The Parkinson's Perspective 2023 Q2

The Parkinson’s Perspective

Two Wheels and a Helmet Can Help Manage Symptoms

I’m fairly confident that our readers here have a good baseline understanding of Parkinson’s disease and the range of symptoms, including tremors, stiffness, and balance problems that are likely to arise as the disease progresses over time. Time and again, I’m struck by how resilient many in this community are – facing down adversity while arming yourself with useful tools

You might think that cycling as a form of exercise is counter intuitive for anyone who may be prone to balance concerns – but this low-impact aerobic exercise has many potential benefits for people with Parkinson’s disease. Add in appropriate safety features and adaptive equipment and you might be ready to try a spin around the neighborhood!

IF YOU ARE NEW TO PRO OR NEED A REFRESHER ON PARKINSON’S DISEASE, PLEASE CHECK OUR VIRTUAL AND IN PERSON EDUCATION PROGRAMS ON PAGES 2-5

– such as education, community, support, all while embracing lifestyle modifications to help manage symptoms and improve quality of life. One such lifestyle modification that has been shown to be beneficial is regular exercise, and in particular, bicycling.

Improved Motor Function

One of the hallmark symptoms of Parkinson’s disease is difficulty with movement, which can manifest as stiffness, rigidity, tremors, and slow or shuffling gait. Research has shown that cycling can improve motor function and alleviate some of these symptoms. For example,

a 2011 study published in the journal NeuroRehabilitation found that cycling improved gait and reduced tremors in people with Parkinson’s disease. Another study published in the Journal of Sports Sciences found that cycling at high intensity actually improved balance and reduced falls in people with Parkinson’s disease.

The benefits observed are likely due to several factors. First, cycling provides a low-impact workout that is gentle on the joints and muscles, which is important for people who may be more susceptible to injury. Second, cycling requires coordination and balance, which can help improve these skills and, finally, the repetitive, rhythmic exercise is thought to help improve motor control and muscle memory.

Increased Cardiovascular Fitness

In addition to improving motor function, cycling can also help improve cardiovascular fitness. Car-

(Continued on page 6)

Some of the details on these (and other programs) are still being finalized as we go to print. Please check our website (parkinsonsresources. org) or the event registration site (pro.eventbrite.com) for the latest information! It is critical that you register, even for free programs so that we may gauge interest, plan materials and send links for virtual programs.

Want to stay current with updates and new program additions? Sign up for our email - link is on the website! We send two emails a month with a focus on activity and services that are targeted for your interests and local geography.

WELLNESS

PRO Wellness Classes | Fill your week with a variety of classes!

Registration Required: www.pro. eventbrite.com

Communication Skills Group

New session starts April 14th

Join at any time - Fridays, 11AM -------- VIRTUAL --------

Parkinson’s can take a toll on voice strength and clarity – research shows that people with Parkinson’s speak about 60% less than similarly aged people without Parkinson’s! Join us to see if practice might help you beat these odds.

This virtual series is led by Julia Robinson, Speech-Language Pathologist from Legacy Health. Just as you exercise your body to maintain movement, participating in voice exercise will help to maintain your voice clarity, volume and breathing! This class is great whether you

have participated in speech therapy or not, practicing within a group setting allows for some fun social connection as well! This program is offered in partnership with Legacy Health.

Singing

3rd Thursday of the month (April 20th, May 18th, June 15th)

-------- HYBRID --------

All are welcome. We’ll have a zoom link to share for those who are unable to join us in person at the PRO offices in Beaverton. Participants who join the fun virtually will also receive a song list and lyrics in advance of the group.

You will sing along with our gifted and beloved volunteers, Michelle Garratt, Jill Williams and Kera Magarill!

Movement Classes w/LauraLou

New sessions start first week of April

-------- VIRTUAL

Offered three times a week, our chair-based program instructed by LauraLou is on Monday, Wednesday or Friday. Registration for each day is separate. These virtual classes are ideal if you are unsteady on your feet or feel safer in a seated position. The class provides a full range of movement as well as communication support.

Classes fill quickly, but don’t fret. If they are full, we can help you find other options or put you on the waitlist for an opening. Sliding scale registration with scholarships available.

