PRO Newsletter - March/April 2016

THE PARKINSON’S PERSPECTIVE Newsletter Volume 36, Issue 2

Mach/April 2016

Serving OR and S. WA

EDUCATE. INSPIRE. EMPOWER PARKINSON’S SPRING CONFERENCES 2016. MEDFORD, EUGENE, AND BEND!

With over 35 years of service, Parkinson’s Resources of Oregon (PRO) supports more than 10,000 clients by providing support groups, exercise classes, and educational events. We are happy to announce that PRO is offering three local education conferences this spring featuring exciting and dynamic speakers. Join us for one or all three of these annual events!

Medford

Eugene

Saturday, March 19, 1-5 p.m.

Sunday, April 10, 12-4 p.m.

Medford: Saturday, March 19, 1-5 p.m. (check-in begins at noon) “More than Movement: Challenges and Treatments of Non-Motor Symptoms” Eric Lee, D.O., is a neurologist at Asante Medical Center. He believes Parkinson’s disease involves many parts of the body and that each needs to be addressed individually. Dr. Lee will discuss how to help manage these individual needs and troubling non-motor symptoms.

“Cognitive Changes in PD” Joseph Quinn, M.D., is a movement disorder specialist and medical director of the OHSU Parkinson’s Center. Dr. Quinn will share his insight on

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how Parkinson’s can affect thinking and memory, and will give treatment options to help families cope.

“Learn to Be Loud” Richard DeWitt, S.L.P., holds a master’s degree in speech and language pathology and currently works with Parkinson’s patients. Rich will discuss and demonstrate the benefits of using Lee Silverman’s LOUD Therapy.

Eugene: Sunday, April 10, noon-4 p.m. (check-in begins at 11 a.m.)

“Complementarity and Alternative Therapies in PD” Lynne Shinto, N.D., M.P.H., is a naturopathic doctor at OHSU

MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

Bend

Saturday, May 14, 1-5 p.m.

with a focus on neurologic disorders. Dr. Shinto will assess alternative treatments for Parkinson’s disease wellness and review research and evidence behind these therapies.

“If I Can Climb Mt. Kilimanjaro, Why Can’t I Brush My Teeth?” Three years after her diagnosis, at the age of 65, Nan Little, Ph.D., stood on top of Mt. Kilimanjaro, and she invites you to join her PD journey! Discover how courage, tenacity, and love meet PD! “Update of PD Treatment: Above & Beyond Meds” Suketu Khandhar, M.D., is a movement disorder specialist and medical director at Kaiser Permanente. (continued on page 3) PAGE 1

SAVE THE DATE! ANNOUNCING THE 2ND ANNUAL “HEART LIKE A WHEEL” LINDA RONSTADT TRIBUTE CONCERT TO BENEFIT PRO The concert lineup includes popular national and local musicians, including Portland’s own Anne Weiss; Bre Gregg; hip, up-and-coming duo Nathan Earle and Juliet Howard; and special guest Nancy Devine.

They will perform songs from Linda Ronstadt’s eclectic and extensive repertoire.

Ronstadt was diagnosed with Parkinson’s disease several years ago. Her vocal artistry has been beloved by musicians and fans across the U.S. and the world.

Where: Alberta Rose Theatre 3000 NE Alberta St., Portland, Oregon When: Saturday, April 30, 2016 — doors open at 7 p.m.

Price: $22 general admission; $30 VIP seating Tickets: www.albertarosetheatre.com Food and beverages available for purchase **All ages welcome when accompanied by an adult**

CALL FOR VOLUNTEERS! Please send us an email or give us a call if you would like to serve on the planning committee for one of the Sole Support for Parkinson’s walks in 2016. We are looking for volunteers to come forward in Portland, Eugene, and Vancouver! (Medford is taking a year off, but let us know if you would like to help plan a summer picnic.) Local planning committees will meet approximately monthly, with increasing frequency as we get closer to the September/October walk season.

To raise your hand for this or other PRO volunteer opportunities, contact Ginger at 800.426.6806 or email her at support@ parkinsonsresources.org.

