Support and resources for those caring for people with dementia.
20 LIVING WITH PARKINSON'S
The path of "Papa" Babbush and his family, to share research and resources.
24 ADVOCATING FOR ACCESSIBILITY
Helping people understand their rights, communicate needs and identify resources.
47 DIRECTORY OF RESOURCES
Find these advertiser listings of resources, support and more!
28
OPENING DOORS TO ADVENTURE
From playgrounds to planes: sensory-friendly and accessible travel for people with special needs.
32
TOOLS FOR LIFE: SMART TECHNOLOGY
Artificial intelligence and advanced technology can be life-changing for people with disabilities.
36 DIY SENSORY ROOMS
Budget-friendly ideas for home, school and work that make sense for your family.
38
ACCESS DRIVING
Help for people with special needs who want to obtain a driver’s license.
50
COMMUNITY VOICES
Kadin McElwain, a college student with autism, writer and activist, shares his experience of preparing for a higher education experience.
From the Cover Illustrator: Kendra Huspaska
What is your connection to this community?
“Growing up in Northeast Ohio with parents who had careers in public service, I feel I was always uniquely positioned to be well-informed and understanding of circumstances that were different from my own. When I was a teenager, my younger brother (who was 4 at the time) was diagnosed with autism. I partnered with a program called 4 Paws for Ability where I helped with obedience training and socializing a puppy named
Huxley for about a six-month period. Also, my senior-year capstone project was to research and explore the benefits of children with developmental disabilities and animal interactions.
What does access mean to you?
ON THE COVER Illustration by Kendra
Huspaska
DEPARTMENTS
A WORD FROM THE EXECUTIVE DIRECTOR AND PUBLISHER
4 Celebrating access and the inclusive community.
WORTH NOTING
6 Little Libraries, animals providing access, adapted activities, books, blogs, what's streaming and a tribute to Milestones co-founder.
PEOPLE TO KNOW
43 Meet individuals, organizations and companies that strive to provide support for those with special needs.
EDUCATION
10 Help students manage emotional triggers.
BEHAVIORAL & DEVELOPMENT
11 Supporting executive functioning skills.
PLANNING
14 Preparing for life after high school.
40 Planning for a special needs trust.
FAMILY MATTERS
22 Helping to accommodate all ages bathroom needs with universal changing tables.
LIFESTYLE
12 Choice-based day programming.
RECREATION & TRAVEL
16 Benefits of adapted sports programs.
17 How museums can be accessible to everyone.
ADVOCACY
42 Why accessible transportation matters.
“I think access is about bridging gaps and, like the cover illustrates, opening doors so everyone can live their lives to the fullest. Access goes beyond inclusivity in the readily-understood sense (city infrastructure, housing, public spaces, digital platforms, community-based services, health access, etc.) but also social,
cultural and recreational inclusion as well. Navigating the world can be challenging for people with special needs and their families, but I'm encouraged by the work being done to make every opportunity accessible for all people.”
What do you hope people take away from the cover you created?
“I hope this cover allows for anyone who interacts with it to really think about the infinite number of entrances we could have illustrated, and to see how each opened door brings endless new possibilities for accessibility.”
Executive Director’s/Publisher’s Note
ACCESS IS OPENING DOORS FOR EVERYONE
What does “access” really mean?
At LiveSpecial.com, we believe it’s about more than ramps or doorways — it’s about opening doors to everything. Access to information. Access to care. Access to connection, community and joy. Regardless of your age, ability, diagnosis or financial status, everyone deserves the tools and support to live their best life.
In this 11th edition of the magazine, we celebrate new inclusive playgrounds, spotlight adaptations in the arts and education, and share real-life stories of how people are breaking barriers every day. Because accessibility isn’t just a checklist — it’s a vision. An integrative, inclusive way of thinking that says: no labels, no limits.
Whether you’re navigating aging, a new diagnosis, or simply unsure where to turn — we’re here. LiveSpecial.com is more than a directory. It’s a living, breathing resource for a community that sees everyone as part of one whole.
So if you’re ever struggling to access something — services, information, support — reach out. Let us help you open that door.
You’re not alone. You’re part of this incredible community. And we’re here to help you access it all.
With gratitude, Mindi Axner Executive Director, NCJW/CLE
PARTNERSHIPS MAKE AN IMPACT
For 11 years, LiveSpecial.com Magazine has stood as Northeast Ohio’s premier annual resource dedicated to supporting individuals with special needs and their families.
As we celebrate the 2025-26 issue, we are grateful for the impactful partnership that makes this groundbreaking publication possible. This collaborative effort between Northeast Ohio Parent magazine, Northeast Ohio Thrive magazine, and the National Council of Jewish Women/ Cleveland (NCJW/CLE) has served to increase awareness and to ensure every individual and caregiver discovers the vital resources, opportunities and connections they need to thrive.
We extend our deepest gratitude to NCJW/CLE for their unwavering dedication to the special needs community and their passionate partnership in this endeavor. Their vision and commitment are integral to the success and impact of LiveSpecial.com Magazine.
Our heartfelt thanks also go to our dedicated readers, whose engagement fuels our mission, and to our valued advertisers and community partners. Your support allows us to reach over 25,000 readers through strategic distribution to more than 500 locations, including therapy centers, healthcare facilities, schools and libraries. Furthermore, our presence at more than 40 community events and an interactive digital edition expand our reach to thousands more. Together, we are building a more inclusive future for all.
VOLUME 11 26055 Emery Road
Warrensville Heights, OH 44128
livespecial.com ncjwcleveland.org
PRESIDENT Marcy Schwartz president@ncjwcleveland.org
Lindsey Geiss, Cindy Glazer, Nancy Udelson, Bob Sandrick, Ginny McCabe and Erin Sernoffsky
LiveSpecial.com Magazine is published by Northeast Ohio Parent Magazine and Mitchell Media LLC PO Box 1088 Hudson, OH 44236 330-822-4011
Copyright 2025 by NCJW/CLE and Northeast Ohio Parent
MINDI AXNER Executive Director
BRAD MITCHELL Publisher
•
Borrow, Read, Share
Libraries of all shapes and sizes provide access to learning, technology and play.
By Ginny McCabe
Many nonprofits and organizations throughout the Greater Cleveland area, such as lending libraries, public libraries and resource centers, provide free opportunities for everyone to gain access to tools for learning and play.
LITTLE FREE LIBRARIES
Cleveland’s Little Free Libraries program supports nearly 100 Little Free Libraries in underserved areas of Cleveland, says Debbie Joseph, chair of National Council of Jewish Women/Cleveland (NCJW/CLE), the nonprofit organization of which LiveSpecial.com is a project.
“Our literacy programs have worked with Cleveland Metropolitan School District schools, Warrensville
Heights schools, Shaker Heights City schools, and Family Promise in Shaker Heights,” she says. “Key locations include outside of schools and businesses, and in parks. One of our most popular locations is Dave’s Market in Shaker Square.”
A Little Free Library is a “take a book, share a book” free book exchange, according to the nonprofit organization Little Free Library. These come in many shapes and sizes, but the most common version is a small wooden box of books. Anyone may take a book or leave a book to share.
“We have a dedicated committee of over 50 volunteers who curate and clean donated books, sort them, and deliver them to the Little Free Libraries throughout the city and inner-ring suburbs,” Joseph says. “They also check each library for damage so any necessary
repairs can be made by our partners.
“When we are stocking these libraries, we prioritize diverse books — introducing readers to new topics or perspectives,” she adds. “We also work to make sure readers see themselves and their families represented in what they read, so they feel seen.”
The program delivers 3,000 to 4,000 books per month.
“We believe learning should be a lifelong pursuit that continuously broadens our understanding of the world and one another,” says Marcy Schwartz, NCJW/CLE president.
“Books, in particular, offer a powerful window into lives and experiences different from our own. Seeing the world through different perspectives fosters empathy and understanding — something we all need more of.”
Little Free Libraries are popping up across the region, such as in local parks like Geauga Park District Anyone is welcome to take a book home from the new weather-proof libraries at Bass Lake Preserve, Swine Creek Reservation, the West Woods, the Maple Highlands Trail’s South Street entrance, Big Creek Park and Walter C. Best Wildlife Preserve Friends of Morley Library supports Little Free Libraries at multiple area locations to inspire the love of reading, promote creativity and foster neighborhood book exchanges.
United Way of Greater Lorain County offers 29 Little Free Libraries throughout the community. Little Free Libraries of Aurora, Ohio, is a community-driven initiative that provides books for children at local parks, schools and businesses. Visit littlefreelibrary.org to download the app to find other Little Free Libraries in the region.
BORROW ASSISTIVE TECHNOLOGY, MOBILE DEVICES &
MORE
Columbus, Ohio-based OCALI offers a curated Lending Library and other resources for families and educators in Ohio. In addition to accessible books, patrons can browse the catalog and all of the available
resources, such as assistive technology kits and devices, curriculum kits, apps, mobile devices and more.
Ninety percent of the collection can be borrowed by the general public. Patrons can borrow up to five items at a time. Items can be shipped directly to and from patrons at no cost to them via FedEx.
“We always get really great feedback from families, educators and professionals on how helpful and beneficial some of the items have been to borrow and trial,” says Valerie Frey, librarian at OCALI. “Assistive technology can be very expensive, so it’s a great opportunity to see if the thing that they borrow is going to be the support they need.”
OCALI’s book collection is different from what patrons might find at a public library.
“A lot of our books are either about a disability, or they are written from a first-person perspective of somebody that has a particular disability, and they are speaking about it,” Frey says. “We do have some children’s books in addition to books for adults. Kids’ books might touch on a character that is deaf or hard of hearing, or has autism. It’s important to have that representation throughout our books.”
Collaborating with OCALI’s Lending Library, OCALI Centers within the nonprofit organization serve a variety of needs within the community.
“Our library, as well as other assistive technology lending libraries that are in Ohio, have something to offer that a lot of times you can’t get at a public library,” Frey says. “We have a specialized collection at OCALI, where we are working specifically to help support people with different abilities. So, it could be adding books that have accessible braille put onto them or adding things that are going to support a kid that has different motor abilities. It’s going to be materials they can’t just find walking off the street into a public library.”
OCALI Lending Library currently serves 2,579 patrons and offers 3,095 items. More than 300 items are assistive technologyrelated. During the 2024-25 school year, OCALI Lending Library sent out 919 borrowed items, including 182 books, 186 assistive technology devices and 203 assistive technology kits with various components.ocali.org/lending-library
READING Resources
These additional helpful resources are also making an impact on readers of all abilities:
• Piper’s Key is a 501(c)(3) nonprofit charity that gifts inclusive books to children with disabilities that represent their unique selves in a positive light. Free books are mailed to children to ensure that the most basic learning tool is a positive representation of children of all disabilities. For more information or to send a book, go to piperskey.com
• Cleveland Public Library has 30 branch locations with countless resources, such as books, music, videos, sensory kits, adaptive technologies and more. To find a branch in your neighborhood, go to cpl.org. All branch hours are 10 a.m. to 6 p.m. Monday through Saturday (closed Sundays). In 2025, CPL’s Main Library building is celebrating its 100-year anniversary, marked by a state historical marker to recognize its history. cpl.org
• The Literacy Cooperative, the program partner for Dolly Parton’s Imagination Library in Cuyahoga County, has mailed more than 2.25 million books to over 80,000 children since its inception. While 39,000 are enrolled, over 25,000 are eligible and not yet enrolled. The goal is to enhance kindergarten readiness and promote family literacy habits in Cuyahoga County. Children can enroll online to receive free books. Visit literacycooperative.org/ imagination-library
Dolly Parton
Worth Noting
Rookie and Max
Animals Providing Access
by Jeannie Fleming-Gifford
“Rookie helps me feel better and calmer,” Max shares as he reflects on his partnership with his service dog, Rookie.
His mom, Susan, adds, “Rookie gives Max the confidence to take on tasks, and that allows us as a family to access more opportunities.”
Max and Rookie have been partners for seven years. Rookie, a service dog from W.A.G.S. 4 Kids (Working Animals Giving Service 4 Kids), was just six months old when he was matched with Max. W.A.G.S. 4 Kids trains both mobility and autism service animals.
Service dogs help support positive social interactions, provide visual and tactile stimulation, foster self-motivated behavior, and encourage emotional bonding. They also provide assistance to individuals who need mobility, sensory, medical and mental health services.
Max lights up as he refers to Rookie as “sensory material,” noting how much he loves Rookie’s fur, weight and cuddles.
Rookie’s journey began as a puppy raised by a group of inmates in Ohio correctional institutions.
The W.A.G.S. trainers visit weekly to train the inmate handlers, who work closely with the dogs. In contrast, many other service dog organizations rely on community volunteers to raise pups until they are old enough for formal training.
W.A.G.S. 4 Kids notes that the wait for a service dog through its program can be up to two years — a timeline echoed by many similar organizations.
Listening to Max and Susan talk about Rookie’s impact makes it clear: this partnership has been lifechanging — for both Max and Rookie.
Additional Service Dog Organization Resources:
• neads.org
• servicedogsforamerica.org
• sf.4pawsforability.org
• wags4kids.org
FPlaytime and Adapted Activities for Little Ones
By Angela Gartner
our-year-old Imogen (Immy), who was diagnosed with Angelman syndrome (AS), a rare genetic disorder, is a super happy, affectionate child who loves the water, according to her mom, Beth Phillips Synk.
