Parkinson's Perspective 2022 Q2

Volume 42, Issue 2

The Parkinson’s Perspective

Second Quarter, 2022

Reconnect with PRO

WE HOPE TO SEE YOU THIS SPRING!

After two long years of virtual only education and groups, we are excited to invite you to participate in our first live, in-person events of 2022! We may have seen you at a Zoom support group, talked to you through our Helpline or perhaps you participated in one of our wellness or education events. Now it is time to connect with the broader Parkinson’s community and each other!

Reconnect events are being planned for Beaverton, Bend, and Eugene to get started. These three spring events will offer attendees an experience that includes educational presentations, opportunities to meet and engage with local partners sharing their helpful resources, and of course, community coming together.

The program and exhibitors will vary

by location – representing LOCAL support and activity. Each event will have exhibitors and information booths, an education element and exercise demonstrations.

It’s time to engage. It’s time to move forward. It’s time to reconnect!

For more information and to register: PRO.EVENTBRITE.COM

Mid-Willamette Valley

Saturday April 23rd

Bob Keefer Recreation Center Springfield, OR

Metro Portland

Saturday April 30th

PRO Nimbus Office Beaverton, OR

Central Oregon

Saturday May 7th Central OR Community College Bend, OR

While mask restrictions and Covid-19 precautions are loosening, we continue to plan these events with your comfort and safety in mind. Registration will be required in order to provide ample space and avoid crowding. Each event will have arrival times to choose from. Seating will be limited for the presentations.

If you do not see something in your region, keep your eyes out for events later in the year.

Serving OR and S. WA

Mentors Wanted for New Peer-to-Peer Program

CONTACT ALEX ISLAND, HELPLINE & OUTREACH COORDINATOR

A Parkinson’s disease diagnosis can be overwhelming and difficult to navigate as there are so many uncertainties and unknowns. Our experience with outreach calls during the darkest days of the pandemic reminded us and underscored how important connection is. Sometimes, just having an understanding person to talk to can make all the difference. Even as the tightest restrictions on social gathering are easing, we know that we want to continue this important outreach and opportunity for personal contact.

PRO is currently recruiting Peer Mentor Volunteers for the first cohort of our new Peer-to-Peer Program!

If you have a diagnosis of Parkinson’s disease and feel as though you could offer support to a community member who is recently diagnosed, going through a transition, or needing extra support, you could make a great mentor! Mentors will get matched with self-identified community members and with meetings in person or virtual.

Mentors might assist by offering exercise and wellness tips, educational and medical resources, coping and motivational skills, and tools for self-advocacy. Mentors will work one-on-one to help their match feel understood, to offer encouragement, and to help them locate services that can make their lives a little easier and their symp-

toms more manageable. Sound like something you might want to get involved with?

We ask for a one-year commitment, but ultimately your time commitment will be up to you and the needs of the peer with whom you are working. PRO will provide training and reference materials to assist volunteers in this program.

If you are interested in participating in this program, or have any questions, please reach out to Helpline & Outreach Coordinator, Alex Island. alex@parkinsonsresources.org or call 800-426-6806 for an application.

BOARD OF DIRECTORS

Chair: Kelly Sweeney

Vice Chair: Kristin Whitney

2nd Vice Chair: Justin N. Smith

Secretary: Todd Bauman

Treasurer: Gregg Giboney

Directors at Large: Laurie Ayers Pino

Melody Boyce

Greg Chaille

Chris Cline

David DeFiebre

Barney Hyde

Jerry Hulsman

George Lee

Joseph Quinn, MD

Richard Rosenbaum, MD

Your Values, Your Legacy

YOU HAVE THE POWER TO DO GREAT THINGS

Members of our Compass Circle are generous and forward-thinking. They care about the community, and about the future for people with Parkinson’s disease. By remembering PRO in your will or estate planning, you will help people see a future where they can live better with PD. You and your generosity will be long remembered.

