ACRIA Annual Report

ANNUAL REPORT 201 6

ANNUAL REPORT

4 About ACRIA 6 Robert Mapplethorpe Research Program 12 The Training Center 16 Love Heals Youth Education Program 22 The New York State HIV and Aging Coalition 23 Art & Events 24 Leadership 28 Financials at a Glance

Through research, education and advocacy , ACRIA improves lives and transforms communities to achieve a world without HIV. ACRIA envisions a world where all people with HIV receive the treatment, care, and support they need to lead healthy, productive lives and where new transmissions of the virus have been eliminated.

Founded in 1991 in response to the slow pace of research on HIV, ACRIA brought a first-ever activist, community-based approach to the study of new treatments for HIV. Since then, ACRIA has contributed to the development of nearly 20 FDA-approved medications, hel ping countless thousands live longer and healthier lives. Since

2003, ACRIA also has studied the lives and service needs of people with or at risk for HIV through its Robert Mapplethorpe Research Program, and offers critical HIVrelated , training and capacity buil ding services to health and human services professionals, as well as to those with and at risk for HIV, thro ugh its Training Center Additio

nally, ACRIA is the largest provider of HIV education in New York City public schools through its Love Heals Youth Education Program

Robert Mapplethorpe Research Program

ACRIA is unique among HIV service organizations for its expertise in behavioral research and program evaluation. Our research team is well-regarded for their innovative efforts to understand better the lives and needs of people with HIV. Specifically, ACRIA’s Robert Mapplethorpe Research Program has pioneered studies and interventions to address depression among people with HIV, especially among long-term survivors. Our research became globally recognized in 2006 following the publication of Research on Older Adults with HIV (ROAH) , the firstever study of the lives and needs of people aging with HIV. Today, ACRIA is the global authority on the issue. Thanks to ROAH, ACRIA has influenced HIV policy, treatment, and prevention efforts globally over the past decade while pioneering programs aimed at improving services for older adults with and at risk for HIV. Because our researchers are also experts in program evaluation, they have played a unique and integral role in developing and improving ACRIA’s education and training efforts across the country.

Research on Older Adults with HIV (ROAH) 2.0

Ten years after the publication of ROAH, ACRIA has embarked on an ambitious national study—ROAH 2.0— that will strengthen and expand our original research to regions of the country with high incidences of HIV among older people. Data

and findings from ROAH 2.0 will establish an evidence base for policy, advocacy, and program development to address the rapidly growing population of older adults living with HIV across the country and around the world. ACRIA is currently collecting data in New York City, San Francisco and Oakland, and Upstate New York, allowing us to examine regional differences in the treatment and engagement of older adults with HIV.

Publications

ACRIA regularly publishes its research findings (in conjunction with leading researchers around the globe) in key HIV, aging and other journals. Recent articles include:

• Brennan-Ing, M., & DeMarco R. (Eds.; in preparation). “ HIV and Aging: Interdisciplinary Topics in Gerontology and Geriatrics.” Basel, Switzerland: Karger.

• London AS, Brennan-Ing M, & Karpiak, SE. (in preparation). “Use of Complementary and Alternative Medicine among Adults Aging with HIV.”

• Kuniholm, M., Anastos, K., Lunievicz, J., Karpiak, S., BrennanIng, M . , & Ernst, J. (in press).

Hepatitis C Direct Acting Antiviral Therapies in a New York City HIV/ AIDS Special Needs Plan: Uptake and barriers. AIDS Patient Care and STDs.

• Porter, K. E., Brennan-Ing, M.,

Burr, J., Dugan, B., & Karpiak, S. E. (in preparation). The Role of Minority Stress and Crisis Competence in Psychological Well-being among Older Adults with HIV.

• Porter, K. E., Brennan-Ing, M., Burr, J., Dugan, B., & Karpiak, S. E. (2015). Psychological well-being in older adults with HIV: Mediation of the effects of stigma. The Gerontologist.

