise Anderson, MD
Larry Bradley
Todd Bauman
Melody Boyce
Barney Hyde
Jerry Hulsman
Chad Naganuma
Scott Philips
Joseph Quinn, MD
Ann Usher
Linda Bryans
Area Group Meetings
GENERAL INTEREST PD GROUPS
All Area General - Zoom 1st Wed, 1:00 pm PRO, 800.426.6806
Albany - In Person 2nd Wed, 4:00 pm Lynn, 541.936.6154
Ashland - In Person 3rd Wed, 3:30 pm Laurie, 650.575.8434
Astoria - In Person 2nd Mon, 1:00 pm Donna, 503.738.5295
Beaverton - In Person 2nd Wed, 10:00 am Caren, 336.202.6601
Bend - In Person 3rd Wed, 2:00 pm Nancy, 503.799.5311
Brookings- In Person 1st Thurs, 3:00 pm Teigan, 541.247.3074
Canby - In Person 1st Mon, 1:00 pm Shirley, 503.380.1712
Clackamas - In Person 3rd Tue, 3:00 pm Kim, 503.698.1600
Coos Bay - In Person 2nd Thurs, 1:00 pm Aaron, 541.808.1336
Eugene - Hybrid 2nd Tue, 10:30 am Dave, mwsdbs@comcast. net
Eugene- In Person 3rd Wed, 1:00 pm Ken, 541.912.2636
Florence - In Person 4th Thur, 1:00 pm JoAnne, 541.633.3330
Gresham - Hybrid 2nd Tue, 2:00 pm Kevin, 503.278.0516
Hermiston - In Person 3rd Wed, 1:30 pm Sheila, 541.561.7576
CARE PARTNER GROUPS
All Area Care PartnerZoom
4th Wed, 1:00 pm PRO, 800.426.6806
Ashland - Zoom 2nd & 4th Fri, 9:30 am Ann, 415.279.8754
Astoria - In Person 4th Tue, 1:00 pm Donna, 503.738.5295
Beaverton - In Person
Starting January 1st Mon, 10:00 am
PRO, 800.426.6806
Bend - In Person Fridays, 9:30 am Mary Jo, 541.693.4488
Beyond Parkinson’sZoom
Care Partner Loss Group 3rd Thurs, 3:00 pm Libby, 541.345.2988
Caring for a ParentZoom 3rd Thurs, 5:00 pm Dakota, 702.682.0954
Hillsboro - In Person 2nd Mon, 2:30 pm Mark, 503.718.7484
Hillsboro, East - In Person 3rd Fri, 10:15 am Tina, 971.803.8144
Klamath Falls - In Person 4th Tue, 1:00 pm Ron, 541.591.0686 Kate, 541.882.3928
La Grande - In Person 1st Thur, 4:30 pm Kate, 541.969.0883
Longview - In Person 3rd Thur, 1:30 pm Shawna, 360.423.3333
Medford - In Person 3rd Sat, 12:30 pm Curt, 541.601.0602
Medford, Rogue Valley Manor- In Person 3rd Tue, 1:30 pm Meridel, 541.857.6605
Milwaukie, Rose Villa- In Person 2nd Tue, 10:00 am MaryHelen, 503.652.3044
Newberg - In Person 3rd Thur, 11:00 am Marshall, 503.550.7670
Newport - In Person 2nd Mon, 3:00 pm Greg, 541.272.2595
Pendleton - In Person 3rd Mon, 4:00 pm Erika, 541.612.0146
Redmond - In Person 2nd Mon, 1:00 pm Ginny, 541.548.6310
Roseburg - In Person 2nd Mon, 1:30 pm Sandy, 541.430.1286
Salem - In Person 2nd Tue, 1:30 pm Jayne, 503.930.4239
Sherwood - In Person 3rd Thurs, 1:00 pm Dillon, 503.625.9481
The Dalles - In Person 1st Thur, 10:45 am Chad, swansoce@ah.org
Tillamook - Hybrid 2nd Thur, 2:00 pm Randy, 314.458.1970
Vancouver, WA - In Person 4th Mon, 1:00 pm Jan, 360.433.6400
West Vancouver, WA -In Person
3rd Fri, 1:00 pm Hope, 518.265.0340 Pat, 360.823.6683
West Linn - In Person 2nd Thur, 1:00 pm Tiffany, 503.557.4704 Jan, 503.319.7062
Wilsonville - In Person 4th Thur, 11:30 am Matt, 503.694.2700
Dementia and PD - Zoom 1st Thurs, 4:30 pm Libby, 541.345.2988
Eugene - In Person 1st Mon, 3:00 pm Tim, 541.525.1883
Eugene - Zoom 4th Tue, 1:30 pm Libby, 541.345.2988
Lewy Body DementiaZoom 2nd Sat, 1:00 pm 4th Sat, 10:00 am