PAIN IN PARKINSON’S DISEASE The Parkinson’s Center at Oregon Health & Sciences University (OHSU) is conducting a study to better understand pain in people with Parkinson’s disease. We are recruiting healthy controls and people with Parkinson’s. Participants will complete several questionnaires about their medical history and painful symptoms followed by a onetime visit to our testing center lasting two to three hours. Testing involves the delivery of mildly hot and cold stimuli to

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the arms. Subjects who complete the study will receive $80 for their time. There is no obligation to participate, and participation will not affect your medical care in any way.

This study has been approved by the OHSU Institutional Review Board.

If you are interested in participating or have further questions, please contact Keiran Tuck, M.D., or Eric Serres, R.A., at 503.494.7230.

MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

BOARD OF DIRECTORS PRO is governed by a volunteer Board of Directors comprised of community members with an interest and passion for serving the PD community.

Officers: Ian Smethurst Board President

Lucien Burke, M.D 1st Vice President

Greg Moore Treasurer

Kristin Whitney Secretary

Directors at Large: Greg Chaille Susan Flad George Gregores Hank Grootendorst Gerald Hulsman Barney Hyde Larry Jacobson Paul Labby Ryland Moore Kay Parr Joseph Quinn, MD Derek Ranta Richard Rosenbaum, MD Justin Smith Kelly Sweeney Peggy Wood

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PRO-VIDER PRO-FILE

What is special about working with people with PD?

by Heather Balducci, LCSW

Bev: PD is a very difficult and debilitating disease that gets worse as time goes on.

We must face each day as it comes and hold onto the support of others when we need it. At times, we feel like we’re trapped in our own body and we try to work our way out with the support of others in the group. Also, it’s fun to watch others get the motivation to exercise and start getting better little by little.

Each of our support groups at PRO is led by a dedicated volunteer facilitator. Here are the stories of two of these inspiring individuals, both of whom are completing their tenure as group facilitators and have a great deal of insight and wisdom to share.

Patty Brost Patty worked as a nurse for 38 years at Legacy’s Mount Hood Medical Center in Gresham. She has been involved with the Gresham Support Group since the late ’80s, and has shown an exceptional dedication to improving resources for seniors and those with disabilities through involvement on the board at Ride Connection and Gresham Senior Center. She has also assumed leading roles in Elders in Action and the East County Senior Coalition. As a facilitator, she has helped create a lasting community of people with Parkinson’s and has also brought in a host of fantastic educational speakers through her connections.

What led you to become a facilitator?

Patty: I started helping with the group in the late ’80s; I was setting up chairs and getting things organized with the group.

It all just kind of worked out, since the facilitator at the time needed to step away from the role. I knew it was an important group to keep going, since there weren’t many Parkinson’s support groups at the time and people were coming to the group from all over the Portland metro area.

What is a special memory of an experience in group?

Patty: I can think of several times when people came to the group and discovered that they have a friend there who is also diagnosed with Parkinson’s. It’s neat when they realize, “I’m not the only one with this disease.” Also, our group likes to keep track of those who can’t come to the MARCH/APRIL 2016

group anymore. We like to keep in contact with those folks so that they know they’re supported and we care about them.

If you had one thing to say to someone considering going to a support group, what would it be?

Patty: Go! Find out at the group how it operates, meet other people, and open yourself up to encouragement from others at the group.

What have you learned about yourself through being a facilitator?

Patty: I’ve learned that I have some special “people skills” in handling groups of people.

I have developed a sense of how to get people to talk or share about their situation and help one another.

Bev Mickelson Prior to her retirement, Bev had an extensive career in health promotion, teaching health and physical education and coaching basketball outside of Chicago.

She received a master’s degree in adult fitness and cardiac rehabilitation and used her education and experience to teach classes in balance, agility, and flexibility to older adults in retirement communities.

Bev describes her experience as “coming full circle,” as after her diagnosis of PD in 2008, she moved to Laurelhurst Village Assisted Living and began to participate in the types of activities that she had once taught. As a facilitator of the Laurelhurst group for the past three plus years, she has helped develop a community of thoughtful conversation, mutual support, and Parkinson’s advocacy.

What is a special memory of an experience in group?

Bev: One was when two members passed away within a short time period. The reality hit us hard that we are just one step away from severe difficulties. As a group, we had to face how we would cope. Two: After three years, we finally gave our group a name: the Parkinson’s Avengers! We were proud of ourselves for coming up with a name.

If you had one thing to say to someone considering going to a support group, what would it be?