• Brennan-Ing, M., Seidel, L. Rodgers, L., Ernst, J., Wirth, D., Tietz, D., Moretti, A., & Karpiak, S.E. (2016). The Impact of Comprehensive Case Management on HIV Client Outcomes. PLOS ONE: e0148865. doi:10.1371/journal.pone.0148865.

• Negin, J, Brennan-Ing, M, Karpiak, SE, Kuteesa, M, & Seeley, J. (2015). “Sexual Behavior of Older Adults with HIV Living in Uganda.” Archives of Sexual Behavior.

• Seidel, L, Karpiak, SE, & BrennanIng, M. (2015). “Training Senior Service Providers About HIV and Aging: A Multiyear, Multi-city Effort. ”Gerontology and Geriatrics Education.

• Brennan-Ing, M. (2016). “HIV/AIDS and Aging.” The SAGE Encyclopedia of LGBTQ Studies . New York: SAGE.

• Dela Cruz, J., Brennan-Ing, M.,& Karpiak, S. E. (2015). “Health Outcomes for Older Hispanics with HIV using the Oaxaca Decomposition Approach. ”Global Journal of Health Science, 7(1), 133-143.

The Training Center

For nearly 20 years, ACRIA has provided HIV education and training for people with and at risk for the disease, and for those who provide care for them. In the early days of the epidemic when misinformation about HIV abounded, ACRIA was an important and trusted lifeline for the community. ACRIA continued to provide this essential service while expanding its work to include trainings for medical and non-medical professionals.

To date, ACRIA has trained approximately 56,000 HIV and other service providers in cities across the country , including San Francisco, St. Louis, Detroit, Chicago, Houston, Los Angeles, Atlanta, Miami, New Orleans, Baton Rouge, Jackson and Biloxi (MS), Little Rock, Columbia (SC), Memphis, and other cities with high rates of HIV.

“Living with HIV” Workshops

As the North American epicenter for the HIV epidemic, New York City has been on the forefront of both treatment and prevention efforts over the past 30 years. Although HIV infection rates have decreased overall in the city, an alarming number of people—mostly black and Latino men who have sex with men — continue to become infected. According

to the New York City Department of Health and Mental Hygiene’s most recent HIV/AIDS Annual Surveillance, blackmen were 48 percent of new diagnoses while Latinos accounted for 32% (men accounted for 75% of all new diagnoses). New York City is home to 80% of the state’s 130,000 known cases of HIV. 77% of percent of people with HIV in New York City are over 40; 50% are over the age of 50. Despite the overwhelming numbers of people with HIV in New York City, funding for essential HIV programs over the past decade declined, and HIVpositive people no longer had a place where they could seek regular education about the virus and treatment. This was unacceptable. Knowing what an important role access to proper care plays in reducing the spread of HIV, ACRIA began “Living with HIV” in January 2014 in our training space near Times Square. This past year, we helped over 300 participants become more engaged in their HIV healthcare and services , including simple guidance on discussing medications, viral loads, CD4 counts, medication side effects, and other topics with their doctors and other providers. In addition to the monthly group workshops, our HIV Education Specialists provided one-on-one counseling for 25 participants

HIV Prevention through PreExposure Prophylaxis (PrEP) in New York City

Although much progress has been made in combating HIV, it remains frustratingly difficult to stop new infections from occurring. HIV continues to devastate LGBT people and communities of color, as it has over the past 30 years, and an alarming number of Black and Latino men and women continue to become infected each year.

This can all change, as we now have the most effective HIV prevention tool in our arsenal. PrEP has been shown to be highly effective in stopping HIV transmission. By taking the HIV medication Truvada once daily, HIV-negative people are more protected against the virus than ever before. It is so effective that two major studies were halted in order to get the drug approved for HIV prevention as quickly as possible. The challenge, however, is to get those at highest risk accurate information about PrEP so that they can make an informed decision about taking it. Knowing that those at highest risk for HIV are more likely to be living below the poverty line and not seeking regular medical care (and if they are, the reality is that most physicians do not have the time to fully educate each person

a decision), ACRIA offers trainings for professionals in the community working with this target population. These include social workers, case managers, faith-based outreach workers, probation officers, substance use counselors, educators, and others who have the trust of clients who would be willing to hear more about PrEP.