People show their generosity in a variety of ways—whether it’s helping a neighbor, advocating for an issue, or making a gift in their will. Everyone has something to give and every act of generosity is appreciated.

And while you may be unsure of a way to support Parkinson’s Resources of Oregon, creating a planned gift is a powerful way to make a lasting impact and legacy with us that won’t cost you anything today.

It’s easy to do. And you don’t have to be a billionaire to do it.

Consider becoming a member of our Compass Circle. Join the many people who have included our organization in their will, trust, retirement plan, or other beneficiary designation. We know that family comes first in long-term planning. You can protect your heirs and still give to charity.

Even if you wish for your legacy gift to remain anonymous, please let us know about your gift intentions. A bequest could be the most important charitable gift you make.

As long as the Parkinson’s community needs us, PRO will be there. Your legacy gift will make sure no one faces PD alone.

Questions? Contact Christine Toth, Director of Individual Giving, at christine@parkinsonsresources. org, or by direct and confidential phone line 503-344-6952.

Research Study on Reducing Hip Fractures

OPPORTUNITY TO JOIN REMOTE RESEARCH STUDY LED BY PD EXPERTS

A team of Parkinson’s experts is recruiting for a new clinical trial in partnership with researchers from across the country. The goal of the study is to help people with Parkinson’s disease or other types of parkinsonism maintain their independence by reducing the risk of hip fractures.

People with Parkinson’s disease or parkinsonism have a much higher risk of hip and other fractures. TOPAZ (Trial of Parkinson’s and Zoledronic Acid) will test if zoledronate, an FDA-approved medication

for osteoporosis (thinning of the bone), can prevent fractures in people with Parkinson’s disease, whether or not they have osteoporosis. Using zoledronate for this purpose is investigational.

You can participate in TOPAZ from the comfort of your home, as it is a completely remote study.

To be eligible, individuals must be at least 60 years of age with no prior hip fracture, and have been diagnosed with any of the following conditions:

• Parkinson’s disease

• Dementia with Lewy bodies

• Multiple system atrophy

• Progressive supranuclear palsy

• Cortical basal degeneration

• Vascular parkinsonism

• or another form of neurodegenerative parkinsonism

If you have any questions, please visit the study website TOPAZstudy.org or email TOPAZ@ucsf. edu, or call directly at (415) 3175748

Is Your Family Ready for Respite Care?

ADAPTED FROM CONSUMER AFFAIRS

According to AARP, more than 53 million adults in the United States provide unpaid care to someone over the age of 50. Long-term caregiving comes with a fairly heavy physical, emotional and economic toll. If you are a primary caregiver for a spouse or aging parent with Parkinson’s disease, you may experience exhaustion, stress, depression and sickness. Your health and well-being are important, and giving yourself a break from those responsibilities can be critical. This is where respite care can help.

Respite care is a type of short-term care that fills in the gaps when a full-time caregiver isn’t available. It can be for a few hours, a few days or even a few weeks, and it usually involves either in-home care or a short stay in a care facility, depending on your needs.

BENEFITS OF RESPITE CARE FOR CAREGIVERS

Caring for an older adult or a person with disabilities can be a fulltime job with little to no time for personal activities. Generally speaking, respite care provides breaks for caregivers, whether they need a few hours of personal time or a few days for a vacation. Here are some ways respite care can help you if you’re a family caregiver.

You get to relax When caring for someone who needs constant support, there can be little time to relax or do something for yourself. Respite care can provide a necessary break during the day. You can use this time how you see fit, doing whatever it is that makes you feel

refreshed. This could include walking in a park, visiting a museum or even taking an uninterrupted nap.

You get social engagement Depending on the mental and physical capabilities of the person you’re caring for, you might get limited social interaction throughout your day as a caregiver. Finding time to meet up with friends, family or other loved ones is very important to your overall happiness.

You get to re-energize Finding the energy to approach each day as a caregiver can be difficult, so respite care is there when a break is needed. Taking time to recharge is a critical part of being a caregiver, so you may need to utilize respite care when you feel drained or emotionally unavailable.