Bev: Just go! This is where you find your answers to most of the questions you have about living with PD. It is in a very relaxing, supportive, and open environment.

What led you to become a facilitator?

Bev: I just moved into Laurelhurst Village, and a staff member asked me if I would start a support group. I had been diagnosed myself and wanted to get involved.

MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

(Bev Mickelson) PAGE 3

CALENDAR OF EVENTS DETAILS AND REGISTRATION INFORMATION CAN BE FOUND AT WWW.PRO.EVENTBRITE.COM UNLESS OTHERWISE NOTED.

COMMUNICATION SKILLS PROGRAM STARTING IN MARCH A large percentage of people with PD have changes in their speech, voice and swallowing at some point during the course of the disease. Symptoms might include a soft voice, mumbled or fast speech, loss of facial expression and problems communicating.

Most people get the best improvement with speech and swallowing when medications are paired with practice and exercises.

That is why Parkinson’s Resources of Oregon offers this program for those who would like to improve their speech and communication. A certified speech and language pathologist instructs our groups with activities, exercises, and discussions.

This program is not meant to replace speech therapy, but is a safe place to learn and practice new communication skills and memory strategies. It is appropriate

Living with Parkinson’s is almost by definition living with uncertainty. Questions arise immediately after diagnoses that can lend to anxiety… questions about long term finances, care considerations, rights and responsibilities.

for those who have completed the Lee Silverman Voice Treatment, (LSVT) as well as those who haven’t.

Join us as we welcome Garvin Reiter back for a comprehensive discussion of legal tools and steps you can take to plan now for your own needs and future.

Classes begin March 3rd in Eugene, March 7th in Portland, and watch for a new program starting this spring in Bend!

OTHER EVENTS OHSU PARKINSON CENTER PRESENTS

CREATIVITY PROGRAM & ART EXHIBIT MARCH 6TH IN EUGENE If creativity brings one joy and eases the burden of our everyday journey, I say, “Let’s all take art classes!” ~ Anonymous Join us for an art exhibit. Meet our talented community of local artists displaying their work. All the artists will share a story about their journey with Parkinson’s disease and how it has influenced their creativity in surprising ways. Wine & cheese will be served. Open to the community!

LEGAL ISSUES AND PLANNING FOR PD APRIL 21ST, LEGACY MT. HOOD

INSIGHTS & INSPIRATIONS Young Onset Parkinson Disease Conference An event for people 60 and younger with Parkinson’s disease and their loved ones SATURDAY, MARCH 5, 2016 9:30 am - 4:30 pm Mittleman Jewish Community Portland, Oregon

Center,

Keynote Today & Beyond:Treatment & Research in Parkinson’s Disease Matthew Brodsky, MD OHSU Parkinson Specialist Registration Now Open http://tinyurl.com/ohsu-i-i $25 / per person

THERE’S NO PLACE LIKE PRO GET YOUR TICKETS FOR OUR 7TH ANNUAL CELEBRATE HOPE GALA & AUCTION! APRIL 29, 2016 - SENTINEL, DOWNTOWN PORTLAND

We will follow the yellow brick road, celebrating the “courage” of PRO’s clients, the “brain” of local experts and resources, the “heart” of this organization dedicated to improving the quality of life for those facing this disease, and the “magic” of our supporters who make this work possible.

The PRO Gala is an uplifting experience. Gather your friends, family, and colleagues to join us!

Visit www.progala.org for tickets or to view our auction preview, including packages like a one-week stay in a spectacular Cancun resort or an exclusive dinner for 10 at Portland’s highest-rated wine bar, Pour.

Questions? Have an item to donate? Call us at 800.426.6806.

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MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

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MONTHLY GIVING EASY AS 1, 2, 3!

For many of us, making a sizable investment in an organization that is dear to our hearts feels beyond the limits of our restricted income.

After receiving interest and feedback from our supporters, we’ve found ways to make this easier and gentler. Please consider joining me in the following commitments I’ve made to PRO: 1. Set it and forget it! Set up an automatic withdrawal from your bank account that can go either through your credit/debit card or directly from your checking account. Imagine, with just $10/month you’ll have invested $120 by year’s end! To set up a withdrawal from your checking account, simply complete and return the form below.