In addition to safer sexual and injecting behaviors, and achieving viral suppression in HIV-positive individuals, the use of preventive medication with high risk HIVnegative people is key to ending the AIDS epidemic in New York City. Having providers reach high-risk negative populations and connect them to the health care system, offer them PrEP in an understandable and accessible manner, and establish adherence strategies for ongoing use of PrEP will lead to the effective use of this medication. ACRIA’s PrEP work is among the very first of its kind the country.

HIV Prevention and Health Literacy for Seniors in New York City

Since 2008, ACRIA has provided essential HIV education for HIV, aging, and other service providers throughout New York City. This groundbreaking program — the

study. With the number of older adults with HIV in the city only growing, we decided to take action. Through the New York City Older Adults and HIV Initiative, ACRIA:

1. Promotes community mobilization among a host of providers, such as senior, faith-based and HIV prevention and treatment;

2. Educates middle-aged and older adults on preventing the spread of HIV, trains healthcare providers on serving older adults with HIV, and promotes collaborations between and among HIV, aging, faith-based and other health and human services providers;

3. Works to reduce stigma, expands availability of HIV services, provides HIV prevention messages tailored for older adults, and addresses concerns related to various aspects of HIV and aging; and

4. Works with organizations serving middle-aged and older adults in high-risk areas to make HIV testing available and to connect them to appropriate care and services.them to appropriate care and services.

Since the program’s inception, ACRIA has conducted over 1,400 trainings for 26,000 service providers representing nearly 2,500 organizations throughout the five boroughs. This year, we are on target to train approximately 150 providers.

"With the number of older adults with HIV in the city only growing, we decided to take action."

Love Heals Youth Education Program

New York City's HIV epidemic continues to take a heavy toll on young people. Compared to their peers, young Black and Latino youth continue to experience disproportionately high rates of HIV infections. In April 2015, the New York State Department of Health released data indicating that together, Black and Hispanic youth in New York City, ages 12 to 24, accounted for 85% of new HIV diagnoses and 91% of new AIDS diagnoses in 2013 compared to their peers. Often, the young people we serve reside in neighborhoods unduly burdened by poverty, high rates of sexually transmitted infections and unintended pregnancy, drug and alcohol abuse, gang violence, rampant crime, elevated school dropout rates, and unequal access to sexuality health education and sexual and reproductive health care. These social drivers have created an environment that enabled HIV to establish deep and enduring roots within many communities of color.

Proudly, ACRIA’s targeted work in communities of color across the five boroughs, along with its strategic partnerships with the NYC Department of Health, the NYC Department of Education, and over 700 schools and community groups, has given the organization unique insight into the sexual and reproductive health and HIV prevention needs of underserved and under-resourced communities, especially among their youth. Through the Love Heals

Youth Education Program, well over 700,000 youth, regardless of sexual orientation or gender identity, as well as their parents, guardians, teachers, community leaders, and other youth allies, have been reached through the program's trainings. Our presentations have addressed critical topics, including promoting positive sexual and reproductive health outcomes, HIV and STI prevention, unintended adolescent pregnancy prevention, and leadership development. It is important to note that ACRIA recognizes the significance of ensuring that its youth-centered trainings and presentations are conducted in environments that are safe, inclusive, nurturing, supportive, and non-judgmental.

Leadership Empowerment and Awareness Program (LEAP) for Girls

LEAP for Girls trains a new generation of community educators and activists residing in East Harlem, Central Brooklyn, and the South Bronx—New York City communities of color with the highest incidence and prevalence of HIV/AIDS. Through its 16-session curriculum, LEAP for Girls empowers young women of color between the ages of 14 and 19 by strengthening their leadership abilities—including their public speaking, conflict resolution, and decision-making skills —and educating them about self-advocacy, HIV/ AIDS and its related subjects. In an attempt to address the broader

range of factors that influence how decisions about sex and sexual health are made, the program also incorporates a clinic visit, and participant-run community action project related to HIV/ AIDS education and awareness. In addition, parents and guardians of LEAP for Girls participants have the opportunity to attend a workshop on parent-child communication (which can be delivered in Spanish as well). To date, over 700 young women of color have graduated from LEAP for Girls and have reached nearly 18,000 peers and parents through community action projects, conversation-starting and adult- child communication workshops.