Movement Class in McMinnville

Starts April 6th

Thursdays 11-12:30PM

-------- IN PERSON

PRO Movement classes continue in-person in McMinnville. We are working with Bill Wilson to instruct the weekly program. Participants must register to join the program. There is a sliding scale registration fee with scholarships available.

Mindful Meditation Class

Wednesdays at 12:15 - 1PM

Ongoing, start any time!

-------- VIRTUAL

Mindfulness is a capacity that we all have. The capacity to be aware and present to every moment of our lives without judgment, without striving. The Sitting Practice of Meditation helps us relate to the breath and to the mind. When we practice, we uncover our innate capacity of mindfulness.

This class is about working with the stressors in our life to the best of our ability. Using the breath as our guide allows us to discover our innate capacities of compassion and wisdom to work with our lives. Instructor Martha McJacobs has been a mindful practitioner and teacher for over 40 years. Her passion is to help people experience life in the present moment with courage and kindness.

Carepartners are welcome to attend. Thank you to Washington County for sponsoring.

EDUCATION

IN-PERSON, VIRTUAL or HYBRIDREGISTRATION REQUIRED

Parkinson’s 101

Tuesday April 25th

-------- IN PERSON --------

1:00PM Scappoose Senior Center. Have you recently been diagnosed? Are you concerned about yourself or a loved one? This program may help you understand what Parkinson’s is and is not and why it is difficult to diagnose. This presentation will provide an overview of PD, what the signs and symptoms are, and what treatment options and resources are available. We will also discuss the importance of exercise along with some guidelines and strategies for managing symptoms.

Optimizing Communication with Your Healthcare Team

Beaverton Office

Thursday, May 4th 12PM

-------- HYBRID --------

Join us for a presentation and panel discussion with representatives from several area healthcare systems. The goal is to provide attendees with knowledge and insights that will help navigate the complexity of today’s healthcare world. Panelists will cover how to best access clinic services, explain the role of various healthcare professionals you may encounter in a clinic setting, discuss how to prepare for a visit with your neurologist, and explain what the most appropriate communication method is to share concerns with your healthcare team.

Preparing for the Unexpected Vancouver, Boomerang Therapy Works

Monday, May 15th 1PM -------- IN PERSON --------

Illness, family obligations, and medical needs can arise unexpectedly for any of us. For those crucial roles as caregivers (for ourselves

or others), it is important to plan ahead. Mike Mulligan, Community Health Education Coordinator will facilitate this workshop with participants as they identify steps to take to get prepared. Topics include rallying support and identifying roles for family and friends, finding care resources, and gathering and organizing crucial information. During this in-person event each participant will receive a packet that will help as a guide.

Wellness

Day

May 20th 9:30AM

Beaverton Office -------- IN PERSON --------

This day will be filled with movement but also relaxation and fun! Start with a 25-minute yoga session, followed up with a short hike using trekking poles, end with a 10-minute mindfulness practice. Resting your body is an important part of your weekly routine, it provides the ability to regenerate and restore! Additional complementary and alternative therapies will be included in this day of wellness.

LIFT Workshop

Hands-On Learning!

-------- IN PERSON --------

A team of physical therapists will lead you through the proper and safe techniques to transfer your loved one who has mobility issues due to Parkinson’s disease. This program is intended for family care partners only.

Albany - May 23rd 3:30-5PM

-------- IN PERSON --------

Mennonite Village. This program offered in partnership with Kelly Becker, PT, from Synapse Fitness.

Vancouver - Wednesday, June 21th 1PM,

-------- IN PERSON --------

Boomerang Therapy Works, in partnership with Emily Kaemmerlen, Owner and Physical Therapist.

Parkinson’s 101

June 28th, Wednesday 1- 2:30PM Keizer Northwest Senior & Disability Services

-------- IN PERSON --------

Have you recently been diagnosed? Are you concerned about yourself or a loved one? This program may help you understand what Parkinson’s is and is not and why it is difficult to diagnose. This presentation will provide an overview of PD, what the signs and symptoms are, and what treatment options and resources are available. We will also discuss the importance of exercise along with some guidelines and strategies for managing symptoms.