You get peace of mind When caring for someone, your brain is always on alert for a problem. This can lead to overstimulation and never feeling at ease throughout the day. With respite care, someone else is taking care of your loved one for you, which can give you some much-needed peace of mind.

You get to rediscover your sense of self It can be hard to feel like a “normal person” when taking care of someone all day, every day. Many

people utilize respite care to get the personal space they need to pursue their hobbies and interests while still caring for their loved ones.

Respite care gives you the freedom to still do the things you love with the people you love without feeling restricted by your duties. Paradoxically, the more time you take to do the things you love, the easier it is to provide care.

Bottom Line All caregivers may benefit from respite care, but finding an affordable solution that both caregivers and their loved ones enjoy may be difficult. Even if you don’t currently need respite care, take the time to research your options and identify a few solutions as soon as you have the chance. When you do need a break, respite care professionals will be there to help.

Want to learn more? Please be in touch with PRO Social Worker, Peggy Rost. Peggy can help you think through your options and provide information on PRO’s Respite Reimbursement Grant Program for eligible family caregivers. Peggy@parkinsonsresources.org or 800.426.6806.

“THANK YOU FOR THE SUPPORT WHEN WE NEEDED IT. JUST ACCESSING THOSE FEW EXTRA HOURS WAS ENOUGH TO HELP ME REFOCUS AND MAKE A PLAN.”

Parkinson’s Progression Markers Initiative?

PPMI AT OHSU IS RECRUITING NEW VOLUNTEERS

The Michael J. Fox Foundation launched the Parkinson’s Progression Markers Initiative (PPMI) in 2010 to better understand Parkinson’s and advance new treatments. Since then, PPMI has developed the most robust Parkinson’s disease data set and biosample library in the world towards acceleration of better treatments, cures and even prevention of the disease.

PPMI at OHSU is recruiting new volunteers:

• People who have been diagnosed with Parkinson’s in the past two years and who are not yet taking medication

• People age 60 and older who do not have Parkinson’s, but are living with certain risk factors, including:

• A parent, sister, brother or child with Parkinson’s

• A genetic mutation linked to Parkinson’s (GBA, LRRK2, SNCA, PRKN, PINK1)

• Acting out dreams while asleep (REM sleep behavior disorder)

• People with no known connection to Parkinson’s who wish to participate as control volunteers

If the screening shows you are eligible for PPMI, we will ask you to come back for in-person study visits 1-2 times a year for at least five years. During these visits, you will be asked to give biosamples, have physical and neurological examinations, and undergo brain imaging. You will be paid $100 to $200 for each study visit.

Dr. Penny Hogarth, MD is the investigator for PPMI at OHSU. She is a movement disorders neurologist with more than 20 years of experience in neurology and clinical trials. Dr. Hogarth and her team are involved in several Parkinson’s disease studies. “We always encourage people with and without Parkinson’s disease to contact us about studies, join our research registry, and sign up for Michael J. Fox’s online study at https://ppmi.study.myachievement.com,” says study coordinator Alison Freed.

For more information, please contact: Dustin Le at 503-494-1382 or by email at ledu@ohsu.edu. OHSU IRB 21802, WCG IRB 20200597.

Calendar of Events

REGISTRATION AT WWW.PRO.EVENTBRITE.COM

Some details are still being finalized as we go to print. Please check our website (parkinsonsresources.org) or the event registration site (pro. eventbrite.com) for the latest information! It is critical that you register, even for free programs so that we may email you the custom link to join the virtual programs.

PRO monitors public health and county guidelines looking for opportunities to safely resume in person. We anticipate many programs continuing on Zoom even as we begin resuming in person opportunities! If you aren’t sure if a program is in-person or virtual, please ask!

WELLNESS

Communication Skills - VIRTUAL New session starts April 22ndFridays, 11 am - Join at any time. PD can take a toll on voice strength and clarity – a newly released study showed that people with Parkinson’s speak about 60% less than similarly aged people without Parkinson’s! Join us to see if practice might help you avoid this situation.

