THE PARKINSON’S PERSPECTIVE Newsletter Volume 36, Issue 4

SEPTEMBER/OCTOBER 2016

Serving OR and S. WA

UNDERSTANDING FATIGUE Contributed by Tony Borcich, LCSW

With the advent of the World Parkinson Congress (September 20-23 in Portland) we’ve been hearing from clients with questions about how to manage their desire to participate in the full days while acknowledging that Parkinson’s disease has taken a toll on stamina and energy levels. Experienced people with Parkinson’s (PwP) know to prioritize each day with focus on those events and activities that will bring the greatest reward. Since distressing fatigue effects anywhere from 1/3 to ½ of PwP, we thought we would take the opportunity to dig a little deeper into this challenging PD symptom. Fatigue is one of the earliest symptoms to manifest in Parkinson’s disease, with one study suggesting it can appear as early as five years before a Parkinson’s diagnosis(1). Fatigue in PD can be chronic and incapacitating often leading the person to reduce enjoyable activities and pull back from social situations. Fatigue is not the same as feeling sleepy, though sleepiness may be a symptom of PD as well. It is a lack of mental as well as physical energy displayed as a lack of motivation and/ or poor concentration. It is not helped by rest.

neurologist to connect fatigue to PD because of other diagnoses the PwP may be dealing with and the combination of medications they may be taking. Other issues such as sleep apnea or poor nutrition may exacerbate the fatigue. Fatigue in PD assumes a couple of forms. There is peripheral fatigue which can occur due to tremor, dyskinesia and/ or rigidity. Peripheral fatigue might be described by “I cannot do it, I’m exhausted.” Central fatigue, however, is more about motivation and may in fact be more debilitating. Central fatigue can be described as “I do not feel like doing it, it is not worth it.”(2)

CBT has been shown to be effective for depression and insomnia. Mindfulness based interventions (MBI) have shown efficacy in small trials for fatigue in neurological disorders(7). Further research is warranted for both CBT and MBI. Fatigue is complicated and challenging to manage. If you are feeling the effects of fatigue, please discuss with your neurologist and follow his/her guidance. Anecdotally, other PwP have found that the following tips might help in managing fatigue – particularly peripheral fatigue.

What causes central fatigue? Some is known about co-occurring symptoms, but less is known about a direct cause. Neuroinflammatory markers found in PD are higher in PwP exhibiting severe fatigue(5). Sex, age, disease duration, clinical stage, motor complications, prior psychiatric disorders, and treatment were not significantly associated with the presence of fatigue(3).

Fatigue cannot be diagnosed by a physician other than via a detailed narrative from the PwP and those close to them. It’s also difficult for the

What might help? Two systematic reviews of the literature find little help for fatigue in PD. One stated there is insufficient evidence to support treatment of fatigue in PD with any drug or non-drug treatment(4). The other suggested that doxepin, used for depression, may help reduce fatigue(5).

SEPT/OCT 2016

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Proper night time sleep. Regular exercise. Managing depression if present. Keeping your weight controlled. Eating on time and not skipping any meals. Allowing enough time to finish daily activities. Taking a short nap daily in the afternoon. Rest periods also help. Not shying away from asking for help. Staying mentally active. References 1. Schrag, A., Horsfall, L., Walters, K., Noyce, A., & Petersen, I. (2015). Prediagnostic presentations of Parkinson’s disease in primary care: a casecontrol study. Lancet Neurology, 57-64 2. Dantzer, R., Heijnen, C., Kavelaars, A., & Laye, S. C. (2014). The Neuroimmune Basis of Fatigue. Trends in Neuroscience, 39-46. 3. Saez-Francas, N., Hernandez-Vara, J., Roso, M. C., Martin, J. A., & Brugue, M. C. (2013). The association of apathy with central fatigue perception in patients with Parkinson’s disease. Behavioral Neuroscience, 237-244. 4. Franssen, M., Winward, C., Collett, J., Wade, D., & Dawes, H. (2014). Interventions for fatigue in Parkinson’s disease: A systematic review and meta-analysis. Movement Disorders, 1675-1678. 5. Lindqvist, D., Hall, S., Surova, Y., Nielsen, H., Janelidze, S., Brundin, L., & Hansson, O. (2013). Cerebrospinal fluid inflammatory markers in Parkinson’s disease - Associations with depression, fatigue, and cognitive impairment. Brain, Behavior and Immunity, 183-189. 6. Elbers, R., Verhoef, J., van Wegen, E., Berendse, H., & Kwakkel, G. (2015). Interventions for fatigue in Parkinson’s disease. Cochrane Database of Systematic Reviews. 7. Immink, M. (2014). Fatigue in neurological disorders: a review of selfregulation and mindfulness-based interventions. Fatigue: Biomedicine, Health & Behavior, 202-218.