2. Give while you get! Link your Fred Meyer rewards card to PRO and a percentage of your sales will be donated to us! Get started with the easy steps at http://tinyurl.com/fredmeyer4PRO. 3. Shop, Support, Smile! AmazonSmile is a simple way to support PRO every time you shop, at no cost! When you shop at smile.amazon.com, you’ll find the exact same prices and shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to PRO!

To learn more, call our office and speak with Ginger at 800.426.6806.

EDUCATE. INSPIRE. EMPOWER CONTINUED FROM PAGE 1 - PARKINSON’S SPRING CONFERENCES 2016. MEDFORD, EUGENE, AND BEND! He visits us from Northern California to offer his insight into new medications and surgical treatments.

Bend: Saturday, May 14, 1-5 p.m. (check-in begins at noon) “Nutrition and PD” Angela Senders, N.D., is the assistant dean of the School of Research & Graduate Studies at the National College of Natural Medicine. Dr. Senders will discuss the importance that nutrition plays in the body and how food may affect people with

Parkinson’s disease.

“Changing Our Relationship to PD Through Mindfulness” John Lenkin, a teacher of mindful self-compassion, will demonstrate practical skills for reducing stress, cultivating resilience, and sustaining life’s fulfillment while facing the challenges of Parkinson’s disease.

“Improving Quality of Life by Tackling NonMotor Symptoms” Richard Rosenbaum, M.D., specializes in the care and treatment of individuals with Parkinson’s disease

through the Portland Parkinson’s Program.

Discover how non-motor symptoms can manifest and the treatment options that can help improve quality of life.

Limited seating Register today!

800.426.6806 or www.pro.eventbrite.com

Educational support provided by:

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MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

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TAKING CARE RESERVOIR DOGS, JANE MANCHEE Four years ago when our beloved Labrador Jera died, I asked that I not be given a surprise pup for Christmas as I wasn’t sure how another dog would fit into our lives — especially as Joe’s Parkinson’s symptoms were beginning to be a noticeable element of our daily lives. But by February I was pining for canine companionship and ready to start looking for another dog. We found a breeder and went to see his pups with the intention of buying a yellow male.

When we got there, he told us he only had black males and offered the opportunity to consider a yellow female as well, suggesting that perhaps we’d like to purchase the two of them together.

Hmm, I knew pups required a lot of work, but I had grown up with multiple dogs in my family home at the same time, so I figured we could do it. Joe was intrigued by the possibility of breeding them and earning some extra income down the road, so our family grew by two. I’ve since learned (while writing this column) that Joe had some private reservations and had voiced his concerns to the breeder about the two pups possibly knocking him over. The breeder told him the two of them would focus on each other and not Joe. Despite his apprehension, Joe told me that he went along with getting the dogs because he thought I really wanted them.

Little did we realize or appreciate the very different attitudes we had toward raising dogs, not to mention the consistency required in training, the extra work for me, or critically, the toll they would take on Joe’s energy. There were times when Joe would say he wished we had never gotten them, or that we should send one back, and I’d gently remind him that we would have ended up with the more challenging dog and not benefited from the respite provided by our female. Our male, Jet, is sweet yet large, sometimes overly friendly, and more needy and talkative than our female, Fu, who for the most part is very easy to be around.

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I now know, PD or no PD, that I would never raise two puppies again at the same time. It was very difficult to train them simultaneously, and to do it separately took up too much of my time while we were both dealing with the progression of Joe’s PD. I am aware of the toll it took to bring these two young pups into our life, and yet, as they have aged and slightly mellowed, it has gotten easier. They are devoted and loyal, and Joe has grown to love them too.

A few weeks ago when I was picking Joe up from his exercise class, he wondered aloud about the possibility of making them official service dogs so we could travel more easily with them. Although it’s a nice thought, we both know he wasn’t serious about it.

For us, we find it best to talk about our fears, as uncomfortable as they may be, and in spite of momentarily heated emotions, to have it out in the open helps to defuse the tension. When we’re faced with a challenge, we first try to determine whether it is real or a red herring hiding a deeper issue. Once we clarify what the real issue is, we try to find a solution that works, and if it doesn’t we try to find another one.

MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

Through our experiences with these dogs, we’re learning that, as with many things in life, the reservoir of goodwill between two people can become depleted when one of them develops a disease that takes most or all of the attention away from nurturing emotional balance. People may shut down as they tend to the disease because it takes a piece of them a bit at a time. Others may try to find a safe distance to which they can withdraw. Sometimes it is anger that surfaces to cover the fear that lies beneath.

