Parkinson's Perspective - Q2 2024

The Parkinson’s Perspective

Rural Outreach Initiative Update

CONTRIBUTED BY LIBBY KENNARD

You may be familiar with or have participated in PRO’s Rural Outreach Initiative (ROI). Since 2018 This has been part of our strategic plan to bring services and programs to smaller communities.

Access to specialized care and resources is limited in rural communities. There is a higher population of retirees on the coast and in rural areas than in urban areas of Oregon. These areas face unique challenges when seeking PD education and care which can lead to delays in diagnosis, limited access to specialists, and inadequate support that is needed to manage the disease. Travel to medical appointments is only somewhat addressed by telehealth and virtual technology. Some areas have no access to broadband. Virtual services are only as helpful as the person’s ability to access and use them!

The Rural Outreach Initiative involves a series of educational programs created to build on each other over an 18-month period. Along

with education, we strive to connect with stakeholders in the local community. We gauge the community’s readiness for programs and help recruit volunteers to foster community buy-in to address the specific needs. We identified communities for the first five years. Since it was launched, we have provided services and met many new faces in Roseburg, Pendleton, Klamath Falls, Prineville and Coos Bay.

However, as with everything else during the pandemic, there was a long pause in PRO’s travel and in-person programming. Despite the pause, we increased our connections to professionals and community members in these first three communities. We added new support groups in Pendleton and LaGrande and we are still working to start more groups in Baker City and beyond! Our relationships with local allied health professionals have helped create programs that didn’t previously exist. We will be in Klamath Falls this quarter and we are heading to Newport later this year.

Through our ROI program we aim to provide personal connection and build community. People want education that is customized to their concerns and provided in-person rather than via a screen. Attending local support groups provides a forum to be with others on the same journey who provide a sense of community, comfort and camaraderie. Long term, we hope that the ROI initiative creates the momentum that we and those in the communities we serve can keep building upon in the years to ahead. Watch for dates later this year in Newport and The Dalles.

Calendar of Events

REGISTRATION AT WWW.PRO.EVENTBRITE.COM

Some details on these (and other programs) are still being finalized as we go to print. Please check our website (parkinsonsresources.org) or the event registration site (pro. eventbrite.com) for the latest information! It is critical that you register, so that we may plan materials and send links for virtual programs.

WELLNESS

Fill your week with a variety of classes!

Communication Skills Group

New session starts April 5th. Join any time. Fridays, 11 AM -------- VIRTUAL --------

Virtual series led by Julia Robinson, Speech-Language Pathologist from Legacy Health. You exercise your body to maintain movement, participating in voice exercise will help to maintain your voice clarity, volume and breathing! This class is great whether you have participated in speech therapy or not; practicing in a group setting allows for social connection as well!.

Thank you Legacy Health for partnership with this program.

Singing with PD is back!

3rd Thursday of the month 2 - 3 PM -------- HYBRID --------

After a break, we are thrilled that the Parkinson’s singing group is back!

All are welcome. We’ll share a Zoom link for those not able to join us in person at the PRO offices in Beaverton. Participants who join the fun virtually will also receive a song list and lyrics in advance.

You’ll sing along with our gifted and beloved volunteers, Michelle Garratt, Jill Williams, and Kera Magarill! Thank you Washington and Multnomah Counties for sponsoring.

Movement Classes w/Laura Lou New sessions start the first week of April. Mondays, Wednesdays at 11 AM & Fridays at 1 PM

If you’re looking for an exercise class that helps with mobility but also leaves you with a smile on your face, join our virtual Movement class with instructor Laura Lou! Designed specifically for those with PD, the program combines yoga, tai chi, and dance to improve flexibility, strength, and balance. Instructor Laura Lou Pape-McCarthy also works to improve the use of facial muscles and incorporates vocal exercises while you move.