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CALENDAR OF EVENTS PLEASE STAY IN TOUCH VIA EMAIL, FACEBOOK, TWITTER, THIS NEWSLETTER, AND OUR EVENT REGISTRATION SITE. WWW.PRO.EVENTBRITE.COM

Communication Skills Groups! This fall the Communication Skills classes will be hosting in Bend and in Portland. This is a 10 week program ideal for people who have completed LSVT therapy and who want to maintain their progress. Others who have not completed LSVT but who are wanting to keep a strong voice are encouraged to attend as well. Registration required. Bend classes start September 12th. Portland starts October 23rd.

BEND September 7th PWRMoves! Class Begins PWRMoves! is a strength and fitness class for individuals who have early to moderate stages of PD. The class will focus on balance and strength, utilizing functional exercise equipment such as light weights and resistance tubing. Pre-screening required for first time participants.

PORTLAND September 17th Sole Support for Parkinson’s Sole Support is for everyone! Register as an individual or gather friends and family for a team. Free participation and easy fundraising options to support local programs and services. www.solesupport. org. Virtual walkers welcome!

PORTLAND September 20 – 23 PRO offices will be closed this week due to the World Parkinson Congress.

ONLINE October 25th Join us for the next installment of our Lunchtime Laboratory webinar. This one hour presentation is offered 6 times a year in partnership with the Northwest Parkinson’s Foundation in Seattle.

as an individual or gather friends and family for a team. Free participation and easy fundraising options to support local programs and services. www.solesupport. org. Virtual walkers welcome!

EUGENE October 6th Qigong classes start Qigong is a form of gentle exercise composed of movements that are repeated a number of times, often stretching the body, increasing fluid movement and building awareness of how the body moves through space. Thank you to Crescent Park for hosting this program.

BEND October 7th Parkinson’s Resource Fair Come meet with representatives of Central Oregon services and agencies to explore programs to enhance your well-being.

VANCOUVER October 8th Sole Support for Parkinson’s Sole Support is for everyone and we are wrapping the Sole Support Season this year in Vancouver! If you missed Portland, consider joining us with our Clark County friends for the final walk of 2016. www. solesupport.org. Virtual walkers welcome.

REDMOND October 27th Long Term Caregiver Training For individuals who work to support residents living with PD in assisted living, skilled nursing and adult foster homes. Certificates of attendance will be provided. Funding support from WEBCO.

Want to stay current with all things PRO and other activities happening in our region? Follow us on Facebook! www.facebook. com/parkinsonsresources

ASHLAND October 14th Just for Family Carepartners The goal for this half day program is to help family caregivers to understand the advanced stages of Parkinson’s disease (PD) and resources that may be available to help you become better prepared for what the future may hold.

EUGENE October 1st Sole Support for Parkinson’s Sole Support is for everyone! Register SEPT/OCT 2016

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SEPT/OCT 2016

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VANCOUVER SUPPORT GROUP FACILITATORS over a year now, and foster a caring and encouraging environment in their group, with a mix of educational presentations, discussions on topics the group finds interesting, and open sharing. The couple state that their first priority is to help everyone in the group feel welcome, and secondly to help members connect with what they need, whether that is information, ideas or just a listening ear.