Joe and I recognize the need for productive alone time so Joe can refill his reservoir working on projects while I can refill mine by calling Jet and Fu and heading off into the woods. But mostly it is when we talk together candidly and have a better understanding of each other that we both feel the benefits of a reservoir replenished.

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Area Group Meetings

The Dalles 1st Wednesday, 2:00 pm Chad, 541.340.0142

Vancouver 2nd Tuesday, 11:30 am Jan, 360.433.6400

Albany 1st Tuesday, 2:00 pm PRO, 800.426.6806

Lebanon 2nd Wednesday, 1:30 pm PRO, 800.426.6806.

Tillamook 2nd Thursday, 1:00 pm Michael & Joanne, 503.355.2573

Young Onset Groups

Ashland 3rd Wednesday, 3:00 pm Bill, 541.201.0954

Longview, WA Area 3rd Wednesday, 1:45 pm Barbara, 360.423.7012

Family, friends & care partners are welcome at all of our groups.

Astoria 2nd Monday, 1:00 pm Darlene, 503.440.1970 Baker City **NEW** 3rd Tuesday, 2:30 p.m.

Richard, 541.523.0013 Bend 3rd Wednesday, 2:00 pm Julie, 541.633.7436 Chehalis, WA 2nd Thursday, 1:00 pm Ken, 360.520.4889 Coos Bay/North Bend 2nd Monday, 2 pm Jeff, 541.200.4632 Cottage Grove 4th Thursday Libby, 541.345.2988 Corvallis 2nd Wednesday, 12:15 pm Roger & Iris, 520.456.9799 Eugene/Springfield 2nd Tuesday, 10:30 am Judie, 541.485.2304 David, 541.686.8615 Florence 4th Wednesday, 1:30 pm Carole, 805.587.3394

McMinnville 1st Thursday at 1:00 pm Charles, 503.359.5820 Medford 3rd Saturday, 11:00 am PRO, 800.426.6806 Milwaukie 3rd Monday, 10:00 am Doug, 503.652.6519 Newberg 3rd Thursday, 10 am John, 503.487.6390 Louise, 971.344.4384 Oregon City 1st Tuesday, 10 am Greg, 541.912.0972 Portland NW 2nd Saturday, 10 am Marge, 503.252.6480 East Portland 2nd Thursday , 10:00 am Kevin, 503.278.0516 East Portland, Russellville 3rd Wednesday, 12:00 pm Barbara, 503.254.5900

Forest Grove 1st Monday, 10:00 am Charles, 503.354.5820

East Portland, Laurelhurst 1st Friday, 10:00 am YuWen, 612.356.8164

Grants Pass 1st Tuesday, 1:00 pm Jeff, 541.479.2578

West Portland, Bethany 2nd Wednesday, 3:30 pm Cathy, 503-690-8317

Gresham 3rd Tuesday, 2:00 pm PRO, 800.426.6806

Redmond 3rd Thursday, 1:00 pm Liz, 541.639.5989

Hermiston 1st Monday, 1:00 pm Carol, 541.720.4256 Charles, 541.567.9420

Roseburg 2nd Monday, 1:30 pm Carolyn, 541.673.7352

Klamath Falls 3rd Tuesday, 1:00 pm Randy, 541.591.0977

Salem / Mid-Willamette Valley 2nd Tuesday, 2:00 pm Dana, 503.588.1596 Jim, 503.364.8520

Lake Oswego – Kruse Way 1st Thursday, 9:00 am Charlene, 503.421.5058 LaGrande 3rd Mondays, 4:30pm Wendy, 509-946-4217

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St. Helens / Columbia Co. 1st Wednesday, 3:00PM Mary Jo, (503) 543-7090 Jenny, (503)366-8070

Toledo / Newport 2nd Tuesday, 11:00 am Faye, 541.336.2481 Tualatin 3rd Saturday, 9:30 am Trudy, 503.692.7988 Vancouver, WA (Salmon Creek) 3rd Friday at 1:00 pm Cal, 360.892.1985 Vancouver, WA (The Quarry) 2nd Wednesday, 10:00 am Cathy, 360.944.6000 Vancouver, WA – Touchmark 1st Wednesday, 1:00 pm Linda, 360.882.9110 Kim, 360.433.6400 Wallowa County 2nd Sunday Every other month, 2:00 pm Mike, 541.426.8604 Welches **NEW** 4th Tuesday, 11:00 am 503-622-3331