In fact, Synk says that was one of the clues to Immy’s diagnosis. Children who have AS are often happy, smile and laugh. The condition also includes developmental delays, speech and mobility challenges, and seizures, according to Cleveland Clinic.
“It was a long journey to get an official diagnosis for her because of how rare the condition is and how few medical professionals were even familiar,” Synk says. “We’ve been navigating having an official diagnosis and everything that means.”
Synk and her husband, Mike, have been taking advantage of any therapies or activities they can find for Immy. These include physical, occupational, aquatic and music therapies, as well as Camp Cheerful’s Therapeutic Horsemanship program in Strongsville. They also have her in the early intervention program for preschool.
“I think children should have as much access to therapy as they need,” Synk says, noting the struggles in qualifying for Medicaid or Medicare and having to pay for many services through private insurance.
“I am fortunate that I have a good job with good insurance, but it makes me think of other children who might not be in that same position,” she says.
Immy, who has an older sister, Annabelle, 6, is also very social and the family has attended free resources such as adapted storytimes and an adapted playgroup from Connecting for Kids, which serves ages 6 and younger and their parents.
Synk adds parents at the playgroup have the opportunity to connect with others, take a respite break for themselves and play with their children in a safe environment away from home.
“I think what’s great about the adapted playgroup is everyone is encouraged to come as they are,” Synk says. “No one is judging you or telling you that you need to leave or handle your child better. A place like an adaptive playgroup, you just feel much more welcomed and accepted, because everybody knows that all of these children have differences and that’s absolutely fine.”
Here are local resources the Synk Family has utilized for Immy:
• Connecting for Kids, connectingforkids.org
• Achievement Centers for Children (PT, OT, SLP), Camp Cheerful, Therapeutic Horsemanship, achievementcenters.org
• For adapted storytimes, check with your local library
Learn about Angelman syndrome:
• Angelman Syndrome Foundation, angelman.org
• Foundation for Angelman Syndrome Therapeutics, cureangelman.org
Imogen
Legacy of Support
Lois Davis’ Dedication to NCJW/CLE and LiveSpecial.com
Through their continued support and philanthropic efforts, Lois Davis and her late husband Larry ensure that LiveSpecial.com continues to serve as a vital resource for those who need it most, reflecting their strong belief in the power of community and compassion.
Read About It
SHINE ON: RAISING OUR KIDS WITH DISABILITIES TO LEAD BRIGHT, HAPPY LIVES
by Cynthia Schulz, cynthiaschulz.com
Cynthia Schulz, a local mother of four, received her daughter’s diagnosis and became a champion for children with disabilities. She shares stories, from childhood through adulthood, including education, inclusion, family, friendships, community and careers.
HAVE WHEELCHAIR WILL TRAVEL havewheelchairwilltravel.net The experiences of an Australian family traveling with a child in a wheelchair.
FINDING COOPER'S VOICE findingcoopersvoice.com
Created by a mother of a child with
severe, non-verbal autism, the blog shares experiences and supportive community.
WE’RE A LITTLE DIFFERENT
By Jacqueline Jones
This book describes the importance of being kind to those with exceptionalities.
CURB FREE WITH CORY LEE curbfreewithcorylee.com
Cory Lee, a travel blogger who was diagnosed with Spinal Muscular Atrophy (type 2) at age 2, shares his travel experiences as a wheelchair user.
LIFE WITH ASPERGERS life-with-aspergers.blogspot.com
Gavin Bollard, a dad with Asperger's, blogs about his life.
Ilana Hoffer Skoff, together with Mia Buchwald Gelles, paved the way for autism families in Northeast Ohio to find support and community. The two mothers created Milestones Autism Resources in 2003 out of the need they experienced themselves. Ilana Hoffer Skoff, sadly, passed away on Sunday, March 2, 2025, at the age of 58. Skoff helped build something from nothing and her impact has no doubt been monumental. She worked tirelessly to improve the lives of individuals with autism. She helped the community realize and appreciate the uniqueness of individuals with autism. She helped take the Milestones organization from two volunteers to a professional staff of about 20, building a diverse team of passionate, dedicated professionals, which includes autistic employees and interns. Her strategic focus on community building, volunteer engagement and partnership with funders led Milestones to expand community education for first responders, medical students and other professionals on how they can better support and interact with the autistic community. Skoff recognized the varied needs of individuals from different ethnic, social and neurodiverse backgrounds. She prioritized resources to better connect with marginalized communities in order to help bridge the gap in diagnosis and services for autism. In her honor, Milestones will continue to move forward the mission she so deeply loved. — For more information, visit milestones.org
Alana Gohn, 16, of Solon, had been the inspiration for LiveSpecial.com as her parents, Scott Gohn and Elaine Eisner sought to find more resources for their daughter and other families in the region. Alana was diagnosed with HUWE1-related neurodevelopmental disorder last year after her family spent years searching for answers. The condition impacts
2015 What Access Means 2025
brain development, intellectual disability and other health issues. Her parents were a driving force for the development of the LiveSpecial.com project in conjunction with the National Council of Jewish Women/ Cleveland (NCJW/CLE), which serves Northeast Ohio. Now, years later, Eisner shares what access means to her daughter as LiveSpecial.com magazine publishes its 11th edition.
“It means allowing somebody the opportunity to try anything with any adaptation necessary. Sometimes we just have to think outside the box. A perfect example, we took Alana to a waterpark and they were absolutely not going to let her go into the lazy river because you had to sit on a raft. She does not have the ability to sit on a raft and freaks out. So we got a manager to show what Alana can do and they let us do it. I think you just have to keep pushing the envelope to be included in anyway possible.” — Elaine Eisner
What’s Streaming?
QUAD GODS, HBO, documentary movie
The world’s first all-quadriplegic e-sports team illustrates the power of human mettle and spirit.
CRIP CAMP: A DISABILITY REVOLUTION, Netflix, movie Summer camp galvanizes a group of teens with disabilities to help build a movement, forging a new path toward greater equality.
DEAF U, Netflix, eight seasons
In this reality series, a tight-knit group of deaf and hard of hearing students share their stories and explore life at Gallaudet University.
Ilana Hoffer Skoff
Alana Gohn
Larry and Lois Davis Photo courtesy of Lois Davis
PHOTO COURTESY OF MILESTONES, ALANA PHOTOS BY JULES WHITE AND ELAINE EISNER
HELP TO MANAGE EMOTIONAL TRIGGERS
Tips for Self-Regulation Strategies for Families
It's important to teach students, whether at school or at home, to understand and manage physical and emotional states. When it comes to support at home, parents and caregivers are encouraged to maintain open, nonjudgemental communication with the child. Ask simple questions like, “what are you feeling right now and do you know what is making you feel this way?” Sometimes these questions are best answered with a zones chart or other visual aids. The Zones of Regulation, a social-emotional learning curriculum by Leah Kuypers, M.A. ED, OTR/L, helps kids understand there are no “bad” zones. Every child moves through them and they are something every person experiences. The goal is to build awareness of triggers and self-regulation strategies, encouraging students to evaluate their reactions in context and match strategies to their zone. The program has been integrated at schools such as Julie Billiart School.
It is important that the child feels empowered to express their feelings and to be understood. Parents should guide conversations to help their child identify triggers. Create a list of triggers and write them down, as this could help the child recognize patterns and build selfawareness. Set routines for daily check-ins and practice strategies regularly — not just during emotional moments. Create a positive environment by celebrating small wins such as recognizing a feeling or choosing a coping strategy and provide positive feedback for the child’s choices.
THE FOUR COLOR ZONES
• Blue: Low energy states like sadness, tiredness or boredom.
• Green: The ideal "ready to learn" state: calm, focused, content.
• Yellow: Elevated emotions — stress, frustration, excitement, silliness — that signal a warning.
• Red: Extreme states — anger, panic, grief — marked by loss of control.
SMART TOOLS FOR SELF-REGULATION
• Blue Zone: Movement, hydration, deep breaths.
• Green Zone: Focused activities like note-taking or helping peers.
• Red Zone: Breathing techniques, talking to someone, requesting a break.
Julie Billiart Schools is a network of private schools serving K-8 students with mild to moderate learning and social differences in Akron, Brecksville, Lyndhurst and Westlake. To learn more about JB and its curriculum, visit juliebilliartschool.org.
PHOTO COURTESY OF JULIE
BILLIART SCHOOLS
FOUR WAYS TO SUPPORT YOUR CHILD’S EXECUTIVE FUNCTIONING SKILLS
By Lorilynn Wolf, Communications Director, Connecting for Kids
Are you frustrated that your child works late into the night to finish a project and then forgets to turn it in the next day? Does your child become easily upset over small things that don’t seem to bother peers? Is your student constantly getting in trouble in class for blurting out answers?
If you answered yes to these questions, your child might have executive function challenges. These challenges fall into three areas: working memory or keeping track of information; flexible thinking to adapt and respond to the environment; and using selfcontrol to manage thoughts, feelings and behavior. So how do you support your child’s executive function? Below are four suggestions for families:
teach needed emotional regulation and social skills.
2. Work with an occupational therapist (OT)
An OT can help improve your child’s time management skills by using timers or breaking down large tasks into smaller steps. OTs also can share organizational strategies or self-monitoring techniques to keep your child focused.
3. Partner with the school
Work with your child’s school team to obtain an IEP or 504 plan. Executive functioning accommodations can be put into both of these documents to ensure the school provides a conducive learning environment.
1. Seek out a mental health counselor
A mental health professional can help you understand how executive function issues are impacting your child and can
4. Learn ways you can help through education/coaching Connecting for Kids offers a new Executive Functio Resource Guide and one-on-one assistance to families. Visit connectingforkids.org for more information.
A DAY OF ENRICHMENT
How Choice-Based Programming Promotes Whole-Person Wellness
“Day programs that emphasize personal choice, growth and inclusion play a crucial role in promoting dignity and purpose for participants.”
— Lisa Kristosi
Individuals living with intellectual and developmental disabilities (IDD) are not defined by what they cannot do. They represent a diverse community of people with unique interests, talents and strengths.
Adult day programs play a vital role in supporting these individuals who deserve access to programs that reflect that rich diversity.
“Day programs that emphasize personal choice, growth and inclusion play a crucial role in promoting dignity and purpose for participants,” says Lisa Kristosik, president and CEO of Blossom Hill, which operates residential care homes, respite services, in-home care and an adult day program called Abilities Enrichment Center. “We know that when individuals have a say in the direction their day takes, they are more prepared to relax, be comfortable, and enjoy themselves. It’s true for them just as it would be for anyone. And when they have that degree of self-determination, it makes them more open to and accepting of the enrichment they can derive from an activity.”
At Abilities, for example, each day has at least one outing scheduled away from the center, as well as a full slate of on-site activities. An outing
might include a trip to a zoo, museum, nature center, amusement park or baseball game. On-site activities can include crafts, games, abilityappropriate physical exercise, visits from therapy animals, music therapy, karaoke, bingo, sensory activities and movie days.
Many day programs encourage social engagement and offer tremendous value. Participants have the chance to interact with peers in a structured, supportive setting, which can lead to the development of long-term friendships. Group activities such as games, outings or collaborative projects help participants develop essential social skills — such as listening, empathy and cooperation — that are key to successful community integration.
Additionally, community outings and partnerships allow participants to engage with the broader public, helping to break down societal barriers, challenge stigmas and promote a culture where individuals with IDD are recognized as full participants in society.
True enrichment comes from the meaningful choices that enable individuals to craft their own experience. It's important to research a day program that best fits the needs of the individual. Whether it’s gardening in a greenhouse, dancing in music therapy, exploring during a community outing or enjoying adaptive physical activity, programs should be designed to engage the whole person. Personalized, choicebased day programming can foster growth, independence and joy, one individual at a time.
Ultimately, the main goal of any adult day program should be to help individuals live as independently as possible on their own terms. Whether that means managing personal tasks more effectively, making decisions about their own schedule, or navigating their communities with greater ease, the right day program can become a foundation for greater autonomy.
The more individuals are empowered to make choices and develop skills, the more confident they become in directing their own lives.
Working in the greenhouse at Abilities Enrichment Center
TRANSITION PLANNING
Preparing for Life After High School
Cora Gedeon is a cheerful and hardworking young autistic woman. A recent high school graduate, Cora now has a part-time job, lots of hobbies and a bright future ahead, but her journey here didn’t happen overnight.
“We started preparing Cora very early on learning life skills,” says Carrie Gedeon, Cora’s mother. “At five years old, we started teaching her how to do laundry. We made a picture chart of what the washing machine dials should be and got her started on washing towels.”
What may seem like a simple chore was actually laying the groundwork needed to prepare Cora for independence.
Post-secondary transition refers to the time after high school, when an individual may explore continuing education, employment opportunities or independent living.
“This planning is crucial because it makes sure the child is equipped based on their ability,” says Ruth James-Dickens, a teen/adult helpdesk specialist with Milestones Autism Resources. “Parents worry about the uncertainty of their child’s future, particularly if the child has more involved needs. Their concerns are valid because they are now stepping into the unknown.”