Many of the support group facilitators in the PRO network have been making plans to attend the 4-day World Parkinson Congress in September. These volunteer leaders will be in a special position to share the information learned and connections made to impact hundreds of others who attend their groups throughout the region. Cal and Diana are just two of the 81 facilitators attending as a part of the Parkinson’s Resources of Oregon volunteer team. Cal has been diagnosed with Parkinson’s for a little over 2 years. The retired School Counselor had been struggling with fatigue for several years, but doctors could not come up with a reason for his lethargy until other symptoms including a hand tremor and shuffling gait prompted him to see a

Neurologist and get the sobering news: the diagnosis was Parkinson’s. Cal knew very little about the diagnosis and describes feeling confused and anxious about what lay ahead for him. After connecting with PRO, Cal and his wife Diana became involved in two different support groups, including one for those Newly Diagnosed and another aimed at Alternative PD treatments. He and Diana both used the groups as well as conversations with PRO staff to gain ideas for exercise, mental wellness, and navigating life with the disease. After several months, the couple expressed willingness to take the reins at their local group. Cal and Diana have been group leaders for

Cal and Diana shared that for them, it has been a “stroke of luck” that the World Parkinson’s Congress is happening so close to home. They look forward to meeting people with Parkinson’s and their care partners from other countries. They hope to also benefit from the increased knowledge and inspiration that they will gain from the Congress, and plan to bring new ideas to foster growth and better discussion at their group’s monthly meetings. Cal and Diana welcome new members to their monthly group, which meets at the Vancouver Salmon Creek Hospital 6th floor conference room on the 3rd Friday of every month at 1:00pm. We are thrilled to have this caring and compassionate couple as a part of our volunteer team and the WPC delegation.

PORTLAND PARKINSON’S READY With over 4,000 international Parkinson’s delegates from 60 countries expected to visit the city of Portland September 20-23 for the 2016 World Parkinson Congress, Parkinson’s Resources has been leading a collaborative effort for a series of trainings to make Portland Parkinson’s Ready. Our volunteer committee was very thoughtful and strategic in creating training materials to have the most impact with local police, hotels, hospitals, airport staff and public transit employees. Trainers include PRO staffers, as well as volunteers from Legacy Healthsystem, OHSU and several amazing community members who are generously SEPT/OCT 2016

sharing from their personal experience as PwP or family caregivers. The training provides a high-level overview of Parkinson’s disease and symptoms, supported with practical and concrete tips for common or anticipated situations. While the trainings were created with the Congress in mind, the benefits in terms of educating organizations that service the (Joe on Open Road) public tothe identify and assist individuals living with Parkinson’s disease will have a lasting impact in our community.

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PARKINSON’S WHOLE BODY CARE Contributed by Christa Knox, MA, MScN, Brain Food for Thought

ALTERNATIVE TREATMENTS THAT WILL SUPPORT YOU FROM THE INSIDE OUT If you or a loved one has been diagnosed with Parkinson’s, you’ve probably been given great modalities for treatment, met with specialists, and been referred medications to help manage your symptoms. Have you been wondering about holistic (whole body — mind, body and soul) care? Does it work? Is there any science to back it up, or is it just a placebo effect? Today I’m going to highlight some alternative treatments, backed by science, that will support you from the inside out. It’s summer — the weather is great, and perfect time to try something new! 1. Acupuncture: Acupuncture is a holistic health technique that stems from Traditional Chinese Medicine (TCM) practices in which trained practitioners stimulate specific points on the body by inserting thin needles into the skin. It has been shown to increase neural responses in regions including the substantia nigra, which is impaired by PD.1 Currently it is being used for: muscle spasms and pain, chronic back problems, headaches, osteoarthritis, allergies, digestive problems, mood variances, and depression. Clearly, this is a whole body approach worth looking into. 2. Qigong: Qigong is an ancient Chinese health care system that integrates physical postures, breathing techniques and focused intention. The gentle, rhythmic movements of Qigong reduce stress, build stamina, increase vitality, and enhance the immune system. It has also been found to improve cardiovascular, respiratory, circulatory, lymphatic and digestive functions. But its benefits don’t stop there! Researchers evaluated the immediate and sustained effects of Qigong on motor and non-motor symptoms of PD, and they found that more patients improved in the Qigong group than in the control group.2 3. Tai Chi: Tai chi is an ancient Chinese tradition that, today, is practiced as a SEPT/OCT 2016