Rural Outreach Initiative Education & Connection

-------- IN PERSON --------

PRO is committed to the expansion of programs and services that meet the needs of those living in rural communities as we continue our initiative for impact by connecting with clients, families, and professionals! Please join us in Prineville or Coos Bay! Or reconnect with PRO staff in Roseburg.

Roseburg Monday, May 8th. Reconnect with PRO Staff Libby Kennard, Program Lead and Peggy Rost, Social Worker, will visit the Roseburg Support Group with a special discussion for care partners.

We will also be hosting a professional networking in Roseburglet’s get connected. May 8th 4:306PM Location TBD

Email: Libby@parkinsonsresources. org to RSVP or if you have questions.

Basics and Beyond (in-person)

Calendar of Events

Continued from Page 3

Whether you are recently diagnosed, going through transitions as your symptoms change, or are a family member of someone with Parkinson’s disease, we hope to meet you! This lecture will help you piece together an understanding of this complex neurological condition. Please check pro.eventbrite. com to register and confirm dates.

Coos Bay Wednesday, May 31st

1-2:30PM Presented by, Libby Kennard, Program Lead

Prineville Thursday, June 15th3:30-4:30PM Presented by, Jess Joseph, Program Coordinator

Improve Parkinson’s disease symptoms with Exercise

Friday, June 9th 11AM - 12PM Campbell Community Center in Eugene.

-------- IN PERSON --------

In Parkinson’s disease, one of the best interventions is exercise. Exercise helps relieve symptoms and could help slow the progression. Learn why some types of exercise may be better than others. Be ready to create a plan to feel better.

Register via Eugene Parks and Recreation or call Libby Kennard, 541.345.2988

Managing Neurogenic Orthostatic Hypotension

April 13th 2PM

-------- VIRTUAL

In this final episode of our Autonomic Dysfunction Series, Jean Donovan, RN, MSN, MAPA, PhD will share her journey with Neurogenic Orthostatic Hypotension and provide details on how she manages.

Jean will address such practical topics as how to take your blood pressure (BP), why it is important to track and monitor your BP, as well as how to interpret and document your data. The first 3 presentations in this series are on our YouTube channel if you missed any.

Presented by Jean Donovan, RN, MSN, MAPA, PhD has had a 15 year career in clinical nursing a 20 year career teaching and serving in administrative academic positions. She retired in 2013 due to a diagnosis of Parkinson’s Disease. Last year she was diagnosed with Dysautonomia (nOH).

Living Well with Parkinson’s

April 11 & 25, 7 - 8:30PM -------- VIRTUAL --------

Part 1: Focusing your care team, the essential components of an exercise plan, when to seek out therapies, and what to know about nutrition and diet.

Part 2: Discuss the importance of socialization, self-care, and education for living well with PD and healthcare documentation to help you monitor, manage, and communicate with your care team.

PRO Staff members Libby Kennard and Peggy Rost will be presenting this program in cooperation with Oregon Care Partners.

Register Here: https://oregoncarepartners.com

DBS Conversations

Friday, April 28th 4-5:30PM

-------- VIRTUAL --------

This group will be casual in nature with opportunities to hear real experiences of people with Parkinson’s who have had DBS. During this conversation Dr. Craigan Griffin, of Pacific Crest Neurology will be joining us to answer questions. Dr. Griffin specializes in evaluation and treatment of neurological disorders in Bend Oregon. He will share his expertise about the DBS process, aftercare and who is a good candidate.

Managing Anxiety in Parkinson’s disease

Two part series: May 10th and 17th, 1 - 2PM -------- VIRTUAL --------

Both sessions will be presented by: Christopher Eilers, MA, LPC. Mr. Eilers is an Older Adult Behavioral Health Specialist in Lane County. He provides many training sessions to healthcare providers and the community members.

Part 1: May 10

Anxiety is a normal part of life until it begins to interfere in our quality of life. When we avoid important or enjoyable activities out of fear we can increase our risk for both mental and physical health conditions. Learn to identify symptoms of anxiety, and manage worries and fears that can lead to avoidance.

Part 2 May 17

Continuing to explore ways to manage anxiety from Part 1. Time for address your questions and have discussions about positive approaches to use daily.