McMinnville Movement Series

Thursdays 11 AM | McMinnville Senior Center --------

IN PERSON --------

Designed to accommodate varying abilities and limitations, with movements that improve strength, balance, endurance, and flexibility. Gentle stretching, seated and standing exercises, and hand-eye coordination. A light-hearted, friendly environment of camaraderie. All are welcome with open arms! Instructed by longtime local fitness trainer Bill Wilson, BA, CPT-CSCS (ret.)

Breathing Yoga - Ongoing Mondays 5:15 - 5:45 PM

VIRTUAL --------

Practice breath control and synchronizing breath with movement. Just 30 minutes helps energize the body and mind and reduce stress.

This practice may benefit those with tremors, improve memory and cognitive functions, help with sleeping disorders, provide mental-emotional stability, build confidence, and improve quality of life.

Mindful Meditation Class

Wednesdays at 12:15 - 1 PM New session, April 17th - May 22nd OK to start any time! -------- VIRTUAL --------

If you are feeling anxious, stressed, or depressed, we offer Mindfulness FREE. Mindfulness activates brain circuits that help with feeling happy and regulate emotions. Instructor Martha McJacobs has been a mindful practitioner and teacher for over 40 years. Her passion is to help people experience life in the present moment with courage and kindness.

Carepartners are welcome to attend. Thank you to Washington County for sponsoring.

EDUCATION

Parkinson’s Disease: More than Motor Symptoms

April 16th (Tuesday) 1:30 PM PRO Beaverton Office and Online -------- HYBRID --------

Join us in-person or online with Dr. Jason Kellogg, MD. If you live in the Portland metro area, we strongly encourage you to attend in person! Studies suggest that around 50% of people living with Parkinson’s Disease may experience hallucinations and/or delusions during the course of their disease. About 90% of patients don’t proactively tell their physicians. Yet there are treatments available if this is occurring.

In his presentation, Dr. Kellogg, will introduce the non-motor symptoms of Parkinson’s including hallucinations and delusions. He will describe the symptoms often associated with Parkinson’s related hallucinations and delusions and explore how you can talk with your healthcare providers about these symptoms and establish an effective treatment plan. This talk is presented by PRO Annual Sponsor, Acadia

Deep Brain Stimulation (DBS) Conversation

April 26th (Friday) 4-5:30 PM

-------- VIRTUAL --------

Are you considering Deep Brain Stimulation (DBS) and would like to hear more about it? Have you had DBS and would like to share your experience with others? Register for our quarterly Zoom DBS Conversations! The conversation this month includes guest presenters: From Legacy Health, Neurosurgeon Dr. Amit Ayer and Movement Disorder Specialist Dr. Jill Baird.

Dr. Ayer has clinical interests in surgical treatments for movement disorders, Dr. Baird is the Medical Director of the Legacy PD Program. Quarterly. Registration required!

Lift Workshop for Family Caregivers (IN-PERSON at 3 Locations!)

-------- IN PERSON

During this hour-and-a-half program, our instructors will lead you through the proper and safe techniques to transfer your loved one who has mobility issues due to Parkinson’s disease.

An interactive workshop for family caregivers only, space is limited.

• Central Point April 19th (Friday) 11 AM -12:30 PM - Led by Lisa Gilbertson, PT, MS | Higg Gym

• Eugene May 2nd (Thursday) 2:30-4:00 PM - Led by Rie Yoshida, Physical Therapist,

with PT On The Move | Merrill Gardens at Sheldon Park

• Vancouver May 23rd (Thursday) 2-3:30 PM - Led by Emily Kaemmerlen, PT, DPT,| Boomerang Therapy Works

Grants Pass - The Ins and Outs of PD Non-Motor Symptoms

May 2nd (Thursday) 12:30 PMRogue Valley Community College – Redwood Campus

-------- IN PERSON

Join us for a discussion presented by Dr. Kelly Block, D.O. and Dr. Jessica Decker, D.O. from the OHSU Parkinson Center and Movement Disorders Program. In this talk, Dr. Block and Dr. Decker will give an overview and provide insight into non-motor symptoms, which are often less known but frequently can be more impactful on quality of life.