graceful form of exercise. It involves a series of movements performed in a slow, focused manner and is accompanied by deep breathing.The New England Journal of Medicine has published research showing that Tai chi reduces stiffness, improves mobility, posture, balance and gait in patients with PD.3 4. Yoga: There is strong research affirming that in PD patients, yoga can benefit mobility, balance, strength, flexibility, and even your mood and sleep!4 You can join a class or do it in the comfort of your own house or backyard. It’s low impact, and the poses are very easy to modify. 5. Meditation: There are over 3,000 scientific studies on the powerful effects of meditation. In just twenty minutes a day, you can strengthen your brain! Meditation: reduces anxiety, lowers stress, boosts energy, strengthens the immune system, and improves concentration. Meditation has been shown to improve the neural networks that play an important role in PD.5 6. Diet: You’ll never feel hungry or deprived while eating a whole food diet rich in organic produce, nuts, coconut, healthy fats, eggs and sustainable meats and fish. Yes, research has shown that even dark chocolate and coffee can be brain-supportive. Sugar and refined grains are highly-addictive, can cause brain inflammation, and are devoid of the critical nutrients our brains need to thrive.6 It’s important to remember that there is no one “recipe” that will work for everyone, but even one change can have a powerful effect. Want to explore further? Why don’t you chat with your doctor and see if any of these whole body practices could benefit you and consider joining one of the Alternative & Supplemental Support groups (Joe on the Open Road) that meet – two in Metro Portland and one MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

in Eugene. See pg 7 for listing. References 1. Yeo S, Lim S, Choe IH, et al. Acupuncture stimulation on GB34 activates neural responses associated with Parkinson’s disease. CNS Neurosci Ther. 2012;18(9):781-90. 2. Schmitz-hübsch T, Pyfer D, Kielwein K, Fimmers R, Klockgether T, Wüllner U. Qigong exercise for the symptoms of Parkinson’s disease: a randomized, controlled pilot study. Mov Disord. 2006;21(4):543-8. 3. Li F, Harmer P, Fitzgerald K, et al. Tai chi and postural stability in patients with Parkinson’s disease. N Engl J Med. 2012;366(6):511-9. 4. Sharma NK, Robbins K, Wagner K, Colgrove YM. A randomized controlled pilot study of the therapeutic effects of yoga in people with Parkinson’s disease. Int J Yoga. 2015;8(1):74-9. 5. Pickut BA, Van hecke W, Kerckhofs E, et al. Mindfulness based intervention in Parkinson’s disease leads to structural brain changes on MRI: a randomized controlled longitudinal trial. Clin Neurol Neurosurg. 2013;115(12):2419-25. 6. Giugliano D, Ceriello A, Esposito K. The effects of diet on inflammation: emphasis on the metabolic syndrome. J Am Coll Cardiol. 2006;48(4):677-85.