In order to get a head start on transition planning, individuals and caregivers should consider the individual’s interests, strengths and challenges, then apply those to wants and needs concerning education, employment and
Cora Gedeon graduated high school and is now thriving in a part-time job.
housing. Consider skill level, what support might be needed, and which environment makes the individual the most comfortable. Some might want to explore a twoor four-year degree, while others might be interested in learning a trade, or entering the workforce through employment opportunity programs.
“Cora thrives when she is with others. We wanted to make sure that didn’t end,” Carrie Gedeon says.
“At my job I clean, deliver food to customers, and am learning how to do new tasks every day,” Cora says. “Now that I am 20, I am practicing to self-advocate, staying active by running, doing yoga, and taking
dance classes. I think I will someday live with friends and keep working.”
Having a plan in place is what made the difference for Cora — and Carrie Gedeon says that is the whole idea.
“It may be overwhelming, but our kids are going to grow up into adults. We need to start planning for adulthood as soon as we get the diagnosis.”
Milestones Autism Resources provides resources for autistic individuals, families and professionals in Ohio. Its free Helpdesk, annual ConneXtion conference, training workshops, and vetted online resources can help families and their children plan at any age, stage or ability. Visit milestones.org.
SADAPTED SPORTS PROGRAMS ENHANCE ATHLETES’ QUALITY OF LIFE
By Maggie Clautti, Manager of Youth Services, Achievement Centers for Children
17-year-old
eventeenyear-old Isaiah Finney won third place in the seated shot put competition at the 2025 Ohio High School State Track Meet. Hearing the news, my excitement likely rivaled his mother’s. That’s because in his nine years with our adapted sports program, I have watched Isaiah blossom into an amazing athlete, participating in many activities.
The magic of adapted sports is not going to make every athlete a state-level competitor like Isaiah — but it will make every athlete feel welcome and empowered to be the best athlete they can be.
BENEFITS OF INCLUSION IN SPORTS
Mental Health —
Multiple studies demonstrate that youth adapted sports programs decrease anxiety and depression, while increasing self-esteem and emotional regulation.
Social Health — An apprehensive, withdrawn athlete in his or her first week becomes excited to reunite with newfound friends in the following weeks, after finally feeling part of a team. Adapted Sports programs welcome athletes as young as 6 through adulthood, with older athletes often mentoring younger ones.
Physical Health —
Making fields and courts accessible and welcoming motivates adapted sports athletes to attend. Physical activity is especially important for athletes with disabilities. Adapted Sports has been proven to increase muscular and gross motor strength, and endurance.
Self-Esteem and Independence — There is a newfound pride and sense of independence that come from being part of an adapted sports team — gifts that extend far beyond the athletic arena.
Isaiah Finney participating in Achievement Centers for Children’s Cleveland Browns Adapted Football League.
MUSEUMS SHOULD BE FUN — FOR EVERYONE
More than ever, museums need innovative, relevant, and engaging exhibits that ensure everyone has access to learning opportunities. For today’s museums, access means more than just admission — true inclusion also requires thoughtful design, responsive programming, and a deep commitment to creating a welcoming space that serves visitors of all ages, needs, abilities and backgrounds. It also means departing from the static, hands-off exhibits of the past in favor of more dynamic, relatable, and hands-on experiences. Interactive exhibits and an inquiry-based approach can help to put visitors at the center of the story. For example, the Cleveland Museum of Natural History has introduced a new model that prioritizes inclusivity, accessibility and relevance. At the museum, inclusion is more than a goal; it’s a guiding principle.
KNOW BEFORE YOU GO: CHECK ACCESSIBLE OPTIONS AT A MUSEUM/ATTRACTION
1. Look for wheelchair-accessible spaces, exhibits, and restrooms. If a wheelchair is needed, find out where and how to access one during a visit. Also, check platforms such as WheeltheWorld.com to see verified accessibility details for organizations such as the Cleveland Museum of Natural History. Visitors who are deaf or hard of hearing should check what amplification devices are available.
2. If you are bringing a personal care assistant or primary caregiver, check what admission discounts or accommodations are available. At the Cleveland Museum of Natural History, both receive free admission.
3. Many museums and attractions offer opportunities for people with sensory needs to explore, whether it's a designated visit time, sensory rooms or items to borrow. For example, the Cleveland Museum of Natural History is a KultureCity Certified Sensory Inclusive Venue, which provides sensory bags for visitors and helps them to identify headphone zones and quiet areas.
Remembering the Caregivers of Memory Care
By Cindy Glazer and Nancy Udelson
Cindy Glazer is a retired special educator. She was caretaker for her husband, Jim, who lived with frontal lobe dementia. It was especially challenging as his disease became most demanding during the early months of COVID in 2020. Nancy Udelson retired from her position as CEO of the Alzheimer’s Association Cleveland Area Chapter after more than 12 years in June 2020. She is currently training to be a Support Group Facilitator at the association. The role of caretaker is demanding and often frustrating, regardless of the needs of their loved one. The need for the caretaker to get support cannot be underestimated. These resources represent just some of the options available for caretakers of individuals with dementia. A conversation about
CINDY: “When my husband was ill with frontal lobe dementia, I found that it was difficult to find accessible resources for support. 24/7 care was taking all of my time and energy, and I truly needed help. I am hopeful that your knowledge and experience can help caregivers find options that work for their particular situation. First, what types of resources are available?”
That’s why we’re members of National Council of
That’s why I volunteer with the National of Jewish Women.” “NCJW/Cleveland identifies a need in the community and helps fill it. Be the Face
Celebrate literacy at the Annual Meeting, June Membership starts at $45 216.378.2204 for tickets www.ncjwcleveland.org
ncjwcleveland.org 216-378-2204
NANCY: “As the number of diagnosed individuals continues to increase, it is no surprise that there are more resources available today than there were even
Cindy Glazer
Nancy Udelson
five years ago. Listed (see box below) are just a few of the resources available in Northeast Ohio. Many local communities have caregiver support programs, so be sure to check out your local resources.”
CINDY: “What are the benefits of dementia support groups?”
NANCY: “Dementia caregiver support groups provide a valuable network of emotional support, caregiving advice and community. Whether in-person or online, these groups can help caregivers manage stress, learn new strategies and connect with others who understand their journey. If you’re looking for support, explore the listed resources and find a group that meets your needs.
"Alzheimer’s Association support group facilitator Ruth Elliott shared, ‘The families in my groups have reiterated how valuable participating in a support group has been for them. They talk about how important it is for them to have a safe space to openly express their challenges to a group of people who truly understand. They appreciate having access to “best practices” and
Caregiver Resources
ALZHEIMER’S ASSOCIATION
Helpline is a free service offering support for people living with dementia, caregivers, families and the public 24/7. Translators are available. My ALZ Journey, the Association’s free mobile app, provides step-by-step support, tailored tools and trusted information to make early-stage planning easier for newly diagnosed people and their care partners. 24/7 Helpline 800-272-3900; dial 711 to connect with a telecommunications relay service (TRS) for people who are deaf, hard of hearing or speech impaired. alz.org
BENJAMIN
ROSE
Benjamin Rose provides both in-person and telephone-based programs and a free website offering solutions for dementia caregivers. 890 Fairhill Road, Cleveland, 216-791-8000, benrose.org
BEST PROGRAMS FOR CAREGIVING
A first-of-its kind, free online database that offers family and friend caregivers detailed information about proven dementia care programs that are available in their own community. bpc.caregiver.org
reliable resources, but most importantly they value being able to receive and offer validation, compassion, tips and support to and from other group members."
"Wayne, a member of the Olivet Institutional Baptist Church support group, is a caregiver for his mother and shares caregiving responsibilities with his sister. He says it is helpful to get input from other people dealing with the same issues.”
CINDY: “What other advice would you offer caregivers to help them prepare to get through the challenges of a loved one with dementia?”
NANCY: “Try to find programs that will engage the person with dementia in meaningful activity while also giving you some time away from caregiving. Caregiving takes a tremendous amount of energy and patience.
"Resources such as the ones listed in this article will help you manage your journey with Alzheimer’s or another dementia. Taking care of yourself physically, mentally and emotionally are vitally important to both you and your loved one. Don’t be afraid to reach out for help.”
THE CAROLYN L. FARRELL FOUNDATION FOR BRAIN HEALTH’S CENTER FOR ARTFUL LIVING
The Carolyn L. Farrell Foundation for Brain Health’s Center for Artful Living helps to empower, engage and educate individuals, care partners and families living with dementia or other brain health issues to live a more fulfilling life through the arts, social interaction and community outreach. 440-414-0434, farrellfoundation.org, email info@farrellfoundation.com
MEMORY CAFE
Memory cafes are social gatherings designed for individuals living with memory loss, along with their families and caregivers, to connect with others in a supportive and engaging environment. They aim to reduce social isolation and stigma associated with dementia, offering opportunities for social interaction and education. Many local libraries and community centers offer regular memory cafes, so check your local resources. Dementia Friendly America (DFA) memory cafe directory: dfamerica.org/ memory-cafe-directory; Life: A Dementia Friendly Foundation, dflife.org
VA CAREGIVER SUPPORT PROGRAM
The Department of Veterans Affairs (VA) Caregiver Support Program (CSP) offers clinical services to caregivers of eligible and covered veterans enrolled in the VA health care system. The program’s mission is to promote the health and well-being of family caregivers who care for veterans, through education, resources, support and services. caregiver.va.gov
WESTERN RESERVE AREA AGENCY
ON AGING
WRAAA provides free services and programs that give older adults and persons with disabilities access to information, care planning, consultation, and long-term care services and support.
1700 E. 13th St., Suite 114, Cleveland, 800-626-7277, ext.3131 areaagingsolutions.org/programsservices/family-caregiver-support/
Living with Parkinson’s
The path of “Papa” Babbush and his family, to share research and resources.
By Lindsey Geiss
Degenerative neurological diseases are the leading cause of disability worldwide.
The Parkinson’s Foundation reports an estimated 90,000 Americans each year are diagnosed with Parkinson’s disease, a progressive disorder of the nervous system that affects movement. A Parkinson’s diagnosis looks different to every person.
Amy Babbush Eisenberg’s 87-yearold father, Dr. Charles “Chuck” Babbush, DDS, MScD, received his Parkinson’s diagnosis in 2017, five years after small essential tremors began in one hand.
The occasional trembling was first believed to be a result of the fine motor intensity of his long career as a renowned maxillofacial surgeon. However, the uncontrollable movements became larger in magnitude over the next few years, leading to a difficult decision to retire from practice.
“It’s not just discomfort, it’s what it does to your psyche — how it plays
motion and could not sit in a chair without discomfort.”
In hopes of stabilizing his condition, Chuck Babbush went through a rigorous physical and emotional process for surgical evaluation for deep-brain stimulation (DBS) procedure by University Hospitals. After first being denied surgery, he did not give up hope and sought a second opinion.
“We told him, first and foremost this is your journey and your decision to make,” Amy Eisenberg shares. "We support you either way and whatever you choose."
games with your head,” Chuck Babbush shared, describing his progression as “aggressive and ugly.”
“As I look back, there was never a ‘poor me’ moment,” Amy Eisenberg says. “It was hard and there were sad times…These magical hands that provided healing were now out of his control. It evolved into a full-blown diagnosis, and we quickly saw a decline. He lost 50 pounds from the constant
PARKINSON’S RESOURCES
PAPA’S PATH — To order a Steady Essentials Toolbox visit: papaspath.org or call 440-376-3869.
CLEVELAND CLINIC PARKINSON'S TREATMENT clevelandclinic.org/services/parkinsons-disease-treatment UNIVERSITY HOSPTIALS DEEP BRAIN STIMULATION — To learn more about deep brain stimulation and the neurological conditions that it can treat, visit: uhhospitals.org/services/neurologyand-neurosurgery-services/conditions-and-treatments/deep-brainstimulation/what-is-dbs
PARKINSON’S NEWS TODAY — Parkinson’s News Today, part of Bionews—the leading network for rare disease news and community support—features the latest research, clinical trials, expert opinions, columns, and more. In the column "The Bright Side," Cleveland mother of three, Jamie Askari, shares her experiences as a wife and caregiver to her husband, Arman, who was diagnosed with earlyonset Parkinson’s disease in 2009 at the age of 38. Jamie, along with her sister and best friend, founded Parkinson’s Pals, which raised over half a million dollars in five years. Parkinson’s Pals eventually
In January 2023, he underwent a successful deep brain stimulation (DBS) procedure by University Hospitals. It uses electrical stimulation to block faulty electrical signals in the brain that control movement to ease Parkinson’s symptoms and decrease the amount of medicine needed. This is done by placing an electrode inside the brain that connects to a very small neurostimulator (electrical generator) implanted in the chest or abdomen.
“After the 7-hour DBS procedure, he went home the next day and thrived,” Amy Eisenberg says. “The medical team gave our father back to us. It is fascinating; he is like the bionic man with a new lease on life.”
became part of InMotion and their annual fundraising event, Pals InMotion. “Your attitude can significantly influence how you handle a diagnosis,” Askari emphasizes. “We always choose happiness and focus on ‘the bright side,’ which is the name of her column (her husband named it).” To read the column, visit: parkinsonsnewstoday.com/the-bright-side-jamie-askari/ INMOTION OF BEACHWOOD — Offers free communitybased wellness programs for people with Parkinson’s disease. The evidence-based healing arts, physical wellness, education, support and symptom-specific programs have been shown to slow Parkinson’s disease progression and help people live well. The 9th annual Pals in Motion fundraising event will take place Sept. 14, 2025, at Beachwood High School and includes a 5K walk and chip-timed 5K run, 1-mile family walk, obstacle course and 100-yard dash relay, and music & arts activities for kids and families. To explore classes and download a physician approval form, visit beinmotion.org, or contact Anielle Barden-Dancy at 216-342-5727 or abarden-dancy@ beinmotion.org with questions.