Klamath Falls - Hope For PD

May 3rd (Friday) 12:00 PM Sky Lakes Community Health Education Center

IN PERSON

Presented by Dr. Kelly Block, D.O. and Dr. Jessica Decker, D.O. from the OHSU Parkinson Center and Movement Disorders Program. The focus of this discussion will be on research and what is on the horizon for treatment options.

We know that there are more treatment options for Parkinson’s disease now than there have ever been. This is an exciting time with the development of new biomarkers for Parkinson’s disease through spinal fluid, as well as new diagnostics through skin biopsy. Come hear the latest in research and get your questions answered by Dr. Block and Dr. Decker.

Women with PD Meet Up

May 10, 4 - 5:30 PM, PRO Beaverton Office

IN PERSON

Spending time with people that you

relate to makes a huge difference in how you show up. For this meetup, PRO is inviting women with Parkinson’s to gather and connect at the Beaverton office. Casual in nature, you can expect snacks, games, and conversation! Come as you are. Care partners are welcome to join.

For PROFESSIONALS Long Term Care Training

May 15th (Wednesday) 9:00 AM –4:00 PM PRO Beaverton Office

IN PERSON

This is a full day of training for professional caregivers (staff in assisted living, nursing, rehab, adult foster care, and home health) with crucial knowledge that is specifically designed to be easily understood and applied in everyday situations. Certification of Completion provided. Fee $25.00 | Connect with Libby Kennard, 541-345-2988

PD and Your Mental Health

May 21st (Tuesday) 12:00 PM

May is Mental Health Month. PRO is participating by offering this virtual talk by our social worker, Peggy Rost. Peggy will provide an overview of the wide variety of approaches to help maintain good mental health while living with Parkinson’s disease. Peggy will also discuss resources that are available if you find you are facing mental health challenges and how to access them.

Personal Care Series | For People with PD and Caregiver

May 30 & June 6 2:00 PM

During this 1.5-hour program (once a week for 2 weeks) Occupational Therapist, Mindy Laidlaw, will give instruction and ideas regarding strategies and equipment to assist the person with PD with bathing, dressing, toileting, mobility, and cooking/feeding. Mindy Laidlaw, OT, graduated from Pacific University in Forest Grove, OR and

Calendar of Events

CONTINUED FROM PAGE 3

has worked for St. Charles Medical Center in Bend Oregon for 34 years.

NOURIANZ®: I brake for moments, not for Parkinson’s

June 4th (Tuesday) 12:00 p.m. PRO Beaverton Office and Online -------- HYBRID --------

Join us in-person or online for a discussion led by Sherrie Gould, MSN, NP-C. If you live in the Portland metro area, we strongly encourage you to attend in person! Sherrie will discuss “off episodes” and how to manage them including the use of Nourianz, in conjunction with Levodopa/Carbidopa. Sherrie currently works as a specialty nurse practitioner at the Scripps Clinic Center for Neurorestoration in La Jolla, CA. This talk is presented by PRO Annual Sponsor, Kyowa Kirin, the maker of Nourianz.

Preparing for the Unexpected

June 12th (Wednesday) 11:00 AM

PRO Beaverton Office -------- IN PERSON

Illness, family obligations, and medical needs can come unexpectedly for any of us, and for caregivers (for ourselves or others), it is important to plan ahead.

In this event, we assist participants to get prepared, including rallying support and identifying roles for family and friends, finding care resources, and gathering and organizing crucial information.

Eugene - Let’s Talk! PD and Your Communication & Swallowing

June 18th (Tuesday) 3:30 PM Hilyard Community Center

IN PERSON

Did you know that about 89% of

all individuals with Parkinson’s, at some point, will experience issues with their communication and/or swallowing? Cecelia Pizano, MS CCC-SLP will explain the physiology behind how Parkinson’s may affect one’s speech and swallowing, explore how this can impact one’s communication and daily activities, and discuss the proactive steps you can take to address these issues, as well as the roles a speech language pathologist can play in your care.