Speakers Bureau

As the leading provider of HIV education in New York City, ACRIA’s Love Heals Speakers Bureau has reached more than 700,000 young people. HIVpositive speakers and trained health educators visit approximately 200 schools and community groups, annually, to provide basic facts about HIV, share personal testimonials about how they contracted HIV, and discuss how the virus has impacted their lives. Yearly focus group evaluations regularly find that hearing the speaker's story, along with key HIV prevention information, made HIV and its prevalence an urgent reality and dispels stigma about living with HIV.

Youth Advisory Council (YAC)

Love Heals' Youth Advisory Council (YAC) is a 15-member youth advocacy body. The YAC provides a vehicle through which Love Heals Youth Education Program alumni collaborate to increase knowledge and develop leadership and community advocacy skills to promote the creation and implementation of evidence-informed sexual and reproductive health policies impacting New York City youth. The YAC recruits, trains, and mobilizes youth of color who will become advocates in their schools and communities around issues related to HIV prevention, and improving youth access to medically accurate, relevant, and age appropriate sexual and reproductive health information and services. ACRIA empowers and facilitates the work of YAC members through skills building and ongoing leadership development training.

Youngblood Project [2.0]Sexual Health for Young Men

Like its counterpart, LEAP for Girls, the Youngblood Project [2.0], originally piloted in 2014 and officially launched in late 2015, is designed to meet the sexuality health education, HIV prevention, and unintended adolescent pregnancy prevention needs of young men of color, ages 14 to 19. The program is delivered in partnership with individual schools, community groups, and other youth allies across

New York City. The Youngblood Project [2.0] cultivates leadership and community advocacy skills, utilizing a male-focused, sciencebased, developmentally appropriate, and culturally sensitive sexuality health education and leadership development program. The program’s training curriculum, which includes workshops on adolescent development; sexual and reproductive anatomy HIV/ AIDS; STIs and safer sex; contraception, teen pregnancy and parenting; communication skills and healthy relationships; decision-making; and effective public speaking skills, is cofacilitated by a team of two expert freelance sexual health educators

who identify as men of color. Like LEAP, it is offered in two fourmonth cycles during the school year – February through May and September through December –two hours per day after school, twice a week.

To date, 48 youth who identify as young men of color have graduated from the program and have been invited to participate in ongoing alumni initiatives, including our youthadult partnership community advocacy group, the Youth Advisory Council. During the Fall 2016 program cycle, like their counterparts in LEAP for Girls, two Youngblood Project alumni served as facilitators-in-

training at their site, while developing their own sexuality health education facilitation skills, and helping to set the tone for building and maintaining space in school, that is both wellinformed and well-trained around issues pertaining to sex, sexuality, and HIV prevention.

The New York State HIV and Aging Coalition

and aging, as well as our prominent role in the creation of Governor Andrew Cuomo’s Blueprint to End AIDS in New York State, the Governor appointed ACRIA to lead a special working group of HIV and aging experts from across the state that will make additional recommendations for improved services. Our outreach efforts for the work group were very successful. We recruited 75 members for the coalition, including the Board Chair of AARP New York, who took on a prominent role within the group.

expertise in a variety of areas, and our recommendations have been reviewed and accepted by the New York State Department of Health AIDS Institute. Over the past year, the work group has formalized into the New York State HIV and Aging Coalition, which will continue to provide recommendations and guidance on these issues statewide.

Art & Events

Since its inception more than 25 years ago, ACRIA has been championed tirelessly by the worlds of art, fashion, media and design.

In December 2016, we held our 22nd Annual Holiday Dinner where we gave three awards to key supporters: The Alison Gertz Young Leadership Award went to YFA Co-Chair Casey Fremont; the Artist Ending AIDS Award went to Michael Ward Stout and the Robert Mapplethorpe Foundation; and the Elizabeth Taylor Award was given to actress and longtime activist Judith Light.