Left: Chuck “Papa” and Sandy Babbush
Above: Chuck “Papa” Babbush celebrates his 85th birthday with his wife
Sandy Babbush and children Jeff Babbush, David Babbush and Amy Babbush Eisenberg (clockwise from left).
“It was a great experience; the staff was fantastic,” Chuck Babbush says. “The feeling of being healthier, of being able to fend for yourself and not becoming more and more dependent on others to help you, that is a very key aspect...It’s not just stopping this ‘shake, rattle and roll’ as I call it, it is a matter of you being better and you’re pretty much whole again…”
GIVING BACK TO OTHERS
Steady Essentials Toolboxes
While the doctor may have become the patient, a caregiver never retires. As an extension of appreciation for their beloved care team and the desire to continue helping others, in March that same year Babbush and his wife, Sandy, created the Babbush Family Fun for Parkinson’s Education, Research and Innovation, which was started at University Hospital to maximize quality of life and improve outcomes for patients and families living with Parkinson’s by supporting training and education opportunities for neurology residents, fellows and faculty and by launching promising clinical research projects. Inspired by their father, Amy Eisenberg and her brothers Jeff and David Babbush thought, “How do we take the energy put into a career focused on improving health to make a difference for others walking this same path?” Papa’s Path was created (he is a proud Papa of nine grandchildren). Their annual 24-Hour Walk for Parkinson’s has raised more than $300,000 and features a weekend of free special programming. Jeff Babbush came up with the idea to walk for 24 consecutive hours to simulate the unrelenting motion of the Parkinson’s experience while bringing families together to support the cause. One of the most notable resources from Papa’s Path is the Steady Essential Toolbox to support independence.
“Having experienced firsthand how daunting it can be to tackle even the simplest daily tasks, my wish is to provide a boxed and tested collection of adapted aids — such as reach sticks, zipper pulls, pencil grippers and more — to make facing each day a bit more manageable,” Chuck Babbush says.
The Babbush family researched, purchased and tried various tools, but they wondered about underserved communities and individuals without the same access or caregiver support, Amy Eisenberg explains.
With help from University Hospitals and the Parkinson’s and Movement Disorder (PMD) Alliance, they organized a survey and gathered data from 300 individuals or their caregivers about the level of need and use of items in their home, from portable to permanent solutions. The resulting toolbox, which can be gifted or given by caregivers, is available in two sizes (a large collection of 14 tools or mini collection of six everyday essentials) for purchase from the Papa’s Path website or with hopes of it being in hospital gift shops, rehab facilities, online and sold nationally and internationally.
The elephant and path logo designs found on the kits hold special meaning. Amy Eisenberg describes painting as a hobby Papa revisited for therapeutic benefits that became a shared bonding experience with his grandkids. Using tape as a guide, he did not have to worry about coloring outside lines. The toolboxes has coloring elements for others to enjoy. Just as an elephant never stands alone Papas Path is here for you.
CHANGING TABLES MAKE A DIFFERENCE
Helping to Accommodate All Ages with Restroom Needs
Many residents struggle to find public restrooms that fit their needs.
The national Changing Spaces advocacy campaign says that universal changing tables should accommodate people of all ages, no matter their height and weight or abilities.
Tables should be height-adjustable and hold up to 400 lbs.
The changing surface must measure at least 70” by 30”.
With more than $120,000 in 2024 grants for libraries, community centers and provider agencies, the Cuyahoga County Board of Developmental Disabilities (Cuyahoga DD) was able to install universal changing tables.
Where can I find these Universal Changing Tables?
They have been installed in locations such as:
• Cleveland Public Library: Main Library
• East Cleveland Public Library
• Euclid Public Library
• Westlake Porter Public Library
• North Olmsted Recreation Center
• The City of Seven Hills Community Recreation Center
• Achievement Centers for Children
• HELP Foundation, Inc.: Lakewood
• MMS Adult Day Center
• Vocational Guidance Services: E. 55th, Cleveland
• Welcome House, Inc.
What is the Impact?
Nobody should have to lie down on a dirty bathroom floor or be exposed in the back of a vehicle. Without access to a universal changing table, this is the reality for many people with disabilities.
“Increasing the number of universal changing tables in Cuyahoga County is a game changer for residents and visitors with disabilities,” says Amber Gibbs, superintendent and CEO of Cuyahoga DD. “These private spaces will increase public inclusion across communities.”
Cuyahoga DD has a portable universal changing table available for limited loan. Learn more online at CuyahogaDD.org.
Scan the QR code for a map of universal changing table locations.
Top: Map of changing tables across Ohio. Right/Left: Universal Changing Table at Cuyahoga DD.
for Advocating
Accessibility
By Erin Sernoffsky
All people have a right to accessible public spaces, services, transportation and communication, regardless of ability.
Since a disability is not always visible, roadblocks to accessibility are not necessarily obvious to people who do not have this lived experience, and solutions often are not immediate. While it can be tempting to simply avoid these circumstances altogether, with knowledge, practice and a strong community, advocating for your needs or your family member can become empowering.
“Self-advocacy can be difficult for many reasons, especially for individuals with disabilities who may need support to get started,” says Theresa Maier, of Copley, who understands this difficulty both personally and professionally.
Maier serves as a support specialist for the Autism Society of Greater Akron (ASGA) and is the mother to an 8-year-old boy with autism.
“Some people don’t know where to begin, worry about upsetting others, struggle to communicate their needs, or feel like they won’t be taken seriously,” she says. “But as you gain confidence and practice, it becomes easier.”
Understanding your rights that are protected under law, knowing your specific needs and how to effectively communicate them, and identifying resources and allies in the broader community are all essential to successfully advocate for yourself.
UNDERSTANDING YOUR RIGHTS
First and foremost, you must understand your rights under federal and local laws. Remember, access is not a gift — it’s a right. While state and local laws vary, the Americans with Disabilities Act (ADA) is the key to understanding what rights are guaranteed everywhere. While
this sweeping legislation covers many areas, in simple terms it protects from discrimination, guarantees equal opportunities in employment, and ensures access to public accommodations, transportation, telecommunication, government services, and businesses and spaces open to the public.
Disability presents in so many ways, not all of them visible, and accommodations made under the ADA range from the obvious — ramps and wheelchair accessible restrooms in public buildings — to the less immediately apparent, such as intuitive hardware fixtures like levers on doors.
The word “discrimination” carries heavy weight, however, roadblocks to equal opportunity qualify as discrimination. While it’s hard to understand if what you’re experiencing qualifies as discrimination, there are many tools that can serve as a guide to understand the ADA. The Civil Rights Division of the Department of Justice offers many online tools to better understand your rights, including their Disability Rights Guide (ada.gov/resources/ disability-rights-guide/).
Discrimination can take on many forms; some examples include: a business owner not allowing a service dog to enter a public space; new buildings that fail to take into account mobility or sensory impairments; a concert or sporting venue that does not provide accessible seating; a ramp into a building that is too steep; and a restaurant that does not ensure pathways between tables are adequately wide.
With knowledge, practice and a strong community, advocating for your needs becomes easier and more empowering
UNDERSTANDING YOUR NEEDS
Circumstances change. Needs shift. Wishes alter. However, knowing what your needs are in a given situation, effectively communicating your wishes, and understanding potential barriers are all critical in speaking up on behalf of yourself or a loved one.
For example, Maier knows that waiting, crowds or loud noises can be especially challenging for her son.
“I always make sure we have snacks and some type of entertainment packed, whether it’s a tablet, book
or game,” she says. “Places that can be particularly challenging are doctor’s office lobbies, and places that are crowded. We try to plan our trips to crowded places early to beat the rush, and also seek out places that offer sensory-friendly hours.”
Clearly identifying needs and wishes in advance is important and has found tools to help.
“A great way for individuals with disabilities to start advocating for themselves is by using Charting the LifeCourse tools (lifecoursetools.
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Continued from page 25 com), which help individuals determine what’s important to them, what goals they have, and what support they need,” Maier says. “These tools make it easier to speak up, make decisions, and create a future plan so others can understand how to best support you.
“A popular tool is the LifeCourse One-Page Description, which lets individuals share important information about themselves, like what people like about them, what’s important to them, and how others can best support them,” she adds. “It can be used in many settings, such as at the start of a new school year, at the doctor’s office, or in meetings, to help others quickly understand your needs. This tool makes self-advocacy easier by having everything mapped out and in one place.”
Briana Seth is a specialist for Opportunities for Ohioans with Disabilities’ Accessible Ohio program, which works with organizations, at no cost, to support their goals to be more accessible. One of her team’s initiatives is helping businesses create Accessibility Statements and webpages, which serve as a guide to clearly communicate accessibility features so individuals can see what’s
available in advance of their trip.
“A museum may include information on a sensory space on their accessibility webpage. A guest may visit this page before their visit, and know this feature is available,” she says. “Another example is the Accessibility Map resource that describes how this can be a helpful tool for people to use to plan and enjoy their visit, navigate the environment, and find the accessibility features at the organization. For example, an amusement park may include its universal changing table on the park’s map, which helps a parent locate this feature when visiting the park.”
UNDERSTANDING YOUR VILLAGE
You are not alone, and the responsibility of creating an accessible community is shared by all. Business owners, policy makers and service providers all have a responsibility to be proactive in identifying and eliminating barriers. However, many don’t know where to begin, or believe accommodations will be too costly, which makes the work of Seth and her fellow Accessible Ohio
Specialists all the more important. They provide no-cost consultations with Ohio organizations to help them optimize their accessibility.
“There are aspects to consider when creating welcoming and accessible spaces,” says Seth. “These include how guests are planning their visit, how they will arrive and navigate the space, how they will experience the space, and how they will manage their personal care needs.”
The Accessible Ohio program helps organizations take responsibility and implement better policies, design elements and more through in-person and virtual consultation, online tools, best practices, advice on grant and funding requests, and much more.
“Each organization is unique in their awareness of accessibility features and the extent to which they have made their environment accessible,” she says. “We meet organizations where they are on their accessibility journey. To assist organizations with selecting and implementing goals, the Accessible Ohio team has created the Priority Tool and Game Plan [which] can be used by the organization to gain awareness of accessibility features, develop and prioritize goals, and create a plan to achieve them.”
Other resources include Disability Rights Ohio, which provides legal assistance for individuals with disabilities; the Ohio Disability Advocacy Alliance, which is a group of volunteer advocates for employment and housing issues; and the Ohio Self Determination Association, which provides training, support and networking for people with disabilities as well as policymakers.
“ASGA strives to empower individuals with autism and their families to make informed decisions in the planning and delivery of individualized, evidence-based services and support,” Maier says. “Each individual and family has the right to choose the services that best meet their individual needs.”
Maier and her colleagues at ASGA provide services in five key areas: education, adapted community events, social support, referrals and information, all with the goal of empowering individuals to make the choice that’s right for them. There are many other groups working to improve the lives and agency of people with disabilities, such as United Cerebral Palsy of Greater Cleveland, the American Council of the Blind of Ohio, the Amputee Coalition, and many more.
Family members and friends can also play a pivotal role in supporting their loved ones.
Seth points to tools such as Accessible Ohio’s resource page on its website for excellent information for friends and families. “This page includes tools and guides on a variety of accessibility and inclusion topics, organized by the four priority areas of Planning and Awareness, Navigation, Experience and Personal Care. These resources can be useful for everyone to plan their visit to a venue or attraction,” she says.
Advocacy is intimidating, but clearly understanding your rights, knowing what you want, and identifying your people can help you speak up with confidence and influence real change.
What Does Access Look Like?
The Americans with Disabilities Act provides protection against discrimination and ensures equal access to opportunities in the areas of employment, housing, government services, public transit, businesses that are open to the public, and telecommunications.
While no two people are alike and no circumstances are the same, examples of compliance under the ADA are:
Employment:
Flexible work schedules, provide adaptive tools to successfully complete tasks, provide assistive technology.
Housing:
Allow service animals in buildings that do not otherwise allow pets, dedicated parking spaces for individuals with disabilities.
Transportation:
Assistance in boarding and disembarking aircrafts, accessible vehicles and stations, audio cues for upcoming stops.
Government Services:
Accessible polling places and voting booths, audio enhancement or ASL translation services.
Public Spaces:
Flexible seating, provide assistive audio devices, adaptive door handles or switches, charging stations for power mobility devices, accessible entrances and restrooms.
Sensory Sensitivity:
Provide noise cancelling headphones, create calming sensory-friendly spaces, establish specific sensory-friendly hours which reduce or eliminate loud noises or flashing lights.