It ain’t Pretty

by April Curfman JUNE 24, 2016 Surfing a man-made chemical Hoping for a miracle “No, I drive a tricycle” Parkinson’ Calliope Every measurement a loss Each pill - leaves grit, exhaust Racking up a greater cost Parkinson’ Anxiety Grant, Ali, Fox, Petrick. . . few Spotlighted – out - in public view Living advocacy - truth Parkinson’ Notoriety Trickster teasing shark attack Chunks of lives we can’t get back Words that were here, were hacked Parkinson’ Sobriety Cells that produce no dopamine Joy’s equilibrium left lean Caged in chains, no daylight seen Parkinsons’ Undeservedly How many times have I begged God And wanted to give up . . . but. . . not Tried to get wobbly legs to walk Parkinson’ Reality I gave my best. Now it’s your turn Give what you can, and know its worth The sweetest words: – this year a cure Parkinson’ Finality

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WELCOME JESSIE! THE NEWEST MEMBER OF THE PRO TEAM

Please help us give a warm welcome to the newest member of the PRO team, Jessie Landar! Jessie is a Portland native who graduated from Oregon State with a degree in Human Development and Family Services with a focus in Human Services. After graduating, she spent a year living in Australia and exploring the Outback before her passion for traveling took her throughout Southeast Asia for three months.

BOARD OF DIRECTORS PRO is governed by a volunteer Board of Directors comprised of community members with an interest and passion for serving the PD community. Officers: Ian Smethurst Board President

Lucien Burke, M.D 1st Vice President

Greg Moore Treasurer

Kristin Whitney Secretary

She joins us now as the new part-time Special Projects Coordinator and has already jumped into our Sole Support walks. We encourage each of you to give Jessie a call with any Sole Support questions you may have, whether it’s help setting up your team or getting the word out to help reach your fundraising goals. She will also be lending us a hand with various other projects here at PRO, including updating our Parkinson’s Exercise Resource Guide, which we are excited to have available soon! Be sure to stop by and say hello to her at each of our upcoming Sole Support walks!

Directors at Large: Greg Chaille Susan Flad George Gregores Hank Grootendorst Gerald Hulsman Barney Hyde Larry Jacobson Paul Labby Ryland Moore Kay Parr Joseph Quinn, MD Richard Rosenbaum, MD Justin N. Smith Kelly Sweeney Peggy Wood

RESEARCH STUDY DO YOU HAVE PD AND EXPERIENCE PROBLEMS WITH BALANCE AND GAIT?

Purpose: There is an important medical need for an effective, well-tolerated treatment for improving gait & balance for people with PD. Gait and balance problems in PD typically appear within 3 years of diagnosis & progress throughout the course of the disease. Impaired mobility produces disability & reduces quality of life. The purpose of this study is to see if the drug donepezil (commercially known as Aricept) may help improve measures of gait & balance in those experiencing PD. Right now the study drug donepezil is approved for treatment of Alzheimer’s disease and dementia related memory loss, but has not been approved for treatment of balance & gait problems in PD. Participation Requirements: In order to participate in the study you must be at least 30 years old, have been diagnosed with idiopathic PD & experienced problems with balance and gait. Additionally, you will need to be able to walk unassisted for at least 2 minutes. This is a double-blind study (meaning that neither you nor the study personnel will know whether you are taking the donepezil or placebo (dummy or sugar pill) medication. The first treatment phase is 6 weeks long. During this period you will take one pill (either study drug or placebo) in the evenings. You will follow this initial treatment period with a 6 week “washout”, where you will not take any study medication. You will then begin your second 6-week treatment period where you will take the other pill (either the placebo or donepezil, whichever was not taken during the initial treatment period). The total duration of the study is 20 weeks and will require four in-person clinic visits along with weekly phone visits. Eligible participants will receive study-related evaluations, laboratory tests, & the investigational drug at no cost. Subjects will be compensated for their time & transportation costs. For more information please contact Anne Gendreau at 503-418-4387 or gendreau@ ohsu.edu. (OHSU eIRB #10745) SEPT/OCT 2016

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Area Group Meetings

Vancouver, WA (The Quarry) 2nd Wednesday, 10:00 am Cathy, 360.944.6000

Albany 1st Tuesday, 2:00 pm Lynn, 541.936.6154

LaGrande 3rd Mondays, 4:30pm Wendy, 509-946-4217

Ashland 3rd Wednesday, 3:00 pm Bill, 541.201.0954

Longview, WA Area 3rd Wednesday, 1:45 pm Barbara, 360.423.7012

Vancouver, WA (Touchmark) 1st Wednesday, 1:00 pm Linda, 360.882.9110 Kim, 360.433.6400

Astoria 2nd Monday, 1:00 pm Darlene, 503.440.1970

McMinnville 1st Thursday at 1:00 pm Charles, 503.359.5820

Family, friends & care partners are welcome at all of our groups.