In May 2017, we launched two distinct art events: Unframed, where we published editions by 12 artists including Jack Pierson, Anne Collier, Emily Mae Smith, and Bryson Rand; and Reframed, an auction which took place at Hauser & Wirth Gallery in Los Angeles, curated by gallery Senior Director Graham Steele, and featuring over 40 works by both emerging and blue-chip artists.

Board

Ariel Foxman

Writer & Editor Vincent William Gagliostro

Artist & Filmmaker Michael Lorber SVP; Douglas Elliman Real Estate Jonathan Mallow SVP of Connected Content; VH1 & Logo Ryan McGinley

Artist & Photographer Ales Ortuzar Gallerist

Jack Pierson

Artist & Photographer Robert Tucker Founding Partner; Tucker & Latifi Dini von Mueffling Founder & CEO; Dini von Mueffling Communications Brien M. Wassner Partner; Shearman & Sterling LLP Jason Wu Creative Director; Jason Wu Studio

Drew Elliott Clay Floren Casey Fremont Crowe Gillian Hearst Simonds Christian Langbein Dana Lorenz Julian J. Mateo, III Sofia Sanchez de Betak George Sotelo Jason Wu

Donald Baechler Ross Bleckner

Marisa Cardinale Patricia Cisneros

Bob Colacello Francisco Costa Carol Gertz Michael Goff Stefani Greenfield Carolina & Reinaldo Herrera

Young Friends of ACRIA Leadership Committee National Advisory Council

In Memoriam

Barry Binkowitz, MD

Gary Bonasorte

Marjorie Cantor Claudia Cohen Spencer Cox Alison Gertz

Kiki Mason Judy Peabody David Seidner

George N. Stathakis

David Ho, MD

Leslie Klotz

Mathilde Krim, PhD

Terrence McNally

Martha Nelson

Spyros Niarchos Beth Rudin DeWoody

Financials at a Glance

Unrestricted Board designated reserve Temporarily restricted Accounts receivable

Claim receivable Unconditional promises to give Unrestricted Temporarily restricted

Prepaid expenses and other current assets

Property and equipment, at cost, net of Accumulated depreciation

100,000 384,494 164,610 2,716 14,495 71,911 844,451

200,000 50,000 29,023 736,910 100,000 20,654 21,868 54,416 1,474,464

Liabilities and Net Assets

Liabilities

Accounts payable and accrued expenses

Line of credit payable

Salaries and vacation payable Refundable

2015 355,418 93,524 98,192

2014 290,033 78,566

Net Assets

Unrestricted

Operating (deficit) Board designated reserve for clinical research

Property and equipment

Total Unrestricted Net Assets

Temporarily restricted

(131,788) 200,000 14,495 82,707 214,610

728,997 200,000 21,868 950,865 150,000

STATEMENTS OF ACTIVITIES

Changes in Unrestricted Net Assets

Revenue and Support

Contributions

Foundations

Corporations

Individuals Government

Gross benefit income

Less: Direct benefit expense

Donated artwork sales Direct mail

Contract fee income

Net assets released from restrictions

Total Revenue and Support

Expenses

Program Services Research Education

Total Program Services

Supporting Services Management and general Fundraising

Total Supporting Services

Total Expenses

2015 278,412 36,898 99,750 726,387 927,584 (289,046) 52,928 7,916 42,283 1,883,112 150,000 2,033,112 742,668 1,089,389 1,832,057 717,189 352,024 1,069,213 2,901,270 (868,158)

2014 400,888 75,300 35,360 760,778 2,437,769 (285,060) 61,964 8,671 115,437 3,611,107 $3,611,107 816,831 1,043,983 1,860,814 495,059 495,101 990,160 2,850,974 760,133

Changes in Temporarily Restricted Net Assets

Contributions

Net assets released from restrictions

Increase in Temporarily Restricted Net Assets

Increase (decrease) in net assets Net assets, beginning of year

Net Assets, End of Year

2015 214,610 (150,000) 64,610 (803,548) 1,100,865 297,317

2014 150,000 150,000 910,133 190,732 1,100,865