Advanced Care Partner Workshop for Family Caregivers

Thursday June 15th & 22nd --------

VIRTUAL

The advanced stages of Parkinson’s disease may last anywhere from several months to several years. Intensive, around-the-clock assistance is usually required. Even with the understanding that Parkinson’s disease is progressive, it is hard to be prepared.

This two-part educational workshop will prepare family members to approach the advanced stages of the disease with more confidence. Recognizing every family situation is unique, the program will educate caregivers about the issues and decisions impacting quality of life. Part 1, Movement Disorder Specialist discussing Medical and Cognitive Changes. Part 2, Elder Law Attorney and Hospice representative.

Table Tennis

IN PERSON

There is strong evidence to support Ping Pong for Parkinson’s as therapeutic with benefits as a form of exercise and helpful with eye-hand coordination.

Join us Monday and Wednesday afternoons for a session with Coach Rob and a little friendly competition at the PRO Beaverton office.

Table Tennis for PD started this fall at the West Linn Senior Center! Tuesdays 1:00PM. Drop in or all Nia (503.594.0901) for details.

Table tennis opportunities exist for interested players in Bend and Eugene as well. Please be in touch so that we can connect you!

Summer Hikes -------- IN PERSON --------

Beaverton Hike - Wednesday, June 7th, 9:30 AM. Meet at PRO office in Beaverton for the first hike of the year with Sukhee So Chinn, DPT, PT. Sukhee has been leading hikes with PRO for over 9 years! She is happy to hike with you but also answer your questions about balance, exercise, and staying active with PD. PRO hikes are a great place to meet new people and socialize as you exercise! Hikes are generally 3 miles total, you set the pace for yourself and abilities!

Eugene Hikes - please connect with Libby in our Mid Valley location for details on joining the wonderful community of PD hikers on trails throughout Lane County.

Bend Summer Pole Trekking with Nancy Nelson - June 21st 10 AM -12:00 PM. Engage with a personal trainer who specializes in working with Parkinson’s clients, using trekking poles and can answer questions about balance, exercise, and staying active with PD.

BOARD OF DIRECTORS

Chair: Kelly Sweeney

Vice Chair & Treasurer: Justin N. Smith

2nd Vice Chair: Kristin Whitney

Secretary: Todd Bauman

3rd Vice Chair: Gregg Giboney

Directors at Large:

Laurie Ayers Pino

Larry Bradley

Melody Boyce

David DeFiebre

Barney Hyde

Jerry Hulsman

George Lee

Chad Naganuma

Joseph Quinn, MD

Richard Rosenbaum, MD

Ann Usher

Two Wheels and a Helmet Can Help Manage Symptoms

(CONTINUED FROM PAGE 1)

diovascular fitness refers to the ability of the heart and lungs to supply oxygen and nutrients to the muscles during physical activity. Improved cardiovascular health has several benefits for people with Parkinson’s disease. For example, it can improve endurance and energy levels, which can help with daily activities such as walking, shopping, and household chores. It can also reduce the risk of fatigue and improve cognitive function, including attention, memory, and executive function.

Mental Health Benefits

Exercise in general has a positive effect on mental health, and cycling is

provide an opportunity for people with Parkin son’s disease to con nect with others who share similar interests and challenges. Group cycling events can also provide a sense of ca maraderie and moti vation to stick with an exercise routine.

Getting Started

If you are interested in trying bicycling as a form of exercise for Parkinson’s disease, it’s important to first check with your healthcare provider to ensure the activity is safe

WE HOPE YOU MAKE PLANS TO JOIN US AT PEDALSUPPORT THIS JUNE 17TH! HELP RAISE DOLLARS FOR LOCAL PROGRAMS AND SERVICES WHILE JOINING WITH OTHER NOVICE AND EXPERIENCED CYCLISTS ALONG THE BANKS-VERNONIA TRAIL. DETAILS AT WWW.PEDALSUPPORT.ORG

In addition to choosing the right bike, please give care to assemble and wear appropriate safety gear, such as a helmet and small repair kit, and to follow traffic rules and regulations. Cycling in a group or with a partner can also provide an added layer of safety and social support – we hope to see you on the road!