Pelvic Health and PD

June 19th (Wednesday) 11:30 AM

PRO Beaverton Office -------- IN PERSON --------

Review of pelvic anatomy. Discussion of common problems with bowel and bladder function. How medications, age, and movement disorders affect pelvic health. Presenter Deborah Jones, PT, DPT, Deborah is a doctor of physical therapy, board certified clinical specialist in geriatrics with a certification in pelvic health. She treats men, women and children for bowel, bladder, and sexual dysfunction. Working with people with Parkinson’s disease for pelvic health as well as balance and movement strategies.

Bring More Music To Your Life

June 21st (Friday & World Music Day) 2:00 PM -------- VIRTUAL --------

Science is finding music activates more of your brain than any other stimulus. It can help with many symptoms of Parkinson’s. On World Music Day, we will explore the fascinating ways you can benefit from tuning in to more music.

SOCIAL, COMMUNITY & FUN

OHCA Spring Expo, April 12th -------- IN PERSON

PRO was invited to present at Oregon HealthCare Association’s Spring Expo in Salem. This conference provides education to staff in long term care settings across Oregon. We will be presenting about how to best support residents living with Parkinson’s. We are excited to continue the work advocating for those living with PD.

There’s a Whole Lot of Shakin’ Goin’ On - Eugene -------- IN PERSON --------

Join us for a benefit show for PRO featuring “Complicated” (the band). April 12, 2024, 7-9 pm at Whirled Pies, 199 W 8th Ave, Eugene Doors open at 6, $15 tickets.

Table Tennis at PRO -------- IN PERSON

There is strong evidence to support Ping Pong for Parkinson’s as therapeutic with benefits as a form of exercise and helpful with eyehand coordination. Join us Monday, Wednesday and now Friday afternoons for a session with our coach and a little friendly competition at the PRO Beaverton office. Table Tennis for PD at the West Linn Senior Center on Tuesdays 1 PM. Drop in or call Nia (503.594.0901) for details.

Table tennis opportunities exist for interested players in Bend, Corvallis and Eugene as well. Please be in touch so that we can connect you!

Sole Support for Parkinson’s

20 YEARS IN THE MAKING - LET THE SEASON BEGIN

WOW! Sole Support for Parkinson’s has been making memories for over 20 years! Coming off of the phenomenal success of this fundraising and awareness walk last fall, we just know the 2024 Sole Support season is going to be special.

Help us add to our Memory Board by emailing your past Sole Support

photos to jeannine@parkinsonsresources.org. The older your images, the better! Anyone have pics from 2005 walks????

Sole Support is our largest fundraising and community awareness event each year. When you join us we are better able to help provide vital resources to those affected by

Parkinson’s disease in our communities. Let’s make more memories!

It’s never too early to make your plans and set goals. REGISTRATION is now open at www.solesupport. org or call us at 800.426.6806 and we can do it for you.

www.SoleSupport.org

2023 Memorials and Tributes

Parkinson’s Resources of Oregon gratefully acknowledges the loving family and friends who made a generous contribution as a tribute to these individuals in 2023. If we missed listing your loved one, please let us know so we can correct our records. (Please note that this listing does not include tributes made through Sole Support.)

Memorials

Alan Levine

Anne Yoshitomi

Barbara Barwood

Bev Michelson

Bheula Peterson

Bill Sternburg

Bob Berger Sr.