This virtual class is a safe place to learn and practice new communication skills and memory strategies. It is appropriate for those who have completed speech therapy or not! This is not only a great community to practice speech but also a time to socialize and connect with others!

Instructed by, Julia Robinson, MS, CCC-SLP, Speech-Language Pathologist from Legacy Health. Offered in partnership with Legacy Health. Donations encouraged.

Movement Classes w/LauraLouVIRTUAL

New sessions start first week of April Now offered three times a week, our chair-based program instructed by LauraLou is on Monday, Wednesday or Friday. Registration for each day is separate. These virtual classes are ideal for those who are unsteady on your feet or who feel safer seated - but still provide a full range of movement as well as communication support. Sliding scale registration with scholarships available.

Movement Class in McMinnvilleIN-PERSON

PRO Movement classes have begun again in-person in McMinnville. We are working with Bill Wilson on the weekly program. Register online at www.pro.eventbrite.com

Breathing Yoga - VIRTUAL Mondays, 5:30 pm

Pranayama yoga is the practice of breath control and synchronizing breath with movement. It provides a method to help manage PD symptoms such as anxiety and tremor. Sign up for the link to join us for the weekly sessions. Sliding scale options available.

Sing-a-Long - VIRTUAL 3rd Thursday Monthly

Exercising your voice can take many forms. Singing might just be one of the more joyful formats! Join the growing number of your fellow PwP who are grateful for the joy that Michelle and Kera bring twice a month. Sign up for this group activity to sing and experience some community and happiness. Each session will start with a practice vocal warm-up and then sing your favorite songs with guitar

accompaniment. Donations welcome

Mindful Meditation - VIRTUAL Thursdays at 12:15 pm

This class is about befriending the mind so that we can, to the best of our ability, work with the stressors in our life. Using the breath as our guide allows us to discover our innate capacities of compassion and wisdom to work with our lives.

Instructor Martha McJacobs has been a mindful practitioner and teacher for over 40 years. Her passion is to help people experience life in the present moment with courage and kindness.

Carepartners are welcome to attend. Thank you to Washington County for sponsoring.

EDUCATION

Reconnect Events!

(See cover story for details)

Mid-Willamette Valley Saturday April 23 rd Bob Keefer Recreation Center Springfield, OR Lecture: Sarah Batya, MD and Michele Gladieu, PT, MS.

Metro Portland

Saturday April 30th PRO Nimbus Office Beaverton, OR

Central Oregon Saturday May 7 th

Central OR Community College Bend, OR

Lecture: Craigan Griffin, MD and Carol Ann Nelson, PT, DPT, MS

MORE INFO! (800) 426-6806 -

May 10 th and May 17 th

Advanced Care Partner Workshop – Online

This two-part educational workshop is designed to prepare family members and caregivers to approach the advanced stages of the disease with more confidence. While recognizing every family situation is unique, the program will educate caregivers about common issues and decisions to be made that can have a significant impact on quality of life.

We hear time and again from families how the care needs of their loved one seems to have crept up unannounced. Even with a complete understanding that Parkinson's disease is progressive, change typically advances slowly and individual progression is variable. This great unknown has the effect of adding stress on families who may soon be called upon to provide or arrange for a greater level of care. While all family caregivers are welcome, the content and curriculum of this two-part program is designed for those whose loved one with Parkinson’s has begun experiencing noticeable challenges such as requiring assistance with two or more activities of daily living.

May 18 th Autonomic Dysfunction Series

Autonomic nervous systems (ANS) dysfunction affects 70-80% of people with Parkinson’s disease and is the most prevalent of likely non-motor symptoms. Symptoms arising from ANS dysfunction frequently are cited as having a significant impact on quality of life.

Many symptoms fall under the ANS umbrella and each may need to be addressed separately or with a targeted approach. In this new education series, we will discuss some of the more common symptoms and share approaches to mitigate their

impact. Watch for topics that might include sexual dysfunction, swallowing, sleep disturbances, cardiovascular regulations, orthostatic hypotension and gastrointestinal disorders.