Eugene 3rd Wednesday, 6:30 pm Call PRO 541.345.2988 Gresham 4th Mondays, 7-9pm Donna 503-805-2478

Alternative & Supplemental Groups Portland 4th Saturday, 9:30 am PRO Office, Lake Oswego Anne, 503.349.2400 Portland – Evenings 2nd Tuesday, 7:00 pm National College of Natural Medicine (west door) Carol, 503.233.4075 Eugene **NEW** 3rd Tuesdays, 1:30 pm Carolyn 541-556-1444 Cork 541-995-8060

Wilsonville 2nd Thursday, 11:00 am Cindy, 503.694.0303

“PD Plus” Diseases

Care-Partner Groups

MSA Support Group Portland 3rd Saturday, 10:00 am Marquis Assisted Living Tony, 503.594.0901

Bend 2nd Wednesday, 1:30 – 3:00 pm Phyllis, 541.317.1188 Eugene/Springfield 4th Tuesday, 1:30 pm 541.345.2988 Portland SE 1st Thursday, 4:00 pm Janet, 503.516.5917 Tigard Lewy Body Dementia 2nd Saturday, 1:00 pm Kathy, 503.244.4714 Tigard - Male Caregivers 1st Friday, 10:30 am Chuck, 408.373.9875 Tigard - Female Caregivers 1st & 3rd Wednesday, 3:00 pm Karen, 503.754.6088 Nancy, 503.642.3213

MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

PD+ Support Group Eugene 3rd Wednesday, 2 pm Lori & Gordon, 541.999.0949

Newly Diagnosed?

Diagnosed with PD in the last year or two.

Lake Oswego 1st Saturday, 10:00 am Tom, 503.303.4871 Carol, 301.237.0476

Golf Support Group

Various times & courses in the greater Portland area as arranged by the group Paul, 503.313.5013 PAGE 7

This newsletter is published six times a year.

Articles published in this newsletter are solely for your information and should not be relied on as medical advice.

Parkinson’s Resources of Oregon 3975 Mercantile Dr., Ste 154.

Lake Oswego, OR 97035

PERSPECTIVES PRO Conference

pg 1

Call for Volunteers

pg 2

PROvider PROfile

pg 3

Calendar of Events

pg 4

GALA Tickets!

pg 5

Taking Care

pg 6

Group Meetings

pg 7

Book Review

pg 8

Return Service requested

Non-Profit Org. U.S. Postage PAID Permit No. 1673 Portland, OR

Contact Us info@parkinsonsresourcs.org toll-free: 800.426.6806

SAVE THE DATE: GALA CELEBRATE HOPE APRIL 29, 2016

If you no longer wish to receive this newsletter, please call our office at 800.426.6806

BOOK REVIEW IF I CAN CLIMB MT. KILIMANJARO, WHY CAN’T I BRUSH MY TEETH? BY NAN LITTLE “You have Parkinson’s disease” transformed Nan Little from a Person into a Person with Parkinson’s. Although never considered an athlete, upon hearing this diagnosis in 2008 at age 62, she became physically and mentally stronger by setting, and meeting, unexpected goals. Mitigating her symptoms through fast cadence cycling, she has climbed mountains and cycled thousands of miles. IF I CAN CLIMB MOUNT KILIMANJARO, WHY CAN’T I BRUSH MY TEETH? COURAGE, TENACITY AND LOVE MEET PARKINSON’S DISEASE chronicles Nan’s unorthodox approach to managing PD. She tells stories, encouraging patients to draw from her experiences points that are relevant to their own lives. She doesn’t hide. Hallucinations, constipation, compulsive behaviors, and loss are all part of the picture.

Each story is laced with courage, tenacity and love. Patient efficacy, having some control over her personal Parkinson’s path, distinguishes this book from other medical memoirs.

Nan encourages patients to take action based on scientific research with measurable outcomes. Although this book is about her experiences with Parkinson’s, it is appropriate for any person who endures a neurodegenerative disease, and those who work with them or care about them.

To meet Nan and learn more of her story, join us at the PRO Education Conference in Eugene.

MARCH/APRIL 2016

MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG

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