ADVOCACY AND RIGHTS RESOURCES TO CONSIDER
• Accessible Ohio, ood.ohio.gov/accessible-ohio
• Amputee Coalition, amputee-coalition.org
• The ARC of Ohio, thearcofohio.org
• Brain Injury Association of Ohio, biaoh.org
• Disability Rights Ohio, disabilityrightsohio.org
• Opportunities for Ohioans with Disabilities, ood.ohio.gov
• United Cerebral Palsy of Greater Cleveland, ucpcleveland.org
ADVENTURE Opening Doors to
From playgrounds to planes: sensory friendly and accessible experiences for people with special needs
By Angela Gartner
It’s important to create ways for children and adults with disabilities to feel welcome to experience new adventures and travel to any place they want to visit. Whether you are looking for a local activity or an out-of-state adventure, there are many accessible options to try.
Accessible Fun at the Playground
The region has plenty of ways for kids of all abilities to play. Most inclusive playgrounds have ADA accessible features including adaptive equipment, wheelchair access and rubber play surfaces. Many also include sensory-friendly experiences for families to explore. Check out the following options:
Clague Park
Clague Road and Hilliard Boulevard, Westlake, cityofwestlake.org
A 20,000-square-foot playground featuring ADAcompliant equipment, fun slides, and elevated platforms.
The inclusive playground for all ages and all abilities offers rubber surfacing, an ADAaccessible swing, music and art elements, and adaptive fun.
Every Child’s Playground
36265 Detroit Road (east of Aquatic Facility), Avon, cityofavon.com
This inclusive playground provides accessible fun, outdoor musical instruments and a storybook trail.
Preston’s H.O.P.E. Playground Park
26001 South Woodland Road, Beachwood, prestonshope.com
This playground for all abilities provides 60,000 square feet of space to explore multiple play areas, including Imagination Village, Play Theatre, and a traditional playground with adaptable and sensory fun.
Karen’s Way Play Space
Huntington Reservation, Bay Village, clevelandmetroparks.com
This park offers a swing set and zipline with ADA inclusive seating, as well as lots of music and water play, a stage, and sensory-friendly fun.
Around the World Playground
Chagrin Boulevard and Lee Road, Shaker Heights, shakerheightsoh.gov
This ADA accessible playground is for toddlers to age 12, features a nature trail and has a library loop path.
Designed for ages 2 to 12, this playground offers multiple slides, climbing structures, an accessible sand table, musical panels, and a spinner on the rubber surfacing.
The Lindsey Family Play Space Lakefront Reservation (Edgewater Park), 16301 Lakeshore Blvd., Cleveland, clevelandmetroparks.com
This park features a nature play area to explore and climb, surrounded by a paved trail.
ADA Playground in Mayfield Heights
6080 Marsol Road, Mayfield Heights, mayfieldheightsohio.gov
This park offers 8,408 square feet of rubber surface, sensory panels, ADA compliant play equipment, shaded bridges and tunnels, and transitional areas.
The reservation features an outdoor play area for children of all abilities.
Limitless Playground at McCafferty Park
299 25th St. SW, Barberton, cityofbarberton.com
This inclusive ADA accessible park includes a playground for all ability levels, with wheelchair ramps and accessible transfer platforms, rubber surfacing sensory panels, adaptive play equipment, ADA swing seats and picnic tables.
This inclusive playground provides enjoyment for all ages and abilities with musical elements and more.
S.O.A.R. Boundless Playground
5027 Stow Road, Stow, stowohio.org
Designed for children of all abilities, with rubber surfacing and accessible swings.
People with special needs can wear the program’s sunflower lanyards, bracelets or pins to discreetly bring awareness to airport staff that they might need additional assistance and patience. Over 300 airports around the world (including Akron-Canton Airport and Cincinnati/ Northern Kentucky International Airport) have adopted the program. While passengers are still required to arrange special assistance through the airport’s TSA, this provides an extra support system for travelers with special needs.
Milestones Travel Tool Kit, milestones.org
The travel tool kit provides recommended websites and apps for people with autism who are planning a family vacation and other travel. Also, look for tips for entertainment, packing, and navigating through checkpoints, as well as creating a social story.
The Arc’s Wings for Autism, thearc.org
This includes an airport “rehearsal,” as well as a presentation on the aircraft features and in-flight safety protocols. Chapters of The Arc, local partners, and airport/airline/TSA personnel work collaboratively to design and carry out each Wings event.
Travel agencies that specialize in accessible travel Places to try include: wheelchairescapes.com, wheeltheworld.com, easyaccesstravel.com, travelbeyondthemagic.com, hammertravel.org, go.accessiblego.com, and tripsinc.com. Also, seek out recommendations from trusted agencies and friends.
U.S. Department of Transportation, transportation.gov
Visit the website for disability rights and other travel information.
Ohio Airports Accessibility
Akron Canton Airport, akroncantonairport.com
The sensory room in the expanded concourse just before Gate 5 is filled with items for travelers with sensory needs. The airport also offers the Hidden Disabilities Sunflower lanyard program and is ADA accessible.
Cleveland Hopkins International Airport, clevelandairport.com/airport/accessibility-services
The airport offers a variety of services and accessibility options for travelers with access and reduced mobility needs.
Cincinnati/Northern Kentucky International Airport, cvgairport.com/accessibility
The airport offers the Aira ASL app for help with interpretation for employees and passengers, ADA accessible transportation options, and the Hidden Disabilities Sunflower lanyard program.
John Glenn Columbus International Airport, flycolumbus.com/ passengers/accessibility
The airport provides accessible features such as universal changing tables, Tactile Braille, visual paging displays, aira visual assistance, and journey care kits.
Staycation Fun
You don’t have to travel far to find adventure. Here are a few sensory-friendly fun options in the region.
We Rock the Spectrum, wrtsfranchise.com
A safe place to play for children with special needs that provides a sensoryfriendly environment.
Find locations in Lake County, Mayfield and Stow.
Akron Zoo, akronzoo.org
The zoo is certified in Dementia Friends through Dementia Friendly Summit County. An on-site guest comfort station includes a universal changing table. The zoo is a KultureCity Certified Sensory Inclusive venue. It has sensory bags, weighted lap pads, quiet areas, headphone zones. It also has an Augmentative and Alternative Communication (AAC) board.
Playhouse Square, playhousesquare.org
It offers a barrier-free access to performances and events including access to assisted listening devices, wheelchair accessible seating, restrooms
and escorts, audio described performances, and sensory-friendly programming.
Cleveland Metroparks Beaches and Cleveland Metroparks Zoo, clevelandmetroparks.com
The park system has accessible trails, beach wheelchairs, and paratransit services to locations.
At the Cleveland Metroparks Zoo, explore programs through drive-thru events, and wheelchair accessible rides and attractions. The Calming Cove Sensory Room at Cleveland Metroparks Zoo provides sensory experiences to help people with disabilities. The zoo also is equipped with a universal changing station.
The indoor waterpark provides sensory and safety kits. It also has a Calming Room for people with sensory processing needs.
Cleveland Museum of Natural History, cmnh.org
The museum is a KultureCity Certified Sensory Inclusive Venue, providing sensory bags, headphone zones and quiet areas. Wheelchair accessible and provides free admission to a personal care assistant or primary caregiver.
Rock N Roll Hall of Fame, Cleveland rockhall.com/accessibility
Sensory bags are available with fidget toys and noise dampening headphones. For guests who are deaf or hard of hearing, a qualified American Sign Language interpreter can be available to reserve. The museum is also wheelchair accessible.
Summit Metro Parks, summitmetroparks.org
The park system has programs for everyone and is affiliated with Autism Society of Greater Akron, AkronSummit Age Friendly and Dementia Friendly Summit County. The system offers break bags for sensory support, specialized events for people with autism, trails that are accessible for all mobility levels, and park centers that are ADA accessible.
Want an Out-of-State Accessible Adventure?
Morgan's Wonderland, morganswonderland.org
This theme park in San Antonio, Texas is inspired by Morgan Hartman who has special needs. Her parents Gordon and Maggie, wanted to create an opportunity for a one-of-a-kind park that provides an inclusive environment for all abilities. Families can enjoy the accessible and sensory-friendly fun, along with hotel partners who can provide accommodations.
For more sensory-friendly options, visit kulturecity.org/sensory-inclusive.
We Rock the Spectrum
Smart Technology
Tools for Life
By Bob Sandrick
Artificial intelligence and advanced technology can be life-changing for people with disabilities.
“There are myths out there that people with disabilities cannot use technology and are not interested in using technology, and that’s the opposite of what’s true,” says Steve Pelton, executive director of We Thrive Together, an Eastlake-based nonprofit that hosts online social events. “Actually, people with disabilities use technology more than the general public to help them with mobility and daily needs."
We Thrive Together is among a host of organizations, nonprofits and government agencies that help people with special needs gain access to AI and tech tools,
teach them how to use those tools, and even help find ways to cover the costs.
“Getting up to date on AI literacy is critical,” says Stacy Springer, program director for the Assistive Technology & Accessible Educational Material Center at OCALI, a Columbus-based organization. “AI is extremely exciting, but at the same (time) fear-producing. It can and will be a game changer for people with disabilities and in education.
“AI won’t replace teachers and therapists,” Springer says. “Human expertise is still needed to determine where we go and how fast. AI is a tool.”
Scan code to learn more about OCALI
Smart
Some new technologies have been adapted to support people with disabilities. For example, smartphone apps like Google Lens snap photos and audibly describe the pictures, allowing the blind to experience what’s in front of them.
Visual Aids
“That in itself is cool,” says Adrian Bien, assistive technology specialist at Cleveland Sight Center in Cleveland. “But what’s really cool is you can ask follow-up questions — like if you’re sitting on a park bench, you can ask the app to provide details of what’s in
• OKO, a free phone app that reads pedestrian traffic signals, letting users know when it’s safe to cross the street.
the scene.”
There are a variety of assistive technology devices and apps that provide opportunities to help people with special needs live their best lives. See below for options to try:
• Ray-Ban Meta — eyeglasses with cameras, speakers and a microphone — achieves the same, just hands-free. Debbie Kogler, president and owner of Magnifiers & More, a Mentor supplier of equipment for the visually impaired, says people who have dyslexia can also products. filters, different tinted lenses, for people with dyslexia because certain color combinations can help them read better and help their brains interpret what certain numbers and letters are,” Kogler says. made by
WeWALK, a startup company — that alert blind walkers to obstacles and direct them to wherever they want to go through an audible voice.
• Be My Eyes, another free app, helps the blind or visually impaired navigate through their homes.
• VoiceOver and TalkBack, free apps that allow the visually impaired to operate smartphones through swipes and taps.
Mobility, Safety and Education
For people with limited mobility, smart wheelchairs with sensors audibly tell users how to maneuver better through their homes. Voice-assistance systems allow them to control their home environment — like adjusting the thermostat, for example — and Ring doorbells can provide security by showing who’s at the front door.
Pelton says flashing and vibrating alarm clocks are available for people who are deaf. There also are visualalert signals that let those with hearing loss know when the doorbell or phone is ringing.
Agencies like TruCare Provider Services, located in Cincinnati, interact with residents with special needs through smartphones or laptops to ensure they are safe in their homes. TruCare staff remind clients to take their medications and can even help with cooking.
“We provide outdoor cameras for security, with our remote staff monitoring the cameras,” says Bobby Fuller, remote support director at TruCare.
A technology called Beautiful.ai can help people with special needs create slideshows, and Synthesia allows people with physical limitations to create online avatars, which in turn conduct presentations.
Springer says that for students with autism, AI can summarize text, break down main points and even translate the text into different languages. Personalized AI tutors, which can ask and answer questions, also are on the market.
“Children with autism sometimes can relate to technology more than an adult teacher,” Springer says.
HELPING WITH RESOURCES
At Cleveland Sight Center, tech specialists like Bien evaluate clients to determine their needs, then draft individualized training plans at no cost. The technology isn’t free, but funding often is available through Opportunities for Ohioans with Disabilities, (ood.ohio.go) a state agency.
Kogler says medical insurance doesn’t cover most items at Magnifiers & More, but nonprofits like
Catholic Charities and Easter Seals can help with the financing.
WE THRIVE TOGETHER
(wethrivetogether.org) spreads the AI-tech information by running the state of Ohio’s Tech Ambassador Network, consisting of 16 people who give in-person and virtual presentations about how tech has improved their lives.
“As the ambassadors have done that, it has opened up conversations
with guardians, families and support providers about ways to help individuals achieve their goals using technology,” Pelton says.
Also, look to Assistive Technology of Ohio (atohio.org) that has a lending library, which has a variety of devices to offer from daily living aids, toys, speech communication and computers. The Arc of Ohio (thearcofohio.org) connects people with assistive technology services such as communication, home safety and sensory items.
Sensory Rooms DIY
Budget-friendly ideas for home, school or work
By Lindsey Geiss
Creating a safe, effective calming space in your home, school or office does not have to break the bank. With a thoughtful planning approach, sensory rooms can reduce anxiety and regulate emotions to support focus, communication, behavior, productivity and more.
coordination, easy distractibility and overstimulation in group settings.
Whether you aim to help prevent sensory overload and meltdowns — or simply increase comfort and relieve stress — a dedicated sensory room or designated calming corner can help improve daily functioning.
One in six children — between 5 and 16 percent of the general population — has sensory processing difficulties (according to Journal of the American Medical Association and National Institutes of Health), with estimates even higher for clinical populations like autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD). Signs include hypersensitivity or aversion to touch, sound and/or sight, sensation seeking or avoidance, poor motor
“It is important to create a space that caters to the child’s unique sensory needs by designing the space with intention,” says Calli Elber, MOTR/L, occupational therapist for Julie Billiart School Westlake. “The room needs to respond to the child, not the child to the room. It should be a controlled and customizable space.”