Resources:

• “The effects of cycling on gait and tremor in Parkinson’s disease” by Alberts JL et al. published in NeuroRehabilitation in 2011.

no exception. Regular exercise can improve mood, reduce anxiety and depression, and enhance cognitive function. Bonus points for being outdoors where nature also exerts her positive influence! Whether cycling solo or in a group, participants experience a sense of independence and freedom, which can boost self-esteem and confidence.

Social Interaction

Social isolation and loneliness are common among people with Parkinson’s disease, and regular exercise provides an antidote with opportunities for social interaction and support. Cycling clubs and events

and appropriate for you. Once you get a green light, you will want to start slowly and gradually increase intensity and duration. Remember, no one starts anything new as an expert!

Choose a safe and comfortable bike that is appropriate for your fitness level and abilities. A recumbent bike may be a good option for people with balance or mobility issues, as it provides a low-impact workout in a seated position. Many bike shops carry recumbents or adaptive modifications and may provide a trial or short-term rental while you explore what works best for you.

• “Aerobic exercise improves mood, cognition, and language function in Parkinson’s disease” by Ridgel AL et al. published in Neurorehabilitation and Neural Repair in 2012.

• “Effects of exercise on non-motor symptoms in Parkinson’s disease” by Schenkman M et al. published in Clinical Therapeutics in 2013.

• “Cycling for Parkinson’s disease: does aerobic intensity matter?” by Ellis T et al. published in the Journal of Sports Sciences in 2013.

• “Exercise in Parkinson’s disease: an overview of the evidence” by van Nimwegen M et al. published in Journal of Parkinson’s Disease in 2011.

Other Days, Other Ways!

Interested in ways you can support PRO while you are going about your daily business? Here are a few ideas. For more details, visit www. parkinsonsresources.org - Ways to Donate.

Give While you Get! - Link your Fred Meyer rewards card to PRO and a Percentage of your sales will be donated to us - and - you get to keep your loyalty points! Get started by logging in to your rewards account.

Oregon Bottle Drop - Help harness those returnable bottles and cans into support for the Parkinson’s disease community. Last year PRO supporters generated $16,000 in donations with bottles and cans. Contact your local PRO office for specially tagged collection bags to

We Love Our Supporters!

The Bitchins high-powered funk and rock raised the roof once again! On Saturday, February 4, musicians from across the country assembled at the Diversity Café in Forest Grove to perform their annual concert benefiting PRO in honor of Mr. Funk himself, Phil Hodapp. This year’s concert raised almost $3,000 for local programs and services! Our sincere gratitude to The Bitchins, Packed House Entertainment, and Diversity Café.

Do you have an idea for a fundraiser among your friends and community? Please be in touch with Jeannine Walker, Special Events and Sponsorship! 800.426.6806.

Workplace Giving - Many employers support your charitable contributions through a variety of avenues including a workplace giving campaign, matching donations and even paid volunteer time. Check with your HR department to learn what options for support are at your company.

Scheduled ContributionsWhether creating a recurring charge on your favorite credit card, or setting up a monthly payment via your checking account, with a relatively small monthly gift to PRO, your contributions will soon add up to a big impact for our community! Call Ginger at 800.426.6806 for details to get started.

2022 Tributes and Memorials

Parkinson’s Resources of Oregon gratefully acknowledges the loving family and friends who made a generous contribution in memory of these individuals in 2022. If we missed listing your loved one, please let us know so we can correct our records. (Please note that this listing does not include tributes made through Sole Support.)