SPECIAL INTEREST GROUPS
Alternative Approaches - Zoom 2nd Tue, 7:00 pm (alternate months) Tasha, 503.788.2333
MSA/PSP - Zoom Last Sat, 10:30 am Akiko, 503.853.9584
Newly Diagnosed < 3 yrs - In Person Beaverton 4th Tues, 3:00 pm Nelson, 814.482.0906
Newly Diagnosed < 3 yrs - Zoom 2nd Wed, 1:30 pm PRO, 800.426.6806
Kathy, 971.222.7526
MSA/PSP - Zoom 3rd Fri, 12:00 pm PRO, 800.426.6806
Portland - Zoom 1st Tue, 7:00 pm PRO, 1.800.426.6806
Portland Women Coffee Chat, in Person 3rd Thurs, 10:30 am Martha, 503.830.7246
PD without a Partner - Zoom 4th Thurs, 1:00
Young Onset
Redmond - In Person 3rd Thur, 10:00 am Virgie, 541.923.1575
Women, AM- Zoom 1st Tues, 11:00 am Martha, 503.830.7246
Women, PM- Zoom 1st Wed, 3:00 pm Mary, 503.332.1700
Vancouver, WA- In Person 1st Mon, 1:00 pm Jan, 360.433.6400
PERSPECTIVES
World Parkinson's Congress
2026 pg 1
Could it Be.... The Big D pg 2 What is the Give!Guide pg 3 "The Hidden Parkinson’s Symptom That Could Be More Dangerous Than Tremors" pg 3
Calendar of Events pg 4
Area Group Meetings pg 7
Donor-Advised Funds pg 8
Parkinson’s Resources of Oregon
8880 SW Nimbus Ave Ste B Beaverton, OR 97008
CONTACT US
info@parkinsonsresources.org
toll-free: (800) 426-6806
Return Service requested If
Donor-Advised Funds (DAF)—Another Wise Way to Support People with Parkinson’s
A Donor-Advised Fund (DAF) is when donors put money into a designated investment fund with a sponsoring institution (such as Vanguard, Fidelity Charitable, Schwab Charitable, etc.) and then recommend grants to be distributed to nonprofits at a later date. Any investor can open a DAF; they’re not limited to those with high net worth.
PRO Donors with DAFs Know These Great Advantages:
• You receive an instant tax benefit and support the nonprofits you love right away OR over time
• You get to grow your donation, tax-free
• You create an enduring legacy
• You can incorporate your DAF into your estate planning (with favorite charities as beneficiaries)
• You can set up recurring monthly donations from your donor-advised fund! Numerous PRO supporters choose to make recurring gifts, as this allows us to plan more thoughtfully and
make the most of your donations (and you can always cancel it if you change your mind or your circumstances change).
• Your employer may match gifts you make to Parkinson’s Resources of Oregon from your DAF—so you can double your gift!
• Some employers offer a DAF as a perk, making it easy for people to contribute to it with payroll deductions, and to get started with a DAF with a smaller initial investment.
• National DAFs like Schwab Charitable and Fidelity Charitable make it simple to donate a wide range of assets and non-cash funds such as stocks, real estate, private equity and hedge fund interests.
Learn More
Would you like information on how other PRO supporters are using their DAFs to make a big impact? Contact Melissa at melissa@parkinsonsresources.org or call our main office at (800) 426-6806 to know more and discuss the impact your philanthropy can have on local programs and services.