Bruce Cleeton

Charles Banov

Chuck Finegan

Debbie Andrews

Donna White

Doreen Hune

Dwight Berning

Gary Gapinski

Gary Schmidt

George Spada

Glenn C. Leach

Greg Chaille

Harry Bondareff

Ivy Welsh

James Cartwright

James Fasano

James Heltzel

James M. Johnson

Jane Ann Hytowitz

Jerry Mills

Jessie Underhill

Jim Marvin

Joe Henery

John “Art” Decker

John Kerrigan

Larry Hunt

Lee Ann Labby

Lenetta Colbert

Marge Sayer

Marsha Sorum

Mary Rosalie Cooper

Sayre

Maureen Dooley

Michael Love

Mike Kneeland

Mike Moorad

Mike Myers

Mike Robbins

Milton Druck

Nora Layton

Paul Budke

Reid Olsen

Richard Reid

Rob Bartelletti

Roger McLain

Sally Ann Fouch

Sandra Smith

Sandy Ayers

Sandy Miller

Sherman Coventry

Susan Harold

Susan Weber

Terry White

Trish Burke

Vernon Lang

Vicki Manning

William McCrae

Yew Eugene Chang

Tributes

Amy Lavallee

Angelica Larson

Ann Usher

Barbara Anderson

Bekke Reiman

Beverlee Triplett

Bill MacMorris-Adix

Caprice Spada-Willingham

Caren Masem

Carol Budke

Christine Shaffer

Johnson

Christopher Redmond

Ciara Appleby

Dan McGraw

Dan Sikstrom

Daniel Gordon

Daniel Narvaez

David Towle

Deborah Martin

Don Tolan

Donald Balmer

Edmond Hanson

Elise Scumock & Jeff

Ryan

Fran Schlieski

Gary Etlinger

Gary Gurrell

Gerald Enyart

Gloria Hale

Greg Bradley

Greg Naganuma

Helen Shafran

Holly Chaimov

Jeannette Chaffee

Jeffrey Bergevin-Vil-

legas

Jerry & Beth Hulsman

Jinny Ayers

Joan Denecke

Judie Fredrickson

Karen Anderson

Kathleen Kevrekian

Kent Spring

Kiki Kaloudis

Larry Bradley

Larry McClure

Laurie & Dan Merrell

Len Nowak

Litonya Allen

Marcia Edwards

Marilyn Chandler

Melissa Anne de

Obaldia

Melvin Stewart

Mike Mulligan

Milton McRae

Mitch Watkins

Nadine Batya

Nancy Grossenbacher

Nancy Parks

Nick Benson

Norm Parker

Olivia Kuntz

Patsy Kohout

Paul White

Peggy Rost

Peter Broffman

Phil Hodapp

Reba Mones

Richard Romano & Family

Rob Friedman

Rob Soloman

Sharon Darling Adams

Steve Buss

Steve Fine

Tiffany Sytsma

Tina Loveless

BOARD OF DIRECTORS

Chair: Justin N. Smith

Vice Chair: Kristin Whitney

2nd Vice Chair: Scott Philips

Treasurer: David de Fiebre

Secretary: Laurie Ayers Pino

Immediate Past President: Kelly Sweeney

Directors at Large:

Elise Anderson, MD

Todd Bauman

Melody Boyce

Larry Bradley

Barney Hyde

Jerry Hulsman

George Lee

Chad Naganuma

Scott Philips

Joseph Quinn, MD

Ann Usher

Spring Forward

BY HELEN SHAFRAN, DEVELOPMENT DIRECTOR

Can you sense it—nature’s rising return to life and light…the change in the air…more birdsong in the mornings…and the promise of leaves unfurling…?

Here at PRO, our 2024 work is unfurling, too. Our core services continue as we remain committed to local, direct, and personal support for the PD community. We’re also pursuing innovative approaches to all areas of our work, including our education and wellness programs, PD-specific exercise classes, peer and group support, outreach, and advocacy. Our goals and plans include more than 40 PRO-hosted educational events and workshops

across Oregon and SW Washington.

Focused on forward-thinking support that’s relevant to clients’ journeys at each stage of disease progression, we’re enthusiastic about growing our ability to provide resources and strategically honing the work we’ve always done best. Our upcoming Spring mailing will invite you to engage with our offerings, as well as encourage you to contribute financially to help ensure that we serve as many folks with PD—and their care partners and family members—as possible.

Plan now to give yourself a “thumbs-up” for making a fresh

difference with us via your contribution, and guess what?! Your upcoming gift will have even MORE impact, because a very generous longtime donor family has promised to match all funds raised in our Spring fundraising campaign, up to $20,000 (you read that right!). No one should have to face diagnosis or living with Parkinson’s alone, and you and your fellow donors continue to create the community that makes this true.