Baker City 3rd Tuesday, 2:30 pm Richard, 541.523.0013 Bend 3rd Wednesday, 2:00 pm Julie, 541.633.7436 Chehalis, WA 2nd Thursday, 1:00 pm Ken, 360.520.4889 Coos Bay/North Bend 2nd Monday, 2:00 pm Jeff, 541.200.4632 Betsy, 541.404.5735 Cottage Grove 4th Thursday Libby, 541.345.2988 Corvallis 2nd Wednesday, 12:15 pm Roger & Iris, 520.456.9799 Eugene/Springfield 2nd Tuesday, 10:30 am Judie, 541.485.2304 David, 541.686.8615 Florence 4th Wednesday, 1:30 pm Carole, 805.587.3394 Forest Grove 1st Monday, 10:00 am Charles, 503.359.5820 Grants Pass 1st Tuesday, 1:00 pm Jeff, 541.479.2578 Gresham 3rd Tuesday, 2:00 pm Patty, 503.761.2792 Hermiston 1st Monday, 1:00 pm Carol, 541.720.4256 Charles, 541.567.9420 Klamath Falls 3rd Tuesday, 1:00 pm Ron, 541.591.0686 Lake Oswego 1st Thursday, 9:00 am Charlene, 503.421.5058

SEPT/OCT 2016

Medford 3rd Saturday, 11:00 am PRO, 800.426.6806 Milwaukie 3rd Monday, 10:00 am Doug, 503.652.6519 Newberg 3rd Thursday, 10:00 am John, 503.487.6390 Louise, 971.344.4384 Newport / Toledo 2nd Tuesday, 3:00 pm Faye, 541.336.2481 Shirley, 541.336.3945 Oregon City 1st Tuesday, 10:00 am Greg, 541.912.0972 Redmond Group is currently not meeting. Call PRO for info. 800.426.6806 Roseburg 2nd Monday, 1:30 pm Sandy, 541.430.1286 Salem / Mid-Willamette Valley 2nd Tuesday, 2:00 pm Dana, 503.588.1596 Jim, 503.364.8520 St. Helens / Columbia Co. 1st Wednesday, 3:00PM Mary Jo, (503) 543-7090 The Dalles 1st Wednesday, 2:00 pm Chad, 541.340.0142 Tillamook 2nd Thursday, 1:00 pm Michael & Joanne, 503.355.2573 Tualatin 3rd Saturday, 9:30 am Trudy, 503.692.7988 Vancouver, WA (Salmon Creek) 3rd Friday at 1:00 pm Cal, 360.892.1985

Wallowa County 2nd Sunday Every other month, 2:00 pm Mike, 541.426.8604 Welches 4th Tuesday, 11:00 am Senior Center, 503-622-3331 Wilsonville 2nd Thursday, 11:00 am Cindy, 503.694.0303

Portland Groups East Portland 2nd Thursday , 10:00 am Kevin, 503.278.0516 East Portland, Russellville 3rd Wednesday, 12:00 pm Barbara, 503.254.5900 Inner NE Portland 2nd Saturday, 10:00 am Marge, 503.252.6480 Laurelhurst “PD Avengers” 1st Friday, 10:00 am YuWen, 612.356.8164

Vancouver 2nd Tuesday, 11:30 am Jan, 360.433.6400

Young Onset Groups Eugene 3rd Wednesday, 6:30 pm Call PRO 541.345.2988 Gresham 4th Mondays, 7-9pm Donna 503-805-2478 PDX Area Happy Hour **NEW** Kathieshill@gmail.com