Doc Adanis

Debbie Andrews

Alan “Scott” Anton

Bob Ashton

Sandy Ayers

William Baer

Milton Bernhard

Jean Bishendon

Jerre Blakey

David Bluhm

Brian Bronson

Lucien Burke

Clarence Buse

Bill Calder

Helen Campbell

Bob Clark

Chris Cynar

Harriet deFiebre

Mary Dick

John Dinsmore

Patricia Fahey

Cliff Fountain

Vicky Grosser

Henry Hamm

Priscilla Heeter

James Hill

Gary Hoffman

Irwin Holzman

Vicki Howell

Roger Howlett

Larry Hunt

Scotty Hunt

James Johnson

John Kauppi

Mark Keroes

John Kerrigan

David Kilber

Shirley Knodel

Bob Kollas

LeeAnn Labby

Vernon Lang

Roger Lee

Warren Levecke

Alan Levine

Spencer Lewis

Britt Lindstrom

Margie Lussier

Roger McLain

Ronald Metzger

Jerry Mills

Ivan Minderhout

Marge Mitchell

Miriam Myers

Robert Myers

Theodore Oakberg

Jetta Ollek

Larry Perry

Doug Pershall

Bheula Peterson

Mark Potts

Bill Reddell

Marlan Rohlena

Jerry Schmunk

Randy Schoning

Arthur Schroeder

Melissa Schwieger

Ronald Sievers

Thomas Skinner

Al Small

Preston Smith

Marsha Sorum

Michael Stoltz

Jerry Swing

Howard Turner

Robert Velander

Albion Vickery

John Watson

Kevin Watts

Bill Weaver

Stewart Weitzman

Ivy Welsh

Dennis Wessels

Terry White

Kenneth Williams

Roger Wold

Joe Wood

Donna Yoss

Karen Zyp

3rd Annual PeDal Support

LET’S RIDE TOGETHER

Registration is now open for the 3rd Annual PeDal Support bicycle ride Saturday, June 17, 2023. Join us for a self-paced ride along the beautiful Banks-Vernonia trail. Ride for your health, the joy of the outdoors, to raise dollars for PRO, and awareness for Parkinson’s disease.

Whether you choose to start with lunch at Anderson Park in Vernonia, or make it your turn-around point, there are options for all fitness levels. Don’t want to ride by yourself? There will be groups leaving from each trailhead at specific times.

Lunch is included with the registration fee. Raise $100 and earn the exclusive PeDal Support shirt!

Don’t ride, yet want to help? See the

Pedal Support website for the sponsor opportunities available.

Register at pedalsupport.org

Patterned for Parkinson’s Central Oregon

Saturday May 6, 2023

11:00 am Tetherow Resort, Bend Oregon

Paris, New York, Milan? No, Bend!

Following the huge success of our Portland event last Fall, we are bringing the Patterned for Parkinson’s fashion show runway to Central Oregon. Patterned for Parkinson’s Adaptive Fashion Show features models from our Parkin-

son’s community wearing clothing adapted for independence. The event showcases stylish outfits for the office, outdoors, and a night on the town that make getting dressed easy and less frustrating.

Join us for an unforgettable luncheon at the beautiful Tetherow Resort for Patterned for Parkinson’s Fashion Show and silent auction. Tickets and tables are

available at https://pror.ejoinme. org/Patterned4PD2023 or call 800.426.6806 to reserve your place. Sponsorship opportunities are available. We are accepting silent auction items until April 25. Questions? Contact Jeannine at jeannine@parkinsonsresources.org or 800.426.6806

What

Can I Expect at a Support Group?

Over the years, Parkinson’s Resources of Oregon has devoted significant care and attention to our network of peer and professional led support groups. From screening volunteers, providing ongoing training, technical support and yearround administrative functions, we have never felt stronger about the power and empowerment that can arise from telling your story and learning from others experiencing a shared challenge.

We work closely with our volunteers and the quality of the group experience reflects that. Support groups are a safe place for you to express your fears and concerns and to gather strength from the knowledge of others. PRO groups vary widely in terms of meeting focus and format, yet all adhere to basic

guidelines put in place to both protect the rights of attendees and ensure that ll have access to a quality experience. Yes, sometimes group members need to talk about some of the more difficult aspects of living with PD. But groups are much more than that - with many also planning social gatherings, group outings and celebrating successes.

Because of this variety, we strongly suggest that you contact either PRO or the group leader prior to attending your first meeting. This will help you set your expectations and identify the group to best fit your particular needs.

Support Group Volunteer Recruitment

Support groups within the PRO network rely upon volunteers to help organize and facilitate meetings. In fact, before a new group can form, someone (or 2 or 3) must step forward and volunteer! The men and women who have leaned into this role truly are the backbone of this great community collectively volunteering hours of volunteer services last year!