We look forward to keeping in touch with you this Spring, walking sideby-side along the Parkinson’s road.

4th Annual PeDal Support and Adaptive Cycle Fair!

June 22, 2024, at PRO, Beaverton

This year we are adding an Adaptive Cycle Fair to our PeDal Support bike ride Saturday, June 22, 2024. Ride in the morning and then enjoy the fair to learn about adaptive cycling and all things bike related.

Exercise is a proven way to stave off the progression of Parkinson’s. Ride for your health, the joy of the outdoors, to raise dollars for PRO, and awareness for PD. There are two routes (5 mile and 25 mile) leaving from the PRO office. As always, all fitness levels are welcome. Don’t have a bike but want to learn more or try out an adaptive bike? The

Adaptive Cycle Fair is just the place!

Ready to ride and turn your pedals into power? Registration is open at www.pedalsupport.org. Lunch is included in the registration fee. Raise $100 and earn the exclusive PeDal Support shirt.

Parkinson’s Disease and Melanoma

Summer is just around the corner —more time outdoors, gardening, picnicking, exercising, and moving. While skin care is a year-round priority, there is more awareness as temperatures rise. Many people with PD are unaware of the associated increased risk of developing melanoma.

The link between Parkinson’s disease, a neurological disorder, and melanoma, a type of skin cancer has been known for years, and suggests a potential biological link between the two diseases, prompting researchers to investigate the shared pathways or genetic factors that may contribute to their simultaneous occurrence. Research has identified a common protein called alpha synuclein as a possible connection between PD and melanoma. Abundance of this protein is found in higher levels in the brains and skin of individuals with PD.

While the risk of developing melanoma or PD individually is low, individuals with PD have been found to have a 3.8-fold increased chance of having pre-existing melanoma.

Prevention and Intervention

Preventing melanoma involves

essential steps such as wearing protective clothing, applying sunscreen daily, staying in the shade, and promptly evaluating any new or changing skin spots.

It is crucial to understand that not every person with PD will develop melanoma (or vice versa). Both these diseases remain relatively rare. By being aware of shared risk factors and taking proactive steps towards prevention and intervention, you can empower yourself to mitigate the risks effectively.

1. Sun Protection: Limiting exposure to harmful UV rays by wearing sunscreen, protective clothing, and seeking shade can lower the risk of melanoma.

2. Know The Signs: Talks with your Healthcare provider and understand what skin changes you should watch for.

3. Healthy Lifestyle: Maintaining a balanced diet, engaging in regular exercise, and avoiding tobacco products can contribute to overall well-being and potentially reduce the risk of both diseases.

4. Medical Monitoring: Individuals with Parkinson’s disease should undergo regular check-ups that

include skin examinations to monitor any changes closely.

A healthy awareness of the symptoms is crucial for early detection and treatment. You can learn more about the signs and symptoms of melanoma by discussing with your healthcare provider and making sure you receive regular screening.

What to Do If You Notice Concerning Signs

1. Consult a Doctor: If you notice any changes in moles or skin lesions that worry you.

2. Skin Examination: Ask your doctor to perform a total skin examination to look for signs of skin cancer.

3. Early Detection: Early detection is key; inform your doctor about any new or changing moles, sores, or skin discolorations.

4. Regular Check-ups: Regular dermatologist visits can significantly improve the chances of early detection and diagnosis.

Credible resources for more information on melanoma:

• www.ncbi.nlm.nih.gov

• UCLAHealth.org

• Cancer.org

• Cleveland Clinic

Back to Basics: Support Groups

PRO started with a single support group in Portland in 1980. Four decades later, they are still our backbone. Why have support groups remained so important?

THEY PROVIDE:

Emotional Support: A nurturing space where people can express feelings, fears, and struggles with-

out judgment, receiving empathy from others who can relate.

Information Sharing: Members can exchange valuable information, resources, and practical advice, helping navigate complex situations.