Alternative & Supplemental Groups Eugene 3rd Tuesdays, 1:30pm Carolyn 541-556-1444 Cork 541-995-8060 Lake Oswego 3rd Saturday (Quarterly) 9:30 am, Anne, 503.349.2400 Portland – Evenings 2nd Tuesday, 7:00 pm National College of Natural Medicine (west door) Carol, 503.233.4075

“PD Plus” Diseases

Care-Partner Groups

MSA/PSP Support Group Portland 3rd Saturday, 10:00 am Marquis Assisted Living PRO, 800.426.6806

Bend 2nd Wednesday, 1:30 – 3:00 pm Phyllis, 541.317.1188

PD+ Support Group Eugene 2nd Wednesday, 1:30 Lori & Gordon, 541.999.0949

West Portland/Bethany 2nd Wednesday, 3:30 pm Cathy, 503-690-8317

Eugene/Springfield 4th Tuesday, 1:30 pm PRO, 541.345.2988 Portland SE 1st Thursday, 4:00 pm Janet, 503.516.5917 Tigard Lewy Body Dementia 2nd Saturday, 1:00 pm Kathy, 503.244.4714 Tigard - Male Caregivers 1st Friday, 10:30 am Chuck, 408.373.9875 Tigard - Female Caregivers 1st & 3rd Wednesday, 3:00 pm Karen, 503.754.6088 Nancy, 503.642.3213

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Newly Diagnosed? Diagnosed with PD in the last year or two. Lake Oswego 1st Saturday, 10:00 am Tom, 503.303.4871 Carol, 301.237.0476

Golf Support Group Various times & courses in the greater Portland area as arranged by the group Paul, 503.313.5013

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This newsletter is published six times a year. Articles published in this newsletter are solely for your information and should not be relied on as medical advice. Parkinson’s Resources of Oregon 3975 Mercantile Dr., Ste 154. Lake Oswego, OR 97035

PERSPECTIVES Understanding Fatigue

pg 1

Calendar of Events

pg 2

Sole Support

pg 3

Support Group Fac

pg 4

PD Whole Body

pg 5

Welcome Jessie!

pg 6

Group Meetings

pg 7

Central Oregon Corner

pg 8

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Contact Us info@parkinsonsresourcs.org toll-free: (800) 426-6820

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If you no longer wish to receive this newsletter, please call our office at (800) 426-6806.

CENTRAL OREGON CORNER Central Oregon PD Council Hosts Fundraiser The Central Oregon Parkinson’s Council is a group of volunteers working to help raise awareness of PD and support the development of programs in Central Oregon. They will be conducting a fundraiser in conjunction with their first annual Parkinson’s Resource Fair.

PD Table Tennis Tournament The Bend PD Table Tennis group held its first tournament on July 25, 2016. The group has been playing together since March of 2015 when Don Borne, President of the Bend Table Tennis Club agreed to reserve two tables for PD players and their family members on the 2nd and 4th Mondays at the downtown Bend Boys and Girls Club.

At the fair on Friday, October 7, participants will have the option to purchase a Wine Wall Chip and take home the bottle of wine with the corresponding number on the chip. The wine will be guaranteed to be worth more than the chip purchase and in some cases considerably more. That’s the fun! 100% of the proceeds from Wine Wall Chip purchases will go to Parkinson’s Resources of Oregon. A great way to raise money for Parkinson’s Disease and add to your wine collection!

“It’s become a social time when family members and people with PD can enjoy a game night together,” said Margie Lussier. “Plus, we’ve all improved our game skills --which relate

SEPT/OCT 2016

(Rick Sillman - 3rd Place)

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directly to the things people with PD need to work on. That includes focusing on a fast-moving ball, and alternating returns so we are moving and (David Mays & Phyllis Munster, First Place) reaching the whole end of our table. We’re much better about getting out of the way of our partner’s ball return and even backing up quickly. Our biggest challenge seems to be keeping track of the score!”

Contact information: Margie Lussier at 541-389-4082 or jmlussier@ bendcable.com

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