June 18 th Saturday Series: Back to Basics; Legal and Financial Help

During this virtual lecture, PRO staff will be joined by a local elder law attorney who will be covering topics ranging from basic estate planning (wills and trusts) to more complex matters including capacity issues and options regarding paying for long-term care needs.

If you’ve recognized the critical importance of planning ahead but just don’t know where to begin, this event will give you tools to assist you as you get started with this complex task.

Registration and details: pro. eventbrite.com.

Long Term Care Training for Professionals - VIRTUAL 12-1pm on Thursdays in July July 7 - August 4 (5 weeks)

We’ve created a training syllabus for professional caregivers. If you work to provide support and care for someone with Parkinson’s (inhome or residential care), please join us for our Winter Series lunchtime program. Increase your awareness and skill managing the unique care needs of people living with Parkinson’s. The curriculum is specifically designed to be easily understood and applied in everyday situations. Registration fee of $25/ person includes course materials. Contact Libby@parkinsonsresources.org for on-site or group training rates.

SOCIAL

Table Tennis at PRO Ok, so table tennis isn’t purely social. In fact there is strong evidence to support Ping Pong for Parkinson’s as therapeutic with benefits as a form of exercise and helpful with eye-hand coordination. Join us Wednesday afternoons for a session with our coach and a little friendly competition!

Table tennis opportunities exist for interested players in Bend and Eugene as well.

FOR YOUR CONSIDERATION

PRO is fortunate to work alongside many varied professional organizations and companies. The programs listed here are not organized by PRO but are offered in partnership at our Beaverton gym and education room.

Healing Yoga w/Brynna (Hosted by Brynna Hurwitz) - IN PERSON Fridays at 10:45 am Yoga is highly recommended complementary therapy for PD; reducing stress and often decreasing tremors and other associated symptoms. Class is held in the PRO education room in Beaverton. Contact Brynna at yogadancetherapy@gmail.com

PD Bootcamp (Hosted by Nancy Barlow) - IN PERSON Fridays at 9:15

Morning Exercise (Hosted by www.Nancy Barlow) - IN PERSON Tuesdays and Thursdays Classes are back in the PRO gym with Nancy Barlow - Bootcamp on Fridays and other levels on Tuesday and Thursday. Contact Nancy at exerciseforpd@gmail.com

Voices from the PRO Community

In this issue we’d like to introduce you to two women who have been instrumental volunteers and participants in the PRO community for some time. While they come at Parkinson’s from different perspectives, each shares a vulnerability and openness to their experience we think will resonate with many of our readers.

Pat Roe has agreed to share thoughts from her blog, www.pdcarepartner. com, where she muses on aspects of her experience as a carepartner for her husband Charlie. Pat and Charlie live in Vancouver, WA and have been helping coordinate a monthly breakfast group.

Jane Miller’s writings venture a little further afield, but are centered around her adventures and experiences living as a young onset woman with Parkinson’s disease. Jane posts from her site at www.thestarseachnight.com.

Self-Care is the Best Form of Partner Care by Pat Roe.

partner is getting what they need.

If you ask me how my husband is doing, I can respond immediately with details about his treatment and his current condition. Ask me the same thing about myself and chances are you will get a simple “fine”. I don’t intentionally ignore my own health, I just don’t always remember how important it is in relation to what my husband is facing. My minor challenges seem so insignificant compared to what Parkinson’s brings to him, I tend to stuff them away rather than deal with them. My life has become secondary to his because somewhere I got the idea that this is how it needs to be.