As a first step, Elber recommends getting a sensory profile or assessment to target specific needs. While informal screeners may be available online, certified occupational therapists in schools or private practice have
access to standardized tools and can provide a therapy program or “sensory diet” tailored to the individual. Talk to your physician or teacher for a referral if you suspect you or a family member have sensory processing challenges.
“More immediately, explore things within the home or school setting to see what the child responds to,” Elber says. “What makes them alert or calm? Hone in on their emotions and interactions with items in their surroundings — what they like or don’t like — during stable or baseline levels, not while in a heightened or dysregulated state.
“In our school building, we have a resource room off of the larger classroom with a designated calm corner,” Elber adds. “Workplaces or homes may pose more environmental considerations to ensure a quiet space is available, so look to minimize auditory distractions and block visual stimuli (like people walking) as best you can with noise cancelling headphones, ear plugs, or options for soothing sound or music, for example. While younger students often enjoy a tent-like enclosure, a lot of older kids like bean bag chairs or other lounge-style seating options, or going for walks.”
She suggests making sure everything in the room has a purpose and reducing clutter with clear bins or designated, accessible storage spaces for items.
“It should be structured and controlled, as well as predictable with a visual timer or schedule/firstthen chart to aid in transitions — for instance, when utilizing the space before bedtime or a non-preferred activity in a routine,” Elber says. “Tie in emotional regulation by incorporating a ‘check-in’ (i.e., How is your body feeling?) using Zones of Regulation, Emojis, etc. The goal is to identify feelings and proactively manage them by using the tools independently. During a calm state, walk through the room with the child to explore the tools available and show the needs each item fulfills. Some of it is trial and error, but that is why an initial screening profile is so important.”
WHERE TO SHOP
Sensoryfriendly bag from KultureCity
discretion, sign up for promotional emails/texts to access discount codes and special promotions.
Finally, while on the go in the community, keep in mind that a growing number of public facilities — especially arenas, museums and zoos — have become more sensory inclusive, with kits and/or rooms available. However, it can be helpful to keep a blanket and small bag in the car with key items, including headphones, a hat, sunglasses, small fidgets, a mini erasable LCD doodle board (or other drawing/coloring tools), and snacks or treats.
16% of the general population has sensory processing difficulties
While quality certainly varies by manufacturer and price, sensory tools and fidgets have become increasingly mainstream, with selections across big-box stores, discount retailers and Amazon. Fun & Function (funandfunction.com) remains a teacher and therapist favorite for sensory solutions online, especially larger equipment, while local Lakeshore Learning (lakeshorelearning.com) or Learning Express Toys and GIfts (learningexpress.com) stores offer an assortment of toys and other materials for families and professionals. Fully outfitted rooms can sell for thousands online, while Harkla’s Classroom Sensory Kits (harkla.co) bundle various starter items by grade level/age. Shop around, watch for sales and, at your
Engaging the Senses
When planning a calming space, consider all the senses:
TOUCH — Incorporate soft textured surfaces like tactile wall squares, weighted items (stuffed animals, blankets or textured lap pads, etc.) and assorted small fidget toys that spin, bend, squish or stretch, the latter of which often sell for under $5 each). Avoid sharp, breakable objects, and clean items regularly, especially in shared spaces.
PROPRIOCEPTION — Proprioception (body sense and awareness) and Vestibular (movement) — Body socks, small trampolines, hugging peapods, swings, pillows, crash pads, fluffy rugs and seating options, including bean bags, hammock chairs, peanut balls, rocking chairs, and swivel or sit and spin seats offer pressure and motion. Harkla Sensory Activity Sticks provide a variety of color-coded calming, alerting and primitive reflex integration activities. Ensure hanging or heavy items are properly secured and reinforced.
AUDITORY — Introduce instrumental or classical music, white/brown/pink noise and nature sounds, or soundproofing utilizing noise cancelling headphones or ear plugs as needed. A dozen pairs of foam plugs sell for a few dollars.
VISUAL — Tents can eliminate distractions and control lighting, which should be soft and adjustable with warm tones. Green, blue or warm colors tend to calm. Bubble tube lamps, liquid oil timers and color changing light-up cubes or tiles provide predictable and consistent stimuli. Reduce clutter with organized containers, and avoid fastflashing or erratic lights.
TASTE AND SMELL — Depending on personal preference and sensitivity, purchase or make scented dough, try essential oil diffusers (color-changing aromatherapy devices can be found for under $7 at Five Below or Walmart), and have crunchy or chewy snacks and suckers available. Lavender and chamomile scents are known to be calming, while peppermint is linked to alertness.
WDRIVING Access
Help for people with special needs who want to obtain a driver’s license By
ith access to support and understanding, getting behind the wheel can be a pathway to independence, but also a serious responsibility. For people with special needs, obtaining a driver’s license entails a process similar to many other drivers. Each family has to determine the best way to proceed based on their situation. Here are some ways to get started.
ARE YOU READY TO DRIVE?
People of all abilities have different reasons for wanting to drive. For anyone interested in driving, the first step for that person to have a formal assessment of the skills needed to drive to determine if they have the capacity to learn the skill and to help make recommendations for moving forward.
A certified driver rehabilitation specialist can provide a clinical assessment and on-the-road assessment of driving skills as that would be appropriate for people with special needs. Driver training with a driving instructor including for persons with disabilities may also be an appropriate option.
According to The Association for Driver Rehabilitation Specialists (ADED, aded. net), a clinical assessment covers skills necessary to operate a motor vehicle (vision, reaction time, cognition and physical skills) as well as skills necessary for safe driving (knowledge of road
rules and regulations, safety awareness, judgment and decision-making). The road test is both observation and instructional, depending on the person’s needs. If indicated, a certified driver rehabilitation specialist will also introduce any adapted driving equipment, such as hand controls.
“Driving is a very complex learning process with not all persons equipped to be able to do this. The specialized assessment process allows for individualized testing to determine appropriate recommendations regarding the pursuit of learning to drive,” says Julie Dominik, a certified driver rehabilitation specialist at the Cleveland Clinic and a licensed driver instructor including for persons with disabilities in Ohio. She gave a presentation called “Driving with a Disability” during the Transition Bootcamp (livespecial.com/ video-library) from LiveSpecial.com, along with organizations that serve the special needs community.
Safety is the main priority related to being a driver while the learning process itself is rather complex. Having a disability can affect the learning to drive process. ADED provides a series of fact sheets on disabilities and driving to help understand what might impact driving skills.
Considerations include vision and eye movements,
auditory processing, executive functioning, attention, medication side effects, physical skills to name just some of the issues taken into account when evaluating if that person is ready to drive.
“Driving requires three main things, eyes, brain, and body. The eyes take in most of the important information, the brain has to process what we see quickly/efficiently/accurately to tell our body how to respond,” Dominik says. “Hearing/auditory attention also plays a significant role in the learning to drive process.”
How someone handles daily tasks can be important when evaluating driver readiness.
“There is a hierarchy of skills development to consider when preparing for a person to learn how to drive starting with self-care (i.e. showering on own, grooming, getting oneself up in the morning) and being able to do these tasks on one’s own and needing minimal reminders for the same. The next consideration is how many skills can a person do to take care of their environment (i.e. cleaning their space, getting something to eat, doing laundry, etc.), which is a definite precursor to taking on the next responsibility which is accessing the community on one’s own which can be working, using public transportation, doing shopping alone. Learning to drive a vehicle and becoming a licensed driver is part
Angela Gartner
of this last group of tasks with the previous levels of independence helping one to achieve readiness for learning to drive to be considered.”
To help drivers and their families, assess and understand goals towards independence, they can try this online tool; drivefocus.com/ occupational-therapy-tools.
CERTIFIED DRIVER REHABILITATION SPECIALIST (CDR) IN NORTHEAST OHIO
Make sure to ask for a certified driver rehabilitation specialist at these locations:
Ohio Traffic Safety Office ohio.gov/programs/ohiodriver-training Opportunities for Ohioans with Disabilities, ood.ohio.gov
Whether it's a teenager over age 15 and half, a young adult or an adult with special needs, that person can talk to their doctor to get a referral for a driver rehabilitation assessment to start the process. Regarding costs, check to see if insurance covers the clinical assessment which is possible if physician referral and disability diagnosis is provided. However, the Ohio approved driver’s training course, driver training, and adaptive equipment for driving/vehicle needs are not covered by health insurance.
THE STATE OF OHIO LAWS
In Ohio, drivers 15 years and six months are able to gain their temporary permit by taking a multi-choice test on a computer in a Bureau of Motor Vehicles exam station. The test can be done in text or audio. Drivers also have to complete a vision test.
According to the Ohio Traffic Safety Office, “beginning on Sept. 30, 2025, Ohioans ages 18, 19 and 20 will be required to take an Ohio-approved driver training course (includes 24 hours of online or classroom instruction and 8 hours of behind the wheel formal driver training) and complete 50 hours of driving practice supervised by a licensed adult to receive a driver license.”
A certified driver rehabilitation specialist and your doctor can help drivers with special needs determine appropriate recommendations moving forward. However, the driver and the family are responsible for gathering the necessary paperwork, scheduling and applications to take the driving tests. Opportunities to retake the temporary permit test and license exam are available while success is never guaranteed. Additional hours of driver training and supervised practice may be needed.
“They need a lot of support and a lot of encouragement
if is appropriate for them to pursue the learning to drive process,” Dominik says. “I've had the best success with people who get out and drive with supervision almost on a daily basis. They need that consistent practice to improve competency and confidence.”
ADAPTIVE VEHICLES
Drivers might need assistance outside the traditional vehicle controls. Driving aids such as transfer seats, steering assist devices, leftfoot accelerators, and hand controls can be prescribed and installed.
The equipment for these adapted vehicles should be handled by a professional through a consultation from a certified driver rehabilitation specialist who would determine the appropriate equipment and provide prescription detailing the same.
Prescriptions for adapted driving equipment and vehicle modifications are shared with the mobility equipment dealer and together, with the certified driver rehabilitation specialist, they work to achieve what’s needed for the driver, according ADED. However, along with the cost of a vehicle, adaptive equipment can be costly.
According to the U.S. Department of Transportation from the National Highway Traffic Safety Administration, a possible cost of a new vehicle modified with adaptive equipment could be $20,000 to $80,000. Some adaptive equipment can cost as little as $50, but more complex features can range from $1,000 and up. At website themobilityresource.com, it provides a variety of Ohio resource ideas for possible funding such as grants. Also check manufacturer rebates that might apply to your vehicle.
The Association for Driver Rehabilitation Specialists might also have ideas how to help.
Julie Dominik contributed to this article.
SPECIAL NEEDS TRUSTS HELP MAKE ACCESS POSSIBLE
A special needs trust can help individuals hold on to critical benefits while still using their funds to enhance their quality of life.
For individuals with disabilities, access is the key to living a full and meaningful life — one that includes quality care, safe housing, social connection and opportunities to grow. It can be as simple as getting to a doctor’s appointment or as life-changing as enrolling in a job training program or finding a long-term place to call home.
For families and loved ones, helping someone access these essentials can feel like navigating a maze. Many families run into limits, especially when public benefits come with strict rules about income and assets. That’s where smart planning can make a
huge difference.
One option when planning is to establish a Special Needs Trust (SNT). An SNT is a vehicle to leave significant assets for the benefit of a loved one with a disability. A SNT protects the beneficiary’s eligibility for meanstested government benefits like Medicaid and Supplemental Security Income (SSI).
Essentially, a SNT can help individuals hold on to critical benefits while still using their funds to enhance their quality of life. Whether it’s for medical expenses, educational programs or social experiences, these tools can create flexibility and peace of mind for families who want to
provide lasting support.
Nonprofit organizations like Community Fund Ohio can assist families and their attorneys with how to determine which type of SNT best addresses their loved ones’ unique needs.
Creating access is about more than paperwork or policy. It’s about dignity, independence and possibility. The right resources can help make that world a reality — one person, one plan and one bright future at a time.
For more than 30 years, Community Fund Ohio has been enhancing life for Ohio residents with disabilities by protecting their eligibility for government benefits and funding their current and future needs through pooled special needs trusts, grants and education. Visit communityfundohio.org to learn more.
WHY ACCESSIBLE TRANSPORTATION
MATTERS FOR EVERY CHILD
Accessible transportation is more than just a ride — it’s the first step toward a successful school day.
To start, drivers play a huge role in a child’s experience. The best drivers aren’t just good at navigating roads — they’re patient, calm and trained to work with kids of all ages and abilities. They know how to help students who may feel anxious or have a hard time sitting still. A familiar, friendly driver can make all the difference in helping a child feel safe and ready to learn.
Vehicles also need to be designed with every child in mind. That means having wheelchair lifts, special seat belts, and other equipment that helps kids with physical challenges ride safely. Some students may need quieter spaces, dimmer lights, or a smaller vehicle to feel comfortable.
Having the right setup helps every student arrive at school calm and focused — not overwhelmed before the day even starts.
For many families, especially those in rural areas or facing difficult circumstances, reliable transportation is essential. When buses don’t reach
certain neighborhoods or can’t accommodate a child’s needs, it leads to missed days and missed opportunities. School should be a place where every child belongs — but without a safe and supportive way to get there, some kids start out already behind.