If you would like to explore facilitating a group in support of your community, please be in touch with Nia Jones, Program Coordinator, 800.426.6806. Nia can answer your questions and provide you with a facilitator application as you launch a rewarding volunteer role!

Area Group Meetings

Our peer-led groups are meeting in person, online, and hybrid. If a group is hybrid, you can join via Zoom or in person. We also have PRO staff hosted meetings for all clients and carepartners needing support or engagement.

NOTE: Please note, PRO requires groups to follow current COVID-19 guidelines and the guidelines of the meeting place. Guidelines will vary by county depending on risk level. Please choose a Zoom or staff facilitated meeting if you are unable to comply. Thank you for understanding!

GENERAL INTEREST PD GROUPS

All Area General - Zoom

1st Wed, 1:00 pm

PRO, 800.426.6806

Albany - In Person

2nd Wed, 4:00 pm

Lynn, 541.936.6154

Ashland - Zoom

3rd Wed, 3:00 pm

Laurie, 650.575.8434

Gail, 479.420.8939

Astoria - In Person

2nd Mon, 1:00 pm

Donna, 503.738.5295

Beaverton - Zoom

1st Thur, 9:00 am

Charlene, 503.421.5058

Bend - In Person

3rd Wed, 2:00 pm

Maureen, 513.678.6422

Canby - In Person

1st Mon, 2:00 pm

Shirley, 503.380.1712

Clackamas - In Person

3rd Tue, 3:00 pm

Kim, 503.698.1600

Coos Bay - In Person

2nd Thurs, 1:00 pm

Aaron, 541.808.1336

Corvallis - Hybrid

2nd Tue, 11:00 am

Betty, 541.760.1737

Eugene/SpringfieldHybrid

2nd Tue, 10:30 am

Dave, 541.686.8615

Florence - In Person

4th Thur, 1:00 pm

JoAnne, 541.633.3330

Gresham - In Person

2nd Tue, 2:00 pm

Kevin, 503.278.0516

Hermiston - In Person

3rd Thur, 1:45 pm

Carol, 541.720.4256

Klamath Falls - In Person

3rd Tue, 1:00 pm

Ron, 541.591.0686

Kate, 541.882.3928

La Grande - In Person

1st Thur, 4:00 pm

Kate, 541.969.0883

Lebanon - In Person

3rd Thur, 3:00 pm Maria, 541.220.1456

Medford - In Person

3rd Sat, 11:00 am PRO, 971.727.3532

Medford, Rogue Valley Manor - In Person

3rd Mon, 1:30 pm Meridel, 541.857.6605

Newberg - In Person

3rd Thur, 10:00 am Marshall, 971.344.4384

Pendleton - In Person

2nd Mon, 1:00 pm

Jennifer, jennifercalhoun80@gmail.com

Providence PortlandZoom

2nd Tue, 10:00 am

Theresa, 503.216.4903

Redmond - In Person

2nd Mon, 1:00 pm

Ginny, 541.548.6310

Roseburg - In Person

2nd Mon, 1:30 pm

Sandy, 541.430.1286

Salem - In Person

2nd Tue, 1:30 pm

Jayne, 503.930.4239

Sherwood - In Person

4th Thur, 1:00 pm

Teresa, 503.625.9481

The Dalles - In Person

1st Thur, 10:15 am

Chad, ChadSw@mcmc.net

Tillamook - Hybrid

2nd Thur, 2:00 pm

Randy, 314.458.1970

Vancouver, WA - In Person Mon, 1:00 pm

Jan, 360.433.6400

West Vancouver, WAHybrid

3rd Fri, 1:30 pm

Hope, 518.265.0340

Pat, 360.608.9818

West Linn - In Person

2nd Mon, 1:00 pm

Tiffany, 503.557.4704

INTERESTED IN HELPING TO START A NEW SUPPORT GROUP FOR YOUR COMMUNITY? PRO PROVIDES RESOURCES, TRAINING, AND ONGOING ADMINISTRATIVE SUPPORT FOR THE VOLUNTEER GROUP FACILITATORS IN OREGON AND SW WASHINGTON.