The reality of being a CarePartner is that if I am feeling at all under the weather, I cannot provide the level of care that is needed. So, when I ignore pain in my joints or mild headaches, I am not only hurting myself, I am also hurting him by not being fully here for him. I am also putting us both at risk because one of us needs to be fully functioning at all times to keep us healthy and safe. PD impacts his functionality so I need to make sure that I don’t let anything impact mine.

his. Staying active through exercise, choosing and eating healthy meals and working to keep my brain sharp

Self-care is the best form of partner care. If you are healthy and your needs are met, you have more to give and can better ensure your

At CarePartner meetings, we often have conversations about how to motivate our People with Parkinson’s to take care of themselves through exercise and diet but how many of us take those messages to heart? One of the benefits of my husband’s diagnosis is that we are both exercising more now and we are both more aware of what healthy living looks like, not that I always do it. I need to keep an awareness of my own care and be as diligent about how I treat my body as I expect him to be about

gerous aspects of Facebook is the “memories” page. I still check it every day because sometimes the memories are wonderful. The downfall is that sometimes they are not. Sometimes I would rather not be reminded, but by then it’s too late.

And then sometimes, the memories leave me dumbstruck. Today is January 10, 2022.

Seven years ago today, I attended orientation at Willamette University’s MBA for Professionals program. I wrote on Facebook that I had no idea how it would “work out, but I’m saying prayers and with luck and a lot of studying I’ll have my MBA next year!!”

I had no idea, none, how the next

Voices from the PRO Community

FROM PAGE 8

seven years would turn out. Looking back, I feel like the opening words of Dickens’ A Tale of Two Cities. “It was the best of times, it was the worst of times, it was the age of wisdom, it was the age of foolishness …”

It really was the best of times … I fell in love and had wonderful adventures on land and sea. I learned a little bit about sailing, I learned a little bit more about myself.

It was also the worst of times … In a freak accident, I injured my face so traumatically that IT, more than any other single moment, changed the trajectory of my life.

I learned and continue to learn that wisdom comes from two places. From the outside — Wisdom from others can only be learned by being quiet and being present. And from the inside — Wisdom from

within can only be learned by listening to your soul. This happens to me in the wee hours of the morning, arriving unexpectedly, catching me off-guard. And no matter how hard I try, one of the things I have learned is that some of the things I have learned – have happened many times. I am gobsmacked at the number of times some lessons take to be learned.

I am two classes away from an MBA I will likely never receive but I’ve made my peace with that. If we are wise we realize the best we can do is make decisions based on the information we have at hand. The facts, the feelings, the desires we can best trust.

But what about the experiences we have that just happen? We did not choose them. No one expects them or could have predicted them. But

what if someone did predict them, and you made decisions and took action and still they happened? Then what?

Well, then we deal with it. The best way we can. Straight on. With good posture and the determination and belief that we will not lose.

I say “we,” but really, I can only speak for myself. I can only do what I can do, and if what I do shines a light into the darkness we all feel, well, then that’s a bonus. Seven years ago, I would not have believed you if you had told me of the adventures I would go on, the triumphs I would accomplish, the dreams I would not let die. Nor could I have imagined the toll the events of my life would take on me. But I am who I am, what I am, where I am because of all of it.

And I’m alright.

We’d LOVE to hear from you! Can anyone relate to the struggle of getting stuck in your sweater, battling your blouse or finding professional attire that doesn’t require a team of assistants to help you get dressed? What about shoelaces that come undone and pose a trip hazard?

PRO is working with a team of volunteers on a new project exploring functional fashion and how a diagnosis of Parkinson’s disease impacts the choices you make in dressing or possibly limits your independence. We would love to hear your real life trials, tribulations and especially your successes. Please share! Send your anecdotes, product recommendations and even funny stories from the dressing room to: Holly@parkinsonsResources.org

Area Group Meetings

Many of our peer-led groups are planning to continue using zoom or telephone. In addition to the groups listed here - PRO staff are hosting recurring meetings for all clients and carepartners needing support or engagement.

NOTE: Some group facilitators have begun hosting in-person meetings. PRO guidelines require COVID-19 protocols in place by the state AND host facility must be adhered to. Please ask about our Zoom and staff facilitated meetings if you are unable to comply. Thank you for understanding!