Validation: Whether you have PD or are a care partner, shared stories help validate experiences and

feelings. Knowing that you are not alone makes a huge difference.

Social Connection: Support groups foster a sense of belonging and camaraderie. They can combat feelings of isolation and loneliness.

Curious about joining a support group or want to get one started where you live? Reach out!

Area Group Meetings

Our peer-led groups are meeting in person, online, and hybrid. If a group is hybrid, you can join via Zoom or in person. We also have PRO staff hosted meetings for all clients and carepartners needing support or engagement.

GENERAL INTEREST PD GROUPS

All Area General - Zoom

1st Wed, 1:00 pm

PRO, 800.426.6806

Albany - In Person

2nd Wed, 4:00 pm

Lynn, 541.936.6154

Ashland - In Person

3rd Wed, 3:30 pm

Laurie, 650.575.8434

Gail, 479.420.8939

Astoria - In Person

2nd Mon, 1:00 pm

Donna, 503.738.5295

Beaverton - In Person

1st Thur, 12:00 am

Nia, 971.727.3532

Bend - In Person

3rd Wed, 2:00 pm

Jess, 541.668.6599

Canby - In Person

1st Mon, 2:00 pm

Shirley, 503.380.1712

Clackamas - In Person

3rd Tue, 3:00 pm

Kim, 503.698.1600

Coos Bay - In Person

2nd Thur, 1:00 pm

Aaron, 541.808.1336

Corvallis - Hybrid

2nd Tue, 11:00 am

Betty, 541.760.1737

Eugene/SpringfieldHybrid

2nd Tue, 10:30 am

Dave, 541.686.8615

Florence - In Person

4th Thur, 1:00 pm

JoAnne, 541.633.3330

Gresham - In Person

2nd Tue, 2:00 pm

Kevin, 503.278.0516

Hermiston - In Person

3rd Wed, 1:30 pm

Carol, 541.720.4256

Hillsboro - In Person

2nd Mon, 2:30 pm

Mark, 503.718.7484

Klamath Falls - In Person

3rd Tue, 1:00 pm

Ron, 541.591.0686

Kate, 541.882.3928

La Grande - In Person

1st Thur, 4:00 pm

Kate, 541.969.0883

Medford - In Person 3rd Sat, 12:00 pm Curt, 541.601.0602

Medford, Rogue Valley

Manor - In Person 3rd Tue, 1:30 pm Meridel, 541.857.6605

Newberg - In Person 3rd Thur, 10:00 am Marshall, 503.550.7670

Pendleton - In Person 2nd Tue, 1:00 pm Michelle, 503.758.9648

Providence PortlandZoom 2nd Tue, 10:00 am Theresa, 971.358.9499

Redmond - In Person 2nd Mon, 1:00 pm Ginny, 541.548.6310

Roseburg - In Person 2nd Mon, 1:30 pm Sandy, 541.430.1286

Salem - In Person 2nd Tue, 1:30 pm Jayne, 503.930.4239

Sherwood - In Person 3rd Thur, 1:00 pm Nia, 971.727.3532

The Dalles - In Person 1st Thur, 10:45 am Chad, ChadSw@mcmc.net

Tigard - In Person 2nd Wed, 10:00 am Jane, 630.564.2624 Caren, 336.202.6601

Tillamook - Hybrid 2nd Thur, 2:00 pm Randy, 314.458.1970

Vancouver, WA - In Person 4th Mon, 1:00 pm Jan, 360.433.6400

West Vancouver, WAHybrid 3rd Fri, 1:00 pm

Hope, 518.265.0340

Pat, 360.823.6683

West Linn - In Person 2nd Thur, 1:30 pm Tiffany, 503.557.4704

INTERESTED IN HELPING TO START A NEW SUPPORT GROUP FOR YOUR COMMUNITY? PRO PROVIDES RESOURCES, TRAINING, AND ONGOING ADMINISTRATIVE SUPPORT FOR THE VOLUNTEER GROUP FACILITATORS IN OREGON AND SW WASHINGTON. CONTACT NIA (NIA@PARKINSONSRESOURCES.ORG) FOR MORE INFORMATION!