Area Group Meetings

Continued from Page 10

SPECIAL INTEREST GROUPS

Alternative ApproachesZoom

2nd Tue, 7:00 pm (alternate months)

Tasha, 503.788.2333

Caring for a Parent - Zoom Care Partner Group

3rd Thurs, 5:00 pm

PRO, 800.426.6806

Eugene/Springfield YOPD

<50- Zoom

3rd Wed, 6:30 pm

Libby, 541.345.2988

MSA/PSP - Zoom

4th Sat, 10:30 am

Akiko, 503.853.9584

CARE PARTNER GROUPS

All Area Care PartnerZoom

4th Wed, 1:00 pm

PRO, 800.426.6806

Ashland - Zoom Care Partner Group

1st & 3rd Fri, 9:30 am

Ann, 415.279.8754

Astoria - In Person Care Partner Group

4th Tue, 1:00 pm

Donna, 503.738.5295

Dementia and PD - Zoom

Care Partner Group

1st Thurs, 1:00 pm

PRO, 800.426.6806

Early Stage Women’sZoom

Care Partner Group

1st Tues, 11:00 am

Martha, 503.830.7246

Eugene/Springfield - Zoom

Care Partner Group

4th Tue, 1:30 pm

Carla, 541.515.6604

Newly Diagnosed < 3 yrsZoom

2nd Wed, 1:30 pm

PRO, 800.426.6806

PD without a PartnerZoom

4th Thurs, 1:00 pm

PRO, 800.426.6806

Portland YOPD Happy Hour - Zoom

3rd Fri, 4:30pm

Jeff, jeff.lasley@gmail.com

Veteran’s PD GroupZoom

2nd Fri, 10:00 am

Kristi, 503.220.8262 x58594

Women with PD - Zoom

1st Mon, 5:00 pm

Nicol, 253.226.4069

Lewy Body DementiaZoom

Care Partner Group

2nd Sat, 1:00 pm

Kathy, 971.222.7526

MSA/PSP - Zoom

Care Partner Group

3rd Fri, 12:00 pm

PRO, 800.426.6806

Portland - Zoom

Care Partner Group

1st Tue, 7:00 pm

Jennifer, 503.318.5283

Tigard Women - Zoom

Care Partner Group

1st Wed, 3:00 pm

Mary, 503.579.2792

Vancouver, WA - In Person Care Partner Group

1st Mon, 1:00 pm

Jan, 360.433.6400

Vancouver, WA - Zoom

Care Partner Group

2nd Fri, 1:30 pm

Diana, 360.892.1985

Being Well with Chronic Illness: A Guide to Joy & Resilience with Your Diagnosis Book Review

Written by Kat Hill and Nancy Peate, two women with Parkinson’s disease, Being Well with Chronic Illness is for anyone who wishes to find wellness amid challenging circumstances. The authors combine relevant research with personal stories to describe accessible ways to integrate wellness into living. Their

wellness spiral is a model which illustrates the fluid nature of building and maintaining wellbeing. This book is an excellent guide for those newly diagnosed or looking for a new way to define health. Published by Hatherleigh Press 2022.

info@parkinsonsresources.org

Parkinson’s Resources of Oregon

8880 SW Nimbus Ave Ste B Beaverton, OR 97008

Return Service requested

If

Staying Connected Through Communication

The University of Washington SPEAC Lab is inviting individuals who have Parkinson’s disease (PD) to an-

swer survey questions about their communication experiences. We ask participants to nominate at least one family member, friend, or coworker to also answer survey questions. Your participation will help healthcare providers support people with PD and the important people in their lives to stay connected through communication.

This is an online survey study that will take about 30-45 minutes. A paper survey can also be mailed if you prefer. People with PD and their family / friends / coworkers will complete

SEPARATE surveys, and data are not shared between participants. This study is open to anyone in the U.S.

Each participant will be mailed a $25 check upon survey completion. To participate, visit: https:// sites.uw.edu/speaclab/staying-connected-study/pd/

The person with PD needs to start first and then nominate their family member / friend /coworker to participate. For questions, please contact: speaclab@uw.edu

Thank you for your help! We appreciate your time helping to shape future care for people with Parkinson’s disease.