Albany - In Person

2nd Wed, 4:00 pm Lynn, 541.936.6154

Ashland - Zoom

3rd Wed, 3:00 pm Laurie, 650.575.8434 Gail, 479.420.8939

Astoria - In Person

2nd Mon, 1:00 pm Patty, 503.325.0074

Beaverton - Zoom 1st Thur, 9:00 am Charlene, 503.421.5058

Bend - In Person

3rd Wed, 2:00 pm Maureen, 513.678.6422

Corvallis - Hybrid

2nd Tue, 11:00 am Betty, 541.760.1737

Eugene/SpringfieldZoom

2nd Tue, 10:30 am Dave, 541.686.8615

Florence - In Person

4th Thurs, 1:00 pm JoAnne, 541.633.3330

Gresham - In Person

2nd Tue, 2:00 pm Kevin, 503.278.0516

Klamath Falls - In Person

3rd Tue, 1 pm Ron, 541.591.0686 Kate, 541.882.3928

Lebanon - In Person

3rd Thurs, 3:00 pm Angela, 503.930.3123

Medford - In Person

3rd Sat, 11:00am Jim, 541.774.9812

Newberg - In Person

3rd Thurs, 10:00 am Louise, 971.344.4384

Providence Portland - Zoom 2nd Tue, 10:00 am Theresa, 503.216.4903

Redmond - In Person 2nd Mon, 1:00 pm Ginny, 541.548.6310

Roseburg - Zoom 2nd Mon, 1:30 pm Sandy, 541.430.1286

Salem - Zoom 4th Tue, 1:30 pm Jayne, 503.930.4239

Sisters - In Person

2nd Thur, 1:00 pm Nia, 971.727.3532

The Dalles - In Person

1st Thurs, 10:15 am Nia, 971.727.3532

Tillamook - Zoom 2nd Thurs, 2:00 pm Michael & Joanne, 503.655.0604 Vancouver, WA - In Person 3rd Fri, 1:30 pm Cal & Diana, 360.892.1985

Vancouver, WA - In Person

2nd Wed, 1:00 pm Jan, 360.433.6400

All Area General Tele

4th Mon, 1:00 pm PRO, 800.426.6806

All Area General Zoom 1st Wed, 1:00 pm PRO, 800.426.6806

All Area Care Partner Zoom 4th Wed, 1:00 pm PRO, 800.426.6806

SPECIAL INTERESTGROUPS

New! Dementia and PD - Zoom Care Partner Group 1st Thurs, 1:00 pm Nia, 971.727.3532

New! PD without a Partner - Zoom 4th Thurs, 1:00 pm Nia, 971.727.3532

New! Caring for a Parent - Zoom 3rd Thurs, 5:00 pm Nia, 971.727.3532

Ashland - Zoom Care Partner Group 1st & 3rd Fri, 9:30 am Ann, 415.279.8754

Astoria - In Person Care Partner Group 4th Tue, 1:00 pm Patty, 503.325.0074

Bend - Zoom Care Partner Group

2nd Wed, 1:30 pm Nia, 971.727.3532

Eugene/SpringfieldZoom Care Partner Group 4th Tue, 1:30 pm Carla, 541-515-6604

Eugene/SpringfieldZoom

Young Onset <50 3rd Tue, 6:30 pm Libby, 541.345.2988

Portland - Zoom Alternative Approaches

2nd Tue, 7:00 pm (alternate months) Tasha, 503.788.2333

PD & Healthcare Professionals

MORE INFO! (800) 426-6806 -

Area Group Meetings

Continued from Page 10

Tigard WomenZoom Care Partners

1st Wed, 3:00 pm Mary, 503.579.2792

Early Stage Women’s Care Partners - Zoom

1st Tues, 11:00 am Martha, 503.830.7246

Vancouver, WAIn Person Care Partner Group

1st Mon, 1:00 pm Jan, 360.433.6400

Vancouver, WAZoom Care Partner Group

2nd Fri, 1:30 pm Diana, 360.892.1985

Lewy Body Dementia - Zoom Care Partner Group 2nd Sat, 1:00 pm Kathy, 971.222.7526