Area Group Meetings

Continued from Page 10

SPECIAL INTEREST GROUPS

Alternative ApproachesZoom

2nd Tue, 7:00 pm (alternate months)

Tasha, 503.788.2333

Beyond Parkinson’sZoom

Care Partner Loss Group

2nd Wed, 3:00 pm

Libby, 541.345.2988

Caring for a Parent - Zoom

Care Partner Group

3rd Thurs, 5:00 pm

PRO, 800.426.6806

Eugene/Springfield YOPD <50- Zoom

3rd Wed, 6:30 pm

Libby, 541.345.2988

MSA/PSP - Zoom

4th Sat, 10:30 am

Akiko, 503.853.9584

CARE PARTNER GROUPS

All Area Care PartnerZoom

4th Wed, 1:00 pm

PRO, 800.426.6806

Ashland - Zoom

Care Partner Group

1st & 3rd Fri, 9:30 am

Ann, 415.279.8754

Astoria - In Person

Care Partner Group

4th Tue, 1:00 pm

Donna, 503.738.5295

Dementia and PD - Zoom

Care Partner Group

1st Thurs, 1:30 pm

PRO, 800.426.6806

AM Women Care Partners - Hybrid

Care Partner Group

1st Tues, 11:00 am

Martha, 503.830.7246

Eugene/Springfield - Zoom

Care Partner Group

4th Tue, 1:30 pm

Carla, 541.515.6604

Lewy Body DementiaZoom

Care Partner Group

2nd Sat, 1:00 pm

4th Wed, 10:00 am

Kathy, 971.222.7526

Newly Diagnosed < 3 yrsZoom

2nd Wed, 1:30 pm

PRO, 800.426.6806

PD without a PartnerZoom

4th Thurs, 1:00 pm

Sheri, 503.348.2665

Portland YOPD Happy Hour - Zoom

3rd Fri, 4:30pm

Jeff, jeff.lasley@gmail.com

Women with PD - Zoom

1st Mon, 5:00 pm

Nicol, 253.226.4069

MSA/PSP - Zoom

Care Partner Group

3rd Fri, 12:00 pm

PRO, 800.426.6806

Portland - Zoom

Care Partner Group

1st Tue, 7:00 pm

Jennifer, 503.318.5283

Women Care PartnersZoom

Care Partner Group

1st Wed, 3:00 pm

Mary, 503.579.2792

Vancouver, WA - In Person

Care Partner Group

1st Mon, 1:00 pm

Jan, 360.433.6400

Vancouver, WA - Zoom

Care Partner Group

2nd Fri, 1:00 pm

Diana, 360.892.1985

NEW SUPPORT GROUP FOR TIME OF LOSS

Beyond PD Support Group meets online on the 2nd Wednesday of each month at 3pm. This meeting is for people who have lost someone to Parkinson’s recently. It is a small, newly formed group that is welcoming new members. Please contact Libby Kennard for information - 541.345.2988.

Evaluate PD

Have you been diagnosed with Parkinson’s disease in the last three years? You may be eligible to participate in a research study.

EVALUATE-PD (IRB #23247) is investigating changes in people with Parkinson’s disease (PD) using a home monitoring system. Your participation in the study will consist of an initial screening assessment and a 2-hour baseline visit, followed by an installation of study equipment in your home, and requires both a participant with PD and a study partner to participate. For one year, you will be asked to use the system in a number of ways, such as wearing a watch-like device, using an electronic pillbox, and completing

weekly online questionnaires. At the end of the study, there will be a final 2-hour study visit.

You may be eligible if you:

• Have received a diagnosis of PD within the past 3 years

• Have a study partner (someone that lives inside the home or spends 3+ hours per week with the participant) available

• Are comfortable using a home computer and have internet access

For more information, please contact the study team at (503) 4184387 or PDResearch@ohsu.edu