Accessible transportation gives every child a fair chance. It helps students show up consistently, feel emotionally supported, and stay connected to their education. And for parents, it brings peace of mind — knowing their child is in good hands on the way to and from school.
When we prioritize accessible transportation, we’re not just moving kids from one place to another. We’re removing barriers, supporting families, and giving every child the best possible start to their school day — and to their future.
School bus seatbelts help provide a safer ride.
People to Know
Meet individuals, organizations and companies that strive to provide support for those with special needs.
Arianna Elder’s LifeChanging Cochlear Implant
By Lindsey Geiss
Arianna Elder, Avon mother of three and Orange City Schools intervention specialist, did not have a disability when she went into special education. However, now she connects with her students on a whole new level thanks to a lifechanging cochlear implant surgery she underwent this spring.
“My family started noticing my hearing loss when I was in my thirties,” Elder shares. “I realized I was compensating for it by reading lips. I could sit at basketball games and know who the coaches were taking out and what the players were saying… It was my superpower. Then I went to an ENT, who did tests and said I have the hearing loss of a 90-year-old.
“Originally, I was told there was nothing I could do and kept losing it at a fast pace,” she adds. “My children were young at the time, so I got hearing aids and dealt with that for 15 years, never thinking there was hope for me.”
She went to a University Hospitals doctor and was referred to an ENT, who immediately told her she was a cochlear implant candidate. Adding to Elder’s surprise, she was invited to participate in a research study that would allow her to have the approximately $107,000 procedure and implant at no cost.
“I was scared to death to make that decision,” Elder says. “Every choice I make weighs so heavily on me, but I was to a point where I was miserable at work and couldn’t function. The hearing loss was tearing me down… I felt like I was in the middle of life and my career with three children and everything on my shoulders. It was either do this or nothing gets better.”
Elder carefully considered potential outcomes. “The implant is irreversible and residual hearing could be lost,” she explains. “It’s a big risk losing your hearing your self-confidence. I also worried how it would affect my dating life and who would want me.”
However, when she met with her surgeon, she decided to move forward.
“He is one of the best in the country and has a connection to Orange Schools. My goal was to hear the ocean on my 50th birthday.”
For the occasion, Elder flew to Florida, where she soaked up the sun — and sounds — on the beach.
“It’s been amazing,” she says of her experience receiving the Cochlear Nucleus 8 implant.
Steroid administration into the implant succeeded in preserving her residual hearing. Using a hearing aid in the right, non-implanted ear and special hearing aid attachment on the cochlear on the left ear, she went from baseline hearing of 0% for one-on-one with no background noise and no lip reading to 100% five weeks post-activation. With background noise, she went from a baseline of 0% to 20%.
“The goal is to use your cochlear to help you hear (birds, teapots, humming, etc.) and use the hearing aid to help you understand conversations,” Elder
explains. “Having it all in one makes it so much more amazing.”
She marvels at being outside in nature with the birds and discovering quiet moments with her family members. “There is a lot to get used to and appreciate,” she adds.
THE REHABILITATION PROCESS
Four months post-surgery, Elder is still learning. “I don’t think people understand it is an ongoing process,” she says.
Rehabilitation is 12 months and includes speech and listening therapy and practice. Improvement in sound quality and speech understanding continues over time.
“I do therapy with an app, a speech appointment once a month and research doctor appointment every three months,” she explains. “At each check-up there is a psychological assessment component, and this last time my responses were much more positive.” Elder also notes feeling less tired and stressed now that her eyes have a break from lip-reading.
While profoundly transformative and rewarding, the experience has not been without challenges.
“The whole surgery was hard,” she says. “I had surgery on a Thursday and was back to school on Monday. Those first 17 days when I was not activated yet were the hardest and most challenging with pain, nausea and feeling unbalanced. I would encourage others not to go back to work until activated.”
Elder says that spring break was a necessary time to sit and listen after her activation to television shows without, and then with, closed-captioning. Grand grand jury duty also served as valuable therapy.
“Voices sound mechanic, so it’s a growing process,” she adds. “I do get headaches more often and am more sensitive to light now. My ears hurt a little after flying in planes, and I have to
take the aid off when driving with the doors off my Jeep.”
She explains her goal was to never take it off, mainly for safety purposes, including waking with an alarm, hearing fire alarms and arriving to work in the dark. However, that led to so much redness, irritation and pain that she relaxed and wears it less.
Elder offers advice for others experiencing hearing loss and/or considering cochlear implant surgery:
• Consult an ENT doctor or otolaryngologist rather than relying solely on hearing aid centers.
• Stay abreast of new technology solutions, procedures and potential clinical trial/research study opportunities.
• Visit doctors regularly to seek different opinions and be conscious of your own changing needs over time, which may affect your eligibility and options.
• Talk with people in your age group. Someone 50 or older is different than a child.
• Join Facebook cochlear support groups to feel less alone and utilize apps, such as WordSuccess, for therapy.
Stephanie Stewart and Alijah Jones’ Advocacy Journey
By Lindsey Geiss
Strongsville mother of two Stephanie Stewart has advocated for her youngest son, Alijah Jones, since his birth at 25 weeks led to cerebral palsy, vision loss and other challenges requiring lifelong support. The pair radiate positivity and
HOW DO COCHLEAR IMPLANTS WORK?
According to cochlear.com, cochlear implants are designed to mimic the function of a healthy inner ear (or cochlea). They replace the function of damaged sensory hair cells inside the inner ear to help provide clearer sound than what hearing aids can provide.
A cochlear implant system has two parts:
• The external sound processor
• The implant that is surgically placed under the skin and attached to an electrode array that is placed in the inner ear Together, these parts bypass the part of the ear that isn’t working, sending sound straight to the hearing nerve.
Forming Deeper Connections
Looking ahead, Elder expects to have a new device every five years. Her hearing is only 35% in the right ear without aid. While her surgeon said she can be bicochlear by June, she adds, “right now things are exciting and perfect.”
After teaching high school for 18 years, Elder moved to seventh grade a couple years ago. She is grateful and honored to share this journey with her students, including those who have gone through many surgeries of their own.
set an example for others with their community involvement.
Now a 22-year-old student at Cuyahoga Community College, Jones describes a life “filled with challenges, strength and perseverance,” asserting there is nothing he cannot do with support from his mother and his “superhero” older brother, Ricky.
“I tell Alijah, ‘you need a manager or agent,’ because there is something to do every day,” Stewart says. “He has had a very independent, active social life from grade school through high school and now college. I keep him involved. I don’t want him to ever feel he can’t do something. We will do it, we just might do it differently.”
From age 6 through his teens, Jones was involved in Youth Challenge, which provides free adapted sports and recreational activities to young people with physical disabilities. “That was a bridge opening up a lot of things for him,” says Stewart. Jones’ confidence continued to grow and shine through high school, where he describes being part of all events, including attending prom, where he was nominated for
Elder tells her students with autism how she has a deeper appreciation for what they are going through with sensory sensitivities and processing challenges, now that she is more sensitive to light, in addition to sound. She highlights a special connection with a student who also has cochlear implants. “When she comes for specials at school, we sign ‘I love you’ to each other.” Also, the sign language teacher invited her to speak to her class. Elder sees her experience as a gift she is happy to share.
prom king, and graduating with his classmates with a state diploma. This summer, he participated in Akron Rotary overnight camp as well as Camp Cheerful, which he has attended since 2018. As part of the Best Buddies program of Baldwin-Wallace University, Jones was paired with two buddies who have become his good friends, joining him at movies, out to eat and other community activities. Jones was even selected as a spokesperson for the organization this year, which included a speech at the annual event. Additionally, two years ago, Jones took part in a six-month pilot internship program, where he assisted a clinic physical therapist with equipment preparation and upkeep.
When not busy with school, church and youth groups, Jones’ hobbies include swimming and trains, marked by a memorable visit to Strasburg Railroad in Pennsylvania. He especially enjoys theater, music and drums, hopes to get involved in the Beck Center for the Arts, and dreams of one day being able to attend Baldwin-Wallace University.
PHOTOS COURTESY OF ARIANNA ELDER AND STEPHANIE STEWART
Alijah and Stephanie
From Preemie to Post-Secondary Self-Advocate
Jones’ early years were filled with many doctors’ appointments and hospital stays. Recalling his birth story, Jones shares, “Premature birth and oxygen loss due to the prolonged wait during labor caused serious and life-threatening health and survival concerns for me.
“I weighed only two pounds; after cleaning me up,” he says. “I was one pound and nine ounces. I had emergency heart surgery in the NICU. I am told that while my mother and aunt were visiting me, alarms started to ring and they were rushed out of the unit [so it could be performed right then and there]. While in surgery, a hospital Chaplain was called in to bring my mother comfort, prayer and to baptize me… The NICU became my mother’s second home as she managed the stress of having a baby in intensive care while also caring for my teenage brother... [After three months] I was discharged with a feeding tube, breathing monitor and detailed care instructions.”
Stewart describes Alijah’s growth over the years, beginning with feeding, respiratory, speech, occupational and physical therapies. “Over time he graduated to physical therapy and an autism coach to help him communicate, for instance with social skills group sessions,” she says.
Throughout school, Jones had an individualized education program (IEP), used a vision board to help him see better and ramps with his walker for stability and independence.
“Classmates were willing to help me when I needed it,” Jones says. “They learned that being friends with someone who has disabilities can be like any other type of friend.”
His classes include theater and American history at Tri-C Western Campus with Medina Creative Transitions (M.C.T.). It offers hands-on assistance for people with disabilities.
He continues to use a walker for community and college mobility, in addition to a smart wheelchair to maneuver himself and navigate longer distances.
While he admits college is a departure from high school — and managing the work required by professors can be stressful at times — Jones has found that taking and prioritizing one class at a time works for him.
“It may be a slower pace, but for me it is better to go step by step,” he says.
“The M.C.T. staff takes time with all of us to see what is best for each student,” Jones says “They help with scheduling appointments with counselors and professors so that they can understand my needs and how to make the lessons accessible to me. For example, I can sit closer, get someone to help me write, use a magnifier to help me see better and a recorder to help me go back and listen to the lectures. My disability presents daily challenges that may not be easily understood by others. My family has supported me in every way to allow me to do just about anything an able person can do. I may require some adjustments accessing buildings or areas, yet they never stop me. Being disabled doesn't mean this is the end of anybody’s life as this is a good life and it’s luckily mine.”
Caregiver Guidance and Growth Stewart shares advice for other families. “Resources are critical,” she stresses. “They are out there, but don’t be afraid to step in, ask and advocate. Find out what you can get involved in. Some things will go right, or you’ll advocate to make it right, like making a phone call for a ramp or coordinating a combination of supports.”
She also suggests maintaining any special connections you make along the way, citing her son’s high
school secretary who he bonded with through daily office visits, coffee and conversations.
She encourages others to plan for transitions early, for instance looking ahead to milestones at age 12, 16 and guardianship at 18. Helpful advisers for them included a nurse practitioner specializing in complex care and a county service and support administrator (SSA), who is assigned when a person applies and becomes eligible for county board services.
Stewart describes her own growth on this journey as well.
“I used to cry a lot, but I told myself I’ve got to buckle up; crying is not going to get it. I try to keep a balance, especially being a single mom, taking time for myself as Alijah’s gotten older. I look for support from family, friends and groups, keep a pocket calendar, and work part-time to allow myself to navigate everything.”
Stewart drives more than her own children’s endeavors, providing special needs bus transportation for students in her school district after also serving as an aide. She knows what a difference small steps each day can make to engage students and put parents at ease knowing how much staff cares. In addition to church commitments, she also serves on the board of the Superhero Project, which featured a picture of Alijah on its recent Kelly Clarkson Show appearance.
“When someone asks me to get involved, I extend myself to make sure we are leading a good way for others.”
For more information on Medina Creative Living Transitions services, including the Day Program, Post-Secondary College Program, Summer Career Skills & Exploration, and Independent Living Experience, or to set up a tour, visit medinacreativehousing.com or contact Nancy Brewer, Academic Coordinator at 330-388-5880 or nancy@ medinacreativeaccessibility.com.
ADDITIONAL INFORMATION ON ORGANIZATIONS MENTIONED:
Youth Challenge (Westlake) youthchallengesports.com and 440-892-1001
Akron Rotary Camping Programs for children and adults with special needs gotcamp.org/akron-rotary-camp and rotarycamp@akronymca.org
Camp Cheerful (Strongsville) achievementcenters.org and 440-238-6200
The Superhero Project superheroprojectkids.org and hello@SHPkids.org
Alijah Jones
Special Advertiser Listings
Achievement Centers for Children
Achievement Centers for Children has served the community since 1940 with a mission of empowering children and adults with disabilities to achieve their greatest potential through holistic and familyfocused services. It is home to Camp Cheerful, Ohio’s first recreational camp for those with disabilities, which today provides year-round camp programs. Its services also encompass an Autism School and other educational programs, Adult Services, Family Support, Therapy and Recreation (including Adapted Sports and Therapeutic Horsemanship). To learn more, call 216-292-9700 or visit achievementcenters.org.