MSA/PSP Care Partners - Zoom 3rd Fri, 10:30 am PRO, 800.426.6806

MSA/PSP - Zoom 4th Sat, 10:00 am Akiko, 503.853.9584

Women w/ PDZoom 1st Mon, 5:00 pm Nicol, 253.226.4069

Newly DiagnosedZoom < 3 yrs 2nd Wed, 1:30 pm PRO, 800.426.6806

Portland Young-Onset - Zoom

Happy Hour Group

3rd Fri, 4:30pm Jeff, 503.784.7069

Veteran’s PD GroupZoom

2nd Fri, 10:00 am Kristi, 503.220.8262 x58594

Tribute Gifts

Parkinson’s Resources of Oregon gratefully acknowledges the loving family and friends who made a generous contribution in memory of these individuals in 2021. If we missed listing your loved one, please let us know so we can correct our records. (Note that this listing does not include memorial tributes made through Sole Support.)

Debbie Andrews

Jon Ankeny

Sandy Ayers

Steve Baker

Ted Bateman

Jeanine Bennett

Donna Berry

Robert Bilyeu

Jerre Blakey

David Bluhm

Harold Blume

Harry Bondareff

William Bronson

Clare Buse

Richard Cameron

Tim Carroll

Harry Chaffee

Marie Clayville

Jack Conner

Tom Dickson

Marvin Edgett Dennis Elliott Greg Enns

Peggy Evans Steve Fallt Jacob Felix Phyllis Garrett Bob Gibson Milo Gosen Russell Graves Carl Hammond Anita Hardin

Susan Harold Helen Haynes Valentine Hellman Albert “Lee” Hoover Cindy Hubbard Joel Janzen James Johnson

Barbara Kaighen-Jones Paul Kerkhove Mike Kneeland Shirley Knodel

Creighton Lacey-Baker

John Lalicker

Kaye Lathrop

John Liedel Gil Lopez Margie Lussier

Carol Magnusson

Rosie Michael Jerry Mills

Robert Payson Morris

Don Murray Mary Ann Myers Mike Myers

Dennis Paldi Doug Pershall

Bheula Peterson

Daniel Ponso Helen Ramatowski

Rick Reid

Nancy Ross

Linda Runeborg

Richard Schultze

Celia Scott

Jerry Shifman

Bill Smith

Marsha Sorum

Victor Steinhardt

Mike Stevenson

Michael Stoltz

Richard Thompson

Marlene Torrey Bob Valley Robert Velander

Joe Wanores

Lt. Col. Jerry Ward Kevin Watts

Jack Waymire Danny West Jim Wildish Joe Wood Donna Yoss

Parkinson’s

PD and Creativity: PRO’s Next Art Show

and adventures. So we are pleased to welcome Judith Lynne as PRO’s featured artist for spring 2022. The second exhibit in this series, PRO’s art show celebrates the creative talents of community members with PD. By showcasing artists and their art, we aim to elevate awareness about PD through the exhibitions and events.

Artist Reception and Celebration:

Judith Lynne

Wed, May 4, 2022, from 4 to 7 pm

Parkinson’s Resources Main Office, 8880 SW Nimbus Avenue, Ste B, Beaverton OR

It’s no secret that the PRO community is an eclectic mix of people with many talents, experiences,

Before Parkinson’s entered Judith Lynne’s world, she was a profes-

sional singer and voice teacher. When Parkinson’s arrived, she had to find other avenues for artistic expression. Fortunately as a young woman growing up in small town Iowa she had been taught how to sew and her practical mother made sure she left home with a brand new Sears Kenmore sewing machine. Somehow that machine made it through several life changes and cross country moves, so when Judith was in search of a new creative outlet, she pulled out the old Kenmore and found that it still worked. In recent years, she has created a number of quilts, playing with colors and design, finding enjoyment in exploring the spiritual practice of the creative process