Each participant in Beck Center’s Creative Arts Therapies program receives attention that is individualized with personally-designed goals tailored to meet their needs. Staffed by board certified arts therapists and professional adapted instructors, Beck Center’s program is the first of its kind in the state of Ohio. 216-424-7634, beckcenter.org/education/creative-artstherapies
Cleveland Museum of Natural History
referral through a free HelpLine, and online diagnosis guides; support with a Facebook caregiver group and social clubs for all ages. Learn more at autismakron.org or contact ASGA at info@autismakron.org or 330-940-1441.
Blossom Hill
Since 1968, Blossom Hill has provided personalized, loving care. Its history includes the first group home in Cuyahoga County designed to meet the unique needs of each individual within its care. Today’s services range from family-style group living (respite and long-term residential care) to supported living services for individuals in their own homes to day programming. All care is delivered by a trained, dedicated staff of nurses, cooks, direct support
The Cleveland Museum of Natural History illuminates the world around us and inspires visitors to engage with the natural forces that shape their lives. Since its founding in 1920, the pioneered scientific research to advance knowledge across diverse used its outstanding collections, which encompass millions of artifacts and specimens, to deepen the public’s understanding of the dynamic connections between humans and nature. Through its Natural Areas Program, the Museum stewards more than 12,500 acres of protected ecosystems across northern Ohio. Visit cmnh.org
Community Fund Ohio
For more than 30 years, Community Fund Ohio has empowered individuals with disabilities across the state to live fuller, more secure lives. We protect access to vital government benefits while supporting current and future needs through pooled special needs trusts and grant funding. We also provide education and related services to help individuals, families, and professionals navigate the complexities of disability planning with confidence. Learn more at communityfundohio.org.
Connecting for Kids
Connecting for Kids (CFK) provides resources, support and community to families in Northeast Ohio who have concerns about their child. CFK supports families who have children with mental health concerns, developmental delays and disabilities, as well as those facing major life changes through programs, resource fairs and Ask Us 1:1. Programs include support groups for adults, presentations by professionals, and hands-on programs for caregivers and their child. Ask Us 1:1 offers support with Family Resource Specialists who meet with families to help them navigate resources. All programs are offered free to families. Online and in-person support is available. connectingforkids.org
Cuts
N Curls
Cuts N Curls is a unique adult and children’s hair salon, retail store and birthday party venue that prides itself on being sensitive to your family’s needs. The specially trained staff makes sure your experience is both safe and fun. Solon, 440-542-1750, cutsncurls.net
Cuyahoga County Board of Developmental Disabilities (Cuyahoga DD)
Cuyahoga DD supports and empowers people with developmental disabilities to live, learn, work, and play in the community. They serve 15,000 county residents of all ages each year. Cuyahoga DD is primarily supported by a property-tax levy last approved by voters in 2005. 216-241-8230, general Information; 216-736-2673, eligibility. ntake@cuyahogadd.org, cuyahogadd.org
The Down Syndrome Association of Northeast Ohio
DSANEO provides support, education and advocacy for individuals with Down syndrome, their families and communities.
DSANEO is the primary resource for families and communities regarding Down syndrome, where all people with Down syndrome are accepted, included and empowered. DSANEO supports individuals with Down syndrome through their lifetime with family support programs, education enrichment for toddlers to teens, life skills classes, social programs, medical outreach and advocacy. DSANEO supports more than 1,100 individuals with Down syndrome and their families throughout 16 Northeast Ohio counties. 216-447-8763, dsaneo.org
Education Alternatives
Education Alternatives provides specialized education for K–12 students at eight locations across Northeast Ohio. They use a compassionate, experience-informed approach to help children with behavioral challenges and autism, with personalized plans based on each child’s needs and ACE score. Students receive both academics and therapy, including ABA therapy, counseling, behavior support, and psychiatry. REACH Behavioral Health delivers therapeutic services at every site. Education Alternatives is also an approved provider for the Jon Peterson and Autism Scholarships through the Ohio Department of Education and Workforce. Learn more at easchools.org
Eisner Gohn Group
Friendship Circle
Friendship Circle sparks friendship, connection and support for children of all abilities, their families and teen volunteers. Children, teens and young adults with developmental disabilities are provided a unique opportunity to make friends and enhance their social skills through a variety of interactive programs alongside their peers. Teen volunteers are given an opportunity to experience joy and fulfillment from helping others, while also learning how they can help make the world more inclusive and accepting. Friendship Circle offers a safe place for these friendships to form organically, while also providing fun activities, field trips, community integration, holiday celebrations, family support, sensory stimulation and so much more. Every child deserves a friend. Contact chava@ friendscleveland.com, call 216-377-3000 or visit friendscleveland.com
I Am Boundless
For more than 40 years, I Am Boundless, a statewide nonprofit, has provided people with intellectual and developmental disabilities and behavioral health challenges the freedom and opportunity to live boundless lives. It serves all ages and abilities in autism services, primary care and dental appointments, job training, counseling and residential support. It proudly provides person-centered care that celebrates each individual and encourages them to become active participants in the communities where they live, work and play. To learn more about how Boundless can help you or your loved ones, visit iamboundless.org.
Julie Billiart Schools
Eisner Gohn Group is a leading resource for life insurance, long term care insurance and long term disability insurance. Its team creates a comprehensive insurance plan for families and businesses. eisnergohngroup.com
Julie Billiart Schools educate, empower and nurture K-8 students who learn differently. JB serves mild-to-moderate special learning needs including ADHD, anxiety, autism, dyslexia and other executive function needs. With campuses in Akron, Brecksville, Lyndhurst and Westlake, it
provides an exceptional learning environment including a maximum 8-to-1 student-to-teacher ratio and intervention specialists in each classroom. Its facilities feature safe and sensory friendly spaces; onsite occupational, speech, art and music therapies; behavior supports; and a nurturing, whole child approach. Learn more or set up a time to visit at juliebilliartschool.org or call 216-716-8318.
Medina County Board of Developmental Disabilities
The Medina County Board of Developmental Disabilities is the community resource responsible for connecting, coordinating and funding services for individuals of all ages with developmental disabilities. It helps with everything from early intervention and education opportunities for children to employment and community inclusive living for adults so they can live, learn, work and socialize in the community. mcbdd.org
Milestones Autism Resources
Milestones
Autism Resources improves the lives of autistic individuals, families, caregivers, and professionals by educating, coaching and connecting them to resources. Providing an annual autism conference, a free helpdesk, community training, and a website with more than 1,500 resources, Milestones is here to support individuals at every age, stage, and ability. Visit milestones. org or visit the Milestones free autism Helpdesk at milestones.org/ helpdesk. To connect with a Spanish speaker, call 216-464-7600 ext. 5.
LiveSpecial.com, a project of NCJW/Cleveland
With more than 1,800 providers, LiveSpecial.com assists families in
finding therapists, financial planners, doctors, recreational opportunities and many other resources for individuals with special needs and those who develop special needs. LiveSpecial. com, a project of NCJW/Cleveland, helps make connections for a longterm need or a temporary one which one may encounter due to illness or an accident. LiveSpecial.com partners with many other agencies to provide free educational programs that deal with the different obstacles and challenges that individuals face with their loved one over time, especially as they age out of the public school’s responsibility at 22 and beyond. LiveSpecial.com facilitates inclusive/integrated activities and programs in the community. It advocates for access for ALL in ALL areas of life.LiveSpecial.com Magazine is published yearly and is available in print and online. Go to LIveSpecial.com to find providers, to read all past issues of our magazine and to see the many resources available.info@livespecial.com 216-378-2204
Nature Center at Shaker Lakes
What will you discover when you unplug and reconnect with the outdoors? Visit the outdoor classroom nestled in the heart of the Shaker Parklands on Cleveland's east side. Unleash your curiosity and explore all that Northeast Ohio native habitats have to offer. The Nature Center at Shaker Lakes is free and open to the public. With over two miles of trails, many ADA-accessible, and connecting trails throughout the Shaker Parklands, outdoor adventure and discovery await all. Check out the programming calendar for fun and engaging events. Visit shakerlakes.org
NPower Services
NPower Services finds and creates social, fitness, artistic and kindness opportunities throughout Northeast Ohio for neurodiverse adults, including: RockAbility, a rock band of neurodiverse and neurotypical musicians; Geauga Joggers & Walkers, a jogging and hiking group for all abilities; Inside Circle, drum and ukulele
circles for all abilities; Power Ups, TNT & cardio drumming fitness groups for all abilities; and Project: Kindness, which puts neurodiverse adults on the giving end of service. npowerservices.com
Pinecrest
Located just off I-271 in Orange Village, Pinecrest, a Tanger Property, is a vibrant open-air lifestyle center offering an elevated mix of shopping, dining, and entertainment. Featuring market-exclusive stores like Alo Yoga, REI, West Elm, and TravisMathew alongside chef-driven restaurants like Kitchen Social, Lao Sze Chuan, and The Last Page. Pinecrest blends convenience, style, and experience in a thoughtfully curated, walkable environment that appeals to both locals and visitors. The district also features upscale residences, modern office space, and the AC Marriott hotel, making it a true live, work, play destination. Learn more at tanger.com/pinecrest.
The Stark County Board of
Developmental Disabilities
The Stark County Board of Developmental Disabilities supports over 4,900 children and adults with intellectual disabilities in Stark County—helping them live, learn, work, and play in their communities. Stark DD provides cost-effective funding for early intervention, school programs, community residential support, employment navigation, and advocacy education. By leveraging local tax dollars, state, and federal resources, it coordinates and monitors personalized services to meet each person's unique needs. starkdd.org
Stride Mobility
providing tailored solutions that promise comfort, stability, and mobility for individuals of all ages. From the energetic toddler exploring the world on wheels to the spirited senior cherishing their independence, the company's range of complex rehab wheelchairs, scooters, and adaptive seating systems ensures that everyone can experience life's journey to the fullest. Get connected with one of their certified therapists who provide not just equipment, but expedient on-site fittings and service, education, and unwavering support. 419-616-6017, stridemobility.net
Summit County Developmental Disabilities Board (Summit DD)
Summit DD is the community resource that connects more than 5,000 children and adults with developmental disabilities to the support they need to reach their goals. The levy-funded agency provides, coordinates, and funds essential services that people with disabilities rely on each day. From early intervention services for infants to in-home supports for adults, Summit DD provides a lifetime of support for those eligible for services in Summit County. Find out how Summit DD helps position people for success at summitdd.org or by calling 330-634-8000.
Welcome Home
Stride Mobility is dedicated to enhancing mobility for those who seek to maintain an active lifestyle. Their personalized Complex Rehab Technology (CRT) is a game-changer,
Welcome House, Inc. is dedicated to helping individuals with developmental disabilities live full and rewarding lives by providing a variety of residential services in an atmosphere of a caring community. Welcome House currently provides residential services to over 200 individuals with developmental disabilities every day in a total of 45 residential sites. It provides respite services, shared living, adult day services and transportation. Welcome House is committed to ensuring excellence in care, compassion and the services they provide. Contact at welcomehouseinc.org or 440-356-2330.
How to Support a Child With Autism in the College Transition
By Kadin McElwain
In 2022, I was preparing to transition into my freshman year at Lake Erie College. I had just graduated from high school during a pandemic while working two jobs and was confident in my ability to go to college — or at least I acted like I was.
On the inside, however, I was terrified of the idea of college, as many rising college freshmen are, neurodivergent or not. But as an autistic individual, I was about to leave my routine and prepare for the next chapter of life. I had no idea what to do. But I had parents who supported me every step of the way.
One of the biggest lessons that my parents have taught me is to embrace who I am and not to worry about everyone else. If people don’t like you for who you are, that is their problem, not yours. They are the ones who will miss out on an amazing person due to their ignorance. This lesson has helped me increase my self-confidence. But there was something else my parents did that calmed my worries about what college would be like.
Two days before I was set to move into my dorm room, I still had some worries about what the experience would be like. So my Dad took me to the college to tour the campus to help calm these concerns.
After having a look at the campus and enjoying one of my favorite things about the college experience — the food — I got excited about this new adventure I was about to go on. I am extremely
Kadin McElwain is an college student, writer, and activist with autism on a mission to raise as much awareness about autism as possible. During his life, his capabilities were questioned due to the stigmas surrounding autism. But thanks to a supportive set of parents, he proved his naysayers wrong.
As an autistic individual, I was about to leave my routine and prepare for the next chapter of life.
thankful that my Dad decided to take me to the campus. While it wasn’t exactly like living at home, I ended up enjoying my experience with dorm rooms, aside from a few socially unaware roommates.
For the last two years of college, I decided to finish online while living at my parents’ house in order to save money on room and board. To be more accurate, they proposed this idea because housing and a meal plan make up the majority of the cost of university.
Coincidentally, the university was offering a scholarship for those who went online that year. So this was a no-brainer for me, and my family supported me in this decision. While we occasionally have our disagreements, as most families do, the love that we have for one another is enough to look past any arguments
we may have.
The moral of this story is that when you have an autistic child who’s about to transition into the world of college and adulting, your support means everything to them. If it wasn’t for my parents supporting me every step of the way, I would’ve never built up the confidence to start planning my adult life.
Autism is a misunderstood disorder that may make parents worry about their child’s future. But if they commit to supporting their child no matter what comes their way, just like my parents did for me, they’ll have the potential to produce another success story. Most importantly, the child will have confidence in their own abilities and be able to pass that on for generations.
